NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 20 Working with Pakistani service users and their families A practitioner’s guide Shama Kanwar Stuart Whomsley HQ Elizabeth House, Fulbourn Hospital, Cambridge CB21 5EF. T 01223 726789 F 01480 398501 www.cpft.nhs.uk A member of Cambridge University Health Partners NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 2 Acknowledgements The authors would like to thank the following people for their assistance in producing this document: Martin Liebenberg for his support in developing the document’s content and direction. Dr Asif Zia for his contribution to the section on service users travelling to Pakistan. Professor Zenobia Nadirshaw for reviewing a draft of this document and offering supportive comments. Ahmed Ijaz Gilani for allowing us to use his article. Janice Hartley for her advice on spirituality and mental health. About the authors Shama Kanwar has worked in community relations for over 14 years both at a strategic level advising Senior Management on community and equality issues and at grassroots level with specific hard to reach BMER groups. Shama has worked nationally as an independent facilitator in an initiative involving Police Officers and Muslim communities on community cohesion and has been instrumental in setting up BME Staff Support networks in three organisations. Shama is currently working as a Community Development Worker based in Peterborough working with Black Minority Ethnic and Refugee communities, running community based projects that raise awareness of mental health and how to access services. Shama also works at length with healthcare practitioners to engage with service users and their families to gain an understanding of the role culture plays in the treatment and recovery of the individual. Dr Stuart Whomsley is a clinical psychologist who works in an Assertive Outreach Team. In this role he has a long established working relationship with a number of clients from the Pakistani community. He is involved in both community development initiatives locally and good practice guidance for his profession nationally. 2 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 18 References Hilty, A. 2010. Western Psychology, Eastern Cultures – Mismatch? Ezine articles. Available at: http://ezinearticles.com/?WesternPsychology,-Eastern-Cultures---Mismat ch?&id=4130088. [Accessed 21 November, 2010]. Gilani, A. I, Gilani, U.I, Kasi, P.M, Khan, M.M, 2005. Psychiatric Health Laws in Pakistan: From Lunacy to Mental Health. PLOS medicine, Public Library of Science. Available at http://www.ncbi.nlm.nih.gov/pmc/ articles/PMC1215469/. [Accessed 29 November, 2010]. Introduction Aap ki Awaz. Our Voice: The Pakistani community’s views on mental health and mental health services in Birmingham, 2007. Published by Rethink. Available at: www.mentalhealthshop.org/products/ rethink_publications/our_voice.html. [Accessed on 29 November, 2010]. Sajid, A. 2003. Death & Bereavement in Islam. The Muslim Council for Religious & Racial Harmony. Available at: www.mcb.org.uk/downloads/DeathBereavement.pdf. [Accessed on 3 March 2011]. Culture is a shared, learned, symbolic system of values, beliefs and attitudes that shapes and influences perception and behaviour; an abstract mental ‘blueprint’ or ‘code’ and must be studied ‘indirectly’ by studying behaviour, customs, material culture (artefacts, tools, technology), language, etc. Professor Kathleen Dahl How do you capture ‘culture’ accurately when it involves people’s visible and invisible values and beliefs? Is it possible to be completely impartial when writing about your own cultural background as I am doing? Do the experiences I’m sharing in this work truly represent the Pakistani culture? Furthermore, is it ‘fair’ or ‘ok’ to produce guidance on the culture of a whole nation, particularly one that is as rich and diverse as the Pakistani culture? These questions were considered when deciding to produce this guidance and weighed against the need to raise awareness amongst practitioners of how a service user’s culture may impact on their engagement with services and their subsequent recovery. Pakistan is made up of different states that vary significantly in language, dress and ‘culture’, and it would take a very detailed piece of work to fully capture the customs of all the states comprehensively. Considering the background of the Pakistani communities settled in Peterborough, which reflects the cases used in this work as reference, it seems more realistic and reasonable to say that this guidance has been produced on the Pakistani culture but with ‘a particular focus on the Mirpuri and Punjabi communities’, which are the majority Pakistani communities settled in Peterborough. It is almost impossible to measure the external input people have during their lives that shapes their sense of identity, and to pinpoint the extent to which someone lives their life according to values passed down through culture and the impact of their current environment on them, if that is 1 18 different from when they were growing up; as in the example of a person coming to live in the UK as an adult. As demonstrated by this point, it is risky to make generalised assumptions about culture, as cultural values may be enforced by families and communities but interpreted by individuals. It is also important to note that there may be cultural differences across generations as there may be a parent or grandparent that came to live in the UK as an adult and their children and grandchildren may be born and brought up in the UK, therefore their experiences would be very different from each other. An example is where taking the children to the cinema may be seen as appropriate by young parents of Pakistani origin but may be frowned upon by older members of the family. For the reasons mentioned above, this guidance should not be used as an authority on all things Pakistani but as a tool that can assist practitioners when working with individuals and their families in the context of having positive regard to the person’s cultural values and beliefs to build relationships and aid recovery. The individual and family should be given the opportunity to express in their own words what their cultural and religious1 identity means to them as it will be unique for each person. The small sample of anonymised cases used in this guidance resulted from family work that I have undertaken in my capacity as Community Development Worker for BMER communities. I was able to engage more freely with families as my own background is Punjabi and I am fluent Although culture and religion are different things, people may talk about them as one or use the terms interchangeably. 3 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 in Punjabi and the surrounding dialects of the area and work with local families where practitioners felt that additional support with language and culture would be beneficial for the service users and their families. The cases have been included to illustrate the points being made rather than as a measure of success, which varied from the service user being discharged with very positive results to very little change in condition. Shama Kanwa Additional comments from the second author This has been a hugely rewarding project to be involved in that is largely the work of Shama. Working with clients and families from the Pakistani community has raised my curiosity about their culture at both a personal and professional level. Being culturally blind, though not as bad as racism is still not good, it is akin to neglect compared to racism being abuse. The importance of cultural awareness is 16/8/11 09:07 Page 4 two fold. First, it enables a better understanding and formulation of the person's psychological distress and confusion together with its impact on family and carers. Secondly, it increases the likelihood that interventions offered will be successful as they are taking account of the cultural factors for and against change. In working with clients from the Pakistani community, including people born in England, it has struck me how their understanding of mental illness has greater components of the role of the body and the spirit in these conditions, but a lesser appreciation of the mind, than when working with clients of long standing English heritage; a challenge for anyone wanting to carry out standard Cognitive Behavioural Therapy. This has confirmed my bias to suggest that a holistic approach that takes account of mind, body and spirit is usually the best. Points to consider… The first and most important step is to ellicit, in an open and non-judgmental way, the service user (and if appropriate the family’s) ideas, concerns and expectations. The second step is to recognise that symptoms attributed to possession by jinn are commonly manifestations of a mental disorder that will most likely benefit from medical treatment. The third step is to appreciate that, although the patient and relatives may obviously have interpreted symptoms incorrectly, beliefs that are strongly held (and often socially convenient due to perceived stigma) will be difficult to alter at a time when anxieties are running high. Stuart Whomsley ‘pot’ out of which they would pay for their wedding. Sometimes the money may be used as a deposit for a house which may be rented out to generate more income for the extended family. What should clinicians do when a patient or the family or friends believe that jinn are the cause of symptoms or unusual behaviour? In such cases where patients are deemed to have a medical, psychiatric or psychological disorder but are not receptive to medical explanations, patients can be encouraged to 'hedge their bets’ by taking the prescribed treatment while continuing with spiritual therapy. This double strategy may be the best hope of securing adherence to prescribed treatments. There may also be the additional very important benefit that patients and their families are willing to enter into discussion about the other therapies that are being tried. Whilst these usually consist of repeated readings of certain sacred texts, the concern is that in desperation some families may turn to exorcists who inflict physical harm in an attempt to free the individual from possession – sometimes with catastrophic consequences. 4 It is very important, therefore, to establish channels of communications with the patient, the family and any spiritual practitioner whose help is being sought. Wider issues around accessing services According to a Rethink project focusing on the Pakistani community’s view on mental health and mental health services in Birmingham, successive studies have shown that people from BME groups experience relatively higher levels of mental illness than the white British population. Some of this may be attributed to socio economic factors such as the experience of racism, unemployment, homelessness, social exclusion, poor physical health and living in deprived areas. Other findings of the research found that stigma of mental illness needs to be overcome to enable mental health as an issue to be accepted and openly talked about. People may be ignorant or unaware of the facts of mental illness and communities may not know which services are available to them or how to access these services once they decide to recognise and ‘face the problem’. It was also found that cultural and language barriers can hinder people from taking up services and there is a ‘keep it to yourself’ approach adopted across the community where mental health issues are concerned. As the service user will be thinking in holistic terms, including faith, somatic symptoms and perhaps mental illness as understood by ‘Western’ practitioners, it is important for practitioners to take a similar approach and elicit an open response about how the service user and/or their family views the situation, even if only clinical treatments are available. This will enable the practitioner to learn about any alternative treatments being accessed such as spiritual healers. Culture, faith, eastern, western – ultimately these are labels we attach to each other to help us make sense of something that is new or different, the real success when working with people is if we can understand what the labels mean to the individual and how they interpret their own identity, only then can we truly deliver a service that focuses on and responds to the needs of the whole person. Conclusion As discussed during the introduction, the aim of this document is to highlight important parts of the Pakistani culture that will assist practitioners in working with service users and their families from Pakistani backgrounds. We have used our experiences of working with families to highlight the issues raised, and the subsequent input that was given to support the delivery of a service that was appropriate. In addition, some cultural values have been explained such as attitude towards relationships, timings and diet that may also assist practitioners to gain a better understanding of some of the factors that may be driving a particular attitude or behaviour. 17 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 spiritual healers will encourage families to think about the possibility of a mental illness where they feel that their full criteria for possession is not met. The role of the Islamic therapist in cases of possession, who must have strong faith in Allah, is to expel the jinn. This is usually done in one of three ways – remembrance of God and recitation of the Qur'an (dhikr); blowing into the person's mouth, cursing and commanding the jinn to leave; and seeking refuge with Allah by calling upon Allah, remembering him, and addressing his creatures (ruqyah). Some faith healers strike the possessed person, claiming that it is the jinn that suffers the pain. The practice of striking the person is deplored by Muslim scholars as being far from the principles of Islam. The general approach of expelling evil spirits by convincing them to leave is similar to the passage in the New Testament (Luke 8:24) where Jesus expels demons from a man who is possessed. Though it is not often spoken about publicly the Church of England and the Catholic Church retain Ministries of Deliverance for exorcisms. Within mental health services over the last twenty years there has been a growing awareness of the spiritual component to the mental illness with the development of organisations such as the Spiritual Crisis Network. Although the individual or their family may believe there to be a spiritual component to a condition, this does not always mean they believe the individual is possessed by a jinn. A belief in spells and evil eyes could mean that a mental as well as physical illness is viewed as having a spiritual element to it other than possession therefore it is important to engage with the individual and their family to ascertain their views on the condition and its causes as this often proves instrumental to recovery. Through working with families that believed there to be a spiritual component to the service user’s mental health, it has been important not limit ourselves to medical treatment, and to consider the wider options of psychological therapies as well as family work with those closest to the service user. The differences of cross cultural understandings of mental health can 16 16/8/11 09:07 Page 16 be appreciated within the context of models of how beliefs in Asia are different from the ‘Western’ views such as those illustrated in the table below which has been developed from an article by Hilty on cultural differences: Pakistani culture and communities Islamic influence and culture Asian Western Core values of ancient China such as hierarchy, moral development, achievement and social responsibility as well as a dualistic model medical system based on principles of balance and harmony. Pathology driven, overlaid by the values of ancient Greece such as individuation, self control and self efficacy. Cognition is abstract, paradoxical, circular and indirect. The universe is seen as a web of infinite connections (holistic cognition). Cognitive process is one of logic, critical analysis and direct and rational thought in which the universe is conceptualised as the sum of its parts (analytic cognition). Socio-centric model of self which is formed within the social context and defined by it at any given moment. A sense of self requires emotional connectedness. Ego-centric model of self where each person’s sense of self is considered autonomous and unique, individuated and largely consistent regardless of context. Orientation is one of interactionism, in which the presence of complex causalities is assumed and the focus is on relationships and reactions between persons or the person and the surrounding environment. Orientation of the individual is one of dispositionism, in which the internal disposition of the individual is the primary consideration. Health is inclusive of all aspects – physical, mental, emotional, spiritual and social, conceived of as a state of harmony and balance, illness being termed as ‘patterns of disharmony’. The model of Cartesian duality of mind and body is adopted where the two are separated, hence mental illness being treated in many areas independently of physical and spiritual symptoms. Religious beliefs and values have a strong influence on society and its culture. Even a person of longstanding English heritage who is an atheist is likely still to hold beliefs and attitudes that are Christian in origin as a consequnce of growing up in a society with a substantial Christian faith history. In this context it can be difficult to ask a person to focus on themselves as an individual during cognitive behavioural and solution focused therapy , as they may consider this a selfish act or may simply not be accustomed to thinking of themselves as an individual entity. This echoes some African cultures where one is seen to exist through others in their family and community. Often blood ties are seen as more important than money therefore it may not be unusual for a parent to control their children’s finances until they are married and sometimes even after marriage. On the surface this may be seen as a selfish act but parents may put all the money they collect from their children in a joint Islam is the main religion practised in Pakistan with around 97% of the population being Muslim and the remaining 3% made up of Christian, Hindu and Sikh communities. Although Shari’ah (Islamic law & jurisprudence) is not strictly practised in Pakistan, Islam governs people’s personal, political, economic and legal lives on a daily basis making religion an important factor to consider when working with Pakistani families, as the lines between faith and culture are often blurred. Pakistan and Azad Kashmir Pakistani culture is made up of a mosaic of Islamic traditions and is influenced by Hindu culture, which is evident in the way weddings are celebrated and events such as ‘Basant’ (spring festival). Pakistani Muslim families or individuals within them can be either culturally or Islamically driven and still identify themselves as Pakistani and Muslim. Variations can include naming traditions where a family driven by culture may choose an Urdu name such as Shabnam (morning dew) for a female child and Sahil (seashore) for a male child. A family with a more Islamic outlook may give their child an Islamic name such as Maryam (Mary) for a female child or Muhammed for a male child although cultural and religious names may be given together. Social areas such as the level of free mixing may also differ depending on whether a family is more cultural or religious as well as the level of access to media in the home such as Hindi film and television. As Mirpur has no airport, passengers from the UK will often use Pakistan’s Islamabad airport from which Mirpur is a 2 to 3 hour journey. Unlike Christian families where the gap between practising and non practitising Christians is much wider, the majority of Muslim Pakistani families identify quite strongly with their faith and will practice it at some level. As a minimum, families may 16 have a pork and alcohol free diet and pray or read the Holy Qur’an occasionally whereas a practising family will adhere to the five daily prayers, observe hijaab (Islamic dress) and may not allow free mixing. Adding to this an influence of the Hindu and British culture in Pakistani families highlights the level of diversity that makes up ‘Pakistanis’ and people from a Pakistani background. Azad Kashmir is a self governing state to the North-East of Pakistan which is administered by the Pakistani Government. The largest City in Azad Kashmir is Mirpur which is neighboured by the province of Punjab in Pakistan. The largest Pakistani community in Peterborough is the Mirpuri community coming from Mirpur and the surrounding areas, followed by the Punjabi community. Pakistani dress When we first meet a person we will be making rapid judgements of who they are and where they fit in to our understanding of society. In this rapid account the clothing a person is wearing can play an important role. The clothes that we wear can be a strong marker of personal identity, age, class and culture. Points to consider… Where possible, allow the service user to describe in their own words how they view their cultural identity. This is important considering the cultural diversity of Pakistani families depending on how ‘traditional’ or ‘Western’ they are, how much they are influenced by practices deriving from the Hindu culture and how closely they practice the Islamic faith. Gaining this information will help you to recognise the level of importance the individual’s cultural heritage holds for them and how this may influence their treatment and recovery. Point to consider… Some people from Azad Kashmir may identify themselves as ‘Pakistani’ on ethnic monitoring forms but will consider themselves as ‘Kashmiri’ or from ‘Azad Kashmir’ in everyday conversation. The national dress of Pakistan is shalwar kameez which is a long top with loose, baggy trousers. Men may also wear a skullcap and women will usually wear a large scarf with their shalwar kameez. In the UK, men often adapt to the ‘Western’ style of dress unless they come to the UK when they are older, where the preference is to wear shalwar kameez. Women will wear a variety of dress ranging from the shalwar kameez worn in the traditional way or ‘anglicised’ by wearing trousers with a long top, to totally ‘Western’ dress. In recent years there has been an 5 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 increase in women choosing to wear the ‘hijaab’ which is an opaque piece of material wrapped around the head and held secure with a pin. This can be worn with shalwar kameez, ‘Western’ clothes or then with a jilbaab which is a long coat like dress that reaches down to the ankles. Pakistani dress is linked to modesty which is a value of Islam and is usually maintained by people of Pakistani origin however they may choose to dress. 16/8/11 09:07 Page 6 Parveen Parveen is in her teenage years and has been diagnosed with anorexia. The immediate and extended family’s diet consists mainly of Pakistani food, particularly those that are rich in spices, flavours and cholesterol and the family equate being ‘big’ with being healthy and well. The women of the house insist on cooking and serving food to Staff whenever they visit, this being seen as a sign of hospitality and graciousness. This includes being served fried food with fizzy drinks early in the morning and three course meals when visiting to support Parveen to eat during lunch visits. The family often insist that everything on the table be sampled including large quantities of fried food. Gold jewellery Pakistani communities will have differing views about men wearing gold jewellery as some men may wear a gold ring, bracelet or chain and others believe it is not permitted in Islam. Women however are encouraged to possess and wear gold jewellery as a sign of wealth and good status. It is traditional for women to wear gold bangles and other jewellery on a daily basis and daughters will be given gold jewellery by direct family members upon their marriage which stems from the notion of giving something that can be used during times of hardship. Often gold jewellery is passed down to daughters and daughters-in-law. Diet and food One of the most common markers of cultural identity is the individual cuisine that a culture has developed. This is one of the most accessible ways that a person from one culture can experience and value that of another. Pakistani food fits within the wider culinary framework of Indian food and as such is something that has familiarity and value in the UK. Food is an industry that excels in Pakistan even when the economy is down, perhaps because this is one of the few areas where people from lower socio economic groups can demonstrate control and discretion, as affording a car or going on a lavish holiday would not be achievable. 6 Parveen’s family were encouraged by her dietician in supporting her to stick to a food plan that would slowly introduce eating back into her daily routine again. The family continued to offer Parveen other foods at the dinner table despite being explained that this would hinder her progress. The family have different ideas about the ‘truth’ regarding diet that was not shared with Parveen’s clinicians; and seemed to attempt to introduce extra foods to Parveen whenever the opportunity presented itself. This hindered Parveen’s progress and she often spoke about an atmosphere in the family home in which they did not speak openly about problems and issues and how difficult it was for her to share things that were on her mind with her mother or other family members. After months of support, Parveen’s family are now taking part in family therapy with a view to admitting her into hospital if her weight does not improve. Pakistani food is rich in flavour, spices and high in cholestrol with sweet desserts containing a high sugar content. The use of meat and chicken is very common at mealtimes and it would be considered offensive to serve a completely vegetarian meal at a dinner party or to guests, although a vegetarian accompaniment would be acceptable. Culturally, food is linked to hospitality, seen as a sign of good living and the sharing of food as an act of kindness. It is common to serve food at festivals and gatherings and is given away to the poor during times of happiness such as a wedding or the birth of a child or grandchild. Guests will be encouraged to share a meal and may have food put on their plate and offered seconds or thirds despite the recipient’s protest, as illustrated in Parveen’s case. Babies and children are seen as healthy if they are on the upper end of the normal weight range and may often receive comments about their health depending on how much weight they have gained or lost, which is in contrast to the ‘Western’ culture where it may seem inapproriate to comment on a baby or child’s weight. Mental health and Pakistani communities Spirituality and understanding of mental illness in Pakistani communities Excerpt from ‘Psychiatric Health Laws in Pakistan: From Lunacy to Mental Health By Ahmed Ijaz Gilani There are many players and factors involved in the access, provision, delivery, functioning, and uptake of mental health services in Pakistan. Awareness about mental illness is still poor in Pakistan. Such illness is generally attributed to supernatural causes—it is considered to be a curse, a spell, or a test from God. Those who experience mental illness often turn first to religious healers, rather than mental health professionals, since patients and their families tend to have great faith in these healers. Religious healers use verses from the Qur’an to treat patients. Next, patients turn to traditional and alternative healers, who are also popular in Pakistani society. Help from the mainstream health-care system is usually sought late in the course of the illness; however, the referral system is inefficient and, particularly in the case of individuals who are mentally ill, patients are usually taken by their families directly to tertiary or specialist hospitals, rather than to primary-care practitioners. It is, however, important to note that many mental illnesses can be treated and managed by primary-care practitioners. The private sector also plays a major role in providing psychiatric care. For those who can afford it, private psychiatric care is an option frequently used. [Excerpt from section on Mental Health Infrastructure]. In view of the above account of mental health services in Pakistan, understanding of mental illness in Pakistani communities is significantly different from the models commonly used in the UK. As well as mental illness being considered in a holistic context including environment and physical health, it is also understood in the context of spirituality. Belief in supernatural forces is prevalent in Pakistan. Jinn (anglicised to genies), evil eye and spells are part of daily life in Pakistan and spiritual healers can be found in most markets and street corners. According to Islamic belief, jinn are real creatures that form a world other than that of mankind. There is little detailed description of jinn in the Qur'anic and Prophetic literature. The term ‘jinn’ is derived from Arabic ijtinan, which means 'to be concealed from sight'. Although they reside in what are in essence parallel worlds, humans and jinn are believed by Muslims, to have some ability to influence each other towards both positive and negative ends. Satan (who is within the Islamic tradition a jinn and not an angel, and hence has the choice to disobey) is the most infamous of the jinn and is primarily concerned with enticing humanity to forget its divine origin. According to Islamic writings, jinn live alongside other creatures but form a world other than that of mankind. Though they see us they cannot be seen. Characteristics they share with human beings are intellect and freedom to choose between right and wrong and between good and bad, but according to the Qur'an their origin is different from that of man. According to Islamic scholars, a person unable to think or speak from their own will, experiencing seizures and speaking in an incomprehensible language may be possessed by jinn; however, more often than not a physical cause can be found for the unexpected behaviour and many 15 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 Pakistan. Clozapine is not a commonly prescribed medication in Pakistan and the monitoring procedure differs to that in the UK. The user will need to obtain for themselves a blood test at a hospital or private laboratory for a full blood count. They or a family member or carer then phone the drug company's monitoring service and inform them of the results. The drug company will then deliver to where they are staying and will ask to see the results printout in confirmation before handing over the medication. 16/8/11 09:07 Page 14 Points to consider… Not all people with a Pakistani background will have a good practical knowledge of Urdu, therefore it is important to ascertain the particular Pakistani language or dialect the service user speaks at home. Mirpuri and Punjabi are the most popular Pakistani languages in Peterborough. Both languages use the written form of Urdu as there is no written form of Mirpuri and Pakistani Punjabi speakers will not be able to read or write the written form of Punjabi. Most interpreters that speak a Pakistani language will also speak Urdu. Service users may wish to have a same sex interpreter. Pakistani languages & interpreting The term ‘Pakistani’ includes a mosaic of different cultures. The national language is Urdu and is spoken in the public sector as well as English. Many other languages are spoken in the different regions of Pakistan such as Punjabi, Siraiki, Sindhi, Pashtu, Balochi, Hindko and Gujurati and the diversity in languages is often reflected in differences in culture, diet and traditions. It would be true to say that a significant number of people living in more isolated or rural areas of Pakistan may not speak Urdu. The majority of Pakistani families settled in Peterborough speak Mirpuri or Punjabi. This is an important point to keep in mind as not all those that speak Where the service user is unable to read or write, they can be involved in using pictures and photos from South Asian media to tell their story. Examples of alternative media include the Asian Bridal magazine, MAG the weekly and the Jung, Nation & Watan newspapers as well as mainstream media. Mirpuri or Punjabi will be comfortable with having an Urdu interpreter even though Urdu is the official language of Pakistan. It may be more appropriate to request an interpreter that specifically speaks Mirpuri or Punjabi, as many interpreters registered to speak languages from Pakistan will almost always have a good knowledge of Urdu. Mirpuri and Pakistani Punjabi speakers will use the written form of Urdu if they need to write something down in their language. Weight gain or loss in adults is viewed in a similar way. More full bodied actors and actresses are common in the Pakistani film industry and weight loss, even when done in a healthy way is sometimes viewed as a sign that something is wrong physically in the form of an illness or due to mental distress such as problems in the family; although younger people may identify more with the ‘Western’ ideals regarding weight and may therefore be more aware and conscious of gaining weight. In Parveen’s case the family were concerned that the extended family or community members would think there was something wrong in the family and that was the reason for Parveen’s weight loss, and her lack of eating was a cause for tension during festivals such as Eid. In many Asian cultures including Pakistani cultures, foods are considered in terms of ‘hot’ and ‘cold’. This is not concerned with the temperature at which the food is served but rather the ‘effect’ on the body, which can be harmful if food combinations are not balanced. For example, almond nuts are ‘hot’ when eaten as a nut but ‘cold’ if soaked overnight in water providing the outer layer is removed. Mangoes are considered ‘hot’ and should be consumed with yoghurt milk (lassi) as this has a cooling effect on the body therefore neutralising the heat in the mangoes. Although not so prevalent in Pakistani communities, Hindu communities associate certain foods with mental and emotional states such as meat with aggressive behaviour, as well as recognising the physical ‘hot’ and ‘cold’ effects on the body. The sense of time ‘I remember visiting my great grandmother’s house in Pakistan as a child and not having a clock in the house, even if there was it would have been no good to her as she couldn’t tell the time.’ 14 How time is understood and valued differs between cultures. This is an area that industrial businesses have had to pay close attention to in order to function efficiently in different countries. Some cultures value punctuality, meticulous planning and stay committed to them. Countries that typify this approach, technically known as ‘monochronic’ are the USA and Germany . In contrast there are polychronic cultures which include Pakistan. In these countries multiple activities occur at once, there is greater flexibility around time with the focus on the relationship being more important than promptness or the job in hand. Timing is very relaxed in Pakistan, particularly in the more rural areas away from office based companies. Social visits to family and friends are made unannounced as many households have an ‘open door’ policy where the door is left unlocked during the day for people to visit. The main structure to the day is around the five daily prayers and timings may be given around these, for example, ‘I’ll see you after dhuhr’ or ‘make sure its before maghrib’. Points to consider… Psycho-education is key when working with Pakistani families around eating disorders to help them to understand the condition and support the recovery of the individual. Talking therapies around eating disorders often involve individual and family work. Families may not be comfortable with talking about the family and its dynamics as this would normally be done on a one to one basis or with a small trusted same sex group. Families will most likely feel under pressure from the wider community and may hide the problem rather than talk about it openly. Weddings and such functions are very relaxed affairs with no set start time and guests arriving and being served at various times. Although the structure of the day is relaxed, there are customs around visiting a family where there has been a birth of a child or a death as soon as possible and offence could be taken if a family member or friend were not to visit on such an occasion. Similar rules apply to inviting a newly married couple around for a meal after their wedding, as the first few months are usually taken up by being invited by family and friends to meals where delicacies are served and gifts given to the new bride and groom. Accommodation It is customary in Pakistan to buy and acquire land so that property can be built and extended as the family size grows. Often, a house will start off with two or three rooms and will then be extended as per the family’s needs which is particularly the case in more rural areas. In more suburban areas where it is not possible to extend due 7 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 to lack of space, a property adjacent to the family home or nearby will be purchased to keep extended family as close as possible. In Pakistan it is still not widely accepted for a couple to move out of the husband’s family home and in such cases this will only happen where there is a family rift or diasgreement. The young couple is almost always seen as being responsible for the separation, for not showing tolerance and patience to their elders. In the UK, many families follow a similar model. Families in the Central Ward of Peterborough have preferred to extend small properties to allow for growth over moving into larger homes which would mean moving out of the area. Extended families living in the same home or nearby are respected by other community members as they are seen to be practising true Pakistani 16/8/11 09:07 Page 8 values. For this reason, families often resist the urge to separate after marriage as they are aware of the stigma associated with moving away. Where couples do separate after marriage, significant time is often spent at each other’s houses to show that the family is still a strong unit. This custom usually only applies to sons as daughters can be married outside the area but would have the same expectations placed on them in their husband’s home. This has implications for when clinicans may consider that it would be benefical for the service user’s mental health to move to supported accommodation either to help their recovery or to manage with risk issues. Such a move away from the family home could produce an additional stigma in addition to that of mental health, making it an even harder move to achieve. Points to consider… An appointment with a clinician may not be kept if a family member or friend arrives at the house unannounced as it would be considered rude to ask the person to return at a different time. Families with very traditional values only plan their calendar for a number of days, therefore it is not unusual for an appointment sent weeks in advance to be forgotten or to be confused with a different date. The service user is not being awkward, they simply may not be used to this, particularly if they do not have school age children to provide structure to their day or are new arrivals to the UK. If embarking on an extended piece of work with a service user and/or their family, it may be useful to emphasise the importance of keeping appointments, attending on time and notifying someone if they cannot attend. Pakistani communities in Peterborough Localities Maliha The majority of Pakistani families in Peterborough are from the Mirpur area of Azad Kashmir that have been settled in the UK for over 50 years. In line with national trends, there are a significant number of Punjabi Pakistanis followed by people from other areas such as Sindh. The Pakistani community is concentrated around the Central Ward area expanding out to surrounding areas such as West Town, Dogsthorpe, New England and more recently Netherton, with a few families living in other areas across Peterborough. Travel to and from Pakistan It is customary for people to keep close ties with family in Pakistan as well as family in and around the UK and annual holidays to Pakistan for periods of four weeks or more are common to make the cost of travel worth while. Popular reasons for travelling to Pakistan apart from visiting family are to familiarise children with their culture, marriage and to promote the traditional customs and values when living in the UK. Visits to Pakistan are usually a highlight for people of Pakistani origin as they may not have regular holidays as understood in the UK. Families spend time shopping for their family in Pakistan and family members in the UK tend to visit to say goodbye, making it a time of happiness and anticipation and this was the case for Maliha who benefited immensely from seeing her family in Pakistan for the first time without her abusive husband. Clients from the British Pakistani community frequently travel to Pakistan to meet their relatives and for holidays. These trips to Pakistan can last for a number of months and therefore raise the issue of treatment whilst there. When in Pakistan some people visit shrines, faith healers and also see a psychiatrist. It is prudent to advise clients that whilst they are in Pakistan they continue with the medication they are taking and not change it unless advised to do so by the UK treating team. This is to prevent clients from suffering relapse or return 8 Maliha had been diagnosed with depression and had taken medication for her condition for many years. She came to the attention of secondary care services upon the birth of her child and separation from her husband which followed shortly after. Maliha has other children and had endured domestic and financial abuse from her husband for many years. Although she had been visiting doctors for a long time, Maliha’s husband had been allowed to interpret for her and she was never seen alone to have the opportunity to share her ordeal with anyone. Maliha’s eldest daughter was still under 16 but not in any form of education or training and took on most of the household chores and looking after her younger brothers and sisters. I found Maliha very low, isolated and scared of telling anyone about her problems, spending most of her time feeling very tired and down. Maliha said she found it difficult to undertake any household chores as her body ached afterwards. I interpreted some basic information about depression to her in Punjabi and worked in a pictorial way to help her understand her depression and how the mental state was linked to her physical state resulting in the pains and aches. Maliha improved over the coming weeks as she was able to talk about the issues around her marriage in a cultural context. During a review, we found a number of things that had been misinterpreted such as Maliha hearing water when she had actually been describing her depression and how she felt that she was drowning in her sadness. Maliha responded very well to the basic techniques around managing her depression and within a few months was able to take over many of the household chores from her daughter and went to visit her family in Pakistan and was subsequently discharged. of their illness which would spoil the time they are in Pakistan. It is worth noting that there are differences in practices, medications available and doses of drugs. It also might not be possible to continue the medication started in Pakistan. Pakistan also has a high rate of Hepatitis and other water and blood borne infections. Caution is required with those medications that are administered by injection e.g. Depot. Service users and their families should be advised to buy needles from reputable sources and to dispose of them safely. For clients who are on medication that requires blood tests it is important to consider the following: The blood tests may not always be reliable, depending on the type of health care facility in which they are taken. There are issues with used needles being repackaged, so appropriate care should be taken in sourcing clean ones. People taking Clozapine will need to register with the Clozapine monitoring service in 13 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 Often titles significant in the community or religious sense may be used such as ‘Haji’ if someone has completed the Hajj pilgrimage or ‘Choudhary’ if someone is a landowner or in a position of power in a village setting system; although Choudhary has more recently been used as a surname. Names Names and their meanings are very significant in the Pakistani culture. First names are considered to influence the individual’s personality and life and parents or older family members may rename a child if they develop ongoing ill health or other problems as the name may be seen as ‘heavy’ for the individual; ‘heavy’ in this context would be if the definition of the name had a negative connotation such as ‘sacrificer’ or ‘oppressed’ and also if the name was that of a historical figure that had lived a difficult or trying life. Families that are more culturally driven would usually subscribe to this notion. 16/8/11 09:07 Page 12 Points to consider… Considering the naming combinations, it is not unusual for members of the same family to have different surnames, for example a father may be called Mohammed Atif Khan and his daughter may be called Samina Bi. Samina would not inherit her husband’s surname upon marriage. Pakistani families and communities The concept of family In Pakistani communities the concept of ‘family’ is the basis of social structure and individual identity encompassing more than the nuclear family and immediate blood relatives. Family is a term that is used to describe distant relatives as well as those acquired through marriage and includes people from the same baradari (tribe), friends and neighbours. Some people may also refer to people from the same village or general area in Pakistan as part of their family. Amongst Pakistani families, there is a greater sense that a person does not only represent themselves but is part of the ‘family’, therefore successes and failure, praise and shame can be shared by the family in the wider sense. Marriage Who and how we choose to form couple relationships with, marry and have children with has a strong cultural component. The relative weighting of determinants such as practicality or romantic love differs between cultures, within them over time and varies between individuals within that culture. Traditionally within Pakistani cultures, marriage is seen not only as the union of two individuals but is seen as an alliance between families, or often a reconfirmation of alliances within the family in the broader sense outlined above. Within traditional families, suitable partners that meet the family’s expectations around family, tribe, wealth or education, are suggested to the individual by a respected member of the family to seek their opinion on the match. This process can work in the reverse order where the individual (more often the male than female) suggests a partner to their parents or other respected member of the family. Providing the person being suggested meets with the family’s expectations and neither of them is already betrothed, the marriage is usually arranged in the traditional way. Arranged marriages often have very positive outcomes and are not to be confused with a forced marriage. 12 Sometimes individuals are forced into a marriage where one or both partners do not consent. In this case the individual’s choice is overlooked because of the perceived benefits of the match to the wider family such as reinforcing family ties, culture or for economic reasons. Such arrangements can be the cause of much distress and there are services available to help people suffering in these circumstances. The process of choosing a partner or having a ‘love’ marriage is becoming increasingly popular in the less traditional families living in the larger cities where dating or marrying someone outside the ‘family’ is now also becoming acceptable. Marriage and mental illness Where a young family member has a diagnosis of mental illness a marriage may be sought as a way of solving the problem and/or share the burden of care. This could also be considered as a social inclusion approach when mental illness is not seen as an exclusion from normal life roles such as being a partner or parent. Points to consider… It is not unusual for extended family members to have input into matters relating to the service user. Sometimes an older child is used to interpret and talk about problems. This is seen by the family as acceptable because an older child is encouraged to take on adult duties from a young age; however, it is important for practitioners to consider the child’s wellbeing and use an interpreter for anything but the most basic interpreting. Immediate family members of the service user can sometimes feel pressurised by family members in a position of power or authority such as a parent, uncle, aunt or in laws of the service user. These family members could live nearby, elsewhere in the UK or abroad. Parents may take the decision to find a partner in Pakistan where a poorer relative would agree to marry their son or daughter to enhance the family’s economic status, particularly with a son where it is felt that he would be able to earn money in the UK and support the family back home. The family in Pakistan would then rely on their son once he was in the UK to provide financial support for their sibling’s weddings and to provide electrical goods such as laptops and televisions in addition to a monthly allowance. This has been a recurring theme with families I have worked with and has been the case for Sadia and Tariq (see case study page 10). This arrangement may lead to further complications once the spouse comes to the UK and the severity of the illness is realised by the partner from Pakistan. Where the woman arrives from Pakistan, she often has no way of sharing her experiences of living in a country where she does not 9 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 understand the language or customs with a husband who is unwell and living with extended family and looking after the household. This may lead the woman herself to experience mental health problems such as depression and anxiety and may only come to the attention of services during a pregnancy and childbirth where mental distress may be picked up in the form of post natal depression. In the case of the male partner coming to the UK, there may be much family tension between the male and his wife’s family as he may feel tricked and betrayed once he realises the extent to which his wife may be ill. Due to the perceived stigma and shame of a failed marriage, the wife’s family may take over the responsibility of their daughter’s household including cooking, care of children and offer financial assistance to ensure the marriage is not dissolved once the husband receives permission to stay in the UK permanently. This was very much the case in Sadia’s family as her mother had pushed for Sadia to be married to a maternal cousin and felt it would be further shame for her in particular if her daughter was divorced. The conclusions to be drawn from this are obvious: where an arranged marriage is to occur between a person with a diagnosed mental illness from the UK and a person from Pakistan, the potential partner from Pakistan needs to be made fully aware of the circumstances so that they can make an informed choice. This is not only the most ethical position, meaning the marriage remains arranged rather than forced, but also avoids much potential heartache in the future. Death and bereavement Death and bereavement are times when a family is most likely to follow Islamic teachings whether they are practicing or not in everyday life; therefore Islamic practice will be referred to in this section with any 10 16/8/11 09:07 Page 10 Sadia Sadia is a young woman of Pakistani origin who has managed an obsessive compulsive disorder since her teenage years. Sadia’s family took her to Pakistan and married her to her cousin Tariq. This has exacerbated Sadia’s illness to the point that she hasn’t been able to manage her rituals and the demands of her married life since Tariq came to live with her and her family in the UK. Tariq is not supportive due to a lack of understanding around Sadia’s OCD, believing that she is making everything up. Sadia’s family are fearful of the shame that would come to the family if Tariq left and at times while working with the family it was felt that Tariq took advantage of this. Sadia’s family affords Tariq’s living expenses and on one occasion Tariq left home after an argument involving extended family members on both sides of the family, insisting on Sadia apologising to his family before returning home. Sadia described the incident and talked about how degraded she felt apologising to protect the family’s honour even though she didn’t feel that she had been in the wrong. Sadia’s Mother performs many of Sadia’s rituals for her such as doing household chores in the way Sadia feels they should be done and doing them repeatedly to ‘keep the peace’ in the house. variations in Pakistani culture being made explicit. Muslims believe that death is divinely willed and when it arrives it should be readily accepted. With this in mind, there is rarely any questioning by the bereaved as to why they have lost their loved one; therefore it would not be culturally appropriate to voice such questions during the mourning period or afterwards which could cause a barrier during talking therapies if the topic of discussion is one’s feelings about losing someone. Muslims are always buried and never cremated and the dying person is encouraged to recite and declare his or her faith. Upon death the body is treated gently and with respect, being washed or bathed, scented, and covered with a clean cloth for burial. It is very important that the body is released from the hospital, with all the necessary papers as unnecessary delays in the burial would cause distress to the family. Muslims are directed to conduct the burial as soon as possible after death. These Islamic values are strong in Pakistani families and it is common in Pakistan to bury the person on the day of their death; therefore families accustomed to this practice may find it particularly distressing in the event of a delay. While Islamic traditions recommend a person to be buried in the area they die, it is usual for a Pakistani person living in the UK or their family to have their body flown to Pakistan as their final resting place. One of the main reasons cited for this is that Muslims are required to be buried wrapped in a large cloth without the wooden coffin which is not permitted in the UK. It may also be that people want to be buried in Pakistan to be buried with other deceased relatives. The decision to fly a body to Pakistan for burial can place undue financial pressure on the family as it is an expensive process. When there has been a death in a household, it is common practice for friends and relatives to visit from all over the UK, the family being supported by local relatives with food and providing overnight accommodation where necessary. Islamic practice recommends mourning for a period of three days for any friend or relative, however cultural practices vary and in some cultures a period of mourning can be up to forty days. In the case of a wife losing her husband the period of mourning lasts for four months and ten days. This period of time is referred to as ‘Iddah’ or ‘period of waiting’ during which the wife is encouraged to perform only those duties that are absolutely necessary and is not allowed to remarry until her ‘iddah’ period is over. There are a number of reasons for this, amongst those are giving the wife time to grieve without the demands of everyday life and she is not allowed to marry to prevent confusion of the child’s father were she to fall pregnant if she remarried. During the mourning period weeping or crying quietly is permissible in Islam, but crying loudly or wailing is discouraged; however, in some Pakistani cultures wailing still takes place, particularly amongst women. married and have children of their own, their status changes and they are thought of as mature. This is not linked to age as status in this context would not change until marriage, regardless of age. Another phase is when one’s children are married and they become grandparents. In some cases this could be as early as the late thirties when the individual is seen to have fulfilled their responsibilities and is elevated in status to be considered an older or more respected person. The final phase is when people become more religious and spend more time in worship and resting while the children and grandchildren look after their needs. Points to consider… As Muslims are taught to accept the passing of a loved one and not question it, people may find it difficult to open up during talking therapies as they may feel guilt over their feelings. Families may travel to Pakistan at short notice if a relative passes away there. As these visit can be arranged in a matter of hours, families may not be able to contact practitioners if a service user is also travelling regarding medication or other issues relating to their care whilst away. Older people Pakistan is a hierarchical society and one of the commonalities that runs across all Pakistani cultures is the respect of older people because of their age and position. Older people are seen as being experienced and wise and in social settings may be served first and have drinks poured for them. It is widely unaccepted for older people to go into a residential care home as it is seen as an honour to look after older members by the young although homecare is usually accepted. In decision making, the most senior person by age or status (this could include being head of the house or in a job viewed as respectable) is expected to make decisions that are in the best interest of the group. Points to consider… Immediate family members may try to keep the service user’s illness a secret from other family members or in laws to prevent stigma and impact in the relationship if the spouse is still in Pakistan. This may add more pressure on the family and service user to ‘recover’ so they can get pregnant in the case of a female or get a job in the case of a male to show wider networks that everything is ok. Family pressures can exacerbate a person’s illness more so than in a person that is not from a Pakistani background. If a close family member passes away in Pakistan, their family in the UK may wish to go to Pakistan at short notice. If it is deemed that there would not be suitable care for a service user while caregivers are away, the decision may be made to take them along without consulting practitioners as priority would be given to being united with family in Pakistan during the time of loss. Age In the Pakistani culture, ‘age’ is not just physical but is also linked to phases in life. For example people are considered to be ‘young’ before marriage and their opinion may not be sought in family matters; however, once they are Some older Pakistani people settled in the UK may choose to spend the winter months in Pakistan as it is believed that spending time in a warm country promotes health and wellbeing. Titles Similar to many other cultures, an older person will not be referred to by name as a mark of respect. Older people will be referred to as uncle, auntie or as grandparents (in their respective language) if they are older. The word ‘ji’ is commonly added to titles as an added mark of respect, for example ‘chachaji’ would be a paternal Uncle (chacha) with ‘ji added for respect. Points to consider… As older family members are so well supported and cared for within the family network, a deterioration in physical health will be picked up quickly. Concerns around mental illness may not be picked up if the awareness is not there as the older person will be accompanied to appointments and may not access situations where mental health problems could come to light such as older people’s groups. 11 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 understand the language or customs with a husband who is unwell and living with extended family and looking after the household. This may lead the woman herself to experience mental health problems such as depression and anxiety and may only come to the attention of services during a pregnancy and childbirth where mental distress may be picked up in the form of post natal depression. In the case of the male partner coming to the UK, there may be much family tension between the male and his wife’s family as he may feel tricked and betrayed once he realises the extent to which his wife may be ill. Due to the perceived stigma and shame of a failed marriage, the wife’s family may take over the responsibility of their daughter’s household including cooking, care of children and offer financial assistance to ensure the marriage is not dissolved once the husband receives permission to stay in the UK permanently. This was very much the case in Sadia’s family as her mother had pushed for Sadia to be married to a maternal cousin and felt it would be further shame for her in particular if her daughter was divorced. The conclusions to be drawn from this are obvious: where an arranged marriage is to occur between a person with a diagnosed mental illness from the UK and a person from Pakistan, the potential partner from Pakistan needs to be made fully aware of the circumstances so that they can make an informed choice. This is not only the most ethical position, meaning the marriage remains arranged rather than forced, but also avoids much potential heartache in the future. Death and bereavement Death and bereavement are times when a family is most likely to follow Islamic teachings whether they are practicing or not in everyday life; therefore Islamic practice will be referred to in this section with any 10 16/8/11 09:07 Page 10 Sadia Sadia is a young woman of Pakistani origin who has managed an obsessive compulsive disorder since her teenage years. Sadia’s family took her to Pakistan and married her to her cousin Tariq. This has exacerbated Sadia’s illness to the point that she hasn’t been able to manage her rituals and the demands of her married life since Tariq came to live with her and her family in the UK. Tariq is not supportive due to a lack of understanding around Sadia’s OCD, believing that she is making everything up. Sadia’s family are fearful of the shame that would come to the family if Tariq left and at times while working with the family it was felt that Tariq took advantage of this. Sadia’s family affords Tariq’s living expenses and on one occasion Tariq left home after an argument involving extended family members on both sides of the family, insisting on Sadia apologising to his family before returning home. Sadia described the incident and talked about how degraded she felt apologising to protect the family’s honour even though she didn’t feel that she had been in the wrong. Sadia’s Mother performs many of Sadia’s rituals for her such as doing household chores in the way Sadia feels they should be done and doing them repeatedly to ‘keep the peace’ in the house. variations in Pakistani culture being made explicit. Muslims believe that death is divinely willed and when it arrives it should be readily accepted. With this in mind, there is rarely any questioning by the bereaved as to why they have lost their loved one; therefore it would not be culturally appropriate to voice such questions during the mourning period or afterwards which could cause a barrier during talking therapies if the topic of discussion is one’s feelings about losing someone. Muslims are always buried and never cremated and the dying person is encouraged to recite and declare his or her faith. Upon death the body is treated gently and with respect, being washed or bathed, scented, and covered with a clean cloth for burial. It is very important that the body is released from the hospital, with all the necessary papers as unnecessary delays in the burial would cause distress to the family. Muslims are directed to conduct the burial as soon as possible after death. These Islamic values are strong in Pakistani families and it is common in Pakistan to bury the person on the day of their death; therefore families accustomed to this practice may find it particularly distressing in the event of a delay. While Islamic traditions recommend a person to be buried in the area they die, it is usual for a Pakistani person living in the UK or their family to have their body flown to Pakistan as their final resting place. One of the main reasons cited for this is that Muslims are required to be buried wrapped in a large cloth without the wooden coffin which is not permitted in the UK. It may also be that people want to be buried in Pakistan to be buried with other deceased relatives. The decision to fly a body to Pakistan for burial can place undue financial pressure on the family as it is an expensive process. When there has been a death in a household, it is common practice for friends and relatives to visit from all over the UK, the family being supported by local relatives with food and providing overnight accommodation where necessary. Islamic practice recommends mourning for a period of three days for any friend or relative, however cultural practices vary and in some cultures a period of mourning can be up to forty days. In the case of a wife losing her husband the period of mourning lasts for four months and ten days. This period of time is referred to as ‘Iddah’ or ‘period of waiting’ during which the wife is encouraged to perform only those duties that are absolutely necessary and is not allowed to remarry until her ‘iddah’ period is over. There are a number of reasons for this, amongst those are giving the wife time to grieve without the demands of everyday life and she is not allowed to marry to prevent confusion of the child’s father were she to fall pregnant if she remarried. During the mourning period weeping or crying quietly is permissible in Islam, but crying loudly or wailing is discouraged; however, in some Pakistani cultures wailing still takes place, particularly amongst women. married and have children of their own, their status changes and they are thought of as mature. This is not linked to age as status in this context would not change until marriage, regardless of age. Another phase is when one’s children are married and they become grandparents. In some cases this could be as early as the late thirties when the individual is seen to have fulfilled their responsibilities and is elevated in status to be considered an older or more respected person. The final phase is when people become more religious and spend more time in worship and resting while the children and grandchildren look after their needs. Points to consider… As Muslims are taught to accept the passing of a loved one and not question it, people may find it difficult to open up during talking therapies as they may feel guilt over their feelings. Families may travel to Pakistan at short notice if a relative passes away there. As these visit can be arranged in a matter of hours, families may not be able to contact practitioners if a service user is also travelling regarding medication or other issues relating to their care whilst away. Older people Pakistan is a hierarchical society and one of the commonalities that runs across all Pakistani cultures is the respect of older people because of their age and position. Older people are seen as being experienced and wise and in social settings may be served first and have drinks poured for them. It is widely unaccepted for older people to go into a residential care home as it is seen as an honour to look after older members by the young although homecare is usually accepted. In decision making, the most senior person by age or status (this could include being head of the house or in a job viewed as respectable) is expected to make decisions that are in the best interest of the group. Points to consider… Immediate family members may try to keep the service user’s illness a secret from other family members or in laws to prevent stigma and impact in the relationship if the spouse is still in Pakistan. This may add more pressure on the family and service user to ‘recover’ so they can get pregnant in the case of a female or get a job in the case of a male to show wider networks that everything is ok. Family pressures can exacerbate a person’s illness more so than in a person that is not from a Pakistani background. If a close family member passes away in Pakistan, their family in the UK may wish to go to Pakistan at short notice. If it is deemed that there would not be suitable care for a service user while caregivers are away, the decision may be made to take them along without consulting practitioners as priority would be given to being united with family in Pakistan during the time of loss. Age In the Pakistani culture, ‘age’ is not just physical but is also linked to phases in life. For example people are considered to be ‘young’ before marriage and their opinion may not be sought in family matters; however, once they are Some older Pakistani people settled in the UK may choose to spend the winter months in Pakistan as it is believed that spending time in a warm country promotes health and wellbeing. Titles Similar to many other cultures, an older person will not be referred to by name as a mark of respect. Older people will be referred to as uncle, auntie or as grandparents (in their respective language) if they are older. The word ‘ji’ is commonly added to titles as an added mark of respect, for example ‘chachaji’ would be a paternal Uncle (chacha) with ‘ji added for respect. Points to consider… As older family members are so well supported and cared for within the family network, a deterioration in physical health will be picked up quickly. Concerns around mental illness may not be picked up if the awareness is not there as the older person will be accompanied to appointments and may not access situations where mental health problems could come to light such as older people’s groups. 11 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 Often titles significant in the community or religious sense may be used such as ‘Haji’ if someone has completed the Hajj pilgrimage or ‘Choudhary’ if someone is a landowner or in a position of power in a village setting system; although Choudhary has more recently been used as a surname. Names Names and their meanings are very significant in the Pakistani culture. First names are considered to influence the individual’s personality and life and parents or older family members may rename a child if they develop ongoing ill health or other problems as the name may be seen as ‘heavy’ for the individual; ‘heavy’ in this context would be if the definition of the name had a negative connotation such as ‘sacrificer’ or ‘oppressed’ and also if the name was that of a historical figure that had lived a difficult or trying life. Families that are more culturally driven would usually subscribe to this notion. 16/8/11 09:07 Page 12 Points to consider… Considering the naming combinations, it is not unusual for members of the same family to have different surnames, for example a father may be called Mohammed Atif Khan and his daughter may be called Samina Bi. Samina would not inherit her husband’s surname upon marriage. Pakistani families and communities The concept of family In Pakistani communities the concept of ‘family’ is the basis of social structure and individual identity encompassing more than the nuclear family and immediate blood relatives. Family is a term that is used to describe distant relatives as well as those acquired through marriage and includes people from the same baradari (tribe), friends and neighbours. Some people may also refer to people from the same village or general area in Pakistan as part of their family. Amongst Pakistani families, there is a greater sense that a person does not only represent themselves but is part of the ‘family’, therefore successes and failure, praise and shame can be shared by the family in the wider sense. Marriage Who and how we choose to form couple relationships with, marry and have children with has a strong cultural component. The relative weighting of determinants such as practicality or romantic love differs between cultures, within them over time and varies between individuals within that culture. Traditionally within Pakistani cultures, marriage is seen not only as the union of two individuals but is seen as an alliance between families, or often a reconfirmation of alliances within the family in the broader sense outlined above. Within traditional families, suitable partners that meet the family’s expectations around family, tribe, wealth or education, are suggested to the individual by a respected member of the family to seek their opinion on the match. This process can work in the reverse order where the individual (more often the male than female) suggests a partner to their parents or other respected member of the family. Providing the person being suggested meets with the family’s expectations and neither of them is already betrothed, the marriage is usually arranged in the traditional way. Arranged marriages often have very positive outcomes and are not to be confused with a forced marriage. 12 Sometimes individuals are forced into a marriage where one or both partners do not consent. In this case the individual’s choice is overlooked because of the perceived benefits of the match to the wider family such as reinforcing family ties, culture or for economic reasons. Such arrangements can be the cause of much distress and there are services available to help people suffering in these circumstances. The process of choosing a partner or having a ‘love’ marriage is becoming increasingly popular in the less traditional families living in the larger cities where dating or marrying someone outside the ‘family’ is now also becoming acceptable. Marriage and mental illness Where a young family member has a diagnosis of mental illness a marriage may be sought as a way of solving the problem and/or share the burden of care. This could also be considered as a social inclusion approach when mental illness is not seen as an exclusion from normal life roles such as being a partner or parent. Points to consider… It is not unusual for extended family members to have input into matters relating to the service user. Sometimes an older child is used to interpret and talk about problems. This is seen by the family as acceptable because an older child is encouraged to take on adult duties from a young age; however, it is important for practitioners to consider the child’s wellbeing and use an interpreter for anything but the most basic interpreting. Immediate family members of the service user can sometimes feel pressurised by family members in a position of power or authority such as a parent, uncle, aunt or in laws of the service user. These family members could live nearby, elsewhere in the UK or abroad. Parents may take the decision to find a partner in Pakistan where a poorer relative would agree to marry their son or daughter to enhance the family’s economic status, particularly with a son where it is felt that he would be able to earn money in the UK and support the family back home. The family in Pakistan would then rely on their son once he was in the UK to provide financial support for their sibling’s weddings and to provide electrical goods such as laptops and televisions in addition to a monthly allowance. This has been a recurring theme with families I have worked with and has been the case for Sadia and Tariq (see case study page 10). This arrangement may lead to further complications once the spouse comes to the UK and the severity of the illness is realised by the partner from Pakistan. Where the woman arrives from Pakistan, she often has no way of sharing her experiences of living in a country where she does not 9 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 to lack of space, a property adjacent to the family home or nearby will be purchased to keep extended family as close as possible. In Pakistan it is still not widely accepted for a couple to move out of the husband’s family home and in such cases this will only happen where there is a family rift or diasgreement. The young couple is almost always seen as being responsible for the separation, for not showing tolerance and patience to their elders. In the UK, many families follow a similar model. Families in the Central Ward of Peterborough have preferred to extend small properties to allow for growth over moving into larger homes which would mean moving out of the area. Extended families living in the same home or nearby are respected by other community members as they are seen to be practising true Pakistani 16/8/11 09:07 Page 8 values. For this reason, families often resist the urge to separate after marriage as they are aware of the stigma associated with moving away. Where couples do separate after marriage, significant time is often spent at each other’s houses to show that the family is still a strong unit. This custom usually only applies to sons as daughters can be married outside the area but would have the same expectations placed on them in their husband’s home. This has implications for when clinicans may consider that it would be benefical for the service user’s mental health to move to supported accommodation either to help their recovery or to manage with risk issues. Such a move away from the family home could produce an additional stigma in addition to that of mental health, making it an even harder move to achieve. Points to consider… An appointment with a clinician may not be kept if a family member or friend arrives at the house unannounced as it would be considered rude to ask the person to return at a different time. Families with very traditional values only plan their calendar for a number of days, therefore it is not unusual for an appointment sent weeks in advance to be forgotten or to be confused with a different date. The service user is not being awkward, they simply may not be used to this, particularly if they do not have school age children to provide structure to their day or are new arrivals to the UK. If embarking on an extended piece of work with a service user and/or their family, it may be useful to emphasise the importance of keeping appointments, attending on time and notifying someone if they cannot attend. Pakistani communities in Peterborough Localities Maliha The majority of Pakistani families in Peterborough are from the Mirpur area of Azad Kashmir that have been settled in the UK for over 50 years. In line with national trends, there are a significant number of Punjabi Pakistanis followed by people from other areas such as Sindh. The Pakistani community is concentrated around the Central Ward area expanding out to surrounding areas such as West Town, Dogsthorpe, New England and more recently Netherton, with a few families living in other areas across Peterborough. Travel to and from Pakistan It is customary for people to keep close ties with family in Pakistan as well as family in and around the UK and annual holidays to Pakistan for periods of four weeks or more are common to make the cost of travel worth while. Popular reasons for travelling to Pakistan apart from visiting family are to familiarise children with their culture, marriage and to promote the traditional customs and values when living in the UK. Visits to Pakistan are usually a highlight for people of Pakistani origin as they may not have regular holidays as understood in the UK. Families spend time shopping for their family in Pakistan and family members in the UK tend to visit to say goodbye, making it a time of happiness and anticipation and this was the case for Maliha who benefited immensely from seeing her family in Pakistan for the first time without her abusive husband. Clients from the British Pakistani community frequently travel to Pakistan to meet their relatives and for holidays. These trips to Pakistan can last for a number of months and therefore raise the issue of treatment whilst there. When in Pakistan some people visit shrines, faith healers and also see a psychiatrist. It is prudent to advise clients that whilst they are in Pakistan they continue with the medication they are taking and not change it unless advised to do so by the UK treating team. This is to prevent clients from suffering relapse or return 8 Maliha had been diagnosed with depression and had taken medication for her condition for many years. She came to the attention of secondary care services upon the birth of her child and separation from her husband which followed shortly after. Maliha has other children and had endured domestic and financial abuse from her husband for many years. Although she had been visiting doctors for a long time, Maliha’s husband had been allowed to interpret for her and she was never seen alone to have the opportunity to share her ordeal with anyone. Maliha’s eldest daughter was still under 16 but not in any form of education or training and took on most of the household chores and looking after her younger brothers and sisters. I found Maliha very low, isolated and scared of telling anyone about her problems, spending most of her time feeling very tired and down. Maliha said she found it difficult to undertake any household chores as her body ached afterwards. I interpreted some basic information about depression to her in Punjabi and worked in a pictorial way to help her understand her depression and how the mental state was linked to her physical state resulting in the pains and aches. Maliha improved over the coming weeks as she was able to talk about the issues around her marriage in a cultural context. During a review, we found a number of things that had been misinterpreted such as Maliha hearing water when she had actually been describing her depression and how she felt that she was drowning in her sadness. Maliha responded very well to the basic techniques around managing her depression and within a few months was able to take over many of the household chores from her daughter and went to visit her family in Pakistan and was subsequently discharged. of their illness which would spoil the time they are in Pakistan. It is worth noting that there are differences in practices, medications available and doses of drugs. It also might not be possible to continue the medication started in Pakistan. Pakistan also has a high rate of Hepatitis and other water and blood borne infections. Caution is required with those medications that are administered by injection e.g. Depot. Service users and their families should be advised to buy needles from reputable sources and to dispose of them safely. For clients who are on medication that requires blood tests it is important to consider the following: The blood tests may not always be reliable, depending on the type of health care facility in which they are taken. There are issues with used needles being repackaged, so appropriate care should be taken in sourcing clean ones. People taking Clozapine will need to register with the Clozapine monitoring service in 13 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 Pakistan. Clozapine is not a commonly prescribed medication in Pakistan and the monitoring procedure differs to that in the UK. The user will need to obtain for themselves a blood test at a hospital or private laboratory for a full blood count. They or a family member or carer then phone the drug company's monitoring service and inform them of the results. The drug company will then deliver to where they are staying and will ask to see the results printout in confirmation before handing over the medication. 16/8/11 09:07 Page 14 Points to consider… Not all people with a Pakistani background will have a good practical knowledge of Urdu, therefore it is important to ascertain the particular Pakistani language or dialect the service user speaks at home. Mirpuri and Punjabi are the most popular Pakistani languages in Peterborough. Both languages use the written form of Urdu as there is no written form of Mirpuri and Pakistani Punjabi speakers will not be able to read or write the written form of Punjabi. Most interpreters that speak a Pakistani language will also speak Urdu. Service users may wish to have a same sex interpreter. Pakistani languages & interpreting The term ‘Pakistani’ includes a mosaic of different cultures. The national language is Urdu and is spoken in the public sector as well as English. Many other languages are spoken in the different regions of Pakistan such as Punjabi, Siraiki, Sindhi, Pashtu, Balochi, Hindko and Gujurati and the diversity in languages is often reflected in differences in culture, diet and traditions. It would be true to say that a significant number of people living in more isolated or rural areas of Pakistan may not speak Urdu. The majority of Pakistani families settled in Peterborough speak Mirpuri or Punjabi. This is an important point to keep in mind as not all those that speak Where the service user is unable to read or write, they can be involved in using pictures and photos from South Asian media to tell their story. Examples of alternative media include the Asian Bridal magazine, MAG the weekly and the Jung, Nation & Watan newspapers as well as mainstream media. Mirpuri or Punjabi will be comfortable with having an Urdu interpreter even though Urdu is the official language of Pakistan. It may be more appropriate to request an interpreter that specifically speaks Mirpuri or Punjabi, as many interpreters registered to speak languages from Pakistan will almost always have a good knowledge of Urdu. Mirpuri and Pakistani Punjabi speakers will use the written form of Urdu if they need to write something down in their language. Weight gain or loss in adults is viewed in a similar way. More full bodied actors and actresses are common in the Pakistani film industry and weight loss, even when done in a healthy way is sometimes viewed as a sign that something is wrong physically in the form of an illness or due to mental distress such as problems in the family; although younger people may identify more with the ‘Western’ ideals regarding weight and may therefore be more aware and conscious of gaining weight. In Parveen’s case the family were concerned that the extended family or community members would think there was something wrong in the family and that was the reason for Parveen’s weight loss, and her lack of eating was a cause for tension during festivals such as Eid. In many Asian cultures including Pakistani cultures, foods are considered in terms of ‘hot’ and ‘cold’. This is not concerned with the temperature at which the food is served but rather the ‘effect’ on the body, which can be harmful if food combinations are not balanced. For example, almond nuts are ‘hot’ when eaten as a nut but ‘cold’ if soaked overnight in water providing the outer layer is removed. Mangoes are considered ‘hot’ and should be consumed with yoghurt milk (lassi) as this has a cooling effect on the body therefore neutralising the heat in the mangoes. Although not so prevalent in Pakistani communities, Hindu communities associate certain foods with mental and emotional states such as meat with aggressive behaviour, as well as recognising the physical ‘hot’ and ‘cold’ effects on the body. The sense of time ‘I remember visiting my great grandmother’s house in Pakistan as a child and not having a clock in the house, even if there was it would have been no good to her as she couldn’t tell the time.’ 14 How time is understood and valued differs between cultures. This is an area that industrial businesses have had to pay close attention to in order to function efficiently in different countries. Some cultures value punctuality, meticulous planning and stay committed to them. Countries that typify this approach, technically known as ‘monochronic’ are the USA and Germany . In contrast there are polychronic cultures which include Pakistan. In these countries multiple activities occur at once, there is greater flexibility around time with the focus on the relationship being more important than promptness or the job in hand. Timing is very relaxed in Pakistan, particularly in the more rural areas away from office based companies. Social visits to family and friends are made unannounced as many households have an ‘open door’ policy where the door is left unlocked during the day for people to visit. The main structure to the day is around the five daily prayers and timings may be given around these, for example, ‘I’ll see you after dhuhr’ or ‘make sure its before maghrib’. Points to consider… Psycho-education is key when working with Pakistani families around eating disorders to help them to understand the condition and support the recovery of the individual. Talking therapies around eating disorders often involve individual and family work. Families may not be comfortable with talking about the family and its dynamics as this would normally be done on a one to one basis or with a small trusted same sex group. Families will most likely feel under pressure from the wider community and may hide the problem rather than talk about it openly. Weddings and such functions are very relaxed affairs with no set start time and guests arriving and being served at various times. Although the structure of the day is relaxed, there are customs around visiting a family where there has been a birth of a child or a death as soon as possible and offence could be taken if a family member or friend were not to visit on such an occasion. Similar rules apply to inviting a newly married couple around for a meal after their wedding, as the first few months are usually taken up by being invited by family and friends to meals where delicacies are served and gifts given to the new bride and groom. Accommodation It is customary in Pakistan to buy and acquire land so that property can be built and extended as the family size grows. Often, a house will start off with two or three rooms and will then be extended as per the family’s needs which is particularly the case in more rural areas. In more suburban areas where it is not possible to extend due 7 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 increase in women choosing to wear the ‘hijaab’ which is an opaque piece of material wrapped around the head and held secure with a pin. This can be worn with shalwar kameez, ‘Western’ clothes or then with a jilbaab which is a long coat like dress that reaches down to the ankles. Pakistani dress is linked to modesty which is a value of Islam and is usually maintained by people of Pakistani origin however they may choose to dress. 16/8/11 09:07 Page 6 Parveen Parveen is in her teenage years and has been diagnosed with anorexia. The immediate and extended family’s diet consists mainly of Pakistani food, particularly those that are rich in spices, flavours and cholesterol and the family equate being ‘big’ with being healthy and well. The women of the house insist on cooking and serving food to Staff whenever they visit, this being seen as a sign of hospitality and graciousness. This includes being served fried food with fizzy drinks early in the morning and three course meals when visiting to support Parveen to eat during lunch visits. The family often insist that everything on the table be sampled including large quantities of fried food. Gold jewellery Pakistani communities will have differing views about men wearing gold jewellery as some men may wear a gold ring, bracelet or chain and others believe it is not permitted in Islam. Women however are encouraged to possess and wear gold jewellery as a sign of wealth and good status. It is traditional for women to wear gold bangles and other jewellery on a daily basis and daughters will be given gold jewellery by direct family members upon their marriage which stems from the notion of giving something that can be used during times of hardship. Often gold jewellery is passed down to daughters and daughters-in-law. Diet and food One of the most common markers of cultural identity is the individual cuisine that a culture has developed. This is one of the most accessible ways that a person from one culture can experience and value that of another. Pakistani food fits within the wider culinary framework of Indian food and as such is something that has familiarity and value in the UK. Food is an industry that excels in Pakistan even when the economy is down, perhaps because this is one of the few areas where people from lower socio economic groups can demonstrate control and discretion, as affording a car or going on a lavish holiday would not be achievable. 6 Parveen’s family were encouraged by her dietician in supporting her to stick to a food plan that would slowly introduce eating back into her daily routine again. The family continued to offer Parveen other foods at the dinner table despite being explained that this would hinder her progress. The family have different ideas about the ‘truth’ regarding diet that was not shared with Parveen’s clinicians; and seemed to attempt to introduce extra foods to Parveen whenever the opportunity presented itself. This hindered Parveen’s progress and she often spoke about an atmosphere in the family home in which they did not speak openly about problems and issues and how difficult it was for her to share things that were on her mind with her mother or other family members. After months of support, Parveen’s family are now taking part in family therapy with a view to admitting her into hospital if her weight does not improve. Pakistani food is rich in flavour, spices and high in cholestrol with sweet desserts containing a high sugar content. The use of meat and chicken is very common at mealtimes and it would be considered offensive to serve a completely vegetarian meal at a dinner party or to guests, although a vegetarian accompaniment would be acceptable. Culturally, food is linked to hospitality, seen as a sign of good living and the sharing of food as an act of kindness. It is common to serve food at festivals and gatherings and is given away to the poor during times of happiness such as a wedding or the birth of a child or grandchild. Guests will be encouraged to share a meal and may have food put on their plate and offered seconds or thirds despite the recipient’s protest, as illustrated in Parveen’s case. Babies and children are seen as healthy if they are on the upper end of the normal weight range and may often receive comments about their health depending on how much weight they have gained or lost, which is in contrast to the ‘Western’ culture where it may seem inapproriate to comment on a baby or child’s weight. Mental health and Pakistani communities Spirituality and understanding of mental illness in Pakistani communities Excerpt from ‘Psychiatric Health Laws in Pakistan: From Lunacy to Mental Health By Ahmed Ijaz Gilani There are many players and factors involved in the access, provision, delivery, functioning, and uptake of mental health services in Pakistan. Awareness about mental illness is still poor in Pakistan. Such illness is generally attributed to supernatural causes—it is considered to be a curse, a spell, or a test from God. Those who experience mental illness often turn first to religious healers, rather than mental health professionals, since patients and their families tend to have great faith in these healers. Religious healers use verses from the Qur’an to treat patients. Next, patients turn to traditional and alternative healers, who are also popular in Pakistani society. Help from the mainstream health-care system is usually sought late in the course of the illness; however, the referral system is inefficient and, particularly in the case of individuals who are mentally ill, patients are usually taken by their families directly to tertiary or specialist hospitals, rather than to primary-care practitioners. It is, however, important to note that many mental illnesses can be treated and managed by primary-care practitioners. The private sector also plays a major role in providing psychiatric care. For those who can afford it, private psychiatric care is an option frequently used. [Excerpt from section on Mental Health Infrastructure]. In view of the above account of mental health services in Pakistan, understanding of mental illness in Pakistani communities is significantly different from the models commonly used in the UK. As well as mental illness being considered in a holistic context including environment and physical health, it is also understood in the context of spirituality. Belief in supernatural forces is prevalent in Pakistan. Jinn (anglicised to genies), evil eye and spells are part of daily life in Pakistan and spiritual healers can be found in most markets and street corners. According to Islamic belief, jinn are real creatures that form a world other than that of mankind. There is little detailed description of jinn in the Qur'anic and Prophetic literature. The term ‘jinn’ is derived from Arabic ijtinan, which means 'to be concealed from sight'. Although they reside in what are in essence parallel worlds, humans and jinn are believed by Muslims, to have some ability to influence each other towards both positive and negative ends. Satan (who is within the Islamic tradition a jinn and not an angel, and hence has the choice to disobey) is the most infamous of the jinn and is primarily concerned with enticing humanity to forget its divine origin. According to Islamic writings, jinn live alongside other creatures but form a world other than that of mankind. Though they see us they cannot be seen. Characteristics they share with human beings are intellect and freedom to choose between right and wrong and between good and bad, but according to the Qur'an their origin is different from that of man. According to Islamic scholars, a person unable to think or speak from their own will, experiencing seizures and speaking in an incomprehensible language may be possessed by jinn; however, more often than not a physical cause can be found for the unexpected behaviour and many 15 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 spiritual healers will encourage families to think about the possibility of a mental illness where they feel that their full criteria for possession is not met. The role of the Islamic therapist in cases of possession, who must have strong faith in Allah, is to expel the jinn. This is usually done in one of three ways – remembrance of God and recitation of the Qur'an (dhikr); blowing into the person's mouth, cursing and commanding the jinn to leave; and seeking refuge with Allah by calling upon Allah, remembering him, and addressing his creatures (ruqyah). Some faith healers strike the possessed person, claiming that it is the jinn that suffers the pain. The practice of striking the person is deplored by Muslim scholars as being far from the principles of Islam. The general approach of expelling evil spirits by convincing them to leave is similar to the passage in the New Testament (Luke 8:24) where Jesus expels demons from a man who is possessed. Though it is not often spoken about publicly the Church of England and the Catholic Church retain Ministries of Deliverance for exorcisms. Within mental health services over the last twenty years there has been a growing awareness of the spiritual component to the mental illness with the development of organisations such as the Spiritual Crisis Network. Although the individual or their family may believe there to be a spiritual component to a condition, this does not always mean they believe the individual is possessed by a jinn. A belief in spells and evil eyes could mean that a mental as well as physical illness is viewed as having a spiritual element to it other than possession therefore it is important to engage with the individual and their family to ascertain their views on the condition and its causes as this often proves instrumental to recovery. Through working with families that believed there to be a spiritual component to the service user’s mental health, it has been important not limit ourselves to medical treatment, and to consider the wider options of psychological therapies as well as family work with those closest to the service user. The differences of cross cultural understandings of mental health can 16 16/8/11 09:07 Page 16 be appreciated within the context of models of how beliefs in Asia are different from the ‘Western’ views such as those illustrated in the table below which has been developed from an article by Hilty on cultural differences: Pakistani culture and communities Islamic influence and culture Asian Western Core values of ancient China such as hierarchy, moral development, achievement and social responsibility as well as a dualistic model medical system based on principles of balance and harmony. Pathology driven, overlaid by the values of ancient Greece such as individuation, self control and self efficacy. Cognition is abstract, paradoxical, circular and indirect. The universe is seen as a web of infinite connections (holistic cognition). Cognitive process is one of logic, critical analysis and direct and rational thought in which the universe is conceptualised as the sum of its parts (analytic cognition). Socio-centric model of self which is formed within the social context and defined by it at any given moment. A sense of self requires emotional connectedness. Ego-centric model of self where each person’s sense of self is considered autonomous and unique, individuated and largely consistent regardless of context. Orientation is one of interactionism, in which the presence of complex causalities is assumed and the focus is on relationships and reactions between persons or the person and the surrounding environment. Orientation of the individual is one of dispositionism, in which the internal disposition of the individual is the primary consideration. Health is inclusive of all aspects – physical, mental, emotional, spiritual and social, conceived of as a state of harmony and balance, illness being termed as ‘patterns of disharmony’. The model of Cartesian duality of mind and body is adopted where the two are separated, hence mental illness being treated in many areas independently of physical and spiritual symptoms. Religious beliefs and values have a strong influence on society and its culture. Even a person of longstanding English heritage who is an atheist is likely still to hold beliefs and attitudes that are Christian in origin as a consequnce of growing up in a society with a substantial Christian faith history. In this context it can be difficult to ask a person to focus on themselves as an individual during cognitive behavioural and solution focused therapy , as they may consider this a selfish act or may simply not be accustomed to thinking of themselves as an individual entity. This echoes some African cultures where one is seen to exist through others in their family and community. Often blood ties are seen as more important than money therefore it may not be unusual for a parent to control their children’s finances until they are married and sometimes even after marriage. On the surface this may be seen as a selfish act but parents may put all the money they collect from their children in a joint Islam is the main religion practised in Pakistan with around 97% of the population being Muslim and the remaining 3% made up of Christian, Hindu and Sikh communities. Although Shari’ah (Islamic law & jurisprudence) is not strictly practised in Pakistan, Islam governs people’s personal, political, economic and legal lives on a daily basis making religion an important factor to consider when working with Pakistani families, as the lines between faith and culture are often blurred. Pakistan and Azad Kashmir Pakistani culture is made up of a mosaic of Islamic traditions and is influenced by Hindu culture, which is evident in the way weddings are celebrated and events such as ‘Basant’ (spring festival). Pakistani Muslim families or individuals within them can be either culturally or Islamically driven and still identify themselves as Pakistani and Muslim. Variations can include naming traditions where a family driven by culture may choose an Urdu name such as Shabnam (morning dew) for a female child and Sahil (seashore) for a male child. A family with a more Islamic outlook may give their child an Islamic name such as Maryam (Mary) for a female child or Muhammed for a male child although cultural and religious names may be given together. Social areas such as the level of free mixing may also differ depending on whether a family is more cultural or religious as well as the level of access to media in the home such as Hindi film and television. As Mirpur has no airport, passengers from the UK will often use Pakistan’s Islamabad airport from which Mirpur is a 2 to 3 hour journey. Unlike Christian families where the gap between practising and non practitising Christians is much wider, the majority of Muslim Pakistani families identify quite strongly with their faith and will practice it at some level. As a minimum, families may 16 have a pork and alcohol free diet and pray or read the Holy Qur’an occasionally whereas a practising family will adhere to the five daily prayers, observe hijaab (Islamic dress) and may not allow free mixing. Adding to this an influence of the Hindu and British culture in Pakistani families highlights the level of diversity that makes up ‘Pakistanis’ and people from a Pakistani background. Azad Kashmir is a self governing state to the North-East of Pakistan which is administered by the Pakistani Government. The largest City in Azad Kashmir is Mirpur which is neighboured by the province of Punjab in Pakistan. The largest Pakistani community in Peterborough is the Mirpuri community coming from Mirpur and the surrounding areas, followed by the Punjabi community. Pakistani dress When we first meet a person we will be making rapid judgements of who they are and where they fit in to our understanding of society. In this rapid account the clothing a person is wearing can play an important role. The clothes that we wear can be a strong marker of personal identity, age, class and culture. Points to consider… Where possible, allow the service user to describe in their own words how they view their cultural identity. This is important considering the cultural diversity of Pakistani families depending on how ‘traditional’ or ‘Western’ they are, how much they are influenced by practices deriving from the Hindu culture and how closely they practice the Islamic faith. Gaining this information will help you to recognise the level of importance the individual’s cultural heritage holds for them and how this may influence their treatment and recovery. Point to consider… Some people from Azad Kashmir may identify themselves as ‘Pakistani’ on ethnic monitoring forms but will consider themselves as ‘Kashmiri’ or from ‘Azad Kashmir’ in everyday conversation. The national dress of Pakistan is shalwar kameez which is a long top with loose, baggy trousers. Men may also wear a skullcap and women will usually wear a large scarf with their shalwar kameez. In the UK, men often adapt to the ‘Western’ style of dress unless they come to the UK when they are older, where the preference is to wear shalwar kameez. Women will wear a variety of dress ranging from the shalwar kameez worn in the traditional way or ‘anglicised’ by wearing trousers with a long top, to totally ‘Western’ dress. In recent years there has been an 5 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 in Punjabi and the surrounding dialects of the area and work with local families where practitioners felt that additional support with language and culture would be beneficial for the service users and their families. The cases have been included to illustrate the points being made rather than as a measure of success, which varied from the service user being discharged with very positive results to very little change in condition. Shama Kanwa Additional comments from the second author This has been a hugely rewarding project to be involved in that is largely the work of Shama. Working with clients and families from the Pakistani community has raised my curiosity about their culture at both a personal and professional level. Being culturally blind, though not as bad as racism is still not good, it is akin to neglect compared to racism being abuse. The importance of cultural awareness is 16/8/11 09:07 Page 4 two fold. First, it enables a better understanding and formulation of the person's psychological distress and confusion together with its impact on family and carers. Secondly, it increases the likelihood that interventions offered will be successful as they are taking account of the cultural factors for and against change. In working with clients from the Pakistani community, including people born in England, it has struck me how their understanding of mental illness has greater components of the role of the body and the spirit in these conditions, but a lesser appreciation of the mind, than when working with clients of long standing English heritage; a challenge for anyone wanting to carry out standard Cognitive Behavioural Therapy. This has confirmed my bias to suggest that a holistic approach that takes account of mind, body and spirit is usually the best. Points to consider… The first and most important step is to ellicit, in an open and non-judgmental way, the service user (and if appropriate the family’s) ideas, concerns and expectations. The second step is to recognise that symptoms attributed to possession by jinn are commonly manifestations of a mental disorder that will most likely benefit from medical treatment. The third step is to appreciate that, although the patient and relatives may obviously have interpreted symptoms incorrectly, beliefs that are strongly held (and often socially convenient due to perceived stigma) will be difficult to alter at a time when anxieties are running high. Stuart Whomsley ‘pot’ out of which they would pay for their wedding. Sometimes the money may be used as a deposit for a house which may be rented out to generate more income for the extended family. What should clinicians do when a patient or the family or friends believe that jinn are the cause of symptoms or unusual behaviour? In such cases where patients are deemed to have a medical, psychiatric or psychological disorder but are not receptive to medical explanations, patients can be encouraged to 'hedge their bets’ by taking the prescribed treatment while continuing with spiritual therapy. This double strategy may be the best hope of securing adherence to prescribed treatments. There may also be the additional very important benefit that patients and their families are willing to enter into discussion about the other therapies that are being tried. Whilst these usually consist of repeated readings of certain sacred texts, the concern is that in desperation some families may turn to exorcists who inflict physical harm in an attempt to free the individual from possession – sometimes with catastrophic consequences. 4 It is very important, therefore, to establish channels of communications with the patient, the family and any spiritual practitioner whose help is being sought. Wider issues around accessing services According to a Rethink project focusing on the Pakistani community’s view on mental health and mental health services in Birmingham, successive studies have shown that people from BME groups experience relatively higher levels of mental illness than the white British population. Some of this may be attributed to socio economic factors such as the experience of racism, unemployment, homelessness, social exclusion, poor physical health and living in deprived areas. Other findings of the research found that stigma of mental illness needs to be overcome to enable mental health as an issue to be accepted and openly talked about. People may be ignorant or unaware of the facts of mental illness and communities may not know which services are available to them or how to access these services once they decide to recognise and ‘face the problem’. It was also found that cultural and language barriers can hinder people from taking up services and there is a ‘keep it to yourself’ approach adopted across the community where mental health issues are concerned. As the service user will be thinking in holistic terms, including faith, somatic symptoms and perhaps mental illness as understood by ‘Western’ practitioners, it is important for practitioners to take a similar approach and elicit an open response about how the service user and/or their family views the situation, even if only clinical treatments are available. This will enable the practitioner to learn about any alternative treatments being accessed such as spiritual healers. Culture, faith, eastern, western – ultimately these are labels we attach to each other to help us make sense of something that is new or different, the real success when working with people is if we can understand what the labels mean to the individual and how they interpret their own identity, only then can we truly deliver a service that focuses on and responds to the needs of the whole person. Conclusion As discussed during the introduction, the aim of this document is to highlight important parts of the Pakistani culture that will assist practitioners in working with service users and their families from Pakistani backgrounds. We have used our experiences of working with families to highlight the issues raised, and the subsequent input that was given to support the delivery of a service that was appropriate. In addition, some cultural values have been explained such as attitude towards relationships, timings and diet that may also assist practitioners to gain a better understanding of some of the factors that may be driving a particular attitude or behaviour. 17 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 18 References Hilty, A. 2010. Western Psychology, Eastern Cultures – Mismatch? Ezine articles. Available at: http://ezinearticles.com/?WesternPsychology,-Eastern-Cultures---Mismat ch?&id=4130088. [Accessed 21 November, 2010]. Gilani, A. I, Gilani, U.I, Kasi, P.M, Khan, M.M, 2005. Psychiatric Health Laws in Pakistan: From Lunacy to Mental Health. PLOS medicine, Public Library of Science. Available at http://www.ncbi.nlm.nih.gov/pmc/ articles/PMC1215469/. [Accessed 29 November, 2010]. Introduction Aap ki Awaz. Our Voice: The Pakistani community’s views on mental health and mental health services in Birmingham, 2007. Published by Rethink. Available at: www.mentalhealthshop.org/products/ rethink_publications/our_voice.html. [Accessed on 29 November, 2010]. Sajid, A. 2003. Death & Bereavement in Islam. The Muslim Council for Religious & Racial Harmony. Available at: www.mcb.org.uk/downloads/DeathBereavement.pdf. [Accessed on 3 March 2011]. Culture is a shared, learned, symbolic system of values, beliefs and attitudes that shapes and influences perception and behaviour; an abstract mental ‘blueprint’ or ‘code’ and must be studied ‘indirectly’ by studying behaviour, customs, material culture (artefacts, tools, technology), language, etc. Professor Kathleen Dahl How do you capture ‘culture’ accurately when it involves people’s visible and invisible values and beliefs? Is it possible to be completely impartial when writing about your own cultural background as I am doing? Do the experiences I’m sharing in this work truly represent the Pakistani culture? Furthermore, is it ‘fair’ or ‘ok’ to produce guidance on the culture of a whole nation, particularly one that is as rich and diverse as the Pakistani culture? These questions were considered when deciding to produce this guidance and weighed against the need to raise awareness amongst practitioners of how a service user’s culture may impact on their engagement with services and their subsequent recovery. Pakistan is made up of different states that vary significantly in language, dress and ‘culture’, and it would take a very detailed piece of work to fully capture the customs of all the states comprehensively. Considering the background of the Pakistani communities settled in Peterborough, which reflects the cases used in this work as reference, it seems more realistic and reasonable to say that this guidance has been produced on the Pakistani culture but with ‘a particular focus on the Mirpuri and Punjabi communities’, which are the majority Pakistani communities settled in Peterborough. It is almost impossible to measure the external input people have during their lives that shapes their sense of identity, and to pinpoint the extent to which someone lives their life according to values passed down through culture and the impact of their current environment on them, if that is 1 18 different from when they were growing up; as in the example of a person coming to live in the UK as an adult. As demonstrated by this point, it is risky to make generalised assumptions about culture, as cultural values may be enforced by families and communities but interpreted by individuals. It is also important to note that there may be cultural differences across generations as there may be a parent or grandparent that came to live in the UK as an adult and their children and grandchildren may be born and brought up in the UK, therefore their experiences would be very different from each other. An example is where taking the children to the cinema may be seen as appropriate by young parents of Pakistani origin but may be frowned upon by older members of the family. For the reasons mentioned above, this guidance should not be used as an authority on all things Pakistani but as a tool that can assist practitioners when working with individuals and their families in the context of having positive regard to the person’s cultural values and beliefs to build relationships and aid recovery. The individual and family should be given the opportunity to express in their own words what their cultural and religious1 identity means to them as it will be unique for each person. The small sample of anonymised cases used in this guidance resulted from family work that I have undertaken in my capacity as Community Development Worker for BMER communities. I was able to engage more freely with families as my own background is Punjabi and I am fluent Although culture and religion are different things, people may talk about them as one or use the terms interchangeably. 3 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 2 Acknowledgements The authors would like to thank the following people for their assistance in producing this document: Martin Liebenberg for his support in developing the document’s content and direction. Dr Asif Zia for his contribution to the section on service users travelling to Pakistan. Professor Zenobia Nadirshaw for reviewing a draft of this document and offering supportive comments. Ahmed Ijaz Gilani for allowing us to use his article. Janice Hartley for her advice on spirituality and mental health. About the authors Shama Kanwar has worked in community relations for over 14 years both at a strategic level advising Senior Management on community and equality issues and at grassroots level with specific hard to reach BMER groups. Shama has worked nationally as an independent facilitator in an initiative involving Police Officers and Muslim communities on community cohesion and has been instrumental in setting up BME Staff Support networks in three organisations. Shama is currently working as a Community Development Worker based in Peterborough working with Black Minority Ethnic and Refugee communities, running community based projects that raise awareness of mental health and how to access services. Shama also works at length with healthcare practitioners to engage with service users and their families to gain an understanding of the role culture plays in the treatment and recovery of the individual. Dr Stuart Whomsley is a clinical psychologist who works in an Assertive Outreach Team. In this role he has a long established working relationship with a number of clients from the Pakistani community. He is involved in both community development initiatives locally and good practice guidance for his profession nationally. 2 NHS Working with Pakistani Service Users 2011 PP.qxd:A4 16/8/11 09:07 Page 20 Working with Pakistani service users and their families A practitioner’s guide Shama Kanwar Stuart Whomsley HQ Elizabeth House, Fulbourn Hospital, Cambridge CB21 5EF. T 01223 726789 F 01480 398501 www.cpft.nhs.uk A member of Cambridge University Health Partners
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