ACCELERATING HOPE - Lymphoma

ACCELERATING HOPE
2014 ANNUAL REPORT
Every
7
minutes
someone in the U.S. is
diagnosed with lymphoma
There are more than
700,000
people in the U.S. living
with lymphoma
There are more
than
70
subtypes of lymphoma
Sadly,
20,170
people in the U.S. die from
lymphoma each year
LETTER FROM CHAIRMAN OF THE BOARD
AND CHIEF EXECUTIVE OFFICER
Dear Friends,
Each year, more than 80,000 people in the United
States are diagnosed with lymphoma. That
translates to one American being diagnosed
every seven minutes. The Lymphoma Research
Foundation (LRF) is committed to serving all of
those whose lives have been affected by a lymphoma
diagnosis, while determinedly working to find a
cure through an inventive research program.
We have witnessed tremendous progress in the
field of lymphoma research over the course of
the past year. Each new drug approval, improved
therapy, and scientific advancement points to the
possibilities before us and hope for future discovery.
LRF-funded research in areas such as treatment
pathways, novel therapies for both aggressive
and indolent forms of the disease, and prognostic
indicators and biomarkers have the potential to
change the existing standard of care and improve
the lives of patients everywhere. You will read
about some of these innovative research projects
in this year’s annual report.
The ingenuity and reach of our education
programming and resources, bringing these
advancements to patients, caregivers and
healthcare professionals, ensures we transport
these innovations from the laboratory bench
to the bedside.
None of this progress would be possible without
the support of our many donors, volunteers and
partners. You have enabled us to make great
advances over the past 20 years, and provided a
foundation upon which we can pursue our shared
mission. The Lymphoma Research Foundation’s
ability to meet the evolving needs of patients and
survivors and to invest in the most promising
lymphoma research is made possible through
your generous commitment.
As we mark the conclusion of a year of
unprecedented advancement, we reflect both on
the progress made and the work yet to be done.
We must remain steadfast in our efforts until we
can say that every seven minutes someone is
cured of lymphoma.
Steven J. Prince
Chairman of the Board
Meghan E. Gutierrez
Chief Executive Officer
2014 Annual Report 1
ACCELERATING RESEARCH
This past year, the U.S. Food and Drug
Administration (FDA) approved an unprecedented
number of lymphoma and chronic lymphocytic
leukemia (CLL) drugs. Many of these new treatment
options represent the first drugs approved in many
years, and in some cases decades, for certain
subtypes of these diseases. During this time of
great promise and hope for lymphoma research, the
Lymphoma Research Foundation continued to
meaningfully impact the field by leading the way in
investing in the future.
Since its inception, the Lymphoma Research
Foundation has been a pioneer in funding only the
most promising research proposals; ideas that have
the greatest ability to positively impact the field and
move the research agenda forward in a way that
benefits the greatest number of patients. Through our
unique commitment to young investigators, we ensure
that the best and brightest young minds are focused
on studying lymphoma. We have already seen the
impact of this research on the lives of patients and
their families: LRF’s Young Investigator Grantees are
playing critical roles in the development of cutting
edge treatment options.
The Lymphoma Research Foundation is committed
to providing young hematologists/oncologists with
as many opportunities to grow and develop as
possible through a variety of avant-garde programs.
2 Lymphoma Research Foundation
The Lymphoma Clinical Research Mentoring
Program (LCRMP) is one such initiative that has
become a hallmark of LRF’s innovative approach to
research. LCRMP offers mentoring and education to
hematology/oncology fellows and junior faculty
dedicated to clinical research in non-Hodgkin and
Hodgkin lymphoma. Program participants, called
LRF Scholars, attend and participate in a week-long
intensive introductory workshop and follow-up
programming intended to enhance the ability of the
LRF Scholars to successfully design and administer
clinical research studies and successfully secure
future grant funding. This unique program is
designed to leverage the vast experience of the
Foundation’s world renowned Scientific Advisory
Board to ensure that the next generation of
lymphoma investigators can continue to
meaningfully impact the field.
In addition to Young Investigator Grants, LRF is
also proud to offer Disease-Specific Focus Area
grants, given to senior researchers studying specific
subtypes and/or patient populations, including but
not limited to:
• Adolescent/young adult (AYA) lymphomas
• Chronic lymphocytic leukemia (CLL)
• Diffuse large B-cell lymphoma (DLBCL)
• Follicular lymphoma (FL)
• Mantle cell lymphoma (MCL)
2014 Annual Report 3
ACCELERATING RESEARCH (CONTINUED)
In FY14, the Lymphoma Research Foundation
awarded grants to the following investigators
committed to the study of lymphoma:
Laura Belver, PhD, The Role of NOTCH1 in CLL
Joshua Brody, MD, LRF Scholar, Development of
Phase I-II CDZ301+ polyICLC for iNHL
Ryan Cassady, MD, LRF Scholar, Safety and Efficacy
of Brentuximab Vedotin Added to ICE for Relapsed/
Refractory Hodgkin Lymphoma
Jonathon Cohen, MD, LRF Scholar, Post-transplant
Lenalidomide Maintenance in Mantle Cell Lymphoma
Alexey Danilov, MD, Pharmacologic Reprogramming
of the Microenvironment Signaling in CLL
Joseph Dekker, PhD, The Role of the FOXP1
Transcription Factor in Diffuse Large B-Cell
Lymphoma
Catherine Diefenbach, MD, A Novel Multimodality
Immune-based Treatment Platform in Advanced
Mycosis Fungoides
Anita Kumar, MD, LRF Scholar, Randomized Phase
II Study of Brentuximab Vendotin + Chemotherapy
vs. Brentuximab Vendotin + Chemoradiotherapy
Catherine Lai, MD, LRF Scholar, Short Course
EPOCH-RR for Germinal Center Diffuse Large
B-Cell Lymphoma
Rui Lu, PhD, Novel Approaches for Efficient and
Tissue-specific Inhibition of EZH2/1 Hyperactivity
in Lymphomas
Feilong Meng, PhD, Mechanisms of ActivationInduced Cytidine Deaminase Targeting in
Germinal Center
Oreofe Odejide, MD, Processes and Outcomes of
End-of-Life Care for Lymphoid Malignancies
Deborah Stevens, MD, LRF Scholar, A Phase II
Clinical Trial of KPT-330 in Patients with Richter’s
Transformation.
4 Lymphoma Research Foundation
Therapies continue to become more targeted
and tolerable for lymphoma patients. Researchers
are also refining diagnostic and prognostic
standards, combating drug resistance, and seeking
standards of care that improve patients’ quality
of life while reducing risk and toxicity. We are now
also seeing the advances surrounding oral agents
being leveraged to treat a variety of the subtypes
of lymphoma.
Through the extensive research made possible
by the Lymphoma Research Foundation and its
supporters, the medical community now has a
better understanding of molecular pathways, which
are essentially the switches that turn lymphoma
cells on or off. Understanding these pathways is
critical and has already led to the development of
new or improved treatment options for patients
and caregivers.
All of these novel treatment options represent an
exciting and historic step forward in our mission
to eradicate lymphoma. LRF remains dedicated
to identifying a cure for lymphoma through our
research program. To-date, the Foundation has
funded more than $55 million and currently has
$11.6 million invested in active lymphoma research.
The research funded by the Lymphoma Research
Foundation is an important driver of hope, not
only for patients and their families, but also for
healthcare professionals working diligently to
find a cure.
“My chronic lymphocytic leukemia journey began in 2009 with a watch
and wait approach, delaying treatment as long as possible to let
better treatments develop. I helped by raising funds through the LRF
Research Ride and volunteering as an LRF Ambassador. The waiting
strategy paid off—research has moved faster than I ever imagined. Although I now require treatment, I’m participating in a clinical trial
for a new, super targeted drug that was just a hope when I started this
journey. Thank you, LRF! ”
— Geoff Grubbs
CLL Survivor
Washington, DC
2014 Annual Report
5
”I was fortunate to be a member of LRF’s inaugural Lymphoma Clinical Research Mentoring
Program (LCRMP), which provided an educational foundation for clinical investigation,
career development advice, and mentorship during my fellowship. During the course
of the program, I greatly benefitted from the collective wisdom from lymphoma experts
across multiple institutions on many topics including clinical trial design, grant writing
and building a research team. I am grateful for the ongoing mentoring relationships with
leaders in lymphoma research across the country. Due to the skills I learned through the
clinical mentoring program, I recently was able to secure an LRF Career Development
Award, which is very important for my early career development. I do believe my application
was greatly improved because of the advice and insights I received during the LCRMP
workshop. I am extremely grateful to have had the opportunity to participate in the
LCRMP and it has already proven to be successful for my lymphoma career.”
— Anita Kumar, MD
LRF Scholar and Assistant Attending Physician
at Memorial Sloan Kettering-Cancer Center
New York, NY
6
Lymphoma Research Foundation
$55
million
invested in lymphoma
research to-date
$11.6
million
in active lymphoma
research grants
45
world leading
lymphoma experts
comprise LRF’s Scientific
Advisory Board
2014 Annual Report 7
ACCELERATING OPTIMAL PATIENT CARE
A key part of the LRF mission is to better serve those
affected by the disease. The Lymphoma Research
Foundation places great importance on the role of
professional education in ensuring that all medical
professionals are able to provide evidence-based
care to their patients. Understanding our role as the
premier convening entity in the lymphoma
community, we continue to offer a wide range of
lymphoma-focused educational activities designed
to increase the knowledge, skills and performance
of healthcare professionals and to maximize the
quality of care for all lymphoma patients.
For years, LRF has brought together the top minds
in the oncology community for our in-person
continuing medical education meetings, including
our renowned Lymphoma Rounds and Caring for the
8 Lymphoma Research Foundation
Lymphoma Patient programs. Through the Lymphoma
Rounds program, healthcare professionals network,
share best practices and learn the latest information
on new therapies and advances in the management
of lymphoma through interactive case studies
presented by lymphoma experts in the area.
Similarly, Caring for the Lymphoma Patient meetings
allow nurses to learn from and network with their
peers in a collaborative environment in an effort
to improve care for patients across the country.
The Lymphoma Research Foundation’s professional
education programs aim to ensure that healthcare
professionals are able to provide their patients with
the most up-to-date and effective treatments possible.
2014 Annual Report 9
“When we started the Lymphoma Rounds program in Chicago more than five years ago, our
goal was simply to help keep the professional community abreast of developments in the
realm of treating blood cancers. The hope was that we could provide better care for patients
by keeping our colleagues updated on major progress occurring rapidly in lymphomas.
Over the years, however, the Lymphoma Rounds program has blossomed and is occurring in
major cities throughout the country and has evolved into a hallmark professional education
event for the entire hematology community; a true marketplace of ideas for leading minds
to challenge themselves, to grow and to better care for lymphoma patients; and for that,
we have LRF to thank.”
Stephanie A. Gregory, MD
Rush University
Chicago, Illinois
10 Lymphoma Research Foundation
1,984
professionals participated
161
institutions represented
in LRF’s professional
at professional education
education programs
programs in FY14
in FY14
74
23
presented in FY14
programs held
interactive cases
professional
in FY14
2014 Annual Report 11
ACCELERATING OPTIMAL PATIENT CARE
As treatment options accelerate for lymphoma
patients, it is critically important for our federal
government to keep pace in terms of cancer care
and research funding. Through the LRF Advocacy
Program, the Foundation provides a platform for
patients, families, and medical advocates to educate
and influence key decision makers.
The Lymphoma Research Foundation and its
network of more than 5,000 advocates have been
on the forefront of the push to attain the U.S. Food
and Drug Administration’s “breakthrough therapy”
designation, and in 2014, the effects of the new
classification began to bear fruit. The breakthrough
designation label, intended to speed the
development of and access to the most critical,
life-saving drugs, resulted in the expedited approval
of many new lymphoma treatments. We now have
new front line treatment options available for
chronic lymphocytic leukemia (CLL), as well
as novel options for patients with relapsed or
refractory disease in CLL, peripheral T-cell
lymphoma, mantle cell lymphoma, follicular
lymphoma, and cutaneous T-cell lymphoma—
all which came to market as a result of this new
FDA categorization. For patients with particular
subsets of lymphoma, we now are able to provide
hope where there once was none.
12 Lymphoma Research Foundation
(CONTINUED)
In an effort to leverage LRF’s policy expertise and
capitalize on the shared mission of partner patient
advocacy groups, the Foundation also developed
the Lymphoma Education and Advocacy Partners,
or LEAP, program. This coalition of likeminded
organizations is dedicated to nurturing a public
policy environment that has the greatest potential to
impact funding for lymphoma research and support
for the policies that directly impact members of the
lymphoma community. Joining together with the
Cutaneous Lymphoma Foundation (CLF), the
International Waldenstrom’s Macroglobulinemia
Foundation (IWMF), the T-cell Leukemia Lymphoma
Foundation (TCLLF) and The Double Hit Lymphoma
Foundation (TDHLF), the Lymphoma Research
Foundation was able to lead a reinforced charge
on a national level around cancer care planning,
lymphoma clinical trials, and oral chemotherapy
parity as centerpieces of our policy priorities in 2014.
The momentous efforts we’ve taken in accelerating
better care for patients stem from our commitment
to those we serve every day. The trust that our
constituents have placed in us is not one we take
lightly, evident in our continued advocacy efforts.
As federal funding for research decreases, the role
of patient advocacy efforts becomes increasingly
important in our efforts to provide hope to all those
affected by this disease.
“Through my legislation, the Planning Actively for Cancer Treatment (PACT) Act, I have been
honored to work with the Lymphoma Research Foundation to improve access to quality
cancer care planning for all patients affected by a cancer diagnosis. I am proud to stand
with the Foundation as we work together to accelerate hope for more people.”
– U.S. Representative Lois Capps (D-CA)
2014
2014 Annual
Annual Report
Report 13
14 Lymphoma Research Foundation
ACCELERATING LYMPHOMA EDUCATION
Empowering patients to have the knowledge needed
to become their own health advocate has always
been central to the Foundation’s mission and the
need for timely and comprehensive information has
never been more critical. With the pace of
lymphoma discoveries accelerating, the need to
provide accurate and timely information to patients
has never been greater.
In 2014, the Lymphoma Research Foundation
expanded its educational resources for lymphoma
patients, families and caregivers. The Foundation’s
in-person education programs, one of the hallmarks
of the organization, are an important way for those
affected by lymphoma to learn about the disease
and to take an active role in their own health care.
LRF education programs reach people in 65
different countries, and LRF has a presence in all
50 states including the District of Columbia. Each
year, more than 70,000 people benefit from LRF
patient programs and services and LRF’s digital
resources are accessed by more than 1 million
people annually.
Understanding that lymphoma is an extraordinarily
complex group of diseases, LRF’s helpline staff
equips thousands of people each year with the
appropriate educational materials and answers
regarding their particular lymphoma diagnosis
and treatment options. The Helpline’s trained staff
members are available to answer questions and
provide individual support regarding information
on diagnosis, types of lymphomas, treatment
options, potential side effects, and up-to-date
research findings; referrals to financial assistance
programs, legal and insurance help; and clinical
trial searches based on the patient’s diagnosis and
treatment history.
Access to accurate and up-to date information is a
critical part of the lymphoma journey. Education can
be one of the most empowering things for a patient
and his / her family. Education can provide context,
options, and most importantly, hope for all of those
affected by lymphoma.
2014 Annual Report 15
“LRF has provided the basis for research advancements, patient support and
education that has dramatically changed the way lymphoma patients navigate
their disease today versus 20 years ago when I was first diagnosed—giving
patients a more hopeful outlook than ever before. Due to all of the progress
we have made in the last two decades, when my lymphoma recently relapsed
there were new treatment options, targeted therapies, and more tolerable
medications available. Perhaps most importantly though, this time, there was
the Lymphoma Research Foundation.”
— Jerry Freundlich
Co-founder of the Lymphoma Research Foundation
and Diffuse Large B-Cell Lymphoma Survivor
New York, NY
16 Lymphoma Research Foundation
lymphoma.org
1,000,000
people accessed the
Foundation’s website in FY14
70,000
individuals served by
LRF education programs
and services in FY14
6,175
people participated in a
live educational program
in FY14
2014 Annual Report 17
ACCELERATING LYMPHOMA EDUCATION (CONTINUED)
LRF provides materials in a variety of forms so that
people can access information in whichever way they
learn best. This has enabled the Foundation to have
disease information at the fingertips of more people
than ever before.
Whether through in-person programs, podcasts,
teleconferences, booklets and factsheets, disease
specific websites or social media, LRF has played
a vital role in advancing how people learn about and
manage their lymphoma. The Foundation has been
a leader in providing information to those affected by
lymphoma across all mediums.
This is most evident with Focus On Lymphoma, a first
of its kind mobile application that provides patients
and caregivers comprehensive content based on
18 Lymphoma Research Foundation
their lymphoma subtype and tools to help manage
their diagnosis and treatment. The app allows users
to record doctor sessions, manage medications,
keep track of blood work results and document
treatment side effects. Named one of the best health
apps by Apple in FY14, the app provides patients with
the ability to learn, track, and connect to vital
resources in a way never before available.
The development of the app reflects LRF’s
commitment to providing patients and their loved
ones with whatever tools they may need to take
control of their own care. Every feature is designed
with the patient in mind, as we, as an organization
continue to look for ways to empower our
constituents in their fight against lymphoma.
74,581
LRF lymphoma publications
downloaded in FY14
59,136
social media followers in FY14
8,348
Focus on Lymphoma mobile
app downloads in FY14
2014 Annual Report 19
“I tell all of my lymphoma patients, especially those who are newly diagnosed, about
LRF’s Focus On Lymphoma mobile app. It is such a wonderful tool for patients and
many of mine have returned to tell me how extremely valuable they have found it.
The app provides users with the ability to quickly and easily tap into the wealth of
resources offered by the Foundation, while also giving them the tools needed to
effectively manage their disease.”
— Ann LaCasce, MD
Dana-Farber Cancer Institute
Boston, MA
20 Lymphoma Research Foundation
“I discovered the Lymphoma Research Foundation when I was
searching on my phone for disease information—and it changed my
life. I don’t know what my family and I would have done if it wasn’t for
the Lymphoma Research Foundation. We would literally be lost.”
— Lauren Greene
Diffuse Large B-Cell Lymphoma Survivor
Roseville, CA
2014 Annual Report 21
ACCELERATING LYMPHOMA AWARENESS
Each year, approximately 67,000 adolescents and
young adults are diagnosed with cancer—and 1 out
of every 5 of those diagnoses is lymphoma. To raise
awareness of lymphoma among this cohort and to
better support this traditionally underserved
population, the Lymphoma Research Foundation
launched its first-ever Adolescent and Young Adult
(AYA) Initiative in 2014. The four major pillars of the
initiative include a national AYA-targeted marketing
and communications campaign; unique educational
and supportive care programming; research
initiative; and public policy and advocacy effort.
Communicating the unique needs of the AYA
lymphoma population is an important first step
toward increasing public and professional awareness
and encouraging people to take action to change the
future for those affected by lymphoma. The initiative’s
marketing and communications campaign will raise
awareness about lymphoma and its prevalence,
particularly among 18-39 year olds, while
emphasizing the need for accurate and timely
diagnoses for the AYA population.
A longstanding priority for the Foundation is to
educate patients, caregivers and health care
providers about the unique needs of those
individuals who receive a lymphoma diagnosis.
This effort can be complicated for the AYA
population, who may receive a delayed diagnosis
and be unfamiliar with the health care system.
To address these challenges, the Foundation will
create a tool kit that can be utilized by patients,
caregivers, health care providers and college health
systems that can assist AYA lymphoma patients
22 Lymphoma Research Foundation
navigate their diagnosis, treatment planning and
transition to long-term survivorship.
As part of the initiative, LRF will also seek to
prioritize and contribute to the body of evidence
on the treatment of AYA lymphoma patients by
developing a correlative clinical/translational grant
opportunity to study AYA lymphomas. The goal of the
new grant program will be to fund adjunct studies to
complement and synergize with ongoing lymphoma
clinical trials within the National Cancer Institute
(NCI) Cancer Cooperative Groups. Grant applications
will be required to clearly focus on lymphoma
research and have a high degree of relevance to
research questions pertinent to AYA lymphomas.
Grantees will be selected by the Foundation’s expert
Scientific Advisory Board, utilizing a peer-review
process based upon the model used by the National
Institutes of Health (NIH).
For the Public Policy and Advocacy pillar, LRF will
work in partnership with members of the United
States Congress to ensure that elected officials
understand the challenges faced by AYA patients
and make their needs a national priority.
The Foundation’s Adolescent and Young Adult
Initiative is supported by The Paul Foundation,
Founding Sponsor of the initiative, as well as
national sponsors that include The Ferriday Fund
Charitable Trust, Genentech, and Teva Oncology.
Through this initiative, the Lymphoma Research
Foundation and its partners seek to provide hope
to all those affected by lymphoma and change the
future for young adults faced with this disease.
“The Paul Foundation is the brainchild of my darling son, Paul Walker Schaffel who had the
presence of mind before he died to ask his family to establish a foundation whose mission
was to prevent what happened to him as a young adult with lymphoma from happening
to anyone else. The natural outgrowth of Paul’s selfless wish is the establishment of the
Adolescent and Young Adult Initiative (“AYAI”) with our dedicated and knowledgeable
partner LRF. The AYAI multi-disciplinary approach will provide healthcare professionals,
family members and others with the necessary tools to bring Paul’s wish to fruition.
The Paul Foundation’s commitment to AYAI is unwavering as we believe it will indeed
give families and young adult patients with lymphoma hope for their future, and the
compassionate care each young adult so deserves.”
— Ellen M. Walker, Esq.
Chair of the Board of The Paul Foundation
.
2014 Annual Report 23
“I always thought that lymphoma was something that only affected people when they were
older—but that is a big misconception. Since being diagnosed in my 20s, I’ve noticed a
major disconnect between the public perception of what the ‘lymphoma community’ looks
like demographically and who I see struggle with the disease every day. I am living proof
of both the benefit of lymphoma awareness in the young adult community and the impact
of the Lymphoma Research Foundation’s support and resources for young patients; I am
confident that together, we can erase lymphoma!”
— Erica Campbell
Hodgkin Lymphoma Survivor
Washington, DC
24 Lymphoma Research Foundation
“I was diagnosed with Hodgkin lymphoma when I was just 20 years old
and I am currently in my fourth bout with the disease. I know firsthand
the importance of raising awareness of lymphoma and its prevalence,
especially among young adults. As I continue to fight for remission and
ultimately a cure, I remain hopeful knowing that LRF is in my corner
through it all.”
– Anthony Daniels
Hodgkin Lymphoma Survivor
Ridgewood, New Jersey
7MINUTES
EVERY
SOMEONE IN THE U.S. IS DIAGNOSED WITH LYMPHOMA
lymphoma.org 25
ACCELERATING LYMPHOMA AWARENESS (CONTINUED)
The lymphoma community is an incredibly strong
and resilient one: every day, we see the impact that
sharing stories of strength have on the outlook of
the patients we serve. With the belief that
awareness leads to hope, LRF cemented itself
further as a leader in raising public awareness
of lymphoma in 2014.
Through traditional, digital and innovative
communications and outreach strategies, the
Foundation seeks to put disease information at
the fingertips of more people than ever before.
If we hope to be successful in our long-term goal
of eradicating lymphoma, the dialogue around the
disease needs to be pervasive; it is only after we
get people talking about lymphoma that we
can get them talking about how to end it.
Distinguished events such as our Annual Gala,
South Florida Fashion Luncheon and Golf Event
furthered their place as hallmarks of the LRF
26 Lymphoma Research Foundation
identity. Active-lifestyle events like our Lymphoma
Walks and Research Ride inspired thousands to join
LRF’s movement, all while raising critical funds to
support LRF’s mission. LRF’s Giving Tuesday
campaign and award-winning Twitter chat expanded
the Foundation’s reach into the digital world,
allowing us to engage new audiences and potential
advocates. Major national awareness campaigns
such as Light it Red for Lymphoma during Blood
Cancer Awareness Month helped put both
lymphoma and the Lymphoma Research Foundation
firmly into the popular discourse and the national
medical dialogue.
The underlying thread among all of our outreach
remains the goal of putting the most vital
information into the hands of the people who need
it the most. We envision a lymphoma community
that doesn’t just grow in size, but grows in strength.
We know that the way to ensure this hopeful future
is through awareness and fundraising.
R
“Pacific Science Center has been proud to Light it Red for Lymphoma
for the past two years. Participating in this important campaign not
only sheds a light on lymphoma, but gives people hope. We are proud
to partner with the Lymphoma Research Foundation and let all those
who are affected by this blood cancer know that they are not alone in
their race to find a cure.”
— Elin Waldman
Marketing and Sales Director, Pacific Science Center
Seattle, WA
2014 Annual Report 27
FINANCIALS
REVENUES
PROGRAM SERVICE
EXPENSES
EXPENSES
nNet assets released
nResearch
nProgram services
from restrictions
$3.0 million [34%]
n Special events $3.0 million [35%]
nContributions $2.7 million [31%]
$2.5 million [33%]
nEducational programs
and patient services
$3.3 million [44%]
nCommunications
and advocacy
$1.7 million [23%]
The Condensed Balance Sheets and Statements of Activities of the Lymphoma Research
Foundation as of June 30, 2014 and 2013 have been derived from LRF’s audited financial
statements. The Foundation’s complete set of audited financial statements and related
information can be found on the Foundation’s website, lymphoma.org/annual report.
The Financial Statements have been audited by KPMG LLP.
28 Lymphoma Research Foundation
$7.5 million [76%]
nFundraising
$2.0 million [20%]
nAdministration
$0.4 million [4%]
LYMPHOMA RESEARCH FOUNDATION BALANCE SHEETS (in thousands)
as of June 30, 2014 and 2013
2014
2013
$ 1,154
$ 1,120
Assets
Cash and cash equivalents
Investments 9,57612,002
Contributions receivable
454
637
Prepaid expenses and other assets
291
351
Total assets
$ 11,475
$14,110
$ 4,000
$ 6,437
Liabilities & Net Assets
Research grants payable
Refundable advances
89
158
Accounts payable and accrued expenses
403
298
Accrued salaries and vacation
275
268
Total liabilities 4,7677,161
Unrestricted net assets
2,347
3,552
Temporarily restricted net assets 4,361
3,397
Total net assets
6,708
6,949
Total liabilities and net assets
$ 11,475
$14,110
LYMPHOMA RESEARCH FOUNDATION CONDENSED STATEMENT OF ACTIVITIES (in thousands)
for the year ended June 30, 2014 and 2013
Contributions & Revenues
Special events revenues & contributions $ 5,677
$ 5,231
Investment & other income
50
130
Contributions & revenues before net assets released from restrictions
5,727
5,361
Net assets released from restrictions
2,953
5,046
Total contributions & revenues 8,680 10,407
Program services 7,5388,717
Supporting services
2,347
2,258
Total expenses 9,88510,975
Increase/(Decrease) in unrestricted net assets (1,205)
(568)
Increase/(Decrease) on temporary restricted net assets (302)
(Decrease) in net assets
965
$ (240)
$(870)
2014 Annual Report 29
LYMPHOMA RESEARCH FOUNDATION
BOARD OF DIRECTORS
2014 - 2013 Membership
Steven J. Prince
Chairman
Purchase, NY
Jerry Freundlich
Secretary
New York, NY
Tom Condon
Treasurer
Santa Barbara, CA
John P. Leonard, MD
Chair, Scientific Advisory Board
New York, NY
Morton Coleman, MD
Chair, Medical Affiliates Board
New York, NY
Joseph R. Bertino, MD
New Brunswick, NJ
Marnie Gordon
New York, NY
Keith Hoogland
Glenview, IL
Bob McAuley
Charlottesville, VA
John A. Nelson
Westport, CT
Leigh Olson
Miami Beach, FL
Miriam Phalen
New York, NY
Donna Reinbolt
Houston, TX
Errol M. Cook
Boca Raton, FL
Leonard M. Rosen
In Memoriam
New York, NY
Robert E. Fischer
New York, NY
Sheri Rosenfeld
New York, NY
Barbara Freundlich
New York, NY
30 Lymphoma Research Foundation
Michael Werner
Woodridge, IL
“The Raise it for Research portion of LRF’s annual gala is not only
exciting, but critically important. At this year’s event, we raised more
than $337,000 for lymphoma research programs in just 15 minutes—
programs that have the potential to provide lasting hope to the more
than 80,000 patients diagnosed with lymphoma each year.”
— Errol Cook
Diffuse Large B-Cell Lymphoma Survivor
Boca Raton, FL
2014 Annual Report 31
LYMPHOMA RESEARCH FOUNDATION
SCIENTIFIC ADVISORY BOARD
2014 - 2013 Membership
John P. Leonard, MD
Chair
New York-Presbyterian Hospital
Weill Cornell Medical Center
Richard I. Fisher, MD
Past Chair, 2008-10
Fox Chase Cancer Center-Temple Health
Temple University School of Medicine
Leo I. Gordon, MD, FACP
Chair Elect
Northwestern University Medical School
Christopher R. Flowers, MD, MS
Winship Cancer Institute of
Emory University
Ranjana Advani, MD
Stanford University Medical Center
Nathan H. Fowler, MD
The University of Texas
MD Anderson Cancer Center
Stephen Ansell, MD, PhD
Mayo Clinic
Owen O’Connor, MD, PhD
New York-Presbyterian Hospital
Columbia University Medical Center
Laura Pasqualucci, MD
Columbia University
Herbert Irving Comprehensive
Cancer Center
Oliver Press, MD, PhD
Past Chair, 2006-07
Fred Hutchinson Cancer Research Center
University of Washington Medical Center
Nancy Bartlett, MD
Washington University Medical School
Arnold S. Freedman, MD
Harvard Medical School
Dana-Farber Cancer Institute
Stephen H. Bernstein, MD
University of Rochester Medical Center,
James P. Wilmot Cancer Center
Jonathan Friedberg, MD
University of Rochester
James P. Wilmot Cancer Center
Kristie A. Blum, MD
The Ohio State University
Comprehensive Cancer Center
Randy Gascoyne, MD
BC Cancer Agency
Eduardo Sotomayor, MD
H. Lee Moffitt Cancer Center
Andre Goy, MD
John Theurer Cancer Center
Louis M. Staudt, MD, PhD
National Cancer Institute
Center for Cancer Research
Jonathan Chan, MD
City of Hope Medical Center
Bruce D. Cheson, MD, FACP, FAAAS
Immediate Past Chair
Georgetown University Hospital
Lombardi Comprehensive Cancer Center
Morton Coleman, MD
New York-Presbyterian Hospital
Weill Cornell Medical Center
Carlo M. Croce, MD
The Ohio State University
Comprehensive Cancer Center
Myron S. Czuczman, MD
Roswell Park Cancer Institute
Riccardo Dalla-Favera, MD
Columbia University
Herbert Irving Comprehensive
Cancer Center
Sandeep Dave, MD, MS
Duke University
Stephanie Gregory, MD, FACP
Rush University Medical Center
Thomas M. Habermann, MD
Mayo Clinic
Elaine S. Jaffe, MD
National Cancer Institute
Brad S. Kahl, MD
University of Wisconsin
Carbone Cancer Center
Sonali M. Smith, MD
The University of Chicago
Julie M. Vose, MD, MBA
University of Nebraska Medical Center
Michael E. Williams, MD
University of Virginia School of Medicine
Wyndham Wilson, MD, PhD
National Cancer Institute
Thomas Witzig, MD
Mayo Clinic
Neil E. Kay, MD
Mayo Clinic
Anas Younes, MD
Memorial Sloan Kettering Cancer Center
Ann S. LaCasce, MD
Harvard Medical School
Dana-Farber Cancer Institute
Andrew D. Zelenetz, MD, PhD
Memorial Sloan Kettering Cancer Center
Izidore Lossos, MD
University of Miami
Sylvester Comprehensive Cancer Center
Kieron Dunleavy, MD
National Cancer Institute
Ari Melnick, MD
New York-Presbyterian Hospital
Weill Cornell Medical Center
Kojo S.J. Elenitoba-Johnson, MD
University of Michigan Medical School
Craig Moskowitz, MD
Memorial Sloan Kettering Cancer Center
32 Lymphoma Research Foundation
Kanti R. Rai, MD
Hofstra North Shore-LIJ School
of Medicine
Members Emeritus
Joseph R. Bertino, MD
Founding Chair
UMDNJ-Robert Wood Johnson
Medical School
The Cancer Institute of New Jersey
Charles Coltman, MD
San Antonio Cancer Institute
Saul Rosenberg, MD
Stanford University School of Medicine
“LRF’s education programs are second to none. These programs
enable patients and their loved ones to learn about their lymphoma
and the latest in research for their specific disease area. Time and
time again, we see patients leave LRF’s programs with a new found
sense of hope that stems from the knowledge we have been able to
impart. In that regard, the hope and patient empowerment that LRF
provides through education is immeasurable.”
— John Leonard, MD
Weill Cornell Medical Center
Chairman of LRF’s Scientific Advisory Board
New York, NY
2014 Annual Report 33
INDIVIDUAL, ESTATE AND FOUNDATION DONORS
$400,000+
The Paul Foundation* (see Addendum)
$100,000 to $399,999
The Condon Family Foundation
The Jerome and Elaine Nerenberg
Foundation
Prince Family Foundation
$50,000 to $99,999
Jane and James Stern
$25,000 to $49,999
Nonie and Larry Akman/Community
Foundation - National Capital Region
and The England Family Foundation
Timothy J. Curt and Dona Bissonnette
Arlene and Robert Fischer/Danziger
Foundation, Inc.
Frank M. Ewing Foundation, Inc.
Barbara and Jerry Freundlich
Susan and Arthur Goldstone
Larry and Marcia Greene
The Gruen Living Trust
The Jane O. Himes Trust
Mr. Edward E. Matthews
Eugene and Mary Murphy
Jane and John Nelson
Michael J. Novoson Revocable Trust
Leigh and Cory Olson
Judy and Pat Riordan
Lois and Jerry Rosenblum
Mr. and Mrs. Norton Sarnoff
Estate of Elaine Sicklick
The Starr Foundation
The John and Louise Steegstra
Memorial Fund
Susan and Jeffrey Sussman
The David Tepper Charitable
Foundation Inc.
Florence and Robert Werner
Michael and Laura Werner
Mr. and Mrs. Bruce Yablon
34 Lymphoma Research Foundation
$10,000 to $24,999
Anonymous (3)
John W. Anderson Foundation
David R. and Patricia D. Atkinson/
The David R. and Patricia D. Atkinson
Foundation
Nancy and Robert Blank
Caccomo Family Foundation
Andrew Cader Foundation Inc
Mr. Scott Carney
Gladys and Errol Cook
The Giles Family Foundation
David and Patricia Giuliani
Mr. and Mrs. Michael Goldstein
The Maurice R. and Corinne P.
Greenberg Foundation, Inc.
The Griffin Family
Barrie and Glen Kassan
Sid and Ruth Lapidus
Mrs. Bonnie G. LeVar
Estate of Ruth Levine
John A. and Catherine London
Mr. and Mrs. Robert W. McAuley
Mr. and Mrs. David A. Messer
Ms. Dorothy D. Miller
The Stephen and Sandra Muss
Foundation, Inc.
Sandra G. Novoson Trust
Miriam and David Phalen and
The Grinberg Family Foundation
Mr. and Mrs. John D. Reedy
Donna and Paul Reinbolt
Mr. Ira Riklis
The Louis A. Ritter Foundation
Claire Roht Trust
Sheri and James Rosenfeld
Mr. Roy Ryan
T & C Schwartz Family Foundation
Mr. and Ms. Ronald Shear
W. Clement & Jessie V. Stone Foundation
Targoff Family Foundation
$5,000 to $9,999
Mr. and Mrs. William Apfelbaum
Mr. John Ballantine
Mr. Gregory E. Barton and
Ms. Janet L. Sikirica
Mr. and Mrs. Michael Beaury
Mr. and Mrs. Ira W. Berman
Dr. Joseph R. Bertino
Mr. Tom Brock
Mr. and Mrs. William H. Burchette
Mr. and Mrs. Steven Choran
The Leon and Toby Cooperman
Family Foundation
Brian and Paula Dailey Charitable Fund
Estate of Lynn H. Darsh
Mr. and Mrs. Gary Davis
The Ditzian Family
Gail and Larry Dobosh
Joan K. Eigen
Mr. and Mrs. Robert Feilbogen
Stanford C. and Mary Clare Finney
Foundation
The Jill & Mark Fishman Foundation
Mr. and Mrs. Stanley Freundlich
The Fund for Blood & Cancer
Research, Inc.
Howard Gilman Foundation
Family of John Grando
Mr. and Mrs. Rich Haddad
Alex and Wendy Haig
Mrs. Joan L. Hauser
Mr. Edward D. Heffner
Dubose & Dorothy Heyward
Memorial Fund
Mr. and Mrs. Gary D. Hirsch
Mr. Robert Horne
Mr. Patrick Huggins
Mr. Jeffrey P. Hughes
Ellis and Anne Kern
Lynn and Jules Kroll
Marlene and Andrew Lippmann
The Billi Marcus Foundation, Inc.
Mr. Thomas G. Mendell
Mr. Peter Mosior
Ellen and Hubert O’Bannon
One Good Hand Foundation
Mr. Bill Perry
Marcia Robbins-Wilf, Ed.D
Pat and Glenda Rogers
The Rosen Family Foundation
Mr. and Mrs. Eric Roth
$1.6 million
raised from LRF’s
Distinguished Events in FY14
Mr. Gregory E. Sacco, Jr.
Andrew Salzberg, MD
Marian Renee Saltzberg Foundation
Sarah I. Schieffelin Residuary Trust
Mr. Michael W. Schwartz
Ms. Chickie Silver
Ms. Gail Wallace Soja
Estate of Stephen Stenstrom
Karin and David Strumwasser
Mr. and Mrs. Mayo S. Stuntz, Jr.
TKBW Foundation
Mr. Thomas Tryforos
The John and Barbara Vogelstein
Foundation
Ellen M. Walker and The Honorable
Paul Creditor
Richard L. and Lois S. Werner
Family Foundation
Mr. and Mrs. Richard Witten
Mr. and Mrs. James J. Wong
$2.500 to $4,999
Anonymous (6)
Dr. and Mrs. Carlton Alexis
Mr. and Mrs. Bill Allen
Mr. Leonard Baxt
Ms. Helen Beck
Margie Becker-Lewin and John Lewin
Frank Bireley
Ms. Brenda Blatt
Barbara and James Block
Mr. and Ms. Leon Borchers
Mr. Brian Bornstein
Dr. Patricia Brown
Mr. Michael Byowitz
Mrs. Betty Calderon
Mr. and Mrs. Richard L. Chadakoff
Mr. John Chatzky
Dr. Susan Chittum
Dr. and Mrs. Martin E. Corwin
Mr. and Mrs. Richard Cote
Mr. James DeMare
Ms. Jamie Duff
Doug and Kim Eckrote and Family
Mr. and Mrs. Richard England
Mr. and Mrs. Richard Feintuch
Mr. and Mrs. Robert M. Feld
Mr. and Mrs. Lester Fisher
Vivian and Edward Friedman
Ms. Dushyant Gandhi
Gantcher Family Foundation
Mr. and Mrs. Beckwith Gilbert
Mr. Steve Goldberg
Mr. and Mrs. Thomas E. Goldstone
Mr. and Mrs. Jeffrey T. Golenbock
Marnie Gordon and Adam Frank
Mr. Geoff H. Grubbs and
Ms. Christina Kaneen
Mr. and Ms. Paul E. Hammes
Mr. Forbes Hays
Edward and Betty Heilman
Leo and Stacey Helmers
Mr. and Mrs. Frank W. Hoehn
Mr. Michael Hopman
Elliot Horowitz & Company, LLP
Mr. Marshall Insley
Mr. Jeffrey Iredell
Norman and Anne Jacobson
Nancy and Stephen Karotkin
Mr. and Mrs. Richard N. Kraft
Mr. and Mrs. Albert Krall
Milton & Henrietta Kushkin Fund
of the Hawaii Community Foundation
Evelyn and John Lipori
Mr. and Mrs. Douglas K. Mayer
Renee J. and Scott Miller
Mr. and Mrs. Kenneth C. Newton
Mr. Michael Nierenberg
Mr. John D. Olson
Mr. and Mrs. Alan P. Parnes
Ms. Jeanmarie Patnaude-Jonston
Arnold S. Penner Foundation
Kathryn R. Pick
Ms. Bobby Sarnoff
Ms. Mona Sarnoff
Mr. Alex Sloan
Mr. Jeffrey Stedman
The Stempler Family Foundation
Dr. Darren S. Tanner
Lisa Taverna and Gary Ford
Gaylord and Diane Thormodsgard
Family Fund
Ms. Liz Ulrich
Frank and Betty Vandermeer
Mr. and Mrs. Kenneth Vaughan
Mr. and Mrs. Doug Warshof
Leah and Michael Weisberg
Weisfeld Family Foundation
Andrea and Robert Weiss
Ms. Sharon Wickes
Ms. Suzanne Williams
Mr. Barry Wolf
Ms. Beth Wolniewicz
$1,000 to $2,499
Anonymous (27)
Dr. and Mrs. Richard Adicks
Mr. and Mrs. Harold E. Akselrad
Theresa and Scott F. Albarella
Dr. Morton Albert
Mr. and Mrs. Dean Albrecht
Mrs. Linda P. Allen
Mr. Jonathan Allen
Gary and Jane Alsofrom
Ms. Sherry Arenstein
Dr. Chase Baird
Ms. Jane L. Baker
Mrs. Rosalind L. Barr
David and Karen Bartel
Mr. and Mrs. Robert Batt
Niel & Coley Beggy
Mr. and Mrs. Richard Behr
Drs. Philip Behrman and Joan Delany
Mr. Robert Bellinger
Mrs. Elaine Benante
Mrs. Gloria Berkhimer
Mrs. Marjorie A. Berkley
Mr. and Mrs. Gary Berman
Laurent and Brigitte Bernard
2014 Annual Report 35
“While I was going through treatment for Hodgkin lymphoma,
my family felt helpless. My mother found the Lymphoma
Research Foundation online and signed us up for our local
Walk. The Lymphoma Walk in my hometown was an amazing
gift to my family and me. My mom met other survivors and
even other mothers whose children were doing well. The
Walk gave my mother and I hope, as we saw so many people
who were living and even thriving after their lymphoma
diagnosis, we knew I would, too!”
— Dexter Neal, Hodgkin Lymphoma Survivor, Texas
Ms. Sandra Berry
Mr. and Mrs. Joseph J Bertino
Mr. Kevin Beverly
Ms. Annabelle Bexiga
Mr. Jeffrey Block and Ms. Michele Gerus
Ms. Nancy S. Blum
Don and Heidi Blumenthal
Miss Jen Bolitho
Jim and Sheri Borax
Mr. and Mrs. Dean Boylan
Mr. Donald Brady
Mrs. Sandra Breedlove
Lee Brenner
Mr. and Mrs. Allan Brodsky
Chris and Bobbi Brody
Dr. George Brommer
Judith Bronsteen
Mr. Roger O. Brown
Mr. Roger Brown
Michio and Emily Brunner
Mr. Stanley Budzinski
Ms. Elaine Cahn
Mr. and Mrs. Wayne Canfield
Mr. and Mrs. Peter Chambers
Ms. Jane Cheng
Mr. Jeremiah Ciancia
Mr. and Mrs. Thomas Clark
Mr. and Mrs. Gidon Cohen
Ms. Jean R. Colbert
Mr. and Mrs. Harvey L. Cole
Sue and Jim Colletti
Michelle L. Collins
Mr. and Mrs. Fred Conroy
36 Lymphoma Research Foundation
Mr. Kurt Conti
Mr. Richard Cooper
Corckran Family Charitable
Foundation, Inc.
Mr. and Mrs. Igor Cornelsen
Mr. and Mrs. Joseph Cowan
Michael and Donna Crea
Mr. and Mrs. Denis F. Cronin
Mr. Mathew Crosswy
Mr. Robert Cucuzza
Charles and Rochelle Curtis
Cushman & Wakfield
Mrs. Cynthia Davidson
Ms. Elizabeth A. Davies
Mrs. Jane C. Davis
Mr. Micah Davis
Mr. David Delaune
Donetta and Allan Delisle
Mrs. Judith Diesenhaus
Ms. Maralyn Ditzian
Mr. David Divine
Mrs. Edith R. Dixon
Mr. Ken Donner
Mr. and Ms. John Dowd
Mr. and Mrs. Howard C. Draft
Mr. Rob Dumanois
Margaret D. Dunstan
Mr. and Mrs. Hal Eckard
Mr. and Mrs. John Ehrenborg
Mr. and Mrs. Stephen Roger Ehrlich
The Honorable and Mrs. Carl Eklof
Mr. and Mrs. Alvin J. Elders
Sandra and John Elligers
Ed Fagan
Mr. and Mrs. Craig Farnsworth
Nathan and Francie Fastenberg
Mrs. Mary W. Feltel
Mrs. Brian Feltzin
Mr. and Mrs. Kevin Fennessey
Ms. Linda G. Ferszt
Mr. and Mrs. Dennis Fiehler
Mr. and Mrs. William J. Filip
Mr. Perry Fink
Finneran Family Foundation
Saul and Judith Fisher
Mr. David FitzGerald and Elaine Kolish
Edward I. Fleischman Foundation
Mr. and Mrs. David Freundlich
Rochelle R. Friedman, M.D.
Mr. and Mrs. Alan Friedman
Sharon and Alan Fritz
Marjorie Fisher and Roy Furman
Mr. and Mrs. Leonardo Galati
Alice and Nathan Gantcher
Mrs. Irene Garcia
Robert and Linda Gardner
Mr. Christopher Garvie
Dr. David Garvin
Mr. Thomas M. Gasser
Mr. and Mrs. Ivan Gefen
Mrs. Cynthia E. Geller
Mr. and Mrs. Chad Gettleman
Mr. Thomas Glatthaar
Mr. Anthony Glavan
Robert and Stacy Gleixner
David and Jennifer Glick
Mr. Chuck Glum
Raymond and Ellen Goldberg Foundation
Ms. Babette J. Goldberg
Mr. Evan Goldberg
Mr. and Mrs. Jeffrey A. Goldberger
The Goldfein Family Foundation, Inc.
Linda and Neal Goldman
The Goodman-Lipman Family Foundation
Ms. Melonie Grant
Green Family Foundation
Myrna and Stephen Greenberg
Mr. and Mrs. Martin F. Greenberg
Mr. Doug Greenburg
Ms. Denise Griep
John D. Griffiths, PhD
Mr. Peter Grouev
David and Lindsey Guest
Mr. Paul Gulstrand
Mr. and Mrs. David R. Haas
Jane and Lowen Hankin
Ms. Kacie Hanley
Mr. Glenn C. Hannah
Ms. Trudy Harper and Mr. Roger Knipp
Dr. Bill Hearl
Robert and Cynthia Hendrickson
Ms. Jacquelyn S. Henig
Mrs. Martha Hernandez
Arthur and Janet Hershaft Foundation
Mr. and Mrs. Elliot Hershberg
Ms. Jill Hertzberg
Mr. John Hester
Heyman Family Foundation
Joyce and Richard Hirsch
The Honorable and Mrs. Harris N. Hollin
Rick and Taber Hook
Mr. and Mrs. Bill Horton
Mr. Howard Houston
Mr. and Mrs. Brad Howard
Mr. Brian Hutt
Domenick and Norma Iacovo
Ms. Caryl Jaffee
Mr. and Mrs. Andrew L. Kahn
Mr. and Mrs. Jerry Kaplan
Mrs. and Mr. Valerie Kappler
Mr. and Mrs. Gary M. Karlitz
Mrs. Wendy Katz
Mr. Gene Kaufman and
Ms. Terry Eder-Kaufman
Mr. Karl F. Kaufmann
Mr. Robert Keith
Mr. and Mrs. Phillip J. Kendall
Mr. Lawrence Kestin
Mr. and Mrs. Kevin Kilkelly
Philip and Charlotte Kinsella
Mr. and Mrs. David Kirwan
Mr. and Mrs. Bradford L. Klein
Mr. Edward Klein
Jody & P.J. Flynn
Drs. Jody and Steven Konstadt
Mr. and Mrs. Michael P. Korotkin
Mr. and Mrs. Craig Krandel
Mr. Arthur H. Kudner
Mr. Tom S. Lakritz
Mr. and Ms. Marvin Lang
Margaret and David Langfitt
The William and Mildred Lasdon
Foundation
Mrs. Monica Lau
Mr. Lawrence Laub
Mr. and Mrs. Herman Lebersfeld
Karen and Ethan Leder
Mr. Kenneth W. Lee
Louis Leibowitz Charitable Trust
Mr. Craig Lemle
Dr. Stu Lessans
Mr. Seymour Lesser
Mr. and Mrs. Lionel Levey
Mr. Jeff Levey
Marina and Gary Levitas
Ms. Sarah Lewin
Mr. Daniel Lichaw
Mr. Edwin Lin
Mr. and Mrs. Frank Linde
Mr. Joseph Liu
Mrs. Shaw-Hwa Liu
Mr. James Livergood
Mr. George Long
The Longhill Charitable Foundation, Inc.
Mr. Stephen Lovett
Ms. Susan J. Low
Pier and George Lowy
Mr. and Mrs. William Mack
Paul V. Majkowski, Esq.
John and Carol Mangan
Mr. Gerald Marshall
Rocco and Roxanne Martino
Ms. Mary Anne Martins
Mrs. Selwa Masri
Mr. and Mrs. Melvyn T. Masuda
Mr. Scott Matzelle
Mr. and Mrs. Jeffrey Maurer
Mr. Michael Maurizi
Mr. and Mrs. Peter W. May
Mr. Richard Mazzella
Mr. and Mrs. John McAuley
Mr. and Mrs. Dave McCauley
Mr. and Mrs. Peter McChesney
Sheila and David McCracken
Miss Janis McFarland
McMunn Family Foundation
Harvey Sohnen and Kathleen Meagher
Mr. and Mrs. George Mehrtens
Mr. Richard Melman
Mr. Seemant Menon
Mr. and Mrs. William Meyer
Christine N. Micklitsch Revocable Trust
Mr. and Mrs. Stephen M. Mihaly
Ms. Erin Miller
Mr. Keith Miller
Moe and Peggy Modecki
Mr. William Mok
Mr. and Mrs. Edwin Morgens
Mr. Sean Murphy
Mr. and Mrs. Melvin J. Nelson
Mr. and Mrs. Michael Nolan
Mr. and Mrs. Steve Northridge
Mr. and Mrs. Harold S. Novikoff
The Nussbaum/ Kuhn Foundation
Mr. and Mrs. Lawrence C. Nussdorf
Mrs. Francine Oberst
Mr. and Mrs. Tony Oh
Ms. Laura R. O’Hara
Mrs. Dolores Orta
The Ostgrodd Foundation Inc.
Mr. Jeremy A Paris
Ms Cathleen Parno
Lisa and Mark Pattis/
The Pattis Family Foundation
Mr. and Mrs. James L. Patton, Jr.
Lyle and Marilyn Paul
Mr. John Pellegrini
Ms. Nancy Pencer
Mr. Scott Perry
Mr. Robert Peterson
Mr. and Mrs. Ian Pitts
Mr. Gary Podell
Mr. and Mrs. Joshua A. Polan
Ann G. Pollack
Mr. and Mrs. Peter P. Post
Andy and Andrea Potash
Mr. and Mrs. Thomas A. Potter
Mr. Lawrence Prager and
Ms. Linda Myszak
Mr. Edward Price
Mr. Roger Provost
Mr. and Mrs. Robert Pruzan
Mr. Michael Qualizza
Ms. Diane Rahe
Ms. Janice L. Rand
Mr. Christopher Reap
Mr. and Mrs. Jules Reich
Matt and Julie Reimann
Don and Martha Reukema
Mrs. Myrna Ricken
Mr. John Rieckhoff
2014 Annual Report 37
$10,000
Eide Bailly Resourcefullness
Award for Arizona’s Kitchen
& Tasting Tour Event
Mr. Thomas Ripley
Mr. Jose Rivera
The Robbins Family Foundation
Mr. and Mrs. Ronald C. Robbins
Roberta R. Oliff Trust
Mr. and Mrs. Steven Roberts
Prof. Neil Robertson
The Donald and Sylvia Robinson
Family Foundation
Mr. Dave Rody
Mr. and Mrs. Christopher P. Roe
Dr. Jamie Roenn
Mr. and Mrs. David Rosen
Mr. Steven Rosen
Robert L. Rosenberg, MD and
Marcia Rosenberg
Ruth and Samuel J. Rosenwasser
Charitable Trust
Mr. and Mrs. John Ross
John and Beth Rothschild
Dr. and Mrs. Harry Saal
Susan and Joel Sarfati
Mr. Joseph Savage
Mr. and Mrs. Alfons Schenck
Ms. Karen T. Schiele
Kathy and Ed Schoenecker
Dr. David Schomas
Stanley R. Schulman
Mrs. Colleen Schwab
Mr. and Mrs. Robert Schwartz
Mr. and Mrs. Arnold J. Schwimmer
Tommy Scogs Foundation Inc
Mr. Barry Segal
Mr. and Mrs. Jerry M. Seslowe
Mr. Jody Shapiro
Ms. Bonnie J. Shea
Ms. Tonya Sheldon
Mr. and Mrs. Ned Sherwood
Cynthia and Robert Shull
Mr. and Mrs. Sidney J. Silver
Kenneth and Claudia Silverman
Family Foundation
38 Lymphoma Research Foundation
Kaplan Simons Family Foundation
Mr. and Mrs. Steven Singer
Mr. Phillip Sino
Mr. and Mrs. Frederic Slater
Mr. David Slates
Mr. Kevin Smith
Peter and Susan Solomon
Family Foundation
Solot Family Foundation
Mr. Frank Song
Mr. Charles Sorrentino
Mr. and Mrs. Stuart Spronk
Mr. and Mrs. James E. Staley
Mr. and Mrs. John W. Stedman
Mr. and Mrs. Avy Stein
The Judy & Michael Steinhardt
Foundation
Mr. William Sterling
Mr. Bruce Stickler
Linda and Howard Stier
Dr. and Mrs. Norman Straker
Karen and Scott Strauss
Ms. Emily M. Svendsen
Ms. Mona Tabor
Mr. Alfred Talyansky
Ms. Marcy Teitelbaum
Michael and Laura Tepper
Mr. and Mrs. F. Duncan Terry
Tessler Family Foundation
Mr. Mordecai Tessler
Elizabeth Thompson
Mr. and Mrs. David H. Thompson
Rabbi Malcolm Thomson
Mr. Tom Thweatt
Ms. Deborah Tietje
Michael P. Timmons
Marana Webber Tost Charitable Fund
The Tavares and Trahan Family
Mr. Tim Turner
Mr. Charles Tye
Mr. Peter Uzzolino
Dr. and Mrs. Koen van Besien
Mr. Steve Velez
Mr. Paul Vizcarrondo
Jeanette and Sherman Vogel
Julie M. Vose, MD, MBA
Mr. Craig Wagener
Mrs. Elizabeth R. Wampler
David and Traci Washburn
Dr. Paul R. Weiner
Mark and Pamela Weinstein
Rebecca and Neal Weinstein
The Weisman Family Foundation
Donald and Barbara Werner
Mr. Bruce W. Wetzel
Mr. John Whalen
Phil and Gerri Wicklander
Mr. and Mrs. James Wickwire
Benjamin Wiener Foundation, Inc.
Rob and Anne Wight
Mr. and Mrs. Stephen R. Wilstein
Dr. and Mrs. Michael E. Williams
Mr. Steven W. Wilson
Ms. Helaine A. Winer
Susan and Benjamin Winter
Mrs. Penny Wolf
Mrs. Julie Wolf
Mr. and Mrs. Daniel Wood
Ms. Dana Wright
Mr. and Mrs. Clement C. Wroblewski, Jr.
Ms. DeeAnn Yabusaki
Michael and Barbara F. Yaksic
Mr. Jason Yeung
Jim Youngson
Ms. Jane Yudell
Mrs. Gilda Zalaznick
Mr. Cesar Zanella
Mrs. Audrey Zigmund
CORPORATE SPONSORS
$500,000+
Celgene Corporation
Family Video Round It Up For
Lymphoma Caiuympaign
$250,000 to $499,999
Genentech
Spectrum Pharmaceuticals, Inc.
Takeda Oncology
Teva Pharmaceuticals
$100,000 to $249,999
Pharmacyclics
$50,000 to $99,999
Gilead Sciences, Inc.
$25,000 to $49,999
Seattle Genetics
$10,000 to $24,999
Lilly USA, LLC
Novartis Pharmaceuticals Corp.
Omnicom Group
Property Resources Corporation
Sequenta, Inc.
Sigma-Tau Pharmaceuticals, Inc.
Van Dillen Partners
$5,000 to $9,999
Astoria Bank
Bank of America Foundation Matching
Gift Program
BHAC Charitable Foundation Inc.
BNY Mellon
Cancer Treatment Centers of America
Chubb Group of Insurance Companies
City National Bank
Embrace Home Loans, Inc.
LNR Property LLC
Medidata Solutions
Metlife
Oregon Health and Science University
Regional Cancer Care Associates, LLC
Ryan Specialty Group, LLC
Skidmore, Owings, & Merrill LLP
Teleflex Medical
Union Pacific Railroad
The University of Chicago Medicine
Comprehensive Cancer Center
Ventana Medical Systems, Inc.
$2,500 to $4,999
Actelion Pharmaceuticals US, Inc.
Be The Match
BioLumina Group, LLC
Biotechnology Industry Organization
Borgert Products, Inc.
Catlin Insurance Company, Inc.
Cedar Hill Associates, LLC
Georgetown University Hospital
Grund & Leavitt, P.C.
Honeywell International Charity Matching
International Furnishings and Design
Association, Arizona Chapter
Kohn Pedersen Fox Associates PC
MN-Minnesota Oncology Hematology
Northrop Grumman Corporation
RBC Capital Markets, LLC
Scottsdale Healthcare
Syagrus Systems
Tenaska Power Services Co.
True Machine Co.
$1,000 to $2,499
AIG Matching Grants Program
American Family Insurance
Ameriprise Financial
Amgen Inc.
Argonaut Group, Inc.
Baron Capital Foundation
BB&T
BD Associate Matching Gift Program
Bercom International, L.L.C.
Blue Cross and Blue Shield of Texas
Bristol-Myers Squibb Fdn. Matching Gift
Program
Creative Sound & Intergration, Inc.
CRS Temporary Housing
Dave’s Automotive Repair Enterprises,
LLC
ExxonMobil Foundation, Inc. Matching
Gifts Program
Flagler Investment Consulting LLC
G2 Direct and Digital
Google Inc
Gresham Partners, LLC
HD Supply Inc.
Hennepin County Medical Center
Comprehensive Cancer Center
Huerter Orthodontics
Ironwood Physicians, P.C.
JAG Physcial Therapy
Janney Montgomery Scott, LLC
Liberty Mutual
Love Field Players
Macopin School
Magenic Technologies, Inc.
The McClatchy Company
MedStar Health, Inc.
Merck Partnership for Giving
The Meredith Employee Contributions
Program
Messagebank, LLC
Microsoft Matching Gifts Program
Morgan Stanley
Motorola Solutions Foundation
NARDI Construction Inc.
Nebraska Medical Center
Nehemiah Ventures
Oracle Corporation Matching
Gifts Program
Parexel International LLC
Patient Resource LLC.
Paypal Giving Fund
Pennsylvania St. Emp. Charit. Appeal
Preferred Network Access, Inc
Randa Foundation
RJL Charitable Foundation
S & S Worldwide
Saks Incorporated
Salesforce Foundation
San-tron, Inc.
Scherzer International
Shoppers Critique International LLC
Strasburger & Price L.L.P
Styron
United Conveyor Foundation
United Healthcare Services
United Way of Central Maryland
University of Nebraska Medical Center
UNMC Physicians
ZS Fund LP
2014 Annual Report 39
TOP TEAM LRF FUNDRAISERS
Fundraiser Name
Coordinator/Organizer
$60,000+
No Shave November Fundraiser in Honor of Brian Levitas
Logan Weisberg and Chad Silver
$20,000 to $30,000
Laps for Lymphoma
Raise Your Glass and Make a Difference Wine Tasting Fundraiser
The First Annual “Phil”anthropy
Grassfield High School
Denise Beaudoin
Stephen Lovett
$7,500 to $10,000
In Honor of Alum, Bob Garbutt
In Honor of Tommy Evans
Princeton Rowing
Tommy Evans
$2,500 to $5,000
2013 ING NYC Marathon Team
44th Annual Beard Shaving Event
5th Annual Rock to Cure Cancer
Annual Blue Jay 5k Race
Attic and Nursery Sale Benefit
In Honor of My Father, Bill Milowitz
In Honor of Pamela Bosley
In Memory of Tina D’Angelo Jim McDonnell Lake Swim
Renew the Rivalry In Memory of Scott Johnson
Sweet 16 Fundraiser for Mantle Cell Lymphoma Research
Fonny Schenck
Traphagen Financial Group
Kimmi Ramone; Phil Richards
Bobby Van Allen
Ann Pickett
Haley Milowitz
Point Harmony Elementary School
Christina Costa
Reston Masters Swim Team
Glenna Fewell
Julia Rotarorit
$1,000 to $2,499
11th Annual Pino Puccio Mohegan Sun Run
Crossfit Explode Fundraiser
Davidsons Never Give Up
F Cancer Milli Project
Friends Forever Bake Sale
In Honor of Evelyn
Kilometers for Cancer KVKL Fundraiser
RUnite Half Marathon in Honor of Kristen King
Sammy No Shave November
Sherry’s Fight Against Mantle Cell Lymphoma
Skull and Bones Drama Club Theatrical Revue Charity Fundraiser
Tom’s Team Fight Against Cancer
Anthony Pucci
Dave’s Automotive Repair Enterprises, LLC
Donny Davison
Nathan Middleton
Allison Womack
Cliff Weinstein
Ryan J. Adkins
Kaw Valley Kickball Inc.
Calvert High School
Brothers of Sigma Alpha Mu
Children of Sherry Shea
Wellington C. Mepham High School
Tom McNulty
$3.5
million
raised from Lymphoma
Research Ride to date
40 Lymphoma Research Foundation
$1.4
million
raised from Lymphoma
Walks in FY14
$306,395
raised through Team LRF
volunteer events in FY14
ADDENDUM
*Supporters of The Paul Foundation and the Lymphoma Research Foundation’s Adolescent and Young Adult Initiative
$25,000+
Mr. Jeffrey Walker and
Ms. Sharon Wurtzel
Mr. and Mrs. Alan Wurtzel
$10,000 to $24,999
Andrew Cader Foundation Inc
The Dinerstein Companies
Estreich & Company Inc.
Robert & Ardis James Foundation
Mr. and Mrs. Darryl Mallah
Mr. and Mrs. Evan Mallah
Ellen M. Walker and
The Honorable Paul Creditor
Lois & Andrew Zaro Family
Charitable Trust
$5,000 to $9,999
The Randy & Barbara Ann Frankel
Foundation
Mr. Evegeny A. Freidman
Goldring Family Foundation, Inc
Mr. and Mrs. Gary Granoff
Mr. Adam Ifshin
Melrose Credit Union
Mr. and Mrs. Jonathan Keller
Mr. and Mrs. Michael Kirven
KRE Property Management Company LLC
Mr. Bradford Lavender
Mullen Family Foundation Inc.
Mr. Abell Oujaddou and
Ms. Marie Robinson
Mr. and Mrs. Charles C. Read
Ms. Marilyn Sobel
Sternberg Charitable Trust
Mr. Elias H. Debbas
Zelnick/Belzberg Charitable Trust
$2,500 to $4,999
Richard and Carrie Altieri
Arent Fox LLP
Mr. Adam Arnow
Cosette Fifth Avenue LLC d/b/a
The Marie Robinson Salon
Mr. Lee A. Forlenza
Dr. Janice Gabrilove &
Mr. Michael Dirzulaitis
Ms. Audrey Dursht and
Mr. Sanford Herzfeld
Mr. John Lama
Mr. and Mrs. Mark Lipschutz
Quality Building Services Corp.
Ms. Melissa Range
Mr. Adam Shapiro
Mr. and Mrs. Peter Skenderis
$1,000 to $2,499
Mr. and Mrs. Charles Atanasio
Mr. Andrew Axelrod
Ms. Dayle Bass and Mr. Richard Creditor
Mr. Arthur Bellini
Bridge Funding Inc.
Capital One Services, LLC
Doral Bank, FSB
Ms. Jenny Emexezidis
Mr. Nicholas Gennis
Mr. Lawrence Glynn
Mr. and Mrs. Noah Goldrach
Mr. Jonathan Heimowitz
Mr. Albert Ho
Mr. and Mrs. Steven R. Hoffman
Mr. and Mrs. Stuart Horowitz and Family
Hurst Family Foundation
Ms. Alla Kanter
Mr. Darpan Kapadia and Ms. Erica Olan
Mr. Michael Kaplen
Dr. Kenneth R. Krauss and
Mrs. Pamela Krauss
Mr. and Mrs. Darren Leiderman
Mr. Stephen M. Levick
Mr. Gideon Lewin and
Ms. Joanna Mastroianni
Mr. David Lowenfeld and
Ms. Sally Mendelsohn
Ms. Devon McGoldrick
Mr. Gerald C. McNamara and
Ms. Renee K. Petrofes
Medallion Financial Corp.
Mr. Lowell A. Mintz
Morvillo, Abramowitz, Grand, Iason
& Anello P.C.
Mr. and Mrs. Nicholas Perrins
Mrs. Laura Pintchik
Progressive Credit Union
Radiant Partners LLC
Rapid Funding NYC, LLC
Mr. Barry Romoff
Mr. Matthew Ross
Rabbi Jonathan Stein
Stone Mountain USA, LLC
Mr. Savas Tsitiridis
Mr. Kevin Wang
Mr. Nicholas Weber
By supporting LRF, you can impact lymphoma research
and provide hope to all affected by a lymphoma diagnosis.
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