Florida State University Libraries Electronic Theses, Treatises and Dissertations The Graduate School 2006 The Effect of Music Listening on Mood State and Relaxation of Hospice Patients and Caregivers Seong-Eun A. Kim Follow this and additional works at the FSU Digital Library. For more information, please contact [email protected] THE FLORIDA STATE UNIVERSITY COLLEGE OF MUSIC THE EFFECT OF MUSIC LISTENING ON MOOD STATE AND RELAXATION OF HOSPICE PATIENTS AND CAREGIVERS By SEONG-EUN A. KIM A Thesis submitted to the College of Music In partial fulfillment of the Requirements for the degree of Master of Music Degree Awarded: Fall Semester, 2006 The members of the Committee approve the thesis of Seong-Eun A. Kim defended on June 5, 2006. ______________________________ Jayne M. Standley Professor Directing Thesis ______________________________ Clifford K. Madsen Committee Member ______________________________ Dianne Gregory Committee Member The Office of Graduate Studies has verified and approved the above named committee members ii ACKNOWLEDGEMEMTS I would like to thank God, who has given me the talent to share my passion for music with people. To my parents, who loved and supported me with endless prayers and believed in me. To Goeun, my sister and my best friend, who always there for me. To Dr. Standley, who taught and shared her passion for music therapy and guided me through out my graduate studies. To Natalie Wlodarczyk, for her encouragement and continuous support and music therapists, music therapy interns, and all staffs at Big Bend Hospice for their generosity and helping make this study possible. iii TABLE OF CONTENTS List of Tables ……………………………………………………………………………… vi List of Figures …………………………………………………………………….………..vii Abstract ……………………………………………………………………………………. viii CHAPTER 1 ………………………………………………………………………………. 1 Introduction ………………………………………………………………... ……... 1 Review of Literature ………………………………………………………………. 1 CHAPTER 2 ………………………………………………………………………………. 11 Purpose and Null Hypothesis ……………………………………………… ……... 12 Subjects ……………………………………………………………………………. 12 Setting ……………………………………………………………………..………. 14 Design …………………………………………………………………….……….. 14 Material ……………………………………………………………………. ………15 Measure ……………………………………………………………………. ………15 Procedure ………………………………………………………………………….. 16 CHAPTER 3 ………………………………………………………………………………..17 Results ……………………………………………………………………... ………17 CHAPTER 4 ………………………………………………………………………..………27 Discussion …………………………………………………………………..……... 27 APPENDICES …………………………………………………………………………….. 29 Appendix A: Human Subjects Committee Approval Form ……………………….. 29 Appendix B: Patient Consent Form (Experimental Group) ……………………….. 31 Appendix C: Patient Consent Form (Control Group) …………………….……….. 33 Appendix D: Legal Guardian Consent Form (Caregiver- Experimental Group)….. 35 Appendix E: Legal Guardian Consent Form (Caregiver- Control Group) .……….. 37 Appendix F: Patient Assent Form (Experimental Group) ………………………… 39 Appendix G: Patient Assent Form (Control Group) ………………………………. 41 Appendix H: Legal Guardian Assent Form (Caregiver- Experimental Group)……. 43 Appendix I: Legal Guardian Assent Form (Caregiver- Control Group) …...………45 Appendix J: Relaxation Scales ……………………………………………………..47 iv Appendix K: Music Preference Chart ……………………………………... ………49 Appendix L: Big Bend Hospice Music Therapy Assessment Form ………………. 51 Appendix M: Visual Analogue Mood Scales …………………………….……….. 53 Appendix N: Raw Data ……………………………………………………………. 62 REFERENCES ……………………………………………………………………………. 72 BIOGRAPHCAL SKETCH ………………………………………………………………. 77 v LIST OF TABLES Table 1 Patient Demographics …………………………………………………………….. 11 Table 2 Caregiver Demographics …………………………………………………………. 12 Table 3 Design …………………………………………………………………………….. 14 Table 4 Results of Repeated measures ANOVA for VAMS of patients……………………17 Table 5 Pretest/Posttest Mean for negative ……………………………………….………..18 and positive mood across sessions of patients Table 6 Results of Repeated measures ANOVA for VAMS of caregivers…………………19 Table 7 Pretest/Posttest Mean for negative and …………………………………………… 19 positive mood across sessions of caregivers. Table 8 Interpretation of VAMS T scores ………………………………………………….20 Table 9 Overall Pretest/Posttest Mean for negative ………………………………………..20 and positive mood by group of patients Table 10 Overall Pretest/Posttest Mean for negative ……………………………………… 21 and positive mood by group of caregivers. Table 11 Pretest/Posttest Mean for Relaxation Level by group of patients ……………….. 22 Table 12 Results of Repeated Measures ……………………………………………………24 ANOVA for Relaxation Level of Patients Table 13 Results of Repeated measures ……………………………………………………24 ANOVA for Relaxation Level of Caregivers Table 14 Pretest/Posttest Mean for relaxation level by group of caregivers ……………… 25 vi LIST OF FIGURES Figure 1. Patients’ Relaxation Level Graph across sessions………………………………..23 Figure 2. Caregivers’ Relaxation Level Graph by groups ………………………………….26 vii ABSTRACT The purpose of the study was to investigate the effectiveness of music listening on mood state and relaxation of hospice patients and caregivers. Subjects (N=39) were patients (N=24) receiving Big Bend Hospice care who were admitted to Big Bend Hospice House, an in-patient unit, or resided in assisted living facilities in Leon County, Gasden County, Jefferson County, and their caregivers (N=15). Subjects were randomly assigned to one of three groups: preferred music, unfamiliar music, and no music. The experimental groups received for 15-30 minutes of music listening for three days within a seven day period. The control group received preferred activities excluding music for 15-30 minutes for three days within a seven day period. Pre and posttests were given each session. The Visual Analogue Mood Scales and Relaxation Scale were used to measure changes in mood and relaxation. Repeated measures ANOVA statistical analyses were conducted in this study. Results revealed a significant difference between negative and positive moods and relaxation levels pre and post in both patient and caregiver groups. viii CHAPTER 1 Introduction People who have been diagnosed with a terminal illness can experience anxiety, fear, sadness, physical pain and negative responses to environmental elements. These symptoms interrupt enjoyment and activities of everyday life. Often times, people who are at the end of life, spend most of their time at home, in a nursing home, or in an in-patient hospice facility (Krout, 2000, Hilliard, 2004). Sometimes they watch TV, talk to family members, sleep, or listen to music to take their mind off their emotional/physical pain. Many of the clinical research studies in palliative care show that music enhances quality of life, decreases anxiety and fear, decreases perception of pain, helps express feelings, helps with issues regarding family relationships, and provides comfort (Krout, 2000). According to Weber (1999), music listening is used “to facilitate relaxation and to aid in pain management in a palliative care setting.” Music therapy case studies in hospice reveal that music listening is the most used clinical technique in hospice and palliative care. A survey done by Fellow and Jones (1994) indicated that a music listening activity was the most popular choice for relaxation techniques. A research study by Davis & Thaut (1989) discovered that “ state anxiety and selfreported levels of relaxation decreased consistently while listening to preferred music.” Review of Literature Effects of Music Imagine there is no music when watching TV, commercials, movies, going to sports games, stores, attending church or many other activities. It would probably feel empty, awkward, and somewhat out-of-place. There would probably be no excitement or even emotional response (Hays, & Minichiello, 2005). Life would be incapacitated. Often times people say, music is a universal language, or music is song, expression without words. Encyclopedia Britanica defines music as “ [an] art concerned with combining vocal or instrumental sounds for beauty of form or emotional expression, usually according to 1 cultural standards of rhythm, melody, and, in most Western music, harmony” (Britanica, 2005). Bruscia (1998) reported that “individuals can use music to express the human condition as well as their own unique ideas, feelings, and identities” (p. 100). Music plays an important part in our lives. It is gracefully intertwined within our lives. Music has the enormous power to unite people as one. Fans cheer for their team and shout to encourage their team to win the game (Wodraska, 2006). During tragic times such as the 9/11, Katrina, or Tsunami disasters, musicians give concerts to help victims, families and friends by sharing and dedicating their music to people (Stamberg, 2001). It is a tool that reflects emotions, creates a comforting environment, and binds people together. Many people start listening to music when in their mother’s womb. As a baby, a mother sings songs or lullabies to her baby to comfort them. Babies respond to the music by interacting with the mothers, giggling, smiling or peacefully sleeping. As children, they respond well to music and other auditory stimuli (Ang, 2005). When children reach adolescence, the impact of music plays a huge part in their lives. Music becomes the outlet for them to express their feelings, to match their mood, and to socialize with friends. A research study by Woody and Burns (2001) found that 63% of non-music major undergraduates responded that they “choose music to match their mood”, and 37% of the students responded that they “choose music to change their mood” (p.4). Schwartz and Fouts (1999) reported that the purposes of listening to music among adolescents were to feel better, to relieve boredom, and to keep the mood they are in. When older people listen to music from young adulthood, it brings back many memories and a variety of emotions. Music effects everyday life in many different ways: socially, as entertainment, commercially, and medically. Social gatherings like weddings and parties use music to create an enjoyable and happy atmosphere and to increase mood level in people. People show it by dancing, laughing and increasing in levels of talking while socializing. In performances such as going to a concert, or watching a music video, the artist communicates and expresses his/her emotion through music. In commercial fields, there has been numerous research studies about the effect of music in various commercial settings such as the amount of time callers will wait on hold (Knott et al, 2004), the amount of time customers spend in a particular store (Milliman, 1982), and the effectiveness of advertising (Kellaris, Cox, & Cox, 1993). 2 Knott et al. (2004) studied the effect of music choice and announcement duration on the wait time on hold. Two groups were compared. Results showed higher satisfaction when subjects were allowed to choose music during the wait time as compared to the subjects were not allowed to choose music. The study also found that the long announcement created more accurate wait time estimation than did the short announcement. Milliman (1982) examined the effect of background music on behavior of supermarket shoppers’ behaviors. The study was conducted in a medium-size chain of supermarkets. The study observed each customer and compared how long it took to pass between these three sections in the store: no music, slow tempo music and fast tempo music. Results showed that instore traffic flow was slower with slow tempo music than the faster tempo music and the in-store traffic flow during slower tempo music was slower than during the no music group. Kellrais, Cox, & Cox (1993) explored the effect of music on advertising. Two hundred thirty-one students from upper-level business classes at an urban university participated in this study. Each participant was randomly assigned to listen to the radio ad (voice over background music) produced by the researcher. This study found that when “music evokes messagecongruent (versus incongruent) thought”, the audience attention increased as did the message reception (p. 114). Research that shows the effect of music and its use in various medical treatments is abundant. Standley’s (2000) meta-analysis demonstrated that the use of music can be beneficial in several medical and dental treatments, especially for patients who are experiencing pain and anxiety. According to Standley’s (1986) research study, music was used “as an audioanalgesic in dental procedures” (p.3). The positive outcome of the effect of music in dental procedures led many other researchers to use music and experiment in medical surgery with obstetric/gynecologic patients and pediatric patients. These studies found decreased pain, anxiety, and levels of analgesic medication (Standley, 1986). Music is effectively used in gynecology treatment during childbirth. Hanser, Larson, and O’Connell (1983) used music with seven expectant mothers during labor to assist in increasing relaxation and decreasing anxiety and pain from environmental sound. They focused attention on the music, cued rhythmic breathing with music, and promoted positive thinking through music listening. The results indicated that 100% of the mothers who were in the specially designed 3 music group during labor displayed less pain and anxiety as compared to the mothers who had received the same relaxation instruction but no background music during labor. The effectiveness of music is also evident with pediatric patients for pre and post surgery. Other tests and treatments reduce anxiety, pain, decrease amount of analgesic drugs, and promote recovery from procedures (Robb, Nichols, Rutan, Bishop, & Parker, 1995). Robb et. al (1995) investigated the effect of music on preoperative anxiety of pediatric burn patients. Twenty pediatric burn patients aged 8 to 20 years in a pediatric burn hospital participated in the study. Participants were divided into either experimental or control groups. Participants in the experimental group received music assisted relaxation such as music listening, deep breathing, imagery, and progressive muscle relaxation during the preoperative period. Participants in the control group received standard preoperative procedures. Results showed a significant decrease in the anxiety score in the experimental group but so significant change in anxiety. Strauser’s (1997) study examined the effect of music listening versus silence prior to and right after chiropractic treatment and measured state anxiety, perceived relaxation, and physiological responses of the patients. Results showed music listening groups had significantly less anxiety and tension; however, there were no significant differences in physiological measurements between music and silence. Standley (1992) reported that patients who listen to recorded music either before, during, or after chemotherapy showed decreased anxiety levels and less incidence of nausea and vomiting. Standley (2000) also reviewed numerous research studies on the effect of listening to music of different populations receiving medical treatment such as bronchoscopy, gastrointestinal endoscopy, coposcopy and many others (p. 6). Matejeck, Mulik-Kolasa, and Stupnicki (1996) investigated the effectiveness of music listening on physiological responses of pre-surgical patients before and after non-orthopedic surgery. Physiological responses such as heart rate, glucose count, skin temperature, cardiac output, and arterial pressure were measured every 20 minutes during the hour prior to surgery. Results found that physiological responses returned to original levels in the music listening group while the non-music listening group showed signs of stress. Bonny (1983) evaluated the effect of programmed taped music on stress reduction of patients in an intensive coronary care unit. Twenty-six patients participated for a 10 month period. Patients were asked to choose tapes to listen to (classical, folk, country, jazz, and swing). 4 The result of this study showed decreases in anxiety, depression, and heart rate, and increased pain tolerance. Mood State and Relaxation Patients who have been diagnosed with a terminal illness go through emotional chaos: anxiety, fear, sadness, and anger. They also experience physical pain as well as psychological distress, sensitivity and negative responses to environmental elements. All these physical and psychological distresses interrupt daily life. Patients who are at the end of life receive care mostly at home and patients who do not have family that could provide care or whose caregiver needs to rest or work, receive care at a nursing home, assisted living facility or an in-patient hospice facility (Forman, Kitzes, Anderson, & Sheehan, 2003). Patients who receive care from nursing homes and other facilities may spend most of their time in their room. Because they are bed-bound, the choice of activities which they are able to participate may be limited. So they may watch TV, sleep, or have conversations with family members and staff. Sometimes they may listen to music to take their mind off of pain, fear, loneliness, and isolation. When people associate thoughts with the word “music”, most cite something that is positive, pleasant and relaxing (Davis & Thaut, 1986). Music is also associated with how we feel or the mood state that we are in. North and Hargrave’s (2002) article states that “music is important. It is prevalent in everyday life [and] a tool we use to achieve desired psychological states and a means of defining our identity and many research studies show the effect of music on positive physiological and psychological changes” (p. 407). Burns (2001) reported that many psychosocial treatment research studies show positive effects of music therapy in cancer treatment as a psychosocial intervention in “alleviating emotional distress and improving quality of life” (p. 54). Burns (2001) also found that many clinicians and researchers in the music therapy field have implemented a music therapy intervention “to decrease pain and nausea, improve mood, increase quality of life, and increase family communication” (p. 54). Numerous anecdotal reports from clinical case studies have demonstrated the effectiveness of music therapy and the use of its intervention to improve mood states with different types of populations like “depressed older adults (Hanser & Thompson, 1994) and forensic patients (Thaut, 1989)” (p. 21). A pilot study by Magee, and Davidson (2002) examined the effect of music therapy on mood states in neurological patients. Fourteen subjects with 5 neurological disabilities residing in a rehabilitation facility participated in the study. A Profile of Mood states (Bipolar form) was compared pre and post session. The study reported “significant differences in positive directions [in certain mood states:] composed-anxious, energetic-tired and agreeable-hostile after music therapy intervention” (p. 24). In this research study, Magee and Davidson (2002) cited numerous studies that support the effect of music/ music therapy on mood states. The use of music therapy to facilitate behavioral and psychological changes in people with stroke shows statistical significance for improving feelings of depression and anxiety (Purdie, Hamilton, & Baldwin, 1997). Music also improves mood states in neurological patients with music therapy intervention showing greater improvement than that experienced by the control group (Nayak, Wheeler, Shiflerr, & Agnostinelli, 2000). Merriam-Webster’s medical dictionary defines relaxation as “the act of relaxing or state of being relaxed” and the reduction of contractile force in a muscle or muscle fiber” (2005). By observing behavioral responses such as body posture, respiration rate, facial expression, and other physical movements, clinicians are able to tell whether or not a person is relaxed. Also, decreases in anxiety, depression and stress level are signs of being relaxed. Various music therapy studies used music as a tool for relaxation: music listening, music as background, music assisted relaxation, or music with guided imagery. According to the survey by Fellows and Jones (1994), listening to music was the most popular and most frequently used method for relaxation. Miluk-Kolasa & Matejek, (1996) evaluated the effect of music listening on physiological changes with presurgical patients. Researchers found that patients who were told about their surgical procedure and allowed to listen to music were calmer than the patients who did not listen to music. Results of this study were measured by heart rate, arterial pressure, skin temperature, and glucose count of the patients. Stratton (1992) conducted a research study to examine the effectiveness of music when stressors were given. Ninety undergraduate students participated in the study and were told that they were participating in a psychological experiment. Some participants were asked to sit in the hallway in silence and others were asked to sit in the hallway with soothing background music. Behavioral responses were videotaped. Results showed that the participants who were sitting in the hallway listening to the music were less anxious and less active than the group sitting in silence. 6 Hirokawa’s (2004) study, the effect of music listening and relaxation instructions, examined arousal changes and memory tasks in older adults. There were fifteen female older adults who participated in all three conditions: preferred music, relaxation instruction, and silence for 10 minutes. Arousal level, energy, tiredness, tension, and calmness were measured before and after the session. Results indicated the preferred music condition increased the energy level and decreased tensions. Caregivers It is certainly difficult, sad, painful, and exhausting to care for patients who have a terminal illness. It takes a great deal of emotional and physical energy. Not only does the patient go through physical and emotional pain and anxiety, but also the caregiver feels emotionally and physically distressed, tired and sad about loosing loved one (Kinsella, Cooper, Picton, & Murtagh, 1998). When it comes to taking care of a patient who is facing the end of life sitting next to the bedside all day long and constantly monitoring the patient, it is emotionally and physically stressful and fatiguing (National Hospice Palliative Care Organization, 2005). Helping with daily dressing changes, feeding, monitoring safety, and stabilizing medications also contributes to physical burnout (National Hospice Palliative Care Organization, 2005; Kinsella, et. al, 1998). Caregivers of hospice/palliative patients recognize that the priority is the patient, not themselves. However, caregivers need to realize that not only the patient needs care but caregivers need care as well. They also need assistance to cope with and to deal with stress, loss, and grieving over a loved one. Caregivers need to rest and do things they enjoy for stress relief, emotional comfort and for their well-being. This could be taking a walk, reading a book, or talking to the loved ones and family members by reminiscing about the times and memories that they have shared (National Hospice Organization, 2006; Forman, Kitzes, Anderson, & Sheehan, 2003; Munro, 1984). Hospice nurses, social workers, or certified nursing assistants providing care for patients and the family also experience stress and physical burnout. It is not easy to provide constant care and interaction with patients who are faced with death. It is a very sensitive matter. Some patients might have difficulties communicating with family, some might be faced with financial issues, and some might have other kinds of unresolved problems. Therefore, as care providers, 7 they work as a team and as a mediator between patients and families to increase overall quality of life (Kalish, 1980; Quill, 2001). Music Therapy plays an important and valuable role in hospice care not only for patients but also for families and caregivers. Krout and Dileo (2000) state that “music therapy has evolved as a complementary therapy to many traditional medical services and procedures provided to persons with life-threatening illnesses” (p.325). Music therapy is using music to achieve physical, spiritual, and psychological needs of patients or clients and helps caregivers (family and staff) communicate with patients better and in non-threatening ways. In the music therapy study, Strauser (1997) reported that, “There are two major categories that delineate the coping progress: instrumental and palliative. Instrumental is defined as environmental changes via direct action. Palliative is decribed in more cognitive terms by regulating emotions and minimizing perceptions. Music therapy facilitates both instrumental and palliative coping strategies by providing a controlled environment within the session to identify and solve problems. It also facilitates both strategies through relaxation and visualization (Hanser, 1985)” (p.91). In a study by Allen, and Blascovich (1994), the effect of music on physicians’ stress level while operating was evaluated. Fifty surgeons participated in the study. The results indicated that surgeons who listen to music while operating were physiologically less aroused than the surgeons who performed operations in silence. Music Therapy to Improve Quality of life “Every patient has his or her own unique belief system about the illness, and each member of the family also has his or her own beliefs” (Hall, Stone, & Fiset, 1998 p.46). It may be due to cultural difference, or different physiological responses to treatment and these are important factors when caring for patients with terminally illnesses. The hospice movement started in Britain in the 1960s by Dame Cicely Saunders (Young, 1981, Krout, 2003, Forman, Kitzes, Anderson, & Sheehan 2003). Hospice is a service for patients with life-threatening illnesses using an interdisciplinary team approach to providing comfort, pain management, spiritual, and emotional support (National Hospice and Palliative Care organization, 2005; Hilliard, 2003; Munro, 1984). The focus of hospice care is to deliver holistic care for patients and their families, not to cure the illness (Hall, Stone, & Fiset 1998; Hilliard, 2003). Krout (1999) asserts that music therapy is effective for terminally ill patients for physical problems and for psychological, spiritual and psychosocial problems. The ultimate goal 8 of hospice/palliative care is to decrease pain and provide comfort for patients and families to increase their quality of life until the end (Krout, 1999; Hilliard, 2003). Many of the clinical research studies on palliative care and hospice show that music enhances quality of life, decreases anxiety and fear, decreases perception of pain, helps express feelings, helps with issues regarding family relationships and provides comfort (Krout, 2000). In her theoretical study, O’Callaghan (1993) stated that various music therapy interventions could be used for brain impaired palliative care patients as a communication tool such as song writing, engaging patients in instrument playing, life review through music, and counseling. Kubler-Ross (1974), worked with terminally ill patients and cited music as an effective tool for communication between patients and family. Music therapy case studies in hospice reveal that music listening is the most used clinical technique in hospice and palliative care (Krout, 2000). Boldt (1996) investigated the effect of music on motivation, psychological well-being, physical comfort, and exercise endurance of bone marrow transplant patients. Six subjects participated in this study that compared the effects of music (live or recorded) vs. non-music groups. Results showed that the music increased relaxation, comfort, and endurance. A research study by Davis & Thaut (1989) examined the effect of preferred relaxing music on anxiety, relaxation and physiological responses. Eighteen subjects participated. Heart rate, muscle tension and finger skin temperature were collected for physiological responses. Results reported that “state anxiety and self-reported levels of relaxation decreased consistently while listening to preferred music” (p. 170). In his book, Aldridge (1999) stated that music listening facilitated relaxation and assisted with pain management in a palliative care setting. Numerous clinical studies have discovered that preferred music listening is the most effective. Hogan (1999a), an Australian music therapist, reported that patient-selected music listening (pre-recorded or live) was the most frequently used in her music therapy sessions with terminally ill patients. In a study by Curtis (1986), terminally ill patients were asked to listen to their preferred music for 15 minutes. The results showed decreases in anxiety, discomfort, and pain. Gerdner and Swanson (1993) investigated the effect of individualized music on agitated, confused, elderly persons. Researchers used individualized taped music. Five subjects who resided in a long term care facility, participated in this study. Results showed that all the participants had decreased agitation due to the intervention. 9 Stratton & Zalanowski (1984) examined the effect of music on relaxation and degree of enjoyment. Thirty-six college freshmen participated in the study. They were asked to listen to music for 15 minutes, then answered a questionnaire on relaxation and music preference. The study found that students who liked the music the most were more relaxed than students who liked the music less. The result also found that 70% of the participants who listened to music reported that music enhanced relaxation. Although there are many qualitative, anecdotal, and case studies in hospice and palliative care music therapy citing benefits in patients’ mood, relaxation, and quality of life, there are far fewer studies done in hospice music therapy on caregivers. Caregivers include families and hospice staff such as nurses, certified nursing assistants, family support counselors, and social workers. Also there is a lack of research on hospice patients who reside in hospice in-patient units, assisted living facilities, and nursing homes (Hilliard, 2004). Facing end-of-life is an extremely difficult and sensitive time for both patients and caregivers. Further research is needed for assessing overall quality of life of patients who receive care in in-patient units, assisted living facilities, or nursing homes and effects on their caregivers. 10 CHAPTER 2 METHOD Purpose and Null Hypothesis The purpose of this study was to investigate the effects of music listening on mood states and relaxation levels of hospice patients and their caregivers. Null hypotheses for this study are: 1. There will be no significant differences among music groups and the non music groups on mood state and relaxation levels. 2. There will be no significant difference between the preferred music group and the unfamiliar music group on mood states and relaxation levels. 3. There will be no significant differences on mood states across three days of participation. Subjects Subjects for this study (N=39) were patients (N=24) receiving Big Bend Hospice Care who were admitted to Big Bend Hospice House, an in-patient unit or resided in assisted living facilities in Leon County, Gasden County, Jefferson County, and their caregivers (N=15). All subjects were adults between 18 and 94 years old who consented to participate in the study. The criteria for patients were; patients who were in respite care, who had achieved symptom management (whose medication had been stabilized for two days), and patients who did not have severe dementia. Subjects were selected by referrals from Big Bend Hospice Staff, including registered nurses, music therapists, and family support counselors. Patients were randomly subdivided into preferred music, unfamiliar music and no music groups. Caregivers were defined as family members and professionals giving direct care to patients such as social workers, nurses, certified nursing assistants and bereavement counselors. Caregivers were also randomized into three groups: preferred music, unfamiliar music, and no music. 11 Table 1. Patient Demographics Experiment / Control Age Gender Diagnosis Experiment 1-1 67 Male Stomach Cancer Experiment 1-2 89 Female Debility Unspecified Experiment 1-3 80 Male Lung Cancer Experiment 1-4 74 Male Debility Unspecified Experiment 1-5 81 Female Chronic Obstruct Pulmonary Disease Experiment 1-6 80 Female Debility Unspecified Experiment 1-7 78 Female Lung Disease Experiment 1-8 82 Male Debility Unspecified Mean Age 78.9 Experiment 2-1 84 Female Debility Unspecified Experiment 2-2 89 Female Debility Unspecified Experiment 2-3 87 Female Debility Unspecified Experiment 2-4 64 Female Breast Cancer Experiment 2-5 85 Female Senile Dementia Uncomplication Experiment 2-6 93 Female Debility Unspecified Experiment 2-7 88 Female Vascular Dementia Unspecified Experiment 2-8 85 Female Debility Unspecified Mean Age 81.6 Control 1-1 84 Female Debility unspecified Control 1-2 69 Female Debility Unspecified Control 1-3 89 Female Senile Dementia Uncomplication Control 1-4 94 Female Bronchiectasis Control 1-5 94 Female Debility Unspecified Control 1-6 89 Female Debility Unspecified Control 1-7 86 Male Debility Unspecified Control 1-8 87 Male Cardio Vascular Accident Mean Age 86.5 12 Table 2. Caregiver Demographics Experiment / Control Age Group Gender Role Experiment 1-1 55-94 Female Family Experiment 1-2 55-94 Female Chaplain Experiment 1-3 18-54 Female Nurse Experiment 1-4 18-54 Female Nurse Experiment 1-5 18-54 Female CNA Experiment 2-1 55-94 Female Social Worker Experiment 2-2 18-54 Female Nurse Experiment 2-3 18-54 Female Bereavement Counselor Experiment 2-4 18-54 Female Bereavement Counselor Experiment 2-5 18-54 Female Bereavement Counselor Control 1-1 55-94 Female Social Worker Control 1-2 18-54 Female PCG Control 1-3 55-94 Male Family Control 1-4 55-94 Female Family Control 1-5 18-54 Female CNA Setting Big Bend Hospice (BBH) is a place where palliative care is provided for people diagnosed with terminal illnesses. Comfort and emotional support are provided to patients and their families. BBH also offers care at the Hospice House, a facility that provides care for patients who need short term, 24-hour medical management. It is a 12 bed facility used for patients who need care for pain management, symptom control, and caregivers who can no longer care for patients at home due to the patient’s condition. Design The design consisted of three days of music listening for each of three groups of patients: preferred music, unfamiliar music and no music and three days of listening for each of three groups of caregivers. The independent variables were types of music vs. no music. The dependant variables were mood states and relaxation tested pre and post session. Mood states 13 (eight states) were measured by the Visual Analog Mood Scales. Relaxation was measured by behavior observation using the Relaxation scale, which was adapted from the affect scale portion of the Big Bend Hospice Music Therapy Assessment form. Caregivers in each group were also pre and posted test using the same measures. Table 3. Design Group Preferred Music Unfamiliar Music No Music Patient 8 8 8 Caregiver 5 5 5 13 13 13 Total N=39 Participants 6 groups (N=39): 3 patient groups (N=8 each) and 3 caregiver groups (N=5 each). Material The materials used in this experiment were CD Players (Sony, K231007 and Emerson, PD 5203), patient’s preferred music selection CD made by the researcher, or a compilation CD of solo piano music by Jill Palmer defined as the unfamiliar music. Music was played on the speaker of the CD Player. Measures The Relaxation Scale was adapted from the affect scale of Big Bend Hospice Music Therapy Assessment Form and used for pre and post-test (copy in Appendix L). The Visual Analog Mood Scales (VAMS) were used for measuring patient’s mood state pre-test and posttest (copy in Appendix M). The Visual Analog Mood Scales (VAMS) has been used to assess mood states in neurologically impaired patients. It has also been used for other clinical and research purposes. VAMS has been used to assess patients who are cognitively and linguistically impaired, to screen for mood disorders in primary care settings, to do repeated assessment of mood states in clinical trials researchs and to assess mood states in clinical practice to monitor 14 the efficacy of an intervention (Stern, 1997). It is also used by many different clinicians: clinical psychologists, neurologists, nurses, occupational therapists, social workers, primary care physicians, and physical therapists (Stern, 1997). VAMS has been used in psychiatric and behavioral medicines settings for about 30 years (Stern, 1997). Many clinicians who have used VAMS with psychiatric and pain patients reported that the VAMS has good psychometric properties (Stern 1997). The VAMS measurement is reliable and valid, and easy to use for patients who are cognitively or linguistically impaired (Stern, 1997). The VAMS is administered by using standard instruction included in its manual. Participants were instructed to verbally, use gestures, or to make a pen mark or point on the 100mm vertical line to show how they were feeling at that moment. The score is based on the mark’s location along the line, with a possible score of 0 to 100. According to the manual, “0 represents the extreme lack of endorsement of that mood state and 100 represents the extreme endorsement of that mood state” (Stern, 1997). Procedures After agreeing to volunteer for this study, participants in this experiment were then given the verbal instructions and consent forms. Each of the patients and his/her caregiver groups were randomly assigned to preferred music, unfamiliar music and no music groups. Patients and caregivers listened to music separately. For the experimental groups, the music preference chart, adapted from the BBH Music Therapy Assessment Form, was given as pre-test to determine the participant’s preferred music. A Relaxation Scale assessment was completed by the researcher, and a Visual Analog Mood Scales (VAMS) test was then given as a pre-test before listening to music. Participants were then asked to listen to music for a period ranging from 15minutes (minimum) to a half hour (maximum) for 3 days within a period of 7 days. Then, the researcher turned on the music, left the room and came back after 15 minutes to 30 minutes to give the post-tests. A Relaxation Scale assessment was completed by the researcher, and a Visual Analog Mood Scales test was completed by the subject after music listening. The researcher assisted some participants in turning pages while taking the post-test. 15 For the control group, pre-tests were conducted similarly before subjects participated in any activity they chose (T.V., radio, ambient and reading) except music for 15minutes (minimum) to half hour (maximum) for 3 days within a period of 7 days. The researcher left the room and came back after 15 minutes to 30 minutes to give the post-tests. A Relaxation Scale was completed by the researcher, and a Visual Analog Mood Scales test was completed by the subjectafter the activity. The researcher assisted some participants in turning pages while taking the post-test. The subsequent 2 days of testing were similarly conducted. 16 CHAPTER 3 RESULTS The Visual Analog Mood Scale was used to measure mood states in patient groups pre and posttest for 3 days. A repeated measures ANOVA was used in data analysis of VAMS pre and posttest by group and by time (the 3 sessions). There was a statistically significant difference in overall negative and positive moods, F = 67.489; p < .00. There were no significant differences between pre and posttests, F = 4.229; p > .05. There was no significant difference across time, F = 1.233; p > .05. Table 4. Results of Repeated measures ANOVA for VAMS of patients. Within subjects source df MS F Significance Pre/Posttest 1 151.187 4.229 0.052 Pre/post x group 2 7.99 0.223 0.802 Error(pre/post) 21 35.751 Negative&positive Moods 1 18219.28 67.489 0 Negative/positive x group 2 196.24 0.727 0.495 Error(negative/positive) 21 269.959 sessions 2 49.019 1.233 0.302 sessions x group 4 11.228 0.282 0.888 Error(sessions) 42 39.766 Pre/post x negative/positive 1 9.15 0.398 0.535 Pre/post x negative/positive x group 2 15.297 0.666 0.524 Error(pre/post x negative/positive) 21 22.965 Pre/post x sessions 2 16.716 0.718 0.494 Pre/post x sessions x group 4 30.321 1.302 0.285 Error(pre/post x sessions) 42 23.296 Negative/positive x sessions 2 126.525 1.579 0.218 Negative/positive x sessions x group 4 21.255 0.265 0.899 Error(negative/positive x sessions) 42 80.135 Pre/post x negative/positive x sessions 2 16.463 0.498 0.611 Pre/post x negative/positive x sessions x group 4 37.243 1.126 0.357 Error(pre/post x negative/positive x time) 42 33.074 17 Table 5. Pretest/Posttest Mean for negative and positive mood across sessions of patients. Pretest Group 1 Preferred Pretest 2 Unfamiliar 1st 3 Control negative Total 1 Preferred Pretest 2 Unfamiliar 2nd 3 Control neg. Total 1 Preferred Pretest 2 Unfamiliar 3rd 3 Control neg. Total 1 Preferred Pretest 2 Unfamiliar 1st 3 Control positive Total 1 Preferred Pretest 2 Unfamiliar 2nd 3 Control pos. Total 1 Preferred Pretest 2 Unfamiliar 3rd 3 Control pos. Total M SD n 63.31 54.19 56.58 58.03 61.85 52.33 54.50 56.23 62.63 52.31 53.69 56.21 44.56 38.88 38.88 40.77 40.06 43.06 41.56 41.56 44.56 37.38 42.50 41.48 13.66 7.36 6.95 10.17 13.36 7.87 6.63 10.19 13.82 9.35 8.07 11.24 8.31 8.52 5.40 7.71 8.99 11.01 4.44 8.31 9.81 8.48 8.15 8.99 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 Posttest Posttest 1st negative Posttest 2nd neg. Posttest 3rd neg. Posttest 1st positive Posttest 2nd pos. Posttest 3rd pos. Group Mean SD n 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 64.04 54.71 57.69 58.81 58.73 50.94 52.75 54.14 58.98 51.27 52.46 54.24 40.19 37.94 38.75 38.96 43.25 35.31 39.69 39.42 41.69 36.75 41.63 40.02 13.78 7.46 6.09 10.09 12.58 6.00 6.79 9.20 12.45 6.07 8.78 9.69 7.79 9.41 7.34 7.92 8.42 6.86 5.01 7.38 9.96 7.90 3.95 7.72 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 8 8 8 24 Table 5 shows the results of the VAMS ANOVA and includes pretest and posttest means, n, and standard deviations for negative and positive moods by groups across sessions of patients. Results indicated that the means for negative moods in both pre and posttest were higher for the preferred music group than the other groups indicating more negative attitudes, though scores were within normal limits <59. Mean for positive moods in both pre and posttest were within normal limits >41 (see Table 8). The Visual Analog Mood Scale was also used to measure mood states among caregiver groups. A repeated measures ANOVA was used in data analysis of VAMS pre/posttest by group and by sessions. There was a statistically significant difference between pre and posttest by negative and positive moods, F = 5.639; p < .05. Negative moods scores were significantly higher and generally decreased across time while positive moods fluctuated from session to session. There were no significant differences between pre and posttests by groups, F = .071; p > 18 .05. There were no significant differences across sessions, F = .290; p > .05. Table 6 provides results of the repeated measures ANOVA of the VAMS results for the caregiver group. Table 6. Results of Repeated measures ANOVA for VAMS of caregivers. Within subjects source df MS F Significance Pre/posttest 1 6.226 0.071 0.795 Pre/post x group 2 55.741 0.631 0.549 Error(pre/post) Negative/positive moods Negative/positive x group 12 1 2 88.287 284.114 211.856 0.845 0.63 0.376 0.549 Error(negative/positive) Sessions Sessions x group 12 2 4 336.208 9.138 20.214 0.29 0.641 0.751 0.638 Error(sessions) Pre/post x negative/positive Pre/post x negative/positive x group 24 1 2 31.516 950.011 17.856 5.639 0.106 0.035 0.9 Error(pre/post x negative/positive) Pre/post x sessions Pre/post x sessions x group 12 2 4 168.459 8.139 10.46 0.937 1.204 0.406 0.335 Error(pre/post x sessions) Negative/positive x sessions Negative/positive x sessions x group 24 2 4 8.684 98.829 56.694 1.211 0.694 0.316 0.603 Error(negative/positive x sessions) Pre/post x negative/positive x sessions Pre/post x negative/positive x sessions x group 24 2 4 81.636 21.707 17.829 1.413 1.16 0.263 0.353 Error(pre/post x negative/positive x sessions) 24 15.365 Table 7. Pretest/Posttest Mean for negative and positive mood across sessions of caregivers. Pretest prt1n prt2n prt3n Group M SD n 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 53.07 50.50 55.33 52.97 52.93 52.33 51.00 52.09 49.90 52.13 47.87 49.97 7.29 3.77 5.54 5.68 9.41 10.96 8.79 9.08 8.01 5.06 3.67 5.72 5 5 5 15 5 5 5 15 5 5 5 15 Posttest PtT1n PtT2n PtT3n 19 Group M SD n 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 45.17 45.47 50.67 47.10 48.50 47.43 49.10 48.34 46.67 46.10 47.97 46.91 3.73 2.51 6.73 5.06 8.13 7.30 8.81 7.53 7.88 2.94 6.08 5.61 5 5 5 15 5 5 5 15 5 5 5 15 Table 7. Continued. prt1p prt2p prt3p 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 42.80 47.30 39.10 43.07 47.00 44.30 39.20 43.50 52.00 45.70 43.70 47.13 15.29 6.68 12.09 11.55 10.18 13.30 8.86 10.67 8.90 10.99 11.32 10.35 5 5 5 15 5 5 5 15 5 5 5 15 PtT1p PtT2p PtT3p 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 1 Preferred 2 Unfamiliar 3 Control Total 52.80 47.50 44.90 48.40 53.50 49.70 45.60 49.60 54.70 46.10 51.00 50.60 11.25 9.53 15.73 12.02 9.06 7.91 14.69 10.68 10.03 3.29 13.52 9.87 5 5 5 15 5 5 5 15 5 5 5 15 Table 7 shows the results of pretest and posttest means, n, and standard deviation for negative and positive moods across sessions of caregivers. Results indicated that the means for negative moods in both pre and posttest were within normal limits < 59. Means for positive moods in both pre and posttest were within normal limits >41 (see Table 8). Preferred music group means were consistently higher than those of other groups in all measures for both positive and negative moods. Table 8. Interpretation of VAMS T scores VAMS scale Negative moods Afraid Confused Sad Angry Tired Tense Within normal limits <59 Borderline 60-69 Abnormal >70 Positive moods Energetic Happy >41 31-40 <30 Table 9. Overall Pretest/Posttest Mean for negative and positive mood by group of patients. GROUP 1 Preferred Mean Pre Negative Pre Positive Post Negative Post Positive 62.60 43.06 60.58 41.71 20 Table 9. Continued. SD 2 Unfamiliar 3 Control Total 12.84 4.99 11.97 5.37 N 8 8 8 8 Mean 52.94 39.77 52.31 36.67 SD 5.70 7.00 5.36 5.58 N 8 8 8 8 Mean 54.92 40.98 54.30 40.02 SD N 5.95 8 3.79 8 5.99 8 3.40 8 Mean 56.82 41.27 55.73 39.47 SD 9.43 5.37 8.73 5.13 N 24 24 24 24 Table 10. Overall Pretest/Posttest Mean for negative and positive mood by group of caregivers. GROUP Pre Negative Pre Positive Post Negative Post Positive Mean SD n Mean SD n 51.97 7.87 5 51.66 5.00 5 47.27 10.29 5 45.77 7.39 5 46.78 5.79 5 46.33 3.87 5 53.67 9.81 5 47.77 3.54 5 3 Control Mean SD n 51.40 5.05 5 40.67 8.76 5 49.24 6.76 5 47.17 14.23 5 Total Mean SD n 51.67 5.67 15 44.57 8.74 15 47.45 5.35 15 49.53 9.91 15 1 Preferred 2 Unfamiliar Table 9 shows the results for all sessions combined with pretest and posttest means, n, and standard deviation for negative and positive moods by group of patients. Results indicated that groups showed no significant differences on either negative or positive moods between pre and posttests. The preferred music group means show noticeable decreases in negative and positive moods. The unfamiliar music group means show slight decreases in both positive and negative moods. The control group means show no changes for positive or negative moods. Table 10 shows the results for all sessions combined with pretest and posttest means, n, and standard deviation for negative and positive moods by groups of caregivers. Results indicated that all three groups showed no significant differences on either negative or positive 21 moods between pre and posttests. However, posttest means indicated that negative moods decreased in all three groups compared to the pretest means. In contrast, posttest means for positive moods increased in all three groups from the pretest means. The Relaxation Affect Scale was used to measure relaxation levels in patient groups as observed by the therapist. A repeated measures ANOVA was used to analyze data between pre/ posttests for groups across sessions. There was a statistically significant difference between pre and posttest results, F =47.09; p < .05. There was a significant difference between pre and posttest by group, F = 6.98; p < .05. There was a significant difference across sessions, F = 4.19; p < .05. There were no significant differences by time by group, F = .24; p > .05, by pre and posttest by time, F = 2.19; p > .05, or by pre and posttest by time by group, F = .627; p > .05. Table 11 provides results of the repeated measures ANOVA for the Relaxation Scale results of the patient groups. Table 11. Pretest/Posttest Mean for Relaxation Level by group of patients. GROUP 1 Preferred 2 Unfamiliar 3 Control Mean SD N Mean SD N Mean SD N Pre Relaxation Post relaxation 2.36 0.60 8 2.58 0.89 8 2.67 0.36 8 3.42 0.61 8 3.21 0.83 8 2.86 0.50 8 Table 11 shows both music groups significant by increased relaxation while the control group remained stable. 22 Estimated Marginal Means of MEASURE_1 group 3.1 1 2 3 Estimated Marginal Means 3 2.9 2.8 2.7 2.6 2.5 1 2 3 time Figure 1 Patients’ Relaxation Level Graph across sessions. Figure 1 shows music groups increased relaxation in the 2nd session and all groups increased relaxation from pre to posttest in the 3rd sessions. 23 Table 12. Results of Repeated Measures ANOVA for Relaxation Level of Patients Within subjects Source df MS F Significance Pre/post 1 14.06 47.09 0.00 Pre/post x group 2 2.08 6.98 0.01 Error (pre/post) 21 0.30 sessions 2 2.58 4.19 0.02 Sessions x group 4 0.15 0.24 0.92 Error (sessions) 42 0.62 Pre/post x time 2 0.58 2.19 0.12 Pre/post x sessions x group 4 0.17 0.63 0.65 Error (pre/post x sessions) 42 0.27 The Relaxation Affect Scale was also used to measure relaxation level in caregiver groups as observed by the researcher. A repeated measures ANOVA was used in analysis of these data. There was a statistically significant difference between pre and posttest, F =58.80; p < .05. There was a significant difference in time, F = 3.67; p < .05. There were no significant differences by time by group, F = 2.03; p > .05, by pre and posttest by time, F = .90; p > .05, by pre and posttest by group, F = 3.60; p > .05, or by pre and posttest by time by group, F = 1.29; p > .05. Table 13 provides results of the repeated measures ANOVA for Relaxation Scale results of the caregiver group. Table 13. Results of Repeated measures ANOVA for Relaxation Level of Caregivers. Within subjects Source Pre/post Pre/post x group Error (pre/post) sessions Sessions x group Error (sessions) Pre/post x sessions df MS F Significance 1 2 12 2 4 24 2 4.90 0.30 0.08 0.81 0.44 0.22 0.23 58.80 3.60 0.00 0.06 3.70 2.03 0.04 0.12 0.90 0.42 24 Table 13. Continued. Pre/post x sessions x group Error (pre/post x sessions) 4 24 0.33 0.26 1.30 0.30 Table 14. Pretest/Posttest Mean for relaxation level by group of caregivers. GROUP 1 Preferred 2 Unfamiliar 3 Control Mean SD N Mean SD N Mean SD N Pre Relaxation 3.40 .15 5 3.13 .45 5 3.22 .35 5 Post relaxation 4.07 .15 5 3.60 .37 5 3.69 .43 5 Table 14 shows that both music groups of caregivers increased significantly in relaxation from pre to posttest. Figure 2 shows that while music immediately affected relaxation, the control group gradually increased across time without music. This indicates that quiet time for caregivers functioned to promote more minimal levels of relaxation 25 Estimated Marginal Means of MEASURE_1 group 1 2 Estimated Marginal Means 3.8 3 3.6 3.4 3.2 1 2 3 time Figure 2 Caregivers’ Relaxation Level Graph by groups 26 CHAPTER 4 DISCUSSION Most of the results of this study were not statistically significant though some effects of music on mood states and relaxation in hospice patients and caregivers were noted. Music groups of patients and caregivers showed decreased negative moods, increased positive moods and significant by increased relaxation. The preferred music group for both patients and caregivers showed the most relaxation. The results of this study showed that there was statistical significance in score differentiation of negative vs. positive mood in all groups as expected by the scoring system of the test. It also showed that there was a statistical significance in relaxation level from pre to posttest and across sessions. Unique to this study was the prominent level of communication across the sessions among subjects and the researcher. It was noticeable that most of the patients were verbalizing more after the posttest as compared to the pretest. After each session, some patients made comments about whether they liked the music. Because most of the patients were residing in an assisted living facility, they expressed how lonely they were, how they did not like the facility but they needed to stay there, and many asked the researcher to come and see them again the next day. Staff who participated in this study made positive comments also. Most of them listened to the music while they were working and stated that they ‘very much enjoyed listening to the music while they were working because music blocks all the noises that surrounds the.’ They also stated that ‘ work was more efficient and allowed them to concentrate better and feel much more relaxed.’ There were some complicating factors encountered through out the study. Recruiting caregivers, especially family members of the patients was hard because they were going through difficult times caring for their loved ones, many were tired and overwhelmed. Another big factor was completing all three sessions within a seven day period since the average stay for patients in the hospice in-patient unit was 5 days. The music therapist had no control of the environment, such as loud TV noise, music playing in the hallway, or staff constantly checking patients. These issues may have interfered with music listening for both the patient and caregiver groups. 27 Additionally, some subjects participated on consecutive days while others participated every other day. All of these issues may have influenced the results of the study. Convincing caregivers to have Music Therapy or quiet time is a good idea. Sitting next to the bedside for long periods of time can be tiring. As caregivers, it is crucial to maintain their own health while they are caring for their loved one. The results of this study showed that music listening promoted relaxation of caregivers. Also the personal statements from the caregiver participants revealed that it was effective and positive experience improving their overall quality of life. The measure of relaxation was more effective than mood state assessment. Because hospice patients and caregivers go through very emotional times in their life, there could be drastic changes in mood due to medications or how they felt at that moment. Further studies need to examine the effect of music therapy on interaction between family members and patients who reside in facilities receiving hospice care. While visiting, family members sometimes experience isolation or loneliness music could increase the overall quality of their life. Because the relaxation levels were measured by the researcher using behavioral observation, this study needed extra monitoring by clinicians to document increasing reliability. Also, providing relaxation questionnaires, or measuring physiological responses such as respiration rate or blood pressure could enhance reliability. Larger numbers of subjects’ participating may have change results. These changes could all incorporated into future research. 28 APPENDIX A Human Subject Committee Approval Form 29 30 APENDIX B Patient Consent Form (Experimental Group) 31 32 APENDIX C Patient Consent Form (Control Group) 33 34 APENDIX D Legal Guardian Consent Form (Caregiver-Experimental Group) 35 36 APENDIX E Legal Guardian Consent Form (Caregiver-Control Group) 37 38 APENDIX F Patient Assent Form (Experimental Group) 39 40 APPENDIX G Patient Assent Form (Control Group) 41 42 APPENDIX H Legal Guardian Assent Form (Experimental Group) 43 44 APPENDIX I LEGAL GUARDIAN ASSENT FORM (CONTROL GROUP) 45 46 APPENDIX J RELAXATION SCALES 47 RELAXATION SCALES (ADAPTED FROM BIG BEND HOSPICE MUSIC THERAPY ASSESSSMENT) Pre Post Pre 1 Post Pre 2 Post 3 Pre Post 4 Pre Post 5 Tense muscle Moaning Quiet Smiling Laughing High shoulders Tense brow Relaxed brow High brow Clapping Screaming Low eye gaze Eye gaze Eye contact Toe tapping Closed eyes Frown Level lips Shoulders back Relaxed arms Wrinkled brow Watery eyes Arms at rest Commenting conversation 48 APPENDIX K MUSIC PREFERRENCE CHART 49 Music Preference Chart (Adapted from affect scale of Big Bend Hospice Music Therapy Assessment Form) □ Hymns/Gospel □ Contemporary Christian Music □ Spirituals □ Folk □ Bluegrass □ Blues □ Jazz □ Classical □ Oldies □ Country(old/new) □ Big Band □ Soft Rock 50 APPENDIX L BIG BEND HOSPICE MUSIC THERAPY ASSESSMENT FORM 51 52 APPENDIX M VISUAL ANALOGUE MOOD SCALES 53 54 55 56 57 58 59 60 61 APPENDIX N RAW DATA 62 Visual Analogue Mood Scale Raw Score- Patient pretest Experimental Group #1 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 2 3 7-1 2 3 8-1 2 3 Experimental Group #2 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 Afraid Sad Angry Energetic 2 2 3 94 81 92 3 0 12 9 8 0 9 5 11 45 26 11 0 9 99 13 90 91 Confuse d 2 4 5 96 69 92 84 95 45 2 9 6 50 0 36 10 1 13 8 11 48 45 34 61 2 5 2 28 84 89 91 91 8 8 41 0 9 97 44 44 43 20 73 40 44 92 43 73 2 4 2 87 51 87 78 88 71 11 28 0 3 6 20 43 1 5 5 30 3 94 24 19 41 19 1 37 11 2 13 22 22 6 8 3 10 1 10 21 64 0 6 97 41 25 48 9 47 10 8 40 3 0 4 37 21 30 7 35 44 62 48 48 36 11 8 73 25 80 27 20 29 11 3 6 67 40 22 3 37 8 10 2 2 72 4 6 63 Happy Tense 2 3 2 31 56 73 82 92 66 52 3 92 0 47 45 29 51 38 79 63 95 50 25 16 Tire d 54 68 90 99 49 93 4 46 10 95 2 19 89 91 89 45 21 20 5 39 46 90 76 90 53 93 74 96 47 39 99 20 30 95 3 90 45 5 55 44 48 40 3 90 93 92 58 38 4 4 3 96 92 93 78 83 66 92 4 86 10 2 21 70 79 72 10 26 0 92 28 23 21 0 19 88 65 58 45 93 3 8 94 0 10 30 8 3 58 37 9 70 93 94 92 13 98 55 83 100 3 33 2 95 21 21 86 47 50 65 45 43 42 87 92 2 34 30 3 3 49 17 9 6 87 5 3 10 63 19 11 97 0 42 5 67 Visual Analogue Mood Scale Raw Score- Patient pretest (Continued) 2 3 7-1 2 3 8-1 2 3 10 6 2 8 8 5 0 4 12 9 9 10 4 10 8 5 12 5 6 10 7 2 0 3 13 3 3 7 8 9 0 17 27 18 2 7 15 4 89 50 65 43 98 82 81 96 16 12 25 26 46 40 67 87 63 67 35 57 6 11 18 10 5 26 8 3 21 11 12 8 30 6 8 30 8 6 11 2 16 11 8 5 6 41 48 1 0 3 33 34 96 21 35 28 37 7 14 18 6 22 22 42 31 86 9 9 10 97 91 7 2 10 6 95 96 13 12 6 28 84 17 24 6 15 29 32 15 34 54 6 11 25 61 9 20 25 89 43 14 0 6 7 47 8 18 13 11 18 32 15 19 60 31 7 8 39 0 5 7 10 89 2 19 15 16 19 48 55 45 47 39 68 13 29 66 1 2 53 8 83 30 33 45 50 42 97 29 44 32 18 28 18 40 25 18 20 82 19 37 73 87 41 55 29 57 7 58 43 13 97 27 79 72 58 30 48 67 9 90 74 93 46 91 15 53 51 87 93 78 46 70 52 85 52 95 32 18 18 71 19 18 26 11 36 20 54 52 91 43 34 19 30 35 94 82 80 Control Group 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 2 3 7-1 2 3 8-1 2 3 Visual Analogue Mood Scale Raw Score- Patient posttest Experimental Group #1 1-1 2 3 2-1 Afraid Confused Sad 2 2 4 8 4 2 3 93 3 2 1 96 Angr y 1 2 4 16 64 Energeti c 3 6 3 3 Tired 54 76 75 95 Happ y 92 59 83 50 Tense 2 4 3 86 Visual Analogue Mood Scale Raw Score- Patient posttest (Continued) 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 2 3 7-1 2 3 8-1 2 3 Experimental Group #2 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 2 3 7-1 2 3 8-1 2 3 8 71 11 2 4 4 0 1 1 0 2 13 16 10 11 12 5 96 48 22 47 91 92 80 57 7 1 11 41 0 0 7 1 0 6 17 6 22 40 20 71 29 47 80 74 54 78 8 95 0 0 40 31 15 43 30 37 85 40 86 67 71 92 88 94 16 16 18 3 0 0 19 30 0 40 32 5 55 26 23 63 16 73 95 77 25 9 98 0 96 50 20 44 35 67 60 4 72 37 22 47 41 64 30 11 84 84 89 95 0 70 29 41 50 10 21 3 53 60 84 5 33 55 9 22 92 83 98 5 86 71 34 43 50 68 91 100 38 47 8 52 56 35 80 72 48 94 95 93 1 15 40 42 70 17 24 46 100 40 91 30 19 7 20 11 10 9 46 18 7 28 3 7 7 0 17 10 11 3 4 5 2 5 2 15 3 5 100 34 29 46 46 45 13 17 40 4 8 8 36 10 6 2 13 19 2 7 0 83 29 22 28 8 26 12 44 6 10 26 10 3 32 3 16 8 10 3 5 10 1 0 2 18 17 4 5 6 82 6 2 5 15 20 2 4 14 25 10 14 13 3 7 10 2 0 5 75 9 7 14 8 4 43 45 8 12 34 0 13 7 40 27 10 24 2 4 18 3 70 60 83 43 57 89 60 91 97 92 52 53 27 98 27 2 7 73 73 68 92 71 32 58 10 10 51 18 43 19 46 54 96 46 48 88 24 0 0 32 98 10 10 4 2 15 25 96 56 48 17 13 15 100 58 15 46 51 28 6 20 34 15 1 2 30 10 60 93 53 60 96 2 20 65 Visual Analogue Mood Scale Raw Score- Patient posttest (Continued) Control Group 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 6-1 2 3 7-1 2 3 8-1 2 3 16 7 26 19 15 5 28 16 5 36 19 9 30 25 7 13 3 6 4 41 0 3 0 6 37 31 91 22 32 28 39 18 19 21 3 23 53 30 18 59 6 5 13 19 55 6 5 13 84 91 92 24 10 11 18 4 16 2 16 5 79 25 5 30 8 4 13 30 64 7 31 35 11 39 19 4 9 6 20 8 20 35 12 10 11 30 9 56 15 14 7 38 0 13 12 13 66 79 4 17 0 5 13 43 48 52 26 32 54 82 35 20 3 14 33 13 31 38 26 0 42 32 90 30 28 34 12 30 21 32 52 11 10 77 40 8 70 46 54 46 93 57 8 45 50 15 96 43 71 34 57 36 52 40 15 80 73 71 40 83 17 45 68 70 51 63 47 65 50 82 51 78 25 20 19 60 16 60 45 8 31 28 46 55 85 51 12 31 20 61 90 85 82 Visual Analogue Mood Scale Raw Score- Caregivers pretest Experimental Group #1 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 Experimental Group #2 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 Control Group 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 Afraid Confused Sad Angry Energetic Tired Happy Tense 50 6 28 8 0 26 7 2 3 0 0 0 8 4 7 10 22 4 0 71 15 28 4 20 16 0 0 7 2 3 62 83 65 50 11 0 1 5 1 19 0 11 1 2 4 17 5 41 0 70 0 4 4 3 0 11 0 2 5 6 15 32 42 72 26 90 28 64 43 0 46 78 100 98 100 78 84 79 83 81 41 72 75 56 78 45 13 3 2 8 5 25 30 71 52 80 62 68 85 1 65 66 100 98 98 38 67 61 100 51 84 67 54 40 83 67 27 0 3 1 3 10 3 16 75 20 5 4 2 0 0 6 28 6 13 18 11 12 31 15 23 5 5 4 31 5 10 16 25 20 1 6 36 15 82 15 5 5 2 13 4 65 28 19 25 1 9 17 19 81 31 5 4 4 1 4 84 31 25 22 49 0 4 66 41 81 4 98 95 58 61 46 36 22 24 48 79 60 37 76 17 28 4 42 53 61 9 61 22 30 67 42 30 91 21 71 61 97 78 80 95 64 61 21 38 8 16 48 52 100 19 68 4 12 65 70 79 56 32 38 6 3 2 26 25 23 13 14 9 0 0 7 3 1 24 22 25 15 14 12 28 0 6 1 2 21 26 30 53 98 15 0 0 59 3 59 18 25 27 22 4 14 0 27 11 4 0 62 80 54 25 37 85 0 34 11 2 1 52 44 30 67 60 11 100 25 18 22 3 68 70 64 47 49 85 0 30 98 0 30 42 28 28 71 61 15 8 56 67 Visual Analogue Mood Scale Raw Score- Caregivers pretest (Continued) 3 5-1 2 3 0 71 8 8 0 36 10 4 0 10 10 7 1 8 7 8 23 74 7 45 0 47 82 81 50 72 40 77 19 40 11 18 Visual Analogue Mood Scale Raw Score- Caregivers posttest Experimental Group #1 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 Experimental Group #2 1-1 2 3 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 Control Group 1-1 2 3 Afraid Confused Sad Angry Energetic Tired Happy Tense 8 5 19 0 43 2 1 1 3 0 0 0 0 4 3 34 14 6 0 53 4 2 3 3 0 0 0 2 5 0 16 60 71 9 0 0 0 0 0 0 0 0 3 4 1 6 12 49 0 39 0 1 3 2 0 0 0 2 2 1 23 38 52 100 67 100 65 75 70 52 89 76 98 91 99 36 68 79 42 43 22 50 47 30 21 10 11 1 5 30 30 30 13 100 90 100 88 87 83 76 87 87 100 97 100 23 46 22 45 36 6 29 5 9 7 9 3 1 5 47 2 0 2 7 25 18 3 2 2 3 3 10 6 0 3 1 0 1 18 20 13 1 2 4 17 16 65 21 10 24 0 1 2 5 77 13 38 3 7 15 14 29 15 7 6 0 0 0 9 28 12 4 3 7 2 20 51 0 8 14 100 19 57 20 46 46 11 85 50 44 83 57 67 53 45 5 18 25 8 30 26 20 6 15 27 55 36 39 18 18 90 77 60 83 48 55 29 89 55 85 89 76 55 55 41 6 1 3 55 60 15 8 4 21 32 62 67 13 4 21 6 1 0 6 1 1 4 2 0 6 2 1 96 95 87 4 1 0 100 100 99 1 0 0 68 Visual Analogue Mood Scale Raw Score- Caregivers posttest (Continued) 2-1 2 3 3-1 2 3 4-1 2 3 5-1 2 3 28 23 30 12 10 12 0 21 1 18 4 5 33 34 30 20 15 19 0 25 1 15 3 19 32 34 29 41 70 9 0 0 0 15 5 6 28 22 28 16 20 17 0 0 1 42 7 10 69 58 56 79 40 37 59 39 28 35 20 49 78 40 29 37 46 61 15 33 15 33 71 21 32 51 47 67 25 40 60 3 20 0 48 25 75 47 31 52 40 52 34 39 0 9 18 10 60 PATIENTS’ RELAXATION RAW SCORE Patient Group Pretest Posttest #1 Group pretest posttest #2 Group pretest #3 posttest 1-1 3 4 1-1 2 4 1-1 3 2 2 3 3 4 4 5 2 3 1 2 2 3 2 3 2 3 3 3 2-1 2 3 2-1 2 2 2-1 3 3 2 3 3 2 4 3 2 3 3 4 5 4 2 3 3 3 3 3 3-1 3 3 3-1 2 2 3-1 3 4 2 3 3 2 5 5 2 3 2 2 3 3 2 3 2 3 3 4 4-1 3 3 4-1 3 3 4-1 3 3 2 3 2 3 4 2 2 3 3 3 4 3 2 3 2 3 3 4 5-1 3 4 5-1 4 4 5-1 3 3 2 3 3 2 3 3 2 3 4 3 5 4 2 3 3 3 3 3 6-1 1 3 6-1 1 1 6-1 3 2 2 3 1 2 3 4 2 3 1 2 2 2 2 3 3 3 3 3 7-1 1 2 7-1 2 3 7-1 2 2 2 3 2 3 4 3 2 3 2 3 3 3 2 3 2 3 2 4 8-1 1 3 8-1 3 4 8-1 1 1 2 3 2 3 2 3 2 3 4 4 4 4 2 3 3 2 3 2 2.666667 2.875 2.375 3.416667 2.583333 3.208333 70 CAREGIVER RELAXATION RAW SCORE Caregiver Group Group #1 Pretest Posttest Group Pretest Posttest #2 Control Pretest Posttest Group 1-1 2 3 3 4 4 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Philadephia: W. B. Saunders. 76 BIOGRAPHICAL SKETCH Name: Seong-Eun Amy Kim Date and Place of Birth: March 22, 1979 Seoul, South Korea Education: Bachelor of Music Performance New England Conservatory of Music Boston, MA 1998-2002 Clinical Experience: Tallahassee Memorial Hospital –practicum Tallahassee Memorial Hospital – Music therapy Student volunteer at NICU Big Bend Hospice –music therapy intern 77
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