CARDIOLOGY Caring for Your Heart The heart and science of medicine. Key Points: WHEN TO CALL YOUR HEALTHCARE PROVIDER: After you are discharged from the hospital, it is important to notice if your symptoms get worse and if so, call your healthcare provider. These symptoms may include: • New or increased shortness of breath • Lightheadedness, dizziness, or fainting • Weight gain of 3 pounds in one day or 5 pounds in a week • Belly or Leg/Ankle swelling • Unexplained side effects after taking medicine Make a list of your questions and concerns so that you will remember everything when you call your doctor. WHAT TO BRING TO YOUR HEALTHCARE APPOINTMENTS: • Weight chart or calendar • All your medicines in their original containers • A list of your questions and concerns REMEMBER TO: • Take your medicine as prescribed • Eat less than 2,000mg of sodium (salt) a day and follow your fluid limits • Record your weight daily • Follow your healthcare providers instructions for activity •Make sure you have an appointment within 1 or 2 weeks after leaving the hospital. • If you smoke, quit. 2 Vermont Quit Line: New York Quit Line: 1 -866-NY QUITS, (697-8487) or www.NYSMOKEFREE.com 1 -800-QUIT-NOW, (784-8669) or www.802QUIT.org 3 NOTES Table of Contents What is Heart Failure?............................................................................. 6 What are the Causes of Heart Failure?............................................. 7 What is an Ejection Fraction (EF)?..................................................... 8 Signs and Symptoms of Heart Failure............................................... 9 Your Weight and Your Heart................................................................ 11 Check Your “Heart Failure Zone” Every Day................................. 12 Advance Care Planning.......................................................................... 13 Good Nutrition for Your Heart............................................................14 Grocery List................................................................................................16 Eating out....................................................................................................19 Fluid Intake Tips and Guidelines.......................................................20 Understanding Your Medications.......................................................21 Common Medications............................................................................22 Activity and Exercise............................................................................. 27 My Medications........................................................................................29 Exercise Log............................................................................................. 30 References for Heart Failure Patients: American Heart Association: www.heart.org, www.HeartFailureMatters.org Heart Failure Society of America: www.hfsa.org 4 American Association of Heart failure nurses: www.aahfn.org 5 What is Heart Failure? • Heart failure (HF) is when the heart cannot pump blood normally. • HF may cause you to feel weak, tired or dizzy. • HF may cause buildup of fluid in the body. This fluid can get into your What are the Causes of Heart Failure? Heart muscle damage of any type weakens the heart muscle and can lead to heart failure. The most common causes of heart muscle damage: lungs and make you short of breath. It can cause your legs, feet, and belly to swell. WHAT HAPPENS WITH HEART FAILURE? When you have heart failure, your heart cannot pump enough blood to meet your body’s needs. Here’s a summary of how heart failure can develop and progress. • The heart muscle is weakened by conditions or diseases that damage your heart. • The heart’s pumping action does not work as well. • The body tries to make up for the heart’s reduced pumping action in these ways: • Holds on to fluid to increase volume of blood. • The heart beats faster. •The heart enlarges. (Heart chambers stretch and get bigger, and the muscle mass may get thicker.) • For a time, these changes will help continue normal or near-normal heart function. •Over time the heart muscle becomes tired and unable to pump the blood your body needs. Heart failure symptoms – such as shortness of breath, cough, fatigue, and fluid buildup – may begin or worsen. •Atherosclerosis (coronary artery disease, CAD). When the arteries supplying blood to the heart become clogged with plaque, it can cause a heart attack that damages your heart muscle due to a lack of blood flow. Unlike normal heart muscle, damaged muscle tissue does not contract so your heart may not pump as well. • H igh blood pressure (hypertension). Long-term, poorly controlled high blood pressure makes your heart work harder to pump blood through your body. Over time, all that extra work can cause the walls of the heart to become thick and/or wear out your heart, leading to heart failure. •Heart valve problem. Heart valves control the direction of blood flow through your heart. When they are damaged, they often do not open and close properly. This leads to backflow of blood or limits the forward flow of blood. Congenital defects (defects present at birth) and valve infections can cause heart valve problems that interfere with your heart’s ability to pump blood normally. •Alcohol Abuse. Chronic, excessive alcohol intake can severely weaken the muscle walls of the heart. •Drugs. Illegal drugs such as cocaine or amphetamines can damage the heart. And rarely, some cancer treatments can damage the heart. •Other Causes: •There are several forms of inherited heart failure, it is important that you tell your healthcare provider about any family members that also have a diagnosis of heart failure. •Atrial Fibrillation or a fast heart rate can weaken heart muscle. •Heart failure can be caused by a viral infection of the heart muscle. There are many causes of heart failure, but overall the treatment is generally the same. Poor Squeeze vs Poor Relaxation: For most patients with heart failure, the left ventricle of the heart (also known as the main pumping chamber) is affected. • H eart failure occurs because your heart is not pumping well – you have “poor squeeze.” Your healthcare provider may call this systolic heart failure or heart failure with reduced ejection fraction (EF). (See page 8 for more about EF) • In other cases, the heart can still pump normally – but the muscle walls have become stiff, which prevents the heart from fully relaxing and filling with enough blood between contractions. Your healthcare provider may call this diastolic heart failure or heart failure with preserved EF. With both types of heart failure, your heart cannot pump enough blood. This can interfere with the function of other major organs, and produce a range of symptoms 6 *Used with permission. © 2006-2016, Intermountain Healthcare *Used with permission. © 2006-2016, Intermountain Healthcare throughout your body. 7 What is an Ejection Fraction (EF)?: Know These Signs: Your EF is the percentage of blood that pumps out of the heart during Noticing changes in your health is an important aspect of recognizing heart each heart beat. It is also a measurement used to see how well your heart failure (HF) issues. If you notice any of the symptoms listed on the next few is functioning. A low EF is not always associated with symptoms. How you pages, or if you find your symptoms are getting worse, be sure to let your generally feel is a more important measure of how you are doing than your healthcare provider know. EF number. Similar to blood pressure and cholesterol, your EF is an important health-related number. A low EF can occur if your heart muscle has been damaged. What does your EF number mean? SHORTNESS OF BREATH: People with HF may experience: Feeling out of breath; difficulty breathing while lying flat. This happens because: The heart can’t pump enough blood to meet the body’s needs, which causes fluid to back up into the lungs. •50-75% Heart’s pumping ability is Normal •36-49% Heart’s pumping ability is Low (mild to moderate) •35% -10% Heart’s pumping ability is Very Low (moderate to severe) YOUR MOST RECENT EJECTION FRACTION (EF) IS: NEED TO SLEEP UPRIGHT: People with HF may experience: A need to prop themselves up to sleep; with extra pillows or sleep in a chair because they have trouble breathing while flat. This happens because: The heart can’t pump enough blood to meet the body’s needs, which causes fluid to back up into the lungs. PERSISTENT COUGHING OR WHEEZING: People with HF may experience: Coughing that produces white or pink bloodtinged mucus. This happens because: The heart can’t pump enough blood to meet the body’s needs, which causes fluid to back up into the lungs. SWELLING: People with HF may experience: Rapid weight gain; swelling in the feet, ankles, legs, and/or belly. Congestive Heart Failure? This happens because: The heart can’t pump enough blood to meet the body’s needs, which causes fluid to back up; kidneys are less able to dispose of sodium and water, fluid collects in the in the legs or belly. Your healthcare providers may refer CONFUSION/CAN’T THINK CLEARLY: People with HF may experience: Memory loss and feelings of confusion, a caregiver may notice this first. to your condition as “congestive heart failure.” By adding the term “congestive,” they’re referring to the buildup of fluid This happens because: Changing levels of substances in the blood can cause confusion. (the congestion) that may occur with heart failure. This can cause symptoms like swelling and fluid weight gain as well as 8 shortness of breath, due to fluid in the lungs. *Used with permission. © 2006-2016, Intermountain Healthcare 9 FATIGUE/TIREDNESS: People with HF may experience: Feeling tired all the time and difficulty with everyday activities. This happens because: The heart can’t pump enough blood to meet the body’s needs. Blood is then sent away from organs like muscles in limbs in favor of vital organs like the heart and brain. RAPID WEIGHT GAIN: People with HF may experience: Three or more pounds of weight gain in one day or five pounds in a week due to fluid retention. This happens because: The heart can’t pump enough blood to meet the body’s needs, which causes fluid to back up; kidneys are less able to dispose of sodium and water, fluid collects in the in the legs or belly. LACK OF APPETITE OR NAUSEA: People with HF may experience: A feeling of being full or sick to their stomach. This happens because: The digestive system – the stomach and intestines – receives less blood, causing problems with digestion. A Family Affair WHAT YOU CAN DO TO KEEP FEELING GOOD AND STAY OUT OF THE HOSPITAL: Support from family and friends can go a long way •Weigh yourself each day. toward helping you manage your heart failure. It can •Check your “Heart Failure Zone” (see page 12) every day. also help THEM – giving them a role to play and a sense of control. They can help by: •Keeping records and notes. Loved ones can help you keep activity and weight records and write questions to ask your healthcare provider. • E xercising with you. Having friends or family exercise with you can help you stick to a schedule and maintain an appropriate activity level. • S upporting you in heart-healthy eating. Loved ones can help you eat properly by shopping for, cooking, and eating low-sodium foods with you. Have a frank discussion with your loved ones about how •Take your medicines correctly every day. •Eat less than 2000 mg of salt/ sodium each day. •Drink the right amount of fluids (generally 2 quarts (64 oz) or less). •Exercise regularly (at least 5 times per week). Your Weight and Your Heart As you learned from the first section of this guide, heart failure causes fluid to buildup in your body. This fluid shows up as extra weight on your scale. Generally speaking, the more severe your heart failure, the more fluid can build up. An increase in your weight could mean a worsening of your heart. For this reason, weighing yourself daily and keeping a record will help you and your healthcare providers know if your heart failure is under ___ ____________ ____________ control. Goal Weight__ __ Zone Indicator (refer to cover) Green Zone that indicates Mark the color are in today what zone you Yellow Zone WT: HR: BP: WT: HR: BP: When You are Gaining… WT: HR: BP: WT: HR: BP: WT: HR: BP: WT: HR: BP: these conditions: HR: BP: BP: WT: HR: BP: WT: HR: BP: BP: diately HR: : BP BP:Weigh yourself when you are dry, not wet 3 from a shower or bath. WT: WT: HR: BP: WT: HR: BP: BP: morning – after urinating but before eating or drinking.WT: : WT HR: WT: HR: BP: : An increase in: your weight meansWT either of WT: HR: WT HR: BP: itFrisi a digital scale. WT: WT: HR: BP: WT: HR: BP: scale every day and make sure 1Use the same Sat : Weigh yourself at the same time every 2WT HR: HR: WT: HR: BP: WT: HR: BP: WT: HR: BP: WT: HR: BP: WT: HR: BP: Thu Wed Tue WT: HR: BP: WT: HR: BP: WT: HR: BP: HOW TO WEIGH YOURSELF EACH DAY MO Red Zone Mon Sun ____________ endation_____ Fluid Recomm _ ____________ __ n_ mmendatio Sodium Reco __ __ __ __________ Goals______ Daily Activity __ NTH________ WT: HR: BP: u canno Call 911 if yo provider immeweight in fluids althcare • CaYou are gaining ll your he • You are gaining weight in fat Fat weight gain happens more slowly than WT: HR: HR: BP: your daily weight faithfully and : rite down 4 BPW accurately – you want a detailed record WT: WT of: your weight pattern, not just a general HR: HR: BP: : BP idea. You should take your weight diary to each appointment and have your healthcare WT: WT: HR: provider review it. HR: BP: BP: t reach your healthcare pro tely vider immedia WHEN SHOULD I CALL MY HEALTHCARE PROVIDER ABOUT MY WEIGHT? Call your healthcare provider if you see either of these weight-gain warning signs: fluid weight gain. Talk with your healthcare You gain 3 or more pounds in one day. provider to determine why you are gaining You gain 5 pounds over your goal weight. weight – and whether it warrants a change in These signs could mean that your body is retaining fluid, and may require a change in your treatment plan. You should also call if you have any questions about your goal weight, or any other aspect of your treatment plan. your treatment plan. When You are Losing… A decrease in your weight may mean you are dehydrated. they can help you improve your health. Consult with your healthcare providers 10 Another topic to discuss is your advance directive. An to determine why you are losing weight advance directive is a legal document that expresses and whether it requires a change to your your decisions for your healthcare. (See page 13 for treatment plan. more info) *Used with permission. © 2006-2016, Intermountain Healthcare 11 Check Your “Heart Failure Zone” Every Day Advance care planning Heart failure can cause you to feel bad, have swelling and be short of breath. Doing your daily checkup can help you catch these changes quickly so you Heart failure is a serious chronic condition that can shorten a person’s life. What is ahead of you can be uncertain and is different for everyone. Preparing for your health and care choices before you are too sick is called advance care planning. can take action to feel better and stay out of the hospital. 1 Each Day: • 2 Weigh yourself • Are you short of breath? • Do you have swelling? Find which Heart Failure Zone you are in: EVERY DAY GOAL ZONE WARNING ZONE EMERGENCY Heart Failure Zones EVERY DAY EVERY DAY Weigh yourself in the morning before breakfast, write down and compare to yesterday’s weight. Take your medicine as prescribed. Check for swelling in your feet, ankles, legs and stomach. Eat low-salt food. Exercise and get enough rest. GREEN ZONE—This is your goal! GREEN ZONE Your symptoms are under control. You have: Normal breathing. No weight gain of more than 2 pounds. (it may change 1 or 2 pounds some days). No swelling of your feet, ankles, legs or stomach. CAUTION—This zone is a warning Call your doctor’s office if: YELLOW ZONE • Choosing health care agents. • Deciding about treatment choices like CPR, whether to have surgery or pacemaker. You have a weight gain of 3 pounds in 1 day or a weight gain of 5 pounds or more in 1 week. More shortness of breath. More swelling of your feet, ankles, legs or stomach. Feeling more tired. No energy. Dry, hacking cough. Dizziness. Feeling uneasy, you know something is not right. • Focus of this care is to improve quality of life for the patient and her/his family. It is harder for you to breathe when lying down. You are needing to sleep sitting up in a chair. • It is about relieving and preventing physical and emotional symptoms. EMERGENCY RED ZONE ADVANCE CARE PLANNING INCLUDES: • Doing an advance directive or living will. Go to the emergency room or call 911 if you have any of the following: Struggling to breathe. Shortness of breath even while sitting still. Chest pain. Confusion or can’t think clearly. • Talking about and documenting your care goals. PALLIATIVE CARE (PRONOUNCED PAL-LEE-UH-TIV) IS: • Specialized care for people with serious illness like heart failure. • Provided by specially trained doctors, nurses and other specialists. • Clinicians skilled to assist with advance care planning. Hospice is a care option for all of us when we no longer have years to live but months. The focus is also on improving quality of life but the goal is comfort. Hospice care can take place in the home, a hospice unit or a nursing home. Ask your healthcare provider to guide you in how or who can help you with advance care planning. 12 13 YOUR HEART HEALTH TEAM #: Good Nutrition for Your Heart DAILY DIETARY SODIUM RESTRICTION One salty meal may lead to a trip to the Emergency Room or admission to the hospital. Eating salt (sodium) can make your body retain too much water, which makes your heart work harder. Too much salt (sodium) can cause shortness of breath and swollen ankles. The average person in the US eats too much salt, often taking in more than 4000 milligrams (mg) each day. People with heart failure need to eat less salt, and should limit their salt intake to less than 2000 milligrams (mg) or 2 grams (g) of salt each day. READING A FOOD LABEL 1 Look at the serving size. Watch out: the Nutrition Facts label is for just one serving. 2 Look at the sodium per serving- focus on the mg per serving, and ignore the %, as the % applies to a regular diet. 3 Choose foods with less than 140 mg of sodium most of the time. If it has more than 300 mg per serving, put it back and look for a lower sodium alternative. This food is a higher sodium food, and is NOT a good choice. TIPS FOR EATING LESS SALT (SODIUM) • Stop adding salt to your food. Take the salt shaker off the table and stove. • Try herbs, spices, lemon and vinegars to season your foods– see page 18 for more details. •Eat less processed foods (for example any food item in a box, wrapper or can); many contain large amounts of salt (sodium). Most are available in regular (with salt) and reduced salt (sodium) versions. Even the reduced salt (sodium) food items may have high salt (sodium) content. Check the food labels to compare. This food has 45 mg sodium in one serving, so it is a good choice if you stick to one serving. • Eat plenty of fruits and vegetables. •Choose mainly fresh or frozen vegetables. When you choose canned vegetables, rinse off with water and drain the vegetables before you eat them. Rinsing can remove some of the added salt. • Choose lean, fresh meats instead of high salt (sodium) cured meats, bacon, or sausage. •Snack on low fat yogurt, unsalted air popped popcorn, unsalted pretzels and unsalted crackers, and frozen juice bars. •Try to focus on whole foods such as fruits, vegetables, beans, nuts, and whole grains. Farmer’s markets and Community Supported Agriculture (CSA) shares from local farms are two ways to get fresh produce that is often less expensive than the foods found in the supermarket. •Realize that even foods that do not taste salty may still be high in salt (sodium) levels. Baking powder, baking soda, MSG, soy sauce, bouillon cubes and preservatives added to foods also contain sodium. • Check the nutritional content labels on all of your food items. To stay within your daily limit of 2000 mg sodium, aim for less than 600 MG sodium per meal. This will leave you some wiggle room for snacks. LABEL KEY WORDS “Sodium Free” Very Little Sodium (less than 5 mg per serving) “Low Sodium” 140 mg sodium or less per serving “Reduced sodium” At least 25% reduction from the original product, may not be a low sodium choice- check the numbers! “Unsalted”, “Without Added Salt”, “No Salt Added” When Light is Wrong Don’t be fooled by “light” labels on foods. A “light,” or “lite” label may refer to the amount of calories, fat or salt in the food. Many low-fat or fat14 free foods are actually quite high in salt! Check the label before buying. No salt used during processing Questions? Call the DIET LINE: 802-847-DIET (3438) Leave your name, phone number, and a brief nutrition question and a Registered Dietitian will return your call. 15 Grocery List Choose these BREADS: Breads, pita, bagels, sandwich buns, dinner rolls, and english muffins with less than 150 mg sodium in a serving Instead of BREADS, CEREALS, SNACKS: Breads, crackers and snacks with more than 150 mg sodium in a serving CEREALS: Most dry cereals (check label), non-instant hot cereals PASTA: Whole wheat noodles, spaghetti, macaroni RICE AND OTHER GRAINS: Brown rice, wild rice, bulgur wheat, barley, quinoa Fruit juice Canned vegetables* or vegetable juice with less than 150 mg sodium in a serving BEEF: Lean cuts of round, sirloin, flank, tenderloin, cube steak, 90% lean ground beef OILS: olive, canola, peanut are healthiest, but no oils have sodium Vegetables prepared in sauce, pickled or brined vegetables; sauerkraut, pickles Vegetable oil spray, Molly McButter light sodium, Regular vegetable juices or canned soups Margarines with less than 150 mg sodium in a serving Any product in this group with more than 150 mg sodium in a serving Butter Buds Mayonnaise and salad dressing with less than 150 mg sodium in a serving Avocados Butter, if saturated fat is not an issue. Caviar, processed fish products with more than 300 mg sodium in a serving Sausage, bacon, frankfurters, regular luncheon meat with more than 300 mg sodium in a serving PORK: Tenderloin, leg (fresh), lean chops Satisfy your “sweet tooth” with fruit. Choose treats wisely. Sherbet, sorbet, Italian ice, low-fat frozen yogurt, popsicles Commercial baked goods: pies, cookies, pound cake, frosted cake, with more than 150 mg sodium in a serving Fig bars, gingersnaps, graham crackers Jelly beans, hard candy Marshmallows, granola bars Regular or sugar free Jell-O Homemade cakes, cookies, pies and fruit crisps without added salt VEAL: All trimmed cuts, chops and roasts Venison or any game meat DRIED PEAS AND BEANS: Split peas, black-eyed peas, chick peas, kidney beans, lentils, soybeans. Canned peas and beans with less than 150 mg sodium in a serving Salted nuts and seeds with more than 150 mg sodium in a serving UNSALTED NUTS AND SEEDS: Almonds, cashews, hazelnuts, walnuts, peanuts, peanut butter, pumpkin seeds, sunflower seeds Frozen dinners with more than 650 mg sodium Whole fresh eggs or egg whites Other cheeses with less than 150 mg sodium in a serving such as swiss cheese All dairy has naturally occurring sodium, so don’t go over 2-3 servings a day Soups with less than 400 mg sodium in a serving (eg, Campbell’s Healthy Request, Healthy Choice brand) POULTRY: Without skin, ground chicken or turkey breast Cheese with more than 150 mg sodium in a serving Frozen yogurt *Drain and rinse canned vegetables FISH : All fish and shellfish (except fried), rinsed waterpacked canned tuna and salmon MILK: skim, 1% milk or yogurt, low-fat buttermilk, lowfat evaporated or non-fat milk, or whole milk, yogurt or ice cream if you need extra calories and saturated fat is not an issue Instead of Low sodium fat free or 1% cottage cheese PASTA AND RICE: Prepared products with over 300 mg in a side dish serving SNACKS: Whole grain crackers (eg, “hint of salt” Triscuits, Ak Mak), matzo, bread sticks, rye krisp, zwieback, rice cakes, low salt pretzels (eg, Snyder’s unsalted mini’s), home popped popcorn or low salt commercial brands FRUITS AND VEGETABLES: Any fresh or frozen fruits and vegetables Choose these Egg substitutes with more than 150 mg sodium in a serving Puddings (count as a dairy serving) Dark chocolate BEVERAGES: Count as part of your fluid restriction. Tea, coffee, herbal tea, unsweetened ice tea, seltzer, mineral water 100% fruit and low sodium vegetable juice Beverages with more than 150 mg sodium in a serving. Be aware of beverages such as Gatorade and low sodium V8 that may have less than 150 in one serving but that add up if you have multiple servings Frozen dinners with less than 650 mg sodium 16 17 Grocery List - Low Sodium Seasoning Eating at home and eating out/ordering take out Ways to add flavor to your food without having to add salt: Food Herb or Seasoning SOUPS Bay leaf, tarragon, marjoram, parsley, savory, rosemary BEEF Garlic, bay leaf, thyme, green pepper, onion powder, mushrooms, nutmeg, marjoram, onion, cumin POULTRY Apples, pineapples, garlic, onion powder, sage, thyme, basil, onion, ginger, cumin PORK Apples, pineapples, garlic, onion powder, sage, thyme, basil, onion, ginger, cumin EGGS 18 When you eat out Don’t add salt to food when you cook or eat Ask for foods cooked without salt Make your own or choose low salt sauces, salad dressing, breads and desserts Choose grilled, baked, roasted, poached or steamed foods Cranberries, paprika, parsley, thyme, sage, rosemary, garlic LAMB FISH When you eat at home (avoid items labeled fried, pan fried, crispy) Avoid “instant” foods that come in a bag or box Avoid butter, cheese, sauces, and gravy Rinse canned foods before cooking and eating Choose oil and vinegar or lemon juice as salad dressing Season food with herbs, vinegar, lemon juice and seasoning without salt Avoid or limit fast food Avoid seasoned salts such as garlic salt and onion salt Avoid bacon, sausage, ham, hot dogs, bologna, and other deli meats (ie au gratin, scalloped, cheesy, creamy) Lemon juice, onion powder, dry mustard, green pepper, mushrooms, tomatoes, Tabasco sauce, fresh onion, dill Pepper, curry, dry mustard, onion powder, paprika, parsley, tomato, oregano, tarragon, fresh onion BREAD Caraway, oregano, poppy seed, rosemary, thyme, cinnamon VEGETABLES Basil, garlic, chives, dill, tarragon, marjoram, mint, parsley, pepper, thyme SALADS Basil, chives, tarragon, garlic, parsley, vinaigrette dressings 19 Fluid Intake Tips and Guidelines Understanding your Medications Some people with heart failure hold fluid in their bodies, resulting in swelling. This may cause swelling in your feet and legs. Even if you are thirsty, this does not mean your body needs fluid. You may be taking a diuretic (water pill) to help your body get rid of fluid. Many healthcare provider suggest that people with a heart condition limit fluid intake to 8 cups/day total, or 2 quarts per day. Drinking an excessive volume of fluids may force your heart to work harder. KEEPING TRACK OF YOUR MEDICINE Use a pill box, medicine calendar, smartphone or tablet app to help keep track of whether you have taken your medicines. Set an alarm to remind you to take your medicines. If you are interested, the following are some popular medication-tracking apps to check out: Medisafe, Rxmind Me, Pillbox and Pillboxie. Ask your healthcare provider if you should watch your fluids To help you measure your fluid intake 1 cup = 8 ounces = 240 ml 4 cups = 32 ounces = 1 quart = 1000 ml = 1 liter 8 cups = 64 ounces= 2000 ml = 2 liters 1 ml = 1 cc 1 ounce = 30 ml 2 quarts = Here are some examples of liquids and foods to include in your total fluid count: Water coffee and tea Juice milk Ice cream or sherbet Ice cubes- Account for half volume of cup, i.e 16 oz of ice Broth/Soup Jell-O equals 8 oz of fluids Soda Popsicles To keep track of your daily fluid intake, use an empty 2 liter bottle. Using the cup or glass you drank from, fill it with water to the same amount you drank, and then pour into the 2 liter bottle. This will help you gauge how much you are drinking over the course of the day, and when you have reached 2 liters. THIRST QUENCHERS: LIMIT ALCOHOL Avoid salty foods: water goes where sodium is Here are a couple of good reasons to limit your alcohol intake: Eat ice cold fruits and vegetables between meals Nibble on lemon wedges Freeze seedless grapes or blueberries • H elps limit your fluid intake to reduce the strain on your heart. Suck on sour hard candies or chew gum (sugar free if diabetic) • P revents heart muscle damage that may be caused by more-than-moderate alcohol use. Rinse your mouth with water and don’t swallow; or only take sips According to the American Heart Association, a woman should have no more than 1 drink each day (a beer, glass of wine, or cocktail) and men should have no more than 1 to 2 drinks each day. (Note: if alcohol caused your heart failure, stay away from alcohol completely.) Add lemon juice to ice trays and freeze (use ½ lemon per tray of water) Eat crushed ice instead of drinking water. Most people find ice more satisfying than the same amount of water. 1 cup crushed ice = ½ cup water TAKE YOUR MEDICINES AS PRESCRIBED, EVEN IF YOU FEEL BETTER. Skipping one medicine may not seem like a big deal, but it can make all the difference in your treatment. Your medicines help your heart work better and improve your heart function. It is important to work closely with your healthcare provider to make sure you are getting the best and most appropriate medicines and doses for you. TALK TO YOUR HEALTHCARE PROVIDER Make sure your healthcare provider is aware of every prescription, over-the-counter medicine and vitamin or supplement you’re taking, as well as any allergies you may have. Ask questions about your medicines. Learn what medicines you are taking and why. Always ask your healthcare provider or pharmacist before taking any over-the-counter medications or vitamins/ supplements. ALWAYS CARRY A LIST OF YOUR MEDICINES. Keep a current list of your medications including vitamins and supplements with you at all times. (Use page 29 to get started). Show it to your healthcare provider or dentist at each visit. SIDE EFFECTS Every drug has the potential to cause side effects. However, many patients experience none or minor side effects only. Feel free to call your healthcare provider any time a side effect becomes bothersome. Always call your healthcare provider when a side effect becomes severe. But remember to never stop taking a medication without talking to your healthcare provider first. MISSED DOSE If you miss a dose of medicine, take it as soon as you remember. However, if several hours have passed and it is almost time for your next dose, skip the missed dose and go back to your regular dosing schedule. Never double dose in order to catch up. MEDICATION STORAGE Store your medications away from direct heat or light. Do not store in a bathroom, near the kitchen sink or in other damp places because heat and moisture may cause the medicine to break down. Keep your medications tightly closed. Do not keep outdated medicine or medicine that is no longer needed - and make sure discarded medicine is out of reach of children. Do not share your medicines with others. When you have a week of medications left, order more. Use a humidifier or vaporizer at home 20 21 Medications to Avoid Common Medications Many different types of medications are used to treat heart failure. Each type does a different job. ALWAYS ask your healthcare provider before you take any new medicine. COMMON ACEIs: COMMON ARBs: Benazepril (Lotensin®) Fosinopril (Monopril ®) Captopril (Capoten®) Losartan (Cozaar®) Enalapril (Vasotec®) Olmesartan (Benicar®) COMMON ALDOSTERONE ANTAGONISTS: Spironolactone (Aldactone®) Lisinopril (Prinivil®, Zestril®) Candesartan (Atacand®) Trandolapril (Mavek®) Valsartan (Diovan®) Quinapril (Accupril®) Irbesartan (Avapro®) Ramipril (Altace®) Telmisartan (Micardis®) Moexipril (Univasc®) • Do not take any pills for pain except Tylenol (acetaminophen). Do not take more than 4,000mg daily. Aldosterone Antagonists • Avoid all other over-the-counter anti-inflammatory agents for pain, such as Ibuprofen (Advil®) or Naproxen (Aleve®). They can cause you to gain fluid and may decrease the effectiveness of your other medications. • Avoid medications containing Aspirin such as Excedrin®, BC Powder. It is OK to take a baby aspirin (81mg) daily or other aspirin prescribed by your doctor. • Do not take any herbal medications or dietary supplements without approval of your healthcare provider or pharmacist. • Do not take Alka-Seltzer® or any other fizzing or effervescent medications. They contain a high amount of sodium which can cause you to gain fluid and strain your heart. • Avoid medications and herbal products that contain ® Pseudoephedrine (Sudafed ), Ephedrine (ma huang, Herbalife®) or Oxymetazoline (nasal sprays such as Afrin and Dristan). These medications speed up your heart rate and raise your blood pressure. Eplerenone (Inspra®) PREVENT FLUID BUILDUP AND LOSS OF POTASSIUM Works like a water pill (diuretics). Shown to help patients live longer, feel better and spend less time in the hospital. IMPORTANT TO KNOW • Your healthcare provider will need to check labs on your kidneys (BUN and creatinine) and potassium levels especially during the first few weeks. •May increase your potassium levels in your blood. •Beware of potassium-containing salt substitutes. They may further increase your potassium level when using Aldosterone Antagonists. Always check with your healthcare provider before using a salt substitute. MEDICATIONS TO AVOID: Ibuprofen (Advil®, Motrin®) Naproxen (Aleve®) Ketoprofen (Orudis/KT®, Akron®) Excedrin® BC Powder® Alka-Seltzer® 22 POTENTIAL SIDE EFFECTS •Increased urine frequency •Dry mouth, increased thirst • Muscle weakness, cramps • Upsets stomach, diarrhea • Nausea CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: Pseudoephedrine (Sudafed®) • Severe weakness, dizziness or muscle cramps Ephedrine (ma huang, Herbalife®) • Rash, hives or itching xymetazoline (nasal sprays such O as Afrin® and Dristan®) • With Spironolactone (Aldactone ®) only: As a rule, AVOID any medications that speed up your heart or contain sodium. Angiotensin Converting Enzyme Inhibitors (ACEIs) Angiotensin II Receptor Blockers (ARBs) RELAXES BLOOD VESSELS AND DECREASES BLOOD PRESSURE SO THE HEART CAN PUMP BLOOD MORE EASILY. ACE inhibitors and ARBs have been proven to help you live longer, feel better and spend less time in the hospital. They also reduce heart remodeling when your heart tries to get stronger by becoming bigger. While this sounds like a good idea, a bigger heart becomes weaker over time. IMPORTANT TO KNOW • Avoid sudden changes in position. Sit down or lie down if you feel lightheaded. • Take Captopril and Quinapril on an empty stomach (one hour before meals or two hours after meals if possible). • May increase your potassium levels in your blood. • Beware of potassium-containing salt substitutes. They may further increase your potassium level when using ACEIs or ARBs. Always check with your healthcare provider before using a salt substitute. • Your healthcare provider will need to check labs on your kidneys (BUN and creatinine) and potassium level from time to time. POTENTIAL SIDE EFFECTS • Dizziness/lightheadedness and fainting early in therapy. Likely to occur when standing up from a sitting or lying position. • Skin rash (with or without itching), fever or joint pain • Persistent dry cough, impaired taste perception • Headache, fatigue or insomnia CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: • Chronic dry cough • Severe weakness, dizziness, confusion • Change in how much or how often you urinate • Numbness in hands, feet or lips VERY RARELY, ACEIs OR ARBs CAN CAUSE A CONDITION CALLED ANGIOEDEMA. Angioedema is the rapid swelling (edema) of the face, tongue, mouth or throat sometimes with numbness or itchiness in these areas. Get immediate medical attention if you experience any of these symptoms. • ARBs are like ACEIs, sometimes they are given when a patient cannot take an ACEI due to side effects. Men: b reast tenderness or trouble obtaining an erection. Women: irregular menstrual cycle. 23 Angiotensin Receptor Neprilysin Inhibitors (ARNI) Beta Blockers COMMON ARNI: COMMON BETA BLOCKERS: Metoprolol succinate (Toprol XL®) Relaxes blood vessels and decreases blood pressure so the heart can pump out blood more easily. Carvedilol (Coreg®) Bisoprolol (Zebeta®) IMPORTANT TO KNOW SLOWS THE HEART RATE AND DECREASES BLOOD PRESSURE. Valsartan/Sacubitril (Entresto®) • To lower the chance of feeling dizzy or fainting, rise slowly over a few minutes when sitting or lying down. Be careful climbing stairs. • Increases your potassium levels in your blood. • Beware of potassium-containing salt substitutes. They may further increase your potassium level when using ARNIs. Always check with your doctor before using a salt substitute. • Your healthcare provider will need to check labs on your kidneys (BUN and creatinine) and potassium level from time to time. • Can take with or without food. POTENTIAL SIDE EFFECTS • Dizziness/lightheadedness • Cough CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: • Severe dizziness or passing out • Severe weakness or fatigue • Cough that does not go away Very rarely ARNIs can cause a condition called angioedema. Beta blockers help reduce the workload of your heart and improve heart function to reduce symptoms. Proven to increase the lifespan of heart failure patients! IMPORTANT TO KNOW • May make you feel tired, weak, or dizzy when first started. Your body usually adjusts to this over the first couple weeks. If these symptoms occur, sit or lie down. • Always take Carvedilol (Coreg®) with food. Food slows down the rate of absorption to prolong therapeutic effects and reduces side effects (lightheadedness when rising or standing). • May make you more sensitive to cold temperatures. • For men: May make it more difficult to obtain an erection. Talk to your healthcare provider if this occurs. • Can mask signs of low blood sugar and alter blood sugar levels if you have diabetes. POTENTIAL SIDE EFFECTS • Dizziness, lightheadedness, fainting - see above. • Drowsiness, fatigue Angioedema is the rapid swelling (edema) of • Stomach pain, diarrhea the face, tongue, mouth or throat sometimes CALL YOUR HEALTHCARE PROVIDER IF YOU with numbness or itchiness in these areas. Get immediate medical attention if you experience any EXPERIENCE: of these symptoms. • Large rash • Worsening of asthma or COPD (Chronic Obstructive Pulmonary Disease) 24 Digoxin (Lanoxin , Digitek®) Diuretics ® INCREASES THE STRENGTH WITH WHICH THE HEART PUMPS. Increases the amount of blood pumped with each beat. May also be used to treat irregular heart rhythms. Improves the ability to exercise and decreases time spent in the hospital. IMPORTANT TO KNOW • Your healthcare provider will check your blood level in 2-3 weeks after digoxin is started or the dose is changed. POTENTIAL SIDE EFFECTS • Loss of appetite • Nausea • Diarrhea • Headache • Extremely slow or irregular heartbeat CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: • Loss of appetite or unexpected weight loss • Nausea or vomiting • Confusion, mental disturbance • Vision changes (blurred or bluish, yellow or white vision) • Dizziness or rapid heartbeat COMMON DIURETICS (WATER PILL): Furosemide (Lasix®) Torsemide (Demadex®) Bumetanide (Bumex®) Metolazone (Zaroxolyn®) DECREASES THE AMOUNT OF WATER IN THE BODY BY INCREASING THE FLOW OF URINE. Helps get rid of excess fluid that may collect in your lungs or settle in your feet or legs. Less fluid makes it easier for your heart to pump. IMPORTANT TO KNOW • Take it early enough in the day to avoid sleep interruptions (trips to the bathroom). • May be taken with food or milk. • May make you thirsty. Limit yourself to the fluid intake recommended by your healthcare provider. • Your healthcare provider will need to check labs on your kidneys (BUN and creatinine) and potassium levels from time to time. • You may need to take a potassium supplement. • May increase blood sugar levels if you have diabetes. POTENTIAL SIDE EFFECTS • Increased urination (trips to the bathroom) • Dizziness/lightheadedness when standing up from sitting or lying down • Stomach upset, nausea • Low potassium or sodium • Muscle weakness, cramps • Limb heaviness CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: • Severe weakness, dizziness or leg cramps • Hearing loss or ringing in the ears • Worsening chest pain • Vomiting • Slow heartbeat • Rash, hives or itching 25 Vasodilators Mineral Supplements COMMON MINERAL SUPPLEMENTS: Potassium Chloride (K-Dur®, Klor-Con®, K-Tab®, Slow-K®, Micro-K®) COMMON VASODILATORS: Hydralazine (Alpresoline®) Isosorbide Mononitrate (Imdur®, ISMO®) Isosorbide Dinitrate (Isordil®) REPLACE POTASSIUM OR MAGNESIUM THAT MAY BE LOST WITH DIURETICS (WATER PILLS). Nitroglycerine Patches (Transderm-Nitro®) Helps with muscle and heart contractions. Hydralazine/Isosorbide Dinitrate (BiDil®) IMPORTANT TO KNOW • May cause stomach upset. Take after meals or RELAXES BLOOD VESSELS, ALLOWING THEM TO DILATE (WIDEN/OPEN). Magnesium Oxide (Mag-Ox®, Uro-Mag®) with food. • Do not crush or chew K-Dur extended-release ® tablets. But they can be split in half or allowed to disintegrate in a small amount of liquid (about 4 ounces) and consumed immediately. • Extended-release capsules (Klor-Con®) can be sprinkled onto a small amount of soft cool food like applesauce and should be swallowed immediately without chewing. • Oral powder for liquids should be dissolved in 4 ounces of cold water or other beverage and consumed after a meal. • Beware of potassium-containing salt substitutes. They may further increase your potassium level. Always check with your healthcare provider before using a salt substitute. • If you notice blackish stools or other signs of stomach or intestinal bleeding due to medication irritation of the digestive tract’s lining, call your healthcare provider. POTENTIAL SIDE EFFECTS •Stomach pain/gas •Upset stomach or throwing up •Diarrhea CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: •Bloody or black tarry stools •Severe stomach pain •Vomiting blood or vomit that looks like coffee grounds •Irregular or slow heart rate •Nervousness or confusion This decreases pressure and allows more blood to flow through the vessels, reducing the workload of the heart. IMPORTANT TO KNOW •Take hydralazine with or without food or meals, but take it consistently, the same way each time. •Take first (or only) dose of oral nitrates first thing in the morning after waking. •Take extended-release nitrates, such as Isosorbide Mononitrate CR (Imdur®), with a glass of water. •Headache often occurs during the first few doses but it is usually not a problem after that. POTENTIAL SIDE EFFECTS •Drowsiness •Headache •Dizziness •Flushing •Blurred vision •Dry mouth CALL YOUR HEALTHCARE PROVIDER IF YOU EXPERIENCE: Activity and Exercise Studies have shown that exercise has many benefits for people with heart failure, it has been shown to make you feel better, have fewer hospital stays and enjoy your life more. ACTIVITY AND EXERCISE CAN HELP YOU: • Improve the flow of your body’s blood, like fuel for your car • Tone your muscles • Strengthen your heart and body • Control your weight • Manage your stress • Improve your mental health • Raise your spirits and energy level Ask your healthcare provider before starting an exercise program. Your healthcare provider can help you to determine an exercise plan based on your interests and fitness level. It is important to do low- level activity every day. An exercise program may include a variety of activities such as: •Severe tiredness • Walking •Large rash • Low-impact mat and water aerobics •Chest pain • Swimming • Cycling Choose an activity that you enjoy. If you like the activity, you are more likely to continue doing it. It may be more enjoyable if you involve friends or family in your activities •Severe weakness, tiredness, lightheadedness, fainting or passing out 26 •Shortness of breath or difficulty breathing 27 My Medications Activity and Exercise EXERCISE TIPS It is important to get into a regular routine that includes activity that starts out slowly and then increases gradually. Remember you may have better days than others, however continuing with your routine will be beneficial. If you are too short of breath to talk while you walk, slow down or stop and rest NAME: DATE OF BIRTH: MEDICATION ALLERGIES WHAT HAPPENS: Avoid exercising outdoors when it is too cold, hot or humid, as this can stress the body and may cause symptoms such as dizziness, shortness of breath, or even chest pain. Consider indoor activities when the weather is poor, such as walking in a shopping mall. Be sure to allow plenty of time for rest every day, especially after meals. Avoid activities that cause you to strain The goal is to start with a low intensity activity and increase the duration of the activity over time. How often and how long you do the activity is most important, not intensity of the activity. Engaging in different activities can also be of benefit (e.g. walking and exercise bike) SAFETY ADVICE START DATE NAME OF MEDICATION DOSE (MG, UNITS, PUFFS) FREQUENCY OF DOSE TIME TO TAKE PURPOSE COMMENTS Stop exercising immediately and call your healthcare provider if you experience: • Pain or pressure in your chest area or neck, shoulder, or arm during or after exercising • Shortness of breath at rest • Sudden dizziness • Unusual tiredness • Different heartbeat feelings such as too fast, too slow • Other new symptoms Keep a record of your activities. Show your exercise log to your healthcare provider. Together you can decide if your exercise routine is helping you improve your heart condition or if you need to change level of activity. IS IT OKAY TO HAVE SEX AGAIN? People with heart failure often wonder whether - and when - they can safely resume sexual activity. Once you are feeling back to normal, it is often okay to resume sexual activity. Discuss this topic with your healthcare provider. CARDIAC REHAB & YOU Cardiac rehabilitation can help speed up your recovery and reduce your chances of future heart problems. Whether you exercise at home or in a formal program, cardiac rehabilitation exercises are designed to improve your quality of life after you’ve had a heart attack or another heart problem. Medicare and Medicaid services pay for cardiac rehabilitation in certain cases. Ask your healthcare provider if you qualify. 28 29 EXERCISE LOG DATE ENERGY LEVEL BEFORE L 30 M H ACTIVITY/EXERCISE ACTIVITY DURATION NOTES ENERGY LEVEL AFTER L M NOTES H 31 FOR MORE INFORMATION To find health information, or for convenient and secure access to your medical record through MyHealth Online, please visit UVMHealth.org/MedCenter or call us at (802)847-0000. CARDIOLOGY 111 Colchester Avenue McClure, Level 5 Burlington, Vermont 05401 PHONE (802) 847-2452 Heart Failure Clinic Phone (802) 847-4600 UVMHealth.org/MedCenter
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