Appendix 1 Canadian Blood Services MSM Policy Change Follow-Up Research 2014 DATA Summary June, 2015 © 2014 Ipsos. All rights reserved. Contains Ipsos' Confidential and Proprietary information and may not be disclosed or reproduced without the prior written consent of Ipsos. Table of Contents Background and Objectives 3 Methodology 4 Survey Flow 5 Intention to Donate & Trust 6 Awareness of the MSM Policy and Effect on Donation Behaviour 10 Views towards MSM Policy Change – 5 Year Deferral 14 Views towards MSM Policy Change – 1 Year Deferral 26 2 Background and Objectives For the past several years, Canadian Blood Services has been actively pursuing data to inform a policy change regarding men who have had sex with men (MSM) from donating blood. In September 2011, the board of directors passed a motion committing the organization to re-examine this policy, with a view to reducing this lifetime exclusion to no less than five years and no longer than 10 years – a first step in incremental change on the policy (pending approval from its regulator, Health Canada). In 2012, CBS undertook to consult with key stakeholders to aid in the preparation of a formal request to amend the policy, to be submitted to Health Canada. CBS surveyed a number of stakeholder audiences on their awareness, views, and attitudes towards: the MSM policy; changing this policy to allow men who have had sex with other men to donate blood within a certain time period; and trust in CBS. To this end, CBS wanted to gauge the impact the proposed policy change would have on intentions to donate and the perceived safety of the blood supply. In 2013, Canadian Blood Services received approval from Health Canada to reduce the current men who have sex with men deferral period from indefinite to five years from last MSM activity. This presentation contains the results of a follow-up survey assessing the impact of the 5 year deferral policy change. The survey was conducted amongst three key audiences: the general public; active donors; members of the Community-Based Research Centre (CBRC) – a non-profit charitable organization dedicated to using research to guide community action on health and social issues, with a special focus on Gay Men’s Health with initiatives on HIV, sexual health promotion, and policy development. 3 Methodology The methodology used for this research was an online survey. The General Public component was conducted using the Ipsos Reid Online Omnibus. The Donor and Community-Based Research Centre (CBRC/Open-link audience) surveys were administered using the Fluidsurveys online survey tool. The sample for the Ipsos Reid Online Omnibus is sourced from the Ipsos Reid Household Panel (approximately 200,000 members nationwide), which is constructed to be representative of the Canadian adult population of people aged 18 or older (in this case, excluding Quebec). Quotas and slight weighting was used to ensure a representative sample of the Canadian population by region, gender, and age. A cross-section of active donors were emailed an invitation to complete the survey, while members of the CBRC were sent an open link by representatives of the organization, introducing the survey and asking for their participation. The surveys were completed from Sept. 18th – Oct. 6th, 2014. The following table shows the number of completed survey by audience: Fieldwork Dates No. of Completes Margin of Error* Response Rate Sept. 18th – 24th, 2014 1,005 ± 3.1% N/A Sept. 19th – Oct. 6th, 2014 1,631 ± 2.4% 26% Oct. 1st – Oct. 6th, 2014 3,081 ± 1.8% N/A Audience General Public Donors CBRC ^An urgent appeal for blood was launched by Canadian Blood Services on Sept. 30th, 2014. Note of caution: As the CBRC open-link was accessed more widely than anticipated, the data for this group should be approached with caution in terms of its representation of the CBRC community and its comparability to the 2012 results. Unweighted data is shown for this group. * While not probability samples, the table indicates the theoretical margin of error associated with each sample at the 95% confidence interval; in other words what the results would have been had the entire adult population of each audience in Canada been polled (19 times out of 20). ** It is not possible to calculate the response rate for the CBRC audience given that it is unknown how many people were made aware of the survey given that an open survey link was used. 4 Survey flow Intention to donate and measures of trust Information about current MSM policy (5 year deferral): Canadian Blood Services tests every unit of blood using state-of-the-art technology, but even the best tests are not 100 per cent accurate. Therefore, another layer of safety is critical to ensuring the safety of products supplied to patients every day. As a precaution, some people are not able to give blood, either for their own well-being, or to reduce the risk of passing something infectious along to a blood recipient. An example of this was the former policy that prohibited men who have had sexual contact with another man (MSM) since 1977 from donating blood. This policy was based on scientific evidence that some MSM are in the highest risk group for HIV/AIDS infection. The next two highest risk groups are also prevented from giving blood as a precaution. On July 22, 2013 Canadian Blood Services reduced this time period so that only men who have had sex with another man in the past 5 years are prohibited from donation. This change was based on science, expert advice and stakeholder input. In addition, Canadian Blood Services’ regulator, Health Canada, decided that this change would not introduce additional risk to the blood system. Aided awareness of policy Views towards policy change including: overall views, level of support, perceptions of safety, and impact on donation intention Impact of current policy on past/current donation intention Information about potential further policy change (1 year deferral): Canadian Blood Services may consider further reducing the time frame of the deferral to 1 year. Should this be proposed, it would be based on science, expert advice and stakeholder input. In addition, Canadian Blood Services must convince its regulator, Health Canada, that this change would not introduce additional risk to the blood system. Views towards policy change including: overall views, level of support, perceptions of safety, and impact on donation intention 5 Intention to Donate & Trust 6 Intentions to donate 1% I am not eligible to donate blood 34% 42% 93% I will donate blood in the next six months 10% 21% 6% I will donate blood within six months to a year I will not donate blood within the next year but I might at some time in the future 8% Donors 9% General Public 1% 27% CBRC/Open-link 14% 0% I will never donate blood 8% 3% 1% Don't know 13% 12% 2014 Question Wording: Q1. / Q11. Which of the following statements best describes your intentions? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) 7 Agreement with the statement: ‘I trust Canadian Blood Services to do what is best for the blood system’ Strongly agree CBRC/Open-link Somewhat agree 30% Donors General Public Somewhat disagree Strongly disagree 36% 18% 81% 36% 40% 2014 Question Wording: Q2. Please indicate whether you agree or disagree with the following statements. Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) % Agree Don't know 13% 4% 65% 11% 0%6% 2% 92% 7% 5% 11% 77% 8 Agreement with the statement: ‘I trust Canadian Blood Services to act in the best interests of the public’ Strongly agree CBRC/Open-link Somewhat agree 31% Donors General Public Somewhat disagree Strongly disagree 36% 36% 3% 66% 13% 1%6%2% 92% 18% 79% 40% 2014 Question Wording: Q2. Please indicate whether you agree or disagree with the following statements. Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) % Agree Don't know 13% 6% 5% 12% 77% 9 Awareness of the MSM Policy and Effect on Donation Behaviour 10 Introduction to MSM Policy – 5 Year Deferral: On-screen information for respondents Canadian Blood Services tests every unit of blood using state-of-the-art technology, but even the best tests are not 100 per cent accurate. Therefore, another layer of safety is critical to ensuring the safety of products supplied to patients every day. As a precaution, some people are not able to give blood, either for their own well-being, or to reduce the risk of passing something infectious along to a blood recipient. An example of this was the former policy that prohibited men who have had sexual contact with another man (MSM) since 1977 from donating blood. This policy was based on scientific evidence that some MSM are in the highest risk group for HIV/AIDS infection. The next two highest risk groups are also prevented from giving blood as a precaution. On July 22, 2013 Canadian Blood Services reduced this time period so that only men who have had sex with another man in the past 5 years are prohibited from donation. This change was based on science, expert advice and stakeholder input. In addition, Canadian Blood Services’ regulator, Health Canada, decided that this change would not introduce additional risk to the blood system. 11 Aided awareness of current MSM policy Very aware Somewhat aware Not very aware CBRC/Open-link 14% 45% 15% 26% 31% 16% % Aware Don't know 76% Donors General Public Not at all aware 10% 38% 3% 7% 90% 13% 1% 76% 6% 2014 Question Wording: Q3. Before today, would you say that you were very aware, somewhat aware, not very aware, or not at all aware of the Canadian Blood Services policy that prohibits men who have had sex with another man in the past 5 years from donating blood? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810). 41% 12 Impact of current policy on likelihood of donating Much more likely to donate blood Somewhat less likely to donate blood CBRC/Open-link 2%2% General Public 2%7% Somewhat more likely to donate blood Much less likely to donate blood 38% 13% 70% No impact Don't know/not applicable 42% 3% 6% 5% 2014 Question Wording: Q5. Which of the following statements best describes how this policy has influenced or influences your decision to donate blood? Please select one response only. Knowing about this policy has made or makes me… Base 2014: General Public (n=1,005); CBRC (n=3,810). 10% 13 Views towards MSM Policy Change – 5 Year Deferral 14 Overall views towards MSM policy change Right direction Wrong direction 71% CBRC/Open-link Donors General Public Don't know 53% 49% 19% 8% 14% 11% 39% 37% 2014 Question Wording: Q6. Do you think this policy change is a step in the right direction or wrong direction? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810). 15 Reasons for thinking the policy change is a: step in the right direction 2014: Seventy-one percent of the CBRC/Open-link audience think the policy change is a step in the right direction. Nineteen percent of these respondents provided a response (that was coded) to the question ‘ Why did you say that?’: CBRC/Openlink Mentions of: Support The Policy Change/ Right Direction (Net) Discrimination/ discriminating against gender and/or sexual orientation Small step to end discrimination / it's not enough The policy is based on outdated science / old stereotypes / fear Too long (unrealistic) abstinence period / should be reduced Blood shortage/ more donors are needed Gay people should be allowed to donate blood Would greatly increase the amount of donors (incl healthy gay men) who could donate/ no loss of good donors HIV/Aids is not just a gay person's disease There are other high risk categories (who aren't singled out) Screen for regular/ have had testing for STI's (incl HIV) Restriction should be based on risky behaviour (not orientation) in both men and women Screen for safe sex awareness/ have safe sex practices Against the ban Base it on scientific research not public opinion Healthy people should be allowed to donate Screen for relationship status/ have monogamous relationships Proper science/ research is in place System is improving/ becoming better Modify policies as appropriate 2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the right direction: 2014 CBRC (n=500). Coded responses only. (Sub codes included in Net). ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) (n=500) 91% 31% 24% 13% 9% 8% 7% 7% 6% 6% 5% 5% 4% 4% 4% 2% 1% 1% 0% 0% 16 Reasons for thinking the policy change is a: step in the right direction 2014: Of the 53% of donors who think the policy change is a step in the right direction: Mentions of: Support The Policy Change/ Right Direction (Net) Proper science/ research is in place Would greatly increase the amount of donors (incl. healthy gay men) who could donate/ no loss of good donors Blood supply will be safe/ clean Discrimination/ discriminating against gender and/or sexual orientation Blood shortage/ more donors are needed Modify policies as appropriate Trust/ have faith in CBS judgment The policy is based on outdated science / old stereotypes / fear Base it on scientific research not public opinion Gay people should be allowed to donate blood Healthy people should be allowed to donate HIV/Aids is not just a gay person's disease There are other high risk categories (who aren't singled out) Screen for regular/ have had testing for STI's (incl HIV) Restriction should be based on risky behaviour (not orientation) in both men and women Against the ban Screen for safe sex awareness/ have safe sex practices Screen for relationship status/ have monogamous relationships 2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the right direction: 2014 Donors (n=879). (Sub codes included in Net) ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) Donors (n=879) 67% 15% 13% 8% 7% 6% 5% 4% 4% 4% 4% 4% 3% 2% 2% 2% 2% 1% 1% 17 Reasons for thinking the policy change is a: step in the right direction 2014: Of the 49% of General Public respondents who think the policy change is a step in the right direction: Gen Pub (n=516) Mentions of: Support The Policy Change/ Right Direction (Net) 53% Discrimination/ discriminating against gender and/or sexual orientation 7% 7% 6% 6% 6% Trust/ have faith in CBS judgment Would greatly increase the amount of donors (incl. healthy gay men) who could donate/ no loss of good donors Blood shortage/ more donors are needed Sounds good Blood supply will be safe/ clean System is improving/ becoming better Proper science/ research is in place Base it on scientific research not public opinion Small step to end discrimination / it's not enough The policy is based on outdated science / old stereotypes / fear HIV/Aids is not just a gay person's disease Healthy people should be allowed to donate Everyone should be allowed to donate Modify policies as appropriate Support gay rights Against the ban Equality/ freedom to choose 2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the right direction: 2014 General Public (n=516). (Sub codes included in Net) ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) 4% 3% 3% 2% 2% 2% 2% 1% 1% <1% <1% - 18 Reasons for thinking the policy change is a: step in the wrong direction 2014: Nineteen percent of the CBRC/Open-link audience think the policy change is a step in the wrong direction. Nineteen percent of these respondents provided a response (that was coded) to the question ‘ Why did you say that?’: CBRC/Openlink Mentions of: Support The Policy Change/ Right Direction (Net) Discrimination/ discriminating against gender and/or sexual orientation HIV/Aids is not just a gay person's disease The policy is based on outdated science / old stereotypes / fear Too long (unrealistic) abstinence period / should be reduced (not included in net) There are other high risk categories (who aren't singled out) Mentions of: Oppose The Policy Change/ Wrong Direction (Net) Precaution in order to protect public/ in best interest of public Thorough screening/ testing of donors is important System is not fool proof/ not completely accurate People may not disclose their sexual orientation/ sexual history Agree with the ban Too risky/ concerned about the risk Lessen risk of HIV/ Aids More STD testing is needed Safeguards need to be in place Prevent tainted blood supply Against gay people donating blood (n=136) 87% 45% 10% 10% 9% 8% 5% 2% 2% 1% 1% 1% 1% - Support the Policy Change/Right Direction - Only categories with values ≥8% shown Oppose the Policy Change/Right Direction - Only categories with values ≥1% shown 2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the wrong direction: 2014 CBRC (n=136). *Low base size. Coded responses only. (Sub codes included in Net) ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) 19 Reasons for thinking the policy change is a: step in the wrong direction 2014: Of the 8% of donors who think the policy change is a step in the wrong direction: Donors (n=133) Mentions of: Oppose The Policy Change/ Wrong Direction (Net) 52% Too risky/ concerned about the risk 23% Against gay people donating blood 10% Safeguards need to be in place 8% System is not fool proof/ not completely accurate 5% Lessen risk of HIV/ Aids 3% Agree with the ban 3% Prevent tainted blood supply 3% People may not disclose their sexual orientation/ sexual history 3% More research is needed / studies are constantly changing 3% Precaution in order to protect public/ in best interest of public 1% Thorough screening/ testing of donors is important 1% No trust in system/ agency 1% More STD testing is needed - Prevent Hepatitis C virus - 2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the wrong direction: 2014 Donors (n=133). *Low base size. (Sub codes included in Net) ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) 20 Reasons for thinking the policy change is a: step in the wrong direction 2014: Of the 14% of General Public respondents who think the policy change is a step in the wrong direction: Gen Pub (n=126) Mentions of: Oppose The Policy Change/ Wrong Direction (Net) 39% Too risky/ concerned about the risk 9% Thorough screening/ testing of donors is important 7% Against gay people donating blood 5% Agree with the ban 5% Prevent tainted blood supply 4% No trust in system/ agency 4% System is not fool proof/ not completely accurate 3% Lessen risk of HIV/ Aids 3% People may not disclose their sexual orientation/ sexual history 2% Safeguards need to be in place 1% More research is needed / studies are constantly changing 1% Precaution in order to protect public/ in best interest of public 1% More STD testing is needed - Prevent Hepatitis C virus - 2012/2014 Question Wording: Q7_1. Why do you say that? Base: Those who think the policy change is a step in the wrong direction: 2014 General Public (n=126). *Low base size. (Sub codes included in Net) ‘Net’ is the aggregate % of all similar mentions (respondents with multiple mentions counted only once) 21 Level of support for the MSM policy change Strongly support Somewhat support CBRC/Open-link 34% Donors 35% General Public 24% Somewhat oppose Strongly oppose 36% 7% 8% 26% 29% 5% 9% 10% Don't know 15% 8% 26% 28% 2014 Question Wording: Q8. How much do you support or oppose Canadian Blood Services recent change in its policy regarding men who have had sex with another man? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) % Support 70% 61% 53% 22 Effect of policy change on perceptions of safety Positive effect CBRC/Open-link 23% Donors 22% General Public 27% No impact Negative effect Don't know 60% 34% 30% 9% 9% 13% 9% 35% 29% 2014 Question Wording: Q9. Do you think this change has had a positive effect, a negative effect, or have no impact on the safety of the blood supply? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) 23 Impact of MSM policy change on future intention to donate I would be much more likely to donate I would be somewhat more likely to donate It would have no impact I would be somewhat less likely to donate I would be much less likely to donate Don't know CBRC/Open-link 11% Donors 6% 2% General Public 4% 8% 16% 55% 4% 11% 88% 69% % More Likely 3%3% 2014 Question Wording: Q10. In general, which of the following best describes the impact this policy change has had on your future intentions to donate blood? Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) 4% 27% 1% 3% 8% 12% 13% 24 Agreement with the statement: ‘I have friends, family members, or colleagues who I think are more likely to donate because this policy change was made.’ Strongly agree CBRC/Open-link Somewhat agree 21% Donors 4% 9% General Public 6% Somewhat disagree 24% 9% 18% 10% 13% 11% Strongly disagree 23% Don't know 22% 66% 12% % Agree 45% 12% 54% 2014 Question Wording: Q11. Please indicate whether you agree or disagree with the following statement: ‘I have friends, family members, or colleagues who I think are more likely to donate because this policy change was made.’ Base 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) 24% 25 Views towards MSM Policy Change – 1 Year Deferral 26 Introduction to MSM Policy – 1 Year Deferral: On-screen information for respondents Canadian Blood Services may consider further reducing the time frame of the deferral to 1 year. Should this be proposed, it would be based on science, expert advice and stakeholder input. In addition, Canadian Blood Services must convince its regulator, Health Canada, that this change would not introduce additional risk to the blood system. 27 Overall views towards further MSM policy change (to 1 year deferral) MSM Policy – 1 Year Deferral Right direction General Public Don't know 85% CBRC/Open-link Donors Wrong direction 43% 39% 9% 17% 21% 7% 40% 40% 2014 Question Wording: Q21. Do you think this further policy change would be a step in the right direction or wrong direction? Base: All Respondents: 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810). 28 Level of support for the MSM policy change – 1 year deferral Strongly support Somewhat support General Public Strongly oppose 61% CBRC/Open-link Donors Somewhat oppose 22% 16% 22% 23% 24% 12% 12% 13% 18% 2014 Question Wording: Q23. How much do you support or oppose Canadian Blood Services further changing its policy regarding men who have had sex with another man within a 1 year time frame? Base: All Respondents: 2014: Donors (n=1,631); General Public (n=1,005); CBRC (n=3,810) Don't know 4% 6% 5% 31% 30% 29
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