Faculty of Health Department of Community Health and Social Work Dip HE Nursing Learning Disability Branch The Effect of Institutionalisation Resource Pack Fiona Rich Senior Lecturer Asylums The term ‘Asylum’ can evoke feelings of fear and dread in many of us, however the interpretation and meaning of this term has undergone a complete transformation over the course of the last 200 years (Skull, 1996). The term asylum was originally associated at the beginning of the 1800’s with the lunacy reform movement. The original interpretation of the asylum was an institution which would serve as a humane and restorative retreat which the ‘mad’ would attend for rehabilitation. The asylum was intended to be a home where the patient was to be treated as an individual and where his/her mind was to be constantly stimulated and encouraged to return to its natural state – to strengthen the mind and restore reason. The concept of asylums became interpreted as dark, sinister dwellings in the Victorian age. Local magistrates took advantage of the fact that it was more economical to provide an environment of masses of people who were housed together rather than provide asylum as a home where the patient would be treated as an individual. As a result, there was an influx of ‘pauper lunatics’ to asylums and the average size of county asylums grew yearly. An excellent description of an institution is given in Chapter IV of the novel ‘Human Traces’ by Sebastian Faulks (2006) The degree of regimentation needed to administer institutions of 500, 1000 and more ensured that such asylums would be the complete opposite of what they were originally intended to be. Now the term asylum was associated with monotony where the needs of patients were secondary to the needs of the institution. Sheppard (1872) however defended the asylum against those who questioned the benefits of asylum regimes as follows: “I will venture to say that there is no class of persons in the United Kingdome so well cared for as the insane. The best sites in the country are selected for their palaces, within which a cubic space per lung is measured for them… The fat kine of our fields are laid under contribution for them; the corn and wine is stored for them; clothing of the warmest and supervision of the best are provided for them. Every sort of indulgence within reasonable bounds is theirs. Though a large number of them are of the most degraded type, and have made themselves what they are by their own vice and wickedness, they are equally (if not altogether wisely) sustained and sheltered. They are rained upon by sympathy and sunshined by kindness. They are fenced about with every sort of protection which the legislature can devise. Magistrates, guardians, commissioners, friends inspect them, visit them, record their grievances, register their scratches, encourage their complaints, and tabulate their ailments” (Sheppard, 1972 cited in Barham, 1992, page x) Townsend (1962) however quotes a report of visits to workhouses by members of the Royal Commission on the Poor Laws of 1909 which describes the ‘institution’ in a completely different light: The inmates, over 900 in number, were congregated in large rooms without any attempt to employ their time or cheer their lives. There was a marked absence of any human interest… it could not be better described than as a ‘human warehouse’. The dormitories which in some cases accommodated as many as 60 inmates, were so full of beds as to make it impossible to provide chairs, or to walk, except sideways, between them the… ‘home’ which we visited in the afternoon seemed to us defective in every particular… the rooms were low, illlighted, and hopelessly overcrowded. The men were, in many cases, lounging in the bedrooms, there being no chairs except in the dining hall, and there was a total absence of books or newspapers – as far as we saw – and it is impossible to conceive a more dismal and hopeless asylum for age. The administration consists of but 2 officers for 268 inmates. The officer in charge, however, stated that they had no difficulty in enforcing such discipline as was necessary. The only outdoor space available for the inmates was an asphalted roof yard, some 35 feet by 25 feet, up so many flights of stairs that a large proportion of inmates were unable to mount it. (Townsend, 1962 cited in Allot & Robb, 1988 page 10) Skull (1996) notes that during the mid nineteenth century, there were between 25% and 40% of admissions who were discharged within a year of their arrival. Each year however, a substantial number of patients were not discharged and the population of long-stay patients in the county asylums grew continuously. At the same time, annual admissions were reducing as a whole. A large number of the asylum population were those who had lingered year after year. The general public began to identify asylums with chronically mentally ill, hopeless incurable individuals, the waifs and strays, and the weak and wayward of society. The Victorian view of madness was that it was an irreversible product of a process of mental degeneration and decay: “…psychiatric discourse exhibited a barely disguised contempt for those ‘tainted persons’ who it sequestered on society’s behalf” (Skill, 1996, page 12) The quality of the care provided was poor, and amounted to nothing more than custodial care – the goals of the institutions were ‘control’ and ‘discipline’. Patients were regarded as ‘objects’ to be ‘managed’ rather than individuals to be treated and there appeared to be no therapeutic aim. Local authorities were reluctant to provide funds for what was regarded as a custodial operation and any funds which were provided were rarely more than what was needed to supply a bare minimum of care. Total Institutions Goffman (1961) coined the phrase “total institution” and defined it as: “A place of residence and work where a large number of like-situated individuals, cut off from the wider society for an appreciable period of time, together lead an enclosed, formally administered round of life” (Goffman, 1961, page 11) Goffman (1961) notes that prisons serve as a clear example of total institutions where inmates who have broken the law live in an environment where they are denied certain rights. Goffman (1961) also reminds us however that: “What is prison-like about prisons is found in institutions whose members have broken no laws” (Goffman, 1961, page 11) Goffman (1961) refers to mental institutions, where upon admission to this example of a total institution, the individual is immediately stripped of the support previously provided by “stable social arrangements of his home world”. “He begins a series of abasements, degradations, humiliations and profanations of self. His self is systematically, of often unintentionally mortified… The inmate than finds certain roles are lost to him by virtue of the barrier that separates him from the outside world… we generally find staff employing what are called admission procedures, such as taking a life history, photographing, weighing, assigning numbers, searching, listing personal possessions for storage, undressing, bathing, disinfecting, haircutting, issuing institutional clothing, instructing as to rules and assigning to quarters! (Goffman, 1961, pages 24 - 25) Goffman (1961) feels that the process of ‘disculturation’ or ‘role stripping’ renders the individual incapable of normal living until the person has been ‘reduced from a person with many roles to a cipher with one: the inmate role’ (Jones and Fowels, 1998 in Allot & Robb [Ed], 1998). This process, according to Goffman (1961) suggests that because a total institution deals with so many aspects of its inmates’ lives, there is a need to obtain immediate cooperativeness from the inmate: “Staff often feel that a recruit’s readiness to be appropriately deferential in his initial face-to-face encounters with them is a sign that he will take the role of the routinely pliant inmate… the initial moments of socialisation may involve an ‘obedience test’ and even a will-breaking contest: an inmate who shows defiance receives immediate visible punishment, which increases until he openly ‘cries uncle’ and humbles himself” (Goffman, 1961) This requirement of inmates of institutions to be submissive is reiterated by Barham (1992) who quotes an informative account by Denis Martin – a physician superintendent of a mental hospital in the early 1960’s: “… in the traditional mental hospital the satisfactory running of the whole hospital depended upon the submission of the patients to authority with a minimum of resistance. Traditional ways developed of dealing with those who were unable to submit adequately to the life of the institution… these consisted mainly of locked doors, various forms of mechanical restraint and segregation of the sexes. These were followed by the employment of heavy sedation and in more recent years by the use of electrical cerebral treatment, prolonged sleep by drugs and the operation of a prefrontal leucotomy” (Martin, 1962, page 2 cited in Barham, 1992, Page 7) The constant repression and browbeating of ‘inmates’ was compounded by the environment in which they lived. Goffman identified 16 characteristics which are found in the environments of total institutions: 1. all aspects of life are conducted in the same place, under the same single authority 2. all activities are carried out in the company of others, treated alike and required to do the same things together 3. the day’s activities are tightly scheduled with one activity leading to another at a pre-arranged time 4. sequencing of activities is imposed by a system of explicit formal rulings and a body of officials whose task is surveillance 5. various activities are brought together in a single rational plan designed to fulfil the official aims of the institution 6. there is a basic split between a large managed group/the inmates, and a small supervisory group 7. each group tends to conceive of the other in terms of narrow, hostile types 8. staff tend to feel superior and righteous; inmates feel inferior, blameworthy and guilty 9. social mobility between the two groups is severely restricted; social distance is great and formally prescribed 10. the passage of information about staff plans for inmates is restricted and inmates are excluded from decisions about their fate 11. incentives for work have little significance outside the institution 12. groups have only official points of contact 13. there is a barrier between the inmates and the outside world 14. inmates are de-possessed of their basic human rights 15. high-ranking inmates have more authority than low-ranking supervisors 16. inmates are expected to internalise the norms of staff Institutional Neurosis The term Institutional Neurosis was coined by Barton (1960) who defined it as a disease characterised by: apathy lack of initiative loss of interest in all but the mundane submissiveness to authority and sometimes no expression of feelings of resentment at harsh or unfair orders lack of interest in the future and an apparent inability to make practical plans for it a deterioration in personal habits, toilet, and standards generally a loss of individuality resigned acceptance that things will go on as they are – unchangingly, inevitably and indefinitely Barton identified these symptoms as being a separate disorder from the one which originally brought the individual into hospital and suggested that it was produced by the contemporary methods of looking after people in mental hospitals – i.e. custodial care (Swann, 1997). The signs, according to Barton (1960) vary from the ‘patient’ who is mute and ‘stuporose’ to the ‘ward worker’ who has a role in the ward and who surrenders their whole life to the institution without complaint. Barton (1960) also identified an array of characteristics which are found in the environments of institutions. These characteristics when compounded induce the onset of institutional neurosis. The factors include: 1. loss of contact with the outside world 2. enforced idleness/loss of responsibility 3. Bossiness of medical and nursing staff 4. loss of personal friends, possessions and personal events 5. drugs 6. repressive atmosphere 7. loss of prospects outside the institution The characteristics of people suffering from Institutional Neurosis are described poignantly by Swann (1997) in a ‘pen-picture’ of a fictitious character. As noted by Swann (1997), the terminology used in the pen-picture was that which was used at the time depicted: Pen Picture of Marjorie in 1970 In 1970 Marjorie was 56 years old and had lived most of her life in a local mental handicap hospital. Marjorie did not know if her family were still alive, as she had not had contact with them for the lat 30 years. She was first admitted to the hospital nearly 40 years ago, when it was clear that she would not be able to find employment. Her notes on admission to the hospital described her as ‘feeble minded’ and in need of a protective environment because of the risk of pregnancy following a number of suspected incidents with local inhabitants. The cause of Marjorie’s mental handicap was congenital syphilis, resulting from maternal infection. She had a typical facial appearance which included a saddleback nose, opacities of the cornea and nystagmus. Marjorie lived on Primrose ward along with 45 other women with varying degrees of mental and physical handicap. Primrose ward had an unpleasant smell – a mixture of urine and faeces. A typical day in Marjorie’s life would have started at around 7 am when she would be wakened by the day staff starting their duty. She would be told to go and wash and dress. Because she was more capable than some of the others, Marjorie was able to jump the queue of naked bodies waiting to be bathed or washed. Marjorie had no personal belongings, and so washed with whatever toiletries were available. Noone seemed to bother much bout cleaning teeth. Sometimes it was difficult for Marjorie to find a dress which would fit from the central supply of clothes in a cupboard. Occasionally, particularly after the weekend when the laundry staff had been away, it would be difficult, if not impossible, to find any underwear at all. Marjorie’s help was often enlisted by staff to look after some of the low-grade patients which who she lived. She would help them to wash and dress in the morning, help feed them at mealtimes and ’tuck them in’ at night. During the day, having helped to get everyone bathed, dressed and fed, Marjorie stood outside the front door to watch and chat with passers by. These usually consisted of nurses and doctors going to meal breaks or starting and finishing shifts at the hospital. Referred to as ‘teabelly’ by staff and high-grade patients alike, it was one of Marjorie’s jobs to make a drink of tea at meal times. This was made exactly the same for all the patients: the tea was mixed with the milk and sugar in a big teapot to save time. Meal times were particularly noisy, with staff constantly shouting at patients to sit down and shut up. Some of the patients used to take Marjorie’s food which made her very agitated and upset. After Marjorie had helped to clear the pots away she would wait by the door until the staff unlocked it, and then she would quickly go back to her usual place outside. She only ventured back indoors at mealtimes, cup of tea times and bed time. Bed time was at 7pm and everyone was in just in time for the night staff to arrive on duty. Marjorie slept in a large dormitory with the other 45 women. Sometimes it was difficult to sleep because of the incessant screaming and shouting of the patient who occupied the next bed, but for Marjorie, as for many other patients during this time, this was a way of life” (Swann, 1997 page 41) ACTION LEARNING SET ACTIVITY From your experience, consider some of the people who you have cared for who have spent a long time living in an institution. 1. Provide a pen-picture of an individual who you feel shows/has shown signs of institutional neurosis 2. Describe some of their characteristics and state why you feel these characteristics have developed 3. Describe some of the characteristics of the environment in which they lived 4. How many of Goffman’s characteristics of a total environment were evident? 5. How many of Barton’s characteristics of institutional neurosis were evidence? 6. What are the implications for practice? References and Recommended Reading ALLOT, M. & ROBB, M (1998) Understanding Health and Social Care: an introductory reader London, Sage Publications BARHAM, P. (1992) Closing the Asylum: The Mental Patient in Modern Society London, Penguin BARTON, R. (1960) Institutional Neurosis Stonebridge Press, Bristol BARTON, R. (1998) Family Involvement in the Pre-discharge Assessment of long stay patients with learning disabilities: a qualitative study Journal of Lerning Disabilities for Nursing, Health and Social Care Vol 2, No 2, Pages 79 – 88 CLARK, D.H. (1996) The story of a Mental Hospital: Fulbourn 1858 – 1983 London, Process Press FAULKS, S. (2006) Human Traces London, Vintage Books GATES. B (2007) [Ed] Learning Disabilities Toward Inclusion [5th Edition] London, Churchill Livingstone GOFFMAN, E. (1961) Asylums: Essays on the social situation of mental patients and other inmates London, Penguin MALIN (1995) Services for people with learning disabilities London, Routledge PILLING, S. (1991) Rehabilitation and Community Care London, Routledge SKULL (1996) Asylums, Utopias and Realities, Ch 1 TOMLINSON, D. & CARRIER, J. [Eds] (1996) Asylum in the Community London, Routledge SWANN (1997) Development of Services, Ch 3 GATES, B. [Ed] (1997) Learning Disabilities [3rd Edition] London, Churchill Livingstone TOMLINSON, D. & CARRIER, J. [Eds] (1996) Asylum in the Community London, Routledge
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