Living with Heart Failure Heart Failure Education Series What is heart failure? Heart failure, also called congestive heart failure or CHF, is a condition where the heart is unable to pump blood to the rest of the body as well as it should. This may cause fluid to backup in the lungs, liver, or ankles. This backup of fluid is a result of congestion and can cause something known as edema. While the term heart failure may sound scary, you should know that you can still live a full life by making some changes. What causes heart failure? Heart failure usually develops over a period of years and can sometimes be the result of an earlier illness. For example, high blood pressure that is not treated properly for a number of years may cause the heart to get bigger. The heart then becomes weak and no longer pumps well. Sometimes a heart attack damages the heart muscle, making it harder for the heart to pump blood to the rest of the body. Diseased heart valves may prevent the right amount of blood from being pumped forward. Blood may then leak back into other parts of the heart. You should ask your doctor what caused your heart failure if you don’t already know. Sometimes the cause is unknown. What are the signs and symptoms of heart failure? If the heart doesn’t pump blood well, the lungs, kidneys, and other organs can be affected. Certain signs and symptoms can develop, including the following: ▼ Shortness of breath, especially after exercise or at night while lying in bed ▼ Swelling of the feet, ankles, and sometimes the abdomen (belly) ▼ Tiredness ▼ Coughing ▼ Chest discomfort (not always present) ▼ Weight gain It is important that you follow the advice in this booklet for managing heart failure to help you feel better and live longer. If you have chest discomfort or notice a change in how it feels, how long it lasts, or how often it happens, then speak to your doctor. There are many people, however, who have heart failure who never have chest discomfort. Other Symptoms While these symptoms are the most common ones, you may notice a few others. Coughing may be a symptom of heart failure, but it can also occur if you are taking medicines in the vasodilator class known as ACE inhibitors. You should report this symptom to your doctor, but DO NOT stop taking any medicines. Less common symptoms include loss of appetite, dizziness when changing positions, irregular heartbeats, and a fast or slow pulse. Be sure your doctor is aware of these symptoms. Can heart failure be cured? Although heart failure is not curable, your heart function may improve with proper treatment. If you help your doctor to manage your condition, your quality of life should also be greatly improved and you may live a long time. Talk to your doctor about other options. Managing Heart Failure Managing heart failure means getting good care, taking medicine, and watching your diet. Taking an active role in your care and following your doctor’s orders will help to reduce your symptoms. It will also help by cutting down the number of visits to the hospital or emergency room. Medicines Your doctor may ask you to take medicines to help your heart pump better. Some of these medicines are listed on the next page. They may be used alone, or in combination with other medicines. Because many patients with heart failure are asked to take several medicines, you should pay attention to the following points: ✔ Know the name, strength, dosage, and number of times each day you should take each of your medicines. Write this information down and keep it with you. ✔ Develop a plan for remembering to take your medicines. Find a specific reminder that will help you: set the alarm on your watch, put your pills near your toothbrush, or on the windowsill in your kitchen. ✔ Follow your doctor’s orders carefully. Take your medicines as prescribed every day, even if you feel better. Be aware that there may be some side effects from heart medicines. Report side effects to your doctor. Medicines and How They Work Diet Diuretic (water pill): Rids your body of excess fluid. People with heart failure must lower their intake of salt. A low- sodium diet for heart failure includes the following: Digoxin (heart pill): Increases the pumping action of your heart. ▼ Remove all salt shakers from the house or fill them with another seasoning. ACE Inhibitor: Help to keep blood vessels open to improve the circulation, which helps to limit excess fluid accumulation (these agents are also used to treat high blood pressure.) Beta Blockers: Improve heart function by preventing the heart from working too hard. Other Medications: Your doctor may prescribe other medications to treat your heart failure either in addition to or as an alternative to those above. Examples are nitrates and hydralazine which are often given together and work by opening up blood vessels and reducing the work that the heart has to do. Additionally you may receive medication for other conditions such as nitrates for angina and calcium channel blockers for high blood pressure. ▼ Do not use any salt when cooking. Use herbs and spices instead. ▼ Avoid foods that are high in sodium. ▼ Select lower-sodium foods by reading food labels. With heart failure, excess sodium stays in the body. This can cause shortness of breath due to fluid backing up in the lungs. There may also be swelling in the ankles. You will be asked to keep your sodium intake under 2000 milligrams a day. You may also be asked to limit alcohol use or to lose weight. Exercise Your doctor will determine if you are able to exercise. A simple exercise program will help keep your muscles in shape and may also improve heart function. Walking, slow biking, and relaxed swimming are activities that your doctor may recommend. Check with your doctor about the best activities for you. You should stay within the limits that he or she may set. Sexual activity is also a form of exercise. It is important to discuss with your doctor how you can remain sexually active. There is usually little reason why you cannot continue sexual activity. Daily Weights Weighing yourself daily is very important in managing your condition. If you gain three or more pounds within one week, your body may be building up fluid. If this happens, your doctor will want to know if you have other symptoms and you may need to take extra medicine. Here are three tips for weighing yourself: ▼ Weigh yourself every morning after you use the toilet and before you get dressed and have breakfast. ▼ Record your weight to the nearest pound on a daily calendar. ▼ If you gain three or more pounds within one week, call your doctor. Be sure to tell your doctor whenever you notice a weight gain or a change in your symptoms. Communicating these changes allows your doctor to provide the best treatment for you. Monitoring Symptoms You should also be aware of changes in other symptoms, such as increased shortness of breath, chest discomfort, or tiredness. Remember to report the following changes to your doctor right away: Shortness of Breath (Winded, Can’t Catch Breath) One of the first symptoms people experience when they develop heart failure is shortness of breath with activity. It is also important for you to note if shortness of breath awakens you at night or occurs after you have been lying down for a short time and goes away when you sit up. If you notice shortness of breath developing or getting worse, let your doctor know, especially if you also notice a weight gain. Swelling of the Feet, Ankles, or Abdomen (Belly) Swelling in your feet or ankles usually means that your body is holding too much fluid. You may notice this at the end of the day when you take your shoes off. Another way to check is to push your finger against the lower end of the shin bone. If you make a dent in the skin it means that there is excess fluid. At the same time notice your daily weight. Increasing weight is another sign that your body is holding on to too much fluid. Talk to your doctor if you notice any of these signs. Feeling Tired It is common to feel somewhat tired if you have congestive heart failure. Not enough blood is getting to tissues and muscles. You may find you have to pace yourself with certain activities and avoid doing too much in one day. It is important to note if your fatigue level suddenly changes. This requires a call to your doctor. Chest Discomfort Coronary artery disease with or without a heart attack is a common cause of heart failure. Chest discomfort (angina) may be one of the symptoms of coronary artery disease. If you have chest discomfort, pay attention to the following questions: ▼ What does it feel like? Is it a burning, a tightness, pressure, or aching feeling? ▼ Where do you feel it? Does it move down your arm, into your neck, across your chest, or into your back? ▼ When does it happen and how often? Does it happen at night, during exercise, or after meals? Remember: ▼ Know the signs and symptoms of heart failure and which ones need to be reported to your doctor. ▼ Know the name of each medicine you are taking and develop a plan for remembering to take these medicines each day. ▼ Learn everything you can about the sodium content of foods, and stick to a very low-sodium diet. ▼ Weigh yourself daily, and record your weight on a daily calendar. Provided as an educational service by AstraZeneca Pharmaceuticals LP 207651 5/02 © 2002 AstraZeneca Pharmaceuticals LP
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