Family and Patient Education for Chest Wall Deformities
Barbara J. Bratton MSN, BC-PNP*; Maura O’Day RN, MS, CPNP; Shinjiro Hirose MD; Lan Vu MD; Benjamin Padilla MD; Hanmin Lee MD
University of California, San Francisco Benioff Children’s Hospital
Introduction
Methods
Conclusions
Results
Adolescents with chest wall deformities and their parents benefit
The chest wall deformities program at our institution began in
Questionnaires were distributed to both the minor child and
A standardized curriculum delivered in a classroom setting helps to
from clinical information that is current, comprehensive,
January of 2013 and is held monthly. Teens or nearly teenage
parent(s) attending the Chest Wall Deformities program. Reported
educate the pediatric/adolescent patient and family in a consistent
standardized, and easy to access and understand.
children with chest wall deformities, who were referred to the
results are pooled in the table below. Overall, the attendees
manner, utilizes surgical resources economically, and fosters a
program between 1/2013 and 3/2014, were scheduled to attend
responded favorably when asked about the program and would
solid relationship with the members of the surgical team.
an informal classroom presentation prior to their individual clinic
recommend this to other families.
Objectives:
§  Provide patient and family education by small group instruction
led by a pediatric surgeon and pediatric surgical nurse
practitioner.
§  Provide a comprehensive overview of the etiology and
and held in a classroom with multiple large screens. A pediatric
surgeon and pediatric surgical nurse practitioner led the class,
which was maintained at a relaxed pace to encourage questions.
management of common chest wall deformities, including an in-
Relevant surgical and non-surgical devices were available during
depth review of benefits and risks of surgical/non-surgical
the presentation for the families to examine. Each presentation
treatment options.
§  Use a slide presentation with illustrations, photographs, and
video content to review treatment options.
§  Augment the slide presentation with relevant surgical and nonsurgical devices as props.
References
appointments. The size of each group was limited to 4-8 families
lasted approximately 45 minutes, after which, the surgical nurse
practitioner escorted families from the classroom to the clinic
appointments. The surgeon and nurse saw each child
individually. To evaluate the patient education program, we
Scaled Questions
The Chest Wall Deformities class was helpful to me.
I felt comfortable asking questions during class.
The information presented in class was relevant to me/my child's condition.
The time allotted for the class was adequate.
Attending the class before the surgical appointment was beneficial to me.
The class room size and computer screens were adequate for viewing the presentation.
I would have preferred to have a surgical appointment only without attending a class.
Attending the class was inconvenient for me.
The class content was not helpful to me.
I did not feel comfortable asking questions in class.
I would recommend this class to other families.
Scale* Count 1 -­‐ 5
22
1 -­‐ 5
22
Average Score (mean)
1.3
1.4
Standard Deviation
0.65
0.8
1 -­‐ 5
1 -­‐ 5
22
22
1.2
1.4
0.46
0.86
1 -­‐ 5
22
1.5
0.8
1 -­‐ 5
22
1.5
0.91
1 -­‐ 5
1 -­‐ 5
1 -­‐ 5
1 -­‐ 5
1 -­‐ 5
22
22
22
21
21
4.5
3.9
4.1
4.5
1.4
0.67
1.1
1.19
0.81
0.8
Danielson AK, Rosenberg J (2014) Health related quality of life may
increase when patients with a stoma attend patient care education – A case
controlled study. PLoS ONE March; 9(3): 1-6.
Reiter K (2014) A look at best practices for patient education in outpatient
spine surgery. AORN March; 99(3): 379-384.
Rybarczyk B, DeMarco G, DeLaCruz M (2001) A classroom mind/body
wellness intervention for older adults with chronic illness: Comparing
immediate and 1 year benefits. Behavioral medicine Spring; Vol 27: 1-27.
*1 -­‐ Strongly Agree
2 -­‐ Agree
3 -­‐ Neutral
4 -­‐ Disagree
5 -­‐ Strongly Disagree
distributed surveys to parents and patients over a four-month
period.
www.postersession.com