Update on California’s
Developmental Disabilities System
UCSF Presentation
March 2, 2017
The Lanterman Developmental Disabilities
Services Act (Lanterman Act)
The Lanterman Developmental Disabilities Services Act passed in 1969.
This California law states that people with developmental disabilities and
their families have a right to get the services and supports needed to live
like people without disabilities.
Last year marked the 50th Anniversary of Supporting Consumers in the
Community.
Nancy Bargmann, Director
California Department of Developmental Services
Sacramento, CA
System Structure
Department of Developmental Services
Mission
Governor’s Office
The Department of Developmental Services (DDS) is
committed to providing leadership that results in quality
services to the people of California and assures the
opportunity for individuals with developmental disabilities to
exercise their right to make choices
California Health
and Human Services
Agency
Vision
Developmental
Centers
State Operated
Community Facility
“Building Partnerships, Supporting Choices”
Department of
Developmental
Services
contract
s with
21 Regional Centers
vendoriz
e
local case
management
Service Providers
direct services and
supports
Consumers
Consumer Population
System Structure
• DDS contracts with 21 regional centers (RCs) throughout California
to serve over 300,000 individuals who have a developmental
disability (consumers)
• RCs work with approximately 45,000 vendors who provide direct
services and supports to consumers
• We work with a system of partners (other organizations,
stakeholder groups, individuals and families) to implement the
vision of the Lanterman Act
As of December 2016
304,000
249,500
214,000
183,000
2011
2006
2002
Consumer Population by Age
Regional Center Consumer Population
As of December 2016
As of December 2016
2002 2006 2011 2016
Inland
31,300
35,000
2016
38%
30,000
37%
36% 36%
36%
34% 34%
33%
25,000
20,000
Average
14,400
15,000
13%
12% 12% 11%
10,000
5,000
-
8%
Redwood Coast
3,600
Infants (0 to 2)
Children (3 to 17)
8%
9%
9%
Young Adults (18 to 21)
7%
Adults (22 to 51)
8%
10% 10%
Seniors (52 and Older)
Consumer Population by Diagnosis*
Consumer Population by Living Arrangement
As of December 2016
Developmental Center
1.3%
0.7%
0.3%
Skilled Nursing Facility
0.7%
0.5%
0.4%
Other
0.7%
0.6%
0.6%
Intermediate Care Facility
Independent Living
Community Care
Home of Parent/Guardian
As of December 2016
2006 2011 2016
2006 2011 2016
69%
3%
3%
2%
62%
55%
34%
9%
9%
8%
18%
12%
11%
10%
73%
75%
78%
25%
Autism
18%
16% 14%
Cerebral Palsy
20%
17%
15%
Epilepsy
10% 11% 10%
Intellectual Disability
Other
* A consumer is counted under multiple categories if he/she has more than one diagnosis
Population of Developmental Centers and State-Operated
Community Facilities
DDS Proposed Budget
FY 16/17 – Updated- Proposed
FY 17/18 – Proposed
• Community Services
$ 5.8 bil
• Community Services
$ 6.4 bil
• Developmental Centers
$ 0.5 bil
• Developmental Centers
$ 0.4 bil
• Headquarters Support
$ 0.1 bil
• Headquarters Support
$ 0.1 bil
• Total DDS
$ 6.4 bil
• Total DDS
$ 6.9 bil
Federal Funding
Regional Center Funding for FY 2016-17
(per 2017-18 Governor's Proposed Budget)
Who we serve
General/State Funds
$
3,561,875
Medicaid Reimbursements
$
2,235,910
Other Federal Funds
Early Start/Part C Grant
3% 1%
$
Asian, 9%
214,233
$
Total
52,895
$
White, 32%
Medicaid
Reimbursements
Other Federal Funds
Early Start/Part C
Grant
General Fund (GF) is the main operating fund of the state.
Medicaid Reimbursements provide funding for services
and activities such as:
•
•
•
•
Services for eligible individuals who live in their communities.
Regional Center activities such as Case Management
Administrative Functions associated with Medicaid programs.
Pacific
Islander, 0%
Other, 13%
Consumer Population by Ethnicity
Asian
Black/African American
Other
White
Hispanic
Native
American,
0%
Funds services and activities to support individuals who live in
their communities.
Pacific
Islander, 0%
Hispanic/Lat
ino, 38%
Other, 3%
Native
American,
1%
Hispanic/Lat
ino, 38%
Sources: DDS consumers: FY 2014-15 Client Master File; California: U.S. Census Bureau, 2010 decennial census.
Note: “Other” includes multiple and unreported ethnicity.
Who we serve
Filipino
White, 40%
6,064,913
Other Federal Funds:
Services Authorization and Utilization
2006 2011 2016
0.2%
0.2%
0.2%
0.4%
0.4%
0.3%
Black/Africa
n American,
6%
General/State Funds
59%
Native American
Asian, 13%
Black/Africa
n American,
9%
* Values in thousands
37%
Polynesian
California's Population by Ethnicity
Regional Center Consumers by Ethnicity
$25,000
$20,000
$15,000
2%
2%
2%
6%
6%
7%
$10,000
$5,000
10%
10%
9%
8%
10%
$0
11%
32%
33%
41%
36%
35%
38%
White
American Indian or
Alaska Native
Black/African
American
Asian
Authorized
Budgeted
Native Hawaiian or
Other Pacific Islander
Hispanic/Latino
Hispanic
Utilized
Used
Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide – based per Capita
Other Ethnicity or
Race
Recent Changes
Services Authorized and Utilization
100%
• Restoration of the Early Start Program
95%
• Restoration of prior service provider payment reductions
90%
85%
84%
80%
83%
81%
81%
81%
79%
77%
75%
• Additional funding for a paid internship program and service provider
placement incentive funding for competitive integrated employment
70%
65%
• Rate increases for specific service types and to provide additional
compensation for direct service providers
White
American Indian
or Alaska Native
Black/African
American
Asian
Native Hawaiian
or Other Pacific
Islander
Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide
Hispanic
Other Ethnicity or
Hispanic/Lati
Race
no
Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide
• Additional funding to RC to address purchase of service disparities for
the underserved population
DDS Priorities & Initiatives
Recent Changes
• Increased funding to address statewide minimum wage increases
• Increased funding to facilitate development of community resources for
individuals transitioning from DCs and to meet challenging service needs
• Increase funding for RC Operations
• Reduce Caseload Ratios
• New Positions
•
•
•
•
•
•
•
•
New Legislation and Funding
Home and Community-Based Settings
New Community Service Models
Self-Determination Program
Reduce Inequity/Disparities in Our System
Reporting on Regional Centers
Developmental Center Closures / Transition Activities
Community Development