Find Help for Low Vision For people with low vision, everyday activities can be a challenge. People with low vision don’t see well even with standard glasses, contact lenses, surgery, or medicine. They may have trouble reading traffic signs or recognizing faces. It can be challenging to match clothes of different colors. The lighting in a room may often seem too dim. Low vision can be caused by an eye injury or a disease such as glaucoma. Glaucoma damages the nerves that carry visual signals from the eye to the brain. Millions of Americans have low vision. Most are over age 65. If you have a problem with your vision, you should see a doctor right away. The sooner an eye problem is detected and treated, the greater your chance of keeping your remaining vision. Some eye doctors specialize in helping people with low vision. These specialists can help you cope with vision loss. They can teach you new ways to do everyday tasks. They can also offer training and devices to help with reading, cooking, shopping, and other activities. “A vision rehabilitation plan helps people reach their true visual potential when nothing more can be done from a medical or surgical standpoint,” says Dr. Mark Wilkinson, a low vision specialist at the University of Iowa Hospitals and Clinics. The National Institute of Health offers many resources to help people with low vision. A 20-page booklet, Living With Low Vision:What you should know and companion video feature inspiring stories of people living with low vision.You can find these and other resources at www.nei.nih.gov/lowvision. Reprinted from the National Institutes of Health’s NIH News in Health. For more information, visit: www.newsinhealth.nih.gov Inside This Issue: Find Help for Low Vision ...........................................................................................................................................................1 HVA Supports Healthy Vision Around the World.............................................................................................................2-3 1 Touch; Guiding Eyes for the Blind; DGCkids My Association Saving Benefits Perks Program.....................................................................................................................4 Health Notes ................................................................................................................................................................................5 Recovery Time for Sports Concussions; Scleroderma Affects Skin and More HVA Supports Healthy Vision Around the World Every year, Healthy Vision Association sponsors a variety of organizations that promote healthy vision. We'd like to highlight the following organizations, which HVA partnered with in 2017. “I am a woman who is hearing impaired and going blind. Since taking 1Touch training, I have become more confident, and more aware of my environment in a positive way. 1Touch has given me tools that I can use to defend myself should the need arise. A friend noticed the difference, noting the way I carried myself and speak with confidence. This can literally change you for the better – it did for me.Thank you!” 1Touch The 1Touch Project is a non-profit organization serving thousands of people with disabilities on a national level. The 1Touch works with people of ages 4 and up, as well as working extensively with the Veterans Administration. The 1Touch provides adapted self-defense courses which have had positive impacts in terms of increasing confidence, awareness, and state of general physical and mental wellbeing. Serving over 2,800 people in 2015 alone, the 1Touch is expanding exponentially, with 53 active coaches and over 70 trainee coaches all over the U.S. The 1Touch Project addresses issues faced by the blind community as well as of those with mobility impairments. These include things such as safety while travelling and addressing conflict situations appropriately. Although the main principal of the 1Touch is non-violence, and to avoid violence at all possible costs, the program provides vital information which can be utilized by any individual, if absolutely necessary. “Living with vision loss is hard enough; fearing for my safety makes it even more challenging. The 1Touch program has taken away that fear and allows me to live my life with confidence”! If you would like to find out more about the 1Touch Project, please visit our website www.1touchproject.com or email [email protected] Guiding Eyes for the Blind Guiding Eyes for the Blind is a not-for-profit guide dog training school headquartered in Yorktown Heights, NY. We make a profound and immediate difference in peoples’ lives by creating and supporting life-changing connections between people who are blind or visually impaired and exceptional dogs. By making the strongest connections possible, Guiding Eyes for the Blind helps people find new confidence to tackle all life’s adventures, no matter how big or how small. It takes nearly two years to prepare and train a guide dog. With highly personalized instruction, the student and the dog learn how to navigate specific situations and gain confidence. Guiding Eyes is the first guide dog school to train guide dogs to guide at both a walking and running pace. 1Touch is used by both professionals and people with disabilities. Here is what some of them have to say: “Along with proper rehabilitation training, this program has the potential to make an important difference in the lives of blind people, by helping them to develop both the sense of confidence and security that will allow them to truly achieve independence.” Our special needs program is one of the only programs in the country that provides guide dogs to students with disabilities in addition to blindness such as cerebral palsy, balance problems, and hearing impairments, including individuals who are deaf-blind and communicate by American Sign Language. “For years now, students have been asking me if I know of any self-defense courses appropriate to blind people. I finally have a program to recommend to them! The instruction was excellent, and I couldn’t be happier with the learning experience.” Guiding Eyes provides outreach to potential students nationwide to make them aware of our services. Students live on campus and receive instruction during their 21-day stay at our Training Center, or through the continued on page 3 Home Training Program. 2 HVA Supports Healthy Vision Around the World, continued "DGCkids helped shape not only Jackson's life, but ours as well.With their help, we were able to provide Jackson the support he needed to excel.You never know how much vision you use to get through a day until you have to be someone else's eyes, and because of DGCkids, I can be the eyes Jackson needs.We are and will be forever grateful for the love and support they showed our family at the time when we needed it the most,” said Amanda Piazza, mother of five year old Jackson. Jackson has been receiving services from DGCkids since he was diagnosed at six months with bilateral optic nerve hypoplasia. There are 1,000 Guiding Eyes teams actively working in the United States and abroad. It costs nearly $50,000 to raise and train each dog and all guide dog services are provided at no cost, which is why donations are crucial. To find out more about Guiding Eyes for the Blind please visit www.GuidingEyes.org. With approximately 85% of learning occurring naturally through observation of people, places and action around us, vision plays an important role in a child’s development.We don’t think about it, but sight is the sense that gives us the most access to our world. Children who are blind or visually impaired from birth, or shortly thereafter, have unique learning needs. Teachers of the visually impaired teach parents how to help their children use their limited vision to their maximum potential and how to develop compensatory skills by using all of their senses. DGCkids provides innovative programs and life-changing experiences for children and their families through a comprehensive system of specialized services, support and life-enhancing activities including tandem-cycling, hiking, climbing, music, dramatic arts, community outings and more. For more information about DGCkids visit www.dgckids.org. DGCkids Healthy Vision Association teams up with DGCkids (Delta Gamma Center for Children with Visual Impairments) in support of children who are blind or visually impaired. HVA is honored to be the presenting sponsor at the 25th Annual Run for Sight, coming up this May 7th at Ballpark Village St. Louis. HVA continues to support these great organizations: • • • • • • Since 1951, DGCkids has served with the mission of helping children who are blind or visually impaired reach their full potential through family-centered, specialized services, and community support. DGCkids provides comprehensive programs for children, birth through high school graduation. • Services provided to its youngest clients (birth-age 3) are focused on education and developmental support for both children and their parents. These services include home based education, therapy, and low vision evaluations for infants and toddlers. Group and individual family support services offer information and education, short term counseling, family activities and parent to parent connections. Services for school age children, ages three years through high school graduation, focus on social development and independence. Children and youth with visual impairments participate in a wide array of recreational and community activities that lead to greater independence and enhanced social skills. • • • • • • • • • • • • 3 Prevent Blindness – http://www.preventblindness.org Optometry Giving Sight – http://www.givingsight.org America's VetDogs – http://www.vetdogs.org Himalayan Cataract Project – http://www.cureblindness.org The Seeing Eye – http://www.seeingeye.org United States Association of Blind Athletes (USABA) – http://www.usaba.org Eye Care Charity of Mid-America (ECCOMA) – http://www.eccoma.org Macula Vision Research Foundation – http://www.mvrf.org Children’s Center for the Visually Impaired (CCVI) – http://www.ccvi.org Guiding Eyes for the Blind – http://www.guidingeyes.org Team Activities for Special Kids (TASK) – http://www.tasksports.org Mercy Ships – http://www.mercyships.org Delta Gamma Center for Children with Visual Impairments – http://www.dgckids.org 1Touch Project – http://www.1touchproject.com ARCHS FBO Kids Vision for Life – http://www.kidsvisionforlifestlouis.com Unite for Sight – http://www.uniteforsight.org Folsom Project for the Visually Impaired UMSL College of Optometry Curators of the University of Missouri MUOT Tiger OT Low Vision Program Join the My Association Saving Benefits Perks Program! My Association Saving Benefits provides members with exclusive perks and over $4,500 in savings on everything from pizza and the zoo, to movie tickets, oil changes, hotels, and car rentals! Popular Features Include: • • • • Nearby Offers: Use our show & save mobile coupons to quickly access savings on the go. eTickets On Demand: Save up to 40% with no hidden fees. Show times: Find movies, watch trailers, and save up to 40% at a theater near you. Monthly Giveaways: Win cash, movie tickets, electronics and more with our monthly contests. And, with over 102,000 available discounts across 10,000 cities in the United States and Canada, you'll never be far from savings! REGISTER & LOG IN –– https://masb.abenity.com/login use code: masb 4 TIPS TO GET YOU STARTED 1. Easy Mobile Access: Drop an app icon on your phone or download our iPhone app, learn how at http://prks.co/MobileApp 2. Perks 101 Support: Register for the next perks webinar and watch our "How To" videos at http://masb.abenity.com/perks/about 3. Monthly Emails: Subscribe to our newsletters and be the first to know about new discounts and giveaways at http://masb.abenity.com/perks/profile 4. Connect: Share your savings stories and ideas with us at Facebook.com/ Abenity and Twitter.com/Abenity using #LifeHasPerks 4 Health Notes Scleroderma Affects Skin and More Recovery Time for Sports Concussions Scleroderma is a group of diseases that affect the body’s connective tissue, which supports the skin and internal organs. Skin, blood vessels, or other tissues may become hard or thick. Swelling or pain may arise in muscles and joints. Scleroderma can occur in people of all ages, races, and ethnic groups. For unknown reasons, it’s more common in women than men. A brain injury-related protein may one day help doctors know when they can safely send young athletes with concussions back into the game. Millions of sports-related mild brain injuries, or concussions, happen in the U.S. each year. Returning to play before you’re fully recovered can be dangerous. It raises the risk for long-term symptoms like headaches, dizziness, and problems with mental function after future concussions. After a severe brain injury, the brain makes more of a protein called tau. An NIH-led research team looked at changes in blood levels of tau after sports-related concussions to see if tau levels relate to recovery times. The scientists measured both tau levels and mental performance in 632 college athletes before their seasons began. Athletes played a range of sports, including soccer, football, basketball, hockey, or lacrosse. Concussed athletes who needed more than 10 days before returning to play had higher tau levels on average than athletes who were able to return in 10 days or less. This was true for both male and female athletes, and across the different sports studied. The findings suggest that changes in tau levels after a concussion may signal when young athletes can safely return to play. Scientists continue to study this and other ways to track concussion recovery. Keeping athletes safer from long-term consequences of concussions is important to players, coaches, parents, and fans,” says Dr. Patricia A. Grady, director of NIH’s National Institute of Nursing Research. “In the future, this research may help to develop a reliable and fast clinical lab test that can identify athletes at higher risk for chronic post-concussion symptoms.” References: Acute plasma tau relates to prolonged return to play after concussion. Gill J, Merchant-Borna K, Jeromin A, Livingston W, Bazarian J. Neurology. 2017 Feb 7;88(6): 595-602. doi: 10.1212/WNL.0000000000003587. PMID: 28062722. 5 Scleroderma symptoms vary widely and are similar to other diseases. This can make the condition hard to diagnose. There are 2 main types: localized and systemic. Localized scleroderma usually affects only the skin, which becomes hard and tight. It may improve without treatment. But severe cases can leave skin damaged. Systemic scleroderma is often more serious. It can affect the skin, tissues under it, blood vessels, and major organs, such as the heart, lungs, and kidneys. Scientists are not yet certain what causes scleroderma. It sometimes runs in families. But it also occurs in people without a family history of the disease. Scleroderma isn’t contagious, so you can’t “catch” the disorder from someone who has it. NIH-funded scientists are actively working to find related genes and test potential therapies and diagnostics.You can learn more about scleroderma at www.niams.nih.gov/Health_Info/Scleroderma. Articles in the Health Notes section reprinted from the National Institutes of Health’s NIH News in Health. For more information, visit: www.newsinhealth.nih.gov
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