THE BRAINS BEHIND SAVING YOURS

J U LY - D E C E M B E R 2 0 1 6
®
THE BRAINS BEHIND SAVING YOURS
G R E AT E R E A S T O H I O A R E A C H A P T E R • S E R V I N G 1 7 C O U N T I E S
In This Issue:
While top peer-to-peer fundraisers are struggling,
 Walk to End Alzheimer’s is on the rise
Developing Ohio’s
Alzheimer’s Plan 2
Annual Education
Symposium Review 3
Lori McCleese’s first day working
for the Alzheimer’s Association
was Oct. 2, 2010, the day of the
Blossom Memory Walk. “I was
excited to embark on a new career,
but moreover I was in awe of the
800 people who ventured out to
support our cause.”
Fast forward six years and that
same event, now the Akron Walk
to End Alzheimer’s®, is expected
to attract close to 2,000 supporters
at the University of Akron Stile
Athletics Field House on Sunday,
Oct. 2, 2016. The Walk was moved
to a new venue when increasing
attendance outgrew Blossom
Music Center.
2016 Education
Program Calendar 4
Advocacy successes
and awards 5
What’s new this
year at Walk to End
Alzheimer’s 6
The Longest Day sees
dramatic growth 8
“Collectively in 2010, our eight
walks had 2,700 participants
and raised $311,000 to support
research, our local programs,
and our mission. In 2016 we
are anticipating nearly 5,500
supporters at those same eight
walks and hope to raise $625,000.”
Programs for
caregivers 10
Caregiver support
groups 12
This growth is not unique to the
Greater East Ohio Area Chapter.
continued on page 6
Greater East Ohio Area Chapter
70 West Streetsboro Street • Suite 201
Hudson, OH 44236
The End of Alzheimer's Starts With You
Funded in part by the State of Ohio through the Area Agency on Aging
Region 9, 10a, 10b, and 11 inc. and the Ohio Department of Aging
Greater East Ohio Area Chapter
Chapter Board:
Addressing Ohio’s Public Health Crisis:
Developing a State Alzheimer’s Plan
Susan Steiger
President
Elizabeth Kozenko
Vice President
The disease steals a person’s
memories, judgment and
independence. It robs spouses of
lifetime companions and children
of parents and grandparents. It
destroys the security of families and
depletes millions of dollars annually
from state budgets.
Deborah Guillermo
Treasurer
Attorney Jennifer Lile
Secretary
Board Members
Laura Gronowski
Michelle Henry
Carla Spears
Attorney Marcus Wainwright
Dan Van Dussen
Chapter Staff:
Pam Schuellerman
Executive Director
Development Department
Lori McCleese
Development Director
Genevieve Bohnak
Stephanie Mueller
Helen T. Paes
Community Development
Coordinators
Jessica Szabo
Development Assistant
Marcy Schulman
Signature Events Coordinator
Finance Department
Joan Sillasen, CPA
Finance Director
Alzheimer’s disease is the most
under-recognized public health
crisis of the 21st century. Today, an
estimated 5.4 million Americans
are living with Alzheimer’s – the
most common form of dementia
– and that number will rise to as
many as 16 million by 2050. While
the number of deaths from heart
disease, prostate cancer and stroke
are declining, the number of deaths
from Alzheimer’s is increasing.
To achieve meaningful progress,
every state must tackle Alzheimer’s
not only as an aging issue, but also
as a public health crisis.
Most states have a strategic plan
to address cancer, diabetes or
pandemic flu. States must be
equally prepared for the projected
50 percent increase in Alzheimer’s
disease during the next 20 years.
State Alzheimer’s Disease Plans
create the infrastructure and
accountability necessary to confront
the sweeping economic and social
impact of this disease.
By bringing together essential
stakeholders – such as state
agency officials, legislators, care
providers, family caregivers and
people with Alzheimer’s – the
state planning process is able to
identify critical issues, explore
solutions and construct a roadmap
to guide a state’s development
into a dementia-capable state.
In many states, local Alzheimer’s
Association chapters have played a
vital role in both the planning and
implementation process.
In Ohio, the Alzheimer’s Association
has continued to build on our
partnerships with Area Agencies on
Aging and the Ohio Department
of Aging, holding focus groups to
improve the referral process and
connect individuals with resources
faster. The Association has also
provided training to Agency staff
on Alzheimer’s disease and related
dementias. We look forward to
building on those successful
partnerships as Ohio forwards its
development of a state task force
and a State Alzheimer’s Plan.
But even as states complete
Alzheimer’s Disease Plans, it is
critical for policymakers to ensure
that the plan’s recommendations
are translated into actual policies.
The implementation of this will
require the continued dedication
of our volunteers, advocates,
and supporters. Only then will
the burden on state budgets and
families be diminished.
Sincerely,
Pam Schuellerman
Executive Director
Sherry Tytko
Chapter Relations Coordinator
Program Department
Liz Mulroy
Program Director
Karen Elliott, MA, LSW
Amy McCluskey
Jennifer Miller
Family Service Coordinators
Samantha Sathre
Education Coordinator
Carolyn Lake
Support Group Coordinator
Bernadette Duffy
Volunteer Coordinator
Communications & Public Policy
Andrew DeFratis
Communications & Public Policy
Coordinator
Published a State Alzheimer's Plan
(44, inc. DC & PR)
Task Force Established to develop a
State Alzheimer's Plan (5)
No legislation filed or executive
action pending (3)
Office Locations:
Akron Area Office
70 West Streetsboro St.
Suite 201
Hudson, Ohio 44236
330-650-0552
Canton Office
408 9th St. SW
Canton, Ohio 44707
330-966-7343
Youngstown Office
3695B Boardman-Canfield Rd.
Suite 301
Canfield, Ohio 44406
330-533-3300
Toll-free: 1.800.272.3900
This newsletter is published two times
per year by the Alzheimer's
Association Greater East Ohio Area
Chapter, a non-profit tax-exempt
organization. Permission to excerpt
material from this newsletter is
hereby granted to other Alzheimer’s
chapters for use in their publications
with proper credit to the Greater East
Ohio Area Chapter. All material in this
newsletter is offered as information
to our readers. The Alzheimer’s
Association does not warrant, endorse
or recommend any provider, program
or product.
Updated on June 8, 2016
The Ohio Council
of the Alzheimer’s Association
The Ohio Council is comprised of the seven Alzheimer’s
Association chapters that serve the State of Ohio, to present
and advance public policy initiatives related to Alzheimer's
disease and other dementias at the state and federal levels.
Allowing for localized care and programs, the Ohio Council
presents a unified and coordinated set of public policy
priorities for the whole state.
As a collaboration between chapters, the Ohio Council has
been integral to the success of Ohio’s statewide Alzheimer’s
advocacy day, Memory Day, which is next scheduled for
Wednesday, May 3, 2017.
The mission of the Ohio Council of the Alzheimer’s Association
is: “to provide a statewide advocacy voice to ensure that
executive, legislative, and judicial decisions meet the needs
and represent the interests of Ohioans with Alzheimer's
disease and related disorders, their families, and caregivers.”
For more information on our chapter’s public policy
priorities or Memory Day 2017, contact Andrew DeFratis,
at [email protected].
A L Z H E I M E R ’ S A S S O C I AT I O N • 3
Karen Stobbe inspires caretakers and
professionals at Annual Beverly A. Chiron
Educational Symposium
Both events this year featured
keynote speaker, Karen Stobbe, In
The Moment project director and
a caregiver herself, who inspired
audience members with her creative
and innovative insights on providing
care for individuals with cognitive
impairment. Karen combines her
caregiving experience with her passion
for improvisational theater to give her
audience strategies to help connect
and communicate with individuals with
cognitive impairments.
On June 6 and 7, the Greater East
Ohio Area Chapter presented a
Caregiver Education Night and
an all-day Professional Education
Symposium at the Hartville Kitchen
in Hartville, Ohio. These events were
renamed following the death of
Beverly A. Chiron, who lost her battle
to Alzheimer’s disease in 2007.
The Chiron family wanted to make
families aware of the services
and programs of the Alzheimer’s
Association and help train healthcare
professionals and caregivers resulting
in the establishment of the Beverly A.
Chiron Alzheimer’s Fund.
Other presenters for the professional
event included Kristen Henry, JD,
and Michael Kirkman, JD, who spoke
about sexuality and the rights of
individuals with cognitive impairments.
Dr. Alan Lerner defined what research
efforts are taking place and the new
advancements of treatments for
Alzheimer’s disease. Sonya Edwards
presented on the topic of protecting
older adults from financial exploitation.
Attendees for both events had an
opportunity to visit exhibits from local
companies that helped sponsor these
events. Thank you to all our generous
sponsors including:
Keynote Sponsors:
• Canton Regency
• Crossroads Hospice
• Sprenger Healthcare Systems
Expanding Chapter
Volunteer Program
& Opportunities
The Alzheimer’s Association Greater
East Ohio Area Chapter will be rolling
out a new volunteer program that
will focus on recruiting, training and
placement. The volunteer coordinator
role has been filled by Bernadette
Duffy who has been with the chapter
since August 2014. The program will be
designed so that volunteers of all ages
and abilities will be able to find an area
of interest that they would like to focus
volunteering in. All volunteers will be
involved in an on-boarding process to
ensure they are properly trained and
aware of all aspects of the Association.
Whether you are a high school
student, young professional or a
retiree, you can make a difference at
the Alzheimer’s Association. Some
examples of opportunities are:
High School Students and College
Students
• Volunteer your time to earn service
hours or complete an internship to
gain experience in our office. Some
of the duties would include mailings,
phone calls and providing clerical
support.
• Sign-up to volunteer just for a day
at one of our 8 walks across 17
counties. A few of the responsibilities
can include helping with set-up,
handing out t-shirts and registering
walk participants.
Young Professionals and
Professionals
• Join one of our event planning
committees to coordinate one of
our eight Walk to End Alzheimer's,
our two Paint the Night Purple galas
Presenting Sponsors:
• Alliance Community Hospice
• Alliance Hospice
• Alliance Visiting Nurse Association
• Copeland Oaks Retirement
Community
• Walnut Hills Senior Living
Program Sponsors:
• Community Hospice
• Akron Canton Area Agency on Aging
and Disability
• Maplewood Senior Living
The events both received
overwhelmingly positive remarks
from the attendee evaluations. The
Alzheimer’s Association wishes to
thank all who have been involved with
helping these events grow throughout
the years. For more information on the
Alzheimer’s Associations professional
and public education programs
contact Samantha Sathre, education
coordinator, at [email protected] or
1.800.272.3900.
Apples for Alzheimer’s program takes
root in Orrville
James Douglass, Hudson High School Volunteer
On April 5, Orrville High School students from the school’s Conservation of
Parks class and their teacher Mr. James Duxbury kicked off “Apples for
Alzheimer’s,” a community outreach program aimed at honoring Alzheimer’s
patients in the community.
in the spring or The Longest Day in
June. Our committees meet in the
evenings or during lunch to make it
convenient to attend.
Retirees
• Offer office support in one of our 3
offices for a few hours, on your own
schedule.
• Become a support group facilitator
or co-facilitator at one of our
Caregiver Support Groups that meet
monthly
• Represent the Association at a
community event or health fair and
provide information on our programs
and services.
• Help with outreach efforts and drop
materials off to libraries, community
centers etc., on your own schedule
to help spread awareness.
• Become an advocate and help with
advancements in research, and
enhanced care and support to fulfill
our mission.
As the volunteer program grows, new
positions will become available. We
encourage new ideas and if you are
interested in volunteering or would like
more information call Bernadette at
1.800.272.3900 or [email protected]. Our
goal is to provide volunteers with a
fulfilling role that will help support the
mission of the Alzheimer’s Association
and you can make it happen.
At the event, 400 apple tree seedlings (12-18 inches high) were planted
throughout the town, and 24 trees (8-10 feet tall) were planted at the town’s local
dog park, with top soil and fertilizer donated by a local nursery. Jen Miller, family
service coordinator with the Alzheimer’s Association, gave a presentation on
Alzheimer’s disease to the events fifty attendees. The project was funded with a
grant from the Health Foundation of Greater Massillon, which gives eight high
schools throughout Summit, Stark, and Wayne counties $1,000 annually to fund a
community outreach program. This year, Orrville students were inspired to act by
the most common form of dementia, Alzheimer’s disease.
“Though there is no cure, prevention, or treatment for Alzheimer’s disease, apples
contain antioxidants that improve circulation, brain health, and general healthy
living,” notes Samantha Sathre, education coordinator with the Alzheimer’s
Association. In addition to the grant, the Health Foundation of Greater Massillon
rewards one of the eight participating schools for best use of a school's funds,
with Orrville’s Apples for Alzheimer’s being selected in 2016.
Jen Miller and Orrville High School students participating in the
Apples for Alzheimer’s program.
4 • A L Z H E I M E R ’ S A S S O C I AT I O N
2016 Community Education Calendar
The Alzheimer’s Association seeks to provide valuable awareness and
educational opportunities to the public and professionals across our chapter
area. Additional trainings are available online through our website.
Healthy Living for Your Brain and Body
Join us to learn about research in the areas of diet and nutrition, exercise,
cognitive activity, and social engagement. Learn hands-on tools to help
incorporate these recommendations into a plan for healthy aging.
• Wednesday, September 7, 2016 (6:00 p.m.)
Gables of Hudson
5400 Darrow Rd., Hudson, OH 44236
Register/RSVP: 330.652.9170
• Wednesday, September 14, 2016 (6:00 p.m.)
Greenfield Estates
3522 Commercial Dr. Akron, OH 44333
Register/RSVP: 330.664.1650
Know the 10 Signs: Early Detection Matters
Alzheimer’s disease is not a normal part of aging. If you know someone affected
by Alzheimer’s disease or dementia, it’s time to learn the facts. This program
provides information on detection, causes and risk factors, stages of the disease,
treatment and more.
• Thursday, October 20, 2016 (6:00 p.m.)
2021 Wales Ave. NW, Massillon, OH 44646
Register/RSVP: 330-363-8255
• Wednesday, November 16, 2016 (6:00 p.m.)
Gables of Hudson, 5400 Darrow Rd., Hudson, OH
The Basics:
Memory Loss, Dementia and Alzheimer's Disease
Learn the basics of Alzheimer’s and how it may differ from other types of dementia
or memory loss conditions. Additional topics covered include: risk factors, stages,
and working with medical professional for proper diagnosis and treatments.
• Wednesday, August 3, 2016 (6:00 p.m.)
North Canton Medical Center
6046 Whipple Ave. NW, North Canton, OH
Register/RSVP: 330-363-8255
Living with Alzheimer's (For Caregivers)
When someone is diagnosed with Alzheimer’s, friends and family have many
questions. What does the diagnosis mean? What kinds of plans need to be made?
What resources are available? This program will provide answers to the questions
that arise in the early, middle and late stages of the disease.
• Thursday, October 27, 2016 (6:30 p.m.)
St. Luke Lutheran Church
1330 Pine St., Zanesville, OH 43701
Register/RSVP: 740.452.9346
• Tuesday, November 8, 2016 (6:30 p.m.)
Pearlview Rehabilitation and Wellness
4426 Homestead Dr., Brunswick, OH
Register/RSVP: 330-225-9121
• Tuesday, November 15, 2016 (2:00 p.m.)
Stark County Public Library
715 Market Ave. N., Canton, OH 44702
Register/RSVP: 330.904.3862
• Thursday, December 15, 2016 (11:30 a.m.)
Brookdale Montrose
100 Brookmont Rd., Akron, OH 44333
Register/RSVP: 330.666.4545
27
Understanding and Responding to
Dementia-related Behavior
Behavior is a powerful form of communication and is one of the primary ways
people with dementia communicate their needs and feelings as the ability to use
language is lost. Some behaviors can present real challenges for caregivers to
manage. Learn to decode behavioral messages and identify common triggers.
• Thursday, August 25, 2016 (12:00 p.m.)
Akron General Health and Wellness Center
4302 Allen Rd. #210, Stow, OH 44224
RSVP: 330-454-3200 | Boxed Lunch Provided
• Tuesday, September 13, 2016 (6:30 p.m.)
3131 Smith Rd. Fairlawn, OH 44333 (Edward Hall)
Register/RSVP: 234-466-5253
• Thursday, September 15, 2016 (6:00 p.m.)
Visiting Angels 5880 Fulton Dr. NW, Canton, OH 44718
Register/RSVP: 330-497-5995
• Thursday, September 22, 2016 (6:30 p.m.)
St. Ambrose Catholic Church
929 Pearl Rd., Brunswick, OH 44212
Register/RSVP: 330-225-9121
continued
• Tuesday, October 25, 2016 (11:00 a.m.)
Maplewood of Cuyahoga Falls
190 West Bath Rd., Cuyahoga Falls, OH 44223
Register/RSVP: 234.208.9871
Effective Communication Strategies
As people with Alzheimer’s disease and other dementias progress in their journey
and the ability to use words is lost, families need new ways to connect. Join us
to explore how communication takes place when someone has Alzheimer’s,
learn to decode the verbal and behavioral messages delivered by someone with
dementia, and identify strategies to help you connect and communicate at each
stage of the disease.
• Tuesday, August 16, 2016 (2:00 p.m.)
Whispering Pines
937 E. Park Ave., Columbiana, OH 44408
Register/RSVP: 330.482.9400
• Wednesday, August 24, 2016 (11:00 a.m.)
Nordonia Senior Center
10503 Valleyview Rd., Northfield, OH 44067
• Thursday, October 6, 2016 (11:00 a.m.)
Maplewood of Twinsburg
2463 Sussex Blvd., Twinsburg, OH 44087
Register/RSVP: 330.840.7404
• Thursday, October 13, 2016 (6:00 p.m.)
West View Healthy Living
1715 Mechanicsburg Rd., Wooster, OH 44691
Register/RSVP: 330-264-8904
• Wednesday, October 26, 2016 (6:30 p.m.)
1899 West Garfield Rd., Columbiana, OH 44408
Register/RSVP: 330-549-9259
16
Please RSVP to the hosting facility to confirm additional details.
Education programs are added throughout the year, find more at
alz.org/akroncantonyoungstown or contact Carolyn Lake, 1.800.272.3900
to plan a program for your group or facility.
A L Z H E I M E R ’ S A S S O C I AT I O N • 5
P o l i c y & A d v ocac y
Caregiver Advocates meet with Nearly Every
Ohio Legislator in One Day
More legislators attend Memory Day luncheon than ever
before, interested in learning about Alzheimer’s disease
Like the Alzheimer’s Association Advocacy Forum, Memory Day is a day for
Alzheimer’s advocates in Ohio to meet with their state legislators and tell their
stories as professionals, researchers, caregivers and family members in hope of
affecting Alzheimer’s disease policy at the state level.
Held on Wednesday, April 20, Memory Day 2016 gave local advocates an
opportunity to hear from Dr. Bonnie K Burman, Sc.D., Director of the Ohio
Department of Aging and Speaker Cliff Rosenberger of the Ohio House of
Representatives.
Advocate Ken Bravo from the Cleveland Area Chapter was awarded the Sharen
Eckert: Leadership in Advocacy Award for his history of volunteer advocacy on
behalf of the Alzheimer’s Association.
In meetings with state legislators, advocates thanked their legislators for the
state’s 25% increase to Alzheimer’s Respite Funding last year (Line Item 490-414),
bringing annual funding to nearly $2.5 million. Advocates shared their personal
stories, and informed legislators of the tremendous financial impact Alzheimer’s
disease has on Medicaid spending. In 2015, Ohio had the nation’s 4th highest
Medicaid cost for individuals 65 and older with Alzheimer’s disease or related
dementias, at $2.2 billion.
Meeting with State Rep. Michael J. O’Brien, (House District 64, Warren).
Alzheimer’s Research Funding
Receives Bipartisan Support following
Advocacy Forum 2016
“Alzheimer’s is the most expensive
disease in America, costing $236
billion in 2016 alone.” That was the
battle cry of over 1,200 advocates
draped with purple sashes as they
converged on Capitol Hill to meet with
nearly every member of congress or
their staff. Senators and members of
the U.S. House of Representatives got
the message that this disease affects
all 50 states and impassions advocates,
as a sea of purple filled the halls of the
congressional office buildings.
The Alzheimer’s Association Advocacy
Forum is the nation’s premier
Alzheimer’s advocacy event, held each
year in Washington D.C. to promote
Alzheimer’s policy priorities. Forum is
a unique opportunity for Alzheimer's
advocates from across the country to
directly appeal to their members of
Congress about Alzheimer's disease.
Conquering Alzheimer’s is as much
a matter of public policy as scientific
discovery. Our advocates engage
public officials and policymakers at
the local, state, and federal levels
urging their support critical Alzheimer’s
legislation and policy changes.
Volunteer advocates come from
a wide variety of backgrounds:
caregivers, professionals, family that
may have lost someone to the disease,
and even those with the disease
themselves. Every story serves to show
policymakers how many are affected
by Alzheimer’s, and how widespread
its reach is.
This year, Alzheimer’s Ambassadors
from the Greater East Ohio Area
Chapter advocated for an additional
$400 million in Alzheimer’s research
funding at the National Institutes of
Health (NIH.) This would build on
last year’s increase, with the intention
of reaching $2 billion in annual
research funding, as recommended
by a 2012 expert panel of scientists
brought together by the Alzheimer’s
Association to meet the goal of
preventing and effectively treating
Alzheimer’s by 2025. Alzheimer’s
Ambassador Joe Fleming works with
Research Funding
Update:
On June 9, the Senate
Appropriations Committee
approved a landmark $400 million
increase in Alzheimer’s disease
research funding at the NIH and
included the HOPE for Alzheimer’s
Act in its funding bill; on July
14, the House Appropriations
Committee approved $350 million
for Alzheimer’s disease research.
If another step of this magnitude is
signed into law, it would mark an
important milestone in Alzheimer’s
research – bringing us past the
halfway mark toward the funding
level experts agree is necessary to
end this epidemic.
Congressman Tim Ryan’s office, and
thanked him for his continued support
of the Health, Outcomes, Planning
and Education (HOPE) for Alzheimer’s
Act (S. 857/H.R. 1559) – which would
provide Medicare coverage for
comprehensive care planning services
following a dementia diagnosis, if
passed.
Advocate Tammie Johnson from
Lowell, Ohio, met with Congressman
Bill Johnson’s office and explained the
importance of the Palliative Care &
Hospice Education and Training Act
(PCHETA.) If passed, PCHETA (S. 2748/
H.R. 3119) would establish palliative
care and hospice workforce training
programs for doctors, nurses, and
other health professionals in addition
to supporting awareness efforts and
related research.
As veteran Forum attendees Jane
Croskey and Sue Grossenbacher
will tell you, while the Wednesday
of Advocacy Forum is filled with
meetings on Capitol Hill, the Monday
and Tuesday of Forum is packed
with advocate trainings, nationally
recognized guest speakers, and
The Alzheimer’s Association and its advocates work year-round to improve
Alzheimer’s policies. Registration for Memory Day 2017 – scheduled
for Wednesday, May 3 – is already available. Contact Andrew DeFratis,
communications & public policy coordinator, at: [email protected] or
1.800.272.3900 for more information.
networking opportunities. Forum also
includes a private breakfast briefing for
Alzheimer’s Impact Movement (AIM)
members, and the National Alzheimer’s
Dinner – recognizing star advocates
and honoring public leaders working
tirelessly against Alzheimer’s disease.
This year’s dinner featured Kimberly
Williams-Paisley, actress and author of
Where the Light Gets In: Losing My
Mother Only to Find Her Again, and
Senator Roy Blunt, Chairman of the
Senate Appropriation Subcommittee
on Labor, Health and Human Services.
Advocacy Forum 2017 is scheduled
for March 27-29 at the Washington
Marriott Wardman Park. To get
involved in Alzheimer’s advocacy,
and find out more information on
attending Advocacy Forum, contact
Andrew DeFratis at [email protected]
or 1.800.272.3900. For more photos
and information from Advocacy
Forum, visit: alz.org/forum.
The Alzheimer’s Association presents the following awards during the
National Alzheimer’s Dinner, in acknowledgement of the critical work its
supporters are doing to advance science, advocacy and leadership.
The Alzheimer’s
Association
Champion Award
Honoring an individual,
organization or
company whose actions
have promoted greater
understanding of
Alzheimer's disease
and its effects on
diagnosed individuals,
families and caregivers.
Kimberly WilliamsPaisley and her father,
Gurney Williams,
accept the Alzheimer's
Association Champion
Award.
The Alzheimer’s
Association
Outstanding
Advocate of the Year
Award
Presented annually
to an extraordinary
Alzheimer's advocate
who has shown
outstanding leadership.
National Board
Member Joan Uronis,
former member of
the Greater East
Ohio Area Chapter
Board, accepts the
Alzheimer's Association
Outstanding Advocate
of the Year Award on
behalf of the National
Early-Stage Advisory
Group.
The Alzheimer’s
Impact Movement
Humanitarian of the
Year Award
An annual award
bestowed upon a
public official that has
made a significant
policy contribution
to advancements in
research and enhanced
care and support for
people with
Alzheimer's disease.
Sen. Roy Blunt
(R-Mo.) celebrates
the Alzheimer's
Impact Movement
Humanitarian Award
with Alzheimer's
advocates.
6 • A L Z H E I M E R ’ S A S S O C I AT I O N
W a l k to E n d A l z h e i m e r ' s
Kicking off the Walk to End Alzheimer’s
All eight walks host kickoffs to register new and
returning teams
What’s New This Year
Muskingum County Walk
• Saturday, September 10
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Ohio University - Zanesville Campus
1425 Newark Rd., Zanesville, OH 43701
“We’re thrilled by the exceptional
support we’ve seen from the City
of Zanesville, and Mayor’s Tilton’s
office this year! We appreciate their
involvement and participation.”
– Genevieve Bohnak, community
development coordinator
Tuscarawas County Walk
• Saturday, September 10
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Strasburg-Franklin High School
140 N. Bodmer Ave., Strasburg, OH
44680
“With the growth we’ve seen at the
Tuscarawas County Walk to End
Alzheimer’s, we’ve decided to relocate
to a location better capable of
accommodating all of our supporters.
This year’s Walk will be held at
Strasburg High School.” – Genevieve
Trumbull County Walk
• Saturday, September 17
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Kent State University – Trumbull
4314 Mahoning Ave., Warren, OH
44483
“Participants will be converging on
a new venue at Kent State University
Trumbull in Champion Township. The
change of location is in response to
projected growth for the event this
year and in the future. The campus
offers expanded space for participants,
sponsors and ceremonies.”
– Helen Paes, community
development coordinator
Medina County Walk
• Saturday, September 17
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Medina Community Recreation
Center, 855 Weymouth Rd., Medina,
OH 44256
“Participants at the Medina County
Walk will be excited by this year's new
location at the Medina Community
Recreation Center. With the continued
growth each year by supporters in
Medina County, we knew a larger
venue was needed to provide an
exceptional Walk experience for our
guests. The larger space will increase
visibility for our ceremonies, and allow
for the addition of a bounce house for
the Kids Zone!” – Stephanie Mueller,
community development coordinator
Stark County Walk
• Saturday, September 24
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Jackson High School
7660 Fulton Rd. NW, Massillon, OH
44646
“This year, we’re anticipating 1,000
participants, potentially the largest
Stark County Walk to End Alzheimer’s
yet. We’re also excited to have
two presenting sponsors this year:
Sprenger Health Care System and
Windsor Medical Center.” – Genevieve
Akron Walk
• Sunday, October 2
• Check-in: 8:30 a.m., Opening
Ceremonies: 10:00 a.m.
• The University of Akron Stile
Athletics Field House
289 S. Union St., Akron, OH 44325
“Exciting things are happening with
the Akron Walk! We were thrilled
to host our Kickoff in the Goodyear
Blimp Airship Base, a special thank
you to Goodyear for their generosity
in hosting our event in such a rousing
venue! We are also pleased to
announce our Presenting Sponsor for
the Akron Walk to End Alzheimer's:
Maplewood Senior Living!”
– Stephanie
Wayne County Walk
• Saturday, October 8
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• Wooster High School 515 Oldman Rd., Wooster, OH 44691
“This year, we held our first-ever
Kickoff event for the Wayne County
Walk to End Alzheimer's at Muddy's
in Wooster. We welcomed current
teams, as well as community members
interested in learning more about the
Alzheimer's Association and the Walk.
The Wayne County Walk continues
to grow each year, with wonderful
support from the community.”
– Stephanie
Mahoning Valley Walk
• Saturday, October 8
• Check-in: 8:30 a.m., Opening
Ceremonies: 9:30 a.m.
• WATTS Center at Youngstown State
University, 651 Elm St., Youngstown,
OH 44555
“Momentum is growing for the
Mahoning Valley Walk to End
Alzheimer's, with returning teams
already registered for both Mahoning
and Columbiana counties. I'm
confident that this year will be the
most successful ever as we return
to the Watson Tressel Training Site
(WATT) on the campus of Youngstown
State University for a third year.”
– Helen
Held annually in more than 600 communities nationwide, the
Alzheimer's Association Walk to End Alzheimer’s is the world’s
largest event to raise awareness and funds for Alzheimer’s care,
support and research.
Walk offers new experiences every year, so whether you’re a
returning team or this is your first time, register at: alz.org/walk
The Stark Walk Planning Committee welcomes new and returning teams
at their kickoff at The Barrel Room, July 12. (Top) Development Assistant
Jessica Szabo registers teams online at the Medina County Walk Kickoff
at Twiisted Sushi Grill Bar, July 13. (Left) The Goodyear Blimp provides a
backdrop for the Akron Walk Kickoff on July 21. (Right)
 Walk to End Alzheimer’s is on the rise
(continued from cover story)
The Alzheimer’s Association Walk to
End Alzheimer’s is now the seventh
largest peer-to-peer fundraising
event in the country. According to
The NonProfit Times, Walk to End
Alzheimer’s has “increased revenues
each year since 2006... generating
$77,464,687 in 2015, up 14 percent
from 2014, and 154 percent from
2006.”
The Alzheimer’s Association has a clear
vision: a world without Alzheimer’s.
Every chapter across the country
strives to accomplish this through the
Walk to End Alzheimer’s (held annually
in more than 600 communities),
nationwide advocacy outreach,
research and clinical trials, and a wide
variety of local programming.
“Achieving our vision will require the
perseverance, dedication, and focus
we see in our volunteers, supporters,
sponsors and staff. And it requires that
the funding is in place that all facets of
our mission are supported,” says Lori.
“We have a saying at our office, ‘it’s
our time.’ The Facts and Figures
we see with Alzheimer’s disease are
staggering and the growth of Walk to
End Alzheimer’s is proof that people
are paying attention to our cause.
With no way to prevent, treat, or even
slow the progression, people all over
the U.S. are coming out in larger
numbers every year to help fight this
devastating disease.”
The 2016 Alzheimer’s Disease Facts
and Figures are available online at:
alz.org/facts
“September and October are both
exhausting and exhilarating months
for our staff, as we fit eight walks into
five weeks. We are motivated by the
dedication of our planning committees
and volunteers, and we are inspired by
the families we see at Walk, oftentimes
returning year after year.”
Walk Planning committees are made
up of involved community members
and dedicated Walk participants
that use their experience and local
connections to help ensure the event’s
success.
“A world without Alzheimer’s won’t
happen in a day, a month, or even a
year, but with the movement we are
seeing in our cause, I truly believe it
will happen.”
Lori McCleese is the Development
Director for the Alzheimer’s
Association Greater East Ohio Area
Chapter and can be contacted at
[email protected].
A L Z H E I M E R ’ S A S S O C I AT I O N • 7
Akron Paint the Night Purple dinner and
auction honors Dr. David Bass, supports
local services
Like the Youngstown-area dinner, the Akronarea “Paint the Night Purple” benefit dinner
and auction was a night of fine dining and
purple gowns held on Saturday, April 30, 2016,
at Lake Forest Country Club in Hudson.
Honoree David M. Bass, Ph.D.
Alzheimer’s research and family services
supported at Paint the Night Purple Dinners
Both events combined raised
over $130,000
Our Youngstown-area “Paint the Night Purple” benefit dinner and auction was
held on Saturday, April 16, 2016, at The Lake Club in Poland, Ohio. With over
160 in attendance, the proceeds from the evening support the Alzheimer’s
Association’s mission, programs and services – with a special portion of the
program’s proceeds going directly to Alzheimer’s research. Jess Briganti, weather
anchor for 21 WFMJ-TV, served as mistress of ceremonies.
David M. Bass, Ph.D., Senior Vice President for
Research and Education with the Benjamin Rose
Institute on Aging, was honored and presented
with the 2016 Champion Award for his research
on Alzheimer’s disease and managed health
care that incorporates the individual and their
family members.
Dr. Bass received his doctorate from the University of Akron and Kent State
University, and has worked with the Margaret Blenkner Research Institute of the
Benjamin Rose Institute since 1984. He has been the principal or co-principal
investigator on numerous projects related to coping with chronic illnesses,
dementia, and dementia care.
With the exceptional support Paint the Night Purple has seen, the gala will be
moving to a larger venue to accommodate more guests in 2017. Mark your
calendars for Saturday, April 29, to join the Alzheimer’s Association at the Sheraton
Suites Akron Cuyahoga Falls. For more information on the Akron-area Paint the
Night Purple, please contact Lori McCleese, development director,
at [email protected] or 1.800.272.3900.
Howland neurologist Holly Maggiano, M.D., was honored with the 2016 Champion
Award by the Alzheimer’s Association Greater East Ohio Area Chapter for her
compassionate and holistic approach to working with persons with Alzheimer’s
disease and their families.
“I am by nature a caregiver. I have learned so much from the patients I have cared
for.” Dr. Maggiano has been treating patients with Alzheimer’s disease and other
neurological disorders, for more than 20 years.
The Paint the Night Purple benefit dinner and auction will be moved to a
weeknight in 2017, in order to better meet the needs of supporters. The 2017 date
is set for: Thursday, April 6, and will return to The Lake Club in Poland for a third
year. For more information on the Youngstown area Paint the Night Purple, please
contact Helen Paes, community development coordinator, at [email protected] or
1.800.272.3900.
Our Appreciation and Thanks
to our Sponsors
Youngstown:
Presenting Sponsors
• Stadium GM Superstore &
VEC, Inc.
Platinum Sponsors
• Southwoods Health
Gold Sponsors
• Briarfield Healthcare
• Comfort Keepers
• Guardian Elder Care
• Home Savings Charitable
Foundation
• Mercy Health Foundation
• Phantom Fireworks
• Tom & Mary and Joe & Maryellen Fleming
• Windsor House Inc.
“We extend our sincere
appreciation to the many
volunteers who make this
evening so special and to the
many area businesses who so
generously donated items for
our live and silent auctions!”
Akron:
Presenting Sponsors
• The House of LaRose
Platinum Sponsors
• CHAMPS Healthcare
• Maplewood Senior Living
• U.S. Bank
Gold Sponsors
• BDO
• Benjamin Rose Institute on Aging
• The CJR Group
• The Gables Senior Assisted Living
• Henning Software, Inc.
• Heritage of Hudson and Hickory
Ridge Nursing & Rehabilitation
• Interim Healthcare
• Key Investment Services
• Kleiman Farms Inc. & The Kleiman Family
• Krugliak, Wilkins, Griffiths &
Dougherty Co., L.P.A.
• Midwest Industrial Supply, Inc.
• Musca Properties, LLC
• Neurology and Neuroscience
Associates, Inc.
• Saber Healthcare Group
• Stile Companies
• Vista Springs
8 • A L Z H E I M E R ’ S A S S O C I AT I O N
The Longest Day sees dramatic growth in 2016
Interest-based team fundraiser sees increase in
number of teams locally
On June 20, ‘The Longest Day’ of the
year and the summer solstice, teams
unified around the world did what they
love to do to honor the challenges
faced by those with Alzheimer’s
disease and their caregivers. The
symbolism being: for caregivers, every
day is the longest day.
The Longest Day falls during
Alzheimer’s & Brain Awareness Month,
giving the Alzheimer’s Association
and its supporters an opportunity to
maximize the impact of fundraising
and awareness efforts. Throughout
the month, teams supporting The
Longest Day held community events
such as wine tastings, yoga classes,
and even a formal “soiree” embracing
the Alzheimer’s Association’s signature
purple.
Beginning on June 2 with a wine
tasting fundraiser organized by Bobbi
Krannich and culminating with a golf
scramble at Signature of Solon on
June 27, a record number of teams
participated in The Longest Day.
In addition, a car wash was held at
the Alzheimer’s Association office
in Hudson, three Painting with a
Twist locations held benefit painting
classes, Akron General’s Health and
Wellness Center in Stow offered a
super circuit exercise class, Kent Yoga
held a restorative yoga session and
Chipotle Hudson held a fundraiser
on June 20. Four American Contract
Bridge League groups from all across
our service territory participated in
The Longest Day and Alpha Kappa
Alpha held a summer soiree to
raise awareness and funds for the
Alzheimer’s Association. Salon Hudson
also recognized Alzheimer’s Brain
Awareness Month by selling purple
clip in hair extensions throughout the
month of June.
Several of these teams are already on
board to participate in The Longest
Day in 2017, with plans to grow and
expand Signature of Solon’s golf
outing, and Bobbi Krannich is already
brainstorming ideas for her next wine
tasting.
A number of family teams participated
as well, and we hope to see more
Thank you to the Summit
County Prosecutor's
Office for going 'casual
for a cause' in support of
the The Longest Day!
family teams participate in 2017. The
Longest Day is a very flexible event,
you can bowl, fish, read, kayak, hike,
bike, garden - the possibilities are
endless. Some teams select an activity
that a loved one enjoyed to honor that
person.
The Longest Day returns on June 21,
2017. For more information, contact
Marcy Schulman, signature events
coordinator, at [email protected] or
1.800.272.3900.

Throughout the month,
teams supporting
The Longest Day
held community
events such as wine
tastings, yoga classes,
and even a formal
“soiree” embracing the
Alzheimer’s Association’s
signature purple.

A L Z H E I M E R ’ S A S S O C I AT I O N • 9
Foundations are valuable partners & supporters
of the Alzheimer’s Association’s mission
The Alzheimer’s Association Greater East Ohio Area
Chapter gratefully acknowledges and thanks the
following foundations for their recent support
• Daniel M. and Maureen O. Gunn Foundation
$3,483 for Education Programs
•W
endy S. Sacks Philanthropic Fund of the Jewish Community Board of Akron
$1,000
• The Bemis Company Foundation
$750 for Memory Café programming
• The Lillian Schermer Charitable Trust
$750
• Seniors and Youth: Partners in Philanthropy – a collaboration between Seton
Catholic School and Laurel Lake Retirement Community
$650 for Memory Café programming
• David Stile and Kathleen Laing Family Philanthropic Fund of the Jewish
Community Board of Akron
$500
• Millican Family Fund of the Akron Community Foundation
$250
For more information, or to discuss grant possibilities,
please contact Marcy Schulman at 1.800.272.3900 or [email protected].
Memory Café offers a fun, safe, and educational
environment for those with early stage memory loss.
Find out more on page 10.
Allocation of Expenses
Financial Information
We respect the right of our donors to know
how their money is being spent to further
the Alzheimer's Association mission.
We are proud to report that the
Association earns high marks from those
agencies whose job it is to monitor the
activities of nonprofit organizations. Find
out more at alz.org.
1 0 • A L Z H E I M E R ’ S A S S O C I AT I O N
C a r eg i v e r S u ppo r t r e s o u r ce s
Memory Café offers fun, safe, educational
space for those with memory loss
Alzheimer’s Association partners with North Canton
Public Library
Imagine the sound of laughter and
fellowship coming from the library
as persons recently diagnosed with
Alzheimer’s disease or a related
disorder take part in a gardening class,
listen to expert guest speakers from
the MAPS Air Museum, or learn to use
Nintendo’s Wii. Thanks to a partnership
between the Alzheimer’s Association
Greater East Ohio Area Chapter and
the North Canton Public Library, that is
happening in North Canton.
Memory Café is a free social
engagement program for those
experiencing early-stage memory loss.
Individuals with early-stage memory
loss often exhibit changes in behavior,
cognition and daily routine. These
changes may cause them to withdraw
from social situations. Memory Café
seeks to offer a fun, safe, educational
space for individuals to meet others
handling similar diagnoses. The
program has already seen success in
Ellet and Portage Lakes in Summit
County.
Meeting once a month at the North
Canton Public Library from 1:00 p.m.
to 2:30 p.m., the first Memory Café on
July 19 featured a speaker on “Healthy
Habits for a Healthier You,” discussing
the latest brain health research,
nutrition and exercise tips, and stress
management.
Attendance at every session is
not necessary, but registration is
required. Register with the Alzheimer’s
Association at [email protected] or
1.800.272.3900.
Upcoming Topics:
North Canton
• Aug. 16: Gardening
• Sept. 20: Nature Exploration
• Oct. 18: Aromatherapy
• Nov. 15: Decoding Symbols in Art
Memory Café also meets monthly in Ellet and Portage
Lakes. To register, contact: 1.800.272.3900.
Savvy Caregiver program coming
to Brunswick
Evidence-based training series reduces adverse
effects of being a caregiver
Taking care of a person with a dementing illness is specialized work. To do this
work successfully, caregivers need special skills and knowledge. They also need an
outlook or attitude that helps them to look after themselves.
Savvy Caregiver is an evidence-based, nationally-implemented training program
for caregivers of a person with memory loss. The program addresses common
challenges and strategies to address them:
• Managing a disease that does not improve
• Understanding the physical, mental, and emotional impact of caregiving
• Helping the person with memory loss remain involved in daily tasks
• Developing important self-care and decision-making skills
The Savvy Caregiver program consists of 6 weekly sessions, with the next Savvy
Caregiver series being held at Cuyahoga Community College Brunswick Campus
in September and October, 2016. Registration is required.
To register, or if you have questions about the program, contact Karen A. Elliott,
MA, LSW, family service coordinator, at [email protected] or 1.800.272.3900.
Map Out a Plan to Approach
Alzheimer’s
There are many questions you’ll need to answer as you
plan for the future. Use Alzheimer’s Navigator – our free
online tool – to guide you as you map out your plan.
Learn more: www.alzheimersnavigator.org
A L Z H E I M E R ’ S A S S O C I AT I O N • 1 1
Contributions Have Been Made in
Memory of the Following Individuals
The Greater East Ohio Area
Chapter depends on friends in
our community to help support
Chapter programs and services
through donations, tributes,
memorials, and bequests.
❀
Memorial Funds:
Beverly A. Chiron Alzheimer’s
Education Fund
In Memory of:
• Eva Crow
• Carol Meadows
Ethel Schwartz Rossen Memorial
Fund
In Memory of:
• Nancy Ladd
Neil Shira Memorial Fund
In Memory of:
• Neil Shira
In honor Of:
Mr. & Mrs. Robert Kohrs
Ms. Donna Phillips
In Memory Of:
Justine Amos
Phyllis Ashton-Reed
Betty Lou Ausel
Constance Bailey
Marlene Bailey
Margaret Baker
Grace Balogh
Mr. and Mrs. James
Bechter
Rosemary Bensman
Joseph Billey
June Bish
Lou Blaney
Conrad Boden
Leonard Boden
John Boess
Marie Bohl
Anthony Bonanno
Paul Boslett
Patricia "Pat" Bovo
Margaret Bowen
Charlotte Brenneman
Rita Brown
Robert Bruno
Wilfred Buchanan
Thomas Byers
Almedia Byler
Beverly Callahan
Mary Cameron
Harry and Helene
Carmany
Jackie Carper
Dora Clegg
Madeline Corney
Charles Croley
Dennis Cunningham
Teresa Curcic
Isabel Daguanno
Mr. and Mrs. Jack Dean
Marilyn Dearing
Annette Delbeccaro
Winnie Derry
Decatur Dilday
Ramon Dimascio
Rose Dreher
Wesley Dunlap
Francis "Jimmie" Dye
Iola Elliott
Fred Emery
Charles Evans
Janice Evans
James W. Ferber, Sr.
Ms. Ophelia Ferber
Joan Fickes
Betty Lou Fike
Barbara Fleischer
Ed Fleming
Elsie "Sue" Fleming
Rose Mary Fleming
Shirley Fleming
Patricia Fretwell
Walter Gabica
Verl Garster
Betty Gaydos
Catherine Gearhart
Hariette Geisinger
Gerald Gielink
Mary Giovanini
Barbara Glass
Marilyn Goldberg
Deanna Goulden
Robert Graber
Evelyn Grant
Mrs. Rita Greaves
Kenneth Greiner
Virginia Gruitza
Mr. and Mrs. Virginia
Hamilton
Norman Hartline
Robert Hatton
James Herman
Mary Hill
Naomi Hilton
Patricia Holt
Margaret Hood
Billie Hooper
June Huber
Shirley Humrichouser
Mary Hurley
Raymond Imassci
Mr. and Mrs. Martino Iuso
Robert Jackson
Alice Jacob
Verna Jakupcin
Bill Jones
Dorothy May Joy
Paula Junkins
Esther Kail
John Kalbfleisch
Nancy Karabinus
Tandra Keenan
Alene Kelly
Earlene Kisamore
Georgianna Koch
Joseph Kreuz
Mr. Michael Kropko
Ralph Kubal
Barbara Kurth
Robert Lancashire
Jim Lendon
Theresa Leonhardt
Gary Lewis
Elio Lori
Patricia Lundstrom
Regina Lunich
Ruth Magoulick
Frank Majecic
Justin Malice
Dorothy Malyk
Mary Martin
Ron Mason
Anthony Massaroni
Doris Mathers
Yolanda Mayor
Wilma Mccleary
Dorothy Mckinney
Carol Meadows
Beulah Miller
John T. Mills, Sr.
Julia Miscevich
Joyce Moon
Alice MorRow
John Myers
Bett Mylett
Hazel Orr
Beverly Parker
Dorothy Parrish
❀
Mabel Pastva
John Perkowski
Mary Perry
Gene Peyko
James Oliver Pigg
Mr. Charles Pilliod
Carole Pletzer
Marti Rainone
Mavis Ralston
Kenneth Ray
Dolly Recht
Margaret Reda
Irene Reischman
Ms. Dawn Reynolds
John Riachy
Fred "Fuzz" Richards
Louise Richards
Doris Rihm
Marjorie Rinard
Barbara Roberts
Gertrude Rossman
Oliva Ruszin
Ron Samples
Joseph Santarelli
Geraldine Schaefer
Richard "Dick" Scheeser
Elizabeth "Betty"
Schindler
Helen Schmidt
GeraLd Scott
George Sefcik
Joseph Segatta
Marian Shapley
Jane Siburt
Ms. Jean Slicker
Don Smith
Mildred Smyth
James Steele
Margaret Steele
Stephen Steinmetz
Margaret May Stephan
Joseph Stulac, Sr.
Ella Swartz
Jim Sweeny
Arlene Szekely
Richard Teachout
Annette Thompson
Ms. Mary Tice
Don Tisch
Daisy Tomei
Madeline Toth
Major Delbert Lee Van
Gorder
Della Vargo
Stephen Vargo
Stella Velichko
Felix Vicknair
Sophie Vitale
Virginia Walburn
Carol Walters
Olive Warren
Michael Wells
Violet "Dixie" Wendell
Leila "Lee" Werner
Carolyn Wharton
William White
Ed Willis
Margaret A. Woessner
Foster R. Wolf
Allen Wyman
Mavis Young
Mildred Zateslo
Anna Mae Zofko
®
J U LY - D E C E M B E R 2 0 1 6
Profile – Caregiver Support Facilitator
 Mickey Meelich
Hubbard Support
Group
Group in Hubbard, as well as her
compassion and ability to provide
emotional support.
needed to take care of Ma full-time, so
I quit working and became a full-time
caregiver.”
She first noticed her mother’s
symptoms over the phone, when
her mother would forget names or
repeat herself. During a visit home,
Mickey took her mother to a doctor’s
appointment that resulted in an
Alzheimer’s diagnosis.
Mickey felt many emotions as a
caregiver: denial, anger, sadness
and acceptance. In handling her new
responsibilities, she found comfort
attending support groups.
“My new journey started. I asked for a
transfer to move back to Ohio. When I
moved back into the house with Ma, I
had a restroom installed with a walk-in
shower, preparing for what I knew the
future would bring.”
“Thirty years ago, I was living in
Georgia, carefree. Twenty years later,
I moved home to be my mother’s
caregiver. Two years ago, I was holding
my mother in my arms as she passed
away at home.”
Mickey brings her personal experience
as a caregiver for her mother, Marilou,
to the Alzheimer’s Caregiver Support
Determined to keep her mother at
home, she implemented numerous
changes including additional locks on
the doors and pulling the carpet for
her mother’s walker. “I promised my
father, who passed away when I was
very young, that I would take care of
Ma.”
“Our roles had changed. I was now
her mother, and she was my child. I
made all decisions for her. My job was
not my priority anymore. I knew that I
“This was very helpful. I knew others
that had the same concerns as I did
about being a caregiver. They became
my new family, and I felt that I could
say anything and still be understood.”
Mickey would become a facilitator for
the Hubbard support group in 2013.
Her mother lived at home until she
passed away in 2014.
“I needed to give back, and I wanted
to make a difference. When I hear
the stories of others, I know in my
heart what it is to have suffered these
emotional days. I would sleep on
the couch so I could hear Ma if she
needed me.
Mickey has since started working with
her brother-in-law at Komara Jewelers
in Canfield, and volunteers on the
Youngstown Paint the Night Purple
committee and on the Mahoning
Valley Walk to End Alzheimer’s
planning committee.
“She would always say she was sorry
when she had an accident, or when
she couldn’t remember a name. I’m
sorry. I’m sorry that someone has to
suffer like she did: to not know your
own name, or the names of your family
members. To lose memories of all the
love and laughter that was shared. I
will continue to help others and pray
we find a cure.”
How You Can Help
Meeting on a monthly basis, we offer
caregiver support groups across our
chapter area to provide a consistent
and caring place for discussion of
the challenges of caregiving. We are
currently seeking facilitators, or cofacilitators, for support groups in the
following areas:
• Fairlawn
• Hubbard
I would cry myself to sleep because I
worried that I was not doing enough
for Ma to be happy.”
For more information on the role
or to get involved, please contact
Carolyn Lake at [email protected] or
1.800.272.3900.
HUDSON
St. Mary’s Catholic Church, Rm 104
340 North Main St.
3rd Thursday, 7:00 p.m.
ST. CLAIRSVILLE
St. Mary's Church
212 W. Main St.
Parrish Hall Basement
4th Tuesday, 1:00 p.m.
Caregiver Support Group Monthly Meetings
First time attendees: Please contact the HelpLine at 1.800.272.3900
to confirm the date, time and location.
ALLIANCE
Rodman Public Library
215 E. Broadway St.
Last Thursday, 2:00 p.m.
COSHOCTON
Health Services of Coshocton
230 S. 4th St
Last Thursday, 4:00 p.m.
BARBERTON
Barberton Public Library
602 West Park Ave.
1st Wednesday, 6:30 p.m.
CUYAHOGA FALLS
First United Methodist Church
245 Portage Trail
1st Tuesday, 1:00 p.m.
BRUNSWICK
Heimatland Party Center
3511 Center Rd.
2nd Tuesday, 1:00 p.m.
DOVER
Union Hospital
Reeves South Conference Rm.
659 Boulevard St.
3rd Tuesday, 7:00 p.m.
CAMBRIDGE
Guernsey County Senior Center
1022 Carlisle Ave.
2nd Tuesday, 1:30 p.m.
CANFIELD
Canfield United Methodist Church
27 South Broad St.
4th Thursday, 1:30 p.m.
FAIRLAWN/AKRON
Fairlawn Lutheran Church
3415 W. Market, Akron
4th Thursday, 2:00 p.m.
GREEN
Green Branch Library
4046 Massillon Rd.
Last Monday, 6:15 p.m.
MASSILLON
Affinity Medical, Massillon Campus
875 Eighth St NE
1st Floor, Conference Room 1
2nd Tuesday, 6:00 p.m.
MILLERSBURG
Martin's Creek Mennonite Church
6111 County Rd. 203
3rd Monday, 6:00 p.m
MINERVA
Y.M.C.A.
687 Lynwood Dr.
1st Thursday, 6:30 p.m.
STEUBENVILLE
Eastern Gateway Community College
4000 Sunset Blvd., Room 1506
3rd Thursday, 6:00 p.m.
TALLMADGE
First Congregational Church
85 Heritage Dr.
Last Tuesday, 11:00 a.m.
WADSWORTH
Soprema Senior Center and Cafe
617 School Dr.
1st Thursday, 1:00 p.m.
NORTH JACKSON
Antonine Sister’s Adult Day Center
2675 North Lipkey Rd.
3rd Monday, 2:00 p.m.
WARREN
Trumbull Memorial Hospital
1350 East Market St.
Conference Room F
3rd Wednesday, 10:00 a.m.
CANTON DAY
Faith United Methodist Church
300 9th St. NW, North Canton
3rd Thursday, 1:00 p.m.
(MENS)
West Side Bakery
1840 TownPark Blvd.
3rd Tuesday, 1:00 p.m.
ORRVILLE
Trinity United Methodist Church
1556 Rex Dr.
1th Wednesday, 1:00 p.m.
WOOSTER
Wooster United Methodist Church
243 North Market St.
3rd Wednesday, 1:00 p.m.
CANTON EVENING
Sirak Financial Building
4700 Dressler Rd. NW, Suite 200
4th Tuesday, 6:00 p.m.
HOWLAND
Howland United Methodist Church
730 Howland-Wilson Rd. NE
2nd Tuesday, 7:00 p.m.
RAVENNA
UH Portage Medical Center
6847 North Chestnut St., Rm. A
1st Tuesday, 6:30 p.m.
ZANESVILLE
Trinity United Presbyterian Church
830 Military Rd.
2nd Tuesday, 6:00 p.m