Coordinating our Goals Among Early AAC Service Providers: Critical Skills in Early AAC Development Cynthia J. Cress, Ph.D. University of Nebraska-Lincoln Communication Carnival, Goteborg, Sweden, June, 2009 Case Examples: • Tyler is a school-aged child on the autism spectrum. He has been through years of structured therapy and will say “I want a cookie” if you directly prompt him to say these words. However, if you show him a cookie, he will wait indefinitely for a prompt without gesturing or making a sound. • Watch for: Getting Beyond Imitation, Partner Strategies Case Example: • Byron is an adult with developmental disabilities. He used to say more words and use signs, but now he mostly gestures and vocalizes. If you make him “use his words” with a direct prompt, he gets upset and won’t communicate with you at all. • Watch for: Mastery motivation, Case Examples: • Olivia is a school-aged child with physical and cognitive impairments. She has been using a VOCA for 2 years, but her teachers are frustrated. All she’ll do is push choices of two items like “computer” or “music”, and never uses her comments or questions on her own even though they think she understands them. • Watch for: Joint Attention, Preference Case Examples: • Cameron is an infant with multiple physical, sensory, and cognitive issues. Right now, you and the parents are frustrated because he doesn’t seem to do much of anything to communicate, and he’s clearly not paying much attention to the symbols and switches. • Watch for: Preference, Partner Strategies I. Overview - Early Augmented Communicators Definition: Augmentative and Alternative Communication (AAC): anything that helps children or adults to communicate when traditional strategies are not sufficient to accomplish a communication goal (Cress, 2002) • Early communicators can be of any age, including adults with acquired impairments • Disabilities can include physical, cognitive, sensory, and/or pervasive disorders (autism spectrum) • It’s never too early to start working on communication, and it’s never too late to see improvement A. What skills does a child need before you start AAC? • Communication starts with interaction and the earliest behaviors of children • There are no prerequisites to AAC. • Previous research that attempted to assign prerequisites to AAC were only considering symbolic forms of communication • Basic AAC intervention includes behaviors, gestures, cooperative actions, and sounds, and does not depend upon controlling complex systems or devices. These early skills do facilitate the gradual development of more complex skills. See: Kangas, K.A. & Lloyd, L. (1988). Early cognitive skills as prerequisites to augmentative and alternative communication use: What are we waiting for? Augmentative and Alternative Communication, 4 (4), 211-221. B. How might development in children with physical/sensory impairments differ from typical? • Much of early learning typically involves physically acting on the world, which is difficult for children with physical impairments or children with visual processing problems. • Many early communicative routines familiar to parents involve hand or vocal skills, both of which may be unavailable to children with physical or hearing problems. • Children may not have a clear sense of their own body’s movements (kinesthetically) which makes it difficult to relate their behaviors to play or interaction effects. • Parents may not recognize children’s unusual or subtle movements as intentional or communicative, and not respond as often. • Many of children’s early communicative attempts may be unsuccessful (e.g. using breathing as an attention signal/behavior), and children often grow passive. • Delays in children’s motor behaviors and/or sensory response to behaviors may limit early awareness of the relationship between their own behaviors and other events. • Learning communication from a primarily receptive role limits children’s access to trial-and-error exploration with communication. • Children may have specific impairments that additionally impair their ability to process their experience in the word (e.g., sensory, cognitive, attention, social interaction). C. Critical Skills that may Lag for Children using AAC • Matching preference & motivation to AAC • Commenting/shared attention (vs. request) • Producing recognizable signals for multiple purposes • Learning & imitating the world around them • Getting beyond partner cues & prompts • Handling challenges and persisting well ** Change only one of these “hard things” at a time in a given activity II. Preference, intent, motivation A. Temptations • If we can’t find a way to tempt the child to signal this intent on their own, why are we working teaching a new way to express that message? • If the individual is not motivated by the situation to convey a message, they are doing it for our reasons, not theirs • We need to embed communication goals into temptations, however we structure our intervention • Assessing moderately preferred activities and messages is where we usually start • All of our intervention time with early communicators may first be spent on these goals B. Motivation: The biggest “one hard thing” • Motivation is a complex mix of persons, tasks, contexts, expectations, and outcomes • Motivating tasks may change daily, depending on factors outside of our control. Don’t assume you KNOW this is motivating for your individual today. • Functional communication reflects the individual’s own intents and messages, and depends upon experiencing a wide variety of real-life opportunities to communicate independently. • We can’t rely on individuals learning communicative or supportive skills (i.e. “other hard things”) by observation or incidental learning. – Just because they’ve experienced turntaking, for instance, doesn’t mean that individuals necessarily learn how to initiate and manage conversational turns. • Whose communication is this? If individuals aren’t motivated for “my activities” we need to rethink goals – Academically - do they have to do the same tasks as the class (e.g. coin recognition)? • Consider having independent tasks within similar activity contexts – Requesting - does it have to be objects? Consider: • Activities (esp. kinesthetic or tactile), social actions, stopping or getting a break – Getting beyond requesting (e.g. noticing, greeting) • The primary goal is for individuals to learn independent initiation of communication that reflects their own messages, and doesn’t rely on partner cues or prompts to elicit the behavior. • Communication in highly structured contexts isn’t enough to promote independent initiation. III. Handling Challenges A.. Mastery Motivation (MM) • MM is different from just knowing someone’s preferences (I know you like...) • MM involves persistence for internal reasons, not externally imposed ones • Mastery motivation may be a critical predictor of success at overcoming effects of disability - determined to succeed • NOTE: mastery of task (extrinsic) is very different from promoting mastery motivation (intrinsic to child) 1. What affects mastery motivation? • Probably intrinsic quality for child like other personality factors (e.g. temperament) • Just because I have tendencies for having high or low persistence doesn’t mean I can’t get past those tendencies with support • MM is subject to many influences from environment and experiences • Moderately challenging tasks promote more MM than either easy or hard ones 2. How do we support mastery? • Know child characteristics - how much/when will they already persist if things get difficult? • Provide opportunities to persist successfully on a variety of tasks • Provide environments with frequent access to these opportunities • Have partners that reinforce and scaffold children’s effort to master difficult tasks. • Let users explore strategies, including VOCAs, and “make mistakes” with guidance to learn from them IV. Why Communicate? A. Commenting Functions • Requesting and rejecting are often the earliest and clearest functions • They are also the easiest to get stuck in and may not lead to broader functions • Remember early functions can be: – Greeting, teasing, noticing/attention, sharing emotions, showing, turn taking, • These early functions support the development of more complex language B. The Big Intentional Functions • Requesting/rejecting • Commenting/showing • Social interaction/turntaking • There are also lots of less intentional functions of behaviors that we read: – Judging overstimulation, motivation, emotion, attention, state, preference, sensory signals C. Commenting and Joint Attention • Most children produce requests and refusals earlier and more frequently in early development. • As children grow older, more of their communication revolves around sharing information and commenting, rather than wants/needs. • If children’s signals are difficult to read, we may always interpret their signals as wants/needs • Many children first using VOCAs may need experience at how to start a comment and why it’s fun - that may be why they restrict their use • Children relying on AAC are at particular risk for being and staying behind on “joint attention” acts • Many communication systems focus on wants/needs much longer than is developmentally or functionally appropriate for children. • Children skilled at expressing wants and needs through behavioral and gestural strategies may find it hard to express joint attention or word labels without more formal symbolic strategies. • For young children who have a limited range of motor behaviors, skills such as eyepointing may be particularly important for reference and labeling activities as well as more basic attention monitoring functions (with simple gaze shifts). • We may go back to much simpler joint attention experiences even for symbolic AAC users D. Strategies for Promoting Commenting/Shared Attention - Practice on unexpected events - Build on requesting to motivate showing - Build simple social & predictable routines involving patting or showing - Use textured or noisy interesting objects - Help notice interesting events & expand natural behaviors like looking or head turns (watch CSI for likely comment-like acts) E. Eye Gaze and Attention Goals • Before you set eye gaze goals (esp. with autism spectrum), think carefully about what you expect the child to do with their gaze. • Typically developing children may gain many types of information from gazing that may not apply to children on the autism spectrum • Just because a child is looking at you doesn’t necessarily mean they’re paying attention or processing what they’re seeing • Insisting on gazing for all attention goals may add to the cognitive or sensory load of the task F. Possible Eye Gaze & Attention Targets • Different behavioral targets may be needed for each of the following roles of eye gaze: – Noticing a partner’s behavior – Monitoring a partner’s attention – Paying attention to an object or event – Indicating interest or non-interest in event – Claiming a turn or directing communication to a partner – Meeting social expectations for looking at partner V. Learning & Imitating from the World A. Who may have trouble with imitation? 1. Children who don’t imitate our models when prompted (verbal or nonverbal behaviors): – Speech/motor control issues (e.g. apraxia of speech) – Attention issues – Pragmatic issues (e.g. turns, expectations) – Cognitive issues – Autism spectrum (e.g. relating to partner’s actions) – Communication style or perceived difficulty A. Who may have trouble with imitation? • 2. Children who imitate too well, or only when prompted: – Autism spectrum issues – Sensory issues – Prompt dependency – Poor generalization of skills – Pragmatic issues – Communication style or perceived difficulty B. What we may not be able to teach: • Spontaneous imitation for communication – “Radar” for watching and incorporating useful actions for a purpose – Both children with too little and too much imitation tend to be poor at spontaneously using imitated skills to communicate a message (though they may echo) – Experience at seeing the usefulness of new actions for accomplishing purposes may help to build the child’s sense of “radar”, but this is rarely something we can teach directly – Comfort with “trial and error” learning will also help promote spontaneous imitation C. What makes traditional imitation hard? • • • • • • Adult initiated action Expectation of child response Limited timing and nature of response Specific motor initiation problems Knowledge that speech is a hard skill “You’re not telling ME what to do” D. How else can we elicit target behaviors? 1. Make use of the environment and task to tempt target behaviors or approximations 2. Emphasize physical or social play activities that elicit target behaviors spontaneously 3. Embed our models into following the child’s intent 4. Pair vocal and nonvocal behaviors in simple play 5. Practice embedded models of behaviors the child is already good at, gradually insert harder actions 6. Make sure we’re only working on “one hard thing at a time” 7. Target speech behaviors no more than one step harder for a given activity from what children spontaneously produce Remember: It’s more important that the child produces the behavior for a purpose and sees its effect than that they do it because we told them to do it VI. Partner Strategies & Support • Family or partner goals and styles will most critically affect whether a child continues to use an AAC strategy or device long-term • Sometimes we first introduce a strategy to meet a partner’s goal, to get shared value • The “external device” tool can be extremely hard for partners, even simple symbols • We have to embed new AAC strategies into what the partner is already doing A. Partner Responsivity • Changing partner response may be our best (and only) intervention strategy for persons who primarily produce spontaneous behaviors • Children need to know that their behaviors get responses before they learn new behaviors • Touch particularly helps children focus on what behavior got results without cognitive load • Children with autism may particularly need to develop an awareness that partner behaviors matter and convey information that is important to the child’s own communicative goals B. Coaching Parents – One hard thing at a time for parents too – Suggest one new strategy to try at a time (e.g. make silly sounds with tickle) – Some parents are used to relying on imitation as a primary teaching strategy – Some parents may not rely on “radar” to recognize and respond to child actions – Some parents may see working on “fixing their speech” as our job C. Why may parents (& SLPs) rely on imitation? – Modeling is clear evidence of teaching that the adult can control – Imitation is the only reliable way to elicit the correct response the adult intends – We are used to relying on imitation with other children – It’s easy to see quick results if it works – We may not see the difference between the surface behavior and the intent D. Why can task-based strategies be hard? – We may not be aware of meaningful behaviors beyond the “correct” target – It isn’t real unless it’s speech – It involves changing aspects of how we do normal routines and play – It requires thinking about several things at once – Results may be gradual and not perceived as change – We’re making it “too easy for the child” – We don’t feel in control of the situation – It’s not my style - I’m used to being direct – If I have to wait for the opportunity to come up, I’ve forgotten the new technique I was supposed to use VII. How can we make AAC too hard for the partner? A. Remembering and looking for a “thing” • If the partner has to hunt at all for the AAC system, they probably won’t use it • Most basic communicators want immediate interaction & have short attention spans • Changing how I do an interaction means remembering something unfamiliar • I already have to manage too many things B. “You’ve changed how I do things” • I have already set up interactions the way I’m comfortable doing them • Research suggests that incorporating formal AAC into feeding may not be easy • For some families, setting up new formal AAC play routines in my style may be easier • Accomplishing the goal may be more important than “teaching” during activities • I may not see the opportunities as you see them, and it requires constant “radar” C. AAC is slower for the partner • The quickest way to communicate is to presume another person’s message • Even stopping to ask a question or offer choices slows down the process • Waiting for any response, even gestures, can delay or lose the point of interaction • If I don’t already offer an opportunity in this interaction, formal AAC adds too many hard and slow things at once D. Formal AAC doesn’t “buy” the partner anything • I already understand their message and they’re happy - why rock the boat? • There are too many annoying or wrong messages for every successful one • The formal AAC is almost always incomplete and I have to fill in anyway • If I don’t see rapid success with the formal AAC, I won’t probably use it E. The partner doesn’t get the big picture about using AAC • SLPs tend to have specific visions about communication and models of AAC users • Research suggests even parents interested in AAC don’t have these AAC models • Parents often can’t see beyond their child as a speaker, and don’t see the point of AAC • AAC has to lead quickly toward something I value for me to understand its purpose now – e.g. speech, frustrations, academics, stories F. AAC may feel like a thing to teach not a way to communicate • Parents may feel they have to make AAC time in their day as a chore • Going into a “teaching” role may lead me to be more directive than I usually am • Besides, you’re the teacher/SLP and it’s your job to teach them this • If it’s too many hard things at once I may find reasons to avoid it Take-home Points • If there’s no “why”, there’s no communication • You may need to support motivation in persons with low tolerance of frustration • Commenting is a separate skill from requesting and may need basic intervention • Supporting the context builds relationships with partners where you build further AAC • You don’t have to directly imitate to learn • Communicating only with prompts isn’t independent yet Contact Information Cynthia J. Cress, Ph.D. Associate Professor, Communication Disorders University of Nebraska-Lincoln 202G Barkley Memorial Center Lincoln, NE 68583-0732, USA Email: [email protected] Website: www.unl.edu/barkley/faculty/ccress.shtml
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