Minutes Full Body Meeting Date: May 25th and Time: 9am-12pm Members Present: Members Absent: Guests Present: CDPH Present: MSI: Michelle Agnoli, Brian Bongner, Natalie Brzoski, Roman Buenrostro, Sandra Candelaria Cortes, Jill Dispenza, Rebecca Eavou, Roy Ferguson, Alfredo Flores, Ana Galarza, Sanford Gaylord, Jocelyn Gorokhovsky, Chad Hendry, Darnell Jenkins, Kevin Johnson, Ayla Karamustafa, Korrey Kooistra, Michael Maginn, Perry Maier, Cordelia McKnight, Kathryn Mercado, Veronica Perez, Kimberly Ramirez, Matt Richards, Doug Ryan, Robin Scott, Veronica Shaheen, David Smith, Gary Sykes, Cynthia Tucker, Sara Zamor, Mayon Yen, Shanett Jones Robin Booker, Quinton Brown, Michal David, Christine Head, Louis Hobson, JeSherri James (excused), Felicia Johns, David Kern, Latonya Maley, Jeffrey Maras, Michael Mc Laurin, Kathleen Jacobs-McLoyd, Peter McLoyd, Kevin Moore, Patricia Munoz, Tempi Russell, Thomas Sampson, Gregory Sanchez (excused), Anne Statton, Donnie White, Carmella Williams, Amy Wong, Atara Young, Sara Stokes Owen Davis, Willie Fair, Edwin Ervin, Antonia Lalagos, Rich Zimmerman, Matt linas, Matesia Hoard, Monica Longmire, Melodie Howard, Floretta Bessix, Jennifer Kough-Simenz, Erik Glenn Alex Rhodes, Stephen Catton, Jorge Cestou, Teffany Anderson, Chenise Payton, Stephanie Schuette, Dwight G.E. Hunter, Erika Harding, Rachel Santis, Tammy Ruter, Laxm Modem, Gail Patton, Charamante Oladeji, Evelyn Green, Evelyn Vazquez, Michele Howard, Cynthia Evans, Bruce Edwards Diana Beasley, Kimmins Southard Agenda Item Meeting Notes/Decisions Made Welcome & Introductions The meeting was called to order at 9:15am introductions were made and a moment of silence was observed Guidelines for today’s meeting: Respect everyone’s voice: o One diva, one mic o Move up, move back – be aware of how much you are speaking and making space for all to comment o No Hate speech Sometimes we may need to ask people to: o Write questions on one of the post-its on the walls throughout the room o Ask tablemates to explain/clarify and be mindful of table-talk and cross-talk while simultaneously Meeting Notes/Minutes Action Needed (what/who/when) Page 1 Minutes engage in conversations (which will be incorporated into the facilitation for discussion) o Hold questions or comments until the allotted time in the agenda (in the future we will allow 10 minutes on the agenda for open discussion Only vote if you are a voting CAHISC member (especially because many votes are by acclamation or show-ofhands, if you are unsure if you are a member speak to the staff at the sign-in table) Review & Approve Minutes were voted upon and approved with the following correction: Meeting Minutes Mayon Yen was present at the meeting CDPH Updates – Received wonderful news from HRSA that we received a .08 increase in RW funding and we received one of Jorge Cestou the highest scores on our application (94) and we were one of the few jurisdictions to receive increased (representing funding and this year we convinced the Comptroller to provide full year awards Dave Kern) Meningitis Update: Which of our 3 divisions (RW, HOPWA, Prevention) provide services to individuals living with HIV? RW & HOPWA and funded ambulatory care providers will become meningitis vaccine centers Hannah is seeking volunteers for IML this weekend Community Co- IL HPG – Cynthia Tucker Chairs Update May 20th meeting we discussed proposed changes to IL HPG bylaws to adapt to webinar meetings, Presentation and discussion on interventions and service guidance for 2016 as part of the priority-setting process Next meeting June 17th Statewide HIV/STI conference October 25th in Springfield, abstract submissions due May 31, scholarships for attendance are available Co-Chair Update – Roman Buenrostro (Dave, Patrick & Peter are away at the UCHAPS meeting) Positively Aware magazine is looking for stories from individuals living with Hepatitis C for an upcoming issue – speak to Roman if interested The Steering Committee is seeking to full a position for At-Large Committee member. The SC membership involves the co-chairs from each committee and seats for At-Large members. The primary responsibility is attendance at the SC meeting (in addition to continued participation in the Full Body and committee meeting). Contact Roman if interested. Nominations and Role Call vote will take place at the next Full Body meeting. Membership Membership Committee’s role on CAHISC: address all issues related to membership, recruitment and Committee retention (applications, review, attendance, monitor and address attendance, ensure member satisfaction Update R. Eavou, and engagement, increase opportunities for community and full body engagement) C. McKnight Recommendations (based upon feedback from members surveys) Change Full Body structure to include: o Special welcome and introduction for guests o Share guidelines/information about the structure of the meeting Meeting Notes/Minutes Page 2 Minutes o o Open Discussion, comment and feedback – Diana Beasley Planning Session Overview – Jorge Cestou Meeting Notes/Minutes 1-2 times during the meeting for table and larger group discussion Create parking lots to respond to all questions either during the meeting or at the next month’s meetings and inclusion in the minutes o For personal questions and individual advocacy we will ask social service agency providers to assist in addressing Review member satisfaction surveys on a monthly basis – summary of your committees meeting surveys can be requested by the co-chairs Review and select applicants for Full Body twice per year in two cohorts who will be provided orientation prior to start), guests please speak to Rebecca if interested in becoming a member Appreciated the prior explanation of Full Body materials prior to today’s meeting leaders will continue sharing information prior to meeting Encourage all who are present today to invite guests to CAHISC meetings, especially community members and individuals living with HIV because all of our meetings are open to the public Paying attention to the use of the word consumer as a code for “person living with HIV” instead of simply inviting PLWH who may not be a consumer of services Data requests are free and open to the public, please contact Stephanie Recall the role of CAHISC: work with CDPH achieve these goals: 1.) Significantly reduce HIV infections, 2.) Ensure all PLWH have the opportunity to live as full and healthy a life as possible, 3.) Increase health equity among people living with or at risk for HIV. To achieve these goals we must set priorities Review of Planning Process 1. Unified Plan Planning process – COMPLETE! In April we developed, reviewed and voted to accept the below priority setting framework: Tier 1: Primary Priority Outcomes Suppress viral load in all persons living with HIV. Increase use of pre-exposure prophylaxis (PrEP) among gay and bisexual men of all races/ethnicities and Black women. Tier 2: Secondary Priority Outcomes Increase use of non-occupational post-exposure prophylaxis (nPEP) among gay and bisexual men of all races/ethnicities. Decrease incidence of GC and syphilis among gay and bisexual men of all races/ethnicities and PLWH. Increase use of condoms among gay and bisexual men of all races/ethnicities, Black women and persons living with HIV. Increase the use of clean needles among persons who use injection drugs. 2. CDC Prioritization – WE WILL COMPLETE TODAY! To review, amend and vote upon the SC’s Page 3 Minutes recommendations of the priority populations and geographic regions for prevention interventions 3. Unified Plan Planning Process – Emerging issue areas (MAPP) – TO COMPLETE IN JUNE! Prioritize 1-3 crosscutting themes that have surfaced and the committees to identify strategies to achieve 4. HRSA Priority Setting and Resource Allocation (PSRA) – TO BEGIN TODAY! Prioritize RW service categories (JUNE) and determine resource allocation (JULY) CDC Prioritization Priority Populations and Geographic areas: Presentation – Reviewed charts and maps for the geographic areas and populations most impacted by HIV within the city of CAHISC Roll Call Chicago (not the total EMA), populations and regions that make up 80% of the distribution of HIV incidence Vote H.L. and prevalence Anderson, T. Special concerns populations are important populations no represented in the epidemiological surveillance Anderson data but we know from the CAHISC full body, community members and other data sources are important A role call vote resulted in acceptance of the and demonstrate a disproportionate rate of HIV infection proposed priority Models of Programs/Services/Interventions: Current Model: Double Helix model – separate services for HIV negative and HIV positive individuals, highly populations, priority geographic areas, special targeted stand alone services, focus on behavioral outcomes, limited engagement of healthcare system concerns population, Proposed new model: The Common Pathway (Interventions by Impact): better integration of services, and intervention and bundling services, comprehensive services focusing on biomedical outcomes. o Examples of such services are: targeted recruitment, social networking, partner services, routine HIV services model with no abstentions testing, marketing, media and mobilization, fourth generation testing, ARTAS, Peer navigation, community health work, Healthcare enrollment, Data to Care, Care coordination, CM and adherence and retention supports o Example scenario: currently some agencies are only providing services for PLWH and not HIV negative individuals, and vice versa, whereas bundling services would allow agencies to serve both populations so as not to discriminate Proposal (based upon the work, ideas, discussion of the Full Body, AKA the Priority Framework) Priority Populations: PLWHA, & MSM of all races, ethnicities and ages, & Non-Hispanic Black cisgender women & IDUs Special Concerns Population: Transgender individuals Geographic Areas Priorities: Community Areas taking on 80% of the share of HIV Services/Interventions: Categories based upon The Common Pathway/Interventions by Impact which would translate into the RFP funding categories for 2018 Open Discussion: Is this the CDPH proposal or does this have community input and incorporate the work of CAHISC full body? This proposal comes directly from CAHISC’s work Meeting Notes/Minutes Page 4 Minutes Can we bundle and integrate PrEP and condom distribution? yes and strategies can be identified at the committee level Can we provide partner services alongside HIV treatment and testing? these details can be addressed with strategies at the committee level Can the RFP process take into consideration the agencies that are serving a higher number of clients vs. a lower number of clients? That discussion should take place during the RFP process and that will come later and we do not yet know the amount of CDC funding that will be allocated Excited to see that the new model pushes forward linkage to care for all people living with HIV or HIV negative, linkage to either ART, PrEP or simply healthcare enrollment o Capacity will still be a barrier to true implementation o Cross-training can be a critical tool to address the capacity barrier (healthcare enrollment, motivational interviewing, CRS-list registration, mental health assessments) A guest voiced concern about not adequately hearing the voices of the community most impacted by services, not providing enough services, not mentoring youth, and not focusing important geographical areas members and leadership responded to point out that this body has community membership, we have hosted community forums and discussions, and we have prioritized geographical areas MMP Presentation of the Medical Monitoring Project Factsheet from the 2014-2015 year Presentation 228 PLWH at HIV Care facilities completed the 200 questions, 40-60 minutes, 1000+ variables, survey and was linked with their medical record Survey sample demographics – majority black males over age 35 11% had no medical coverage Of participates with health insurance, 12% went to the ER for HIV medical care 8% had HIV-related hospitalizations Top services needed: Dental, HIV CM, HIV Prevention counseling Cigarettes & Alcohol: 67% used alcohol, 57% of those had 1-4 drinks per day & 51% smoked at least 100 cigarettes ever and 43% smoke daily Marijuana, poppers, cocaine, heroine were the most used non-injection drugs reported from highest to lowest (IDU was miniscule) Self-reported lab results: 41% stated they had ever had a CD4 <200, 90% stated most recent viral load was undetectable, 97% reported ever being on ART, 95% stated currently on ART Sexual Activity: of the 70 MSM, 32% >3 partners in the past year The 2015-2016 cycle will include PLWH who are not in HIV care PSRA- RW Part A Keep in mind that RW is federally required to be the payer of last resort, meaning they must be uninsured or Presentation – under-insured Jorge Cestou 1. Priority Setting – ranking service categories based upon service utilization and financial data available Meeting Notes/Minutes Page 5 Minutes prior to the full body meeting – JUNE 2016 2. Resource allocation – amount of funding to each service category based upon the best case and worst case scenarios of overall funding allocation– JULY 2016 Roman lead a 5-minute guided stretch break Emerging Themes These themes emerged from CAHISC’s work with the MAPP process, quantitative and qualitative data and – Committee community input. Work – Laurie Call Today’s Work on the 5-Year Unified Plan in committees 1. Each committee to review the 21 themes and select 1-3 themes relevant to their committee which will be incorporated into work plans and committees will identify strategies to address 2. Criteria for selecting the 1-3 themes of top priority to your committee a. NHAS Strategy indicators b. Theme can leave to sever consequences of unaddressed c. Creates a large problem or exasperates a disparity d. Priority to the community e. Can be addressed with existing resources f. Represents an underlying root cause for existing challenges and obstacles Committee Priority Themes Report Membership Committee: #2 Assessment & Evaluation, #6 Education & Outreach #21 Workforce Development & Cultural/Linguistic Competency ART & Viral Suppression Committee: #9 Housing, #11 Mental/Behavioral Health & Substance Abuse, #17 Retention, #21 Workforce Development & Cultural/Linguistic Competency Linkage & Retention Committee: #1 Access to Care, #3 Case Coordination/Management, #9 Housing Primary Prevention & Early Identification: #1 Access to Care, #4 HIV Diagnosis, #2 Assessment & Evaluation Committee Updates Meeting Notes/Minutes Next Steps: Action Planning Action Plan template based upon CDC & HRSA requirements was distributed, catered to meeting the areas for improvement CDC & HRSA noted within our planning previously Committees will work on these Action Plans at the next committee meetings CDC & HRSA requirement that for each Goal (based on NHAS) 2 Objectives 3 strategies July Full Body – committees to present their action plans PPEI: Plans have been finalized for June, July and August, presentations on comprehensive prevention services next month, IMPACT will present on behavioral interventions and we will then complete our work plan. Next meeting: Thursday June 9th 11:45-1:45 Page 6 Minutes Meeting Evaluation Announcements ART & Viral Suppression: Seeking information from pharmacists and CMs, building a survey to pharmacists and ideas about how to support CMs through a focus group. Next meeting Friday June 10th, 12:30-2:30 Linkage & Retention to Care Committee: will be electing a new co-chair at the next meeting. Charlotte from AFC will present at next meeting and seek to coordinate with other committees on overlap Membership & Community Engagement Committee: update provided earlier in the meeting Meeting evaluations were completed Michelle will be resigning from CAHISC Kathryn Mercado will be leaving CALOR and starting as the Prevention Manager of Monitoring and Evaluation at Chicago House, and will remain a member of this committee Monday June 6th Long Term Survivors Awards presentation BTAN Chicago, PrEP for Love, Project Elevate, AFC, CBGMC – Sunday June 26th Pride at Montrose event July 21 - PPEI, PPHS, BTAN Chicago, AFC, Gilead conference on Hepatitis C Meeting Adjourn The meeting adjourned at 12:08pm Parking Lot comments, questions, ideas Meeting Notes/Minutes For individuals not affiliated with a social service agency, how do they get access to PrEP medications? People who aren’t affiliated with an organization can ask their primary care provider or can call the PrEP Line at 872-215-1905 to speak with a PrEP advocate. The person will help you find a clinic near you to get you access to PrEP care. Regarding CDC priority populations, its important to keep limitations of data in mind – data wont represent those with low testing or diagnosis rates or those with inadequate data. That helped CAHISC identify transgender as a focus population, we need to continue to keep in mind. This is a great point; data gives us a snapshot of the big picture. We often don’t get all of the information we need to make decisions about priority populations. Page 7
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