HIV Education and Counseling 1. Twelve Questions and Answers about HIV/AIDS: Center for Health Training, Region IX (13 pages) 2. The Six Steps of an STD/HIV Risk Reduction Counseling Session: Centers for Disease Control and Prevention revised by Center for Health Training, Region IX (6 pages) Tab 7 3. HIV Prevention Materials: Family Planning Council* a. Definitions of HIV-related Services 2008 (2 pages) b. Prevention Counseling Observation & Coaching Tool (5 pages) c. HIV Education, Information & Counseling Guide (1 page) * From the HIV Prevention Counseling Chapter of Family Planning Council, TRAINING 3, Region III, HIV Tool Kit 4. Questions to Support Behavior Change – English and Spanish: Center for Health Training, Region VI (2 pages) 5. Disclosing Reactive (Positive) Rapid HIV Test Results: Center for Health Training, Region IX (3 pages) 6. How to Make an Effective Referral: Center for Health Training, Region IX (1 page) About Making Client Referrals: TRAINING 3, Region III (1 page) 7. Client-Centered Care/Communications Observation Form: Development Systems, Inc., Region VII (4 pages) RELATED MATERIALS • Checklist for HIV Prevention Education & Counseling (see Tab 3) · • HIV Knowledge Survey (see Tab 4) • Resources for HIV Prevention and Risk Reduction (Tab 15, page 6) ROADMAP TO INTEGRATION: HIV Prevention in Reproductive Health A collaborative effort between CDC SMART team and the Regional Training Centers 2009 Tab 7: HIV Education and Counseling Twelve Questions & Answers about HIV and AIDS1 1. WHAT IS HIV? WHAT IS AIDS? HIV stands for Human Immunodeficiency Virus. This is the virus that causes AIDS. There are two common strains of the virus (HIV 1 & HIV 2) but only HIV 1 is common in the U.S. Viruses are microscopic infectious agents that cannot “live” or replicate outside other cells. HIV is different from most other viruses because it attacks the immune system. The immune system gives our bodies the ability to fight infections. HIV finds and destroys a type of white blood cell (T cells or CD4 cells) that the immune system must have to fight disease. People can live a long healthy life with HIV without symptoms, even without medications. Once the immune system begins to break down over time, and the person develops more symptoms, this often means they have progressed to AIDS. AIDS stands for Acquired Immuno Deficiency Syndrome. AIDS is the final stage of HIV infection. It can take many years for a person infected with HIV, even without treatment, to reach this stage. Having AIDS means that the virus has weakened the immune system to the point at which the body has a difficult time fighting infection. When someone has one or more specific infections, certain cancers, or a very low number of T cells, he or she is considered to have AIDS. HIV chooses CD4+ cells and other lymphocytes as its host. Lymphocytes are white blood cells that are important in the synthesis of antibodies and help protect the body from disease. Origin of AIDS: Scientists identified a type of chimpanzee in West Africa as the source of HIV infection in humans. The virus most likely jumped to humans when humans hunted these chimpanzees for meat and came into contact with their infected blood. Over several years, the virus slowly spread across Africa and later into other parts of the world. AIDS is a medical diagnosis given by a medical doctor when a person meets the criteria. Often this includes a positive HIV test results plus any of several conditions (more information in Question #2). An AIDS diagnosis is used by the Centers for Disease Control and Prevention (CDC) for statistical purposes to track the epidemic. This diagnosis is not necessarily a reflection of an individual’s current health status. The diagnosis remains with the individual even after he or she no longer meets the AIDS-defining criteria. Before the development of protease inhibitors and combination therapies, virtually all people with HIV infection eventually developed AIDS. These new therapies are currently delaying progression toward AIDS, and the health of many people who have an AIDS diagnosis has improved dramatically. 2. HOW DOES HIV DAMAGE THE IMMUNE SYSTEM? HIV infects the body through several different cells of the immune system. As more of these cells become infected, fewer are available to fight off diseases. Diseases that a healthy immune system can prevent become more dangerous and even life-threatening as they overpower the immune system of a person with HIV disease. Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling When HIV enters a person’s CD4 cells, it uses the cells to make copies of itself. This process destroys the CD4 cells and the CD4 count goes down. As a person with HIV loses CD4 cells, their immune system becomes weak. A weakened immune system makes it harder for the body to fight infections and cancer. People with HIV disease may have one of several different manifestations of infection. For example, a person can be infected with HIV, have no physical symptoms, and have healthy results on tests of immune function. Or a person can have no physical symptoms but show some signs of immune system damage on medical tests of the immune system. A person can also have mild or more severe symptoms of HIV disease. About 30% of people newly infected with HIV disease will show an “acute stage” of infection shortly after becoming infected, with flu-like symptoms lasting one or two weeks. Then the person may have no physical symptoms for several years. Mild symptoms can develop, and then, as time passes, more severe symptoms may appear. This range of presentations is often called “the spectrum of HIV disease.” The phrase indicates that there are many possible manifestations of HIV infection. There are several indicators of more severe HIV (which occur in the presence of HIV infection and the absence of any reason for immune suppression). These conditions also define an AIDS diagnosis, which is used for epidemiological statistics and to meet the requirements for some government benefits and services. Among the conditions are: a. CD4+ count of less than 200 cells per microliter or CD4+ cell percentage of less than 14 b. Recurrent pneumonia, more than one episode in a one-year period* c. Kaposi’s sarcoma (KS) d. Cervical cancer, invasive e. Pneumocystis carinii pneumonia (PCP) f. Coccidioidmycosis, disseminated g. HIV encephalopathy (HIV dementia) h. Histoplasmosis, disseminated i Lymphoma (certain types) j. Other non-Hodgkin’s lymphoma of B-cell or unknown phenotype k. Any mycobacterial disease caused by mycobacteria other than disseminated Mycobacterium tuberculosis l. Recurrent Salmonella (non-typhoid) septicemia m. HIV wasting syndrome (emaciation) n. Herpes Simplex (severe infection) o. Tuberculosis (TB) p. Chronic Candidiasis *Bold font highlights those conditions most likely to show up in a health clinic. 3. HIV HAS BEEN FOUND IN WHICH BODY FLUIDS?2 HIV has been isolated in many different body fluids. The Centers for Disease Control Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling recommends precautions be taken with the following fluids. a. Blood (including menstrual blood, which can have a high concentration of the virus). b. Any bodily fluid containing visible blood. c. Semen (including pre-ejaculation) d. Vaginal secretions. e. Cerebrospinal fluid (surrounding the brain and spinal cord). f. Synovial fluid (surrounding joints). g. Pleural fluid (surrounding membranes of lungs and thoracic cavity). h. Peritoneal fluid (in membranes lining abdominal/pelvic walls). i. Pericardial fluid (surrounding the heart). j. Amniotic fluid (surrounding the fetus). k. Human breast milk (neonatal transmission). In addition, although HIV has been detected in other fluids, unless there is visible blood present, viral concentrations are not sufficient to transmit HIV. Among these fluids are tears, saliva, urine, feces, vomit, sputum, and nasal secretions. Sweat is not considered a risky fluid. Remember that there must be an exchange of fluids to transmit the virus, contact alone does not cause infection. 4. HOW IS HIV TRANSMITTED FROM ONE PERSON TO ANOTHER? HOW CAN THIS TRANSMISSION BE PREVENTED? HIV Transmission: The ways that you get infected with HIV have not changed since the beginning. “Infection” means that HIV has invaded the body and will multiply and produce an injurious effect. Upon infection, a person can transmit the virus to others through a variety of routes. “Exposure” means that an individual has come in contact with an HIV-infected person’s body fluid. During a given exposure, the virus may not necessarily have found a “host cell” in the uninfected person. Hence, not every exposure leads to transmission, although statistics have shown that it is possible to become infected from only one exposure.3 It is important to remember that behaviors put people at risk for HIV, not membership in any particular “risk group.” The ways in which HIV is transmitted are: a. Unprotected sexual intercourse with an infected partner. This includes vaginal, anal, or oral sex or other sex that involves the exchange of body fluids. Receptive anal sex is the most risky activity because the anus has only one mucosal membrane. The vagina has 2 layers of mucosal membrane and is therefore less risky than anal sex. The mouth has 3 layers of mucosal membranes and therefore oral sex is the least risky of the three. Engaging in unprotected oral sex with someone who is infected with HIV can lead to HIV infection.4 The relative risk of transmission through unprotected oral sex is extremely low, and oral sex is safer than other insertive forms of sex. Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling b. Sharing of needles and injection paraphernalia (“works,” including needles, syringes, cookers, and other injection equipment) with an infected partner. Remember people use needles for drug use, hormones, vitamins, medical purposes and for tattooing and piercing. c. From an infected woman to her fetus (vertical or perinatal transmission) or through her infected breast milk (neonatal transmission). d. Through other direct exposure to infected blood or needle sticks (occupational transmission), open cuts or sores, or other breaks in the skin that would facilitate direct blood to blood exposure. Though infection with HIV through a blood transfusion is very rare in the U.S., it is still common in other developing countries. e. Through other direct exposure to semen. (i.e. Sperm banks and alternative insemination using unscreened semen). Tattoos and Piercing: Instruments that are intended to penetrate the skin (tattooing, acupuncture, piercing) should be used once and disposed of or thoroughly cleaned and sterilized. The CDC knows of no instances of HIV transmission through tattooing or body piercing, although hepatitis B has been transmitted. Kissing: Because of the potential for contact with blood during “French” or open-mouth kissing, CDC recommends against engaging in this activity with a person known to be infected. However, the risk of acquiring HIV during open-mouth kissing appears to be extremely low. The CDC has investigated only one case of HIV transmission that may be attributed to open-mouth kissing. Insects (or other animals): Studies conducted by researchers at CDC and elsewhere have shown no evidence of HIV transmission through insects. When an insect bites a person, it does not inject its own or a previously bitten person’s blood into the next person. Rather, it injects saliva, which acts as a lubricant or anticoagulant so the insect can feed efficiently. HIV lives for only a short time inside an insect or other animal and therefore does not reproduce in them. All reported cases suggesting new or potentially unknown routes of transmission are thoroughly investigated by state and local health departments with the assistance of the CDC. HIV Prevention: People can prevent HIV by: a. Abstaining from sex or exchange of bodily fluids—never having sexual intercourse with anyone under any circumstances. b. Abstaining from needle sharing activities including drug use—never sharing works or using needle exchange programs. Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling c. Having sex only with partners known to be uninfected with HIV. d. Practicing safer sex, which might include mutual masturbation, massage, and body rubbing, and using a latex or polyurethane barrier use for all forms of intercourse: vaginal, oral, anal. These barriers include condoms, dental dams, Reality or “female” condoms. To reduce the potential risk of transmission through oral sex, participants should avoid causing trauma to the mouth and throat, and abstain from oral sex when infections or abrasions are apparent on the genitals, mouth, or throat. e. Cleaning injection works with bleach before sharing. Cleaning needles involves using the bleach, and flushing with water afterwards and repeating this 3 times. For cleaning needles used for hormones, since the fluid (silocone) is oil-based, you must you dishwashing detergent instead of bleach. f. Keeping a clear head: avoiding the use of alcohol or other drugs that might impair judgment or resolve to follow safer sex activities. g. Using universal precautions for all health care interactions to prevent needle stick exposure. 5. WHAT DOES THE HIV TEST MEASURE? WHAT ARE THE NAMES OF COMMONLY USED HIV TESTS?5 The HIV test measures the presence of antibodies to HIV in the blood. After a person becomes infected with HIV, the body will produce antibodies (usually in two to 12 weeks but it can take up to six months). The presence of HIV antibodies indicates that the individual is infected with HIV and is capable of passing the virus on to others through usual routes of transmission. Samples to be tested for the HIV antibody can be obtained from: • Blood drawn from arm or finger stick • Mucosal membranes from the mouth (not saliva) • Urine testing The gold standard for conventional HIV testing is to use blood because the test results are more accurate. The HIV antibody tests are all looking for antibodies to HIV and not for the actual virus. Generally there are two layers of HIV testing needed to be sure of results, whether you are doing conventional or rapid testing. The first sample or layer of testing is called screening. Once the samples have been collected, the most commonly used HIV antibody test in the United States today is the ELISA (enzyme-linked immunosorbent assay, also referred to as “EIA”). If this test is negative, the second layer of confirmatory testing is not needed. If the ELISA is reactive or positive, the second layer of tests used to confirm the results at a laboratory are either the Western Blot, the RadioImmunoPrecipitation Assay (RIPA) and the ImmunoFluorescence Assay (IFA). These are referred to as confirmatory tests. The world of testing is changing so it may be that a combination of rapid tests will soon replace these more Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling conventional methods of confirming the initial test result. Several other assays for HIV antibody are being tested in different settings in the United States and elsewhere, but the ELISA and its confirmatory assays are still the most commonly used with conventional testing. These tests require two sessions since the specimens are usually sent to an off-site lab and the results can take 1-2 weeks. If the ELISA is negative, there is no confirmatory testing done. If the ELISA result is positive, confirmatory tests are automatically performed. Rapid Testing: There are many rapid HIV tests that have been approved by the FDA. The rapid HIV test takes 10-20 minutes and the client can get their test and results in one visit. However, the rapid test is only a screening test (an ELISA), and therefore requires a reactive or preliminary positive result to be followed up with an additional confirmatory test. Rapid tests are usually done using either a finger stick or an oral swab. Because it is a screening test, it can have false positive or false negative results. In some areas, the initial reactive result is getting confirmed with additional rapid tests instead of the Western Blot or IFA/RIPA. HIV-2: In 1986 a second type of HIV called HIV-2 was isolated in AIDS patients in West Africa. HIV-2 is very similar to HIV-1 but seems to develop more slowly and be milder than HIV-1. Not all of the HIV tests are able to detect HIV 2 as well. The most common rapid test (OraQuick Advance) also tests for HIV-2. HIV-2 infections have been predominantly found in Africa.6 6. WHAT ARE THE POSSIBLE HIV TEST RESULTS AND WHAT DO THEY MEAN? WHAT IS THE WINDOW PERIOD? HIV Results: An HIV antibody test can be positive, negative, or inconclusive or indeterminate. A confirmed positive result means that your body produced antibody and you have HIV. A negative test either means that you are not infected OR you are infected but it is too soon after infection and your body hasn’t had time to produce the antibody to HIV yet. An inconclusive or indeterminate test can happen either because something in the blood triggered a positive test in the first layer of screening tests but could not be confirmed OR you may be in the process of seroconverting from negative to positive. Some things that can cause an indeterminate result include auto immune disorders, multiple subsequent pregnancies, or a current syphilis infection. In instances where a person repeatedly gets an indeterminate result, it would be recommended to get a viral load test which tests for the virus and not the antibody. Window Period: The window period is the time between getting infected with HIV and the body producing antibodies which are detectable with testing. Statistics show that many infected people develop antibodies within 2-12 weeks. It can take as long as 6 months. In California, most professionals in the field of HIV still say that the window period is 3-6 months and allow the client to determine whether they want to test after 3 or 6 months or both. This means that if possible, clients are encouraged to get tested for HIV 3-6 months after their last risky contact. Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling 7. WHAT IS THE DIFFERENCE BETWEEN CONFIDENTIAL AND ANONYMOUS HIV TESTING IN CALIFORNIA? Confidential testing: In confidential testing programs, the client has a chart and their name can be matched with their test result. In confidential testing programs, clients must give informed verbal consent before they can be tested. As of January 2008, in California a separate HIV consent form is not needed. HIV testing can be included in a general medical consent form. If a test result is positive, the clients name will get reported to the health department and the State Office of AIDS. In a confidential setting, where a client’s name and address are usually known, it is possible to offer follow-up after HIV antibody testing with further counseling and intervention. Confidential testing programs are part of larger service agencies (for example, family planning clinics, rural health clinics, maternal-child health clinics, STD clinics, Jails, drug and alcohol treatment, and Indian Health Service facilities). Clients come to the agency for many different reasons, and HIV antibody testing is rarely the concern that brings them there. Anonymous testing: At anonymous test sites, no identifying information —only a number— can be matched with a client’s test result. Consent for the HIV test is informed but not written (written consent would violate anonymity). In both settings, clients should be 12 years or older (13 years if using an oral test (OraSure)) and of sound mind, should fully understand the risks and benefits of the test, and should choose to be tested freely, not through coercion. If a test is done anonymously and is positive, there is no reporting of the result to the state. Follow-up is more difficult with anonymous testing because there is no locating information on the client, and anonymous sites are usually not funded to provide follow-up services. Alternative test sites (ATS) are “dedicated” facilities and their main or only reason for existing is to provide the HIV antibody test anonymously. Clients come to the test site voluntarily and specifically to be tested for the HIV antibody. Anonymous testing is not available in most states and may not be available in California in the future. 8. WHAT IS THE CONNECTION BETWEEN DRUG AND ALCOHOL USE AND HIV RISK BEHAVIORS? Exposure to HIV-infected blood through the sharing of needles in injection drug use is one of the most common causes of HIV transmission in the U.S. today. Other kinds of recreational drug use can also lead to HIV risk behaviors. For example, when a person has used alcohol or other drugs, he or she may be • less inhibited and more likely to engage in unsafe sex or unsafe needle use. This may include exchanging drugs for sex. • less capable of using condoms for safer sex or lose resolve to abide by safer sex guidelines. Alcohol is often considered a “soft drug” and has not traditionally been seen as an HIV-related drug. However, alcohol is known to have a disinhibiting effect, even in relatively small amounts. Alcohol also impairs fine motor coordination and judgment. As with recreational Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling drug use, these factors can lead to attitudes, beliefs, or disabilities that contribute to the practice of HIV risk behaviors: feeling like it won’t matter if you engage in a risk; believing there is no chance of becoming infected; finding it difficult to use condoms or other safer sex techniques; changing previously made decisions not to engage in risky activities; or finding it easier to “slip” into risky behaviors. It is important to remember that social, environmental and cultural factors may also contribute to the intensity and type of disinhibition a person feels when using alcohol or drugs. The likelihood that a mildly inebriated person will take HIV-related risks can be significantly increased by these factors. 9. WHAT IS THE CONNECTION BETWEEN SEXUALLY TRANSMITTED DISEASES (STDS) AND HIV? WHAT ABOUT TB AND HEPATITIS C? Sexually transmitted diseases: A sexually transmitted disease (STD) is any disease acquired through sexual contact. Since HIV is a virus that can be transmitted through sexual contact, it is a sexually transmitted disease. If an individual has a sexually transmitted disease other than HIV, he/she is at increased risk for HIV infection. If you have chlamydia, you are 3-5 times more likely to get infected with HIV. In addition, the sores, blisters, rashes or other tissue changes that result from infection with an STD may provide a way for HIV to enter the body. In women, STDs other than HIV increase the number of HIV target cells (CD4+ cells) in cervical secretions and thus increase HIV susceptibility in women who have HIV-infected sex partners. Tuberculosis7: An estimated 10-15 million Americans are infected with TB bacteria, with the potential to develop active TB disease in the future. About 10% of these infected individuals will develop TB disease. Tuberculosis (TB) is an infectious disease that is spread from person to person through bacteria in the air. TB usually affects the lungs, sometimes causing the following symptoms: a bad cough that lasts longer than two weeks a pain in the chest, or the coughing up of blood or sputum (phlegm from deep inside the lungs). People infected with HIV are more likely to get infections such as tuberculosis because HIV infection weakens the immune response to other viruses, bacteria, and fungi. People dually infected with HIV and TB have a 100 times greater risk of developing active TB disease and becoming infectious than those who are not HIV-infected. Individuals co-infected with HIV and TB often face the complications that can occur when taking HIV medications with the drugs commonly used to treat TB. Hepatitis C (HCV)8, 9 is another virus found in the blood that is transmitted mostly through blood to blood contact. Some people will recover from HCV within about 6 months after getting infected but most people will remain infected. These people have what is referred to as chronic HCV which over time will cause serious damage to the liver. HCV is found in 80 percent of people with HIV who have ever injected drugs and is similar in several ways to HIV. Both viral diseases can have long periods between infection and the appearance of clinical symptoms. Like HIV, HCV is spread through blood products, sharing needles, and the failure to use precautions in medical settings to prevent exposure to blood and other potentially infectious fluids. Unlike HIV, HCV can live a longer time outside of the body. Some studies Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling say it can live up to 4 hours outside the body and others say up to 3 weeks. While HCV can be sexually transmitted, this appears to be an unlikely route unless there is an exchange of blood. It has been suggested that people co-infected with HIV and HCV have a more rapid progression to liver disease. Co-infection of HIV and HCV can be challenging because the HIV medications can be difficult for the liver to process. 10. WHAT IS THE IMPORTANCE OF DISCUSSING DOMESTIC VIOLENCE IN AN HIV COUNSELING SESSION? WHAT ABOUT SEXUAL ABUSE? Domestic Violence: Abuse in a relationship, or domestic violence, is any pattern of behavior that is used to dominate, coerce, or control another person. Domestic violence occurs in all communities, regardless of race, class, ethnicity, ability/disability, age, sexual orientation, religion, education or lifestyle. a. In California, in 2006 alone, there were 176,299 domestic violence related calls for assistance to law enforcement agencies. 80,946 of the calls involved weapons.10 b. It is estimated that every year, spousal assault occurs in one out of six families in the United States. c. It is estimated that one million women per year are assaulted by their intimate partners.11 d. On average, more than three women are murdered by their husbands or boyfriends in this country every day.12 e. There were 3,319 reports of domestic violence in LGBT relationships in 2007.13 For some batterers, HIV disease may be used as an excuse for domestic violence. In addition, violence may occur when a lover, family member, or roommate finds out about a person s HIV status. The user may threaten to reveal the victim’s HIV status to others, threaten to leave a partner who is sick, refuse to wear a protective barrier during sex, force or withhold sex based on HIV status of the partner, or humiliate or blame the partner for HIV infection. In assessing the impact of an individual’s HIV status on violence in a relationship, it is important to consider: the abuse survivor’s knowledge and feelings about his or her own HIV status; the abuser’s knowledge and feelings about his or her HIV status; the health status of the abuse survivor; and the health status of the abuser. Identifying whether a client is a victim or perpetrator of domestic violence impacts on many aspects of the counseling session, such as: a. Whether or not the client will be compliant with the counselor’s recommendations, e.g., notifying the partner if the clients tests HIV positive, or having the ability and making the choice to engage in safer sex. b. The client’s life may be more at risk from domestic violence than from testing HIV positive. The counseling session is a good opportunity to screen for possible partner abuse that may be associated closely with the client’s HIV status. If the client is at Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling risk for being a victim of severe abuse, an appropriate referral can be made that could possibly save the client’s life. c. If the client is an abuser to a partner, the client could be receptive to getting help in dealing with anger over the client’s or the partner’s HIV status and associated issues. So this situation presents an opportunity to refer the client to an anger management group or a batterer treatment program. In sum, asking the client about domestic violence can provide the client with the opportunity to discuss form of battering or sexual abuse which may impact on the client’s behavior when he/she leaves the counseling session. It also impacts on how the counselor might approach risk reduction and partner notification and to the referrals provided. And it could save a life. Childhood Sexual Abuse: Having a history of childhood sexual abuse puts someone at 6 times the risk for HIV. People who have suffered sexual trauma are more likely to abuse drugs and/or alcohol and they are more likely to engage in high risk sex (multiple partners, sex addiction, under the influence, etc.). If reviewing a client’s sexual history, it is important to ask about past childhood sexual abuse. 11. WHAT IS IMPORTANT TO KNOW ABOUT HIV+ WOMEN WHO ARE PREGNANT? This is the best news in the HIV epidemic: Perinatal HIV transmission is Avoidable! From the beginning of the epidemic, women with HIV who were pregnant would infect their babies about 25% of the time. Now, there are treatments available for pregnant women and for the infants after birth which bring this statistic(25%) down to less than 1%. Perinatal transmission can occur in three ways: • In the uterus during pregnancy (blood) • During birth (blood and genital secretions) • After birth (breast milk) Rates of HIV transmission from mother to infant in the U.S.: • 25% without any treatment during or after pregnancy • 9-13% with treatment only during labor or at birth • 0.9% or less with antiretroviral therapy during pregnancy and labor, and the AZT given to the newborn, if maternal viral load <1000 at delivery. In the United States, perinatal transmission is extremely rare….but it still happens more frequently in developing countries where treatments are not available and breastfeeding is safer than other food sources, despite risk of transmission. Factors that increase the likelihood of perinatal transmission of HIV include: • Low CD4 count in mother • High viral load in mother Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling • • • • • • Drug use by mother Active genital herpes or other sexually transmitted infection during labor Prolonged rupture of membranes. Infected “bag of water” during labor and delivery Premature delivery Breastfeeding Pregnancy does not increase the viral load of the woman. Often though the CD4 count may be slightly lower in pregnancy but this is a result of increased blood volume which is a physiologic change of pregnancy. If a mother’s viral load is less than 1000 at the time of the delivery, the rate of HIV transmission is the same with a vaginal delivery as with a cesarean delivery. In California, it is mandatory to offer HIV testing to a pregnant woman. In some other states, mandatory testing is required of all pregnant women. 12. IF SOMEONE TESTS POSITIVE FOR HIV, WHAT HAPPENS NEXT? A positive HIV antibody test is scary news but it’s not a death sentence. As better therapies continue to be developed, it’s entirely possible to live out a normal lifespan after testing positive. The key to living a long life with HIV is seeking out the different types of health care and suitable therapies. A positive result is an important medical message that may help you save and extend your life. Whether you took the test or not, sooner or later you would have learned of your HIV status. Here are some messages to give to clients testing positive: o o o o o o o o o HIV has become a chronic manageable disease People can live healthy with HIV, many take medications It is important to have medical follow-up with a doctor knowledgeable about HIV. We will help you get connected to the best HIV doctors and support systems in the area Your first appointment with an HIV doctor will involve more tests to see what shape your immune system is in, and see how much HIV is in your body. There is support for you. We can provide referrals of groups and organizations that serve people living with HIV. Many people are living with HIV and living happy, healthy lives. You are not alone. We have referrals and other written materials for HIV+ people available in case you want more information. It will be important to identify people in your life who can provide emotional support in the journey ahead living with HIV. After testing positive for HIV, one of the first things a person should do is go see a doctor who specializes in HIV care. The HIV specialist will do a variety of tests to determine how much virus is in the body, and what shape the immune system is in. The following tests are the most common tests used to assess the health of the immune system: CD4+ cell count: This test measures the number of CD4+ cells present in a specific amount of blood (test result expressed as a number value), and is correlated to some extent with Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling progression of disease in HIV infection. A “normal” CD4+ cell count is in the range of 500 to 1500 per micro liter of blood. People with illness, including HIV infection, might have lower readings. Many treating physicians will start antiviral and anti-opportunistic condition prophylaxis treatments at a CD4+ cell count of 300. A CD4+ cell count below 200 alone results in an AIDS diagnosis Viral load test: This test measures the amount of virus in the bloodstream. Results are strongly associated with the rate of HIV disease progression and can indicate a continuum of increased progression risk. HIV viral load levels appear to be more predictive of progression than does CD4+ count, particularly in asymptomatic patients. It is important to offer culturally appropriate resources for those testing positive for HIV. This means paying attention to the gender, ethnicity, sexual orientation, etc of each client. It is recommended that a resource list be available. There are many forms of HIV treatment that are culturally appropriate and offer support to those living with HIV. It is key to check periodically to make sure that the services are still accurate. It is also important to ensure confidentiality when referring someone for services. • • • • Don’t disclose the name of the client without prior consent. Talk to the client and let him/her know what to expect when they go to a place you refer them, (e.g. what kind of documents are they going to need to bring, details about the process, languages spoken, hours of operation, etc.) If possible, make the appointment for the client and/or help them think through how they would get to the agency where they are being referred. Try to help client identify who they could talk to for support and guidance once they leave your clinic (friends, family, teacher, counselor, etc.). Remember, everyone is different and will have a different way that their body responds to HIV and a different way that they want to take care of their physical, spiritual, and mental health. Reference Materials 1 Adapted from: “Building Quality HIV Prevention Counseling Skills: The Basic 1 Training A training Curriculum for Counselors working in the context of HIV Counseling and Testing Trainer’s Manual” (1st Draft of Sixth Edition, The AIDS Health Project at UCSF in collaboration with the Centers for Disease Control and The California Department of Health Services, State Office of AIDS, HIV Education and Prevention Services Branch. August 9, 2004. 2 Centers for Disease Control and Prevention. “Update: Universal precautions for prevention of transmission of Human immunodeficiency Virus, hepatitis-B, and other blood borne pathogens in health-care settings”. MMWR 1988; 37:377-382387- 88.1. 3 HIV and Its Transmission CDC HIV/AIDS Fact Sheet -National Center for HIV, STD and TB Prevention, 9/22/03 4 Centers for Disease Control and Prevention, Department of HIV/AIDS. “Human Immunodeficiency Virus Type 2 Fact Sheet.” October 2009. 5 A Rapid Review of Rapid HIV Antibody Tests, Greenwald et al. Current Infectious Disease Reports 2006, Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling 8:125-131 6 HIV and Its Treatment: What you should know, Health Information for Patients, September 23, 2005 Fact Sheets AIDS INFO, A service of the U.S. Department of Health and Human Services. 7 Centers for Disease Control and Prevention, Department of HIV/AIDS. “The Deadly Intersection Between Tuberculosis and HIV: Fact Sheet.” November 1999. 8 The Deadly Intersection Between TB and HIV, CDC HIV/AIDS Fact Sheet, 11/99 9 Co infection with HIV and Hepatitis C Virus, CDC HIV/AIDS Fact Sheet 11/05 10 California Partnership to End Domestic Violence, “DVAM 2007 Statewide Press Release.” September 2007. www.cpedv.org/docs_2007/DVAM_2007_STATEWIDE_PRESS_REALEASE.pdfe 11 Bureau of Justice Statistics Data Brief. “Intimate Partner Violence 1993-2001.” February 2003. 12 Bureau of Justice Statistics Data Brief. “Intimate Partner Violence 1993-2001.” February 2003. 13 . “National Coalition of Anti-Violence Programs. “Lesbian, Gay, Bisexual and Transgender Domestic Violence in the United States in 2007.” 2008. http://www.avp.org/publications/reports/documents/2007NCAVPDVREPORT.pdf Center for Health Training/California 2009 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling The Six Steps of an STD/HIV Risk Reduction Counseling Session 1. Introduce and orient client to session 2. Identify client’s personal risk behaviors and circumstances 3. Identify safer goal behaviors 4. Develop client action plan 5. Make referrals and provide support 6. Summarize and close session Definitions Risk Behaviors: Transmission These are the sex or drug-related actions that in and of themselves can result in transmission of STDs, HIV or viral Hepatitis. Safer Goal Behaviors: Prevention These are specific actions that in and of themselves directly prevent or greatly reduce STD/HIV transmission and that the client is willing to try to adopt. Action Steps: Specific incremental (baby) steps a client can take to help adopt a safer goal behavior Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Step 1: Introduce and Orient Client to Session The purpose of Step 1 is very basic: to introduce yourself and describe the purpose and duration of the session and respective roles. Introduce yourself as a health counselor. Describe the purpose of the session, the expected duration, and what you hope to achieve in the session. Seek consensus from the client as to the objectives of the session and agreement to maintain this focus throughout the session. Some clients may be at the clinic specifically requesting an STD/HIV test, while others may not be aware of their risk. During the session, be polite, professional, and display respect, empathy, and sincerity to the client. Become involved and invested in the process and convey an appropriate sense of concern and urgency about the client’s STD/HIV risk behaviors. Seek to deal with the client’s concerns. Suggested introductory statements or open-ended questions: • Hi, my name is ____________and I will be your ____ counselor today. • We will spend about ______ minutes together talking about _____________ • How are you doing today? • What has been your experience with testing for STDs or /HIV in the past? Informed Consent Issues: • Before we start, I want to talk to you about our policy on confidentiality. • What have you heard about anonymous vs. confidential testing? • What do you know about this test? (tests for antibodies and not virus) • A positive means that HIV was found in your blood, a negative means that it was not found at this time- explain the window period. • Explain your agency testing procedure (i.e. type of test, how long for results, etc.) • I have a form that I have to fill out for our funding so I may ask you some questions at the end of our session Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Step 2: Identify Client’s Personal Risk Behaviors and Circumstances With the client, identify the specific behaviors that place him or her at risk for STD or HIV. Some clients may need to be informed of their risk. Focus the client on specific behaviors, situations, and partner encounters that contribute to his or her risks. Attempt to build from the problem (symptoms, referral, etc.) and the reasons that brought the client to the clinic. Establish an atmosphere that conveys a collaborative and creative exploration of the relevant issues. Risk behaviors and their context: Identify the sex or drug-use behaviors that can result in transmission of STD or HIV. Identify the circumstances of those risk behaviors. Suggested open-ended risk assessment questions: • • • • • • • • • • • • • • • • What brought you to the clinic today? What makes you believe that you might be at risk for STD/HIV? What are you doing in your life that might be putting you at risk for STD/HIV? When was the last time that you put yourself at risk for STD/HIV? When you have sex, do you generally have sex with men, women or both? When you have sex, do you generally have anal sex, oral sex, vaginal sex or a combination? How many different people do you have sex with? How often? When was the last time you had unprotected sex? What types of sexual behaviors are you engaging in? Are your partner(s) men, women or both? When do you have sex without a condom? Have you been tested before? If so, when and why? What were the results? If you were infected in the past, how do you think you may have been infected? How often do you use drugs or alcohol? How does this influence your STD or HIV risk behaviors? What is your experience with shooting up drugs? How often do you do this? Do you ever share needles? When was the last time? What was happening then? What are the riskiest things that you are doing? What are the situations in which you are most likely to be putting yourself at risk for HIV or STD? Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Step 3: Identify Safer Goal Behaviors Behaviors that directly prevent or reduce transmission of STD/HIV. Reinforce the client’s previous STD or HIV risk-reduction efforts, if any. Identify specific safer goal behaviors that the client is willing to try to adopt. Suggested open-ended questions to explore participant STD/HIV risk-reduction attempts and safer goal behaviors: • • • • • Is there a specific time that you remember where you were able to practice safer sex (used needles safely, used a condom)? What did you do? What made it possible for you to do it? How was that for you? What are you presently doing to protect yourself? What could you imagine doing to reduce your risk of HIV or STD? What do you see as advantages or good things about adopting __________ (the safer behavior)? What do you see as disadvantages or bad things about adopting ___________ (the safer behavior)? ABCD approach: • • • • • • • • • • • What has your experience been being abstinent in the past? What would it be like for you to consider abstinence again? Given that you are sexually active right now, how do you handle the issue of monogamy or having more than one partner? What would it be like for you to talk to your partner about monogamy or reducing the number of other partners? What would it be like to talk to your partner(s) about getting tested? What is your agreement with your current partner about having other partners? What has been your experience having only one partner? What has been your experience using condoms with your partners? What would it be like for you to only have sex using condoms with partners? What has been your experience with using needles? What would help you to use needles more safely? Suggested statements reinforcing positive change already made: • • It’s great that you are here! • You’ve taken the first step; which is a significant piece. The fact that you are concerned about STD/HIV is important. • It is important that you recognize that you’ve really been thinking about reducing your STD/HIV risk. • Look at how much you’ve already done to protect yourself (be specific). Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Step 4: Develop a Personalized Action Plan Help the client establish a personal plan to reduce his/her risks of STD/HIV. The plan should be realistic yet challenging, and should address the specific behaviors identified by the client during the risk assessment phase of the session. It should incorporate the client’s previous attempts, perceived personal barriers, and perceived personal benefits to reducing STD/HIV risk. Discuss existing barriers to adopting the new behavior and what benefits there are. Identify concrete, incremental steps the client can start to take to achieve his/her goals. Discuss how the client will put the plan into operation, using specific and concrete steps. Establish a back-up plan. Confirm that this plan is personalized and acceptable to the client. Solicit questions and reinforce the client’s initiative in agreeing to negotiate a risk-reduction plan. Suggested open-ended questions to explore STD/HIV risk reduction attempts and questions to explore personal barriers and benefits to adopting safer behaviors: • What makes it easy (what situations make it easier for you) to ___________ (the safer behavior)? • Who (individuals or groups) would approve or support you in adopting ___________ (the safer behavior)? Suggested open-ended questions to use when assisting the client to develop a personal risk-reduction plan: • What one thing can you do to reduce your risk now? • What can you do that would work for you now? • What could you do differently now? In the future? • How would your sexual/drug use practices have to change for you to stay safe? • Now that you’ve identified these steps that you could take, how can you go about making these things happen? • What could you do to make it easier to take these steps? • Who would help to support you in taking these steps? • When do you think you will have the opportunity to first try this? • How realistic is this plan for you? • What will be the most difficult part for you? • What might be good about changing this? • What will you need to do differently? • How will things be better for you if you __________? • How will your life be easier or safer if you change __________? • How would your drug practices have to change to stay safe? Suggested statements supporting and reinforcing the client: • You have really done something good for yourself in putting this plan into place. • You’ve taken very positive steps today to help meet some important personal goals. Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Step 5: Make Referrals and Provide Support Identify client peer and community support for STD/HIV risk reduction, as well as provide referral to professional services directed at addressing specific issues the patient may have identified. Steps for Effective Referrals • • • • • • • Help client define priorities Discuss and offer options Offer referrals Refer to known and trusted services Assess client response to referral Facilitate active referral Develop a follow-up plan Suggested questions: • We’ve talked about a lot of issues today. Which of the things we’ve talked about would you like more help with? • Would you like to talk with an individual counselor about __________ (issue that has been raised)? Would you be interested in a support group? • Is there a particular kind of support or service that you would be willing to consider? Step 6: Summarize and Close Session Briefly summarize issues and plans that have been discussed and identify the next steps that the client has agreed to take. Assist with any necessary followup appointments. Encourage and support client in progress. • • • Identify major points, including feelings that have been discussed, and tie them together. Formulate a concise statement of client’s issues and decisions, including content, feelings, and connection between them. Check that client “owns” the summary. Signs of ineffective summarizing, closure: • • • Client balks, says you have missed the main or major point(s) Client does not leave Client leaves without acknowledging an understanding of what has been discussed Adapted from Fundamentals of HIV Prevention Counseling; CDC 1998 – Center for Health Training 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling FAMILY PLANNING COUNCIL – Definitions of HIV Related Services 2008 Prevention Counseling Prevention Counseling Servicessession is a discussion with a client that focuses on the A Prevention counseling client’s own unique circumstances and needs. Its goal is to assist the client in A Prevention Counseling sessionthat is aput discussion a client thatunintended focuses on the client’s own identifying behaviors her/himwith at risk for an pregnancy andunique circumstances and needs. Its goal is to assist the client in identifying behaviors that put her/him at risk for an acquiring an STD or HIV. In addition, prevention counseling should assist the unintended pregnancy and acquiring an STD or HIV. In addition, prevention counseling should assist the client in supporting positive health behaviors in which she/he is already client in supporting positive health behaviors in which she/he is already engaged (e.g.; the use of engaged (e.g.; the use monogamous of contraception, condoms, abstinence, monogamous contraception, condoms, abstinence, relationship, seeking routine reproductive health care). relationship, seeking routine reproductive health care). A prevention counseling session can be delivered at each client visit and should be coded each time that it is A Prevention prevention counseling session bedocumented delivered in at aeach client and should of the provided. counseling should also becan clearly client’s chart visit so that continuity be coded each time that it is provided. Prevention counseling should also be behavior-based counseling can be addressed. clearly documented in a client’s chart so that continuity of the behavior-based You have counseling provided a Prevention can be addressed. Counseling Session when all 3 of the following criteria have been met: 1. risk assessment, including a discussion of Client YouDiscussed/updated have provided aa client Prevention Counseling Session when allof3the of ABCs the following Centered Disease Prevention and the identification of client personal risk behaviors and criteria have been met: circumstances. Assessment questions can include: “Have you abstained from having sex as a way of preventing STDs, HIV and unintended pregnancy?” “Howthrough many partners have you had in the 1. Discussed/updated a client risk assessment the identification last 3 months?” “Did you use condoms the last time you had sex?” “What do you want to do to of client personal risk behaviors and circumstances. Assessment protect yourself from HIV, STD’s and unintended pregnancy?” questions can include: “What do you want to do to protect yourself from HIV, STD’s and unintended pregnancy?” “Did you use condoms 2. Explored what the client would like to do to: the last time you had sex?” “How many partners have a. Continue to support positive health behaviors (eg.; existing useyou of had in the last 3 months?” contraception/condoms) 2. Reduce Explored what the would at like to(eg.; do to: b. behaviors thatclient put her/him risk multiple sexual partners, not using a. Continue to support positive health behaviors (eg.; existing use of contraception/condoms) contraception/condoms) b. Reduce that her/him at risk (eg.; 3. Discussed with client thebehaviors development of put specific and concrete steps multiple to achievesexual or maintain using contraception/condoms) positive healthpartners, behaviorsnot (e.g.: abstaining from sex, use of birth control and condoms, mutually and b,c,d and and econcrete as needed: steps monogamous relationship). This should include a. always 3. Discussed with client the development of specific a. Client identifies least 1 way she/he can continue to support positive behaviors or to to achieve or at maintain positive health behaviors (e.g.: usehealth of birth reduce behaviors that put her/him at risk right now (e.g.; limit their number of sexual control and condoms, mutually monogamous relationship). This should partners, contraception/condoms) and b,c,d and e as needed: includeuse a. always b. Client requests/receives factual information/education a. Client identifies at least 1 way she/he can continue to support c. Clients chooses to be tested for STDs/HIV pregnancy positive health behaviors or toorreduce behaviors that put her/him d. Client chooses to be provided with contraception/condoms, emergency contraception at risk right now (e.g.; limit their number of sexual partners, use e. Client requests/receives referrals or follow-up appointment contraception/condoms) f. Others as identified by client or counselor b. Client requests/receives factual information/education c. Clients chooses to be tested for STDs/HIV or pregnancy Related Prevention Counseling Codes: d. Client chooses to be provided HIV Prevention Counseling: 941 with contraception/condoms, HIV Resultsemergency Counseling contraception 943 e. Prevention Client requests/receives referrals Pregnancy Counseling: 946 or follow-up appointment f. Others as identified by client or counselor STD Prevention Counseling: 918 Prevention Counseling Codes: Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling FAMILY PLANNING COUNCIL – Definitions of HIV Related Services 2008 HIV Testing HIV Prevention Counseling: 941 Pregnancy Prevention Counseling: 946 STD Prevention Counseling: 918 HIV Test Codes: HIV - 1 Rapid Test (blood) 821 HIV Testing - 1 Rapid Test (oral swab)is a prerequisite 822 Note: HIV Prevention Counseling to providing HIV Testing HIV - 2 Rapid Test (oral swab) HIV - 2 Rapid Test (blood) HIV -Test Codes: HIV 1 OraSure Test (oral swab) HIV 1 - Serum: HIV - 1 Conventional Serum871 HIV - 2 Conventional Serum HIV 1 - Oral: 824 823 820 824 871 872 HIV 1 - Rapid (Blood): 821 HIV Results Counseling HIV antibody test results must be provided to a client in person. Knowledge of HIV status is important information that a client can use to explore behaviors that enable them to stay HIV negative or manage an HIV positive test result. HIV Results Counseling minimally includes: 1. 2. 3. 4. Determination of client readiness to receive test result Explanation of Test Result and ensure that client understands what result means Renegotiation or reinforcement of existing plan for reducing risk, considering client’s HIV status Linkages to HIV Case Management Services, partner management and other related services as needed HIV Results Counseling Code: 943 Documentation of the Provision of “Prevention Counseling” Services Details of a Prevention Counseling Session should be clearly documented in a patient’s chart each time that it is provided. This will help to ensure that continuity of the behavior-based counseling can be addressed. Examples of chart documentation include: 1. Discussed/updated a client risk assessment, including a discussion of the ABCs of Client Centered Disease Prevention a. Patient states uses condoms for protection against STD’s/HIV and unintended pregnancy but did not use a condom last time she had sex b. Patient has had 2 sexual partners in last 3 months, inconsistently uses condoms c. Patient has been in a mutually monogamous relationship for 1 year 2. Explored what the client would like to do to: a. Continue to support positive health behaviors • Patient would like to continue to use Depo-Provera b. Reduce behaviors that put her/him at risk • Patient would like to use condoms with Depo-Provera 3. Discussed with client the development of specific and concrete steps to achieve or maintain positive health behaviors a. Patient will continue use of Depo-Provera and will use condoms consistently with sexual partners b. Patient plans to reduce their number of sexual partners c. Patient requests emergency contraception and birthincontrol pills Health Roadmap to Integration: HIV Prevention Reproductive Tab 7: HIV Education and Counseling Family Planning Council / TRAINING 3 – August, 2009 Prevention Counseling Observation/Coaching Tool Site: ________________________________ Date: _________________________ Staff Name: ________________________ Evaluator: _____________________ Visit Type: __________________________ Step 1: Introduction • Introduce him/herself and role and purpose of session • Identify client’s reason for visit • Identify client’s primary needs and concerns for visit YES YES YES NO NO NO PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A Step 2: Help Client Identify Personal Risk Behaviors and Circumstances • Obtain/update client sexual history YES NO PARTIALLY N/A • Identify client risk factors for potential needs related to: o Unintended Pregnancy YES NO PARTIALLY N/A o Acquiring an STD/HIV YES NO PARTIALLY N/A • Discuss the ABCs of Client Centered Disease Prevention YES NO PARTIALLY N/A • Identify the circumstances that lead the client to engage in behaviors that put them at risk for: (i.e., with whom, where, how and when risk behaviors occur) o Unintended Pregnancy YES NO PARTIALLY N/A o Acquiring an STD/HIV YES NO PARTIALLY • Provided client with information as needed on: o Birth Control YES NO PARTIALLY N/A o STDs YES NO PARTIALLY N/A o HIV YES NO PARTIALLY N/A Step 3: Help Client Identify Goal Behaviors to Prevent Unintended Pregnancy and STDs/HIV • Identify and support client’s previous risk reduction efforts to o Avoid unintended pregnancy YES NO PARTIALLY o Avoid acquiring STDs/HIV YES NO PARTIALLY • Identify and explore ways client can reduce their risk of: o Unintended Pregnancy YES NO PARTIALLY o Acquiring STDs/HIV YES NO PARTIALLY Step 4: Develop Client Risk Reduction Plan to Achieve Goals • Help the client develop specific and concrete steps to reduce their risk of: o Unintended Pregnancy YES NO o Acquiring STDs/HIV YES NO • Confirm with client that the steps are reasonable and acceptable as they relate to: o Unintended Pregnancy YES NO o STDs/HIV YES NO • Offered the following services to client as appropriate: o Birth Control YES NO o STD Testing YES NO o HIV Testing YES NO Title X HIV Prevention Project Roadmap to Integration: HIV Prevention in Reproductive Health N/A N/A N/A N/A PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A PARTIALLY N/A 1-08 Tab 7: HIV Education and Counseling Family Planning Council / TRAINING 3 – August, 2009 Step 5: Make Follow-up Appointment and Referrals as Needed • Assessed need for o Follow-up Appt. o Referrals YES YES NO NO PARTIALLY N/A PARTIALLY N/A Step 6: Summarize and Close Session • Summarize and close session YES NO PARTIALLY N/A • Reviewed/Updated client contact information (may occur at beginning or end of session) YES NO PARTIALLY N/A Demonstration of Counseling Skills and Concepts • • • • • • • Offering options, not directives Open ended questioning Giving Information Simply Attending Focus on Feelings Setting boundaries Manage own discomfort HIV Counseling and Testing • Client was offered HIV Prevention Counseling • Client was offered HIV Testing YES YES YES YES YES YES YES NO NO NO NO NO NO NO PARTIALLY PARTIALLY PARTIALLY PARTIALLY PARTIALLY PARTIALLY PARTIALLY N/A N/A N/A N/A N/A N/A N/A YES YES NO NO PARTIALLY N/A PARTIALLY N/A Evaluator’s General Comments: _______________________________________________________________________________________ _______________________________________________________________________________________ Areas of Strength: _______________________________________________________________________________________ _______________________________________________________________________________________ Recommended Area(s) of Improvement: _______________________________________________________________________________________ _______________________________________________________________________________________ Were comments discussed with staff member YES NO Title X HIV Prevention Project Roadmap to Integration: HIV Prevention in Reproductive Health 1-08 Tab 7: HIV Education and Counseling Family Planning Council / TRAINING 3 – August, 2009 Prevention Counseling Observation/Evaluation for Family Planning Clinic Staff Instructions for Family Planning Staff Members The goal of this exercise is to assess the skill level of family planning staff in the delivery of a prevention counseling session to a client according to Family Planning Council guidance (see attached “Prevention Counseling” definition). It is also an opportunity to assess the use of some very basic counseling concepts and skills that should be employed during a prevention counseling session. An evaluator will observe a session between a client and a family planning staff member (nurse, clinician, counselor) with the patient’s consent. The evaluator will use the “Prevention Counseling Observation Tool” attached to assess staff performance related to the concepts listed on the tool. Feedback will be provided to the staff member at the close of the session. Feedback should include the positive elements of the session as well as comments on specific areas that may need to be strengthened. The performance appraisal is observed and assessed with a NO, YES or PARTIALLY response: NO: This rating applies to a counseling step, skill or concept that was not demonstrated. YES: This rating applies to a counseling, skill or concept that was demonstrated. PARTIALLY: This rating applies to a counseling step, skill, or concept that was observed, but could be improved. N/A= Not Applicable: This rating applies to a limited number of behaviors within the counseling steps, when they are inappropriate to attempt, are unnecessary, or do not apply to the counseling session’s progress. Additionally, please find on the back of this document a description of counseling concepts and skills that will be observed during the prevention counseling session. Title X HIV Prevention Project Roadmap to Integration: HIV Prevention in Reproductive Health 1-08 Tab 7: HIV Education and Counseling Family Planning Council / TRAINING 3 – August, 2009 Prevention Counseling Observation/Evaluation for Family Planning Clinic Staff Instructions for Evaluators Observation and evaluation of clinic staff in the provision of prevention counseling services to clients is a valuable way to assess performance. The goal of this exercise is to assess the skill level of family planning staff in the delivery of a prevention counseling session to a client according to Family Planning Council guidance. The observation form is designed to be completed after the evaluator has observed a session between a client and a staff member. When you provide feedback to the staff member you may want to identify the positive elements of the session as well as comment on specific areas that may need to be strengthened. To complete this form, circle a single rating for each item by indicating: NO: This rating applies to a counseling step, skill or concept that was not demonstrated. YES: This rating applies to a counseling, skill or concept that was demonstrated. PARTIALLY: This rating applies to a counseling step, skill, or concept that was observed, but could be improved. N/A= Not Applicable: This rating applies to a limited number of behaviors within the counseling steps, when they are inappropriate to attempt, are unnecessary, or do not apply to the counseling session’s progress. Additionally, please find on the back of this document a description of counseling concepts and skills that will be observed during the prevention counseling session. Title X HIV Prevention Project Roadmap to Integration: HIV Prevention in Reproductive Health 1-08 Tab 7: HIV Education and Counseling Family Planning Council / TRAINING 3 – August, 2009 The 6 Steps of Prevention Counseling 1. Introduce and orient client to session 2. Identify client’s personal risk behaviors and circumstances. 3. Identify safer goal behaviors 4. Develop client risk reduction plan 5. Make referrals and provide support 6. Summarize and close session Description of Counseling Concepts and Skills Counseling Concepts: Focus on Feelings Bring up, listen to, and respond to client’s feeling-level reactions, beliefs, and issues. Manage Your Own Discomfort Manage our own values when assisting clients I behavior change. Recognize our discomfort so that we keep it from becoming a barrier between our clients and us. Set Boundaries Set boundaries between our own roles and responsibilities and our clients’. Do not feel responsible for a client’s behavior and decisions or because we want to solve all of their problems. Counseling Skills: Open-Ended Questioning Questions that require more than a “yes” or “no” answer. Attending Physically showing the client that we are listening, which requires using positive nonverbal behavior. Offering Options, Not Directives Giving the client firm control over change decisions – by offering options rather than issuing directives. Giving Information Simply Use simple, non-technical words – be brief and to the point – address client needs specific to their concerns – saying, “I don’t know” is OK. We do not need to volunteer information about “HIV 101” if it is not appropriate to the client’s circumstances. Title X HIV Prevention Project Roadmap to Integration: HIV Prevention in Reproductive Health 1-08 Tab 7: HIV Education and Counseling HIV EDUCATION / INFORMATION / COUNSELING GUIDE Type When to use Routine (screening) Enhanced (risk-based) When a client receives a test as part of an annual routine screening, assuming the client has not been exposed to the HIV virus by having sex without a condom or by sharing needles, i.e., has not engaged in risky behavior. When a client has engaged in behaviors that put them at risk for HIV infection (e.g., having sex with someone without using a barrier method or sharing needles). Pre-Test Discuss: • The voluntary, confidential nature of testing – including written consent. • The test procedure. • How client will receive the result and method of follow up if client does not return for result. • How HIV is transmitted and risk factors, including ABCs of prevention. • The meaning of test result and “window period” (time for which a client who is actually HIV positive could still receive a negative test result). Discuss: • Personal risk behaviors. • How HIV is transmitted. • The voluntary, confidential nature of testing – including written consent. • The test procedure. • The meaning of test result and “window period” (time for which a client who is actually HIV positive could still receive a negative test result). • How client will receive the result and method of follow up if client does not return for result. • Risk reduction and infection prevention information, including ABCs of prevention. Post-Test Negative Test Result - discuss: • The meaning of a negative test result. • Reinforcement of healthy behaviors. • When to return for another test. • Referral services, if needed. Negative Test Result - discuss: • The meaning of a negative test result. • Reinforcement or re-negotiation of risk reduction plan. • When to return for another test. • Referral services, if needed. Positive Test Result - when client receives a preliminary positive or confirmed positive HIV test result: • Determine the client’s readiness to receive a result. • Interpret the result and ensure that the client understands what the result means. • If the result is a preliminary positive, discuss and arrange for a confirmatory test. • Assess the client’s immediate needs for medical, psychological and social supports. • Provide appropriate referrals for medical evaluation or treatment, and for other identified needs. • Discuss measures for the prevention of transmission of HIV • Discuss partner notification issues. • Schedule follow up appointment, if appropriate. Positive Test Result - when client receives a preliminary positive or confirmed positive HIV test result: SAME AS >>>>>>>>> Written materials Routine HIV Education / Information / Counseling may be supplemented by written materials that are culturally sensitive, appropriate to the client’s reading level, and in languages served at the site. Enhanced HIV Education / Information / Counseling may be supplemented by written materials that are culturally sensitive, appropriate to the client’s reading level, and in languages served at the site. Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Questions to Support Behavior Change • • • • • • • • • • • • What do you think about your risks for HIV? You seem nervous talking about this. Who do you know that's been tested for HIV? Based on what you’ve told me, you are at some risk for HIV. How can you bring this up with your partner? What's the first thing you'll say to your partner? Who can support you with this decision? Good for you! You’ve really given this some thought. So how has it been to use condoms some of the time? What would it be like to talk to your friends about this? How are you rewarding yourself for making this change? Who can help you stick with this change? centerforhealthtraining.org Questions to Support Behavior Change • • • • • • • • • • • • What do you think about your risks for HIV? You seem nervous talking about this. Who do you know that's been tested for HIV? Based on what you’ve told me, you are at some risk for HIV. How can you bring this up with your partner? What's the first thing you'll say to your partner? Who can support you with this decision? Good for you! You’ve really given this some thought. So how has it been to use condoms some of the time? What would it be like to talk to your friends about this? How are you rewarding yourself for making this change? Who can help you stick with this change? centerforhealthtraining.org Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Preguntas para respaldar los cambios de comportamiento · · · · · · · · · · · · ¿Qué piensa sobre sus riesgos de VIH? Se lo ve nervioso al hablar sobre esto. ¿A quién conoce que le hayan hecho un análisis de VIH? En base a lo que me dijo, usted corre cierto riesgo de VIH. ¿Cómo podría contarle esto a su pareja? ¿Qué sería lo primero que le diría a su pareja? ¿Quién lo puede apoyar con esta decisión? ¡Lo felicito! Usted de verdad lo ha estado pensado. ¿Cómo le ha ido con el uso de condones por un tiempo? ¿Qué le parecería hablar sobre esto con sus amigos? ¿Cómo se recompensa o premia a sí mismo por haber hecho este cambio? ¿Quién le puede ayudar a mantener este cambio? centerforhealthtraining.org Preguntas para respaldar los cambios de comportamiento · · · · · · · · · · · · ¿Qué piensa sobre sus riesgos de VIH? Se lo ve nervioso al hablar sobre esto. ¿A quién conoce que le hayan hecho un análisis de VIH? En base a lo que me dijo, usted corre cierto riesgo de VIH. ¿Cómo podría contarle esto a su pareja? ¿Qué sería lo primero que le diría a su pareja? ¿Quién lo puede apoyar con esta decisión? ¡Lo felicito! Usted de verdad lo ha estado pensado. ¿Cómo le ha ido con el uso de condones por un tiempo? ¿Qué le parecería hablar sobre esto con sus amigos? ¿Cómo se recompensa o premia a sí mismo por haber hecho este cambio? ¿Quién le puede ayudar a mantener este cambio? centerforhealthtraining.org Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling Disclosing Reactive Rapid HIV Results: 1. Disclose reactive/positive rapid test result State result in a direct and neutral tone “your rapid test result was reactive, which means something in your blood caused a reaction.” Note: Some people prefer to use the word positive or preliminary positive, however, keep in mind that for many clients, the word “positive” means you have HIV, and can be confusing. 2. Remind client of what this test result could mean o o o o o o o o o o o This is a screening test, which is the first layer of HIV testing We now need to do another blood test to confirm whether this result is accurate We send this blood sample to a lab. This second test is called a confirmatory test. This result may mean that you have HIV but we won’t know until the confirmatory test result is back. The confirmatory result sometimes comes back negative, sometimes comes back positive at this clinic (NOTE: tailor this message to your clinic and experience) If the confirmatory result is positive, it means you have HIV. If the confirmatory result is negative, it means that you do not have HIV, but something in your blood reacted with this first test. This is a screening test and one way to explain it is “its like getting called back on a mammogram, or like setting off the metal detector at the airport with your cell phone.” (doesn’t mean you have breast cancer, or that you have weapons) If the client is really anxious, review the percentage that might be false positives or negatives (know the statistics for the rapid test(s) you are using). Some clients will want to know what can trigger a discordant result or false positive. A few things that can trigger the test include multiple consecutive pregnancies, auto-immune disorders, and active syphilis. Review how long it takes to get back confirmatory results. Offer to make the client an appointment to come back in and get the confirmatory test results. Make sure you have current contact information incase they do not return. 3. Be prepared to discuss “What if I am really positive, then what”? Messages to give to the client: o o o o o o o o HIV has become a chronic manageable disease in the last few years. People can live healthy with HIV, many take medications It is important to have medical follow-up with a doctor knowledgeable about HIV. We will help you get connected to the best HIV doctors and support systems in the area Your first appointment with an HIV doctor will involve more tests to see what shape your immune system is in, and see how much HIV is in your body. There is support for you. We can provide referrals of groups and organizations that serve people living with HIV. Many people are living with HIV and living happy, healthy lives. You are not alone. We have referrals and other written materials for HIV+ people available in case you want more information. Center for Health Training 2007 Adapted from Building Quality HIV Prevention Counseling Skills: The Basic 1 Training UCSF AIDS Health Project and California State Office of AIDS 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling 4. If appropriate, talk about the most recent HIV risk behaviors o Ask about recent sexual/drug related HIV risk behaviors o Explain that if there has been recent risk, they may be in the process of seroconverting from negative to positive o Ask about sexual partner(s). o Ask about needle sharing, and other drug and alcohol related activity o Ask about the number of partners in the past year. o Ask about how often and what type of protection (if any) was used during sex. 5. Discuss strategies to reduce or avoid HIV risk behavior o o o o o Until confirmatory result is back, encourage clients to act as if they are positive What does this mean for the client? What behaviors would they want to change, if any? What is realistic for this client to change for the next week or two Ask whether the client has questions about how to reduce their HIV risk related to sex and drug or alcohol use. 6. Assess the client’s emotional state and feelings o Does the client seem anxious, relaxed or indifferent about this test result? o Check in: “How are doing with all of this”? o “What would be most helpful to you right now”? o Ask if they have anyone that they can share this information with. If not, do they want # to HIV hotlines or counselors? o Give them a card with your clinic phone # and write HIV Coordinator or your name on the card for direct contact name. Tell them to call if they have any questions. 7. Explore information and thoughts o Assess the client’s understanding of the test result again and clarify misconceptions. o You may need to repeat the information again o Review the possibility of the confirmatory coming back negative about it probably being negative, and the possibility that it may be positive. o Ask about other information that might be helpful while waiting for the confirmatory results. o Explain that you will be drawing blood today for the confirmatory test, and the result will take one week (whatever your clinic turnaround time is). 8. Identify sources of support o o o o o Assess the strength of the social support for this client Explore plans for and consequences of disclosure to others “Who knows that you are here today?” Help client decide who they might want to talk to about this Let them know what your/your staff availability is if they want to call you or your clinic again. Center for Health Training 2007 Adapted from Building Quality HIV Prevention Counseling Skills: The Basic 1 Training UCSF AIDS Health Project and California State Office of AIDS 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling 9. Review strategies for coping with the result- short and long term o Explore how they have handled stressful situations in the past- what are their coping mechanisms- talking to people, seeking spiritual counsel, being in nature, etc. o Assess what the rest of their day/night looks like: “What is your plan for later today after leaving here? Where are you going to go, how are you getting there, etc. o “How are you feeling about this week while you are waiting for your confirmatory result?” o Explain your availability during the waiting time, if applicable. o Ask what they will do if they are feeling anxious. o Assess who is in their support system that can be helpful during the wait. o Give out support numbers (AIDS hotline, suicide prevention, etc.) 10. Provide referrals and closure: o Provide reassurance and grounding to the client before they leave the session. o Provide any referrals for support while waiting for results o Provide other referrals related to HIV medical care and emotional support as needed. 11. Draw blood for the confirmatory test o Emphasize how important it is to come back for the confirmatory result. o Make an appointment for the result (if possible with you for continuity). Center for Health Training 2007 Adapted from Building Quality HIV Prevention Counseling Skills: The Basic 1 Training UCSF AIDS Health Project and California State Office of AIDS 2004 Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling How to Make an Effective Referral 1. Create a one-page listing of local agencies that you know and trust. Try to update this list every six months so that it is current. Try to give clients options on this list. This list might include information about safer sex groups, recovery groups, and HIV hotlines. 2. Stress the importance of a referral appointment. Explain how the referral can help the client. If the client just learned they have HIV, they may be in shock and need more assistance. Help them to understand the importance of medical follow up and emotional support. 3. Personalize the referral. Explain as much as you can about what to expect at the appointment. Give the client a clear idea of what will happen, who she will see, etc. Clients who speak languages other than English will need to know which agencies have staff that is bilingual. Review what questions will be asked and how long it will take. (E.g. “The first medical appointment after testing positive can take ____ because they are ____.” 4. Relieve the client's anxiety. Take the time to accept the person's fears, ask if there's anything that they are particularly concerned about. Encourage the person to call if there are any questions or further concerns that should arise. 5. Explain what costs the client can expect. This requires keeping your referral files up to date about fees and whether Medicare patients are accepted. 6. Explain how to prepare for the referral visit (if appropriate). Review any documents needed for the visit, special preparations needed, etc. Also tell clients what to say when they arrive for the referral appointment (I was referred to you by...). 7. Protect the client's confidentiality. Ask the client's permission to send medical records, etc. if needed. Only send information that is necessary to the referral problem and nothing more. 8. Repeat the referral information or provide written information. Write down the address, phone number and contact person's name. Write it down and ask the client to repeat it to you. If having a written referral might threaten a client’s safety (i.e. domestic violence), make sure you give them easy to remember information. 9. Document the referral in the client's record. Client was referred to... 10. Ask client for feedback about the referral. Sometimes we inadvertently send clients to places that have just recently changed services and the referral agency is different than what we have described to clients. Make sure you tell clients to come back if there is any problem with the referral you gave. 11. Follow-up on referrals given. Ask the client about the referral when they come back for their next visit. If you don’t ask follow up questions on the client’s next visit, you may Roadmap to Integration: HIV Prevention in Reproductive Health Tab 7: HIV Education and Counseling never get feedback.. HIV organizations get funded and lose funding regularly so it is really important to do this follow up with clients. NOTE: Identify staff who can call referrals every six months to make sure they are current. If the task is shared, it doesn’t take a lot of time. It is worth it not to send clients to a bad referral which will reflect poorly on you or your agency. ABOUT MAKING CLIENT REFERRALS Making needed and appropriate referrals for clients, particularly those who are HIV positive, is an essential component of HIV prevention services. As applicable to their individual needs, clients should have access to medical, prevention and social support services. Additionally, these services should be gender, culturally, linguistically and age appropriate HIV referral services can include: • Medical care and treatment • Partner counseling and referral • Family planning/reproductive health services • Substance abuse prevention and treatment • Mental health services, case management • Peer counseling and support • STD screening and treatment Key elements of the referral include: • Evaluating and prioritizing the client’s needs • Planning the referral • Facilitating Access to the referral service(s) • Documenting, tracking and following up to ensure that the client has accessed the needed service(s). It is essential that providers have a working knowledge of the referral resources in their community and develop collaborative relationships with organizations that are able to offer client support services. Most family planning providers are well acquainted with the resources in their community. Roadmap to Integration: HIV Prevention in Reproductive Health Roadmap to Integration: HIV Prevention in Reproductive Health Who, what, when, how, how many, where, tell me. Avoid technical terms and jargon. Demonstrate accurate and up-to-date information to limits of ability. Clearly state when information lacking, but offer to find out. Using open-ended questions Communicating at clients level Giving factual information Adapted from Center for Health Training Materials By Development Systems, Inc; 10/2006 Explore further, provide information, make referrals, and /or note on chart when issues / problems arise. What to Look For Addressing significant problems Comments Development Systems, Inc. Grant #U65/CCU724366-02 Take advantage of opportunities to affirm, such as “I’m glad you asked that,” “You’re on the right track.” Name Affirming client Name Display respect, empathy and sincerity. Polite. Seek out and deal with client concerns. Name Establishing rapport Name Display self-confidence, competence, dependability, preparation, integrity, appropriate seriousness. Convincingly convey commitment to confidentiality. Non-judgmental, objective about behavior and lifestyle. Name Demonstrating professionalism Communication Skills Activity Name SCALE: V = Very Good; G = Good; F = Fair; N = Not Observed; NA = Not Applicable Date: _________________________________________________________________________________ Clinic: ________________________________________________________________________________ Agency: _______________________________________________________________________________ Client – Centered Care / Communications Observation Form Tab 7: HIV Education and Counseling Roadmap to Integration: HIV Prevention in Reproductive Health Reinforcing healthy behaviors Helping client determine what risk-reduction behaviors she will make Increase client’s awareness of ability to change Increase client’s awareness of support systems Exploring options for alternative behaviors Helping client assess own needs Adapted from Center for Health Training Materials By Development Systems, Inc; 10/2006 Acknowledge small steps. Invite client to describe what she can / will do. Determine who client can talk with, where she can find support. Elicit from client her feelings about competencies and skills. Elicit ideas and thought from client regarding her willing ness to take steps. Ask open-ended questions to elicit client’s awareness of risk-taking behaviors. Assesses client’s current status, i.e., pre-contemplation, contemplation, preparation, action & maintenance. Body language and other communication skills do not alter when sexuality is discussed; open non-judgmental regarding range of sexual behaviors, values. Acknowledge client: uh-huh,, I see, really, head nods. Using non-committals Demonstrating comfort openly discussing sexuality issues Client - Centered Behavior Change Communication Skills Staging clients according to behavior change model / theory Pause, relax, don’t rush the client. Friendly, open gestures and facial expressions. Nonverbal and verbal communication congruent. Using appropriate nonverbals Using silence appropriately Restate client’s ideas, plans. Use active listening to check out feelings. Development Systems, Inc. Grant #U65/CCU724366-02 Reflecting content and feeling Client – Centered Care / Communications Observation Form Tab 7: HIV Education and Counseling Uses print materials, reproductive modes, birth control samples to emphasize information given verbally. Frequently encourages client to restate new information. Avoid overwhelming the client with information, focus on main points, offer information to client which is specific to individual client’s needs and situation. Build on previous discussion. Using support materials Checking out clients understanding Providing information specific to the client Providing information in a logical order Roadmap to Integration: HIV Prevention in Reproductive Health How to perform BSE correctly. Checks out client’s awareness of chosen method, pro’s and con’s. What to expect, clinic flow. What tests will be performed; how, why; and when to get results Simple clear information on how HIV/STDs are transmitted and how they are not. Simple, clear information on behaviors that the client can practice which will reduce the risk of infection. Breast self exam BC method overview Clinic information Lab work STD/HIV transmission STD/HIV prevention behaviors Adapted from Center for Health Training Materials By Development Systems, Inc; 10/2006 Basic understanding of how reproduction occurs; what body parts are affected by method usage. If nonreproductive, what is being affected by illness or injury. Anatomy and Physiology Information Provided Paint big picture first, then specifics. No rambling. Focussed. Development Systems, Inc. Grant #U65/CCU724366-02 Organizing session Giving Information Client – Centered Care / Communications Observation Form Tab 7: HIV Education and Counseling Roadmap to Integration: HIV Prevention in Reproductive Health Simple and clear information Specific information about sexual behaviors, and their relative risk Assess for D.V. or sexual coercion. Accurate, up-to-date information on community resources. Discuss family involvement with adolescents. Review benefits and concerns. Effects of HIV infection on the human body Human sexual behavior as it relates to risk-taking behavior Domestic Violence Family Involvement Adapted from Center for Health Training Materials By Development Systems, Inc; 10/2006 What the test is, where to get tested and what to expect. Development Systems, Inc. Grant #U65/CCU724366-02 HIV antibody testing Client – Centered Care / Communications Observation Form Tab 7: HIV Education and Counseling
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