Community Circles a report by Helen Sanderson, Sarah Carr, Max Neill Community Circles a report by Helen Sanderson, Sarah Carr, Max Neill Community Circles // a report Contents Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Community Circles – Circles at Scale . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 What is the problem we are trying to solve? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 What have we learned from person-centred planning? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 What would it look like if we applied the same approach to Circles? . . . . . . . . . . . . . . . . . . 7 What have we learned from existing evidence on Circles’ initiatives from UK and international sources? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 Cost effectiveness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Developing Circles of Support further . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 What could Community Circles look like? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 Structure and funding . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 Clarifying success and matching to a facilitator . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 Matching and support . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Resources for facilitators . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 How it works in practice – meeting by meeting. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 What are some of the challenges? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21 Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22 Acknowledgements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 23 References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 23 Appendix 1 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 24 Canadian models of Circles and supportive social networks . . . . . . . . . . . . . . . . . . . . . . . . . . . 24 Family Service Toronto . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25 US approaches to Circles of Support . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26 Circles of Support for people with long-term mental health problems in Scotland . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 27 The Circles of Support and Accountability (COSA) approach . . . . . . . . . . . . . . . . . . . . . . . . . . . 28 3 Community Circles // a report Introduction In our earlier paper we looked at the contribution of Circles of Support to delivering personalisation and asked the question; “What would it take to see Circles happening at scale?” Neill and Sanderson 2012 This paper looks at the contributions from people and organisations who have been developing Circles of Support, evidence from practice and research sources, and what has been learned from person-centred planning over the last decade. We bring these together to build on the existing ideas and practices around Circles and offer a fresh approach called Community Circles. This is a way of delivering Circles at scale. We describe this approach, and how we are starting to pilot this in the North West. 4 Community Circles // a report Community Circles – Circles at Scale What is the problem we are trying to solve? In the 1990’s Owen Cooper invited John O’Brien to think with a group of people who were part of Circles of Support in the North West. John facilitated people sharing their stories and experiences of being part of Circles, and then we focused on the question; “Why are there so few Circles, when we know that they are powerful ways to create change with people?” A decade later not much has changed. Circles of Support can be an important way to assist people in using personal budgets, and can demonstrate coproduction in practice (Needham and Carr 2009). So why are there so few of them in the North West? This is our understanding of where we are now in the North West (based on the Lancashire Convention on Circles in 2012): ✱✱ There are a small number of initiatives that support people to have a Circle. Here are some examples; a funded co-ordinator (Lancashire); a provider incorporating it within another role (Mencap); an initiative supported by a provider (United Response) ✱✱ Most of the focus has been on people with learning disabilities and their families ✱✱ At a time of cuts to frontline services in the public sector (Wood et al 2011) it is difficult to see how local authorities will fund for co-ordinator or facilitator posts. Even where it did exist, two-year funding for coordinator posts has not been continued ✱✱ Circles are an untapped potential in relation to supporting the implementation of personal budgets in social care and health. People could use their personal budget to buy a service from a Circle facilitator, yet we do not see this happening, and in some places it is not permissible to use a personal budget in this way. 5 Community Circles // a report We need to find a way to extend the opportunity for people to have a Circle, to all disabled people and to health, and even beyond disabilities to make them commonplace for anyone who wants one, no matter their situation or living arrangement. There are already some pilots to extend Circles to people living with dementia, and recovering from drug addictions, but we don’t know of work that is specifically looking at how to deliver Circles at scale. What have we learned from person-centred planning? The government introduced person-centred planning into policy through Valuing People in 2001. In Putting People First (2009) there was an expectation that person-centred planning be mainstreamed. There have been many lessons learned from this, both in terms of what worked well, and what to avoid. We think some of these lessons are applicable to extending Circles. ✱✱ We have learned that when person-centred planning is dependent on a few highly trained people it cannot have the impact at scale that is needed. (Personalisation through Person-Centred Planning, DH, 2010) ✱✱ We have learned that deconstructing person-centred planning into a series of practical person-centred thinking tools, and teaching these to all staff can enable a change in culture and practice that has an impact on many more people’s lives (Sanderson and Lewis 2011) ✱✱ We have moved from having a few highly trained person-centred planning co-ordinators and planners in a local authority, to everyone needing to know about person-centred thinking tools and seeing how these apply in their work. This is starting to happen. Source: Personalisation through Person-Centred Planning, DH, 2010 6 Community Circles // a report What would it look like if we applied the same approach to Circles? Could we create a process that used person-centred practices in meetings, and made use of external expertise in person-centred planning rather than expecting every facilitator to have this? This could, for example, include supporting facilitators to develop ‘Circle Meeting Maps’ that record the purpose of the Circle, the ground rules and the roles that different Circle members have within the meetings. We will be supporting facilitators in the use of other person-centred thinking tools such as one-page profiles and four plus ones and providing access to helpful resources and trained person-centred practitioners. 7 Community Circles // a report What have we learned from existing evidence on Circles’ initiatives from UK and international sources? The information below was gathered through online searches and in particular the Social Care Online bibliographic database. The scope suggests that very little formal evaluation of the impact and effectiveness (including cost effectiveness) of Circles of Support has taken place in the UK. The majority of traditional research evidence derives from evaluations in the US and UK of Circles of Support and Accountability which focus on the rehabilitation of sexual offenders in the community. Outside social care Circles of Support and Accountability (COSA) exist to support the rehabilitation of sexual offenders into the community. The key learning points below are derived from the scoping outline of practice and evidence from UK, Canada and US. This is not an exhaustive list but rather an indicative overview. More detail about individual projects is given in appendix 1. ✱✱ There appears to be little formal evaluation of effectiveness or cost effectiveness of social care Circles in research but there are practice descriptions and user testimony ✱✱ All models have a ‘focus person’ who is in control and each Circle is unique to that individual ✱✱ Duration of Circles can vary and flexibility is important ✱✱ Circles can take time to build, particularly as trust and relationships take time to build ✱✱ Family, friends, volunteers, community members and paid professionals can be part of a Circle and building on existing relationships is helpful. However, it is the focus person that makes decisions about Circle members and activities ✱✱ Circles can be small (possibly only two people) or large and should be able to expand and contract according to the focus person’s requirements ✱✱ Circles can be temporary and problem-focused or can offer long-term, lifetime support 8 Community Circles // a report ✱✱ Circles appear to work best when a paid facilitator is involved but there can be difficulties with funding and potential issues of professional control ✱✱ Anyone can have a Circle of Support but the model originated with people with learning disabilities and disabled people. The approach is being tested for people living with dementia and people recovering from addiction ✱✱ Circles of Support for people with long-term mental health problems are being explored as a way to support recovery and prevent episodes of ‘mental distress’. Circles of Friends have been deployed in schools for children and young people experiencing exclusion or difficulties such as bullying ✱✱ Circles should focus on strengths and mutuality and empower the focus person ✱✱ The use of technology, including online and digital, can help expand Circles to include remote relatives and friends ✱✱ Circles of Support have the potential to generate both bonding and bridging social capital. Bonding is consolidating and organising the support a person already has and bridging is bringing in new people, support and activities into the person’s life. In Appendix 1 we summarise our learning on international models and evaluations. We want to build on this by: ✱✱ Ensuring that the focus person stays in control of who is involved and what happens ✱✱ Keeping the duration of Circles flexible ✱✱ Ensuring that family, friends and community members are invited, using relationship circles ✱✱ Keeping the flexibility of how many people are part of a Circle ✱✱ Staying focussed on the purpose of the Circle and the changes that the person wants to make in their life – whether the Circle is to overcome a specific problem or for long term support, and clarifying this early on ✱✱ Using technology to enable people who live in different parts of the country to participate in Circles, and in supporting facilitators through social media. 9 Community Circles // a report Cost effectiveness It does not appear that Circles’ initiatives have been subject to cost effectiveness evaluation (that is, how they help resources to be used more efficiently and achieve better outcomes for people). However the broader literature suggests that building community capacity and applying techniques to develop personalisation in a socio-economically productive way, could be cost effective. In their paper on making an economic case for building community capacity, Martin Knapp and colleagues looked at time banks, befriending services and community navigators (Knapp et al 2010). Although they acknowledge the methods they used posed certain limitations on their findings, they say: “We calculated the costs of three particular community initiatives – time banks, befriending and community navigators for people with debt or benefits problems – and found that each generated net economic benefits in quite a short time period.” Knapp et al 2010 p. 9 In an overview of evidence on personalisation and productivity, Sarah Carr explored what this might mean for building community capacity and found that: “The self-directed support approach was designed to recognise and support a person’s informal support networks such as family and friends, neighbours and volunteers...Greater involvement with and access to community networks and support is being shown as having a preventative effect.” Carr 2010 p.vii 10 Community Circles // a report Developing Circles of Support further We wanted to develop an approach that built on the international learning about Circles, and learning from implementing personcentred planning in the UK. We asked ourselves; how could we develop an approach that: ✱✱ Could be attractive to many people in the community because it was possible to do alongside having a full time job, being a carer or bringing up a family? ✱✱ Was seen as valued – paid (just enough not to affect benefits if that is a concern) and the skills acquired could be applied to other areas of life and look good on a CV? ✱✱ Was affordable – possible for individuals and families to pay for either through a personal budget; for self-funders, or through mutual time or skills exchange with another facilitator? ✱✱ Was personalised - individuals and families were matched to a facilitator, the facilitator and the family/individual have their purpose for the Circle (could include supporting implementation of a personal budget)? ✱✱ Was replicable - had a process that could be easily and inexpensively taught, and did not require years of facilitation skills? ✱✱ Was sustainable and robust - ensured that facilitators were wellsupported and connected, in a time and cost effective way that utilised social media? ✱✱ Was lean – does not require a well-staffed office? ✱✱ Builds connectivity – could contribute to better interconnected and therefore more resilient communities? We are not suggesting that other approaches do not cover some of these, and we have learned a lot from the pioneering work of Circles Network. We believe that the combination of all of them could help us answer the question of creating Circles at scale. 11 Community Circles // a report What could Community Circles look like? While Community Circles is an attempt to answer these questions, it is not a radical departure from previous Circles’ work. It is simply an attempt to learn from the best that this work has achieved and to apply this learning in the context of the movement towards personalisation in health and social care. Making full use of the opportunities that this development presents for positive change in people’s lives. It is an application of the Circles’ tradition in a new context, combined with a resolution to spread their benefits more widely, and using person-centred practices, as well as person-centred planning. The key strength of the Circle is its simplicity. It is a way of drawing together people around the focus person to think and act together. It acknowledges the powerful tendency in present day society to become socially isolated, and attempts to prevent it. The Community Circles’ model recognises that people experience deep social isolation even in circumstances where paid help, healthcare and support is present in their lives, as typically these paid interventions are focused on priorities other than the need for human connectedness. Just because it originates from a simple concept does not mean it is easy. The work of bringing together a Circle, and helping it meet and think together, and thus begin to overcome the forces that isolate and disempower people often requires careful facilitation. If it were simple it would have happened already. Community Circles is recognition that the desired connection is not going to happen without intentional and sustained effort. A key element in focusing this effort and in sharing the connecting skills required will be the Circle facilitator. This will be a person with a deep commitment to building the capacity of communities to be inclusive. It will be desirable to seek out facilitators with knowledge of the local community and experience of social exclusion. This facilitator will themselves require support guidance and training. The more effective this support and the clearer the guidance and training, the 12 Community Circles // a report more people will become competent and confident facilitators. Support for the facilitator will be offered by mentors and by a coordinator, along with comprehensive written and video guidance. In order to be replicable at scale, adequate information about each aspect of the model and what we are learning about how to make it work best will need to be recorded and shared. We aim to apply the Community Circles model while recording the learning that occurs through this application in enough depth and detail for others to be able to replicate the model in new areas. We hope this will increase the number of people who have the opportunity to benefit from the use of a Circle of Support as a method of managing their support and creating positive change in their lives. We are looking to explore the development of Community Circles in two places in the North West, with people living with dementia, and with families with a child with a disability. 13 Community Circles // a report Structure and funding There would be a Co-ordinator whose role is to identify and train facilitators, match them to families, buddies and mentors, and be responsible for the quality of the service. They would be a homeworker with a dedicated phone number for the service. Facilitators are likely to be family, friends, community members, members of faith or cultural communities, people with lived experience of services, students, and people working in services. We hope to find facilitators through word of mouth and through a local communication strategy. We would also talk to local businesses and services about providing facilitators and/or funding a Circle, as part of their social responsibility. We would talk to education and training establishments looking for mature students and specifically those working towards a career in social work, health and wellbeing. Each facilitator would be asked to facilitate no more than two Circles, and offer eight to ten Circle meetings a year (around two hours per meeting) to a family/individual. This would be paid at £18 - 25 per hour, and means that the annual cost to a family (paying personally or through a personal budget) would be around £600 - 750 per year. This would deliver on average, a two hour Circle meeting (with preparation) every four to six weeks. Travel expenses would not be paid, and facilitators would be matched to local families. This service could also be offered through time-banks, rather than for money. Some people may not want to accept money, or instead could have this donated to a charity of their choice. The Local Authority would be able to buy Circles for individuals as well. Each facilitator would have a ‘buddy’ someone who is also a new facilitator, and a mentor. There would be one mentor for each five facilitators. Mentors are people who have a lot of experience in Circles and person-centred planning. Each facilitator negotiates with their buddy and mentor how they stay in contact and support each other. 14 Community Circles // a report Mentors are also likely to be Path Map or person-centred review facilitators who could be brought in to do this on meeting three (see below). Facilitators would have three days equivalent of training. This would be offered either at weekends or in evenings to enable people who work to participate. They would not be paid to attend this. The training would be pitched as something that can benefit anyone in their life and central to the role of the facilitator. This is also a way of introducing person-centred thinking and a person-centred way of running meetings (Positive and productive meetings) to lots of people, and to show how they are used for problem-solving, and future planning. There is a detailed manual for facilitators. Becoming a facilitator is dependent on completing the training, and the trainer agreeing that they have the characteristics and skills needed. We anticipate that a minimum of half of the people who went through the training would end up being facilitators. Potential facilitators would do their own one-page profile as part of the training, and this would be the basis for matching with potential families. Matching criteria would include the facilitators’ availability and how far they were able to travel. Clarifying success and matching to a facilitator The co-ordinator would meet every family or individual who was interested in a Circle. At the meeting, the co-ordinator would make sure that the family understood what a Circle could and could not achieve, so that expectations were managed; identify the purpose of this Circle, and what success would look like from their perspective. The co-ordinator and person can then review the range of facilitators and choose the person where there is the best fit and match, based on the facilitators’ one-page profile. See Max’s one page profile on the following page. 15 Community Circles // a report Name: Max Neill Address: 86 Beech Street South Preston Lancashire PR1 8JQ What people appreciate about you? • My commitment to Person-centred approaches and inclusion • I’m loyal to my friends • A calm approach • Knowledge and experience • I’m articulate • I’m logical and structured in my thinking and writing • I’ve a dry, almost arid sense of humour • I can be critical, as well as constructive and creative What is important to you? In my work I want to feel that what I’m doing makes a positive difference. I want people whose voices are not typically heard to be listened to by people and systems that have previously tended to ignore them. I want to see more people enjoying good lives in strong, well-connected communities. Social justice, human rights, humanity. Seeing underestimated and excluded people stepping into new worlds of possibility. That any change I’m involved in is enduring, rather than precarious. Sharing person-centred ideas, skills and tools through my speaking, training and writing. I enjoy real freshly ground coffee, or tea made with a teapot when I can! Time to think and plan – chances to discuss or read about ‘big’ issues as well as things directly connected with my work. Trying out new ideas and approaches. My MA course (Critical Learning Disability Studies). Keeping up with the news, via official news channels, twitter (@maxneill) and facebook. Time with my family. The end of a perfect day would be to watch the sun set over Derwentwater with a bottle of real ale and a reasonably warm tent behind me. How to support you in your role? I prefer to be contacted by email, text or tweet rather than telephone, though I accept this is sometimes unavoidable. This particularly applies to appointments so I can check my availability on my electronic diary. I’m ready to work anywhere within about an hour or so drive from Preston, and can go further if I have plenty of notice. Be as clear as you can about exactly what you expect from me. Ask as many questions as you like! I’m usually available on Wednesdays in the morning and early afternoon (up to 3.30), most evenings after 6.30pm (except Tuesday and Wednesday) and from 10 – 6 at weekends. Because this is pioneering work, and because I need it anyway, I really appreciate clear and honest feedback about what is working and anything that needs to change about my work, give me this feedback any way you like, many of my best ideas have come about because of criticisms and suggestions about my work. 16 Community Circles // a report Matching and support The family and co-ordinator would look at potential facilitators (via their one-page profiles) and match the facilitator to the family. The co-ordinator would also match the facilitator to a buddy and mentor. The co-ordinator negotiates with the family and the facilitator how he/she will stay in contact (i.e. phone call to the family after the second and fourth meeting?). There would be an annual ‘gathering’ each year, which facilitators are expected to attend to update the family and coordinator and share learning. This would take place over a weekend. Resources for facilitators We have a closed facebook group for facilitators to stay in touch and feel part of a community, and a groupsite to share problems and solutions; as well as the detailed manual. We are looking at developing an App about Circles, a You Tube Channel with videos for families (to know what to expect) and potential facilitators. There would be regular free webinars for facilitators, and links to other helpful websites and resources. 17 Community Circles // a report HOWCOMMUNITYCIRCLESWORK Julie and Helen meet Julie and Helen talk Can you tell me about Community Circles? How will this work? Julie heard about Community Circles from the Information and Advice Services website Julie, Lucy’s mum YES, let’s meet What do you want to achieve? • WheredoyouhopeLucywillbe in a year - how can the Circle helpwiththis? • Howoften,whenandwhere will the circle meet? • Howwillthecirclebepaidfor? In time or money. Helen, Circles co-ordinator Andchangehappens... Gettingconnected • HelenmeetswithJulieandLucyoncea year to see how things are going • TheCircleusesaPATHnexttofocuson the future in more detail When choosing a suitable facilitator. Consider: • Geography • Availability • Personality • Sharedinterests PATH (: ! %&&'$(t South $!%&'((! "# !"#$: 4plus1questions h Stree 86 Beec Preston Lancashire PR1 8JQ ! ! Ongoing Circle meetings ! of 35, 2.3+,4. a dry, almost arid sense as $01"+$,"and experience • I’ve humour l, as well be critica creative ledge -/$,"--' • I can e and in late constructiv *"+,-$.t to Person-centred ••Know ! I’m articu l and structured ) logica writing • Welcome • Howarewedoingwiththeactions? • Whathavewetried?Whathavewelearned?What arewepleasedabout?Whatareweconcerned about? Based on this what shall we do next? • Closinground ! ! ! itmen ion • My comm and inclus approaches my friends to • I’m loyal approach! • A calm ! ! • I’m ng and my thinki ! e 35, e whos e them. 6+,+.,4. ve difference.uslyI wanttendepeopl d to ignor of worlds s. previo into new ,1#-.'+" makes amspositi communitie stepping that have onnected ded people )*"+,1( to feel that whatby I’mpeopldoing , well-c e and syste and exclu in strong /$5, sometimesdiary. ,4.3','.though I acceptonthismyis electr onic of plenty +,4.3,16 bility one, r if I have my availa go furthe (3--.'text or tweet rathertsthanso Iteleph can check on, and can , ntmen drive from Prest 7.8,+., cted by emailapplie so s to appoi you like! hour or conta ions as ularly r to be about an 6.30pm I prefe many quest . This partichere within ngs after Ask as anyw unavoidable most eveni to work t from me. 3.30), I’m ready (up to you expec about ly what afternoon notice. feedback about exact and early many of honest ends. you can morning clear and way you like, s in the 10 – 6 at week clear as Be as appreciate ack any Wednesday and from ble on ay, I really me this feedb ! esday) it anyw ly availa give work. and Wedn I need I’m usual my work, about my Tuesday because e about suggestions (except work, and to chang and ering sms needs pione ing that this is se of critici and anyth about becau Because working what is have come ideas my best Julie and Max meet First meeting Responsibilities Meetingmap Julie and Helen decide Max is a good match and he is asked to be the Community Circles facilitator lives I want ed to estimated to be listene enjoying goodSeeing under In my work g. heard with my rious. g and writin typically see more peopl , humanity. rights than preca ing, trainin connected to rather I want human directly speak I can! gh my justice, enduring, as things Social ed in is and tools throu a teapot when s as well with skills possibility.change I’m involv ‘big’ issue ideas, tea made read about That any person-centred d coffee, or ss or y groun es to discu Sharing ook. real freshl plan – chanc I enjoy a and faceb think and . xneill) ale and es). Time to of real approaches ility Studi els, twitter (@ma a bottle Disab ideas and work. ter with Learning news chann out new l entwa al Derw (Critic Trying , via officia course set over My MA up with the news the sun be to watch Keeping my family. would Time withof a perfect day me. behind The end warm tent reasonably Second meeting • Maxwelcomeseveryoneand introducesMichelle,thePersonCentred Review facilitator • Michelleexplainstheprocess • EveryonecontributestoLucy’s Person-CentredReview • MaxtalksabouthowtheCirclewill be taking forward the actions and lookingatprogress • Agreedatesforthenext3meetings • Closinground are not voices • Introductions • Whyarewehere?Circlepurposeand creatingameetingmap(purpose,roles, ground rules) • Whatwillwebedoingtogetheroverthenext few months? • Person-CentredReview(watchYouTubeclip) • PreparingforPerson-CentredReview • Closinground • HelenandMaxtalkonphoneand email to share information • JuliewantsaCircletohelpher daughter Lucy make a transition from school to adult life • FromtalkingtoJuliewewantto plangoalsandactions • StartwithaPerson-Centred Review • JuliewantstheCircletomeeton Tuesdayevenings • PayingfortheCirclethrougha personalbudget Relationships Max and Julie meet to talk about • Invitations-who,how,whattocallthemeeting • Startarelationshipcircletodecidewhotoinvite Practicalitiestoconsider • Creatingawelcomingatmosphere • GettingstartedwiththeCirclesmeetingmap • WhatwillittakeforLucyandthefamilytofeelsafe? • WhatMaxcando-lookatexpectationsandroles 18 Community Circles // a report How it works in practice – meeting by meeting. Meeting one Who? Just the facilitator and the family What? ✱✱ Confirm the purpose of the Circle – put this on the Circle Meeting Map ✱✱ Do a relationship map based around the purpose of the Circle ✱✱ Think about who could be invited to join the Circle ✱✱ Who needs to do what to invite people. Meeting two Who? The Circle – first meeting with the full Circle. What? ✱✱ Introductions ✱✱ Clarify the purpose ✱✱ Create a Circle Meeting Map ✱✱ Prepare for the next meeting (for example show a section of video on Path) or start on working/not working and agree actions to build on what is working and change what is not working. Meeting three This depends on the purpose. If it relates to creating a 0-25 single plan or a support plan, then start with that, otherwise it could mean doing a personcentred review or Path/Map. We would use external facilitators who would assist the Circle facilitator with this, rather than trying to train facilitators to be able to use all these processes competently. 19 Community Circles // a report Meeting four and future meetings Review actions and plan next steps: use four plus one person-centred thinking tool to reflect on progress and learning. Annual reflection and review Each year the co-ordinator would facilitate the meeting, with the co-ordinator, the family and Circle. The purpose would be: ✱✱ To take stock and celebrate success ✱✱ To decide whether people want to continue for another year, and what the purpose and focus would be. In a separate discussion with the family the co-ordinator would also explore: ✱✱ If the group wants to continue, whether they want to use the same facilitator ✱✱ If not, do they want another facilitator from the project, or whether there is someone from within the Circle who wants to be supported to be the facilitator and how to make that happen. 20 Community Circles // a report What are some of the challenges? Providers and Commissioners can find Circles challenging for a number of reasons. We need to explore this with people locally in the Stockport and Lancashire Community Circles’ initiatives. ✱✱ Explaining why it is worth using a Circles’ approach: For many/ most people it is not immediately obvious why going to the bother of organising a Circle will make a difference in their lives. Most people will need to see Circles working in practice for people they know before they will trust what may at first seem an unfamiliar process. ✱✱ Providing evidence that Community Circles lead to improved outcomes for people who use them: Circles aim for improvements in people’s lives that are defined by the focus person and the Circle rather than any outside party. We believe that Circles will enable people to organise and apply the resources available to them more effectively in order to reach these self-defined outcomes. ✱✱ Developing a practice that remains values based, person-centred and authentic when applied at scale. The facilitator becomes seen as a community organiser and enhancer, allied to the person and the community, rather than ‘just another professional’. 21 Community Circles // a report Conclusion We hope that we have shown that we are building an approach that is rooted in the learning from existing Circles’ work, and learning from implementing person-centred planning. We have begun by recruiting our first seven facilitators – small beginnings for an ambitious plan! We are starting small to make sure that all the components of the way we are structuring meetings and support work are in place, and the facilitators guide is refined. Our work is being evaluated externally and we hope to share regularly blogs on our progress. We know we will not get everything right, and the eventual approach may look different from what we have described here, but we wanted to record our process for getting here, and our plans, and then keep sharing what we learn. Helen, Max and Sarah are part of Community Circles who are exploring how to create Community Circles at scale, using person-centred practices, so everyone can benefit. You can follow Community Circles on twitter @C_Circles. We have a dedicated groupsite for anyone interested in circles, please email Max or Helen if you want to join. Max: [email protected] Helen: [email protected] 22 Community Circles // a report Acknowledgements The work is funded through the H S A Foundation with contributions from United Response and TLAP (North West). Thank you to Helen Smith, Michelle Livesley, Cath Barton, Lowri Cornwall, Laura Upton, Ben Harrison, Martin Routledge and Owen Cooper for their help in reviewing this paper and the thinking behind it. References Carr S (2010) Personalisation, productivity and efficiency London: SCIE Knapp M, Bauer A, Perkins M &Snell T (2010) PSSRU Discussion Paper 2772: Building community capacity: making an economic care London: LSE/PSSRU Needham C & Carr S (2009) Co-production: an emerging evidence base for adult social care transformation London: SCIE Neill M and Sanderson H (2012) Circles of Support and Personalisation Stockport: HSA Wilson R, Cortoni F & Vermani M (2007) Circles of Support and Accountability: A National Replication of Outcome Findings Ottawa: Correctional Service of Canada www.robinjwilson.com/articles/r185-eng.pdf Wood C, Cheetham P & Gregory P (2011) Coping with the Cuts London: Demos 23 Community Circles // a report Appendix 1 Canadian models of Circles and supportive social networks Several of the UK initiatives refer to their basis in a Canadian Circle of Support Model developed at the Plan Institute for Caring Citizenship which was originally founded to support families of disabled people plan for the future: www.institute.plan.ca/ Other UK Circles developments particularly for disabled people and people with learning disabilities refer to other social network development projects by the Inclusion Network, based in Toronto: www.inclusion.com/circlesoffriends.html Furthermore, the Family Service Toronto describes their approach to creating and sustaining Circles of Support which describes concentric circles, starting with intimacy in the centre and then moving though friendship, participation and economic exchange: “Think of those closest to your heart; those you can hardly imagine living without. Identify them in the circle closest to you, the circle of intimacy. Think of those you count as true friends; those who hold an important part of your personal story; those you can call on and count on; those who can call on and count on you. Identify them in the circle of friendship. Think of those you meet - or have met - because you belong to a particular association, or work in a specific place, or live in a particular neighbourhood. You share some time or activity or interest. You might call or be called on for engagement in projects related to your shared association or interest or for information or for connections to others. Identify them in the circle of participation. Think of those you count on because they provide a paid service to you. Identify them in the circle of economic exchange.” (Adapted from: http://www.familyservicetoronto.org/programs/options/circles.html ) 24 Community Circles // a report Family Service Toronto This 2003 Toronto Star article via Family Service Toronto illustrates the challenges of supporting disabled people to live independently, including building and sustaining Circles of Support: http://www.familyservicetoronto.org/programs/options/stararticle.html Judith Snow who lives independently with a Circle of Support has outlined the following learning points: ✱✱ “Don’t wait for a crisis like a blackout; build Circles for life. ✱✱ The biggest struggle is inviting people into your life. People are embarrassed because we live in a culture that doesn’t accept different abilities. Get over it. Often people you’d least expect it from say they are honoured to have been asked. ✱✱ Remember, you know more people than you think. ✱✱ A family may think that a teenager who doesn’t speak, can’t connect to the community. But if you follow him for a day, you’ll see he’s a regular at a local burger chain, where they know he likes gravy on his fries. Try building on that connection. ✱✱ Your Circle may contain a mix of family, friends, community people and people in health care services. ✱✱ Celebrate people for who they are. That means connecting by recognising strengths and building on them. ✱✱ For example, more than 80 per cent of those who know people with Down’s Syndrome say they have the ability to make other people happy. Think of turning that into a job, like welcoming visitors to a community event. ✱✱ Bring everyone in your Circle together so they can get to know each other. That helps empower them. ✱✱ Learn how to ask for what you really want, not what you think you can get. ✱✱ Challenge and stretch. Circles aren’t about being nice, but about helping people thrive and survive. ✱✱ Take the time to build trust. 25 Community Circles // a report ✱✱ Prepare people for disappointment. Not everyone you approach will follow through. Your Circle may expand and contract. At different times people can have as many as 50 and as few as five in their Circle. ✱✱ If at first you don’t succeed try and try again. ✱✱ Don’t be afraid to give voice to dreams.” Adapted from: www.familyservicetoronto.org/programs/options/stararticle_2.html US approaches to Circles of Support The UK organisation Keys to Inclusion cites the US project ‘Beyond Welfare’ at the Asset Based Community Development Institute. This is an asset based approach to building community connections, examples of which are presented in this document: www.sesp.northwestern.edu/docs/abcd/hiddentreasures.pdf Lois Smidt founded Beyond Welfare, a group in Iowa founded with people living in poverty to harness their social assets to improve their situation. The approach focuses on poverty and social inclusion through community capacity building: www.aecf.org/~/media/Pubs/Initiatives/Making%20 Connections/F/FindingNewWaysToGetBeyondWelfare/Beyond%20Welfare.pdf The Idaho Department of Health and Welfare promote a ‘My Voice, My Choice’ support broker approach, with online training materials available. This includes a module on developing and sustaining Circles of Support: www.healthandwelfare.idaho.gov/portals/0/medical/developmentaldisabilities/ training/sbt2005/moduleC/c1-1.html The module outlines The Employment and Disability Institute’s four steps to creating a Circle of Support: 26 Community Circles // a report 1. Begin with a vision – What does the person wants to accomplish? How can their friends and family members help to reach the vision in manageable steps? 2. Leverage capacities to empower the focus person – The person with a disability has natural resources, talents, and interests that can assist to reach the goal. Recognise the strengths of the person. 3. Find people who are interested in and care about the person – Who will commit their own talents to help the person move forward by doing things with them rather than for them. 4. Find community connections – Both the internal community of the person’s life such as family and friends and the external community such as neighbours and community resources can assist in reaching the goal. (Adapted from: www.healthandwelfare.idaho.gov/portals/0/medical/developmentaldisabilities/training/ sbt2005/moduleC/c1-3.html) 27 Circles of Support for people with long-term mental health problems in Scotland In 2004 the Scottish Recovery Network and Outside the Box Development Support examined the case for developing Circles of Support for people with long-term mental health problems. The Canadian PLAN approach influenced their proposals. Their position is that Circles of Support can promote community connections and networks which in turn support a person’s recovery. There is a specific focus on reciprocity, asset-based approaches, peer support and the notions of bridging and bonding social capital. Connor A (2004) Recovery and community connections In Bradstreet S & Brown W (eds.) SRN Discussion Paper Series No.2 Glasgow: Scottish Recovery Network www.lx.iriss.org.uk/sites/default/files/ resources/Recovery%20and%20community%20connections.pdf Community Circles // a report Another 2004 report from Outside the Box Development Support describes some of the practice emerging for their Circles of Support development for people with long-term mental health problems and for those with learning disabilities. The report includes learning points from the people who have had their own Circle of Support. Overall, the key practice messages are: ✱✱ ‘Keep it open around issues like diagnosis, labels ✱✱ Start with people at as early a stage as possible, and when people are as young as possible – there are huge benefits around preventing later problems, and the ones that do still happen are less damaging ✱✱ Remember it is about encouraging and building friendships, and about all of the people involved being citizens ✱✱ Remember it is about relationships: that is the source of the contribution ✱✱ Remember that this won’t in itself solve all the other things that are wrong - for that person, or with the system ✱✱ Be ready to support families as well’ (Outside the Box Development Support, 2004 p.17) Outside the Box Development Support (2004) Circles of Support: a discussion paper Glasgow: Outside the Box Development Support: www.otbds.org/assets/uploaded_files/project/Circlesreport.pdf The Circles of Support and Accountability (COSA) approach The COSA approach is community supported and professionally driven and aims to give the ‘core member’ social support. This approach has been formally evaluated in Canada, with the results as follows: ✱✱ “Results show that the offenders who participated in COSA had significantly lower rates of any type of reoffending than did the matched comparison offenders who did not participate in COSA. Specifically, 28 offenders who participated in COSA had an 83% reduction in sexual recidivism in contrast to the matched comparison group (2.1% vs. 12.8%), a 73% reduction in all types of violent recidivism (including sexual – 8.5% vs. 31.9%), and an overall reduction of 72% in all types of recidivism (including violent and sexual – 10.6% vs. 38.3%). ✱✱ Overall, COSA participants were responsible for considerably less sexual, violent, and general offending in comparison to the matched comparison group. ✱✱ These findings suggest that the impact of participation in COSA is not site-specific. In addition, these results provide further evidence for the position that community volunteers, with appropriate training and guidance, can and do assist in markedly improving offenders’ successful reintegration into the community. (Wilson, Cortoni & Vermani 2007 p.i) Again this Circle model had its origins in Canada and the US, and grew out of an ad hoc, faith-based response to the need to support high risk, sexual offenders from reoffending after release into the community in South-Central Ontario, Canada and with an example being in Ottawa: http://cosa-ottawa.ca/ Circles of Support and Accountability have been subject to research and effectiveness evaluation, with two these two papers being available: Wilson J et al (2007) Circles of Support and Accountability: Engaging Community Volunteers in the Management of High-Risk Sexual Offenders The Howard Journal 46 (1) pp1-15 www.robinjwilson.com/articles/HOJO_450.pdf Wilson R, Picheca J & Prinzo M (2005) Circles of Support & Accountability: An Evaluation of the Pilot Project in South-Central Ontario Ottawa:Correctional Service of Canada www.csc-scc.gc.ca/text/rsrch/reports/r168/r168-eng.shtml
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