A Publication of the Northwest Parkinson’s Foundation |
INSIDE
The ED Corner 2
Journey Back to the
Cockpit:
Mike Reed’s Story
BY SCOTT JOHNSON
World Parkinson Congress
Buddy Program 2
Team Parkinson’s: Walk in the
Park 3
Photography of Kelsi Tillou 4
Deep Brain Stimulation: A
Neurosurgeon’s Perspective 4
Tribute Gifts 6
HOPE
Conference™
Registration
Page 7
Our mission is to establish
an optimal quality of
life for the Northwest
Parkinson’s community
through awareness,
education, advocacy
and care.
nwpf.org
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NW Parkinson’s Foundation
and Twitter:
@NWParkinsons
NWPF Contributor
As Michael Reed piloted the Boeing 737-900 into the
airspace surrounding Chicago’s O’Hare Airport in the
first week of April, the smooth journey turned turbulent
with a swirling wind and less-than-ideal
conditions.
SPRING 2015
daughter, Ellie, had said something similar during Reed’s
weeks of simulator training.
His first trip was a three-day tour that took him to
Portland, San Francisco and Chicago before returning
to his hometown of Seattle. A supervisor flew alongside
him, monitoring every move and even playing the role of
a novice co-pilot. Reed hardly blinked. There was some
early rust, but Reed quickly felt as natural as ever.
The flights were relatively smooth, right up until it was
It served as an apt metaphor to describe the past twoplus years of Reed’s life. And it comes as no surprise
that Reed passed the latest test with flying colors.
In 2012, six days before Christmas, Reed officially
received news that he had been diagnosed with
Parkinson’s disease. The 54-year-old pilot for Alaska
Airlines, who had been flying planes around the world
since 1987, had only one option when he got the news.
“I grounded myself,” he said. “That’s what you do.”
For four months, Reed stayed out of cockpits while
researching Parkinson’s and investigating treatment
options. He eventually called Alaska Air to look into
the possibility of working in flight operations, which he
began doing in April 2013. Seven months later, he
discovered a medication, Levadopa, that took away
most of his symptoms – mainly, a tremor in his left arm
and an issue with his walking gait.
“It worked like a champ,” Reed said of the medications.
“I gave myself a year to ensure I wouldn’t have any side
effects. After a year, I decided to start working toward
getting my medical certificate (for pilots) back.”
time to descend toward O’Hare. The turbulence left
Reed falling back on his pilot instincts, honed through
more than a quarter century of flying. The pilots had to
re-program the computer in the cockpit.
Amazingly, through a special issuance given by the
FAA, Reed was able to get back on path toward flying
a plane. In January, his doctor advised that he cut back
on his medication, and three months later, after a series
of tests and flight-simulator sessions, he was cleared to
fly.
By the time they successfully hit the runway in Chicago,
Reed was brimming with fulfillment. He turned to his
co-pilot.
In the days leading up to his April return to the cockpit,
his 21-year-old daughter, Grace, said: “Dad, now you
get to do what you love to do.” His 17-year-old
“I get to do this again,” Reed said with a smile. “This is
so cool.”
A few days later, Reed was still walking on air – so to
speak.
Continued on page 3
The Parkinson’s Post is published by the Northwest Parkinson’s Foundation, a 501(c)(3) charitable organization. © Northwest Parkinson’s
Foundation 2014. Permission for use of most material presented here is available by contacting us. We welcome your comments on all our
activities. Call 877.980.7500 or visit us at nwpf.org.
Board of Directors
Elizabeth Bacher
Lisa Bain
Steve Boone
Amy Cole, RN
Dave Covey
Gloria Gottesman
Sheryl Harmon
Kerry Hovenkotter
Marty Hovenkotter
Larry Jacobson
Paula Lehmann
Jennifer Marsh
Jack Nettleton
David Newsom
Clare Nordquist
Mark Palek
Jonathan Poneman
Matt Ramerman
Mike Reed
Judi Sloan
Iam Smethurst
Sindhu Srivatsal
William Wurts
Directors Emeritus
Gov. Daniel J. Evans
Nancy Evans
Gov. Booth Gardner
(deceased)
Hal Newsom
Priscilla Tanase
Executive Director
Steve Wright, MPA
Deputy Director
Melissa Tribelhorn, MPA
Finance Director
Virgil Sweeney
Development Director
Angela Rickard
Social Services Manager
Maria Cole, MSW, LSWAA
Communications
Specialist
Meleah Roy
The ED Corner STEVE WRIGHT
Thank you for letting us serve you; it is what
we do and I am very proud of our strong efforts
to make life better.
Now, I ask you to support NWPF by getting
involved with Team Parkinson’s: Walk in the
Park. It’s July 25 at Magnuson Park in Seattle,
where we’ll join as a community to raise funds,
enjoy the laughter of children, the innocent
barking of dogs (Dawgs?) and initiate or rekindle new friendships.
To join as an individual walker or to set-up a
team simply visit our web site:
www.TeamParkinsons.org. Team Parkinson’s
consists of several outdoor activities—the Seattle-to-Portland bicycle classic; Walk in the Park;
and Shake Rattle & Stroll in Boise. Choose one
and get going.
Team Parkinson’s sets forth the mission to
encourage Movement while also Connecting
friends, family and caregivers, and, of course,
Engaging in fundraising that supports everything we do at Northwest Parkinson’s Foundation.
Team Parkinson’s tools, available on our
web site, are new this year. We heard your
frustrations with last year’s online giving tools
and made the change to a clear and easy to
use platform that allows you to establish a
fundraising page with your own personal story
and photos. I think you will find this new system much easier to use.
And, finally, I thank you for your kindness.
I am humbled and inspired by you- the people
we serve. Your desire to live better pushes us
forward every day to evaluate our effectiveness. If we’re not providing the services you
need—let me know—because we only exist as
an organization to serve you.
World Parkinson Congress
Buddy Program
The 4th World Parkinson Congress is heading to
Portland, OR in September 2016.
Apply for a Buddy during the registration process for the
WPC 2016.
People with Parkinson’s and carepartners who
register for the WPC 2016 will be able to connect
with others before the Congress begins via the WPC
Buddies Program. Buddies are matched based on
common interests and other variables, such as age,
gender, hobbies and language.
Registration opens January 2016
WPC 2016 Buddies Program is sponsored by the
Northwest Parkinson’s Foundation.
www.WPC2016.org
The WPC Buddies Program was designed to
encourage global dialogue and companionship
across all borders. Parkinson’s is not unique to any
one country. The idea of having a Buddy somewhere
else in the world means that people with Parkinson’s
and their carepartners can share their trials and
tribulations, ideas for coping and their successes.
Social connectedness can be a source of inspiration
and encourage people in the community to stay in
touch with others. This is an opportunity for
community members to engage in meaningful
conversation with someone on the other side of the
world, or just next door. We hope the Buddies
Program inspires people to share their stories and
remind each other that no one is alone in the fight
against Parkinson’s.
| SPRING 2015 | page 2
Continued from page 1
“It was a lot of fun,” he said.
The three-day session was the final step toward a full
return to flying. Reed expected to be back in Alaska
Airlines’ regular rotation by May, less than 2 ½ years after
Parkinson’s grounded him.
handle it like I can? That’s not being braggadocios, it’s just
that I feel blessed, I feel good.
“Some of the people (diagnosed with Parkinson’s) feel, for
lack of a better word, kind of sunk. I just won’t let myself
get down. It’s just not in my nature.”
“Chalk one up to the
good guys,” he said inn
early April. “I’m still who
I was before diagnosed,
and I’ll still be who I am.
Reed understands that
the disease progresses
differently in people, that
some have it worse than
others, but he also
realizes that a positive
frame of mind can make
a huge difference.
“There’s always hope.
There just always is, no
matter where you are in
your journey.”
The only thing more
amazing than Reed’s
successful return to the
air is the reality that it
wasn’t that uncommon.
During his comeback, Reed was in contact with the FAA’s
aeromedical center in Colorado and discovered that, by
their conservative estimate, there were at least 200 pilots
with Parkinson’s disease flying in the commercial industry.
Reed counts himself as fortunate to now be among them.
“I’m glad it was me and not somebody else,” he said of
his diagnosis. “I think: What if it was someone who can’t
Laurel Beck, PT, MS, NCS
Physical Therapist
Virginia Mason
Jonathan Carlson, MD
Neurosurgeon
Providence Spokane
Maria Cole, MSW
Licensed Social Worker
NWPF
Anthony Harris, MD
Neurosurgeon
“Take a deep breath,”
MultiCare Tacoma
Reed advised. “And then
take another one. You
Emilie Jones, PT, DPT, GCS
notice they keep going in
Physical Therapist
and out. Before you know
Virginia Mason
it, you calm down.
“Educate yourself. It’s all the things the Northwest
Parkinson’s Foundation says: real people with real smiles;
move, connect, engage. That’s your road map. Stay
connected, stay moving, stay engaged.”
And in the end, you might even get back to doing what
you love.
Take Steps to Strengthen the Parkinson’s Community
Team Parkinson’s: Walk in the Park is more than just a two mile trek, it’s an opportunity to raise money for local
services and to fight for something we care about. Become part of the thousands of people who have joined
Team Parkinson’s and bring your determination, energy and passion to Walk in the Park. The money you raise
stays right here in our communities.
Saturday, July 25
Registration: 9am
Walk: 10am
Register and begin fundraising today!
Warren G.
Magnuson Park
Seattle, WA
Contact Angela Rickard at 206.432.7257 or [email protected] for tons of fundraising
tips and tricks to help you.
Register today at
nwpf.org or
by calling
877.980.7500
Medical Advisory Council
Stephen Asher, MD
Neurologist
Saint Alphonsus - Boise, ID
As soon as you register (there is no registration fee to walk), you’ll have access to our
online fundraising tools which make your efforts fast, easy and more convenient than
ever. Need more help? Don’t worry!
Team up for more fun!
Why walk alone? Form a team and share the experience with friends, family and
coworkers. The more people who unite under a common goal, the greater the
impact on those living with Parkinson’s.
Andrew Ko, MD
Neurosurgeon
UW Medicine
Chong Lee, MD
Neurosurgeon
Group Health
Richard Mesher
Neurologist
Group Health
Kristoffer Rhoads, PhD
Neuropsychologist
Virginia Mason
Ali Samii, MD
Neurologist
UW Medicine
Jeff Shaw, Psy. D
Neuropsychologist
EvergreenHealth
Sindhu Srivatsal, MD
Neurologist
EvergreenHealth
Virginia Mason
Joe Tornabene, MD
Neurologist
Wenatchee Valley Medical
Let’s walk!
Join the excitement on Walk day with other passionate supporters of people
living with Parkinson’s.
| SPRING 2015 | page 3
REGISTER
Do you live in Montana?
Register now for HOPE Montana at www.nwpf.org.
Tuesday, June 23, 2015
9am - 3pm
Summit Medical Fitness Center, Conference Room 3
205 Sunnyview Lane
Kalispell, MT 59901
Or the Inland Northwest?
Save the date for the HOPE Conference of the
Inland Northwest in Spokane!
Saturday, November 7, 2015
Northern Quest Resort & Casino
100 N Hayford Road
Airway Heights, WA 99001
Deep Brain
Stimulation:
A Neurosurgeon’s
Perspective
BY SCOTT JOHNSON
NWPF Contributor
A steady exercise routine, a strong support group and a primary-care physician are of utmost importance to Parkinson’s sufferers, but sometimes even that’s not enough.
Deep Brain Stimulation provides another option for those dealing
with the disease, and University of Washington-based Dr. Andrew
Ko is among the neurosurgeons who are happy to provide the
service.
In addition to seven years of neurosurgical training at the UW,
Dr. Ko spent an additional two years engaged in research and
specialization in surgery for diseases like Parkinson’s. He returned
to the UW this June, and he counts Deep Brain Stimulation as
among the most personally rewarding.
“These types of procedures,” he said, “you see the effects, you
see how you affect people, and that’s very gratifying.”
The concept of deep brain stimulus is nothing new, and the use
of electrical stimulation for the treatment of Parkinson’s has been
Photography of Kelsi Tillou
Kelsi Tillou is 24 years old and was officially diagnosed with Kufor-Rekeb
syndrome in 2014. It took 7 years of testing and patience by Kelsi and
the continued efforts of Dr. Thomas Bird and his staff at the University of
Washington to finally diagnosis this rare form of early onset Parkinson’s.
Kelsi enjoys using the camera to show off her artistic talents. When not
photographing sunsets and nature, Kelsi also enjoys the creative
displays of Japanese comic anime. She has attended the annual
convention in Seattle for many years, dressed in various costumes that
she has designed and assembled.
| SPRING 2015 | page 4
Left to right:
Beltane’s fire,
What would you
do for a peanut,
Relaxing sunset,
Skittles taste the
rainbow, Apollo’s
arrows, Leaving
Tracy Arm Ford
behind. Above:
Homeward
bound.
around since the
1950s.
However,
difficulty in
accurately
guiding
stimulation,
and unreliable
hardware limited
its success.
The modern
procedure was
first performed
in the United
States in 1991
and has gradually become fairly common nationally for patients
with neurological movement disorders. It’s also been used to treat
essential tremor and dystonia, but Deep Brain Stimulation is best
known as a remedy for patients with Parkinson’s.
DBS, as it is commonly known, begins with a surgery involving a
pacemaker-like device called an implantable pulse generator (IPG),
which delivers an electrical current through the areas of the brain
that help control movement. These electrical currents modulate
the activity of the brain, stabilizing tremor, and helping control
some other Parkinson’s symptoms.
“It’s not a cure,” Ko said. “It doesn’t change the disease
progression. It’s purely for symptomatic relief.”
impulses forever. A person is better to get it done now and get on
with their life.”
One of the perks of the surgery, Hovenkotter said, is that it’s cut his
daily meds in half.
“That’s a gold standard for Parky’s,” he said. “It allows you to have
movement. I was taking five or six of those (medications) a day, and
I cut down to three.” DBS has cut down on Hovenkotter’s tremors
while helping to stabilize the progression of other Parkinson’s
symptoms. “For me, (the decision to have DBS surgery) was
simple,” he said. “I almost felt like it was designed for me.”
Interested parties can further investigate the surgery by getting a
referral from their neurologist or primary-care physician. Dr. Ko
said he would be willing to answer any questions as well, while the
University of Washington’s movement disorder clinic also provides
feedback on the procedure.
Ko said the most important thing is for a person to do the
homework before making a decision.
“It’s like getting married,” he said. “When you get this device
implanted, it’s going to be with you the rest of your life.”
For more information, Dr. Ko’s clinic can be reached at:
University of Washington
3rd floor Surgery Pavilion
1959 NE Pacific Avenue
Seattle, 98195
(206) 598-1459
The procedure can help people with Parkinson’s most in terms of
tremor, and slowness of moving. It works in tandem with
medication to improve motor symptoms in Parkinson’s.
“For certain patients, it’s proven to be better than the best medical
management alone, if you’re at a certain point in the disease,” Ko
said, adding that this treatment is not appropriate for everyone.
“As a rule of thumb, people with Parkinson’s should have
symptoms for at least five years before considering something like
this,” he said, adding that patients who have side effects of
medication or fluctuations in effectiveness are particularly wellsuited for the procedure. “It’s a very effective treatment, but there
are certain things that don’t get better, and certain people who
shouldn’t get it.”
One who did was Marty Hovenkotter, a 63-year-old resident of
Sammamish, Wash., who underwent the procedure in 2008.
Hovenkotter was well into his Parkinson’s journey, having first been
diagnosed in Nov. 1990 -- more than a year before Michael J. Fox
was diagnosed with the disease and eight years before Fox went
public with his Parkinson’s. At the time, Hovenkotter was told he
would only have two years to live.
More than 14 years later, Hovenkotter was still living life. And
thanks to his DBS surgery, his quality of life has improved in recent
years. So much so that Hovenkotter would recommend it to
anyone with Parkinson’s who qualifies.
The Legacy Circle
NWPF’S PLANNED GIVING PROGRAM
Estate planning is an effective way to take care of
yourself, the people you love and the charities that
are important to you. Northwest Parkinson’s Foundation would like to help you leave a legacy after
you are gone.
By joining the Legacy Circle and including a gift to
NWPF in your overall estate and financial plans,
you can provide your estate with considerable tax
benefits and help families with Parkinson’s live well
for years to come.
For more information on including NWPF in your
estate and financial plans, please visit our website:
http://nwpf.org/give/planned-giving/ or contact
Steve Wright at 206-946-6514 or [email protected]
“I just told a guy the other day: sooner is better than later,”
Hovenkotter said in January. “You don’t get the benefits of
| SPRING 2015 | page 5
T RIBU TE GI FTS
Gifts to Northwest Parkinson’s
Foundation support educational
publications and self-care tools,
including this newsletter, weekly
email news updates, web site,
patient education programs and
annual HOPE & LIVING conferences.
We are honored and privileged that
so many in the community support
our mission by giving generously
throughout the year. To make a
donation or for more information
contact Steve Wright at
[email protected].
Gifts listed here are from
December 17, 2014 - April 30, 2015
FAMILY
FUNDS
Alvord Medical Director
Fund in Memory of
Roger Evans
Mel Bacher Family Fund
Elizabeth E. Bacher
Mary A. Mitchell
Memorial Fund
Peter Y. Ackerman
Andy Alcorn
Christ Arnold
Jim Baldes
Eric Bauer
Steve & Pam Cory
Jerry & Janice Dahl
Scott Eisenhauer
Angie Estey
Clara Fletcher
Janet Geoffroy
Jacqueline Gjurgevich &
Michael Feinstein
Wendy Holman
Dave & Tammi Hull
Brett Jones
Susan Killion
Sherry King
So’o Kobayashi
Laura (Mitchell) Lewis
Laurie Macartney
Annie & Randall Mack
Leo Messling
Warren & Jennifer Michelsen
Donald Mitchell
Alex Peran
Rhonda Richards
Pam Roth
Chris & Bicki Ruef
Jim Sandy
Sara Scott
Carol Slack
Blake Thedford
Sherry Tyler
Tonnie & Aaron Unsel
Jason Virskus
Pan & John Whitelam
Margaret (Martie)
Philbrick Family Fund
Tina Bell Torrance
Family Fund
IN
HONOR
Donna Dueker
Mr. & Mrs. Kenneth J.
Dueker
Robert Creso
Mrs. Kathleen Creso
Mr. Robert A. Roegner
Renee Halseth Allen
Mr. & Mrs. Terry & Renee
Allen
Winn Davidson
Ms. Ruth Wohnrade
Christine Husband
Mr. & Mrs. Duane S.
Thorson
Vincent Eagan
Mrs. Mary Ann Eagan
Dr. John Little III
Mr. John Little, IV
Edward Ewell
Mrs. Jacquie Ewell
Evan & Sara Meessen
Mr. Roger Meessen
Anthony John Fagiano
Risen Christ Women’s Group
Trish Merritt
Mr. & Mrs. Robert Kellogg
Diane Frizelle
Mr. & Mrs. Abraham Kriger
Karl Moldrem
Ms. Lisa A. Moldrem
John Gale
Jack & Mary Neilsen
John Molohon
Mr. Dennis Chew
Ted Grossman
Peter Grossman
Hal Newsom
Mr. & Mrs. Don Phillips
Genevieve Hack
Ms. Kelly Days-Schmid
Marcie Sewell
Ms. M. Laverne Sewell
Mary Ellen Harrison
Mr. William J. Harrison
Tom Sexton
Ms. M. Laverne Sewell
Barry Hasson
Mr. & Mrs. Craig Sternberg
Alice Sweigert
Mrs. Janice J. Sorensen
Dar Haworth
Mr. Ken L. Haworth
Ethel Vadnoie
Ms. Jeanette Peterson
Karen Hermann
Mr. Sigwulf Hermann
Jim Wheaton
Mr. & Mrs. Jim Wheaton
Barry Hesson
Mrs. Eleanor Capeloto
Yuiko Yampolsky
Ms. Helene Yampolsky
Fanny Hockett
Ms. Judy Phillips
IN
MEMORY
Dick Alexander
Ms. Mary Lou Michaelson
Ms. Connie Munekiyo
Ms. Evelyn Sim
Dale Anderson
Mr. & Mrs. Earl H. Larson
Margaret Baur
Mr. Eugene J. Baur, Jr.
Robert Bax
Mrs. Ellen M. Bax
Helen Bell
Mr. Robert D. Bell
Tom Berger
Hendrik & Marjorie
Grootendorst
Alan Berry
Ms. Carol Berry
John Eagle Day
Mr. & Mrs. H. Jack Duncan
John DeBroeck
Mr. & Mrs. Brian R. Joubert
Angela Clark
Monica Hurley
| SPRING 2015 | page 6
Norman Dibble
Mrs. Carmen Marshall
Mary Jacobson
Mr. C. Miller Sigmon
Larry Boyd
Mr. Alan Anderson
Mrs. Donna Crow
Mr. & Mrs. Frank & Jeanette
Glaspey
Mr. & Mrs. Susan Gwinn
Ms. Betty Sheckler
Bonnie Brainard
Mr. & Mrs. George Byers
Dr. Melvin R. De Mond
Mrs. Ellomae H. De Mond
Bill Howell
Mr. & Mrs. Paul
Baumgaertner
Sue Isaacson
Mr. & Mrs. Earl H. Larson
Vic Kaloper
Mrs. Danica Kaloper
James Nipper
Lorraine Duppong
Dewey & Ynes Durfee
Ed Poe Agency Insurance
David & Cassandra Hart
Larry Hoffman Sr.
James & Mary Ann Kautzky
James Nipper Estate
Ms. Rose M. Nipper
Carolyn Nordhus
Ray Pedersen
Mr. & Mrs. Harry I. Ruby
Gabriel Pigotti
Ms. Elida Pigotti
Cliff Powell
Ms. Sylvia D. Powell
Evelyn Powell
Ms. Joanne Sanders
Jim & Velda Sturman
Richard Price
Ms. Sarah Persitz
James Rebar
Ms. Sandra Brands
Mr. & Mrs. Peter Holst
Ms. Maryann Kalapus
Mr. William Morris
Mr. Michael Rebar
Mrs. Beverly Rosenow
Mr. & Mrs. Richard Shipman
Mrs. Mary Zadow
Charles Rush
Mr. & Mrs. Douglas Johnson
Ms. Barbara Shenton
Eldon Schroeder
Mrs. Ramona J. Schroeder
Jose Shdo
Mr. John Aylward
Dr. Robert Cushen
Mr. Michael Dederer
Roger Kunz
Mr. & Mrs. Ken & Linda
Larson
Ms. Dianne Lueder
Hideo & Joyce Satow
Mary Jane Skelton
Mr. Drew McGougan
Sivert Koski
Mr. & Mrs. Douglas Johnson
Delford Smith
Dr. & Mrs. Allen Johnson
Maria Smith
Marie Smith
Henry Krapf
Mr. & Mrs. John S. Harrison
Brady Twohy
Jerry & Stephanie Johnsen
Gisela Kriebaum
Mr. & Mrs. Robert P. Mearls
Wayne Uht
Mr. & Mrs. Michael Hibbard
James Krogh
Ms. Barbara Krogh
Jackie Vhugen
Mr. & Mrs. Darryl Stow
Vhugen
Charles Lenhart
Raymond & Donna Elder
Mrs. Maureen Flynn
Clarence “Els” Lyons
Ms. Loreice Lehmann
Robert Malloy
Mrs. Geraldine Malloy
Jim Miller
Ms. Wanda Davidson
Michael David Mitchell
Michael Roozen
Chuck & Sarah Taylor
Ms. Clarann Taylor
Dick Newby
Mr. & Mrs. David & Susan
Hook
Leonard Wisz
Ms. Frances Losch
Carol Wurts
Mr. William W. Wurts
Registration for the 2015 HOPE Conference™ is now open!
Saturday, September 26, 2015
9am - 3pm
Meydenbauer Convention Center
11100 NE 6th Street
Bellevue, WA 98004
Northwest Parkinson’s Foundation presents the 10th annual
educational symposium for patients, family, friends and carepartners in
the Parkinson’s community. The 2015 HOPE Conference™ will offer
information on medications, treatments, diet, mindfulness, and
movement. New this year: international speakers & breakout sessions!
2015 HOPE Conference™ Partners
Exhibitors will include a variety of organizations and companies
sharing information and resources for people with Parkinson’s disease
and their care providers.
Conference fee includes admittance to all speaker presentations,
break-out sessions, vendor exhibits, continental breakfast, lunch and
afternoon snack. Free parking is available in the Meydenbauer Center
garage. Scholarships are available.
Many thanks to our sponsors
Can’t make it to HOPE? We’ll have live-streaming available so you can
enjoy the conference from home!
Cut along dotted line
REGISTRATION FORM
Please fill in the following information and mail to:
Northwest Parkinson’s Foundation | 400 Mercer Street, Suite 502 | Seattle, WA 98109
Or register online at nwpf.org
ATTENDEE INFORMATION
Please provide the names of each attendee.
Attendee 1:
Name: ______________________________________________________
FirstLast
O Patient
O Carepartner O Family
O Friend
Attendee 2:
Name: ______________________________________________________
FirstLast
O Patient
O Carepartner O Family
O Friend
Address 1____________________________________________________
Address 2__________________________ City ______________________
State ______________________________ Zip ______________________
Telephone ____________________________________________________
Email Address _________________________________________________
Lunch Selection (for multiple attendees enter the # of each choice)
( ) Chicken Entree
( ) Vegetarian Entree
( ) Special Dietary Request:
______________________________________________________________
CONFERENCE FEE INFORMATION
Before September 12, 2015 - $35
September 12 - September 26, 2015 - $40
Please mail this completed form with your payment.
Number of attendees __________________________________
O Enclosed is my check for $ ___________________________
(Checks payable to NWPF)
O Visa O Mastercard
O AMEX
Card number _________________________________________
Expiration date (month/year) _________/___________
Name as it appears on card (please print)
_____________________________________________________
Signature
_____________________________________________________
Address of cardholder
O Same as attendee
Address 1_____________________________________________
Address 2______________________ City __________________
State __________________________ Zip ___________________
| SPRING 2015 | page 7
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U.S. POSTAGE
PAID
SEATTLE, WA
PERMIT NO. 02443
400 Mercer Street, Suite 502
Seattle, WA 98109-4611
877 980 7500
nwpf.org
Please contact us if you do not wish
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Book Review: The Peripatetic
Pursuit of Parkinson’s Disease
Movement Spotlight:
30 Ways in 30 Days
The Peripatetic Pursuit of Parkinson Disease is “A group of patients
with Parkinson’s who decided that their stories weren’t being told
very well by books available at the time. And that there really wasn’t a
comprehensive guidebook for patients with Parkinson’s, their families,
and their loved ones.
Thank you to everyone who participated in our 30 Ways in 30 Days
Campaign to promote movement-based symptom management during
Parkinson’s Awareness Month! We were humbled and inspired by your
participation in our April campaign. You shared your stories of success,
participated in our programs and donated to optimize our resources
for the PD community. You helped us raise over $10,000 with a match
from a generous donor, bringing our campaign total to $20,950! The
capstone of the campaign, PD University: Moving Toward Management symposium, sold out and gave folks ideas about managing their
Parkinson’s symptoms with movement. We thank you from the bottom
of our hearts for making 30 Ways in 30 Days a resounding success!
This group of e-patients decided to create their own. The amazing
result is called The Peripatetic Pursuit of Parkinson Disease and it is
now available from major booksellers and can be checked out from
NWPF’s Lending Library.
Don’t let the odd title fool you because, frankly, I’ve never seen a more
amazing disease-specific book in my life. And while I’m a little biased
(given that the group found one another on one of our communities;
and I wrote the forward for it), I think if you pick up a copy -- whether
online or at your local library -- you’ll agree.
When I got my copy of the book, I was blown away by its comprehensive nature, its clear information, moving stories and international
flavor from people with the actual disease. For a book about a terrible
disease, it’s colorful, illustrated and easy to digest.
The chapters include: Parkinson basics and beyond; PD is more than
a movement disorder; helping ourselves; quality of life; the difficult bits;
PD activism; advocacy in action; going international; and where we
are now. It includes a helpful glossary of all the technical and medical
jargon thrown around with this disease. If you or a loved one is suffering from Parkinsons, I believe there is no better book to consider than
The Peripatetic Pursuit of Parkinson Disease.” - Dr. John Grohol
| SPRING 2015 | page 8
“It’s possible that my Parkinson’s diagnosis may have been one of the
healthiest things that ever happened to me since I now have the intrinsic motivation to work-out that had been lacking previously.” - Posted
to NWPF’s Facebook page