“After Cruse” by Padraig Gribbin (aged 10) Evaluation Summary of Cruse Bereavement Care’s Services to Children and Young People From 2008 - 2012 1 RAINBOW MAKERS SUMMARY EVALUATION REPORT FOREWORD The devastating impact of bereavement on children and young people is clearly demonstrated by the drawings of those who took part in this evaluation. Sadness and grief are shown in a way that is hard to put into words. It is vital that all children and young people receive the support that they need after the death of someone close, to help them to express their feelings and develop their coping skills. Over 800 children aged 4-18 and their families have come to Young Cruse in Northern Ireland over the last 5 years and shared their stories, tears and courage with us. From the beginning they have been key to the development of services. Rainbows present a picture of light, variety and hope. Perhaps it is no surprise that many of these children and young people drew rainbows to show how they felt after they had received support from Cruse. They have been helped to find new hope in their lives though our staff, volunteers and the support they have given each other. They have all become ‘Rainbow Makers’. The project has provided life-changing benefits for all those involved. The learning outcomes will be valuable to all who provide bereavement support services for children and young people across the UK. Let us all help create new rainbows where they are needed most. Our sincere thanks to the Big Lottery Fund and all those involved in this project. Debbie Kerslake Chief Executive, Cruse Bereavement Care INTRODUCTION In 2008, Cruse Bereavement Care (Cruse) was successful in securing a 5year award of £384,717 from the Big Lottery Fund Reaching Communities programme to deliver a range of bereavement support services to children and young people across Northern Ireland. The programme commenced in October 2008. Now, having completed almost 5 years of sustained and targeted delivery, it requires an independent evaluation to assess its achievements and to shape the future provision of bereavement services to children and young people. Copius Consulting was commissioned to fulfil this requirement in March 2013. This evaluation, conducted between March and August 2013, outlines the outcomes and outputs of the Young Cruse project over the past 4 years – between October 2008 and October 2012. A WORD FROM OUR FUNDERS When Big Lottery Fund invested in Cruse's Children & Young People's Project in Northern Ireland in 2008, our Committee recognised that the project addressed a key need - delivering support specifically designed to meet the needs of young people dealing with bereavement and providing vital training for the volunteers who support them. This project’s success is already well recognised; it was nominated in the Best Health category of the National Lottery Awards in 2010, and awarded runner up at national level. Young Cruse is on target to meet their outcomes and we are delighted to have been able to support this vital work, helping children and young people who have lost a loved one. Joanne McDowell Northern Ireland Director, Big Lottery Fund 2 RAINBOW MAKERS SUMMARY EVALUATION REPORT ABOUT CRUSE BEREAVEMENT CARE Cruse Bereavement Care is the UK’s largest bereavement charity, providing somewhere to turn when someone dies and enhancing society’s care of bereaved people. Cruse was established in Northern Ireland in 1984. It operates from a regional office based in Belfast and seven local area offices throughout Northern Ireland. Bereavement support is provided by one-to-one or group support, a telephone helpline and dissemination of literature. There is also a UK national help line, website and e-mail support specifically for young people. In the past year, 429 volunteers gave more than 45,000 thousand hours to support bereaved people of all ages, including children aged 4 – 18. YOUNG CRUSE PROJECT The Young Cruse Project was established in 2005 with grants from the Big Lottery Fund and BBC Children in Need. Since then more then 800 children and young people have accessed Young Cruse services. The vision of Young Cruse is: “That all Bereaved Children and Young People in Northern Ireland will have somewhere to turn to when someone dies.” The project aims are: To provide a face-to-face bereavement support service for children aged 4-18 across NI. To involve young people in the shaping and delivery of the service. To develop skills and talents of bereavement volunteers. To raise community awareness of childhood bereavement. To achieve this vision, Young Cruse has developed a number of key project outcomes in conjunction with the Big Lottery Fund: 1. Children & Young People: 500 children and young people will have improved health and well-being as a result of accessing Cruse services. 2. Youth Advisory Group (YAG): 35 bereaved young people will have increased skills, confidence & input to the project through participating on the Cruse YAG. 3. Volunteers: 100 new volunteers will be equipped and trained to deliver bereavement support services to children. 4. Youth & Community Groups: 50 youth and community groups will be more aware of child bereavement support services to children. 5. Parents and Carers: 1,000 parents and carers will be more confident in their capacity to support bereaved children and young people. EVALUATION METHODOLOGY The aims of the project evaluation included: Provide an objective assessment of the project’s achievements over the last 5 years in order to measure the impact of our service delivery, build on our learning and plan effectively for the future. Further involve young clients in the shaping and delivery of this service. Provide thorough accountability to funders and stakeholders. Copius Consulting gathered both quantitative and qualitative information in order to measure achievements under each of the above outcomes. All quantitative information is based on the first 4 years of the project (2008 – 2012). The qualitative information on the following pages was generated from discussions and consultation activity with eight target groups: Regional and Area Staff Youth Advisory Group Young Clients (12-18 years) Young Clients (5-11 years) Schools and Teachers Consultants and Trainers Volunteers Management Staff 3 RAINBOW MAKERS SUMMARY EVALUATION REPORT OUTCOME 1: 500 CHILDREN AND YOUNG PEOPLE WILL HAVE IMPROVED HEALTH AND WELLBEING AS A RESULT OF ACCESSING CRUSE SERVICES Target 500 children and young people accessing Young Cruse services by end of project. Total 2008-2012 800 referrals and/or initial assessment. An estimated 400 have accessed 3 or more faceto-face support sessions. Commentary The data presented indicates that this outcome has been fully met; the children and young people who received face-to-face support clearly experienced improved health and wellbeing as a result of accessing Cruse services. Since 2008, 800 children and young people have been referred to Cruse, and have received information and support. Approximately 400 of these children and young people have received 3 or more support sessions. Those who did not access face-to-face support may have received sufficient information at referral point or may have received support elsewhere due to shortage of volunteers to meet demand. Whilst presented as one overall group in the quantitative findings above this client group has been separated into two distinct age ranges: Firstly, the 5-11 age group and secondly, the 12-18 age group. QUALITATIVE FINDINGS (5-11 YEARS) Given the age group of the children, creative methods were deployed to encourage feedback, such as art and play. The children were asked to draw how they felt before and after accessing Young Cruse services. This proved to be an extremely powerful and successful method to elicit information. The before and after drawings are shown in the following pages. The name in brackets beneath each child’s name indicates who has died. Copius Consultant Robert Crowe with Young Cruse Clients Young clients “thinking on paper”. 4 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (5-11-year-olds) How has life changed for you since accessing Young Cruse? Ryan – images that describe how Ryan was feeling before and after accessing Young Cruse services to help him deal with the loss of his sister and grandparents During focus groups, the young clients and their parents revealed how their life had changed in a number of ways, including: It helped me be less cheeky, not arguing with school teachers, and happy to get on with work. Greater confidence to get involved in activities, events and socialising. Be more cheerful and honest; can now have a positive relationship with family members again. Gained more friends and are able to talk more openly and confidently about their feelings Reported that they listened better in school and were able to concentrate on their homework Able to sleep better at night, with one child saying they are ‘not so worried when we think of her.’ The young clients also said they had learnt new games and activities during Cruse support sessions that they now use to help them concentrate. How did the Young Cruse Volunteers help you? The children in the focus group described how their Cruse volunteers played games with them, such as Lego, Dominoes and Aqua Beads and worked with memory jars, friendship bracelets and puppets. The young clients explained how the volunteers spoke to them and they had ‘lots of stuff to talk about.’ The activities helped to develop new and positive ways of remembering their special person who had died, as well as developing their friendships and learning new skills. 5 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (5 – 11 YEARS) Jenna Before Padraig (“Nana”) Before After After 6 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (5 – 11 YEARS) Adam (Mother) Cillian (‘Nana’) Before Before After After 7 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (12 – 18 YEARS) How has life changed for you since coming to Cruse? Friends The young people explained how learning and support through Young Cruse has enabled them to express their feelings with their friends and not ‘be afraid to cry when I’m with them.’ One young person said ‘My friends like me more because I’m less rough’. Another young person said he now goes out with friends again and has realised which ‘friends are better for me.’ Activities One young person stated that before Cruse, she found it hard to communicate, but she is now getting involved in groups and clubs that she never would have before. The young people discussed how they do things they enjoy and have more confidence to join in on things. One person said he’s not left out anymore and he brings his PE kit into school more, indicating that previously he may have purposely left it at home to avoid PE lessons. School Getting support at Young Cruse also impacted the young people at school. They felt that they were concentrating more in school and working hard to ‘make them (the person who had died) proud.’ They were less cheeky, not arguing with the teacher so much, and more able to get on with their work. One girl said, ‘I came out of my bubble and feel welcome ever since I told my boy about coming to Young Cruse.’ Home ‘ I used to walk out on my mum,’ stated one young client, but Cruse has helped her be more cheerful and honest and she can now have an open relationship with her mum. ‘I talk a lot more to my mum and don’t argue as much.’ How did Young Cruse volunteers assist you? • ‘He didn’t try to put words in my mouth or try to tell me how I felt. He asked how I felt and listened to me. When I didn’t feel like talking he let me draw and do other things so that I didn’t feel pressurized or awkward. Made me feel comfortable. Reassured me and made me feel like it wasn’t the end of the world.’ • ‘She told me not to be embarrassed about crying in her presence. She didn’t force me to speak, and when I did speak, she just listened and didn’t interrupt and just waited for a while to make sure I definitely had finished.’ • ‘They helped me when I had got really sad. She found easier ways to talk to me, as I can be a shy person. Helped me when I needed it. She helped me get through what I needed to.’ • All young clients indicated that the volunteer could not have done anything further to help or assist them – one commented that she wished she could have accessed the volunteer’s support over a longer period of time. • The general consensus was that the young people responded well to the relaxed and open conversation with the volunteers, without any pressure to talk and without being forced to speak when they didn’t want to. The volunteer support appears to be a crucial service to the young people. 8 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (12 - 18 YEARS) Conall (Uncle/Godfather) Victoria (Father) Stronger More accepted / liked Solitary Stuck out 9 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (12 - 18 YEARS) Jane (Grandparents) “I was there but couldn’t be seen”. Dylan (Grandparent) “I could talk to people and socialise again”. 10 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (12 -18 YEARS) Types of Young Cruse services accessed? 100% of the Young Cruse clients polled in this age bracket had received 1-1 support, while 80% had received group support through the Cruse Youth Advisory Group. Why did you want to come to Cruse for Support? The percentages below represent the number of young clients who agreed with the suggested reasons for coming to Cruse for support. Many added their own reasons as well. 100% 50% 50% • To help me cope better with my grief and give me the chance to grieve in my own way • Because I didn’t feel able to talk to anyone at home about my feelings • They were worried about how I was doing emotionally, mentally or physically Other reasons: I was getting into trouble at school or home a lot I was getting really upset and taking it out on my mum To answer some of my questions about death and bereavement To understand I wasn’t the only one grieving in the family Treasured memories. How did Young Cruse volunteers assist you? • ‘She gave me time before she started asking questions about the death. She let me talk and she listened.’ • ‘She helped me with the loss of my nanny, granddad and great granddad because they all passed away in 10 months’ • ‘We made a memory jar from salt coloured with chalk to help me keep my memories of the person I lost.’ 11 RAINBOW MAKERS SUMMARY EVALUATION REPORT OUTCOME 2: 35 BEREAVED YOUNG PEOPLE WILL HAVE INCREASED SKILLS, CONFIDENCE AND INPUT TO THE PROJECT THROUGH PARTICIPATING ON THE CRUSE YOUTH ADVISORY GROUP (YAG). QUANTITATIVE FINDINGS Target Total 2008-2012 35 bereaved young people aged 12-25 involved in the Cruse Youth Advisory Group (YAG), by the end of the project. 28 Commentary The programme is on target to achieve the outcome as 80% of the total target was met by end of Year 4. QUALITATIVE FINDINGS Why did they get involved in the YAG? Consultation found varied reasons the young people became involved in the YAG. Some young people became involved because of family members who already attended Cruse, (‘older sister is in YAG,’ ‘Mum went to Cruse and she thought getting involved in YAG would help me’). One member stated he became involved after being referred to the group by a Marie Curie Support Worker. The young people said they wanted to ‘meet people with similar stories at different stages,’ as well as to make new friends and enjoy the ‘banter’. One member said they were involved in a similar group but they didn’t feel that they got enough out of it, whilst another discussed the attraction of how informal the group is, that they take part in fun activities and have made new friends. YAG members with Health Minister Edwin Poots at Cruse’s “Journey Into Hope” conference in 2011. 12 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS Change in skills and confidence as a result of participation in the Youth Advisory Group? Group workshop discussions with the members of the YAG highlighted a number of increases in their skills and confidence as a result of their participation on the programme. These include: • Confidence in speaking at public seminars where they mixed with lots of new people from different backgrounds and ages (e.g. Downpatrick Youth Group event) • Improved confidence in chatting to influential people, in jobs and at university • Listening skills improved after ‘listening to everyone’s personal journey,’ transferring this into school and university conversations • The activities they have participated in as part of the YAG have also improved their organisation, planning, and teamwork skills (e.g., DVD project) Adam and Phil at a YAG day out. • A key task of helping to recruit, train and interview Young Cruse volunteer was highlighted as an activity that helped to improve their decision making and evaluation skills • Has also helped the members increase their creativity through the various arts and crafts projects, such as memory jars, life maps and memory trees. • Made life-long friends within the YAG, who I’m comfortable discussing deeply personal things with. Participants in “Hope Day”, run by Young Cruse in 2012 for young people bereaved by suicide. 13 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUANTITATIVE FINDINGS What difference has Youth Advisory Group (YAG) made for the participants personally? Involvement in the YAG has benefited the young people personally in a range of ways: • Talking openly with YAG makes it easier to talk to friends at home • The informality of the group meetings has also helped some members with healing and the different stages of the grieving process, with one member saying ‘it’s not like counselling, it’s more informal with less pressure.’ • The group members all said that going to the YAG meetings is always something they look forward to doing. YAG Panel at “Journey into Hope” conference, attended by more than 200 delegates. What difference has YAG made in the public arena? Publicising and awareness raising by YAG members • Went to Westminster – talked to MPs and other organisations about Young Cruse • Video day in Botanic gardens • Doing youth panels and running our own workshops at conferences – showed people what Young Cruse is about • Helped put YAG on the map – nominated for National Lottery awards. • Have given interviews about our experiences to the media for things like the Belfast Telegraph and The Times. YAG member Jane Molloy with volunteer Ruth Wilson at Young Cruse planning day 14 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS - YOUTH ADVISORY GROUP How have the young people used these skills and improved confidence since they got involved in Youth Advisory Group? Within the Young Cruse Project: The group discussed the use of their improved skills and confidence while taking part in various Young Cruse projects. Young people felt improvements in: • Increased confidence – helped them with public speaking events at youth clubs, school assemblies, and workshop days and youth panels. • Increased patience as a result of the YAG, helping them deal with awkward or uncomfortable encounters. • Made life long friends within the YAG, who they are comfortable discussing ‘deeply personal things with.’ • More comfortable and confident in talking to new YAG members due to their own experience of being on the YAG. • Ability to talk more openly about their feelings, voicing their opinions within the group and exploring new ideas. A collage of life maps created by Young Cruse Clients during the “Being There” project. Outside the young Cruse Project: The increased skills and confidence gained as a result young people’s participation in Young Cruse have enabled them to: • Improve their employment opportunities, prepare for and grow confidence for job interviews. • Better social skills, ‘I’m like a totally new person.’ • Helped them greatly in preparing for and starting university. • Helped them with university presentations and talking / answering questions in lectures as well as organisation, creative thinking and group work during workshops and seminars. • Some members also explained how ‘talking to outsiders about personal experiences has become better,’ and ‘listening skills have improved – I went on to do a counselling course and pre-existing skills learned in YAG helped me in the course.’ Expectations . . . “I didn’t expect to be taken as seriously – I was treated like an adult, even at age 15.” “I didn’t expect to have so much fun!” 15 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS (CONT’D) What difference has your involvement in YAG made to: Schools / Youth Clubs where YAG made presentations • Told personal story to youth group, hopefully helped them in their journey / raised awareness • Helped me share my story to people who may have been affected in the same situation • Told my story at youth clubs Recruitment of new YAG members • Fun days • Helping younger members gel with older members • Encouraging them to share stories • Support from people of similar age • Allowed me to open up to other bereaved young people, something that helped me a lot Other bereaved young people who may not know much about Young Cruse / Cruse? • Told bereaved friends about YAG n Young Cruse • Helping young people find out about seminars that can help them a lot • Offering support to friends • Using listening skills to help others e.g. friends outside / school friends Were there any surprise outcomes, i.e. things you didn’t expect to get out of your involvement? • No bad outcomes, I come back because of the positive experiences • Didn’t expect to make friends – nervous when I first went along • Didn’t expect to have the ability / confidence to talk about my own personal experiences / situations to other people my age • Didn’t think we’d do as many activities that are useful, e.g. workshops, learning new skills etc. • Didn’t expect to be in it for 8 years! • Didn’t expect to get to go to events such as the National Lottery awards • Didn’t expect to be taken as seriously – I was treated like an adult, even at age 15 • Didn’t expect to do so many activities / projects • Didn’t expect to enjoy it / have fun, thought it would be a more depressing group experience Young Cruse members preparing life maps at the “Being There” film project. 16 RAINBOW MAKERS SUMMARY EVALUATION REPORT OUTCOME 3: 100 NEW VOLUNTEERS WILL BE EQUIPPED AND TRAINED TO DELIVER BEREAVEMENT SUPPORT SERVICES TO CHILDREN AND YOUNG PEOPLE. QUANTITATIVE FINDINGS Target 100 new volunteers equipped and trained to deliver bereavement support services by the end of the project. Total 2008-2012 91 Commentary The programme is well on track to achieving and potentially exceed the target of 100 new volunteers. QUALITATIVE FINDINGS What impact has the training you received in Young Cruse had on you and on others? Hundreds of people have benefitted from the training and support I received. I have used the training with children as young as 5 and as old as 18 The training had a big impact on me as an individual. I am now a psychotherapist and the Young Cruse training was very inspiring for me. The Young Cruse training helps children to get on with their lives. It helps them to settle and lets them know where they are. A lot of people have benefitted from the training. I indirectly use it regularly as I am a special needs coordinator in a school and it has helped with students’ emotional and behavioural issues. I have also used it with adults and family members as well as adults with learning difficulties, which brings other challenged, so it has a wider impact. Several pupils in the school have suffered bereavement and I have used the training to help them cope. I think the play and art therapy aspect of the training has been very important as it gives children a medium to engage and protects them from being exposed. The training has impacted a wide spectrum of people from children, their siblings, parents and grandparents. The training has changed me and my perspective on life. It has broadened how I think about certain things and how I approach bereavement The finale of a Young Cruse volunteer training event. 17 RAINBOW MAKERS SUMMARY EVALUATION REPORT QUALITATIVE FINDINGS How have you used your training to impact Children and Young People? • The impact of the training has been excellent on me personally. I first got into it when one of my students’ relatives was killed by joy riders. Before I started the training I didn’t know what I was doing but afterwards I felt empowered to deliver bereavement support. • It is amazing to see the difference in them after a couple of weeks. Their whole behaviour changes and it is very rewarding for a volunteer as parents would tell us how their children are sleeping much better and that they are more content. • All the feedback that I receive has been very good. For example, older teenagers maybe aren’t as good at expressing themselves, but their relatives would say that they seem much happier and more settled. • I have helped over 100 children and adults, thanks to the Young Cruse training. I have used it extensively with children and their families. I also coach a football team and I have used it there. There was a suicide in one of the players’ families so I used my training to support the players and their friends. • The feedback which I have received has been very positive. I have had cards sent to me expressing gratitude for the bereavement care so it is clearly beneficial. How have you used your training to support parents and carers? The training received by volunteers helped them to have a positive impact on the parents and carers of the children and young people they support. Volunteers were able to make parents aware of adult Cruse services and provide them more information to help them support their children. Other ways in which their training could impact the parents / carers was the consistency of their approach and access to resources. Volunteers said ‘standards across the board and sticking to boundaries’ were important in their support. In addition the volunteers indicated a range of activities and games they encourage the children and young people to play with their parents that indirectly supports the parents and carers. This included: • Drawing, Pictures, Painting, Use of puppets, Role plays, Balloons, Salt jars, and Friendship bracelets • Remembering good things • Children confiding in parents so that they could cope at home. Children’s Room at North Down & Ards Cruse 18 RAINBOW MAKERS SUMMARY EVALUATION REPORT OUTCOME 4: 50 YOUTH AND COMMUNITY BASED GROUPS WILL BE MORE AWARE OF CHILD BEREAVEMENT ISSUES. QUANTITATIVE FINDINGS Target Total 2008-2012 50 youth and community groups will be more aware of child bereavement issues by the end of Year 5. 39 Commentary At the end of Year 4, the project is one group short of the target of 40. There is an increasing demand for this awareness raising service, and the target will be fully met by the end of Year 5. QUALITATIVE FINDINGS How did you become aware of the Young Cruse project? What has been the impact for the group? • One of my colleagues made me aware of Cruse Bereavement Care services and we contacted them. • The school required someone to come in and talk to the pupils about bereavement and I already knew about Cruse so I went on their website and got in touch. The training has impacted the schools in a number of ways: • Staff assisting pupils who have had recent bereavements • Pupils more aware of support available to them (internal and external to the school) • Enabled school as a whole to work together to tackle bereavement issues What services have you accessed through the Young Cruse project? • Since we have received the training a couple of our pupils have been affected by bereavement. They are still struggling and a number of our staff have been helping the children on a regular basis. • Over 160 of our young people heard the bereavement presentations which took place over two sessions. Both sessions were very helpful and the young people were very positive about the presentations that were delivered. Have you experienced any unintended outcomes whilst participating? • The training has enabled us to be more aware, to have more discussion and to work closer as a team to tackle the issue of bereavement and how young people cope and deal with it and, importantly, how the school can help. 19 RAINBOW MAKERS SUMMARY EVALUATION REPORT YAG member Christopher Murray helping with School Assembly Memory Tree Exercise. Families come together to remember at Young Cruse Christmas party 2012. Young Cruse National Lottery Award Representatives, 2010 20 RAINBOW MAKERS SUMMARY EVALUATION REPORT OUTCOME 5: 1,000 PARENTS AND CARERS WILL BE MORE CONFIDENT IN THEIR CAPACITY TO SUPPORT BEREAVED CHILDREN AND YOUNG PEOPLE QUANTITATIVE FINDINGS Target 1,000 parents and carers will be more confident in their capacity to support bereaved children and young people by the end of project. Total 2008-2012 962 Commentary By the end of Year 4, the programme had almost reached its 5 year target for this outcome. 962 parents and carers have been engaged in the programme and are now more confident to deal with children and young people who have been affected by bereavement. This is a significant area of work given the wider participation benefits for children, young people and their families. It is anticipated the target will be exceeded by the end of the project. QUALITATIVE FINDINGS Has confidence increased as a result of participation in the Young Cruse training programme? Has the training parents and carers received at Young Cruse allowed them to increase their support to others? • 100% of respondents indicated their confidence had increased as a result of taking part in the Young Cruse training. • All of the respondents indicated that they felt they could approach bereavement with children and young people in a more confident and knowledgeable manner. • 100% of respondents indicated they were now better equipped to support others as a direct result of the training received through Young Cruse. • Four of the respondents gave first hand examples of how they have helped children in a school, in their family and among their circle of friends, thanks to the Young Cruse training. How would you rate the standard of training you have received through the Young Cruse project? • The training was very well put together and very interesting • It was very useful, enjoyable and well delivered • I think it was really well delivered. If it was to be improved I would have liked to have seen an interview scenario that focussed on the parent left behind following bereavement as well as the children. • I’m actually a teacher and I’m going to use it in our school. It was very professional and I give it the thumbs up • It was varied and interesting. I really learned a lot and thought those delivering the training were very helpful and interesting. They were keen for everyone to get involved and participate 21 RAINBOW MAKERS SUMMARY EVALUATION REPORT FINANCIAL EFFICIENCY ANALYSIS Effective and efficient financial management of any publicly funded programme is of critical importance. This section provides an analysis of how the financial element of the Young Cruse programme was managed and administered in line with those expectations and guidelines. This analysis of the project’s financial management is based on budgeted costs, actual spend and the variance thereof over a four year period. The Young Cruse programme received support against revenue, capital and overhead cost areas. FINANCIAL MANAGEMENT 2008 – 2012 The programme is now in year 5 of its delivery; however, this analysis will only consider the first full four years of delivery (October 2008 – September 2012). TOTAL COSTS Total project costs to year 4 (2008 – 12) Agreed costs Actual expenditure Variance £ £ £ Total Revenue Costs 293,966 269,321 (24,645) Total Overhead Costs 20,422 20,022 (400) Total Capital Costs 3,500 3,235 (265) Total Expenditure 317,888 292,578 (25,310) Overall the programme (across all budget areas) shows a total spend of £292,578 against a budget of £317,888. This represents an under-spend of £25,310 across all four years. Appropriate measures are in place to ensure that efficient usage of this under-spend is addressed in Year 5 of the programme and beyond. Conall McCooey as a “dancing Christmas tree” at YAG family Christmas Party 2011 22 RAINBOW MAKERS SUMMARY EVALUATION REPORT DEMONSTRATING IMPACT – THE VALUE OF PROJECT DELIVERY This sub section outlines a rudimentary calculation of the per participant cost associated with the programme delivery outcomes. This has been calculated using the overall costs associated with project delivery (including capital, staff salaries, training delivery, equipment etc.) divided by the number of beneficiaries taking part in the programme. This per participant cost has been calculated on one year’s costs using the year four programme finances (October 2011 – September 2012). Some key figures are outlined below: Improve health and well being of children 241 children accessed support from Cruse based on an average of 6 sessions with a volunteer at a cost of £128.24 per child. (total cost to deliver this outcome in year 4 = £30,906 ÷ 241 referrals = £128.24). Volunteer Training and Contribution 37 volunteers equipped to deliver bereavement support to children and young people. Value of volunteer return: £51,548.50 (3,275 hours x £15.74 per hour* and £1,222 total spend on volunteer training including staff salaries etc. = £45,232.38 ÷ 37 volunteers = £1,222) Capacity building of parents, carers and professionals 99 individuals accessed training and education to support bereaved children and young people at a cost of £209 per person. (total cost = £20,742 ÷ 99 = £209). DEMONSTRATING IMPACT – WHAT IMPACT DOES CRUSE MAKE? Young Cruse’s support of bereaved children and young people also has a financial impact on: DHSSPS savings Improved wellbeing of bereaved children and young people Better school attendance / success * Source: Cruse Bereavement Care Report of Council Under the Companies Act 2006 – year ended 31st March 2012 As an example of the financial impact of one of these areas – NHS information outlines some key financial benchmarks: A GP visit costs £36** Medication following GP consultation costs £41** Cognitive Behavioural Therapy (CBT) session costs the NHS £65 for a 55 minute session** The table below outlines a number of assumptions that can be made with relevance to the NHS savings above (these figures are based on annual programme delivery of Year 4 of the Young Cruse Service ): Assumption Relevance to Young Cruse Financial Impact Each client supported by Cruse could save DHSSPS the cost of 3 GP visits 241 clients seen pa (at £108 saved pr client) £26,028 pa 25% of young clients not taking one prescription for drugs 60 clients (at £41 each) £2,460 pa 25% of clients would accessed 6 CBT sessions 60 clients (at £390 each) £23,400 pa have TOTAL ESTIMATED SAVINGS £51,888 pa This total estimated saving of £51,888 per annum is a significant figure and it is worth noting that this calculation does not take account of the potential savings that could be accrued against other statutory service provision outlined opposite (i.e. Better school attendance / success and improved wellbeing of bereaved people) by the Young Cruse project. This therefore provides a strong argument for investment in this project and for vital resources to support bereaved children and young people. ** Source: PSSRU – Unit Cost of Health and Social Care 2011 23 RAINBOW MAKERS SUMMARY EVALUATION REPORT RECOMMENDATIONS The recommendations that arise from this evaluation are outlined below. In total there are 13 recommendations presented for further consideration by the relevant project personnel and key partners. These recommendations are presented with the aim of ensuring programme delivery benefits can be maximised for the remainder of the Big Lottery Funded programme, as well as sustaining the programme in the future. The recommendations have been themed and aligned to key programme areas. Theme Recommendation Programme Development To explore the possibility of increasing the number of access points that children, young people and their families have to Young Cruse support, for example, group and family support, more sessions etc. To implement a proactive measure that ensures parents and carers are contacted and offered further support approximately 6 months after ending support sessions. To offer group work for a range of participants including young clients, parents/carers and volunteers. Volunteer / Training To implement strategies, activities and programmes that aim to retain volunteers involvement and active participation in Young Cruse. To ensure that all Young Cruse supervisors receive a thorough overview of the ACBC training course undertaken by all Young Cruse volunteers. To further develop processes within Cruse in order to ensure that all staff and volunteers receive an organisation induction that is consistent across all seven Cruse areas. To increase the number of training / reward events available to volunteers throughout the year. Structural Programme Support To explore the idea of having a dedicated member of staff in each Cruse Area office to undertake Young Cruse administration work. To clarify and clearly communicate with all stakeholders that Young Cruse is a central / core element of Cruse Bereavement Care’s support services. To ensure there is consistent implementation of Young Cruse policies, procedures and practices (new and existing) across the seven Cruse areas. Marketing and Communication To implement a coordinated and targeted communication programme that ensures Young Cruse is the first support service that families and those children and young people bereaved think of when they need a service of this nature. Financial To continue to explore future funding opportunities that will sustain Young Cruse service delivery post Big Lottery Fund support. Website and Social Media To increase the promotion of the RD4U website and other Young Cruse media tools, particularly to volunteers. 24 RAINBOW MAKERS SUMMARY EVALUATION REPORT SUMMARY AND CONCLUSION This summary evaluation report has been presented to provide a snapshot of the key findings outlined in the full report. Overall the Young Cruse project delivery has largely exceeded the anticipated outcomes in terms of qualitative targets and quantitative data. The majority of this evaluation has focused on the qualitative or real-life impacts that the project has made on participants. Consultation feedback has clearly shown that those who have participated in the programme have experienced extremely positive and life changing benefits from the services they have received through Cruse. From volunteers to parents / carers; young clients to YAG members, each have described how their lives have changed for the better through their involvement in Young Cruse. This project has undoubtedly met and exceeded all expectations in terms of its impact on people’s live – real, genuine, life changing impacts. This is most clearly evident from the drawings produced by the children and young people who participated in the evaluation process. This is a prime example of how a picture does paint a thousand words. -Robert Crowe, Copius Consulting “Hope Day” Participants “Children grieve in much the same way as adults, but they often need a different language for their grief, the language of play and art. In Young Cruse, these are the communication tools we use as we accompany children and young people through grief.” Elaine Roub, Young Cruse Coordinator 25 RAINBOW MAKERS CASE STUDIES BRIDGET MOLLOY (YAG MEMBER) I first heard about Young Cruse when a lady I knew from the Marie Curie Hospice told me about it. At first I wasn’t sure but when I went it really exceeded all of my expectations. For me, in a difficult stage in my life after my mother died, it was a really good opportunity to meet new people, around my age, who were going through the same painful experience. From that aspect alone it was really good for me. As a family we had some pre-bereavement care from the Marie Curie Hospice. That was important for us all, but when I joined YAG it surpassed what I was really expecting. I was unsure, I didn’t know what to expect and I was very nervous about going. It has given me so much confidence in myself, which helped me through my Ancient History and Archaeology degree. I am now going on to study a masters in Egyptology. In terms of the future I want to continue to be involved with helping bereaved young people in any way I can. I want to become a volunteer or remain involved so that I can give back to a place that gave me so much. I would recommend it to anyone I could get my hands on. I thought that I would just have to watch the DVD and if I wasn’t comfortable then I would never have to go back. I have never been so glad in my life that I went back. There were so many positives to come from it. I made new friendships and that just helped me through the grieving process. We talked a lot which was important and probably what a lot of us needed. But it was never awkward. We talked but we also had fun along the way and I now have lifelong friends that I keep in touch with online and on Facebook. It was very positive for me. I learned a lot about myself. Some of the skills I acquired I might not have learned until later in life. Part of the process was talking publicly. You didn’t have to. In fact it took me years to actually build up the courage but now I have done loads of talks and presentations in schools and to groups about what I’ve been through and how YAG has helped. 26 RAINBOW MAKERS CASE STUDIES DAMIAN DOYLE (YOUNG CRUSE VOLUNTEER) I have been involved with Cruse Bereavement for some time through my adult Cruse work. I’m also a part time youth worker so I have had the experience of counselling and bereavement. It was a natural passage then for me to move into Young Cruse to deliver one-to-one bereavement support to children and young people. It’s a challenging role at times but I think the results always make it worth while. I’m not saying that I personally make a big difference but in the majority of cases the results are very positive. You can see a real change in the children and this reflects on the parents too, who feel a sense of comfort that their child is able to open up and deal with their grief. The support I receive in order to do an effective job is excellent. That’s something that I really couldn’t complain about. Young Cruse has more than met my expectations and I really am happy to be part of it. Young Cruse is always changing and moving with the times. It is a really innovative place and this certainly helps myself and the other volunteers to deliver a first class service for the young people. Being involved in Young Cruse has positively impacted upon my life as well. As a parent it has helped me with my own family but also I have learned skills that I can adopt in my day to day work and in my role as a part time youth worker. I would encourage anyone to get involved with Young Cruse, be it as a client, volunteer or YAG member. 27 RAINBOW MAKERS CASE STUDIES OLIVIA CULLENS (SCHOOL PRINCIPAL, CULCROW PRIMARY) It was a very traumatic experience for our school that first connected us with Young Cruse. We tragically lost a young teacher, who was knocked down on March 1, 2012. As you can imagine, it was a very difficult period for everyone at the school, particularly the children but also the staff. It was one of our classroom assistants who suggested we ask Cruse to come into the school. So I rang the Cruse office in Ballymoney and the Coordinator there put us in touch with Lorraine, a Young Cruse volunteer who came out to support us all. It was a terrible time for everyone at the school but Lorraine came in with Maurice, another Young Cruse volunteer, and they knew what to say and do. They were a very calming influence and exactly what we, as a school, needed. Lorraine and Maurice coming in was very beneficial for the children, as they were able to speak to them on their level. It was a tremendous comfort for the children and the volunteers’ ability to connect with them meant the children responded to them and felt comfortable asking questions. Having Young Cruse in the school was also extremely beneficial to the staff. Lorraine spoke to the staff and myself, which enabled us to relay support and guidance to the pupils. She also gave us the tools to help us be a better resource for the children in dealing with their grief. For example, we were able to identify the signs to watch out for if an individual child was particularly finding the traumatic experience hard to deal with. The parents also benefitted from the expertise of Young Cruse. Understandably the parents had concerns of their own but we were able to pass on the contact details of Young Cruse to them and subsequently they helped the parents. We could really see the difference that Young Cruse, and the sessions they completed with the children, made. Young Cruse certainly made a positive impact on their lives and their ability to deal with their grief. The sessions were always sympathetic and conducted in the right way. I think that was the real strength of the support offered to us. For us as teachers, we had so many questions. For instance we were unsure as to what to say, how long do we speak to the children for and when is the time to move on? Young Cruse helped to address these issues. They gave us very good guidance in this respect in a confident and professional manner which we all appreciated. Furthermore, when their immediate work was completed that wasn’t the end of it. Lorraine and Maurice outlined that they were always there for continued support. Even their supervisor was in contact with me to ensure everything was going smoothly. They left contact details so if we, or any of the children needed them six months down the line then we could easily get in touch. 28 RAINBOW MAKERS CASE STUDIES LOUISE GRAY (PARENT) Our family experience with Young Cruse began when my father in law had a massive heart attack and died. My two kids happened to be staying with him on that particular night. My 16-year-old daughter had to give my father in law CPR while my 12-year-old daughter was also there to witness the whole scene. It was a really traumatic experience for them with my father in law eventually dying and the ambulance arriving and taking him away. I must say that everything about them was brilliant. Young Cruse took on both of the girls. They allayed my fears. The 16-year-old had counselling and the wee one had a great volunteer with whom she developed a good friendship. She was able to talk about her experience and it was amazing watching her change and develop. It was so positive for her. I used to think that she was shy, but quickly people were telling me that she was not shy whatsoever. This was a source of comfort to me; it reinforced to me, as a parent, that I had done something right. After the funeral I was looking for somebody from outside of the family to talk to the girls. I wanted them to be able to talk to someone with no pressure on them and without clamming up. I felt that if they spoke to someone outside of the family they could express their inner fears and feel free to talk openly. The trauma of the experience will always be there but Young Cruse has allowed the girls and us as a family to openly discuss it. We still cry about it but we are comfortable talking about it together. We have come to terms with it and now know that in 20 years’ time we won’t be saying that we wished we had confronted our grief at the time. The 16-year-old would talk about anything but my 12-year-old daughter wouldn’t share. She had become quite introverted and I was afraid and worried about her. I didn’t want her to bottle everything up. I also knew that if we went to the doctors that we would have to sit in long queues and potentially get fed a lot of rubbish. My youngest daughter is now involved with the Youth Advisory Group at Cruse. She goes and meets other young people and talks with them about dealing with grief. She even met someone from her school there and it’s great that she can share that experience. I’m so proud of her. It’s amazing that a tragic event has also changed our lives in positive ways. So one night I just went on to the internet and I noticed Cruse Bereavement. Reading through the Young Cruse information I felt that they could offer everything that I was looking for, for my kids. We live in Ards and the Bangor Cruse site was convenient for us so I sent an email and they got back to me. The relationship with Young Cruse just developed from there. Louise gets creative at Young Cruse party 29 RAINBOW MAKERS CASE STUDIES CASE STUDIES RYAN MCCONE (YOUNG CLIENT) I lost several people in my family and it was actually the hospital who recommended Young Cruse to me. I had never heard of them before but it was a difficult time in my life and I thought that I would give it a go. Of course I was slightly nervous about it because I didn’t know anyone and I didn’t really know what to expect. But everyone at Young Cruse was really nice. They talked to me and reassured me. They also listened to what I was saying which was important for me. It was more than that though; I also made some new friends who were going through similar experiences and that helped me. We did some projects and made things like memory jars, and it was really good. I enjoyed it. If any of my friends or family lost a loved one I would tell them to go to Young Cruse because they are there to help. 30 RAINBOW MAKERS ACKNOWLEDGEMENTS THANK YOU To all those who contributed to the “Rainbow Makers” Evaluation, and to all the children and young people who have had the courage to turn to Cruse for support in the last 5 years Youth Advisory Group Members Cruse Volunteers Cruse Staff Members Parents, Carers and Teachers Robert Crowe, Copius Consulting Seahill Media The Big Lottery Fund "Cruse in Northern Ireland has regarded it as a privilege to create these rainbows in so many lives. This report highlights that resources, including the support of a local community, can transform the lives of the next generation.“ Anne Townsend, Director, Cruse in NI 31 Printed by Seahill Media For more information contact: Cruse Bereavement Care www.cruse.org.uk www.rd4u.org.uk National Helpline Number: 0844 477 9400 Cruse NI Regional Office: 028 9079 2419 WORKING TOGETHER TO ACHIEVE TOMORROW’S VISION, TODAY Registered charity: 208078, a company limited by guarantee: 00638709 Registered office: Unit 0.1, One Victoria Villas, Richmond, Surrey TW9 2GW Published by Cruse Bereavement Care, ©2013
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