Autumn 2015 15 Square, the working name of NORM-UK 15 Squared The magazine of 15 Square Editorial Special points of interest: David Smith Brian Sewell Following yet another school shooting in the USA I was interested to hear an interview with Justin Webb who in 2001 moved to the United States, as the BBC's chief Washington correspondent and has since returned to the UK. The year ahead Keele Medical School PACE debate Webb said that in his eight years in America he came to love many aspects of American life. But the link between freedom and guns he could never grasp. He would ask his American friends to look around the world and ask themselves if Yemen (which has one of the highest rates of gun ownership per person) really a nation they admire and seek to emulate?” INSIDE THIS ISSUE: Editorial 1 Brian Sewell 2 The year ahead 3 Keele Medical School 6 PACE debate 8 News 11 Trustees 12 He never really got an answer. But he says that getting an answer — or at least holding a sensible discussion — is the big challenge for America now. It is a question of addressing culture. It is a multi-generational project where urban and suburban Americans try to persuade the rest of the nation that freedom can still be protected, without a gun in the closet. And it has to be persuasion. You have to accept that this link between freedom and guns is a genuine and honest view. Any real effort to take guns away from people would result in something approaching a new civil war. It would not be politically possible. It struck me how similar this was to the attitude to circumcision in the USA. Circumcision is an entrenched cultural practice that is going to take years to change. In the past the UK has imported many things from the US but I am glad that gun culture in not one of them. We must do all we can to ensure that routine circumcision is also not one of them. PAGE 2 15 SQUARED Brian Sewell It was with great sadness that we learned of the death of our patron, Brian Sewell, who died of cancer on 19 September 2015, aged 84. He was Britain’s most famous and controversial art critic, renowned for his forthright opinions. Some years ago he wrote an article about female circumcision and was amazed by the number of men who wrote to him saying ‘What about us?’ After he had written a critical article about circumcision, we wrote to him inviting him to become our patron, and were delighted when he accepted ‘with alacrity’, as he put it. In a television documentary about circumcision he said: The real argument about circumcision is, for me, why in our enlightened times when we get very upset about the circumcision of women, why do we go on circumcising boys? At school going through the rigmarole of mutual masturbation it always seemed to be so easy, straightforward, immediate, unfussy, untroubled—-just if you had a foreskin, it’s the perfect aid. It does everything an artificial lubricant does without the mess. PAGE 3 The year ahead. David Smith Now that our rebrand is nearing completion we are planning our strategy for the next few months. One of the aspects of our work we want to concentrate on in the coming year is the psychological damage. It is an area we have struggled with since our formation. Originally we ran support group meetings that gave men a voice to talk in a safe environment. These were initially popular but with the advent of internet forums attendances fell. But we also have to recognise that the psychological damage affects men in different ways some more severely than others. Last year I gave a talk to The Porterbrook Clinic in Sheffield. One of their team suggested more research was needed on the psychological damage that he thought should be described as Post Circumcision syndrome. We have twenty years of evidence in our archive and hope over the next few months that we will be able to use this as the basis of a research project. One of the major new features of our new website is that it gives users the chance to tell their own story about how circumcision has affected them and I hope that is going to provide information for a project on how to deal with the psychological issues. Please put your story on the site. This is an area we have struggled with for some considerable time without success particularly trying to get professional input. Last year our sister charity Genital Autonomy ran a one day workshop at Keele University designed to teach professionals the specific damage caused by circumcision. GA spent ages circulating the details to every counsellor within a fifty mile radius and apart from Justine Eardley-Dunn, not one person responded. However, our colleagues from Sexpo in Finland did attend and we have been working together on various initiatives. One of the stories that have been posted on our new site graphically illustrates the problems we are facing and the attitude of the profession. I suffered a breakdown in my early twenties and was referred to a psychiatrist. The psychiatrist refused to believe that anyone could have negative feelings about circumcision and that I was using this as a cover for some other major problem. The interview was a total disaster. I left feeling as though I had been sexually abused by a dirty old man. I have had a shock recently which has brought into focus the problems we are dealing with without professional help. People contact us for many reasons, either to help with their problem or to support us. Some members stay with us for years, others for a short while. Sometimes members leave because we have helped them to move on, sometimes they die and the next of kin informs us. Most times we are unaware of the reason. PAGE 4 15 SQUARED Thanks to Jonathon Conte from the USA I have recently learned of the fate of one of our previous members called Paul who originally joined NORM-UK in 1996 stayed for a few years and then lapsed. In 2005 he contacted us again telling us that he had heard of a place in the USA performing surgical foreskin restoration and asked me if I knew of this and if we could supply contact details. I advised him that surgical restoration was a difficult process and was not a quick fix and tried to persuade him to undertake non surgical restoration. This was probably not what he wanted to hear and it is difficult to convince people that surgery might not heal the psychological damage even if a magic wand could be waved and his foreskin could be replaced as it would have been before he was circumcised. Like many men who contact us he was clinging to that hope and I had effectively taken his lifeline from him without being able to offer him any form of professional psychological support apart from the occasional phone call. He phoned me again in 2008 and apologised for not renewing his sub. He explained that he was struggling with depression and was not coping well. Some weeks later we received a letter from his mother who said that after learning what her son had experienced she wanted to join to lend her support. They did not renew their sub after the first year and I never heard from them again. At the end of August Jonathon Conte posted an item on Facebook. He found a report in a newspaper dating back to 2008 which explains why Paul and his mother did not renew their sub. Until then I had no knowledge of their fate. The report is chilling as it highlights the way the medical profession and the press treat the subject. Sutton postal worker depressed by circumcision joined mother in suicide pact Julia Kennard / Saturday 25 October 2008 / News (Sutton Guardian) A depressed former postal worker and his mother killed themselves in a suicide pact, an inquest has been told. The inquest heard that Mr Burrows, a single man, had become depressed since the age of 16 when he had a circumcision arranged by his mother. He developed depression and dysmorphobia – a condition marked by excessive preoccupation with an imaginary or minor defect in part of the body. Later in the year he began to reject help given by doctors. PAGE 5 At the inquest Dr Roy Palmer read a letter by Dr Indira Naganathar, who once treated Mr Burrows. He said: “He had problems with a circumcision his mother arranged for him as a child which he believed had disfigured his penis and prevented him from having sexual relationships. “From the age of 16 he started to have depression and concerns about his appearance. “He would look at himself several times in the mirror and check his teeth. “He became worried about scarring on his neck caused by two moles.’’ Toxicology tests revealed the pair had been killed by a cocktail of drugs. The Guardian report says several things we should be taking notice of. The report says that he had become depressed since the age of sixteen when he had a circumcision arranged by his mother. It should have said that he was circumcised in childhood but his depression intensified when he was sixteen. He developed depression and dysmorphobia – a condition marked by excessive preoccupation with an imaginary or minor defect in part of the body. Again we see evidence that is the reverse of what is actually true. He did not have an imaginary defect in his body. He had an actual defect in his body that was caused by the circumcision. Just to rub salt into the wounds and to try to reinforce the fact that he was suffering from dysmorphobia and to trivialise the damage cause by the circumcision the doctor added “From the age of 16 he started to have depression and concerns about his appearance. “He would look at himself several times in the mirror and check his teeth. “He became worried about scarring on his neck caused by two moles. Later in the year he began to reject help given by doctors. Is that a surprise when the doctors were responsible for his condition and were probably making his situation worse? Remember the story I read earlier that had been posted on our website. He believed the circumcision had disfigured his penis. He was right, it had disfigured his penis. A few weeks ago two of our charity trustees attended the inquest of another member who took his own life earlier this year and who attended our AGM two years ago. Again, the coroner dismissed the fact that his circumcision had played a major part in his depression. This madness has to stop. I hope I have given you an insight into the problems and challenges we have to face on a daily basis. We have some difficult decisions to make with very few resources in terms of finances and personnel. PAGE 6 Keele University Medical School. 15 SQUARED David Smith Twenty years ago NORM-UK, now being rebranded into 15 Square was founded solely to help circumcised men who wanted to restore their foreskins but we soon expanded to help men who still had their foreskin and wanted to keep it despite doctors trying to persuade them that circumcision was the only cure for phimosis. The amount of circumcisions are dropping in the UK so saving foreskins has become our main focus. Peter Ball who has been our resident expert has saved many men from circumcision over the years. It is shameful that doctors are not taught about alternatives. As many of you know, I am on the lay interview panel at Keele Medical School. Keele have recognised that there has been a lot of arrogance in the medical profession and are trying hard to change this and there is a lot of patient involvement, input and participation at Keele. For the last four years, we have had student placements from their Medical School shared jointly with Savana in Stoke-on-Trent. This has been a challenge and I have had to make difficult decisions on how to structure the placement in the short time the students are with us. I consider that the best use of the time is to try to educate them as much as possible because the time they spend with us is probably the only time in their training that they will learn anything about the subject, apart from the fact that circumcision is the only treatment for even the mildest form of phimosis. We get feedback from the placements through the medical school. One of the areas of criticism from the students in the past was that there was no engagement with service users of the charity apart from reading and logging the anonymised queries. I decided therefore for our last group of students to organise a support group meeting at our office in Stone that the students were invited to participate. I want to thank the members who attended that meeting last November, their contribution was invaluable. This year we had eight students, two of whom attended the support group meeting. I have recently received the feedback from Keele and it was interesting and somewhat of a shock to see the different comments from those who attended the SGM and those who did not. The difference is glaring. Keele asked the students the following questions and I have cut and pasted some of the replies. 1 The main thing I have learned from this placement is The cultural sensitivity & psychological & emotional impact of trauma on the individual. Meeting affected individuals at NORM-UK 2 The most enjoyable aspect of the placement was The learning experience- debating, question, being challenged by exposure to new & complex social material & accommodating/ integrating the material with my own clinical (+personal) learning experiences PAGE 7 Attending support group meeting’ 3 Comments or issues not already covered This section covered most of the negative comments. ‘David at NORM was very engaging but I feel he could do better at listening (actively) to opposing viewpoints and therefore providing a forum for a truly open conversation on the issue of male circumcision.’ Although the placement provider was a friendly man, he constantly imposed his views on circumcision on us and was not really open to discussing opinions that differed to his own and made inappropriate comparisons of circumcision to slavery etc. It was not a very comfortable environment to openly discuss circumcision as the placement provider didn't seem open to hearing other views’ I remember my comment about slavery well and it is one I used at the 2008 Keele symposium. I said that 200+ years ago abolitionists were working to end a traditional cultural practice that most people found acceptable but is now viewed with horror. Our members too are trying to end a traditional cultural practice that hopefully in 200 years with be viewed in the same way slavery is today. I remember an incident two years ago when on the first day, one of the students produced a long list of things that circumcision was supposed to prevent and asked me for my comments and wanted to discuss it in detail. My response was that it did not matter what it prevented, it was unethical for a doctor to be performing a nontherapeutic operation on a non-consenting child. She did not take this comment kindly and did not really participate much after that. This is a worry as she was obviously not interested in exploring the damage circumcision caused and presumably will not take it into account once she has qualified. 4 How would you describe your placement (what you did, learned etc.) and do you have any advice for students considering picking this placement next year? The first comments are from students who did not attend the support group meeting. Interesting and important. Very informative and challenging no patient contact, just factual information about the subject Here is a comment from a student who attended the SGM ‘Both placements offered an invaluable learning experience. David's style might be a bit difficult to adjust to but it is clear that the issue that the charity deals with is very real for some men. And it is a pity that their voices are often not heard- though I suspect that this may be due to the charity's resistance to see/acknowledging the opposing point-of-view too. This was an issue for both myself and colleagues as we felt that our view points as part of the medical community were not always being considered (and there was a sense that clinicians are the 'enemy' in need of conversion). Perhaps David could provide us with more space to consider the issue PAGE 8 15 SQUARED for ourselves and to come to our own conclusions and have an equal and open forum for discussion. Lots of my colleagues missed the opportunity to meet the patients which really put the issue in context for me and it was a unique privilege to listen in on these stories from men across ages and across the country- the meeting was held on a Saturday, but I feel all students should be encouraged to attend it. Sarah (The Keele placement officer) sent an email to ensure that I had some understanding on the work that NORM-UK does, I feel this caused me to do a bit more research on NORMs work & confirmed my interest. I feel the medical school should continue to send these emails before allocating students to NORM-UK as the placement certainly is not to everyone's taste. It would help future students to approach the placement from the perspective of the ethical issues involved and relate the issues to the psychosocial lectures we have had, otherwise this controversial issue can seem befuddling, intimidating, challenging (or at worst irrelevant)- as it is outside the remits of anything we have been taught thus far. The scarcity of objective clinical research on the subject, challenged me to engage, think for myself and consider deeply how this experience could inform my future practice. So, there we have it. A mixture of good and bad and certainly things to consider for next year. One of the things I struggle with is the comments that we do not listen to the opposing point of view. So, the comment from one of the students. This was an issue for both myself and colleagues as we felt that our view points as part of the medical community were not always being considered (and there was a sense that clinicians are the 'enemy' in need of conversion.) But how can we? We are a charity dealing with those damaged by circumcision. The students are with us for twelve hours in total and they are here to learn about the damage caused by circumcision, not to enter into a debate about the issue from the opposing side and in most cases clinicians are our enemy because they are recommending an operation for a condition that in most cases can be cured with a tube of cream, but perhaps I need to take this into consideration and perhaps tell them about our encounters with the BMA and GMC. I could write a similar brief about those encounters. In the next few weeks we will be having our next intake of students and I am currently trying to work out a programme. I hope that if I arrange another support group meeting we might have a few more attendees. It does make a difference as I am sure you will have seen. Parliamentary Assembly of the Council of Europe In conjunction with the film maker Victor Schonfeld, personal emails were sent to every member of the Parliamentary Assembly of the Council of Europe prior to their discussion in Strasbourg on 30th September on traditional practices . The emails had a link to the film It’s a Boy. Here is the text of the email. TIME-SENSITIVE re Plenary Vote - Parliamentary Assembly, Council of Europe TO: THE PARLIAMENTARY ASSEMBLY, COUNCIL OF EUROPE PAGE 9 In 2013, the Parliamentary Assembly made an historic stride for children’s safety and wellbeing. It called on governments to take steps to promote children’s right to physical integrity, stating clearly that circumcision of young boys amounts to a violation of that right. Yet now, if an Israel-initiated proposal from the Culture Committee is adopted by the Assembly next week, children’s rights will be put in second place behind traditional religious practises. By undermining its own landmark decision the Assembly would diminish its human rights leadership; and more children will experience pain, distress and injuries from needless, irreversible alterations of their bodies imposed in the name of culture and religion. We urge parliamentarians to consider the evidence with open eyes before the vote. Please look at the intense suffering and severe injuries caused by circumcisions of young boys, documented in the groundbreaking Channel 4 film “It’s a Boy!” The documentary is freely available to all viewers in Europe for the duration of the plenary, in French, English and German; Please scrutinise the numerous commonalities between female genital mutilation and circumcision of boys, detailed in the University of Oxford Medicolegal & Bioethics study: https://www.academia.edu/10270196/ Female_genital_mutilation_and_male_circumcision_Toward_an_autonomybased_ethical_framework If the Assembly back-peddles from its historic decision in regard to male circumcision, might back-peddling from opposition to female genital mutilation come next? It’s unthinkable, you may say. But having accepted differential treatment for Jewish and Muslim boys on religious and cultural grounds it is only a small step (and indeed would be consistent) to accept differential treatment for girls from cultures with traditions of FGM. In these times when our multicultural societies require robust initiatives to promote harmony, the way forward cannot be weakening commitments to individual human rights, particularly for the most vulnerable members of society. Freedom of religion must be protected, but religious practises must and do have boundaries in societies that choose to subscribe to human rights conventions. Religious groups can’t be permitted to alter human rights principles or their interpretation to suit themselves. And let it be said plainly: A vote to reverse progress in the name of religion is in actuality a vote to discriminate against children born into minority communities. We, the undersigned -- international organisations, doctors, lawyers, professors, Jews and Muslims -- urge the Assembly to remain steadfast in its advocacy of children’s right to physical integrity, for the sake of all children in Europe. SIGNED: Droit Au Corps (France); The Secular Medical Forum (UK); MOGiS e.V. (Germany); Genital Autonomy International; Prof Marie Fox, Centre for Health Law, Science & Policy, University of Birmingham; Prof Michael Thomson, Centre for Law & Social Justice, University of Leeds; Liz Davies, Reader in Child Protection, London Metropolitan University; Victor Schonfeld & Jenifer Millstone, producers "It's a Boy!"; and others. PAGE 10 15 SQUARED The resolution as amended in Paragraph 9 passed by a very large majority. Here is the text of paragraph 9: Paragraph 9 9. As far as circumcision of young boys is concerned, the Assembly refers to its Resolution 1952 (2013) on children’s right to physical integrity and, out of a concern to protect children’s rights which the Jewish and Muslim communities surely share, recommends that member States provide for ritual circumcision of children not to be allowed unless practised by a person with the requisite training and skill, in appropriate medical and health conditions. Furthermore, the parents must be duly informed of any potential medical risk or possible contraindications and take these into account when deciding what is best for their child, bearing in mind that the child’s interest must be considered the first priority. Following the debate Jewish and Muslim groups claimed victory stating that the Council of Europe 'retreated' over a proposed ban on male circumcision (non-therapeutic excision of the foreskin) and instead recommended that it only be performed by trained individuals. Here is a link to some of the press reports: http://www.jpost.com/International/Council-of-Europe-cancels-anti-circumcisionmeasure-after-joint-Jewish-Muslim-effort-419616 http://www.haaretz.com/jewish-world/jewish-world-news/.premium-1.678461 Milah UK, a leading Jewish advocacy group supporting the practice of circumcision, said in a statement that the resolution “cancels a previous motion that had cast into doubt the legality of religious circumcision. However this was challenged by Nathalie Bargellini, a spokesperson for the council’s Parliamentary Assembly, who stated that Resolution 2076 “does not cancel nor replace Resolution 1952.” She noted the more recent resolution references the older one and that The Council of Europe is maintaining its position that non-medical circumcision of boys is a violation of children’s rights. Bargellini also said that Resolution 2076 “calls for strict conditions governing the exercise of this practice.” According to the new resolution, “circumcision should not be allowed ‘unless practiced by a person with the requisite training and skill, in appropriate medical and health conditions,’” We have had endless discussions about this in committee. We agreed that although a ban would be great and would be a step in the right direction it would be similar to the FGM legislation and the practice would not stop overnight. With regard to regulation, If as the PACE document indicated, the procedure had to be done by licensed persons in sterile conditions it would first cut down the number of procedures performed on the kitchen table. The problem with carrying out the procedure in regulated conditions would be that it would give it some sort of respectability. However, if the regulations were followed it would also highlight the number of procedures that result in complications. What we have to ensure is that the children who end up in intensive care do not go unreported which is happening at the moment. Hospitals are burying this information. We already know from a Freedom of Information exercise that eleven boys were admitted to intensive care with life threatening complications following circumcision in one year in one hospital trust in the West Midlands. These statistics are not appearing in the press. We need to provide the evidence that even if done in hygienic conditions the procedure is risky. PAGE 11 It needs to be part of the evidence given to the parents to enable them to give informed consent. It will never stop the parent who has to obey their god's command no matter what the consequences to the child but it is a step in the right direction. NEWS Closure of Hyde circumcision clinic Mancunian Matters has reported the closure by the CQC of a circumcision clinic in Hyde that has sparked a backlash from the local Muslim community, claiming the closure is an 'attack on the practice of their religious beliefs'. Here is a link to the report: http://www.mancunianmatters.co.uk/content/091074608-attackreligious-beliefs-closure-hyde-circumcision-clinic-suffers-islamic-backlash In 2013, the clinic owner, Dr Nadeem Ahmed, was issued a warning for performing a circumcision on an eight-year-old boy without getting consent from both parents. The CQC have declined to comment on why the clinic is being shut down, citing legal reasons. Bloomberg health commissioner: City wrong to repeal circumcision forms Politico New York has reported that the city was wrong to repeal circumcision forms. http://www.capitalnewyork.com/article/city-hall/2015/10/8579265/bloomberg-healthcommissioner-city-wrong-repeal-circumcision-forms Former city health commissioner Tom Farley thinks it was a mistake for the current board of health to repeal consent forms that had been required before metzitzah b’peh, the controversial circumcision ritual that requires a mohel to put his mouth on a baby's wounded penis. Farley was health commissioner during Michael Bloomberg’s third term and mayor, and led the board of health when it implemented the consent forms in 2012 for the ritual, which is practiced by some Orthodox Jewish sects. Jewish mom opposes circumcision and suggests Bris is replaced with a naming ceremony. In a report in Broward Palm Beach New Times Rebecca Wald talks about her decision not to circumcise her son and about her work to promote Brit Shalom an alternative naming ceremy to circumcision. In 2010, Wald launched Beyond the Bris, a go-to website for Jewish families opting out of circumcision. http://www.browardpalmbeach.com/news/jewish-mom-opposes-circumcision-suggests-brisbe-replaced-with-naming-ceremony-7317573 15 Square, the working name of NORM-UK 42 High Street Stone Staffordshire ST15 8AU Telephone (0044)1785 814044 Email: [email protected] Copyright Copyright exists in all materials within 15 Squared No part or parts may be reproduced, by any means, without the prior permission of the editor. NOTE The views and opinions expressed throughout NORM NEWS are not necessarily those of the editor or of any members of the committee. Authors are responsible for all opinions and / or facts expressed in their own writing. Donate Online: https://secure.norm-uk.org/ donate.html Follow us on Twitter: @NORM_UK Follow us on Facebook: https://www.facebook.com/ norm.uk Trustees of 15 Square Chair and Founder Dr John Warren, MB BChir DCH FRCP Vice Chair - Dr Peter Ball MA, MB, BChir Secretary - Patrick Smyth Treasurer - Margaret Green Women’s Group Co-ordinator - Iris Fudge Committee Members: Justine Eardley-Dunn, Tony Peters. Archivist & Researcher - John Dalton BSc, MSc General Manager David Smith Honorary Advisor: Gaye Blake-Roberts Patrons: Prof Jack Cohen, Mary Cronk MBE, Alan Cumming, Published by NORM-UK Registered Charity No: 1072831
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