FACULTY OF HEALTH AND MEDICAL SCIENCES UNIVERSITY OF COPENHAGEN PhD thesis Hans Okkels Birk Freedom of choice of provider as a governance tool in the public sector Case: freedom of choice of hospital in Denmark This thesis has been submitted to the Graduate School of The Faculty of Health and Medical Sciences, University of Copenhagen. University representatives: Allan Krasnik and Karsten Vrangbæk Submitted: 27/02/2015 Institutnavn: Institut for Folkesundhedsvidenskab Name of department: Department of Public Health Author: Hans Okkels Birk Title / Subtitle: Freedom of choice of provider as a governance tool in the public sector. Case: freedom of choice of hospital University representatives: Allan Krasnik and Karsten Vrangbæk Assessment committee Professor Mogens Grønvold (Chairperson) Department of Public Health University of Copenhagen Associate Research Professor Camilla Palmhøj Nielsen Department of Public Health Aarhus University Professor Runo Axelsson Department of Sociology and Social Work Aalborg University Submitted: 27 February 2015 Defense date 29 June 2015 2 Table of contents Table of contents ...................................................................................................................................................... 3 Preface ....................................................................................................................................................................... 5 List of papers ............................................................................................................................................................ 5 1 Introduction ........................................................................................................................................................... 6 1.1 Public intervention as a tool to remedy market failure ..................................................................................... 7 1.2 Characteristics of the market for health care .................................................................................................... 8 1.3 Content and introduction of “choice” ................................................................................................................ 9 1.4 Introduction of freedom of choice of hospital in Denmark ............................................................................. 11 1.5 Implications of freedom of choice – topics for research ................................................................................ 11 1.6 Aims of the present study ..................................................................................................................................12 1.7 Theoretical approach .........................................................................................................................................12 1.8 Specific objectives and delimitations ...............................................................................................................14 1.9 Sub-studies .........................................................................................................................................................16 2 Materials and methods......................................................................................................................................... 17 2.1 The Danish health care system ......................................................................................................................... 17 2.2 The study areas .................................................................................................................................................. 17 2.2.1 Study area A: Roskilde County (study I and II) ........................................................................................... 18 2.2.2 Study area B: the counties of Roskilde, Storstrøm and Vestsjælland (study III). ..................................... 18 2.3 Study I: inpatients’ choice behaviour .............................................................................................................. 18 2.4 Study II: outpatients’ choice behaviour ...........................................................................................................19 2.5 Study III: general practitioners’ choice behaviour on behalf of patients ...................................................... 20 3 Results ...................................................................................................................................................................21 3.1 Results, Study I: inpatients’ choice behaviour .................................................................................................21 3.2 Results, Study II: outpatients’ choice behaviour .............................................................................................21 3.3 Results: study III: GPs’ choice behaviour on behalf of patients .................................................................... 22 4 Discussion ............................................................................................................................................................ 23 4.1 Do patients – and/or their agents - choose the hospital? .............................................................................. 23 3 4.2 Which sources of information determine choice of hospital? ....................................................................... 25 4.2.1 Patients’ sources of information ................................................................................................................... 25 4.2.2 GPs’ sources of information ......................................................................................................................... 28 4.3 Influence of sociodemographic characteristics on choice behaviour? .......................................................... 29 4.4 Is performance the primary factor behind choice of hospital?...................................................................... 30 4.5 A model of patients’ and their agents’ choice of hospital ................................................................................31 4.6 Strengths and weaknesses of the study ........................................................................................................... 32 5 Conclusions and perspectives ............................................................................................................................. 35 5.1 Conclusion ......................................................................................................................................................... 35 5.2 Implications ...................................................................................................................................................... 36 5.3 Future research................................................................................................................................................. 37 Summary ................................................................................................................................................................. 38 Danish summary .................................................................................................................................................... 39 Acknowledgments .................................................................................................................................................. 40 References ................................................................................................................................................................41 Appendices ............................................................................................................................................................... 51 Appendix 1: Free choice of hospital in Denmark – the framework ...................................................................... 51 Appendix 2-4: Original papers ...............................................................................................................................61 Appendix 1: Free choice of hospital in Denmark – changing institutional limits over time Appendix 2 (Paper I): Birk HO, Henriksen LO. Why do not all hip- and knee-patients facing long waiting times accept re-referral to hospitals with short waiting time? Questionnaire study. Health Policy 2006; 77: 318-25. Appendix 3 (Paper II): Birk HO, Gut R, Henriksen LO. Patients’ experience of choosing an out-patient clinic in one county in Denmark: results of a patient survey. BMC Health Serv Res 2011; 11: 262. Appendix 4 (Paper III): Birk HO, Henriksen LO. Which factors decided general practitioners’ choice of hospital on behalf of their patients in an area with free choice of public hospital? A questionnaire study. BMC Health Serv Res 2012, 12: 126. 4 Preface The results presented in this PhD-thesis stem from studies carried out during my employment at the Department of Health, Roskilde County, and the department of Quality & Development, Region Zealand, Denmark. Roskilde County initiated the study and the county and Region Zealand provided most of the funding for the study, which was also facilitated by grants from The Programme for Promotion of Regional Cooperation on Medical Research in Eastern Denmark; the Health Research Foundations in the Counties of Eastern Denmark, and Section for Health Services Research, Department of Public Health, University of Copenhagen. The study was performed in accordance with the Helsinki Declaration. The study was not notifiable to the Danish research ethics committee system: according to section eight in the Danish Act of 28 May 2003 on a Biomedical Ethics Committee System and the Processing of Biomedical Research Projects questionnaire studies not involving biological material were not notifiable to the Danish research ethics committee system. List of papers The present PhD-thesis is based on the following three papers, which will be referred to by their Roman numerals: Paper I: Birk HO, Henriksen LO. Why do not all hip- and knee-patients facing long waiting times accept re-referral to hospitals with short waiting time? Question naire study. Health Policy 2006; 77: 318-25. Paper II: Birk HO, Gut R, Henriksen LO. Patients’ experience of choosing an out-patient clinic in one county in Denmark: results of a patient survey. BMC Health Serv Res 2011; 11: 262. Paper III: Birk HO, Henriksen LO. Which factors decided general practitioners’ choice of hospital on behalf of their patients in an area with free choice of public hospital? A questionnaire study. BMC Health Serv Res 2012, 12: 126. Reprints of the papers were provided with permission from the editors (papers II and III were published in open-access journals). 5 1 Introduction Access to health care constitutes a key part of modern welfare states’ services [1]. Public and private health care systems in developed countries face growing challenges arising from: new medical technologies; wider indications for treatment due to evidence from medical research; a growing share of citizens with chronic diseases; increasing prevalence of obesity resulting in more patients with chronic life style-related conditions; greater expectations from the population concerning quality, service and the range of health care services provided; and a combination of the elderly population’s growing share of the whole population, and the work force’s decreasing share of the population. These general trends put pressure on the health care systems to strengthen their efficiency and responsiveness, while the public sector traditionally tends to focus on processes and cost control [2]. On this background the Anglo-Saxon and Nordic countries, especially, have introduced management tools, which resemble those, which are used in the private sector, under the umbrella term of ‘New Public Management’ to strengthen the public sector’s responsiveness and efficiency [3]. The introduction and use of such tools must take into account, that there are major differences between the conditions facing providers in the private and in the public sector [4,5]. In the private sector providers traditionally face a single performance measure (profit), providers may stay away from unprofitable markets, and customers pay for the consumed services – providing the providers with an income and with a restriction on the demand. On the contrary in the public sector providers face multiple and competing criteria of success, provision of some services is mandatory, and services may be provided as a right for the consumer and free at the point of delivery without a price mechanism to connect demand with producers’ costs and consumers’ utility. Furthermore managers’ and employees’ motivation differ by sector [6]. Due to such fundamental institutional differences between the two sectors, management/governance tools may have different effects in each sector, warranting studies of the actual effects of governance tools. Quasi markets, including free choice of provider – i.e. a hospital, constitute one of the NPM-tools which play a still stronger role in current governance, although the available evidence on patients’ actual choice behaviour is ambiguous and has had little impact on design of public management [7]. Likewise few studies of the choice behaviour of patients’ agents – the GPs - are available. In 1999 a Danish county bought hospital capacity outside the county in order to reduce patients’ waiting time on the assumption that they had strong preferences for short waiting times for treatment and were willing to travel to other hospitals to shorten their waiting time. However, it turned out, that much fewer patients than expected by politicians and civil servants chose treatment at the hospital with short waiting time, thereby questioning key assumptions about patients’ preferences and thereby in effect also questioning preconditions for utilizing quasi markets as a governance tool: if patients are unlikely to collect information about various providers and choose the hospital offering the best performance, quasi markets in health care may not put pressure on providers to improve their performance. Therefore it is important to test the assumptions behind utilization of quasi markets as a governance tool. 6 1.1 Public intervention as a tool to remedy market failure The central theorem of neoclassical welfare economics is that under certain strict conditions1, an equilibrium achieved by competitive markets will satisfy the same conditions as a Pareto optimum, meaning that it will not be possible to make somebody better off without making somebody worse off [9]. The theorem indicates that a system of competitive markets is the optimal tool for allocation of scarce resources in society [10], where consumers, in possession of initial resources, choose consumption bundles to maximize utility at a given set of prices, while providers choose production bundles so as to maximize their profits at the same set of prices [9]. However, actual markets may not satisfy the strict conditions in this competitive market model (the standard model), resulting in some degree of market failure [8;11]. For example agents may not have all the relevant information (e.g. consumers may not be fully aware of the total utility derived from one or more goods)[10], individual consumers and providers do not take the negative or positive effects of their choices on the rest of society (externalities) into account, when they maximise their own utility [12], and monopolies or oligopolies may eliminate competition and thereby the incentive to efficient production. A typical tool to remedy market failure is the development of planned economy systems (nonmarket systems)2 in which central authorities decide how much should be produced of certain goods, and for whom. However, government intervention to remedy market failure may fail [14] and result in intrinsic nonmarket failure/government failure [11;15;16] due to the structure of incentives, lack of information and/or the organization of government action [17], which lead to: Internalities: Producers who lack signals from a market may develop and follow their own ‘private’ goals and standards, ignoring consumers’ preferences and even ‘public’ goals specified by politicians; e.g. a manager may maximise the budget of their organization rather than quality and service [18]. Redundant costs: Nonmarket organisations operating without a profit motive may be less likely to maximise productivity than organisations operating on a market and following a profit motive, resulting in an inefficient production. Derived externalities: Initiatives to correct market failure may have unintended side effects. Public choice theory may be viewed as a theory of nonmarket failure [14]. Professor in social policy Julian Le Grand has defined four basic models of management of public (nonmarket) service provision – clearly favouring the fourth model [19;20]: The Trust Model: political and administrative decision makers trust professionals and managers to deliver services of high quality without interference, on the assumption that the professionals know what is in the consumers’ best interests, and that their main motivation is the welfare of those they are serving and not their own self-interest. The Command and Control Model: central management sets targets and follow up on providers’ performance – professionals may be hostile to the targets and focus on achieving targets rather than providing the relevant services (‘gaming’). 1 All goods are private; no externalities; information is free and accurate, and each buyer or seller is a price taker [8]. “A command economy or planned economy is an economy where … a central authority … assigns quantitative production goals and allots raw materials to productive enterprises … the central planners work out the assortment of goods to be produced and the quotas for each enterprise. Consumers may influence the planners’ decisions indirectly if the planners take into consideration the surpluses and shortages that have developed in the market. The only direct choice made by consumers, however, is among the commodities already produced” [13]. 2 7 The Voice Model: consumers express their (dis)satisfaction directly to the providers; this is a kind of bottom-up management with incentives of uncertain strength on providers to respond. Providers may focus on voice from vocal and articulate groups The Quasi Market Model: each consumer chooses one of several competing public or private providers, and the services are paid by the government - a quasi market thereby constitutes a proxy for a traditional market mechanism3. The four models are not mutually exclusive but may co-exist. Development over time may reflect changes in the mix between models rather than substitution of one model for another [21]. One common trait in public sector governance reforms in the latest two decades within the broad concept of New Public Management (NPM) to remedy government failure is a development from collective systems towards an individual-based democracy model [13;22], where individual citizens are viewed as autonomous consumers (queens) rather than passive clients (pawns)[23] and are expected by politicians and central management to take responsibility for allocation of resources to providers4 by utilising consumers’ rights [24] like freedom of choice of hospital to choose a provider of a public service more or less freely among several competing public or private providers. In combination with financial incentives to attract consumers, choice may result in a quasi-market, strengthening providers’ incentives to improve responsiveness [3;25], as the public sector moves from government towards governance (see chapter 1.9). 1.2 Characteristics of the market for health care Citizens’ demand for health care services is characterized by structural market failure due to imperfect and asymmetric information about the need for and effect of services, low predictability of need/demand, socioeconomic inequalities, and high costs of services [26]. Therefore the production of health care usually is not decided in a competitive market. In developed societies agents like general practitioners (GPs) act on behalf of patients (principals) to overcome information asymmetry, and health care is usually financed or subsidized by a third part, thereby partly protecting patients from the financial effects of their individual consumption of health care, unlike consumers in a standard model market [27]. This may result in excess consumption [26] and moral hazard5 among consumers, and adverse selection6 among providers and in the financing third part [28]. Due to supplier induced demand [29] monopolistic providers may experience weaker incentives to improve responsiveness, quality or productivity than in a competitive market. Provision of services may be the responsibility of private or public organisations, and services may be produced by public as well as private providers irrespectively of the ownership of the organisation responsible for provision. Health care systems in the Nordic countries are public and universal: tax-financed public organizations are responsible for provision, while actual services are provided by public and/or private providers working under a contract with a public body. Thereby health care in the Nordic countries shares basic features with the National Health Service models (‘Beveridge-models’) in the United Kingdom, New Zealand and Southern Europe [30]. Most health care systems based on the Beveridge-model constitute planned economy structures in the public sector, where the supply side – integrating the supplier of health care and the financing third part allocates resources to the sector and sets targets and priorities. 3 Such initiatives have been associated with privatizations but may also be presented as alternatives to privatization. Or, rather, be used unconsciously for this purpose. 5 A situation where an agent tends to be accept a risk because the potential associated costs will not be felt by the agent but by others, e.g. by the financing third part. 6 Situations where the third part avoids consumers which are especially likely to consume health care services. 4 8 1.3 Content and introduction of “choice” Until a couple of decades ago, patients in public health care systems faced few opportunities for choice among providers. Typically GPs would refer a patient to a hospital prescribed by the public authority responsible for health care or the closest hospital, irrespectively of the patient’s wishes, service and clinical quality [31]. For example the right to choose a hospital in other uptake areas was restricted in all of the Nordic countries at the start of the 1990s [30]. During the latest couple of decades the perception of patients’ role has gradually changed from that of a passive recipient7 of health care services prescribed by public authorities and providers to a consumer, who utilizes some degree of free choice of provider to pick and choose among different providers [33]. However a consumer may be perceived to act in very different ways, ranging from a rational, empowered, informed chooser/customer to a consumer who consciously delegates choices of care to an agent due to information asymmetry between the consumer and potential providers [34]. The meaning of choice varies between countries [35], as free choice of provider covers a wide range of institutional arrangements, as it works at different levels [36]: e.g. the provider may be chosen among potential suppliers by the governing body responsible for provision of health care, a GP, a fund holding GP or the patient [37] In health care patients or agents acting on their behalf may choose or be involved in the choice of treatment (examination, intervention etc.)(“what”), provider of health care (“where”), individual health professional (“by whom”), appointment time/date (“when”), and/or method of communication (“how”)[20]. Information asymmetry is a major challenge to patients’ opportunities for choosing a specific treatment, and providers’ work schedules and lack of published information about individual clinicians and their results limit the opportunities for patients to choose among individual health professionals. Choice has been introduced in other service areas provided by the public sector, e.g. education [38;39], social services [40;41], elderly care [42] and public employment services [43], but health care constitutes one part of the public sector, where the introduction of governance–tools has been especially important in countries applying the Beveridge-model, like England, Denmark and Sweden [44;45], and to a lesser degree in countries where health care is organized in accordance with the Bismarckmodel, like France, Germany and the Netherlands [46;47]. The introduction of choice in public health care reflects two fundamental arguments [48]: an ideological viewpoint: an opportunity to choose a supplier is an objective in itself, as it strengthens personal freedom [49-52]8. Individuals consistently express strong preferences for having a choice and may derive process utility from choosing the hospital by themselves [53], although the value per se of choice has been questioned: even if patients are aware of their needs, the properties of alternatives, and of their opportunities to choose, they often report that they are overwhelmed by the choice, lack the resources needed to make it, and experience unintended negative consequences, including cognitive overload and fear that they may regret their choice and shoulder responsibility for the choice [54-60]. On the other hand, patients (principals) may delegate the choice to an agent, and in a perfect principal-agentrelation the agent makes the same choice as the principal would have made, if the principal had had the same information as the agent [29]. An instrumental viewpoint (the intrinsic value of choice): providers and employees in the public sector in general may not be viewed as altruistic (“knights’) but as agents acting out of self-interest (“knaves’)[23]. Therefore politicians (and administrators) may attempt to improve responsiveness and performance by developing self- 7 As reflected in the adjective ‘patient’: “able to wait for a long time or accept annoying behaviour or difficulties without becoming angry.” [32] 8 Amartya Sen underscores the long tradition behind this idea by quoting Aristotle in the introduction to [52]. 9 correcting mechanisms, which resemble the market mechanism working in competitive markets by introducing competition among (numerous) suppliers [15;61;62]. Ideally a combination of choice and activity-based financing will [63]: 1) Communicate consumers’ preferences to providers more efficiently than command economies by turning passive consumers - “pawns’ - into active consumers - “queens’ [23;64]. 2) Provide the suppliers with financial incentives to utilise this information and satisfy the consumers’ demand, because “the money follows the patient”[19;61;65-68], thereby challenging traditional planning and cost control mechanisms in publicly funded health care systems [69]. If the two mechanisms are successful and lead to an increase in quality, service and efficiency, patients will derive consequentialist utility from choice [53]. Ideally, patients’ and providers’ individual (egoistical) utility maximisation through rational choices will result in an optimal resource allocation in society at the national [70] and even the international level9[72], when choice and activity-based financing creates financial incentives for providers to attract consumers, and thereby incentives to adjust their services’ properties to consumers’ preferences [73], which are assumed to equal society’s objectives, as patients’ choices move resources from inferior providers to superior providers and level out waiting times as a sideeffect [74]. Information asymmetry resulting in agent-principal-relationships may influence the interpretation of the content of choice: if a patient is referred to and treated at the hospital closest to his or her home, the referral process may be interpreted as a conscious, active choice of the nearby hospital, or as a failure by the GP or the patient to utilise choice, passively going to the hospital closest to the patient’s home. The interpretation depends on the observers’ views on choice: if choice is viewed as a right introduced to increase citizens’ utility by strengthening patients’ freedom to choose, the actual choices are of little concern, if they reflect patients’ preferences rather than barriers to choice of more distant hospitals. However, if choice is introduced as a governance tool to level out waiting times and put pressure on providers to increase responsiveness, quality and productivity, the tool’s success depends on patients’ and their agents’ willingness to compare providers’ performance and select the hospital with the best performance, no matter where it is located. Otherwise the providers may ignore the risk of patients and agents utilizing choice. Likewise, the criteria for success in evaluations of choice depend on the objectives of choice and the views on actual referral/choice patterns: If choice is viewed as a right, the criterion of success is that patients are treated at the hospitals, where they want to go for treatment, but the actual utilization of distant hospitals (or hospitals nearby) is not a relevant criterion of success: a high utilization of choice may be interpreted as a success: it indicates that choice and the health care service “works’, as patients utilize their rights. However, choice of distant hospitals may also be viewed as an indication of failure in parts of the health care system, the choice indicates that providers close by do not live up to patients’ and GPs’ expectations, forcing them to go to distant providers. Likewise, a low utilisation of choice may be interpreted as a success – an indication of a high degree of satisfaction with hospitals, as patients 9 E.g. through introduction of free choice of health care provider in the EC and/or other areas [71]. 10 and agents abstain from utilising choice. Or it may be viewed as an indication of failure: patients and agents are forced by barriers to choice to abstain from utilisation of choice. Nor is the actual utilization of hospitals a relevant criterion of success, if choice is viewed as a governance tool. Its impact may be evaluated by measuring providers’ performance rather than patients’ and agents’ utilization of choice. Major variation in providers’ performance - including waiting times, clinical quality and patient satisfaction – indicates that utilisation of choice is insufficient to level out waiting times and move resources to the most efficient hospitals, resulting in failure for the governance tool and the health care system as a whole. Such failure may reflect barriers to choice or it may reflect that patients’ and agents’ preferences and choice behaviour make them less inclined to utilise choice than assumed in quasi market-models. 1.4 Introduction of freedom of choice of hospital in Denmark Choice policies were introduced in Sweden (1991) and Denmark (1993) earlier than in the UK (2002) and the Netherlands (2006), which on the other hand had introduced quasi-markets with little or no choice at patient level [69]. When choice was introduced in Denmark and Sweden, the emphasis was predominantly on the intrinsic value of choice, and the reform was associated with patients’ rights and patient empowerment, although choice was also viewed as an instrumental policy to reduce waiting times, improve allocation of resources, and strengthen providers’ responsiveness, like the motives behind introduction of choice in the UK and the Netherlands later on [66]. Most Danish patients did not choose hospitals in other counties/regions, thereby indirectly influencing the subsequent development of choice, as national politicians have interpreted the low utilization of choice [45] as an indication of institutional barriers. Suspecting that public providers undermine utilization of choice, e.g. by not informing patients about their rights, centre-right and centre-left governments have extended patients’ rights in several steps (Appendix 1) by offering choice to more patient groups, by providing patients and agents with more information on choice, by including more providers of health care in choice, by providing more sources of information about quality and service, and by strengthening incentives for hospitals to attract patients (higher activity based financing). 1.5 Implications of freedom of choice – topics for research As indicated above, introduction of choice gives rise to a number of topics for research in patients’, agents’ and providers’ actual behaviour, and the effect of choice on performance and equity [75], e.g. how patients and/or agents actually choose a hospital, how patients’ and/or agents utilize information for decision-making, and the net effect of choice on providers. Two necessary preconditions for a positive effect of choice on performance are that valid and reliable data on providers’ general performance is available, and that patients and/or agents utilise the data10. In health care few consumers can make a choice based on their own experiences with different providers of a specific service11, and the inherent strong information asymmetries and uncertain effects of care on individual patients make it difficult to evaluate the quality of care ex ante or even ex post for individual patients12, increasing the risk that care may be judged by proxy measures 10 If providers assume that performance data influence choice, this may be a sufficient condition for influencing performance, as management may respond forcefully to bad performance [20;76;77]. For an opposing view, see [78]. 11 I.e. a patient can only get his or her appendix removed once. 12 Most patients do not have the information needed to assess their chances for being cured or to judge whether an apparently negative outcome is due to low quality care. 11 rather than actual quality13. Politicians’ and civil servants’ persistent confidence in choice as a governance tool, as reflected in the stepwise extension of choice, makes it still more important to improve our understanding of patients’ and agents’ preferences, the actual responsibility for choice, how decision makers choose, which data influence their choices14[72], whether choice behaviour is consistent with the assumptions behind the introduction of quasi-markets, and whether these markets achieve the intended objectives. A Danish case was especially relevant for this purpose, because free choice of hospital had been in place for several years and included all hospitals15, standardized surveys of waiting times and patients’ experiences were available, and referring GPs faced no financial incentives to choose a particular hospital on behalf of their patients. The cases and study areas in the present study were especially relevant, because more information on waiting times was available to GPs than in the country as a whole, and patients’ transportation costs were subsidized to a higher degree, thereby reducing a negative impact of transportation costs on choice of hospital. When the study was initiated, biannual nationwide surveys already recorded patients’ awareness of choice and the factors determining their choice [80], and so the present study aimed at investigating patients’ utilisation of various sources of information for choice in more detail than the nationwide aggregated surveys. 1.6 Aims of the present study The objective of the study was to investigate choice as a governance tool in a public health care system. More specifically the aims of the study were to investigate, whether patients’ and GPs’ choice behaviour was consistent with key assumptions behind use of quasi markets in health care as a governance tool (see 1.8). 1.7 Theoretical approach In accordance with the aims of the study, quasi-market theory was selected as the theoretical framework. Quasi-markets are established by the public sector when it opens its service production to other providers – public or private, for-profit or non-profit – by offering consumers or their agents a choice of provider [81]. The term ‘Quasi-market’ has no exact definition but may be characterised as an intermediate form between hierarchy and a market with perfect competition [82;83]. Quasi-markets are ‘markets’, because they replace monopolistic public providers with competitive and independent providers, and they are ‘quasi’, by differing from conventional markets in key areas on the supply side as well as the demand side [82;84]: o Providers do not necessarily maximise their profits – a key assumption about providers’ behaviour on a competitive market [84]: some providers’ behaviour may be altruistic [85], public organizations may aim to maximise their budget [86], or their behaviour may reflect a multitude of criteria for success [87]. o Consumers’ purchasing power may take the form of an earmarked budget or voucher [84], presenting the consumer with a right to a specified service, which cannot be traded for a 13 In Denmark people critical of utilizing patients’ evaluations of care may parody patients’ evaluations by attributing judgments like “the nurses were very kind” to patients, thereby indicating that patients’ judgments tend to draw the emphasis away from “real” quality measures towards proxy measures of quality and/or service. 14 In 2006, the European Health Policy Group decided to explore choice under a theme of access, choice and equity [79]. 15 Only an insignificant private hospital sector was not included. 12 different kind of service, money flowing from the public purchaser to the provider without involving the consumer. In health care the combination of a referral from a GP and health care provided free at the point of delivery may be viewed as similar to a voucher. o For some kinds of services, the consumers do not choose the provider by themselves [84]. Not only is the ‘voucher’ provided from the outside, but the actual choice may also be made by an agent. The theoretical framework presented briefly in section 1.2 was developed by Julian le Grand and his group [20;23] on the background of British reforms of the welfare state from the 1980s and onwards in a move away from public provision of services by monopolistic vertically integrated and hierarchical public organisations [88], but the phenomenon, the term, and the critique of quasimarkets are decades older. Apart from Le Grand’s understanding of the term, it is used to characterize other set-ups which differ from competitive markets, including situations where a public body buys services from private or public providers and makes them available to its consumers but does not offer consumers a choice of provider, as competition may be introduced without choice and vice versa [89]. One such case was the introduction of an ‘internal market’’ in the British National Health Service in the 1990s16, which built on a principal-agent-relation where patients presented their needs to clinicians, who purchased the care they considered relevant on behalf of the patients [34]. British reforms introduced after 2000 put more emphasis on turning patients into informed consumers [91] with a choice of provider. The current development was partly motivated by a suspicion that excessive vertical integration in hierarchies and monopolies lead to inefficient allocation of resources [92-94], while quasi-markets are supposed to provide providers with incentives to be more responsive to consumers’ demands by allocating resources to the providers chosen by consumers, and use resources more economically, improving efficiency [84;95]. This view reflects standard neoclassical economic theory, which assumes that the quality of services is sustained and extended through innovation in competitive environments, as providers’ survival depends on their capacity to develop and produce services, which consumers want [96]. More specifically quasi markets are expected to work by putting pressure on providers through one or both of two mechanisms [81]: o Separation of provision of services and production of services by way of vouchers/freedom of choice of provider – or in Le Grand’s terms: ‘choice’ [23]. o The Tiebout model [97]: consumers are provided with an opportunity to ‘vote with their feet’ – or in Hirschmann’s and Le Grand’s terminology: ’exit’ [23;98]. Even if only a resourceful minority of patients exercise choice the threat of exit of this group may lead to improvements in hospital performance (see section 1.6) [20;23;98]. Little evidence is available on the workings of the first British quasi-markets in health care developed in the 1980s and 1990s [99;100], but like markets and planned economies quasimarkets may fail, probably due to: First, failure in market formation (monopoly or oligopoly) due to legal barriers to entry to the “market”, a “corner” in a resource (e.g. MDs), or declining marginal costs and thereby economies of scale favouring big producers. Second: failure by preference error due to lack of information, providers’ manipulation of consumers’ preferences, externalities not reflected in prices, or choices between bundles of services instead of single services. Third: failure 16 Based on the working paper ”Working for Patients”[90]. 13 by preference substitution, where consumers’ choices are based on other service characteristics than assumed by the providers. Like market failure and government failure, quasi-market failure may not be obvious: even if consumers utilize vouchers and/or vote with their feet, consumer sovereignty may be compromised because of too few providers or preferences biased by lack of information, manipulation or externalities [81]. The traditional neo-classical framework for analysis of markets is not useful for analyses of quasimarkets, because quasi-markets violate two core assumptions in traditional neo-classical economics: consumers pay for their own consumption, and transaction costs are zero. On the contrary, in quasi markets consumption is paid, partly or in full, by the public sector, and transaction costs are high due to uncertainty, bounded rationality and imperfect information [101]. Therefore, it is necessary to develop a specific framework for this purpose, and Le Grand [20] and Dixon [102]17 have developed detailed models of quasi-markets and of choice as a governance tool (Table 1). Viewing patients as fully informed and autonomous consumers [103] the models are consistent with each other and build on assumptions which are also consistent with the model of ‘economic man’, homo economicus. The two models may be merged into a combined Le GrandDixon model for use of choice as a governance tool, including 15 assumptions about a market’s institutional characteristics, actors’ information, actors’ preferences, and actors’ actual behaviour.18 1.8 Specific objectives and delimitations The specific objective of the present study was to investigate whether agents’ choice behaviour on the demand side after the introduction of choice in a hitherto supplier-driven health care system supported key assumptions behind a model of patient choice as a governance tool. Specifically the objective was to investigate who chose the hospital and the perspectives behind the choice by answering the following study questions derived from six of the assumptions behind the combined Le Grand-Dixon model (Table 1): o Do patients – and/or the agents acting on their behalf (the GPs) – utilize their right to choose the hospital? (assumptions 9, 13 and 15) o Which sources of information determine choice of hospital by or on behalf of patients? (assumption 3, 10 and 15) o Do patients’ and GPs’ sociodemographic characteristics influence their choice behaviour? o Which preferences for health care services’ properties are reflected in patients’ selection of data sources? More specifically: is quality the primary factor determining the choice of hospital (assumption 11)? Most studies investigating patients’ utilisation of choice concern citizens’ choice of GP and inpatients’ choice of hospital, but more and more patients in need of specialised treatment are treated on an outpatient basis [104], and therefore the present study included a study of outpatients as well as a study of inpatients’ choice behaviour. Due to the GPs’ role in agentprincipal-relationships a study of GPs’ choice-behaviour was performed. 17 Dixon refers to another source, but her presentation is much more condensed and specific than the original source. When quasi-market theory was developed, much emphasis was put on comparisons of transaction costs in market vs. nonmarket solutions [101]. Nowadays this subject plays a minor role and was not addressed in the present study. 18 14 Table 1: A combined Le Grand-Dixon model – assumptions behind use of choice as a governance model. Assumptions The market 1 Opportunities for choice Le Grand Dixon Combined model Consumers/agents may choose the provider Consumers are offered a choice of provider 2 Externalities from utilization of choice Individual consumption of health care generate no externalities Useful and accessible information enable consumers/agents to make informed choices Providers are paid by the state Subsidies supports utilization of choice 1 Consumers or agents have the opportunity to choose the provider 2 Individual consumption of health care generate no externalities 3 Consumers/agents have access to relevant and appropriate information on quality 4 Providers are paid by the state 5 Subsidies support utilization of choice 3 Access to information 4 Responsibility for payment 5 Transportation costs Supply: providers 6 Access to the market 7 Availability 8 Incentives Demand: consumers 9 Preferences Providers are able to enter the market and to expand/reduce activity Alternative providers are available Providers are motivated to attract consumers – without driving out altruistic behavior or encouraging creamskimming Consumers want to choose the provider 10 Awareness of choice 11 Behaviour Demand: agents 12 Agency and the market 13 Agents’ beliefs 14 Resources 15 Behaviour Consumers/agents have access to relevant and appropriate information on quality 6 Providers are able to enter the market and to expand/reduce activity 7 Alternative providers are available 8 Providers are motivated to attract consumers – without driving out altruistic behavior or encouraging cream-skimming Consumers want to choose and think that choice is important Consumers are aware of freedom of choice and are able to interpret data on quality Quality is consumers’ primary discriminator in choice of provider 9 Consumers want to choose and think that choice is important 10 Consumers are aware of freedom of choice and are able to interpret data on quality 11 Quality is consumers’ primary discriminator in choice of provider Freedom of choice is important to consumers Agents have time and resources to help consumers make informed choices Agents offer choice and information to consumers, involving them in decision making 12 Agency does not challenge the market’s function 13 Freedom of choice is important to consumers 14 Agents have time and resources to help consumers make informed choices 15 Agents offer choice and information to consumers, involving them in decision making Agency does not challenge the market’s function 15 1.9 Sub-studies Three sub-studies were performed to answer the study questions (Table 2): Study 1 was a questionnaire study to investigate patients’ reasons for their choice behaviour. The study was performed on the basis of a registry study to take advantage of the opportunity offered by this design to document the choice behaviour of all patients in the study group. Studies 2 and 3 were performed as questionnaire studies to investigate major decision maker populations’ stated reasons for their choice behaviour. Study I: A questionnaire study of which factors, including information sources, decide choice of hospital among patients facing a choice between a short waiting time and long distance to hospital vs. a long waiting time and short distance to hospital [104]. Study II: A questionnaire study of outpatients’ utilisation of data sources when they utilise choice [105]. Study III: A questionnaire study of the factors deciding GPs’ choice behaviour on behalf of patients and GPs’ utilization of data sources on hospital performance (quality and service) [106]. Table 2. Study questions and sub-studies. Study question Do patients utilise choice of hospital? How is the trade-off between short waiting-time and short distance to hospital? Which data sources on hospital performance are utilised by patients in choice? Is patients’ awareness and utilisation of choice related to their background? Is patients’ utilisation of information in choice associated with their background? Which data sources on hospital performance are utilised by GPs in choice? Is GPs’ utilization of data sources in choice related to their background? Are six specific assumptions behind the Le Grand-Dixon model for choice as a governance-tool supported by the evidence? Study I X X Study II X X X X X Study III X X X X X X X X 16 2 Materials and methods 2.1 The Danish health care system The public Danish health care system is a universal, tax financed, partly decentralized Beveridge/NHS-system. Five public bodies, ‘regions’, each of which is headed by a council elected by the population in the region, are responsible for provision of inpatient and outpatient health care provided free at the point of delivery by hospitals, GPs and specialists. The regions own and manage public hospitals and enter into agreements with GPs and specialists who are self-employed and responsible for their own facilities and never carry out their work in a hospital.. Until a reform coming into force on January 1 2007 the regions’ tasks were performed by similar but smaller public administrative bodies, ‘counties’ which were abolished in the reform [107]. Examination and treatment by general practitioners (GPs) and at public hospitals is financed by the patient’s home region. Each Dane chooses a local GP, who is responsible for basic examinations and treatments. GPs may refer elective patients to admittance or outpatient services at any public hospital for specialised services. In the study period the private Danish hospital sector owned less than 1 % of the Danish hospital beds, but private hospitals’ share of patients varied greatly between specialties from a large share of orthopaedic patients to no or very few patients with diagnoses relevant to departments of internal medicine. 2.2 The study areas Studies I-III were performed in two study areas. Both of the study areas presented an opportunity to investigate the study questions in settings without institutional barriers to utilization of free choice of hospital: o Each of the two study areas constituted a single uptake area (no ‘lock-in’-effects). o No physicians’ visiting rights: GPs faced no incentives to refer patients to specific hospitals. o Transport costs were subsidized to a greater degree than in the rest of the country. o No user charges for hospital treatment o GPs used the same procedure for referral to all the hospitals within the study areas: the GPs did not face incentives to choose a hospital in the county their practice was situated in. o Standardised information about expected waiting times etc. was available. The study areas were partly selected on the assumption that patients’ choice of hospital would reflect their preferences, due to the reduced institutional barriers to choice. The three counties jointly published waiting time-prognoses for common surgical procedures. At first these prognoses were sent to each GP by letter, later they were published on a website managed by the Danish counties and accessible to the public and a national website maintained by the Ministry for the Interior and Health. National data on clinical quality at hospital or department level were not available, but the ministry published data on individual departments’ volume for common surgical interventions as a proxy for quality; departments held regular information meetings for the GPs about the interventions provided at the department and the department’s procedures, and the counties and the ministry jointly published standardised data on patients’ 17 experiences with hospitals. Some departments and medical societies published data on individual departments’ performance as part of quality development or clinical research19. 2.2.1 Study area A: Roskilde County (study I and II) Roskilde County was a mixed urban/rural county in eastern Denmark with 230,368 inhabitants as of July 1, 1999 (area: 891.5 km2, population density: 258 inhabitants/km2), concentrated in one large town, Roskilde, and a suburban area along the county’s Baltic coast, including the town of Køge. In 1999, 41 % of the county’s economically active workforce worked in the Danish capital of Copenhagen, east of the study area. A single public hospital in the study area (Køge) hosted an orthopaedic department performing hip and knee replacement surgery. Travel distances within the study area were small by international standards: no point in the county was farther than 66 km by road from any of the hospitals included in study I. Roskilde and the Baltic coast were closely connected to Copenhagen and with each other by highways and public transport. 2.2.2 Study area B: the counties of Roskilde, Storstrøm and Vestsjælland (study III). The three mixed urban/rural counties of Roskilde, Storstrøm and Vestsjælland (801,452 inhabitants on January 1 2004 in total) constituted a single uptake area providing hospital treatment at 13 public hospitals evenly distributed within their area. No point in the study area was more than 30 km from the nearest public hospital in a bee line. Each specialty represented in the study area was available at two hospitals or more, except for dermatology and plastic surgery, which were only available at one hospital each. Patients in need of highly specialised treatment were referred to hospitals outside the region. Each public hospital was obliged to accept any referral from any GP in any of the three counties. Patients entitled by law to free travel to the hospital closest to their home were offered free travel to any public hospital in the study area to strengthen patients’ opportunities to utilise freedom of choice. 2.3 Study I: inpatients’ choice behaviour Study question: Which factors decided choice of hospital in elective joint arthroplasty patients facing a trade-off between short waiting time and short distance to hospital? Setting: Roskilde County (study area A). Source group: Patients on a waiting list for hip or knee replacement at hospital A. The patients did not know when they would be operated on at Hospital A, except that the waiting time from the examination to hospitalisation was 4–5 months or more (we did not know how many patients had been notified of their date of surgery). The source group was offered treatment at the more distant hospitals B or C with a shorter waiting time. Study group: The study group included all the patients who accepted re-referral (“accepters”) or preferred to remain on the waiting list (“decliners”). Questionnaire: The members of the study group received a questionnaire developed by the authors. The questionnaires were validated by interviews with five members of the study group by use of an interview guide developed by Unit of Patient Evaluation, Denmark, for validation of questionnaires regarding patients’ experiences. Data on all patients’ age, gender, diagnosis, the county’s offer of hospital and the patients’ decisions were obtained from an administrative database used for billing purposes. 19 For an example see reports from The Danish Society for Vascular Surgery - one of the first Danish societies to publish data on individual departments’ results regularly – currently only in Danish [108]. 18 Statistical analysis: Data were fed into a database (EPIINFO Version 3.2.2—April 14, 2004). Respondents’/non-respondents’ and accepters’/decliners’ gender, diagnosis and decisions were compared by use of a chi-square-test. We used the t-test to compare mean age in respondents/nonrespondents and in patients who regretted/did not regret their decision. We compared the presence of a car in responding accepters’ and decliners’ household by use of a chi-square-test. Respondents’ likelihood of regret was compared by use of a chi-square-test (decision, gender, diagnosis and hospital) and a t-test (age). Accepters and decliners were compared by gender, diagnosis and hospital by use of multivariate unconditional logistic regression. 2.4 Study II: outpatients’ choice behaviour Study question: Were outpatients aware of their opportunities for free choice of hospital and which sources of information were important to their choice? Study area: The former Roskilde County (study area A). Study group: Outpatients referred to examination, treatment (including surgery) or follow-up at one or more of 11 somatic outpatient clinics in Roskilde County in two months of 2002. The outpatient clinics included the following specialties: Internal medicine (2), general surgery (2), orthopaedic surgery (1), rheumatology (1), neurology (1), ophthalmology (1), paediatrics (1), gynaecology and obstetrics (1), and otorhinolaryngology (Ear, Nose, Throat (EAT), or Head and neck surgery) (1). In order to obtain data from all of the specialties we randomly allocated 400 patients from each outpatient clinic to the study group. For clinics visited by less than 400 patients in the two months all patients were included in the study group. Patients were only included in the study group once for each outpatient clinic they attended. Questionnaire: The study group received a standardised questionnaire developed for use in a biannual survey of inpatients’ experiences with Danish public hospitals. The original version of the questionnaire was validated for readability and understanding by interviews with 80 inpatients and was used for two nationwide studies of Danish inpatients’ experiences. A revised questionnaire aimed at outpatients was validated by interviews with 12 patients from five outpatient clinics using a standardised interview guide. Data: The patients were asked about their awareness and utilisation of free choice of hospital. Respondents who were aware of and utilised free choice of outpatient clinic were asked, why they chose to be examined or treated in this outpatient clinic? No questions concerning patients’ use of published data on clinics’ quality or service level were included. Data on each patient in the study group included gender, age, specialty, education and employment. Statistical analysis: Data were entered into a database (SAS). We weighted the responses from each specialty in accordance with the specialty’s share of the number of outpatients which attended the clinics during the study period and met the inclusion criteria. Respondents’ and nonrespondents’ gender, age and specialty were compared by a univariate chi-square-test. Respondents’ awareness and utilisation of free choice of hospital was analysed by gender, education and employment by a univariate chi-square test. Respondents aware of and utilising free choice of hospital were compared by gender, age (0-60 vs. 61+ years), referring doctor and education (none/short, medium and long) and specialty (surgical vs. medical specialty but not by single specialties) by use of a logistic regression analysis which did not control for other factors. Respondents’ reasons for choice of hospital were analysed by specialty (surgical vs. medical specialty), gender, education (none/short, medium and long), employment (in employment vs. other) and age (0-60 vs. 61+ years) using a univariate chi-square test. 19 2.5 Study III: general practitioners’ choice behaviour on behalf of patients Study questions: Did the GPs consider themselves or the patients responsible for choice of hospital? Which factors decided GPs’ choice of hospital on behalf of their patients? Which formal and informal sources of information were utilised by GPs to obtain information about various hospital departments’ standards of quality and service? Study area: the counties of Roskilde, Storstrøm and Vestsjælland (study area B). Study group: all of the 474 GPs practising in the study area. Questionnaire: The questionnaire was developed after a review of the literature and face-to-face discussions with GPs from two of the three counties. The questionnaire was validated by interviews with three GPs. The final questionnaire included questions on the GP and on the latest three somatic patients referred to hospital (department or outpatient clinic) by the GP: For each of the patients: gender; age; specialty; responsibility for choice of hospital in the GP’s opinion, and which of 16 factors were important for the choice of hospital in the GP’s opinion? Which of 15 sources of information on quality at hospital departments did the GP in general consider most relevant? How often did the GP use six specified sources of information on expected waiting time at hospital departments (the GPs could choose between four categories)? Data: The following data was recorded: the number of patients where the hospital was chosen by the GP, the patient or the patient’s relatives. For GPs who had chosen the hospital on behalf of one patient or more, we recorded the reasons for the choice on behalf of the latest patient referred to hospital. Each GP was only included once in the study of reasons for choice. Statistical analysis: Data was recorded in a database (EPIINFO Version 3.2.2. April 14, 2004). Respondents were compared with the study population by univariate analyses of gender, county (chi²) and number of years since graduation (t-test). This analysis was repeated for GPs who had chosen the hospital on behalf of one or more patients. For GPs who had chosen the hospital on behalf of one or more patients the GP’s reasons for choice on behalf of the most recent patient were compared by univariate analysis for gender (chi²) and years since graduation (t-test), and by logistic multiple regression analysis with the GPs’ gender and years since graduation as the independent variables. We tested for correlation between the number of factors for choice and the GPs’ gender and years since graduation by use of a multiple regression analysis. The GPs’ use of information sources on quality and expected waiting time at various hospitals were compared by univariate analyses for association with gender (chi²) or years since graduation (t-test) and by multiple logistic regression analysis with gender and years since graduation as the independent variables. 20 3 Results 3.1 Results, Study I: inpatients’ choice behaviour The source group consisted of 184 patients. Forty patients (22 %) did not respond to the invitation or asked to be deleted from the waiting list. The 86 accepters and 58 decliners made up the study group (n = 144). One hundred and twenty-five (87 %) filled in and returned the questionnaire. Univariate and multivariate analysis of the whole study group showed that choice of local hospital (decliners) versus choice of distant hospital (accepters) was not associated with gender, diagnosis or hospital. Short distance, short transport time and prior experience with Hospital A were the most important factors behind decliners’ choice. Some participants had already been informed of their date of surgery at Hospital A, when they received the offer of re-referral, and 50 % of the decliners stated that this information had been important for their choice. Short waiting time was the most important factor behind accepters’ choice. Nine patients attributed their choice to a negative impression of Hospital A, of which six patients had been hospitalised at Hospital A. 3.2 Results, Study II: outpatients’ choice behaviour The study group included 4,232 patients; 2,272 (54 %) filled in and returned the questionnaire. The respondents did not differ significantly from the study group with regard to specialty, gender and age. Forty-one percent of the respondents reported that they were aware of their right to choose the hospital. Patients referred to surgical specialties were significantly more likely than patients referred to medical specialties to report that they were aware of their right to choose. Reported awareness was the greatest among patients referred to ophthalmology (54 %) and the lowest among patients referred to neurology or rheumatology (34 %) and parents to paediatric patients (33 %). Patients’ reported awareness also differed significantly by gender, education and employment; female patients, patients with longer education and salaried employees in the public sector being especially likely to report that they were aware of their right to choose the hospital by themselves. Fifty-three percent of respondents, who reported that they were aware of their right to choose, reported that they chose the hospital. In univariate and logistic regression analysis female patients were significantly more likely than men to report that they chose the hospital. The share of parents which utilised free choice of hospital on behalf of their children was markedly lower than other patient groups. Reported utilisation of free choice was also low in patients referred to outpatient clinics in neurology, while utilisation was high in patients referred to ophthalmology (where awareness was high as well). Utilisation in the other specialties did not differ markedly. Patients, who were referred to a surgical specialty, were especially likely to report that they chose the hospital (44 vs. 37 %), but this tendency was not statistically significant. Patients who had an education of long duration, and patients who were self-employed or salaried employees in the public sector were especially likely to choose the hospital. The statistically significant univariate association between education and utilisation of choice disappeared in logistic regression, unlike the association with awareness of choice. Patients 20-39 years old were especially likely to choose the hospital, but age was not statistically significant in univariate or logistic regression. Distance to hospital was the factor, which the greatest number of patients reported to be important for their choice (44 %). GPs’ recommendation and waiting time were the second most important factors behind patients’ choice in the present study (24 %). Twenty-two percent of outpatients reported, that their own experiences influenced their choice of hospital, while seven percent were influenced by their friends’ and five percent by their family’s experiences. 21 3.3 Results: study III: GPs’ choice behaviour on behalf of patients Two hundred forty of 474 GPs (51 %) returned a filled-in questionnaire. Male and female GPs’ response rates were 50 % and 54 %, respectively. Respondents did not differ significantly from the study population with regard to county, gender or number of years since graduation. Among the 240 respondents 183 (76%) reported that in their view they chose the hospital on behalf of the latest patient referred to hospital, 35 (15%) reported that the patient made the choice, two (1%) reported that the patients’ relatives made the choice, and 20 (8%) did not state, who chose the hospital or ticked off several categories. Several of these GPs commented that they chose the hospital in cooperation with the patient or that the patient agreed with the GP. Ninety-two percent of the respondents (220 of 240) reported that they had chosen the hospital on behalf of one or more of the latest three patients referred to hospital. These 220 respondents did not differ significantly from the study population with regard to county, gender or number of years since graduation. Four GPs did not tick off any reasons for choice of hospital and were excluded from this part of the study. Eighty-seven of the 216 GPs (40 %) reported that a single factor decided their choice for the patient, short distance to the hospital being the decisive factor for 75 of the 87 GPs. Ninety-five GPs reported that 2-5 factors were very important for their choice, 25 quoted 6-9 factors, and nine GPs quoted ten or more factors. Short distances to hospital, the department’s serious consideration of referrals from the GP, excellent cooperation between the GP and the department and comments from previous patients referred to the department were the most common factors behind GPs’ choice of hospital on behalf of patients. The importance of each factor behind choice of hospital was not associated with the GP’s gender. Multiple regression analysis showed no significant association between the number of reasons for choice and the GP’s gender and the number of years since the GP’s graduation. In univariate analysis of each factor and the number of years since graduation, GPs who based their choice on their personal experiences with the department as employees were significantly younger than the other GPs. The most frequently used sources of information on quality at a hospital department were reports from patients referred to the department or the hospital by the GP previously, and other GPs’ comments on the department. In univariate analysis female GPs were significantly more likely than male GPs to consider official information from departments or hospitals an important source of information, and GPs who quoted their experiences as trainees at a department or a hospital or previously referred patients’ comments on a department as important sources of information on quality were significantly younger than those GPs who did not. Multivariate analyses confirmed the statistically significant associations between age and utilisation of information from previously referred patients, and between gender and use of official information. Multivariate analysis found no association between GPs’ age or gender and their quoting experiences from employment at a department or a hospital as sources of information on quality. The hospitals’ letters of confirmation of referrals were the GPs’ most important source of information on waiting times. Information available from websites was used less often than information on paper. Multiple, logistic regression analyses showed that male and younger GPs were especially likely to use prognoses on the internet. 22 4 Discussion The introduction of choice as a patient right builds on the assumption, that patients derive consequentialist utility from improved hospital performance and/or process utility [53] from making the choice by themselves, or consequentialist utility by being treated at a better hospital than otherwise – the present study focused on the assumptions about choice behaviour behind utilization of patient rights (free choice of hospital) as a governance tool. The assumptions may be illustrated in a model, where autonomous patients are aware of their opportunities for choice, want to choose the provider, have preferences for high performance hospitals, and have access to and collect information about various providers’ performance from information sources, including their GP; or delegate their choice to a GP who acts in full accordance with the patient’s preference. Figure 1: Model behind utilization of choice as a governance tool. Patient Patient Specific choice of hospital GP Published performance data 4.1 Do patients – and/or their agents - choose the hospital? In study I and II we examined specific patient groups’ awareness and utilization of free choice of hospital. In Study II outpatients’ awareness was lower than Danish inpatients’ awareness, which was higher and growing in other studies (81 % in 2000 [109] and 87 % in 2006 [110]20). We found no studies on this subject, despite the trend from inpatient- towards outpatient-care. Awareness differed by specialty [111], indicating that a governance effect of choice may also differ by specialty. International comparisons were difficult due to differences regarding the content of rights, differences between study groups regarding specialty and patients’ mobility, and time-lags, as choice was introduced much later in e.g. the English NHS than in Denmark, but by 2008 approx. 46 % of elective English patients recalled being offered a choice of provider at the point of referral [112]. Approximately 49 % of Danish inpatients who were aware of choice reported that they exercised this right, and the share is growing [109;110;113], although Danish patients’ utilization of new rights quickly reached a stable level [114]. International comparisons were difficult due to time-lags and different patient rights, study groups and research questions, but a review found that few patients choose their healthcare provider [115], while studies found widely differing shares in individual countries (31 % [74] and 61 % [116] in the Netherlands or 14-41 % in three US studies 20 Whereupon the questions about inpatients’ awareness and utilization of choice in the biannual studies were deleted from the national surveys of patients’ experiences. 23 [117-119]). Patients’ emphasis on choice differs by age, education and income level [120;121], indicating that the governance effect of choice is smaller in specialties with a great share of older patients and patients with short education and low income. Le Grand challenges the assumption that laymen face significant challenges in choices in health care, pointing out that a patient only needs to obtain information about the relevant disease and does not need to obtain a degree in medicine in general: “…the patient has to know only about those [diseases] potentially or actually affecting himself or herself. Medical handbooks can aid self-diagnosis; and, once their illness is diagnosed, especially in these days of the Internet, patients can – and indeed often do – ‘train’ themselves in their own disease.”[23] This reasoning demonstrates great confidence in patients’ ability and willingness to collect, analyze and utilize information, but results from studies of patients’ practical decision-making processes indicate that rational decision-making is challenging for a patient [122]. However, Le Grand also explicitly points to patients’ opportunities to take advantage of agency-relationships, stating that: “…[patients] are exercising their royal powers by delegating authority to someone else. The voluntary pawn is not really a pawn…”[23], thereby dismissing critique pointing to irrationality in decision-making and challenges associated with obtaining and processing medical information and uncertainty. According to Study I and II the GP was the most important single factor behind choice of hospital, confirming consistent findings that patients rely on their GP to choose for them or choose the nearest provider21[74;115;124], thereby underscoring the need to investigate GPs’ preferences and choice behavior. We examined GPs’ choice of hospital on behalf of patients, distinguishing between patients’ and GPs’ choice behaviour. This distinction may be challenged, as patients and GPs may share the choice: Study III, like several other studies, started out on the assumption that in each referral the main responsibility for choice of hospital could be attributed to a single person: the GP or the patient [125]. However, Study III and another Danish study [113] indicated that in 15 % or more of the referrals the patient and the GP found that they had made the choice. The divergent findings may be due to shared decision making, where both parts reported that they made the choice. Two US studies found that 62 % of randomly selected US citizens outside hospital and 42 % of Medicare patients referred to major high-risk surgery [118] reported that the choice was shared with the GP [120], the last time they were hospitalised. One study divided GPs into the three categories choice enthusiasts, choice sceptics and choice paternalists [126]. Study III did not enable us to apply this distinction, but several GPs reported that they regarded provision of information to patients about freedom of choice and providers’ performance as a task for other health care personnel or the patients themselves. The literature points to several reasons for GPs to choose the hospital on behalf of the patient even if they are not asked to make the choice: they may question the value of choice to patients [102;126], or they may not consider information to patients about choice to be a part of their job[102;127]. They may consider this task to be too time-consuming [102;128]; distrust data published by the providers [126;128;129]; find that use of performance data interferes with their professional role [128], think that choice reduces continuity of care [128], want to prevent being blamed by patients for presenting faulty data [57], or simply not be aware of where to find performance data [128]. GPs’ choice behaviour varies by GP [126] and by the patients’ diagnoses [130], English GPs being more likely to offer choice to patients in need of a routine intervention, and patients who are relatively healthy [102]. Swedish GPs in principle approved of choice, but specific questions about their actual referrals revealed a preference for choosing the hospital on behalf of patients [127]. The GPs 21 See for example [123]. 24 attributed their choices on behalf of patients to medical reasons, and they did not regularly provide patients with information about their rights and alternatives available [127]. English GPs described a significant increase in the work burden, when patients were provided with information about choice, although each GP only referred two patients a week to hospital and each of these two patient visits were only extended by 36 seconds [131]. This apparent imbalance between actual time spent on providing advice and the perceived burden may reflect that GPs must stay up-to-date on various providers’ performance, or that they find time spent on advising patients about providers less rewarding professionally than time spent on diagnostic procedures and information about the patient’s symptoms, disease and prognosis. These results challenge the assumption that quasi markets constitute major drivers of performance improvement, as GPs’ choice behaviour only partly reflects performance, thereby underscoring the need to investigate the reasons determining GPs’ choice of hospital on behalf of patients [102;126;127;132]. 4.2 Which sources of information determine choice of hospital? The present study included patients and GPs but did not include healthy citizens. However, studies of healthy citizens’ preferences in hypothetical choices of hospital indicate that they take a keen interest in data on providers’ performance [124;133-137]. This is especially so, if there is only a short distance to the closest alternative hospital [138]. Major shares of citizens and patients who do not face a choice of hospital report, that if they had faced a choice of hospital, their choice would be based on performance data [134;139;140], and that they think that they will put more emphasis on finding and utilizing performance data at their next hospitalization than they did before their latest hospitalization [139]. These findings support the assumptions behind quasi markets as a governance tool. 4.2.1 Patients’ sources of information In Study I and II patients did not report that they utilized published performance data from specific sources, supporting conclusions from other studies, that data has little impact on choice [141], even when they are aware of data. Likewise, patients show an interest in hypothetical performance data [74;137], but little interest in available comparative data, and publishing of outcome data is not followed by patient movements towards the hospitals with the best outcomes [142]. Utilization of performance data differs by sociodemographic groups, young patients, well-off groups and patients with higher education being more likely to utilize such information [142-6]. In 2005 it became mandatory for Danish hospitals to inform patients, that they have the opportunity to call hospitals and ask for data on their volume, although it is not possible to make general conclusions about a relationship between clinical volume and outcome [147]. The present study did not include questions about the impact of volume, but other studies indicated that patients are less likely than clinicians to subscribe to a positive association between volume and clinical performance [148], few patients reporting that hospital or surgeon volume influences their choice [118;123]. Studies from the US and France have found that utilization of low volumehospitals is associated with rural residency (probably confounded by long distance to alternative hospitals), low income, short education and attributing great weight to short distance to hospital [149;150]. The French study unexpectedly found that some patients, who chose the surgeon by themselves, chose a low volume-surgeon [150], and similarly a third of coronary bypass graft patients in a US study bypassed a high-volume hospital to get to a low-volume hospital for surgery [151]. These findings confirm conclusions from studies finding mixed evidence for the effect of publicly released performance data on patients’ selection of provider [152], and may contribute to understanding why studies of US hospital volumes after the publication of data on hospital quality 25 only found modest, transient effects limited to certain geographic areas and sociodemographic groups [144]. Even when data is utilized, patients may misinterpret performance indicators and make choices which do not reflect their preferences [153]. Patients’ limited interest in performance data may be due to several reasons [154]. Patients and their preferences are heterogeneous: on the one hand, some patients find that they face too many alternatives [151] or the information is too detailed resulting in cognitive overload [155], while other patients find that the data is too aggregated and puts too much emphasis on indirect measures of quality [156]. Patients may not be aware of the data [142]. Utilization of performance data is only relevant to elective patients, and may necessitate postponement of treatment to search for and compare data [157]. The interpretation of data may be a challenge, as many patients are insufficiently informed to utilize data for choice [155;158-163] despite Le Grand’s confidence in patients’ abilities; one study of simple one-dimensional data on mortality found a small but significant positive effect on choice of hospital [164]. One Dutch study found that patients utilized performance data in different and selective ways, some respondents selecting information which confirmed their own views [165]. Apparently very specific data is more likely to strengthen patients’ interest [145]: in a US study of mandatory publishing of data on quality at fertility clinics, the introduction of report cards was followed by an increase in market share for clinics with relatively high birth rates. The authors’ interpretation was that the effect of performance data will be higher when patient groups find outcome data easy to interpret, patients are young, well-educated, and wealthy, or patients are less influenced by their GP or alternative information sources [166]. The importance of the presentation of data is underscored by findings that patients become confused, if they must interpret whether an indicator makes a high or a low rating preferable [153]. Patients may also lack confidence in the data [167], or their decision making may be influenced by fatalism [168] or anticipated regret [55;56], or they may not be aware of the number of alternatives [142]. The present study did not enable us to evaluate the influence of each of these reasons for non-use of available performance data. Patients’ small interest in performance data may also be interpreted as an indication that high clinical quality is taken for granted by patients or is viewed as a professional responsibility, which patients do not need to take into consideration [169]. If this is a major factor behind non-use of data, efforts to improve the presentation of data may not influence utilization and the governance effect of choice. In study I and II the patients’ own experiences with hospital departments or hospitals was one of the most important factors behind patients’ choice, confirming results from studies which consistently demonstrate that patients’ personal experiences constitutes a very important source of information about alternative providers and that patients rely on their previous experiences when they choose a provider [115]. For example a US study found that past experience was the most important source of information to patients [170], and 52 % of Dutch patients stated that their latest choice of hospital was influenced by their previous experiences with hospitals. A slightly higher share (56 %) assumed that their previous experiences would also influence future choices [116]. Canadian patients put more emphasis on previous experiences with individual surgeons than on shorter waiting time [171], but Danish patients face a choice of department and not of clinician. In Study I relatives’ and friends’ experiences with hospitals available played a major role for patients’ choice of hospital, thereby resembling Dutch findings, in which 24 % of former patients considered relatives’ and friends’ experiences important to their choice [116], and US studies of clinically healthy citizens’ hypothetical choice, which indicate that patients’ own experiences and other people’s reports about their experiences is more important or just as important for the choice 26 of hospital as performance data and the GP’s advice [117;159;162;171]. Other Dutch patients attributed at least as much weight to former patients’ experiences as to performance data [141]. Hospitals’ or individual clinicians’ reputation is a common but nebulous and often ill-defined variable in studies of choice, and several variables in studies I and II may be compared to “hospital reputation” in other studies. A US study of elderly patients attending major surgery showed that 79 and 80 % of patients stated that hospital and surgeon reputation was “extremely” or “very” important to their choice of hospital or surgeon, and that the GP was the most important source of information on hospital reputation. Sixty-four percent attributed their impression of the hospital’s reputation to the GP, while family and friends were the second most important source [124]. In Study I patients were offered a specific combination of shortened waiting time and more distant destination, while patients in study II could utilize waiting time forecasts, if forecasts were available for their specific diagnosis. The utilization of choice in study I was considered surprisingly low in Denmark but high by international standards [172], as it reached the same level as the London Choice Project. Apparently patients in Study I who utilised the offer were averse to uncertainty about the length of the waiting time. Two British studies support the findings in Study I on the importance of uncertain but long waiting time: elective patients facing very long waiting times and uncertainty about its length were willing to travel much further than in Study I in order to reduce the waiting time and its uncertainty [173;174]. A majority (57-67%) of English patients offered a shorter waiting time at an alternative hospital took advantage of the offer [112], and in London cataract patients’ mobility was so high, that mean waiting times at different hospitals converged after the introduction of choice [175]. In a Danish study 31 % of patients who had chosen the hospital by themselves reported, that the expected waiting time influenced their choice [109], and Dutch patients put at least as much weight on waiting time data as on data on clinical performance [141]. In Study II patients referred to surgical specialties were more sensitive to waiting time than patients referred to medical specialties, probably because patients referred to surgical specialties are more likely to be elective than patients referred to medical specialties. Other studies have found associations between specialty or disease and the impact of waiting time on choice of hospital, a short waiting time being especially important to patients referred to departments of ophthalmology, orthopaedics or otorhinolaryngology [111]. These results may reflect that 1) these three specialties concern abilities which are of essential importance to patients’ mobility and daily functioning, namely the patients’ ability to see, move and hear, and 2) waiting times are usually longer in surgical than in medical specialties. The importance of the latter point is underscored by a Norwegian study in which patients on a waiting list were more likely to consider choosing the hospital by themselves, than patients who did not have to wait [176]. In study I the media played a minor role for patients’ evaluation and choice of hospital. This may be due to the few media reports about local hospitals in the mass media in the study period, but even when one of the distant alternatives was criticized in the mass media in the study period for its standards of hygiene, patients’ refusal of re-referral to the hospital was rarely attributed to media reports. A Dutch study also found that the media influenced few patients’ (3 %) choice of hospital, although a slightly higher (in absolute terms) share (6 %) would like to include media reports in future choices [116]. A US study found that reports of single sensational events at a hospital are more important for patients’ choice of a hospital than data on general mortality [164]. A Cochrane review found that the mass media are important for the decision to utilize specific health services [177], but the findings indicate that media reports only have minor influence on the specific choice of provider. 27 In Study I and II a large share of the patients, who reported that they chose the hospital by themselves (20-35 %), also reported that the GP’s recommendations were important to their choice [109;113], confirming results from other studies of the importance of the GP to patients’ choice: in a study from the Netherlands, where the GP acts like a gatekeeper like in Denmark, 67 % of patients reported that the GP advised them on choice of hospital at their latest hospitalization, and 81 % reported that they thought that advice from the GP would be important or extremely important to their future choices of hospital or specialist [116]. 4.2.2 GPs’ sources of information Despite the GPs’ major formal and documented role in choice of hospital, only few studies of GPs’ choice behaviour have been performed, some of which were performed at a time where less information on performance was available to GPs than today. In study III little department- and diagnoses-specific data on clinical quality was available to the GPs, including departments’ reports on their own performance and data from some specialty societies which published department-specific data on their performance, enabling GPs to compare providers’ historical performance with national standards or other providers. However, even when data on clinical quality was available, GPs – especially male GPs - showed little interest in the data. GPs face patients with a broad range of symptoms or diseases, and constant up-dating on results from various databases was described as a major challenge, some GPs commenting that patient visits were of such short duration, that they could not allocate time to searching for performance data on the relevant intervention, thereby indicating that more detailed data may not have resulted in a greater utilization of data. These results confirm results from countries, where performance data has been available for several years, but where GPs still show little interest in the data [178], indicating that non-use was not just due to lack of experience. In Study III GPs put little emphasis on standardized waiting time forecasts. Some of the reasons may be that forecasts were not available for all diagnoses, and that waiting times were shorter than in for example the UK. Even when formalised and prospective information was available, GPs were more likely to rely on their memory of waiting time in past referrals or data on paper, because accessing information on the web took more time. Some GPs stated that they intended to use information from the web in the future. However, this reported intention may be compared with the results of British studies from the 1990s: one British study from the early 1990s found that GPs’ previous experiences with hospitals and reports from patients played a major role for GPs’ choices, “waiting time for first consultant appointment” being quoted as the most important reported factor behind GPs’ choice of hospital [179]. Meanwhile British GPs presented with hypothetical scenarios of visiting patients considered that waiting time would be the most important factor for the choice of hospital [180;181]. However, when monthly forecasts on hospital waiting times were introduced, the forecasts were not followed by major movements of patients from one area to another, although some GPs stopped referring patients to distant hospitals with equally long waiting times as the local hospitals [182]. In study III patients’ descriptions of their past experiences with various hospitals was important for GPs’ current choices of hospital, a result conformed in a later Dutch study [128], and the GPs generalised the reports about one hospital department to other departments at the same hospital, thereby using patients’ reported experiences at one department as a proxy for service and/or quality at the hospital in general. Likewise an English study found, that GPs’ previous experience with hospitals and reports from patients played a major role for GPs’ choices, GPs reporting that 28 “confidence in consultant” was the second most important, and “quality and speed of treatment information” the third most important factor behind choice of hospital [179]. Information from colleagues about departments and hospitals was also important for GPs’ choice on behalf of patients. This result was consistent with other studies of GPs’ utilisation of sources of information, which refer to GPs as having “a sort of ‘mental filing cabinet’ of “informal information” or ”soft intelligence” [126]. The strong influence on current choices of hospital of patients’ and GPs’ past experience on current choice of hospital is likely to introduce inertia in GP’s choice of hospital and recommendations to patients. The media played a minor role for GPs’ evaluation and choice of hospital in Study III. This may be due to the few media reports about local hospitals in the mass media in the study period or GPs may be reluctant to attribute their evaluation of hospitals to the mass media. The results of the present study challenge the assumptions behind utilization of choice – and thereby quasi markets – as governance tools, as patients’ and GPs’ choices of hospital were not based on recent data on hospital performance but on reports about proxy measures on past performance. 4.3 Influence of sociodemographic characteristics on choice behaviour? We found some relationships between patients and GPs’ sociodemographic characteristics which were not included in sections 4.1 and 4.2 but may still be relevant to choice behaviour: In Study II female outpatients were significantly more likely than men to choose the clinic closest to their home; male outpatients were significantly more likely to attribute their choice to waiting time than female outpatients, and male outpatients were more likely than female patients to make their choice based on their personal experiences with clinics. Age was not a statistically significant factor behind patients’ reported utilization of choice in Study II. Other studies reached contradictory conclusions: younger patients may need assistance to think through what is important to them, making older patients with their greater experience with providers and with decision making more active choosers despite their reduced mobility, although accessing and utilising data on the internet may constitute a challenge [183]. However, older patients tend to prefer less autonomy and seek less information on their own than young patients [121]. In Study II male outpatients were especially likely to make their choice based on their personal experiences with clinics. In Study II patients’ choice behaviour varied by specialty: family’s and friends’ experiences was especially important to outpatients referred to surgical specialties, and outpatients referred to surgical specialties were significantly more likely to make their choice based on waiting time than outpatients referred to medical specialties. Two interrelated reasons for paediatric patients’ low utilisation could be a small number of paediatric departments (few alternatives) and quite long distances between these departments: parents may have to pick up their child at a kindergarten or school before they go to the clinic, leading to an even longer transport time for the parents, making them especially sensitive to distance. We did not disaggregate from specialty level to diagnoses or the severity of the specific disease. Concern about severe diseases may make patients more likely to utilize choice, and inpatients are more likely than outpatients to suffer from serious disease [102]. In Study II outpatients not in employment were especially likely to make their choice based on their personal experience with clinics. People in lower social positions tend to be conservative in their choice behaviour and stick to habits rather than make new choices [184], while more highly 29 educated patients and patients with higher income make an active choice more often [115]. In South Korea pregnant women’s awareness of published Caesarean section rates by hospital was positively correlated with family income [185]. In a French interview study pregnant women with a higher educational level were especially likely to choose a maternity unit with special technical attributes [186], and such demands may contribute to explaining why these patients were especially likely to choose specialized hospital departments. In the US the GP’s role in choice of hospital is inversely related to the patient’s socioeconomic class, probably due to institutional reasons, as poorer patients are more likely to use walk-in clinics or emergency rooms [187]. The results indicate that in the study period many patients and GPs did not consider utilization of choice to be important, thereby reducing choice’s impact as a governance tool. However, patients’ and GPs’ preferences and choicer behaviour may change over time. 4.4 Is performance the primary factor behind choice of hospital? Introduction of choice as a governance tool to promote quality and service in health care depends on the assumption that providers’ performance is the most important factor behind patients’ choice of provider. However, studies from several continents with different health care systems have shown that short distance is of great importance to the actual choice of hospital [188;189], thereby questioning a key assumption behind choice, although a more recent (based on data from 2008-10) Dutch study found that published performance data also have a significant effect on patients’ choice of hospital [190]. In Study I and II short distance to the closest hospital was inpatients’ primary reason for choice. A US study from a metropolitan area confirmed the importance of distance to choice of hospital, although patients were more sensitive to travel time than to travel distance. By rural standards numerous alternatives were available, but metropolitan patients were still strongly biased in favour of nearby hospitals [191]. In a US registry study 60 % of patients chose the hospital which was closest to their home. The share did not differ between the cities and rural areas [192], suggesting that there is no threshold below which distance becomes unimportant. Distance is a relative rather than an absolute factor when patients or GPs choose a hospital: the farther patients live from the closest hospital, the more likely they are to choose or be referred to an even more distant hospital [130;193]. Female patients [193], older patients [192;194-6], patients with a short or no education [74], and disadvantaged patients in general [186] are less likely to bypass a large local hospital and travel to a distant hospital. Patients’ educational level and/or income may constitute confounders for distance to the closest hospital, when people with higher education and income are more likely to live in suburbs, while hospitals tend to be located in city centres, where people with lower educational levels and income and shorter distance to hospital live [197]. Several studies have found a trade-off between distance to hospital and other properties of health care services like waiting time, but the patients most willing to travel (male patients less than 67 years old, with higher education, referred late in the study period of 2001-3), were only willing to choose a hospital associated with an extra transport time of one hour, if the waiting time there was 32 weeks shorter [198], while an English study found, that patients required a reduction of 2.3 months to accept an extra transport time of one hour [199]. In Study III GPs reported, that short distance to hospital was the most important factor behind their choice of hospital on behalf of patients, while waiting time at the local hospital made Norwegian GPs more likely to refer patients to a distant hospital [130]. The present study confirmed results from other studies that distance is the major factor deciding choice of hospital on choice of hospital leading to an inverse relationship between distance to 30 alternative hospitals and likelihood of choosing a hospital [116;123;198;200-5]. Distance is independent of quality, service and efficiency, thereby challenging use of quasi markets and choice as a governance tool aimed at improving quality and service. 4.5 A model of patients’ and their agents’ choice of hospital Patients – and GPs - and their preferences are heterogeneous, with individual sociodemographic backgrounds and experiences with the health care system which influence their choice of hospital, but patients and their agents are most likely to choose the hospital closest to their home. The findings in the present study are illustrated in a model (Figure 2) which differs from the original model (Figure 1) by including more informal sources of information and introducing feedback mechanisms, where information from several sources on past experiences influence patients’ and GPs’ present choices, giving rise to new experiences which are shared with other decision-makers and thereby influence future choices. The model emphasizes the influence of patients’ sociodemographic background on their awareness of and utilization of choice, and on the importance the patient attributes to health care services’ characteristics and to information sources, thereby influencing the choice of provider. Figure 2: Model of factors behind patients’ and agents’ choice of hospital. The patient’s relatives and friends Sociodemographic background The patient’s experiences with the hospital Patient Patient Specific choice of hospital GP The GP’s experiences with cooperation with the hospital Published performance data Colleagues Although each patient’s experiences with individual hospital departments influence their future choice of hospital, the influence is limited to the small number of hospital departments, where the patient has been hospitalized in the past. Patients compensate for these limitations by utilizing information from the GP, their friends and their family; by generalising their experiences with one department to the whole hospital and/or by delegating the choice to the GP. The GPs strongly influence patients’ choice when they choose the hospital on their behalf and/or provide information about providers, based on (informal) information about previous hospitalisations from their own sources of information and their interaction with hospitals, which reflect the 31 GPs’ past experience with hospitals, rather than the hospitals’ current performance. The GPs’ choice behaviour is influenced to a minor degree by their age and gender. Patients share their experiences at hospital departments and hospitals with the GPs, who share this information with their colleagues. Published performance data may add to GPs’ information base, but play a minor role as recalling informal information takes less time. The major influence of past experiences with hospital departments on patients’ choices implies that many sources of information influence choice of hospital and a tendency to inertia in referral patterns, as information about proxy performance measures is provided through feedbackmechanisms with time-lags. The emphasis on informal information about hospitals implies a minor governance effect of choice, if providers are aware, that an excellent performance may not attract patients, while a bad performance may not keep patients away from the provider. 4.6 Strengths and weaknesses of the study The two study areas constituted relevant subjects for the study. The health care system was an example of the public systems whose performance quasi markets in general and choice in particular were developed to improve. Patients and GPs chose the hospital independently of financial considerations, and patients had a greater freedom of choice than in a NHS-system like in England, although institutional differences between health care systems influence patients’ and GPs’ opportunities for choice, complicating international comparisons and generalizations of findings from studies performed in a single country. The content of choice was almost unchanged during the study period despite changes in national legislation. Hospitals were obliged to accept patients from other parts of the study area – thereby creating a “single market”. The counties paid for transport costs at more distant hospitals within the region, if patients were entitled to reimbursement to the hospital they would usually be referred to; still transport constituted a barrier to utilization of choice, if patients wanted to be treated at a hospital in another region. The study was performed a few years after the introduction of choice, and a study performed in study area B found that utilisation of new opportunities for choice reached a stable level a few years after its introduction [114]. The present study did not include the small Danish private hospital sector or the small number of patients travelling abroad for treatment, and it was performed before the introduction of extended freedom of choice of hospital, which probably is especially relevant to relatively mobile and young patients. Therefore patients may be more likely to utilise choice now, where patients have more experience and more providers are available, and the conclusions from the present study may not necessarily be applicable to extended choice, which is especially relevant to certain specialties and where providers’ behaviour may differ from that of public hospitals and their employees. The population in Study 1 was unselected but homogeneous with regard to diagnosis and age, reducing the opportunities to generalise the conclusions to other patient groups. A high response rate reduced the risk of selection bias. Patients were not informed about their specific expected waiting time, presenting all the patients with the same choice based on standardised information about their opportunities of choice, except that some patients knew when they would be operated on at A. Patients were not asked about their social background, and data on health status was not collected, even though patients’ views on acceptable waiting times for surgery are influenced by their symptoms [206;207]. There was a risk of recall bias, as the participants received the questionnaire more than three years after making their choice. Respondents may have simplified the choices they made. Many respondents elaborated on their answers, but we cannot say whether these comments reflected that patients recalled their choices or a rationalization. 32 Study II included a major, representative study group and utilized questions validated in comparable studies. However, a medium response rate increased the risk of selection bias. Some patient groups may have been especially likely to answer, e.g. patients with strong views on choice of hospital. Female patients were especially likely to be aware of and utilize choice than men, and they were also more likely to respond. Therefore the study may have exaggerated 1) the importance of any single factor for choice, 2) patients’ likelihood to utilize choice, and 3) factors which were especially important to female patients. The study included many statistical tests and some apparently statistically significant findings may reflect mass significance rather than causality. Recall bias may constitute a problem, and chronic patients attending a regular check-up may have chosen the clinic several years before the study. Respondents may have provided a simplified and idealized description of the decision making. The study did not provide evidence on outpatients’ utilisation of published performance data. The study was performed nine years after the introduction of freedom of choice of public hospital in Denmark and before introduction of extended freedom of choice. Danish patients have become increasingly used to choice, and Study II may reflect patients’ behaviour in public health care systems several years after its introduction. In Study III the response rate of 52 % apparently was normal for studies of GPs. Respondents did not differ from non-respondents with regard to age, gender or county, but GPs with a stronger than average interest in questions concerning choice of hospital may have been especially likely to participate. Therefore the study may exaggerate the number of factors which influence choice and of the importance of each individual factor. Usually studies should be performed prospectively to reduce bias. However, we chose a retrospective design in order not to influence the GPs’ choice behaviour but thereby increasing the risk of recall bias. Patients and GPs may have shared the choice of hospital. Therefore the study may have underestimated patients’ influence on choice. The present study did not concern quasi-markets, where a public or private purchaser chooses a provider on behalf of patients without offering patients a choice among providers, or only a choice among very few providers. Nor did the study concern citizens’ or patients’ choice of a financing third part, a specific clinician at a hospital or a GP; patients’ thresholds for attending their GP for examination and possible referral to hospital; the GPs’ thresholds for referring patients to hospital; the effect of co-payments on choice of hospital; quantification of the effect of introduction of choice of hospital on equity or on hospitals’ quality, production or productivity [36]; changes over time in politicians’ reasons for extending choice22, or management of private providers – the results in the present study should only be generalized to these topics with great care. Assumptions 1-6 in the Le Grand-Dixon model were evaluated in the study, while assumptions 7-10 were not evaluated because an evaluation of one or more of these assumptions would necessitate more substudies. Assumptions 11-15 were not evaluated in the present study because their degree of fulfilment was decided by the Danish care system’s structure. Assumption 1: Consumers and agents have access to relevant and appropriate information on quality. Assumption 2: Consumers want to choose and think that choice is important. Assumption 3: Consumers are aware of freedom of choice and are able to interpret data on quality. Assumption 4: Quality is consumers’ primary discriminator in choice of provider. 22 A brief description of the content of freedom of choice in Denmark is provided in section 1.3 and in Appendix 1. 33 Assumption 5: Freedom of choice is important to consumers. Assumption 6: Agents offer choice to consumers, convey information to consumers, involving patients in decision making. Assumption 7: Individual consumption does not generate externalities. The topic of externalities from health care is a major one, which could not be covered within the limits of the present study. Assumption 8: Providers are motivated to attract users to the services they provide – without driving out altruistic behaviour or encouraging cream-skimming. Le Grand argues that the introduction of quasi-markets does not reduce “knights” to “knaves”[20;23]. Cream-skimming is associated with the combination of choice and activity-based financing and not by choice per se. Departments were forbidden from declining referrals from within the study areas. Letters-ofreferral contained little and unspecific information, which could be used to sift patients. Targets were defined at department- and hospital-level. Assumption 9: Agency does not challenge the market’s function. This very broad assumption was partly tested in the study, but it was hardly possible to cover every possible challenge from agency to the market in this study. Assumption 10: Agents have time and resources to support consumers to make an informed choice. GPs were obliged to assist patients in making a choice and the counties/regions employed patient advisors who provided advice on patients’ rights and opportunities for choice. Assumption 11: Consumers or their agents have the opportunity to choose the provider. The assumption was met in the study areas: by law patients could choose the provider freely among providers within or outside the study areas. Assumption 12: Providers are paid by the public sector. The assumption was fulfilled, as the study was performed in a universal health care system without user charges for hospital care. Assumption 13: Assistance supports consumers’ utilization of choice. The influence of subsidized transport was not included in the present study. Danish patients’ rights depended on a detailed set of regulation, involving patients’ age, income and mobility. Therefore Denmark was not a useful area to study whether subsidizing relatively poor patients’ transportation costs promotes competition and reduces inequality as proposed by Le Grand [20]. In the study areas the rules were more supportive of choice of a distant hospital within the study area than the rules in the rest of the country. Assumption 14: Providers are able to enter the market and to expand/reduce activity. The assumption was not fulfilled in the study area: interventions were distributed between the hospitals by political and administrative decision-makers, reducing the impact of competition. It was not possible for private providers to enter the market. Closures of public hospitals met with public critique of politicians, thereby reducing politicians’ degrees of freedom. Assumption 15: A number of alternative providers are available. The assumption was fulfilled: all treatments performed in the study areas were available at several hospitals within the study area or outside the study area in Denmark. 34 5 Conclusions and perspectives 5.1 Conclusion Utilisation of choice as a quasi market governance tool in health care builds on an assumption, that actors on the demand side are aware of choice, want to choose the provider by themselves based on the alternative providers’ quality and service and thereby put pressure on providers to improve their performance in order to attract customers. This assumption is consistent with experiences from other sectors [208] and with healthy citizens’ views, as they tend to assume that if they were patients, they would utilize data on performance and ‘shop around’ to select the best possible provider by way of a rational decision making process [124;133;134;142;209]. However, the choice behaviour which healthy people assume that they would practice in a choice situation differs from patients’ actual choice behaviour [155], and the present study confirmed findings from other studies that challenge key assumptions and preconditions behind the introduction of quasi markets to improve performance in the public sector. Several years after the introduction of the quasi market, actors only to a limited extent acted like autonomous customers in conventional markets for goods and services, even though GPs and a major share of patients were aware of the opportunity to choose the hospital and utilized the opportunity. The GP was the most important source of information for patients choosing a hospital and made the choice together with or on behalf of the rest of the patients. Patients’ and GPs’ choice behaviour sent signals with a delay to providers to improve their performance, as patients and their agents’ decision making processes were dominated by feedbackmechanisms, where information about past experiences influenced patients’ and GPs’ present choices, giving rise to new experiences which in time were shared with other decision-makers and thereby influenced future choices. Short distance to hospital was a major factor behind patients’ and GPs’ choice of hospital, and a major share of patients and GPs attributed great weight to informal and unsystematically collected information about their own and other decision-makers’ past experiences with alternative providers, utilizing proxy information about performance even when standardized data on quality and service was available, and relying on agent-principalrelationships to overcome challenges in interpreting even simple data. The findings confirmed results from studies of quasi markets where performance data have been available for a longer time. The limited utilisation of published data was attributed to several reasons including GPs being suspicious of the data’s validity and reliability, technological challenges, and GPs’ views on what agency implied. GPs were reluctant to spend more time with patients on investigating their preferences and searching for data. Consequently, GPs tended to choose the hospital based on rules-of-thump decision rules utilizing past experiences. Outpatients’ sociodemographic characteristics significantly influenced their choice behaviour. Consequentially the governance effect of choice may be stronger in surgical specialties than in internal medicine. GPs’ utilisation of information sources was influenced by their age and gender, as younger GPs were more likely to utilise information from patients referred previously, and female GPs were more likely to utilise data published from official data sources. Other studies of the present study’s subjects were published in scientific journals and the results have been presented in reviews aimed at a more general public, e.g. in Denmark [210]. This evidence has only had minor impact on policy. When evidence indicated that only a small proportion of patients chose distant hospitals, the data was not followed by critical discussions of 35 the assumptions behind quasi markets in general and choice in particular but were interpreted as an indication of barriers to utilization of choice. 5.2 Implications Patients may derive utility from utilizing free choice of provider, but the present study raised questions about its effects as a governance tool, which warrants further research into the effects of quasi markets. The major influence of past experiences on actual choices implies a tendency to inertia in referral patterns, as information about providers’ performance is disseminated through feedbackmechanisms with time-lags. If GPs and patients utilize proxy data about past performance data for decision-making in choice, the data and the choices may not reflect clinical quality but contribute to path-dependency in choice behaviour rather than improved performance. Differences in patient groups’ emphasis on choice indicates that the governance effect of choice is small in specialties with a greater share of older patients and patients with short education and low income [120;121]. Even if patients and their agents utilize choice, a quasi market may not achieve all of its objectives, as quasi markets are viewed as universal tools capable of achieving several objectives at one and the same time, although the underlying mechanisms build on conflicting assumptions about patient preferences: choice is expected to level out waiting times at hospitals on the assumption that patients will go to the hospital with the shortest possible waiting time – thereby presupposing that patients view each kind of examination and treatment as a homogeneous good, where providers only differ by waiting time. At the same time patients are assumed to put pressure on providers to secure high quality by staying away from hospitals with less than optimal performance – on the assumption that patients view health care services as heterogeneous goods. Choice is assumed by some authors to promote efficiency in health care although the mechanism behind this effect is not quite clear and probably reflects an analogy to competitive markets where customers pay directly for their consumption. The effect depends on the interplay between choice and activity based financing and is sensitive to the resource allocation mechanism. It is not clear how patients will respond, if they become aware that a certain provider operates with low costs. Patients may view costs as a proxy for quality and suspect that less expensive hospitals compromise patient safety. An international tendency towards specialisation and centralisation of hospitals interacts with choice and citizens’/patients’ preferences. The effects of extending patients freedom of choice may be counteracted by centralisation, if patients have to move still farther for treatment by alternative providers. It remains to be seen whether centralization results in greater mobility, making patients more likely to choose other distant hospitals, or makes patients less likely to choose other even more distant hospitals in accordance with results from other studies [130;193]. If the providers attempt to forestall patients’ and agents’ expected choice behaviour, quasi markets may indirectly achieve part of the objectives. Therefore strengthening the demand side’s influence through introduction of choice may achieve the intended effects on providers’ performance, if department and hospital managers share the assumptions regarding patients’ choice behaviour and are not aware of their actual choice behaviour. However, if managers are or become aware of the divergences between model assumptions and actual patient behaviour, they may ignore the opportunities for recruiting patients, as the management may conclude that patient mobility is small. Le Grand describes quasi markets as a supplement to rather than a substitute for three traditional management models. A quasi market like choice of hospital constitutes a supplement to a 36 multitude of management tools, for example: representative democracy, management by professionals, global budgeting and/or activity-based financing, quality measurements and/or accreditation models to improve quality, surveys of users’ experiences etc. Therefore, even though some of the assumptions in the model were not confirmed, other management concepts may compensate for weaknesses inherent in quasi markets, thereby enabling them to contribute to improving the multidimensional performance of public institutions. The impact of quasi markets may change over time: if younger patients’ greater likelihood of utilizing choice in the present study represents a cohort effect rather than an age effect, the effects of quasi markets will increase in the long run. 5.3 Future research The choice of hospital and the division of tasks between patient and GP is a complex process, and we know little about which characteristics of health care services GPs and patients attribute importance to. Apparently, the decision process varies greatly by patient and by GP, warranting further studies of the interaction between GP and patient in choice of hospital, preferably by a combination of direct observation and interviews with the GP as well as the patient rather than questionnaire studies. Research into outpatients’ choice behaviour should distinguish between referrals of outpatients to a clinic and outpatients attending a clinic for a check-up for an ongoing medical condition or after discharge. Because conclusions from studies of single quasi markets should only be generalized to quasi markets in general with great care, detailed studies of the functioning of individual quasi markets as management tools are warranted to take into account the characteristics of each quasi market. 37 Summary One reason for public provision (but not necessarily public production) of health care services is that the market for health care services is characterized by market failure. However, partly due to incentives facing institutions and individual employees in the public sector, public provision of health care and other services may be characterized by government failure. Attempts to reduce the impact of government failure include introduction of market-like mechanisms like free choice of provider, i.e. free choice of hospital, to provide an incentive for providers to improve quality, service, responsiveness to consumers, and productivity. The introduction of free choice of hospital in Denmark constitutes one such case of a market-like mechanism aimed at providing patients with an opportunity to achieve ‘process utility’ by choosing a provider, while at the same time utilizing choice to provide producers of health care services with an incentive to attract patients by offering services of high quality and service, including short waiting times. This introduction of free choice of hospital as a New Public Management tool builds on an assumption that patients’ choice behaviour fits the assumptions in economic theory about rational consumers, including that patients seek out information about the characteristics of alternative providers and choose the optimal combination of high quality and service (including short waiting time). The patients may delegate the choice to an agent (the GP) acting on their behalf, ideally making exactly that choice which the patient would have made, if she or he had had the same education and information as the GP. The primary contributions of the present study are that: - Confirming results from other studies (short) distance to hospital was the primary factor determining patients’ choice of hospital. - Short distance to hospital was also the primary factor deciding GPs’ choice of hospital on behalf of patients. - GPs’ most important information sources in choice was not published performance data (available in the study period) but reports from patients previously referred to hospital departments and comments from other GPs - presumably based on reports from patients they had referred to hospital. - GPs as well as patients generalized their experience from one department at a hospital to other departments at the hospital. - Outpatients were less likely to be aware of and utilize freedom of choice than in-patients. The present study implies that patients’ and GPs’ choices are made based on data which represent proxy measures for quality and service and have been collected with major time lags. The present study thereby challenged important preconditions for utilization in the study period of quasi markets to promote better performance in organizations operating in nonmarket conditions. 38 Danish summary Én årsag til offentlig tilvejebringelse (men ikke nødvendigvis produktion) af sundhedsydelser er, at markedet for sundhedsydelser er karakteriseret ved markedsfejl. Imidlertid kan offentlig tilvejebringelse af sundhedsydelser indebære såkaldt government failure, bl.a. pga. de incitamenter som enheder og medarbejdere i den offentlige sektor arbejder under. Initiativer mhp. at reducere betydningen af government failure omfatter bl.a. indførelse af markedslignende mekanismer som frit-valgs-ordninger, herunder frit sygehusvalg, for at indføre incitamenter for udbyderne til at forbedre kvalitet, service, lydhørhed over for brugerne samt produktiviteten. Indførelsen af frit sygehusvalg i Danmark udgør sådan et eksempel på en markedslignende mekanisme med henblik på at give patienter mulighed for at opnå ”procesnytte” ved at vælge en udbyder, samtidig med at frit sygehusvalg benyttes til at give leverandørerne af sygehusydelser et incitament til at tiltrække patienter ved at tilbyde ydelser med et højt kvalitets- og serviceniveau, herunder korte ventetider. Indførelsen af frit sygehusvalg som et New Public Management-redskab bygger på en forudsætning om, at patienters adfærd i valgsituationer opfylder forudsætningerne i økonomisk teori om rationelle forbrugere, herunder forudsætningerne om at de vil opsøge information om alternative leverandører og vælge den optimale kombination af høj kvalitet og et højt serviceniveau (herunder kort ventetid). Patienterne kan vælge at overlade valget til en agent (egen læge), der kan handle på patientens vegne og – ideelt set - vil træffe det valg, som patienten selv ville have truffet, hvis denne havde haft samme uddannelse og informationsgrundlag i øvrigt som lægen. De væsentligste bidrag fra nærværende studie er at: - Studiet bekræftede fund fra andre studier af, at (kort) afstand til sygehus er den primære faktor bag patienters valg af sygehus. - Kort afstand til sygehus var også den væsentligste faktor bag egen læges valg af sygehus på vegne af patienter. - De praktiserende lægers væsentligste informationskilder ved valg af sygehus var ikke offentliggjorte data om sygehusafdelingers kvalitet og service (i det omfang de forelå) men tidligere indlagte patienters beskrivelser af deres erfaringer med sygehusafdelinger samt kollegers oplysninger, der formentlig byggede på oplysninger fra de patienter, de selv havde henvist til sygehus. - Både læger og patienter generaliserede erfaringer fra én afdeling til andre afdelinger på sygehuset. - Ambulante patienter var mindre tilbøjelige til at være opmærksomme på og benytte det frie sygehusvalg end indlagte patienter. Nærværende studie indikerer, at patienters og egen læges valg træffes på grundlag af data, der afspejler proxy-mål for kvalitet og service og er indsamlet lang tid før tidspunktet for valget. Studiets resultater udfordrede dermed væsentlige forudsætninger i studieperioden for brug af kvasimarkeder som styringsredskab med henblik på at fremme kvalitet og service i organisationer, der ikke fungerer på markedsvilkår. 39 Acknowledgments I am greatly indebted to a large number of people who assisted me in my research. I am especially indebted to professor, MPH, PhD Allan Krasnik, Section for Health Services Research, Department of Public Health, University of Copenhagen; general manager Lars Onsberg Henriksen, MD, Region Zealand; and professor, PhD Karsten Vrangbæk, Department of Political Science and Department of Public Health, University of Copenhagen, who provided very valuable assistance before and throughout the study period. The project was made possible by enthusiastic support from politicians, management and colleagues at Roskilde County and Region Zealand. I am grateful to the management and administration at Roskilde Hospital for assistance in data collection and inspirational discussions. Part of the study was carried out in cooperation with the former counties of Vestsjælland and Storstrøm, and I would like to express my gratitude for the assistance provided by the departments of health in the two counties which merged with Roskilde County to form Region Zealand. Throughout the study period I was attached to Section for Health Services Research at the Department of Public Health, University of Copenhagen, where my colleagues were very supportive. I am especially grateful to professor, PhD Klaus Høyer, postdoc, PhD Andreas Rudkjøbing, associate professor, PhD Jørgen Holm Petersen, Section of Biostatistics, Department of Public Health, University of Copenhagen, and to chief advisor Rikke Gut, Center for Patient Experience and Evaluation, the Capital Region of Denmark. It has been a great pleasure and very inspirational to teach at the Department of Public Health and to supervise its very intelligent and hardworking students including outstanding public health students like Sarah Wadmann Lauritsen, Camilla Lund-Cramer, Ane Lind Møldrup, Liv Høst Dørflinger, Rie L.R. Johansen, Anne Vinggaard Christensen and Anne Hjøllund Christiansen, who provided very relevant inputs to the study. During the most intensive part of the study I worked, in my spare time, as the warden at the university student residency “Nordisk Kollegium” in Copenhagen, which constituted a very stimulating environment for my work. I am greatly indebted to the residency’s staff and alumni for their support, patience and kindness. Finally I would like to thank the three persons who spurred my interest in health services research: the late professor in health economics Gavin Mooney, who supervised me when I wrote my master’s thesis; former CEO for Health Kjeld Kjeldsen, Ringkjøbing County, and general manager, MD Lars Onsberg Henriksen, Region Zealand. 40 References 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. 21. 22. 23. Moran M. Understanding the welfare state: the case of health care. The British Journal of Politics & International Relations 2000; 2: 135-60. Olsen JP. The ups and downs of bureaucratic organization. Annual Review of Political Science 2008; 11: 13-37. Hood C. A public management for all seasons? Public Adm 1991; 69: 3-19. Pesch U. The publicness of public administration. Administration & Society 2008; 40: 170-93. Rainey HG, Bozeman B. Comparing public and private organizations: empirical research and the power of the a priori. Journal of Public Administration Research and Theory 2000; 10: 447-70. van der Wal Z, de Graaf G, Lasthuizen K. What’s valued most? Similarities and differences between the organizational values of the public and private sector. Public Administration 2008; 86: 465-82.. Fotaki M. Are all consumers the same? Choice in health, social care and education in England and elsewhere. Public Money Manage 2009; 29: 87-94. Bator FM. The anatomy of market failure. Q J Econ 1958; 72: 351-79. Arrow KJ. General economic equilibrium: purpose, analytic techniques, collective choice. Am Econ Rev 1974; 64: 253-72. Stiglitz J. The private uses of public interests: incentives and institutions. J Econ Perspec 1998; 12: 3-22. Pigou AC. The economics of welfare. London: MacMillan and Company, 1920. Quoted in: Keech WR, Munger MC, Simon C. Market failure and government failure. Paper submitted to Public Choice World Congress 2012, Miami. Public version 1.0 - 2-27-12. Arrow KJ. The organization of economic activity: issues pertinent to the choice of market versus non-market allocation. In: Analysis and Evaluation of Public Expenditures: The PPP System. Washington DC: Joint Economic Committee of Congress, 1969. Encyclopædia Britannica Online (accessed January 4 2013). Stigler GJ. The economist and the state. Am Econ Rev 1965; 55: 1-18. Wolf C. A theory of nonmarket failure: framework for implementation analysis. J Law Econ 1979; 22: 107-39. Le Grand J. The theory of government failure. Br J Pol Sci 1991; 21: 423-42 (a critical discussion of (8). Keech WR, Munger MC, Simon C. The anatomy of government failure. Duke PPE Working Paper 13.0216. Paper submitted to the 2013 meetings of the Public Choice Society, New Orleans, Louisiana, 2013. Niskanen W. Bureaucracy and representative government. Chicago: Aldine-Atherton, 1971. Le Grand J. Choice and competition in publicly funded health care. Health Econ Policy Law 2009; 4: 479-88. Le Grand J. The other invisible hand. Delivering public services through choice and competition. Oxford: Princeton University Press, 2007. Exworthy M, Powell M, Mohan J. Markets, bureaucracy and public management: The NHS: quasi-market, quasi-hierarchy and quasi-network? Public Money Manage 1999; 19: 15-22. Winblad U, Ringard Å. Meeting rising public expectations: the changing roles of patients and citizens. In: Magnussen J, Vrangbæk K, Saltman RB (eds.). Nordic health care systems. Recent reforms and current policy challenges. Maidenhead: Open University Press, 2009. Le Grand J. Motivation, agency, and public policy. Of Knights & Knaves, Pawns & Queens. Oxford: Oxford University Press, 2003. 41 24. Vrangbæk K, Østergren K. Patient empowerment and the introduction of hospital choice in Denmark and Norway. Health Econ Policy Law 2006; 1: 371-94. 25. Appleby J, Smith P, Ranade W, Little V, Robinson R. Competition and the NHS: monitoring the market. In: Tilley I (ed.). Managing the market. Liverpool: Paul Chapman Publishing Ltd., 1993. 26. Arrow KJ. Uncertainty and the welfare economics of health care. Am Econ Rev 1963: 53: 941-73. 27. Mills A, Ranson MK. The design of health systems. In: Merson MH, Black R, Mills A (eds.). International public health – diseases, programs, systems and policies. Gaithersburg, Maryland: Aspen Publishers, 2001: 515-56. 28. Le Grand J, Propper C, Robinson R. The economics of social problems. 3rd edn. London: Palgrave, Macmillan, 1992. Quoted in Greener I, Powell M. The other Le Grand? Evaluating the ‘Other Invisble Hand’ in Welfare Services in England. Soc Policy Admin 2009; 43: 557-70. 29. Labelle R, Stoddart G, Rice T. A reexamination of the meaning and importance of supplier-induced demand. J Health Econ 1994; 13: 347-68. 30. Hagen TP, Vrangbæk K. The changing political governance structures of Nordic health care systems. In: Magnussen J, Vrangbæk K, Saltman RB (eds). Nordic Health care systems: recent reforms and current policy changes. Maidenhead: Open University Press, 2009. 31. Vrangbæk K, Robertson R, Winblad U, van de Bovenkamp H, Dixon A. Choice policies in Northern European health systems. Health Econ Policy Law 2012; 7: 47-71. 32. Hornby AS. Oxford Advanced Learner’s dictionary of current English. Sixth edition. Oxford: Oxford University Press, 2000. 33. Newman J, Vidler E. Discriminating customers, responsible patients, empowered users: consumerism and the modernization of health care. Jnl Soc Pol 2006; 35: 193-2009. 34. Greener I. Towards a history of choice in UK health policy. Sociol Health Ill 2009; 31: 309-24. 35. Conner-Spady BL, Marshall DA, Bohm E, Dunbar MJ, Loucks L, Hennigar AW, Frank C, Noseworthy TW. Patient factors in referral choice for total joint replacement surgery. Med Care 2014; 52: 300-6. 36. Propper C, Wilson D, Burgess S. Extending choice in English health care: the implications of the economic evidence. Jnl Soc Pol 2006; 34: 537-57. 37. Clarke J, Newman J, Wetstmarland L. The antagonisms of choice: New Labour and the reform of public services. Social Policy &Society 2007; 7: 245-53. 38. Whitty G, Power S. Marketization and privatization in mass education systems. Int J Educ Dev 2000; 20: 93-107. 39. Hoxby CM. School choice and school competition: Evidence from the United States. Swedish Economic Policy Review 2003; 10: 13-67. 40. Blomqvist P. The choice revolution: privatization of Swedish welfare services in the 1990s. Soc Policy Admin 2004; 38 (2): 139-55. 41. Fotaki M, Boyd A. From plan to market: a comparison of health and old age care policies in the UK and Sweden. Pub Money Manage 2005; 4: 237-43. 42. Swedish Association of Local Authorities and Regions. Inventering av valfrihet i äldreomsorg Inventory of choice of elderly care. Stockholm: Swedish Association of Local Authorities and Regions; 2009. Quoted in: Ahgren B. Competition and integration in Swedish health care. Health Policy 2010; 96: 91-7. 43. Bredgaard T, Larsen F. Quasi markets in employment policy. Do they deliver on promises? Social Policy and Society 2008; 7: 341-52. 44. Lewis R. More patient choice in England’s National Health service. Int J Health Serv 2005; 35: 479-83. 45. Vrangbæk K, Østergren K, Birk HO, Winblad U. Patient reactions to hospital choice in Norway, Denmark and Sweden. Health Econ Policy Law 2007; 2: 125-52. 42 46. Pr Z, Cases C, Lisac M, Vrangbæk K, Winblad U, Bevan G. Are health problems systemic? Politics of access and choice under Beveridge and Bismarck systems. Health Econ Policy Law 2010; 5: 269-93. 47. Lisac M, Reimers L, Henke KD, Schlette S. Access and choice – competition under the roof of solidarity in German health care: an analysis of health policy reforms since 2004. Health Econ Policy Law 2010; 5: 31-52. 48. Victoor A, Friele RD, Delnoij DMJ, Rademakers JJDJM. Free choice of healthcare providers in the Netherlands is both a goal in itself and a precondition: modelling the policy assumptions underlying the promotion of patient choice through documentary analysis and interviews. BMC Health Serv Res 2012; 12: 441. 49. Morris J. Independent living: the role of the disability movement in the development of government policy. In: Glendinning C, Kemp PA (eds). Cash and Care: Policy Challenges in the Welfare State. Bristol: Policy Press, 2006: 235-48. 50. Dowding K, John P. The value of choice in public policy. Pub Adm 2009; 87: 219-33. 51. Wilmot S. A fair range of choice: justifying maximum patient choice in the British National Health Service. Health Care Anal 2007; 15: 59-72. 52. Sen A. Freedom of choice: concept and content. Eur Econ Rev 1988; 32: 269-94. 53. Gerard K, Mooney G. QALY league tables: handle with care. Health Econ 1993; 2: 59-64. 54. Reibling N, Wendt. Gatekeeping and provider choice in OECD healthcare systems. Curr Sociol 2012; 60: 489-505. 55. Bell D. Regret in decision making under uncertainty. Oper Res 1982; 30: 961-81. 56. Loomes G, Sugden R. Regret theory: an alternative theory of choice under uncertainty Econ J 1982; 86: 805-24 57. Barnett J, Ogden J, Daniells E. The value of choice: a qualitative study. Br J Gen Pract 2008; 58: 609-13. 58. Schwartz B. The paradox of choice – why more is less. New York: Harper Perennial, 2004 59. Dowding K. Choice: its increase and value. Brit J Polit Sci 1992; 22: 301-14. 60. Peters E, Klein W, Kaufman A, Meilleur L, Dixon A. More is not always better: intuitions about effective public policy can lead to unintended consequences. Social Issues and Policy Review 2013; 7: 114-48. 61. Porter ME, Teisberg EO. Redefining healthcare. Creating value-based competition on results. Cambridge: Harvard Business School Press, 2006. 62. Perri G. Giving consumers of British public services more choice: what can be learned from recent history. Jnl Soc Pol 2003; 32: 239-70. 63. Tai-Seale M. Voting with their feet: patient exit and intergroup differences in propensity for switching usual source of care. Journal of Health Politics, Policy and Law 2004 29(3):491-514. 64. Hayek FA. The use of knowledge in society. Am Econ Rev 1945; 35: 519-30. 65. Smith A. The wealth of nations. Book 4-5, p. 32. New York: Penguin Books, 1997. 66. Vrangbæk K. The interplay between central and sub-central levels: the development of a systematic standard based programme for governing medical performance in Denmark. Health Econ Policy Law 2009; 4: 305-27. 67. Maynard A. Competition and quality: rhetoric and reality. Int J Qual Health Care 1998; 10: 379-84. 68. Appleby J, Harrison A, Devlin N. What is the real cost of more patient choice. London: King’s Fund, 2003. 69. Vrangbæk K, Robertson R, Winblad U, van de Bovenkamp H, Dixon A. Choice policies in Northern European health systems. Health Econ Policy Law 2012; 7: 47-71. 70. Friedman M. The social responsibility of business is to increase its profits. The New York Times Magazine 1970; 122 (September 13): 32-33. Reprinted in: Zimmerli WC, Holzinger M, Richter K (eds). Corporate Ethics and Corporate Governance. Wolfsburg: Springer, 2007, 173-8. 43 71. Martinsen DS, Vrangbæk K. The Europeanization of health care governance: implementing the market imperatives of Europe. Pub Adm 2008; 86: 169-84. 72. Bernstein AB, Gauthier AK. Choices in health care: what are they and what are they worth? Med Care Res Rev 1999; 56: 5-23. 73. Besley T, Ghatak M. Incentives, choice, and accountability in the provision of public services. Oxford Rev Econ Pol 2003; 19: 235-49. 74. Lako CJ, Rosenau P. Demand-driven care and hospital choice. Dutch health policy toward demand-driven care: results from a survey into hospital choice. Health Care Anal 2009; 17: 20-35. 75. Kreisz FP. Gericke C. User choice in European health systems: towards a systematic framework for analysis. Health Econ Policy Law 2010; 5: 13-30. 76. Ettinger WH, Hylka SM, Phillips RA, Harrison Jr. LH, Cayr JA, Sussman AJ. When things go wrong: the impact of being a statistical outlier in publicly reported coronary artery bypass graft surgery mortality data. Am J Med Qual 2008; 23: 90-5. 77. Mukamel DB, Weimer DL, Mushlin AI. Interpreting market share changes as evidence for effectiveness of quality report cards. Med Care 2007; 45: 1227-32 78. Bevan G, Helderman JK, Wilsford D. Changing choices in health care: implications for equity, efficiency and cost. Editorial. Health Econ Policy Law 2010; 5: 251-67. 79. http://www.lse.ac.uk/LSEHealthAndSocialCare/research/LSEHealth/ResearchNetwork s/EHPGSEPTEMBER2006/Programme.doc (p. 5; accessed January 29 2015) 80. http://www.patientoplevelser.dk/center-patient-experience-and-evaluation (presentation in English, accessed October 15 2014) 81. Lowery D. Consumer sovereignty and quasi-market failure. J Publ Adm Res Theor 1998; 8: 137-72. 82. Kähkönen L. Quasi-markets, competition and market failures in local government services. Kommunal ekonomi och politik 2004; 8: 31-47. 83. Kähkonen L. Costs and efficiency of quasi-markets in practice. Local Gov Stud 2005; 31: 85-97. 84. Le Grand J. Quasi-markets and social policy. Econ J 1991; 101: 1256-67. 85. Titmuss R. The Gift Relationship: from Human Blood to Social Policy. London: Allen & Unwin, 1970. 86. Niskanen WA. The peculiar economics of bureaucracy. Am Econ Rev 1968; 58: 293-305. 87. Boyne GA, Meier KJ, O’Toole LJ, Walker RM. Where next? Research directions on performance in public organizations. JPART 2005; 15: 633-9. 88. Brugnoli A, Vittadini G. Subsidiarity: positive anthropology and social organization. Foundations for a new conception of state and market and key elements of the experience in Lombardy. Milano: Guerini e Associati SpA, 2009. 89. Hunter DJ. The case against choice and competition. Health Econ Policy Law 2009; 4: 489-501. 90. Department of Health. Working for patients. London: Her Majesty’s Stationary Office, 1989. (Cm 555) 91. Clarke J, Smith N, Vidler E. The indeterminacy of choice: political, policy and organisational implications. Social Policy and Society 2006; 5: 327-36. 92. Enthoven AC. Reflections on the management of the National Health Service. London: Nuffield Provincial Hospital Trust, 1985. 93. Jones PR, Cullis JG. Decision making in quasi-markets: A pedagogic analysis. J Health Econ 1996; 15: 187-208. 94. Forster R, Gabe J. Voice or choice? Patient and public involvement in the National Health Service in England under New Labour. Int J Health Serv 2008; 38: 333-56. 95. Jones PR, Cullis JG. Decision making in quasi-markets: A pedagogic analysis. J Health Econ 1996; 15: 187-208. 96. Glennerster H. Competition and quality in health care: the UK experience. Int J Qual Health Care 1998; 10: 403-10. 44 97. Tiebout CM. A Pure Theory of Local Expenditures. J Polit Econ 1965; 64 (5): 416–24. 98. Hirschman AO. Exit, voice and loyalty. Response to decline in firms, organizations and states. Cambridge: Harvard University Press, 1970. 99. Le Grand J. Competition, cooperation or control. Tales from the British National Health service. Health Aff 1999; 18: 27-39. 100.Fotaki M, Roland R, Boyd A, McDonald R, Scheaff R, Smith L. What benefits will choice bring to patients? Literature review and assessment of implications. J Health Serv Res Policy 2008; 13: 178-84. 101. Bartlett W. Quasi-markets and contracts: A markets and hierarchies perspective on NHS reform. Public Money Manage 1991; 11 (3): 53-61. 102. Dixon A, Robertson R, Appleby J, Burge J, Devlin N, Magee H. Patient choice. How patients choose and how providers respond. London: The King’s Fund, 2010. 103. Keaney M. Are patients really consumers? Int J Soc Econ 1999; 26: 695-706. 104. Birk HO, Gut R, Henriksen LO. Patients’ experience of choosing an out-patient clinic in one county in Denmark: results of a patient survey. BMC Health Serv Res 2011; 11: 262. 105. Birk HO, Henriksen LO. Why do not all hip- and knee-patients facing long waiting times accept re-referral to hospitals with short waiting time? Questionnaire study. Health Policy 2006; 77: 318-25. 106. Birk HO, Henriksen LO. Which factors decided general practitioners’ choice of hospital on behalf of their patients in an area with free choice of public hospital? A questionnaire study. BMC Health Serv Res 2012, 12: 126. 107. Olejaz M, Juul Nielsen A, Rudkjøbing A, Okkels Birk H, Krasnik A, Hernández-Quevedo C. Denmark: Health system review. Health Systems in Transition, 2012, 14(2):1 – 192. http://www.euro.who.int/__data/assets/pdf_file/0004/160519/e96442.pdf (accessed January 29 2015). 108.The Danish Vascular Registry: http://www.karbase.dk/English/english.htm (accessed January 29 2015). 109. Unit of Patient Evaluation. Patienters vurdering af landets sygehuse 2000. Spørgeskemaundersøgelse blandt 34.000 patienter [in Danish: Patients’ experiences with hospitals in Denmark 2000. Questionnaire study including 34,000 patients]. Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation, Copenhagen County], 2001. 110. Unit of Patient Evaluation. Patienters oplevelser på landets sygehuse 2006. Spørgeskemaundersøgelse blandt 26.045 indlagte patienter [in Danish: Patients’ experiences with hospitals 2006. Questionnaire study including 26,045 inpatients]. København: Enheden for Brugerundersøgelser [Unit of Patient Evaluation], 2007. Summary in English available at: http://patientoplevelser.dk/files/dokumenter/artikel/survey_2006_english.pdf (accessed January 29 2015). 111. Unit of Patient Evaluation. Patienters vurdering af sygehusafdelinger i Roskilde Amt. Spørgeskemaundersøgelse blandt 3.400 patienter [in Danish: Patients’ evaluation of hospital departments in Roskilde County 2002. Questionnaire study including 3,400 patients]. Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation], 2003. 112. Jones L, Mays N. Systematic review of the impact of patient choice of provider in the English NHS. Working paper. London: London School of Hygiene and Tropical Medicine. Department of Public Health and policy. Health Services Research Unit, 2009. 113. Unit of Patient Evaluation. Patienters vurdering af landets sygehuse 2002. Spørgeskemaundersøgelse blandt 32.000 patienter [in Danish. Patients’ evaluation of hospitals in Denmark 2002. Questionnaire study including 32,000 patients]. Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation], 2003. 45 114. Birk HO, Henriksen LO. Brugen af det frie sygehusvalg inden for tre amter 1991-1999 [in Danish: Utilization of freedom of choice of hospital within three counties, 1991-1999]. Ugeskr Laeger 2003; 165: 3613-6. 115. Victoor A, Delnoij DMJ, Fiele RD et al. Determinants of patient choice of healthcare providers: a scoping review. BMC Health Serv Res 2012; 12: 272. 116. Berendsen AJ, de Jong GM, Schuling J, Bosveld HEP, de Waal MWM, Mitchell GK, van der Meer K, Meyboom-de-Jong B. Patients’ need for choice and information across the interface between primary and secondary care: A survey. Patient Educ Couns 2010; 79: 100-5. 117. Gooding SK. The effect of consumer perceptions of quality and sacrifice on hospital choice: a suburban vs. urban competitive scenario. J Hosp Mark 1996; 11: 81-94. 118. Wilson CT, Woloshin FD, Schwartz LM. Choosing where to have major surgery. Who makes the decision? Arch Surg 2007; 142: 242-6. 119. Kurz RZ, Wolinsky FD. Who picks the hospital: practitioner or patient. Hosp Health Serv Adm 1985; 30: 95-106. 120. Coulter A, le Maistre N, Henderson L. Patients’ experience of choosing where to undergo surgical treatment. Evalution of the London Choice Scheme. Oxford: Picker Institute, 2005. 121. Reed AE, Mikels JA, Simon KI. Older adults prefer less choice than young adults. Psychol Aging 2008; 23: 671-5. 122. Tversky A, Kahnemann D. Judgment under uncertainty: Heuristics and biases. Science 1974; 185: 1124-31. 123. Unit of Patient Evaluation. Patienters oplevelser på landets sygehuse 2004. Spørgeskemaundersøgelse blandt 26.300 indlagte patienter [in Danish: Patients’ experiences with hospitals 2004. Questionnaire study including 26,300 inpatients]. Glostrup: Enheden for Brugerundersøgelser i Københavns Amt. [Unit of Patient Evaluation, Copenhagen County], 2005. Summary in English available at: http://www.patientoplevelser.dk/sites/patientoplevelser.dk/files/survey_2004.pdf (accessed January 29 2015). 124. Schwartz LM, Woloshin S, Birkmeyer JD. How do elderly patients decide where to go for major surgery? Telephone interview survey. BMJ 2005; 331: 821-7. 125. Sloane G, Tidwell P, Horsfield M. Identification of the decision maker for a patient’s hospital choice: who decides which hospital? J Hosp Mark 1999; 13: 57-77. 126. Rosen R, Florin D, Hutt R. An anatomy of GP referral decisions. A qualitative study of GPs’ views on their role in supporting patient choice. London: The King’s Fund, 2007. 127. Wiinblad U. Do physicians care about patient choice? Soc Sci Med 2008; 67: 1502-11. 128. Ketelaar NABM, Faber MJ, Elwyn G, Westert GP, Braspenning JC. Comparative performance information plays no role in the referral behaviour of GPs. BMC family Practice 2014; 15: 146. 129. Doering N, Maarse H. The use of publicly available quality information when choosing a hospital or health-care provider: the role of the GP. Health Expectations 2014 [Epub ahead of print]. 130. Ringard Å. Why do general practitioners abandon the local hospital? An analysis of referral decisions related to elective treatment. Scand J Public Health 2010; 38: 597-604. 131. Taylor R, Pringle M, Coupland C. Implications of offering “Patient Choice” for routine adult surgical referrals. Report submitted to the Department of Health. Nottingham: University of Nottingham and Dr. Foster, 2004. 132. Dixon A, Robertson R, Bal R. The experience of implementing choice at point of referral: a comparison of the Netherlands and England. Health Econ Policy Law 2010; 5: 295-317. 133. Kang HY, Kim SJ, Cho W, Lee S. Consumer use of publicly released hospital performance information: assessment of the National Hospital Evaluation Program in Korea. Health Policy 2009; 89: 174-83. 46 134. Sofaer S, Crofton C, Goldstein E, Hoy E, Crabb J. What do consumers want to know about the quality of care in hospitals? Health Serv Res 2005; 40: 2018-36. 135. Lubalin JS, Harris-Kojetin LD. What do consumers want and need to know in making health care choices? Med Care Res Rev 1999; 56: 67-102. 136. Det umuliges kunst – omprioriteringer i velfærdsstaten belyst ved sygehusvæsenet [in Danish: The art of the impossible – re-prioritising in the welfare state. Case: the hospitals]. Århus: PLS Consult, 1999. 137. Faber M, Bosch M, Wollersheim H, Leatherman S, Grol R. Public reporting in health care: how do consumers use quality-of-care information? Med Care 2009; 47: 1-8. 138. Victoor A, Rademakers J, Reitsma-van Rooijen M, de Jong J, Delnoij D, Friele R. The effect of the proximity of patients’ nearest alternative hospital on their intention to search for information on hospital quality. J Health Serv Res Policy 2014; 19: 4-11. 139. Dijs-Elsinga J, Otten W, Versluijs MM, Smeets HJ, Kievit J, Vree R, van der Made WJ, Marang-van de Mheen PJ. Choosing a hospital for surgery: the importance of information on quality of care. Med Decis Making 2010; 30: 544-55. 140. Marang-van de Mheen PJ, Dijs-Elsinga J, Otten W, Versluijs M, Smeets HJ, Vree R, van der Made WJ, Kievit J. The relative importance of quality of care information when choosing a hospital for surgical treatment: a hospital choice experiment. Med Decis Making 2011; 31: 816-27. 141. De Groot IB, Otten W, Smeets HJ, Marang-van de Mheen PJ. Is the impact of hospital performance data greater in patients who have compared hospitals? BMC Health Serv Res 2011; 11: 214. 142. Schneider EC, Epstein AM. Use of public performance reports: a survey of patients undergoing cardiac surgery. JAMA 1998; 279: 1638-42. 143. Howard DH, Kaplan B. Do report cards influence hospital choice? The case of kidney transplantation. Inquiry 2006; 43: 150-9. 144. Romano PS, Zhou H. Do well-publicized risk-adjusted outcomes reports affect hospital volume? Med Care 2004; 42: 367-77. 145. Schauffler HH, Mordavsky JK. Consumer reports in health care: do they make a difference? Annu Rev Public Health 2001; 22: 69-89. 146. Davies HTO, Washington AE, Bindman AB. Health care report cards: implications for vulnerable patient groups and the organizations providing them care. Journal of Health Care Politics, Policy and Law 2002; 27: 379-99. 147. Teisberg P, Hansen FH, Hotvedt R, Ingebrigtsen T, Kvalvik AG, Lund E, Myhre HO, Skjeldestand FE, Vatten L, Noderharug I. Pasientvolum og behandlingskvalitet. Metodevurdering basert på egen og internasjonal litteratugransking. [in Norwegian: Hospital volume and quality of health outcome] Rapport nr. 2/2001. Oslo: Senter for medisinsk metodevurdering (SMM), 2001. 148. Blendon RJ, DesRoches CM, Brodie M, Benson JM, Rosen AB, Schneider E, Altman DE, Zapert K, Herrmann MJ, Steffenson AE. N Engl J Med 2002; 347: 1933-40. 149. Losina E, Wright EA, Kessler CL, Barrett JA, Fossel AH, Creel AH, Mahomed NN, Baron JA, Katz JN. Neighborhoods matter. Use of hospitals with worse outcomes following total knee replacement by patients from vulnerable populations. Arch Intern Med 2007; 167: 182-7. 150. Bouce G, Migeot V, Mathoulin-Pélissier S, Salamon R, Ingrand P. Breast cancer surgery: do all patients want to go to high-volume hospitals? Surgery 2008; 143: 699-705. 151. Kronebusch K. Quality information and fragmented markets: patient responses to hospital volume thresholds. J Health Polit Policy Law 2009; 34: 777-827. 152. Fung CH, Lim YW, Mattke S, Damberg C, Shekelle PG. Systematic review: the evidence that publishing patient care performance data improves quality of care. Ann Intern Med 2008; 148: 111-23. 47 153. Jewett JJ, Hibbard JH. Comprehension of quality care indicators: differences among privately insured, publicly insured and uninsured. Health Care Financ Rev 1996; 18: 7594. 154. Mannion R, Goddard M. Public disclosure of comparative clinical performance data: lessons from the Scottish experience. J Eval Clin Pract 2003; 9: 277-86. 155. Øvretveit J. Informed choice? Health service quality and outcome information for patients. Health Policy 1996; 37: 75-90. 156. Broder MS, Payne-Simon L, Brook RH. Measures of surgical quality: what will patients know by 2005? J Eval Clin Pract 2005; 11: 209-17. 157. Hibbard J, Sofaer S, Jewett J. Condition-specific performance information: assessing salience, comprehension and approaches for communicating quality. Health Care Financ Rev 1996; 18: 95-109. 158. Stoop A, Vrangbæk K, Berg M. Theory and practice of waiting time data as a performance indicator in health care. A case study from the Netherlands. Health Policy 2005; 73: 41-51. 159. Marshall MN, Shekelle PG Leatherman S, Brook RH, The public release of performance data: what do we expect to gain? A review of the evidence. JAMA 2000; 283: 1866-74. 160. Entwistle VA, Sheldon TA, Sowden A, Watt IS. Evidence-informed patient choice. Int J Tech Assess Health Care 1998; 14: 212-25, quoted in: Fotaki M, Roland R, Boyd A, McDonald R, Scheaff R, Smith L. What benefits will choice bring to patients? Literature review and assessment of implications. J Health Serv Res Policy 2008; 13: 178-84. 161. Vaiana M, McGlynn E. What cognitive science tells us about the design of reports for consumers. Med Care Res Rev 2002; 59: 3-35. 162. Robinson S, Brodie M. Understanding the quality challenge for health consumers: the Kaiser/AHCPR survey. Jt Comm J Qual Improv 1997; 23: 239-44. 163. Schneider EC, Lieberman T. Publicly disclosed information about the quality of health care: response of the US public. Qual Health Care 2001; 10: 96-103. 164. Mennemeyer ST, Morrissey MA, Howard LZ. Death and reputation: how consumers acted upon HCFA mortality. Inquiry 1997; 34: 117-28. 165. Moser A, KorstjensI, van der Weijden T, Tange H. Themes affecting health-care consumers’ choice of a hospital for elective surgery when receiving web-based comparative consumer information. Patient Educ Couns 2010; 78: 365-71. 166. Bundrof MK, Chun N, Goda GS, Kessler DP. Do markets respond to quality information? The case of fertility clinics. J Health Econ 2009; 28: 718-27. 167. Bentley JM, Nash DB. How Pennsylvania hospitals have responded to publicly released reports on coronary artery bypass graft surgery. Jt Comm J Qual Improv 1998; 24: 40-9. 168. Hibbard JH, Jewett JJ. Will quality report cards help consumers? Health Aff 1997; 16: 218-28. 169. Vuori H, Aaku T, Aine E, Erkko R, Johansson R. Doctor-patient relationship in the light of patients’ experiences. Soc Sci Med 1972; 6: 723-30. 170. Gooding SK. The relative importance of information sources in consumers’ choice of hospitals. J Ambul Care Mark 1995; 6: 99-108. 171. Wolinsky FD, Kurz RS. How the Public Chooses and Views Hospitals. Hosp Health Serv Adm 1984; 29: 58-67. 172. Conner-Spady B, Sanmartin C, Johnston G, McGurran J, Kehler M, Noseworthy T. Willingness of patients to change surgeons for a shorter waiting time for joint arthroplasty. CMAJ 2008; 179: 327-32. 173. Howell GP, Richardson D, Forester A, Sibson J, Ryan JM, Morgans BT. Long distance travel for routine elective surgery: questionnaire survey of patients’ attitudes. BMJ 1990; 300: 1171-1173. 174. Nofal F, Moran MM. Long distance travel by children for tonsillectomy: experience of the ORL department at Princess Alexandra Hospital (PAH), Royal Air Force, Wroughton, Swindon. J Laryngol Otol 1990; 104: 417-418. 48 175. Dawson D, Jacobs R, Martin S, Smith P. Is patient choice an effective mechanism to reduce waiting times. Appl Health Econ Health Policy 2004; 3: 195-203. 176. Godager G, Iversen T. Hvem bruker retten til fritt sygehusvalg? Resultater fra Samordnet levekårsundersøkelse 2002. Økonomisk Forum 2004; 58 (4/5): 49-56. [In Norwegian: Who utilises the right of freedom of choice of hospital? Results from the integrated study of living conditions 2002]. 177. Grilli R, RamsayC, Minozzi S. Massmedia interventions: effects on health services utilisation. Cochrane Database of Systematic Reviews 2002, Issue 1. Art. No.: CD000389. 178. Schneider EC, Epstein AM. Influence of cardiac-surgery performance reports on referral practices and access to care. N Engl J Med 1996; 335: 251-6. 179. Whynes DK, Reed G. Fundholders’ referral patterns and perceptions of service quality in hospital provision of elective general surgery. Br J Gen Pract 1994; 44: 557-60. 180.McArdle PJ, Whitnall M. The referral practice of general medical practitioners to the surgical specialties: implications for the future. Br J Oral Maxillofac Surg 1996; 34: 394-9. 181. Kennedy F, McConnell B. General practitioner referral patterns. J Public Health Med 1993; 15: 83-7. 182. French JA, Stevenson CH, Eglinton J, Bailey JE. Effect of information about waiting lists on referral patterns of general practitioners. Br J Gen Pract 1990; 40: 186-9. 183. Boyce T, Dixon A, Fasolo B, Reutskaja E. Choosing a high-quality hospital. The role of nudges, scorecard design and information. London: The King’s Fund: 2010. 184. Lindbladh E, Lyttkens CH. Habit versus choice: the process of decision-making in health-related behaviour. Soc Sci Med 2002; 55: 451-65. 185. Khang YH, Yun SC, Jo MW, Lee MS, Lee SI. Public release of institutional Caesarean section rates in South Korea: which women were aware of the information? Health Policy 2008; 86: 10-6. 186. Combier E, Zeitlin J, de Courcel N, Vasseur S, Lalouf A, Amat-Roze JM, de Pouvourville G. Choosing where to deliver: decision criteria among women with low-risk pregnancies in France. Soc Sci Med 2004; 58: 2279-2289. 187. Cohen MA, Lee HL. The determinants of spatial distribution of hospital utilization in a region. Med Care 1985; 23: 27-38. 188. Odell A. A study of patient referrals. Publ Hlth Lond 1983; 97: 109-14. 189. Mahon A, Whitehouse C, Wilkin D, Nocon A. Factors that influence general practitioners’ choice of hospital when referring patients for elective surgery. Br J Gen Pract 1993; 43: 272-6. 190. Beukers PDC, Kemp RGM, Varkevisser M. Patient hospital choice for hip replacement: empirical evidence from the Netherlands. Eur J Health Econ 2014: 15: 927-36. 191. McGuirk MA, Porell FW. Spatial patterns of hospital utilization: the impact of distance and time. Inquiry 1984; 21: 84-95. 192. Adams EK, Wright GE. Hospital choice of Medicare beneficiaries in a rural market: why not the closest? J Rural Health 1991a; 7: 134-152. 193. Bronstein JM, Morrisey MA. Bypassing rural hospitals for obstetrics care. J Health Polit Policy Law 1991; 16: 87-118. 194. Tai WT, Porell FW, Adams EK. Hospital choice of rural Medicare beneficiaries: patient, hospital attributes, and the patient-physician relationship. Health Serv Res 2004; 39: 1903-22. 195. Adams EK, Houchens R, Wright GE, Robbins J. Predicting Hospital Choice for Rural Medicare Beneficiaries: The Role of Severity of Illness. Health Serv Res 1991; 26: 583612. 196. Buczko W. Nonuse of local hospitals by rural Medicare beneficiaries. J Health Hum Serv Adm 1997; 19: 319-40. 197. Bashshur RL, Shannon GW, Metzner CA. Some ecological differentials in the use of medical services. Health Serv Res 1971; 6: 61-75. 49 198. Monstad K, Engesæter LB, Espehaug B. Patients’ preferences for choice of hospital. In: Monstad K. Essays on the Economics of health and fertility. PhD-thesis. Bergen: the Norwegian School of Economics and Business Administration, 2007. 199. Burge P, Devlin N, Appleby J, Rohr C, Grant J. Do patients always prefer quicker treatment?: a discrete choice analysis of patients’ stated preferences in the London Choice Project. Appl Health Econ Health Policy 2004; 3: 183-94. 200. Goddard M, Hobden C. Patient choice: a review. Report to the Department of Health. York: University of York, Centre for Health Economics, 2003. 201. Burns LR, Wholey DR. The impact of physician characteristics in conditional choice models for hospital care. J Health Econ 1992; 11: 43-62. 202. Chang R-KR, Joyce JJ, Castillo J, Ceja J, Quan P, Klitzner TS. Parental preference regarding hospitals for children undergoing surgery: a trade-off between travel distance and potential outcome improvement. Can J Cardiol 2004; 20: 877-82. 203. Al-Doghaither AH, Abdelrhman BM, Wahid Saeed AA, Magzoub MEMA. Factors influencing patient choice of hospitals in Riyadh, Saudi Arabia. J R Soc Promot Health 2003; 123: 105-9. 204. Oliveira M. A flow demand model to predict hospital utilisation. LSE Health and Social Care Discussion Paper Number 5. London: London School of Economics and Political Science, 2002. 205. Hansen TB. Hvilke faktorer har betydning for valg af sygehus ved tilskadekomst? En undersøgelse af forholdene i Ringkøbing Amt [in Danish. What factors affect choice of hospital in cases of trauma? A study of conditions in the county of Ringkobing]. Ugeskr Laeger 1994; 156: 652-655. 206. Lofvendahl S, Eckerlund I, Hansagi H, Malmqvist B, Resch S, Hanning M.Waiting for orthopaedic surgery: factors associated with waiting times and patients’ opinion. Int J Qual Health Care 2005; 17: 133–40. 207. Derrett S, Paul C, Morris JM. Waiting for elective surgery: effects on health-related quality of life. Int J Qual Health Care 1999; 11: 47–57. 208. Jin GZ, Leslie P. The effect of information on product quality. Evidence from restaurant hygiene grade cards. Q J Econ 2003; 118: 409-51. 209. Cheng SH, Song HY. Physician performance information and consumer choice: a survey of subjects with the freedom to choose between doctors. Qual Saf Health Care 2004; 13: 98-101. 210. Christensen M. Offentliggørelse af kvalitetsdata [in Danish: publishing of data on clinical quality]. DSI report 2003.01. Copenhagen: DSI The Danish Institute for Health Services Research, 2003. 50 Appendices Appendix 1: Free choice of hospital in Denmark – the framework In the early 1990s the Danish public sector was a supply-driven sector characterized by: o Production of services with properties (quantity, content, quality, location etc.) defined by politicians, expert administrators and professionals. o Influence by clients [1] through “voice” and regular election of politicians in the representative democracy [2]. o Politically set constraints - physical and financial (global budgets). During two decades of reform the sector has changed towards a supply- and demand-driven sector characterized by: o Production of services with properties (content, quality etc.) set by responsive administrators and professionals. o Actual consumption (quantity) and service properties (location, content, service level etc.) decided through some degree of choice by consumers [1], thereby influencing provision of services and their properties directly through exit as well as traditional representative government and voice [2]. o Reallocation of resources to providers chosen by consumers by means of activity based financing. However, activity based financing works within the limits of global budgets, thereby in effect maintaining global budgeting as a government tool. o Performance data are published with several purposes in mind – e.g. to facilitate consumers’ choice of provider [3-5] A broad majority in the Danish parliament which introduced choice by law by January 1 1993 had several objectives in mind, some of them reflecting a wish to introduce a market in health care, others focusing on patients’ rights. In the parliamentary debates it was suggested, that choice could contribute to evening out waiting times across Denmark, as patients would choose hospitals with short waiting times; that choice could develop into a quasi market [6], and that choice would favour efficient hospital departments. The assumed mechanism behind the assumption about increasing efficiency was not explained by the proponents, but later researchers [7] have pointed to empirical data from the UK, which indicate that competition led to reduced costs and/or increased quality, when prices were fixed [8]23. 1 Choice before introduction of choice by law Before 1991 each of the 16 Danish counties typically divided their area into a number of hospital uptake areas, although they were free to let patients choose a hospital within the home county. Some counties entered into bilateral agreements allowing patients living in certain areas close to county borders to choose a hospital in a neighbouring county. This option was relevant to few patients, and hospitals’ financial incentives to accept these patients were small. This limited access to choice of hospital reflected a strong emphasis on controlling public health care costs through a supply-driven health care system. On September 1 1991, the three counties of Roskilde, Storstrøm and Vestsjælland on the island of Zealand introduced freedom of choice of somatic hospital for elective care within the three 23 For opposing results, see [9]. 51 counties, in effect creating a single common uptake area. Likewise, three counties in the northern part of Jutland created a single uptake area. On October 1 1992 the Danish counties introduced freedom of choice of public hospital throughout Denmark, probably in an attempt to forestall legislation on the subject and control the future design of freedom of choice [10]. However, in the autumn of 1992 a broad majority of the Danish parliament decided to introduce freedom of choice effective from January 1 1993, allowing patients freedom of choice among public hospitals at the lowest sufficient level of specialisation, if the receiving hospital was willing to accept the patient. The Danish parliament’s decision was a response to: o Criticism of long waiting times for hospital treatment o Criticism of counties’ unwillingness to refer patients to hospitals in other counties, even if the hospital closest to their home was situated in another county, or if patients had had unpleasant experiences with the local hospital o Preferences for competition in the public sector to put pressure on non-performing hospitals [6;11] A few non-profit hospitals – self-governed institutions or hospitals owned by four patient organisations24 - were covered by the law, stipulating that each non-profit hospital had the right to receive patients up to a certain limit on hospital turnover. Over time the potential influence of choice has been extended by a number of initiatives which may be divided into six categories: o More patient groups have been included o More providers of health care have been included o More sources of information on hospital quality have been provided o The association between hospital departments’ budgets and their activity has been strengthened by activity based financing, leading to strengthened financial incentives to accept patients utilizing choice o Patients have been provided with more information on choice o More information to patients on the providers they may choose among In parallel with the extensions of patients’ formal rights to choose, Danish health care policy has followed a path of centralization, reducing the actual number of providers, which patients may choose among. For decades the counties/regions have centralized hospital capacity to achieve economies of scale with regard to costs and quality, leading to a steady fall in the number of public hospitals [3]. By 2007 this path was supplemented by new national regulation to increase hospital volume for individual interventions in order to improve clinical quality: regions and private hospitals who want to perform specialized interventions must apply to the National Health and Medicines Authority for permission to perform the interventions, which the National Health and Medicines Authority has decided to centralize at a few hospitals in each region or to 1-3 hospitals in the country as a whole, thereby reducing the number of alternatives for patients and creating barriers to entry to the “market” for specialized care. In order to improve patients’ opportunities for making informed choices of hospital department the National Health and Medicines Authority published proxy data on quality and service at hospital departments in the shape of a “star rating system”25, and the National Health and Medicines Authority still publishes data on clinical quality 24 Associations concerned with examination for and treatment of epilepsy, brain damage, multiple sclerosis or rheumatic diseases; and one private center for rehabilitation. 25 Abolished later on. 52 for specific interventions at various hospitals [12], and forecasts of waiting time at hospital level for common interventions [13]. The regions and the Ministry of Health publish data from biannual surveys of patients’ experience with hospitals [14]. To strengthen the understanding of the extensions and facilitation of choice a chronological list of these initiatives is provided below. The introduction of choice was associated with some anxiety from the counties and the Ministry of Finance that choice would weaken cost control. However, this turned out not to be the case – or the efforts to reduce the financial risks associated with choice were successful. Some of the extensions reflect that the utilization of choice turned out to be to smaller than expected, which was interpreted as a symptom of unwanted barriers to choice: the original legislation on choice only provided patients with a right to treatment at a hospital in another county if the hospital was willing to accept the patient, and hospitals accepting patients from other counties only received a small financial compensation (set at the national level) for treating patients from other regions utilizing choice26. Officially the reasoning behind the nominally small financial incentive to accept patients was, that hospitals would utilise spare capacity for these patients, and therefore the payment should reflect the marginal (and supposedly small) costs rather than the (greater) average costs. Another underlying rationale for the decision to limit the financial incentive was probably fear that choice could undermine the cost control in the Danish public sector which was achieved during the 1980s through global budgeting with fixed limits to each hospital’s budget – as one of the insights from health economics is, that there is basically no upper limit to the demand for tax-financed health care provided free at the point of delivery. The rules on counties’/regions’ right to refuse to receive patients referred from other counties/regions are vague; at no time since the introduction of choice has it been clarified when hospitals are allowed to refuse referrals of patients from other counties/regions. 2 Introduction of choice by law by January 1 1993 On January 1 1993 freedom of choice was introduced by law, allowing patients freedom of choice among public hospitals at the lowest sufficient level of specialisation, if the receiving hospital was willing to accept the patient [15]. 1997 By July 1 1997 highly specialized hospital departments were allowed to receive patients referred to hospital with symptoms/diseases which could be diagnosed/treated at departments performing basic hospital tasks [16], thereby increasing the number of providers involved in freedom of choice for more patient groups, if the specialized hospital departments were willing to accept patients referred to basic hospital treatment. The original law on choice only provided patients with a right to choose a hospital department at the lowest effective level of specialization. However, some patients with ailments which could be treated at specialized hospitals departments complained to the Ministry of the Interior and Health that they would like to be treated at highly specialized departments (“tertiary” departments in WHO’s terminology), on the assumption that tertiary departments were especially good not only at highly specialized interventions but at standard interventions as well. However, opening up highly specialized departments for patients with minor ailments ran counter to national efforts to strengthen specialization at tertiary hospital 26 The financial compensation included a bed-day rate supplemented with specific supplementary rates for drugs, prostheses etc. 53 departments, and could increase health care costs, as highly specialized departments’ reimbursement rates were higher than standard departments’ rates. Therefore the highly specialized departments’ financial incentive to accept such patients was limited to the (relatively small) payment which the standard department would receive, thereby reducing the incentive to accept patients who could be cared for at lower levels of specialization. The patient’s home county could demand that patients were examined at a local hospital before the patient was referred to the highly standardized department to establish whether the patient was in need of treatment of highly specialized treatment and thereby how much the home county should pay27. By July 1 1997 it became mandatory for hospital departments to inform patients about choice, if waiting time exceeded waiting times at other departments considerably, thereby providing patients with more information on choice from a new source [16]. 1998 By 1997 several counties employed patient advisors, but by January 1 1998 it became mandatory for the counties to employ one or more patient advisors whose task was to provide patients with information on their rights, thereby providing patients with access to another source of information on choice [17]. 1999 By 1998 choice apparently had not led to major patient movements, or to deficits in the health care sector as feared. Meanwhile interest in strengthening market-like governance mechanisms and other NPM-tools continued to grow. By January 1 1999 the Danish parliament authorized the secretary of state for health to order the counties to inform patients about the number of treatments and waiting times at various hospitals, thereby introducing another source of information and more information on the providers, which patients may choose among [18]. 2000 In 1998 the Danish parliament decided to introduce payment of 100 % DRG-rates effective by January 2000 for patients utilizing choice, and made activity based financing of hospitals mandatory: the allocation of at least 10 % of each hospital’s budget should be decided by the size of the clinical production28. These initiatives strengthened the hospitals’ and/or the counties’ financial incentives to accept patients from other counties. By July 1 2000 three private hospices were included in choice increasing the number of providers involved in freedom of choice and the patient groups covered by choice [19]. 2002 By 1 July 2002 “extended freedom of choice” was introduced by the national government, allowing somatic patients to choose a private hospital, which the counties had entered into agreement with, 27 This rule enabled the county to 1) present itself to the patient (and hopefully - from the department’s and county’s viewpoint – to convince the patient that there was no need for referral to the highly specialized department), and 2) examine the patient and establish whether the department found that the county should pay the relatively low standard reimbursement rate og the higher rate for patients in need of highly specialized treatment. 28 In activity-based financing no distinction was made between patients from the county and choice patients from other counties. Therefore there was no financial incentive for hospitals and departments to distinguish between patients from within the county and patients from other counties. 54 if the region could not provide examination/treatment within two months after the referral at one of the county’s own hospitals or one of the hospitals which the county usually cooperated with. The initiative increased the number of providers involved in freedom of choice. The government made it clear, that it expected the counties to enter into agreement with so many private clinics/hospitals that the new set of rules would provide a real increase in the number of alternatives for patients. However, there were several restrictions on utilisation of “extended choice of hospital”. Extended choice did not apply: o If the GP’s diagnosis was insufficient to establish whether the intervention could be performed at a private hospital o If the intervention at a public hospital was delayed by the patient o If there was a medical indication for delaying the intervention o If waiting time at the private clinic/hospital was longer than at the public hospital o To the following interventions: transplantations, sterilisation, IVF, re-fertilisation, adjustment of hearing aids, cosmetic interventions, gender change, convalescence, research/trials or alternative medicine. Patients may only utilize extended freedom of choice when they have been referred to a hospital and it has become clear that the patient cannot be treated within the time limit. This means that, unlike in free choice of public hospital, it is not possible for the GP to refer patients directly to a private provider [20]. A homepage was established to provide patients with information about all the agreements between the Danish regions and private providers to enable patients to investigate which providers were relevant for the specific diagnosis, thereby providing patients with more information on the providers they may choose among [21]. 2003 By July 1 2003 the secretary for health was authorized by law to allow GPs and hospitals to refer patients directly to highly specialized hospital departments, bypassing hospital departments in the home county. Hitherto the GPs had had to refer patients to a local hospital for evaluation of the patient’s need for treatment at highly specialized departments (see 1997). Formally this change had no implications for patients’ rights, but it may have increased utilization of choice of highly specialized hospital departments [22]. By November 2003 new legislation made it mandatory for the counties to employ the patient advisors in the county’s administration rather than at hospitals – in an attempt to prevent that hospitals’ interests interfered with the patient advisors’ obligations to assist the patients. This strengthening of the patient advisors’ independence represented an attempt to make sure that patients received more information on choice [23]. 2004 By January 1 2004 the activity-based share of the hospitals’ budget was increased from 10 % to 20 %, strengthening the hospital departments’ financial incentive to accept patients from other counties. Some counties distributed a greater share of the budget through activity based financing in order to promote production and/or to make hospitals and department managers accustomed to activity based financing [24]. 55 2005 By January 1 2005 the rules on mandatory information to patients about freedom of choice were tightened to provide patients with more information on choice: Within eight days from reception of a referral, the hospital had to inform the patient about: 1) time and location for examination or treatment at the hospital; 2) whether the hospital was able to provide examination/treatment within two months [one month from 1 October 2007]; 3) the opportunities for choice according to free choice and extended free choice of hospital; 4) waiting times at public and non-profit hospitals; 5) the opportunity to receive information about hospital volume, and 6) that the hospital is willing to re-refer the patient to another hospital, if the patients want to be treated there [25]. In the spring of 2005 the Danish counties introduced a new precondition for funding databases on clinical quality: the counties (regions) only fund databases which publish data on individual departments’/hospitals’ performance, thereby providing patients with more information on the providers they may choose among [26], if a database for clinical quality covers their health problem. In a letter of July 5 2005 to the counties the National Health and Medicines Authority pointed out that a rule allowing psychiatrists to block psychiatric patients’ utilization of free choice of hospital should only be utilized to avoid that treatment of individual patients was interrupted and in effect hindered by repeated re-referrals of patients utilizing choice. The rule did not constitute a general opportunity to ignore psychiatric patients’ right to choice. The letter did not change the rules on choice, and no evidence is available on whether the letter influenced psychiatric patients’ utilization of choice. 2006 By January 1 2006 two private centres for rehabilitation of torture victims were included in choice, increasing the number (and range) of providers [27]. On October 30 2006 the Danish National Health and Medicines Authority started regular publishing of proxy measures of quality and service measures aggregated to a “star-rating-system”, thereby providing patients with more (proxy) information on the providers they may choose among. The star-rating system was quietly suspended several years later. 2007 By January 1 2007 the activity based budgets’ share of the hospitals’ total budgets were raised to at least 50 % [29], strengthening the hospital departments’ financial incentives to accept patients from other counties. Some regions distributed a higher share of the budget (70 %) through activity based financing in order to promote production and/or to make hospitals and department managers accustomed to activity based financing29. By June 1 2007 a departmental order the National Health and Medicines Authority made it mandatory for hospital personnel who declined to let a psychiatric patient utilise choice, to document their decision in the patient’s file. Presumably the departmental order reflected continuing suspicion that psychiatric patients were barred from utilizing choice. The order did not 29 For example since its inception on January 1 2007 Region Zealand distributes 70 % of its budget to the hospitals by way of activity based financing. 56 by itself change the rules on choice, and no evidence is available on whether the order influenced psychiatric patients’ access to and utilization of choice [30]. From 1 October 2007 the time limit regarding extended freedom of choice was lowered from two months to one, thereby offering choice to more patients [31]. 2008 By August 1 2008 extended freedom of choice was extended to include patients referred to examination (but not treatment) at departments and clinics of child and adolescent psychiatry, allowing patients to choose a private provider, which the regions have entered into agreement with, if the region could not provide examination/treatment within two month (not one month like somatic patients) of referral at one of the region’s own departments or clinics or one of the public providers which the county usually cooperated with. The initiative increased the range of providers involved in freedom of choice, and more patient groups were offered extended choice of hospital [32]. From November 7 2008 to June 30 2009 extended freedom of choice was suspended due to a strike by nurses working at public hospital [33], causing a temporary reduction in the opportunities for choice. 2009 By January 1 2009 extended freedom of choice was extended further to include patients referred to treatment at departments and clinics of child and adolescent psychiatry, allowing patients to choose a private provider, which the regions had entered into agreement with, if the region could not provide examination/treatment within two months (not one month like somatic patients) at one of the county’s own departments or clinics or one of the public providers which the county usually cooperated with. Waiting time was measured from the day when a psychiatrist has decided to refer the patient to treatment. The initiative extended choice to include more patient groups and more providers [32]. 2010 On January 1 2010 extended freedom of choice was extended to include adult patients referred to examination or treatment at psychiatric departments, allowing patients to choose a private provider, which the regions had entered into agreement with, if the region could not provide examination/treatment within two months (not one month like somatic patients) at one of the county’s own departments or clinics or one of the public providers which the county usually cooperated with. The initiative increased the range of providers involved in freedom of choice and more patient groups were offered extended choice of hospital [34;35]. 2013 Effective from January 1 2013 utilization of extended freedom of choice of hospital for less serious diseases was limited to patients waiting for two or more months, thereby reducing some patient groups’ access to extended choice [36]. The National Health and Medicines Authority was made responsible for drawing up criteria for distinguishing between “more serious” and “less serious” diseases and conditions. 57 2014-15 In June 2013 the national and the government and the Danish regions entered into an agreement on the conditions for the regions’ budgeting for 2014 including: o A transparency reform involving publishing of yearly reports on the health care system’s performance. By July 2014 data was published at the regional level only and so far did not constitute another source of information on hospital quality [37]. o An obligation for the regions to develop a system to improve transparency regarding spare hospital capacity and ease referrals between hospitals and between regions. Depending on the facility’s final design, it may ease utilization of choice and provide patients with more information on providers they may choose among [37]. References: 1. Callahan K. Citizen participation: models and methods. Int J Public Admin 2007; 30: 117996. 2. Hirschman AO. Exit, voice and loyalty. Response to decline in firms, organizations and states. Cambridge: Harvard University Press, 1970. 3. Olejaz M, Juul Nielsen A, Rudkjøbing A, Okkels Birk H, Krasnik A, Hernández-Quevedo C. Denmark: Health system review. Health Systems in Transition, 2012, 14(2):1 – 192. 4. Magnussen J, Vrangbæk K, Saltman RB, Martinussen PE. Introduction: the Nordic model of health care. In: Magnussen J, Vrangbæk K, Saltman RB. Nordic Health Care Systems: recent reforms and current policy changes. Maidenhead: Open University Press, 2009: 320. 5. Martinussen PE, Magnussen J. Health care reform: the Nordic experience. In: Magnussen J, Vrangbæk K, Saltman RB. Nordic Health Care Systems: recent reforms and current policy changes. Maidenhead: Open University Press, 2009: 21-52. 6. Vrangbæk K. Markedsorientering i sygehussektoren: Opkomst, udformning og konsekvenser af frit sygehusvalg. PhD-afhandling. [in Danish: Market orientation in the hospital sector. Introduction, design and consequences of patients’ freedom of choice of hospital. PhD-thesis] København: Institut for Statskundskab, Københavns Universitet, 1999. 7. Le Grand J. Choice and competition in publicly funded health care. Health Econ Policy Law 2009; 4: 479-88. 8. Cooper Z, Gibbons S, Jones S, McGuire A. Does hospital competition save lives? Evidence from the English NHS patient choice reforms. Econ J 2011; 121: F228-F260. 9. Propper C, Burgess S, Green K, Does competition between hospitals improve the quality of care?: Hospital death rates and the NHS internal market. J Public Econ 2005; 88: 1247-72 10. Vrangbæk K, Østergren K. Patient empowerment and the introduction of hospital choice in Denmark and Norway. Health Econ Policy Law 2006; 1: 371-94. 11. Vrangbæk K, Østergren K, Birk HO, Winblad U. Patient reactions to hospital choice in Norway, Denmark and Sweden. Health Econ Policy Law 2007; 2: 125-52. 12. http://www.esundhed.dk/sundhedskvalitet/Sider/sundhedskvalitet.aspx (in Danish only, accessed January 29 2015). 13. http://www.esundhed.dk/sundhedskvalitet/Sider/sundhedskvalitet.aspx (in Danish only, accessed January 29 2015). 14. http://www.patientoplevelser.dk/center-patient-experience-and-evaluation (presentation in English, accessed January 29 2015). 15. Act no. 1024 of December 19 1992 on amendments to the Hospital Act and the Public Health Insurance Act (more free choice of hospital, treatment at private specialized hospitals, concentration of services, prehospital care, patients ready for discharge, and planning and cooperation). 58 16. Act no. 464 of June 10 1997 on amendment to the Hospital Act (strengthening of freedom of choice of hospital, authority to perform experimental organizational changes, and municipality services). 17. Agreement of 1997 between the Association of County Councils and the Ministry of Finance for 1998. 18. Act no. 1044 of December 23 1998 on amendment to the Hospital Act (center for evaluation of hospitals, strengthening of free choice of hospital, information about waiting times etc.). 19. Act no. 470 of May 31 2000 on amendment to the Hospital Act (hospices and free choice of hospital). 20. Act no. 143 of March 25 2002 on amendment to the Hospital Act (higher limits to free choice, state subsidies for hospital purposes, and free choice of private hospitals). 21. www.sygehusvalg.dk (accessed January 29 2015). 22. Act no. 383 of May 28 2003 on amendment to the Hospital Act (referral to highly specialized departments etc.). 23. Act no. 428 of June 10 2003 on amendment to the Act on the National Health and Medicines Authority etc. (changed representation in the Patients’ Complaints Board, set up of advisory offices for patients at county level etc.). 24. Agreement of June 14 2003 between the Association of County Councils and the Ministry of Finance (only available in Danish: http://www.fm.dk/publikationer/2003/regeringensaftale-med-amtsraadsforeningen-om-amternes-oekonomi-i2004/download/~/media/Files/Publikationer/2003/Download/ARF_aftale.ashx (accessed January 29 2015). 25. Act no. 441 of June 9 2004 on amendment to the Hospital Act and the Act on public health insurance (strengthening of freedom of choice of hospital etc.). 26. Basiskrav for kliniske databaser [in Danish only: basic requirements for databases on clinical quality]. Copenhagen: Danske Regioner [Danish Regions], May 11 2007. http://www.regionh.dk/NR/rdonlyres/C1C921D6-123C-45A1-A7E230DA2B27A050/0/11052007_basiskrav_for_landsdaekkende_kliniske_kvalitetsdatabaser pdf.pdf (accessed January 29 2015). 27. Act no. 1395 of December 21 2005 on amendment to the Hospital Act and the Health Act (extension of free choice of hospital to include DIGNITY – Danish Institute against Torture). 28. Agreement of June 10 2006 between the association Danish Regions and the Ministry of Finance on the regions’ finances in 2007 (available in Danish only: Finansministeriet. Aftaler om den regionale og kommunale økonomi for 2007. København: Finansministeriet, 2006. 29. Departmental order of May 8 2007 on recording rejections of psychiatric patients’ utilization of freedom of choice of hospital. 30. Act no. 1556 of December 20 2006 on amendment to the Health Act; the Act on the Right to Complain and Receive Compensation within the Health Service, and the Pharmacy Act (1 month waiting time limit, access to the Medicine Profile etc.). 31. Act no. 539 of June 17 2008 on amendment to the Health Act; the Act on the Right to Complain and Receive Compensation within the Health Service, and the Act on regions and the abolishment of the counties, the Greater Copenhagen Authority and the Copenhagen Hospital Corporation (extended rights to treatment for children and young people with mental disease, and physiotherapy provided by the municipalities). The act was implemented in two steps: the right to treatment only took effect on January 1 2009 32. Act no 1064 of November 6 2008 on amendment to the Health Act (suspension of extended freedom of choice of hospital). 33. Act no 530 of June 12 2009 on amendment to the Health Act (extended freedom of choice of hospital for adult psychiatric patients). 34. Act no. 1521 of December 27 2009 on amendment to the Health Act (freedom of choice of diagnostic examinations, board of arbitration, extended freedom of information etc.). 59 35. Act no. 1401 of December 23 2012 on amendment to the Health Act and to the Act on the Right to Complain and Receive Compensation within the Health Service (right to early examination and differentiated right to extended freedom of choice of hospital). 36. Aftale af 4. juni 2013 om regionernes økonomi for 2014 (In Danish. Agreement of June 4th between the national government and the Danish regions on the framework for the regions’ budgeting for 2014. Link to the agreement (in Danish only): http://www.fm.dk/nyheder/pressemeddelelser/2013/06/aftale-om-regionernes-oekonomi-for2014/~/media/Files/Nyheder/Pressemeddelelser/2013/06/DR%20aftale/aftale%20om%2 0regionernes%20økonomi%20for%202014.pdf (accessed January 29 2015). 60 Appendix 2-4: Original papers 61 Health Policy 77 (2006) 318–325 Why do not all hip- and knee patients facing long waiting times accept re-referral to hospitals with short waiting time? Questionnaire study Hans Okkels Birk ∗ , Lars Onsberg Henriksen Roskilde County, Department of Health, Amtsgaarden, Koegevej 80, P.O. Box 170, 4000 Roskilde, Denmark Abstract Patients’ preferences are often assumed to be homogeneous and to favour hospitals with a short waiting time and high quality. Due to long waiting times (6 months) for artificial hip or knee implantation a Danish county in 1999–2000 offered patients on a waiting list a choice between remaining on the local hospital’s waiting list with the long waiting time, or re-referral to a hospital outside the county with a shorter waiting time. Fewer patients than expected took advantage of the offer of re-referral (“accepters”): 89 of 149 patients (60%). In 2003, we asked patients about the reasons for their choice: 87% of patients responded. Respondents and non-respondents were similar by decision, choice of hospital, diagnosis and age; men were significantly more likely to respond than women. Accepters and decliners were similar by age, sex, diagnosis and the presence of a car in the household. Short distance, short transport time and previous experience with the nearby hospital were the most important reasons for choosing that hospital. Some patients appeared to be willing to accept a long waiting time, if they were told exactly when they would undergo surgery. The results of this study question the validity of the conventional wisdom, that patients are willing to travel long distances in order to receive treatment with short waiting time. © 2005 Elsevier Ireland Ltd. All rights reserved. Keywords: Waiting time; Choice behaviour; Patient mobility; Waiting lists 1. Introduction A large majority of Danish and English healthy citizens report that they would be willing to travel to distant hospitals for treatment with short waiting time [1–3]: waiting time being viewed as a performance indicator for hospitals [4], and short waiting time being viewed as ∗ Corresponding author. Tel.: +45 46 30 38 46; fax: +45 46 32 04 83. E-mail address: [email protected] (H.O. Birk). an indisputable and important good in patients’ choice of hospital. Meanwhile, a growing number of studies of patients’ choice performed in various countries and in different health care systems demonstrate inverse or negative relationships between distance to health care and its utilisation [5–7]. This study concerns a natural experiment, where elective patients were offered a trade-off between short waiting time and short distance to hospital. Due to long waiting times (6 months) for artificial hip or knee replacement a Danish county offered 0168-8510/$ – see front matter © 2005 Elsevier Ireland Ltd. All rights reserved. doi:10.1016/j.healthpol.2005.08.002 H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 319 patients on a waiting list a choice between remaining on the local hospital’s waiting list with the long waiting time or re-referral to a hospital outside the county with a shorter waiting time, assuming that almost all patients would accept re-referral to reduce their waiting time. However, fewer patients (59%) than expected took advantage of the offer of re-referral to cut waiting time. Other Danish counties have carried out similar initiatives, but we have not found any scientific studies of these projects. Two English studies presented different patient groups with a simple trade-off between a long waiting time and a long distance to hospital and found very different results: roughly half of patients waiting for surgery chose re-referral to a distant hospital [8], while 95% of parents of clinically relevant children with recurrent tonsillitis chose a distant hospital [9]. New legislation allows Danish patients to choose among a larger number of public and private hospitals, and hospitals’ financial incentives to receive patients have been strengthened, making it more difficult to perform a prospective study of a simple trade-off between short distance and short waiting time. Therefore, we have investigated why patients accepted or declined the offer of earlier treatment at a distant hospital (“accepters” and “decliners”), testing the following hypothesis: responsible for basic examinations and treatments. The GPs are self-employed and responsible for their own facilities and never carry out their work in a hospital but may refer their patients to admittance or out-patient services at any public hospital for specialised services. The private Danish hospital sector owns less than 1% of the Danish hospital beds. Roskilde County is a mixed urban/rural county in eastern Denmark with 230,368 inhabitants as of July 1, 1999 (area: 891.5 km2 , population density: 258 inhabitants/km2 ), concentrated in one large town, Roskilde, and a suburban area along the county’s Baltic coast, including the Town of Koge. In 1999, 41% of the county’s economically active workforce worked in the Danish capital of Copenhagen, east of the study area. A single public hospital (A) in the study area (Koge) hosts an orthopaedic department, which performs hip and knee replacement surgery. Travel distances within the study area are small by international standards. No point in the county is farther than 66 km by road from any of the hospitals included in this study. Roskilde and the Baltic coast are closely connected to Copenhagen and with each other by highways and public transport (buses and railways). On average accepters were younger than decliners. Men were more likely to accept re-referral than women. Hip- and knee patients were equally likely to accept re-referral. Decliners were more likely to regret their decision than accepters. Short distance was the most important factor behind decliners’ choice. Short transport time was more important to decliners than short distance. The source group was made up of a population of patients on a waiting list for hip or knee replacement at A. The patients were placed on A’s waiting list after an examination at the hospital had established, that a replacement was indicated. A notified the patient about the date of surgery shortly before their hospitalisation. Therefore, the patients did not know when they would be operated on, except that the waiting time from the examination to hospitalisation was at least 4–5 months. The study group included all the patients who accepted re-referral or preferred to remain on the waiting list. Patients who did not answer or who asked to be deleted from the waiting list were excluded from the study. 2. Material 2.2. Participants 2.1. Setting 2.3. Intervention In Denmark, examination and treatment by the general practitioner (GP) and at public hospitals is taxfinanced and provided free of charge by the patients’ home county. Each Dane chooses a local GP, who is Roskilde County bought 89 hip or knee replacements at 2 public hospitals in Copenhagen: B, a hospital in the eastern part of Copenhagen, performed hip 320 H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 replacements but not knee replacements; C, a hospital in the western/central part of Copenhagen, performed hip and knee replacements. The county sent an invitation to patients on the waiting lists in the autumn of 1999, explicitly stating that they were invited to be re-referred to earlier treatment at B or C, and asking whether they preferred re-referral or remaining on the waiting list at A. No specific date of surgery at B or C was reported in the invitation, but the patients were informed that any re-referred patient would experience a shorter waiting time than patients who remained on A’s waiting list. In order to ease patients’ access, patients eligible to free transport to A were offered free transport to B or C as well. No specific official data were available to the county; the GPs; the patients; or the hospitals on the quality of treatment or patient satisfaction at the three hospitals. B was the object of some media interest in the summer of 1999 because of complaints from patients regarding the cleanliness of its wards. Patients who did not want to remain on the waiting list or did not respond to the invitation were deleted from A’s waiting list as reported in the invitation. When fewer patients than expected chose re-referral, more patients with shorter expected waiting time than in the originally selected group were invited, until 89 patients had accepted re-referral. The hip and knee replacements at B and C were performed during the autumn of 1999 and the winter of 1999–2000. 2.4. The questionnaire The members of the study group received a questionnaire developed by the authors. In an attempt to increase the questionnaire’s relevance to each participant, and thereby increase the response rate, we prepared different questionnaires for accepters and decliners. The questionnaires were validated by interviews with five members of the study group who were asked to explain their understanding of the content of each question; which answers they missed; which topics ought to be included in the study. The validation was performed using an interview-guide developed by Unit of Patient Evaluation, Denmark, for validation of questionnaires regarding patient satisfaction. The validation led to slight changes of the answers and more openended questions were added. In the absence of major changes the questionnaire was not re-tested. Data on all patients’ age, sex, diagnosis, offer of hospital and decision were obtained from an administrative database used for billing purposes. All respondents were asked whether they regretted their choice and whether there was a car in the household. The accepters were asked about their previous experience with A and the hospital they chose, and how important the following factors were for their choice: waiting time; access for visitors; their impression of and experience with A. We asked the decliners about their ability to get to B or C, when they were offered re-referral, and about the influence of the following factors on their choice: transport expenses; pain during transport; transport time; distance to the hospital offered; a scheduled day of surgery at A; preferences for a hospital the patient had been treated at before; recommendations of A from relatives or friends; access for visitors, and a bad impression of or negative experience with B or C. Questions on waiting time or about severity or duration of disease were not included, assuming that patients would find it difficult to present valid detailed responses 3 years after the experience. The questionnaires were sent in June 2003. In order to increase the response rate we enclosed a freepost return-envelope and a letter from the head of the county council’s committee for health, emphasising that the ultimate objective of the study was to tailor the county’s health services to the public’s needs, and that the study was carried out in cooperation with the University of Copenhagen. In August 2003, we sent one reminder to the non-respondents. 2.5. Statistical analysis Data were fed into a database (EPIINFO Version 3.2.2—April 14, 2004). Respondents/non-respondents and accepters/decliners sex, diagnosis and decisions were compared by use of a chi-square-test. We used the t-test to compare mean age in respondents/nonrespondents and in patients who regretted and did not regret their decision. We compared the presence of a car in responding accepters’ and decliners’ household by use of a chi-square-test. Responding patients’ likelihood of regret was compared by use of a chi-square-test (decision, sex, diagnosis and hospital) and a t-test (age). Accepters and decliners were compared by sex, diagnosis and hospital by use of multivariate unconditional logistic regression. H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 321 Table 1 Descriptive statistics for respondents and non-respondents Respondents Non-respondents Total, n n % n % 125 87 19 13 144 Sex Women Men 70 55 81 95 16 3 19 5 86 58 Hospital B C 47 78 85 88 8 11 15 12 55 89 Diagnosis Hip Knee 86 39 87 87 13 6 13 13 99 45 Decision Accepters Decliners 76 49 88 84 10 9 12 16 86 58 Mean age, years (standard deviation) 64.6 (11.1) Total p 0.02 0.71 0.97 0.50 66.6 (14.1) 0.49 N = 144. Univariate analysis: ANOVA parametric test (age) and chi-square, uncorrected, two-tailed. 3. Results The source group consisted of 184 patients. Forty patients (22%) did not respond to the invitation or asked to be deleted from the waiting list. The 86 accepters and 58 decliners made up the study group and received a questionnaire (n = 144). One hundred and twenty-five (87%) filled in and returned the questionnaire. Univariate and multivariate analysis of the whole study group showed that choice of local hospital (decliners) versus choice of distant hospital (accepters) was not associated with sex, diagnosis or hospital (Table 2). Older patients were slightly more likely to accept re-referral, but this tendency was not significant (coefficient 0.0203 (p = 0.18), constant −0.9172 (p = 0.35)). Univariate analysis showed that responding was not associated with diagnosis or hospital, but men were significantly more likely to respond than women (Table 1). Multivariate analysis likewise found that men Table 2 Acceptance of re-referral by patients’ characteristics were significantly more likely to respond (p = 0.02). Responding accepters and decliners were equally likely to have a car in the household (accepters: 59%; decliners: 41%, p = 0.42). Patients treated at B were more likely to regret than patients treated at C, while regret was not associated with decision, sex, diagnosis or age (Table 3). Among accepters more patients re-referred to B criticised the cleanliness and the access to rehabilitation than patients re-referred to C. Table 3 Association of regret with other variables Regret Total n % n % Decision Accepters Decliners 12 5 16 10 64 44 84 90 76 49 Sex Women Men 11 6 16 11 59 49 84 89 70 55 13 4 15 10 73 35 85 90 86 39 11 6 23 14 36 72 77 86 47 78 Patients’ characteristics Odds ratio 95% CI p Diagnosis Hip Knee Hospital offered (C/B) Diagnosis (knee/hip) Gender (male/female) 1.9152 1.3867 0.8223 0.8485–4.3233 0.5680–3.3856 0.4092–1.6524 0.12 0.47 0.58 Hospital B C N = 144. Multiple unconditional logistic regression. No regret p 0.37 0.44 0.46 0.01 N = 125. Univariate analysis: chi-square, uncorrected, two-tailed. 322 H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 Table 4 Patients’ reasons for accepting or declining re-referral from A Very important Important Quite important Total (%) Reasons to decline re-referral Short distance to A Short transport time to A Prior experience with A Visitors’ easy access to A Surgery scheduled at A Relatives recommend A Transport too expensive Transport too painful Bad experience with B or C Bad impression of B or C 22 17 22 11 20 10 1 2 2 0 9 11 6 11 4 6 2 3 0 0 1 3 2 3 0 4 4 1 3 1 32 (65) 31 (63) 30 (61) 25 (51) 24 (49) 20 (41) 7 (14) 6 (12) 5 (10) 1 (2) Reasons to accept re-referral Short waiting time Bad impression of A Visitors’ easy access Bad experience with A 53 3 1 2 15 3 2 1 2 3 3 2 71 (91) 9 (12) 6 (8) 5 (6) N = 49 decliners and N = 78 accepters. Short distance, short transport time and prior experience with A were the most important factors behind decliners’ choice (Table 4). Some participants had already been informed of their date of surgery at A, when they received the offer of re-referral. Fifty percent of the decliners stated that this information had been important for their choice. We do not know how many decliners or acceptors had been notified of their date of surgery. Short waiting time was the most important factor behind accepters’ choice. Nine patients attributed their choice to a negative impression of A, of which six patients had been hospitalised at A. Thirtyseven accepters reported that they were satisfied with a previous experience at A. Decliners who mentioned transport distance as a factor behind their choice were equally likely to mention transport time and attributed similar weight to that factor (p < 0.0001). 4. Discussion Our study was performed in a country, where much emphasis has been put on providing patients with a choice of hospital and achieving short waiting times to surgery, and where conventional wisdom states that patients are willing to travel long distances in order to receive treatment with short waiting time elsewhere in the country. However, patients’ choice of hospital is also influenced by the distance to hospital, the hos- pitals’ quality and reputation and the patients’ social network. Patients’ choice may also be influenced by their age, but most of the participants were recruited from a narrow age group. This group is highly relevant because it is responsible for most of the utilisation of health care but our results may not be applicable to other age groups. 4.1. Waiting time Waiting time was the dominant reason for accepters’ choice. Half of the decliners already knew when they would be operated on if they remained on A’s waiting list, when they received and declined the offer of earlier treatment. Decliners’ willingness to accept a longer waiting time at the local hospital than at a distant hospital, if they were told exactly when they would be operated on, indicates that uncertainty about the length of the waiting time was more important to these patients than the numerical length of waiting time. This hypothesis could not be tested in our study and the finding may not apply to waiting times, which are longer than in this study. In two English studies, the uncertainty about the waiting time at the local hospital was greater, and the patients were more likely to accept to travel much farther, suggesting that uncertainty was important to patients’ choice [8,9]. However, studies of patients’ views on waiting time for surgery indicate that the numerical length of waiting time indeed influences H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 patients’ satisfaction negatively: cataract patients generally accept waiting times of 3 months or less, while waiting times of 6 months or more are likely to be perceived as too long [10,11]. Orthopaedic patients’ waiting time is a significant predictor of patients’ acceptance of waiting time [12]. Cataract patients perception of waiting time for cataract surgery being too long is not associated with patients’ demographic characteristics [11], but in younger patients employment may strengthen patients’ preferences for early treatment. A study in New Zealand of patients on a waiting list for hip or knee joint replacement found a moderate inverse correlation between severity categories like bodily pain and physical functioning and acceptable waiting time [13], but the present study included no measures of severity. 4.2. Short distance and/or transport time to the hospital Short distance/transport time to the closest hospital was patients’ primary reason for remaining on A’s waiting list, and this finding is consistent with findings in other studies of patients’ movements [14,15]. Unlike in several other studies the patients in our study were free to choose, were conscious of the alternative, and had plenty of time to consider the choice. Inspired by studies, which found that use of transport time or transport distance as measures of accessibility produced different results, or that transport time was more important to patients than distance [16], we asked patients about the importance of transport distance as well as transport time. Patients did not distinguish between the two factors, indicating that it is sufficient to ask patients about transport distance, which is easier to measure than transport time. 4.3. Quality and reputation A few patients chose a hospital outside the county, because they had gained a negative impression of the closest hospital. These patients attributed the bad impression to their friends rather than to media reports, indicating that the media are less important for patients’ views on specific hospitals or departments than the experience of patients’ friends and relatives. 323 No specific official data were available on quality of care at A, B and C, but even when data on quality at hospital- or surgeon level are available, few patients display much interest in it [17]. The importance of relatives’ and patients’ own previous experience with specific hospitals may reflect that patients use their relatives’ and friends’ comments as a proxy measure for service and/or quality at the hospital. The patients’ own positive experience with A was the third most important factor behind decliners’ choice (and the second most important factor if transport time and distance are viewed as a single factor), but half of the accepters were satisfied with A as well. It was surprising that so many patients reported that they had been treated at A before. Some respondents’ comments indicate that they referred to the examination in the orthopaedic out-clinic before the implantation rather than previous treatment at the hospital. Still, it is noteworthy that patients put so much emphasis on their previous experience, even though only a minority of the decliners could have had experience with joint replacements at the department. Presumably some decliners used their experience with other departments as a proxy measure for service or quality at the orthopaedic department—a “halo”-effect. 4.4. Social network Patients’ social network may strengthen their mobility, if the relatives are willing to drive them to and from the hospital. In health care a predominantly local social network may actually reduce patients’ willingness to travel for treatment, if visits play a major role for patients while they are hospitalised. Potential visitors’ access to the hospitals was one of the factors which the largest number of patients reported influenced their choice, but on average they attributed little weight to the factor, usually considering it an “important” rather than a “very important” factor. Apparently, the factor influenced many patients’ choice of hospital but was of secondary importance compared to other factors like distance to hospital. One Danish study of citizens’ hypothetical choice of hospital found that 9% reported that visitors’ access would influence their choice [18]. The low rating may reflect that the choice was hypothetical. Patients facing an actual choice, like in this study, may put more emphasis on visitors’ opportunities for access. 324 H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 4.5. Limitations of the study The population was unselected, because all patients in the source population were placed on a waiting list in chronological order, and because the patients with the longest expected waiting time were invited first. A high response rate further reduced the risk of selection bias, although men were more likely to respond than women. Patients were not informed about their specific expected waiting time, presenting all the patients with the same choice based on standardised information about their opportunities of choice, except that some patients knew when they would be operated on at A. The population was homogeneous with regard to diagnosis and age, reducing the opportunities to generalise the conclusions to other patient groups. Patients were not asked about their social background. Most of the patients were pensioners but within this group educational level and marital status may influence patients’ choice. Data on health status were not included. This was a drawback because patients’ views on acceptable waiting times for surgery is influenced by their symptoms [12,13]. Recall bias is probably a serious weakness in the study: the participants received the questionnaire more than 3 years after they made their choice. Recall bias will probably make respondents simplify the choice they made, thereby exaggerating the influence of the most important reasons for the choice. Many respondents elaborated on their answers, but we cannot say whether these comments reflect that patients found it easy to remember the actual reasons for their choice or an attempt to rationalise or even defend their decision. Patients’ preferences are often assumed to be homogeneous, favouring hospitals with a short waiting time and documented high standards of quality. Therefore, findings indicating that patients are most likely to choose the hospital nearest to their home are often viewed as symptoms of barriers to choice of hospital or irrational patient behaviour. This study indicates that elective patients’ preferences regarding hospitals are heterogeneous and elective patients’ choice of the hospital closest to their home often represent a conscious selection of that hospital. Long waiting times are an important factor behind many but far from all patients’ choice of hospital and apart from the influence of waiting time per se it may act as a confounder for uncertainty about the length of the waiting time as well; some patients being willing to make a trade-off between a long waiting time and other factors, if they know exactly when they will be treated. Other patients put more emphasis on choosing a hospital they trust due to their own or other people’s experience. Patients facing a choice of hospital have few or no data they can base their choice on. If they make a wrong choice, the consequences may be very unpleasant for the patients. Many patients are averse to uncertainty and try to reduce this uncertainty by choosing a specific rather than an uncertain date of surgery, and by using their own, friends’ and/or relatives’ experience with certain hospitals as an indicator of the service and quality they will receive at a certain hospital department. The results of this study question the validity of the conventional wisdom, that patients are willing to travel long distances in order to receive treatment with short waiting time. More emphasis should be put on providing care close to the patients’ home. 5. Conclusion We found that accepters were slightly older than decliners within the study population’s narrow age range, female patients were slightly more likely to accept re-referral than male patients, knee patients were slightly more likely to accept re-referral than hip patients, and accepters were slightly more likely to regret their choice than decliners, but all of these results were insignificant. Short distance to hospital was the most important reason behind decliners’ choice, and short distance was equally important to patients as short transport time. References [1] PLS Consult. Det umuliges kunst—om prioriteringer i velfærdsstaten belyst ved sygehusvæsenet [The art of the impossible—on priority setting in the welfare states; case: the hospital sector]. Aarhus: PLS Consult; 1999 [in Danish]. [2] Ryan M, McIntosh E, Dean T, Old P. Trade-offs between location and waiting times in the provision of health care: the case of elective surgery on the Isle of Wight. Journal of Public Health Medicine 2000;22:202–10. [3] Ross M-A, Avery AJ, Foss AJE. Views of older people on cataract surgery options: an assessment of preferences by conjoint analysis. Quality and Safety in Health Care 2003;12:13–7. H.O. Birk, L.O. Henriksen / Health Policy 77 (2006) 318–325 [4] Newton JN, Henderson J, Goldacre MJ. Waiting list dynamics and the impact of earmarked funding. British Medical Journal 1995;311:783–5. [5] Shannon GW, Skinner JL, Bashshur RL. Time and distance: the journey for medical care. International Journal of Health Services 1973;3:237–44. [6] Porell FW, Adams EK. Hospital choice models: a review and assessment of their utility for policy impact analysis. Medical Care Research and Review 1995;52:158–95. [7] Place M. Concentration and choice in the provision of hospital services. The relationship between concentration, patient accessibility and utilisation of services. CRD report 8, part III. York: The University of York. Centre for Health Economics York Health Economics Consortium, NHS Centre for Reviews and Dissemination; 1997. [8] Howell GP, Richardson D, Forester A, Sibson J, Ryan JM, Morgans BT. Long distance travel for routine elective surgery: questionnaire survey of patient’s attitudes. British Medical Journal 1990;300:1171–3. [9] Nofal F, Moran MM. Long distance travel by children for tonsillectomy: experience of the ORL Department at Princess Alexandra Hospital (PAH), Royal Air Force, Wroughton, Swindon. Journal of Laryngology and Otology 1990;104:417–8. [10] Conner-Spady BL, Sanmugasunderam S, Courtright P, McGurran JJ, Noseworthy TW. Steering Committee of the Western [11] [12] [13] [14] [15] [16] [17] [18] 325 Canada Waiting List Project. Determinants of patient satisfaction with cataract surgery and length of time on the waiting list. British Journal of Ophthalmology 2004;88:1305–9. Dunn E, Black C, Alonso J, Norregaard JC, Anderson GF. Patients’ acceptance of waiting for cataract surgery: what makes a wait too long? Social Science and Medicine 1997;44:1603–10. Lofvendahl S, Eckerlund I, Hansagi H, Malmqvist B, Resch S, Hanning M. Waiting for orthopaedic surgery: factors associated with waiting times and patients’ opinion. International Journal for Quality in Health Care 2005;17:133–40. Derrett S, Paul C, Morris JM. Waiting for elective surgery: effects on health-related quality of life. International Journal for Quality in Health Care 1999;11:47–57. Mooney C, Zwanziger J, Phibbs CS, Schmitt S. Is travel distance a barrier to veterans’ use of VA hospitals for medical surgical care? Social Science and Medicine 2000;50:1743–55. Cohen MA, Lee HL. The determinants of spatial distribution of hospital utilization in a region. Medical Care 1985;23:27–38. McGuirk MA, Porell FW. Spatial patterns of hospital utilization: the impact of distance and time. Inquiry 1984;21:84–95. Schneider EC, Epstein AM. Use of public performance reports. Journal of American Medical Association 1998;279:1638–42. Hansen TB. Hvilke faktorer har betydning for valg af sygehus ved tilskadekomst? [Which factors affect choice of hospital in cases of trauma?]. Ugeskr Laeger 1994;156:652–5 [in Danish]. Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 RESEARCH ARTICLE Open Access Patients’ experience of choosing an outpatient clinic in one county in Denmark: results of a patient survey Hans O Birk1,2*†, Rikke Gut3† and Lars O Henriksen1† Abstract Background: Research on patients’ choice of hospital has focused on inpatients’ rather than outpatients’ choice of provider. We have investigated Danish outpatients’ awareness and utilisation of freedom of choice of provider; which factors influence outpatients’ choice of hospital, and how socio-demographic variables influence these factors in a single uptake area, where patients were free to choose any public hospital, where care was provided free at the point of delivery, and where distance to the closest hospitals were short by international standards. Methods: Retrospective questionnaire study of 4,232 outpatients referred to examination, treatment, or follow-up at one of nine somatic outpatient clinics in Roskilde County in two months of 2002, who had not been hospitalised within the latest 12 months. The patients were asked, whether they were aware of and utilised freedom of choice of hospital. Results: Fifty-four percent (2,272 patients) filled in and returned the questionnaire. Forty-one percent of respondents were aware of their right to choose, and 53% of those patients utilised their right to choose. Awareness of freedom of choice of provider was reported to be especially high in female outpatients, patients with longer education, salaried employees in the public sector, and in patients referred to surgical specialties. Female outpatients and students were especially likely to report that they utilised their right to choose the provider. Short distance was the most important reason for outpatients’ choice, followed by the GP’s recommendations, short waiting time, and the patient’s previous experience with the hospital. Conclusions: Outpatients’ awareness and utilisation of free choice of health care provider was low. Awareness of freedom of choice of provider differed significantly by specialty and patient’s gender, education and employment. Female patients and students were especially likely to choose the clinic by themselves. Most outpatients chose the clinic closest to their home, the GP’s recommendation and short waiting time being the second and third most important factors behind choice. Background A common characteristic of public sector governance reforms in the Nordic countries in the latest two decades is a gradual development from collective systems towards an individual-based democracy model [1], where individual citizens are viewed as autonomous consumers rather than clients [2] and are expected to set priorities and allocate resources by utilising consumers’ rights [3] to choose. Applied to health care, * Correspondence: [email protected] † Contributed equally 1 Region Zealand, Quality and Development, Alléen 15, 4180 Sorø, Denmark Full list of author information is available at the end of the article consumers - patients - may choose or be involved in the choice of: ○ ○ ○ ○ Treatment Individual health professional Appointment time/date Provider [4] In the Nordic countries the emphasis so far is on patients choosing a provider more or less freely among several competing providers. The interest in introducing choice mostly builds on two fundamental arguments © 2011 Birk et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 [5,6], mirroring views of choice as an end in itself or a means to an end [7]: The ideological viewpoint Providing citizens with an opportunity to choose a supplier is an objective in itself, as it strengthens personal freedom [8,9]. The instrumental viewpoint The public sector can improve its effectiveness, reduce inequities in access to care and increase and increase its responsiveness and quality of services by introducing or strengthening choice, e.g. an opportunity for patients to choose a health care provider [4]. In combination with activity-based payments, where “the money follows the patient” [10-13]choice constitutes a self-correcting allocation mechanism, which resembles the market mechanism in competitive markets [10,14], which communicate consumers’ preferences to providers more efficiently than by central planning [15], as consumers “punish” irresponsive providers by exit [16], leaving providers with the choice between improving the quality of their services or go out of business. Thereby individual actors’ utility maximisation through rational choices, ideally, leads to an optimal resource allocation in society at the national and even international level [17,18]. The health care sector is one of the public sector areas where the introduction of governance-tools has been very important in countries following the Beveridgemodel, like England [19], Denmark and Sweden [20], and to a lesser degree in some countries with health care organized in accordance with the Bismarck-model, like France, Germany and the Netherlands [21,22]. It is important for the effect of introduction of choice of provider on the public sector, whether consumers - e. g. patients - are aware of and utilise choice, and how they choose among different providers. A large number of studies describe inverse or negative relationships between distance to health care and its utilisation in different countries and in different institutional set-ups [23-25]. This persistent negative relationship between distance and utilisation may reflect reduced mobility in patients, judicial barriers (laws or administrative guidelines on patient referral), lack of performance data facilitating choice, and/or patients’ preferences for choice of hospital. Research into patients’ choice of hospital has focused on inpatients’ choices, but a large and growing share of patients are outpatients: from 2002 to 2009 the number of outpatient visits at somatic Danish hospital departments rose by 34% from 4,917,000 to 6,612,000 while the number of discharges from Danish somatic hospital departments only rose by 12% from 1,126,000 to 1,257,000 [26]. If the factors determining outpatients’ Page 2 of 10 choice of hospital differ significantly from those behind inpatients’ choice, the assumptions underlying management and planning in the health care sector may not be valid. On this background we investigated how outpatients chose an outpatient clinic, specifically whether awareness and utilisation differed by socio-demographic variables. Building on previous studies of Danish inpatients’ choice of hospital we tested the following hypotheses, most of which were based on previous studies of Danish or Norwegian inpatients’ choice of hospital: ○ Outpatients’ awareness and utilisation of freedom of choice varies by specialty [27] ○ The distance between patients’ home and hospitals is the most important factor behind patients’ choice of hospital - most patients prefer to be treated at the hospital which is the closest to their home [23,25-27] ○ The distance to hospital is of greater importance to older than to younger outpatients, older outpatients being especially likely to choose the hospital closest to their home [28] ○ The GPs’ advice strongly influences outpatients’ choice of hospital [27] ○ Patients’ previous experiences with a hospital strongly influences their choice of hospital; significant others’ experience influence patients’ choice but is of lesser importance [27] ○ Female patients are more likely than males to be aware of and utilise choice [29] The present study was performed in Denmark where hospital care was provided free at the point of delivery by a universal, tax-financed, public health care system [30]. In the study period the citizen’s home county was responsible for provision of health care performed by GPs, specialists, the county’s hospitals, or other counties’ hospitals (chosen by patients utilising freedom of choice or used by patients referred to hospitals performing highly specialised interventions). Each citizen had to register with a local GP, who was responsible for basic examinations and treatments. GPs, acting as gatekeepers, could refer a patient to any public hospital or a specialist for specialised services. In case of an emergency, the patient had direct access to a hospital but could not choose the hospital by themselves. GPs were self-employed and responsible for their own facilities and never performed their tasks in a hospital. The GPs were paid by the counties in proportion to 1) the number of patients registered with them (capitation, approx. 1/3 of GPs’ income), and 2) the number of services they provide to their patients (fee-for-service, approx. 2/3 of GPs’ income). Specifically the payments Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 to GPs were independent of the number of referrals or by choice of hospital. The counties and the Ministry of the Interior and Health published waiting time forecasts for common elective treatments at the hospitals on the Internet to ease patients’ choice of hospital, but data on other aspects of service or clinical quality at clinics was not published systematically. Elective patients could choose the clinic during the visit to the GP or after the visit to the GP but before going to the clinic. If one or more visits to the clinic were indicated, the patients could choose another clinic at any time before the last visit. Information to patients about freedom of choice of hospital was provided in the media, in leaflets available at general practices, and libraries and other public buildings. If patients did not make the choice by themselves, the GP chose the clinic. If hospital personnel found indication for one or more check-ups after treatment at the hospital/outpatient clinic the patient was free to choose a specific outpatient clinic. Otherwise the hospital personnel chose the outpatient clinic. Danish public hospitals were owned and managed by the counties. The private Danish hospital sector owned less than 1% of Danish hospital beds in the study period. Danish hospitals provide in-patient as well as outpatient care. If a patient was referred to a hospital outside the home county, the home county/region paid a DRGcharge to the county/region which owned the hospital performing the treatment, thereby creating a financial incentive to treat patients living in other counties/ regions, but clinics were not obliged to accept elective patients from other counties. Methods The Danish county of Roskilde, which was responsible for provision of health care in the study area until the introduction of an administrative reform by January 1 2007, performed a biannual survey of outpatients’ experience with the county’s outpatient clinics. In 2002 three of the 38 questions in the survey concerned outpatients’ awareness and utilisation of their freedom of choice of hospital and their reported reasons for choosing the outpatient clinic. The source group consisted of all outpatients referred to examination, treatment (including surgery), or followup at one or more of the 11 somatic outpatient clinics in Roskilde County in two months of 2002. To eliminate influence of patients’ experience as inpatients, patients who had been hospitalized at any Danish hospital within 12 months of attending the outpatient clinic were excluded from the study. Therefore the study included patients who attended an outpatient clinic only once or a few times, and patients who Page 3 of 10 attended the clinic for a regular check-up and whose latest discharge took place more than one year before the study period. The 11 outpatient clinics included the following specialties: Internal medicine (2 clinics), general surgery (2), orthopaedic surgery (1 clinic), rheumatology (1), neurology (1), ophthalmology (1), paediatrics (1), gynaecology and obstetrics (1), and ear, nose and throat (1). The survey of patients’ experience aimed at reflecting patients’ experience at all clinics, and therefore 400 patients from each outpatient clinic were randomly allocated to the study group. For clinics visited by less than 400 patients in the two months all patients were included in the study group. Patients were only included in the study group once for each outpatient clinic they attended. Waiting time varied by specialty and by intervention and data on the intervention was not included in the questionnaire. Therefore we could not include patients’ expected waiting time in the study. The study group received a standardised questionnaire developed for use in a biannual nationwide survey of inpatients’ experience with Danish public hospitals. The original version of the questionnaire was validated for readability and understanding by interviews with 80 inpatients and was used for two nationwide studies of Danish inpatients’ experience. Unit of Patient Evaluation, Copenhagen County, Denmark, (UPECC, now renamed “the Unit of Patient-Perceived Quality, Capital Region of Denmark”) revised this questionnaire for use by outpatients and validated the questionnaire by interviews with 12 patients from five outpatient clinics using an interview guide developed by UPECC. See additional file 1: Extract from the questionnaire. Compared to the standardised questionnaire the language was adjusted to the outpatient-clinic setting, we referred to the media rather than the clinic’s “reputation”, and we added family and friends’ experiences as potential reasons for choosing the clinic. Socio-demographic data on each patient in the study group included: ○ ○ ○ ○ ○ Specialty Gender Age Education Employment The questionnaire did not include questions concerning patients’ use of published data on clinics’ quality or service level. The study was performed anonymously. All members of the study group received one reminder by mail. Data were entered into a database (SAS). Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 We weighted the responses from each specialty in accordance with the specialty’s share of the number of outpatients which attended the clinics during the study period and met the inclusion criteria. Respondents’ and non-respondents’ specialty, gender, and age were compared by a univariate chi2-test. Respondents’ awareness and utilisation of free choice of hospital was analysed by gender, education, and employment by a univariate chi-square test. Respondents aware of and utilising free choice of hospital were compared by gender, age (0-60 vs. 61+ years), referring doctor, education (none/short, medium and long), and specialty category (surgical vs. medical specialty but not by single specialties), using a logistic regression analysis, which did not control for other factors. Level of significance: 5%. “Surgical specialties” included general surgery, orthopaedic surgery, ophthalmology, gynaecology and obstetrics, and ear, nose and throat, while “medical specialties” included internal medicine, neurology, and paediatrics. Respondents’ reasons for choice of hospital were analysed by specialty category (surgical vs. medical specialties but not by single specialty), gender, education (none/short, medium and long), employment (in employment vs. other), and age (0-60 vs. 61+ years) using a univariate chi-2-test. The study was performed in accordance with the Helsinki Declaration. According to section eight in the Danish Act on a Biomedical Ethics Committee System and the Processing of Biomedical Research Projects questionnaire studies like the present study are not notifiable to the Danish research ethics committee system, if the study does not include biological material [31]. Results Respondents and representativeness The study group included 4,232 patients; 2,272 (54%) filled in and returned the questionnaire. The respondents did not differ significantly from the study group but due to the recruitment method the unweighted study group differed from a random sample of outpatients. Female patients (response rate: 56%), patients attending a clinic of gynaecology/obstetrics (59%) and patients aged 40-79 years (58%) were especially likely to respond. Male patients (50%), patients aged 0-29 years (41%), and patients attending a clinic of neurology (46%) were the least likely to respond. On average the respondents had attended the clinic four times within the latest 12 months. When the respondents filled in the questionnaire 20% had visited the clinic only once, and 41% had visited the clinic two or three times, within the latest 12 months. Page 4 of 10 Patients’ reported awareness of freedom of choice (weighted respondents) Forty-one percent of the respondents reported that they were aware of their right to choose the hospital (Table 1). Patients’ reported awareness differed significantly by specialty, patients referred to clinics of ophthalmology, ear, nose and throat, gynaecology/obstetrics and orthopaedics (the surgical specialties) being especially likely to report that they were aware of their right to choose. Female patients, patients with longer education and salaried employees in the public sector were significantly more likely to be aware of their right to choose than other patient groups. In logistic regression analysis involving gender, age and education female patients and patients with longer education were significantly more likely to report that they were aware of their freedom of choice, like in univariate analysis (Table 2). Utilisation of choice among patients aware of freedom of choice (weighted respondents) Fifty-three percent of respondents, who reported that they were aware of their right to choose, reported that they utilised this right. In univariate and logistic regression analysis female patients were significantly more likely than men to report that they chose the hospital (Table 1, Table 2). The share of parents which utilised free choice of hospital on behalf of their children was markedly lower than in other patient groups, even though the share of parents who were aware of free choice was lower than in other patient groups. Reported utilisation of free choice was also low in patients referred to outpatient clinics in neurology, while utilisation was high in patients referred to ophthalmology (where awareness also was high). Reported utilisation was no higher in patients referred to surgery than in patients referred to internal medicine. Patients who had an education of long duration, and patients who were self-employed or salaried employees in the public sector were especially likely to choose the hospital (Table 1). The statistically significant univariate association between education and utilisation of choice disappeared in logistic regression (Table 2), unlike the association with awareness of choice. Patients who were 20-39 years old were also especially likely to choose the hospital, but age was not a statistically significant variable (Table 1, Table 2). Reasons for choice of hospital Distance to hospital was the factor which the greatest number of patients reported to be important for their Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 Page 5 of 10 Table 1 Weighted respondents’ characteristics and reported awareness of and utilisation of freedom of choice of hospital. Patients characteristics Gender Age (years) Specialty Referring doctor Education Employment Response rate (%) Respondents’ reported awareness Reported use of choice Men 58 38* 52** Women 42 43* 63** 0-9 10-19 5 5 41 31 53 40 20-29 4 33 71 30-39 10 44 65 40-49 13 42 58 50-59 22 45 56 60-69 20 42 56 70-79 14 39 63 80+ Rheumatology 6 9 38 34** 66 63 Internal medicine 27 39** 58 Surgery 17 39** 56 Neurology 5 34** 46 Ophthalmology 6 54** 70 Ear, nose and throat 12 46** 57 Paediatrics 5 33** 36 Gynaecology/obstetrics 7 46** 57 Orthopaedics Surgical specialties 13 55 45** 44** 62 60 Medical specialties 45 37** 56 GP 51 40 62 Specialist 27 43 55 Ambulatory 7 40 53 Other 14 40 54 Does not remember 1 22 75 Very short Short 32 40 37* 44* 57 56 Medium or long 29 46* 63 Student 3 35* 78** Non-skilled labor 4 42* 64** Skilled labor 6 39* 61** Salaried employees, priv. 17 37* 59** Salaried employees, publ. 22 49* 58** Self-employed Unemployed 8 13 44* 39* 63** 38** Pensioners 26 40* 66** **: p < 0.01 *:p < 0.05 choice (Table 3), followed by the GP’s recommendation and the waiting time’s length. Twenty-two percent of outpatients reported that their own experience influenced their choice of hospital, while seven percent were influenced by their friends’ experience, and five percent by their family’s experience. Media reports were only referred to by three percent of the patients. Female patients were significantly more likely than men to choose the clinic closest to their home, while male patients and patients referred to surgical specialties were significantly more likely to make their choice based on waiting time than female patients and patients referred to medical specialties. Male patients and patients out of employment (including pensioners) were significantly more likely to make their choice based on Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 Page 6 of 10 Table 2 Weighted respondents’ reported awareness/utilisation of freedom of choice of hospital, logistic regression, adjusted odds ratios. Factor Awareness Utilisation Unit Odds ratio Lower 95%-conf. Upper 95%-conf. Female vs. male patients 1.00 1.234* 1.001 1.522 Age: 0-60 vs. 61+ years 1.00 0.960 0.768 1.201 Short/no education vs. long Medium education vs. long 1.00 1.00 0.695** 0.902 0.532 0.704 0.907 1.156 2.049 Female vs. male patients 1.00 1.462* 1.043 Age: 0-60 vs. 61+ years 1.00 1.033 0.720 1.482 Short/no education vs. long 1.00 0.801 0.519 1.237 Medium education vs. long 1.00 0.835 0.566 1.234 *: p < 0.05: **: p < 0.01 their personal experience with clinics than female patients and patients in employment. Friends’ experience was especially important to patients referred to surgical specialties, and patients with longer education and younger patients were especially likely to refer to reasons which were not listed in the questionnaire. Discussion Awareness of freedom of choice Questionnaire studies of Danish inpatients’ awareness and utilisation of choice found a higher overall awareness of freedom of choice (more than 80%) than the present study of outpatients [27,32-34], even though the study was performed within the same health care system. The results regarding differences between specialties almost resembled results from a study of inpatients performed in the same county: inpatients referred to departments of internal medicine, ophthalmology, or ear, nose and throat were especially likely to be aware of choice, while awareness was the lowest in patients referred to geriatric departments and in parents of children referred to a paediatric department [33]. Utilisation of freedom of choice Patients’ utilisation of choice varied by specialty. Two reasons for paediatric patients’ low utilisation of free choice could be a low number of paediatric departments and quite long distances between these departments, and parents may have to pick up their child at a kindergarten or school before they can go to the clinic, leading to an even longer transport distance for the parents, making them especially sensitive to the distance to the closest clinic. In the present study we did not disaggregate from specialty level to diagnoses or the severity of the specific disease. Concern about severe diseases may make patients more likely to utilise freedom of choice of hospital, and in general in patients are more likely than outpatients to suffer from serious diseases [4]. Table 3 Weighted respondents’ reported reasons for choice of hospital by specialty category, gender, education, employment and age. Respondents’ characteristics Short GP’s Waiting distance recommendation time Patient’s experience Other Friends’ reasons experience Family’s experience Media reports Specialty Surgical Medical 40 50 23 27 30**** 14**** 21 22 11 16 10* 4* 7 4 2 4 Gender Female 47* 26 19** 25* 15 8 6 2 Male 37* 22 33** 16* 10 5 6 3 None/very short 35 25 23 23 10* 9 7 1 Short 47 24 22 17 12* 7 5 1 Medium/ long 42 24 25 24 21* 8 5 5 In 43 employment 25 23 17* 16 5 5 2 Other 43 23 26 27* 11 9 6 4 0-60 44 25 22 19 17** 6 5 3 61+ 43 22 28 27 7** 9 7 2 44 24 24 22 13 7 5 3 Education Employment Age (years) Total *: p < 0.05; **: p < 0.01; ****: p < 0.001 Respondents could state more than one reason for choice. Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 In univariate and logistic regression analysis female patients were more likely than men to report that they chose the hospital. Likewise Norwegian female inpatients are more likely to utilise choice than male inpatients [29]. The present study provides no explanation for this difference, but women are hospitalized more often than men due to childbirth, and a longer average lifespan etc. and this greater experience may facilitate utilisation of choice. Although age was not a statistically significant factor behind reported utilisation of choice in the present study other studies indicate that younger patients may need assistance to think through what is important to them [35], and despite older patients’ reduced mobility their greater experience with providers and choice of provider may make them active choosers, although accessing and utilising data on the internet may constitute a challenge [35]. US studies have found that patients’ travel distances grow with their educational level, indicating a positive association between education and mobility: patients with higher education on average earn higher incomes and may be more likely to own a car, and are more likely to live in urbanized areas with access to public transport [4]. In a French interview study pregnant women with a higher educational level were especially likely to choose a maternity unit with special technical attributes [36]. We found no studies of an association between employment and choice. The Danish population is quite homogeneous with regard to socio-demographic variables, which may make it difficult to show statistically significant differences in behaviour between social groups. Reasons for choice of hospital Short distance was the most important factor behind choice of hospital in similar Danish studies [27,32-34] and the present study where female patients were significantly more likely than men to make their choice based on short distance. Many other studies have, by use of different methodologies, found that the distance to alternative hospitals is very important for patients’ choice of hospital [37], one US registry study finding that equal shares of patients chose the hospital closest to their home in rural and metropolitan areas, suggesting that there is no lower threshold below which short distance loses importance [38]. Distance interacts with other patient- and disease-specific factors like patients’ age [28], but in the present study gender was the only statistically significant factor behind choice. Institutional differences between health care services in the US and in a Beveridge-system like Danish health care complicate international comparisons. Page 7 of 10 The GP’s recommendation and waiting time were the second most important factor behind patients’ choice of clinic. In 2002 20% of Danish inpatients who chose a specific hospital reported that the GP influenced their choice [32]. The present study indicates that the GP plays an even larger role for outpatients’ choice of provider than for inpatients. Danish studies have consistently found that (short) expected waiting time is the fifth most important factor behind inpatients’ choice [27,32-34]. The great importance of (short) waiting time to patients referred to clinics of surgical specialties is not surprising as the share of elective patients is higher in surgical specialties than in medical specialties. Studies of patients’ acceptance of waiting time indicate that its numerical length is very important to patients: cataract patients generally accept waiting times of three months and less, while waiting times of six months or more are likely to be perceived as too long [39,40]. In British studies of patients on a waiting list, with very long and uncertain waiting times, who were offered early treatment at a distant hospital, all or a major share of the patients were willing to travel far to reduce their waiting time [41-44]. It was not possible to distinguish between the effect of waiting time itself and uncertainty about its length. In a hypothetical study patients reported that for every additional hour of travel they would, on average, require a reduction in waiting time of 2.3 months to take up the offer of treatment at a distant hospital. A choice of a hospital abroad required a reduction in waiting time of around 5.9 months [44]. Cataract patients’ perception of waiting times for surgery being too long is not associated with their demographic characteristics [40]. A study of patients waiting for hip or knee implantation found a moderate inverse association between on the one hand severity categories like bodily pain and physical functioning, and acceptable waiting time on the other [45]. The present study does not provide information on whether the patients who point to their own previous experience with the hospital have been treated at the same department or at another department. A study from the UK found that a previous negative experience with a local hospital was the strongest predictor for willingness to choose a non-local hospital [4]. Family and friends’ experience played a minor role for choice - probably partly because the hospital was chosen during a visit to the GP where it is difficult to approach other people and ask them about their experience, before the visit is over, although patients were free to call the GP’s secretary and ask for a re-referral if they changed their mind after the visit to the GP. Studies of clinically healthy citizens’ hypothetical choice of hospital Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 indicate that patients’ experience and other people’s reports of their experience with certain hospitals is more important or just as important for the choice of hospital as the GP’s advice and published information about hospitals’ quality [46-48]. Positive media reports about the clinic played a minor role for the patients’ choice. The patients may find it difficult to remember media reports about each and every hospital they are able to choose among. According to a US study reports of single sensational events at a hospital is more important for patients’ choice of a hospital than data on general mortality [49]. Implications A major reason for the introduction of proxy markets, like free choice of hospital in combination with activitybased financing is the assumption that this system will push hospital managers to improve quality and service. This management concept depends on that patients are aware of and willing to choose the hospital based on quality and service. The present study indicates, that outpatients’ choice behaviour will send relatively weak signals to hospitals compared to inpatients, because relatively few outpatients are aware of and utilise free choice of hospital, and because a large share of the outpatients choose the hospital based on which hospital is the closest, which is independent of hospitals’ quality or service. Waiting time influences patients’ choice, but the relatively small share of patients who choose the hospital based on waiting time data will not be sufficient to level out waiting times at different hospitals. The study was performed at a time when only little information was published about hospitals’ quality and service levels. In such situations proxy-measures of service and quality like the GP’s, the patient’s, and family and friends’ experience constitute important factors behind choice, which means that outdated data on quality and service may play a major role for patients’ choice. Assumptions on outpatients’ preferences for choice of provider should build on studies of outpatients rather than generalizations from studies of inpatients’ preferences and choices. Further research into outpatients’ choice behaviour and utilisation of data sources is warranted and should distinguish between referrals of outpatients to a clinic and outpatients attending a clinic for a check-up for an ongoing medical condition or after hospitalisation. Limitations of the study A medium response rate increased the risk of selection bias, because some patient groups may be especially Page 8 of 10 likely to answer, e.g. patients with strong views on choice of hospital probably were more likely to participate in the present study than other patients, and female patients, who on average were more likely to be aware of and utilise choice than male respondents, were also more likely to respond. Therefore the present study may exaggerate 1) the importance of any single factor for choice, 2) patients’ likelihood to choose the hospital by themselves, and 3) factors which are especially important to female patients. The present study includes many statistical tests and some of the statistically significant findings in univariate analysis may be due to mass significance rather than causality. The study group received the questionnaire approximately three months after attending the outpatient clinic. Recall bias may constitute a problem. This is especially so because chronic patients attending a regular check-up may have chosen the clinic several years before the present study was performed. Furthermore respondents may have provided a simplified description of the decision process, thereby exaggerating the influence of the most important reasons for their choice. The respondents’ participation in the study may have led them to describe a decision making process which is more rational than their real choice behaviour - for example by exaggerating their awareness and utilisation of choice, and the influence of supposedly rational reasons for choice like short waiting time and the GP’s advice, while underreporting reasons which may be considered to be less rational, like short distance to hospital and informal information sources, like family and friends. However, most of the questions in the questionnaire concerned their experience (’patient satisfaction’); only three of 38 questions concerned the patients’ choice of outpatient clinic, and therefore we assume that the subjects’ participation in the study may only have had little impact on their responses. The study did not provide evidence on outpatients’ utilisation of published data on quality or service in choice of provider. The study was performed nine years after the introduction of freedom of choice of (public) hospital in Denmark and before freedom of choice was extended to include some private clinics. Danish patients have become increasingly used to utilising freedom of choice. Therefore the results from the present study may be more representative of patients’ behaviour in public health care systems (Beveridge- or NHS-health care systems) several years after the introduction of choice than immediately after its introduction. The results and conclusions should only be generalized to other institutional settings with caution. Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 Conclusions Nine years after the introduction of free choice of public hospital/outpatient clinic in Denmark, outpatients’ awareness and utilisation of free choice of health care provider was low. Awareness of freedom of choice of provider differed significantly by specialty and patient’s gender, education and employment. Female patients and students were especially likely to choose the clinic by themselves. Most outpatients chose the clinic closest to their home, the GP’s recommendation and short waiting time being the second and third most important factors behind choice. Additional material Additional file 1: Extract from the questionnaire. The seven questions concerning outpatients’ choice of hospital in the questionnaire used for investigation of patients’ experience with outpatient clinics. Page 9 of 10 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. Acknowledgements and funding The study was funded by the former Roskilde County, Region Zealand and grants from “The Health Research Forum in East Denmark, Research Programme for Promotion of Regional Cooperation on Medical Research” and “The Health Research Foundation of the Counties in Eastern Denmark (Region 3)”. The authors are grateful to the two referees, Anna Dixon, director of policy, The King’s Fund, London, and Roland Friele, professor, Tylburg University, the Netherlands, for their valuable comments and suggestions. However, the authors are solely responsible for remaining omissions and errors. Author details Region Zealand, Quality and Development, Alléen 15, 4180 Sorø, Denmark. University of Copenhagen, Department of Public Health, Øster Farimagsgade 5, P.O.Box 2099, 1099 København K, Denmark. 3Unit of Patient-Perceived Quality, The Capital Region of Denmark, Frederiksberg Hospital, Nordre Fasanvej 57, Hovedvejen indgang 13, 1. sal, 2000 Frederiksberg, Denmark. 1 2 Authors’ contributions All authors conceived and designed the study; RG developed the questionnaire, collected the data, and assisted in performing the statistical analyses and in writing the manuscript. HOB analysed the data and wrote the manuscript. LOH assisted in writing the manuscript. All authors read and approved the final manuscript. Competing interests The authors declare that they have no competing interests. 16. 17. 18. 19. 20. 21. 22. 23. 24. 25. Received: 29 December 2010 Accepted: 10 October 2011 Published: 10 October 2011 26. References 1. Winblad U, Ringard Å: Meeting rising public expectations: the changing roles of patients and citizens. In Nordic health care systems. Recent reforms and current policy challenges. Edited by: Magnussen J, Vrangbæk K, Saltman RB. Maidenhead: Open University Press; 2009:. 2. Le Grand J: Motivation, agency, and public policy. Of Knights & Knaves, Pawns & Queens Oxford: Oxford University Press; 2003. 3. Vrangbæk K, Østergren K: Patient empowerment and the introduction of hospital choice in Denmark and Norway. Health Economics, Policy and Law 2006, 1:371-94. 27. 28. 29. Dixon A, Robertson R, Appleby J, Burge P, Devlin N, Magee H: Patient choice. How patients choose and how providers respond London: The King’s Fund; 2010. Perri G: Giving consumers of British public services more choice: what can be learned from recent history? Jnl Soc Pol 2003, 32:239-70. Thomson S, Dixon A: Choices in health care: the European experience. J Health Serv Res Policy 2006, 11:167-71. Kreisz FP, Gericke C: User choice in European health systems: towards a systematic framework for analysis. Health Econ Policy Law 2010, 5:13-30. Dowding K, John P: The value of choice in public policy. Public Administration 2009, 87:219-33. Wilmot S: A fair range of choice: justifying maximum patient choice in the British National Health Service. Health Care Anal 2007, 15:59-72. Porter ME, Teisberg EO: Redefining Health Care. Creating value-based competition on results Cambridge, Harvard Business School Press; 2006. Appleby J, Harrison A, Devlin N: What is the real cost of more patient choice London: King’s Fund; 2003. Vrangbæk K: The interplay between central and sub-central levels: the development of a systematic standard based programme for governing medical performance in Denmark. Health Econ Policy Law 2009, 4:305-27. Tai-Seale M: Voting with their feet: patient exit and intergroup differences in propensity for switching usual sources of care. J Health Polit Policy Law 2004, 29:491-514. Le Grand J: Choice and competition in publicly funded health care. Health Economics, Policy and Law 2009, 4:479-88. Hayek FA: The use of knowledge in society. American Economic Review 1945, 35:519-30. Hirschman AO: Exit, voice and loyalty. Response to decline in firms, organizations and states Cambridge: Harvard University Press; 1970. Bernstein AB, Gauthier AK: Choices in health care: what are they and what are they worth? Med Care Res Rev 1999, 56:5-23. Martinsen DS, Vrangbæk K: The Europeanization of health care governance: implementing the market imperatives of Europe. Public Administration 2008, 86:169-84. Lewis R: More patient choice in England’s National Health service. International Journal of Health Services 2005, 35:479-83. Vrangbæk K, Østergren K, Birk HO, Winblad U: Patient reactions to hospital choice in Norway, Denmark and Sweden. Health Economics, Policy and Law 2007, 2:125-52. Berendsen AJ, de Jong GM, Schuling J, Bosveld HEP, de Waal MWM, Mitchell GK, van der Meer K, Meyboom-de-Jong B: Patients’ need for choice and information across the interface between primary and secondary care: A survey. Patient Education and Counseling 2010, 79:100-5. Lisac M, Reimers L, Henke KD, Schlette S: Access and choice - competition under the roof of solidarity in German health care: an analysis of health policy reforms since 2004. Health Economics, Policy and Law 2010, 5:31-52. Shannon GW, Bashshur RL, Metzner C: The concept of distance as a factor in accessibility and utilization of health care. Medical Care Review 1969, 26:143-61. Porell FW, Adams EK: Hospital choice models: a review and assessment of their utility for policy impact analysis. Med Care Res Rev 1995, 52:158-95. Place M: The relationship between concentration, patient accessibility and utilisation of services York: The University of York. Centre for Health Economics. York Health Economics Consortium. NHS Centre for Reviews & Dissemination; 1997. Indenrigs- og Sundhedsministeriet: Sundhedsvæsenet i nationalt perspektiv Copenhagen; 2010, In Danish: the Danish Ministry of the Interior and Health. The health care system in a national perspective. Unit of Patient Evaluation: Patienters vurdering af landets sygehuse 2000. Spørgeskemaundersøgelse blandt 34.000 patienter [in Danish: Patients’ experiences with hospitals in Denmark 2000. Questionnaire study including 34,000 patients] 2001, Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation, Copenhagen County. Goddard M, Hobden C: Patient Choice: a review. Report to the Department of Health York: Centre for Health Economics; 2003. Godager G, Iversen T: Hvem bruker retten til fritt sygehusvalg? Resultater fra Samordnet levekårsundersøkelse 2002. Økonomisk Forum 2004, 58(4/ Birk et al. BMC Health Services Research 2011, 11:262 http://www.biomedcentral.com/1472-6963/11/262 30. 31. 32. 33. 34. 35. 36. 37. 38. 39. 40. 41. 42. 43. 44. 45. 46. 47. 48. 5):49-56, In Norwegian Who utilises the right of freedom of choice of hospital? Results from the integrated study of living conditions 2002. Strandberg-Larsen M, Nielsen MB, Vallgårda S, Krasnik A, Vrangbæk K, Mossialos E: Denmark: Health system review. Health Systems in Transition 2007, 9(6):1-164. Lov om et videnskabsetisk komitésystem og behandling af biomedicinske forskningsprojekter [in Danish: Act on a Biomedical Ethics Committee System and the Processing of Biomedical Research Projects. , http://www.cvk.sum.dk/English/actonabiomedicalresearch.aspx. Unit of Patient Evaluation: Patienters vurdering af landets sygehuse 2002. Spørgeskemaundersøgelse blandt 32.000 patienter [in Danish: Patients’ experiences with hospitals in Denmark 2002. Questionnaire study including 32,000 patients] 2003, Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation, Copenhagen County]. Unit of Patient Evaluation: Patienters vurdering af sygehusafdelinger i Roskilde Amt. Spørgeskemaundersøgelse blandt 3.400 patienter [in Danish: Patients’ experiences with hospital departments in Roskilde County 2002. Questionnaire study including 3,400 patients] 2003, Glostrup: Enheden for brugerundersøgelser i Københavns Amts sundhedsvæsen [Unit of Patient Evaluation, Copenhagen County. Unit of Patient Evaluation: Patienters oplevelser på landets sygehuse 2004. Spørgeskemaundersøgelse blandt 26.300 indlagte patienter [in Danish: Patients’ experiences with hospitals 2004. Questionnaire study including 26,300 inpatients] , Glostrup: Enheden for Brugerundersøgelser i Københavns Amt. [Unit of Patient Evaluation, Copenhagen County], 2005. Abstract in English available at: http://www.patientoplevelser.dk/index.asp?id=210 [homepage on the Internet] [cited on 3 July 2011]. Boyce T, Dixon A, Fasolo B, Reutskaja E: Choosing a high-quality hospital. The role of nudges, scorecard design and information London: The King’s Fund; 2010. Combier E, Zeitlin J, de Courcel N, Vasseur S, Lalouf A, Amat-Roze JM, de Pouvourville G: Choosing where to deliver: decision criteria among women with low-risk pregnancies in France. Soc Sci Med 2004, 58:2279-89. Tai WTC, Porell FW, Adams EK: Hospital choice of rural Medicare beneficiaries: patient, hospital attributes, and the patient-physician relationship. Health Serv Res 2004, 39:1903-22. Adams EK, Wright GE: Hospital Choice of Medicare Beneficiaries in a Rural Market: Why not the Closest? J Rural Health 1991, 7:134-52. Conner-Spady B, Sanmartin C, Johnston G, McGurran J, Kehler M, Noseworthy T: Willingness of patients to change surgeons for a shorter waiting time for joint arthroplasty. CMAJ 2008, 179:327-32. Dunn E, Black C, Alonso J, Nørregaard JC, Anderson GF: Patients’ acceptance of waiting time for cataract surgery: what makes a wait too long? Soc Sci Med 1997, 44:1603-10. Howell GP, Richardson D, Forester A, Sibson J, Ryan JM, Morgans BT: Long distance travel for routine elective surgery: questionnaire survey of patients’ attitudes. BMJ 1990, 300:1171-3. Nofal F, Moran MM: Long distance travel by children for tonsillectomy: experience of the ORL department at Princess Alexandra Hospital (PAH), Royal Air Force, Wroughton, Swindon. J Laryngol Otol 1990, 104:417-8. Dawson D, Jacobs R, Martin S, Smith P: Is patient choice an effective mechanism to reduce waiting times? Appl Health Econ Health Policy 2004, 3:195-203. Burge P, Devlin N, Appleby J, Rohr C, Grant J: Do patients always prefer quicker treatment?: a discrete choice analysis of patients’ stated preferences in the London Choice Project. Appl Health Econ Health Policy 2004, 3:183-94. Derrett S, Paul C, Moris JM: Waiting for elective surgery: effects on healthrelated quality of life. Int J Qual Health Care 1999, 11:47-57. Wolinsky FD, Kurz RS: How the public chooses and views hospitals. Hosp Health Serv Adm 1984, 29:58-67. Marshall MN, Shekelle PG, Leatherman S, Brook RH: The public release of performance data: what do we expect to gain? A review of the evidence. JAMA 2000, 283:1866-74. Robinson S, Brodie M: Understanding the quality challenge for health consumers. The Kaiser/AHCPR Survey. Jt Comm J Qual Improv 1997, 23:239-44. Page 10 of 10 49. Mennemeyer ST, Morrisey MA, Howard LZ: Death and reputation: how consumers acted upon HCFA mortality information. Inquiry 1997, 34:117-28. Pre-publication history The pre-publication history for this paper can be accessed here: http://www.biomedcentral.com/1472-6963/11/262/prepub doi:10.1186/1472-6963-11-262 Cite this article as: Birk et al.: Patients’ experience of choosing an outpatient clinic in one county in Denmark: results of a patient survey. BMC Health Services Research 2011 11:262. Submit your next manuscript to BioMed Central and take full advantage of: • Convenient online submission • Thorough peer review • No space constraints or color figure charges • Immediate publication on acceptance • Inclusion in PubMed, CAS, Scopus and Google Scholar • Research which is freely available for redistribution Submit your manuscript at www.biomedcentral.com/submit Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 RESEARCH ARTICLE Open Access Which factors decided general practitioners’ choice of hospital on behalf of their patients in an area with free choice of public hospital? A questionnaire study Hans O Birk1,2* and Lars O Henriksen1 Abstract Background: Parts of New Public Management-reforms of the public sector depend on introduction of market-like mechanisms to manage the sector, like free choice of hospital. However, patients may delegate the choice of hospital to agents like general practitioners (GPs). We have investigated which factors Danish GPs reported as decisive for their choice of hospital on behalf of patients, and their utilisation of formal and informal data sources when they chose a hospital on behalf of patients. Methods: Retrospective questionnaire study of all of the 474 GPs practising in three counties which constituted a single uptake area. Patients were free to choose a hospital in another county in the country. The GPs were asked about responsibility for choice of the latest three patients referred by the GP to hospital; which of 16 factors influenced the choice of hospital; which of 15 sources of information about clinical quality at various hospitals/ departments were considered relevant, and how often were six sources of information about waiting time utilised. Results: Fifty-one percent (240 GPs) filled in and returned the questionnaire. One hundred and eighty-three GPs (76%) reported that they perceived that they chose the hospital on behalf of the latest referred patient. Short distance to hospital was the most common reason for choice of hospital. The most frequently used source of information about quality at hospital departments was anecdotal reports from patients referred previously, and the most important source of information about waiting time was the hospitals’ letters of confirmation of referrals. Conclusions: In an area with free choice of public hospital most GPs perceived that they chose the hospital on behalf of patients. Short distance to hospital was the factor which most often decided the GPs’ choice of hospital on behalf of patients. GPs attached little weight to official information on quality and service (waiting time) at hospitals or departments, focusing instead on informal sources like feedback from patients and colleagues and their experience with cooperation with the department or hospital. Background A common trait in public sector governance reforms in the Nordic countries in the latest two decades is a gradual development from collective systems towards an individual-based democracy model [1], where individual citizens are viewed as autonomous consumers rather than clients [2] and are expected to set priorities and * Correspondence: [email protected] 1 Region Zealand, Quality and Development, Alléen 15, 4180 Sorø, Denmark 2 University of Copenhagen, Department of Public Health, !ster Farimagsgade 5, P.O. Box 2099, 1099 København K, Denmark allocate resources by utilising consumers’ rights [3] to choose treatment, appointment times and/or providers [4]. In general the interest in introducing choice is based on two fundamental arguments [5,6]: an ideological viewpoint, which views an opportunity for citizens to choose a supplier as an objective in itself, as it strengthens personal freedom [7,8], and an instrumental viewpoint, which emphasizes that the public sector can improve its effectiveness, quality, equity in access to care and responsiveness by introducing or strengthening choice, e.g. an opportunity for patients to choose a © 2012 Birk and Henriksen; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 health care provider [2,4]. In combination with activitybased payments, where “the money follows the patient” [9-13] choice is assumed to constitute a self-correcting allocation mechanism, which resembles the market mechanism in competitive markets [9,13], as providers who provide less than optimal care may be “punished” by customers through exit [14]. Thereby, ideally, individual actors’ utility maximisation on the demand side as well as the supply side results in an optimal resource allocation and production in society [4,15,16]. One “model of patient choice as a governance tool” builds on several preconditions [4], including ten preconditions concerning patients’ and general practitioners’ (GPs’) knowledge, assumptions and behaviour: ! Patients are aware of their ability to choose ! Patients want to choose and think choice is important ! Patients are offered choice of providers ! Quality is the primary discriminator in patients’ choice of which provider to attend ! Patients have access to relevant and appropriate ! ! ! ! ! information on quality and are able to interpret the data GPs believe that choice is important to patients GPs offer choice to all patients needing a referral GPs involve patients in decision-making GPs have access to information about the quality of providers and convey this information to patients GPs have time and resources to support patients to make an informed choice [4] Page 2 of 10 [24-26], and the GP is the most important source of information for a major share of the patients who choose the hospital by themselves [24,26-28], patients being even more sensitive to GPs’ warnings against specific hospitals than to their recommendations of specific hospitals [28]. In 2004 87% of all Danish elective in-patients were aware of freedom of choice of hospital, and 42% of all elective patients chose the hospital by themselves (of which 30% attributed major influence to the GP on their choice). The GPs chose the hospital on behalf of 58% of patients, who were not aware of choice or delegated the choice to the GP [26]. An English study found varying support for choice among GPs, and choice has not changed the GPs’ behaviour towards more emphasis on advice on choice [29]. GPs may be reluctant to provide advice to patients and promote utilisation of choice, because this task competes with other tasks; they do not consider this task a part of their job [4,30]; consider this task too time-consuming [4]; distrust data published by the providers [29], or want to avoid being blamed by patients for presenting faulty data [23]. Therefore GPs may choose the hospital on behalf of patients rather than provide advice to the patients, thereby reducing patients’ influence on the governance-effect of patient choice. We investigated: ! Whether GPs considered the patients or themselves to be responsible for choice of hospital? ! Which factors decided GPs’ choice on behalf of patients? ! Which formal and informal data sources were However, while choice in theory could be a driver for improving quality and service in health care these preconditions from neoclassical microeconomic theory are only fulfilled to some degree [17]. For example patients appear to utilize information only if there is a single outcome of major importance and the data is easy to understand [18], many patients being insufficiently informed to utilize data for choice resulting in market failure [19,20] and thereby reducing the potentially positive impact of choice on quality and service [17]. Patients may be reluctant to take responsibility for choosing the hospital in order to avoid regretting their choice [21-23], preferring to enter into a principal-agent-relationship with an intermediary. In an ideal principal-agentrelationship the agent (i.e. the GP) makes the decision, which the principal (i.e. the patient) would have made, if the principal had had the same information as the agent about the expected effect of various interventions and the quality of individual providers’ services. English, Dutch and Danish surveys have shown that GPs choose the hospital on behalf of a major share of patients, even when patients’ awareness of their right to choose is high utilised by GPs in choice on behalf of patients? The study was performed in a setting, where patients and GPs had one decade’s experience with free choice of hospital; where patients’ awareness of choice was high, and where the share of patients for whom GPs chose the hospital had been stable at a high level for several years. Hospital care was provided free at the point of delivery by a universal, tax-financed, public health care system. In the study period the citizen’s home county was responsible for provision of health care performed by GPs, specialists, the county’s hospitals, or other counties’ hospitals (by patients utilising choice or by patients referred to hospitals performing highly specialised interventions). Each citizen had to register with a local GP, who was responsible for basic examinations and treatments. GPs, acting as gatekeepers, decided whether a patient should be referred to hospital for elective care, and could refer a patient to any public Danish hospital or specialist for specialised services. In case of emergency, patients had direct access to hospital but could not choose the hospital by themselves. GPs were self-employed and Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 responsible for their own facilities and never performed their tasks in a hospital, unlike in the US [31]. The GPs were paid by the counties in proportion to 1) the number of patients registered with them (capitation, approx. 1/3 of GPs’ income), and 2) the number of services they provided to their patients (fee-for-service, approx. 2/3 of GPs’ income). The payments to GPs were independent of the number of referrals and the choice of hospital [31]. Elective patients could choose the hospital during the visit to the GP or after the visit to the GP but before going to the hospital. If more than one hospitalisation was indicated, the patients could choose another hospital at any time before the last hospitalisation. If the patient did not make the choice by themselves, the GP chose the hospital, by filling in a referral form on paper (no computerised facility like the English “Choose and Book” was available). Filling in the form took equally long time whether the patient was referred to a local hospital or a hospital in another Danish county. GPs did not receive any kind of incentive payment for advising patients on choice of hospital [31]. Patients referred to hospital were responsible for transportation arrangements and costs. However a patient was entitled to transportation or a refund of his/ her transportation costs by the county, if the patient was a pensioner, lived more than 50 km by road from the nearest hospital which could perform the procedure, or could not utilise public transport for health reasons. If a patient was entitled to a refund of transportation costs due to the distance criterion and chose a more distant hospital, the refund was calculated based on the distance to the closest hospital capable of performing the procedure. Danish public hospitals were owned and managed by a regional political/administrative level: the counties. The private Danish hospital sector owned less than 1% of Danish hospital beds in the study period. Danish hospitals provided in-patient as well as out-patient care. If a patient was referred to a hospital outside the home county, the home county/region paid a DRG-charge to the county which owned the hospital performing the treatment, thereby creating a financial incentive for the counties to attract patients from the county as well as patients from other counties to the county’s hospitals, but hospitals were not obliged to accept elective patients from other counties. Hospitals’ and hospital departments’ income grew with the production of DRG points up to a certain level. To avoid discrimination against patient groups, hospitals and departments received the same payment for treatment of patients independent of where the patients lived [31]. Elective patients could choose any public hospital, a broad majority in the Danish parliament having introduced Page 3 of 10 “free choice of [public] hospital” in Denmark in 1993 with several parallel objectives in mind including a view on choice as a patients’ right, to level out waiting times, strengthen patients’ influence on the hospital sector, improve hospitals’ treatment results and improve patients’ satisfaction [32]. However, significant limitations on patients’ rights and on hospitals’ financial incentives to accept patients from other uptake areas were introduced due to fear that a more demand-driven health care sector would lead to budget overruns. Gradually the government extended patients’ freedom to choose and strengthened hospitals’ financial incentives to accept patients, thereby creating a common market at the national level for elective, public health care. In 1991, before the introduction of free choice at the national level, three counties in Eastern Denmark independently introduced free choice within their own area (the study area). The counties and the Ministry of the Interior and Health published waiting time forecasts for common elective treatments at hospital level and results of biannual surveys of patients’ experience with individual hospitals (but not with individual departments). The ministry published data on individual departments’ volume for common surgical interventions as a proxy for quality on the assumption that department volume was associated with experience and thereby clinical quality. Data on other aspects of service or clinical quality at clinics was not published systematically, but some departments and medical societies published data on individual departments’ performance as part of quality development or clinical research. Methods The present study was performed in the three mixed urban/rural counties of Roskilde, Storstrøm and Vestsjælland (801,452 inhabitants on January 1 2004 in total) in Eastern Denmark. The counties in the study area provided hospital treatment at 13 public hospitals evenly distributed within the region. No point in the study area was more than 30 km from the nearest public hospital in a bee line. Each specialty represented in the study area was available at two hospitals or more, except for dermatology and plastic surgery, which were only available at one hospital each. Patients were free to choose treatment, paid by the home county, at hospitals in other Danish counties. Patients in need of care at tertiary hospitals were referred to hospitals outside the study area from the counties’ own hospitals. Each public hospital was obliged to accept any referral from any GP in any of the three counties. Patients who were entitled by law to free travel to the hospital closest to their home were offered free travel to any public hospital in the study area, thereby strengthening patients’ opportunities to utilise their freedom of choice. Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 The three counties jointly published waiting timeprognoses for common surgical procedures at hospitals within the study area. At first these prognoses were mailed to each GP on paper, later they were published on a website managed by the Danish counties and accessible to the public (www.sundhed.dk) and a national website maintained by the Ministry for the Interior and Health (www.venteinfo.dk). Departments held regular information meetings for the GPs about the interventions provided at the department and the department’s procedures. The study group included all of the 483 GPs registered as practising in the study area. The names and addresses of the GPs were found by use of the Danish counties’ website, www.sundhed.dk. The study was performed as a questionnaire study. The retrospective design was chosen to avoid influencing the GPs’ choice behaviour. The questionnaire was developed after a review of the literature [33-35] and face-to-face discussions with GPs from two of the three counties. The questionnaire was validated by interviews with three GPs: two GPs practising in a large and a small town in the study area, respectively, and one affiliated with the University of Copenhagen’s Section of General Practice. The three GPs were asked whether the questions were unambiguous, and whether the predefined answers were sufficient. The GPs’ interpretation of the questions was compared with the authors’ intentions. Based on the GPs’ responses several open and closed responses were added to the questionnaire, for example hospitals’ confirmation of reception of referrals and clinical reports to the GPs after discharge was included as a source of proxy information on waiting time. The GPs also emphasized the importance for choice of hospital of hospitals’ attitude to the GPs and the cooperation between hospital and GP, and these reasons for choice of hospital were added to the questionnaire. The final questionnaire included the following questions (Additional file 1): ! For the GP: gender and year of birth. ! For each of the latest three somatic patients referred to hospital (department or out-patient clinic) by the GP for treatment: gender, year of birth, and the specialty the patient was referred to. Who chose the hospital in the GP’s opinion (the patient, the GP or the patient’s relatives)? Which of 16 factors influenced the choice of hospital strongly in the GP’s opinion (see Table 1 for the list of factors; the GPs could tick off as many factors as they found relevant)? How many factors influenced the choice? The GP could add comments on responsibility for choice and on the 16 factors. Page 4 of 10 Table 1 Factors deciding 216 GPs’ choice of hospital on behalf of their most recent patient referred to hospital Decisive factor The department was the closest to the patient’s home The department takes the GP’s referrals seriously Number of GPs (%) 187 (85%) 60 (27%) Excellent cooperation between GP and department 56 (26%) Comments from patients referred to the department by the GP 54 (25%) The patient had been treated at the hospital before 47 (21%) The patient had been treated at the department before 44 (20%) The hospital takes the GP’s referrals seriously 44 (20%) Comments from patients referred to the hospital by the GP 41 (19%) The department provides detailed clinical reports 39 (18%) The hospital provides detailed clinical reports 33 (15%) The department sends clinical reports soon after discharge 24 (11%) The hospital sends clinical reports soon after discharge 20 (9%) The GP´s experience as a trainee at the hospital 11 (5%) The GP´s experience as a trainee at the department 15 (7%) Waiting time was shorter than at other departments 11 (5%) Total 686 Number of referrals 216 Number of factors quoted/referrals 3.2 ! For the GP: which of 15 sources of information on quality at department level did the GP in general consider most relevant (see Table 2 for the list of sources of information; the GPs could tick off as many factors as they found relevant)? How often did the GP use six specified sources of information on expected waiting time at hospital departments (routinely (4 points); often (3 points); rarely (2 points); not at all (1 point); see Table 3 for a list of the sources of information)? The GP could add comments on the sources of information on quality as well as on waiting time. A patient and a GP may share the choice of hospital [36], but our objective was to establish which person the GP considered to have the greatest influence on choice, and how they chose the hospital on behalf of patients rather than investigate shared decision-making. Therefore the GPs could not respond that they shared the decision with the patient. To increase the GPs’ response rate the questionnaire was limited to four A4-pages, the questionnaire was mailed by first-class-post, and a stamped return envelope was enclosed [37]. The questionnaire was mailed to the study group in December 2003. GPs who did not respond within a month received a single reminder. We Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 Page 5 of 10 Table 2 General practitioners’ sources of information on quality at hospital departments (number and share of 240 GPs) Source of information Number and share of respondents All GPs Patients’ comments on the department Female GPs 160 (66%) 51 (68%) Male GPs 109 (66%) Other GPs’ comments on the department 131 (54%) 42 (56%) 89 (54%) Patients’ comments on the hospital 128 (53%) 40 (53%) 88 (53%) The GP’s acquaintance with hospital personnel 91 (38%) 23 (31%) 68 (41%) Other GPs’ comments on the hospital 89 (37%) 31 (41%) 58 (35%) Official information from the department 85 (35%) 39 (52%)**** 46 (28%)**** Clinical reports from different departments 74 (31%) 23 (31%) 51 (31%) Information meetings in hospital departments 74 (31%) 23 (31%) 51 (31%) Official information from the hospital 71 (30%) 32 (42%)** 39 (23%)** The GP’s trainee experience at the hospital 54 (22%) 21 (28%) 33 (20%) The GP’s trainee experience at the department 47 (20%) 16 (21%) 31 (19%) The hospital’s description of its quality standards 7 (3%) 4 (5%) 3 (2%) The department’s description of its quality standards 6 (3%) 3 (4%) 3 (2%) Media reports about the hospital 5 (2%) 3 (4%) 2 (1%) Media reports about the department 4 (2%) 2 (3%) 2 (1%) 1,027 354 673 240 75 165 4.3 4.7 4.1 Number of sources ticked off by the GPs Number of respondents Sources/respondent **: p < 0.01. ****: p < 0.001. compared respondents and non-respondents by county, number of years since graduation (available from the Danish MDs’ Association’s “Who’s Who”) and gender (deduced from the GPs’ names). The following data was recorded: the number of patients where the hospital was chosen by the GP, the patient or the patient’s relatives. For GPs who had chosen the hospital on behalf of one patient or more we recorded the reasons for the choice on behalf of the latest patient referred to hospital, for which the GP reported that he or she made the choice. Each GP was only included once in the study of reasons for choice to avoid mutually dependent observations. Data was recorded in a database (EPIINFO Version 3.2.2. April 14, 2004). Respondents were compared with the study population by univariate analyses of gender, county (chi²) and number of years since graduation (t-test). This analysis was repeated for GPs who had chosen the hospital on behalf of at least one patient. For GPs who had chosen the hospital on behalf of one or more patients we recorded the GP’s reasons for choice on behalf of the most recent patient to minimize recall bias. GPs’ reasons for choice were compared by univariate analysis for gender (chi²) and years since graduation (t-test), and by logistic multiple regression analysis with the GPs’ gender and years since graduation as the independent variables. We tested for correlation between the number of factors for choice and the GPs’ gender and years since graduation by use of a multiple regression analysis. The GPs’ use of information sources on quality and expected waiting time at various hospitals were compared by univariate analyses for association Table 3 General practitioners’ use of various sources of information on expected waiting time at hospitals (n = 241) Source of information Routinely (4) Often (3) Rarely (2) Not at all (1) Average (1–4) Confirmations/clinical reports 45 (19%) 84 (35%) 67 (28%) 44 (18%) 2,5 The counties’ prognoses (paper) 28 (12%) 64 (27%) 73 (30%) 75 (31%) 2,2 Calls to the departments 2 (1%) 29 (12%) 141 (59%) 68 (28%) 1,9 12 (5%) 36 (15%) 78 (32%) 114 (48%) 1,8 www.venteinfo.dk 7 (3%) 31 (13%) 84 (35%) 119 (49%) 1,7 www.sundhed.dk 2 (1%) 9 (4%) 63 (26%) 166 (69%) 1,4 The counties’ prognoses (web) Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 with gender (chi²) or years since graduation (t-test) and by multiple logistic regression analysis with gender and years since graduation as the independent variables. The study was performed in accordance with the Helsinki Declaration. According to section eight in the Danish Act on a Biomedical Ethics Committee System and the Processing of Biomedical Research Projects questionnaire studies were not notifiable to the Danish research ethics committee system, if they did not include biological material [38]. Results A questionnaire was sent to the 483 GPs listed in the database. Nine of the registered GPs in the database represented data errors, reducing the study population to 474 GPs. Two hundred and forty GPs (51%) returned a filled-in questionnaire. Male and female GPs’ response rates were 50% and 54%, respectively. Respondents did not differ significantly from the study population with regard to county, gender or number of years since graduation. Responsibility for choice of hospital Among the 240 respondents 183 (76%) reported that in their view they chose the hospital on behalf of the latest patient referred to hospital, 35 (15%) reported that the patient made the choice, two (1%) reported that the patients’ relatives made the choice, and 20 (8%) did not state, who chose the hospital or ticked off several categories. Several of these GPs commented that they chose the hospital in cooperation with the patient or that the patient agreed with the GP. One GP commented that he always asked whether the patient wanted to be referred to another hospital than the one proposed by the GP, and another GP reported that he asked whether the patient wanted to be referred to a specific department. Reasons for GPs’ choice of hospital Ninety-two percent of the respondents (220 of 240) reported that they had chosen the hospital on behalf of one patient or more, while 20 GPs attributed all patients’ choice to the patients, their relatives or referral guidelines limiting free choice of hospital for the specific patients (these guidelines did not interfere with patient’ rights to choose a hospital in another county). The 220 respondents did not differ significantly from the study population with regard to county, gender or number of years since graduation. Four GPs did not tick off any reasons for choice of hospital and were excluded from this part of the study. Eighty-seven of the 216 GPs (40%) reported that a single factor decided their choice for the patient, short distance to the hospital being the decisive factor for 75 of the 87 GPs (86%). Ninety-five GPs reported that 2–5 factors were very important for their Page 6 of 10 choice, 25 quoted 6–9 factors, and nine GPs quoted ten or more factors. Short distances to hospital, the department’s serious consideration of referrals from the GP, and comments from previous patients referred to the department were the most common factors behind GPs’ choice of hospital on behalf of patients (Table 1). The importance of each factor behind choice of hospital was not associated with the GP’s gender (data not shown), and multiple regression analysis showed no significant association between the number of reasons for choice and the number of years since the GP’s graduation (β = 0.109, p = 0.26) or gender (p = 0.96). In univariate analysis of each factor and the number of years since graduation, GPs who based their choice on their personal experience with the department as employees were significantly younger (on average 20.1 years since graduation) than GPs who did not (on average 24.2 years since graduation) (p < 0.05). One GP commented that problems associated with transport and rehabilitation after hospitalisation posed greater challenges than waiting time, and therefore patients were only referred out of the county if the quality of care within the county was very bad. Sources of information on quality or service The most frequently used sources of information on quality at hospital departments were reports from patients referred to the department or the hospital by the GP previously (Table 2), and other GPs’ comments on the department. Univariate analysis showed that female GPs were significantly more likely than male GPs to consider official information from departments an important source of information, and younger GPs were significantly more likely than older GPs to quote their experience as trainees at a department (average number of years since graduation 19.2 and 25.1 respectively, p < 0.001) or a hospital (average number of years since graduation 21.4 and 24.7 years respectively; p < 0.05) or comments from patients previously referred to a department (average number of years since graduation 23.2 and 25.3 years respectively; p < 0.05) as important sources of information on quality. Multivariate analyses confirmed that there were statistically significant negative associations between the number of years after the GPs’ graduation and GPs’ utilisation of information from previously referred patients (β = −0.05; p < 0.05), and an association between gender and use of official information from the department (odds ratio 0.37; p < 0.01) or the hospital (odds ratio 0.35; p < 0.01), female GPs being more likely to quote official information as a source of information. Multivariate analysis found no association between GPs’ age or gender and their quoting experience from employment at department or hospital as sources of information on quality (data not shown). Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 One GP commented pointedly that she spent her scarce time on the patients rather than reading official information about quality at various departments. Several GPs repeated in their response to this question their answers to another question that previous patients’ reports were the most important sources of information on quality, two GPs underscoring that they attributed greater weight to 20 years’ experience with a hospital than to the hospital’s description of its quality, one GP contrasting “action” with “words”. The hospitals’ letters of confirmation of referrals were the GPs’ most important source of information on waiting times (Table 3). Information available from websites was used less often than information on paper. Univariate analysis found no association between GPs’ age or gender and their utilisation of various sources of information, but multiple, logistical regression analyses showed that male (p < 0.01) and younger GPs (p < 0.01) were especially likely to use the counties’ waiting time prognoses on the internet. Eight GPs reported that they often asked patients to call the county’s patient advisor to discuss which department they would like to be referred to, one GP adding that in some cases she recommended accepting a long waiting time if the department was an especially good one. One GP commented that in her opinion it was a task for the hospital to inform the patients about waiting times, while another GP had delegated collecting of and information about data on waiting times to her secretary. Two GPs reported that if patients wanted a shorter waiting time, they asked the patients to look for waiting time data elsewhere. One GP likewise stated that she informed the patient about the right to free choice but asked them to investigate the opportunities on their own. One GP reported that she did not use any official information about expected waiting times, because waiting time prognoses were outdated as early as at the time of publishing. Several GPs described an intention to utilize data on the web in the future, although some GPs found that utilization of data on the internet was a very time consuming and complicated process. One GP found that calling departments likewise was time consuming because it usually took a long time to find somebody who could answer questions on expected waiting time. Discussion Responsibility for choice of hospital In the present study the GPs reported that they chose the hospital on behalf of 76% of patients. This result appears to contradict results from national Danish surveys of patients’ experience with hospitals: in 2004 46% of in-patients treated in the study area reported, that they chose the hospital; among elective in-patients 89% Page 7 of 10 were aware before being hospitalised that they were free to choose, and 52% of these patients chose the hospital by themselves [26]. The divergent findings may be interpreted as an indicator of shared decision making. When 30% of patients reported that their GP’s recommendation influenced their own choice of hospital [26], the GPs may have perceived that they chose the hospital on behalf of the patient. The results indicate that patients choose the hospital to a lesser degree than policy makers (politicians and administrators) want them to do to improve management of the public health care sector by introducing a proxy for the market mechanism. Other studies have found that GPs appear to question whether choice is valuable to patients [29], and whether patients really want to choose the hospital [4]. GPs’ choice behaviour varies by GP [29] and by the patients’ diagnoses [39], English GPs being more likely to offer choice to patients, who are in need of a routine intervention, elective patients, and patients who are relatively healthy [4]. One study distinguished between ‘choice enthusiasts’, ‘choice sceptics’ and ‘choice paternalists’ [29]. The present study did not enable us to divide GPs into such subgroups, but confirming results from other studies [4,30] several GPs expressed reluctance to provide advice to patients, because they did not consider this task a part of their job [30,40]; considered this task too timeconsuming for a consultation [4], or distrusted data published by the providers [29] and wanted to forestall blame for presenting faulty data [23]. This behaviour may reflect an attempt to minimize the length of each visit to the GP. However, at a more general level GPs’ behaviour may reflect a ‘logic of care’ rather than a ‘logic of choice’ [41] - GPs making choices based on their professional views on patients’ needs and wants, rather than as agents acting in a market place enabling patients to make informed choices in line with the neoclassical standard model. Factors determining GPs’ choice of hospital on behalf of patients Short distance to hospital was the most important factor behind GPs’ choice of hospital. Numerous other studies of GPs’ actual referral pattern and patients’ choices in structurally different health care systems likewise indicate that short distance strongly influences patients’ and GPs’ choice of hospital [26,33,42]. Studies of GPs’ hypothetical referrals and patients’ hypothetical choices have led to other results with GPs emphasizing the importance of short waiting time and the GP’s impression of quality at the alternative departments [35,43], while patients facing a hypothetical choice emphasized the importance of data on structure quality and attributed little weight to waiting time [44]. Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 Different findings in studies of GPs’ and patients’ choice behaviour may reflect differences between how GPs and patients think they ought to choose the hospital and how they actually make the choice, one study finding significant differences between GPs’ response to hypothetical case stories and their actual referral pattern [45]. Another reason could be international institutional differences with regard to subsidization of transport costs and the length of waiting times. The small influence of waiting time on choice may be considered to be remarkable, as the media and politicians at the national level consistently focus on waiting times as a major performance measure and challenge, but other studies of choice of hospital likewise found only a small influence of waiting time on choice. Cataract patients generally accepted waiting times of three months and less, while waiting times of six months or more were perceived as too long [46,47]. In a hypothetical study patients reported that for each additional hour of travel time they would, on average, require a reduction of in the waiting time of 2.3 months [48]. The results of these studies and the present study may partly explain why differences between waiting times at hospitals persisted more than a decade after the introduction of free choice of hospital, but they may also reflect, that a minority of patients are treated as elective patients. In the present study we focused on the influence of GPs’ sources of information about departments/hospitals and factors commonly found to influence the GPs’ choices. However, GPs’ choices on behalf of patients may be influenced by other agendas independent of the individual patient, i.e. GPs may refer patients to a local hospital to contribute to its continuing existence [30]. GPs’ use of sources of information on quality and service In the present study GPs were less likely to use official information on quality and waiting time than proxymeasures from informal sources like their own and other GPs’ and patients’ experience with regard to quality and waiting time. This result was consistent with other studies of GPs’ or patients’ utilisation of sources of information, which have found very little utilisation of such sources [49] and refer to GPs as having “a sort of ‘mental filing cabinet’ of informal information or soft intelligence”[28]. The GPs’ experience with cooperation with various departments or hospitals was very important for the GPs’ choice. GPs’ responses indicated that their experience with specific departments was the most important factor, but many GPs attributed their choice to their experience with a hospital in general rather than the individual department, thereby indicating that they generalised their experience from one or more departments at a hospital to other departments at the hospital as a whole – a kind of ‘halo’-effect. Page 8 of 10 The strong influence of informal data sources like patients’ previous experience on choice and advice on choice may reflect lack of official information on quality or waiting time or that GPs are suspicious of published data on performance, viewing such data as “spin” [29]. Several respondents commented that use of web-based information was too time-consuming compared to data on paper; their memory of previous referrals, and asking the patient to call one or more hospitals or the county’s patient’s advisors for information. Some GPs wrote that they intended to use web-based information more in the future. Such statements may reflect expectations that more experience and improved IT will ease their access to the web or lack of experience. When the present study was performed approx. 86% of Danish general practices had access to the internet, and a little less than half of the practices used the access each day [50]. Implications Further research is warranted on the interaction between GP and patient in choice of hospital, preferably by direct observation of the referral process followed by interviews with the GP as well as the patient about their views on the referral process including their experience of responsibility for the choice. The findings in the present study support results from studies of patients’ choice behaviour which indicate that patients and their agents do not act as the autonomous customers assumed in market-resembling models for management of the public sector. When agents act on patients’ behalf they tend to utilise informal sources of information – even when systematically collected and published information on service is available. One implication of the major influence of previous experience with hospital departments may be a tendency to inertia in referral patterns. Limitations of the study The response rate in the present study was 52%, which appears to be quite normal for studies performed in general practice. The choice of study method meant that we did not observe the process of choice, and only reasons we were aware of beforehand were included in the study, but the questionnaire was validated, and the respondents were offered the opportunity to comment on the reasons and did not refer to reasons not mentioned in the questionnaire. The respondents could report any number of reasons and we did not ask them to quantify the importance of each reason, because this would complicate the data collection and probably reduce the response rate. We assumed that the cumulative importance of a reason for Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 choice of hospital was proportional to the frequency it was quoted by the GPs, but this may not necessarily be the case: a comparison of two Dutch studies published recently may indicate that frequency of reporting may give results which differ from estimations of importance by way of a choice experiment [25,44]. Respondents did not differ from non-respondents with regard to age, gender or county, but GPs with a stronger than average interest in subjects concerning choice of hospital may be especially likely to participate in the study. Therefore the study may exaggerate the impact of each individual factor on choice of hospital. Usually studies should be performed prospectively to reduce bias, but in the present study we chose a retrospective design in order not to influence the GPs’ choice behaviour. Our choice of design increased the risk of recall bias, and the GPs may have reported factors which they thought ought to have influenced their choices rather than the decisive factors. For example GPs may have hesitated to quote media reports as an important source of information. GPs probably are very conscious about their use of some sources of information like websites, while the importance of some sources may be underestimated, because their utilisation is more nebulous, like feedback from patients or media reports. Presumably patient characteristics influenced the GPs’ choices but not their willingness to participate. Therefore patient characteristics presumably did not introduce bias in the study. The study included a large number of statistical tests. Some of the statistically significant associations in univariate analysis may be due to mass significance rather than causality. The study was performed thirteen years after the introduction of free choice of public hospital within the study area and eleven years after the introduction of free choice of public hospital at the national level. Patients’ awareness of their right to choose was high. Therefore, even though the study was performed at a specific time in the process of introducing free choice of hospital, we find it most likely that studies performed a few years before or after the present study would not have led to results which were very different from those of the present study. Conclusions In an area with free choice of public hospital GPs strongly influenced patients’ choice of hospital by choosing the hospital on their behalf. Short distance to hospital was the factor which most frequently decided the GP’s choice of hospital on behalf of patients. GPs focused on informal sources like feedback from patients and colleagues and their experience with cooperation with the department or hospital, attaching little weight Page 9 of 10 to official information on quality and service (waiting time) at hospitals or departments. Additional file Additional file 1: The questionnaire. The questionnaire used for collecting data for the present study. Competing interests The authors declare that they have no competing interests. Acknowledgements The present study was supported and financed by Roskilde County, Region Zealand, ” The Health Research Forum in East Denmark, Research Programme for Promotion of Regional Cooperation on Medical Research” and ” The Health Research Foundation of the Counties in Eastern Denmark (Region 3)”. Authors’ contributions Both of the authors conceived and designed the study; HOB developed the questionnaire, collected and analysed the data and wrote the manuscript. LOH assisted in writing the manuscript. Both authors read and approved the final manuscript. Received: 10 October 2011 Accepted: 25 May 2012 Published: 25 May 2012 References 1. Winblad U, Ringard A: Meeting rising public expectations: the changing roles of patients and citizens. In Nordic health care systems. Recent reforms and current policy challenges. Edited by Magnussen J, Vrangbæk K, Saltman RB. Maidenhead: Open University Press; 2009. 2. Le Grand J: Motivation, agency, and public policy. Of Knights & Knaves, Pawns & Queens. Oxford: Oxford University Press; 2003. 3. Vrangbæk K, !stergren K: Patient empowerment and the introduction of hospital choice in Denmark and Norway. Health Econ Policy Law 2006, 1:371–394. 4. Dixon A, Robertson R, Appleby J, Burge J, Devlin N, Magee H: Patient choice. How patients choose and providers respond. London: The King’s Fund; 2010. 5. Perry G: Giving consumers of British public services more choice: what can be learned from recent history? J Soc Policy 2003, 32:239–270. 6. Thomson S, Dixon A: Choices in health care: the European experience. J Health Serv Res Policy 2006, 11:167–171. 7. Dowding K, John P: The value of choice in public policy. Public Administration 2009, 87:219–233. 8. Wilmot S: A fair range of choice: justifying maximum patient choice in the British National Health Service. Health Care Anal 2007, 15:59–72. 9. Porter ME, Teisberg EO: Redefining Health Care. Creating value-based competition on results. Cambridge: Harvard Business School Press; 2006. 10. Appleby J, Harrison A, Devlin N: What is the real cost of more patient choice. London: King’s Fund; 2003. 11. Vrangbæk K: The interplay between central and sub-central levels: the development of a systematic standard based programme for governing medical performance in Denmark. Health Econ Policy Law 2009, 4:305–327. 12. Tai-Seale M: Voting with their feet: patient exit and intergroup differences in propensity for switching usual sources of care. J Health Polit Policy Law 2004, 29:491–514. 13. Le Grand J: Choice and competition in publicly funded health care. Health Econ Policy Law 2009, 4:479–488. 14. Hirschman Bernstein AB, Gauthier AK: Choices in health care: what are they and what are they worth? Med Care Res Rev 1999, 56:5–23. 15. Bernstein AB, Gauthier AK: Choices in health care: what are they and what are they worth? Med Care Res Rev 1999, 56:5–23. 16. Martinsen DS, Vrangbæk K: The Europeanization of health care governance: implementing the market imperatives of Europe. Public Administration 2008, 86:169–184. 17. Fotaki M, Roland R, Boyd A, McDonald R, Scheaff R, Smith L: What benefits will choice bring to patients? Literature review and assessment of implications. J Health Serv Res Policy 2008, 13:178–184. Birk and Henriksen BMC Health Services Research 2012, 12:126 http://www.biomedcentral.com/1472-6963/12/126 18. Marshall MN, Shekelle PG, Leatherman S, Brook RH: The public release of performance data: what do we expect to gain? A review of the evidence. JAMA 2000, 283:1866–1874. 19. Akerlof GA: The market for “lemons”. Quality uncertainty and the market mechanism. Q J Econ 1970, 84:488–500. 20. Arrow KJ: Uncertainty and the welfare economics of health care. Am Econ Rev 1963, 53:941–973. 21. Loomes G, Sugden R: Regret theory: an alternative theory of rational choice under uncertainty. Econ J 1982, 92:805–824. 22. Bell D: Regret in decision making under uncertainty. Oper Res 1982, 30:961–981. 23. Barnett J, Ogden J, Daniells E: The value of choice: a qualitative study. Br J Gen Pract 2008, 58:609–613. 24. Rosen R, Curry Florin D: Public views on choices in health and health care. London: King’s Fund; 2005. 25. Djis-Elsinga J, Otten W, Versluijs MM, Smeets HJ, Kievit J, Vree R, van der Made WJ, Marang-van de Mheen P: Choosing a hospital for surgery: the importance of information on quality of care. Med Decis Making 2010, 30:544–555. 26. !sterbye T, Gut R, Blæsbjerg C, Freil M: Patienters oplevelser på landets sygehuse 2004 [in Danish: Patients’ Experience at Danish Hospitals 2004]. Glostrup: Enheden for Brugerundersøgelser; 2005. 27. Department of Health: Report on the National Patient Choice Survey. February 2010 England [online]. Available at http://www.dh.gov.uk/prod_consum_dh/ groups/dh_digitalassets/documents/digitalasset/dh_117096.pdf [homepage on the Internet] [cited on 1 April 2012]. 28. Burge P, Devlin N, Appleby J, Gallo F, Nason E, Ling T: Understanding patients’ choices at the point of referral. Cambridge: RAND Europe; 2006. 29. Rosen R, Florin D, Hutt R: The anatomy of GP referral decisions. A qualitative study of GPs’ views on their role in supporting patient choice. London: King’s Fund; 2007. 30. Wiinblad U: Do physicians care about patient choice? Soc Sci Med 2008, 67:1502–1511. 31. Strandberg-Larsen M, Nielsen MB, Vallgårda S, Krasnik A, Vrangbæk K, Mossialos E: Denmark: Health system review. Health Syst Transit 2007, 9(6):1–164. 32. Vrangbæk K: Markedsorientering i sygehussektoren [in Danish: Market orientation in the hospital sector]. PhD-thesis. Copenhagen: Institute of Political Science, University of Copenhagen; 1999. 33. Mahon A, Whitehouse C, Wilkin D, Nocon A: Factors that influence general practitioners’ choice of hospital when referring patients for elective surgery. Br J Gen Pract 1993, 43:272–276. 34. Odell A: A study of patient referrals. Publ Hlth Lond 1983, 97:109–114. 35. Kennedy F, McConnell: General practitioner referral patterns. J Public Health Med 1993, 15:83–87. 36. Ringard A, Rico A: Introducing patient choice of hospital in National Health Systems – A comparison of the UK and Norway. Working Paper. Oslo: Health Organization Research Norway (HORN); 2006. 37. Edwards P, Roberts I, Clarke M, DiGuiseppi C, Pratap S, Wentz R, Kwan I: Increasing response rates to postal questionnaires: systematic review. BMJ 2002, 324:1183–1191. 38. Lov om et videnskabsetisk komitésystem og behandling af biomedicinske forskningsprojekter [in Danish: Act on a Biomedical Ethics Committee System and the Processing of Biomedical Research Projects]. Available in English from: http://www.cvk.sum.dk/English/actonabiomedicalresearch.aspx [homepage on the Internet] [cited on 1 April 2012]. 39. Ringard Å: Why do general practitioners abandon the local hospital? An analysis of referral decisions related to elective treatment. Scand J Public Health 2010, 38:597–604. 40. Dixon A, Robertson R, Bal R: The experience of implementing choice at point of referral: a comparison of the Netherlands and England. Health Econ Policy Law 2010, 5:295–317. 41. Mol A: The logic of care. Health and the problem of patient choice. Abingdon: Routledge; 2008. 42. de Mheen PJ Marang-van, Dijs-Elsinga J, Otten W, Versluijs M, Smeets HJ, Vree R, van der Made WJ, Kievit J: The relative importance of quality of care information when choosing a hospital for surgical treatment: a hospital choice experiment. Med Decis Making 2011, 31:816. 43. Adams EK, Wright KE: Hospital choice of Medicare beneficiaries in a rural market: why not the closest? J Rural Health 1991, 7:134–152. Page 10 of 10 44. McArdle PJ, Whitnall M: The referral practice of general medical practitioners to the surgical specialties: implications for the future. Br J Oral Maxillofac Surg 1996, 34:394–399. 45. Morrell DC, Roland MO: Analysis of referral behaviour: responses to simulated case histories may not reflect real clinical behaviour. Br J Gen Pract 1990, 40:182–185. 46. Conner-Spady B, Sanmartin C, Johnston G, McGurran J, Kehler M, Noseworthy T: Willingness of patients to change surgeons for a shorter waiting time for joint arthroplasty. CMAJ 2008, 179:327–332. 47. Dunn E, Black C, Alonso J, Nørregaard JC, Anderson GF: Patients’ acceptance of waiting time for cataract surgery: what makes a wait too long? Soc Sci Med 1997, 44:1603–1610. 48. De Groot IB, Otten W, Smeets HJ, Marang-van de Mheen PJ: Is the impact of hospital performance data greater in patients who have compared hospitals? BMC Health Serv Res 2011, 11:214. 49. Burge P, Devlin N, Appleby J, Rohr C, Grant J: Do patients always prefer quicker treatment?: a discrete choice analysis of patients’ stated preferences in the London Choice Project. Appl Health Econ Health Policy 2004, 3:183–194. 50. Praksistælling 2003 [in Danish: ” General Practices in 2003”]. Copenhagen: The Danish General Practitioners Organisation; 2003. doi:10.1186/1472-6963-12-126 Cite this article as: Birk and Henriksen: Which factors decided general practitioners’ choice of hospital on behalf of their patients in an area with free choice of public hospital? A questionnaire study. BMC Health Services Research 2012 12:126. Submit your next manuscript to BioMed Central and take full advantage of: • Convenient online submission • Thorough peer review • No space constraints or color figure charges • Immediate publication on acceptance • Inclusion in PubMed, CAS, Scopus and Google Scholar • Research which is freely available for redistribution Submit your manuscript at www.biomedcentral.com/submit
© Copyright 2026 Paperzz