Multiple Sclerosis 1: Healthy Living with MS Trudy L. Campbell, MSCN RN-NP Dalhousie MS Research Unit Halifax, NS, Canada Understanding the Diagnosis The disease was first identified and described by Dr. Jean Martin Charcot in 1868. Multiple Sclerosis (MS) is a chronic disease affecting the central nervous system. It is the most common neurological disease affecting young adults in Canada. It affects one person in 500 to 1,000 Canadians. (55,000 to 75,000) Who can get MS? MS is usually diagnosed between the ages of 15 to 40. MS affects twice as many women as men. MS is more common in countries farthest from the equator. Central Nervous System Brain The central nervous system conducts information, in the form of electrical signals (nerve impulses), along the nerves. These messages control our movements and sensations. Spinal cord Nerves Nerve fibre axon MS damages the myelin Healthy and myelin sheath (protective covering Axon surrounding the nerve fibres) in patches. Result: message transmission is delayed or blocked. Healthy myelin Axon surrounded by a damaged myelin sheath Axon Research has shown that axonal loss may occur right from the onset of the disease. Damaged myelin What is an MS Relapse? Appearance of a new symptom Significant worsening of existing symptoms Lasts at least 48 hours, with no fever or infection An MS relapse generally lasts 3 to 12 weeks. Some are much shorter, while others last longer. The duration and symptoms of a relapse vary from one person to another, and from one relapse to another in the same person. Course of the Disease MS is unpredictable. Remission Relapse So, other than medication, what can I do to manage my MS? What is Physical Health? Diet Exercise Sleep Vitamin D Routine Check-Ups with Healthcare Team DIET Encompasses all the foods we eat in our day-to- day life Not necessarily restrictive “Disciplined Freedom” Food Swaps How do we know what & how much to eat? Canada’s Food Guide to Healthy Eating Canada’s Food Guide to Healthy Eating EXERCISE Is different for everyone! Do something you enjoy and that you can maintain Set achievable goals for type of activity and duration Have an exercise partner – motivation and encouragement, help with exercises Benefits of Exercise Combats health conditions/diseases (blood pressure, cholesterol, etc.) Improved mood (decreased anxiety/depression) Increased energy Helps maintain a healthy weight Improved sleep It’s FUN! I find it challenging to find the time..... 23 ½ hours Video http://www.youtube.com/watch?v=aUaInS6HIGo SLEEP Everyone needs a different amount of sleep How do you feel when you do not get enough sleep? How do you feel when you do get enough sleep? How has having M.S. affected your sleeping patterns? SLEEP HYGIENE Go to bed and wake up at the same time everyday Stop using phones/computers at least 30 minutes before bed time Only use your bed for sleeping and sexual activity If you haven’t fallen asleep after 20 minutes, go to a different room and do a soothing activity (ex. Reading) until you feel sleepy Create a bed time routine that helps you unwind at the end of the day Avoid naps! Benefits of Sleep Improved memory Sharpens attention Helps maintain a healthy weight Lowers stress Can lower your risk of depression VITAMIN D In M.S. the immune system attacks and destroys the sheath that protects nerve fibres Vitamin D helps the immune system work properly Natural sources of Vitamin D include sunshine and milk Important to take 4000 iU of Vitamin D/day SMOKING/TOBACCO/DRUGS Avoid excessive consumption of alcohol (Canada’s Food Guide recommends that 5% of daily calories come from alcohol) Best to avoid tobacco/drugs Multiple Sclerosis IS…… A complex autoimmune disease of the central nervous system Treatments for relapses, disease management and symptoms exist Managing MS effectively involves both treatment of the disease but also management of other lifestyle factors including physical activity, diet, and Vitamin D to name a few.
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