Impact Report 2015/16 At the Heart of the Royal Hospital for Children, Glasgow Glasgow Children’s Hospital Charity aims to support every baby, child and young person treated at the Royal Hospital for Children, Glasgow. The year 2015-16 was a transformational one for Scotland’s largest children’s hospital, and for Glasgow Children’s Hospital Charity. Following the move of the hospital from the Yorkhill site in June 2015, we have taken our place at the heart of the Royal Hospital for Children, Glasgow at its new location within the Queen Elizabeth University Hospital campus. As we approach the end of our first year in the new hospital we can reflect on the significant impact that your support has made possible. We invested over £5.5 million in the hospital before its doors opened, and have contributed a further £3.3 million in the year since. Thanks to you, we have funded: Enhanced Medical Equipment, helping hospital staff deliver the best possible medical care; Family Support Services, providing reassurance and practical support during dark and difficult times; Impact Report 2015/16 Hospital Programmes, bringing joy and excitement to children every day with the help of volunteers and our innovative play and events programme; Paediatric Research, leading the way to better treatment and care for children today and for generations to come. Over the past year our donors, fundraisers and volunteers have shown their resolute support for the charity and for the 160,000 babies, children and young people treated at the hospital each year. For that, we are truly grateful. Your continued support makes a real difference to the lives of each and every one of the patients treated in the Royal Hospital for Children, and together we look forward to making an even greater impact in the weeks, months and years to come. Thank you. 3 Arthur, 6 weeks What We Raised Our income was £4.5 million in the year 2015/16. The majority of our income came from individuals, communities and businesses nationwide, with many participating in community fundraising initiatives and events. We also received gifts from people in their Wills, and grants from charitable trusts. This year we funded more than £3.3 million of enhanced equipment and services, including pioneering play and volunteer programmes, state of the art medical equipment, family support services and paediatric research. Our impact has been felt by children and families from throughout Scotland who are both inpatients and outpatients at the Royal Hospital for Children, and by many more who attend community clinics across the West of Scotland. Your continued support ensures that the babies, children and young people treated at the hospital receive the best possible care. Thank you. Impact Report 2015/16 How we raised £4.5 million in 2015/16 Community Initiatives £1,372,588 | 30% Individuals £830,620 | 18.3% Corporate Partnerships £675,910 | 14.8% Events £643,181 | 14.2% Trusts £549,232 | 12.1% Legacies £267,724 | 5.9% Trading £144,542 | 3.2% Investments £45,374 | 1.0% Other £21,396 | 0.5% Total income £4,550,567 Our charitable expenditure in 2015/16 Programme Delivery £1,054,324 | 31.3% Patient & Family Support Services £673,551 | 20.0% Medical Equipment £674,853 | 20.1% Hospital Facility Enhancements £401,924 | 12.0% Research & Education £372,846 | 11.1% Other £184,159 | 5.5% Total charitable expenditure £3,361,657 The above figures have been extracted from our unaudited draft financial statements. 5 Zarina and Janette from the Family Support & Information Centre. Our Impact: Family Support Supporting Families 7 Days A Week This year will see the expansion of the Family Support and Information service, which provides practical and emotional support to families and carers whose children are treated at the hospital. The service operates from the purpose-built Family Support and Information Centre, a bright and welcoming space that was enhanced through a very generous donation to Glasgow Children’s Hospital Charity from a long standing family supporter. The comfortable furniture, private interview rooms and calm environment make the Centre a sanctuary for families during times of anxiety and stress. Following our initial funding, we have now equipped the Centre with the resources it needs to open 7 days a week. The range of services has also been expanded to include Family Support, Financial Support and Emergency Support. Additional Support for Vulnerable Families Thanks to the generosity and ongoing support of the STV Children’s Appeal, we have further enhanced the Family Support and Information Service through a unique project that aims to support 500 families each year who struggle with the financial pressures of caring for their ill child. This project provides immediate financial and emotional relief to vulnerable families, and gives them access to the resources they need to cope with their challenging circumstances. Impact Report 2015/16 As part of our Financial Inclusion Service we successfully claimed over £950,000 worth of benefits last year for 448 families previously unable to access their eligible welfare support. Families like Lesley Condie and David Byrne, whose son Nathan was born with a congenital heart defect and spent the first 6 months of his life in the Royal Hospital for Children: “The Family Support and Information team came to the ICU to talk to us about Disability Living Allowance. They made it all so quick, easy and took away the stress from the daunting forms. At first we didn’t think we needed help because we both worked. As time went on and we spent more time away from work we noticed the costs of having a child in hospital mounting. “We’re so glad that we were referred and applied for the support. It’s a huge weight off our shoulders. I was really concerned about going back to work and missing out on time with Nathan, as we missed out on so much during his first 6 months. The allowance means that I can possibly return to work on 30 hours instead of 37 hours per week, giving me an extra day to spend precious time with Nathan. It’s priceless.” Lesley Condie 7 Our Impact: Medical Equipment Caring for Little Hearts A heart condition is the most common problem a baby can be born with, affecting nearly 1 in every 100 babies born in Scotland. Every year, thousands of babies, children and young people living with heart conditions are treated and cared for at the Royal Hospital for Children, which is the national provider of paediatric cardiology services in Scotland. In November 2015 we launched our Little Hearts Appeal, which raised £150,000 to purchase a state-of-the-art 4D cardiac scanner. The scanner will help medical staff diagnose and treat heart conditions in thousands of children each year, and is the first of its kind in the UK. When a baby’s heart can be as tiny as 2cm, clear and accurate scans are vital to ensure a timely diagnosis and successful treatment. 8 Dasha’s Helping Hands One very special young fundraiser who helped to raise this incredible total is Dasha Kennedy, whose Christmas card design was sold to raise funds for the Little Hearts Appeal. Dasha’s wonderful drawing was inspired by the care that her younger sister Caskie receives at the hospital for the rare genetic condition Isochromosome 18p Syndrome: “Caskie gets a lot of support from the hospital. She attends many clinics which help to make her life a little easier. This Christmas tree is made up with helping hands from the hospital, all of Caskie’s carers, nursery staff and friends who fundraise.” Dasha and her mum Jane Thank you to everyone who donated to our Little Hearts Appeal. Glasgow Children’s Hospital Charity Meet James Little James Baillie from Fife was diagnosed with a heart condition at just 12 hours old, and is one of the many children from across Scotland who will benefit from the new cardiac scanner funded by the Little Hearts Appeal. James was born with a large hole in his heart and the condition Pulmonary Atresia with AVSD, meaning that his pulmonary arteries were not attached to his heart correctly. He has undergone three open heart surgeries to repair the abnormalities with his heart, and has spent much of his young life at the Royal Hospital for Children. “James has had countless scans at the hospital. It can’t be underestimated how important it is for the surgical team to have as much information about the child’s heart as possible and to know exactly what they are facing.” Jenny, James’s mum Impact Report 2015/16 Children like James will often require multiple surgeries throughout their lives. Thanks to the generosity of our supporters, staff at the hospital now have access to the state-of-theart scanning equipment they need to capture detailed images of even the tiniest of hearts. 9 Our Impact: Volunteers Smiles and Support, Every Day More than 200 volunteers dedicated over 10,000 hours of their time last year to support us at the hospital, in local communities, and at fundraising events across the country. Thanks to them, patients, families and fundraisers can rely on seeing a friendly face when they need it most. Our Hospital Volunteer Programme Glasgow Children’s Hospital Charity in partnership with NHSGGC recruits, supports and trains all of the volunteers who support the patients, families and visitors to the Royal Hospital for Children. There are many volunteering roles at the hospital, including Play Makers, Welcome Guides and Teen Volunteers. This pioneering partnership with NHSGGC ensures the effective recruitment and management of volunteers in the hospital and has helped to enhance the patient and visitor experience within the hospital. We look forward to welcoming more volunteers to the hospital and in local communities in the coming year. 10 Meet Lydia and Joshua 11 year old Joshua from Milngavie is a patient on the neurology ward and recent had brain surgery to remove recurring abscesses on his brain. Joshua also has Asperger’s syndrome, which makes the hospital environment particularly stressful for him. This year, Joshua will make the big step to Secondary School. Our Hospital Education volunteers like Lydia help to make sure that patients like Joshua still have access to educational activities and resources so that they can keep up to date with their education. Glasgow Children’s Hospital Charity Martina, 8 Our Impact: Innovative Play Programmes Every Day is Play Day Hospital visits can be frightening and confusing for children like Martina, who has been a regular patient at the Royal Hospital for Children since birth. Our structured play and events programme educates, entertains and reassures children throughout their hospital journey, helping to overcome their fears and bringing moments of joy and laughter in the most difficult circumstances. Our hospital based team ensures that children at the hospital have the chance to play every day. From the Clown Doctors to our volunteer Play Makers, the Teddy Hospital to the Teen Zone, and through a year-long programme of exciting and fun events, we provide age and needs appropriate play opportunities in partnership with NHSGGC. Impact Report 2015/16 “Martina loves the Teddy Hospital. The play therapy is a way for her to open up and helps to explain things in a way that I can’t to her.” Martina’s sister Christine 11 Our Impact: The Hospital Environment Brightening Hospital Visits The sights and sounds of the hospital have a significant impact on the experience and wellbeing of patients and their families. A hospital can often be a scary and intimidating place for a child, filled with uncertainty during a stressful time. Glasgow Children’s Hospital Charity worked closely with staff and patients throughout the building phase of the Royal Hospital for Children and enhanced many areas of the hospital, including the Family Support and Information Centre, the play rooms, the Sanctuary, and family rooms in the Intensive Care Unit. Following feedback from patients and staff, we have continued our programme of enhancements to the hospital environment. In early 2016 we funded a project to transform the waiting areas and treatment 12 rooms of the Imaging and Diagnostics department, where there are no windows and the machinery is large and noisy. Over the course of four weeks, Gregory, Emmanuel and Kata from the Anouk Foundation transformed the bare clinical walls of the department with therapeutic murals, creating a warm, soothing and welcoming space. The department now has a much more cheerful and comforting environment, which helps to reduce the fears and anxieties of patients. This in turn helps to improve communication and collaboration between staff, parents and patients for a more successful clinical outcome. “It makes it feel like a children’s hospital.” Mary Pirie, Lead Radiographer Glasgow Children’s Hospital Charity Our Impact: Research Helping Children Today and Tomorrow Our vision is that all children and young people treated at the Royal Hospital for Children have the best care and experience possible. Research plays a pivotal role in helping us to achieve our vision, with hospital and university staff continually striving for the advancement of children’s health. Scotland’s First Office For Rare Conditions In Children 2016 will see the opening of Scotland’s first dedicated Office for Rare Conditions. The Office will be based at the Royal Hospital for Children and the University of Glasgow, and has been made possible thanks to the ongoing support of our generous and loyal fundraisers. Several hundred children from around Scotland are treated for a rare condition at the hospital each year, and the Office will work to support the health care professionals and researchers Impact Report 2015/16 who are involved in the care of these children. Rare conditions are chronic and often, but not always, life-threatening. While some conditions are common and affect a number of people, the vast majority will affect far fewer, sometimes a handful or even a single child in the whole of the UK. As 75% of rare conditions are identified in childhood, it is vital to obtain as comprehensive an understanding of these conditions as possible in order to improve the treatment that patients receive, both today and in the future. “The establishment of Scotland’s first Office for Rare Conditions in Children is a pioneering move towards the improved knowledge and treatment of a wide range of conditions, each of which has its own unique challenges. “Through local oversight and surveillance of the treatment and management of young people suffering with challenging rare illnesses, we can take great steps towards improving the overall care that they and their families receive.” Professor S. Faisal Ahmed, Samson Gemmell Chair of Child Health, School of Medicine, University of Glasgow 13 Thank You to Our Supporters Thank you to all of our donors, volunteers and fundraisers for giving so generously in the past year. Your donations are vital to the work of Glasgow Children’s Hospital Charity and we are incredibly grateful for your support. Caring for Scotland’s Children 2016/17 EVENT CALENDAR 10K Sponsored Walk 3 September, Glasgow Skydives Families, community groups, schools and businesses from across Scotland donate and fundraise throughout the year to help us support the children and young people who are treated at the Royal Hospital for Children. 10-11 September and throughout the year, St Andrew’s Airfield There are so many ways to get involved, so please get in touch to find out more about any of the following events and fundraising ideas: Sporting Dinners Fundraising Events Great Scottish Run 1-2 October, Glasgow 27 October, Inverness; 28 October, Ayrshire; 29 October, Lanarkshire Whether you join the fun at one of our fundraising events or take part in your own race, challenge or event, we will support you every step of the way. Glasgow Children’s Hospital Charity Ball, Glasgow Help at School or Work Art Exhibition Glasgow Children’s Hospital Charity offers a unique opportunity to engage pupils, customers, staff and suppliers through fundraising and volunteering. 11 November at the Glasgow Hilton 24 –27 November at The Lighthouse, Glasgow Your Local Community You can help to raise funds and awareness in your local community by becoming a Talk Service Volunteer, placing collection cans in local businesses or fundraising with your local club or group. Gift Shop 100% of the profits from our shop come back to Glasgow Children’s Hospital Charity. Visit our Fundraising Hub at the hospital, or shop online at www. GlasgowChildrensHospitalCharity.org/shop Impact Report 2015/16 FOR MORE INFORMATION Call 0141 212 8750 Visit www.GlasgowChildrensHospitalCharity.org or find us on social media. 15 10k Sponsored Walk Saturday 3rd September 2016 Elder Park, Glasgow Join our 10k Sponsored Walk to help care for the boys and girls treated at Scotland’s largest children’s hospital! SIGN UP TODAY! Call 0141 212 8750, email [email protected] or visit www.GlasgowChildrensHospitalCharity.org Registered in Scotland as a Charitable Company Limited by Guarantee.Company No 222439. Scottish Charity Number SC007856. Registered Office – Glasgow Children’s Hospital Charity, 2nd Floor, PSP House,50 High Craighall Road, Glasgow G4 9UD.
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