544908 research-article2014 QHRXXX10.1177/1049732314544908Qualitative Health ResearchOwen-Smith et al. Article “Vicious Circles”: The Development of Morbid Obesity Qualitative Health Research 1–9 © The Author(s) 2014 Reprints and permissions: sagepub.com/journalsPermissions.nav DOI: 10.1177/1049732314544908 qhr.sagepub.com Amanda Owen-Smith1, Jenny Donovan1, and Joanna Coast2 Abstract Although there has been extensive research around the etiology of moderate obesity, there are still important questions relating to the development and lived experience of extreme obesity. We present a synthesis of data from two in-depth qualitative studies in which morbidly obese participants (N = 31) were able to explain the development of the condition in their own terms. We identified consistent themes in the two datasets, and undertook a detailed data synthesis. Particularly salient themes in the development of morbid obesity related to family structures and early socialization experiences, and the role of emotional distress was dominant in both initial weight gain and ongoing cycles of loss and regain. All informants accepted some responsibility for their health state, but identified a number of mitigating factors that limited personal culpability that were often related to the fulfillment of gendered social expectations. Keywords comparative analysis; embodiment / bodily experiences; emotions / emotion work, interviews; lived experience; metaethnography; obesity / overweight; research, qualitative; social identity Morbid obesity in adults is clinically defined as having a body mass index (BMI) of at least 40kg/m2, or 35kg/m2 or greater in the presence of significant comorbidity (National Institute of Health and Clinical Excellence [NICE], 2006). Having a BMI within the morbidly obese range is associated with a number of cardiovascular, metabolic, musculoskeletal, psychiatric, and respiratory disorders (Picot et al., 2009), and the mortality rate of adults living with the condition is approximately double that for those who are at a healthy weight (Bennett, Mehta, & Rhodes, 2007). Approximately 2.1% of adults in the United Kingdom live with morbid obesity, and it is estimated that prevalence will double over the next two decades (Lobstein & Jackson Leach, 2007; National Health Service [NHS] Information Centre, 2008). Although prevalence data on morbid obesity are sparse, World Health Organization (WHO; 2010) data on steeply increasing rates of overweight and obesity across the globe indicate the international nature of the problem and underline the importance of obesity as a key international public health concern. The biological and social drivers behind the increase in overweight and obesity are topics of ongoing interest within both the academic and the popular literature. Ecological and epidemiological studies have identified a number of mechanisms that have contributed to the increasing prevalence and severity of obesity. Particular importance has been attached to broad social changes such as alterations in the levels of physical activity customarily undertaken as part of occupational and leisure pursuits, and the marketing practices of food manufacturers and distributors (Keith et al., 2006). Additionally, increasing attention has been paid to investigating the biological underpinnings of obesity, and in particular identifying specific genes that predispose particular individuals to gain weight within favorable conditions—the so-called obesogenic environment (Walley, Asher, & Froguel, 2009). Despite the international concern about the increasing prevalence of obesity, qualitative evidence relating to its development is surprisingly sparse, with few studies focusing specifically on the experiences of the morbidly obese. Reports of studies that are available identified factors such as pregnancy, physical illness, patterns of socialization, and repeated dieting as important in the development of severe overweight and obesity (Greener, Douglas, & van Teiljlingen, 2010; Ogden, Clementi, & Aylwin, 2006; Smith & Holm, 2011; Thomas, Hyde, Karunaratne, Herbert, & Komesaroff, 2008; Throsby, 1 University of Bristol, Bristol, United Kingdom University of Birmingham, Birmingham, United Kingdom 2 Corresponding Author: Amanda Owen-Smith, School of Social and Community Medicine, Canynge Hall, 39 Whatley Road, Bristol BS8 2PS, United Kingdom. Email: [email protected] Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 2 Qualitative Health Research 2007). Although these studies are useful in identifying a number of core themes in the development of morbid obesity, they were limited either by their reliance on predominantly female samples (Ogden et al., 2006; Throsby) or their focus mainly on the experiences of those with lower levels of obesity (Greener et al., 2010; Smith & Holm, 2011; Thomas et al., 2008). This means that the experiences of men and those with very high weights were not explored in depth. Those with a BMI falling within the morbidly obese range are significantly more likely to experience comorbidities associated with their excess weight, with consequent impacts on health-resource usage and individual quality of life (Picot et al., 2009). It is therefore important to investigate the etiology of this extreme condition from a qualitative perspective to gain insight into individual perceptions of its development. Reports of qualitative studies focusing on the lived experience of obesity have revealed that the condition is often associated with a significant degree of psychological distress, which is partly linked to experiences of stigma and social isolation (Lewis et al., 2011; Thomas et al., 2008; Throsby, 2007). Qualitative evidence on the experience of stigma by obese individuals has been confirmed in large quantitative surveys undertaken in the United States. These surveys showed that obese individuals were vulnerable to weight-related discrimination in a number of social spheres, including employment, education, and accessing health care (Puhl & Heuer, 2009; Puhl, Moss-Racusin, Schwartz, & Brownell, 2008). Reports on the few studies focusing on the experiences of extreme obesity (BMI in excess of 35kg/m2) indicate that stigma becomes more acute at higher weights (Lewis et al., 2011; Throsby, 2007), and a quantitative study in the United States revealed that experiences of felt stigma increased in line with BMI (Brewis, Hruschka, & Wutich, 2011). Here we present a synthesis of data from two qualitative studies in which both the development and the experience of living with morbid obesity in men and women were explored in depth. Methodology We took a qualitative approach to both studies, using indepth interviews to investigate individual experiences of developing and living with morbid obesity. We undertook the first study (Study 1) as part of a broader investigation into patients’ experiences of implicit and explicit rationing, the core results of which have been published elsewhere (Owen-Smith, Coast, & Donovan, 2009, 2010). We are undertaking the second study (Study 2) as part of an ongoing longitudinal study investigating how clinicians communicate with patients about the availability of treatment in the context of resource scarcity. Investigating the development of morbid obesity was not one of our explicit objectives in Study 1, and we primarily gathered these data to provide a contextual backdrop to individual experiences of accessing care. However, the richness and complexity of emergent narratives meant that investigating the experience of the development of morbid obesity became an important theme in the analysis, and we included it as an explicit objective of Study 2 from the outset. In both studies, National Health Service (NHS) professionals involved in the provision of secondary care weight management facilitated the identification of potential contributors to the research. We then sent these individuals invitations to participate or gave them information at weight-loss surgery clinics (Study 1 only). The main inclusion criteria used for both studies were (a) that individuals met the United Kingdom NICE criteria for a diagnosis of morbid obesity (BMI of at least 40kg/m2, or 35kg/m2 in the presence of significant comorbidity), and (b) that they had sought access to treatment for their condition. Individuals responded directly to us as the research team; we had no prior access to personal information, and therefore we could not follow up with nonresponders. In both studies, our sampling became more purposeful as the research progressed, to ensure that we included those with a range of experiences of accessing care and that we could follow up emerging themes. We collected data in both studies using in-depth interviews conducted by the first author, mostly in participants’ homes. We used brief topic guides to ensure that we covered all topics of interest and to enable us to compare between accounts, and digitally recorded and fully transcribed all interviews. We conducted interviews between December 2005 and April 2007 (Study 1), and between July and November 2011 (Study 2). We obtained ethical approval from the NHS Wales National Research Ethics Service prior to any fieldwork being carried out. All informants gave informed consent. We continued sampling in both studies until we had achieved an adequate understanding of themes important to the core research objectives. In Study 1, clear themes linked to the development and lived experience of morbid obesity emerged but, because this was not an explicit research objective, we did not pursue these to saturation. We carried out more purposeful sampling as part of Study 2, to ensure that we could explore these themes in greater depth and access the experiences of different groups (Glaser & Strauss, 1967). We analyzed the two datasets separately and the first author later synthesized them. We used the constant comparative method as the primary analysis technique for both datasets. This method is part of the grounded theory approach recommended by Glaser and Strauss (1967), and starts from the premise that theoretical constructs Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 3 Owen-Smith et al. should be built up from the data itself, rather than seeking to impose any a priori hypothetical framework onto the phenomenon under study. We read and reread transcripts repeatedly to identify emerging themes, and the first author wrote detailed descriptive accounts of the data. This enabled us to identify relationships between themes and to organize codes into hierarchical structures. We used ATLAS.ti (Scientific Software Development, 1999) to facilitate coding and data management. The third author reviewed all analytic documents relating to Study 1, which the first author undertook as part of her doctoral research. For Study 2 (which was a postdoctoral study), we all met at frequent intervals to discuss the data and emerging coding frameworks. We conducted data collection and analysis concurrently in each individual study. The first author undertook the data synthesis. Given the similarity in themes emerging from the two sets of accounts, we adopted a reciprocal translation approach whereby the themes identified in each dataset were reciprocally applied until a set of concepts able to explain the complete dataset was achieved (Noblit & Hare, 1988). Undertaking a reciprocal translation is recommended by Noblit and Hare when two ethnographies address similar topics of interest, meaning that the metaphors used in each individual study can be reciprocally applied until a comprehensive set of metaphors explaining the whole data set is achieved. Here we report the results of this synthesis and discuss the implications of these findings in the context of other published studies. Although acknowledging that the number of participants who mentioned a particular issue does not always equate with its social significance, we decided to include a limited number of data counts in the reporting of results to assist in the intelligibility of findings to readers (Strauss & Corbin, 1990). Results We recruited 13 informants to Study 1 and 18 to Study 2 (N = 31). Eight participants, primarily in Study 1, had undergone weight-reduction surgery at the time of interview, although only 1 had lost sufficient weight so that her BMI was outside of the morbidly obese range at the time of interview (see Table 1). Nine of the 31 informants were men, and ages ranged from 23 to 60 years (see Table 2). All informants provided complex and multifactorial accounts of the development of their morbid obesity, and nearly all had lived with the condition for many years. The constant battle to lose weight was thus a core part of the experience of living with morbid obesity, and some said it had become a defining characteristic of their biography from an early age: I can’t remember it [weight] not being a problem. . . . I think I was big from a toddler, from a baby . . . It’s just always Table 1. Weight History of Informants at Time of Interview. Characteristic Study 2 (n = 13) Body Mass Index in morbidly obese range? Yes 12 No 1 Had undergone weight loss surgery Yes (National Health 3 Service) Yes (Private Sector) 4 No 6 Length of time struggled with weight < 10 years 1 10–19 years 3 20–29 years 5 30–39 years 3 > 40 years 1 Study 2 (n = 18) Total (N = 31) 18 0 30 1 1 4 0 17 4 23 0 5 7 4 2 1 8 12 7 3 Table 2. Demographic Characteristics of Informants. Characteristic Gender Male Female Age Group (years) <20 20–29 30–39 40–49 50–59 60+ Occupational Group Nonmanual employment Manual employment Homeworker / carer Retired Unemployed Study 1 (n = 13) Study 2 (n = 18) Total (N = 31) 2 11 7 11 9 22 0 1 5 6 1 0 0 2 6 1 8 1 0 3 11 7 9 1 5 1 5 0 1 10 4 0 1 3 15 5 5 1 4 been an issue. . . . I joined my first diet class when I was eight. (Study 1 [1], female [F]) Twenty-two informants reported having struggled with their weight for more than 20 years. One informant described a (fairly short) illness trajectory wherein she had developed binge eating as a response to posttraumatic stress disorder. Her account was quite different from the other informants, and she described the disruption that her short-term weight gain had had on her experience of her body: Because I never had a weight problem until quite late on in life, I’d have this thing where I’d suddenly walk past a Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 4 Qualitative Health Research mirror and catch sight of myself and be really shocked. Because to my mind, I was still a size ten. (1F) Using the reciprocal translation technique (Noblit & Hare, 1988), we identified some core themes running through the majority of accounts, and we discuss these below under the broad categories of “personal responsibility and the morality of health,” “the role of family structure and the importance of gender,” “the role of emotional distress and the impact on the body,” and “vicious circles and downward spirals.” These broad categories were identified following repeated discussions within the research team and numerous diagrammatical iterations of the data to understand how previously identified themes interacted and could most meaningfully be grouped. Personal Responsibility and the Morality of Health We identified a number of core themes arising under the category of “personal responsibility and the morality of health.” These included individual attitudes toward culpability for health, factors mitigating individual culpability, and the importance of public and private accounts. In accounts of obesity development, informants expressed a constant struggle between accepting and rejecting personal culpability for weight gain, and nearly all felt that at times they had unfairly been held culpable for their poor health state by others: “I don’t eat a lot for the amount I weigh” (1F). “I’ve got the sort of body which is difficult to lose the weight” (Study 2 [2] male [M]). Many informants made admissions of culpability as part of a private account of their behavior, and tended to reveal these in later parts of the interview once the interviewer had established rapport: I was always fit, always healthy, never stopped. . . . We never had sweets, we never had anything fattening . . . always up [at] the gym. [Early in interview] . . . If I’m depressed I might just eat toast all day. . . . I know that the last few years, because of everything, crap going on, it [weight gain] is selfinflicted. [Later in the same interview] (1F) Participants reflected on a number of personal and social factors in periodic attempts to mitigate personal responsibility for weight gain. These included childhood socialization patterns, physical and mental illnesses, pregnancy and caring responsibilities, working patterns, failed dieting, and suppositions about familial traits and genetic predisposition (see Figure 1). The need to find reasons for their current health state was an important issue for informants, and the construction of narratives was often infused with anxiety and contradiction: You think, “Is it my head? Can it be fixed with just my head, [or] is there a real problem that could be treated? Is there a reason why I’m susceptible to all this weight gain? Is there something like a gene missing?” You know, you do think of all these things and you hope that it is something, to keep you sane, because otherwise you just think, “Why me? Why can’t I just lose weight like a normal person?” (2F) The Role of Family Structure and the Importance of Gender We identified a number of themes in the data that we eventually included under the broad analytic category of “the role of family structure and the importance of gender.” These included family histories of obesity, socialization practices, familial roles and weight gain, and the gendered nature of obesity development. Although we initially identified family structure and gender as discrete themes in the analysis, we report them together here because of the close interplay between the two themes in informants’ accounts. This was particularly the case for women, whose reflections on the importance of gender roles in the development of their obesity were frequently indistinguishable from their reflections on the importance of their role in the family structure. The majority of informants in both studies reported a family history of obesity, and the roles of family structure and childhood socialization patterns were key to many accounts. However, nearly all those who had their own children commented that they had been very careful not to repeat their own negative socialization experiences: My mum [mother] was one of twenty-three. You ate what was on your plate. . . . With my two, as soon as they say they’re full up, that’s fine. . . . I’ve had to change . . . because I don’t want my kids [children] fat. (1F) Nevertheless, 6 of the 23 informants who were parents reported that their children had had problems maintaining a healthy weight, and 4 said they had children who were already morbidly obese. This was a source of extreme distress and anxiety for all these informants, who reflected at length on their own role in the development of their children’s weight-management difficulties: He’s [son, age 26] twenty-four stone [336 pounds]. . . . I know it’s going to end up [in] diabetes and strokes. . . . I am afraid my son saw how I acted when I was younger, and he sort of copied that—same as me with my father. (2M) Informants’ accounts of the development of morbid obesity within the context of the family structure were often highly gendered, and for many of those women who Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 5 Owen-Smith et al. Childhood socialization patterns It was the day of you eat every single thing that’s on your plate and you don’t move until you’ve eaten it . . . and my mum [mother] was one of these that stacked the plates, stacked them. . . . And that was just the way we grew up, and I didn’t really get out of that until I left home. (2F) Physical and mental illnesses They push it so much: “You must be thin, you must be thin.” And then you’re thinking to yourself, “It’s medically impossible [for me] to be thin. [Crying] I can’t be thin with everything that’s bloody wrong with me.” (1F) When I was about eighteen, I didn’t have a job for ages, and I just didn’t do anything. I’d just sit in bed. This is when I first got diagnosed with depression. . . . Didn’t work much, or maybe I had a job for a week and then quit it. . . . Obviously you put on more weight if you just sit in bed all day. You still get hungry, so you eat things, but you’d normally be doing stuff. (2F) Pregnancy and caring responsibilities I spent so much time focusing on the health of my children, the health of my husband, my home, decorating, I forgot about me, really, and I completely neglected myself. (1F) I don’t get enough time to myself to dedicate a lot of time [to weight loss], because I’m a carer for my husband. (2F) Working patterns I was a professional wrestler for about fifteen years. Well, all as I could get to eat then, like after, was fish and chips or Chinese. You’d be sitting in the car two or three hours and then coming home straight into bed. And you weren’t burning it off, and I did put weight on then. (1M) Failed dieting I just have to eat such small amounts and I just put weight on. . . . They reckon it goes back to sort of caveman days. . . . If you’ve starved yourself so much to lose weight, when you do start eating just a bit more, your body just saves it as fat. (1F) Familial traits and genetic disposition We all are [diabetic]—all the females in my family . . . all got weight problems, as well. . . . Years ago they used to say, “Well, you’re fat. Your mother’s fat, so you’re going to be fat.” (1F) They’ve [half-brothers] obviously got the same genes as me. We’re all pigs in our family. (2F) Figure 1. Factors mitigating personal responsibility for weight gain. Note. 1 = Study 1; 2 = Study 2; F = Female; M = Male. had children, the burden of pregnancy and childcare were dominant themes: I had [daughter], and at the time didn’t really have much money, and couldn’t afford to go to diet clubs and stuff like that. And I was sort of wrapped up with the baby and one thing and another, and never really lost my [pregnancy] weight, so the first two stone [28 pounds] goes on. Then I had twin boys . . . and I sort of managed to keep three stone [42 pounds] of that weight. And then it’s just sort of piled on from there. (1F) The foremost themes in the accounts of women who either did not have children or did not mention childbearing as key in the etiology of their condition related to experiences of comorbidity and childhood trauma. For example, several informants suffered from debilitating physical conditions that they believed had either contributed to the development of their condition or impacted on their ability to lose weight: “Because of the ME [myalgic encephalopathy], I’m sleeping fifteen or more hours a day, and exercise is out of the question because I can’t even walk to the end of the road” (1F). Informants’ experiences of childhood trauma were normally in relation to histories of abuse. By contrast, 7 of the 9 male informants focused on the role of workplace responsibilities and the restriction that employment commitments put on their ability to maintain a healthy lifestyle and weight: When I qualified—in those days you did work hundred-hour weeks as doctors . . . it was just work, eat, and sleep. And we earned money for the first time so we could eat properly; we could drink alcohol and go to parties. And you start putting weight on. (1M) The remaining 2 men focused on a family history of obesity and the presumed role of genetics in the etiology of Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 6 Qualitative Health Research excess weight gain: “My dad’s big. . . . My nan [grandmother] was big. It’s like it’s in the family” (2M). The Role of Emotional Distress and the Impact on the Body Nearly all informants talked about emotional distress, which was indicated as either a cause or a consequence of morbid obesity, and in many cases, both. Several informants conceptualized this in terms of a downward spiral, whereby the distress that led them to overeat was compounded when the impact on their body restricted their social activities and reduced their self-esteem further: I put on an awful lot of weight through stress. . . . I was just getting bigger and bigger and bigger—and then becoming less and less active, because I was struggling then, where I’d put on so much weight. . . . And then I was feeling bad because I couldn’t go out anywhere and I couldn’t do anything, so I’d eat more. And it got worse and worse and worse. (1F) It was not uncommon for female informants to report episodes of acute distress, and 6 related episodes of selfharm and/or suicidality relating to their weight: “I don’t remember getting bullied that much in secondary school because I would mouth off at people if they started on me, but then I’d go home and I’d cry and cut myself to pieces” (2F). Three female informants interpreted their overeating itself in the context of self-harm; one of them said, If he [ex-husband] was drinking I would eat. And if he came home drunk I would go and make a pile of sandwiches and say. “Look what you have made me do.” . . . It was almost as though I was using it as a weapon, but it was harming me, not him. (2F) Vicious Circles and Downward Spirals Alongside relating experiences of emotional distress, informants described a number of other “vicious circles” that resulted in downward spirals of weight gain and health deficit. These included experiences of physical comorbidity and disablement, which were compounded when informants were unable to access appropriate NHS treatment for their condition: “I’ve got osteoarthritis in both hips, so that means I can’t exercise properly—how I’d want to. And that means pain, eating, stopping in, and not exercising properly” (2M). “I can’t walk without that knee replacement. . . . I can’t have it because I’m overweight” (2F). Some informants also used the term “vicious circle” to describe the impact of failed attempts to tackle their obesity, which reduced their sense of selfefficacy, and sometimes led to feelings of despair when they felt they had exhausted their options for weight loss: Every time you go on a diet and it fails, you dislike yourself a bit more. And so then you compound that and you do it again, and then compound it again, and it’s just—it really is a vicious circle. (1F) A third theme we identified under the category of vicious circles related to the experience of social stigma and discrimination, which were ubiquitous in the accounts of female informants, and arose within the accounts of 6 of the 9 male informants. Encountering stigmatized attitudes resulted in extreme distress and sometimes further maladaptive eating patterns: It’s no good somebody calling you the back end of a bus or anything. . . . It doesn’t make you think, “Oh God, I’ve got to lose weight.” It just makes you eat—just makes you depressed, and that makes you eat. (1F) In addition, several informants reported a self-imposed social exclusion because of the fear of encountering discriminatory attitudes, which sometimes restricted their access to health-promoting activities: I don’t go out—not much. I’m on medication only because, where I’ve sort of got it into my head so much that people are looking at me. . . . It’s a nightmare. (1F) My boyfriend doesn’t understand. . . . He’s like, “Why don’t you just go to the gym? Why don’t you just go for a run around town?” I thought, “No way.” My worst nightmare is bumping into somebody, bright red, sweating, can’t even say hello because I can’t breathe. (2F) Informants became particularly upset when they experienced discriminatory attitudes from health professionals: “I get abscesses and he [NHS consultant] said, ‘Well, you’re fat, you’re diabetic. What more do you expect?’ . . . I came out and bawled [cried] my brains out” (1F). Discussion The data reported above provide a rare opportunity to hear the voices of morbidly obese individuals, many of whom had considered themselves marginalized by a society which they felt could neither accommodate their overweight bodies nor understand how these intertwined with their experiences of emotional distress and social isolation. Much of the data constitutes “private accounts” given by participants (Cornwell, 1984), which reflect their struggle to align their current health state with conceptions of culpability and the morality of health. Individuals reported long and complex histories of weight gain, and particularly salient themes in the development of morbid obesity related to family structures and early socialization experiences. In addition, the role of Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 7 Owen-Smith et al. Familial Factors Personal Factors Social Factors Weight Gain Comorbidities Stigma Restriction on social/ health-related activity Emotional Distress Figure 2. A conceptualization of the relationship between weight gain and emotional distress in morbid obesity. emotional distress was dominant in both initial weight gain and ongoing cycles of loss and regain. These findings consolidate and extend a number of themes found within the literature. Many of the factors informants mentioned when accounting for their BMI— such as the impact of primary socialization, physical illness, and pregnancy—reinforce findings reported from earlier studies (Ogden et al., 2006; Throsby, 2007). However, the importance of emotional distress as both a cause and a consequence of morbid obesity appeared to come through more strongly in this study. Here, the findings were more similar to those reported in a Danish study that sought to set accounts of the development of moderate obesity (BMI 30-35kg/m2) within a life-course perspective (Smith & Holm, 2011). However, only 3 of the 20 contributors to the Danish study reported experiencing difficulties with weight since childhood, which contrasts with 20 of the 31 contributors to the studies reported here. This suggests that not only do those with more extreme obesity tend to have a longer illness trajectory, but also that the behavior patterns associated with the development of the condition are often laid down in childhood. Our data also add to the mounting evidence that obese individuals struggle with the daily impact of stigma and discrimination (Lewis et al., 2011; Ogden & Clementi, 2010; Puhl & Heuer, 2009; Puhl et al., 2008; Thomas et al., 2008; Throsby, 2007). Despite some argument from politicians and academics that the existence of stigma and discrimination might encourage weight loss among obese individuals (Bayer, 2008; Triggle, 2010), both our data and the data reported from other qualitative studies suggest that the opposite is true (Lewis et al.; Ogden & Clementi; Throsby). Indeed, the informants in our studies said they encountered a series of “vicious cycles” relating to both experiences of social stigma and discrimination, and the impact of physical illness and disability. These experiences further hindered attempts to lose weight through restricting participation in social and healthrelated activity, leading to further emotional distress and ongoing weight gain (see Figure 2). For the individuals participating in our studies, experiences of stigma and discrimination were particularly difficult when they occurred in the context of health care provision, which reports from both large-scale quantitative studies and smaller qualitative studies show is common (Malterud & Ulriksen, 2011; Puhl & Brownwell, 2006; Thomas et al., 2008). These findings suggest a need for additional training to help health professionals realize the impact their attitudes can have on people’s experiences of accessing health care, and suggest that further research is necessary to develop interventions to tackle weight-related stigma in society as a whole. In addition, the findings suggest that health professionals need to understand cycles of ongoing emotional distress and weight gain, and to help individuals find ways to weaken this cycle, such as by supporting people to find healthrelated activities that do not worsen existing experiences of stigma and comorbidity and by providing access to emotional support when necessary. Downloaded from qhr.sagepub.com at PENNSYLVANIA STATE UNIV on May 10, 2016 8 Qualitative Health Research Many informants related their experiences of developing morbid obesity and the difficulties faced in living with the condition as part of a private discourse. The use of qualitative techniques meant that in-depth accounts could be accessed and sufficient rapport could be established to ensure the uncovering of these private accounts (Cornwell, 1984). This is particularly salient in the context of a stigmatized condition such as morbid obesity, and through this research we are able to highlight the voices of rarely heard, often socially excluded individuals. However, we undertook sampling for both studies within the context of secondary care weight-management clinics, which meant that all participants were sufficiently concerned about their eating and weight difficulties to have consulted their general practitioner and been referred to secondary care. We do not know whether the views of those who did not consult, or were not referred, are in line with those expressed by these participants. Despite this, the identification of similar themes in the two studies and the application of a reciprocal translation synthesis enhance confidence in our analysis and the validity of the results presented here (Noblit & Hare, 1988). It is notable that a number of the themes identified in the data overlap and, in common with all qualitative research, the distinction between broad analytic categories was to some extent determined by the research team. In particular, it is worth noting that the analytic category of personal responsibility and the morality of health ran throughout accounts, and to some extent underpinned other categories reported. Although informants reflected on a myriad of factors that were important in the development of morbid obesity, the lived experience of the condition was suffused with shame and distress, challenging health professionals to take a more holistic approach to care and society as a whole to demonstrate a more compassionate and inclusive approach to those suffering with extreme obesity. Declaration of Conflicting Interests The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. 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