Communication . . . is a family affair Reaching Out A Newsletter from the BC FAMILY HEARING RESOURCE CENTRE for families with deaf and hard of hearing children, service providers, and others involved with hearing loss Summer/Fall 2011 Family Feature The Stacey Family Goes the Distance for Tarron In this issue, we introduce you to the Stacey family formerly of Hudson’s Hope, near Dawson Creek in the Northeast region of the BC, now living in Prince George. They began receiving our services after Tarron was diagnosed with hearing loss in 2006. Tarron (with a little help from his mom) writes about his experiences over the last five years and what the future holds. Hi! My name is Tarron Stacey, I was born June 6th, 2005. I have three other siblings, Jacelynne 18, Kestyn 15, and my brother Tage 12. I am very active, I love to ride bikes, catch critters, play music, colour and go quadding and hunting. When I was 4 months old my parents (Lynnea and Clayton) were pretty sure I was not hearing properly. They took me to many people before I was finally diagnosed at nine months as profoundly deaf in both ears. This was quite a shock as all my siblings and family members were all hearing, and after much testing it was determined that there was no particular reason for my loss; it was just the way I was made. I began wearing hearing aids shortly after this. I had to go to BC Children‟s Hospital to see if I would be eligible to get a cochlear implant. This was very upsetting at first as my mom and I would be travelling alone for most of this, and we didn‟t know much about Vancouver, except it was a long way away! We made a few trips down from our home in Hudson‟s Hope to find out exactly how severe my hearing loss was and which ear would be implanted first. At this time they were only doing one ear at a time, the one with the least amount of hearing. It was decided it would be my right ear as all I could hear from it would be a Jet airplane taking off...if I were close to it. We made the journey (about 15 hours from home) on February 11th, 2007 and I was implanted on the 12th. Then it was back home for 6 weeks and then back to Vancouver for turn on and then many, many trips for mapping and check ups with my Audiologist Todd Mitchell and ENT and surgeon Dr. Fred Kozak. 15220 - 92nd Ave., Surrey, BC V3R 2T8 PH: 604-584-2827 TF: 1-877-584-2827 TTY: 604-584-9108 FAX: 604-584-2800 [email protected] www.bcfamilyhearing.com 2 We had been involved with the BC Family Hearing Resource Society since I first began wearing hearing aids. The ladies from there were absolutely wonderful. They came to our home waaaaay up in the North always with fun toys and games, and so many great suggestions, ideas and links to help for every situation. It is safe to say this journey would have been very stressful without all the encouragement, genuine care and concern we have received from everyone at the centre. Judy (Chrastina), Cathy (Luther) and Dyan (Spear) made the trip up to our house in Hudson's Hope. They started the very first introduction to language and made us feel like we were not alone on this adventure. Where we lived was very isolated from any kind of services for me, or kids that have hearing loss. We made visits to BCFHRC in Surrey so that I could see someone with similar gear as me, although any one with a hearing aid is a good friend of mine! mail, „cuz you can‟t just whip over to pick up a part around here either! We were put in touch with our local Child Development Centre in Fort St. John which is still an hour away in good driving conditions, even longer in the wintery months, and winter seems to be longer here than summer! So many people have influenced me, Sharon (Neufeld), Suzie (Fairweather), Karen (Jackson) and Ivana (Kranjec) we will miss you all so much!!! I have made so many friends my own age who‟ve also made me understand that I am not alone. There are LOTS of kids just like me, and that is huge. Although my journey into learning has just begun, it feels like we have been at this forever. I am now heading into Kindergarten feeling more prepared than I could have imagined. This used to seem soooo far away; my parents held me out of Kindergarten for a year to let my speech catch up and oh, has it! We started speech and language therapy and preschool in Fort St. John and worked with many, many people. The other draw back of living up here is that it is hard to keep speech therapists in such a cold climate, everyone wants to live where it is warm! (or husbands get transferred etc...) When I was three years old I finally started to talk. This was huge as my mom seriously thought for a while that maybe I wouldn't. Up to then we signed and did picture charts and a lot of charades. She just couldn't wait for some words to finally pop out after all this driving to therapy and many trips to Vancouver for equipment checks and replacement parts to arrive in the We then had Judy (Chrastina) as my outreach worker and she was soooooo fun! My mom taught playschool and Judy would come to the school to make sure everyone was doing their best to help me learn to talk and help the other kids see that I was just like them. Then Kristyn (Payne) became my worker and my mom stopped teaching so she could drive me to all my appointments. Kristyn made learning seem like a game, but I always came away doing something new....hmmmmm tricky. When Kristyn left to have a baby of her own, I met Dyan. I probably remember Dyan as my outreach worker best now that I am a ripe old age of 6 and she seems more like my friend than a teacher! My family moved to Prince George this year so I can have the services I need around me. My siblings are even changing schools/towns for me. As I begin my new journey into school I have also learned I will be receiving a second cochlear implant in the fall. So, just when things were gonna settle down we will start all over....only BC Family Hearing Resource Centre-Reaching Out–Summer/Fall 2011 3 now we are prepared, thanks to the overwhelming support by so many wonderful people; now instead of being scared to go to Vancouver we are thrilled! We love it! We have discovered so much and can‟t wait to keep learning and discovering life, because all in all I am just a typical boy. I want to play guitar, baseball, go hunting with my Dad and Papa and Big brother. I want to play with my friends and I love my family, and I WILL succeed, thanks to all of you. Five Minute Listening Activity Laundry Language! A lot of us are very busy and feel the time crunch of our daily lives. There just don‟t seem to be enough hours in the day to fit in all the things we have to do. Not to mention the responsibility of having a child who has hearing loss and the pressure that comes with having to practice listening and language activities at home. One of the best ways for youngsters to learn is by being involved in everyday activities. Why not ask your 3-year old to help you sort or fold the laundry? You could organize the laundry into piles based on colour. Another idea is to have your child help put the clean clothes away by asking them to follow one, two or three step instructions. This could even involve prepositions or possessive nouns such as, “Put in Eddy‟s room on the dresser.” You could even have your two year old just help you put items one by one into the dryer and emphasize the word “in” each time. You could talk about the type of clothing and whether it‟s soft or rough. The possibilities are endless. Bits & Pieces Hellos and Goodbyes Hello! My name is Catherine Moore. I am a Teacher of the Deaf and Hard of Hearing. I am excited to be working with the children and families at the BC Family Hearing Resource Society. I grew up in Moose Jaw, Saskatchewan (brrr). I completed my undergraduate studies in Elementary and Deaf Education at Minot State University in North Dakota and my Masters in Early Intervention in Deaf Education at Fontbone University in St. Louis, MO. I have taught at the Montreal Oral School for the Deaf and the Children‟s Hearing and Speech Centre of BC. I look forward to meeting everyone! Goodbye to Kristyn Payne, Teacher of the Deaf and Hard of Hearing. We are sad to say goodbye to Kristyn, one of our treasured staff members. Kristyn has accepted a position with the Children‟s Hearing and Speech Centre of BC. We look forward to maintaining contact with Kristyn and wish her all the best as she begins a new chapter in her career. Please join us in welcoming Catherine to our Team! BC Family Hearing Resource Centre-Reaching Out–Summer/Fall 2011 4 You and Your Deaf and Hard of Hearing Child Crafting Fun and Learning by Charmaine Francis, RSLP Craft activities are a great way to develop a variety of skills, including language and listening. So save those old coffee cans and create some music with your child! Coffee Can Drum You will need: coffee can with plastic lid glue scissors decorations (e.g., construction paper, stickers, markers, glitter), pencils, chopsticks or spoons for drumsticks With your child, decorate some construction paper with stickers, markers, or whatever you have around the house! When you are finished decorating the paper, glue it onto the coffee can. Once your drum is made, you can use anything as your drumsticks. Pencils, chopsticks or spoons work great! Not only will your child love making music with his/her new toy, it also provides lots of opportunity for learning! Here are some ideas: Listening: Help your child learn the difference between quiet sounds and LOUD sounds! You can also encourage your child to listen for and copy how many beats you do on yours. Understanding language: As you decorate your drums, talk about what you and your child are doing as you do it (e.g. “glue, glue, glue,” “put it on,” “blue sticker,” “more sparkles!”). Using language: Give your child a choice of what to put on next (e.g., “Do you want sparkles or stickers?”). This gives your child the opportunity to take the lead and communicate what he/she wants! Speech: If you are focusing on a specific sound with your little one, decorate your drum with pictures or stickers using that sound (e.g. for „b‟ decorate with birds or bugs, for „d‟ decorate with ducks or dogs). Social communication: With two drums (one for you and one for your child) you can take turns! Use language like “my turn” and “your turn!” Have fun! BC Family Hearing Resource Centre-Reaching Out–Summer/Fall 2011 5 25 Years of Making a Difference In Appreciation of our Supporters Since our last issue, the following individuals and organizations have continued to make a difference in the lives of our children and their families by generously donating to our centre either monetarily or through goods and services. Elks Agassiz Burnaby Cloverdale Prince Rupert Royal Purple Aldergrove Kelowna Merritt North Kamloops Port Coquitlam Prince Rupert North Surrey Salmon Arm Smithers Terrace Williams Lake Individuals & Organizations Ken Mulligan via Telus Communications CHHA – BC Chapter Obviar Family Google Matching Gifts Program Open Purse Foundation James & Sally Hurst Peterson Family Dr. & Mrs. John McGregor in memory of Leone May Young & Dr. David Michael Joe Taylor Stibbs Telus Communications Joyce Wood-Campbell‟s Soup Label Prgm Variety, the Children’s Charity funds the BCFHRC Deaf Mentor Program We are extremely pleased to announce that Variety has responded favorably to our grant application to provide Deaf mentor services to more families at BC Family Hearing Resource Centre. Deaf mentor activities are increasing for: intake, ongoing support and through our groups. We will be providing you with updates as to the opportunities and outcomes from this exciting new grant. Thank you, Variety! We Need Your Help to Continue to Make Futures Bright for Deaf and Hard of Hearing Children If you‟d like to help or get involved with the BC Family Hearing Resource Society, we‟d love to hear from you! There are multitudes of ways you can do it. Consider these options: Donations – one time, monthly, annually Legacy Gift – tributes, annuities, life insurance, securities & trusts Corporate Sponsorship Special Events Volunteer Opportunities If you‟d like more information on any of the above subjects or if you have questions, please call Cathy Cruickshank, our Finance & Accounting Administrator at 604-584-2827, extension 227. BC Family Hearing Resource Centre-Reaching Out– Summer/Fall 2011 6 25 Years of Making a Difference 10th Annual Elks and Royal Purple Walkathon Each year in May, our founder and donor, the Elks and Royal Purple host a walkathon in support of BC Family Hearing and the Surrey Early Speech and Language Program. Preparations are underway all year by our dedicated volunteer committee to ensure that we increase awareness, raise much needed funds and that a great time is had by everyone. This year was no exception. The event is held in Campbell Valley Park in Langley. The walk is non competitive and families enjoy the beautiful scenery, and the opportunity to enjoy each other‟s company. Sponsors, especially the Elks and Royal Purple, their lodges (notably Cloverdale, Langley, White Rock and Vancouver) and their lodge members who help organize the event, host a barbecue and donate prizes for participants. We are also grateful for support from Jackie Allain, McDonalds, Ultimate Seafood Junkies, Marlan Logistics, the BC Lions, IGA, the YMCA, and Allegra Print & Design. This year, we added on-line pledging and donations. It was very popular and we were encouraged to see staff, Board and especially families share our stories and invite others to become involved. If you did not get a chance to contribute, it‟s never too late, please give online, plan to come next year May 27, 2012 or contact the centre for ways to get involved. We are thrilled to have exceeded our goal of $12,000 with a record of over $18,000 raised!! Many thanks to EVERYONE who contributed to this astoundingly successful event! Thank you Elks and Royal Purple – together, we build bright futures!! BC Family Hearing Resource Centre-Reaching Out– Summer/Fall 2011 7 Seasonal Signs summer hot BBQ barbeque autumn/fall/ September cool school holiday relax sunshine all day today tomorrow BC Family Hearing Resource Centre-Reaching Out– Summer/Fall 2011 8 Reaching Out Newsletter published quarterly by Calendar Sept 5 6 Labour Day Holiday Fall Session Begins Oct 10 12 to Nov 30 13 18 20-22 21 22 Thanksgiving Day Holiday Evening Sign Language Classes 6:30-8pm PEER Evening Workshop Session#1 Early Childhood Educators Workshop 6:30-8:30pm CAEDHH Conference - Richmond BCASLPA Conference – Victoria BC Hands & Voices/Guide By Your Side Workshop 10-3 at BC Family Hearing Resource Centre Nov 11 17 23 Remembrance Day Holiday PEER Evening Workshop Session #2 BCFHRS Annual General Meeting 15 19 26 & 27 PEER Evening Workshop Session #3 Winter Party Closed in lieu of Christmas & Boxing Day Dec Our Recent Outreach Consultants’ visits to Communities Throughout BC June Dyan Spear- Vancouver Island-South & Central, Kelowna, Vernon, Revelstoke Zara Newnham- Golden July Dyan Spear-Vancouver Island-North Zara Newnham- Prince George Sep Judy Chrastina & Emily Black, Bella Coola Judy Chrastina – Williams Lake Dyan Spear - Courtenay, Comox, Nanaimo, Port Alberni, Vernon, Kelowna, Revelstoke, Salmon Arm Oct Carolyn Hawrish, Kamloops Judy Chrastina, Prince Rupert Dyan Spear- Fort St. John, Victoria BC Family Hearing Resource Centre 15220 – 92nd Avenue Surrey, BC V3R 2T8 Toll Free: 1-877-584-2827 Phone (604)584-2827(voice), (604)584-9108 (tty), (604)584-2800 (fax) Executive Director: Noreen Simmons Editors: Cindy Adams & Carolyn (Trengrove) Hawrish We are a family-centered early intervention Provincial Resource Program committed to individual communication choices. We provide support and resources throughout BC to deaf and hard of hearing children, their families and Community Service Providers. The purpose of the Reaching Out Newsletter is to provide information and support to our readers. Reference to any specific commercial products, process, or service by trade name, trademark, manufacturer, or otherwise, does not necessarily constitute or imply its endorsement, recommendation, or favoring by the BC Family Hearing Resource Society. Articles and ideas are welcome! The opinions expressed therefore are those of the authors and do not necessarily reflect the opinions of the Board of Directors or the staff. We reserve the right to edit contributions for brevity and clarity. There is no fee for the Reaching Out newsletter, however, donations are gratefully accepted. Sign Language from the Canadian Dictionary of ASL, Carol Sue Bailey & Kathy Dolby, Editors. Used with Permission from the University of Alberta Press. Newsletter - Mail, On-Line or Email? Would you prefer to receive our newsletter emailed to you? Are you aware that our newsletters are posted on our website? In our efforts to “Go Green” we are offering the electronic distribution option to those interested. To receive your newsletter this way, simply email [email protected] with the email address you would like the newsletter sent to AND the current name and address it is being sent to by mail in order to have your name removed from the list. BC Family Hearing Resource Centre-Reaching Out– Summer/Fall 2011
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