Contents Chapter 1: Debates & ethics Euthanasia and assisted suicide 1 What is current BMA policy on assisted dying? 4 Assisted dying: the opposing views 5 Physician-assisted suicide: the ethics of euthanasia 6 Arranging an assisted suicide is the ultimate in control freakery 8 Dignitas dad Jeffrey Spector, who took his own life after emotional ‘last supper’, said he did it for his family 9 Should people with acute mental suffering be allowed to die? 11 Belgian rapist will be euthanised this week 12 Going Dutch? 13 ‘I should be allowed to end my life’ 14 Personal stories – against Euthanasia 15 End-of-life care requires ‘widescale improvements’, report says 16 Move to overturn UK assisted suicide law fails 18 Chapter 2: The law Assisted suicide – FAQs 19 The law in other countries 22 Never say die 23 Assisted dying: setting the record straight 25 Assisted Dying Bill threatens doctor-patient relationship 27 Three in four support changing assisted-dying law 28 ‘Assisted dying’ and public opinion 29 Majority of disabled people fear change to assisted suicide law 30 79% of disabled people support a change in the law on assisted dying 32 Summary of differences between proposed Scottish and English legislation 33 Breakthrough UK briefing on assisted suicide (AS) 34 The battle over assisted dying in the UK is far from over 35 Sir Patrick Stewart backs Assisted Dying Bill to prevent terminally ill going through ‘torture’ 37 We all deserve the right to die without pain or fear, but assisted suicide won’t fix that 38 Euthanasia in The Netherlands 39 Key facts 40 Glossary 41 Assignments 42 Index 43 Acknowledgements 44 Chapter 1 Debates & ethics Euthanasia and assisted suicide E uthanasia is the act of deliberately ending a person's life to relieve suffering. For example, a doctor who gives a patient with terminal cancer an overdose of muscle relaxants to end their life would be considered to have carried out euthanasia. Assisted suicide is the act of deliberately assisting or encouraging another person to kill themselves. If a relative of a person with a terminal illness were to obtain powerful sedatives, knowing that the person intended to take an overdose of sedatives to kill themselves, they may be considered to be assisting suicide. Legal position Both active euthanasia and assisted suicide are illegal under English law. Depending on the circumstances, euthanasia is regarded as either manslaughter or murder and is punishable by law, with a maximum penalty of up to life imprisonment. Assisted suicide is illegal under the terms of the Suicide Act (1961) and is punishable by up to 14 years’ imprisonment. Attempting to kill yourself is not a criminal act in itself. Types of euthanasia Euthanasia can be classified in different ways, including: Ö active euthanasia – where a person deliberately intervenes to end someone’s life – for example, by injecting them with a large dose of sedatives Ö passive euthanasia – where a person causes death by withholding or withdrawing treatment that is necessary to maintain life, such as withholding antibiotics from someone with pneumonia. ISSUES: Assisted Suicide Euthanasia can also be classified as: Ö voluntary euthanasia – where a person makes a conscious decision to die and asks for help to do this Ö non-voluntary euthanasia – where a person is unable to give their consent (for example, because they are in a coma or are severely brain damaged) and another person takes the decision on their behalf, often because the ill person previously expressed a wish for their life to be ended in such circumstances Ö involuntary euthanasia – where a person is killed against their expressed wishes. Depending on the circumstances, voluntary and non-voluntary euthanasia could be regarded as either voluntary manslaughter (where someone kills another person, but circumstances can partly justify their actions) or murder. Involuntary euthanasia is always regarded as murder. almost There are arguments used by both supporters and opponents of euthanasia and assisted suicide. End-of-life care If you are approaching the end-of-life, you have a right to good palliative care – to control pain and other symptoms – as well as psychological, social and spiritual support. You’re also entitled to have a say in the treatments you receive at this stage. For example, under English law, all adults have the right to refuse medical treatment, as long as they have sufficient capacity (the ability to use and understand information to make a decision). 1 If you know that your capacity to consent may be affected in the future, you can arrange a legally binding advance decision (previously known as an advance directive). An advance decision sets out the procedures and treatments that you consent to and those that you do not consent to. This means that the healthcare professionals treating you cannot perform certain procedures or treatments against your wishes. Other countries Active euthanasia is currently only legal in Belgium, Holland and Luxembourg. Under the laws in these countries, a person’s life can be deliberately ended by their doctor or other healthcare professional. The person is usually given an overdose of muscle relaxants or sedatives. This causes a coma and then death. However, euthanasia is only legal if the following three criteria are met: Ö The person has made an active and voluntary request to end their life. Ö It is thought that they have sufficient mental capacity to make an informed decision regarding their care. Ö It is agreed that the person is suffering unbearably and there is no prospect for an improvement in their condition. Capacity is the ability to use and understand information to make a decision. In some countries the law is less clear, with some forms of assisted suicide and passive euthanasia legal, but active euthanasia illegal. Chapter 1: Debates & ethics used carry a risk of speeding up death. Therefore, it could be argued that palliative sedation is a type of active euthanasia. The pragmatic argument is that if euthanasia in these forms is being carried out anyway, society might as well legalise it and ensure that it is properly regulated. It should be stressed, however, that the above interpretations of DNACPR and palliative sedation are very controversial and are not accepted by most doctors, nurses and palliative care specialists. Arguments against euthanasia and assisted suicide There are four main types of argument used by people who are against euthanasia and assisted suicide. They are known as the: Ö religious argument – that these practices can never be justified for religious reasons; for example, many people believe that only God has the right to end a human life creation of God, so human life is, by extension, sacred. This is known as the ‘sanctity of life’. Only God should choose when a human life ends, so committing an act of euthanasia or assisting in suicide is acting against the will of God and is sinful. This belief – or variations of it – is shared by many members of the Christian, Jewish and Islamic faiths, although some individuals may personally feel that there are occasions when quality of life becomes more important than sanctity of life. The issue is more complex in Hinduism and Buddhism. Scholars from both faiths have argued that euthanasia and assisted suicide are ethically acceptable acts in some circumstances, but these views do not have universal support among Hindus and Buddhists. Some non-religious people may also have similar beliefs based on the view that permitting euthanasia and assisted suicide ‘devalues’ life. ‘Slippery slope’ argument Ö ‘slippery slope’ argument – this is based on the concern that legalising euthanasia could lead to significant unintended changes in our healthcare system and society at large that we would later come to regret The slippery slope argument is based on the idea that once a healthcare service, and by extension the Government, starts killing its own citizens, a line is crossed that should never have been crossed, and a dangerous precedent has been set. Ö medical ethics argument – that asking doctors, nurses or any other healthcare professional to carry out euthanasia or assist in a suicide would be a violation of fundamental medical ethics The concern is that a society that allows voluntary euthanasia will gradually change its attitudes to include non-voluntary and then involuntary euthanasia. Ö alternative argument – that there is no reason for a person to suffer either mentally or physically because effective end-of-life treatments are available; therefore, euthanasia is not a valid treatment option, but represents a failure on the part of the doctor involved in a person’s care. Legalised voluntary euthanasia could eventually lead to a wide range of unforeseen consequences, such as the following: Ö Very ill people who need constant care, or people with severe disabilities, may feel pressured to request euthanasia so that they are not a burden to their family. The most common religious argument is that human beings are the sacred Ö Legalising euthanasia may discourage research into palliative treatments, and possibly prevent cures for people with terminal illnesses being found. ISSUES: Assisted Suicide 3 These arguments are described in more detail below. Religious argument Ö Occasionally, doctors may be mistaken about a person’s diagnosis and outlook, and the person may choose euthanasia after being wrongly told that they have a terminal condition. Medical ethics argument The medical ethics argument, which is similar to the ‘slippery slope’ argument, states that legalising euthanasia would violate one of the most important medical ethics, which, in the words of the International Code of Medical Ethics, is: ‘A physician shall always bear in mind the obligation to respect human life.’ Asking doctors to abandon their obligation to preserve human life could damage the doctor-patient relationship. Hastening death on a regular basis could become a routine administrative task for doctors, leading to a lack of compassion when dealing with elderly, disabled or terminally ill people. In turn, people with complex health needs or severe disabilities could become distrustful of their doctor’s efforts and intentions. They may think that their doctor would rather ‘kill them off’ than take responsibility for a complex and demanding case. Alternative argument The alternative argument is that advances in palliative care and mental health treatment mean there is no reason why any person should ever feel that they are suffering intolerably, whether it is physical or mental suffering, or both. According to this argument, if a person is given the right care, in the right environment, there should be no reason why they are unable to have a dignified and painless natural death. 11 August 2014 Ö The above information is reprinted with kind permission from NHS Choices. Please visit www.nhs. uk for further information. © NHS Choices 2015 Chapter 1: Debates & ethics What is current BMA policy on assisted dying? ISSUES: Assisted Suicide 88 85 71 68 39 33 24 27 65 60 58 60 44 42 38 85 65 46 37 71 65 60 59 49 38 27 21 16 Year 4 13 20 12 11 20 10 20 09 20 20 08 0 20 The majority of BMA policy, including the policy on assisted dying, is made through debate at the Association's annual representative meetings (ARMs), where representatives 97 95 90 30 116 114 6 How is BMA policy made? 122 120 20 07 Ö insists that if euthanasia were legalised there should be a clear demarcation between those doctors who would be involved in it and those who would not. 150 20 0 Ö insists that non-voluntary euthanasia should not be made legal in the UK Deaths Prescription Recipients 20 05 Ö insists that voluntary euthanasia should not be made legal in the UK © BMA 2015 People using Oregon’s Death With Dignity Act 03 Ö insists that physician-assisted suicide should not be made legal in the UK Ö The above information is reprinted with kind permission from the British Medical Association. Please visit www.bma.org.uk for further information. Ö Such a change would be contrary to the ethics of clinical practice, as the principal purpose of medicine is to improve patients’ 20 04 Ö believes that the ongoing improvement in palliative care allows patients to die with dignity 20 The BMA: Ö Only a minority of people want to end their lives. The rules for the majority should not be changed to accommodate a small group. Ö Permitting assisted dying for some could put vulnerable people at risk of harm. 20 02 The Association has clear policy on the issue, agreed in 2006. Ö For most patients, effective and high-quality palliative care can effectively alleviate distressing symptoms associated with the dying process and allay patients’ fears. Current BMA policy firmly opposes assisted dying for the following key reasons. 20 01 While the BMA fully acknowledges this broad spectrum of opinion within its membership, the consensus since 2006 has remained that the law should not be changed to permit assisted dying or doctors’ involvement in assisted dying. The BMA has considerable sympathy with individuals facing the effects of terminal illnesses and other incurable conditions but is concerned that giving them a legal right to end their lives with physician assistance, even where that assistance is limited to assessment, verification or prescribing, could alter the ethos within which medical care is provided. 20 00 The BMA represents doctors throughout the UK who hold a wide range of views on the issue of assisted dying. Ö Legalising assisted dying could weaken society’s prohibition on killing and undermine the safeguards against nonvoluntary euthanasia. Society could embark on a ‘slippery slope’ with undesirable consequences. What are the key arguments for the BMA’s opposition to assisted dying? 8 Ö supports the establishment of a comprehensive, high quality palliative care service available to all, to enable patients to die with dignity. 19 99 Ö supports the current legal framework, which allows compassionate and ethical care for the dying, and 19 9 Ö opposes all forms of assisted dying quality of life, not to foreshorten it. discuss motions put forward by local divisions and vote on them after hearing the arguments on both sides. The BMA’s democratic process is intended to capture a representative snapshot of BMA members’ views. Number of people using Oregon’s Death With Dignity Act Current BMA policy Source: Oregon Health Authority Chapter 1: Debates & ethics a big “but” big enough to keep me alive, I made an important discovery. I wanted to live no matter what. I wanted to be here with my son, with my husband, who by now had the look of a rabbit in the headlights... he kept that for all of the nearly three years until I could feed myself and we found hope and a future. ‘Slide back to before this day and I if I’m honest before then I would have said, I wouldn’t want to live if I couldn’t walk or talk for nearly six months or, especially this, hold my little boy in my arms. Of course if I had signed an Advanced Directive, then “they” would have had the right to end my life. They could have assessed (they like assessments) my life and rather like Mr Spector said, that my “quality of life”, for that’s what it’s all about, wouldn’t be good enough. ‘I’m really sad that Mr Spector couldn’t see a way through, I know, I really know, what he was afraid of; it isn’t easy. The barriers to my life usually aren’t mine; they are created by other people, not us, the disabled. The barriers are literally there and the barriers to understanding our lives goes on, usually because we are seldom represented. ‘I believe that people want to support decisions like Mr. Spector’s simply because they are afraid of pain, loneliness and being cared for, which to them and for him, meant losing your dignity and independence. The truth is as a young friend of mine once said, “There’s a lot worse things can happen to you than having someone wipe your a***.” This is true, so true, so to the healthy and aspiring wealthy out there I say, don’t go with those who would have us euthanised, stay with me. Life is good.’ Physician-assisted suicide: the ethics of euthanasia By Philip Tennyson S uicide was abolished as a crime over 50 years ago by the Suicide Act 1961. The same act ruled against encouraging, assisting or completing euthanasia on another. This latter ruling has been challenged by many UK cases since its creation, all of which have been unsuccessful as the Government (and judiciary) remain reluctant to address the issue. But who can blame them when there is so much to consider? Public opinion certainly seems to support change. Gallup[I] found that 70 per cent of Americans support voluntary euthanasia if the patient and their family condone it, 27 per cent oppose it and three per cent have no opinion. The poll shows a clear desire for change, but the desire comes from an ill-advised audience who have little knowledge of this area. So, let’s make sure we’re on the same page. Euthanasia will never be legalised in the UK. However physician-assisted suicide (PAS) may find its way into legislation one way or another. Only a qualified medical practitioner will be granted the power to end a life and only with certain safeguards. ‘Death with dignity’ is the pro-PAS argument which carries the most weight, presupposing that we all have a right to live with dignity and therefore should have a right to die with dignity. Ultimately preservation (or an extension) of the right to freedom is desired to help those suffering unremitting pain or constant low quality of life to help them end their life in a peaceful manner. Controversy, however, arises from distinguishing at what stage in an illness or disease a patient should be eligible for PAS. It is estimated that 25,000 Americans[II] would be relieved of unremitting pain should euthanasia be legalised. Is it fair that this many people live in suffering just because there is such a huge pressure on preserving human life? If an animal was suffering this badly with no sign of recovery, the vet wouldn’t hesitate 26 May 2015 Ö The above information is reprinted with kind permission from The Independent. Please visit www.independent.co.uk for further information. © independent.co.uk 2015 ISSUES: Assisted Suicide 6 Chapter 1: Debates & ethics
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