Oregon Chapter News
Spring 2008
Published three times a year for our donors, volunteers,
advocates and friends in the Alzheimer community
Hope for Tomorrow,
Help for Today
10th Annual McGinty
Conference on
Alzheimer’s Disease – April 17
The Alzheimer ’s Association
Oregon Chapter, in partnership with
Presenting Sponsor The Holzman
Foundation, announces the 10th
Annual Dean McGinty Memorial
Conference on Alzheimer’s Disease.
This excellent one-day educational
event for family and professional
caregivers will take place on
Thursday, April 17, 2008 at the
Embassy Suites Hotel Washington
Square.
a refreshing heads-up of what the
world of dementia is really like.
Her presentation will be a stressreducer and spirits-raiser. It will
enable caregivers to bring more
laughter and less stress into their
caregiving and their lives.
Here are some quotes from
registrants who evaluated the 2007
McGinty Conference:
“It inspired as well as educated.”
“Very informative – speaker were
excellent and great material.”
“All info gained is helpful so I
can better serve my residents,
families and staff.”
Many facets of caregiving will be
presented by motivating speakers
sharing innovative ideas in interactive
sessions. Topics include: research,
communication, life-enhancing
activities like music therapy and Visit our website for more conference
person-centered care.
information, including a roster of
www.alz.org/oregon
1.800.272.3900
Join the League of
Experienced Family
Caregivers
The League of Experienced Family
Caregivers (LEFC) is a registry
of family members who care for
their spouse, parents, or other older
relatives and who want to help other
families by sharing information about
their experiences as caregivers.
Members of the LEFC will be
part of a research program that is
working to help create better services
and resources to support family
caregivers throughout the country.
Caregivers can participate in the
research program by completing one
or more of a series of questionnaires
or interviews about their caregiving
experience. Information collected
from these questionnaires will
be used to create assessment
instruments, educational tools, and
care management protocols that
will be used by professional service
providers to better serve family
caregivers.
To learn more about the League of
Experienced Family Caregivers, and
to become a partner, please go to
www.familycaregivers.uwm.edu.
Information about this important
research study can also be obtained
by contacting:
presenters and their topics, a list
Keynoter Karen Stobbe is a national of our generous sponsors and the
speaker and author. Her book, exhibitors who will showcase their
“Sometimes Ya Gotta Laugh,” and products and services:
keynote by the same name, offers
www.alz.org/oregon
Applied Gerontology
Helen Bader School of Social Welfare
University of Wisconsin-Milwaukee
PO Box 786
Milwaukie, WI 53201-0786
Message from the
Executive Director
Oregon Chapter
Board of Directors
Dear Friends,
2007 was an amazing year for the advancement
of the Alzheimer’s cause. Awareness was
heightened in all forms of media, with the
Alzheimer’s Association being recognized
as a leading authority on the disease. Globally the association
continues to be the largest private funder of research in the world.
Nationally we have advanced advocacy initiatives supporting
persons with the disease and their caregivers. And, close to home,
the Oregon Chapter has served thousands of families who struggle
with the myriad of challenges Alzheimer’s presents to them.
On behalf of all those we serve, I express deep gratitude to our
donors for their generous contributions of time, treasure and
talent. You are vital team members who make our remarkable
accomplishments possible.
My passion in this position is programs and services. As a
caregiver for my parents who had Alzheimer’s, I know how
important it is to learn about dementia and effective caregiving
techniques to help ease the challenges of the journey. Our annual
McGinty Conference is an amazing opportunity for both family
and professional caregivers to come together to share and gain
information. I urge you to join us for this inspiring conference
on April 17th.
I am so honored and proud to be in partnership with you to
MOVE our cause forward. Together we have made significant
strides and I know that in 2008 we’ll continue to do meaningful
work together.
If you’re not involved yet, please join us soon as a volunteer
and/or donor – I can’t imagine a more worthwhile way to make a
difference!
Judy McKellar
Oregon Chapter Offices
PORTLAND
1238 Lincoln Street
Eugene, OR 97401
541.345.8392
Central oregon
SOUTHERN OREGON
541.548.7074
2
Vice President
Mark Donham
Secretary
Tori Harms
Treasurer
Laurence Green
Members at Large
Elizabeth Eckstrom, MD, MPH
Patrick Gillette, MD
Ruth Layton
Dave Rianda
Senior Staff
Director of Programs
Kristrún Gröndal
Director of Finance
Nancy Mitchell
Director of Development
Tracy Madsen
Regional Directors
Kay Faught - Southern Oregon
Frank Hales - Cascade Coast
EUGENE
1311 NW 21st Avenue
Portland, OR 97209
503.413.7114
Recil & Violet Watson Ctr.
1135 SW Highland
Redmond, OR 97756
President
Mary Edmeades
2860 State Street
Medford, OR 97504
541.774.9348
OUR VISION
A world without Alzheimer’s disease.
OUR MISSION
Eliminate Alzheimer’s disease through the
advancement of research; provide and
enhance care and support for all affected;
and reduce the risk of dementia through
the promotion of brain health.
Visit Us Online at www.alz.org/oregon
ALZHEIMER’S DISEASE AND
HEALTH CARE REFORM
Advocacy
Alzheimer’s disease is an epidemic.
Alzheimer’s disease is a fatal,
debilitating disease that has no cure,
and there is currently no treatment
available that delays the progression
of the disease. Alzheimer’s disease
is not a natural consequence of
aging, nor is it confined to old age.
► An immediate increase
in federally-funded
medical research is the
best prevention investment:
Federally-sponsored medical
research has brought us to
the point that we can envision a world without Alzheimer’s disease.
Unfortunately, since 2003 funding has dropped steadily and has not
kept pace with medical research inflation. Reductions in funding are
slowing the pace of existing research and stalling promising work.
This is a tragedy. Federal funding for Alzheimer’s research should be
increased to $1 billion annually so that we can significantly delay the
onset of and ultimately prevent Alzheimer’s disease.
There are over 5 million Americans
with Alzheimer’s today – there
are approximately half a million
Americans under age 65 with
Alzheimer’s or another dementia.
By mid-century there could be 16
million Americans with Alzheimer’s
disease. This is a tragic future we
can largely avoid if we take action
now to protect American families,
and the financial integrity of
Medicare and Medicaid.
Most people with Alzheimer’s
disease and other dementias are
elderly and have one or more
other serious medical conditions
that further complicate their
treatment, resulting in high and
often inappropriate use of medical
services, and consequently tripling
the costs of their care to Medicare.
For the 78 million Baby Boomers
facing retirement in the years ahead,
government policy that assures
family and individual well-being,
and enables the largest generation of
Americans to retire and live many
years longer in their homes and in
good health, must be a major priority
of the next Administration and
Congress.
► People younger than age 65 living with Alzheimer’s need access
to affordable health coverage: People with early onset Alzheimer’s or
other dementias lose their ability to work and thus access to affordable,
employer-based health insurance and must rely on Medicare or
Medicaid for health care coverage. But this population faces
significant barriers in accessing Medicare and Medicaid. We must
remove these barriers and make access to health insurance fair and
simple for those who lose health coverage because of a serious illness
like Alzheimer’s before age 65.
► People with Alzheimer’s Disease and other dementias need longterm care coverage: About 10 million Americans are caring for a
person with Alzheimer’s disease or another dementia. Eventually the
demands of caring for people with Alzheimer’s who need care around
the clock overwhelms most caregivers, and people with the disease
often have to go into expensive institutional care, some of which is
paid for by Medicaid. We need a new public/private partnership to
cover long-term care to relieve the financial burden on families and to
reduce this threat to Medicaid.
► People living with Alzheimer’s Disease need better, more cost
effective care: We must support a new Medicare chronic care benefit
that coordinates care, prevents or minimizes inappropriate use of
services, reduces costs, and better meets the special needs of people
who suffer from Alzheimer’s and other serious medical conditions.
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ADELE SAVINAR
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Raymond and Roberta Davis
Stanley and Shirley Hodes
Frank and Coralen Lagesen
Alan and Joan Lippman
Gloria Londer
Billie Marx
Gene and Melody McIntosh
OfficeProductsNorthwest
Robert and Mitzi Tobias
DONALD M. SCHMIDT
Lou Stafford Insurance Inc.
ERNA SCHNEIDER
Oren and Helen Aldrich
MARY JANE SCHULTZE
Rob and Carol Roseta
VERA H. SCOTT
Don and Doris Beard
LILLIAN SEEN
Jim and Sondra Higgs
THELMA SHAMBOW
K. T. and Joanne Imamura
GORDON L. SHARP
Alyce Sharp
ALBERT SIMMONS
William and Trudy Delp
RICHARD SLOOP
Theodore and Jean Martin
CARROLL OTIS SMALL
Dennis and Darlene Teskey
HELEN SMITH
Shelly Kokkeler
JEWELL SMITH
Fred and Sue Koos
NORMARINE C. SMITH
Sharon Tavassoli
Call Our Helpline 24/7 at 1.800.272.3900
2007 Memorial Gifts
ROSALIE SMITH
Candace L. Anderson
Evelyn W. Way
ALDEN “AL” SNARE
Edgar and Jean Fennimore
Frank and B. J. Hegr
RICHARD STAHNKE
Katherine England Trust
GRETA STAUFFER
James and Judith Morton
DOLORES MAY STEICHEN
Anthony and Wendy Statham
SHIRLEY STETSON
Marks and Mary Morrison
KATHERINE STOUT
Thomas A. Stout
VERDA STUTESMAN
Thomas F. Warring
REX L. STUTZ
Helen E. Thurman
LOIS E. SUMMY
Joanne L. Johnson
KATHERINE SWETLAND
Ronald and Susan Bloom
MILTON TAXER
Ethel E. Noble
BESSIE M. THOMPSON
Gresham Barlow-School District
Deep Creek School
JULIE THOMPSON
Judith A. Hotchkiss
PHYLLIS THORNE
Gerald and Edna Beth Beasley
David R. Carlson
David and Marjorie Kemper
H.M. and Shirley Mardock
LINDA TIEDE
Earl and Virginia Nutz
JULIAN TORLAND
George and Selma Berge
Curt and Theresa Ellson
Millie M. Smith
DONALD TRUEDSON
David and Christina Jones
NELLIE TURNER
Charles and Anna Mae Guile
Howard and Dorothy Herbert
Mr. and Mrs. R. A. Reents
R. O. and Grace Wilkison
DORAL TWEED
Terry Lynn Carroll
DOUGLAS P. VANNIER
Eric and Leslie Foren
ANNE VANOVER
Darel and Diana Mack
Kathryn J. Mattimore
JOHN VENATOR
Judy V. Goude
GARY B. VINCENT
Virginia J. Vincent
MARGE VOORHEES
Clive and Eleanor Dumdi
Johan and Emel Mehlum
TAMARA “TAMI” KAY WALLICK
Kenneth and Laverne Erickson
Jim and Mary Marshall
Charles and Martha Nelson
Michael and LeeAnn Reiersgaard
Thelma Rice
Estel and Deanna Shike
Alice L. Smith
Dr. Scott E. Woodruff
Johnand Mary Lee Yentz
JAMES “JIM” WASSON
Cliff and Ione Jones
Mike and Teri Milton
Harold and Sharon Wasson
SHIRLEY WATKINS
James and Joanne Davis
Ruth Pasley
MAYNARD WEEKS
Thomas and Marie Duncan
TED WEIST
Robert and Jean Read
HARRIET WERSCHKUL
Rafield Werschkul
ROSE WESTERBERG
Marlene R. Westerberg
VIRGINIA LEE WESTERN
Mariella W. Dibble
DIANE WESTOM
Carol Metke
BEATRICE WHITE
Eileen White
LORENA WHITE
Anonymous
Robert and Wilma Baker
Russell and Celeste Cornish
Helen N. Hansen
Howard and Donna Lefler
Ruth E. Rasmussen
Mary B. Stuart
Reva Waddell
LYNETTE WILCOX
Kathleen L. Thurman
GLEN MYRON WILLIAMS
Peggy Likes Miller
JANET WILLIAMS
Denis and Mary Lee Brown
SYLVIA E. WILLIAMS
Neal and Joyce Arntson
Arthur and Margaret Bauer
Robert and Darlene Brown
Richard and Suzanne Carleson
J. L. and D. F. Gassaway
A. Douglas and Audrey King
Howard and Mary Lovvold
Mark and Faye McClanahan
Richard and Evelyn Page
Theodore and Maxine Pimm
Rosemary E. Roth
Margaret E. Shea
Dr. Forbes Warner Williams
Rodney and Mary Williams
Paul and Jo Ann Wilson
DAVID B. WILLIAMSON
G. W. Curnutt, OD, PC
DAVID HOLMES WILSON
Bullard Smith Jernstedt Wilson
LYNETTE J. WILSON
James D. Wilson
DOLORES WISELY
Dean and Bette Eppinger
LLOYD WOLFER
Wiley and Emma Prophet
Raymond A. Young
JOSEPH M. WONG
Peter and Joyce Fuchs
Wayne and Mary Hong Lei
Robert and Lily Quan
Southwest Washington Medical
Center
VIRGINIA WOOD
Mary Sue Wood
RUSSELL K. WOODRUFF
Debra L. Woodruff
DORWIN AND LUCILE WRIGHT
Darlene Horn
FAYE WYATT
Jerry and Janet Banks
Horgan Associates Inc.
Icicle Seafoods, Inc.
Donna A. Knudsen
John and Jean Schwabe
Paul and Christine Stefani
Susan Taylor
Barbara J. Tyler
MARY YAMAMURO
Ronald and Linda Iwasaki
BRUCE YEAGER
Shirley B. Carnahan
Robert and Patricia Ferazzi
Timothy and Candis Votaw
MARY ELLA LEETE YODER
John and Jane Titland
JOSEPH YORK
Madeline York
DONALD K. YOUNG
Nadine Keepers
PEARL YU
Chang-Keng and May Liu
CLARENCE ZETTER
Beth E. Zetter
These generous gifts were
made IN MEMORY OF
those in bold italics between
July 1 and December 31, 2007
5
Ask Our Doc
My husband is constantly
repeating himself and asking
the same question over and
over again. For example,
yesterday he kept asking about
our daughter, Mary, who lives
in Arizona. He keeps saying….
“Where is Mary?” “Where is
Mary?” I kept telling him that
Mary is not here and that she
lives in Arizona. What should I
do?
Repetition is a behavior that results
from your husband’s impaired memory
and an early hallmark of Alzheimer’s.
After answering his question several
times it is often more productive to
change the subject by diverting his
attention to something else. “Mary
isn’t here right now. I’ve got her
favorite cookies in the kitchen. Let’s
have some and look at the pretty
sunset.”
If your husband is upset, focus on
the emotion not on the behavior, and
address the feelings before you divert
his attention. “You miss Mary don’t
you? I do, too.” You can then bring
up a pleasant memory about your
daughter from the past that you know
he will remember.
Memory Mart
Sport your Memory Walk spirit year
round with purchases from our Memory
Mart. Terrific items with Alzheimer’s
Association or Memory Walk logos
are available at very affordable prices.
Proceeds from Memory Mart support the
work of the Oregon chapter. Let your
fingers do the shopping at:
Steady Your Investments with a Charitable Gift Annuity
Have you watched the stock market go up and down, continue to climb
and head south? Like a teeter-totter these fluctuations can be worrisome
if you have invested in the market. Although changes are expected in
the stock market, as we age we don’t like to risk the volatility that can
happen overnight.
Consider this remedy. A Charitable Gift Annuity (CGA) from the
Alzheimer’s Association will give you a steady payment for your lifetime
while providing gift and estate tax savings.
A gift annuity is a simple agreement between a donor and the Alzheimer’s
Association. Assets are transferred to the Association and in return the
donor receives fixed payments for the remainder of his or her lifetime
and/or the lifetime of another person.
The size of your payment is determined by a number of factors, including
the amount that is placed in the annuity and the age(s) of the recipient(s)
at the time the annuity is created. For example, a 75 year old individual
would receive a gift annuity rate of 7.1%.
While you are helping to steady your financial situation with a CGA
you will also be assisting a trusted organization like the Alzheimer’s
Association. For many years the Oregon Chapter has helped make a
positive difference for people affected by this disease.
To receive a tailored illustration for you or a family member, please
contact Tracy Madsen, 503-413-7158; [email protected].
Portland Office Relocation Update
We continue to research options for office space to
move the chapter’s Portland office in the next few
months.
If you wish to donate funds towards the purchase
of essentials needed by our clients and staff, please
phone the Portland office at 503.413.7114 or 800.272.3900 or e-mail
[email protected].
A partial list of items we will need:
Bookcases
Break room table
Conference chairs
Conference table
Desk chairs
Desk chair pads
Desk return
Desks
File cabinets
Lamps
Refrigerator
Storage containers & shelves
www.memorymart.org
6
Visit Us Online at www.alz.org/oregon
Support Group Facilitator
Training
Programs and Services
The Alzheimer’s Association’s Oregon
Chapter sponsors affiliated support
groups throughout the state. In some
communities other organizations,
including hospitals, adult day care
centers, churches, senior centers, mental
health agencies, libraries, community
centers and other aging service
providers, collaborate with us to offer
the groups.
Taking Care of You ~ Powerful Tools for Caregivers
The Association provides monthly
support group facilitator trainings to
assist new and experienced support
group facilitators to stay current on
issues and policies. Volunteer facilitators
are vital, generous partners.
Please see the following information
for Support Group Facilitator Training
closest to you. Registration is Required.
Portland Metro Area:
Alzheimer’s Association
1311 NW 21st Avenue
Contact: Kristrún Gröndal
503-413-6447
Training Sessions
February 13
Full
March 21
Full
April 18
9:00 a.m. – Noon
May 16
9:00 a.m. – Noon
Eugene:
Cascade Adult Center
996 Jefferson Street
Contact: Frank Hales 541-345-8392
Training Session
February 8
2:00 – 5:00 p.m.
Medford:
Medford Area Senior Services
2860 State Street
Contact: Kay Faught 541-774-9348
Phone office for session information
Caregiving involves many
challenges. You often need to
master new skills and develop new
ways of relating to a family member
if his or her ability to communicate
or remember is compromised by
illness. You may have to make
tough decisions. Often one of the
greatest challenges is taking care
of yourself. Too often caregivers
neglect their own health and
well-being, and put their own needs on the back burner.
Sometimes caregivers become a second victim of the disease that
afflicts their family member. This is especially true if the disease is
Alzheimer’s or a related dementia. It is sad when someone says, “My
mother was the person with the disease, but her illness destroyed my
father.” We usually cannot stop the impact of a chronic illness on a
family member. We are, however, responsible for our own self-care.
When you board an airplane, the flight attendant gives you several
safety instructions. One of them is, “If oxygen masks drop, put your
own mask on first before helping others.” This is because if you don’t
take care of yourself first, you may not be able to help those who need
you the most. It’s the same thing with caregiving. When you take care
of yourself, everyone benefits. Ignoring your own needs is detrimental
to you, and can also be harmful to the person who depends on you.
When you are a caregiver it is not selfish to focus on your own needs
and desires—it is an important part of the job.
Beginning February 26, 2008 the Oregon Chapter will offer a
six-week course called Caring for You: Powerful Tools for
Caregivers. Registrants will learn important stress-reduction and
communication techniques, how to seek and accept the support of
others, and how to change negative thinking into positive affirmations.
This life changing class, taught by specially trained instructors, was
authored by Vicki L. Schmall, Marilyn Cleland, Marilynn Studevant
and Legacy Health Systems.
For more information and to register, please call
503-413-6465.
Call Our Helpline 24/7 at 1.800.272.3900
7
Save the Date!
10th Annual McGinty
Conference on Alzheimer’s
The Holzman Foundation
Presenting Sponsor
Thursday - April 17, 2008
Conference details will be posted
on our website as they become
available at www.alz.org/oregon
www.alz.org/oregon
800.272.3900
We are striving on your behalf 24/7
to give everyone a reason to hope.
1311 NW 21st Avenue
Portland, OR 97209-1610
Hope for Tomorrow,
Help for Today