Third World Quarterly, Vol. 25, No. 2, pp. 385–404, 2004 When ‘development’ devastates: donor discourses, access to HIV/AIDS treatment in Africa and rethinking the landscape of development PERIS S JONES ABSTRACT If globalisation is the mighty tremor shaking the landscape of the ‘project of development’, then, in certain regions of the world, HIV/AIDS is surely its epicentre. Nonetheless, for all the burden of the disease, Western donor policy on HIV/AIDS still remains largely silent about the provision of anti-retroviral treatment. This paper seeks explanations for this pervasive medical neglect and donor preference for prevention programmes over treatment. The postcolonial approach taken in the paper is to regard donor policy on HIV/AIDS—as illustrated by the UK’s Department for International Development and the Norwegian Agency for Development Co-operation—as cultural and political exchanges framed by prevailing representations of Africa. The different ‘logics’ which skew policies towards prevention are identified. For donors and African states alike, HIV/AIDS policies—like development interventions more generally— would benefit immensely by foregrounding the human right to health, including, critically, promoting treatment within a genuine ‘prevention–care–treatment’ policy continuum. What is it about Africa that allows the world to write off so many people—to make people expendable—when all the money needed is found for war on Iraq? Is it so overwhelming? Have wealthy countries simply washed their hands of Africa? Is it too far away? Is it subterranean racism? (Stephen Lewis, United Nations Special Envoy for HIV/AIDS in Africa, Mail and Guardian, 29 November–5 December, 2002) By the beginning of the 21st century, if globalisation is the mighty quake shaking the landscape of the ‘project of development’—in both its practice and theorising—then, in certain regions of the world, HIV/AIDS is surely the epicentre. The processes associated with globalisation, and especially in its current form of global misgovernance (Stiglitz, 2002; Pieterse, 1998; Schuurman, 2000), are at the vanguard of a rapidly (re)emerging ‘ill-health curtain’, drawn between the ‘First’ and ‘Third’ Worlds, and replete with stark differences in life expectancy and with rising infant mortality a feature of many African countries (Heywood, Peris S Jones is a Research Fellow, South Africa Programme, at the Norwegian Centre for Human Rights, PO Box 6706, St Olavs Plass, NO-0130 Oslo, Norway. Email: [email protected]. ISSN 0143-6597 print/ISSN 1360-2241 online/04/020385-20 2004 Third World Quarterly DOI: 10.1080/0143659042000174879 385 PERIS S JONES 2002a: 218; UNDP, 2002).1 HIV/AIDS’ devastating burden of disease not only reinforces a geography of global inequality, it also reverberates across all development initiatives (see UNAIDS/WHO, 2002; Barnett & Whiteside, 2002; Third World Quarterly, Special Issue, 23 (2) 2002; Booker & Minter, 2001). While the epidemic demands an appropriate commensurate multisectoral pooling of knowledge and resources from the local to the global (UNAIDS, 2002; UNGASS, 2001), it is particularly noticeable that access to treatment for HIV/AIDS has hitherto been forgone as a serious policy option by most international donors. Although these drugs have been shown to extend life and are considered by the World Health Organisation (WHO) Action Programme as ‘essential’ and an integral dimension of fulfilling the right to health, Western donor policy on HIV/AIDS remains largely silent about their provision and much more preoccupied with preventative programmes (Panos, 2000).2 The silence becomes deafening when we consider WHO estimates, that, of the 4 100 000 people in Africa in urgent need of anti-retroviral therapy (henceforth ART)3 only 50 000, or 1%, receive treatment for HIV/AIDS (WHO, 2002). Moreover, there is also growing evidence of the inadequacy of prevention programmes (with the notable exceptions of Thailand, Senegal, Uganda and Cuba) to halt the spread of the disease (Campbell & Williams, 2001: 135; Campbell, 2003). These predominant donor policy positions certainly have their counterpoint in the severe constraints African countries face in their resource allocations, as well as in the artificially high prices for ART which are imposed by the specific political economy of the pharmaceutical industry and its patent protection (Heywood, 2002a; Thomas, 2002). There are also variable levels of effective response of African governments to the disease, which, in the case of South Africa’s reticence, for example, as Campbell and Williams (2001) note, has actually served to exacerbate Western donor ‘ownership’ of hiv prevention programmes. Certainly, therefore, African states also have corresponding obligations to fulfil human rights-based approaches to the epidemic. And, it is, of course, also noted here that more is involved than simply prescribing drugs. There is a need for adequate health infrastructure, and skilled health personnel to enable regular consultations for patients, testing of viral load and cd4 cell counts, and also testing for drug resistance, in order to check if they are working properly (Barnett & Whiteside, 2002: 44). Although contributory factors, none of these adequately explain the policy choices that are made by donors with existing resources, nor the reluctance to mobilise new resources.4 After all, the HIV/AIDS epidemic has involved as much a battle of ideas as a battle about bodies, organisms and cells (Cameron, 2001). As a result, policy choices can be considered as informed by, and situated within, prior cultural interpretations of the disease (Craddock, 2000). Without being seen in this light, we can not account for what restricted access to treatment says more generally, as Stephen Lewis suggests in the quotation above, about the tendency to ‘write off’ Africa, rendering its inhabitants apparently ‘expendable’. It follows, therefore, in this paper that, in addition to its political economy, the struggle to extend access to HIV/AIDS treatment—like ‘development’ itself— should be considered as cultural and political exchanges. Seen in this way, the 386 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA so-called ‘postcolonial’ and ‘post-development’ inquiries can provide additional complementary insights into the specific ‘rationalities’ setting the parameters of donor responses. This literature is comprised of many diverse influences and directions but is nonetheless broadly concerned with the ethics of North–South relations. It argues that the construction of these relations is premised upon representations of the North as the privileged centre of knowledge, authority and power, representations which exclude the voice of the excluded subaltern, or ‘Other’. ‘Post-development’ perspectives reflect a more specific disenchantment with and critique of modernist development practices and therefore can be considered as also reverberating around the terrain of development (Crush, 1995; Simon, 1998; Bell, 1994, 2002; Bell & Slater, 2002; Blaikie, 2000; Pieterse, 1998). With donor silence on ART regarded as ‘demeaning, insulting and disempowering’ (Cameron, 2001), the struggles surrounding access to treatment speak directly to postcolonial and post-development issues and vice versa. Indeed, we can liken these struggles over treatment to broader Western geopolitical intrigues in the ‘Third World’, and to what Mbembe (2002) suggests is ‘the ultimate expression of imperial sovereignty [which] seems to reside, to a large extent, in the power and the capacity to dictate who may live and who must die’. This article is principally concerned with explaining donor rationalisation of its position on treatment. However, in light of this, the article also informs the broader so-called ‘impasse in development’ and suggests possible directions for a reconstituted terrain of the ‘project of (post)development’. In order to arrive at a position that allows a more integrated response to HIV/AIDS along a prevention–treatment continuum, the paper discusses the following issues. First, it begins by providing a brief overview of the meaning of the right to health in the context of the formidable challenges to sub-Saharan Africa’s ‘crisis’. Second, a dynamic approach is then taken by focusing upon the cartographic imagery of Africa and how representations of ‘crisis’ actually frame development interventions. To this end, the postcolonial enquiry proffers a more subtle view of Africa’s ‘crisis’, as also intimately connected to ‘Western’ interpretations of its peoples and landscape. In particular the role of ‘othering’— that is the mobilisation of cultural and racial differences—will be looked at in relation to how this may inform the discursive cues donors take in relation to Africa. Third, donor policy priorities towards HIV/AIDS are illustrated through reference to the key UK Department for International Development’s (DFID) policy documents, as well as those of the Norwegian Agency for Development Co-operation (NORAD). Several themes emerge which construct what is deemed developmentally ‘feasible’ for Africa. This developmentalist position is reinforced by consideration of specific issues, including the opportunity cost of treatment, equity in treatment, and sexual behaviour. These issues contribute to what is termed an ‘optic of developmentalism’, skewing policy away from treatment towards prevention. These rationalities are considered therefore as ‘framing’ policy responses. The article is written in the spirit of reconstituting rather than rejecting the ‘project of development’. As such, it is more in line with post- rather than anti-development perspectives in so far as post-development theory and practice 387 PERIS S JONES ‘does not deny globalization or modernity but wants to find ways of living with it and imaginatively transcend it’ (Hoogvelt, 1997: 18). It should be obvious that HIV/AIDS is considered an issue that calls for more not less intervention to meet urgent material needs. Such intervention, however, must nonetheless consider these more critical approaches in order to expose the ‘optic’s’ developmental and ethnocentric gaze. Vulnerability to HIV/AIDS and the right to health Of the 42 million adults and children estimated to be living globally with at the end of 2002, a staggering 95% were located within the so-called ‘Third’ World. More specifically, 29.5 million—70%—were in sub-Saharan Africa (UNAIDS/WHO, 2002). Interpreting how and why an entire region should be so vulnerable to HIV/AIDS is a necessary prelude to understanding the motivations underpinning donor intervention. In the first decade of the 21st century one is hard pressed to envisage a more stark marker of the fundamental differentials between (and within) regions than glaring contrasts in health. Decades after decolonisation from the former European colonial powers, it is almost impossible to comprehend that a number of countries in sub-Saharan Africa have actually witnessed a dramatic reversal in developmental fortunes, as reflected, in part, in the plummeting life expectancy of inhabitants. Sub-Saharan Africa is characterised by the UN as: HIV/AIDS currently the worst-affected region, where HIV/AIDS is considered a state of emergency which threatens development, social cohesion, political stability, food security and life expectancy and imposes a devastating economic burden, and that the dramatic situation on the continent needs urgent and exceptional national, regional and international action. (UNGASS, 2001: 2) HIV/AIDS generates poverty, contributes to famine, consumes both household and government resources, and induces regional instability, as well as the social exclusion and discrimination associated with its stigma (UNAIDS/WHO, 2002). This anti-development must surely call into question the ability of donor policy in its existing form to achieve the eight Millennium Development Goals. Five of these goals—halving poverty (as defined by those living on less than US$1 a day); universal primary education; eliminating gender disparity in primary and secondary education; reducing the under-five mortality rate by two-thirds; and, above all, halting and reversing the spread of HIV/AIDS, malaria and other diseases threatening humanity—are to be achieved by 2015. Vulnerability to HIV/AIDS reflects ‘the lack of power of individuals and communities to minimise or modulate their risk of exposure to HIV infection and, once infected, to receive adequate care and support’ (Gruskin & Tarantola, 2001, emphasis added). Minimising vulnerability is therefore directly related to realising both political, civil, social and economic rights. At the same time, HIV/AIDS appears to render the fulfilment of social and economic rights, which includes the right to health, even more of a distant dream. These social and economic rights are entrenched across a range of human rights instruments (such as covenants and treaties). With regard to achieving 388 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA freedom from want, ‘health is a fundamental human right indispensable for the exercise of other human rights’ (International Convenant on Economic, Social and Cultural Rights (CESCR), General Comment 14), and is itself also dependent upon those other rights (such as the right to housing, water, etc). Article 12 of the CESCR recognises ‘the right of everyone to the enjoyment of the highest attainable standard of physical and mental health’. These are but part of a considerable array of international human rights law developed in the past three decades which gives specific substance to rights in the form of standards that elaborate the rights and map out the corresponding obligations of states (Eide, 2003). Rather than discussing the contested terms of their evolution, discourse and machinery, the fundamental point of relevance here is to note the failure of international human rights covenants to influence state (and private) practice in relation to the promotion of the right to health in the context of globalisation (Heywood, 2002a; Evans, 2002). This is in part, according to Eide, because economic globalisation and the project to universalise human rights seem to be running on different tracks (Eide, 2003). Moreover, ‘the success of the post-war project to place human rights at the centre of global politics has been very limited, most notably in the attempt to secure acceptance of socio-economic rights as legitimate claims’ (Evans, 2002: 213). This limited success is, in particular, a consequence of what Evans regards as the dominance of a liberal consensus on human rights. One result has been to effect a bias towards civil and political rights rather than social and economic rights. It is not so much that globalisation and rights run on different tracks, therefore, as that human rights having been commandeered by this liberal project in order to lend support to free market economics and the freedom to create wealth, as embodied in the values of the World Trade Organization (WTO). The outcome has been the downgrading of social and economic rights to the status of mere aspirations and the widespread failure to realise freedom from want (Evans, 2002). Nonetheless, at the beginning of the 21st century there does appear to be an emerging dialogue on human rights and economic activities (Eide, 2003: 261).5 There is little doubt that some of Africa’s external challenges with regard to economic globalisation are formidable (see Zack-Williams, 2002; Hoogvelt, 2002). Debt repayments, for example, as noted by Cheru (2002), exceed the amount proposed by UNAIDS for the Global Fund to fight HIV/AIDS, malaria and tuberculosis. The introduction of user fees related to the ‘cost recovery’ of structural adjustment is therefore another obvious factor in undermining the right to health, and other rights in the CESCR (Narayan, 2000). Suffering from growing poverty and worsening nutrition (itself associated with biological conditions enhancing susceptibility to infection), the poor, already on the margins of survival, have little control over health and other costs (Poku, 2002). Indeed, other tangible effects of economic globalisation concern the organising rules of the international trade system, and the pricing of and access to essential life sustaining drugs in the treatment of HIV/AIDS. Drugs patented by multinational pharmaceutical corporations have been shown to be far more expensive than generically manufactured drugs (Panos, 2000; Oxfam, 2002). The high price of ART has recently been the target of unprecedented international 389 PERIS S JONES mobilisation to get it reduced and made more accessible to the millions who need ART. According to Thomas (2002: 252, 253), for example, ‘Despite the denials of pharmaceutical companies, the fact is that differential access to ARV drugs because of cost contributes to the uneven global experience of HIV/AIDS’. This has been called ‘global apartheid’ by Booker (2001). The widespread activist mobilisation against pharmaceutical profiteering has put access to treatment at the forefront of combating the disease. It has therefore contributed greatly to decreasing prices at the same time as galvanising global dialogue and action regarding HIV/AIDS more generally. The availability of essential drugs, as defined by the WHO Action Programme, is an integral dimension of the right to health, whose core content includes treatment, control of epidemics, as well as prevention (Article 12 2c, CESCR; UN Economic and Social Council, CESCR, General Comment 14; UN Commission on Human Rights Resolution 2001/33). Recently the UN General Assembly Special Session on HIV/AIDS also identified a specific role for medication by ‘recognizing that access to medication in the context of pandemics such as HIV/AIDS is one of the fundamental elements to achieve progressively the full realization of the right of everyone to the enjoyment of the highest attainable standard of physical and mental health’ (UNGASS, 2001: 3). Yet treatment remains severely restricted. On one level, the predominant policy position is morally unacceptable, and a flagrant denial of the fundamental human right—the right to life for those infected and affected. On another level it does not even reflect a logical policy approach, as we will explore later in the article. The complex causes of and manifestations associated with the HIV/AIDS epidemic seemingly invite commensurate comprehensive and multi-layered policy responses to the epidemic. This should reflect an integrated approach wherein prevention, care, support and treatment are seen as mutually reinforcing and equally valid (UNGASS, 2001: 3; Panos, 2000). But is this an approach taken onboard by donors? Before turning to these donor policies we need first to situate them within the broader terrain of the ethics of North–South relations. The knowledge produced concerning these relations is critical not only to how we understand the ‘African crisis’, but to how we then use it to construct a vantage point from which to intervene. Interpreting the African crisis: the postcolonial inquiry Prevailing interpretations of the African crisis are particularly important, given that, not least, these interpretations inform the discursive cues which prime international donor (including HIV/AIDS) policies. The link between knowledge and power is evident in that the land and peoples of Africa have been represented and constructed in particular ways for the Western reading public, especially from the late 19th century (and further back (Mudimbe, 1994)) to the present. The Victorian metaphor of the ‘Dark Continent’, according to Jarosz (1992: 105), ‘identifies and incorporates an entire continent as Other, as a negatively valued foil for western notions of superiority and enlightenment’. While this metaphor has been used in a variety of manners by explorers, missionaries, travellers and literary authors it nonetheless rests upon a duality of 390 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA dark/light, Africa/West. Africa was constructed or invented by Europeans and Americans as ‘demanding’ imperialisation based on the moral, religious and scientific grounds of the so-called ‘civilizing mission’ (Brantlinger, 1985: 167). The metaphor of the ‘Dark Continent’ is not therefore merely concerned with communicative function. It is laden with political undertones in that it depicts relations between coloniser and the colonised as deemed necessary in order to penetrate the ‘pall of darkness’ (Jarosz, 1992; Brantlinger, 1985: 198). As a mode of enquiry, the postcolonial (and to some extent ‘post-development’) approaches are particularly useful for exposing ethnocentric orientations in the analysis of the ‘developing world’. Of particular significance for post-World War Two development discourse and practice is how such metaphors as the ‘Dark Continent’, the ‘Orient’ persist. More generally, they are bound up, according to Bell, with a ‘combination of moral concern and fascination with the exotic [which] forms the basis of our geographical imagination and continues to underlie much contemporary interest in non-Western societies’ (Bell, 1994: 193). To what extent are interpretations of Africa’s contemporary crisis filtered through these historical understandings and representations of the ‘Dark Continent’? Our readings of Africa’s ‘crisis’— whether related to economic or political instability—tend, following Chabal (1996), all too readily to ascribe motives and characteristics and claims of ‘Africanness’ to explain away contemporary predicaments. This is not merely a simplistic denial of the continent’s profound challenges. Rather, it is a call to place Africa’s ‘failures and frailties’ in the context of an ‘analysis based on the degree of conceptual clarity and range of historical knowledge which we would deem suitable for the understanding of the politics of our own societies (Chabal, 1996: 32). Africa is interpreted through the ‘politics of the mirror’, which is not only an historical product of the West’s imagination but, moreover, occurs at a time when the West grapples with its own sense of identity (Chabal, 1996). The continent has been incorporated into Western thought in order to bestow a positive identity on the West itself. The ‘postcolonial inquiry’ therefore seeks to destabilise these prevailing representations and accepted wisdom through interrogating the manner in which spatial metaphors and temporality are embedded in Western discourses, thus rewriting the hegemonic accounting of time (history) and the spatial distribution of knowledge (power) that constructs the ‘Third World’ (McEwan, 2001: 2). The postcolonial critique is directed at de-centring Northern dominance and reclaiming alternative subaltern voices silenced in meta-narratives associated with Northern representations of the ‘Other’ of the so-called ‘Third World’ (Said, 1978; Mudimbe, 1994). Multi- and bilateral development interventions are also subject to these critiques which attempt to show why many development projects—like the ones directed towards dealing with HIV/AIDS—do not succeed (see Escobar, 1995; Sachs, 1992). I wish to leave aside Chabal’s claim that postcolonial studies are only relevant for the West’s own internal interrogation of itself and relations with the Other, and that it has little to offer studies within the ‘postcolony’ in the ‘Third World’. Although undoubtedly a by-product of the powerful critiques made by Third World scholars from within Western institutes, the applicability to the ‘post391 PERIS S JONES colony’ is clearly valid (Werbner & Ranger, 1996; Mbembe, 2001). And while the postcolonial inquiry is particularly relevant here for an internal critique of ‘Western’ development donors, it is also of use to improve development interventions, such as HIV/AIDS prevention and management programmes (see Ogden, 1996, for example). The relevance of the inquiry is heightened in light of the HIV/AIDS crisis in Africa, which often falls hostage to biased accounts of the ‘crisis’. Again, Jarosz attaches much of the explanatory power of the ‘Dark Continent’ to representation of HIV/AIDS in Africa as ‘perhaps the most pertinent, recent manifestation of the metaphor’. Public discourse has been replete with racial stereotyping, moralistic reasoning and xenophobic policies (Schoepf in Jarosz, 1992). Not only has Africa been represented as the cradle of HIV/AIDS, it is also depicted by academics through the lens of sexual practices which are seen as abnormal, untamed and dangerous (Jarosz, 1992). In the crudest accounts African sexuality is shorn of its political, economic and social context, and instead infused with moralising about unfettered African activity. The way the African has been socially constructed by the West is well documented (Krebs, 1999; Hyam, 1992; McClintock, 1995). Frequent references to ‘allegedly promiscuous sexual customs of Africans’ were connected to pervasive Victorian fears of ‘backsliding’, or racial and moral ‘regression’, often with powerful Biblical, ‘Garden of Eden’ sexual temptations (Brantlinger, 1985). When overlain with a strong epidemiological and medical imprint upon analysis of factors in the transmission of HIV/AIDS, it is no surprise that specific groups—such as female sex workers—have had identities ascribed to them through this public discourse and medical imprint (Craddock, 2000). Craddock warns that we need to be vigilant about the familiar Western assumptions that create a ‘moral optic’ in the analysis of risk from HIV/AIDS. This interpretation of African sexuality re-emerges in the section looking at guiding donor statements and themes. Susceptibility may take many forms but, according to Barnett and Whiteside (2002), historical dislocation, inequality, civil unrest, population mobility, radical changes in community beliefs and standards ‘have been constant motifs in the story of HIV/AIDS in Africa’. Perhaps we also require additional postcolonial readings of ‘imperialism’ which encompass cultural, political and social interactions and exchanges. The signification and mobilisation of racial or cultural differences—known as ‘othering’—has been identified as not only constituted by economic flows but, arguably, also constitutive—witness the meagre trickles of ART to Africa—of them. This approach is particularly useful for understanding development interventions. The optic of developmentalism The spatial tropes looked at in the previous section, such as the ‘Dark Continent’, have provided the most enduring metaphors for Western misrepresentation of the Other. These metaphors have also provided the intellectual foundations for the tutelage (previously the ‘civilising mission’), management and intervention 392 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA upon which modern development is premised (Slater, 1993; Bell, 1994; Simon, 1998). The invention of the idea of the ‘Third’ World has been regarded, in some quarters at least, as inseparable from the idea and practice(s) of post-World War Two ‘developmentalism’ (Escobar, 1995). ‘Developmentalism’ can be described as a tendency to reduce the problems of improving life in poor countries to one of a compulsion to promote ‘development’ by looking at them and knowing them only through the lens of ‘developmentalism’ and what they are not. Through this optical lens, the landscape of the ‘Third’ World has been constructed as if ripe for the challenge of international development agency intervention. Not only has the term ‘Third World’ become a badly fitting categorisation that inaccurately represents and homogenises huge and diverse regions and populations. It is also downright harmful—even lethal in the context of HIV/AIDS policy—because it subordinates these territories to the gaze of Western (and certain local) eyes, which legitimates particular types of intervention. It is this cartography and the postcolonial attempts to destabilise its privileging of the ‘First World’ ethnocentrist knowledge and practice underpinning it, which is scrutinised here. In particular, we need to explore how the donor tendency to view the continent through a lens of ‘developmentalism’ contributes to shaping HIV/AIDS policies. In keeping with the tone of the paper, however, we should state that the HIV/AIDS crisis is much too profound to forgo attention to material needs and (modernist) developmental interventions, which many postcolonial and post- and anti-developmentalist interpretations, rather self-indulgently, seem to disregard (eg Escobar, 1995). Indeed, there has been a noticeable failure to generate meaningful engagement between these issues, that is, those regarded as more conventionally developmentalist—such as the development projects and programmes associated with the HIV/AIDS epidemic—and these intellectual and theoretical critiques, often caricaturing development practices (Sylvester, 1999; Simon, 1998). It is with one eye on scrutinising the nature and type of this intervention—particularly that pertaining to Western donor intervention—that we can begin to make interventions more relevant and appropriate to subaltern groups who are the ‘target’ of development. The other eye is on the lack of credible alternative programmes of much of the anti- and post- development brigade. A reconstituted ‘project of development’ could also place the contingencies of development at its centre, an issue returned to in the conclusion. We turn now to look at how these discourses feed into donor policy and how they contribute therefore to framing policy on HIV/AIDS. Donor policy on HIV/AIDS treatment A brief discursive review is first undertaken of the UK’s (DFID) and Norway’s (NORAD) overseas aid policies, before discussing their specific policy on HIV/ AIDS. There are remarkable parallels between DFID’s and NORAD’s overall development strategies. One is the organising theme of ‘eliminating’ and ‘fighting’ poverty (DFID, 2000; NMFA, 2002). Indeed, the Millennium Develop393 PERIS S JONES ment Goals, including halving the number of poor surviving on less than $1 a day by 2015, are common objectives. Both strategies are infused with a moral discourse emphasising moral duty to the poor. ‘Norway as one of the richest countries in the world has an obligation to take this seriously’ because, we are told, ‘poverty is an attack on human dignity’ and it is ‘morally and politically intolerable that basic human rights are being violated in such a massive and constant way’ (NMFA, 2002: 6). The vehicle for delivering us from poverty, we are also told, is common to both, namely, globalisation, seen as essentially benign (NMFA, 2002: 39). It is better management that is required, rather than allowing oppositional voices from within the Third World to identify problems intrinsic to the neoliberalism both strategies promote. It is not so much the moral concern, which is necessary for commitment to distant strangers, which is problematic. It is rather how this morality is connected to who is considered to provide the necessary leadership in effecting better management. There is a fascinating interplay and apparent contradiction in these key guiding documents between the ideal of partnership and co-operation—as stated on numerous occasions—and, who exactly is considered to possess the appropriate skills for this management process. As with DFID, NORAD also places emphasis upon ‘national ownership’ and upon developing ‘countries taking over the leading role themselves’ (NMFA, 2002: 43). However, Bell and Slater (2002) suggest that DFID’s strategies situate developing countries in the position of being passive recipients to be managed and monitored, and in need of having (Western) technology and knowledge (read ‘globalisation’) bestowed upon them. There is an echo of modernisation theory for Bell and Slater, because DFID’s policy positions, while draped in the terms of egalitarian ‘partnership’ between donor and recipient, in fact reflect a more deep-seated geopolitical ‘continuation of tutelage under a globalizing guise’ (Bell & Slater, 2002: 351). Another area of commonality is that both strategies propose the move away from isolated projects to consolidating and channelling assistance through sector-wide programme and budget support to national poverty reduction strategies (NMFA, 2002). The Norwegian strategy does differ slightly, however, in that, first, there is more emphasis placed upon distribution of wealth, reducing debt burdens and creating a fairer system of world trade. Second, there is a welcome self-critique through recognition of the need to ‘remedy the deficiencies in donor co-ordination in development co-operation’ and to change the ‘administrative burden caused by international assistance’. This self-reflection is another important reminder that development assistance is not the static entity sometimes portrayed in post- and anti-development accounts. Dialogue is ongoing within different aid agencies in the West and between the latter and their considerably varied bilateral recipients. It does, however, also suggest some continuities, such as the West still being the privileged centre of knowledge, and issues surrounding access to HIV/AIDS treatment show up some of these continuities and the limits of an apparent two-way donor–recipient relationship. The rationalities underpinning policy on HIV/AIDS are revealed in order to explain adherence to prevention programmes rather than treatment. 394 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA HIV/AIDS: developmentalism’s opportunity cost, or ‘whatever is appropriate and feasible for the setting’ HIV/AIDS is a priority area for DFID’s and NORAD’s overseas aid. The clearest message coming through their respective strategies is that, first, for DFID: Prevention must remain the priority. Only prevention can make the difference between 38 million infected worldwide by 2000 or 40 to 45 million. (George Foulkes, Under-Secretary of State for International Development, 1999) ‘We know that four things work’, stated the Under-Secretary (Foulkes, 1999), with funding priorities focused upon information, condoms, STD treatment and safe blood. In a package of aid announced by Prime Minister Tony Blair to combat HIV/AIDS in developing countries, for example, of almost £28 million, over half was directed towards another important priority, the International AIDS Vaccine Initiative. The remainder of this package was to assist a regional Southern Africa Task Force and to fund 700 volunteers from the UK Voluntary Service Overseas, apparently ‘to raise awareness of the HIV epidemic in Southern Africa’. Of an additional package of over £100 million, also pledged in 1999, for HIV/AIDS in Africa, almost all was directed at broad health sector support and sexual and reproductive health: Until there is an affordable vaccine or cure, the most effective way to arrest the HIV epidemic is to reduce risky behaviour that might lead to infection and spread of HIV (DFID, Press release, 12 November 1999, emphasis added). In the same paragraph HIV/AIDS is described as a ‘death sentence for poor and marginalised people’ and DFID’s goals are stated as ‘to contain the spread of HIV and to minimise the impact’. Although true that ART is not a cure in the long term, it has been shown to extend life considerably for people living with HIV/AIDS in the West. But at this stage of DFID’s policy the issue was sidestepped. Even in its most recent major strategy paper for HIV/AIDS, DFID’s (2001) position was that: Responses will vary from country to country, but the priority will be strategies to promote prevention, whilst reducing the impact of AIDS (DFID, 2001a: 2). There is recognition of the broader inequalities fuelling and being fuelled by HIV/AIDS and reference to the role of poverty. Prevention, however, is still the guiding philosophy. Meanwhile, the Norwegian policy to combat the epidemic was stated as follows: There will continue to be a focus on preventing new infection, with emphasis on greater breadth and diversity. Prevention and the consequences of HIV/AIDS will be evaluated in all development programmes and integrated where relevant. (NMFA, 2002: 60). And, with a rhetorical flourish, the more recent policy positions do mention treatment: Norway will seek to ensure that treatment is more easily available and cheaper for everyone, including poor people. 395 PERIS S JONES This reference to treatment was perhaps a response to the international pressure that has grown tremendously in recent years to broaden access to ART by reducing high prices (Heywood, 2002a). So, around the time the Norwegian and DFID (2001a) strategies were being drafted, donor discourse began to adapt, at least at the level of rhetoric, to external pressures concerning access to treatment. Having established prevailing policy priorities, we now turn to the specific ‘rationalities’ considered as creating ‘valid’ statements on HIV/AIDS policy. There is a range of themes consistent in rationalising policy approaches which inform a so-called ‘developmentalist’ perspective. Too poor, too unsophisticated Taking the most obvious ‘logic’ first, when faced with the grinding poverty in much of Africa, it is perhaps unsurprising that development interventions have been modernist and seek to instil modern capacity (Simon, 1998). Yet what is particularly striking is that treatment is seen as ultra-modern, and too technical for Africa’s existing health capacity. At the end of the 1990s, when faced with growing public pressures to provide ART access in Africa, Foulkes’ (1999) response illustrates an almost reflexive developmentalist action in that: Facts help in such a debate. Where resources and optimal clinical systems exist to administer potentially highly toxic anti-retroviral drugs, they can and do transform the lives of those with HIV. But this is not the case in most of Africa, where even basic systems for health care delivery are not in place. It is not only a question of ensuring availability of affordable drugs and vaccines but, according to DFID’s white paper (2000: 35), ‘that there are effective systems to deliver these to all who need them’. Indeed, we are told that ‘even if they were free, it is not feasible for health systems in many poor countries to deliver these drugs safely and equitably’ (DFID, 2001a: 8). This reflects the core concern of developmentalist perspective. That is, priority is given to what Africa is considered to lack: ‘long term development of stronger, pro-poor, sustainable health systems (DFID, 2001a: 8) and ‘more cost-effective and appropriate measures’. These are revealed as the prerequisites for considering ‘safe delivery of treatment and care for HIV/AIDS’. ‘Whatever is appropriate and feasible for the setting’ is the guiding philosophy. The donor discourse juxtaposes the issue of ART as, on the one hand, inherently sophisticated—or more accurately in their own language, as a ‘technical debate’—with, on the other, Africa’s immediate needs. In short, Africa is seen as too lacking in adequate development to be considered for treatment. A doctor writing in the NORAD newspaper Bistandsaktuelt was taken as contributing to the prevailing wisdom by suggesting that spending should focus upon STDs because they ‘demand few resources, cost little and can be a good entry point to begin to talk to people about HIV/AIDS (Bergraav, 2002a, author’s translation). There is a complementary emphasis therefore placed upon ‘cost effectiveness and opportunity costs relative to other health care priorities’ (DFID, 2001a: 7). NORAD’s senior advisor on HIV/AIDS puts this perspective as follows: 396 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA The poorest countries struggle with weakly developed health systems and budgets cut to the bone. Most things are missing, especially professionals and medicines; in addition to HIV/AIDS these countries have other poverty related problems, like, for example, high mother and child mortality rates. It is therefore difficult for politicians to meet increasingly strong demands for treatment and at the same time improve health services in the poorest rural areas. (Bergraav, 2002a, author’s translation). Africa is simply too underdeveloped to cope with the complexity of treatment. This negative imagery of Africa is also reinforced through claims that Africans do not have the sophistication to adhere to treatment regimes. Consider, for example, this statement from USAID: ‘Ask Africans to take their drugs at a certain time of the day, and they don’t know what you are talking about’ (in Farham, 2002a: 95). Farham, however, cites one study carried out at the Diana, Princess of Wales HIV Research Unit, Somerset Hospital, Cape Town (see Farham, 2002a, for more information) which witnessed 88.5% adherence after 48 weeks. This was related, she believes, to patients being given regular information and support by medical staff and counsellors, as well as group therapy. In the same NORAD article quoted above, however, there is an indication that NORAD believes there is also an inevitable zero-sum game between treatment and prevention. Treatment is regarded as detrimental to prevention and other health services. Above all, the treatment lobby is seen as powerful in comparison with other groups, where ‘it is not easy to mobilise strong pressure groups for poor mothers who die in labour, or children who die due to bad nutrition or of infectious diseases’ (Bergraav, 2002a, author’s translation). For all the talk of a prevention–treatment continuum (DFID, 2001: 8), treatment, nonetheless, is regarded as an uncertain bet and a luxurious alternative, rather than considered an integral component of combating HIV/AIDS and associated problems. Ironically, it is the treatment activists and advocates of medicines for HIV/AIDS who are caricatured as lacking nuance and being simplistically for treatment and, somehow, therefore, against these other developmental dimensions necessary for a comprehensive response (Bergraav, 2002b). In fact, the more innovative projects surrounding mother to child transmission (MTCT) of the virus and ART more generally see both prevention and treatment as reinforcing one another (Farham, 2002a). It is of course easy to identify with the enormous challenges donors encounter in the context of constrained health infrastructures and funding. However, there is a tendency in this prevailing ‘wisdom’ to overlook where capacity is available and where it could be used to develop ART treatment. There are sweeping generalisations about capacity in the continent that preclude more serious consideration of treatment. Even where such facilities are not present, especially in rural areas, ‘that this should be an argument for not, at least, making the drugs available, defies comprehension and acceptance’ (Cameron, 2001). While pausing to reflect upon this deeply disempowering outcome, other issues also feed into and reinforce this perspective. The high price of ART, for example, in relation to government budgets and incomes is also seen as making extensive treatment prohibitive. However, the concerted global campaign to lower the prices demonstrates that there is scope 397 PERIS S JONES for large reductions in costs. It also shows that price is moveable. Indeed, to their great credit, both DFID and NORAD openly state in their strategies that they also advocate lowering the high cost of essential ART. Nonetheless, price continues to be used as an argument against broadening provision. In order to illustrate how the prevailing discourse bestows a ‘wisdom’ cutting across different political party lines, in a 2001 meeting of the British Parliamentary Development Committee (a cross-party body advising on and scrutinising British overseas aid) it was proclaimed that ART ‘especially in Africa, even as part of an overall scheme…was widely agreed to be impractical, primarily due to their high costs, and the fact that anti-retroviral drugs are complex to administer’ (Parliamentary Development Committee, 2001). In the same discussion of the role of the Global Fund, the committee even advised that DFID ‘would need to take a strong negotiating stand’ on the issue of ART because it was regarded as depleting the Global Fund and as also contributing to increasing inequalities in health systems (see below). Similarly, the DFID guidance note on ‘The Prevention of Mother to Child Transmission of HIV’, while supporting the prevention of MTCT is still ‘committed to helping governments develop their health systems’ to enhance ‘the conditions in which MTCT prevention could operate effectively and cost-effectively in the future’ (DFID, 2001b: 6, 7). Policy still adheres to prevention and health systems development. Wider discourses of health perhaps still prioritise primary health care as the greater and more appropriate development priority. In conjunction with these wider discourses, additional factors can also be taken into consideration for how they contribute to framing Africa’s landscape and peoples as unsuitable/unsophisticated enough for treatment. Too corrupt One additional issue concerns equity in treatment, an issue raised by both DFID and NORAD. Like the Development Committee discussed above, the DFID 2001 strategy is riddled with references to concerns over equitable treatment. And, during a seminar presentation, the NORAD representative on HIV/AIDS also raised the spectre of corruption as an additional ‘dilemma’ involving treatment. Treatment was interpreted as the creator of new ‘inclusions’ and ‘exclusions’. Scarce drugs would seemingly contribute to corrupt practices, as the more powerful would use their influence to secure these drugs. The implication was that there needed to be some system of prioritisation in place in order to adjudicate who would actually receive the scarce anti-retrovirals based upon specific criteria (Bergraav, 2002b) before extending ART treatment. While not necessarily in disagreement with this view, two points should be considered. First, we must scrutinise how the issue of equity is applied particularly to treatment, and not to the same extent to other developmental issues. When there is a development project focusing upon building houses in a township, for example, since not everyone will receive a house at the outset of the project because of limited resources, this does not imply that the housing programme in question should not begin. Ethical and equity criteria associated with health treatment are therefore not being applied in quite the same way as housing provision and other ‘development’ programmes. Second, given that 398 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA drugs can extend life, and that existing supply is extremely limited, continuing restrictions upon availability will in itself surely encourage corrupt practices. This is not an intrinsic characteristic of Africa, rather a reflection of the role of ART in determining life or death. Again, these ‘logics’ are taken to preclude extending availability. These so-called ‘dilemmas’ are therefore imaginary ‘redherrings’, according to Heywood (2002b), because failure to provide treatment per se should be regarded as the greater factor contributing to inequality and denying the right to life. Not to act upon existing capacity, as well as extending capacity, is the more deeply disempowering effect. There is one final particularly potent issue that can also be considered as reinforcing the ‘preventive’ logic. Behavioural change hypothesis: or too sexual? The ‘behavioural change hypothesis’ has been the prevailing public health orthodoxy explaining people’s vulnerability to HIV/AIDS. It is an approach premised upon narrow epidemiological definitions of the individual and certain ‘risk groups’, assuming that people make rational choices based upon the information given to them about health risks. This approach tends not to recognise the interplay between broader societal factors, development issues and the HIV/AIDS epidemic. Poku (2002) regards the multilateral donor Medium Term Plans (MTPs), which are the principal organising structures for the design and implementation of country responses to HIV/AIDS in Africa, as still largely focused upon these narrowly defined public health concerns, despite over 20 years of the epidemic. While the NORAD and DIFD approaches are notionally grounded in developmental, human rights and societal issues, the majority of bilateral funding is nonetheless rooted in a view of the individual requiring a change of behaviour. DFID has as its starting point in its HIV/AIDS strategy that it is ‘a communicable disease driven by the behaviour of individuals’ (DFID, 2001a: 6) and talks about changing ‘risky behaviour’. ‘Interventions that work to prevent sexual transmission’, we are told, are condoms, combinations of strategies to deliver condoms, behaviour change programmes—which ‘are an essential and effective part of strategies to reduce high-risk behaviour’—voluntary counselling and testing, and improved diagnostics and management of other STDs. NORAD gives a more explicit emphasis to ‘encouraging the active involvement of men’ and to ‘promoting male responsibility’ (NMFA, 2000; 2002). This focus upon individual responsibility has echoes in earlier representations of the ‘Dark Continent’ and the long history of Western depictions of unfettered African sexual appetites. There is perhaps a possible connection to donor discourse on analysis of ‘risk’ which produces a ‘moral optic’ viewing individual behaviour. Furthermore, public discourse can have the effect of ascribing social identities to particular groups, often acting to reassure those ‘normal’ groups who project their own fears of disease onto ‘high risk’ groups, and women in particular (Craddock, 2000). This is not to imply that individuals should be absolved from all responsibilities but, rather, that the ‘vulnerability’ of specific individuals, groups and regions to HIV/AIDS should be situated within a more 399 PERIS S JONES thorough analysis of the ‘interaction of institutional, cultural, social, economic and historical contingencies of place’ (Craddock, 2000: 154; Campbell, 2003). Donor funds, as we have seen, tend to concentrate upon prevention programmes rooted in Western science, which often underplay complex social dynamics (Campbell, 2003; Campbell & Williams, 2001). Whether such information—for example, about condom use—has altered behaviour, is highly doubtful in many settings. Rather, economic and ideological constraints, most notably to do with constructions of gender (like ‘being a man’, the expectations about ‘the role of a woman’) appear also to be determining factors in shaping behaviour. In one of DFID’s own regional strategy papers for Southern Africa, it is recognised that, for all the information and condom programmes, condom use is still low (DFID, 2002). Although awareness about HIV/AIDS was claimed to be ‘nearly universal’, DFID claimed that this was ‘not translating into behaviour change’. Nonetheless, ‘improving access to relatively simple treatments required for frequent opportunistic infections is’, it was stated, ‘a more immediate priority than provision of anti-retroviral drugs’ (DFID, 2002). Conclusion HIV/AIDS marches on, causing intolerable burdens upon states, families and individuals. To declare African countries too poor and unsophisticated for treatment not only prevents a more comprehensive approach to decreasing vulnerability to HIV/AIDS; it also exacerbates the problem. The predominant emphasis hitherto in donor policy circles upon prevention is simply being outstripped and overwhelmed by the huge increases in those infected. Donors should therefore act upon the directives of international human rights conventions and covenants which are crystal clear about broadening access to treatment of HIV/AIDS as an integral dimension of the right to life, dignity and health care. Otherwise, contrary to the role intended for ‘partnership’ in development assistance, policy decisions will continue to have a noticeably disempowering effect. While this paper has been principally concerned with donor responses, this should also in no way detract from the corresponding obligations African states have to fulfil human rights for their citizens. Some state policies on HIV/AIDS, especially in South Africa, may in fact have been driven by some degree of over-reaction to the more outlandish colonial, late apartheid and racist discourses associated early on with the epidemic (Mbali, forthcoming). One way around this impasse is for donor and recipient governments alike to foreground policy responses to HIV/AIDS within corresponding obligations to respect, protect and promote the rights to health, dignity and life. In order to shift these prevailing donor mind-sets, however, as shown in the paper, a necessary starting point is to strip away the inherent ‘logics’ underpinning policy. Donor bias towards prevention, and the fact that donors place an ‘opportunity cost’ upon treatment, and never perform a ‘cost–benefit’ analysis of prevention programmes, requires urgent redress. Given the huge burden of HIV-related disease in Africa, this surely warrants much greater efforts to treat the large numbers infected while also developing effective preventive vaccines (Weidle et al, 2002). In resource-poor settings, treatment approaches could be 400 DONOR DISCOURSES AND ACCESS TO HIV/AIDS TREATMENT IN AFRICA rethought in terms of providing standardised regimens adapted to circumstances (Weidle et al, 2002). To this end, urgent consideration should be given to the lessons emerging from Botswana’s efforts towards universal provision of ART. Although replete with problems, such as insufficient numbers of skilled medical personnel, and difficulties in extending coverage to rural areas (Mail and Guardian, 10–16 January 2003) the programme is, nonetheless, a potent challenge to prevailing ‘wisdoms’ which have hitherto set the parameters of what is possible in Africa. Botswana’s rapid learning by facing the problems directly through practice and building capacity—financed by government and private donors—has forever broken the mould of (lack of) expectation concerning ART in Africa. Donors therefore need urgently to assess where and how prevention and treatment are being combined successfully. The tremendous stigma and discrimination associated with HIV/AIDS represent additional barriers to health care. Unequal power relations exclude people from participating equally and fully in the social, economic and political dimensions of society. Much of the discrimination against people living with HIV or AIDS is based upon ignorance and fear. The fatalism associated with HIV/AIDS contributes to discrimination because the disease is such a marker of early death. Treatment might contribute to prevention because people would be more likely to seek blood tests and lessen discrimination towards those living with the disease (AIDS Law Project, 2001). Treatment will create new opportunities for prevention ‘because it will create a larger demand and infrastructure for HIV testing and create settings for counselling’ (WHO, 2002; AIDS Law Project, 2001). Indeed, some highly innovative projects addressing MTCT promote the synergy of prevention and treatment by treating mother as well as child, and in turn, take HIV-positive mothers on these MTCT programmes and offer paid employment as peer educators, contributing to destigmatisation (see Farham, 2002b: 107). If there is any likelihood that ART can be a useful tool in chipping away at the wall of silence and stigma surrounding HIV/AIDS—not least in South Africa—this should provide another compelling argument for donors to support extending access immediately. Finally, donors need also to look at the potential role of ART in easing the high levels of morbidity and mortality which are placing devastating financial and social burdens upon states, NGOs and society more generally. Worker absenteeism, food insecurity and the rapid increase in the number of orphaned children are three areas in which ART could surely have a mitigating impact. In South Africa, for example, one study calculates that the net cost of ART to government could be at least a third lower than the direct cost of treating opportunistic infections and orphans.6 Teasing out some of the flaws in donor (over)emphasis upon prevention is a way to make intervention strategies more effective. In so doing, the paper is an unapologetic reconstitution of more modernist and ethical pursuits and objectives rather than an acceptance of the dead-end of post-development’s termination of the ‘project of development’ per se (Escobar, 1995). Reflections upon what directions should be taken now for ‘post-development’, following Nustad (2001), can be assisted, first, by maintaining the fundamental critiques of development. That is, its apparatus, as shown, induces particular effects often related to the 401 PERIS S JONES narrowness of the developers’ conception of their task; extending bureaucracy; and de-politicising poverty. Most critical for altering HIV/AIDS policies, development ‘is built upon certain assumptions, such as the agency of an outside intervening body’ (Nustad, 2001: 487). In a postcolonial fashion, revealing the flawed logics of this ‘body’ and its ambiguities and contradictions is intended to make development interventions better. Self-critique is a powerful weapon in this regard. Treatment campaigners could also concentrate on the contradictions contained within an apparently authoritative Northern donor account of HIV/AIDS. Second, to this end, we need to insist that development interventions should recognise the ways in which they are transformed on the ground. Whether rejected outright, failing (Campbell, 2003), or, in terms of their implementation, infused with new meanings by the agency of participants themselves (Nustad, 2001; Bell, 2002; Simon, 1998; Ogden, 1996), the point is not merely to provide a deconstruction of donor policy. Rather, the postcolonial critique can expose some of the underpinning ideas, logics and statements in order to use these contradictions to reconstruct a donor policy reflecting a more holistic approach to HIV/AIDS. This reconstruction, critically, must be shorn of any ethnocentric pretensions, with less adherence to the optic of ‘developmentalism’; it should recognise the political struggles over development interventions. Notes Earlier versions of this article were presented at the ‘Intellectual Crossroads’ seminar series, hosted by the Department of Sociology, University of Pretoria; the Institute for Human Rights, Åbo Akademi University; the Norwegian Centre for Human Rights, University of Oslo; and the session on ‘Postcolonial Geographies’ at the 2003 Institute of British Geographers conference, London. The author would like to thank the participants for their feedback. Finally, comments given by Katie Willis and Morag Bell are warmly acknowledged. The usual disclaimers apply. 1 Botswana, for example, had a life expectancy of just 40.3 years in 2000 (undp, 2002) which has recently gone down to roughly 39 years, whereas between 1970 and 1975 it was estimated at 53.2 years; Zambia, Uganda, Rwanda, Malawi, Mozambique, Namibia and Zimbabwe all have lower life expectancy now than 20 years ago. Most tellingly, for sub-Saharan Africa as a whole, life expectancy at birth, 1970–75 was 45.3 years but by 1995–2000 this had risen only to 48.8 years. This is in marked contrast to much higher overall levels and bigger increases in all other regions except Central and Eastern Europe and the CIS (undp, 2002). 2 At the time of writing, apparently significant changes in donor policy on treatment are still mainly at the rhetorical level. Although gradually being accepted in principle, donor funding of treatment reflects either extremely small-scale bilateral projects and/or, in aggregate, serious shortfalls in multilateral donor funding to the Global Fund. 3 Anti-retroviral treatment (ART) suppresses HIV and hence preserves the immune system and mitigates susceptibility to opportunistic infections. 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