MATTERS JOINT SURGERY This has been produced by Bayer DO I NEED JOINT SURGERY? Having haemophilia makes you more susceptible to joint damage that may require surgery. The most common joints affected by haemophilia are the hinge joints: elbows, knees and ankles. Specifically, joint damage is caused by repeated bleeds in and around the joint tissue. Prophylaxis is therefore an important option for helping to minimise bleeding. The mechanics of hinge joints makes them more susceptible to damage as they can only bend and straighten. Ball and socket joints such as the hips and shoulders have more flexibility. They are therefore less prone to the stresses that can trap the connective tissue lining joint cavities (called the synovial membrane) and cause a bleed. Older people with haemophilia may have a greater risk of developing joint damage (termed haemophilia arthropathy), as the treatment for haemophilia was less advanced when they were children; these people are more likely to have suffered joint damage caused by repeated bleeds when they were young. It is now widely accepted, however, that joint damage may be minimised by prophylaxis (preventative treatment involving early, regular factor treatment). The symptoms of joint damage include pain and stiffness with limited flexibility. In most cases, joint surgery is elective, and even though a joint may be damaged you do not necessarily have to have an operation. WHAT ARE THE DIFFERENT TYPES OF JOINT SURGERY? Several kinds of joint surgery can be conducted, depending on the nature and extent of joint damage, as well as the type of joint affected. The most common joints that need replacing in haemophilia are the knee and hip joints. KNEE REPLACEMENT SURGERY HIP REPLACEMENT SURGERY SYNOVECTOMY ANKLE SURGERY (ARTHRODESIS) ELBOW SURGERY WHAT ARE THE BENEFITS OF HAVING JOINT SURGERY? Surgery is often used to decrease pain caused by damaged joint tissue. It can also correct joint irregularities, and may improve movement and flexibility. Knee replacement surgery involves replacing the damaged joint with metal or plastic components. This surgery is very effective for pain relief and may also improve the range of movement at the joint. Prosthetic knees can last for approximately 15 years. Hip replacement surgery involves replacing the whole hip joint with a metal or ceramic ball, and ceramic cup to act as a new socket. This type of prosthetic joint can improve mobility, reduce pain, and the majority last for 10-15 years – sometimes longer. Synovectomy is the process of removing, or burning, the inflamed lining of the damaged joint tissue. It can be performed using chemicals, keyhole or open surgery, and is normally conducted on knee and elbow joints. Chemical synovectomy is an increasingly popular and effective alternative to surgery. Typically, an injection is used to remove the synovial membrane Keyhole surgery, performed under general anaesthetic, leaves a small scar and allows early rehabilitation and recovery Open surgery enables the orthopaedic surgeon to remove all damaged joint tissue. This surgery, however, leaves a bigger scar and gives a longer recovery period. Consequently, other options are beginning to be favoured over open surgery Elbow surgery includes synovectomy, the smoothing down of joint surfaces (joint debridement) or removal of the radial head to alleviate pain and improve forearm rotation. Ankle surgery (arthrodesis) is effective for pain relief. At present, ankle replacement surgery and elbow replacement surgery are not used widely in haemophilia due to poor outcomes worldwide. Instead, bones in the ankle can be fused together in order to stop any movement and reduce pain. Loose bone fragments around the joint can also be ‘washed out’ with keyhole surgery, and local anaesthetic and steroids can be injected to reduce pain. Surgery to remove spikes of bone, as well as chemical synovectomy, can also be conducted. You will be given modified footwear following ankle surgery to help with walking. HOW WILL MY SURGERY DIFFER FROM THAT OF A PERSON WITHOUT HAEMOPHILIA? If you decide to have surgery, you will be given a full explanation of the surgery and its outcomes. This may include the use of diagrams or demonstration joints, and factsheets. As a person with haemophilia, you will receive factor replacement treatment before, during and after surgery. Post-surgery physiotherapy will be timed to coincide with your factor replacement treatment. The factor levels and any bleeding will be closely monitored throughout. WHAT SUPPORT WILL I RECEIVE BEFORE AND AFTER SURGERY? As a person with haemophilia, you will be given ample support both before and after your surgery. To prepare you for your operation, you are encouraged to: Discuss your surgical procedure with others who have had similar procedures. Exercise, and you will be given advice about cardiovascular fitness, and specific exercises to help build up the muscles around your joint, from your physiotherapist. Exercise can strengthen your joints and muscles making it less likely that you will suffer from joint bleeds. It is also important to increase your fitness levels, as this will help you to use crutches during your recovery should you need them. Your physiotherapist can also give regular joint assessments and will work with you following surgery. Stay healthy. Eating a sensible diet and maintaining a healthy weight can ease the pressure, and therefore risk of damage, on load bearing joints such as the hips, knees and ankles. For more information, talk to your nurse at your local haemophilia centre. You will also be given support for managing any pain you may experience following surgery. Before your surgery is conducted, your surgeons will work together with hospital pharmacists to create a pain management plan. You may be given morphine or oral painkillers, and may be encouraged to ice your joint, using, for example, a Cryo/CuffTM if you have had ankle surgery. WHAT SUPPORT DOES BAYER OFFER? Additional information can be found at: www.factorfitness.co.uk Bayer is committed to haemophilia research and supporting people with haemophilia: Funding research to advance the successful management of haemophilia Reducing needle sizes and infusion volumes to aid infusion Producing infusion aids such as stress balls and tourniquets to support patients with their infusions Creating leaflets and materials to support patients through their journey with haemophilia Developing the interactive website www.factorfitness.co.uk This booklet has been kindly reviewed and endorsed by Andrew Clements, Specialist Haemophilia Physiotherapist, University Hospitals of Leicester NHS Trust. For further information contact: Bayer plc, Bayer House, Strawberry Hill, Newbury, Berkshire RG14 1JA. Tel: (01635) 563000. © Bayer plc May 2016. ® Registered trademark of Bayer AG, Germany. Bayer and are trademarks of Bayer AG. May 2016. L.GB.MKT.03.15332a
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