Delirium A Guide for Patients and Families Table of Contents Page 1.......What is delirium? Page 1.......What causes delirium? Page 3.......Who is most likely to get delirium? Page 3.......How is delirium treated? Page 4.......How long does delirium last? Page 2.......What does delirium look like? Page 6.......How can you help? Page 9.......Recovering from Delirium Page 10.....To Learn More About Delirium “My mom doesn't usually act like this...” “My husband isn't himself...” What is delirium? Delirium is a group of symptoms that can happen suddenly with physical illness. Delirium can cause changes in the way a person thinks, feels, and behaves. This happens because the chemistry in a person's brain changes with delirium. Delirium develops quickly over hours or days. These changes come and go throughout the day and night. Delirium is usually temporary. However, it can be very frightening for patients and families. What causes delirium? Delirium can be caused by many things, including: • Illnesses, like infections • Medical conditions, like diabetes • Medical procedures and surgery • Pain or not getting enough sleep • Reaction to medicines • Stressful events • Drug or alcohol withdrawal Page 1 Who is most likely to get delirium? Your risk of getting delirium increases with how sick you are. For example, many patients in the ICU get delirium. How is delirium treated? The treatment for delirium depends on the cause. To find the cause, the healthcare team will order some tests. Your loved one will be watched very closely. Once the cause is found, it is treated. Treatment may include medicines. It will also include a pleasant, quiet environment to help the body and brain heal. Once the cause of the delirium is treated, symptoms will begin to improve. Page 2 How long does delirium last? For most patients, delirium symptoms will go away over a few days to weeks once treatment has started. However, some patients may have problems with their thinking that can last longer. These patients may need more treatment. Unfortunately, it is not possible to tell which patients may have these longer delirium symptoms. The good news is that these problems will most likely go away over time. Page 3 What does delirium look like? Delirium can look different from one patient to the next. Some patients may be: • Withdrawn and quiet • Restless and confused • A combination of both Remember, with all 3 types of delirium, you will see a sudden change in the way your loved one acts, behaves, feels, or thinks. Withdrawn and Quiet With this type of delirium, your loved one may: • Sleep all day and night • Have little energy • Not eat or drink • Not take part in care • Not talk with family or loved ones This type of delirium can be mistaken for depression. Page 4 Restless and Confused With this type of delirium, your loved one may: • Try to get out of bed in an unsafe way • Talk strangely and not make sense • See or hear things that are not there • Not know family or loved ones • Be awake all night • Be very frightened This type of delirium can be mistaken for dementia or a psychiatric illness. A Combination Your loved one may also have a combination of symptoms and be: • Restless and confused at times • Withdrawn and quiet at other times Page 5 How can you help your loved one? Patients with delirium need quiet and calm to help their brains and bodies heal. Noise and activity can add to their confusion or fear. You can help the healthcare team create a healing environment by keeping noise low. Please let family members know that too many visits and phone calls can add to the confusion. Instead limit visits to 1 or 2 close family members. Pick one family member to let others know when the delirium is improving and it is okay to visit. A familiar face and calm presence will help your loved one feel safe! Page 6 Tips to Help Your Loved One • Tell the healthcare team if you see a change in your loved one’s thinking or behavior. • Tell the healthcare team if your loved one is seeing or hearing people who are not there. • Spend quiet time with your loved one to decrease their fear. • Keep the room quiet with less talking and the television off. • Do not ask your loved one a lot of questions. • Let your loved one know they are safe and that you care about them. Page 7 More Tips to Help Your Loved One • Make sure your loved one has their glasses, hearing aids with fresh batteries, and dentures. • Bring in a small item from home, like a family photo or a favorite blanket. This will help comfort your loved one. • Tell the healthcare team if your loved one has a healthcare proxy. Page 8 As You Recover from Delirium It takes time to recover from delirium. While you are recovering, you may: • Feel weak • Have trouble with your thinking for a short period of time • Feel anxious about remembering or not being able to remember what happened in the hospital • Become easily frustrated or upset by these problems The good news is that for most people these problems will go away over time. Page 9 Asking for Help You may need to ask a family member or friend to help during this time. They can help you by: • Letting your doctor know if they see you upset by the amount of time it takes to recover • Filling your prescriptions • Making sure you take your medicines at the right time • Making appointments and helping you keep them • Helping with rides, shopping, and bill paying if needed • Letting your doctor know if you have any sudden changes in the way you have been thinking, feeling, or behaving since leaving the hospital Page 10 To Learn More About Delirium Talk to your nurse and visit the Kessler Library on the First Floor or call 617-732-8103. For more information, please visit the websites below. Delirium Websites • MedlinePlus Delirium www.medlineplus.org • Hospital Elder Life Program www.hospitalelderlifeprogram.org Other Helpful Websites • Medicare www.medicare.gov Page 11 Notes _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ _________________________________________ Page 12 BRIGHAM AND WOMEN’S HOSPITAL 75 Francis Street Boston, MA 02115 617-732-5500 For more information about delirium, please visit the Kessler Library on the First Floor. © BWH 5/12 SR# 0700419
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