SPRING 2014 New Edwards Family N ICU now open! Three-month-old Keaton Seiler had no idea what the big fuss was about. In fact, he slept soundly through much of the excitement around relocating him, his hi-tech incubator and connecting tubes and monitors into Calgary’s newest and most advanced Neonatal Intensive Care Unit located on the 4th floor of the Alberta Children’s Hospital. ...more inside While Keaton sleeps, his mom, Aaron and unit manager, Norma Oliver, get him cozy with his favorite stuffed toys and a special commemorative blanket lovingly made for all the NICU babies by Norma herself! “We look forward to seeing how this new unit enhances care for these young patients, and helps create an environment that is better for staff and less stressful for families.” - Heather Edwards O n February 26, tiny Keaton and a convoy of seven other babies were carefully moved from the temporary NICU on our hospital’s main floor into the newly completed Edwards Family NICU - named in recognition of a generous $5-million gift from local philanthropists, Heather and N. Murray Edwards. The new unit now operates as a “Level 3” NICU with 14 beds and is equipped to care for some of the most critically-ill newborns in southern Alberta. “The Alberta Children’s Hospital saved our baby’s life,” says his mom, Aaron. “When he was born, Keaton only weighed one pound 12 ounces and was suffering from a tear in his bowel.” Over the course of three operations, surgeons were able to repair Keaton’s intestine and the NICU team helped support a five-pound weight gain and the development of his lungs and other vital organs. “We are so grateful for the incredible care we’ve received,” says Aaron. “The fact that we’re now in a quiet single room with a big window and a place for my husband or me to rest is beyond what we could have asked for. Hopefully, Keaton will be big enough to come home soon, but until then, this new unit is really quite incredible.” E arlier in February, the Edwards family got a sneak peek of the unit and celebrated the NICU opening with representatives from the Government of Alberta, Alberta Health Services and members of the NICU and hospital management teams. “It is such a privilege to be able to help families and their newborn babies in this way,” said Heather Edwards. “This is very personal for us, stemming from our own experience with our son who needed neonatal intensive care when he was born eight weeks early. We look forward to seeing how this new unit enhances care for these young patients, and helps create an environment that is better for staff and less stressful for families.” With access to the very best intensive care possible, the new unit will reduce patient transfers between hospitals and increase capacity to offer highly-trained pediatric specialists to care for critically-ill newborns. In addition to supporting the new NICU, the Edwards donation helped to fund specialized NICU equipment for Foothills Medical Centre and Rockyview General Hospital. As well, the gift helped to create the temporary NICU at the Alberta Children’s Hospital which provided intensive care for more than 340 newborns – including Keaton - while construction of the permanent NICU was underway. “We are so grateful to the Edwards family, the province, Alberta Health Services, and everyone involved in building this special unit,” says Saifa Koonar, President and CEO of the Alberta Children’s Hospital Foundation. “The Edwards Family NICU gives families an incredible place to turn to when the joy of their baby’s birth is mixed with the worry and uncertainty of illness. Our hope is that with help from the amazing NICU specialists at our hospital, all those babies can grow up to live healthy, happy lives.” New Study to Help Struggling Teens Dr. Frank MacMaster (right) is studying the impact of aerobic exercise on the hippocampus with Shannon Doram, YMCA (middle) and U of C grad student, Allegra Courtright. Feeling worried about a teenager who seems unusually sad or tired? Someone who may be having trouble concentrating at school, is becoming increasingly isolated or who is no longer enjoying the things he or she used to? Recruitment is underway for a new research study that may be able to help. S cientists at the Alberta Children’s Hospital and the University of Calgary are teaming up with YMCA Calgary to study the effect of intensive aerobic activity on brain plasticity and as a potential new therapy for depression in adolescents. Dr. Frank MacMaster, holder of the Cuthbertson & Fischer Chair in Pediatric Mental Health, is leading the pilot study - a first of its kind in Canada. His research team will work with certified fitness professionals at the YMCA to examine the effect of exercise on the hippocampus – an area of the brain responsible for learning, memory and regulating a person’s response to stress. Research has shown that the size of the hippocampus is smaller in people suffering from depression than in those who are not. This pilot will examine whether exercise can increase the size and health of the hippocampus, and consequently reduce depressive symptoms. “Depression is a major public health problem which often begins in adolescence,” says Dr. MacMaster who is a researcher with the university’s Alberta Children’s Hospital Research Institute and Hotchkiss Brain Institute. “About 15 percent of teenagers will suffer a major depressive episode. It seriously affects young people’s abilities to function within their families, with their friends and at school, and is a major risk factor for suicide – a leading cause of death in adolescents and young adults. Since existing treatments are effective in only half of people who receive them, there is a crucial need for new therapies.” Scientists have been working for decades on how to repair the hippocampus. Studies in animals have shown that intensive exercise strengthens the hippocampus by re-growing and strengthening neuronal connections. This study will look at whether there are similar benefits for young people. “I am so pleased that YMCA Calgary has the opportunity to participate in such an innovative partnership,” says Shannon Doram, VP Health and Wellness for YMCA Calgary. “The collaborative effort of academic and recreation experts brings tremendous opportunity to advance community-based solutions for adolescents managing depression.” “Knowing that mental health issues are among the biggest health problems facing children and young people in Canada today, it’s essential that we all work together to find more ways to help those who are suffering,” says Saifa Koonar, President and CEO of the Alberta Children’s Hospital Foundation. “We’re pleased that this project will unite researchers, youth-serving organizations like the YMCA and our generous community in creating new options and new hope for families.” Dr. MacMaster and his team are looking for study participants between the ages of 16 and 18 years old to engage in a safe, specially-structured exercise protocol that will take place at the Saddletowne YMCA. An important component of the pilot involves neuroimaging of the hippocampus using the community-funded 3T MRI at the Alberta Children’s Hospital. This will be carried out pre- and post-exercise. The pilot study will involve 30 teenagers suffering mild to moderate depressive symptoms who have not received treatment for their condition. A referral from a physician is not required. Their privacy will be protected and participation is voluntary, with the option for teens to withdraw at any time if they so desire. Recruitment is now underway! To see a video and find more info about this study, please visit www.childrenshospital.ab.ca/brainkids If you have further questions, or are interested in participating, please contact [email protected] Hockey Marathon for the Kids Chestermere Arena - May 4 - 14, 2014 What’s more incredible than 40 businessmen playing hockey for ten straight days to break a world record? How about 40 businessmen planning to break the record AGAIN… all to help sick children in our community. T wo years ago, after an exhausting 246 hours on the ice, the Hockey Marathon for the Kids successfully raised $1.5 million for the Alberta Children’s Hospital to help fight childhood cancer. This time around, they’re lacing up their skates to help kids with injury and illness of the brain. attachment – on who kids grow up to be. Remarkably, during childhood there is a window of opportunity in which brain plasticity can be optimized, potentially helping children’s brains adapt - even rewire and repair themselves - if appropriate therapies are developed and applied. From May 4th to 14th, “Team Hope” and “Team Cure” will face off again with the goal of setting a new world record and raising $2 million for the Alberta Children’s Hospital Foundation. Knowing this, the Hockey Marathon for the Kids organizers decided to support the Alberta Children’s Hospital in one of their highest priorities, Brain Health. Because who we are starts with the brain Brain-related health issues affect tens of thousands of children in Alberta. Whether they are neurologic or mental health in nature, brain disorders can have serious effects on children that can be life-long. Damage to the brain while it is developing can have an impact on vision, speech, motor development, emotion and social For decades, surgery or autopsy were the only ways to obtain insights into the anatomy of the brain. As a result, scientific knowledge about the brain – especially the child brain – is fairly rudimentary compared to other organs of the body. Over the past few years, generous community donations have helped the Alberta Children’s Hospital acquire state-of-the-art technology and add internationally-recognized experts to our already strong Brain Health team.Today, our hospital is poised to make a global impact in this crucial field. Funds raised through the 2014 Hockey Marathon for the Kids will help to fund more and better ways of helping the thousands of kids each year with brain related disorders, including: Epilepsy, Pediatric stroke, Severe traumatic brain injury, Concussion, Neurodevelopmental disorders like autism and attention deficit disorders (ADD/ADHD), and Mental health disorders like anxiety and depression. By teaming up with the Alberta Children’s Hospital Foundation, the dedicated players of the 2014 Hockey Marathon for the Kids are hoping to help the hospital reach their goal of offering nation-leading care and providing new therapies which can minimize, prevent and even reverse the damaging effects of brain-related impairments and disease – helping thousands of kids in the community and around the world. For additional information or to sponsor or support the event please visit www.hockeymarathon.com. www.childrenshospital.ab.ca For more information about leaving a gift in your Will, please visit our website and click on How to Help then Legacy Gifts. A Helping Legacy A gnes Cooke was raised on a farm in Elfros, Saskatchewan during the Great Depression. At an early age, her parents instilled in her the value of helping those in need. “Mom would often make sandwiches for the hobos who would show up at our door,” says Agnes. “If a neighbor was struggling to get a crop off in time, my Dad wouldn’t hesitate to help them. That’s just how it was back then. You were happy to help each other.” That principle has guided Agnes throughout her life. After finishing her nursing degree, Agnes worked in hospital wards and operating rooms from BC to Saskatchewan. She thrived helping patients return to full health and made lifelong friends with her nursing colleagues. One particular patient, Don, had returned from the war and was recovering in Saskatoon General Hospital. “He had a severe case of hospitalitis,” laughs Agnes. “He was having way too much fun with the nurses - he didn’t want to leave!” Don and Agnes married in 1950 and settled in Calgary in 1952 where Don began a very successful career as a geologist. They raised three children and enjoyed a long, happy marriage until Don’s passing in 2003. “Don was a wonderful provider for our family,” says Agnes. “I was very blessed and knew that I had the opportunity to help others with the legacy he had established.” Agnes created a family foundation with which she has supported many initiatives close to her heart. Her interest in the developing brain and stem cell research led her to make significant donations to the Alberta Children’s Hospital Foundation as well as a gift in her Will. “I really believe there are important answers we are yet to discover,” she says. “It’s gratifying to know that I’m helping researchers find cures for children now and in the future.” Agnes would encourage everyone to think of others when making their estate arrangements. “Leaving a gift - large or small - in your Will is something you can do quite easily. It’s a wonderful feeling to know you’re helping others. My parents taught me that years ago and it still holds true today.” Join us for a relaxing afternoon featuring fine teas and refreshments. Hear first-hand how your support could make a big difference for kids in our community. Hope Family of Tea Monday, May 26, 2014 Tea & Program 2:00 pm Hospital Tours 3:00 pm 4th Floor Alberta Children’s Hospital 2888 Shaganappi Trail NW To reserve your space, please RSVP by May 20th to Heather at 403-955-8847 or [email protected]. ALBERTA CHILDREN’S HOSPITAL LEADING THE WAY IN... Therapeutic Play More than fun and games 6-year-old Joey Meier shows off his finished syringe painting masterpiece with his mom, Kristin. Drawing the paint into the syringe. Cathy looks on as the fun begins. Relaxing with a popsicle! Imagine being the parent of a child with a life-threatening condition for which the only chance of survival is weekly medication injections. Now imagine, not only the heartache of the diagnosis, but the sadness of putting him through treatment that so terrifies him, he vomits from the fear. T wo years ago, this was life for Kristin and Joe Meier and their four-year-old son, Joey who had been diagnosed with Systemic Scleroderma, an auto-immune disease in which the immune system mistakenly attacks and destroys healthy body tissue including vital organs like the heart, lungs and liver. With continued support from the community, we can provide nationOnce a month, he spends a long day at the leading expertise in: colourful masterpiece which now hangs in his parents’ bedroom! hospital in Medical Day Treatment getting medications through an IV. For Joey, his fear of “pokes” has been replaced by excitement to play Xbox at the hospital and eat as many popsicles as he wants. “The hospital is fun. I get lots of stickers every time I go,” he says. For Joey, his disease primarily affected his esophagus and small intestine. A regimen of seven medications keeps his symptoms under “The Therapeutic control, but unfortunately, Play program has some must be given by made a world of injection - a frightening prospect for a little boy. difference for our Since Joey will rely on medication for the rest of his life, his parents are extremely grateful for the support they received as they came to terms with Joey’s diagnosis and medication requirements. Thanks to community entire family.” support, the Alberta - Kristin Meier, Joey’s mom “This program has made a Children’s Hospital offers world of difference for our an extensive Therapeutic Play program to entire family, ” says Kristin. “The team has help kids like Joey work through their fears. helped Joey adjust extremely well to a really “We work with families and kids to make difficult situation. We’re so proud of Joey for medical equipment and instruments non- conquering his fears!” threatening for them,” says Child Life Specialist, Cathy Smith. “Kids don’t always Every day, the Child Life team at the know how to tell you what they’re feeling. Alberta Children’s Hospital is finding new Through play, they can express themselves and creative ways to incorporate therapy more freely and that helps them to heal, not into play activities for more and more kids. only medically, but emotionally and mentally, “For the most part, they don’t even know they’re receiving therapy,” says Cathy with as well.” a grin. “They just think they’re having fun!” With help from Cathy, over time Joey has become more comfortable with needles... even filling syringes with paint to create a ART THERAPY MUSIC THERAPY HORTICULTURAL THERAPY CHILD LIFE THERAPY and FAMILY-CENTRED CARE PROGRAMS If you are inspired to support these important initiatives, please visit www.childrenshospital.ab.ca and click “DONATE NOW” APRIL 22 - MAY 4...... Pizza 73 Slices for Smiles Campaign APRIL 28 - JUNE 1..... Costco Balloon Icon Campaign MAY 1 - 31................... ATB Teddy for a Toonie Campaign MAY 15 - JUNE 8........ Walmart Balloon Icon Campaign MAY 4 - 14................... Hockey Marathon for the Kids www.hockeymarathon.com JUNE 1 - 30................. TD Automated Monthly Donor Campaign JUNE 8......................... Walk for Miracles presented by Walmart www.walmartwalkformiracles.ca JUNE 15 - JULY 14...... KFC Campaign JUNE 17....................... Candy Cane Gala goes on sale! www.candycanegala.com JUNE 18....................... Sunshine Bubble Ball featuring The Tenors www.childrenshospital.ab.ca/sunshine_gala JUNE 27....................... ECL Choppers for Charity www.childrenshospital.ab.ca/2014_ECL JULY 5.......................... Chinook Centre Stampede Breakfast AUGUST 14................ DQ Miracle Treat Day AUGUST 23................ Sears Great Canadian Run - Calgary to Camp Kindle www.therun.ca SEPTEMBER 17.......... Nordstrom Opening Gala OCTOBER 5.........................RE/MAX Family Fun Day OCTOBER 11............. Blue Grass Pumpkin Festival www.bluegrassnursery.com OCTOBER 17............. Building Hope for Kids - A Night in Tokyo www.buildinghopeforkids.com WATCH YOUR MAILBOX! The Kinsmen Lotto for the Alberta Children’s Hospital launches May 12, 2014! Lottery licence - 377536 Return undeliverable Canadian address to: 2888 Shaganappi Trail NW Calgary, AB T3B 6A8
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