Health Information on the Internet: A guide to reliable online resources for members of the public Staff Library Service Tel: 01625 66 1362 e-mail: [email protected] Visit our website at http://www.netvibes.com/ecn-stafflibrary Introduction: You will find a lot of information on health by searching the internet. However, we recommend that you concentrate on the information which is available from reliable UK sources. Some of these are listed below in alphabetical order – this is not meant to suggest any particular ranking. About my Health www.aboutmyhealth.org This is a patient forum where you can discuss and share your experiences and learn from the experiences of others. Here you will find a forum dedicated to hospital patients. Aboutmyhealth.org is backed by the world's leading provider of information about hospital operations and treatments. We also link to accredited online sources for information on diseases and long-term conditions. Children first for Health www.childrenfirst.nhs.uk Produced by Great Ormond Street Hospital, Children First for Health is aimed at children, young people and their families. It provides a variety of information and activities relating to various conditions and illnesses, hospital visits and stays. The site is split into four sections Juniors (4-6), Kids (7-11), Teens (12-18) and families. CKS www.cks.nhs.uk/information_for_patients Clinical Knowledge Summaries is part of NHS Evidence and provides a reliable source of evidence-based information about common conditions. Information is available in a variety of formats including full guidance, quick reference guides and patient information leaflets that cover acute and chronic illnesses. S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 2 NHS Choices www.nhs.uk This website has been developed to help you make choices about your health, from lifestyle decisions about things like smoking, drinking and exercise, through to the practical aspects of finding and using NHS services when you need them. Features include information on a variety of conditions and treatments explained in an easy and comprehensive way, contact details for health services in your area, information to compare hospitals by various criteria including treatments offered and facilities and a ‘Behind the Headlines’ service which provides unbiased and evidence-based analysis of health stories in the news. NHS Direct www.nhsdirect.nhs.uk NHS Direct is at the forefront of 24-hour health care - delivering telephone and e-health information services day and night direct to the public. It aims to provide information and advice about health, illness and health services, to enable patients to make decisions about their healthcare and that of their families. The website includes a health encyclopedia, common health questions, and a self help guide. Some of the most popular health encyclopaedia topics have been translated into other languages. NHS Evidence www.evidence.nhs.uk/ NHS Evidence is a new health information resource which is still in development. At present, it enables patients to search the comprehensive medical database, Medline, for articles on a wide range of conditions. It also gives patients access to evidence-based reviews of treatments and NICE guidance. There is a links page to a wide variety of useful health information websites and an NHS Health Encyclopaedia, where you can print out information. The resources are selected for their value to patients and non-clinicians. NICE www.nice.org.uk NICE guidance is produced for the NHS to ensure that healthcare provided is based on the best available evidence and conforms to national standards. The guidance covers a range of topics, each of which has a patient-friendly version. These are designed to ensure that members of the public are fully aware of what they are entitled to and better able to make good health decisions. S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 3 Patients Association www.patients-association.org.uk The Patients Association is a national healthcare charity. By listening to patients, it campaigns to improve services. It works with all healthcare providers to improve services. Very often patients think they are alone with the problem or complaint they have. When patients talk to the Patients Association it is able to track problems arising in more than one place and realize there is a nationwide issue that needs change. The Patients Association telephone helpline offers independent information and advice on a range of healthcare issues, or patients can write or email with their questions. Patient Information Leaflets http://echn2026.sitekit.net/PatientsVisitors/Patient-leaflets.htm East Cheshire NHS Trust produces a wide variety of patient information leaflets which are reviewed every three years. Each ward and department has an 'information champion' who is responsible for ensuring that all the leaflets are up to date Patient UK www.patient.co.uk Patient UK is an independent patient information website. The aim of the site is to provide non-medical people in the UK with good quality information about health and disease. It contains evidence based information leaflets on a wide range of medical and health topics. It also reviews UK health and illness related websites and provides links to these from the site. Within the site is a list of over 2000 UK patient support organizations, self help groups, and health and disease information providers. Each entry is cross-referenced and details are checked annually. S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 4 Links to National Organisations Advice Citizen's Advice Bureau: Health and Patients Rights http://www.adviceguide.org.uk/index/your_family/health.htm Alzheimer’s Disease Alzheimer’s Society http://www.alzheimers.org.uk/ Anaesthetics The Royal College of Anaesthetists – Information for Patients http://rcoa.ac.uk/index.asp?SectionID=4 Arthritis Arthritis Care www.arthritiscare.org.uk Asthma Asthma UK www.asthma.org.uk/ Cancer Macmillan Cancer Support www.macmillan.org.uk/ Marie Curie Cancer Care www.mariecurie.org.uk/en-gb/patients-carers/ Child Illness or Disability Contact a family www.cafamily.org.uk British Lung Foundation www.lunguk.org/ Breathe Easy www.lunguk.org/supporting-you/breathe-easy COPD – Chronic Obstructive pulmonary Disease Macclesfield Group: The group meets on the first Tuesday of each month from 10:30am - 12:30pm at the Salvation Army Building, Roe Street, Macclesfield, SK11 6UT. South Cheshire Group: Breathe Easy South Cheshire meets on the last Wednesday of each month from 2pm at the Eagle Bridge Health Centre, Dunwoody Way, Crewe, CW1 3AW. Telephone number for the regional office is 0151 224 7778 S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 5 Diabetes General Medical Council Diabetes UK www.diabetes.org.uk/ Check your doctors registration, make a complaint or find further information on other organisations that work for patients and allow you to influence healthcare delivery. www.gmc-uk.org/information_for_you/patients_and_public.asp Health Professions Council Check registrations of and raise concerns about health professionals www.hpc-uk.org/landing/?id=4 Heart Conditions British Heart Foundation www.bhf.org.uk/ Kidney Conditions British Kidney Patient Association (BKPA) - www.britishkidneypa.co.uk/patient-info.html Mental Health MIND (National Association for Mental Health) www.mind.org.uk/ Older people Age UK Oral Health British Dental Health Foundation www.dentalhealth.org.uk/ www.ageconcern.org.uk/ The Society of Chiropodists and Podiatrists www.feetforlife.org/footcare/ Podiatry Caremart Toenail cutting service for people in central and eastern Cheshire www.cecpct.nhs.uk/news-and-events/detail/caremart-toenailcutting-service/ S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 6 National Childbirth Trust Pregnancy and care of the newborn Royal College of General Practitioners (RCGP) Royal College of Surgeons (RCS) www.nct.org.uk Obstetric Anaesthetists’’ Association Information for Mothers www.oaa-anaes.ac.uk/content.asp?ContentID=83 The RCGP have produced a booklet which contains useful advice on a wide range of useful information - from choosing and registering with a surgery and understanding the different services that are available, through to making appointments and getting the most from your consultation. www.rcgp.org.uk/PDF/rcgp_iyp_full_booklet_web_version.pdf Here you can find some answers to popular questions about surgeons, common operations, and different types of surgery including cosmetic surgery. You will also find links to further sources of information and to other websites dealing with health care and patient issues. www.rcseng.ac.uk/patient_information Stroke Stroke Association Travel Health Travel Health Advice www.travelhealth.co.uk/advice/index.html S:\Library\9 PUBS\Public\Healthsites4public bklt.doc www.stroke.org.uk/ Visit our website at http://www.netvibes.com/ecn-stafflibrary 7 S:\Library\9 PUBS\Public\Healthsites4public bklt.doc 8
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