Rhode Island Oral Health Surveillance System Plan 2016-2020 Rhode Island Department of Health Oral Health Program March 2016 Table of Contents Introduction………………………………………………………………………………………………………..3 Oral Health Surveillance: A Public Health Surveillance Overview of Rhode Island Oral Health Needs Goal and Objectives of the Rhode Island Oral Health Surveillance System…………………5 Principal Guidelines for Rhode Island Oral Health Surveillance System………………………6 Oral Health Indicators in RI Oral Health Surveillance System…………………………………..7 RI Oral Health Surveillance Stakeholders and Partners…………………………………………..14 Data Dissemination and Use………………………………………………………………………………..15 Privacy and Confidentiality…………………………………………………………………………………..17 Evaluation………………………………………………………………………………………………………….17 Reference………………………………………………………………………………………………………….18 Tables Table 1. RI Oral Health Surveillance System Indicators…………………………………………...8 Table 2. RIOHSS Data Sources and Data Collection Timeline…………………………………..11 The plan was produced by the Rhode Island Oral Health Program and funded through cooperative agreement DP13-1307 between the Rhode Island Department of Health and the Centers for Disease Control and Prevention. I. Introduction 1. Oral Health Surveillance: A Public Health Surveillance The 1988 Institute of Medicine (IOM) report on the future of public health outlines three core functions for public health: assessment, policy development, and assurance.1 In that report (updated in 2003), the IOM recommended that every public health agency carry out an essential public health function of assessment, through public health surveillance - the ongoing and systematic collection, analysis, and interpretation of population health data. Public health surveillance is essential for planning, implementing, and evaluating public health practice and, is closely integrated with data dissemination to public health decision makers and other stakeholders. According to the Centers for Disease Control and Prevention (CDC) Guidelines for Evaluating Public Health Surveillance Systems, health-related events are considered for surveillance if they affect many people, require large expenditures of resources, are largely preventable, and are of public health importance.2 In addition, the Association of State and Territorial Dental Directors (ASTDD) released a policy statement in April 2015 supporting and strongly recommending that state health jurisdictions develop an oral health surveillance plan, and implement and maintain a robust state-based oral health surveillance system.3 Oral diseases or conditions, also referred to as oral health outcomes, are influenced by a variety of factors, including access to dental care and the cost to individuals to obtain it, individual risk factors and risk determinants, availability of interventions, workforce issues, public health infrastructure, and public policies. Oral health surveillance system is needed to identify population needs, protect and promote population-wide oral health, and monitor the impact of those efforts.3,4 2. Overview of Rhode Island Oral Health Needs Although the oral health status of RI residents has improved during recent decades, profound and consequential oral health disparities still exist, and obtaining oral health care is a persistently challenging issue for certain RI populations – children and families with low-income, those of racial and ethnic minorities, pregnant women, individuals with special care needs, and elders. Box 1 summarizes selective highlights of the gaps and disparities in oral health and access to care among Rhode Islanders, based on the findings in the previous RI Oral Health Surveillance reports or publications. 3 Box 1. Highlights of the gaps and disparities in oral health among Rhode Islanders Many children in Rhode Island do not receive the dental care they need: One in four children age 3–5 years in Head Start and 26 percent of 3rd graders have untreated dental decay, meaning that they have not received adequate treatment in a timely manner.5,6 Among 3rd graders, racial/ethnic minority children or children attending schools with more students eligible for the free and reduced price school meals program are more likely to experience dental decay and have untreated tooth decay than their counterparts in more affluent communities.6 Only 40 percent of 3rd grade school children in RI have dental sealants, a well-accepted clinical intervention to prevent tooth decay on molar teeth, indicating that RI falls far short of national standards.6 Most of RI children enrolled in Medicaid do not receive any dental service until they reach school age: Only 13 percent of children 2 years and under, and less than half of children age 3–5 years (46%), received at least one preventive or treatment dental service in 2010.7 Only half of RI women reported they had a dental visit during their pregnancy. In particular, pregnant women who participated in WIC (Special Supplemental Nutrition Program for Women, Infants, and Children) or who had prenatal care coverage by Medicaid were less likely to have a dental visit during their pregnancy. Many RI pregnant women did not receive oral health counseling from health care professionals during their prenatal care period.8 Because of separation or exclusion of dental benefits from medical insurance, a quarter of RI adults age 18–64 years, and more than a half of older adults (65 years and older) do not have any dental coverage.9 RI adults with no dental coverage report a lower utilization of dental services.9 Despite having health insurance coverage, adults eligible for dental benefits through Medicaid have trouble obtaining dental care needed to maintain oral health due to the lack of dental providers willing to accept Medicaid patients. Consequently, only one-quarter of the adults receive services annually under Medicaid.10 From 2006-2010, 30,911 hospital ED visits in RI were associated with tooth decay, tooth decayoriginated-inflammatory pulp/periapical lesions, or toothache. These preventable oral health conditions were more frequently reported by Medicaid-enrolled and uninsured adults.11 The Nursing Home Oral Health Assessment conducted by the Wisdom Tooth mobile dental program in 2010–2012 showed that 33% of nursing home residents surveyed were edentulous and about a quarter of them did not have dentures.12 4 II. Goal and Objectives of the RI Oral Health Surveillance System The goal of the State of RI’s Oral Health Surveillance System (RIOHSS) is to plan, design and implement coordinated, ongoing, and systematic oral health surveillance activities to: Assess and monitor extent and nature of oral health status and associated risk factors (burden of oral diseases) of Rhode Islanders and determine state-specific unmet need of oral health services, particularly in underserved priority populations, and Disseminate the surveillance findings to State Oral Health Program and key state audiences to facilitate planning, implementation, and evaluation of public health practices based on datadriven evidence. Continued assessment and evaluation of Rhode Islander’s oral health needs, and impact of community-based oral health prevention and promotion efforts, through the implementation of RIOHSS, are to achieve the following specific objectives: Estimate the extent and magnitude of oral disease and risk factors in RI Measure utilization of oral health services in RI Monitor utilization and effectiveness of community-based and school-based prevention programs Identify target populations at high risk or with unmet need Provide up to date, scientific and reliable data for RI oral heath stakeholders, advocates, and legislators Use oral health data to plan, implement, and evaluate the impact of the state’s oral health programs and policies Provide evidence-based information for decision-making and public health resource allocations Evaluate the State’s strengths and gaps in surveillance measurements and priority populations, and identify opportunities and resources to improve the RIOHSS 5 III. Principal Guidelines for RI Oral Health Surveillance System Healthy People 2020 (HP2020) Objective OH-16 – “increase the number of states and the District of Columbia that have an oral and craniofacial health surveillance system” – deserves special mention.13 In 2013, CSTE developed an operational definition for HP2020 OH-16.4 According to the CSTE, a state oral health surveillance system should provide information necessary for public health decision-making by routinely collecting data on oral health outcomes, access to care, risk factors, and intervention strategies for the whole population, representative samples of the population, or priority subpopulations. In addition, a state oral health surveillance system should consider collecting information on the oral health workforce, infrastructure, financing, and policies impacting oral health outcomes. At a minimum, a state-based oral health surveillance system should include the following ten a core or foundational set of surveillance elements identified by CSTE, with expansion to a wider variety of indicators based on the needs and resources of the individual state. 1. A written oral health surveillance plan that was developed or updated within the previous five years. 2. Oral health status data for a representative sample of third grade children, including prevalence of caries experience, untreated tooth decay, and dental sealants meeting criteria for inclusion in NOHSS. Data must have been collected within the previous five years. 3. Permanent tooth loss data for adults obtained within the previous two years. 4. Annual data on oral and pharyngeal cancer incidence and mortality. 5. Annual data on the percent of Medicaid- and CHIP-enrolled children who had a dental visit within the past year. 6. Data on the percent of children 1-17 years who had a dental visit within the past year, obtained every four years. 7. Data on the percent of adults (≥18 years) and adults with diabetes who had a dental visit within the past year, obtained within the previous two years. 8. Data on the fluoridation status of public water systems within the state, updated every two years. 9. Annual data on state oral health programs and the environment in which they operate, including workforce and infrastructure indicators. 10. Publicly available, actionable data to guide public health policy and programs disseminated in a timely manner. This may take the form of an oral disease burden document, publicly available reports, or a web-based interface providing information on the oral health of the state’s population developed or updated within the previous five years. The RIOHSS Plan outlines state specific oral health indicators, data sets that can measure the indicators, collection, analysis, interpretation, and dissemination of these data, and collaborating partners and programs in surveillance activities. Additionally, the Plan describes evaluation of the quality and usefulness of the RIOHSS. 6 IV. Oral Health Indicators in RI Oral Health Surveillance System A set of oral health indicators, a centerpiece of the RIOHSS, includes indicators on the burden of oral disease, the use of the oral health delivery system, and community level interventions. RIOHSS indicators has been determined primarily by: HP 2020, a compendium of indicators selected by the federal government to track the nation’s progress towards year 2020 public health objectives,13 and The National Oral Health Surveillance System (NOHSS), a collaborative effort among ASTDD, CDC and CSTE 14 The tables 1 includes the oral health indicators identified by RIOHSS with target population, data source, and related HP 2020 national oral health objectives. As summarized in table 2, RIOHSS obtains data from diverse types of public health data sources, such as health surveys (e.g. Behavioral Risk Factor Surveillance), data collected for administrative purposes (e.g., Medicaid, hospital discharges), disease registries (e.g. cancer registry), or oral health screening data using the ASTDD Basic Screening Survey protocol. 7 Table 1. RI Oral Health Surveillance System Indicators Indicator Group Oral health outcome Target Population New-born babies Children 3-5 years attending Head Start Children 3-5 years attending Head Start in urban cities (Providence & Pawtucket) Public elementary school children in Kindergarten Public elementary school children in grade 3 Public & private elementary school children in grades K & 3 Adolescents in grades 9-12 Adults 18-64 years Adults ≥65 years Adults ≥65 years residing in long-term care or skilled nursing facilities & attending Indicator* (related HP 2020 Objective) Cleft lip with & without cleft palate (OH-15) Cleft palate (OH-15) Dental caries experience (OH-1.1) Untreated dental caries (OH-2.1) Urgent Dental Treatment Need Dental caries experience (OH-1.1) Untreated dental caries (OH-2.1) Urgent dental treatment need Dental sealant (OH-12.1) Dental caries experience (OH-1.2) Untreated dental caries (OH-2.2) Urgent Dental Treatment Need Dental sealants (OH-12.2) Dental caries experience (OH-1.2) Untreated dental caries (OH-2.2) Urgent Dental Treatment Need Dental sealants (OH-12.2) Dental treatment need Urgent dental treatment need Dental sealant need Pain/soreness with teeth or mouth Self-consciousness or embarrassment because of teeth or mouth No tooth loss (OH-4.1) Six or more teeth lost All teeth lost (OH-4.2) Untreated dental caries (OH-3.2 & OH-3.3) Dental treatment need Teeth retention & denture need 8 Available data elements Data Source Births Defects Program age, gender, race, ethnicity, language, dental insurance, geographic area Oral health screening survey (using BSS protocol) age, gender, race, ethnicity, language, dental insurance, geographic area Oral health screening survey – Urban cities only age, gender, race, ethnicity, geographic area, % of free & reduced school meals eligibility Oral health screening survey (using BSS protocol) geographic area, % of free & reduced school meals eligibility School Dental Screening Report age, gender, race, ethnicity, dental visit, health-risk behaviors (e.g., tobacco use) Youth Risk Behavior Surveillance System (YRBSS) age, gender, race, ethnicity, language, educational attainment, marital status, home ownership, employment, dental visit, dental insurance, chronic disease (e.g., diabetes), healthrisk behaviors (e.g., tobacco use) age, gender, race, ethnicity, language, dental insurance, dental visit, geographic area Behavioral Risk Factor Surveillance System (BRFSS) Oral health screening survey (using BSS protocol) senior centers (congregate meal sites) All state population Access to care Children 1-17 years Children 0-17 years Children 1-20 years enrolled in Medicaid Children 6-9 & 10-14 years enrolled in Medicaid Adolescents in Grades 9-12 Adults 18-64 & ≥65 years Adults ≥18 years with diabetes Pregnant women Population served at health centers Children & adults enrolled in Medicaid Dry mouth Gingival & periodontal status Self-perceived oral health status Oral cavity & pharyngeal cancers (incidence & mortality (C-6)) Oral cavity & pharyngeal cancers detected at early stages HPV-associated oropharyngeal cancers (incidence) Annual preventive dental visit† Annual dental visit (OH-7)† Annual dental visit (OH-7) Dental insurance coverage (AHS-1.2) Preventive dental treatment (OH-8) Any dental treatment Dental sealant treatment Annual dental visit (OH-7) Annual dental visit (OH-7) Dental insurance coverage (AHS-1.2) Financial barrier in obtaining dental care Dental visit (D-8) Preventive dental visit before pregnancy Preventive dental visit during pregnancy Oral health education during pregnancy Oral health perception during pregnancy Dental insurance coverage during pregnancy Barriers in obtaining dental care during pregnancy Receiving oral health services (OH-11) Receiving dental treatment 9 gender, race, ethnicity, anatomical site Cancer Registry age, gender, race, ethnicity, language, parental socioeconomic status National Survey of Children's Health (NSCH) BRFSS age CMS-416 Annual EPSDT Participation Report age, gender, race, ethnicity, dental visit, health-risk behaviors (e.g., tobacco use) age, gender, race, ethnicity, language, educational attainment, marital status, home ownership, employment Youth Risk Behavior Surveillance System (YRBSS) BRFSS age, race, ethnicity, educational attainment, marital status, prenatal care health insurance coverage, WIC participation, geographic area Pregnancy Risk Assessment Monitoring System (PRAMS) type of dental services, geographic area patient demographics (age, residential location), type of dental services, frequency, provider type & location, eligibility, claim amount Uniform Data System (UDS) Medicaid Claims (MMIS: Medicaid Management Information System) All state population Community intervention School children All state population Infrastructure All state population Dental providers who treat children & adults enrolled in Medicaid ED visit for non-injury related oral health conditions High-risk schools with school-based sealant programs Children served by school-based sealant programs Molars with sealant placed by school-based sealant programs Population served by community water systems (OH-13) Public water systems with optimal fluoridation level for 12 consecutive months State Oral Health Program staffing, funding & structure (OH-17) State oral health surveillance system (OH-16) State oral health coalition State oral health plan Dental workforce Dental safety net providers (OH-10) type of dental services, geographic area, claim amount age, genders, insurance, geographic area age, race, ethnicity, dental insurance, geographic area, % of free & reduced school meals eligibility geographic area age, gender, geographic area patient age & insurance, type of services, geographic area, workforce, operatories & hours Dental Health Professional Shortage Areas providers, dental service (DHPSA) utilization, community socioeconomic status * Green-colored indicators: recommended by CSTE for inclusion in a state-based oral health surveillance system4,14 Purple-colored indicators: additional indicators that were added by the RIOHSS needs and resources † May be modified or deleted based on the redesign of the National Survey of Children’s Health 10 Hospital Discharge Data SEAL RI! Performance Report Water Fluoridation Reporting System (WFRS) ASTDD State Synopsis; RI Oral Health Program data Licensure Database Dental Safety Net Survey; UDS Primary Care and Rural Health DHPSA Designation Table 2. RIOHSS Data Sources and Data Collection Timeline Data source Indicator group Indicator & target population Data collection timeframe 2016 2017 2018 2019 2020 √ √ √ √ √ ASTDD State Synopsis Infrastructure Behavioral Risk Factor Surveillance System (BRFSS) Oral health outcome No tooth loss among adults 18-64 years Six or more teeth lost among adults ≥65 years All teeth lost among adults ≥65 years Access to care Birth Defects Program Oral health outcome Cleft lip with & without cleft palate among new-born babies Cleft palate among new-born babies √ √ √ √ √ Cancer Registries Oral health outcome Oral Cavity & pharyngeal cancers (incidence & mortality) Oral Cavity & pharyngeal cancers detected at early stages HPV-associated oropharyngeal cancer (incidence) √ √ √ √ √ CMS-416 Annual EPSDT Participation Report Access to care Preventive dental treatment for 1-20 years enrolled in Medicaid Any dental treatment for 1-20 years enrolled in Medicaid Dental sealant treatment for 6-9 & 10-14 years enrolled in Medicaid √ √ √ √ √ Dental Safety Net Survey Infrastructure Dental safety net providers Hospital Discharge Data Access to care ED visit for non-injury related oral health conditions √ Licensure Database Infrastructure Dental workforce √ Medicaid Claims (MMIS: Medicaid Management Information System) Access to care Receiving dental treatment among children & adults enrolled in Medicaid Dental providers who treat children & adults enrolled in Medicaid √ State Oral Health Program staffing, funding & structure State oral health surveillance system State oral health coalition State oral health plan √ √ √ Annual dental visit among children 1-17 years Dental insurance coverage among children 0-17 years Annual dental visit among adults 18-64 & ≥65 years Dental insurance coverage among adults 18-64 & ≥65 years Financial barriers in obtaining dental care among adults 18-64 & ≥65 years Dental visit among adults ≥18 Years with diabetes √ 11 √ √ √ √ √ √ √ √ √ √ √ National Survey of Children's Health (NSCH) Access to care Annual preventive dental visit among children 1-17 years * Annual dental visit among children 1-17 years * √ Oral Health Screening Surveys (using BSS protocols) Oral health outcome Children 3-5 years attending Head Start Dental caries experience Untreated dental caries Urgent dental treatment need √ Children 3-5 years attending Head Start in urban cities Dental caries experience Untreated dental caries Urgent dental treatment need Dental sealant (primary molar) √ √ √ √ √ √ √ √ √ Public elementary school children in grades K & 3 Dental caries experience Untreated dental caries Urgent dental treatment need Dental sealant (permanent 1st molar) Adults ≥65 years residing in long-term care or skilled nursing facilities Untreated dental caries Dental treatment need Teeth retention & denture need Dry mouth Gingival & periodontal status Self-perceived oral health status Adults ≥65 years attending senior centers (congregate meal sites) Untreated dental caries Dental treatment need Teeth retention & denture need Dry mouth Gingival & periodontal status Self-perceived oral health status √ √ √ Primary Care and Rural Health DHPSA Designation Infrastructure Dental Health Professional Shortage Areas (DHPSA) √ Pregnancy Risk Assessment Access to care Preventive dental visit among women before pregnancy Preventive dental visit among women during pregnancy Oral health education among women during pregnancy √ 12 √ √ √ √ √ √ Oral health perception among women during pregnancy Dental insurance coverage among women during pregnancy Barriers in obtaining dental care among women during pregnancy Monitoring System (PRAMS) School Dental Screening Report Oral health outcome Dental treatment need among elementary school children in grades K & 3 √ Urgent dental treatment need among school children in grades K & 3 Dental sealant need among elementary school children in grades K & 3 √ √ √ √ SEAL RI! Performance Report Community intervention High-risk schools with school-based sealant programs Children served by school-based sealant programs Molars with sealant placed by school-based sealant programs √ √ √ √ √ Uniform Data System (UDS) Access to care Population receiving oral health services at health centers √ √ √ √ √ Infrastructure Dental safety net providers Youth Risk Behavior Surveillance System (YRBSS) Oral health outcome Pain/soreness with teeth or mouth among adolescents in grades 9-12 Self-consciousness or embarrassment because of teeth or mouth among adolescents in grades 9-12 Access to care Annual dental visit among adolescents in grades 9-12 Water Fluoridation Reporting System (WFRS) Community intervention Population served by community water fluoridation √ Public water systems with optimal fluoridation level for 12 consecutive months 13 √ √ √ √ √ √ V. RI Oral Health Surveillance Stakeholders and Partners Stakeholders and partners are important pillars and support systems to ensure that RIOHSS serves its purpose and addresses the needs of communities and stakeholders. The stakeholders and partners helps in the development and implementation of the surveillance system, and they are instrumental in the evaluation process. Internal stakeholders/partners include: RIOHP staff Chronic Disease Program Maternal and Child Health Program Health Promotion and Wellness Programs Drinking Water Quality Program Infectious disease program Cancer Registry Office of Professional Regulations Office of Primary Care and Rural Health KIDSNET Center for Data Analysis Center for Public Health Communication External stakeholders/partners include: RI Oral Health Commission RI Department of Human Service (Medicaid Agency) RI Department of Education RI Department of Elderly Affairs RI Kids Count RI Health Center Association SEAL RI! school-based dental sealant programs Early Head Start/Head Start Centers Wisdom Tooth Program United HealthCare Dental Blue Cross Blue Shield of RI Delta Dental of RI Neighborhood Health Plan of RI RI Dental Association RI Dental Hygienists’ Association RI Dental Assistants Association Community College of RI 14 VI. Data Dissemination and Use RIOHSS’s key component is actionable data. The data collected and analyzed needs to reach out at the local, state and national levels to create actions and policies that lead to increased awareness and improved oral health. The RIOHSS stakeholders/partners should continuously discuss various ways for the dissemination of data reports. Surveillance reports or publications generated by RIOHSS are disseminated through general mail, email listserv, and the RIDOH website to local, state, and federal partners and agencies. Information is disseminated through a variety of media, including the RIOHP webpages, policy briefs and fact sheets. Listed are reports and publications in the previous 5 years: PUBLISHED ARTICLE Oh, J., Fulton, J., Washburn, T. (2014). Increasing Trend of HPV-Associated Oropharyngeal Cancers among Males in Rhode Island, 1987-2011. Medicine and Health Rhode Island, 95(5), 47-49. Available from: http://www.rimed.org/rimedicaljournal/2014/05/2014-05-47-health-oropharyngeal-cancer.pdf Jiang, Y., Okoro, CA., Oh, J., Fuller, DL. (2013). Sociodemographic and Health-Related Risk Factors Associated with Tooth Loss Among Adults in Rhode Island. Prev Chronic Dis, 10:110285. DOI: http://dx.doi.org/10.5888/ pcd10.110285 Oh, J., Leonard, L. (2012). Hospital Emergency Department Visits for Non-Traumatic Oral Health Conditions among Rhode Island Adults Age 21–64 Years, 2006–2010. Medicine and Health Rhode Island, 95(11), 367-369. Available from: http://www.rimed.org/medhealthri/2012-11/2012-11367.pdf Oh, J., Leonard, L., Walsh, E., Fuller, D. (2012). Rhode Island Children’s Hospital Emergency Department Visits for Oral Health Conditions, 2006-2010. Medicine and Health Rhode Island, 95(7), 224-26. Available from: http://www.rimed.org/medhealthri/2012-07/2012-07-224.pdf Oh, J., Gjelsvik. A., Fuller, D., Walsh, E., Paine, V., Leonard, L. (2012). Less Than Optimal Oral Health Care among Rhode Island Adults with Diabetes: The Need to Assure Oral Health Care for All Adults with Diabetes. Medicine and Health Rhode Island, 95(3), 91-93. Available from: http://www.rimed.org/medhealthri/2012-03/2012-03-91.pdf McQuade, W., Dellapenna, M., Oh, J., Fuller, D., Leonard, L., Florio, DJ. (2011). Assessing the Impact of RI’s Managed Oral Health Program (RIte Smiles) on Access and Utilization of Dental Care among Medicaid Children Ages Ten Years and Younger. Medicine and Health Rhode Island, 94(8), 147-149. Available from: http://www.rimed.org/medhealthri/2011-08/2011-08-247.pdf Oh, J., Leonard, L., Fuller, D., Miller, K. (2011). Less Than Optimal Oral Health Care During Pregnancy in Rhode Island Women: Oral Health Care as a Part of Prenatal Care. Medicine and Health Rhode Island, 94(5), 141-143. Available from: http://www.rimed.org/medhealthri/2011-05/2011-05141.pdf Oh, J., Fuller, D., Leonard, L., Miller, K. (2011). Primary Care Physicians’ Role in Promoting Children’s Oral Health. Medicine and Health Rhode Island, 94(1), 20-22. Available from: http://www.rimed.org/medhealthri/2011-01/2011-01-20.pdf PUBLISHED REPORT/DOCUMENTATION Dental Insurance Coverage for Rhode Island Adults: After Implementation of the Affordable Care Act (ACA) (2016). Rhode Island Department of Health, Providence, RI. February 2016. Available from: http://health.ri.gov/publications/databriefs/2014DentalInsuranceCoverageAfterACA.pdf Oral Health Access to Dental Care among Rhode Island Children and Adults, 2014 BRFSS (2015). Rhode Island Department of Health, Providence, RI. October 2015. Available from: http://health.ri.gov/publications/databriefs/2014AccessToDentalCareAmongRIChildrenAndAdults.pdf Oh, J., Yearwood, S., Leonard, L. (2015). The Oral Health of Rhode Island’s Children. Rhode Island Department of Health, Providence, RI. July 2015. Available from: http://health.ri.gov/publications/programreports/2015OralHealthOfRIChildren.pdf 15 Rhode Island Dental Safety Net Report, 2013 (2014). Rhode Island Department of Health, Providence, RI. October 2014. Rhode Island Department of Health, Providence, RI. October 2014. Available from: http://www.health.ri.gov/publications/databriefs/2013DentalSafetyNet.pdf Oral Health Concerns and Dental Care among Rhode Island Middle and High School Students, 2013 YRBS. (2014). Rhode Island Department of Health, Providence, RI. June 2014. Available from: http://www.health.ri.gov/publications/databriefs/2013OralHealthConcernsAmongMiddleSchoolAndHig hSchool.pdf Oral Health Status and Access to Dental Care among Rhode Island Children and Adults, 2012 BRFSS (2014). Rhode Island Department of Health, Providence, RI. January 2014. Available from: http://www.health.state.ri.us/publications/databriefs/2012AccessToDentalCareAmongRhodeIslandChil drenAndAdults.pdf Oh, J., Yearwood, S., Fuller, D. (2013). CDC State-Based Oral Disease Prevention Program, 20032013. Final Evaluation Report. Rhode Island Department of Health, Providence, RI. October 2013. Oh, J., Leonard, L., Fuller, D. (2013). The Oral Health of Rhode Island’s Preschool Children Enrolled in Head Start. Rhode Island Department of Health, Providence, RI. August 2013. Available from: http://www.health.state.ri.us/publications/reports/2013OralHealthOfRhodeIslandsPreschoolChildrenE nrolledInHeadStartPrograms.pdf Oral Health Status and Access to Dental Care among Rhode Island Children and Adults, 2010 BRFSS (2012). Rhode Island Department of Health, Providence, RI. November 2012. Available from: http://www.health.state.ri.us/publications/databriefs/2010OralHealthStatusAndAccessToDentalCareA mongRhodeIslandChildrenAndAdults.pdf Rhode Island Oral Health Issue Brief - Rhode Island Hospital Emergency Department Visits for NonInjury Related Oral Health Conditions among Adults Age 21–64, 2006–2010 (2012). Rhode Island Department of Health, Providence, RI. October 2012. Available from: http://www.health.state.ri.us/publications/issuebriefs/2012OralHealthIssue2.pdf Rhode Island Oral Health Issue Brief - HPV and Oropharyngeal Cancers in Rhode Island (2012). Rhode Island Department of Health, Providence, RI. April 2012. Available from: http://www.health.state.ri.us/publications/issuebriefs/2012OralHealthissue3.pdf Oh, J., Fuller, D. (2011). The Oral Health of Rhode Island’s Children. Rhode Island Department of Health, Providence, RI. August 2011. Oh, J., Leonard, L. (2011). The Burden of Oral Diseases in Rhode Island, 201. Rhode Island Department of Health. Providence, Rhode Island. 2011. Available from: http://www.health.ri.gov/publications/burdendocuments/2011OralHealth.pdf The Dental Safety Net in Rhode Island, Special Report (2011). Rhode Island KIDS COUNT, Rhode Island Health Center Association and Rhode Island Department of Health. Providence RI. May 2011. Available from: http://www.health.ri.gov/publications/reports/2011DentalSafetyNet.pdf Rhode Island Oral Health Issue Brief - Rhode Island Young Children’s Preventive Dental Visit: The Need for Primary Care Medical Providers’ Engagement in Children’s Oral Health (2011). Rhode Island Department of Health, Providence, RI. June 2011. Available from: http://www.health.state.ri.us/publications/issuebriefs/2011OralHealthIssue1.pdf Oral Health Status and Access to Dental Care among Rhode Island Children and Adults, 2008 BRFSS (2010). Rhode Island Department of Health, Providence, RI. November 2010. Available from: http://www.health.state.ri.us/publications/healthriskreports/adults/2008OralHealth.pdf PUBLISHED ABSTRACT/PRESENTATION Oh, J (2016). Hospital Emergency Department Visits for Oral Health Conditions among Rhode Island Non-Elderly Adults. Rhode Island Annual Oral Health Summit, Providence, RI. February 2016. Oh, J., Leonard, L., Yearwood, S. (2015). Medicaid Expansion and Change in Hospital Emergency Department Visits for Oral Health Conditions among Rhode Island Adults. National Oral Health Conference, Kansas City, MO. April 2015. Oh, J. (2014). Assessment of Preventive Dental Visit among Children Age 1-Years with Parent’s Dental Visit, Rhode Island Behavioral Risk Factor Surveillance System (BRFSS). Council of State and Territorial Epidemiologists Annual Conference, Nashville, TN. June 2014. Oh, J., Leonard, L. (2013). Rhode Island Women’s Oral Health Counseling & Care during Pregnancy: 2009-2011 Pregnancy Risk Assessment Monitoring System (PRAMS). Annual American Public Health Association Meeting, Boston, MA. November 2013. 16 Oh, J., Leonard, L., Jones-Bridges, M., Simas, M., Ross, M. (2013). Workforce Survey of Rhode Island Dental Hygienists. National Oral Health Conference, Huntsville, AL. April 2013. Oh, J., Fulton, J., Fuller, D., Walsh E. (2012). An Increase of HPV-Associated Oropharyngeal Cancer Incidence in Rhode Island Males, 1987-2009. National Oral Health Conference, Milwaukee, WI. April 2012. Oh, J., Leonard, L., Fuller, D., Miller, K. (2011). Hospital Emergency Department Visits for Oral Health Conditions among Rhode Island Adults Age 18-64, 2005-2009. National Oral Health Conference, Pittsburgh, PA. April 2011. VII. Privacy and Confidentiality The RIOHSS follows HIPAA standards for patient privacy and protected health information. The system limits identifiers collected to only essential data elements, and the data are stored on a secure, private, electronic server at the RIDOH. Identifiers can only be seen by health department oral health staff who have been trained on HIPAA, data security, and confidentiality. The identifiers will never be released to external partners and aggregate data is never reported for small counts, according to the RIDOH reporting guideline. VIII. Evaluation To ensure that the oral health indicators are being monitored effectively and efficiently and to increase the utility and productivity of the RIOHSS, an annual evaluation will be performed to determine the system’s usefulness in monitoring oral health trends over time, determining the effectiveness of interventions, and planning future programmatic and policy initiatives. The RIOHP will evaluate the RIOHSS based on CDC’s framework for program evaluation including how well the following six steps outlined in Updated Guidelines for Evaluating Surveillance Systems were implemented.2 • • • • • • Engage Utopia’s stakeholders; Describe the OHSS; Focus the evaluation design; Gather credible evidence regarding the performance of the OHSS; Justify and state conclusions, make recommendations; and Ensure use of evaluation findings and share lessons learned. The evaluation of the OHSS will focus on providing recommendations for improving the quality, efficiency, and usefulness of the system. OHSS will also be evaluated to determine the system’s sustainability, the timeliness of analysis of surveillance data, dissemination and use of the reports by stakeholders, and policy and legislative actions that have been taken due to surveillance efforts. 17 1 Institute of Medicine (IOM). The Future of Public Health. Washington, DC: National Academy Press, 1988. 2 German RR, Lee LM, Horan JM, Milstein RL, Pertowski CA, Waller MN; Guidelines Working Group Centers for Disease Control and Prevention. Updated guidelines for evaluating public health surveillance systems: recommendations from the Guidelines Working Group. MMWR Recomm Rep 2001;50(RR-13):135. 3 Association of State and Territorial Dental Directors (ASTDD). State-Based Oral Health Surveillance Systems, April 2015. Available at: www.astdd.org 4 Phipps K, Kuthy R, Marianos D, Isman B. State-Based Oral Health Surveillance Systems: Conceptual Framework and Operational Definition. Council of State and Territorial Epidemiologists, 2013. Available at: c.ymcdn.com/sites/www.cste.org/resource/resmgr/Chronic/StateBasedOralHealthSurveill.pdf 5 Oh, J., Leonard, L., Fuller, D. (2013). The Oral Health of Rhode Island’s Preschool Children Enrolled in Head Start. Rhode Island Department of Health, Providence, RI. August 2013. Available from: http://www.health.state.ri.us/publications/reports/2013OralHealthOfRhodeIslandsPreschoolChildrenEnroll edInHeadStartPrograms.pdf 6 Oh, J., Fuller, D. (2012). The Oral Health of Rhode Island’s Children. Rhode Island Department of Health, Providence, RI. February 2012. Available from: http://www.health.state.ri.us/publications/reports/2012OralHealthOfRhodeIslandChildren.pdf 7 McQuade, W., Dellapenna, M., Oh, J., Fuller, D., Leonard, L., Florio, DJ. (2011). Assessing the Impact of RI’s Managed Oral Health Program (RIte Smiles) on Access and Utilization of Dental Care among Medicaid Children Ages Ten Years and Younger. Medicine and Health Rhode Island, 94(8), 147-149. Available from: http://www.rimed.org/medhealthri/2011-08/2011-08-247.pdf 8 Oh, J., Leonard, L., Fuller, D., Miller, K. (2011). Less Than Optimal Oral Health Care During Pregnancy in Rhode Island Women: Oral Health Care as a Part of Prenatal Care. Medicine and Health Rhode Island, 94(5), 141-143. Available from: http://www.rimed.org/medhealthri/2011-05/2011-05-141.pdf 9 Dental Insurance Coverage for Rhode Island Adults: After Implementation of the Affordable Care Act (ACA) (2016). Rhode Island Department of Health, Providence, RI. February 2016. Available from: http://health.ri.gov/publications/databriefs/2014DentalInsuranceCoverageAfterACA.pdf 10 An Assessment of the Rhode Island Medicaid Adult Dental Program. RI Executive Office of Health & Human Services, Cranston, RI. January 2014 11 Oh, J., Leonard, L. (2012). Hospital Emergency Department Visits for Non-Traumatic Oral Health Conditions among Rhode Island Adults Age 21–64 Years, 2006–2010. Medicine and Health Rhode Island, 95(11), 367-369. Available from: http://www.rimed.org/medhealthri/2012-11/2012-11-367.pdf 12 Summary of Findings for 2010-12 Nursing Home Oral Health Assessment (2013). RI Department of Health Oral Health Program. August 2013 (Program Internal Document). 13 Healthy People 2020. Topic & Objectives: Oral Health. Available at: https://www.healthypeople.gov/2020/topics-objectives/topic/oral-health 14 CSTE Chronic Disease/Maternal and Child Health/Oral Health Committee Position Statement (15-CD01): Revision to the National Oral Health Surveillance System (NOHSS) Indicators. Council of State and Territorial Epidemiologists June 2015. Available at: http://c.ymcdn.com/sites/www.cste.org/resource/resmgr/2015PS/2015PSFinal/15-CD-01-ALL.pdf 18
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