AF180° was initiated by the AF Association, AntiCoagulation Europe, the Arrhythmia Alliance, and an Alliance b etween Bristol-Myers Squibb Pharmaceuticals Ltd and Pfizer Ltd (the BMS-Pfizer Alliance) and is funded b y the BMS-Pfizer Alliance. TOP FIVE QUESTIONS TO ASK ABOUT PREVENTING AF-RELATED STROKE af180.co.uk People diagnosed with atrial fibrillation (which you may often hear referred to as “AF”) who are considered to be at risk of having an AF-related stroke, should be offered medicines to help prevent this. The National Institute for Health and Care Excellence (NICE) Guideline on AF (CG180) sets out the types of medicine that should be offered and notes that “Patients should have the opportunity to make informed decisions about their care and treatment, in partnership with their healthcare professionals.” 1 If you have recently been diagnosed with AF, or even if you have been diagnosed with AF for some time, you may find you have questions for your doctor, nurse, or another healthcare professional such as your local pharmacist, about the type of medication you have been prescribed. If you have been diagnosed with AF and believe you have been prescribed aspirin in relation to your AF, you may wish to ask your doctor if this is still appropriate for you. However, do not stop taking any medication you have been prescribed without speaking to your doctor first. NICE recommends that people at risk* of an AF-related stroke should be prescribed one of the following medicines which are known as anticoagulants: 1,2 The following questions have been prepared by our AF180 Degrees Campaign Steering Committee of expert healthcare professionals and patient advocates. These are compiled from the many questions that patients ask them but are the top questions that our experts feel should help you get the most from your conversation with your doctor about medication to prevent an AF- related stroke. • Apixaban • Dabigatran • Edoxaban • Rivaroxaban • Warfarin This means that you should be given a choice of one of these medicines, if your doctor believes that you need medicine to prevent a potential AF-related stroke. Not all of these medicines are appropriate for all patients or all types of AF, so you should discuss with your doctor which of them may be right for you. NICE has also recommended that aspirin taken alone is inappropriate for the prevention of AF-related stroke.1 If you are the family member, carer, or friend of someone with AF, you may also want to ask these questions on behalf of the patient. *People with AF may be at increased risk of blood clots. A stroke can happen if a blood vessel in the brain is blocked by a clot. NICE recommends that your healthcare professional should use risk scores to estimate your risk of stroke and risk of bleeding.3 TOP 5 QUESTIONS 1 Does my diagnosis of AF mean that I am at risk of AF-related stroke and how high is my risk? 2 Do I need medication to reduce my risk of an AF-related stroke? 3 What are the medication options to reduce my risk of an AF-related stroke and what are the differences between them? 4 Are there any restrictions on my lifestyle as a result of the medication I have been/or may be prescribed? Do I need to change my diet? Are there certain foods, drinks, or medicines I should avoid? 5 (If you are an AF patient and think you are currently taking only aspirin for the prevention of AF-related stroke…) Have I been prescribed aspirin to reduce my risk of an AF-related stroke, or for another reason? If your doctor says that you have been prescribed aspirin alone to reduce your risk of AF-related stroke, note the guidance from NICE above – aspirin alone is no longer considered an appropriate treatment for the prevention of AF-related stroke). TIPS TO HELP YOU PREPARE FOR A SHARED AND INFORMED DISCUSSION You can help prepare for a shared and informed discussion with your doctor by using the following tips: • Write down any questions you may want to ask before your visit; •B e prepared to take notes – bring a pen and paper along to the appointment; •C onsider asking a partner, friend or family member to come with you to the appointment for support; •D o not be frightened to say if you do not understand something, or need to ask for something to be repeated or explained in more detail. QUESTIONS OF YOUR OWN You may have other questions that occur to you that you wish to write down before your next appointment. For example, you may have questions on: •T reatment options to treat the AF and its symptoms (as anticoagulants help prevent AF-related stroke but do not treat AF itself or its symptoms) • When your next appointments will be and where •S ources of further information and support, such as the AF Association Arrhythmia Alliance, and AntiCoagulation Europe, including their local patient support groups which may operate in your area 1. NICE, 2014. Atrial Fibrillation: the management of atrial fibrillation: NICE clinical guideline 180. Available at: https://www.nice.org.uk/guidance/CG180 (Accessed: May 2016) 2.NICE, 2015. Edoxaban for preventing stroke and systemic embolism in people with non-valvular atrial fibrillation, Technology Appraisal Guidance. Available at: https://www. nice.org.uk/guidance/ta355/resources/edoxaban-for-preventing-stroke-and-systemic-embolism-in-people-with-nonvalvular-atrial-fibrillation-82602669987781 (Accessed: May 2016) 3.NICE, 2014. Patient Decision Aid: Atrial Fibrillation: medicines to help reduce your risk of a stroke – what are the options?. Available: https://www.nice.org.uk/guidance/ cg180/resources/patient-decisionaid-243734797 (Accessed May 2016) af180.co.uk PP-GIP-GBR-0155 June 2016 AF A ™ www. afa.org .uk
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