European Spinal Cord Injury Federation
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 1
www.escif.org
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
congress supporter 2007
Index
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 2
www.escif.org
What is ESCIF ?
• ESCIF is the European federation of the national selfhelp SCI organisations working to safeguard and
promote the interests of people with SCI
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In our statutes we have defined the purpose of ESCIF:
• the formation of closer relationships between the individual
national SCI organisations
• The cooperation in relation to questions of integration into
society
• the exchange of information
• the promotion of co-operation among experts in the fields of
research and medicine, so as to improve the quality of life
of SCI sufferers
• the internal and external formation of opinion relating to
trans-national issues of SCI
• the safeguarding of the interests of the national SCI
organisations in relation to other organisations or the EU
ESCIF-ppt / Version 1.0 / 2006
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www.escif.org
What do we want ?
Vision
• Improve the quality of life for all people with SCI
throughout Europe
Mission
• Exchange of information and best practices among
members, in questions related to spinal cord injury
and their consequences.
• Be the unified voice for all organisations throughout
Europe which represent SCI sufferers.
• To have an association with credibility and influence
with the highest possible number of members
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ESCIF-ppt / Version 1.0 / 2006
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www.escif.org
Activities of ESCIF
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• To promote the exchange of information among
members ESCIF organises every year a congress at a
place of interest in relation with questions of SCI with
a specific theme on which presentations are made by
members or individual experts
• Information is also shared on a website including links
to the parent organisations, library of ESCIF
documentation and forum
• Special projects may be initiated by the Executive or
the Assembly of Delegates to collect information or
study special questions of interest. The results of
these projects should be used to make influence on
people, public organisations or the EU in order to
improve the quality of life of SCI sufferers.
ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 5
www.escif.org
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
congress supporter 2007
Index
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 6
www.escif.org
History
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• The idea is in the air since a meeting in Holland with
delegates from Belgium, Holland and Switzerland.
• For the 25th anniversary in 2005 the Swiss Paraplegic
Association decides to organise an European congress of the
SCI organisations.
• The 1st European congress is held in Nottwil in October 2005
with 12 countries present. Topics are: research paths, ways
of improving quality of life, personal budget, professional
integration, from bed to sport, … + discussing about the
opportunity of founding an European organisation.
• As answer is YES, statutes are prepared during winter 200506.
• A 2nd Congress is held in Nottwil in March 2006, with
foundation of the ESCIF by 16 countries as the top event,
besides looking at image diagnostic and pain control at the
Swiss paraplegic centre
ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 7
www.escif.org
European Spinal Cord Injury Federation
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•
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
congress supporter 2007
Index
Back
Prev
ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 8
www.escif.org
Members
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• Members of ESCIF are independent national
organisations with their own statutes and whose main
objective is to represent people with SCI in their
country
• A maximum of one parent organisation per country can
hold membership in the ESCIF
• The annual membership fee is 300 Euros
• Every Member Association has the right to send a
maximum of two delegates to the Assembly of
Delegates
• Private persons, partnerships, legal entities and public
bodies may hold patron membership. They have no
membership rights
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www.escif.org
Members
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Albania
Austria
Belgium
Croatia
Denmark
England
Finland
France
Germany
Holland
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Ireland
Italy
Lithuania
Portugal
Scotland
Slovenia
Spain
Sweden
Switzerland
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 10
www.escif.com
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
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Index
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 11
www.escif.org
Executive committee
from left to right
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Jane Horsewell,
vice-president,
Denmark
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Urs Styger,
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Pekka Hätinen
secretary,
Switzerland
Finland
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Adrian O’Donnell
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Daniel Joggi
treasurer
Scotland
president
Switzerland
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Winnifred Bokmade-Moes Netherland (missing)
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 12
www.escif.org
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 13
www.escif.org
Meetings and conferences
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• Nottwil Switzerland October 2005
Topics: research paths, ways of improving quality of
life, personal budget, professional integration, from
bed to sport, presentation of the participating
organisations + discussing about the opportunity of
founding an European organisation
• Nottwil Switzerland March 2006
Topics: presentation of international classification of
function (ICF), demonstration of image diagnostic and
pain control at the Swiss paraplegic centre.
Foundation of ESCIF on the 31 March 2006.
• Heidelberg/Lobbach Germany 19- 20 April 2007
Main topic: nutrition, creativity, awareness of the
body. Focus is to work out new perspectives and ways
to find a meaning of life
ESCIF-ppt / Version 1.0 / 2006
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www.escif.org
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 15
www.escif.org
Projects
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Acute care and primary rehabilitation (Jane Horswell)
Purpose and aims
• This is the first information-gathering project to be initiated
by ESCIF. Its purpose is to gather and collate information on
the acute care and primary rehabilitation services offered to
people with spinal cord injuries in the member countries
• We are interested in identifying specific differences and in
analysing how these impact the perceived quality of care in
each country
• The initial investigation has taken the form of a
questionnaire that was sent to each of the member
organisations
• Then a workshop involved all the delegates in an activity
focused upon the exchange of experience and ideas that will
lead to a consideration of “best practice” in primary
rehabilitation
ESCIF-ppt / Version 1.0 / 2006
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www.escif.org
Projects: www.escif.org
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ESCIF-ppt / Version 1.0 / 2006
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Projects
Integration & participation of people with SCI
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One of the primary aims of the rehabilitation of people with SCI is
to enable them to “get back into society” and to help them to live
active and fulfilling lives. But what do we really mean when we talk
about people being “integrated into society” or say that people
“participate in the community”?
This is the focus of a new study – a collaboration between ESCIF and
Swiss Paraplegic Research. The background to the study, its aims
and objectives were explained by the study leaders, Dr Jan
Reinhardt and Jane Horsewell, at the 2007 ESCIF congress in
Lobbach. Further information about the study was sent to congress
delegates in May 2007.
The first phase of the study, the pre-test, has now been completed
and the research team will continue with a full-scale investigation
in Switzerland. The next stage will involve similar investigations in
several other European countries.
ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 18
www.escif.org
European Spinal Cord Injury Federation
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
congress supporter 2007
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 19
www.escif.org
Contact
ESCIF - Secretary
℅ Swiss Paraplegic Association
Kantonsstrasse 40
6207 Nottwil
Switzerland
Tel +41 (0)41 939 54 03
Fax +41 (0)41 939 54 39
E-mail [email protected]
President Daniel Joggi
Tel +41 (0)22 363 46 81
Fax +41 (0)22 363 46 90
E-mail [email protected]
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ESCIF-ppt / Version 1.0 / 2006
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Slide 20
www.escif.com
European Spinal Cord Injury Federation
•
•
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What is ESCIF
History
Members
Executive committee
Meetings and congresses
Projects
Contact
congress supporter 2007
Index
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 21
www.escif.org
Travelling in Europe
• Addresses advised by ESCIF
• Addresses advised by our members
• Addresses found on the web
• Best companies to fly
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ESCIF-ppt / Version 1.0 / 2006
05 July 2007
Slide 22
www.escif.com