Wandering in the Woods A Visit Woods pilot project July 2011 Neil Mapes Wandering in the Woods Dementia Adventure 2011 Wandering in the woods 1 Acknowledgements We would like to extend our warmest thanks to all the people living with dementia, their family carers, the care staff and volunteers from Caring Homes who took part in and made this project possible. We would also like to thank Tony Vale and Gail Graham for supporting the initial idea and design of the partnership agreement for this pilot project. We would like to thank Jill Attenborough, Shona Morton, and Jane Craven from the Woodland Trust who gave their time to support each of the respective woodland visits. We would like to thank Rachel Hine (University of Essex) and Garuth Chalfont (Chalfont design) for their advice and support with this report. Finally we would like to thank the staff at the three woodland locations who welcomed our groups at Hylands House in Chelmsford (owned by Chelmsford Borough Council), Sheffield Park National Trust and the Westonbirt Arboretum (owned by the Forestry Commission) Wandering in the Woods Dementia Adventure 2011 1. Executive Summary This report details a pilot project called „Wandering in the woods‟ which was delivered by Dementia Adventure from April to June 2011. This project was funded by the Woodland Trust as part of the Visit Woods project (www.visitwoods.org.uk) and delivered in partnership with Caring Homes (www.caringhomes.org) across three locations in Essex, East Sussex and Wiltshire. This written project report is accompanied by three short films of the woodland visits which are available at www.dementiaadventure.co.uk. 2 Designing and delivering this project has been a pleasure and an inspiration. The act of re-connecting people living with dementia in care homes with nature, and in particular, with woodlands, is a simple idea yet one capable of transforming how we understand and treat dementia. This pilot project has shown that there are potentially very significant physical, emotional and social benefits to people living with dementia visiting woods and being active out in nature. The findings in this report indicate that there is a compelling need for a larger, more scientifically rigorous investigation into the specific benefits of woodlands and other outdoor environments for people living with dementia in care home settings. Specifically, the potential cost-benefits are huge, primarily in helping to dramatically reduce use of anti-psychotic medication and reducing the frequency and severity of anxiety, apathy, anger and depression which all too commonly predominate in long term care settings. These can occur with less frequency out in nature, and after exposure to nature. At a time when we are trying to reduce the use of anti-psychotic medication and unnecessary hospital admissions, getting people out into nature is potentially a significant non-pharmacological treatment which is accessible and readily available for all people living with dementia. This pilot project has specifically contributed to the meeting of three outcomes as identified by Access to Nature (see appendix 4), which are evidenced in the benefits below and are: People experiencing social exclusion feeling better physically or mentally through accessing woodlands Access to woodlands for leisure/recreation is improved through investment in information and on line resources Key partner organisations have the requisite knowledge to support target groups in accessing woodlands for leisure/recreation Wandering in the Woods Dementia Adventure 2011 3 1.2 Physical benefits We have captured a broad range of qualitative evidence from this pilot project which indicates the potential physical benefits for people living with dementia, these include: Improved sleep Improved dietary intake Improved activity and exercise levels Multi-sensory engagement and associated joy Increased verbal expression Improvement in memory We also captured a range of quantitative data, the most significant finding of which showed that only 1 participant rated exercise as „very important‟ before the woodland day out and 12 participants rated exercise as „very important‟ after the day out, representing a 41% increase as a result of the woodland visit. “I would be happy to walk as much as is allowed” “You start looking again don‟t you?” “Listening to the birds was lovely” “I don‟t care how cold it is, I like the fresh air” (People living with dementia) “I know she is taking it all in” (Family carer) “I am struck by how long people have been awake for…people have talked more as the day went on…We were outside nearly three and a half hours and the concentration and energy levels were amazing.” “Having spent many afternoons visiting a relative in a care home conversation so quickly ran out because there was nothing to talk about other than news we had stored up and brought with us. Here there was stimulation all around us.” “It was lovely to see at least some of the residents eating heartily, sharing in the picnic. The laughter, talk and beautiful surroundings all meant that eating became just another nice part of the experience rather than the sole focus and something they must do.” (Woodland Trust Staff members) “People sleep better when they‟ve been out…people talk more, eat more, it gives them an appetite…and they live longer” “Patricia (resident) the following day came out of her way to thank me for taking her out saying what a lovely day she had. Patricia still recalls the day, only yesterday she commented to her daughter about her day at the woods. The care staff who came along also noticed how relaxed everyone was and how at peace the residents were during and on return.” (Caring Homes Staff members) Wandering in the Woods Dementia Adventure 2011 1.3 Emotional benefits We have captured a broad range of qualitative evidence from this pilot project which indicates the potential emotional benefits for people living with dementia, these include: Mood enhancement Spiritual uplift Stronger sense of self Having more control 4 “Amy cried with happiness upon welcoming her in the Willow circle outdoor classroom” (Dementia Adventure volunteer) "I felt alive, wonderful day! I remember the arch way with all the flowers hanging down, I cannot walk and need help from kind people to take me these places and relieved that it can happen” “The height of love and bliss, getting out” “It is so peaceful” “I don‟t like being told what to do I like being asked” “I was in the Ramblers, always enjoyed walking” (People living with dementia) “Mum was always an outdoors person, a country girl, and loves to get out” (Family carer) “The delight on one lady‟s face who couldn‟t communicate much verbally was wonderful. She reached out and touched and for a short time was in control of what she wanted to do – she wanted to be amongst the flowers and delight in them…” “One lady became more independent as she walked along requiring less input from her carer; another lady became less anxious and more relaxed as we wandered along the tree lined paths.” “…the visible lifting of spirits as people realised where they had come to and that it wasn‟t going to be difficult or demanding or scary, just relaxing and stimulating and outdoors” (Woodland Trust staff) “She (Rosie) has not stopped smiling and talking about the day since she came home asking to go again she said „so much to see ducks , flowers , trees so exciting and made me feel very happy.‟" (Caring Homes staff) Wandering in the Woods Dementia Adventure 2011 1.4 Social benefits We have captured a broad range of qualitative evidence from this pilot project which indicates the potential social benefits for people living with dementia, these include: Sense of belonging Sense of friendship and kinship Community presence and activity Co-incidental positive social encounters 5 “Lucky to have had a nice time in the sun walking with nice people” “Lovely to have the children along” “Part of the joy has been all ages” “Lovely wandering around together…on the same wavelength…friendly” “I like to be out…usually bunged up somewhere.” “It is important to get out into the larger world and community so you don‟t get shut away.” “Got to come out into the world to see what is going on” (People living with dementia) “Even the changing temperature was a reason for people to be individuals – I am a little chilly...do you like the direct sunshine?” “I guess „normal‟ encounters with everyday folk are fairly few and far between for most residents, a trip outside makes it possible. The wedding was an added bonus and made us all feel part of something together”. (Woodland Trust staff) “This day, like the Hylands day, coincidentally finished with the group witnessing a wedding congregation in the grounds. Being part of these community spaces allows coincidences like this to happen naturally.” “…many enjoyed staying out in the rain rather than retreating indoors (as can be the case when residents go out in the garden of the home and it rains)” (Dementia Adventure Staff) Wandering in the Woods Dementia Adventure 2011 1.5 What we learned We have learnt a lot about the importance of nature and of woodland settings to people living with dementia in care settings. We learnt how important it is simply to get out of the home and into nature. We learnt a lot about what makes a good woodland visit and in conducting „light-touch‟ research. This pilot phase has laid the foundations for a larger piece of work and research. Specifically we have learnt: 6 Venues and walking paths which are wheelchair friendly are not automatically dementia friendly. Venues which have natural resources and green environments have not yet fully considered people living with dementia as potential users/customers/partners and appear to lack dementia specific knowledge and expertise to successfully engage people with dementia in the way they have done with other groups. A well designed circular walk is an essential element of a successful woodland visit. The elements of this include: key features/trees/landmarks along the route, choices of direction along the route, stopping places to appreciate trees and share information, access to facilities (such as toilets, cafe and wheelchairs) and undercover space. Outdoor „classrooms‟ with circular seating work better for group dynamics than traditional picnic table seating. Sharing food outside together worked well in establishing a positive group dynamic. Creative and entertaining information boards are an important element of enabling people living with dementia to enjoy a woodland visit. Special invitations to get out of the care home are important, as is welcoming and appreciating people on arrival in the woodland setting. Enabling people to get out into nature shows them that they matter. It is important that people with dementia are visible active members of our communities. The simple and easy equality that is found in natural settings is helped by a diverse group of ages. The children brought another dimension to the day; it eased everyone into a family atmosphere, bringing the group together as one: staff, residents, family and friends. Like nature, people blossomed and bloomed as the day progressed, terror and anger being replaced by friendship and joy. The activity out in woodland settings enabled people living with dementia to positively re-frame their understanding of what „exercise‟ means. Wandering in the Woods Dementia Adventure 2011 7 Finally, perhaps most importantly, we have learnt that family carers play a crucial role in maintaining a regular connection with nature for their loved ones which can preserve the emotional bonds they share. “The most memorable part of the day was the gratitude of one of the relatives who was genuinely appreciative of the day and what it had enabled his relative to experience. He so wanted to tell his own daughter about the day, and get her to see the video clips so that she could see her grandmother on this day out, being a different person to how she was in the home. This sentiment was echoed by the care staff who also stated that they could see the residents come out of themselves and acting differently. A positive and thoroughly enjoyable day for everyone.” (Woodland Trust staff) 2. Project Background 2.1 Why Woods? Woods are a fantastic, low cost resource for leisure and health but they‟re sometimes overlooked when we‟re planning a day out. Over half of us live within 4 km of a wood. There are nearly 14,000 woods in the UK which welcome visitors, and www.visitwoods.org.uk makes it easier than ever to find somewhere new to explore. Woods have something for everyone. No two places are the same and visiting the woods is a real breath of fresh air if you usually meet indoors. Spending time outdoors together is a great way to get your group talking or sharing experiences and memories. Visiting together can also help group members gain the confidence to enjoy the great outdoors independently. Research shows1 spending time in green spaces is great for our physical and mental health. Woods specifically offer us space to: • relax away from noise and stress • spend time with friends or family • exercise at our own pace • connect with nature • try new activities • indulge all of our senses • enjoy our hobbies somewhere new • be ourselves 1 A collection of the most up to date research on the general benefits of ‘green exercise’ can be found at www.greenexercise.org Wandering in the Woods Dementia Adventure 2011 Woods are different every time we visit. Each season brings different wildlife, plants, sounds, and sensations - a real feast for the senses. For a shady spot on a hot day or a scenic trail for a winter stroll woods are ideal. For people looking to try something new, www.visitwoods.org.uk helps groups of all kinds to find places ideally suited to their needs. . 8 2.2 Pilot Project Wandering in the Woods is the title of this pilot project which was designed and delivered collaboratively between three partner organisations: the Woodland Trust (as part of the Visit Woods project), Dementia Adventure CIC and Caring Homes respectively. This paper reports back on the pilot project delivery which took place between April and July 2011. It shares resources, evidence, information and case studies to inspire and inform people living with dementia (and the families and staff in care settings who support them) of the benefits of visiting woods and of getting out and connecting with nature. This project builds on the author‟s previous research (Mapes 2011), titled Living with Dementia and connecting with nature which explored the benefits of green exercise for people living with dementia. This research highlighted the need for a green exercise project in care homes. The University of Essex defines green exercise as "engaging in physical activity whilst simultaneously being exposed to nature." This pilot project also uniquely combines the substantial experience Caring Homes staff has in supporting their residents to enjoy outings away from the home, the expertise Dementia Adventure has in assessing, designing and delivering adventures, and the national reach and focus of the Visit Woods project. “The partnership between Visit Woods, Dementia Adventure and Caring Homes is so important in demonstrating that accessing green space can significantly improve the quality of life of people with dementia. This pilot project has demonstrated how vital it is to provide access to the outdoors for all. VisitWoods.org.uk is designed to inspire people to visit their local woods and provides information to enable them to do so more easily. This is crucial for helping people with specific needs ensure they have the confidence to go ahead and enjoy their visit.” Gail Graham, Project Manager, Visit Woods. Wandering in the Woods Dementia Adventure 2011 2.3 Visit Woods and the Woodland Trust 9 VisitWoods.org.uk is the only UK website where you can find almost all of the woods in the UK you are welcome to visit, no matter who owns them. This website is part of a wider Visit Woods project which aims to inspire people to discover woods and the many benefits they have to offer. Visit Woods is a partnership project, led by the Woodland Trust which receives funding from Natural England (through their Access to Nature programme, part of the Big Lottery Fund Changing Spaces programme). The Woodland Trust is the UK‟s leading woodland conservation charity with a vision to see a country rich in native woods and trees enjoyed and valued enjoyed by everyone. It aims to: plant more native trees protect native woods, trees and their wildlife inspire everyone to enjoy and value woods and trees. 2.4 Neil Mapes The author of this report has a background in Clinical Psychology and has volunteered and worked in a wide variety of health and social care positions since 1994. He has led and established a variety of innovative projects and initiatives including one of the first Alzheimer's cafés in the UK, a specialist outreach service for younger people with dementia, new qualifications in mental health, mental capacity advocacy, and multi media research into the social exclusion of older people. He was also a consultant on Dementia Choices (a recent Mental Health Foundation project exploring self-directed support). Neil co-founded Dementia Adventure and is a 2010 Clore Social Fellow, an UnLtd Fellow and a Visiting Fellow at the University of Essex. 2.5 Dementia Adventure Community Interest Company (CIC) Dementia Adventure provides adventure travel and short breaks for people living with dementia. It is also a leading voice in a social movement which is positively re-framing dementia. Dementia Adventure has a vision of society in which people live well with dementia, are connected to nature, and enjoy a sense of adventure. A society where people enjoy a full range of activities, have strong relationships with people in their communities and have access to places connected to their interests, passions and dreams. In addition to providing a range of local, national and international adventures Dementia Adventure also provides training, consultancy and research with individuals and organisations who wish to enable people to live well with dementia. Wandering in the Woods Dementia Adventure 2011 Dementia Adventure is a community interest company, which means it operates for the benefit of the community rather than for the personal gain of those involved. For more information on Dementia Adventure CIC, please call 01245 269 769 or visit the website www.dementiaadventure.co.uk. 10 2.6 Caring Homes Caring Homes is one of the UK‟s largest and well respected independent care homes group. Founded in 1994 by Helena Jeffery, with the purchase of Bradbury House in Essex, the Caring Homes Group now owns and runs more than 100 care homes in England and Scotland. Caring Homes is an award winning quality accredited provider of personalised professional nursing care, social care and specialist dementia care to older people who would benefit from a period of short term respite care through to a tailored long-term care solution. A number of Caring Homes provide specific care for people living with dementia. For more information on Caring Homes please visit www.caringhomes.org Wandering in the Woods Dementia Adventure 2011 11 3. Introduction There is a fundamental need and desire for all of us to have contact with and connection with nature. Our connection with trees and woodlands is ancient, emotional and practical. Yet our many native woodlands are under threat, need conservation and individuals find it difficult to access or fully benefit from being in woodlands and around trees. There is an increasing bank of scientific evidence that confirms what we already know - that the natural environment, including woodlands, is good for us (Mayer et al, 2009). Kaplan said that the natural world satisfies our need for contemplation, escape, restoration and distraction (Kaplan 1995). People living with dementia in care settings could perhaps be one of the groups in our society most in need of contemplation, escape, restoration and distraction. This pilot project has enabled three groups of care home residents living with dementia, (with support from staff, volunteers and family carers) to get out of the care home, to re-connect with nature and to enjoy the many benefits of woodlands. What do we know about the benefits of nature, exercise and activity outdoors for people living with dementia? 3.1 Benefits of Nature It is well known that exposure to natural places leads to better mental health whether it be a view from a window (Ulrich, 1984), being in nature (Pretty et al, 2005), or exercising in these spaces (Pretty et al, 2007). There are clear benefits to green exercise for a wide variety of people, these benefits include improved self-esteem and improved mood, and often these benefits can be experienced from as little as five minutes in nature (Barton and Pretty, 2010). The Mental Health Foundation's report "Moving on up" identifies the following advantages of exercise - exercise is cost effective, is available, there are coincidental benefits (e.g. healthier muscles and joints), is sustainable, promotes social inclusion and is popular (Mental Health Foundation, 2009). The Government have recently outlined an extensive range of commitments to valuing the natural environment in a white paper called “The Natural Choice securing the value of nature.” Chapter 4 of the white paper specifically details reconnecting people and recognises the health benefits of spending time in the natural environment. The executive summary tells us: “Nature is sometimes taken for granted and undervalued. But people cannot flourish without the benefits and services our natural environment provides. Nature is a complex, interconnected system. A healthy, properly functioning natural environment is the foundation of sustained economic growth, prospering communities and personal wellbeing.” (HM Government, 2011, page 3.) Wandering in the Woods Dementia Adventure 2011 12 3.2 Accessing Woods and Walks Visit Woods estimates that 33 million people in the UK live within 4km of a large wood that welcomes visitors2. Often these spaces are cost free and don't have opening and closing times. Increasingly, organisations such as Natural England with Walking for Health3 and their campaign Our Natural Health Service4 are encouraging everyone to make use of their local green space and the benefits this brings. Walking for Health are volunteer supported walks which people can join bringing the additional benefit of meeting and talking to new people, re-establishing community connections and people‟s ability to support one another outside of formal service provision. Dementia Adventure CIC similarly has successfully designed green exercise programmes specifically aimed at people living with dementia (Mapes 2010). 3.3 Dementia and Nature Dr. Garuth Chalfont found that nature based experiences are, perhaps unsurprisingly, therapeutic for people living with dementia. Chalfont states in his prosentia hypothesis “that if a person with dementia has a sensory connection to nature in a supportive relationship with another person, then interaction within this triangular dynamic can help the person to maintain a sense of self,” (Chalfont, 2006). Fundamentally this pilot project brought people living with dementia together with the people who support them to connect with nature and so supports this hypothesis. But often we forget that nature is a valuable non-pharmacological therapy. Nature based experiences can be restorative or healing, contributing to the emotional, psychological and spiritual intangibles of well-being (Chalfont, 2006). Edward Wilson used the term biophilia (literally a love of living things) and proposed the possibility that the deep affiliations humans have with nature are rooted in our biology (Wilson, 1984). More recently, Professor John Zeisel says in his groundbreaking book on Alzheimer‟s disease: "It is likely that the need for contact with the natural environment and the feelings we have about nature and being outdoors are hardwired, partly because this is a source of food. Sunshine, flowers, shade, moonlight and trees are all so much a part of our basic nature that no one has to be taught to respond appropriately to such stimuli. Again not surprisingly, gardens and nature are much appreciated by those with the illness." (Zeisel, 2009, page 62) Connection to nature can enhance verbal expression in people living with dementia (Chalfont, 2006). Chalfont identified in the same research that 2 3 www.visitwoods.org.uk www.whi.org.uk 4 www.naturalengland.org.uk/ourwork/enjoying/health/ournaturalhealthservice/default.aspx Wandering in the Woods Dementia Adventure 2011 nature based activities for people living with dementia can bring joy and sensory stimulation. He also found that family and professional carers play an important role in enabling a person living with dementia to maintain a connection to nature by overcoming obstacles (Chalfont, 2006). Family carers and professional carers were a fundamental part of this pilot project. 13 3.4 Dementia and Exercise Green exercise can enable individuals living with dementia to feel well and experience a “dampening down” or absence of their dementia related symptoms (Mapes, 2011). The simple act of walking is important in enabling us to feel well, forget about our illnesses and remain active. Exercise is one of five factors which have a strong evidence base for reducing the risk of dementia (Bradley, 2010). This year the work of Dr. Erickson and colleagues showed that regular walking can increase the size of the hippocampus region of the brain and improve memory, their work was widely covered by the world‟s media (New York Times, 2011). Studies which have concentrated on green exercise or activity with people living with dementia have shown that there have been improvements for people living with dementia in terms of better sleep patterns (Brooker et al, 2007), longer sleep duration (Connell, 2007), better continence and mobility (Brooker et al 2007) and eating patterns (De Bruin et al, 2010). Whilst the benefits of nature are at times intuitive and have been widely evidenced we don't yet have a strong sense of how these benefits might apply to the wide range of people living with dementia, particularly those living in care settings. "While progress has been made in terms of our understanding about the importance of outside spaces for people with dementia and of the benefits of being outside in terms of mobility, sleep patterns and well being, there is still much to be done" (Moriarty, 2006) This project aimed to bring together people living with dementia from care settings, the staff which support them and their family carers and for them all to enjoy a woodland walk out in nature. We set out to make each woodland walk enjoyable and successful whilst at the same time capturing information that could inform and inspire others of the benefits of this approach. Wandering in the Woods Dementia Adventure 2011 4. Methodology We used the „participation appraisal‟ method, which is further explained below but was chosen because of the four common principles of participatory methods as highlighted by Pretty and Hine (Pretty and Hine 1999): 14 1. It is a systemic and group learning process – we wanted to inquire together as a group, interacting with each other and nature 2. Multiple perspectives of stakeholders – we wanted to seek a diversity of views of residents, relatives, staff and volunteers 3. Facilitation leads to transformation – we wanted to transform existing activities offered to people living with dementia 4. Learning leads to sustained action – by learning together in this way future action is more likely 4.1 Caring Home pilot site selection Initially the design of this project allowed for one pilot location to be chosen and for a walk to be designed and delivered in a woodland in May (one of the best months of the year for woodlands), with the possibility of two further pilot locations being selected later in the year to take advantage of autumnal colours. However, interest in the project quickly grew and three Caring Homes locations were identified both by Caring Home head office and by selfselection as those who: Had a successful track record of providing outings from the home Had recent experience of nature based outings with residents Had an experienced activity co-ordinator willing to be the local lead Were located within a short drive (up to 45 minutes) of a potentially suitable woodland(s) Wanted to be part of new pilot project The three Caring Home pilot locations were selected as: 1. Bradbury House in Essex (also the first home owned by Caring Homes) 2. Heffle Court in East Sussex 3. Ferfoot in Wiltshire 4.2 Woodland venue selection Once the Caring Homes pilot sites were selected the Visit Woods team quickly identified the best local woodlands using the following criteria: The woodland was listed on the VisitWoods.org.uk website Within a 45 minute minibus journey from the Caring Home Disabled parking Accessible toilets Accessible (wheelchair-friendly) paths Wandering in the Woods Dementia Adventure 2011 Inside spaces Woodland and green spaces Catering or café facilities Beautiful locations to spend a day out in nature The three Woodlands chosen met all these criteria. In choosing the three woodland locations we also wanted to visit woodlands which were not owned by one single organisation, thus increasing the scope for learning. The three woodlands chosen were: 15 1. Hylands park in Essex (owned by Chelmsford Borough Council) 2. Sheffield Park in East Sussex (owned by the National Trust) 3. Westonbirt Arboretum in Gloucestershire (owned by the Forestry Commission) 4.3 Participant appraisal question and data gathering The participant appraisal questionnaire was designed to gather the following data: Age Gender Status (resident, relative, staff or volunteer) Responses to the statement “I can enjoy life” - this being one of the National Dementia Strategy Quality Outcomes (Department of Health, 2010) Responses to the statement “I get the treatment and support which are best for me” - this also being a National Dementia Strategy Quality Outcome (Department of Health, 2010). Responses to how important different aspects of a woodland visit were to people including: scenery, wildlife, being part of a group, being on my own, exercise, fresh air, getting out of the home, independence and self-identity. This data was gathered twice for each pilot location. Both before the woodland walk had taken place on the Caring Home pre-planning visit (see below), and secondly during (towards the end) of the woodland walk itself. The data gathering itself was done by pictorially drawing charts and boxes on large flip charts and individuals being shown and supported to put stickers in the relevant boxes. Individuals were given post-it notes to stick on the charts recording their comments and staff collected and recorded post it note quotes on the charts too. This process was carried out both with individuals and small groups at the Caring Home locations and again at the Woodland locations. Participant appraisal flip chart examples are shown below: Wandering in the Woods Dementia Adventure 2011 16 4.4 Assessment and design visits Dementia Adventure visited each woodland location ahead of the group‟s visit to the woodland. The purpose of this visit was to: Gather details about the specific features and benefits of the venues and woodlands Take photographic imagery to share with the residents, families and staff at the homes Design and plan different options for the entire day and for a „dementia friendly‟ walk to be discussed and agreed with the Homes Carry out a risk/benefit assessment of the visit to the woodland 4.5 Pre-planning and design with Caring Homes A pre-planning visit was also undertaken by Dementia Adventure to each of the Caring Homes taking part in the pilot project. The purpose of these visits was to: Inform and inspire residents, families and staff about the Visit Woods project and about the planned day out itself (including sharing photographic imagery and walk route information) Gather interest in the day, share information and discuss the pilot project and complete consent forms for all participants Build upon the home‟s previous experiences in planning and delivering days out in nature for residents Co-design an overall plan for the visit to the woodland including timings, transport, entry fees, lunch and walking routes Inform the risk/benefit assessment process (see below) Gather data for the participatory appraisal process Wandering in the Woods Dementia Adventure 2011 17 4.6 Conducting the Walks Each of the three visits to the woodlands was conducted to a broadly similar time framework which involved: 1130 – arrival at the woodland location 1145 – welcome, appreciation and information provision 1200 – picnic lunch 1300 – 1500 woodland walk 1500 – data capture 1530 – depart the woodland location Timings for each walk differed slightly across each location, but the central themes which were common in the delivery of the walks were: At least a 1:1 ratio of people living with dementia to supporters Minibus transport to and from the venue Dementia Adventure led the day and the walk itself A circular walk in the woodland starting and finishing at the central facilities 5. Results 5.1 Participant data Participants in this pilot project (excluding Dementia Adventure staff and volunteers who were present at all three events) totalled 52. A full breakdown of participants and related data is below. NB: Sums do not total in all cases as some people did not answer all questions and before and after groups varied in their composition. 5.2 Pre-planning Visit Woods visits Across the three pre-planning visits, to each of the Caring Homes, we gathered participatory appraisal data from: Males Females Age range: <60 Age range: 60-69 Age range: 70-79 Age range: 80-89 Age range: 90-99 Number of residents Number of family carers Number of staff Total number of participants 4 24 3 3 2 14 2 15 9 4 28 Wandering in the Woods Dementia Adventure 2011 5.3 Visit Woods days out Three woodland days out were held during May and June 2011 with the following numbers of attendees: 18 Day out Residents Family carers CH staff and volunteers WT DA staff and volunteers TOTALS Hylands 7 2 8 Sheffield park 9 5 6 Westonbirt 8 2 2 1 3 1 3 1 4 21 24 17 CH: Caring Homes DA: Dementia Adventure WT: Woodland Trust There were 7 people using wheelchairs (for some or all of the time) on the Hylands day out, 4 people on the Sheffield park day and 5 people on the Westonbirt day respectively. On the Sheffield park day there were three children part of the group (ages 16 months, 5 years and 10 years). On the Westonbirt day there were two children (ages 16 months and 5 years) part of the group. 5.4 After (during) the VisitWoods day out Across the three visits to the Woodlands we gathered participatory appraisal data from: Males Females Age range: <60 Age range: 60-69 Age range: 70-79 Age range: 80-89 Age range: 90-99 Number of residents Number of family carers Number of staff Total number of participants 6 21 10 4 4 5 2 12 6 9 27 Wandering in the Woods Dementia Adventure 2011 NB. The total number of participants on the day out differs from the total numbers of participants involved in the pre-planning visits because these groups were not strictly set and tracked. 5.5 Question breakdown We used the following rating scale for question 1 and 2: 19 1: None of the time 2: Rarely 3: Some of the time 4: Often 5 All of the time We asked participants to rate two statements with the following breakdown of results. 5.5.1 Question 1: I can enjoy my life Before Rating 3 Rating 4 Rating 5 Total No. 3 11 12 26 % 12 42 46 100 After Rating 3 Rating 4 Rating 5 Total No. 2 5 6 13 % 15 38 46 100 NB. No scores given for rating 1 or 2. Comments from question 1: Just be happy where you are 5.5.2 Question 2: I get the treatment and support which are best for me Before Rating 3 Rating 4 Rating 5 Total No. 2 5 8 15 % 13 33 53 99 After Rating 3 Rating 4 Rating 5 Total No. 0 0 10 10 % 0 0 100 100 NB. No scores given for rating 1 or 2. Comments from question 2: I have to rely on other people because I can‟t walk, people are so kind. If you get asked to go you don‟t have to ask, and you can say no I want to get out to the seaside Wandering in the Woods Dementia Adventure 2011 People were lovely and kind 5.5.3 Question 3: How important is each of the following about visiting woods/getting out into nature? We used the following rating scale for question 3: 20 1: Not very Important 2: Not important 3: Neutral 4: Important 5: Very important 5.5.4 SUMMARY DATA Before Rating After 1 Scenery Wildlife Being part of a group Being on my own Exercise Fresh air Getting out of the home Independence Self-identity 2 3 3 1 4 5 2 13 9 8 2 3 5 2 3 1 1 12 9 %change in 5 rating 1 2 3 4 5 2 12 12 10 -2 +12 +8 1 6 +4 1 12 11 13 +41 -1 +16 9 11 +15 +27 1 1 2 1 5 4 NB. Sample size before: 28, sample size after: 27. Not all participants completed all ratings for question 3. Scenery 13 participants rated scenery as very important to them before the day out, with 12 participants after the day out, representing a 2% drop in participants rating scenery as very important. Comments before: It is important to get out for a change…a change of scenery I love all those [the trees] Comments after: Wandering in the Woods Dementia Adventure 2011 21 You wouldn‟t find many places like this…beautiful I like the life of the trees and gardens I‟d like to come again, I don‟t mind how many times because I love it here I know she is taking it all in A lot to see so many colours It‟s been a good morning for everybody, I enjoyed the plants You start looking again don‟t you All green up there [tree canopy] Lovely flowers aren‟t they? She just kept mentioning all the colours and the beautiful flowers It‟s lovely isn‟t it It‟s lovely coming here I want to come back It‟s a privilege to get out to places like this It‟s certainly a great place Wildlife 9 participants rated wildlife as very important before the day out with 12 rating it as very important after the day out, representing a 12% increase in participants rating wildlife as very important. Comments before: None Comments after: Enjoyed all the animals we‟ve seen – ducks, coots, the rabbit and lots of flowers weren‟t they beautiful Tame ducks You are my honeysuckle I am the bee Listening to the birds was lovely Being part of a group 8 participants rated being part of a group as very important before the day out and 10 participants after the day out, representing an 8% increase in participants rating being part of a group as very important. Comments before: If you are on the same wavelength then it is nice to be part of a group…it depends on who you are with Not necessarily any group…a person who you are in sympathy with In places I do not know I want people with me Comments after: Lucky to have had a nice time in the sun walking with nice people Lovely to have the children along Part of the joy has been all ages Lovely wandering around together…on the same wavelength…friendly Being on my own Wandering in the Woods Dementia Adventure 2011 5 participants said being on their own was important before the day out and 6 participants after the day out, representing a 4 % increase in participants rating being on my own as very important. Comments before: I‟m fed up going out on my own that is one thing I get depressed about Comments after: None 22 Exercise 1 participant rated exercise as very important before the day out and 12 after the day out representing a 41% increase in participants scoring exercise as very important. Comments before: I enjoy exercise if it is not too far I would be happy to walk as much as is allowed I like to keep my joints going I like it but I know I can‟t do very much Comments after: Enjoyed it When you go out sometimes and walk around and see all the flowers it‟s so beautiful Fresh air 12 participants rated fresh air as very important before the day out and 11 participants after the day out, representing a 1 % decrease in participants rating fresh air as very important. Comments before: I don‟t care how cold it is I like the fresh air Comments after: I like the fresh air from always living at the seaside Quite enjoyed it quite cold I like to be out in the air I am struck by how long people have been awake for…people have talked more as the day went on I don‟t mind it so cold Getting out of the home 9 participants rated getting out of the home as very important before the day out and 13 after the day out, representing a 16% increase in participants rating getting out of the home as very important. Comments before: The height of love and bliss, getting out I like to be out…usually bunged up somewhere It is important to get out into the larger world and community so you don‟t get shut away Wandering in the Woods Dementia Adventure 2011 I like to get to the beach A retreat that‟s different sometime Getting out in the winter is lovely We need more days like this, can‟t get enough of getting out It‟s been a fantastic day out, just seeing their faces, they‟ve loved it. Better than four walls Lovely thank you very much Getting out…fantastic idea…develop in a big way Got to come out into the world to see what is going on Enjoyed every minute of it, lovely day Most people just like getting out it is important for well-being Very helpful to have the facilities…when you are bringing a group out prices are important It is so peaceful People sleep better when they‟ve been out…people talk more, eat more, it gives them an appetite…and they live longer Comments after: 23 Independence 5 participants said that independence was very important before the day out and 9 participants after the day out, representing a 15% increase in the participants rating independence as very important. Comments before: I like being outside certainly…if you are going to be outside it is important to make the most of it. Comments after: I don‟t like being told what to do I like being asked Self-identity 4 participants rated self-identity as very important before the day out and 11 participants after the day out, representing a 27% increase in the participants rating self-identity as very important. Comments before: Vital I was in the Ramblers, always enjoyed walking Comments after: I want to come back here as soon as possible, when are we coming back? Would love to do it again I was practically born in the sea Mum was always an outdoors person, a country girl, and loves to get out Wandering in the Woods Dementia Adventure 2011 6. Discussion This pilot project represents a second important step for Dementia Adventure in building the evidence base for people living with dementia connecting with nature for the benefits this brings. This report follows on the author‟s previous research into Green Exercise and Dementia (Mapes, 2011) - in this research an expert panel identified three priorities for future research for people living with dementia and green exercise, one being the impact of green exercise programmes in care homes. 24 This pilot project has had an intentionally broad approach incorporating two of the National Dementia Strategy outcomes, recording photographic and video evidence and conducting light-touch research gathering a range of qualitative and quantitative data both before and after the group‟s visit to the woodland settings. In addition to the design and delivery of the woodland visits themselves. We encountered a range of challenges in conducting this pilot project but the successes significantly outweighed these challenges, many of which can be overcome with dedicated funding. We are now looking for individuals and organisations to supporting and become partners in a larger more robust investigation. 6.1 Challenges Two of the national dementia strategy outcomes were selected as questions for this research (Question 1 and 2, see section 4) and answers were gathered in the homes and woodland settings as a group. This presented a range of challenges in that people living with dementia are perhaps under subtle unintentional pressure to say they are enjoying their life and get the treatment and support which is best for them even though this may not be the case. In a larger future research project we would conduct personal one-one interviews. Nonetheless people enjoyed this group format for gathering information which people found novel and engaging. People liked the flip chart exercise and enjoyed sticking stars on the charts and many participants kept a star for themselves as a small recognition of taking part. Rating the elements of nature (Question 3, see section 4) often proved difficult outside in the woodland setting and worked best where there was a circular outdoor space where everyone could sit and take part. For many the concepts of self-identity and independence were difficult topics that warranted further explanation and again in future research we would change our terminology focusing on one-one interviews We set ourselves the additional challenge of capturing photo and video footage of the walks. Ideally we would have had a dedicated team or individual at each walk whose role it was to capture this media. In practice this task was shared between the staff from the three partner organisations: Dementia Adventure, Woodland Trust and Caring Homes. There were some photo and video opportunities which were missed due to combining the tasks Wandering in the Woods Dementia Adventure 2011 of capturing media and assisting and supporting participants on the walk. However, people did particularly enjoy being on film and knowing that this work was going to be shared publicly as well as with within the respective care homes. 25 We experienced a range of challenges at the venues, many of which we overcame by conducting a pre-planning visit to each venue and liaising with a staff member at the location. Remaining challenges involved issues such as key features or trees not being accessible by wheelchairs, no seating at key features, raised bordered paths creating trip hazards for people with depthperception problems, and only one location of accessible toilets limiting how far the group could explore together. We noted how welcoming staff at the venues were but also found that they appear to have less knowledge about dementia and have less experience of inviting and engaging people living with dementia to enjoy their venues than they have for other groups, in particular school groups. 6.2 Successes Three Caring Homes quickly came forward to be part of this project when our original plan was to conduct one woodland walk in May. The fact that we were able to design and deliver three woodland walks is in itself a sign of the interest and success of this pilot. We used the participatory appraisal method of data collection which, although not without its challenges, did enable us to capture some extremely important qualitative information in particular. The participatory method shows that „every voice matters‟ hence collecting a range of views, many of these are critical indicators for where this work might go next and have therefore been included in the executive summary to evidence the potential physical, emotional and social benefits of this work. Interestingly the most noticeable difference in quantitative data gathered before and after was in participants rating of exercise. This is perhaps because in the care home many residents perhaps have a particular understanding of exercise which may well be „chair-based‟ or bouncing balls and other similar indoor exercise activities. The woodland walks helped people to re-frame their understanding of exercise (within the context of green exercise) and the importance of this to them. The multi-media data capture was also a success and whilst the footage was not of „professional‟ quality, it authentically brings to life the importance of the woodland walks to the people who took part and supports the quotes in this report. By capturing this information we can begin to challenge and change the perception and understanding of what people living with dementia in care settings are capable of doing. In terms of venues‟ engagement with and support of this work it was noticeable how supportive individual staff members were at all three locations. The success of the delivery of the walks did in part rely on friendly non- Wandering in the Woods Dementia Adventure 2011 intrusive support with our group members on the day. An extra wheelchair was found on one location, a waterfall feature was left on for our group at another. The interest and support of organisations like the Forestry Commission and the National Trust as well as community owned natural resources is something we would like to harness in the larger, national project which is planned as the next step of the work. 26 But perhaps the clearest success of this pilot project has been the transformation that was brought about by getting people out of the care home and into the woodland settings. The personal impact both during and after the day out was deeply emotional and was uplifting to witness the extreme importance this simple act of connecting to nature was for all involved. There are tangible physical benefits of nature based activities for people living with dementia in care, many of which already have good evidence to support them, including people eating and sleeping better. These could be easily measured and monitored in a larger structured study. The social and emotional benefits are also significant and present potential cost savings in terms of reducing anti-psychotic medications and hospital admissions but represent important quality of life issues. The next stage of this work must include a rigorous exploration of the costs and the specific benefits of green exercise in woodland settings and other natural environments for people living with dementia in care settings. Wandering in the Woods Dementia Adventure 2011 7. Conclusion Dementia Adventure has learnt a lot during this successful research based pilot project. Both in terms of the development and refinement of a successful model of nature based day adventures for people living in care homes, but also in using a participatory appraisal research method to begin to understand the specific importance and benefits of woodland activities for people living with dementia in care settings. 27 It is tempting to make far-reaching conclusions about a project which enabled some profoundly moving and deeply personal connections with nature to emerge. It is also hard to convey on paper the importance of the days out for the participants themselves, hence the inclusion of the films which support this research. However, it is clear that this project has demonstrated that there are significant potential physical, emotional and social benefits worthy of a larger scale nationally funded research related project. For the participants involved, their rightly insistent question remains “When are we going out again?” This work, following this successful pilot phase, must now become more focused and rigorous but also take place over a larger scale in order to reach and impact on the lives of the many thousands of people living with dementia in care settings across the UK who would benefit from activity in and contact with woodlands and other natural environments. Wandering in the Woods Dementia Adventure 2011 8. References 28 • Barton J and Pretty J (2010) What is the best dose of nature and green exercise for improving mental health? A multi-study analysis. Environmental Science and Technology 44 (10) • Bradley C (2010) Risk factors for dementia. Living with dementia, pp.20-21. • Brooker DJ, Woolley RJ and Lee D (2007) Enriching opportunities for people living with dementia in nursing homes: an evaluation of a multi-level activity based model of care. Aging and mental health, 11(4) 361-370. • Chalfont G (2006) Connection to Nature at the Building Edge: Towards a therapeutic architecture for dementia care environments. PhD thesis. Sheffield: University of Sheffield • De Bruin SR, Oosting SJ, Tobi H, Blauw YH, Schols JMGA and De Groot CPGM (2010) Day care at green care farms: a novel way to stimulate dietary intake of community dwelling older people with dementia? Journal of nutrition, health and aging 14(5): 352-7. • Department of Health (2010) Quality outcomes for people with dementia: building on the work of the National Dementia Strategy. • HM Government (2011) The Natural Choice: securing the value of nature. • Kaplan S (1995) The restorative benefits of nature: towards an integrative framework. Journal of Environmental Psychology 15 (3) 169-182. • Mapes (2011) Living with dementia and connecting with nature - looking back and stepping forwards. Essex: Dementia Adventure. Research available at: www.dementiaadventure.co.uk • Mapes N (2010) It's a walk in the park: exploring the benefits of green exercise and open spaces for people living with dementia. Working with Older People, vol.14, issue 4, Decemeber 2010 • Mayer FS, McPherson Frantz C, Bruehlman-Senecal E, Dolliver K (2009) Why is nature beneficial? The role of connectedness to nature. Environment and Behaviour vol.41, no.5, pp607-643. • Mental Health Foundation (2009) Moving On Up. London: Mental Health Foundation. • Moriarty J (2006) Innovative practice. Dementia: the international journal of social research and practice vol 5 no 1 pp. 137-139. • New York Times (2011) Paula Span: Walking down memory lane, 1.2.11. • Pretty J and Hine R (1999) Participatory appraisal for community assessment: principles and methods. Centre for environment and society: University of Essex. • Pretty J, Peacock J, Hine R, Sellens M, South N, and Griffin M (2007) Green exercise in the UK countryside: Effects on health and psychological well-being, and implications for policy and planning. Journal of Environmental Planning and Management, Volume 50, Number 2, March 2007, pp.211-231 (21). • Pretty J, Peacock J, Sellens M, Griffin M (2005) The mental and physical health outcomes of green exercise. International journal of environmental health research 15 (5) 319-337. • Ulrich RS (1984) View through a window may influence recovery from surgery. Science, 224: 420-421. • Wilson EO (1984) Biophilia. Cambridge: Harvard University Press. Wandering in the Woods Dementia Adventure 2011 • Zeisel J (2009) I'm Still Here: A breakthrough approach to understanding someone living with Alzheimer's. New York: Penguin. 9. Useful Websites Here is a list of the websites referred to in this paper: 29 Access to Nature: Big Lottery Fund: Caring Homes: Chalfont design Dementia Adventure Green Exercise Hylands Park Natural Health Service Sheffield park Visit Woods Walking for Health Woodland Trust www.naturalengland.org.uk/accesstonature www.biglotteryfund.org.uk www.caringhomes.org www.chalfontdesign.com www.dementiaadventure.co.uk www.greenexercise.org www.chelmsford.gov.uk/hylands www.naturalengland.org.uk www.nationaltrust.org.uk/sheffieldpark www.visitwoods.org.uk www.whi.org.uk www.woodlandtrust.org.uk 10. Appendices Appendix 1 - Case study: VisitWoods at Hylands Park A short film capturing the Visit Woods day at Hylands Park can be found at: Visit Woods film at www.dementiaadventure.co.uk A selected number of photos of the Hylands park visit can be seen on the Dementia Adventure Facebook page via the following link: http://www.facebook.com/DementiaAdventure Observational data and feedback We gathered data and feedback from staff and volunteers from all three organisations: 1. Dementia Adventure 2. Woodland Trust 3. Caring Homes (Bradbury House) 1. Dementia Adventure observational data: It was Joan's first day out of the home since the New Year, she is receiving end of life care and has always loved flower arranging. She had a beautiful moment with a buttercup with Jill Jim was excited to be in the woodland as he is fed up with the local scenery around the home Jim really loved the beautiful surroundings, very animated and engaging as the day proceeded Diana (upon seeing the horses) 'I used to ride ponies at my husband's work' Diana also spoke of her initial terror - of being on a quiet bus, not knowing what to say, where they were going and not wanting to get things wrong. I asked Diana what she enjoyed about being in nature and she quoted the entire poem of the „Owl and the Pussycat.‟ Amy cried with happiness upon welcoming her in the Willow circle outdoor classroom Trees spotted: Cedar Italica, Elm, Yew, Oak, Judas tree. Out in nature there is an easy equality between people Wandering in the Woods Dementia Adventure 2011 30 Enabling people to get out into nature shows them they matter Special invitations to get out are important as are welcoming and appreciating people Smiling, laughing, talking all increased as the day went on Rose was quiet and angry upon first arrival, having just woken up. By the middle of the visit and through to the end she was smiling non-stop, a picture of joy. Like nature, people blossomed and bloomed as the day progressed. Terror and anger being replaced by friendship and joy. 2. Woodland Trust observational data and feedback: So many reasons and opportunities to interact with the residents and for the residents to interact with each other and staff. Things to point at, touch, talk about, things that provoked memories (flower arranging, sea bathing, dogs they‟ve owned, books they‟d read, ponies they‟d ridden, their love of wildlife etc). Having spent many afternoons visiting a relative in a care home conversation so quickly ran out because there was nothing to talk about other than news we had stored up and brought with us. Here there was stimulation all around us. A particular moment for me was the response to the colour and wonder of the wisteria pergola. The delight on one lady‟s face who couldn‟t communicate much verbally was wonderful. She reached out and touched and for a short time was in control of what she wanted to do – she wanted to be amongst the flowers and delight in them and through her response was determining how her carer moved her around and so on. As someone with limited communication I imagine what she does is normally very much controlled by others, albeit sensitively and with the best intentions. Staff and residents were able to share knowledge – tree names, what trees were used for – yew for longbows came from one resident, yews in churchyards from a lady whose father and husband were vicars, dutch elm disease from another. We were outside nearly 3 and a half hours and the concentration and energy levels were amazing – again from experience sleep seems to come quickly to care home residents but with one exception (the lady who is very ill who had a quick nap at one point), everyone seemed wide awake throughout. There was so much talk and laughter. I would pay a lot of credit to the care home staff and to you Neil for the constant attention to individuals to draw them in and involve them which definitely helped to keep everything so lively but the environment undoubtedly played a major role. Even the changing temperature was a reason for people to be individuals – I am a little chilly...do you like the direct sunshine etc etc. Nicky was brilliant in the way she picked up bark and handed it round. Such a simple thing but you could see how well residents responded and again it made me think how rare such an encounter with something rough and natural must be. I talked to two residents about buttercups and daisies and both suddenly lit up when we recalled „do you like butter‟ and holding the buttercup under the chin, and making daisy chains, and the different techniques for making them. Again this simply came from being outdoors and having the flowers to hand. Joan in particular was quite moved by the buttercup – stroking it and talking with me about its beauty in comparison with the daisy. I understand from her daughter that she was a top flower arranger and you could almost see her mind working to remember. It was quite something to hear that one seemingly very together lady had said she was „terrified‟ on the way to the park, because it was going into the unknown. Neil, you and I talked about the visible lifting of spirits as people realised where they had come to and that it wasn‟t going to be difficult or demanding or scary, just relaxing and stimulating and outdoors. The fact that loos were near by and anyone could go when they needed to was also a confidence builder. As was the picnic and the cup of tea later on. It was lovely to see at least some of the residents eating heartily, sharing in the picnic. The laughter, talk and beautiful surroundings all Wandering in the Woods Dementia Adventure 2011 meant that eating became just another nice part of the experience rather than the sole focus and something they must do. It was clear that it was the diversity of the environment that was particularly successful – flowers, ducks, dogs, a squirrel, the totem pole, encounters with other people, as well as the trees. It would be very interesting to see the same group in a pure woodland setting to see if it was as stimulating. Though there is such a range of woodland on VisitWoods that it is probably hard to pick out a typical woodland. Lots of them would have „extras‟ – a stream, a pond, a rockface, a sculpture and so on, and then of course there‟s the seasonal moments – bluebells and autumn colours. 31 I thought having lots of other people around was a really good thing – although some people were clearly embarrassed about their dogs running over and „disturbing‟ us actually it brought the residents back into the world, not hidden away as a separate group. Like the encounter with the bark I guess „normal‟ encounters with everyday folk are fairly few and far between for most residents, a trip outside makes it possible. The wedding was an added bonus and made us all feel part of something together. I think my favourite moment was a lady who found it hard to communicate who had her collection of leaves. When I asked her what she had she said very clearly „I couldn‟t resist them‟. Then there was the lady who burst into tears with happiness at the start. Then of course there was the fact that I couldn‟t tell who had dementia and who didn‟t. Everyone was so ready to enter into conversation and respond. And the fact that from the very start people were planning their next visit. The chat about grandchildren at the end was interesting. Wouldn‟t it have been lovely to have them there too? One last thought – when people are reliant on others to push them around I always wonder whether they are actually doing what they want to do – moving at the right pace, facing the right way, next to the person they want to be next to. I didn‟t see any evidence of anyone getting this wrong and it may be that getting out – albeit under someone else‟s direction – is liberating enough. I hope so – it certainly seemed to be so today! 3. Caring Homes (Bradbury House) observational data and feedback A big thank you again for all your support and organisation in making the Dementia Adventure at Hylands Park happen. The feedback from residents, families who came and staff was wonderful as I will detail below. Joan, who has been a resident at Bradbury since December 2010 and has vascular dementia is very frail and has not been outside in the fresh air for 18 months due to her poor health. "What a wonderful day, I have missed this, I love the fresh air, it was beautiful all of it the trees, flowers." Joan's daughter, Jenny, who came for a while said this was wonderful to see her mother out, she did not think she would be able due to her mother‟s health and it was really important to her to have seen the look on her mother‟s face upon her first outing and knowing that she is having some quality and dignity towards her end of life years. She feels that this too helps with coping with her mother‟s decline in health because it is so important to know that she has a good life right up to the end of life. Rose is 93 years old and has dementia. She has been a resident at Bradbury for many years and was quiet and withdrawn on morning of the trip. She has not stopped smiling and talking about the day since she came home asking to go again she said "so much to see ducks , flowers , trees so exciting and made me feel very happy." Her daughter Pat who came said "This is what keeps my mother going and love of life, we are so glad it is made possible and so grateful people help make this happen, she has eaten more and not stopped smiling since the came home " Wandering in the Woods Dementia Adventure 2011 Diana 98 years old in early stages of Dementia said on her return to the home "I felt alive , wonderful day I remember the arch way with all the flowers hanging down , I cannot walk and need help from kind people to take me these places and relived that it can happen " I as the home manager feel that this day was truly enjoyable and so well organised by you with the pre-planning, visits to home to talk to the resident prior to going on the day. This is a vital part in the resident‟s emotional, social and general well-being enabling them to have a really positive experience. Thank you again. 32 Appendix 2 – Case study: Visit Woods at Sheffield Park A short film capturing the Visit Woods day at Sheffield Park can be found at: Visit Woods film at www.dementiaadventure.co.uk A selected number of photos of the Sheffield park visit can be seen on the Dementia Adventure Facebook page http://www.facebook.com/DementiaAdventure Observational data and feedback We gathered data and feedback from staff and volunteers from two organisations: 1. Dementia Adventure 2. Caring Homes (Heffle Court) 1. Dementia Adventure observational data and feedback The group arrived at Sheffield Park shortly after the skies had turned black and a shower had passed over. We started by welcoming everyone to take a seat and enjoy lunch together. Some people were clearly anxious about what they were doing and why they were at the park but the simple act of sharing food together and receiving a personal welcome worked well. It did rain briefly towards the end of the picnic lunch and it was fascinating to see one lady simply put on a rain mac and carry on eating her lunch whilst others took shelter under nearby trees. The tables were unusual in that they were octagonal in design with two gaps left for wheelchair users to be part of the tables. Access to toilets, wheelchairs and motorised buggies at the start/end of the walk was helpful as were the staff on hand to help with equipment, directions and advice. The walk immediately brought out all the best of the park and of the people with conversation easily turning to „nature in the moment‟ as people became fascinated at different trees and marvelled at flowering shrubs. Following feedback from the first Visit Woods day we incorporated three young children into the day with much positive effect for all concerned. The residents loved the „normality‟ and „family friendly‟ atmosphere and when we asked Charlie (who is five years old) what he thought of the people with dementia he said „they are lovely and kind.‟ There were many special moments for the group as a whole, enjoying the waterfall which had been left on longer for our group by the park staff. And there were many individual moments of joy and pleasure as the sun blessed our group on the way round. One lady in particular who was a new resident in the home, on her first outing, was clearly revelling in being out in such a beautiful space and helped her feel part of this new group of people in her life. There were many moments when she would be found dreamily taking in the scenery. The changing temperature and the incline on the walk back all made the finish a slightly taxing effort for some, although many enjoyed pushing on until the end and many enjoyed staying out in the rain rather than retreating indoors (as can be the case when residents go out in the garden of the home and it rains). Wandering in the Woods Dementia Adventure 2011 On reflection, once again, special invitations and personal welcomes matter. As does a welldesigned, circular walk with key landmarks and stopping places to appreciate the beauty. The simple and easy equality that is found in natural settings is helped by a diverse group of ages. 2. Caring Homes (Heffle Court) observational data and feedback First of all I want to say a huge thank you from myself, the residents, their family and friends of Heffle Court for giving us the opportunity to be involved in this adventure with you and the Woodland trust. 33 I was just having a look at all the photos that were taken during our visit to Sheffield Park. As I gaze upon them I feel a real sense of warmth seeing just how very happy everyone looks, knowing we made a real difference to the residents‟ day and helped to create a wonderful memory for friends and family to take away. Although the day was at times a little wet and cold you can still see their smiles shining through. Particularly with Alison, Kay and Bridget, I feel that it truly touched them deep within, something that can only be accessed by being in natural sunlight and the open natural environment. You can see them engaging with their surroundings, relaxing and chatting together as they went along their woodland walk. The children brought another dimension to the day; it eased everyone into a family atmosphere bringing the group together as one staff, residents, family and friends. When we returned back to Heffle Court everyone was extremely relaxed and still smiling happy to share their experiences of the day with others at the home. We sat for some time after with a nice hot cup of tea and left over picnic cake, the day stimulating conversation amongst everyone, even though they were tired and worn out. All stating how much they had enjoyed themselves, „wasn‟t it a lovely day…weren‟t the children good…the colours were beautiful…when can we go again?‟ They all commented on how pretty the waterfall was to see. The only negative comments were on the coldness of the day, but also remember to take into account how warm the care home is daily and so they will feel the cold more. Paula kept commenting on the beautiful colours in particular the red tree. Patricia (resident) the following day came out of her way to thank me for taking her out saying what a lovely day she had. Patricia still recalls the day, only yesterday she commented to her daughter about her day at the woods. The care staff who came along also noticed how relaxed everyone was and how at peace the residents were during and on return. Appendix 3 – Case study: Visit Woods at Westonbirt A short film capturing the Visit Woods day at Westonbirt can be found at: Visit Woods film at www.dementiaadventure.co.uk A selected number of photos of the Westonbirt visit can be seen on the Dementia Adventure Facebook page http://www.facebook.com/DementiaAdventure Observational data and feedback We gathered data and feedback from staff and volunteers from two organisations: 1. Dementia Adventure 2. Woodland Trust 1. Dementia Adventure observational data and feedback Wandering in the Woods Dementia Adventure 2011 34 The group arrived at Westonbirt on one of the hottest days of the year, with shade, sun cream and hydration being important in our delivery today. We started with welcoming the group in the outdoor education space but the linear layout of the space did not work as well as the circular outdoor space at Hylands because people were sitting farther away from each other and could not see each other. We moved onto a picnic boxed lunch which some struggled to open the packaging or to know what they were eating but regardless many people enjoyed the novelty of eating in this way. Sitting in the sun became rather hot which many enjoyed but it was a welcome relief for some to enter the shade of the trees on the walk. One resident in particular was highly anxious upon starting the walk and found the lunch space a difficult one in which to feel comfortable and spent most of her time on her feet. On the walk she gradually became more settled and less anxious and towards the end was very much at ease with the group and the activity and clearly was enjoying herself and the beauty of the surroundings. There was quiet a transformation from how she was at the start of the day and towards the end. Although the Care Home manager did report that her behaviour similarly varies like this when she is in the home. Nonetheless the significance of the group activity out in nature certainly was, I feel, a factor in her behaviour calming as the walk and the day continued. Children again flourished in the company of the group and many revelled in the children‟s company with many group members choosing to support or engage with the children as the walk continued. This gave a „family outing‟ feel to the day. The signage at Westonbirt was both clear and informative with key trees given different and entertaining information which captured the group at key points around the walk. Information boards with „It‟s a matter of life and death‟ and „boiled sweets‟ gave the group unusual tree related information. The group hugged a giant sequoia tree – it taking nine of the group holding hands to reach around the tree. Two people with dementia walked on an elevated balance beam activity designed for children which they took great pleasure in completing. But the sheer stunning beauty of the variety of trees (both native and non-native) and flowering shrubs combined with the sun and a positive outdoor experience made the day very special. This day, like the Hylands day, coincidentally finished with the group witnessing a wedding congregation in the grounds. Being part of these community spaces allows coincidences like this to happen naturally. Finally, two members of the public approached me at the end of the day as we were returning wheelchairs. They were intrigued by our group and had seen us wandering around the woods. Upon hearing of the identity of the group and of Dementia Adventure they were amazed and heartened that such activities were happening as they had both had bad experiences of relatives in care. It is so important that people with dementia are visible active members of our communities. 2. Woodland Trust observational data and feedback This was an opportunity for like-minded people (sharing an interest in the outdoors) to come out together to share and enjoy the beautiful woodland surroundings of Westonbirt. Whilst this may not have seemed anything out of the ordinary – for these people it was – it was a break from the normal everyday routine of the care home in which they lived and were not able to get away from often. It enabled them to share a different set of experiences alongside those they live with on a daily basis, to stimulate conversations and experiences, and remember songs and poems. The day started tentatively with each person looking a little worried and concerned with the change of scenery, but once out in the woodland people started to comment on the colours (not just the flowers) but the changing greenery especially vivid on what turned out to be a Wandering in the Woods Dementia Adventure 2011 gloriously sunny day. Rather than being a set of individuals on a day out, they became more of a group. One gentleman took on the responsibility of pushing the wheel chair of one of his fellow residents, and several people took part in „hugging a tree‟ by joining hands to work out how big it was. One lady became more independent as she walked along requiring less input from her carer; another lady became less anxious and more relaxed as we wandered along the tree lined paths. Petals, pine cones, leaves were collected, comments of „isn‟t that lovely‟, „wonderful‟, „look at the colour‟ could be heard regularly. The most poignant comment of the day for me was from one lady who had been quite quiet throughout the day that came out with the comment of „you have to get out into the world to see what is going on‟. 35 The most memorable part of the day was the gratitude of one of the relatives who was genuinely appreciative of the day and what it had enabled his relative to experience. He so wanted to tell his own daughter about the day, and get her to see the video clips so that she could see her grandmother on this day out, being a different person to how she was in the home. This sentiment was echoed by the care staff who also stated that they could see the residents come out of themselves and acting differently. A positive and thoroughly enjoyable day for everyone. Appendix 4 - About Visit Woods Visit Woods is a partnership project, led by the Woodland Trust which receives funding from Natural England (through their Access to Nature programme, part of the Big Lottery Fund Changing Spaces Programme), Yell, People‟s Postcode Lottery, the Forestry Commission England, the Forestry Commission Scotland, Scottish Natural Heritage and DoubleTree by Hilton. The project has also been made possible with the support of the National Trust, RSPB, The Wildlife Trusts, Action for Children, Walking for Health, Age UK, EcoMinds, The Scout Association and DisabledGo. Visit Woods will promote the use of local, publicly-accessible woodland for health, recreation and enjoyment, to everyone. The project aims specifically to inspire children, older people, disabled people and those experiencing social exclusion through economic disadvantage to visit their local wood, giving them the confidence that the habitat is a viable leisure destination for them. VisitWoods.org.uk provides information, knowledge and confidence to people using their local woodland to improve their wellbeing. The project aims to: • Increase in awareness of woods as a viable leisure destination • Provide people not used to accessing the natural environment with opportunities to learn about it. • Recruitment of Woodland Ambassadors representing beneficiaries A sustainable and wide-reaching communications campaign will promote local woodland as a relevant and exciting recreational destination. VisitWoods.org.uk will become the main source of information for visiting woods, offering our target beneficiaries (4.5 million people) the inspiration, knowledge and confidence to use their local woodland to improve their wellbeing. Access to Nature 1. Access to Nature is run by Natural England and is part of The Big Lottery Fund‟s Changing Spaces programme launched in November 2005 to help communities enjoy and improve their local environments. 2. Natural England manages this £28.75 million Lottery-funded programme on behalf of a consortium of twelve national environmental organisations comprising BTCV, British Waterways, Environment Agency, Forestry Commission, Greenspace, Groundwork UK, Land Restoration Trust, The National Trust, Natural England, RSPB, The Wildlife Trusts and the Woodland Trust. Wandering in the Woods Dementia Adventure 2011 3. Through this programme, it is Natural England‟s ambition to create opportunities for people from all backgrounds to have greater access to our natural environment and bring a lasting change to their awareness and understanding as well as improved links to the natural world, which many of us can take for granted. 4. Access to Nature closed to applications in May 2010 but for further information about the programme visit www.naturalengland.org.uk/accesstonature 5. For further information about the Big Lottery Fund, its programmes and awards visit www.biglotteryfund.org.uk 36
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