MAKING STRIDES Grand River Chapter WWW.MSSOCIETY.CA Grand River Chapter Winter 2016 Edition Chapter Office: 35 Belmont Ave. W. Kitchener N2M 1L2 (519) 569-8789 CONTENTS First Year Anniversary 2 Peer Support 3 In the Community 4 New Year—New Beginning 5 Upcoming Fundraisers 6, 7 Volunteer Opportunities 8, 9 Past Grand River Events 10, 11 Membership 12 E-mail: [email protected], Programs & Services Coordinator [email protected], Community Outreach Coordinator [email protected], Volunteer /Communications Coordinator [email protected], Regional Director Mission Statement Website: https://mssociety.ca/chapter/grand-river- To be a leader in finding a cure for chapter multiple sclerosis and enabling peoFacebook: ple affected by MS to enhance their https://www.facebook.com/ mssocietygrandriverchapter/ quality of life. All programming and services of the MS Society are offered in a barrier-free facility. Grand River Chapter: First Year Anniversary It has been one year since the Grand River Chapter made it’s first appearance, having merged the Wellington, Waterloo and the Cambridge chapters together. We have been truly blessed to have a large community with so much dedication and spirit. The board members alongside many volunteers work hard to plan, organize, and execute many of the fundraising events and programming that happen throughout our chapter including: MS Walk Carnation Campaign Golf Tournaments Val Bremner MS Summer Relay Freedom Ride to End MS Two of a Kind Vendor Show Christmas Cookie Walk to End MS Cakes and Cookies Sale MS Connect 2015: Family Conference Client/Caregiver Support Group BBQs/Picnics/Socials/Holiday Parties Live and Learn program in Guelph, Kitcheand Cambridge ner So what can we expect in 2016? Our successes of 2015 will be enhanced as we adjust to our new and larger community— as we draw on many of our strengths and work on our challenges. This in turn will bring about a stronger chapter, offering more financial and emotional support to anyone living with MS. In doing so, we are able to support our mission and follow through on our values as an organization: We believe in and work toward the full integration of people with multiple sclerosis in all aspects of life. We keep those affected by MS at the centre of our work at every level of the organization. We treat everyone with respect and dignity, and protect their privacy and rights to make decisions about their lives. We provide meaningful benefit to the greatest possible number of people affected by MS. We give hope to people affected by multiple sclerosis. We acknowledge the grassroots of our organization as one of its greatest strengths. We recognize that volunteers, donors, and employees are critical to our success, and we celebrate their commitment. We demonstrate ethical behaviour and integrity. We adhere to the highest standards of quality, transparency, and accountability. 2 Peer Support for those living with MS in the Grand River Chapter MS Peer Support Program The MS Society is pleased to offer a telephone/internet peer support program for individuals living with MS. You may be newly diagnosed, you may have a specific question, or maybe you are dealing with an issue related to your MS. Sometimes the best person to talk to is someone who also has MS. Volunteers from across Canada are provided with extensive training to ensure they have the skills to best support you. How does it work? Contact the MS Society of Canada, Peer Support Program at [email protected] or 1-800-268-7582 x3149 to request more information or an application. You will fill out an application and have a conversation with the program coordinator to ensure we can properly match you with a volunteer. Once a volunteer is secured, you will be notified by the program coordinator and the volunteer will contact you. Together you will decide on the frequency of communication – some people want to chat just a few times and others maintain an ongoing connection. The MS Society will monitor matches up to 6 months. For this program, we are also looking for Peer Support Volunteers. We are looking for individuals who are at a place in their own experience where they feel they can effectively support others. We are looking to fill our training sessions with volunteers representing a diverse range of experiences and a diverse range of ages, locations, and other demographic qualities. We are looking for volunteers who meet the following criteria: Be 18 years or older and diagnosed with MS (or an allied disease) for a minimum of two years Be at a point in your journey where you can provide support to others Sign volunteer and confidentiality agreements Submit documents for a criminal records check (CRC) before starting as a volunteer (must be renewed every three years). The MS Society will process the check at no cost to the volunteer. Be available to participate in online volunteer training (1.5 hours a week for 5 weeks with some additional time for reading and practice) Agree to a one year minimum commitment to the program from the time you have c completed training and screening 3 In the Community Great ideas happen when we come TOGETHER Many of the events we run within the Grand River Chapter are possible because a group of people have come together to form a committee and make great things happen. These committees are formed for the: The MS Walk Committee The Carnation Campaign Hard Day’s Night Committee Live and Learn/Education Committee If you are looking to put your gifts and skills to work or want more information about what is involved please give Laura or Sandra a call at 519-569-8789. MS Society Scholarship Program There are two categories of scholarships available thanks to generous sponsors: the Follow the Leader Scholarship, sponsored by KRG Children's Charitable Foundation, and the John Helou Scholarship, sponsored by Pfizer and Rx&D. The purpose of the scholarship program is to encourage academic excellence and the pursuit of higher education among students who are directly affected by Multiple Sclerosis (MS); provide the path and framework for scholarship recipients to become the MS leaders of the future and to; strengthen the pool of scientific, engineering, math and technology students who consider a focus on MS to be part of their career of choice. To apply go to: https://juno.aucc.ca/app/mssociety.html All applicants are required to submit a completed scholarship application form before March 31, 2016, 11:59 pm Eastern Time. 4 New Year—New Beginnings In looking at the year ahead, have you made any plans, any commitments to yourself? We hope one of those commitments is to take great care of yourself. A part of taking care of yourself is having a support network in place. Everyone’s support network looks very different. As you continue on your journey living with MS, we want to ensure you are feeling heard and understood. One way we offer support is through our Peer Support Program as mentioned on page 3, but also through our support groups. These are offered in Cambridge, Guelph, Kitchener/Waterloo. These groups include both men and women and is a great place to find answers, and to just be heard. Support/Educational Groups Support Group 3rd Wednesday of the month, 1pm-3pm (Double check the calendar, the date does change periodically) 35 Belmont Ave. W, Kitchener Caregiver Support Group/Client Movie Night 1st Wednesday of the month, 6:30pm-8:30pm 35 Belmont Ave. W., Kitchener Support Group 4th Thursday of the month, 7pm-9pm Cambridge Lions Club 50 Ainsley St. Cambridge Self-Help Group 1st Tuesday of every month, 11:00am-1:00pm 3rd Tuesday of every month from 6:30pm to 8:30pm Royal on Gordon Retirement Residence Library, 1691 Gordon Street, Guelph, ON. For more information contact Manon at (519) 546-7914 or email her at [email protected] Live and Learn Educational Series: Tuesday February 23rd– 12pm-2pm Topic: Occupational Therapy Location: Riverside Glen Retirement Residence, 60 Woodlawn Rd. E. Guelph Thursday March 24th– 12pm-2pm Topic: Acupuncture/Naturopathy Location: Arbour Trails Retirement Residence, 32 Bayberry Dr. Guelph Tuesday April 26th– 12pm-2pm Topic : Nutrition and MS Location: Zehrs, Paisley and Imperial Road, Guelph: The community room. 5 Upcoming MS Fundraisers: Use the power of the flower to end MS. Help raise awareness about multiple sclerosis by purchasing or volunteering to sell carnations on street corners, malls, and other public spaces. May 6th and 7th, 2016 Where: Various locations across Grand River Chapter. More information or preorders: Contact the Grand River Chapter at (519) 569-8789 or by email at [email protected] or [email protected] 6 7 Grand River Volunteer Opportunities Board of Directors The Multiple Sclerosis Society, Grand River Chapter, is actively seeking new volunteers to join the Board of Directors. Board members work as a team to provide leadership and strategic direction in the areas of finance, fundraising, communications and client services. Board members also take a hands on role; coordinating fundraising initiatives, volunteering at special events, creating opportunities for education, and developing and implementing programs to improve the lives of those living with MS. The board meets monthly six times a year to update, discuss, problem solve and delegate. Between meetings members work on sub committee’s that suit their strengths and interests. Board members work directly with staff and agency volunteers to ensure that all fundraising and client based events are staffed and successful. Time approximate time commitment is ten hours per month. The Grand River Chapter covers Guelph, Kitchener-Waterloo, Cambridge and surrounding areas. Board and sub-committee meetings take place in all three cities. Special events also take place in all three cities. Board Members focus their time where they live. Live and Learn Leads for Kitchener/Cambridge We are seeking a volunteer to assist us with planning our Live & Learn Sessions for the Kitchener Waterloo and Cambridge area. Live and Learn sessions are educational workshops held once every two months at the Dunfield Retirement Residence in Cambridge or at the MS Society office in Kitchener. Guest speakers come and talk with clients about topics that would benefit and interest them. Some examples of workshop are: pain management, cognitive fitness, coping with fatigue, nutrition, using mobility aids, government programs, managing depression and anxiety, tai chi, yoga and arts and crafts. The volunteer Live and Learn Lead would work with staff, and the Guelph area Live and Learn Lead, to come up with creative ideas for speakers. The Lead would then take the ideas and work to find speakers and line up dates and times for the speaker to present to the MS Society clients in Cambridge and/or Kitchener. The Live and Learn Lead is also expected to attend the workshops to greet the speaker, introduce them to the speaker and clean and close the facility as needed. Craft Group Lead(s) We are seeking creative and crafty volunteers who can lead our monthly Craft Group for clients in Kitchener. Volunteers will bring their ideas and expertise to the program. A small budget is provided for supplies. This group runs the last Friday of every month from 11:30a.m. to 1:30p.m. 8 Special Event Committee Members We are looking for volunteers who want to join our special event planning committees. Committee members work as a team, along with staff, to coordinate all aspects of an event from themes, entertainment and decor to recruiting participants, marketing the event, gaining sponsorship and prize donations. We are currently seeking volunteers for our newest upcoming event A Hard Day’s Night - a 1960’s themed evening out with Beatles cover Band Daytripper. The night will also feature 1960’s inspired dance performances, a dance lesson to Twist & Shout, hula-hoop competitions and best Beatles look alike and best dressed Hippie awards. Retro food and drink will be served while guests dance the night away! Committee members work on their own schedule and meet every three-two weeks until the event date which is April 1st. Cambridge Support Group Lead We are seeking an individual who has education or experience in group facilitation and is familiar with the social and economic barriers that people with disabilities face. Our clients all live with MS but can be effected very differently; some clients are mobile while others require assistance devices. MS can also effect memory, cognitive processing, eye sight and speech. The Support Group Volunteer would encourage group discussion and sharing among clients. This is not a group therapy program, so no specific therapeutic techniques need to be employed. We are seeking someone who is comfortable encouraging group participation and reflection, making sure everyone who wants to share has the opportunity too, and as needed, is able to remind participants of group guidelines such as non-judgment and confidentiality. Support Group Lead will also prepare snacks for clients. A budget will be provided. This position takes place once a month in Cambridge at the Lions Club 50 Ainslie St N. Event Day Volunteers We are seeking volunteers who can assist on site at events the day of the event. Our current events include: Hard Day’s Night (April), Carnation Flower Campaign (May), MS Walkathon (May), Freedom Ride the End MS (August). Shifts vary in length and training is often the day of the event. This is a fun way to make a difference without committing to a long term volunteer role. If you are interested in any of these positions or have any questions, please contact: Sandra Clarke, Volunteer & Communications Coordinator, Grand River Chapter 35 Belmont Ave W, Kitchener, ON N2M 1L2 Phone: 519-569-8789 | Email: sandra.clarke @mssociety.ca 9 Past Chapter Events: What a Success! Christmas Celebrations Three Time Over! Grand River Chapter celebrated the holidays well this year with three Christmas parties, one in Guelph, Kitchener and Cambridge. Members of Grand River were given the opportunity to enjoy a festive meal together, celebrating with other members of our community. A huge thank you goes to Bel and Gary of the Southwest Kitchener Optimist Club for providing us with a delicious meal and a wonderful space to celebrate, thank-you as well to John Duffy and Mary Henein from the Grand River Chapter board for organizing the Wellington and Cambridge Christmas parties. Bel and Gary Young of the KW Optimist Club smile after preparing a delicious meal– thank you! Grand River-Wellington announce the volunteer of the year award at the Wellington Christmas party Annual Holiday Cakes & Cookies Campaign Once again the MS Society took to the community selling our holiday wares: shortbread cookies, fruit cake, cherry cake and truffles. A very special thank you to all of the volunteers who made this campaign possible! Volunteers are the back bone of this fundraising initiative, without volunteers selling and driving product to and from sale sites this initiative would not be possible. A thank you also goes out to all of the retirement residences that allowed us to come in and sell on site to their residents. This year we raised $10,000 to go towards providing support services and financial aid to people living with MS in our communities. Pauline and Janelle sell at St. Mary’s selling our delicious First Ever Christmas Cookie Walk to End MS! Volunteers stepped up when the call went out for bakers this year! Yummy cookies, balls, bars and bark made for a beautiful holiday spread at the first annual Cookie Walk to End MS at the Grand River Chapter. On Friday, December 18th , people were waiting at the door to get in and pick out their own scrumptious holiday treats. A very special thank you to all the volunteers who baked for this years sale. Thank you to Annette for your help at the sale. This years sale raised a much needed $650. 10 TM Jazz, In Harmony to End MS TM Jazz , Tim Moher and the Multiple Sclerosis Society presented our annual concert – In Harmony to End MS on November 28th at The Conrad Centre for the Performing Arts in Kitchener. The event was a resounding success with a sold out audience. This year’s concert was truly a memorable compilation of instrumental, vocals and dance. Performers included local artists such as; Soul Sauce, Rebecca Binnendyk, Jessie Treneer, Rob Grundy, Jo Jo Worthington, Peter Shaw and many more. This year’s show also featured local dancers performing Irish, jazz and contemporary. The concert raised $2000 for the Grand River Chapter! A special thank you to Tim Moher for his continued support. Mark your calendar for December 3rd, 2016 so you don’t miss next years concert! Two of A Kind Vendor Show On November 8, 2016, the Grand River Chapter of the MS Society hosted the first ever Two of a Kind Vendor show at Waterloo Flowers. Starting off the holiday season in a giving spirit, shoppers were able to shop guilt free with proceeds from their purchases going to their local MS Chapter. Two of a Kind supported community vendors, and funds raised went directly to help people in our community living with multiple sclerosis. This vendor show brought in over 60 local vendors with over 800 people in attendance. Shoppers were able to check most of their items off their Christmas list, purchasing everything from handmade jewelry, soaps, dishware, clothing, pottery and were able to stop and get a sweet treat or some hot apple cider. A big thank you goes to all the volunteers, vendors and shoppers for supporting people in their community who are living with Multiple Sclerosis. Vendors and shoppers in their festive spirit at our Two of a Kind Vendor show– What a huge success! 11 Become a Member of the MS Society: Grand River Chapter 12
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