Tasmanian Catholic Justice and Peace Commission Bringing about change by actively challenging injustice and promoting peace A Submission To The New Royal Project SOCIAL ISSUES and OPPORTUNITIES Department of Health and Human Services Submitted by The Tasmanian Catholic Justice and Peace Commission November 2008 GPO Box 62, Hobart, 7001 Email [email protected] Phone (03) 6208 6271 Website www.tasjustice.org Fax (03) 6208 6299 1 Introduction to the Tasmanian Catholic Justice and Peace Commission The Tasmanian Catholic Justice and Peace Commission was formed in 1992 and is responsible to the Archbishop of Hobart. There are a maximum of 11 Commissioners appointed by the Archbishop. The Commission meets formally five times a year. Its aims and objectives are: To promote understanding and awareness of Catholic Social Teaching, particularly in the areas of justice, peace and ecology, and to assist the people of the Archdiocese to better integrate this understanding within an evolving Christian lifestyle. To support and develop critical thinking and social action skills in parishioners. To work in a collaborative way with Church and outside organisations in research, social analysis, social action and prayer to promote social justice in Tasmania. To advise the Archbishop and the wider Catholic community in Tasmania about social justice issues. To engage in research and analysis of current social justice issues, including policy preparation. 2 Background We are all one people, each created in the image and likeness of God. The justice we render to one person is justice we render to every human being – and to Christ himself. That sense of universal relationship is at the heart of Christ’s compassion and healing – the example he gave his disciples throughout his public ministry. 1 When we live in a seemingly affluent society with economic prosperity and people have inadequate access to healthcare, this is an injustice. It is not an issue of ‘charity’. ‘When we attend to the needs of those in want, we give them what is theirs, not ours. More than performing works of mercy, we are paying a debt of justice’2. This is the basis of argument from which policy should be derived. Eradicating poverty is not an act of charity, it is doing justice. The social teachings of the Catholic Church include the principles of human dignity and promoting the common good. Access to health care maintains the dignity of the individual and improves the common good of society, physically, economically and spiritually. The Tasmanian Catholic Justice and Peace Commission (TCJPC) is primarily concerned with the issue of equitable access in regards to both the new Royal Hobart Hospital (RHH) and the current health care system in Tasmania. Access to health care is not a privilege but a right. 1 Australian Catholic Bishops Conference (2008) A Rich Young Nation: The Challenge of affluence and poverty in Australia, p.7. 2 Saint Gregory the Great, Regula Pastoralis, 3, 21: PL 77, 87: “Nam cum qualibet necessaria indigentibus ministramus, sua illis reddimus, non nostra largimur; iustitiae potius debitum soluimus, quam misericordiae opera implemus”. 3 The 2004 Richardson Report highlighted the various difficulties within the Tasmanian public and private hospital systems in great detail. It stated that the public system is performing poorly on a number of key indicators. The current RHH is a ‘pertinent example of the decline’ of that system. The aim of a new tertiary level hospital is to remedy many faults of the current system. Unless the new RHH is constructed within a model of state wide services improvement, the endeavour will be fruitless. ‘The hospital system will only be efficient if there is coordination between both the different levels of hospital care and between hospital, primary health care, and other ambulatory services’. Whilst the new RHH has been designated as the single tertiary level hospital in the state, without structural change of the system, equitable access will continue to be an issue. An effective system would be one in which the RHH provides general services to the South and complex services to the whole state, with LGH and the North West Regional Hospital (NWRH) providing general services only to their populations and looking to RHH as the next level. This would be a united system for all Tasmania. Given universal access is not possible in practice, creating equitable access must be a paramount consideration. In order to achieve equitable access for all Tasmanians requiring tertiary care, services and facilities at the new RHH and its surrounds must be developed and improved from the current state of services. 4 Defining Access Access to ‘enough’ medical care is a right under the United Nations Universal Declaration of Human Rights (Article 25). ‘Enough’ medical care implies equitable access to care. However, the term ‘equitable access’ is a much used, but ill defined expression. At a fundamental level, there is a lack of agreement on what it actually means and how it is measured. Arguably ‘this lack of consensus on the definition and operationali[s]ation of the concept has hampered progress in generating and applying knowledge to identify and strengthen pathways between access and health outcomes’.3 In terms of policy making, ‘the absence of a commonly accepted specific definition of ‘equitable access’ is problematic, because governments are left without a reference point against which to judge the consistency of their health care policies’.4 The word ‘access’ has many facets. ‘It can mean the time it takes to travel to a services location under normal circumstance; the time it takes to receive treatment in the case of accident or sudden illness; the ease with which family and friends may visit the patient to offer support; or the waiting time to receive treatment for non-emergency needs’ (Rural Resources Unit, 1994). It should also mean no group is discriminated against in access. This is equitable access. ‘The importance of equitable access to services cannot be overestimated’5. Differences in access to health care can have far-reaching consequences. 3 Equitable Access to Health Care and Infectious Disease Control: Concepts, Measurement and Interventions Report of an International Symposium, 13-15 February 2006, Rio de Janeiro, Brazil (CN19). 4 Oliver, Adam J. & Mossialos, Elias (2004) “Equity of access to health care: outlining the foundations for action” in Journal of Epidemiology and Community Health, 58 (8), pp 655-658. 5 The Tasmanian Hospital System: Reforms for the 21st Century (2004) p. 59. 5 How Does the Current Inequity of Access Affect Tasmanians? The Richardson report identified a number of health issues facing all Australian governments, including the ageing of the population, the increased cost of new health technologies, the increasing cost of recruiting and retaining specialist staff, and the need to maintain the highest standards of patient care.6 Tasmania is at a disadvantage compared to other states and territories.7 Tasmanians have a lower average life expectancy at birth than the national average. The cancer death rate is the highest in the country. The diabetes and suicide death rates are second only to the Northern Territory. A higher proportion of Tasmanians die from heart disease and have chronic diseases such as asthma and arthritis than the national average.8 Creating and Maintaining Equitable Access at the New RHH The TCJPC has identified several groups that suffer distinct disadvantage under the current Tasmanian healthcare system. Groups that urgently need greater access to tertiary health care include: - Northern, regional and rural Tasmanians. - People with mental illnesses. - Pregnant Women and Children. - Families with low income. - Elderly persons. - Single people. 6 Note 3 at 5. Note 3 at 5. 8 An Unfair State? Poverty, Disadvantage and Exclusion in Tasmania, TasCOSS report, October 2007. 7 6 This submission will look at the access issues particular to each of the groups and identify any common themes. Northern, regional and rural Tasmanians The primary issues for Northern, regional and rural Tasmanians are as follows: - Transport; - Accommodation; - Effective collaboration of primary and tertiary services. The new RHH must take into consideration systems of affordable transport to its doors that are not primarily private (i.e. patient’s cars). Ineffective and expensive modes of private transport are a barrier for rural individuals seeking health services. The Richardson report stated ‘that the ambulance and patient transport services may be readily upgraded to provide access to care, without loss of quality or increased risk of death’.9 Inadequate and expensive transport puts further strain on the ambulance system. Ambulances are often required by patients in a non-emergency situation because they have no other means of transportation. In addition to public transport considerations, the new RHH must consider easy patient/traffic access, patient parking, disabled parking, a pick up and dispatch area for patients. 9 Note 3 at 105. 7 Given the new RHH will be designated as the single tertiary care site in Tasmania, it is of utmost importance that consideration be given to accommodation services for Northern, regional and rural Tasmanians travelling for treatment. This accommodation must be of an acceptable basic standard and ideally be located in as close proximity to the new RHH as is practical. This accommodation ought to be subsidised if not free to immediate family or primary carers. If not subsidised then it should be affordable to individuals on income support or pensions. In addition to the accommodation itself, there must be ready access to services such as childcare, internet, phone and banking facilities. Also the accommodation should be near retail services such dry cleaning, newsagency/gift shop, chemist, coffee shop, florist, post office etc. In terms of facilities for visitors on site, there should be after hours meal facilities, a safe area for visiting children with safe outdoor play equipment, private area/family rooms for discussions with families for all patient issues including bad news, common recreational rooms for families and patients, a private area for patient/visitors to use phone, an outside green area, sufficient security to ensure safety of staff, visitors and patients. A holistic view to patient care recognises the importance of family and friends to aid recovery. Creating an environment conducive to visitors by providing accommodation and appropriate facilities is beneficial to patients. Effective collaboration is needed between primary and tertiary health care services. This is particularly pertinent in the case of rural health. A piecemeal approach to service delivery leaves patients confused and agitated. Patients should not have to travel unnecessarily to tertiary facilities for primary services. There needs to be provision for tertiary services based at the RHH to have out- 8 reach clinics and diagnostic capacity in regional centres to limit the need to travel to Hobart. A review of how services are delivered at the RHH demonstrates a lack of integration and partnering with associated service providers. The implications of this are that strong inpatient-based models exist with an inability to divest components of care to community-based services and other service providers with any degree of success. 10 People with Mental Illnesses The primary areas of concern for people with mental illnesses are: - The lack of access to trained Psychiatrists working in the public sector. - The lack of access to collaborative mental health services. - Their over-representation in the prison population often due to lack of access to appropriate care and support. People with mental health problems are disproportionately likely to suffer barriers to health care access. They are at a high risk of poverty due to their lower participation in the workforce, the higher cost of their personal needs, the consequences of their illness and the absence of essential services including primary and respite care.11 10 Conrad Gargett Pty Ltd (2006) Royal Hobart Hospital Phase B Development Plan Study: Executive Summary, September 2006, p.8. 11 ACOSS (2001) Breaching the Safety Net: The Harsh Impact of Social Security Penalties, at http://www.acoss.org.au/upload/publications/papers/paper%20129%20Workforceage.pdf 9 People with mental health problems often experience co-morbidity. That is, they have concurrent medical conditions as well as their mental disorder. Mental illness and substance abuse frequently co-occur12. A person with co-occurring diseases or disorders is likely to experience more severe and chronic medical, social and emotional problems than if they had a single disease or disorder. People with co-morbid conditions are also more vulnerable to alcohol and drug relapses, and relapse of mental health problems. Higher numbers of disorders are associated with greater impairment, higher risk of suicidal behaviour and greater use of health services. The high levels of co-morbidity amongst people with mental illnesses reinforces the need for greater collaboration between hospital and community mental health services. Given the small number of acute care beds, Tasmanians should not have to reach the point of serious illness before they can access mental health services13. ‘Greater collaboration between services’ is an often used phrase that needs manifest outcomes if it is to be of any real meaning. The new RHH project needs to seriously consider the hospital in the greater context of the Tasmanian community services. 12 Commonwealth Department of Health and Aged Care (2001). Anglicare Tasmania (2005) Response to Inquiry into the Provision of Mental Health Services in Australia: The Senate Select Committee on Mental Health, p15. 13 10 The statistics on mental health in Tasmania are incomplete14 and do little to shed light on the woeful fragmentation of the current system. Despite the goals set out in the Tasmanian Mental Health Services Strategic Plan 2006-2011: Partners . . . Towards Recovery report, Tasmania is far behind other states and territories in its implementation of the National Mental Health Service Standards15. The number of FTE staff in mental health services has decreased in number since 199316. Whilst the number of clinical psychiatrists and psychiatric registrars in Tasmania is not insignificant, the majority of those doctors work in the private sector. This leaves a small number of psychiatrists working in the public sector with a majority of the caseloads in the state. The current Psychiatric Department at the RHH, in conjunction with the UTAS Department of Psychiatry, works well. However, it does so under extremely stressful circumstances. The new RHH must maintain and improve its Psychiatric Department in order to compete with the private sector to attract a larger workforce. Pregnant Women and Children The first concern for gynaecological and obstetric services (GOS) at the current RHH is infrastructure. Since the privatisation of the Queen Alexandria wing, the RHH has been left with inadequate and indeed substandard space. The current lack of beds has made it even more difficult for women to access elective surgery in this area. Given the generally long waiting lists for other hospital services, this 14 CDHA (2007) National Mental Health Report 2007: Summary of Twelve Years of Reform in Australia’s Mental Health Services under the National Mental Health Strategy1993-2005. 15 Note 11 at 150. 16 Note 11 at 136. 11 is particularly concerning. Adequate access also means that elective surgery must be done in a time frame according to national norms. This means that there needs to be sufficient bed capacity and professional capacity at RHH to do both acute and elective work at the same time. It is also essential that the new RHH provides high quality antenatal and post-birth follow-up services. The second concern for GOS is the small number and composition of the clinical staff. With the current poor facilities and the comparatively poor pay, the present doctors at the RHH work under great stress. Families with low income Compared to the rest of the nation, Tasmania has the lowest average household income, the lowest workforce participation rate, the lowest educational retention rate for years 10-12 and a historically high unemployment rate17. These factors all contribute to the current poor health status of Tasmanians and ‘contribute to inequities in access to health services18. The TCJPC wishes to ensure that poorer Tasmanians have access to an excellent quality of health care. Our principles of upholding human dignity and the common good mean that inability to access private health care should in no way diminish the quality of care or access to it. 17 TasCOSS (2007) Submission to the Tasmanian DHHS on Clinical Services Plan Issues Paper Australia Institute of Health and Welfare (2006) Australia’s Health: The Tenth Biennial Health Report of the Australian Institute of Health and Welfare, Cat. No. AUS73, AIHW, Canberra, pp 156. 18 12 Transport is again an issue, particularly for low income families. The issues raised above about equitable access for Northern, regional and rural Tasmanians can be equally applied here. Elderly persons and single people These two groups also suffer distinct disadvantage. Elderly people generally live on smaller incomes than their working counterparts and single people have increased living expenses due to the increased cost per capita of living in a single person home. Access to affordable transport is very important. Conclusion: Recommendations The TCJPC has identified equitable access as a primary consideration in the planning of the new RHH. The Commission is particularly concerned that groups that have been identified as suffering distinct disadvantage not be overlooked. In order to do this, it is recommended that: 1. The Department of Health and Human Services (DHHS) identify how other communities, with similar issues regarding travel/accommodation to tertiary facilities, maximise access for different groups. 2. The DHHS engage in further community consultation with the groups discussed above to ensure any access plans will actually be effective. 13 3. The DHHS works in collaboration with other government departments (particularly the Department of Infrastructure, Energy and Resources) to ensure an equitable transport system to the new RHH is created. 4. Producing follow-up articles about the launch.The DHHS works in collaboration with government and non-government services to ensure affordable and ready accommodation facilities are available for those needing to access the new RHH. 5. The DHHS ensures that the new RHH has sufficient facilities associated with long term accommodation on its site for families of patients and visitors. 6. The DHHS ensures minimal waiting list times irrespective of where the patient resides. 7. The DHHS ensures that those needing to access the RHH are not provided with poorer services than those in the private sector. 14
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