T R E A T M E N T
S U P P O R T
If you have
PNH or aHUS,
we’re here
for you
T R E A T M E N T
S U P P O R T
Having a rare disease can
be overwhelming. It’s nice
to have someone there
every step of the way to
help answer questions and
provide support.
—Soliris patient
To learn more, just
call 1.888.SOLIRIS
(1.888.765.4747)
to speak directly
with an Alexion Nurse
Case Manager.
Soliris is a prescription
medicine called a monoclonal
antibody. Soliris is used
to treat people with:
• a disease called
Paroxysmal Nocturnal
Hemoglobinuria (PNH).
PNH affects red blood cells
• a disease called atypical
Hemolytic Uremic Syndrome
(aHUS). aHUS affects the
blood system, kidney, and
sometimes other body organs
Soliris works by blocking
part of your immune system.
This can help your symptoms
but it can also increase your
chance for infection.
T R E A T M E N T
OneSource™ can help
We offer personalized support—every step of the way.
Whether you just want to learn more about PNH or aHUS, are
considering Soliris®, or are already on treatment, OneSource
is here to help. Alexion’s objective is that every patient with
PNH or aHUS, who can benefit from Soliris, will have access to
Soliris.
OneSource is a program offered by Alexion, staffed by Alexion
Nurse Case Managers. We provide one-to-one education,
assistance with funding options and access to Soliris, as well
as ongoing treatment support for people living with PNH or
aHUS, and their caregivers.
S U P P O R T
Please see enclosed full prescribing information for Soliris, including boxed WARNING
regarding serious meningococcal infection.
Dealing with a rare disease can be an
isolating experience. Patients often
feel like they’re alone, but that’s why
I’m here. I can hear the relief in their
voices when I help with something
that’s been troubling them. That’s a
good feeling—for them and me.
—Alexion Nurse Case Manager
OneSource: The support you need—designed just for you
People just like you have told us: Living with a rare disease
like PNH or aHUS can be tough. That’s why Alexion created
OneSource.
OneSource is staffed by Alexion Nurse Case Managers, who are
registered nurses with healthcare and insurance experience.
An Alexion Nurse Case Manager can provide support designed
just for you and your healthcare team every step of the way,
whether you are learning more about your disease, exploring
treatment options, getting ready to begin Soliris therapy, or
currently being treated with Soliris.
Just remember, your doctor is the one who decides whether
Soliris therapy is right for you.
When my insurance provider
denied my Soliris coverage,
my heart sank. My Alexion
Nurse Case Manager
answered all of my questions
about insurance coverage
and helped guide me through
the system. We explored every
avenue and, thanks to her
help, my Soliris is covered.
Now I am feeling better and
doing the things I enjoy most.
—Soliris patient
Whether you have a
general question or are
seeking help with funding
options or arranging
your Soliris therapy,
OneSource is here to help.
Just call 1.888.SOLIRIS
(1.888.765.4747).
Remember, information
provided by OneSource is
meant to add to what you
have learned from your
doctor. Only you and your
doctor can decide how best
to monitor and manage
your disease.
At Alexion, we respect patient confidentiality
When you call OneSource™ with a general question about
PNH, aHUS, or Soliris, we don’t need special permission to share
information with you. More often, however, people contact
OneSource when they have specific questions regarding their
own situation. When the conversation involves your medical
condition or financial options, we’ll need your written permission
to work with others to gather and share answers with you.
The process for giving your permission is simple. OneSource will
provide an Authorization Form, which you will need to return to
your Alexion Nurse Case Manager after signing it in 2 places.
This allows us to work with your insurance company or other
financial sources to explore your funding options.
In fact, OneSource takes your privacy seriously. Even with your
permission, we only share personal information with others on
an “as needed” basis.
T R E A T M E N T
S U P P O R T
Please see enclosed full prescribing information for Soliris, including boxed WARNING
regarding serious meningococcal infection.
What can an Alexion Nurse Case Manager
do for you?
Just call 1.888.SOLIRIS (1.888.765.4747), toll free,
and with no obligation, to find:
•Education
Alexion Nurse Case Managers work with people with PNH
and aHUS every day. Feel free to ask them about PNH,
aHUS, or Soliris. They can help provide answers and send
you useful educational resources.
•Assistance with access to Soliris
OneSource can help you and your doctor find your way
through insurance coverage issues, funding options, and
other needs that are important to your treatment plan.
•Ongoing treatment support
If you and your doctor decide that Soliris is right for you,
your Alexion Nurse Case Manager can help answer
questions and let you know what to expect throughout
your Soliris therapy. Whether you are traveling, changing
your insurance, or experiencing a major life event, be it
a marriage, a job change, or even a change of address,
we’re here for you every step of the way.
•Shared connections
If you want to speak with someone who knows what you’re
going through, your Alexion Nurse Case Manager can put you
in touch with another person also living with your disease.
I was really nervous before my
first infusion because I didn’t
know what it would be like. My
Nurse Case Manager walked
me through exactly what would
happen and what to expect on
that day. She helped answer my
questions, which made me feel
more prepared. Thanks to her, I
felt at ease at my first infusion
and they have been going well
ever since.
— Soliris patient
Serious allergic reactions can happen
during your Soliris infusion. Tell your
doctor or nurse right away if you get
any of these symptoms during your
infusion: chest pain; trouble breathing
or shortness of breath; swelling of your
face, tongue, or throat; or feeling faint
or passing out.
You are not alone
Although PNH and aHUS are rare, support is
not hard to come by.
Call OneSource at 1.888.SOLIRIS (1.888.765.4747) to
speak one-to-one with an Alexion Nurse Case Manager.
Case managers can assist you with additional education
and helpful resources, information about insurance issues,
funding options, and ongoing treatment support as you
and your doctor manage your condition. They can even put
you in touch with other people living with your disease.
T R E A T M E N T
S U P P O R T
Please see enclosed full prescribing information for Soliris, including boxed WARNING
regarding serious meningococcal infection.
T R E A T M E N T
S U P P O R T
Available to people with PNH, aHUS,
and their caregivers
Call with no obligation:
1.888.SOLIRIS (1.888.765.4747)
When we decided to attend
our grandson’s graduation, my
Nurse Case Manager arranged
for me to receive Soliris at an
infusion center halfway across
the country. Not only did that
make it possible for me to travel,
but I also was able to relax and
enjoy myself, knowing that I was
not going to miss a scheduled
infusion. More importantly, I
was able to be part of a family
celebration, something I will
appreciate and remember
forever.
—Soliris patient
Support is just a phone call away
1.888.SOLIRIS (1.888.765.4747)
• OneSource™ is a free program that provides education, access to Soliris® therapy, and
ongoing treatment support for people living with PNH and aHUS
• Alexion Nurse Case Managers are registered nurses with healthcare and insurance
experience, who are here to help answer your questions and offer support designed just
for your needs
Important Safety Information
WARNING: SERIOUS MENINGOCOCCAL INFECTIONS
See full prescribing information for complete boxed warning
Life-threatening and fatal meningococcal infections have occurred in patients
treated with Soliris and may become rapidly life-threatening or fatal if not
recognized and treated early.
•
•
•
Comply with the most current Advisory Committee on Immunization
Practices (ACIP) recommendations for meningococcal vaccination in
patients with complement deficiencies.
Immunize patients with a meningococcal vaccine at least 2 weeks prior to
administering the first dose of Soliris, unless the risks of delaying Soliris
therapy outweigh the risks of developing a meningococcal infection.
(See Serious Meningococcal Infections for additional guidance on the
management of the risk of meningococcal infection.)
Monitor patients for early signs of meningococcal infections, and evaluate
immediately if infection is suspected.
Soliris is available only through a restricted program under a Risk Evaluation
and Mitigation Strategy (REMS). Under the Soliris REMS, prescribers must enroll
in the program.
Soliris® is a registered trademark of Alexion Pharmaceuticals, Inc.
© 2014, Alexion Pharmaceuticals, Inc.
All rights reserved. 0614.9.4.1.017