pathfinder international authors: Elizabeth Oliveras, Caroline Nalwoga, Lucy Shillingi Addressing Unmet Need for Contraception among HIV-Positive Women: Endline Survey Results and Comparison with the Baseline Foreign Affairs, Trade and Development Canada Affaires étrangères, Commerce et Développement Canada ARISE Enhancing HIV prevention for at-risk populations Addressing Unmet Need for Contraception among HIV-positive Women Endline Survey Results and Comparison with the Baseline Elizabeth Oliveras, Caroline Nalwoga, and Lucy Shillingi Submitted by Pathfinder International 9 Galen Street Watertown, MA 02472 Phone: (617) 924-7200 Fax: (617) 924-3833 Submitted to PATH April 2014 *Correspondence to: Margaret Waithaka, [email protected] Pathfinder Research and Evaluation Working Paper Series The purpose of the Working Paper Series is to disseminate work in progress by Pathfinder International staff on critical issues of population, reproductive health, and development. Unless otherwise indicated, working papers may be quoted and cited without permission of the author(s), provided the source is clearly referenced as a working paper. Full responsibility for the content of the paper remains with the author(s). Comments from readers are welcomed and should be sent directly to the corresponding author. Published by Pathfinder International. Copyright by the author(s). ©2014. Pathfinder International Pathfinder International places reproductive health services at the center of our work around the world, providing women, men, and adolescents access to a range of quality health services—from contraception and maternal care to the prevention and care of sexually transmitted infections. Pathfinder strives to halt the spread of HIV and AIDS, strengthen access to family planning, advocate for sound reproductive health policies, and, through all of our work, improve the rights and lives of the people we serve. Pathfinder International/Headquarters 9 Galen Street, Suite 217 Watertown, MA 02472 USA Tel: 617-924-7200 Fax: 617-924-3833 www.pathfinder.org Acknowledgements This study was conducted under Arise—Enhancing HIV Prevention for At-Risk-Populations. Arise implements innovative HIV prevention initiatives for vulnerable communities with a focus on determining cost-effectiveness through rigorous evaluations. Many thanks to the dedicated team of interviewers and the women who participated in the surveys, NACWOLA Project Officers, and the Pathfinder International Uganda Team, as well as to Frederick Makumbi, Makerere University School of Public Health, for his assistance with the two surveys. Thanks also to Pathfinder Research and Metrics staff, Patricia David and Margaret Waithaka, who provided extensive comments on earlier drafts of this report, and Emma Morse, who finalized the text and formatted the report. Table of Contents Table of Figures .......................................................................................................................................................................... 1 Abbreviations ............................................................................................................................................................................. 3 Executive Summary .................................................................................................................................................................. 4 Section 1. Background .............................................................................................................................................................. 6 Integrating Family Planning into HIV Services ............................................................................................................. 6 Project Background .............................................................................................................................................................. 6 Survey Methodology ........................................................................................................................................................... 9 Response Rates ................................................................................................................................................................... 10 Section 2. Results ..................................................................................................................................................................... 11 Respondent Characteristics.............................................................................................................................................. 11 Use of HIV Services ........................................................................................................................................................... 18 Integration of Family Planning with HIV Services...................................................................................................... 21 Contraceptive Use............................................................................................................................................................. 26 Dual Method Use .............................................................................................................................................................. 30 HIV Risk Behaviors at Last Sex ....................................................................................................................................... 31 Unmet Need for Family Planning ...................................................................................................................................33 Effect of Exposures on Outcomes ................................................................................................................................. 39 Section 3. Discussion and Conclusions ............................................................................................................................ 44 References ............................................................................................................................................................................... 46 Appendix A: Endline Survey Questionnaire .................................................................................................................... 49 Appendix B: Survey Team Members ................................................................................................................................. 61 Appendix C: IATT Tool for assessing unmet need for family planning among women living with HIV......... 62 Table of Figures Table 1. Percent distribution of women 15–49 by selected background characteristics, baseline and endline surveys ....................................................................................................................................................................................... 12 Figure 1. Comparison of timing of last sex at baseline and endline ............................................................................ 13 Table 2. Comparison of reported timing of last sexual activity, baseline and endline surveys .......................... 13 Table 3. Timing of last sex by characteristics of the respondents, endline survey ................................................14 Table 4. Percent distribution of women who ever gave birth at endline, by age and cumulative frequency . 15 Table 5. Percent distribution of women, by number of living children, among women who ever gave birth, at endline ........................................................................................................................................................................................16 Table 6. Percent distribution of currently married women age 15–49 years by desire for children, according to number of living children, endline survey .................................................................................................................... 17 Table 7. Desire for children among women aged 15-49 years, baseline and endline surveys ........................... 17 Table 8. Months since HIV diagnosis by district of residence, at baseline and endline.......................................18 Figure 2. Time in treatment, comparison of baseline and endline .............................................................................18 Table 9. Duration of receipt of care or treatment at endline, by characteristic .....................................................19 Table 10. HIV services currently recevied among women receiving any treatment, comparison of baseline and endline ................................................................................................................................................................................19 Table 11. HIV services currently received among women receiving any treatment at endline, by characteristic ...........................................................................................................................................................................20 Table 12. Participation in support groups and receipt of FP information at endline, by characteristic ............ 21 Figure 3. Use of ANC at last pregnancy, among births in the past 2 years, comparison of baseline and endline surveys........................................................................................................................................................................ 22 Table 13. Distribution of ANC utilization at last pregnancy, Among births in the 2 years before endline, by characteristic ........................................................................................................................................................................... 22 Table 14. HIV testing during last pregnancy, among women with a birth in the past 2 years, comparison of baseline and endline .............................................................................................................................................................. 23 Figure 4. Percent of women with a birth in the past 2 years receiving recommended information during antenatal care, comparison of baseline and endline ..................................................................................................... 23 Table 15. Information received by women pregnant in the past 2 years, by characteristic, at endline ........... 24 Figure 5. Experience of integrated services among FP users and women recieving care and support, comparison of baseline and endline .................................................................................................................................. 25 Table 16. Experience of integrated services, among FP users and women receiving care and support, by characteristic at endline ....................................................................................................................................................... 25 Figure 6. Current contraceptive use among women living with HIV, comparison of baseline and endline ... 26 Table 17. Percent distribution of current use of contraception among women, endline ..................................... 27 Arise: endline survey results and baseline comparison | 1 Table 18. Source of contraception among contraceptive users, comparison of baseline and endline ............ 28 Table 19. Source of contraception, among current users of modern methods at endline .................................. 28 Table 20. Percent of modern contraceptive users experiencing integration, endline ......................................... 29 Table 21. Percent distribution of contraception decision making, by FP use, at endline ..................................... 29 Figure 7. Partner knowledge of FP use by marital status, among women using contraception, comparison of baseline and endline .............................................................................................................................................................. 30 Table 22. Percent distribution of partner knowledge and discussion of FP use, by marital status, among current contraceptive users at endline ............................................................................................................................. 30 Table 23. Percent distribution of dual method use, by characteristic, among current modern contraceptive users and all women, endline ............................................................................................................................................... 31 Figure 8. Condom use at last sex among women who reported sex in the past year, comparison of baseline and endline ............................................................................................................................................................................... 32 Table 24. Condom use at last sex and having had a non-regular partner in the past year at endline, by characteristic ........................................................................................................................................................................... 32 Table 25. Confidence in future condom use at endline, by characteristic .............................................................. 33 Figure 9. Need for family planning calculated using the modified-survey appraoch, comparison of baseline and endline ............................................................................................................................................................................... 34 Table 26. Need for family planning calculated using the standard household survey approach, among women who have ever had sex, by background characteristic, endline .................................................................. 35 Table 27. Unmet need calculated using the IATT approach ...................................................................................... 36 Figure 10. Partner counseling and testing, comparison of baseline and endline ................................................... 37 Table 28. Partner counseling and testing at endline, by characteristic, among women who are married or living with a partner ............................................................................................................................................................... 38 Table 29. Partner’s HIV status at endline, by characteristic, among women who are married or living with a partner ....................................................................................................................................................................................... 38 Figure 11. Exposure to Arise interventions among women attending ART or pre-ART services ...................... 39 Table 30. Exposure to Arise project interventions by backround characteristics .............................................. 40 Table 31. Odds of contraceptive use by key exposures at endline .............................................................................41 Table 32. Odds of having demand for family planning by key exposures at endline ........................................... 42 Table 33. Odds of having unmet need for contraception by key exposures at endline ....................................... 43 2 | Pathfinder international Abbreviations ANC Antenatal care CI Confidence interval CPR Contraceptive prevalence rate FP Family planning HBC Home based care HIV Human immune-deficiency virus IQR Interquartile range NACWOLA National Community of Women Living with HIV/AIDS OI Opportunistic infections PEPFAR President’s Emergency Plan for AIDS Relief PLHIV Persons living with HIV PMTCT Prevention of mother to child transmission SD Standard deviation VCT Voluntary counseling and testing Arise: endline survey results and baseline comparison | 3 Executive Summary A facility-based endline survey was conducted as part of a program evaluation to assess the Arise— Enhancing HIV Prevention for At-Risk-Populations project in Uganda. Arise is integrating family planning services into HIV services in 11 districts in Northern and Eastern Uganda. The project, funded by the Foreign Affairs, Trade and Development Canada (DFATD) through the Arise project, was designed to address the high unmet need for family planning that had been reported in past studies in Uganda, in order to prevent HIV infections by ensuring that HIV-positive women do not have unintended pregnancies, providing counseling to women who do become pregnant about how to limit transmission to their babies, and by encouraging partner counseling and testing and dual method use to prevent infections in uninfected partners of women infected with HIV. The baseline and endline surveys used the same approach, interviewing women aged 15–49 years who sought HIV care and treatment at a sample of health facilities covered by Arise. The baseline survey was conducted in October 2011 and included 1,221 respondents; the endline survey was conducted in March 2013 and included 1,231 respondents. For each survey, four districts were randomly selected from among the eight districts covered by the research arm of the project. Three districts were included in both surveys while one of the districts changed. Within those districts, a sample of facilities was selected using probability proportional to client volume. Thirteen facilities were included in the baseline survey and seventeen in the endline survey. Both surveys used the same instrument to collect data on respondent’s characteristics, their reproductive history, use of contraceptive methods, marriage and sexual activity, fertility preferences, and experience of integrated FP and HIV/AIDS services. Some minor changes were made between baseline and endline to capture additional information on some key topics. The surveys were conducted by Pathfinder International in collaboration with the National Community of Women Living with HIV/AIDS (NACWOLA), a local partner to Pathfinder for Arise, and were approved by the Institutional review boards at PATH and Makerere University. Overall, the results of the surveys suggest a positive change in terms of services received and in the key outcomes of the project, namely use of family planning by women living with HIV. With regard to services, while the percent of survey respondents who received counseling on FP did not change (81%), the proportion given information on special considerations for women with HIV increased from 93.6% to 99.1% and the proportion that had discussed their desire for children with their provider increased from 75.8% to 80.5%. This suggests that while coverage may not have changed, the quality of the counseling provided did improve. Improvements were also seen in coverage of pregnant women living with HIV. The percent of PMTCT clients who received postpartum follow-up visits that include FP counseling increased from 51.0% to 72.4%. This is substantial improvement, but over one quarter of pregnant women did not receive information in the postpartum period. This finding suggests that this is an area for further improvement. Most importantly, the key project outcomes improved. The modern method contraceptive prevalence rate (CPR) among women living with HIV increased from 38.4% at baseline to 54.2% at endline, a change of 15.8%. At the same time, unmet need for family planning declined significantly from 17.0% at baseline to 14.8% at endline, despite a significant increase in overall demand for family planning (from 56.1% to 67.9%). In addition to use of family planning, dual method use also improved, increasing from 44% to 51.8%. Male involvement, which was also an important focus for Arise has improved in some areas but not others. In particular, the proportion of clients whose partners had been tested for HIV was unchanged but the percentage of women who knew their partners status increased slightly from 76.3% to 81.3%. Thus male involvement is another area where further improvements are possible. In summary, the comparison of the findings from the baseline and endline surveys suggest that the Arise project successfully contributed to increasing demand for and use of family planning by women living with HIV in northern Uganda. The Arise project cannot take full credit for the changes that were seen, given that 4 | Pathfinder international the Government of Uganda and other projects have also been implementing integration of services. However, despite the project’s short time frame, when these survey findings are viewed alongside the project monitoring data that show the large number of women who were provided with counselling and/ or family planning services through Arise, it is reasonable to conclude that the project did contribute to these changes. The findings support the importance of integrating family planning into HIV services so that women living with HIV can make informed choices about whether or not to have children and can use appropriate methods to delay or limit births if they do not wish to have more children. Key Messages Women who received information from a community support group were more likely to use contraception than those who had not received information in this way, highlighting the importance of linking facility interventions to community-based ones. At endline, the percentage of women who received information about family planning during antenatal care and postpartum increased, but fewer women reported receiving information during the postpartum period than during pregnancy. This suggests a continuing gap in service provision, despite substantial improvement over the two years of project intervention. Dual method use increased from baseline, but was no more common among women in discordant couples than in concordant positive couples, and partner testing did not significantly increase. HIV positive women still practiced risky sexual behaviors, as evidenced by only half who were sexually active reporting using a condom at last sex. These findings suggest that efforts to increase male involvement need to be more vigorous, in order to increase disclosure and enhance condom use. Concerted efforts to improve access to family planning information and services for women living with HIV by integrating them into other services can increase contraceptive use, and as a result prevent unintended pregnancies and new HIV infections. Arise: endline survey results and baseline comparison | 5 Section 1. Background Integrating Family Planning into HIV Services Integration of family planning (FP) and HIV services has been widely promoted as an effective approach to ensuring the reproductive rights of persons living with HIV (PLHIV) and to preventing HIV infections by preventing unintended pregnancies (Wilcher and Cates 2009; Guttmacher Institute and UNAIDS 2006). From a rights perspective, integrated services provide a means of ensuring that HIV-positive women are able to safely pursue their reproductive intentions whether they wish to become pregnant or to avoid pregnancy. In the case of HIV-positive women who are pregnant or wish to become pregnant, integrated services can help a woman to reduce risks of transmission to her baby. That HIV-positive women have a range of reproductive intentions is well documented (Chen 2001, Cooper 2007, Homsy 2009, Nakayiwa 2006, Peltzer 2008, Stanwood 2007). For example, studies in Uganda show that around 7% of women wish to become pregnant in the future but among those who do not wish to become pregnant, many are practicing behaviors that put them at risk for pregnancy and use of contraceptives is uncommon (Homsy et al 2009; Nakayiwa 2006). Beyond the immediate benefit to women, integrated services may provide additional benefits in terms of addressing overlapping health needs (e.g., for STI treatment as well as FP) and in reducing stigma for clients seeking services (Ringheim et al 2009). In terms of HIV prevention, integrated FP and HIV services have long been one of the key elements of strategies to prevent mother-to-child HIV transmission (PMTCT) (WHO 2003) and this is reiterated in a new strategy document for 2010–2015 (WHO 2010). Particular importance is given to MTCT because it is a leading mode of HIV transmission worldwide, accounting for 430,000 new infections in 2008 (Joint UN Programme 2009). Integration is seen as an important means for preventing HIV infections by enabling HIV-positive women to prevent or delay pregnancies through improved access to and availability of contraception (WHO 2006). The impact of FP/HIV integration has been explored in a number of studies in multiple countries and the results are generally positive (Spaulding 2009). Efforts to model the impact suggest that FP contributes “as much or more than ARV-PMTCT in mitigating pediatric HIV” (Hladik 2009, Sweat 2004). However, the evidence base is limited. Most of the available studies did not employ rigorous designs and the range of outcomes assessed is limited and no studies have looked at HIV incidence or unintended pregnancy (Spaulding 2009). Rather, studies have looked at uptake of HIV testing, condom use, contraceptive use, quality of services and cost. Of those studies that reported on contraceptive use, the results were not consistent; 2 studies reported positive effects while two reported mixed effects (Spaulding 2009). In addition, because of the various types of integration possible (e.g., family planning integrated into VCT, HIV VCT provided to family planning clients), the evidence on any given approach is based on a handful of studies at most. Thus, while integration is the recommended standard of care, the evidence base for this recommendation could be stronger. Finally, one of the reasons most cited for such integration is the potential cost effectiveness of integrated services although this is largely based on logic rather than evidence. Reynolds et al (2006) estimated the cost per infection averted by FP to be $663 compared to a cost of $857 per infection averted by a singledose nevirapine regimen. More recently, Reynolds et al (2008) estimated the cost savings from adding contraception to HIV services in countries with funding from the Presidents Emergency Plan for AIDS Relief (PEPFAR). They report that preventing unwanted pregnancies among HIV-positive women would lead to annual savings of between $26,000 and $2.2 million, depending on the country. However, both of the above studies provide model-based estimates and costing data from actual interventions would provide stronger evidence for the cost-effectiveness of integrating services. Project Background Pathfinder International, Uganda is working with health facilities and a community group, the National Community of Women Living with HIV/AIDS (NACWOLA) to integrate family planning into HIV services 6 | Pathfinder international in eleven districts in northern Uganda. The project, Arise, began in 2011 and builds on identified bestpractices, providing counseling as well as service provision, bolstering commodity supply, and including a community-based component. Integration of HIV into family planning services is the standard of care per Ugandan government policy, but it has not been fully implemented in all areas, particularly in the project areas. Pathfinder’s approach aims to ensure that HIV-positive women are supported in their decision making around childbearing and fertility intentions regardless of whether they would like to stop or delay having children or would like to have a child. The intervention also includes couple counseling, which can support the use of family planning by HIV-positive women. The program is being implemented in Northern Uganda, a post-conflict, underserved area where FP is currently not offered in PMTCT or ART services, and where FP availability is limited to the general population. The intervention is being implemented in 11 districts (technically located in the north and eastern regions): Kaberamaido, Amolatar, Dokolo, Lira, Apac, Katakwi, Amuria, Oyam, Gulu, Pader and Amuru which have a total population of approximately 3.6 million people. According to the national AIDS Indicator Survey, adult HIV prevalence among women in the north central region1 is 9.0% while it is 3.6% in the north eastern region (MOH and ORC Macro 2006). 85% of the population in the eleven districts covered by this project lives in the higher prevalence north central region and given the proximity of these districts to one another, the degree of variation is likely to be less than the national figures suggest. In terms of CPR for modern methods, it is 23.4 in the northern region where HIV prevalence is higher, and 23.2 in the eastern region (Uganda Bureau of Statistics 2012). HIV and AIDS services are provided through the local government as well as through several partners including the Northern Uganda Malaria, AIDS and TB Project, which supports PMTCT in 5 of the 8 proposed project districts. Other organizations provide PMTCT services in hospitals and level III and IV health centres. These include Protecting Families against AIDS and Canadian Physicians for Aid and Relief; and ART programs such as the TREAT project and The AIDS Support Organization. Additional organizations provide community-level services including NACWOLA, AIDS Information Centre, Network of HIV-positive People, Uganda Young Positives, and district local governments. After over 20 years of conflict, Northern Uganda falls behind the nation as a whole on a range of socioeconomic indicators and continues to suffer the effects of the prolonged conflict. In parts of the region, 90% of the population (a total of close to 2 million people), were displaced, many for long periods of time. A 2007 survey of displaced and returned populations showed limited access to health services, markets, and secondary schools, especially among people who had returned from camps (UNDP 2007). The region as a whole suffers from high levels of poverty, low literacy and high school dropout, and few employment opportunities. A recent report by the Uganda Bureau of Statistics showed that most Ugandans in absolute poverty (31% of the national population) live in the northern and eastern parts of the country. Over 40% of females aged 15–35 are illiterate and 19% of them have never attended school (Annan 2008). Most employment in the region is subsistence agriculture and small trading although there has been a substantial investment in micro-credit. Women in Northern Uganda are particularly likely to face sexual and reproductive health challenges in the aftermath of two decades of violent conflict and internal displacement. Gender norms limit women’s ability to earn independent incomes making them dependent on their spouses and families and leading to prostitution. High levels of sexual and gender-based violence lead to poor health. According the Demographic and Health Survey 2012 (UBOS 2012) in Northern Uganda, only 23.9% of women aged 15 to 49 were using a form of contraception; unmet need is estimated to be 42.5% (UDHS 2012). One of the most common reasons women give for not using contraceptives is fear of disapproval by their husbands. Women in post conflict northern Uganda are further denied services due to distance, inability to pay for services, inability to make individual decisions on when to seek health services, and denial of access to services by their male partners or other decision makers in the family. 1 The AIDS Indicator Survey 2006 used regions that were delineated for the survey; they are not consistent with the 9 districts used in the DHS 2006 or with the four administrative regions. Arise: endline survey results and baseline comparison | 7 Education levels are low for women in northern Uganda. 22.7% of women have not had any formal education and 48.8% are illiterate (UBOS 2012). Young women aged 15–19 are not employed, early marriage is common, and polygamy, as in most rural communities in Uganda, is still practiced. Married women in such unions do not make decisions for themselves and consent is usually sought from husbands. In the UDHS 2006, 78% of married women reported that they did not make independent health care decisions. Likewise, while 15% of women in northern Uganda earn more than their husbands or partners, only 36% of women in this region make independent decisions on their earnings. Women with HIV may also face stigma in their homes and communities if their HIV-positive status is known. Unfortunately, the documentation of stigma in Uganda is weak but one study suggests that PLHIV can become socially disenfranchised, with community members unwilling to interact with them. An HIV diagnosis can also have serious financial implications if the person infected with HIV is engaged in business, and can limit participation in politics (Muyinda et al 1997). However, the article was published in 1997 and even then noted some lessening of stigma as people’s awareness of HIV increased. In other countries, the availability of ARV has also been linked to a decline in stigma (Wolfe et al 2009). So while there is the potential for stigma to affect women who are HIV-positive, the extent to which this is possible and the potential ramifications are difficult to determine. Discussion with NACWOLA suggests that there is stigma. However this is one of the issues that is addressed seriously with their members because it affects access to services. The Executive Director reported reduced or lack of stigma among NACWOLA members as a result of the work of the community mobilizers during awareness and education activities. Survey Objectives The overall program evaluation aims to answer two key questions about integration of FP into HIV service delivery: Does improved availability of quality FP counseling and services to HIV-positive women reduce unmet need for contraception among this group? Does increased emphasis on couple counseling and testing, and on male involvement among PMTCT and ART clients result in increased use of contraception, particularly dual method use? The research objectives related to the surveys are: 1. Determine whether the contraceptive prevalence rate (CPR) among HIV-positive women changes following integration of FP into HIV service delivery 2. Determine whether levels of dual method use change among HIV-positive women and their partners following integration of FP into HIV service delivery Three key outcomes were assessed in the evaluation and measured through the baseline and endline surveys: The contraceptive prevalence rate (CPR) among HIV-positive women. This will provide a direct measure of the effectiveness of this intervention in increasing use of contraception among HIVpositive women, which should lead to a reduction in fertility among HIV-positive women and a decrease in the number of HIV-positive children. Dual method use. This will provide a measure of the effect of the program in increasing preventive behavior among discordant couples. Unmet need for contraception. This is a more direct measure of the impact of the intervention, which aims to decrease unmet need. Secondary outcomes included: the percent of program participants who have received counseling on FP, the percent of PMTCT clients receiving postpartum follow-up visits that include FP counseling, and the proportion of clients whose partners have had an HIV test. The full report of results from the baseline survey are reported elsewhere (Oliveras and Makumbi 2013). This report focuses on results of the endline survey and compares key findings with the baseline, as stated in the research objectives. 8 | Pathfinder international Survey Methodology Survey Design & Sample Three-stage cluster sampling was used. Four districts were randomly selected: two in the Northern region and two in the north eastern region. This was in order to ensure that the focus of the data collection was in the Northern region where the majority of the population covered by the intervention is located. Then all 67 accredited ART and pre-ART service delivery sites in the selected districts were listed. The estimated number of female clients served by each site was documented through a facility needs assessment and through available data from facility registers. A sample of 13 facilities was chosen for the baseline and 17 for the endline using systematic sampling with probability proportional to size, using the volume of female clients served as the measure of size.2 The total target sample size was allocated to facilities proportionate to client volume (QIQ 2001). All female clients of the participating HIV services (ART or pre-ART facility services) aged 15-49 years were eligible to participate. The number of clients interviewed per site varied with the number of clients served. The number of clients needed per facility was estimated and the number of days required to obtain that number was calculated (# interviews/# interviews per day). The interviewers were asked to conduct as many interviews as possible during the allotted number of days, with the interviewer team starting with the first client who registered for services on a given day and then choosing subsequent women to interview based on when preceding interviews were completed. In other words, once an interviewer completed an interview, she invited the next available woman to participate. They continued in this way over the course of the day. The interviewers were trained and supervised to avoid biased selection of clients. Survey Instrument The survey was conducted using a questionnaire (Annex A) that was developed based on Demographic and Health Survey and AIDS Indicator Survey tools. The questionnaire was translated into the two local languages used in the study areas: Ateso and Langi. Data Collection & Management All survey tools, including instruments and manuals, were pre-tested and validated prior to training for the baseline survey. The research staff (Annex B) were trained on the questionnaire, client selection, informed consent, confidentiality, and interviewing techniques. Training for the baseline included an initial 1-week training and pilot test and a 2-day refresher training that was held just prior to the start of data collection; training for the endline survey was a 3-day refresher training because all of the interviewers and supervisors had participated in the baseline survey. Ethical considerations were stressed and highlighted in materials development, interviewer training, and field work. All interviews were conducted in a private setting by same-sex interviewers. Written informed consent was obtained from all participants. The survey was approved by the Research Ethics Committee at PATH and the Makerere University School of Public Health Higher Degrees and Research and Ethical Committee. The initial training and pilot testing for the baseline took place in May 2011 and the baseline data collection was conducted between 28 September and 11 October 2011; training and data collection for the endline survey were conducted in March 2013. Data management differed between baseline and endline. For both surveys, questionnaires and consent forms were collected by the survey supervisors and were transported each day to the Pathfinder office in 2 The number of sites varied because the intervention was never implemented in one district. As a result, that district (which had a large facility) was removed from the list of eligible facilities for the endline survey. Arise: endline survey results and baseline comparison | 9 Lira for storage. For the baseline, the completed questionnaires were then packaged and sent to Kampala for data entry by the study collaborators at Makerere University School of Public health. Data were entered into EPIDATA capture screens by two well-trained data entry staff. For the endline, the data were entered the following day into EPI-INFO data capture screens by three trained data entry operators. A random sample of 5% of the questionnaires were re-entered and checked for consistency so as to make a decision on 100% double data entry. Inconsistency between the first and second re-entry was below 2%, and so the 100% double entry was not done as earlier determined by the entry guidelines. Inconsistencies were reviewed by the data editor and were corrected after comparison to the questionnaire. The electronic data were then transferred into Stata format for analysis. Both the EPIDATA and Stata data files were backed up and archived. Data Analysis Data analysis was completed in Stata, Release 11, Copyright © 2009 StataCorp LP. Frequencies and means were calculated for the sample as a whole and for sub-groups as detailed below. Limitations of the Study These surveys had some limitations that may affect the results. First, the estimates of unmet need excluded pregnant women at baseline and thus differ from the calculation commonly reported in surveys like the DHS and MICS. Second, the findings at baseline may not reflect a true baseline because providers had already been trained at the time that the baseline was conducted. Other project inputs (i.e., the community-based interventions, direct support to facilities to encourage integration) had not begun, so this would likely have had a minimal effect. This potential bias would minimize the differences between baseline and endline findings so the true effects of the project may have been greater than what is shown here. Response Rates The baseline survey was conducted in 13 facilities and the endline survey was conducted in 17 facilities. Eight facilities were common to both surveys and clients from these facilities comprised 69.3% of the endline sample. One large facility, the Lira Regional Referral Hospital comprised 36.2% of respondents in the baseline and 24.8% of respondents in the endline survey. In total, 1,238 women were approached for interview at baseline and 1,259 at endline. Of all the women approached, over 99.7% at baseline and 99.3% at endline completed the interview. At endline, two women were not eligible, two refused to participate and two did not complete the interview. In all, 1,221 women at baseline and 1,231 women at endline provided complete information on key background characteristics (age, marital status and education) and were included in the analysis. 10 | Pathfinder international Section 2. Results Respondent Characteristics Demographic Characteristics Table 1 summarizes the characteristics of the women who participated in the baseline and endline surveys. In general, there were few differences between the respondents in the two surveys. The mean age of respondents at baseline was 33.0 years (95% CI: 32.6, 33.4) while at endline it was 32.7 years (95% CI: 32.3, 33.1). In both the baseline and endline surveys, the majority of the respondents were formally married or living with a partner in informal union (over 60% at baseline and over 70% at endline, p<0.01), although the proportion married was 10% higher at endline. At endline, 4.3% of women had never been married. Notably, 43.6% of women in informal union said that their partner was living elsewhere as did 20.8% of married women (data not shown); this is an increase relative to the baseline survey. These women may be at increased risk for exposure to sexually transmitted infections or HIV reinfection if their partners are having sexual relations outside of their partnership. In both surveys, half of the participants were Catholic, approximately 40% were Protestant, and less than 10% were Pentecostal, Muslim or another religion. Approximately one-quarter of women reported never attending school while most of the rest (over 60%) reported primary schooling only. Arise: endline survey results and baseline comparison | 11 Table 1. Percent distribution of women 15–49 by selected background characteristics, baseline and endline surveys Background characteristics Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Current marital status Married Living together Not living with a partner District Amuria Dokolo Lira Oyam Katakwi Religion Catholic Protestant Pentacostal Muslim Other/None Missing Education Level No education Lower primary Upper primary Secondary or higher Total Baseline (%) # Endline (%) # 3.0 10.5 19.8 23.3 23.0 13.0 7.4 37 128 242 284 281 159 90 3.1 10.8 22.7 24.2 18.0 14.4 6.8 38 133 279 298 222 177 84 39.1 23.4 37.5 458 477 286 49.6 22.3 28.0 611 0.00* 275 0.41 345 0.00* 8.7 14.7 64.3 12.3 NA 106 180 785 150 NA 44.5 21.5 16.3 NA 17.6 548 0.00* 265 0.00* 201 0.00* NA NA 217 NA 49.7 37.4 9.1 3.0 0.6 0.3 607 456 111 36 7 4 48.8 40.3 8.4 1.4 1.1 0.0 601 496 103 17 14 0 0.80 0.18 0.48 0.01* 0.10 281 20.8 256 288 27.9 343 462 35.7 439 190 15.7 193 1,221 100% 1,231 0.17 0.02* 0.28 0.84 23.0 23.6 37.8 15.6 100% 0.88 0.75 0.30 0.48 0.01* 0.38 0.71 *Two-sample comparison of proportions for baseline vs endline Recent Sexual Activity Three quarters of the respondents reported that they had been sexually active in the past year (Figure 1); this is a significantly higher proportion than at the baseline (p<0.01) and significantly fewer women reported last sex more than 1 year before the survey (22.6% at endline vs 29.3% at baseline, p<0.01). Over thirty percent had last had sex within the past week, 20% between 1 week and one month ago, and 19% more than one month ago (Table 2). The proportion of women that reported sex in the past year was inversely related to age. As expected, women who were not married were least likely to have had sex; whereas 90% of women who were married or living in informal union reported sex in the past year, only 33% of women not living with a partner did so (Table 3). 12 | Pathfinder international Figure 1. Comparison of timing of last sex at baseline and endline 75.0 * 80 66.7 70 Percent of clients 60 50 40 29.3 30 22.6 * 20 10 1.0 0.7 * 0 Never Last year Baseline > 1 year *p<0.05 Endline Table 2. Comparison of reported timing of last sexual activity, baseline and endline surveys Baseline (%) # Timing of last sex Never had sex Sex in the past week Sex in the past month Sex in the past year Last sex > 1 year ago Don’t know Total 1.0 30.6 16.6 19.5 29.3 3.0 100% Endline (%) # 12 0.6 7 374 36.2 445 203 20.0 246 238 18.9 232 358 22.6 278 37 1.8 22 1,221 1,231 p-value* 0.94 0.01 0.04 0.61 <0.01 <0.01 *Two-sample comparison of proportions for baseline vs endline Arise: endline survey results and baseline comparison | 13 Table 3. Timing of last sex by characteristics of the respondents, endline survey Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not married Education Level No education Lower primary Upper primary Secondary or higher All women Never had sex <1 week Timing of last sex <1 <1 ≥1 month year year Baseline Survey Don’t know Sex in past 12 months Number of women 8.1 2.3 1.7 0.4 0.0 0.6 0.0 32.4 35.9 38.8 32.0 32.4 18.2 12.2 16.2 17.2 18.2 19.4 17.8 9.4 12.2 27.0 28.1 21.9 22.9 16.4 12.6 8.9 10.8 14.1 18.2 22.9 31.3 53.5 60.0 5.4 2.3 1.2 2.5 2.1 5.7 6.7 75.7 81.3 78.9 74.3 66.6 40.3 33.3 37 128 242 284 281 159 90 1.1 0.7 47.2 42.0 23.7 22.0 17.4 26.6 8.6 6.6 2.1 2.1 88.3 90.6 1.1 6.3 5.9 17.3 65.1 4.4 29.5 477 286 458 0.0 1.0 1.5 1.1 1.0 24.2 35.4 32.7 27.9 30.6 14.2 21.7 14.2 18.1 17.3 19.3 22.1 19.0 16.6 19.5 Endline Survey 37.4 28.5 26.0 26.8 29.3 2.5 2.8 3.3 3.2 3.0 60.1 67.7 69.3 69.0 66.8 13.2 0.8 0.0 0.0 0.0 0.6 0.0 18.4 46.6 39.8 39.3 35.6 28.8 21.4 15.8 21.1 19.7 22.8 23.9 15.3 10.7 36.8 19.6 25.1 19.8 16.2 10.7 9.5 13.2 11.3 13.3 16.8 22.1 43.5 53.6 2.6 0.8 2.2 1.3 1.8 1.1 4.8 71.1 87.2 84.6 81.9 75.7 54.8 41.7 38 133 279 298 222 177 84 0.0 0.0 2.0 48.8 44.0 7.5 23.9 25.8 8.4 18.5 20.7 18.0 7.7 8.4 60.3 1.0 1.1 3.8 91.2 90.6 33.9 611 275 345 0.0 0.3 0.9 1.0 0.6 32.8 36.2 38.7 34.7 36.2 18.8 19.2 21.6 19.2 20.0 16.8 19.0 19.4 20.2 18.9 29.3 24.2 17.1 23.3 22.6 2.0 1.2 2.3 1.6 1.8 68.4 74.3 79.7 74.1 75.0 256 343 439 193 1,231 281 288 462 190 1,221 Reproductive History Understanding the reproductive histories of the respondents is important because it is likely to be related to their demand for and use of contraception. As shown in Table 4, almost all of the women in both samples (95%) had given birth (n=1,155 at baseline, n=1,173 at endline). At least 90% of women in each age group above 15–19 years had given birth before the survey. In all but one age group (25–29 years), there was no significant difference in the percentage that had given birth at baseline and endline. Although 14 | Pathfinder international a significantly smaller proportion of women age 25–29 years had given birth at endline, the difference was small 95.5% vs. 98.6%, p=0.03. Table 4. Percent distribution of women who ever gave birth at endline, by age and cumulative frequency Ever Given Birth Ever Given Birth (in Age Group) (Cumulative by Age Group) Baseline Endline p-value* Baseline Endline (n=1,221) (n=1,231) (n=1,221) (n=1,231) Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Total * 54.1 89.8 95.5 97.2 96.8 96.9 96.7 94.6 68.4 91.7 98.6 96.3 96.4 96.1 90.5 95.0 0.21 0.60 0.03 0.54 0.80 0.69 0.09 0.66 54.1 81.8 89.9 92.9 94.0 94.4 94.6 68.4 86.6 94.0 94.9 95.3 95.4 95.0 Two-sample comparison of proportions for baseline vs endline Respondents were asked how many living children they had, in particular about children they had borne. While women may also have foster children or adopted children, children born to them are more likely to affect their fertility desires and decisions regarding contraception. Only women who reported ever giving birth (n=1,155 at baseline and 1,171 at endline) were asked the number of living children. Women who reported ever giving birth had an average (SD) of 3.8 (2.2) living children at baseline and 3.9 (2.1) children at endline; half of these children were boys and half of them were girls (Table 5). Over one-third of women had five or more living children. The proportion of women with three or more living children tended to be higher among women with primary or no education. Thus the average number of living children decreased with increasing level of education, from 4.6 children among women with no education to 2.9 children among women with secondary or higher education at endline. Arise: endline survey results and baseline comparison | 15 Table 5. Percent distribution of women, by number of living children, among women who ever gave birth, at endline Number of Living Children Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Education Level No education Lower primary Upper primary Secondary or higher All women who ever gave birth 3 4 5+ Baseline Survey Mean number of living children Boys Girls Total Number of women 0 1 2 30.0 5.2 2.2 0.4 1.8 2.6 6.9 50.0 29.6 15.2 8.3 4.8 5.8 11.5 10.0 34.8 27.7 13.4 9.6 9.7 11.5 10.0 20.9 23.8 19.6 8.8 13.6 8.1 0.0 7.0 16.4 21.4 22.8 15.6 12.6 0.0 2.6 14.7 37.0 52.2 52.6 49.4 0.5 1.0 1.5 2.0 2.2 2.4 2.0 0.5 1.1 1.4 2.0 2.4 2.4 2.2 1.0 2.1 2.9 4.0 4.6 4.8 4.2 20 115 231 276 272 154 87 0.7 2.2 4.4 3.4 2.9 8.5 9.4 10.4 22.7 11.6 13.3 14.5 17.3 24.4 16.8 12.2 16.0 20.7 11.4 16.2 15.9 18.6 18.9 14.8 17.4 49.3 39.3 28.3 23.3 35.1 2.2 2.0 1.7 1.5 1.9 2.2 2.0 1.8 1.4 1.9 4.4 4.0 3.5 2.9 3.8 270 275 434 176 1,155 Endline Survey Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Education Level No education Lower primary Upper primary Secondary or higher All women who ever gave birth 3.9 4.1 1.8 2.4 1.4 1.8 2.6 57.7 32.0 8.7 5.2 2.8 8.2 4.0 15.4 34.4 21.5 11.9 10.3 5.3 9.2 7.7 17.2 28.0 19.2 14.0 7.7 2.6 7.7 7.4 21.2 28.9 18.2 14.7 17.1 7.7 4.9 18.9 32.4 53.3 62.4 64.5 0.7 1.0 1.6 1.9 2.2 2.5 2.5 1.1 1.0 1.7 2.0 2.5 2.6 2.8 1.8 2.0 3.3 3.9 4.7 5.1 5.3 23 123 278 282 218 165 82 1.2 1.2 2.6 4.6 2.2 4.5 4.8 11.5 23.4 9.9 11.8 11.2 17.9 20.6 15.1 13.4 15.7 20.3 17.1 17.1 17.6 23.3 19.4 15.4 19.6 51.2 43.8 28.2 18.9 36.1 2.3 2.1 1.7 1.3 1.9 2.3 2.3 1.9 1.5 2.0 4.6 4.4 3.6 2.8 3.9 246 331 419 175 1,171 Fertility Desires Most women (over 63%) in both surveys wanted no more children (Table 6). At endline this increased with number of living children, from 28% among women with one child to 85% among women with 5 or more children. Conversely, 20.9% of women with no children wanted a child soon (within the next 2 years) compared to less than 2% of women with 5 or more children. Overall, 23.3% of women wanted to have another child but wanted to delay the birth of their next child for 2 or more years. Thus, 87% of all women surveyed wished to either limit or space their births. The proportion of women who wanted to have another child did not differ between the two surveys although the proportion that wanted to have another child soon was lower (4.0% vs 7.4%, p<0.01) at endline than at baseline , and the proportion that wanted to have another after 2 or more years was higher (23.6% vs 16.6%, p<0.01) (Table 7). 16 | Pathfinder international Table 6. Percent distribution of currently married women age 15–49 years by desire for children, according to number of living children, endline survey Desire for children Number Have Have Have another, Undecided Want no At of living another another undecided when more marriage children soon* later** 0 20.9 32.6 7.0 11.6 23.3 4.7 1 6.9 54.3 2.6 4.3 27.6 1.7 2 4.5 35.0 1.7 7.9 49.2 0.6 3 2.0 25.0 1.5 9.0 61.5 0.0 4 2.2 19.6 1.3 5.7 70.0 0.0 5+ 1.4 9.2 0.2 3.6 84.6 0.2 Total 4.0 23.3 1.5 6.1 63.4 0.7 * Wants next birth within 2 years ** Wants to delay next birth for 2 or more years Missing Number of women 15– 49 0.0 2.6 1.1 1.0 1.3 0.7 1.1 86 116 177 200 230 422 1,231 Table 7. Desire for children among women aged 15-49 years, baseline and endline surveys Baseline (%) # Endline (%) # Desire for children Have another soon 7.4 90 4.0 49 Have another later 16.6 203 23.3 287 Have another, undecided when 3.2 39 1.5 19 Undecided 6.1 74 6.1 75 Want no more 63.7 778 63.4 780 At marriage 0.7 9 0.7 8 Missing 2.3 28 1.1 13 Total 100% 1,221 100% 1,231 * Two-sample comparison of proportions for baseline vs endline p-value * <0.01 <0.01 <0.01 1.00 0.88 1.00 0.02 Time since Diagnosis Respondents at endline had been diagnosed anywhere from less than one month before the survey to over 25 years before. Ninety five percent had been diagnosed within 10 years of the survey and 99% within 14 years. The mean number of months since diagnosis was 44.9 (standard deviation, SD=35.9) at baseline and 51.4 (SD=37.7), significantly longer at endline (p<0.01). The median (interquartile range, IQR) was 36 (IQR=24, 60) months at baseline and 48 (IQR=24, 72) months at endline. Although mean time since diagnosis tended to vary by district of residence, these differences were not statistically significant and the mean time since diagnosis varied less by district at endline than it did at baseline. Arise: endline survey results and baseline comparison | 17 Table 8. Months since HIV diagnosis by district of residence, at baseline and endline Baseline Months since HIV diagnosis District Number of women 105 178 775 150 NA 1,208* Amuria Dokolo Lira Oyam Katakwi Total Mean SD Median 50.5 47.3 44.3 41.3 NA 44.9 33.9 41.0 34.2 38.8 NA 35.9 48 36 36 36 NA 36 Inter quartile range 24, 72 15, 72 24, 60 12, 60 NA 24, 60 Number of women 199 264 542 NA 216 1,221** Endline Months since HIV diagnosis Mean SD Median 48.7 51.3 53.0 NA 50.3 51.4 33.5 36.6 40.8 NA 34.5 37.7 48 48 48 NA 48 48 Inter quartile range 24, 72 24, 72 24, 72 NA 24, 72 24, 72 pvalue 0.68 0.25 <0.01 NA NA <0.01 * 13 women did not provide information on time since diagnosis ** 10 women did not provide information on time since diagnosis Use of HIV Services As expected most of the women interviewed (99%) were receiving care or treatment at the time of the survey. The average duration of treatment at endline was 49 months (versus 39 months at baseline) and 38% of all women had been on treatment for 5 or more years (Table 9). Duration on treatment was positively associated with age. Women not living with a partner had a substantially longer duration of treatment than women who were married or living with a man. Significantly more women had been on treatment for more than 5 years at endline than at baseline (Figure 2). Figure 2. Time in treatment, comparison of baseline and endline 45 38.1 * 40 Percent of clients 35 30 26.4 25 20 15.6 15 10.4* 14.1 15.0 15.2 15.1 12.4 12.3 * 11.8 11.0 10 5 0 <1 year 1 year 2 years Baseline 18 | Pathfinder international 3 years Endline 4 years 5 years *p<0.05 Table 9. Duration of receipt of care or treatment at endline, by characteristic Background characteristic Receiving care or treatment Number of women <1 Time on treatment (years)* 1 2 3 4 5+ Age 15–19 97.4 38 18.9 24.3 20–24 100.0 133 19.6 21.8 25–29 100.0 279 14.7 15.1 30–34 99.3 298 10.1 9.5 35–39 99.6 222 3.6 10.4 40–44 99.4 177 5.1 8.5 45–49 100.0 84 7.1 7.1 Marital status Married 99.5 611 10.5 14.0 Living together 99.3 275 13.2 11.0 Not living with a partner 100.0 345 7.8 10.7 Education Level No education 99.2 256 8.7 10.2 Lower primary 99.7 343 9.7 12.0 Upper primary 99.8 439 12.1 14.2 Secondary or higher 99.5 193 9.9 12.0 All women 99.6 1,231 10.4 12.4 * 7 women were missing information on duration on treatment 13.5 21.8 17.9 17.2 14.0 6.8 9.5 5.4 12.0 13.6 15.9 11.8 9.7 6.0 5.4 8.3 11.1 12.5 9.5 13.6 10.7 32.4 16.5 26.2 34.5 49.8 55.1 59.5 16.5 18.0 10.7 14.3 9.9 10.7 11.2 10.6 11.0 33.1 37.0 47.5 13.8 14.6 17.1 13.5 15.2 15.0 11.7 12.1 10.4 12.3 11.0 13.5 11.2 6.3 11.0 40.6 38.0 32.7 46.9 38.0 Number of women on treatment 37 133 279 296 221 176 84 100 608 273 345 100 254 342 438 192 1,226 Almost all women on treatment reported that they were taking cotrimoxazole (Table 10) and this was consistent across groups (Table 11). In both surveys, fewer women were taking ART than cotrimoxazole but the percentage taking ART increased from 51.9% at baseline to 59.9% at endline (p<0.01). At endline, the proportion of women on ART increased from 40.5% among women under age 19 years to over 80% among women over age 45 years. Women not living with a partner, who were generally older, were more likely to be on ART. Treatment of opportunistic infections (OI) increased from 44% at baseline to 74.7% at endline and the percentage of clients receiving home based care (HBC) almost tripled from 11.5% to 31.7% (p<0.01). Table 10. HIV services currently recevied among women receiving any treatment, comparison of baseline and endline Baseline (%) Care and support currently received Home based care 11.5 Cotrimoxazole 98.6 ART 51.9 Treatment of opportunistic infections 44.0 Total number of women receiving care or support 1,209 * Two-sample comparison of proportions for baseline vs endline Endline (%) p-value* 31.7 99.2 59.9 74.7 1,226 <0.01 0.16 <0.01 <0.01 Arise: endline survey results and baseline comparison | 19 Table 11. HIV services currently received among women receiving any treatment at endline, by characteristic Background characteristic HBC Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Services received Cotrimoxazole ART OI 29.7 36.1 26.9 26.0 33.5 38.1 44.1 100.0 99.3 98.9 99.3 99.1 98.9 100.0 40.5 43.6 48.8 56.4 68.3 78.4 82.1 81.1 69.2 73.8 71.3 75.1 80.1 83.3 31.1 36.3 29.3 99.5 98.2 99.4 55.8 63.0 64.6 76.3 71.4 74.5 30.3 31.0 32.4 33.3 31.7 99.6 98.8 99.1 99.5 99.2 57.9 58.2 58.5 68.8 59.9 67.7 76.9 76.3 76.6 74.7 Number of women 37 133 279 296 221 176 84 100 608 273 345 100 254 342 438 192 1,226 The percentage of pregnant women that reported receiving ART to prevent transmission of HIV to their child was not significantly different at endline than it had been at baseline. At endline, 70.9% of pregnant women were receiving ART to prevent transmission (data not shown). The percentage of women currently attending support group meetings increased from just over one quarter (26.1%) at baseline to 43.1% at endline (Table 12).While older women and married women were somewhat more likely to attend meetings at baseline, this was less apparent at endline. However in both surveys, women with secondary or higher education were more likely than women with less education to attend groups. In both surveys, more women reported receiving information from support groups than reported attending group meetings; as with participation, the percentage receiving information increased between the two surveys. While just half of all women reporting receiving information about family planning from a support group at baseline, 74.3% reported this at endline (p<0.01). 20 | Pathfinder international Table 12. Participation in support groups and receipt of FP information at endline, by characteristic Currently attend group Info on FP from group in past 6 months Baseline Endline p-value* Background characteristic Baseline Endline p-value* Age 15–19 21.6 44.7 0.03 59.5 73.7 20–24 19.5 36.8 0.43 48.4 75.2 25–29 26.0 43.4 0.38 47.9 70.3 30–34 24.7 38.3 <0.01 47.2 72.2 35–39 30.0 41.9 <0.01 53.0 77.5 40–44 27.7 50.3 <0.01 49.7 76.8 45–49 34.7 56.0 <0.01 53.3 81.0 Marital status <0.01 Married 32.3 43.9 <0.01 54.9 76.4 Living together 18.9 42.6 <0.01 43.0 75.6 Not living with a partner 25.8 42.0 <0.01 49.1 69.6 Education Level <0.01 No education 22.1 40.6 <0.01 46.3 70.3 Lower primary 20.4 38.5 <0.01 48.3 72.3 Upper primary 29.2 45.1 <0.01 53.0 75.4 Secondary or higher 36.8 49.7 0.01 50.5 80.8 All women 26.7 43.1 <0.01 50.0 74.3 * Two-sample comparison of proportions for baseline vs endline Number of women Baseline Endline 0.19 <0.01 <0.01 <0.01 <0.01 <0.01 <0.01 37 128 242 284 281 159 90 38 133 279 298 222 177 84 <0.01 <0.01 <0.01 477 286 458 611 275 345 <0.01 <0.01 <0.01 <0.01 <0.01 281 288 462 190 1,221 256 343 439 193 1,231 Integration of Family Planning with HIV Services Use of Antenatal Care At endline, 63% of respondents (n=768) reported that they had their last child within 5 years of the survey; these women were asked about their use of antenatal care during the pregnancy. Only women with a birth in the past 2 years (n=353 at baseline and 413 at endline) are included below because this coincides with the timing of the interventions. Almost all women with a birth in the past 2 years used ANC (Table 13) and most of them received it from a nurse or midwife or clinical officer (85.0% at baseline and 94.0% at endline, p-value<0.00; Figure 3). The proportion of women seeking ANC from doctors was notably higher among women with secondary or higher education at baseline but not at endline, when fewer women overall used doctors for ANC. At endline almost all women who used ANC (n=410) received services at a public facility (98.1%). Arise: endline survey results and baseline comparison | 21 Figure 3. Use of ANC at last pregnancy, among births in the past 2 years, comparison of baseline and endline surveys 94.0 * 100 85.0 90 Percent of clients 80 70 60 50 40 30 20 10 13.3 4.8 * 0.6 0.5 0 Doctor Nurse/Midwife Baseline None Endline *p<0.05 Table 13. Distribution of ANC utilization at last pregnancy, Among births in the 2 years before endline, by characteristic Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Education Level No education Lower primary Upper primary Secondary or higher All women who gave birth in the past 2 years Health Professional Doctor Nurse/ Midwife None Number of women 10.5 5.1 4.7 5.6 1.8 4.6 0.0 84.2 92.3 94.6 94.4 96.4 95.5 100.0 0.0 2.6 0.0 0.0 0.0 0.0 0.0 19 78 129 107 55 22 3 4.0 6.2 3.1 8.2 4.8 94.7 93.8 95.1 90.2 94.0 1.3 0.0 0.6 0.0 0.5 75 113 164 61 413 HIV testing and counseling during antenatal care was also assessed. Of women who had a birth in the past 2 years, 88.4% reported that they were offered HIV testing during their pregnancy (Table 14). Among all women with a pregnancy in the past 2 years, regardless of whether they received ANC, a similar percentage (87.2%) took an HIV test. Almost all of the women (98.6%) who were tested (n=360) received their result. No clear pattern in testing was observed by level of education, marital status and age for HIV testing at either baseline or endline (results not shown). 22 | Pathfinder international Table 14. HIV testing during last pregnancy, among women with a birth in the past 2 years, comparison of baseline and endline Baseline (%) 79.6 Endline (%) 88.4 p-value* Offered HIV test during last pregnancy <0.01 HIV testing status during last pregnancy** Tested and received result 81.6 86.0 0.10 Tested but did not receive result 0.9 1.2 0.69 Not tested 16.7 12.8 0.12 Total number of women 353 413 * Two-sample comparison of proportions for baseline vs endline; ** At baseline, 3 women (0.9) were missing information on their testing status at last pregnancy. Provision of Family Planning Information During Pregnancy and PostPartum Care Women who had been pregnant in the 2 years before the survey were asked about the information they received at the time of the pregnancy. In particular, they were asked about whether or not they had received information about HIV services for expectant mothers, about use of family planning after birth and whether or not they had received information about family planning within the first 6 weeks after the birth. While most women (95.9%) at endline received information on HIV services for expectant mothers (Table 15), fewer (90.3%) received information on using family planning after the birth and even fewer (72.4%) received information about family planning within 6 weeks of the birth. Significantly more women received each type of information at endline than had at baseline (Figure 4). However, the lower percentage of women receiving information after the birth suggests a continuing gap in service provision, despite substantial improvement over the 2 years of project intervention. Figure 4. Percent of women with a birth in the past 2 years receiving recommended information during antenatal care, comparison of baseline and endline 95.9 100 90 87.8 * 90.3 * 77.3 80 72.4 * 70 60 51.0 50 40 30 20 10 0 ANC: Information on HIV services ANC: Information on FP after Postpartum: Information about birth FP Baseline Endline *p<0.01 Arise: endline survey results and baseline comparison | 23 Table 15. Information received by women pregnant in the past 2 years, by characteristic, at endline Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Received info on HIV services for expectant mothers Received information on using family planning after birth Received information about family planning postpartum Number of women 89.5 97.4 94.6 98.1 92.7 100.0 100.0 94.7 89.7 90.7 86.9 90.9 100.0 100.0 73.7 68.0 74.4 68.2 74.6 86.4 100.0 19 78 129 107 55 22 3 94.9 98.0 96.3 91.9 87.8 89.0 72.1 72.5 73.2 233 98 82 90.7 95.6 97.6 98.4 95.9 88.0 89.4 90.9 93.4 90.3 64.0 71.7 76.2 73.8 72.4 75 113 164 61 413 Provision of Family Planning Information During HIV Care and Support Services Women who were using HIV care and support services at the time of the survey were asked whether or not they had received integrated services. The majority (81%) had seen an HIV provider who discussed family planning with them and this was consistent across groups (Table 16). Among these women, almost all of them (99.1%) had discussed special considerations for use of contraception by women living with HIV. Specific messages that these women were given included how to reduce risk of transmission from mother to child (53.1%), the importance of health status before pregnancy (34.4%), and risk of transmission to the baby (33.0%). 24 | Pathfinder international Figure 5. Experience of integrated services among FP users and women recieving care and support, comparison of baseline and endline 100 93.6 90 80 75.8 80.5* 80.8 99.1 * 80.5 70 60 50 40 30 20 10 0 Discussed desire for children Discussed use of FP Baseline Discussed special considerations for HIV+ women Endline *p<0.01 Table 16. Experience of integrated services, among FP users and women receiving care and support, by characteristic at endline Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Discussed desire for children Discussed use of FP Number of women receiving care/support Discussed Number special of women considerations who talked about FP for HIV+ women 73.0 85.0 76.3 84.1 83.3 78.4 75.0 70.3 85.0 76.7 82.8 84.2 80.1 73.8 37 133 279 296 221 176 84 100.0 100.0 99.1 98.4 98.9 99.3 100.0 26 113 214 245 186 141 62 81.7 82.8 76.5 81.9 84.3 75.1 608 273 345 99.4 98.3 99.2 498 230 258 76.8 78.1 84.0 81.8 80.5 77.2 78.1 82.9 83.9 80.5 254 342 438 192 1,226 98.5 98.5 100.0 98.8 99.1 196 267 363 161 987 Arise: endline survey results and baseline comparison | 25 Contraceptive Use Contraceptive Prevalence Almost 38.7% of respondents at baseline and over half of all respondents at endline (54.6%, p<0.01) reported that they were currently doing something to delay or avoid getting pregnant (Figure 6). The most commonly used methods were injectables (22.6%), implants (18.2%), and male condoms (7.2%); while these methods were also the most popular methods at baseline, the proportion of women using injectables and implants increased significantly (injectables from 16.2% to 22.6%, p<0.01; implants from 9.7% to 18.2%, p<0.01). Women who were married or living in union were significantly more likely to report modern contraceptive use (61%) compared to women not living with a partner (37.1%, p<0.01). Use of modern contraceptives was positively related to level of education (Table 17). Figure 6. Current contraceptive use among women living with HIV, comparison of baseline and endline 60 54.6* 54.2 * Percent of clients 50 40 38.7 38.4 30 20 10 0 Any method Any modern method Baseline 26 | Pathfinder international Endline *p<0.01 Table 17. Percent distribution of current use of contraception among women, endline Background characteristics Any method Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Any modern method Female sterilization Intrauterine device (IUD) Implants Injectables Pill Condoms Any Number tradi- of women tional method 39.5 52.6 56.6 57.1 64.4 48.0 36.9 39.5 52.6 56.6 56.7 64.0 47.5 34.5 0.0 0.0 1.1 1.3 5.9 5.1 7.1 0.0 0.0 1.1 2.4 4.5 4.5 2.4 7.9 15.8 24.4 19.5 17.6 15.8 8.3 18.4 26.3 24.4 24.8 25.2 17.0 9.5 2.6 0.8 1.8 1.0 3.6 1.1 1.2 10.5 9.0 3.9 7.4 7.2 4.0 6.0 0.0 0.0 0.0 0.3 0.5 0.6 2.4 38 133 279 298 222 177 84 61.1 61.8 60.6 61.5 2.3 4.0 3.1 2.6 20.8 17.1 24.7 27.3 1.3 3.6 8.2 6.6 0.5 0.4 611 275 37.4 37.1 2.9 1.2 14.5 15.1 0.9 2.6 0.3 345 49.2 54.8 55.4 48.4 54.5 55.1 3.1 4.7 1.1 3.9 2.3 1.8 20.3 17.5 18.7 17.2 22.7 23.2 1.2 1.8 2.1 2.7 5.3 8.0 0.8 0.3 0.2 256 343 439 59.6 59.1 3.1 2.1 15.5 28.0 1.6 8.8 0.5 193 54.6 54.2 2.8 2.4 18.2 22.6 1.7 6.3 0.4 1,231 Source of Contraception The majority of modern contraceptive users obtained their method from public sector sources at both baseline and endline, particularly government hospitals and health centers (Table 18). At baseline, a smaller proportion of single women (6.3%) used private sector sources than did married women (12.8%) or women living in informal union (9.6%) (Oliveras and Makumbi 2013). A smaller proportion of women obtained their contraceptive method from a private sector source at endline than at baseline (5.3% at endline vs. 9.4% at baseline, p<0.01) (Table 18) and this was true for all methods. This may be due in part to the fact that the baseline survey included one mission hospital and the endline only included public sector facilities. However, given that the proportion obtaining each method at a private sector source declined, it may be that the projects efforts to ensure the provision of contraceptives at the public sector facilities through outreach services, particularly for long-acting methods, resulted in the change. It is important to note that Arise partnered with Marie Stopes International, which provides outreach services at public sector facilities. Thus, the fact that women reported that services were received at a public sector facility does not necessarily mean that they were provided by a public sector provider. Arise: endline survey results and baseline comparison | 27 Table 18. Source of contraception among contraceptive users, comparison of baseline and endline Baseline Endline p-value* (%) (%) Public sector 87.4 94.2 <0.01 Public hospital 22.8 24.0 0.64 Public health center 57.6 66.3 <0.01 Other public 7.0 3.9 0.02 Private sector 9.4 5.3 <0.01 Total number of women 469 667 * Two-sample comparison of proportions for baseline vs endline Table 19. Source of contraception, among current users of modern methods at endline Background characteristic Public sector Public hospital Public health center Age 15–19 86.7 33.3 46.7 20–24 88.6 28.6 54.3 25–29 95.6 26.6 65.8 30–34 91.7 21.3 68.1 35–39 94.4 15.5 73.2 40–44 100.0 28.6 66.7 45–49 100.0 37.9 62.1 Marital status Married 95.1 23.0 68.7 Living together 92.9 29.0 58.6 Not living with a 93.0 20.3 69.5 partner Education Level No education 93.6 19.4 71.0 Lower primary 94.7 18.2 73.3 Upper primary 94.2 25.6 64.5 Secondary or higher 93.9 35.1 53.5 Contraceptive method Female sterilization 100.0 37.1 60.0 IUD 93.3 33.3 60.0 Implants 96.0 23.2 71.9 Injectables 90.3 19.4 63.3 Pill 100.0 28.6 61.9 Condoms 98.7 32.5 66.2 All women 94.2 24.0 66.3 * 2 women were using the diaphragm and are not shown in the table Other public Private sector Missing Information Number of women 6.7 5.7 3.2 2.4 5.6 4.8 0.0 13.3 10.0 2.5 8.3 5.6 0.0 0.0 0.0 1.4 1.9 0.0 0.0 0.0 0.0 14 69 161 167 140 83 33 3.5 5.3 4.1 7.1 0.8 0.0 370 169 3.1 6.3 0.8 128 3.2 3.2 4.1 5.3 5.7 4.8 5.0 6.1 0.8 0.5 0.8 0.0 124 187 242 114 2.9 0.0 0.9 7.6 9.5 0.0 3.9 0.0 6.7 3.1 9.0 0.0 1.3 5.3 0.0 0.0 0.9 0.7 0.0 0.0 0.6 35 30 224 278 21 77 667 Integration with HIV: Source of Contraception Among women who were using contraception, 68.7% at baseline and 80.7% at endline (p <0.01) had received family planning at an HIV service site. However, the survey did not ask whether they received the method from an HIV provider or from an FP provider. Compared to women who were married or in union, a smaller proportion of women not living with a partner received contraception from an HIV site and a larger proportion of women with secondary or higher education received their method at an HIV service site than did women with lower levels of education (Table 20). Most of the women (80% at baseline and 87.1% at endline, p <0.01) received the method from a provider who knew her HIV status. This was not related to age, marital status or educational attainment. 28 | Pathfinder international Table 20. Percent of modern contraceptive users experiencing integration, endline Background characteristic Received FP provider Number of method at an knew her women HIV service site HIV status using modern methods Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher Total 80.0 82.9 82.3 75.7 81.7 83.3 82.8 86.7 88.6 90.5 83.4 86.6 86.9 89.7 15 70 158 170 143 85 31 84.3 76.9 75.0 88.9 85.8 83.6 370 170 129 75.8 81.8 81.8 81.6 80.7 83.9 87.7 87.2 89.5 87.1 126 188 243 115 672 Both women who were and were not using contraception were asked who made the decision about family planning. Overall, as shown in Table 21, over half of all respondents at endline (54.2%) reported that the decision to use contraception was a joint decision with her partner. This was a significant increase from baseline when just 41.9% reported that the decision to use contraception was a joint decision (p<0.01) (Oliveras and Makumbi 2013). However, in both surveys the person who made the decision about contraceptive use differed among users and non-users of family planning. Joint decision-making about FP use was significantly higher at endline among women who were using contraception compared to women not using contraception (75.2% vs 28.9%, p<0.00). Overall, just 3.0% of women in both surveys reported that the decision was mainly made by her husband or partner. Table 21. Percent distribution of contraception decision making, by FP use, at endline Mainly Respondent Mainly Joint Other husband/ Decision partner FP user 22.3 2.4 75.2 0.0 Non user 59.6 4.4 28.9 6.4 All women 39.3 3.3 54.2 2.8 *9 women were missing information on contraceptive use Missing Information 0.2 0.7 0.4 Number of women 672 550 1,231 Among contraceptive users, in most cases, the woman’s partner knew about her use of contraception (Table 22). However, partner knowledge was most common among married women (92.2%), less common among women living with a partner (89.4%), and least common among women who were sexually active but not currently living with a partner (54.7%). Among women who were married and unmarried women living with their partners, the percentage of women who said their partner knew about her use of contraception increased between baseline and endline (Figure 7). Over half (56.3%) of all respondents reported that they had talked about family planning with their partner more than twice in the past year; this percentage did not change significantly between the baseline and endline survey. Arise: endline survey results and baseline comparison | 29 Figure 7. Partner knowledge of FP use by marital status, among women using contraception, comparison of baseline and endline 100.0 90.0 92.2* 89.4* 86.8 76.7 80.0 70.0 59.7 60.0 52.0 50.0 40.0 30.0 20.0 10.0 0.0 Married Living together Baseline Not married Endline *p<0.05 Table 22. Percent distribution of partner knowledge and discussion of FP use, by marital status, among current contraceptive users at endline Partner Knows* Marital status Married Living together Not living with a partner All women Frequency of discussion in the past year Once or More Never Twice Often 92.2 89.4 59.7 85.3 7.5 10.0 41.1 14.6 28.4 27.7 24.8 27.5 63.8 58.8 31.0 56.3 Number of women-current FP users 373 170 129 672 Dual Method Use Dual method use (use of condoms and another method of contraception) was reported by 44% of contraceptive users at baseline and 51.8% of women at endline (p <0.01). At endline this was over half of all contraceptive users; dual method use was most common among married women and those living in union and among those with secondary or higher education (Table 23). Dual method use was no more common among women in discordant couples than among women in concordant positive couples (35.1% vs 34.1%, p=0.85). Among the 348 women who reported dual method use at endline, just 9.5% reported challenges to dual method use compared to 22.7% at baseline (p <0.01) (data not shown). 30 | Pathfinder international Table 23. Percent distribution of dual method use, by characteristic, among current modern contraceptive users and all women, endline Modern contraceptive users Dual Condom Contracep- Number of method use only tive use only women use Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women All women No Dual Condom ContracepNumber method use only tive use Method of only women use 71.4 55.1 46.0 52.4 52.8 58.3 41.7 21.4 15.9 5.0 12.5 9.2 6.0 19.4 7.1 29.0 48.5 34.5 37.3 35.7 38.9 14 69 161 168 142 84 36 27.8 28.6 26.1 30.2 33.0 28.5 16.5 8.3 8.3 2.8 7.2 5.7 2.9 7.7 2.8 15.8 27.5 19.9 23.4 17.4 16.5 61.1 47.4 43.3 42.3 37.4 51.2 59.3 38 133 279 298 222 177 84 53.7 55.3 11.8 10.0 34.0 34.7 374 170 32.8 34.2 7.2 6.2 20.7 21.5 39.0 38.2 611 275 41.5 5.4 52.3 130 15.6 2.0 20.2 61.9 345 50.4 50.0 50.4 59.1 51.8 3.9 8.5 13.5 12.2 10.1 44.1 41.5 36.1 27.8 37.7 127 188 244 115 674 24.9 27.3 28.0 35.2 28.3 2.0 4.7 7.5 7.3 5.5 21.8 23.3 20.0 16.6 20.8 50.6 44.8 44.6 40.4 45.2 256 343 439 193 1,231 HIV Risk Behaviors at Last Sex Less than half of all women who had sex in the past year reported using a condom at last sex (Table 24). Condom use was related to educational attainment, with women with secondary or higher education more likely to have used condoms. Only 4.5% of women who had sex in the year before endline and 3.1% of such women at baseline reported having more than one partner. This was highest among women not living with a partner at endline (12.8% vs. 2.8% among women living in union and 1.3% among married women) and among women with no education. Arise: endline survey results and baseline comparison | 31 Figure 8. Condom use at last sex among women who reported sex in the past year, comparison of baseline and endline 60 50.6 50 40 47.2 46.3 46.0 41.0* 38.5 41.9 44.1 30 20 10 0 Married Living together Unmarried Baseline All women *p<0.05 Endline Table 24. Condom use at last sex and having had a non-regular partner in the past year at endline, by characteristic Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Condom use at last sex Had a non-regular partner Number of women 40.7 41.4 37.7 48.8 47.6 43.3 51.4 3.7 2.6 3.0 4.1 2.4 2.1 5.7 27 116 236 244 168 97 35 46.0 41.0 41.9 1.3 2.8 12.8 557 249 117 40.0 42.8 43.4 53.2 44.1 4.6 1.6 3.7 2.8 3.1 175 255 350 143 923 The respondents were also asked about how confident they felt that they would use a condom next time they had sex with their regular partner (Table 25). Close to 40% of all respondents in both surveys reported that they were very confident that they would use condoms. The percentage that said they were not at all confident they would use condoms increased from 12.2% at baseline (Oliveras and Makumbi 2013) to 18.3% at endline (p<0.00). There were few differences by age, marital status or educational 32 | Pathfinder international attainment although women not living with a partner were less likely than other women to say that they were very confident that they would use condoms at next sex. Table 25. Confidence in future condom use at endline, by characteristic Background characteristic Very Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Confidence Confident Somewhat Not at all Number of women 18.5 38.8 34.3 43.9 38.1 37.1 42.9 55.6 36.2 36.4 27.9 37.5 27.8 22.9 7.4 10.3 9.8 9.8 6.0 13.4 5.7 18.5 13.8 19.1 17.6 18.5 20.6 25.7 27 116 236 244 168 97 35 41.3 39.8 30.0 37.0 9.5 7.2 18.9 15.7 557 249 20.5 42.7 12.8 21.4 117 30.9 34.9 40.0 49.0 38.2 34.3 34.5 33.1 31.5 33.5 7.4 9.8 10.3 8.4 9.3 26.9 20.0 15.7 11.2 18.3 175 255 350 143 923 Unmet Need for Family Planning Calculating Unmet Need Using the Approach Used in Household Surveys Per the Demographic and Health Surveys (DHS), “Women who indicate that they either want no more children (limiters) or want to wait two or more years before having another child (spacers), but are not using contraception constitute a group that has unmet need for family planning. Women who are currently using a family planning method are considered to have a met need for family planning. The women with unmet need and those who are currently using a family planning method form the total demand for family planning.”3 In the Demographic and Health Surveys and other surveys like the UNICEF Multiple Cluster Indicator Surveys, unmet need is assessed based on answers to over 15 survey questions. Using data from the endline survey we calculated unmet need following the household survey approach. However, because the Arise baseline survey did not include questions about whether or not women who were currently pregnant wanted to become pregnant at the time that they did, the household survey approach could not be used for the baseline data. First, therefore, we calculated a modified measure of unmet need that considered all pregnant women as not having any need for family planning (modified household survey approach) in order to allow for comparison between the baseline and endline surveys. These results are shown in Figure 9 only. When using the modified household survey approach, total unmet need decreased (from 17.0% to 14.8%) with a significant decline in the unmet need for limiting (12.3% at baseline vs. 9.6% at endline; p<0.01) but no change in unmet need for spacing (Figure 9). The reduction in total unmet need occurred despite a significant increase in demand for family planning (from 56.1% to 69.7%) because more of the demand was met [69.7% at baseline and 82.2% at endline (data not shown)]. 3 P.103, Uganda Bureau of Statistics (2007) Arise: endline survey results and baseline comparison | 33 Figure 9. Need for family planning calculated using the modified-survey approach, comparison of baseline and endline 80 69.7 * 70 56.1 60 50 41.6 * 40 28.3 30 20 10.9 14.3* 12.3 10 9.6* 4.7 5.2 0 Met need for spacing Met need for limiting Unmet need for spacing Baseline Endline Unmet need for limiting Total demand for FP *p<0.05 Using the endline data, we also calculated an unmodified (standard) measure of unmet need that took into account desire for pregnancy at the time of a pregnancy, which could not be calculated using the baseline data (see Table 26). The resulting estimate of 16.1% is higher than the 14.8% from the modified measure. Although this unmodified measure cannot be compared to the baseline survey results, it is more comparable to other survey-based estimates of unmet need and is reported here for that reason. Calculating Unmet Need Using a Clinic-Based Approach The approach to calculating unmet need from survey data is complicated and is not well suited to assessing unmet need among individuals in clinical settings. Thus, an alternative tool for assessing unmet need among women living with HIV was developed by the Interagency Task Team on the Prevention and Treatment of HIV Infection in Pregnant Women, Mothers and Children (IATT). The tool (Annex C) was designed to be used in clinic settings as a means to assess levels of unmet need for family planning among women living with HIV. The Arise project used the tool for assessment and counseling as well as for monitoring unmet need on an ongoing basis over the course of the project. The IATT tool includes far fewer questions than standard surveys so the results are not directly comparable. It focuses on three questions: 1) Are you currently pregnant?, 2) Do you want to become pregnant within the next year4? , and 3) Are you currently using a family planning method? Women who are currently pregnant are asked: At the time you became pregnant, did you want to become pregnant then? And women who are currently not using family planning are asked: Can you tell me why you are not using a method? This approach divides women into three groups, those with no need for family planning, those with met need for family planning, and those with unmet at need for family planning. It does not distinguish between need for spacing and need for limiting. Both estimates of unmet need (standard, unmodified household survey approach and clinic-based approach) resulted in similar estimates of unmet need. The unmodified household method resulted in 4 The standard survey approach considers women to have a need for spacing if they want to wait more than 2 years to have a next birth. 34 | Pathfinder international unmet need of 16.1% (Table 26) while the IATT approach found unmet need of 16.7% (Table 27); estimates for met need were also similar (54.9% vs. 54.0%). Relationship between demand for family planning and personal characteristics When calculated in the standard way for household surveys, the need for family planning at endline differed with the characteristics of the women (Table 26). Total need for family planning was highest among those with the lowest levels of education (17.2% among women with no education and 17.7% among women with lower primary education) and thereafter decreased with increasing education to 15.1% among women with upper primary and 13.8% among women with at least secondary education. The need for spacing decreased with age whereas the need for limiting increased with age. Women not living with a partner had the highest level of unmet need at 21.6%. Table 26. Need for family planning calculated using the standard household survey approach, among women who have ever had sex, by background characteristic, endline Background characteristic Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Met need for family 1 planning For For Total spacing limiting Unmet need for family 2 planning For For Total Spacing limiting Total demand for family planning For For Total spacing Limiting Percent of demand satisfied Number of women 40.0 41.2 25.5 19.9 13.6 7.1 1.2 6.7 9.9 31.3 37.3 50.2 42.3 37.2 46.7 51.1 56.8 57.2 63.8 49.4 38.4 10.0 13.7 8.3 2.4 1.4 1.2 1.2 0.0 7.6 11.9 11.9 12.7 15.5 5.8 10.0 10.0 20.2 14.3 14.1 16.7 7.0 40.0 48.9 37.4 31.7 26.2 22.6 7.0 16.7 23.7 39.6 39.7 51.6 43.5 38.4 56.7 72.5 77.0 71.4 77.8 66.1 45.3 82.4 70.5 73.8 80.1 82.0 74.7 84.8 32 131 273 294 217 174 80 23.5 23.9 37.3 60.8 37.1 61.0 4.8 6.3 8.6 9.2 13.4 15.5 32.1 33.1 42.1 43.4 74.2 76.5 81.9 79.7 604 272 9.2 29.9 39.1 3.4 18.2 21.6 27.4 33.2 60.6 64.5 10.8 19.8 22.1 26.1 19.7 38.8 36.1 32.9 34.0 35.2 49.6 55.9 55.0 60.1 54.9 3.2 5.6 5.7 3.2 4.8 14.0 12.1 9.4 10.6 11.3 17.2 17.7 15.1 13.8 16.1 24.8 32.0 31.5 36.7 31.1 42.0 41.7 38.6 37.2 40.0 66.8 73.7 70.1 73.9 71.0 74.3 75.8 78.5 81.3 77.3 325 250 338 425 188 1,201 Regardless of the calculation method, unmet need was higher among women with less education and lower among those with higher levels of education. Using the household survey approach it was highest among women not living with a partner and lowest among married women, whereas using the IATT approach there was little variation by marital status (Table 27). Arise: endline survey results and baseline comparison | 35 Table 27. Unmet need calculated using the IATT approach Background characteristic Total demand for family planning No need for family planning Met need for family planning Unmet need for family planning Percent of demand satisfied Number of women 20.0 32.8 24.8 27.2 24.9 35.7 46.5 46.7 51.9 55.8 55.8 62.4 48.2 38.4 33.3 15.3 19.4 17.1 12.7 16.1 15.1 80.0 67.2 75.2 72.8 75.1 64.3 53.5 58.3 77.3 74.2 76.6 83.1 75.0 71.7 30 131 278 287 221 168 86 23.5 23.9 59.6 59.2 16.9 16.9 76.5 76.1 77.9 77.8 604 272 44.3 39.4 16.3 55.7 70.7 325 31.2 28.7 30.1 25.5 29.2 48.4 55.0 54.1 59.6 54.0 20.4 16.3 15.8 14.9 16.7 68.8 71.3 69.9 74.5 70.8 70.3 77.2 77.4 80.0 76.3 250 338 425 188 1,201 Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women Knowledge of Partner’s HIV Testing Behavior and Couple’s Counseling Women were asked about whether or not they had been counseled with their partners at any time since their diagnosis. We did not assume that having attended couple’s counseling indicated disclosure or knowledge of the partner’s status. Two-thirds of women who were married or in union (67%) reported that their partner had attended HIV counseling with them and this had not changed since baseline (Figure 10). The percentage of women whose partners had attended counseling with them differed with time since diagnosis (Table 28). It was lowest among women diagnosed within the past year (58.0%) and highest among those diagnosed 5 or more years before the survey (69.5%). A higher percentage of married women reported that their partner had attended counseling (71.9 %) than did women living with a partner (56.4%). Among those whose partners had not attended counseling with them, only about 40% gave a reason for why their partner had not attended (data not shown). The most commonly reported reasons were concerns about stigma and discrimination (28.2%), that the partner was in denial (23.5%) and that the partner was not living in the same location as the woman (19.1%). Women were also asked whether or not their partner had been tested and if so, if they knew their partner’s HIV status. Among women who were married or in union, 84.8% reported that their partner had been tested (unchanged from baseline), 9.7% said that their partner had not been tested, and 4.2% did not know. However, simply being tested is not enough; it is more important to learn the result of the test to influence negotiation of safer sex and to initiate joint decision-making about sexual and reproductive health behaviors. At endline, just over 80% of all women who were married or in union reported that their partner had tested for HIV and received the result; although this was a slight increase from baseline (82.4% vs 78.9%) the increase was not significant (p=0.07). As with counseling, partner testing was more commonly reported by married women (86.8%) than by women living with a partner (72.7%). Over 80% of women who were married or in union knew their partner’s status, but almost all of them (93.4%) reported that their partner knew their status. There was a slight increase in the percentage of women that reported knowing their partner’s status, from 76.3% at baseline to 81.3% at endline (p=0.01). 36 | Pathfinder international As at baseline, whether or not the woman’s partner knew her status was strongly related to his counseling and testing behavior. Whereas 70.9% of women whose partner knew her status had been counseled with her partner, only 10% of those women whose partner did not know her status had been counseled together (Table 28). These results need to be interpreted with caution due to the small sample of women whose partners did not know their status (n=30) but these findings reinforce the importance of facilitated disclosure during couples counseling and testing for both the woman and her partner. Figure 10. Partner counseling and testing, comparison of baseline and endline 95.2 93.4 100.0 83.0 84.8 90.0 78.9 80.0 70.0 82.4 76.3 81.3 * 67.6 67.0 60.0 50.0 40.0 30.0 20.0 10.0 0.0 Attended Partner tested for counseling with HIV husband Partner tested and received result Baseline Endline Woman knows partner's status Partner knows woman's status * p <0.01 Arise: endline survey results and baseline comparison | 37 Table 28. Partner counseling and testing at endline, by characteristic, among women who are married or living with a partner Partner has attended HIV counseling with the woman* Partner has been tested for HIV 71.9 56.4 88.9 75.6 86.8 72.7 86.1 70.6 95.9 87.6 613 275 58.0 64.8 67.9 68.1 69.5 77.3 75.0 85.5 87.9 88.9 76.1 73.2 82.8 85.6 86.3 71.6 70.4 82.8 85.1 85.4 85.2 92.6 95.6 95.7 92.0 88 108 250 208 226 5 70.9 10.0 67.0 88.6 10.0 84.8 86.1 10.0 82.4 84.9 10.0 81.3 NA NA 829 30 888 Marital Status Married Living with a man Time since diagnosis Within past year 1 year 2-3 years 4-5 years 5+ years Don’t know Partner knows her status* Yes No Total Partner tested and received result Woman knows partner’s status Partner knows woman’s status* Number of women 93.4 *4 women were missing information on whether or not their partner attended counseling with them; 4 women were also missing information on whether or not their partner knew their status Over two-thirds of women who were married or in union reported that their partner was positive. Of all women in union, approximately one in five at baseline (21.9%) and somewhat fewer (17.3%) at endline did not know their partner’s status (Table 29). At endline, the percentage of women whose partners’ status was unknown was higher among women living with a partner than among married women (26.6% vs. 13.2%), and higher among women whose partners did not know their status than among women whose partners knew their status (90% vs. 14.8%). The proportion whose partner’s status was unknown decreased with time since diagnosis. These same patterns were also seen at baseline. Table 29. Partner’s HIV status at endline, by characteristic, among women who are married or living with a partner Positive Marital Status Married Living with a man Time since diagnosis* Within past year 1 year 2-3 years 4-5 years 5+ years Don’t know Partner knows her status Yes No Total Baseline Negative Unknown Number of women Positive Endline Negative Unknown Number of women 73.6 57.7 6.7 9.4 16.8 30.4 477 286 77.3 56.4 8.2 13.8 13.2 26.6 613 275 56.3 53.3 74.4 65.4 71.8 100.0 5.8 3.7 6.8 8.9 13.0 0.0 36.9 28.4 16.7 23.4 12.2 0.0 103 109 234 179 131 3 56.8 63.9 73.2 76.9 71.2 100.0 14.8 6.5 8.8 8.2 12.8 0.0 27.3 28.7 16.0 14.4 12.4 0.0 88 108 250 208 226 5 70.8 6.1 67.6 8.0 3.0 7.7 18.7 90.9 21.9 726 33 763 73.9 6.7 70.8 10.4 3.3 9.9 14.8 90.0 17.3 829 30 888 38 | Pathfinder international Effect of Exposures on Outcomes Women had the potential to be exposed to project interventions in two ways, through contact with providers at the participating facilities who talked to the woman about her fertility intentions and through contact with community support agents in their community. As shown in Figure 11, almost 80% of the women were exposed through at least one source. More than half of those women (43.3% of all women), were exposed through both a facility-based provider and a community support agent. Figure 11. Exposure to Arise interventions among women attending ART or pre-ART services 18.3% None 43.3% 6.6% Group only Facility only Both 31.7% Exposure to the Arise interventions varied with the characteristics of the clients (Table 30). A larger proportion of married women (85.3%) had been exposed to interventions than had either single women (78.6%) or women living with their partners (80.4%). Women with more education were also somewhat more likely to have been exposed, with 83% of women with upper primary or more education exposed compared to 80% of women with lower primary or no education. Arise: endline survey results and baseline comparison | 39 Table 30. Exposure to Arise project interventions by background characteristics Type of exposure Background characteristic None Group only: Heard about FP from an HIV support group in the past 6 months Facility only: HIV provider talked about desire for children Both Any exposure Number of women Age 15–19 20–24 25–29 30–34 35–39 40–44 45–49 Marital status Married Living together Not living with a partner Education Level No education Lower primary Upper primary Secondary or higher All women 21.6 26.6 19.0 16.6 16.0 15.7 21.1 8.1 4.7 6.6 5.6 6.1 9.4 8.9 18.9 25.0 33.1 36.3 31.0 34.6 25.6 51.4 43.8 41.3 41.6 47.0 40.3 44.4 78.4 73.5 81.0 83.5 84.1 84.3 78.9 36 133 284 291 227 172 91 14.7 19.6 6.3 4.2 30.4 37.4 48.6 38.8 85.3 80.4 613 275 21.4 8.5 29.5 40.6 78.6 346 19.9 20.1 16.7 17.4 18.4 6.4 7.3 6.5 6.3 6.6 33.8 31.6 30.3 32.1 31.7 39.9 41.0 46.5 44.2 43.3 80.1 79.9 83.3 82.6 81.6 257 344 440 193 1,234 To further explore project effects, we looked at whether key outcomes related to exposure to project interventions using logistic regression. In particular, we looked at whether contraceptive use and unmet need for family planning were related to having discussed fertility desires with a provider, having heard about family planning from a support group in the past 6 months, and being exposed via either means (i.e., had discussed fertility desires with a health care provider OR from had heard about family planning from a support group). We also looked at the relationship between these exposures and demand for family planning. We assessed potential confounders, assessing variables that are theoretically related to the outcome, and included those in the model that had a p-value of 0.15 or less. With regard to contraceptive use, women who had discussed their fertility desires with a provider were 40% more likely to be using contraception after adjusting for marital status, education and number of living children (Table 31). Contraceptive use was also significantly related to educational attainment with women who had attended upper primary school being 40% more likely to use contraception than those with no education and women with secondary or higher education being more than twice as likely to use contraception. Having heard about family planning from an HIV support group had a stronger effect, with women who did being almost twice as likely (Adjusted OR 1.9, 95% CI: 1.4, 2.5) to be using contraception. Overall, women who had been exposed to one or both interventions were more than three times (3.3, 1.96 5.6), as likely to be using contraception. In all of these models, there was a slight increase in the odds of contraceptive use for each additional living child. 40 | Pathfinder international Table 31. Odds of contraceptive use by key exposures at endline Un-adjusted Model Discussed fertility desires with a provider Adjusted Model Discussed fertility desires with a provider Marital status Married Living together Not living with a partner Education No education Lower primary Upper primary Secondary or higher Number of living children Un-adjusted Model Heard about FP from an HIV support group Adjusted Model Heard about FP from an HIV support group Marital status Married Living together Unmarried Education No education Lower primary Upper primary Secondary or higher Number of living children Un-adjusted Model Talked to a provider about fertility desires or heard about family planning for an HIV support group or exposed to both Adjusted Model Talked to a provider about fertility desires OR heard about family planning for an HIV support group OR exposed to both Marital status Married Living together Unmarried Education No education Lower primary Upper primary Secondary or higher Number of living children OR (95% CI) p-value 1.4 (1.1, 1.9) 0.02 1.4 (1.0, 1.9) 0.04 1.0 1.1 (0.8, 1.5) 0.4 (0.3,0.5) 0.40 0.00 1.0 1.3 (0.9, 1.8) 1.4 (1.0, 1.9) 2.1 (1.4, 3.2) 1.2 (1.1, 1.2) 0.14 0.05 0.00 0.00 2.1 (1.6, 2.7) 0.00 1.9 (1.4, 2.5) 0.00 1.0 1.1 (0.8, 1.5) 0.4 (0.3, 0.5) 0.45 0.00 1.0 1.3 (0.9, 1.8) 1.4 (1.0, 1.9) 2.0 (1.3, 3.0) 1.1 (1.1, 1.2) 0.12 0.06 0.00 0.00 3.8 (2.2, 6.5) 0.00 3.3 (1.9, 5.6) 0.00 1.0 1.2 (0.9, 1.6) 0.4 (0.3, 0.5) 0.30 0.00 1.0 1.4 (1.0, 1.9) 1.4 (1.0, 1.9) 2.1 (1.4, 3.2) 1.1 (1.1, 1.2) 0.08 0.05 0.00 0.00 A similar pattern was seen in terms of overall demand for family planning (Table 32) although the relationships were not as strong. Women whom who had talked to a provider were 40% more likely to have demand for contraception, those who attended support groups were 60% more likely to have demand, and those who had any exposure (to one or both interventions) were over twice as likely (adjusted OR 2.3, 95% C.I. 1.5, 3.7) to have demand for contraception. Arise: endline survey results and baseline comparison | 41 Table 32. Odds of having demand for family planning by key exposures at endline Un-adjusted Model Discussed fertility desires with a provider Adjusted Model Discussed fertility desires with a provider Marital status Married Living together Not living with a partner Education No education Lower primary Upper primary Secondary or higher Number of living children Un-adjusted Model Heard about FP from an HIV support group Adjusted Model Heard about FP from an HIV support group Marital status Married Living together Not living with a partner Education No education Lower primary Upper primary Secondary or higher Number of living children Un-adjusted Model Talked to a provider about fertility desires OR heard about family planning for an HIV support group OR exposed to both Adjusted Model Talked to a provider about fertility desires OR heard about family planning for an HIV support group OR exposed to both Marital status Married Living together Not living with a partner Education No education Lower primary Upper primary Secondary or higher Number of living children OR (95% CI) p-value 1.5 (1.1, 2.0) 0.02 1.4 (1.1, 2.0) 0.02 1.0 1.2 (0.8, 1.6) 0.7 (0.5, 0.9) 0.37 0.01 1.0 1.4 (1.0, 2.0) 1.3 (1.0, 1.9) 2.3 (1.5, 3.6) 1.1 (1.1, 1.2) 0.04 0.09 0.00 0.00 1.7 (1.3, 2.3) 0.00 1.6 (1.2, 2.1) 0.00 1.0 1.1 (0.8, 1.5) 0.7 (0.5, 0.9) 0.50 0.00 1.0 1.4 (1.0, 2.0) 1.3 (0.9, 1.8) 2.1 (1.4, 3.3) 1.1 (1.1, 1.2) 0.05 0.12 0.00 0.00 2.7 (1.7, 4.2) 0.00 2.3 (1.5, 3.7) 0.00 1.0 1.2 (0.8, 1.6) 0.7 (0.5, 0.9) 0.37 0.01 1.0 1.5 (1.0, 2.1) 1.3 (1.0, 1.9) 2.2 (1.5, 3.5) 1.1 (1.1, 1.2) 0.03 0.09 0.00 0.00 As expected, exposure to project interventions was associated with a decreased likelihood of having unmet need for contraception (Table 33). Women who talked to a provider were no less likely to have unmet need compared to those who had not discussed family planning, while those who heard about family planning from a support group were 60% less likely to have unmet need. After controlling for age, marital status and number of living children, those who were exposed through either or both sources were 70% less likely to have unmet need relative to women who had neither discussed family planning with a provider nor heard about family planning from a support group,. Unlike the other models, inclusion of education did not affect the relationship between exposure to project interventions and unmet need. 42 | Pathfinder international Table 33. Odds of having unmet need for contraception by key exposures at endline Un-adjusted Model Discussed family planning with a provider Adjusted Model Discussed family planning with a provider Age Marital status Married Living together Not living with a partner Number of living children Un-adjusted Model Heard about FP from an HIV support group Adjusted Model Discussed family planning with a provider Age Marital status Married Living together Not living with a partner Number of living children Un-adjusted Model Talked to a provider about fertility desires OR heard about family planning for an HIV support group OR exposed to both Adjusted Model Talked to a provider about fertility desires OR heard about family planning for an HIV support group OR exposed to both Age Marital status Married Living together Not living with a partner Number of living children OR (95% CI) p-value 0.9 (0.6, 1.3) 0.47 0.9 (0.6, 1.4) 1.0 (0.9, 1.0) 0.70 0.02 1.0 1.1 (0.7, 1.6) 2.5 (1.7, 3.6) 1.0 (0.9, 1.1) 0.77 0.00 0.68 0.4 (0.3, 0.5) 0.00 0.4 (0.3, 0.6) 1.0 (0.9, 1.0) 0.00 0.05 1.0 1.1 (0.7, 1.6) 2.4 (1.6, 3.5) 1.0 (0.9, 1.1) 0.77 0.00 0.99 0.2 (0.1, 0.4) 0.00 0.3 (0.1, 0.5) 0.00 1.0 (0.9, 1.0) 0.06 1.0 1.0 (0.7, 1.5) 2.4 (1.7, 3.5) 1.0 (0.9, 1.1) 1.00 0.00 0.89 Arise: endline survey results and baseline comparison | 43 Section 3. Discussion and Conclusions The respondents at baseline and endline were largely quite similar but they differed with regard to marital status, timing of last sex and fertility desires. More specifically, a larger proportion of the endline respondents was married and a smaller proportion was not in union than at baseline. Timing of last sex, which was related to marital status (p<0.01), also differed. A higher percentage of women at endline reported sex in the past year and fewer reported last sex more than 1 year before the survey. The percentage of women who said they wanted to wait 2 or more years before having a child was higher at endline than at baseline and the percentage that said they wanted to have a child within 2 years decreased. Finally, the time since diagnosis had increased as had time on treatment, likely because of the elapsed time between baseline and endline. In general, exposure to the project interventions increased between baseline and endline. The percentage of women that had participated in support groups in the past 6 months increased from 26.1% to 43.1% and the percentage that had received information from a support group increased from 50% to 74%. This is likely the result of the increased activity by NACWOLA which included both community dialogues and outreach visits. In addition, the percentage of women with a birth in the past 2 years that had received antenatal care increased from 85% to 94%. The results highlight the effect of providing information about family planning through support groups in the community. Women who had received information from a support group had higher odds of having a demand for family planning and were also more likely to be using contraception than women who had not received information from a support group. This highlights the importance of linking interventions in facilities with community based interventions. The survey results also suggest that service delivery improved in a manner consistent with the project aims and training. Significantly more women who had a birth in the 2 years before the endline reported receiving information during and after their pregnancy than women interviewed at baseline. A smaller, but also significant increase was seen in the content of family planning counseling for ART and pre-ART clients. The percentage of women who discussed family planning with their provider was unchanged from baseline to endline, but the percentage of women who had discussed their fertility desires with their HIV provider increased, as did the percentage that had discussed special considerations for women living with HIV. This suggests that although the high levels of counseling coverage did not change, the quality of counseling did. The results also show that women who discuss their fertility desires with a provider are more likely to both have demand for family planning and use contraception. Reaching the 20% of women who have not yet discussed their fertility desires with their providers will be important to further increasing use of family planning by women living with HIV. In addition, the results suggest better integration of services, given that 80.7% of respondents at endline said they had received family planning from an HIV site compared to just 69% at baseline. The results do, however, suggest that women who were married or living with a partner were more likely to receive FP counseling as part of HIV care and treatment, and so were more likely to benefit from integration. In terms of contraceptive use, integration of services (a provider discussing family planning) was also related to contraceptive use. Most importantly, the survey results show a clear improvement in the outcomes expected from the project. Contraceptive prevalence increased by 16% and dual method use increased by 8%. Unmet need for family planning decreased but to a small degree (from 17.0% to 14.8%). As in the baseline, the levels of unmet need in this survey were substantially lower than in past studies in Uganda and unmet need was lower than the 34% found in the general population of women of reproductive age (Uganda Bureau of Statistics and ICF International, 2012). That said, there remains substantial room for improvement in condom use by women with HIV, given that only 50% of women reported condom use at last sex and the percentage was lower among women not living with a partner. Another important finding is that use of contraception is related to who makes the decision about whether to use contraception; women who were using contraception were more likely to say that they had made 44 | Pathfinder international the decision about contraceptive use with their partner. As noted above, the results also suggest some areas for improvement. In particular, the proportion of women reached with postpartum family planning information was low and could be improved. In Uganda, just 33% of women receive postnatal care within 2 days of birth (UBOS 2012) but many women take their babies for well-baby care within the first 6 weeks of birth. These visits provide a way to reach more postpartum women with information about family planning. In order to address the issue of postpartum FP, it may be necessary to address the commonly held belief that women who were recently pregnant cannot become pregnant again soon. It is likely that this belief is found among both community members and providers. Community groups could also be trained to identify pregnant or postpartum women so that they can ensure that they receive information during the postpartum period. Services could also be targeted to more effectively reach women most in need, particularly less educated women and women not living with a partner, a group that currently lags behind women who are married or living with a man in terms of access to and use of contraception. Taken together the improvements in the proportion of clients receiving integrated services either in facilities or in the community, the improvements in quality of care and the improvement in outcomes suggest that Arise likely contributed to improved results. It shows that concerted efforts to improve access to family planning information and services for women living with HIV can increase use of contraception and, therefore, prevent HIV infections by preventing unintended pregnancies among these women. Key Messages Women who received information from a community support group were more likely to use contraception than those who had not received information in this way, highlighting the importance of linking facility interventions to community-based ones. At endline, the percentage of women who received information about family planning during antenatal care and postpartum increased, but fewer women reported receiving information during the postpartum period than during pregnancy. This suggests a continuing gap in service provision, despite substantial improvement over the two years of project intervention. Dual method use increased from baseline, but was no more common among women in discordant couples than in concordant positive couples, and partner testing did not significantly increase. HIV positive women still practiced risky sexual behaviors, as evidenced by only half who were sexually active reporting using a condom at last sex. These findings suggest that efforts to increase male involvement need to be more vigorous, in order to increase disclosure and enhance condom use. Concerted efforts to improve access to family planning information and services for women living with HIV by integrating them into other services can increase contraceptive use, and as a result prevent unintended pregnancies and new HIV infections. Arise: endline survey results and baseline comparison | 45 References Annan, J., C. Blattman, et al. (2008). “The State of Female Youth in Northern Uganda: Findings From The Survey Of War-Affected Youth (SWAY)”. SWAY: Uganda. Birungi, H., F. Obare, et al. (2009). 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"Quality of life for children and adolescents: impact of HIV infection and antiretroviral treatment." Pediatrics 117(2): 273-83. Ministry of Health (MOH) [Uganda] and ORC Macro (2006). Uganda HIV/AIDS Sero-behavioural Survey 2004-2005. Calverton, Maryland, USA, Ministry of Health and ORC Macro. Muyinda, H., J. Seeley, et al. (1997.) “Social aspects of AIDS-related stigma in rural Uganda” Health & Place 3(3): 143-47. Nakayiwa, S., B. Abang, et al. (2006). "Desire for children and pregnancy risk behavior among HIV-infected men and women in Uganda." AIDS Behav 10(4 Suppl): S95-104. Oliveras, E. and Makumbi, F. (2013). “Addressing unmet need for contraception among HIV-positive women.” Research and Evaluation Working Paper Series. Pathfinder International, Watertown, MA. Peltzer, K., L. W. Chao, et al. (2009). "Family planning among HIV-positive and negative prevention of mother to child transmission (PMTCT) clients in a resource poor setting in South Africa." AIDS Behav 13(5): 973-9. Pool, R., S. Nyanzi, et al. (2001). "Attitudes to voluntary counselling and testing for HIV among pregnant women in rural south-west Uganda." AIDS Care 13(5): 605-15. Quick Investigation of Quality (QIQ) A User's Guide for Monitoring Quality of Care in Family Planning MEASURE Evaluation Manual Series, No. 2. , MEASURE Evauation. Carolina Population Center, University of North Carolina at Chapel Hill. February 2001. Reynolds, H. W., B. Janowitz, et al. (2006). "The value of contraception to prevent perinatal HIV transmission." Sex Transm Dis 33(6): 350-6. Reynolds, H. W., B. Janowitz, et al. (2008). "Contraception to prevent HIV-positive births: current contribution and potential cost savings in PEPFAR countries." Sex Transm Infect 84 Suppl 2: ii4953. Ringheim, K., M. Yeakey, et al. (2009). "Supporting the Integration of Family Planning and HIV Services " Policy Brief September. Spaulding, A. B., D. B. Brickley, et al. (2009). 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Return Livelihood Trends in Northern Uganda. http://www.fafo.no/ais/africa/uganda/ReturnLivelihoodsUganda2007.pdf Arise: endline survey results and baseline comparison | 47 Valdiserri, R. O. (2002). "HIV/AIDS stigma: an impediment to public health." Am J Public Health 92(3): 341-2. Wabwire-Mangen, F., Odiit, M., Kirungi,W., Kisitu, D., and J. Wanyama. 2009. Uganda HIV modes of transmission and prevention response analysis. Kampala: Uganda National AIDS Commission. Wilcher, R. and W. Cates (2009). "Reproductive choices for women with HIV." Bull World Health Organ 87(11): 833-9. Wolfe, W., Weiser, S., Leiter, K., et al. (2008). The Impact of Universal Access to Antiretroviral Therapy on HIV Stigma in Botswana. American Journal of Public Health 98(10): 1865-1871. World Health Organization (2003). Strategic approaches to the prevention of HIV infection in infants: report of a WHO meeting, Morges, Switzerland, 20–22 March 2002. Geneva, WHO. World Health Organization (2006). Glion consultation on strengthening the linkages between reproductive health and HIV/AIDS. Geneva, WHO. World Health Organization (2010). PMTCT strategic vision 2010–2015: preventing mother-to-child transmission of HIV to reach the UNGASS and Millennium Development Goals. Geneva, WHO. 48 | Pathfinder international Appendix A: Endline Survey Questionnaire Pathfinder International, Uganda Addressing Unmet Need for Contraception among HIV-Positive Women 1. IDENTIFICATION No. QUESTIONS AND FILTERS CODING CATEGORIES 101 SERVICE DELIVERY SITE OR CLUB/GROUP (all selected sites will be coded prior to interview) 102 DISTRICT CODE 103 SUB-COUNTY NAME 104 URBAN/RURAL 105 Interviewer ID 106 RESULT OF INTERVIEW 107 Date of Interview __________________________ URBAN ....................................... 1 RURAL ........................................ 2 d Result codes: 1 Completed 2 Refused SKIP d 3 Partly completed m m y y Y y 4 Not eligible Arise: endline survey results and baseline comparison | 49 2. BACKGROUND CHARACTERISTICS No. 201 QUESTIONS AND FILTERS RECORD THE START TIME. USE 24 HOUR CLOCK. 202 In what month and year were you born? CODING CATEGORIES SKIP HOUR..................................... MINUTES ............................... MONTH.................. DON’T KNOW MONTH ................ 98 YEAR ...................... DON’T KNOW YEAR ..... ........... 9998 203 How old were you at your last birthday? AGE IN COMPLETED YEARS 204 Have you ever attended school? YES ..............................................................1 NO..............................................................2 205 What is the highest level of school you attended? LOWER PRIMARY .................................1 UPPER PRIMARY ....................................2 ‘O’ LEVEL ..................................................3 ‘A’ LEVEL...................................................4 TERTIARY ................................................5 UNIVERSITY ............................................6 TECHNICAL/VOCATIONAL ............7 206 What is your religion? CATHOLIC ..............................................1 PROTESTANT ........................................2 MUSLIM .....................................................3 PENTECOSTAL ......................................4 SDA ............................................................5 ORTHODOX..........................................6 JEHOVA’S WITNESS .............................7 OTHERS ....................................................8 50 | Pathfinder international GOTO 206 3. REPRODUCTION No. 301 QUESTIONS AND FILTERS Now I would like to ask about all births you have had during your life. Have you ever given birth? 302 To how many children have you given birth? 303 Do you have any sons or daughters to whom you have given birth who are now living with you? 304 How many sons live with you? And how many daughters live with you? CODING CATEGORIES YES ............................................................. 1 NO ............................................................. 2 MALE FEMALE SKIP GOTO 401 TOTAL YES ............................................................. 1 NO ............................................................. 2 GOTO 305 SONS AT HOME ................ DAUGHTERS AT HOME . IF NONE, RECORD ‘00’. 305 306 Do you have any sons or daughters to whom you have given birth who are alive but do not live with you? How many sons are alive but do not live with you? YES ............................................................. 1 NO ............................................................. 2 GOTO 307 SONS ELSEWHERE.............. DAUGHTERS ELSEWHERE How many daughters are alive but do not live with you? IF NONE, RECORD ‘00’. 307 In what month and year was your last child born? MONTH.................. DON’T KNOW MONTH ................ 98 YEAR ...................... DON’T KNOW YEAR ..... ........... 9998 308 309 Did you ever go for antenatal care during this pregnancy? YES ............................................................. 1 NO ........................................................... 2 Whom did you see for antenatal care? HEALTH PERSONNEL DOCTOR................................................A NURSE/MIDWIFE ................................. B MEDICAL ASSISTANT/ CLINICAL OFFICER ............................................. C NURSING AIDE ................................... D GOTO 312 OTHER PERSON TRADITIONAL BIRTH ATTENDANT .................................... E OTHER(Specify) __________________________ X Arise: endline survey results and baseline comparison | 51 No. QUESTIONS AND FILTERS 310 Where did you receive antenatal care for this pregnancy? Anywhere else? PROBE TO IDENTIFY TYPE(S) OF SOURCE(S) AND CIRCLE THE APPROPIRATE CODE(S). IF UNABLE TO DETERMINE IF A HOSPITAL, HEALTH CENTER, OR CLINIC IS PUBLIC OR PRIVATE, WRITE THE NAME OF THE PLACE. CODING CATEGORIES SKIP PUBLIC SECTOR GOVT. HOSPITAL ..........................A GOVT. HEALTH CENTER ........... B GOVT. HEALTH POST ................ C OTHER PUBLIC ___________ D (Specify) PRIVATE MED. SECTOR PVT. HOSPITAL/CLINIC ............... E OTHER PRIVATE MEDICAL (Specify) __________________ F OTHER (Specify) _____________ X (NAME OF PLACE(S)) 311 Were you offered an HIV test during the pregnancy for your last born child? YES ............................................................ 1 NO ............................................................ 2 312 Did you take an HIV test during the pregnancy for your last born child? YES ............................................................ 1 NO ............................................................ 2 GOTO 315 Did you receive your results? YES ............................................................ 1 NO ............................................................ 2 GOTO 315 314 What was your result? POSITIVE…………………………..1 NEGATIVE .............................................. 2 DON’T WANT TO TELL ............…..3 315 Did you receive any information during your pregnancy about HIV services for expectant mothers? YES ............................................................ 1 NO ............................................................ 2 316 Did you receive any information during your pregnancy about using a family planning method after giving birth? YES ............................................................ 1 NO ............................................................ 2 317 Within the first 6 weeks after the birth, did a health provider or community health worker talk to you about starting a family planning method? YES ............................................................ 1 NO ............................................................ 2 318 At the time that you became pregnant with your last child, did you want to get pregnant at that time? YES ............................................................ 1 NO ............................................................ 2 319 Did you want to have a baby later on, or did you not want any (more) children? LATER ...................................................... 1 NO MORE .............................................. 2 320 Has your menstrual period returned since the birth of your last child? YES ............................................................ 1 NO ............................................................ 2 313 52 | Pathfinder international GOTO 320 4. CONTRACEPTION No. QUESTIONS AND FILTERS 401 Are you currently doing something or using any method to delay or avoid getting pregnant? YES .......................................................................1 NO .......................................................................2 GOTO 403 402 Can you tell me why you are not using a method? NOT MARRIED .............................................. A TRYING TO BECOME PREGNANT ...... B ALL GOTO 415 Any other reasons? CIRCLE ALL MENTIONED. CODING CATEGORIES SKIP FERTILITY-RELATED REASONS NOT HAVING SEX ....................................... C INFREQUENT SEX ........................................D MENOPAUSAL/HYSTERECTOMY ............E CAN’T GET PREGNANT ............................. F NOT MENSTRUATED SINCE LAST BIRTH .............................................................................G BREASTFEEDING ...........................................H FATALISTIC ....................................................... I OPPOSITION TO USE RESPONDENT OPPOSED ............................ J HUSBAND/PARTNER OPPOSED ............ K OTHERS OPPOSED ....................................... L RELIGIOUS PROHIBITION ....................... M LACK OF KNOWLEDGE KNOWS NO METHOD ............................. N KNOWS NO SOURCE ............................... O METHOD-RELATED REASONS DRUG INTERACTIONS ..............................P HEALTH CONCERNS................................. Q FEAR OF SIDE EFFECTS .............................. R LACK OF ACCESS/TOO FAR .................... S NOT AVAILABLE ......................................... T COSTS TOO MUCH .................................... U INCONVENIENT TO USE .......................... V INTERFERES WITH BODY’S NORMAL PROCESSES .................................................... W OTHER (Specify) _________________ X DON’T KNOW .............................................. Z 403 Which method are you using? CIRCLE ALL MENTIONED. 404 Current Method. ENTER THE FIRST METHOD LISTED, NOT THE FIRST MENTIONED. FEMALE STERILIZATION............................ A MALE STERILIZATION ................................ B IUD ..................................................................... C IMPLANTS ........................................................D INJECTIBLES .....................................................E PILL ..................................................................... F CONDOM........................................................G FEMALE CONDOM ......................................H DIAPHRAGM ..................................................... I FOAM/JELLY ...................................................... J LACTATIONAL AMEN. METHOD ...................................................... K RHYTHM METHOD ...................................... L WITHDRAWAL ............................................ M OTHER (Specify) _________________ X ________________________________ Arise: endline survey results and baseline comparison | 53 No. QUESTIONS AND FILTERS 405 Since what month and year have you been using (CURRENT METHOD) without stopping? PROBE: For how long have you been using this method without stopping? CODING CATEGORIES MONTH.................. DON’T KNOW MONTH ................ 98 YEAR ...................... DON’T KNOW YEAR ..... ........... 9998 406 LOOK AT Q403. IS THE WOMAN USING ONLY CONDOMS? DO NOT ASK HER THIS QUESTION. YES .......................................................................1 NO .......................................................................2 407 Are you currently using condoms and another method of family planning? YES .......................................................................1 NO .......................................................................2 If yes, what is the main reason you are using both condoms and a FP method? AVOID INFECTION/TRANMISSION AND PREVENT PREGNANCY ..............................1 AVOID INFECTION ......................................2 AVOID HIV INFECTION ............................3 PREVENT PREGNANCY ..............................4 PREVENT HIV TRANSMISSION .................5 408 CIRCLE ONLY ONE RESPONSE. SKIP GOTO 411 GOTO 411 OTHER (Specify) _________________ 6 DON’T KNOW ...............................................8 409 410 Have you had any challenges/problems with using both condoms and a FP method? YES .......................................................................1 NO .......................................................................2 If yes, what challenges/problems? CONSISTENT USE DIFFICULT ..................1 OPPOSITION FROM PARTNER ................2 CONDOMS ARE SOMETIMES UNAVAILABLE ................................................3 OTHER (Specify) _________________ 6 411 Last time you or your partner obtained the method you are currently using, where did you get it? IF UNABLE TO DETERMINE IF HOSPITAL, HEALTH CENTER OR CLINIC IS PUBLIC OR PRIVATE MEDICAL, WRITE THE NAME OF THE PLACE. (NAME OF PLACE) PUBLIC SECTOR GOVT. HOSPITAL ....................................... 11 GOVT. HEALTH CENTER ........................ 12 FAMILY PLANNING CLINIC ................... 13 OUTREACH .................................................. 14 GOVT COMMUNITY BASED DISTRIBUTOR .......................................... 15 OTHER PUBLIC (Specify) _________ 16 PRIVATE MEDICAL SECTOR PRIVATE HOSPTIAL/CLINIC ................... 21 PHARMACY/DRUG SHOP ....................... 22 PRIVATE DOCTOR/NURSE/MIDWIFE 23 OUTREACH .................................................. 24 NGO COMMUNITY BASED DISTRIBUTOR .......................................... 25 OTHER PRIVATE MEDICAL (Specify) ______________ 26 OTHER SOURCE SHOP................................................................ 31 RELIGIOUS INSTITUTION ....................... 32 FRIEND/RELATIVE....................................... 33 OTHER (Specify)............................................ 96 412 Was this an HIV service point? 54 | Pathfinder international YES .......................................................................1 NO .......................................................................2 GOTO 411 No. 413 QUESTIONS AND FILTERS Did the provider who gave you the method know your HIV status? CODING CATEGORIES SKIP YES .......................................................................1 NO .......................................................................2 PROBE: Did you disclose your HIV status? 414 Does your husband/partner know that you are using a method of family planning? YES .......................................................................1 NO .......................................................................2 DON’T KNOW ...............................................8 415 Does your husband/partner support you in using method of family planning? YES .......................................................................1 NO .......................................................................2 DON’T KNOW ...............................................8 416 Would you say that the decision about whether or not to use contraception was mainly your decision, mainly your husband’s/partner’s decision, or did you both decide together? MAINLY RESPONDENT ...............................1 MAINLY HUSBAND/PARTNER .................2 JOINT DECISION ...........................................3 417 How often have you talked with your husband/partner about Family Planning in the past year? NEVER ................................................................1 ONCE OR TWICE .........................................2 MORE OFTEN..................................................3 418 Have you ever used anything or tried in any way to delay or avoid getting pregnant? YES .......................................................................1 NO .......................................................................2 OTHER (Specify) _________________ 6 5. CURRENT PREGNANCY No. QUESTIONS AND FILTERS CODING CATEGORIES 501 Are you pregnant now? YES....................................................................... 1 NO ..................................................................... 2 UNSURE ........................................................... 8 502 Do you think you are physically able to get pregnant at this time? YES........................................................................ 1 NO ...................................................................... 2 UNSURE ........................................................... 8 503 Were you using anything or trying in any way to delay or avoid getting pregnant at the time that you became pregnant? YES........................................................................ 1 NO ..................................................................... 2 504 Are you currently receiving ART to prevent transmission of HIV to your child? YES....................................................................... 1 NO ..................................................................... 2 UNSURE ........................................................... 8 505 When you got pregnant, did you want to get pregnant at that time? YES....................................................................... 1 NO ..................................................................... 2 506 Did you want to have a baby later on or did you not want any (more) children? LATER ................................................................ 1 NO MORE ........................................................ 2 507 After the birth of the child you are expecting now, would you like to have another child or would you prefer not to have any more children? HAVE (A/ANOTHER) CHILD .................... 1 NO MORE/NONE ......................................... 2 UNDERCIDED/DON’T KNOW .............. 8 SKIP GOTO 503 ALL WOMEN GOTO 601 GOTO 507 GOTO 701 GOTO 701 Arise: endline survey results and baseline comparison | 55 No. 508 QUESTIONS AND FILTERS After the birth of the child you are expecting now, how long would you like to wait before the birth of another child? CODING CATEGORIES MONTHS ................................... 1 YEARS ......................................... 2 SOON/NOW...............................................993 AFTER MARRIAGE.....................................995 OTHER (Specify) ________________ 996 DON’T KNOW ..........................................998 SKIP ALL WOMEN GOTO 701 ALL WOMEN GOTO 701 6. FERTILITY PREFERENCES (ONLY FOR NON-PREGNANT WOMEN) No. QUESTIONS AND FILTERS 601 Now I have some questions about the future. Would you like to have (a/another) child, or would you prefer not to have any (MORE) children? 602 How long would you like to wait from now before the birth of (a/another) child? CODING CATEGORIES HAVE (A/ANOTHER) CHILD ......................1 NO MORE/NONE ...........................................2 UNDECIDED/DON’T KNOW....................8 SKIP GOTO 701 GOTO 701 MONTHS .................................... 1 YEARS .......................................... 2 SOON/NOW ............................................... 993 AFTER MARRIAGE ..................................... 994 OTHER (Specify) ________________996 DON’T KNOW........................................... 998 7. MARRIAGE AND SEXUAL ACTIVITY No. QUESTIONS AND FILTERS CODING CATEGORIES 701 Are you currently married or living together with a man as if married? YES, CURRENLTY MARRIED ......................1 YES, LIVING WITH A MAN ........................2 NO, NOT IN UNION ...................................3 702 Have you ever been married or lived together with a man as if married? YES, FORMERLY MARRIED .........................1 YES, LIVED WITH A MAN ...........................2 NO .......................................................................3 703 What is your marital status now: are you widowed, divorced, or separated? WIDOWED ......................................................1 DIVORCED .......................................................2 SEPARATED ......................................................3 704 Is your husband/partner living with you now or is he staying elsewhere? LIVING HERE....................................................1 STAYING ELSEWHERE .................................2 705 Now I would like to ask you about your (first) (husband/partner). In what month and year did you start living with him? SKIP GOTO 704 GOTO 704 GOTO 714 GOTO 714 ALL GOTO 714 MONTH.................. DON’T KNOW MONTH ................ 98 YEAR ...................... DON’T KNOW YEAR ..... ........... 9998 706 Has your husband/partner attended HIV counselling with you since your diagnosis? 56 | Pathfinder international YES .......................................................................1 NO .......................................................................2 GOTO 708 No. QUESTIONS AND FILTERS CODING CATEGORIES SKIP 707 If not, why not? NEGATIVE .........................................................1 STIGMA/DISCLOSURE CONCERNS .......2 LIVING ELSEWHERE......................................3 TOO BUSY ........................................................4 DENIAL ..............................................................5 OTHER (Specify) _________________ 9 708 Does your husband/partner know your HIV status? YES .......................................................................1 NO .......................................................................2 709 Has your husband/partner ever tested for HIV? YES .......................................................................1 NO .......................................................................2 DON’T KNOW ...............................................8 GOTO 714 GOTO 714 710 Do you know if he received the results of his last test? YES .......................................................................1 NO .......................................................................2 DON’T KNOW/REMEMBER .......................8 GOTO 714 GOTO 714 Do you know your husband/partner’s HIV status? YES .......................................................................1 NO .......................................................................2 GOTO 714 712 What is your husband/partner’s HIV status? HIV-POSITIVE ...................................................1 HIV NEGATIVE ................................................2 DO NOT WANT TO TELL.........................3 713 Did your husband/partner tell you of his HIV-test results? YES .......................................................................1 NO .......................................................................2 714 When was the last time you had sexual intercourse? NEVER HAD SEX ....................................... 990 DO NOT WANT TO TELL.................... 997 DON’T REMEMBER................................... 998 711 IF LESS THAN 12 MONTHS, ANSWER MUST BE RECORDED IN DAYS, WEEKS OR MONTHS. IF 12 MONTHS (ONE YEAR) OR MORE, ANSWER MUST BE RECORDED IN YEARS. GOTO 801 GOTO 801 GOTO 801 DAYS AGO ............................. 1 WEEKS AGO .......................... 2 MONTHS AGO ..................... 3 YEARS AGO............................ 4 715 The last time you had sexual intercourse was a condom used? YES .......................................................................1 NO .......................................................................2 716 What is your relationship to the man with whom you last had sexual intercourse? HUSBAND.........................................................1 COHABITING PARTNER ............................2 BOYFRIEND .....................................................3 CASUAL ACQUAINTANCE .......................4 GOTO 801 OTHER (Specify) _________________ 6 Have you had sex with any other man in the last 6 months? YES .......................................................................1 NO .......................................................................2 718 The last time you had sexual intercourse with this other man, was a condom used? YES .......................................................................1 NO .......................................................................2 719 What is your relationship to this man? HUSBAND.........................................................1 COHABITING PARTNER ............................2 BOYFRIEND .....................................................3 CASUAL ACQUAINTANCE .......................4 717 GOTO 722 OTHER (Specify) _________________ 6 720 Other than these two men, have you had sex with any other man in the last 6 months? YES .......................................................................1 NO .......................................................................2 GOTO 722 Arise: endline survey results and baseline comparison | 57 No. QUESTIONS AND FILTERS 721 In total, with how many different men have you had sex in the last 6 months? CODING CATEGORIES NUMBER OF PARTNERS 722 How confident do you feel that you will use a condom next time you have sex with your spouse/cohabitating partner/boyfriend? VERY CONFIDENT ........................................1 CONFIDENT ....................................................2 SOMEWHAT CONFIDENT ........................3 NOT CONFIDENT AT ALL ........................4 723 If you have sex in the future with someone who is not your spouse/cohabitating partner/boyfriend: WILL NOT HAVE SEX WITH A PERSON WHO IS NOT A SPOUSE/ COHABITATING PARTNER/BOYFRIEND .......................................................................0 VERY CONFIDENT ........................................1 CONFIDENT ....................................................2 SOMEWHAT CONFIDENT ........................3 NOT CONFIDENT AT ALL .......................4 How confident do you feel that you will use a condom next time you have sex with a man who is not your spouse/cohabitating partner/boyfriend? SKIP 8. FP/HIV INTEGRATED SERVICES No. QUESTIONS AND FILTERS 801 How long ago did you find out that you are HIV-positive? IF LESS THAN 12 MONTHS, RECORD ANSWER IN MONTHS. IF 12 MONTHS (ONE YEAR) OR MORE, RECORD ANSWER IN YEARS. 802 803 Do you currently attend meetings or receive services from an HIV support group/club or network? How long have you been a member of the group/club/network? IF LESS THAN 12 MONTHS, RECORD ANSWER IN MONTHS. IF 12 MONTHS (ONE YEAR) OR MORE, RECORD ANSWER IN YEARS. CODING CATEGORIES MONTHS ..................................... 1 YEARS............................................ 2 DON’T REMEMBER ..............888 YES ........................................................................... 1 NO ........................................................................... 2 GOTO 804 MONTHS ..................................... 1 YEARS............................................ 2 DON’T REMEMBER ..............888 804 Have you ever received information about family planning through an HIV support group/club/network? YES ........................................................................... 1 NO ........................................................................... 2 DON’T REMEMBER ............................................ 8 805 In the last 6 months have you heard anything about family planning from an HIV support group/club/network? YES ........................................................................... 1 NO ........................................................................... 2 DON’T REMEMBER ............................................ 8 806 Are you currently receiving care or treatment for HIV? YES ...................................................................... 1 NO ...................................................................... 2 58 | Pathfinder international SKIP GOTO 813 No. 807 808 QUESTIONS AND FILTERS What services are you receiving? How long have you been receiving any form of care or treatment services? IF LESS THAN 12 MONTHS, RECORD ANSWER IN MONTHS. IF 12 MONTHS (ONE YEAR) OR MORE, RECORD ANSWER IN YEARS. 809 When receiving HIV care or treatment, has a provider talked with you about whether or not you would like to have (more) children? CODING CATEGORIES a) ARVs TO PREVENT MTCT c) HOME-BASED CARE d) COTRIMOXAZOLE e) ART f) TREATMENT OF OPPORTUNISTIC INFECTIONS x) OTHER _____________ (Specify) SKIP Yes 1 No 2 1 1 1 1 2 2 2 2 1 2 MONTHS ..................................... 1 YEARS............................................ 2 DON’T REMEMBER ..............888 YES ...................................................................... 1 NO ...................................................................... 2 DON’T REMEMBER ....................................... 8 GOTO 813 GOTO 813 PROBE: Did s/he talk with you about whether you wanted to become pregnant? 810 What did the provider tell you to consider about getting pregnant as a woman living with HIV? RISK OF HIV AND STI TRANSMISSION TO PARTNER .......................................... A RISK OF TRANSMISSION TO BABY ....... B HEALTH STATUS BEFORE PREGNANCY ......................................................................C HOW TO REDUCE RISK OF TRANSMISSION TO PARTNER ....... D HOW TO REDUCE RISK OF MOTHERTO-CHILD TRANSMISSION .............. E OTHER (Specify) _________________ X 811 When receiving HIV care or treatment, has a provider talked with you about use of family planning? YES ...................................................................... 1 NO ...................................................................... 2 DON’T REMEMBER ....................................... 8 812 Did the provider talk with you about special considerations for using a contraceptive method when receiving HIV care or treatment? YES ...................................................................... 1 NO ...................................................................... 2 DON’T REMEMBER ....................................... 8 813 Can women with HIV safely use family planning? YES ...................................................................... 1 NO ...................................................................... 2 DON’T REMEMBER ....................................... 8 GOTO 813 GOTO 813 GOTO 815 GOTO 815 Arise: endline survey results and baseline comparison | 59 No. 814 QUESTIONS AND FILTERS What family planning methods can a woman with HIV use? PROBE FOR EACH METHOD LISTED (e.g., ASK: Can an HIV-positive woman use female sterilization? Can the partner of an HIV-positive use male sterilization?) 815 RECORD THE END TIME. USE 24 HOUR CLOCK. 60 | Pathfinder international CODING CATEGORIES FEMALE STERILIZATION ............................ A IUD...................................................................... B IMPLANTS ........................................................C INJECTIBLES ................................................... D PILL .................................................................... E CONDOM .........................................................F FEMALE CONDOM ..................................... G DIAPHRAGM .................................................. H FOAM/JELLY ......................................................I LACTATIONAL AMEN. METHOD ........................................................J RHYTHM METHOD...................................... K WITHDRAWAL...............................................L OTHER (Specify) _________________ X HOUR .................................... MINUTES............................... SKIP Appendix B: Survey Team Members Survey Logistics Manager Stella Ekatan Ajore Project Reproductive Health officer Florence Naiga Pathfinder International Country Director Lucy Shilingi Survey Advisor Elizabeth Oliveras Project M&E Specialist Caroline Nalwoga Ssekikubo Data Analysis and Report Writing Elizabeth Oliveras Review and Review Frederick Makumbi, Makerere University School of Public Health NACWOLA Project Officers Martina Starace – Regional Manager Onang Geoffrey – PO Lango Inyokoit Betty – PO Teso FIELD STAFF Field Supervisors Agnes Akello Francis Ojara Interviewers Kia Ketty Akao Ursula Akello Betty Irene Adongo Hellen Keller Angom Mildren Rose Lapyen Margaret Juliet Adong Jane Margaret Apiyo Milly Auma Dessuretter Apiny Florence Imalingat Veronica Igung Betty Anselah Alungat Stella Rose Data Entry Officers Suzan Aneno Sylvia Kyomuhendo Carol Ogwang Arise: endline survey results and baseline comparison | 61 Appendix C: IATT Tool for assessing unmet need for family planning among women living with HIV Core indicator 10: Unmet need for family planning (Note: This indicator is being field-tested.) Percentage of women of reproductive age attending HIV care and treatment services with unmet need for family planning What it measures Unmet need for family planning among women of reproductive age (15–49 years) living with HIV who are attending care and treatment services. It provides information on whether women living with HIV have the opportunity to control their fertility if and when they want to, thereby preventing unintended pregnancies. Rationale Preventing unintended pregnancies in women living with HIV is a critical step towards reducing mother-to-child transmission and is a core component of the international standards for a comprehensive approach to prevention of mother-to-child transmission of HIV. All women, irrespective of HIV status, need services that can help them make informed reproductive decisions and provide them with contraceptive options, if and when they are desired. By enabling women living with HIV to prevent or delay pregnancy, access 1 to these services could avert HIV infection in infants. Numerator Number of women of reproductive age living with HIV and attending HIV care and treatment services who have an unmet need for family planning at the time of the assessment and number of women who are pregnant and whose pregnancies were unwanted or mistimed Women with an unmet need for family planning are defined as all fecund, sexually 2 active women who do not want to become pregnant in the next year but are not using any family planning method. Also included are pregnant women whose pregnancies were unintended or mistimed (at the time of the assessment). Denominator Total number of women of reproductive age (15–49) living with HIV who are attending HIV care and treatment Epidemic type All Frequency Annual How to measure and measurement tools The information should be collected at HIV care and treatment sites. To calculate the indicator, information is needed about women’s fecundity, sexual activity, pregnancy status, pregnancy intentions and current contraceptive use. Such information can be collected from the answers to a series of questions that lead to one of three assessments: “No need for family planning”, “Unmet need for family planning” or “Met need for family planning”. Pregnancy status 1. Are you pregnant? (a) Yes → question 2 (b) No → question 3 Pregnancy intention/assessment of needs 2. At the time you became pregnant, did you want to become pregnant then? (a) Yes → classify as “No need for family planning” → end of questioning (b) No → classify as “Unmet need for family planning” → end of questioning 3. Would you like to have a/another child or would you prefer not to have any (more) children? 62 | Pathfinder international (a) Have a (another) child → may have need → question 4 (b) No more/none → need → question 5 (c) Can’t get pregnant (infecund) → classify as “No need for family planning” → end of questioning (d) Undecided → Need → question 5 4. How long would you like to wait from now before becoming pregnant with a/another child? (a) More than 1 year → question 5 (b) Less than 1 year → classify as “No need for family planning” → end of questioning (c) Can’t get pregnant (infecund) → classify as “No need for family planning” → end of questioning (d) Other → need unclear → question 5 (e) Do not know → need → question 5 Family planning use 5. Are you doing something or using any method to delay or avoid getting pregnant? (a) Yes → classify as “Met need” → question 6 (b) No → question 7 6. Which method(s) are you using? (Do not read response categories; classify woman’s 3 response(s) as one of the following.) (a) Female sterilization (b) Male sterilization (c) Pill (d) Intrauterine contraceptive device (e) Injectables (f) Implants (g) Condom (h) Female condom (i) Diaphragm (j) Foam/jelly (k) Lactational amenorrhoea method (l) Rhythm method (m) Withdrawal (n) Other Go to end 7. If you are not using a family planning method but want to delay or prevent a future pregnancy, can you tell me why are you not using a method? (Do not read response categories, classify women’s responses as one of the following.) (a) Cannot get pregnant → classify as “No need for family planning” (b) Menopausal → classify as “No need for family planning” (c) Has had hysterectomy → classify as “No need for family planning” (d) No sex → classify as “No need for family planning” (e) Other response → classify as “Unmet need for family planning” This indicator can be measured by routine data collection or patient exit interviews. If using exit interviews, unmet need for family planning should be monitored in a sample of nationally representative facilities representative once a year and, where possible, in an integrated manner with other, similar data collection. Standardized, systematic sampling procedures should be used in establishing the sampling frame. Aggregated Arise: endline survey results and baseline comparison | 63 national figures should be reported annually. If using routine data, individual outcomes can be summarized in patient registers or charts, and summary information can be tallied and aggregated to measure the indicator. One should establish, however, the feasibility of capturing information from the answers to the above questions during clinical care, while following recommendations for good quality sexual and reproductive health counselling. Strengths and weaknesses This indicator provides critical information for countries on both the unmet need for family planning among women living with HIV and the extent to which their family planning needs are addressed. This will show whether the integration and provision of family-planning services for women living with HIV as part of HIV care and treatment should be strengthened. As the indicator is measured in women attending HIV care and treatment only, it does not capture unmet need among women whose HIV status is unknown and among those who are not known to providers of HIV care and treatment. Family planning needs can also be assessed at other sites, such as clinics for HIV testing and counselling or antenatal care. It is impractical, however, to include information from these sites, owing to the risk for double-counting and because women attending these sites are more likely to have known about their HIV infection only recently. In addition, most women accessing antenatal care and testing and counselling who are HIV infected will not necessarily receive long-term follow-up at these antenatal care and testing and counselling sites. As more women living with HIV are enrolled in long-term care and treatment programmes, collecting the information for this indicator at care and treatment facilities will cover a larger proportion of the women targeted by the indicator. While this indicator is partly derived from demographic and health surveys, the modified questions do not directly assess sexual activity and fecundity. These can be estimated indirectly, however, from the responses to relevant questions. Please note: This indicator is being field-tested. The recommendations for use of this indicator may change after pilot testing and implementation in the field. Despite the lack of extensive testing, it is included as a core indicator because of the need to expand family planning to prevent mother-to-child transmission of HIV. Additional considerations for countries Some countries with a high prevalence of HIV have incorporated biomarkers, including HIV-test status, into demographic and health and other population-based surveys. Demographic and health surveys also measure unmet need for family planning. The indicator in this guide could be interpreted with the data from these population-based surveys, although the populations being surveyed are not comparable. In countries that have added biomarker measures for HIV, unmet need for family planning among women testing positive in demographic and health surveys can be analysed, but one cannot determine whether the HIV status was known. As demographic and health surveys are conducted every 3–5 years, the period between measurements is not sufficient for programme monitoring. The figures for unmet need in some settings might appear low because there is a low demand for family planning, partly because larger families are desired and partly because of limited information on the availability of family planning methods and services. High unmet need emerges when family planning services and supplies cannot keep up with the demand. The reasons for unmet need should, therefore, be examined in specific analyses to address both low demand (if due to insufficient information about family planning) and high demand by enhancing supply. When measuring this indicator, countries may wish to conduct periodic assessments at other service delivery points, as HIV-positive women might have received services at associated family planning units. While this indicator measures fertility intentions and unmet need for family planning specifically, countries may wish to track uptake and acceptance of family planning methods among women living with HIV through services for the prevention of motherto-child transmission of HIV, care, treatment and other services. IATT FP – Screening Tool 64 | Pathfinder international This tool is intended to be incorporated into the facility based patient file/chart in HIV care and treatment programs. Women of reproductive age (15-49 years) will be surveyed regarding pregnancy intentions and their need for family planning. Based on responses to questions posed, conclusion can be drawn. The information in the conclusion box would then be transferred into pre-ART and/or ART registers for monthly aggregation purposes. PATIENT ID: Date of visit: (DD/MM/YY): 1. Are you currently pregnant? 2. Do you want to become pregnant within the next year? Yes At the time you became pregnant, did you want to become pregnant then? Yes MET FP NEED Yes No FP Need Yes NO FP NEED Action: Counsel on PMTCT and tick “No FP Need” in Column 4 Action: Counsel regarding safe pregnancy and tick “No FP Need” in Column 4 No FP NEED No UNMET FP NEED Action: go to Question #3 Action: Counsel on FP and tick “Unmet FP Need” in Column 4 No Action: go to Question #2 3. Are you currently using a family planning method? Don’t know Action: go to Question #3 4. Conclusion: No FP Need Action: Tick “Met FP Need” in Column 4 and document FP method currently in use Met FP Need No Can you tell me why you are not using a method? (check one) Infecundity reasons No FP Need Action: Counsel and tick “No FP Need” in Column 4 Unmet FP Need Action: Transfer to FP column on ART card Also tick Sterile/Infecund on ART card Not sexually active No FP Need Action: Counsel and tick “No FP Need” in Column 4 OtherUNMET FP NEED Action: tick “Unmet FP Need” in Column 4 Arise: endline survey results and baseline comparison | 65 Met need is defined as women of reproductive age (15-49 years) living with HIV attending care and treatment services who want(ed) to delay or avoid a/another pregnancy who are currently using a family planning method of their choice No need is defined as (a) women that are not at risk of pregnancy or (b) women at risk for pregnancy and not wanting to space or limit their childbearing Unmet need is defined as All pregnant women whose pregnancies were unplanned at the time of conception. All fecund, sexually active women who are not pregnant and who do not want to become pregnant in the next year but are not using any contraceptive 66 | Pathfinder international Pathfinder International HQ 9 Galen Street Watertown, MA 02472 USA t 617.924.7200 f 617.924.3833 www.pathfinder.org
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