Patients letters “When I discovered I had breast cancer in June of last year my biggest fear was that I would lose my hair. I know that sounds vain but it was the one thing that makes your illness so apparent to everyone and I wanted my life, & that of my husband and children to go on as normal. Scalp cooling enabled me to lead a completely normal life. I kept my self esteem and dignity. My illness would have been 100% more difficult for me if I had not used the system. I wouldn't have felt confident enough to go out as much and my life would have taken longer to get back to normal. Quality of Life Hair is important to everyone’s appearance and self-image. You will probably feel shocked, anxious and angry when you are told you may lose your hair as a result of chemotherapy treatment. Some people feel that this threatens their feelings of self confidence and ultimately their quality of life. Hair loss with chemotherapy Hair loss is one of the most well known side effects of chemotherapy. Many people assume that chemotherapy always causes hair loss but this isn’t true. Some drugs cause none at all, however certain drugs do cause partial or complete alopecia, which means all body hair is temporarily lost – eyelashes, eyebrows, pubic hair and so on. Hair loss may start within a couple of days of beginning treatment or may not occur for some weeks. Scalp Cooling Scalp cooling is a method used to prevent or reduce hair loss for patients receiving chemotherapy. Research and studies have shown that scalp cooling can be effective across a wide range of chemotherapy drugs such as; Epirubicin, Doxorubicin, Taxol and Taxotere. Successful scalp cooling depends on many factors - one very important factor is how you treat and look after your hair. Hair care during chemotherapy & scalp cooling treatment I finished my chemo on the 1st February 2006 and I cannot stress strongly enough how I feel that all women who want to try to retain their hair should be given the opportunity. I was able to have my hair cut once during treatment and I continued to colour it with a natural hair dye.” Debra Wolfe Bristol “That moment of being told or realising yourself, that the next stage in managing your cancer is chemotherapy is yet another sickening moment along the journey towards overcoming cancer. Then there's that awful realisation that having gone through what you have already gone through, you are now about to lose your hair. I suddenly realised when faced with chemo myself I didn't want people to think that I was ill because my hair was gone. I also wanted to continue to work through out my chemo. I'm a management consultant and trainer how could I arrive at my clients bald - I mean I'm not an eagle!? Almost the first thing the oncologist and chemo nurses said was to accept that I would lose my hair, but that of course that it would grow back. Well excuse me I had - and still have after completing chemo shoulder length blonde hair........ Enter the Paxman cooling cap..... I sit here with my hair now longer than ever and actually in far better condition than it's been in for decades! I feel like a human being, a woman, and my wonderful friends and family say I look great and throughout my chemo I 'got out there' and amazed my clients". Isobel Heaton Cheltenham When we are unwell or below par we often notice that our hair doesn’t have the same bounce or condition as usual. Chemotherapy can cause your hair to become dry and brittle, therefore whatever treatment you are receiving, pay special attention in caring for your hair and treat it as gently as possible. Try to avoid applying any stress, aggression, pressure or heat to your hair. The following advice can be very helpful in achieving a successful outcome. Caring for your hair when receiving scalp cooling during chemotherapy International House Penistone Road, Fenay Bridge Huddersfield HD8 0LE T: +44 (0) 1484 349 444 F: +44 (0) 1484 346 456 Email: [email protected] www.paxman-coolers.co.uk An information leaflet sponsored by Paxman Coolers Ltd Helping to relie ve the visi ble tr auma of ancer c Hair Care Washing Your Hair Colouring Your Hair • Don’t be afraid to brush or comb your hair daily but remember do it gently using a wide-toothed comb or a soft hairbrush, such as one for a baby. • When washing your hair always use neutral ph balanced 5.5 or natural herbal type shampoos and conditioners that help nourish and encourage healthy hair. • If you usually tie your hair back use ribbons or soft scrunchies rather than elastic type bands which can easily damage the hair. • Avoid products higher in acids or alkaline such as baby shampoo (alkaline). Although it is not recommended to colour your hair while having scalp cooling a number of patients have used a nonpermanent natural vegetable-based colouring product, which usually last from 3-6 weeks. (Try to avoid some Henna products which can contain ammonia and peroxide). This type of colouring product can be obtained from high street outlets or natural health stores. • Don’t plait your hair as this may damage it. • Always wash your hair with tepid not hot water. • Don’t perm your hair. • Gently apply shampoo and conditioner to your hair - do not be aggressive. • Don’t subject your hair to excessive heat, for example hair dryers, hair straighteners, heated rollers etc. • Let your hair dry naturally if possible or pat your hair dry using a soft towel - do not rub it. • Don’t use hair products that contain harsh chemicals, such as hair dyes, perms, gels and sprays. • If using a hair dryer use the cold air setting only and avoid rubbing your hair as you dry it. • Only use natural ph balanced herbal or vegetable based products which nourish and encourage healthy hair. • Try and limit the number of times you wash your hair to twice a week if possible. • Sleep on a pillow fitted with a silk/satin type pillow case. • When having chemotherapy/scalp cooling treatment it is recommended to wash your hair 24 to 48 hours before treatment. • If you have long hair use a silk/satin hair net to sleep in to avoid your hair getting tangled. • Try to not wash your hair for at least 24 hours following chemotherapy/scalp cooling treatment. If you do decide to colour your hair it is recommended that you initially colour your hair at least one week before starting your first chemotherapy/scalp cooling treatment cycle, ensuring to use only a non-permanent natural vegetable based product. Thereafter for patients receiving 3 weekly cycles of chemotherapy further colouring of your hair should again be done the week before receiving your chemotherapy/scalp cooling treatment. For patients on weekly cycles of chemotherapy it is recommended that colouring your hair is done 4/5 days after receiving your chemotherapy/scalp cooling treatment. Hairdressers Visiting your hairdresser while receiving chemotherapy/scalp cooling treatment is not advisable. However if you feel you do need to go to the hairdresser, maybe to have your hair cut, make sure they are fully aware that you are receiving chemotherapy and scalp cooling treatment. Provide them with this information leaflet as it may help minimise any potential hair loss. Please be advised that should you choose to colour your hair or visit your hairdresser this may affect the success of the scalp cooling treatment and lead to increased hair loss. The key factor to help achieve a successful outcome is to be as gentle as possible with your hair. Remember do not subject your hair to any stress, aggression, pressure or heat during your chemotherapy/scalp cooling treatment. It is advisable to continue with the same practices for a period of 6 – 8 weeks following your last treatment cycle. Patient Debra Wolfe following chemotherapy and scalp cooling treatment For further advice speak with your nursing staff or help support group.
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