NHS Dorset Clinical Commissioning Group Suspected Cow’s Milk Protein Allergy in Infants - Guidelines for Health Professionals in Primary Care Supporting people in Dorset to lead healthier lives 1 PREFACE This policy sets out the guidance for prescribing infant formula for cow’s milk protein allergy in Dorset CCG. All managers and staff (at all levels) are responsible for ensuring that they are viewing and working to the current version of this procedural document. If this document is printed in hard copy or saved to another location, it must be checked that the version number in use matches with that of the live version on the CCG intranet. All CCG procedural documents are published on the staff intranet and communication is circulated to all staff when new procedural documents or changes to existing procedural documents are released. Managers are encouraged to use team briefings to aid staff awareness of new and updated procedural documents. All staff are responsible for implementing procedural documents as part of their normal responsibilities, and are responsible for ensuring they maintain an up to date awareness of procedural documents. 2 A SUMMARY POINTS The aim of these guidelines is to promote a consistent approach across Dorset to the management of non IgE mediated Cow’s Milk Protein Allergy (CMPA), and is based on the Map of Medicine guideline developed by the Wessex Allergy Network Group (WANG, 2013) B ASSOCIATED DOCUMENTS State any CCG documents that need to be read in conjunction with this procedural document. C DOCUMENT DETAILS Procedural Document Number ID 131 Author Katherine Gough Job Title Head of Medicines Management Directorate Quality Recommending committee or group Medicines Optimisation Group Approving committee or group Medicines Optimisation Group Date of recommendation (version 1) February 2014 Date of approval (version 1) March 2014 Version 2 Sponsor Director of Strategy and Quality Recommendation date February 2016 Approval date March 2016 Review frequency 2 yearly Review date February 2018 3 D CONSULTATION PROCESS Version No Review Date Author and Job Title Level of Consultation 2 February 2018 Hayley Howells, Medicines Management Technician None – no material changes to policy - updated into new policy template plus minor formatting changes only E Date of issue VERSION CONTROL Version No 10/3/2016 2 Date of next review Nature of change Approval date Approval committee /group Complete Updated into new policy template plus minor formatting changes only 8/3/2016 Medicines Optimisation Group F SUPPORTING DOCUMENTS/EVIDENCE BASED REFERENCES Evidence Hyperlink (if available) British Dietetic Association. Complimentary Feeding: Introduction of solid foods to an Infants Diet. Department of Health . Infant Feeding Recommendations. Dorset Breastfeeding Policy Strategy Group, 2013 Dorset Breastfeeding Policy. Section 3 of The Child and Maternal Nutrition Guidelines for Dorset. Dorset. County of Dorset NHS Trusts. Dorset Child & Maternal Nutrition Guidelines. Du Toit et al Archives Dis Childhood Educ Pract Ed, 95:1 34-44 Fiocchi A, Brozek J, Schünemann M et al. World Allergy Organisation (WAO) diagnosis and rationale for action against cow’s milk allergy (DRACMA) guidelines. Pediatric Allergy and Immunology, 2010;21 (supplement S21): 1-25. Journal Pediatr Gastroenterol Nutr, 55(2):221-229. Koletzko S, Niggemann B, Arato A, Dias JA, Heuschkel R, Husby S. Diagnostic approach and management of cow's-milk protein allergy in infants and children: ESPGHAN GI Committee practical guidelines. 4 Date April 2013. London 2003 Dorset 2009 2010 2010 2012 F SUPPORTING DOCUMENTS/EVIDENCE BASED REFERENCES Evidence Hyperlink (if available) 2012 Koletzko, YB, Niggemann, ZA. Arato, J.A et al Diagnostic Approach and Management of Cow’s-Milk Protein Allergy in Infants and Children: ESPGHAN GI Committee Practical Guidelines. JPGN NICE Guideline CG116 Food allergy in children and young people Vandenplas Y et al Archives Dis Childhood, 92:902-8 Venter et al. Diagnosis and management of non-IgE mediated cow’s milk allergy in infancy – a UK primary care practical guide. Clinical and Translational Allergy 3:23 Wessex Allergy Network (WANG) Map of Medicine Local Care Map – Food allergy suspected. WHO Guiding principles for complementary feeding of the breastfed child WHO Guiding principles for feeding non-breastfed children 6-24 months of age G Date 2011 2007 2013 July 2013. 2003 2005 DISTIBUTION LIST Internal CCG Intranet √ CCG Internet Website √ Communications Bulletin √ External stakeholders These guidelines have been developed by a joint organisation working group comprising the following members: Organisation Name Role Dorset HealthCare University NHS Foundation Trust Sam Leonard Lisa Perkins Sue Gibson Tina Taylor Specialist Services Manager Community Dietitian Health Visitor Health Visitor Dorset County Hospital NHS Foundation Trust Angela Cocks Dr Phil Wylie Elizabeth Carter Children’s Dietitian Consultant Paediatrician Breastfeeding advisor Poole Hospital NHS Foundation Trust Sophie Puttock Dr Mark Tighe Children’s Dietitian Consultant Paediatrician Royal Bournemouth and Christchurch NHS Foundation Trust Odette Rodda Specialist Nurse in Paediatric Dermatology Dorset Clinical Commissioning Group Hayley Howells Pharmacy Technician, Medicines Management Team 5 CONTENTS PAGE 1.0 Relevant to 8 2.0 Introduction 8 3.0 Scope 8 4.0 Purpose 8 5.0 Definitions 9 6.0 Roles and responsibilities 9 7.0 Breast Fed infants 10 8.0 Formula fed infants less than 6 months of age 10 9.0 Formula fed infants over 6 months of age 10 10.0 Secondary lactose intolerance 10 11.0 Training 11 12.0 Consultation 11 13.0 Recommendation and approval process 11 14.0 Communication/dissemination 11 15.0 Implementation 11 16.0 Monitoring compliance and effectiveness of the document 12 17.0 Document review frequency and version control 12 APPENDICES A Cows Milk Protein Allergy Pathways 12 / 13 B Initial Assessment for possible Cow’s Milk Protein Allergy (CMPA) and Signs and Symptoms of possible food allergy 14 / 15 C Milk free diet for breastfeeding 16 D Weaning onto a milk free diet 21 E Guidelines for indications for using specialised infant formula for infants aged 0-6 months and aged over 6 month 35 F Milk reintroduction for breastfeeding mothers 39 G(i) Milk reintroduction for babies under 6 months 40 G(ii) Milk reintroduction for babies over 6 months 41 H Weaning onto a milk and soya free diet 50 I Equality Impact Assessment Tool 58 6 SUSPECTED COW’S MILK PROTEIN ALLERGY IN INFANTS GUIDELINES FOR HEALTH PROFESSIONALS IN PRIMARY CARE 1. RELEVANT TO 1.1. This strategy/procedure/policy/protocol is relevant to all healthcare professionals in the Dorset area who may be involved in the care of infants with Cow’s Milk Protein Allergy (CMPA), including prescribing suitable alternative infant formula. 2. INTRODUCTION 2.1. The aim of these guidelines is to promote a consistent approach across Dorset to the management of non IgE mediated Cow’s Milk Protein Allergy (CMPA), and is based on the Map of Medicine guideline developed by the Wessex Allergy Network Group (WANG, 2013) 2.2. When considering a diagnosis of CMPA, it is important to note that it is the protein component of cow’s milk that is likely to be the cause of the allergic response. Lactose (milk sugar) does not cause an allergic response. 2.3. The incidence of CMPA is on average 3%, whilst primary lactose intolerance is extremely rare. If gastro-intestinal symptoms persist after a period of gastroenteritis, temporary secondary lactose intolerance may be responsible. 2.4. If non IgE-mediated CMPA is suspected then an Extensively Hydrolysed Formula (EHF) should be recommended (Koletzko et al, 2010). Parents should be discouraged from changing brand of standard infant formula, as this will not improve symptoms and may delay diagnosis. 2.5. The use of formulas for ‘hungrier babies’ should also be discouraged, as there is no evidence base for their use 3. SCOPE 3.1. The Cows Milk Protein Allergy pathways as detailed in Appendix A are designed to be used by any healthcare professional who may be involved in the diagnosis and management of infant milk allergy whether in primary or secondary care. 3.2. The guidelines include a range of resources and materials that can be used by healthcare professionals to ensure the same advice is given across Dorset. 4. PURPOSE 4.1. The objectives of the guidelines are: to provide a pathway to follow to assist with the diagnosis of CMPA to provide practical documents to support healthcare professionals when working with families with an infant with a suspected CMPA 7 to provide supporting evidence to healthcare professionals to help families understand when symptoms are NOT those of CMPA and to give reassurance to these parents to recommend guidelines to the Pan Dorset Prescribing Formulary on suitable infant formula to be used in the management of CMPA to give guidance on how and when to reintroduce milk 4.2. The associated formularies in appendix E assists prescribers to choose the correct formula and promotes the use of this formula for an appropriate length of time to avoid infants being left on a specialised formula unnecessarily. 4.3. The milk reintroduction plans (also known as the milk ladder) in appendix G(i) and appendix G(ii) describe a process for reintroducing milk into the diet of infants presenting with non-IgE mediated CMPA, which can be advocated for use in the community i.e. for trial at home (Venter, 2013). Those infants with severe anaphylactic reactions should not be subject to such a challenge without the supervision of a suitable healthcare professional in an agreed safe environment 5. DEFINITIONS 5.1. Cow’s Milk Protein Allergy (CMPA) - an adverse health effect arising from an immune response that occurs reproducibly following exposure to Cows milk 5.2. Immunoglobulin E (IgE) - an antibody present in the blood 5.3. Non IgE mediated reaction - a physiological process that involves the immune system. The body does not make IgE antibodies against the allergens, and the reactions are often slower onset (more than 2 hours) 5.4. IgE mediated reaction - a physiological process that involves the immune system. IgE antibodies are made in response to an allergen and reaction is often rapid onset (within minutes to 2 hours) 5.5. Lactose Intolerance – the inability to digest lactose (milk sugar). This may be a permanent or temporary effect but is not related to an immune mediated reaction 5.6. Faecal reducing substances – a test undertaken on a stool sample to diagnose carbohydrate malabsorption including lactose intolerance 5.7. Extensively Hydrolysed Formula (EHF) – formula milk where proteins have been broken down in to short chain peptides and free amino acids 6. ROLES AND RESPONSIBILITIES 6.1. Healthcare professionals who work with children who may have allergies should: be aware of the content of these guidelines and provide advice that is consistent with the messages contained herein 8 6.2. ensure that, where a need is identified, they access training sessions linked to these guidelines seek further guidance if they feel they need to provide any advice that falls outside of this guidelines only recommend the use of formula in line with the content of these guidelines Community Dietitians, Paediatric Dietitians, Paediatricians in Dorset HealthCare will: support the education and training of staff working with families with possible cow’s milk allergy keep appraised of any new evidence that comes to light and advise on adjustments to these guidelines where required ensure that formula advised (requested on prescription) is consistent with these guidelines 7. BREAST FED INFANTS 7.1. Sometimes exclusively breast fed babies demonstrate CMPA as cow’s milk protein passes from maternal diet into breast milk. If CMPA is suspected in a breast fed baby the mother should be encouraged to continue to breast feed whilst following a cow’s milk protein free diet herself. Supplementary Vitamin D and Calcium may be necessary for the breastfeeding mother. 7.2. Once the baby is old enough to be introduced to solid foods (6 months) the weaning diet should also be cow’s milk protein free. 8. FORMULA FED INFANTS LESS THAN SIX MONTHS OF AGE 8.1. If non IgE-mediated CMPA is suspected in a formula fed infant under six months of age then an Extensively Hydrolysed Formula (EHF) should be given, as described in the pathway in appendix 1. 8.2. Weaning should commence around 6 months of age. The introduction of solid foods should start no later than 26 weeks of age but not before 17 weeks of age. (Dept of Health 2003; BDA 2013) 9. FORMULA FED INFANTS OVER SIX MONTHS 9.1. If non IgE-mediated CMPA is suspected in a formula fed infant over six months of age then an Extensively Hydrolysed Formula should be used. Soya formula could be considered for infants over six months old who are presenting with symptoms (Venter et al, 2013). 9.2. See appendix E for list of specialised formula that can be prescribed. 10. SECONDARY LACTOSE INTOLERANCE 10.1. A diagnosis of temporary lactose intolerance should only be made if diarrhoea persists for more than two weeks after an episode of gastro-enteritis. A clinical diagnosis is required as testing for the presence of reducing sugars in stools is unreliable. This is the only scenario where lactose free milk formula 9 should be used in primary care and, if used, the infant should be tried back on normal formula after 6-8 weeks. 10.2. At this stage, if the infant is not able to tolerate a change to normal formula, a referral to secondary care should be made. 11. TRAINING 11.1. This policy and associated guidance is adopted from Dorset HealthCare. Training, will be led by the Dietetic Service and will be arranged on a regular basis to best meet staff group needs. 11.2. Training of GPs and Primary Care staff is vital to ensure consistency of practice across the county and Dorset Healthcare staff (Dietetics and Health Visiting) will aim to support the wider dissemination of these guidelines to ensure best patient care and cost effective prescribing. 12. CONSULTATION 12.1. The Head of Medicines Management/Chief Pharmacist at Dorset CCG will communicate with the Risk manager and any relevant health professional group to ensure appropriate CCG actions for risks and alerts about medicines safety are implemented and communicated to member practices. 12.2. All policies will be reviewed by the Medicines Optimisation Group. The head of Medicines Management will present them as an agenda item for discussion, comment and ratification. 13. RECOMMENDATION AND APPROVAL PROCESS 13.1. The Medicines Optimisation Group will approve policies related to prescribing of infant formula and receive reports on analysis and activity on a regular basis. 14. COMMUNICATION/DISSEMINATION 14.1. The CCG medicines management team will ensure that the policy and associated documents (pathway and formulary) are available to all healthcare professionals in Dorset. 14.2. The policy will be accessible to via the Internal CCG Intranet and Internet Websites and the Dorset Formulary website. Routine updates will be cascaded via standard routes including the prescribing newsletter and Dorset Formulary site. 15. IMPLEMENTATION 15.1. This policy and associated guidance is adopted from Dorset HealthCare, therefore the Dorset HealthCare Dietetic Service will also take responsibility for working with Children’s Services Leads to ensure dissemination to appropriate staff groups. 10 16. As in point 14.2, Dorset CCG will ensure the policy is available online and the Dorset prescribing formulary will set out the agreed formulary for infant formula (in appendix E) and include links to relevant documents. 17. MONITORING COMPLIANCE AND EFFECTIVENESS OF THE DOCUMENT 18. Audit against the standards in the policies provided should form part of a contractor’s routine clinical audit. 18.1. Any areas of concern or non-compliance with the formulary identified by routine analysis of prescribing data will be highlighted to the CCG Medicines Optimisation Group and to the DorsetHealthCare Dietetic Service and will be reviewed by the appropriate committee/group. Actions will be recorded in the committee/group minutes. 19. DOCUMENT REVIEW FREQUENCY AND VERSION CONTROL 20. This Medicine Code chapter will be reviewed in line with updates published by the working group that maintains the guidance. The next scheduled review is due in March 2017. 20.1. The guidelines will be updated prior to the next scheduled review date if further evidence from the Map of Medicine group is published, to ensure that any local guidelines are consistent with the work of the Wessex Allergy Network Group 21. EQUALITY IMPACT ASSESSMENT 21.1. An Equality Impact Assessment can be found in appendix I. 11 Cows Milk Protein Allergy (CMPA) Diagnosis and Management Pathway Appendix A Refer to Paediatrician Suspicion of Non IgE mediated CMPA Slower onset over 2 hours or longer One or more of the following: • Skin symptoms • Gastro symptoms • Respiratory symptoms Appendix B If exclusive breast feeding Check feeding technique Strict maternal milk free diet for 2-4 weeks Appendix C Milk free weaning from 6months Appendix D Allergy focused history Appendix A Suspicion of IgE mediated CMPA Rapid onset within minutes to 2 hours One or more of the following: • Urticaria • Wheeze • Anaphylaxis Appendix B If formula feeding Extensively hydrolysed formula (EHF) for 2-4 weeks Appendix E Milk free weaning from 6 months Appendix D Poole Hospital NHS Foundation Trust 01202 665511 Bleep 0155 If mixed breast and formula Strict maternal milk free diet Appendix C Plus Extensively hydrolysed formula (EHF) for 2-4 weeks Appendix E Milk free weaning from 6 months Appendix D Improvement If exclusive breast feeding Reintroduce cow’s milk into maternal diet Appendix F If symptoms return this confirms CMPA diagnosis Restart maternal milk free diet Appendix C Milk free weaning from 6 months Appendix D For Urgent advice or Rapid Access Clinic Telephone – No improvement If formula feeding or mixed feeding Reintroduce cow’s milk formula Appendix G If symptoms return this confirms CMPA diagnosis Continue with EHF and/or restart maternal milk free diet Appendix E Milk free weaning from 6 months Appendix D 12 Partial improvement Telephone advice from Paediatrician (see above) or Children's Dietitian West Dorset 01305 255535 Poole 01202 442840 Dorset County Hospital NHS Foundation Trust 01305 251150 Bleep 353 Eliminate soya as well for 2-4 weeks Appendix H Still no improvement CMPA less likely Gradual return to normal diet Refer to Paediatrician if symptoms persist Appendix A Cows Milk Protein Reintroduction Pathway NB Seek specialist advice first if initial presenting symptoms were severe/acute onset Seek specialist advice from Paediatrician At around 12 months of age or 6 months after diagnosis Attempt a planned reintroduction of Cows milk If breastfeeding Reintroduce cows milk in to maternal diet Appendix F Poole Hospital NHS Foundation Trust 01202 665511 Bleep 0155 If mixed feeding Reintroduce milk in to the infants diet Appendix G Dorset County Hospital NHS Foundation Trust 01305 251150 Bleep 353 Children's Dietitian West Dorset 01305 255535 No change Return to normal diet Return of symptoms Return to milk free diet and repeat reintroduction of Cows milk in a further 6 months time 13 If symptoms of eczema persist, seek advice from Dermatology service or Paediatrician Appendix B – Initial Assessment for possible Cow’s Milk Protein Allergy (CMPA) Name:……………………………………… Date of Birth: ………………………….. NHS No.:………………………………… Assessor:………………………………… This form has been designed for use by health visiting teams to assist in the assessment of infants with symptoms that may be those of CMPA. Although these symptoms can be applied to many allergic reactions, this checklist should guide the user on specific CMPA symptoms to look for and the action required for correct early identification. NB – if there is any family history of atopy (eg hayfever, eczema, asthma, food allergy) this may increase the chance of the presenting symptoms being related to CMPA. Instructions for use Refer to signs and symptoms of possible food allergy in Appendix B Use the guide below to assess symptoms and assist you to take appropriate action Record your findings on the form including type and period of onset of symptoms File the form in the patient’s HV records and use it to compare symptoms and presentation at follow up appointments URGENT REFERRAL TO EMERGENCY CARE if any of these rapid onset symptoms are described (within minutes to 2 hours - suspect IgE mediated) □ Anaphylaxis (shock/collapse/breathing difficulty) □ Angioedema (swelling especially around lips, face and eyes) □ Wheeze or shortness of breath (rapid onset) URGENT REFERRAL TO Paediatrician or Rapid Access Clinic via GP if any of these rapid onset symptoms are described (within minutes to 2 hours - suspect IgE mediated) □ Skin symptoms -rapid onset erythema, pruritis, urticaria □ GI symptoms –rapid onset vomiting/diarrhoea with blood and/or mucus in stools Consider diagnosis of CMPA and assess symptoms further if any of these slower onset symptoms are described (more than 2 hours - non IgE mediated symptoms) □ Skin symptoms (describe type of reaction, any known or suspected triggers) ………………………………………………………………………………………….………………… ………………………………………………………………………………………….………………… □ GI Symptoms (describe frequency/colour of stools, perianal soreness, colic, reflux) ………………………………………………………………………………………….………………… ……………………………………………………………………… □ Respiratory/Other e.g. growth issues (describe symptoms of pallor/ tiredness, runny nose) ………………………………………………………………………………………….…………… ………………………………………………………………………………………………………… ………. Date of Assessment:………………………Date of next review: ………………………. 14 Appendix B – Initial Assessment for possible Cow’s Milk Protein Allergy (CMPA) Signs and Symptoms of possible food allergy Non – IgE-mediated Slower onset – more than 2 hours IgE-mediated Rapid onset – within minutes to 2 hours The Skin Pruritus Erythema Atopic eczema Pruritus Erythema Acute urticaria (localised or generalised) Acute angioedema (most commonly in the lips and face, and around the eyes Angioedema of the lips, tongue/palate Oral pruritus Nausea Colicky abdominal pain Vomiting Diarrhoea The gastrointestinal system Gastro-oesophageal reflux disease Loose or frequent stools Blood and/or mucus in stools Abdominal pain Infantile colic Food refusal or aversion Constipation Perianal redness Pallor and tiredness Faltering growth plus one or more gastrointestinal symptoms above (with or without significant atopic eczema) The respiratory system (usually in combination with one or more of the above symptoms and signs) Upper respiratory tract symptoms – nasal itching, sneezing, rhinorrhoea or congestion (with or without conjunctivitis) Lower respiratory tract symptoms (cough, chest tightness, wheezing or shortness of breath Other Signs and symptoms of anaphylaxis or other systematic allergic reactions Note: this list is not exhaustive – the absence of these symptoms does not exclude food allergy. Reference: NICE Guideline CG116 Food allergy in children and young people 2011 15 Appendix C – Milk free diet for breastfeeding Patient Information Sheet Following a Milk Free Diet when you are Breastfeeding Name: _______________________ Date: ________ Breastfeeding provides the best source of nutrition for babies. It is suitable for most babies with cow’s milk protein allergy. Occasionally breast fed babies can react to cow’s milk proteins in breast milk from the mother’s diet – if that is the case you may be advised to avoid milk and dairy products whilst you are breastfeeding. This may only be for a short period of time or may be for a few months. Breastfeeding technique should be checked first with your Health Visitor or Breastfeeding Counsellor as sometimes a change in positioning can improve feeding and reduce some symptoms. Which Milk Should You Exclude? Cow’s milk and cow's milk products including dried milk. The diet should be free of cow’s milk protein (casein and whey) and milk sugar (lactose). Goat's, sheep and other mammalian milks are not recommended as they contain a protein very similar to that found in cow's milk. Replacing Cow's Milk Milk is an important source of nutrition for breastfeeding mothers. When milk is excluded from the diet, it is vital to replace it with a nutritionally complete alternative. Try a soya alternative to milk: Supermarket own brand Alpro soya Plamil So Good Other milk alternatives which could be suitable include those made from: Almonds Coconut Hazelnuts Hemp Oats Pea and other pea products Always choose a milk alternative that is fortified or enriched with calcium – they should provide at least 120mg of calcium /100mls. Organic versions do not usually have calcium added. 16 Appendix C – Milk free diet for breastfeeding Which Foods should you avoid? Some of these foods are obvious, such as milk, cheese, cream, yoghurt and butter. However, many other foods may contain cow's milk and these should be avoided too. Look for the list of ingredients printed on the package and avoid foods containing -. all types of milk, including fresh, dried, UHT, condensed and evaporated cheese cream, ice cream, crème fraiche yoghurt, fromage frais butter/margarine/ghee buttermilk lactose/milk sugar milk powder/skimmed milk powder/non fat milk solids milk protein/milk solids whey/whey syrup sweetener shortening containing whey casein/caseinate/hydrolysed casein lactalbumin/lactoglobulin Milk Free Foods Foods to avoid or check the ingredients Fats Milk free margarines e.g. Pure, Dairy free Tomor, Vitalite. Pure vegetable fats such as vegetable oil, sunflower oil and olive oil, lard, cocoa butter Butter, ordinary margarine, low fat spread Eggs and Dairy Products Eggs. Soya cheese, soya yoghurt, soya desserts, soya cream, soya ice cream. Milk substitutes. Oat cream e.g. Oatly. Coconut cream Milk, cheese including vegetarian cheese, yoghurt, fromage frais, crème fraiche, cream Meat & alternatives All fresh and frozen beef, lamb, pork, ham, bacon, veal, rabbit. Offal: liver, kidney Poultry: chicken, turkey Tofu, soya mince Check the ingredients of sausage, burgers, tinned meats, meat pies and other processed meats. Breaded meats and quorn products. Baked beans Fish Fresh and frozen fish without coating or sauce Avoid fish in white sauces and fish fingers in batter. Check ingredients of tinned fish Cereals Wheat, rye, barley, oats, rice, maize,flour, cornflour, macaroni, spaghetti, dried pasta Tinned spaghetti containing cheese, macaroni cheese. Fresh filled pasta 17 Appendix C – Milk free diet for breastfeeding Milk Free Foods Foods to avoid or check the ingredients Breakfast Cereals Rice Krispies, Shredded Wheat, Shreddies, All Bran, Weetabix, Ready Brek, Porridge made with milk alternative, Branflakes, Frosties Avoid Special K and Swiss type cereals. Check ingredients of muesli and other cereals Bakery Produce Wholemeal, Hovis Best of Both, plain white, Granary, Vitbe breads. Home-made bread, cakes, biscuits and pastry made with milk free margarine Milk breads, cakes, biscuits, pastries. Check labels as some biscuits/hot cross buns/teacakes are milk free Puddings Rice, semolina, sago, tapioca and custard made using custard powder and a suitable milk alternative Ice lollies, sorbet, jelly, soya yoghurt, soya desserts, and soya frozen desserts e.g. Swedish glace, Tofutti, First Foods oat based dairy free ice cream Tinned milk puddings, Instant Whip, Angel Delight, Yoghurts, Ice-cream, including non- fat dairy types. Ready-made custard and Instant custard Fruit &Vegetables All types of fruit, fresh, dried, tinned in juice or syrup. All vegetablesfresh, tinned or frozen without added ingredients. Avoid potato mashed with milk or butter. Check ingredients of vegetable and potato salad, instant potato, oven chips, frozen roast potatoes, potato croquettes, crisps and other savoury snacks Drinks Tea, coffee, cocoa, , fruit juices, fruit squash, fizzy drinks, Bovril, Marmite Avoid Horlicks, Ovaltine, drinking chocolate, Milo and instant hot chocolate drinks. Check ingredients of soups and avoid cream soups Confectionery Boiled sweets, fruit gums, fruit pastilles, marshmallows. Dairy free chocolate Avoid fudge, toffee, milk & white chocolate. Check ingredients of plain/after dinner mint chocolate OtherProducts Sugar, jam, honey, syrup, Bisto, Oxo, salt, pepper, herbs, spices, essences, salad cream, Avoid sugar substitutes containing lactose e.g. Sweet 'n' Low, Canderel, 18 Appendix C – Milk free diet for breastfeeding Milk Free Foods Foods to avoid or check the ingredients mayonnaise, gravy, tomato ketchup monosodium glutamate powder. Non-dairy creamers. Light/low calorie salad cream & mayonnaise Please note this is not an exhaustive list and as ingredients can change, always check the label. If you are eating out, ask the restaurant before you order if you are unsure if meals will be milk free. You can phone ahead and check before you visit to make sure there are suitable dishes available for you. Check with your pharmacist about tablets or medicines which may contain lactose. Adapting Recipes? Many ordinary recipes can be adapted by using your milk alternatives. Use a milk free margarine instead of butter, a milk alternative in place of milk, and soya cheese in place of ordinary cheese. Ask for the leaflet ‘Adapting recipes’ for further information. What About Calcium? Calcium is needed for strong teeth and bones. Lack of calcium can increase risk of osteoporosis (fragile bones) and fractures later in life. Calcium requirements while breastfeeding are 1250mg per day. 1 pint of calcium fortified/enriched milk alternative will provide around 700mg calcium per day. Even though you can include other calcium rich non-milk sources of foods in your diet, most breastfeeding women on a milk free diet will need a calcium supplement. You can use the ‘Sources of Calcium’ table to help you choose calcium rich foods. Vitamin D is needed by the body to absorb calcium and the best source is from the action of sunlight on the skin. The Department of Health recommends that all breastfeeding women should take a vitamin D supplement. Speak to your local pharmacist about which supplements are suitable. Calcium and Vitamin D supplements are available to purchase in pharmacies and supermarkets. Sources of Calcium Foods providing 250mg of Calcium Sardines/pilchards-canned (including bones) Soya cheese Tofu Calcium-enriched milk alternative 19 Portion Size 60g or half a tin 55g 50g 200mls Appendix C – Milk free diet for breastfeeding Calcium fortified orange juice e.g. Tropicana Essentials - Calcium Foods providing 150mg of Calcium Curly Kale/spring greens Tahini paste (sesame seed paste) Anchovies Fortified breakfast cereal Soya yogurt/dessert Foods providing 100mg of Calcium Tinned salmon Broccoli Baked beans/kidney beans Foods providing 50mg of Calcium White bread White flour products e.g. milk free hot cross bun Cabbage Dried figs Sesame seeds (1 tbsp) Foods providing 25mg of Calcium Dried apricots Nuts e.g. brazil, almonds, walnuts Chapatti x 1 Egg Fish fingers x 2 Hummus Dried fruit e.g. sultanas Sunflower seeds (2 tbsp) White fish poached in water Wholemeal bread (2 x slices) 200mls Portion Size 90g 20g (1 tsp) 60g or half a tin 35g 125ml pot Portion Size 115g or half a tin 90g 200g or half a tin Portion Size 60g (2 slices) 1 90g 20g or 1 dried 10g Portion Size 50g or small handful 30g or small handful 55g 1 medium 56g 50g 50g or 2 tablespoons 25g 170g 60g Contact Details Dietitian__________________________________________________ Health Visitor _____________________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 2014 20 Appendix D – Weaning onto a milk free diet Patient Information Sheet Weaning onto a Milk Free Diet Name: _________________________Date: ____________ Why A Milk Free Diet? Around 3% of children develop cow’s milk protein allergy. In most cases a strict cow’s milk free diet is needed to treat the allergy. This information will help you avoid cow’s milk whilst making sure your child gets all the nutrition they need to grow and develop well. Cow’s milk protein allergy may cause a variety of symptoms. It can take longer for children to recover, but many ‘grow out’ of cow’s milk protein allergy. Reviews with your health care professional can guide you on how long your child needs to continue avoiding cow’s milk in the diet. Which Milk And Cow’s Milk Products Should Be Excluded? Cow's milk including dried milk. The diet should be free of cow’s milk protein (casein and whey) and milk sugar (lactose). Goat's, sheep and other mammalian milks are not recommended as they contain lactose and a protein very similar to that found in cow's milk. Replacing Cow's Milk Milk is an important source of nutrition for babies and children. If infants are breastfeeding they can continue to do so alongside weaning onto cow’s milk protein free solid. If a child is not breastfeeding but taking an infant formula it is vital to replace the formula with a nutritionally complete alternative. Soya Alternative to Dairy Milk For children over 6 month’s of age soya based infant formulas are available to buy from pharmacies and larger supermarkets. Examples include: Infasoy (Cow & Gate) Wysoy (SMA) For older infants, soya alternatives to milk that are fortified with calcium are available to buy from most supermarkets. They can be used in cooking from six months of age or as a main drink after one year old. Examples include: Supermarket own brands Granose 21 Appendix D – Weaning onto a milk free diet Alpro soya Alpro 1+ Plamil So Good Other Alternatives Other milk alternatives which could be suitable include those made from: Almonds Coconut Hazelnut s Hemp Oats Pea and other pea products Please check with your Dietitian before using any milk alternative as some may not be suitable for other allergies and some may be low in calories, protein, calcium and/or other vitamins and minerals. Rice milk should NOT be given to children under 5 years old. Always choose a milk alternative that is fortified or enriched with calcium – they should provide at least 120mg of calcium /100mls. Organic versions do not usually have calcium added. Prescribed Milk Alternatives Alternatively your child may have been prescribed an Extensively Hydrolysed Formula such as Nutramigen Lipil, Alimentum, Pepti-Junior, Aptamil Pepti or Neocate LCP. They should continue on this until advised otherwise by your health care professional. Most infants aged 6-12 months need approximately 600ml (20oz) each day to ensure they are meeting their nutritional needs. Over 1 year this amount reduces to around 350ml (12oz). These amounts do vary according to the child and their diet. Check with your Doctor, Health Visitor or Dietitian if you have concerns about their calcium needs. Which Foods Should You Avoid Some of these foods are obvious, such as milk, cheese, cream, yoghurt and butter. However, many other foods may contain cow’s milk and these should be avoided too. Look for the list of ingredients printed on the package and avoid foods which contain all types of milk, including fresh, dried, UHT, condensed and evaporated cheese cream, ice cream yoghurt, fromage frais butter/margarine/ghee buttermilk lactose/milk sugar milk powder/skimmed milk powder/non fat milk solids 22 Appendix D – Weaning onto a milk free diet milk protein/milk solids whey/whey syrup sweetener shortening containing whey casein/caseinate/hydrolysed casein lactalbumin/lactoglobulin Milk Free Foods Foods to avoid or check the ingredients Fats Milk free margarines e.g. Pure, Dairy free Tomor, Vitalite. Pure vegetable fats such as vegetable oil, sunflower oil and olive oil, lard, cocoa butter Butter, ordinary margarine, low fat spread Eggs and Dairy Products Eggs. Soya cheese, soya yoghurt, soya desserts, soya cream, soya ice cream. Milk substitutes. Oat cream e.g. Oatly. Coconut cream Milk, cheese including vegetarian cheese, yoghurt, fromage frais, crème fraiche, cream All fresh and frozen beef, lamb, pork, ham, bacon, veal, rabbit. Offal: liver, kidney Poultry: chicken, turkey. Tofu, soya mince Check the ingredients of sausages, burgers, tinned meats, meat pies and other processed meats. Breaded meats, Quorn products, baked beans Fish Fresh and frozen fish without coating or sauce Avoid fish in white sauces and fish fingers in batter. Check ingredients of tinned fish Cereals Wheat, rye, barley, oats, rice, maize, flour, cornflour, macaroni, spaghetti, dried pasta Tinned spaghetti containing cheese, macaroni cheese. Check ingredients of fresh filled pasta Breakfast Cereals Rice Krispies, Shredded Wheat, Shreddies, All Bran, Weetabix, Ready Brek, Porridge made with milk alternative, Branflakes, Frosties Avoid Special K and Swiss type cereals. Check ingredients of muesli and other cereals Bakery Produce Wholemeal, Hovis Best of Both, plain white, Granary, Vitbe breads. Home-made bread, cakes, biscuits and pastry made Milk breads, cakes, biscuits, pastries. Check labels as some biscuits/hot cross buns/teacakes are milk free. Meat & Alternatives 23 Appendix D – Weaning onto a milk free diet with milk free margarine Puddings Rice, semolina, sago, tapioca and custard made using custard powder and a suitable milk alternative. Ice lollies, sorbet, jelly, soya yoghurt, soya desserts, and soya frozen desserts e.g. Swedish glace, Tofutti, First Foods oat based dairy free ice cream Tinned milk puddings, Instant Whip, Angel Delight, Yoghurts, Ice-cream, including non- fat dairy types. Ready-made custard and Instant custard Fruit & Vegetables All types of fruit - fresh, dried, tinned in juice or syrup. All vegetables - fresh, tinned or frozen without added ingredients Avoid potato mashed with milk or butter. Check ingredients of vegetable and potato salad, instant potato, oven chips, potato croquettes, crisps and other savoury snacks Drinks Tea, coffee, cocoa, , fruit juices, fruit squash, fizzy drinks, Bovril, Marmite Avoid Horlicks, Ovaltine, drinking chocolate, Milo and instant hot chocolate drinks. Check ingredients of soups and avoid cream soups. Confectionery Boiled sweets, fruit gums, fruit pastilles, marshmallows. Dairy free chocolate Avoid fudge, toffee, milk & white chocolate. Check ingredients of plain/after dinner mint chocolate Baby foods Some brands of baby rice and rusks are milk free but this does change – check labels Avoid Robinsons Baby Rice, Milupa Breakfast Cereals, Boots Baby Cereals. Check ingredients of other baby foods Other Products Sugar, jam, honey, syrup, Bisto, Oxo, salt, pepper, herbs, spices, essences, salad cream, mayonnaise, gravy, tomato ketchup Avoid sugar substitutes containing lactose e.g. Sweet 'n' Low, Canderel, monosodium glutamate powder. Light/low calorie salad cream/mayonnaise Please note this is not an exhaustive list and as ingredients can change, always check the label. 24 Appendix D – Weaning onto a milk free diet If you are eating out, ask the restaurant before you order if you are unsure if meals will be milk free. You can phone ahead and check before you visit to make sure there are suitable dishes available for you. Check with your pharmacist about tablets or medicines which may contain lactose. Weaning Weaning a baby who has cow’s milk protein allergy should be the same as weaning a non-allergic baby, except that you must not give any foods that contain cow’s milk or dairy products (e.g. yoghurt, fromage frais, cheese, cream or butter – see list). Aim to start giving solid foods around six months but not before four months (17 weeks). Begin weaning with low allergenic foods such as pureed rice, potatoes, root and green vegetables and fruit. Use a little of your baby’s usual milk (breast or hypoallergenic formula) to mix the food to the desired consistency. Introduce new allergenic foods such as egg and fish one at a time. Allergenic foods should be given for 3 days to ensure adequate exposure and leave a couple of days between new foods to be able to ascertain if there is any reaction. Keeping a food diary can be useful. First foods include: soft fruits and cooked vegetables (e.g. cooked apple or pear, avocado, banana, carrot, parsnip, sweet potato or yam) milk free baby cereals made with your child’s milk alternative (e.g. baby rice, baby porridge. Please note some of these products may contain milk so carefully check the ingredients list on the label) pureed or mashed up meat, chicken or lentils As your baby progresses with weaning, food can become more ‘chopped’ in texture. Stage Two is mashed with soft lumps and soft finger foods. Stage Three is minced or chopped family foods and hard finger foods. Eventually your baby will be managing family meals. Suggested meal plan Breakfast milk free breakfast cereal or porridge with milk alternative and fruit puree or mashed banana toast *fingers with milk free margarine Snacks and Finger foods small pieces of soft, ripe fruit (e.g. banana, peach, mango, melon) dried apricots or raisins raw vegetable sticks (e.g. cucumber sticks, peppers) lightly cooked vegetable pieces (e.g. broccoli & cauliflower florets, carrot, parsnip & courgette sticks, green beans) dairy free cheese slices or cubes 25 Appendix D – Weaning onto a milk free diet bread sticks* or rice cakes* with hummus, mashed avocado or dairy free cheese spread sandwiches with ham/chicken/tuna/egg mayonnaise*/dairy free cheese, cucumber slices and milk free margarine toast* with baked beans* and well-cooked scrambled egg (made with milk alternative) and milk free margarine Main Meals minced or finely chopped meat or flaked fish or tofu served with; o pasta in a roasted vegetable and tomato based sauce or a milk free white sauce (see recipe). Grated dairy free cheese could be added to the sauce. Alternatively, a soya cheese spread could be added to cooked pasta to make a sauce o mashed potatoes/chopped roast or new potatoes, mashed/chopped vegetables flaked fish poached in a milk alternative, mashed potato and vegetables mashed, cooked lentils/dhal, chickpeas or other pulses with well-cooked boiled rice Puddings soft ripe or dried fruit dairy free desserts/dairy free ice cream or sorbet with fruit rice pudding, semolina or custard (powder not instant) made with milk alternative milk jelly or egg custard made with milk alternative fruit crumble made with milk free margarine Remember to carefully read the label of ready-made dishes/ foods to check that they are milk free, especially those marked with a *. Ingredients do change so it is important to always check the label. Adapting Recipes? Many ordinary recipes can be adapted by using your milk alternative. Use a milk free margarine instead of butter, milk alternatives in place of milk, and soya cheese in place of ordinary cheese. Try making up batches of milk free meals/puddings and freezing them in ice-cube trays to allow you to serve small portions with less waste. Ask for ‘Adapting recipes’ leaflet for further ideas. What about Calcium? Calcium is needed for strong teeth and bones. Lack of calcium can increase risk of osteoporosis (fragile bones) and fractures later in life. Calcium requirements for infants under 1 year old is 525mg/day and for 1-3 year olds is 350mg/day. Most babies aged 6-12 months need approximately 600ml (20oz) of milk alternative each day to ensure they are meeting their nutritional needs. Over 1 year of age this amount reduces to around 350ml (12oz). These amounts do vary according to the child and their diet. Check with your Doctor, Health Visitor or Dietitian if you have concerns about their calcium needs. 26 Appendix D – Weaning onto a milk free diet Use the ‘Sources of Calcium’ table to help you choose calcium rich weaning foods. Please note the portion sizes listed in the table are based on adult portions, so you will need to adapt the portion size accordingly. Vitamin D is needed by the body to absorb calcium and the best source is from the action of sunlight on the skin. The Department of Health recommend that a supplement containing vitamin A, C and D should be given to all children aged six months to five years. This is a precaution because growing children may not get enough of these vitamins, especially those not eating a varied diet, such as fussy eaters. Supplements are available to purchase in pharmacies and supermarkets, or may be available on prescription. Ask your Health Visitor for advice. Sources of Calcium Foods providing 250mg of Calcium Sardines/pilchards - canned (including bones) Soya cheese Tofu Calcium-enriched milk alternative Calcium fortified orange juice e.g. Tropicana Essentials - Calcium Foods providing 150mg of Calcium Curly Kale/spring greens Tahini paste (sesame seed paste) Fortified breakfast cereal Soya yogurt/dessert Foods providing 100mg of Calcium Tinned salmon Broccoli Baked beans/kidney beans Foods providing 50mg of Calcium White bread White flour products e.g. milk free hot cross bun Cabbage Dried figs Foods providing 25mg of Calcium Dried apricots Chapatti x 1 Egg Fish fingers x 2 Hummus Dried fruit e.g. sultanas White fish poached in water Wholemeal bread (2 x slices) 27 Portion Size 60g or half a tin 55g 50g 200mls 200mls Portion Size 90g 20g (1 tsp) 35g 125ml pot Portion Size 115g or half a tin 90g 200g or half a tin Portion Size 60g (2 slices) 1 90g 20g or 1 dried Portion Size 50g or small handful 55g 1 medium 56g 50g 50g or 2 tablespoons 170g 60g Appendix D – Weaning onto a milk free diet Contact Details Dietitian__________________________________________________ Health Visitor _____________________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 2014 28 Appendix D – Weaning onto a milk free diet Adapting Recipes for a Cow’s Milk Protein free diet Many items that usually contain cows’ milk protein can be adapted by using a suitable milk alternative and a dairy free margarine. Then all the family can eat the same meals. Helpful hints Use a calcium fortified milk alternative (e.g. soya, oat, coconut) to make sauces, pancakes, batter and desserts. Do not use rice milk for children Under 5 years old. Allow hot drinks to cool a little before adding soya milk as it may curdle. Grate soya hard cheeses on the fine part of the grater if they are not melting very well. Use plain dairy free yogurts or coconut milk alternative to make curries, raita, stroganoffs, creamy sauces and dips. Try Soyatoo™ whipping cream (spraycan), or Oatly cream as an alternative to cream. Use a dairy free melting cheese (Cheezly super-melting mozzarella™) on pizza, cheese on toast and on lasagne. Use a hard dairy free cheese (Sheese™) to make cheese sauces. Grate on the fine part of the grater so that it melts more easily. Using a microwave will save it sticking to the bottom of the saucepan (which also works for dairy free custard & porridge). Use dairy free cream cheese/sour cream or dairy free plain yogurt in dips, cheesecakes, quiches and savoury and sweet sauces. Recipes Savoury Desserts Snacks Basic White sauce Custard Sponge cake Fish pie Rice pudding Cherry muffins Shepherd’s Pie Pancakes Flapjacks Ice cream Ginger biscuits Appendix D – Weaning onto a milk free diet Basic White Sauce Ingredients: 20g (¾oz, 1tbsp) dairy free margarine 20g (¾oz, 1tbsp) plain flour or corn flour 300ml (½pint) milk alternative Salt and pepper to taste Hob Method: Place all ingredients in a pan and heat gently, whisking continuously until the sauce thickens. Microwave Method: Place all ingredients in a bowl. Whisk to remove lumps. Microwave it for 30 seconds and then whisk. Repeat this until it makes a smooth sauce. Flavour with cooked mushrooms, vegetables or parsley. Fish Pie (For family of four) Ingredients: 300 g (12oz) fillet of haddock or cod 300g (12oz) potatoes 1 hard boiled egg 2 tomatoes 50ml (2 fl oz) milk alternative 15 g (1/2 oz) milk free spread 300ml parsley sauce (use white sauce recipe and add 2 tbsp parsley) Oven temperature: 350°F / 180°C / Gas Mark 4 Method: Bake fish for 20 minutes. Boil potatoes and make parsley sauce . Flake coked fish and add to sauce, season and place in ovenproof casserole dish. Skin and slice tomatoes, slice hard boiled egg and place on top of fish. Cream potatoes with milk free spread and alternative milk, season and place on top of fish mixture. Bake in the oven for 20 minutes. Appendix D – Weaning onto a milk free diet Shepherd’s Pie (for family of four) Ingredients: 450g minced lamb 1 large onion ½ courgette 4 medium mushrooms Tin of chopped tomatoes 2 tbsp tomato puree Beef stock cube (milk free) 1 garlic clove 2 large potatoes 1 desertspoon milk free spread 1 tbsp milk alternative Method: Fry the mince in the frying or saucepan with oil if needed. When brown, drain off excess fat. Add chopped onion and garlic, cook for 2 minutes then add chopped courgette and mushrooms. Cook for 5 minutes. Add chopped tomatoes, tomato puree, season with salt and pepper. Mix well. Leave to simmer for 20 minutes. Meanwhile peel, slice and boil the potatoes for 15 minutes. Once cooked mash with milk alternative and milk free spread. Place meat sauce in an ovenproof dish and spread the mashed potato on top. Cook in the oven at 350°F / 180°C / Gas Mark 4 for 10 minutes. Custard (Hob or microwave) Ingredients: 150ml (¼pint) milk alternative 15g (½oz, ½tbsp) milk free custard powder Method: Mix the custard powder with 2 tablespoons of the milk alternative. Gently warm the remaining milk alternative on the hob or in the microwave until almost boiling. Remove from the hob/ microwave and pour over the custard paste, stirring continuously. Return to the hob/ microwave and heat for 2-3 minutes stirring regularly. Rice Pudding Ingredients: 50g (2oz) pudding rice 600ml (1 pint) milk alternative 25g (1oz) caster sugar Appendix D – Weaning onto a milk free diet Method: Put rice and milk into a pan. Heat gently for 2 hours, stirring occasionally. Add sugar and serve. Or, put rice, milk and sugar into a greased ovenproof dish and bake in an oven at 150ºC (300ºF, gas mark 2) for 2 hours, stirring occasionally. Pancakes Ingredients: 300ml milk alternative 1 egg 125 g plain flour 4tsp sunflower oil Method: Sieve the flour, make a well and crack the egg into it. Mix together and gradually add the milk alternative until smooth. Heat the oil in a non-stick frying pan, add a ladle of mixture, tip the pan so its just enough to cover the base, cook for 30 seconds. Use a spatula to flip the pancake over and cook for another 30 seconds. Repeat until used up the batter. Serve with sugar and lemon juice. Easy Ice Cream Use soya ready-made custard (e.g. Alpro™, Provamel™), put in ice-cream machine (according to volume specified by the manufacturer) and select the standard ice cream setting. Alternatively, put the custard in the freezer and stir or whisk once an hour until almost frozen. Sponge Cake Ingredients: 120g (4oz) dairy free margarine 120g (4oz) caster sugar 120g (4oz) plain sifted flour 1 teaspoon baking powder 2 eggs Method: Blend the margarine and sugar together until light and fluffy. Beat in the eggs slowly. Stir in the flour and baking powder, place in a greased and floured 18cm/7inch cake tin and bake at 180ºC (360ºF, gas mark 4) for 30 –40 minutes. Adaption for chocolate cake - replace 2 dessertspoons of flour with cocoa (milk free). Appendix D – Weaning onto a milk free diet Muffins – orange & cherry Ingredients: 1 orange 125ml (4 fl oz) orange juice 1 egg 185 g (6 oz) plain flour 170 g castor sugar 125 g milk free spread 1 tsp bicarbonate of soda 1 tsp baking powder ¼ tsp salt 125 g cherries (washed) Preheat oven to 220°C (400°F, gas mark 6) Method: Peel rind from orange, remove all pith, cut rind into small pieces. Remove membrane and seeds from orange and cut into small segments. In a food processor, place orange rind, segments and orange juice, milk free spread and egg and process until combined and mixture has curdled. Transfer into a large bowl. Sift in flour, bicarbonate of soda, baking powder and salt and mix lightly to combine. Batter should be lumpy. Fold in cherries. Divide batter between 12-16 greased muffin tins or cases, filling two thirds full. Bake for 18-20 minutes and cool on a wire rack. Flapjacks Ingredients: 100 g (4oz) milk free margarine 200g (8oz) rolled oats 4 level tbsp golden syrup Pinch of salt 75g (3oz) granulated sugar Oven temperature: 335°F / 170°C / Gas mark 3 Method: Grease a square shallow tin (approx 18cm/7inch) Melt margarine and syrup in a pan over a gentle heat Remove from heat; add sugar, oats and salt Mix thoroughly, turn into prepared tin Bake for 30-40 mins until golden brown Leave to cool in the tin for 5 minutes then cut into bars and cool on a wire rack. Appendix D – Weaning onto a milk free diet Ginger biscuits Ingredients: 75 g (3oz) golden syrup 150 g (6oz) self raising flour 100g (4 oz) milk free margarine 10ml (2 level tsp) ground ginger 75 g (3 oz) caster sugar Large pinch of bicarbonate of soda Oven temperature: 375°F / 190°C / Gas Mark 5 Method: Grease two baking sheets Sieve flour, ginger and bicarbonate of soda into a bowl Melt syrup, margarine and sugar in a pan Stir and leave to cool for 5 minutes Form into balls, place on baking sheet and flatten slightly Bake for 10 minutes. Transfer to wire rack to cool whilst still warm. Some recipes taken from ‘Cow’s milk free diet for infants and children’ Produced by FAISG of the BDA (2012) Contact Details Dietitian__________________________________________________ Health Visitor _____________________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 2014 Appendix E – Guidelines for indications for using specialised infant formula for infants aged 0-6 months Extensively hydrolysed formula Feed Manufacturer Type of formula Clinical Indication for use Additional ACBS Indications Nutramigen Lipil 1 400g First Line Choice Mead Johnson Extensively hydrolysed formula (EHF), lactose free Cow’s milk protein allergy Galactosaemia Lactose and / or whole protein intolerance where additional MCT not needed Alimentum 400g Abbott Extensively hydrolysed formula (EHF), Clinically lactose free Cow’s milk allergy and conditions requiring an EHF Pepti Junior 450g Cow & Gate Extensively hydrolysed formula (EHF), with 50% MCT fat, lactose free Cow’s milk protein allergy. Malabsorption conditions including fat and disaccharide intolerance Lactose / whole protein intolerance or where amino acid peptides are indicated in conjunction with MCT Aptamil Pepti 1 400g or 900g Milupa Extensively hydrolysed formula (EHF). Residual lactose Cow’s milk protein allergy Established cow’s milk protein intolerance Amino acid based formula Feed Manufacturer Type of formula Clinical Indication for use Additional ACBS Indications Neocate LCP 400g On advice of Dietitian or Hospital Specialist SHS Amino acid based Cow’s milk protein allergy Severe malabsorption If EHF not tolerated Cow’s milk protein allergy Multiple food protein intolerance Conditions requiring an elemental diet Amino acid based Cow’s milk protein allergy Severe malabsorption Cow’s milk protein allergy Multiple food protein intolerance Conditions requiring an elemental diet Nutramigen AA Mead Johnson 400g Please check name carefully as similar named products 35 Appendix E – Guidelines for indications for using specialised infant formula for infants aged 0-6 months Colour Code Guide Green products = can be prescribed by hospital doctor, GP or other person with extended prescribing Amber Products = Started by Dietitian or hospital Red products = specialist and continued by Primary Care with request Acute Trusts from a Paediatrician or Dietitian for GP to prescribe. only NB Please remember to write ACBS on prescription. This product list is not exhaustive – see BNF for further information. 36 Appendix E - Guidelines for indications for using specialised infant formula for infants aged over 6 months Soya formula (available to buy over the counter) could be considered for infants over 6 months who are presenting with symptoms. Additional ACBS Indications Feed Manufacturer Type of formula Clinical Indication for use Infasoy 900g Cow & Gate Soya based (whole protein) lactose free Simple cow’s milk protein allergy. Galactosaemia Wysoy 430g or 860g Wyeth Soya based (whole protein) Lactose free Simple cow’s milk protein allergy. Galactosaemia Manufacturer Type of formula Clinical Indication for use Additional ACBS Indications Nutramigen Lipil 2 400g First line choice Mead Johnson Extensively hydrolysed protein Lactose free Cow’s milk protein allergy, with or without secondary lactose intolerance Galactosaemia Established lactose and / or whole protein intolerance (where MCT not indicated) Alimentum 400g Abbott Extensively hydrolysed formula (EHF) Clinically lactose free Cow’s milk allergy and conditions requiring an EHF Aptamil Pepti 2 900g Cow & Gate Extensively hydrolysed Residual lactose Cow’s milk protein allergy Established cow’s milk protein intolerance Cow & Gate Extensively hydrolysed protein, with 50% MCT fat Lactose free Cow’s milk protein allergy. Malabsorption conditions including fat and disaccharide intolerance Lactose / whole protein intolerance or where amino acid peptides are indicated in conjunction with MCT Extensively hydrolysed formula Feed Pepti Junior 450g 37 Appendix E - Guidelines for indications for using specialised infant formula for infants aged over 6 months Amino acid based formula Feed Manufacturer Type of formula Clinical Indication for use Additional ACBS Indications Neocate LCP 400g On advice of Dietitian or Hospital Specialist SHS Amino acid based Cow’s milk protein allergy Severe malabsorption If EHF not tolerated Cow’s milk protein allergy Multiple food protein intolerance Conditions requiring an elemental diet Nutramigen AA 400g Please check name carefully as similar named products Mead Johnson Amino acid based Cow’s milk protein allergy Severe malabsorption Cow’s milk protein allergy Multiple food protein intolerance Conditions requiring an elemental diet Colour Code Guide Green products = can be prescribed by hospital doctor, GP or other person with extended prescribing Amber Products = Started by Dietitian or hospital Red products = specialist and continued by Primary Care with Acute Trusts only request from a Paediatrician or Dietitian for GP to prescribe. NB Please remember to write ACBS on prescription. This product list is not exhaustive - see BNF for further information 38 Appendix F – Milk reintroduction for breastfeeding mothers Milk Reintroduction Details For Mothers Breastfeeding a child with a Milk Allergy It is important to reintroduce cow’s milk back into your diet to confirm that the problem is definitely due to cow’s milk protein allergy and not a coincidence with anything else, such as an illness. You should only follow a milk free diet if absolutely necessary and reintroduction is one way to check this. Reintroducing milk Start to reintroduce milk containing foods then cow’s milk gradually back into your diet over a one week period. If your baby’s symptoms don’t return then he/she doesn’t have cow’s milk protein allergy and you can continue to have cow’s milk and milk containing products in your diet. If your baby’s symptoms return then it is likely that they have cow’s milk protein allergy and you should remove all cow’s milk and milk containing products from your diet. Talk to your Health Visitor about the next steps to take for the management of this for you and your baby. Some children may be able to tolerate a certain amount of cow’s milk in their mother’s diet e.g. mothers are able to include milk in foods, have ordinary butter/margarine and cheese but their children react if they drink milk. If this is the case it is sensible to include cow’s milk up to the amounts the baby can tolerate as long as they remain symptom free. The amount of cow’s milk that individuals can tolerate varies so you have to find the right amount that suits you and your child. Remember to continue taking your calcium and vitamin D supplement. Any questions? Give your Health Visitor team a call. Health Visitor Contact Details ______________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust March 2014 39 Appendix G(i) – Milk reintroduction for babies under 6 months Patient Information Sheet Milk Reintroduction For Infants under 6 Months of Age This reintroduction plan is only for babies who have suspected non- IgE Cow’s Milk Protein Allergy (CMPA), as per the CMPA pathway. Ask your Health Visitor if you are unsure. It is important to try and reintroduce cow’s milk into your child’s diet to confirm that the problem is definitely due to cow’s milk protein allergy and not a coincidence with anything else, such as an illness. It is important that infants only follow a milk free diet if it is absolutely necessary and reintroduction is one way to check this. Follow the steps below 1) Introduce 30mls (1oz) of standard infant formula into one of your baby’s specialised formula feeds. 2) After 2-3 days introduce 30mls (1oz) of standard infant formula into each of your baby’s specialised formula feeds. 3) After 2-3 days increase the volume of standard infant formula by 30mls (1oz) in every feed. 4) Continue increasing the proportion of standard infant formula by 30mls (1oz) in every feed every 2-3 days until all the milk is standard formula. This may take a few weeks. If at any point your child’s symptoms return, this confirms the diagnosis of cow’s milk protein allergy. Stop the test and resume a milk free diet. Try reintroducing milk again at around 12 months of age as many children grow out of cow’s milk allergy. Ask your Health Visitor for advice on how to do this. Any questions? Give your Health Visitor team a call. Health Visitor Contact Details ______________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 2014 40 Appendix G(ii) – Milk reintroduction for babies over 6 months Patient Information Introducing Milk Back Into Your Child’s Diet The Milk Ladder Parent Information: Name: Date: An assessment of your child’s allergy, medical history and/or results indicate that it is time to see if they have outgrown their food allergy. This can be done by adding milk into the diet gradually at home. Milk is introduced into the diet by following a ‘milk ladder’ where each food contains increasing levels of milk protein. It is important to start with well-cooked/processed milk first before progressing to ‘raw’ dairy products. The milk ladder introduces milk back into your child’s diet in a gradual way – try not to skip a step, it is better to take things slowly during the reintroduction process than to rush. Before you start you should check: 1) Is your child well? Your child should be in good health, free of cold/coughs or any other illness. If they are unwell, wait until they are better to do the challenge If your child has asthma or eczema make sure their symptoms are well under control If in doubt, wait until you are sure your child is well 2) Is it the right time? If you are due to go on holiday or have another special event looming then you should delay the challenge. This challenge is likely to take a minimum of 2-3 weeks 3) Does your child take antihistamines? Antihistamines (e.g. Piriton, Cetirizine) can mask reaction symptoms so your child should not be taking them during the challenge. If they use antihistamines, do the challenge at a time of the year when they are least affected by seasonal allergies 41 Appendix G(ii) – Milk reintroduction for babies over 6 months If your child is well, the time is right and they are not taking routine antihistamines then you can progress with the challenge. Throughout the challenge it is useful to keep a record of the foods tried/the amounts eaten and any reaction (including how long after the food was eaten did the reaction occur). Milk Ladder Details 1) Start the challenge by testing some cow’s milk on your child’s skin (cheek or where eczema may flare up). Wait a couple of hours, if no reaction (e.g. rash/itchy skin) occurs progress to 2). 2) Now gradually start to introduce products that may have traces of milk in them into your child’s diet. Each of the foods listed contain progressively more milk protein in them. Try each food for a few days (up to a week) before moving onto the next food. Start with 1 malted milk biscuit. Look out for a biscuit that contains milk powder rather than whey powder. Then progress to ½ a digestive or garibaldi biscuit that contains milk. After a few more days try a mini muffin or cupcake (30g) before moving onto one scotch pancake. The scotch pancake should contain milk protein rather than whey powder. (Scotch pancakes contain less milk than muffins/cupcakes but are cooked for a much shorter time). 3) The next stage of the ladder is to try baked dishes such as shepherds pie or lasagne (mash/white sauce made using cow’s milk – but no cheese). Try ½ a portion (100g) Try this a few times before moving onto 4). 4) If your child continues to be symptom free then you can try the next few stages as below, for each stage try for a few days over the course of a week before moving on. Firstly introduce pizza that has a milk free base – check the ingredients or make your own. You can use a milk free pitta bread or corn tortilla as a base. This introduces cooked cheese. Start with ½ a mini pizza (or equivalent size) and progress up to one mini pizza before moving onto stage 5). An alternative to a mini pizza is to add 15g of grated hard cheese to a suitable dish (shepherd’s pie, pasta dish – previously tolerated) and grill/bake for at least 10 minutes. 5) Now try a portion of 10g milk chocolate – this can be increased up to 35g before trying stage 6). 6) If your child remains symptom free now try 1 pot of yoghurt (125ml). 7) This stage will test if your child can tolerate cheese that isn’t cooked. Introduce a portion of cheese - 25g. Most hard cheeses contain 20-25% protein and can be used at this point. Try cheddar as a first choice. 8) 100mls sterilised cow’s milk or infant formula (in tetra packs/cartons). This milk is ultra heat treated for 30 minutes so is often tolerated at this point in the ladder 9) The final stage is to introduce 100mls pasteurised cow’s milk or infant formula (powder). 42 Appendix G(ii) – Milk reintroduction for babies over 6 months *Some children may be able to tolerate a certain amount of cow’s milk in their diet e.g. include milk in foods, have ordinary butter/margarine and cheese but are unable to tolerate drinks of milk. If they have more than the particular amount that they are able to tolerate then they may develop symptoms (up to 48 hours later). If this is the case it is sensible to include cow’s milk up to the certain amounts they can tolerate and remain symptom free. * If at any time your child has a reaction then you should STOP THE TEST but re-try in 6 months. Symptoms of a reaction are usually similar to the reaction your child first presented with. These include: Tingling, itching in mouth Developing rash Dry/red patches of skin appearing Nausea/vomiting Abdominal pain Diarrhoea Wheezing (give inhaler if available) If any of these occur, give your child some antihistamine and monitor their condition. Your child may feel quite nervous about trying this milk challenge, this is quite normal but you can help them by allowing adequate time and doing the challenge at home under your supervision in a calm environment. They may also find cow’s milk products have a different taste/smell to the foods they are used to. Give your child time to accept the new tastes and flavours during the challenge period. Any questions? Give your Health Visitor team a call. Health Visitor Contact Details ______________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. 43 Appendix G(ii) – Milk reintroduction for babies over 6 months Patient Information Sheet Following a Milk and Soya Free Diet when you are Breastfeeding Name: ____________________________________________ Date: __________ Breastfeeding provides the best source of nutrition for babies. It is suitable for most babies with cow’s milk protein allergy. Occasionally breast fed babies can react to cow’s milk proteins and soya proteins that transfer in breast milk from the mother’s diet – if that is the case you may be advised to avoid milk and soya products whilst you are breastfeeding. This may only be for a short period of time or may be for a few months. Breastfeeding technique should be checked first with your Health Visitor or Breastfeeding Counsellor as sometimes a change in positioning can improve feeding and reduce some symptoms. What Should You Exclude? Cow’s milk and cow's milk products including dried milk. The diet should be free of cow’s milk protein (casein and whey) and milk sugar (lactose). Goat's, sheep and other mammalian milks are not recommended either as they contain a protein very similar to that found in cow's milk. In addition you need to avoid all sources of soya/soya protein Suitable Milk Substitutes Milk is an important source of nutrition for breastfeeding mothers. When milk is excluded from the diet, it is vital to replace it with a nutritionally complete alternative. Milk alternatives which could be suitable include those made from: Almonds Coconut Hazelnut s Hemp Oats Pea and other pea products Always choose a milk alternative that is fortified or enriched with calcium – they should provide at least 120mg of calcium /100mls. Organic versions do not usually have calcium added. 44 Appendix G(ii) – Milk reintroduction for babies over 6 months Which Foods should you avoid? Some of the foods you need to avoid in your diet are obvious, such as milk, cheese, cream, yoghurt, butter and soya. However, many other foods contain cow's milk and soya - these should be avoided too. Look for the list of ingredients printed on the package and avoid foods that contain the following -. Cow's milk protein may be labelled as: all types of milk, including fresh, dried, UHT, condensed and evaporated cheese cream/artificial cream, ice cream yoghurt, fromage frais butter/margarine/ghee buttermilk lactose/milk sugar milk powder/skimmed milk powder/non fat milk solids milk protein/milk solids whey/whey syrup sweetener shortening containing whey casein/caseinate/hydrolysed casein lactalbumin/lactoglobulin Soya may be labelled as: soya beans/soya bean curd/soya protein/soya albumin soya milk/soya yogurt/soya ice cream soy sauce soya flour/soya starch/soya gum tofu and tofu protein textured vegetable protein hydrolysed vegetable protein soya oil soya lecithin (E322) tempeh miso edamame (fresh soya beans) If any of these names are listed in the ingredient list of the food then you should avoid that food. The table on the following pages gives you a guide as to which foods should be milk and soya free and those foods which you may need to avoid. Please remember to always check the ingredient lists on products. 45 Appendix G(ii) – Milk reintroduction for babies over 6 months Milk and Soya Free Foods Foods to avoid or check the ingredients Butter, ordinary margarine, low fat spread, soya spread, soya oil Fats Milk and soya free margarines e.g. Pure, Dairy free Tomor, Vitalite. Pure vegetable fats such as vegetable oil, sunflower oil and olive oil, lard, cocoa butter. Supermarkets own brand vegetable based margarines Eggs and Dairy Products Eggs Milk substitute. Oat cream e.g. Oatly. Coconut cream Meat & Alternatives All fresh and frozen beef, lamb, pork, ham, bacon, veal, rabbit. Offal: liver, kidney Poultry: chicken, turkey Check the ingredients of sausage, burgers, tinned meats, meat pies and other processed meats. Tofu , TVP Fresh and frozen fish without coating or sauce Avoid fish in white sauces and fish fingers in batter. Check the ingredients of tinned fish Cereals Wheat, rye, barley, oats, rice, maize, flour, macaroni, spaghetti, dried pasta Tinned spaghetti containing cheese, macaroni cheese. Check ingredients of fresh filled pasta Breakfast Cereals Rice Krispies, Shredded Wheat, Avoid Special K and Swiss type Shreddies, All Bran, Weetabix, cereals. Check ingredients of Ready Brek, Porridge made muesli and other cereals with milk substitute or water, Branflakes, Frosties Fish Cheese, including vegetarian and soya based cheese alternatives, yoghurt, fromage frais, crème fraiche, cream. Soya desserts and custards Bakery Products Home made bread, cakes, biscuits and pastry made with milk alternative and soya free margarine Many types of bread contain soya flour, check labels carefully. Milk breads, cakes, biscuits, pastries. Puddings Tinned milk puddings, Instant Whip, Angel Delight, Yoghurts, Ice-cream, including non-dairy fat types. Ready made custard, instant custard. Soya based ice Rice, semolina, sago, tapioca and custard made using custard powder and a suitable milk substitute. Ice lollies, sorbet, jelly, oat based dairy free ice 46 Appendix G(ii) – Milk reintroduction for babies over 6 months cream cream. Fruit & All types of fruit, fresh, dried, Vegetables &Potatoes tinned in juice or syrup. All vegetables, fresh, tinned or frozen without added ingredients Avoid potato mashed with milk or butter. Check ingredients of vegetable and potato salad, instant potato, crisps and other savoury snacks. Edamame beans/soya beans. Tofu/TVP Drinks Tea, coffee, cocoa, , fruit juices, fruit squash, fizzy drinks, Bovril, Marmite Avoid Horlicks, Ovaltine, drinking chocolate, Milo and instant hot chocolate drinks. Check soups and avoid cream soups Confectionery Boiled sweets, fruit gums, pastilles, marshmallows Avoid fudge, toffee, milk chocolate. Check ingredients of plain chocolate Other Products Sugar, jam, honey, syrup, Bisto, Oxo, salt, pepper, herbs, spices, essences, salad cream, mayonnaise, gravy, tomato ketchup Avoid sugar substitutes containing lactose e.g. Sweet 'n' Low, Canderel, monosodium glutamate powder. Please note this is not an exhaustive list and as ingredients can change, always check the label. If you are eating out ask the restaurant before you order if you are unsure if meals will be milk and soya free. Phone ahead and check before you visit to make sure there are suitable dishes available for you. Check with your pharmacist about tablets or medicines which may contain lactose Adapting Recipes? Many ordinary recipes can be adapted by using your milk alternative. Use a milk and soya free margarine instead of butter and a milk and soya alternative in place of cow's milk. Ask for the leaflet ‘Adapting recipes’ for further information. What About Calcium? 47 Appendix G(ii) – Milk reintroduction for babies over 6 months Calcium is needed for strong teeth and bones. Lack of calcium can increase risk of osteoporosis (fragile bones) and fractures later in life. Requirements while breastfeeding are 1250mg per day. 1 pint of calcium fortified/enriched milk alternative will provide around 700mg per day. Even though you can include other calcium rich non-milk/soya free sources of foods in your diet, most breastfeeding women on a milk free diet will need a calcium supplement. You can use the ‘Sources of Calcium’ table to help you choose calcium rich foods. Vitamin D is needed by the body to absorb calcium and the best source is from the action of sunlight on the skin. The Department of Health recommends that all breastfeeding women should take a vitamin D supplement. Speak to your local pharmacist about which supplements are suitable. Calcium and Vitamin D supplements are available to purchase in pharmacies and supermarkets. Sources of Calcium Remember to always check labels to confirm these products are milk and soya free. Foods providing 250mg of Calcium Sardines canned (including bones) Calcium-enriched milk alternative Calcium fortified orange juice e.g. Tropicana Essentials - Calcium Foods providing 150mg of Calcium Curly Kale/spring greens Tahini paste (sesame seed paste) Pilchards Fortified breakfast cereal Foods providing 100mg of Calcium Tinned salmon Broccoli Baked beans/kidney beans Foods providing 50mg of Calcium White bread White flour products e.g. milk/soya free hot cross bun Cabbage Dried figs Sesame seeds (1 tbsp) Foods providing 25mg of Calcium Dried apricots Nuts e.g. brazil, almonds, walnuts Chapatti x 1 Egg Portion Size 60g or half a tin 200mls 200mls Portion Size 90g 20g (1 tsp) 60g or half a tin 35g Portion Size 115g or half a tin 90g 200g or half a tin Portion Size 60g (2 slices) 1 90g 20g or 1 dried 10g Portion Size 50g or small handful 30g or small handful 55g 1 medium 48 Appendix G(ii) – Milk reintroduction for babies over 6 months Fish fingers x 2 Hummus Dried fruit e.g. sultanas Sunflower seeds (2 tbsp) White fish poached in water Wholemeal bread (2 x slices) 56g 50g 50g or 2 tablespoons 25g 170g 60g Contact Details Dietitian__________________________________________________ Health Visitor _____________________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 201 49 Appendix H – Weaning onto a milk and soya free diet Patient Information Sheet Weaning onto a Milk and Soya Free Diet Name: ___________________________________________ Date: _____________ Why A Milk and Soya Free Diet? Around 3% of children develop cow’s milk protein allergy. In most cases a strict cow’s milk free diet is needed to treat the allergy. This information will help you avoid milk whilst making sure your child gets all the nutrition they need to grow and develop well. Cow’s milk protein allergy may cause a variety of symptoms. Some children who are allergic to cow's milk protein are also allergic to soya protein so this may need to be excluded from the diet too. It can take longer for children to recover, but many ‘grow out’ of cow’s milk and soya protein allergy. Reviews with your health care professional can guide you on how long you need to continue avoiding cow’s milk and soya in the diet. Which Products Should You Exclude? Cow's milk including dried milk. The diet should be free of cow’s milk protein (casein and whey) and milk sugar (lactose). Goat's, sheep and other mammalian milks are not recommended as they contain lactose and a protein very similar to that found in cow's milk. In addition all sources of soya/soya protein should be avoided. Replacing Cow's Milk Milk is an important source of nutrition for babies and children. If infants are breastfeeding they can continue to do so alongside weaning onto cow’s milk and soya free solids. If a child is not breastfeeding and taking an infant formula it is vital to replace it with a nutritionally complete alternative. Prescribed Milk Alternatives Your child may have been prescribed an Extensively Hydrolysed Formula such as Nutramigen Lipil, Alimentum, Pepti-Junior, Aptamil Pepti or Neocate LCP. They should continue on this until advised otherwise by your Dietitian, Health Visitor or Doctor. Most babies under 1 year need approximately 600ml (20oz) each day to ensure they are meeting their nutritional needs. Over 1 year of age this amount reduces to around 350ml (12oz). These amounts do vary according to the child and their diet. Check with your Doctor, Health Visitor team or Dietitian if you have concerns about their 50 Appendix H – Weaning onto a milk and soya free diet calcium needs. Cow's Milk and Soya Milk Alternatives Please check with your Dietitian or Health Visitor before using any milk alternatives as some may not be suitable for other allergies and some may be low in calories, protein, calcium and/or other nutrients. Rice milk should NOT be given to children under 5. The following milk alternatives should not be used as a child's main milk drink under the age of 1 but they can be useful in home cooking and can be included in the weaning diet after the age of 6 months. Milk alternatives which could be suitable include those made from: Almonds Coconut Hazelnut s Hemp Oats Pea and other pea products Always choose a milk alternative that is fortified or enriched with calcium – they should provide at least 120mg of calcium /100mls. Organic versions do not usually have calcium added. Which Foods Should You Avoid Some of these foods are obvious, such as milk, cheese, cream, yoghurt and butter. However, many other foods contain cow’s milk and these should be avoided too. Look for the list of ingredients printed on the package and avoid foods which contain the following – . Cow's milk protein may be labelled as: milk, including fresh, dried, UHT, condensed and evaporated cheese crea, ice cream yoghurt, fromage frais butter/margarine/ghee buttermilk lactose/milk sugar milk powder/skimmed milk powder/non fat milk solids milk protein/milk solids whey/whey syrup sweetener shortening containing whey casein/caseinate/hydrolysed casein lactalbumin/lactoglobulin On labels soya can be called: soya/soy/soyabean/soya albumin/soya protein soya milk soya flour/soya starch/soya gum 51 Appendix H – Weaning onto a milk and soya free diet textured vegetable protein (TVP) soya oil soya lecithin (E322) tempeh tofu/soya bean curd miso edamame (frsh soya beans) Milk and Soya free foods Foods to check or avoid Fats Milk and soya free margarines e.g.; Pure, Tomor, Granose, Vitaquell. Pure vegetable fats, vegetable oil, lard, coca butter. Supermarket own brand vegetable based margarines. Butter, ordinary margarine, soya spread Eggs and Milk Products Eggs, Milk alternative. Oat cream e.g. Oatly, coconut cream Milk, cheese, including vegetarian cheese, yoghurt, fromage frais, crème fraiche, soya cheese, soya yoghurt, cream Meat & Alternatives All fresh and frozen beef, lamb, pork, ham, bacon, veal, rabbit. Offal: liver kidney. Poultry: chicken, turkey Check the ingredients of sausage, burgers, tinned meats, meat pies and other processed meats. Tofu, TVP Fish Fresh and frozen fish without coating or sauce Avoid fish in white sauces & fish fingers in batter. Check the ingredients of tinned fish Cereals Wheat, rye, barley, oats, rice, maize, flour, macaroni, spaghetti, dried pasta Tinned spaghetti containing cheese, macaroni cheese. Check ingredients of fresh pasta Breakfast Cereals Rice Krispies, Shredded Wheat, Shreddies, All Bran, Weetabix, Ready Brek, Porridge made with water, Branflakes, Frosties Avoid Special K and Swiss type cereals. Check ingredients of muesli and other cereals Bakery Products Home made bread. Home-made cakes, biscuits and pastry made with milk free margarine 52 Many breads contain soya and milk, check labels carefully. Milk breads, Procea, Cakes, biscuits, pastries. Check labels - some biscuits are milk/soya free Appendix H – Weaning onto a milk and soya free diet Puddings Tinned milk puddings, Instant Whip, Angel Delight, Yoghurts, Ice-cream, including non-dairy fat types. Ready made custard. Soya yoghurt, soya desserts, and soya frozen desserts Avoid potato mashed with Fruit and Vegetables All types of fruit, fresh, dried, milk or butter. Check &Potatoes tinned in juice or syrup. All ingredients of vegetable and vegetables, fresh, tinned or frozen potato salad, instant potato, without added ingredients crisps and other savoury snacks. Drinks Rice, semolina, sago, tapioca and custard made with a suitable milk alternative, ice lollies, jelly. Oat based dairy free ice cream Avoid Horlicks, Ovaltine, Drinking chocolate, fruit juices, fruit Bournvita, Milo and instant squash, fizzy drinks, Bovril, hot chocolate drinks. Check Marmite ingredients of soups and avoid cream soups Other Products Sugar, jam, honey, syrup, Bisto, Oxo, salt, pepper, herbs, spices, essences, salad cream, mayonnaise, gravy, tomato ketchup Baby Foods Check labels of baby rice and rusks Avoid sugar alternatives containing lactose e.g. Sweet 'n' Low, Canderel, monosodium glutamate powder. Check ingredients of baby foods as many contain milk and soya Please note this is not an exhaustive list and as ingredients can change, always check the label. If you are eating out ask the restaurant before you order if you are unsure if meals will be milk and soya free. Phone ahead and check before you visit to make sure there are suitable dishes available for you. Check with your pharmacist about tablets or medicines which may contain lactose Weaning Weaning a baby who has cow’s milk and soya allergy should be the same as weaning a non-allergic baby, except that you must not give any foods that contain cow’s milk or dairy products or soya based products. You should aim to start giving solid foods at around six months but not before four months (17 weeks). Begin weaning with low allergenic foods such as pureed rice, potatoes, root and green vegetables and fruit. Use a little of your baby’s usual milk (breast or hypoallergenic formula) to mix the food to the desired consistency. Introduce new allergenic foods such as egg and fish one at a time. Allergenic foods should be given for 3 days to 53 Appendix H – Weaning onto a milk and soya free diet ensure adequate exposure and leave a couple of days between new foods to be able to ascertain if there is any reaction. Keeping a food diary can be useful. First foods include: soft fruits and cooked vegetables (e.g. cooked apple or pear, avocado, banana, carrot, parsnip, sweet potato or yam milk and soya free baby cereals made with your child’s milk alternative (e.g. baby rice, baby porridge. Please note some of these products may contain milk/soya so carefully check the ingredients list on the label) pureed or mashed up meat, chicken or lentils As your baby moves through weaning, food can become more ‘chopped’ in texture until your baby is managing family meals and finger foods. As your baby moves through weaning, food can become more ‘chopped’ in texture. Stage Two is mashed with soft lumps and soft finger foods. Stage Three is minced or chopped family foods and hard finger foods. Eventually your baby will be managing family meals. Breakfast milk and soya free breakfast cereal or porridge with milk alternative fruit puree or mashed banana toast *fingers with milk and soya free margarine (see list Snacks and Finger foods small pieces of soft, ripe fruit (e.g. banana, peach, mango, melon) dried apricots or raisins raw vegetable sticks (e.g. cucumber sticks, peppers) lightly cooked vegetable pieces (e.g. broccoli & cauliflower florets, carrot, parsnip & courgette sticks, green beans) bread sticks* or rice cakes* with hummus, mashed avocado or milk and soya free spread sandwiches with ham/chicken/tuna/egg mayonnaise*, cucumber slices and milk and soya free margarine toast* with baked beans* and well-cooked scrambled egg (made with milk alternative) and milk and soya free margarine Main Meals minced or finely chopped meat or flaked fish served with; pasta in a roasted vegetable and tomato based sauce or a milk and soya free white sauce (see recipe). or meat, fish served with mashed potatoes/chopped roast or new potatoes, mashed/chopped vegetables 54 Appendix H – Weaning onto a milk and soya free diet flaked fish poached in a milk alternative, mashed potato and vegetables mashed, cooked lentils/dhal, chickpeas or other pulses with well-cooked boiled rice 55 Appendix H – Weaning onto a milk and soya free diet Puddings soft ripe or dried fruit home made milk and soya free custard with fruit rice pudding, semolina or custard made with milk alternative milk jelly or egg custard made with milk alternative fruit crumble made with milk free margarine *may contain milk and/or soya, please check the label Adapting Recipes? Many ordinary recipes can be adapted by using your milk alternatives. Use a milk and soya free margarine instead of butter and milk alternatives in place of milk in recipes. Try making up batches of milk and soya free meals/puddings and freezing them in ice-cube trays to allow you to serve small portions with less waste. Ask for ‘Adapting recipes’ leaflet for further ideas. What About Calcium? Calcium is needed for strong teeth and bones. Lack of calcium can increase risk of osteoporosis (fragile bones) and fractures later in life. Calcium requirements for infants under 1 year old is 525mg/day and for 1-3 year olds is 350mg/day. Most babies under 1 year need approximately 600ml (20oz) of milk alternative each day to ensure they are meeting their nutritional needs. Over 1 year of age this amount reduces to around 350ml (12oz). These amounts do vary according to the child and their diet. Check with your Doctor, Health Visitor or Dietitian if you have concerns about their calcium needs. Use the ‘Sources of Calcium’ table to help you choose calcium rich weaning foods. Please note the portion sizes listed in the table are based on adult portions, so you will need to adapt the portion size accordingly. The Department of Health also recommend that a supplement containing vitamin A, C and D should be given to all children aged six months to five years. This is a precaution because growing children may not get enough of these vitamins, especially those not eating a varied diet, such as fussy eaters. Supplements are available to purchase in pharmacies and supermarkets, or may be available on prescription. Ask your Health Visitor for advice. Sources of Calcium Remember to check the ingredients lists to make sure these products are milk and soya free. Foods providing 250mg of Calcium Sardines canned (including bones) Calcium fortified milk alternative Calcium fortified orange juice 56 Portion Size 60g or half a tin 200mls 200mls Appendix H – Weaning onto a milk and soya free diet e.g. Tropicana Essentials - Calcium Foods providing 150mg of Calcium Curly Kale/spring greens/spinach Tahini paste (sesame seed paste) Pilchards Fortified breakfast cereal Foods providing 100mg of Calcium Tinned salmon Broccoli Baked beans/kidney beans Foods providing 50mg of Calcium White bread White flour products e.g. milk/soya free hot cross bun Cabbage Dried figs Foods providing 25mg of Calcium Dried apricots Chapatti x 1 Egg Fish fingers x 2 Hummus Dried fruit e.g. sultanas White fish poached in water Portion Size 90g 20g (1 tsp) 60g or half a tin 35g Portion Size 115g or half a tin 90g 200g or half a tin Portion Size 60g (2 slices) 1 90g 20g or 1 dried Portion Size 50g or small handful 55g 1 medium 56g 50g 50g or 2 tablespoons 170g Contact Details Dietitian__________________________________________________ Health Visitor _____________________________________________ Produced in Partnership with Dorset County Hospital NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust & Poole Hospital NHS Foundation Trust. March 2 57 Appendix I – Equality Impact Assessment Form What are the intended outcomes of this work? Include outline of objectives and function aims The main purpose of the guidelines is to support professionals and staff working with families with milk allergy or suspected milk allergy to ensure correct diagnosis and management Who will be affected? Staff and patients/families with children with possible allergy Evidence What evidence have you considered? Disability Consider and detail (including the source of any evidence) on atittudinal, physical and social barriers. No Impact Sex Consider and detail (including the source of any evidence) on men and women (potential to link to carers below) No Impact Race Consider and detail (including the source of any evidence) on difference ethnic groups, nationalities, Roma gypsies, Irish travellers, language barriers No Impact Age Consider and detail (including the source of any evidence) across age ranges on old and younger people. This can include safeguarding, consent and child welfare. Guidelines are for children under 2 years to advise on ensuring consistent approach and avoid unnecessary dietary restrictions. Gender reassignment (including transgender) Consider and detail (including the source of any evidence) on transgender and transsexual people. This can include issues such as privacy of data and harassment. No Impact - Guidelines are for infants. Sexual orientation Consider and detail (including the source of any evidence) on heterosexual people as well as lesbian, gay and bi-sexual people No Impact Religion or belief Consider and detail (including the source of any evidence) on people with different religions, beliefs or no belief. No Impact Pregnancy and maternity Consider and detail (including the source of any evidence) on working arrangements, part-time working, infant caring responsibilities No Impact 58 Carers Consider and detail (including the source of any evidence) on part-time working, shift-patterns, general caring responsibilities No Impact Other identified groups Consider and detail and include the source of any evidence on different socio-economic groups, area inequality, income, resident status (migrants) and other groups experiencing disadvantage and barriers to access. Different incidence of milk allergy in differing races. Common guidelines will ensure consistency of approach What is the overall impact? Consider whether there are different levels of access experienced, needs or experiences, whether there are barriers to engagement, are there regional variations and what is the combined impact? None Addressing the impact on equalities Please give an outline of what broad action you or any other bodies are taking to address any inequalities identified through the evidence. The guidelines will provide a consistent approach to the diagnosis and management of milk allergy. By providing evidence case and an agreed formulary there will be consistent prescribing of milk allergy infant formula feeds. This should reduce different patterns on prescribing in primary care and consistent approach from secondary care regarding milk prescription requests. This should reduce/eliminate requests for prescriptions from parents where a specialist formula use cannot be justified but soya formula may be being prescribed due to cost implication to the family. Name of person who carried out this assessment: Katherine Gough, Head of Medicines Management Date assessment completed: 25/2/2016 Name of responsible Director: Sally Shead Date assessment was signed: 10/03/2016 59
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