Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. Goal Attainment Scaling: Its Use in Evaluating Pediatric Therapy Programs Gillian A. King Janette McDougall Robert J. Palisano Janet Gritzan Mary Ann Tucker ABSTRACT. Goal attainment scaling is becoming an increasingly popular technique for evaluating the functional goal attainment of children receiving pediatric therapy services. This article reports on the experiences of the authors in conducting formal program evaluations using this individualized measurement approach. Goal attainment scaling is described, its utility is assessed, and issues in its use are identified. The article considers the pros and cons of the technique, highlights the key decisions required to use goal attainment scaling effectively, and provides standard criteria and procedures for its use in pediatric settings. [Article copies available for a fee from The Haworth Document DelivGillian A. King, PhD, is Investigator, CanChild Centre for Childhood Disability Research, McMaster University and Research Program Manager, Thames Valley Children’s Centre. Janette McDougall, MA, is Research Associate, Thames Valley Children’s Centre. Robert J. Palisano, ScD, PT, is Professor and Director, Program in Movement Science, Medical College of Pennsylvania, Hahnemann University, and Co-Investigator with CanChild. Janet Gritzan, MClSc, is Speech-Language Pathologist and Mary Ann Tucker, BSc, is Manager of School-Age and Adolescent Services, both at Thames Valley Children’s Centre. The authors sincerely thank the service providers, parents, teachers, and children who assisted with this research. The authors also thank Paul Stolee for his useful feedback on this article. This research has been made possible through funding provided by CanChild and Thames Valley Children’s Centre. Physical & Occupational Therapy in Pediatrics, Vol. 19(2) 1999 E 1999 by The Haworth Press, Inc. All rights reserved. 31 Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 32 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS ery Service: 1-800-342-9678. E-mail address: [email protected] <Website: http://www.haworthpressinc.com>] KEYWORDS. Goal attainment scaling, therapy, program evaluation, functional outcomes, children with special needs, rehabilitation Many questions need to be considered when designing outcome evaluation studies for children receiving occupational, physical, or speech-language therapy, either in the community or in a health care centre. One of the fundamental questions is whether to use a standardized or individualized measurement approach–or both.1,2 Individualized methods indicate whether single individuals have achieved the goals of intervention. These methods also provide clear goals and priorities for intervention, ensure the ongoing relevance of the child’s goals, and reflect a client-centered perspective to service delivery.1,3 One of the most widely-used individualized approaches is goal attainment scaling (GAS),1 which provides an individualized, criterionreferenced measure of change. The GAS procedure involves: (a) defining a unique set of goals for each child, (b) specifying a range of possible outcomes for each goal (on a scale recommended to contain five levels, from *2 to +2),4 and (c) using the scale to evaluate the child’s functional change after a specified intervention period. As we have used it, a score of *2 represents the child’s baseline level before intervention, *1 represents improvement that is less than the expected level of attainment after intervention, 0 represents the expected level of attainment after intervention, and +1 and +2 represent levels of attainment that exceed expectations but represent outcomes that the child is thought to be capable of achieving under favorable conditions. (Examples of these five-point GAS scales written for children receiving occupational, physical, and speech-language therapy are presented in Tables 1 to 3. The examples reflect subcategories of goals for three areas (productivity, mobility, and communication), which are often targeted for intervention in the school setting.) GAS was initially used to measure the impact of intervention in the mental health field.5 Since then, it has been used widely to evaluate health services, educational programs, and social services.6,7 In 1979, GAS was considered the most popular outcome evaluation technique in the human sciences.8 There are two main reasons for measuring outcomes in the field of Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 33 TABLE 1. Examples of Goal Attainment Scales for Children Receiving Occupational Therapy Services to Address Classroom Productivity Goal Subcategory Attainment Level Score Written Communication Functional Fine Motor Skills Organizational Skills Baseline *2 Writes some letters in isolation (i,e,u,l,t) with verbal and visual cueing Cuts within a 1/4I wide boundary with verbal cues to turn page with nonĆdominant hand at corners Organizes desk (all notes and books stacked neatly) with physical assistance, standby supervision, scheduling, and a checklist Less than expected outcome *1 Writes all letters of the alphabet in isolation with verbal and visual cueing Cuts within a 1/8I wide boundary with verbal cues to turn page with nonĆdominant hand at corners Organizes desk (all notes and books stacked neatly) with standby supervision, scheduling, and a checklist Expected outcome O Writes all letters of the alphabet in isolation with visual cueing Cuts within a 1/16I wide boundary with verbal cues to turn page with nonĆdominant hand at corners Organizes desk (all notes and books stacked neatly) with standby supervision and a checklist Greater than expected outcome +1 Writes all letters of the alphabet with grouping of 2 to 3 letters with visual cueing Cuts within a 1/16I wide boundary and independently turns page with nonĆdominant hand at corners Organizes desk (all notes and books stacked neatly) with standby supervision Much greater than expected outcome +2 Writes all letters of the alphabet with grouping of 3 to 4 letters independently Cuts on a regular penĆ width line and independently turns page with nonĆdominant hand at corners Organizes desk (all notes and books stacked neatly) independently (general instructions from teacher) pediatric therapy: (1) to evaluate outcomes for a specific child (to improve services to that child), and (2) to determine the effectiveness of a service or program as a whole.9 GAS can be used for both purposes–to document therapeutic change in individual children or to examine change in groups of children. The focus of this article is on the latter–the use of GAS in program evaluation studies. GAS has been used in a number of studies evaluating pediatric therapy services and programs, most fairly recent.10-17 Four studies took place in early intervention settings and focused on the attainment of motor development goals by infants or preschool children.14-17 Three other studies focused on the attainment of rehabilitation therapy Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 34 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS TABLE 2. Examples of Goal Attainment Scales for Children Receiving Physical Therapy Services to Address Mobility Goal Subcategory Attainment Level Score Functional Gross Motor Skills Ambulation Transitions Baseline *2 Descends 6 stairs, holding the handrail, utilizing a stepĆtoĆstep pattern, with one hand held Ambulates (with walker) from the resource room to classroom in 8.5 minutes with supervision and verbal cueing Transfers self from walker to desk chair with verbal assistance and physical assistance (other person holding trunk and placing feet on/off footrest with weight supported) Less than expected outcome *1 Descends 6 stairs, holding the handrail, utilizing a stepĆtoĆstep pattern, with standby assistance Ambulates (with walker) from the resource room to classroom in 6 to 8 minutes with supervision and verbal cueing Transfers self from walker to desk chair with verbal cueing and physical assistance (holding trunk and placing feet on/off footrest) Expected outcome 0 Descends 6 stairs, holding the handrail, utilizing a reciprocating pattern, with one hand held Ambulates (with walker) from the resource room to classroom in 5 minutes or less with supervision and verbal cueing Transfers self from walker to desk chair with verbal cueing and physical assistance (placing feet on/off footrest) Greater than expected outcome +1 Descends 6 stairs, holding the handrail, utilizing a reciprocating pattern, with standby assistance Ambulates (with walker) from the resource room to classroom in 5 minutes or less with supervision and no verbal cueing Transfers self from walker to desk chair with verbal cueing and no physical assistance Much greater than expected outcome +2 Descends 6 stairs, holding the handrail, utilizing a reciprocating pattern, independently Ambulates (with walker) from the resource room to classroom in 5 minutes or less independently (no supervision/verbal cueing) Transfers self from walker to desk chair independently goals by school-aged children.10,11,13 A recent study by Brown et al.12 examined the effects of physical therapy intervention on the attainment of gross motor goals in individuals ranging from 3 to 30 years with severely limited physical and cognitive abilities. Thus, there is growing evidence that GAS is a useful way to measure therapeutic change. GAS has shown that children receiving pediatric therapy intervention achieve goals in a variety of spheres–classroom productivity, mobility, and communication. Still, questions remain about how to properly conduct GAS and concerns are often raised about its reliabil- Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 35 TABLE 3. Examples of Goal Attainment Scales for Children Receiving Speech-Language Therapy Services to Address Communication Goal Subcategory Attainment Level Score Speech Sound Production of Blends Speech Sound Production in Final Word Position Speech Sound Production in Initial Word Position Baseline *2 Produces ``l'' blends with 85% accuracy in structured phrases (i.e., 17 of 20 trials correct) Produces ``m'' sound in final word position with 80% accuracy at the spontaneous phrase level (i.e., 8 of 10 trials correct) Produces ``f'' sound in initial word position in imitated phrases with 85% accuracy (i.e., 17 of 20 trials correct) Less than expected outcome *1 Produces ``l'' blends with 85% accuracy in imitated phrases Produces ``m'' sound in final word position with 80% accuracy at the imitated sentence level Produces ``f'' sound in initial word position in imitated sentences with 85% accuracy Expected outcome 0 Produces ``l'' blends with 85% accuracy in structured sentences Produces ``m'' sound in final word position with 80% accuracy at the structured sentence level Produces ``f'' sound in initial word position in structured sentences with 85% accuracy Greater than expected outcome +1 Produces ``l'' blends with 85% accuracy in spontaneous sentences Produces ``m'' sound in final word position with 80% accuracy at the spontaneous sentence level Produces ``f'' sound in initial word position in spontaneous sentences with 85% accuracy Much greater than expected outcome +2 Produces ``l'' blends with 85% accuracy at the spontaneous conversational level Produces ``m'' sound in final word position with 80% accuracy at the conversational level Produces ``f'' sound in initial word position when describing a picture with 85% accuracy ity and validity.8,18 The appropriate use of GAS depends on a clear understanding of its strengths and weaknesses19 and thoughtful decision-making concerning the issues that arise when using GAS in pediatric settings. The aim of this article is to assist potential users to decide whether or not to use GAS and to provide information about how to implement GAS with a minimum of bias. Practical tips and guidelines are presented based on our combined experience with five studies that used GAS in three types of pediatric settings: (a) a multidisciplinary, school-based therapy program encompassing occupational, physical, and speech-language therapy services,10,11 (b) physical therapy services for infants addressing mobility and other developmental goals,15,16 and (c) a residential setting for children and adults with Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 36 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS severely limited physical and cognitive abilities.12 These studies were conducted in the United States or in Canada. Based on feedback from therapists involved in these studies, our own observations, and guidelines in the general GAS literature, we have devised standard criteria and procedures for the application of GAS in the formal evaluation of pediatric therapy programs. Other articles have provided information on the technical aspects of using GAS, specifically the steps involved in setting the scales and rating outcomes.13-23 Most of these articles have dealt with the application of GAS in non-therapeutic settings, such as special education services,20,22 human services programs,21 and mental health services.23 On a practical level, the most useful publications are those by Kiresuk and Lund,24 who discuss typical errors in creating GAS scales and answer commonly-asked questions about biases in goal setting and rating, and Smith,23 who provides guidelines around who should set goals and who should rate goal attainment. To date, publications have not addressed the specific issues that arise in using GAS in pediatric therapy: Issues such as how to approach goal selection and goal definition for children with special needs, and where to set the baseline on the GAS scale when a child has a progressive or non-progressive condition. General guidelines for the use of GAS (such as those laid out by Kiresuk et al.6) must be adapted to particular intervention settings and populations because of the different issues that arise in each setting.25 The present article identifies key decision points and provides criteria and guidelines for the systematic use of GAS in pediatric therapy settings, including school-based therapy programs and early intervention programs. DECIDING WHETHER OR NOT TO USE GAS TO EVALUATE PEDIATRIC THERAPY PROGRAMS A number of organizational conditions are necessary for the successful implementation of a program evaluation study using GAS. They include: (a) a motivated team whose members are committed to the evaluation and who share a common drive toward improvement of therapy services, (b) adequate orientation and training of therapists, (c) the availability of people to coach therapists in the proper application of GAS, so that both technical and practical issues are addressed in an integrated fashion, and (d) sufficient resources allocated to do the Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 37 job.24 We often have employed a study coordinator to oversee the data collection and training and to ensure the technical quality of the GAS scaling and rating procedures. The pros and cons of using GAS have been outlined in many articles.1,6,8,13,15,16,18,19,23,26 A primary strength of GAS is its ability to measure change in performance, whereas most standardized measures are discriminative tools designed to measure post-intervention status (based on norms for children without special needs) and have not been validated as responsive to clinically significant change.6,16,19 Clinical significance refers to the magnitude of an effect in real-world terms.27 GAS is criterion-referenced, rather than norm-referenced, making it potentially responsive to small changes that are perceived by children, families, and teachers as important for daily function. GAS may be particularly useful for children with low cognitive functioning, since standardized measures may not be sensitive to the small but meaningful changes targeted for these individuals. Relatively few standardized measures address functional outcomes that are appropriate for children with special needs within a context such as school (e.g., children’s ability to walk from the bus to the school classroom). Standardized assessments of function often are designed to measure a broad range of abilities. Some of these areas may not reflect therapy goals and not be relevant to particular children. Pediatric studies provide a fair amount of evidence that GAS and parallel standardized measures provide scores that are only moderately correlated with one another.10,11,15-17 For formal program evaluation purposes, we recommend the use of both GAS and standardized measures.10,11 In addition to the ability to measure change in the performance of individual children, GAS has other advantages: clinical utility, relevance, client involvement, and acceptability.1,23 GAS is ideally suited to collaborative goal setting between a therapist, child, parent, and other professionals (such as teachers). Its collaborative use reflects a client- or family-centered approach to service delivery.1,3,28 Other potential advantages of GAS include: (a) improved clarity of therapy objectives for both therapists and clients, (b) improved conceptualization and delivery of the intervention, (c) more realistic client and therapist expectations of therapy, (d) increased client satisfaction, and (e) increased motivation of the client toward improvement, provided by the very existence of goals.1,6,13,26 Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 38 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS There are a number of potential limitations in using GAS in a program evaluation study: (a) biases in goal scaling and rating can occur, (b) training and standardized implementation procedures are required, which are time-consuming (when therapists are unfamiliar with GAS), and (c) GAS can interfere with day-to-day practice because, when conducting a program evaluation, therapists should not modify a goal in the course of the intervention. There are two reasons for this. First, the study intervention period may not be sufficiently long for change to be expected on a new or modified goal. Secondly, therapists may elect to change goals they discover that they cannot meet, which undermines the utility of GAS. The major drawback to GAS is the possibility of bias in the use of the tool, which can affect its validity.8,13,16,18 Unintentional bias can occur in goal scaling (so goals are overly easy to attain) or in goal rating (showing children make improvements that are not in fact real). Reliability and validity can be improved, however, by comprehensive training of raters, adequate definitions of the levels of goal attainment, and the use of multiple raters.6,18 As well, there are aspects of how services are delivered in pediatric settings that naturally reduce the possibility and extent of bias in goal scaling and rating. A collaborative goal setting model (a common feature of a multidisciplinary, family-centered approach to service delivery) helps to ensure that goal levels are meaningful and ratings are valid because both are based on a consensus involving several individuals who are knowledgeable about the child and invested in ensuring that the child makes real gains.26,29 Thus, collaborative goal setting helps to ensure that therapy goals are meaningful to the child and family and not simply easy goals that therapists set on their own and can be sure of attaining, which is a criticism raised by many.13,25 We have observed differences between the rehabilitation disciplines with respect to the ease of writing appropriate functional goals. The GAS scaling format appears easiest to apply for speech therapy goals and harder to apply for physical therapy and occupational therapy goals. As well, in King et al.,11 speech-language pathologists found it easier to set goals that could be integrated into the child’s function in the school setting. We speculate that the established hierarchy of the development of speech sounds may assist speech-language pathologists in setting goals in the area of articulation. Physical and occupational therapists needed to give more thought to the process of writing Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 39 the various goal attainment levels. For instance, physical therapists found it hard to set equal intervals between goal levels for goals targeting unique mobility difficulties and found it hard to establish relevant goal levels for high functioning children. Interestingly, there has been relatively little application of GAS in the speech-language area. The majority of applications have dealt with physical and occupational therapy goals.12,14-17,29 HOW TO USE GAS APPROPRIATELY AND EFFECTIVELY IN A PEDIATRIC CONTEXT Overview of GAS Procedure We recommend that the child’s treating therapist participate in the goal setting process and that a therapist not providing services to the child do the goal rating. For each goal, the treating therapist provides a written description of the child’s baseline level of performance. In a family-centered service delivery model, this baseline level of performance would be vetted with clients (i.e., teachers, parents, and often the children themselves). The treating therapist, in conjunction with clients, also provides a written description of the expected level of performance for the child at the end of intervention (corresponding to the 0 rating). We have found it most effective for the other levels of the scale ( *1, +1, and +2) then to be written by the treating therapist in conjunction with a person trained to oversee the quality of the GAS scales (i.e., a person who understands the steps of the scaling procedure, the necessary criteria, and pitfalls to avoid). The final step is a peer review of the GAS scales by the therapists for each discipline who do the ratings of goal attainment at the end of the intervention (with the assistance of a person well-versed in the GAS scaling methodology). If a formal program evaluation is being done, a research assistant may be involved. However, any well-trained person could help identify the goal attainment levels and assist in the peer review of the GAS scales. Ensuring the Technical Quality of the GAS Procedure One needs to ensure that the goal scales are reliable (i.e., that a rating made by one therapist observing the child’s performance is Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 40 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS comparable to the rating made by a different therapist) and that bias does not occur in goal scaling (overly easy goals) or goal rating (improvements that are not real). The reliability and validity of GAS scales can be improved by various procedures: ensuring that treating therapists have a minimum level of experience so they can set realistic goals in conjunction with children and parents; providing comprehensive training to therapists; using collaborative goal setting and peer review in the goal selection phase; ensuring well-written goals through training, peer review, and use of a standard procedure and checklist; and using independent raters (i.e., raters who do not have a personal investment in the outcome). Table 4 outlines the questions that need to be considered in using GAS effectively, criteria that should be met to ensure reliability and validity of the procedure, and procedures and tools that can be used to meet the criteria. These questions and criteria are based on the authors’ experiences in using GAS and on recommendations in the literature. How Much Clinical Experience Is Necessary to Set Appropriate Goals? One year of full-time clinical experience in the setting of interest (a school-based therapy program or an early intervention program) is ideal. This amount of time provides therapists with enough exposure to different types of goals and different children so that they can estimate the performance levels that children will most likely attain. We did not meet this criterion in our own study11 (only 83% of therapists had over a year experience in providing schoolbased intervention) and realize that the experience level and number of staff in the program implementing the evaluation are limiting factors. The ability to decide on the key variables that must change for goal attainment is a skill that improves with experience. Experienced therapists develop competency in assessing child and environmental factors affecting performance, are able to generate various ideas about possible variables to change, and are able to focus in on the variable they believe is the most amenable to change (based on their past knowledge and experience). For example, speech-language pathologists working on communication goals in the area of articulation select particular target sounds based on knowledge of the developmental hierarchy in attainment of speech sounds, the child’s stimulation potential for that sound in isolation, the importance of that sound in increasing the Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 41 TABLE 4. How to Use Goal Attainment Scaling Effectively Questions to Consider Criteria to Be Met Procedures and Tools to Help Ensure Criteria Are Met How much clinical experience is necessary to set appropriate goals? Therapists should have a minimum of 1 year of pediatric experience. scaling. Involve only experienced therapists in goal setting and How much instruction and training is necessary for therapists? Therapists should have approximately 7 hours of specific training in the use of GAS. See Table 5 for recommended orientation and training steps. How can one ensure adequate goal selection? The process of selecting goal areas should ensure that: 1. Goals are meaningful and relevant to others. 2. Goals make sense from a conceptual point of view (e.g., if the goals of the program are to improve dayĆtoĆday function, then the majority of goals set should be functional in nature, rather than impairmentĆbased). How can one ensure adequate goal scaling (i.e., adequately written goal levels on the fiveĆpoint scale)? Each of the levels on the scale should: 1. be written as clearly as possible, in concrete behavioral terms 2. specify an observable behavior of the child 3. be written in the present tense 4. be achievable or realistically possible The scale as a whole should: 1. have levels that reflect clinically meaningful gradations of improvement 2. have approximately equal intervals between the goal attainment levels (i.e., the change from +1 to + 2 should be similar to that between *2 to *1, etc.) 3. specify a time period for achievement 4. reflect a single dimension of change (as long as a goal remains meaningful), keeping other variables constant 5. not reflect attainment that is dependent on the therapist's physical assistance (unless the assistance of others is a written part of the goal) Employ collaborative goal setting (therapists select broad goal areas in conjunction with knowledgeable others such as the teacher, parent, and/or child). Use peer review of goal content. Each criterion can be assured through the use of three interĆconnected procedures and tools: Therapist training Peer review to ensure the adequacy of the goal scales Use of a standard procedure and checklist to review the technical adequacy of written goal scales (see Figure 1) Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 42 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS TABLE 4 (continued) Questions to Consider Criteria to Be Met Procedures and Tools to Help Ensure Criteria Are Met How can one ensure adequate goal rating? 1. Ratings should be done by therapists āĂnot involved in providing the intervention. 2. Reduce the ``performance demands" of ĂāĂĂ the visiting independent rater. Use independent raters. How is the summary score determined? Clients' individual outcome scores need to be aggregated in some way, preferably using TĆscores. statistical software package. Ensure that you have thought of the data analysis stage and have access to a child’s intelligibility, and the consensus of the caregiver. Determining a child’s potential for change during the intervention period is based on clinical judgment (i.e., experience, the underlying cause of the child’s articulation disorder, the type of error with the targeted sounds, the number of other sounds that are in error). How Much Instruction and Training Is Necessary for Therapists? Orientation and training of therapists is necessary for the successful use of GAS.13 The steps and time requirements included in Table 5 are based on Kiresuk et al.’s6 recommendations and our own experiences. Many therapists play the dual role of treating therapist and rating therapist (only for children to whom they do not provide intervention), which requires approximately 12 hours of training. The training procedures in Table 5 incorporate the recommendations of therapists involved in our evaluation studies. For instance, therapists recommended that a list of common errors in creating GAS scales (and solutions) would be useful (Table 6), as would an inventory of potential goals. To develop skill in writing the scales, we recommend the use of small group sessions in which therapists practice putting goals into GAS format (i.e., identifying five levels of possible goal attainment). A series of case scenarios can be used for practice and discussion. Therapists also can practise putting goals in GAS format for two or three children from their caseload. At this point, it is useful for them to have access to a resource binder with examples of the five-point rating Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 43 TABLE 5. Orientation and Training of Therapists to the Goal Attainment Scaling Procedure All Therapists General Orientation (2 hours) S Orientation session S Handout S examples of goals S specific guidelines S list of common errors Treating Therapists-Goal Setting Skill Acquisition (3 hours) S Small group practice S reviewing types of goals S setting goal levels S use of actual case material S OneĆtoĆone guidance with trainer Skill Maintenance (2 hours) S Continued monitoring of goal setting S Question and answer sessions Rating Therapists-Goal Rating Skill Acquisition (4 hours) S Review goals with trainer S peer review of goal writing S familiarizing raters with the goals that they will be rating S Review of goal rating procedure S Handout Skill Maintenance (1 hour) S Question and answer sessions scale applied to goals in particular areas (e.g., mobility goals, communication goals). How Can One Ensure Adequate Goal Selection? It is important that the selected goals are meaningful to the child and family and reflect the primary focus of therapy for the child. We therefore recommend that treating therapists be involved in goal selection rather than independent goal setters.30 How Can One Ensure Adequate Goal Scaling? The literature refers to six criteria for good goal writing: Goals should be relevant, understandable, measurable, behavioral, attainable, and time-limited.13,18 We have gone beyond these general criteria to specify criteria relevant to each of the goal levels and those dealing with the properties of the scale as a whole (see Table 4). Three criteria concerning the scale as a whole require more explanation. First, although the GAS scale examples in Tables 1 through 3 did not specify a time period, it should be noted that a standard time Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 44 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS TABLE 6. Common Errors in Creating GAS Scales Error Description Overly Generalized Goals If the expected level (i.e., 0 level) of a scale is written in very general terms (e.g., ``walks a greater distance in a set period with assistance"), it will be difficult or impossible to create the remaining scale points, therefore making the goal unmeasurable. The expected level of a scale should be written as clearly as possible (e.g., ``walks with platform walker 100 metres in six minutes with two hands on walker to assist with steering"). Solution Overly Technical Goals A goal setter may use terms specific to his/her profession in creating a scale that the goal rater is not familiar with. Write goals in common terms, especially if the goal rater is not of the same professional background as the goal setter. Multiple Variables of Change A scale may include two or more variables of change. This could be problematic if the scale is written so that change is expected to occur simultaneously on these variables. Decide on one variable by which to measure change in performance and hold others constant. If in doing so, the goal does not remain meaningful, two variables could change within in a single scale, provided each scale level differs on only one variable. Unequal Scale Intervals A scale may be created where the amount of clinical change is greater between, say, the +1 and +2 levels than the amount of change between the *2 and*1 levels. Aim for clinically equal intervals between all levels of the scale. Clinically Irrelevant or Unrealistic Scale Levels A scale may be created where one or more of the levels represents an amount of change that would not be clinically relevant to the child (i.e., the amount of change is too small to matter) or the amount of change is unrealistic for the child (i.e., the amount of change is too great). The amount of change between all scale levels needs to be clinically relevant and all levels should be achievable for the child. Using Different Tenses (i.e., Past, Present, Future) When Writing Scale Levels A GAS scale may be written with the *2 level written in one tense and all other levels in another tense, which could be confusing and bias the goal rater. All scale levels should be phrased in the present tense, in order for evaluation to make sense at different time points (i.e., ``walks . . .''). Redundant or Incomplete Scale Levels A scale may be written where a child could be scored on two levels at the same time (e.g., the +1 level has walking distances specified between ``40 and 50 metres'' and the +2 level specifies distances between ``50 and metres"). If a child walks exactly 50 metres, both the +1 and the +2 level would be correct. On the other hand, a gap could be present in the scale where a child could not be scored on any level (e.g., the +1 specifies walking distances between ``40 and 50 metres" and the +2 specifies distance between ``60 and 70 metres"; if a child walks 55 metres, neither the +1 nor the +2 level is correct). Be careful not to create scale levels that are redundant or incomplete. Careful wording (e.g., +1 would be ``more than 40 metres and up to 50 metres" and +2 would be ``more than 50 metres and up to 60 metres") or specific instructions to the rater (e.g., if a child obtains a midway point between two levels, score the child at the lower level) will be of benefit. Blank Scale Levels It may be difficult to write the more extreme levels of a scale, tempting the goal setter to leave these levels blank. If a child happens to achieve an upper or lower extreme, it would be impossible to rate the child's performance. Be careful to set goals where it is possible to complete all scale levels. Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 45 period (the length of the intervention period as prescribed by the study design) was set for all goals. An example may clarify criterion 4. The following goal includes three possible variables of change, namely distance, time, and level of assistance: ‘‘Walks 100m with platform walker in 8 minutes with two hands on walker to assist with steering.’’ In order to write an appropriate scale, the therapist must decide which is the most important variable of change. That variable would then be altered in each of the written goal levels, with the other variables held constant. With respect to criterion 5, if physical assistance is required, this should be explicitly stated in the written goal, either as a constant factor or as the variable that changes over time. The key idea is that goal attainment levels should reflect change in the child’s behavior, not unacknowledged variations in the therapist’s physical assistance. It is permissible to write goals where the physical assistance of someone else is explicitly stated as the variable that changes over time, so that the goal scale shows meaningful changes in the level of assistance the child requires to perform a task. An example of the gradations that could be included in a scale focusing on changes in level of assistance is: physical and verbal assistance required (*2), verbal assistance with checklist required (*1), checklist and verbal cueing or prompting required (0), verbal cueing/prompting required (+1), and completely independent (+2). According to strict research methodology,8 the therapist who sets the levels of goal attainment should not be the same therapist who provides the treatment. This is a difficult criterion to meet since, in actual clinical practice, the treating therapist is involved in goal setting, often in conjunction with the client.10,11,23 This is defensible when one involves an independent rating therapist and a trainer/study coordinator in the review of the goal attainment levels (who follows a standard procedure with set criteria). In our experience, even highly experienced therapists have some difficulty identifying the baseline and expected levels of the goals. Assistance and review by others is useful, appreciated, and necessary. Figure 1 provides a checklist that can be used in the review of written goals by a trainer and independent rating therapist. How Can One Ensure Adequate Goal Rating? Cardillo30 addresses the selection of raters and the decision about the timing of the goal rating session, but provides little information on how to conduct the Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 46 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS FIGURE 1. Goal Attainment Scaling Checklist–Goal Review Procedure Name of Participant: S Therapy Goal: Expected Outcome (i.e., a score of 0) As a whole, the scale must meet the following criteria: Criteria Criterion Met Criterion Not Met Comments Criterion Not Met Comments The amount of change between the levels is clinically important. There are approximately equal intervals between the goal attainment levels. There is a time period for achievement of the goal. The scale reflects a single dimension of change (or, if not feasible, each scale level reflects a single dimension of change). Each level on the scale must meet the following criteria: Criteria Criterion Met Be written in concrete behavioral terms Specify an observable behavior of the child Be written in the present tense Be achievable or realistically possible actual goal rating session. Our experiences have led to some recommendations. First, it is important to consider the child’s view of the rating situation. When children are aware that a new person is coming to watch a session, they may be very motivated to perform well for this visiting person. The treating therapist can reduce the ‘‘hype’’ regarding the rater’s visit by informing the child in advance of the visit and assuring the child that his/her regular performance is what is called for. The rating therapist should minimize the effect of his/her presence by sitting quietly in the back of the room and making notes discreetly. Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 47 A second issue concerns the behavior of the treating therapist in the session. For goals whose attainment cannot be observed under naturally occurring circumstances at school, we have found it most appropriate for the treating therapist to interact with the child and request performance of the behavior outlined in the goal. (Some goals require that the child be set to the task because of infrequent naturally occurring opportunities to display the behavior.) The treating therapist begins by orienting the child to the task. If prompting, cueing or some other support is required, the therapist starts with the 0 level of the scale and prompts for performance up or down the scale depending on the child’s success at the 0 level. Brown et al.12 also used a prompting procedure and allowed up to three trials per goal (for individuals with severely limited physical and cognitive abilities). Similarly, we have found that children may need more than one attempt to demonstrate their true ability. Some children react to the presence of the rating therapist by showing silly behavior and two or three attempts are required before they calm down and demonstrate true performance. How Is the Summary Score Determined? For program evaluation purposes, users need to calculate an appropriate summary score to reflect the overall goal attainment of children in the therapy or early intervention program. The recommended procedure is to convert children’s outcome scores into aggregate T-scores (see Cardillo and Smith,4 for a complete discussion of T-scores and other summary scores). T-scores can be calculated using a statistical computer software package such as the Statistical Package for the Social Sciences (SPSS). Mean aggregate T-scores facilitate reliability analyses and comparisons across children, and provide an overall evaluation of children’s performance. Another advantage of using T-scores is that they can be compared to other standardized scores. T-scores can be computed using the formula developed by Kiresuk and Sherman:5 (10 WiXi) T = 50 + p (1 * r) Wi 2 + r (Wi 2) In this formula, 50 represents the mean and 10 is the standard deviation. Wi represents the weighing for a particular goal and Xi Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 48 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS represents the score for each goal. The r represents the expected overall intercorrelation among outcome scores. The formula for computing the T-score assumes a relatively low correlation among goals of .30. Kiresuk and Sherman5 found this correlation useful because it yields a standard deviation of 10 units. Cardillo and Smith4 strongly recommend against the use of differential weighing of GAS goals. The use of this formula may appear time-consuming and difficult, but the need for manual computation is rare. If goals are not weighted and the suggested intercorrelation of .30 is used, tables are available that allow the quick and easy conversion of outcome scores into T-scores for clients with up to eight scored scales (see Kiresuk et al.6). Conceptual Issues Arising in the Use of GAS Validity Issues: How to Ensure that Goal Attainment Is Real. Two basic strategies can be used to address the issue of validity: (1) supplement the use of GAS with measures that provide more conventional estimates of post-treatment status (i.e., standardized measures) to provide a more comprehensive assessment of outcome,6 or (2) employ randomly selected control goals (after Brown et al.12). In Brown et al., therapists created GAS scales both for treatment goals that were practiced in the physical therapy setting and for control goals that were set but not addressed in practice. The subjects’ progress on treatment goals was significantly greater than their progress on the control goals, suggesting that the therapy intervention was the factor contributing to improved goal attainment and that the goal attainment was real. How to Set the Baseline in the GAS Scale. This is an important consideration. When no deterioration is expected in children’s performance, such as when the child has a non-progressive, chronic condition, *2 can be defensibly used as the child’s baseline.10,11 When evaluating goal attainment of individuals with severely limited physical and cognitive abilities, Brown et al.12 used *2 as a baseline but captured lower performance on a test day by using a score of *3. When evaluating the performance of children with progressive conditions who may deteriorate in function over time, it would make sense to set the baseline at *1. If the expectation is that decreased performance will occur and the goal is to minimize performance loss, it would make sense to write goal levels in terms of gradations of diminished performance. Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 49 How to Best Demonstrate Reliability. It is important to report the reliability of the goal ratings. There are various types of reliability including inter-rater stability (independent raters’ agreement over time) and inter-rater reliability (independent raters’ agreement at the same point in time).8 In King et al.,10 we computed a measure of inter-rater stability, which involved correlating T-scores based on the ratings of the treating and rating therapists obtained on separate occasions. We found a correlation of .6, which indicates a moderate level of agreement between the rating therapists and the treating therapists on the amount of improvement the children made on their goals, and is typical of estimates of stability obtained when ratings by different individuals are obtained on different occasions.6 In our second study, we felt it was more appropriate to obtain a measure of interrater reliability from two independent rating therapists who rated the goals on the same occasion.8 Using this procedure, the inter-rater reliability (Intraclass Correlation Coefficient) was .98. To demonstrate that the GAS scales are reliable, we recommend that others examine and report inter-rater reliability estimates from two independent raters. Brown et al.12 computed measures of inter-rater reliability between a treating therapist who directly observed levels of goal attainment in a physical therapy setting and an independent rater who scored goal attainment based on videotapes of the same sessions. This is a good way to reduce performance demands or reactive behavior created by the presence of an unfamiliar, independent rater. What Does It Mean When the Change Exceeds Therapists’ Expectations? Studies have found that GAS ratings are often higher than the expected level of 0 on the 5-point scale.10,11,15,16 Since the ratings were reliable, it appears that finding change exceeding therapists’ expectations is not due to biases in the rating procedure, but rather in the goal setting. There is therefore fairly strong evidence that expected outcomes may be underestimated systematically by therapists. The multiple reasons for this are hard to disentangle. Therapists may set low levels of expected goal attainment to be cautious and ensure success for the child. It is also possible that therapists underestimate the therapy gains that children can make, which may be due to not fully taking children’s motivation into account. The underestimation of expected outcomes should be discussed with therapists during training in future studies. Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. 50 PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS How to Approach Goal Selection and Definition. When selecting a goal, therapists need to be aware of the underlying factor that is being targeted for change–whether the major limiting factor is the child’s endurance or motivation, for example, or aspects of the physical environment. Goal definition therefore is based on the therapist’s working hypothesis of the best way to assist the child to perform the task. The therapist’s hypothesis about the major factor limiting the child’s successful performance is sometimes evident from looking at the goal scale that is set. We have found that when the variable being changed deals with a quality (such as accuracy) or a quantity (such as number of letters formed correctly), then the working hypothesis seems to deal with some aspect internal to the child. On the other hand, when the variable being changed deals with the level of physical or verbal assistance provided, or levels of equipment support, then the variable of change corresponds to the factor of critical importance in the therapist’s view. Under these conditions, the written goal levels provide a window on the therapist’s view of the factors limiting the child’s goal achievement. Implications for Therapists and Managers This article should help therapists and managers make informed decisions about whether or not to use GAS, based on an understanding of the questions they need to ask and the requirements for using GAS appropriately and effectively in pediatric program evaluation studies. Moreover, the criteria and procedural guidelines presented here should provide useful assistance to those using GAS in pediatric settings. Information from GAS can to be used to improve programs, to assist in meeting accreditation requirements, and to demonstrate accountability to governing bodies and funders. GAS has been criticized due to its potential for bias when implemented without thought and care.18 We have provided a more hopeful or balanced perspective here. GAS can be implemented appropriately when guidelines and standard procedures are used. Under these conditions, it is well worth the effort to use GAS to evaluate pediatric therapy programs. Service providers, managers, parents, and children themselves benefit from the knowledge provided by goal attainment scaling. Phys Occup Ther Pediatr Downloaded from informahealthcare.com by University of British Columbia on 09/15/10 For personal use only. King et al. 51 REFERENCES 1. Russell D, King G, Palisano R, Law M. Measuring individualized outcomes (Research Report No. 95-1). Hamilton, ON: McMaster University and ChedokeMcMaster Hospitals, CanChild Centre for Childhood Disability Research; 1995. 2. Russell D, King G, Palisano R, Law M. Measuring individualized outcomes. Proceedings of the American Academy for Cerebral Palsy and Developmental Medicine. 1996; 25. 3. Zaza C, Stolee P, Prkachin K. The application of goal attainment scaling in chronic pain settings. Journal of Pain and Symptom Management. 1999; 55. 4. Cardillo JE, Smith A. Psychometric issues. In: Kiresuk TJ, Smith A, Cardillo JE, eds. Goal attainment scaling: Applications, theory, and measurement. 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