Nurturing staff to nurture families: Strategies to provide education, systems building and reflection Inga Warren, MSc University College London Hospital Pani Pantelides “… hospitals should consider the need to nurse the nurse to bolster well-being of the staff and ultimately facilitate the nurturing of families” Roberta CriccoLizza 2014 What is expected of us: the underrecognised demands of emotional labor (Cricco-Lizza 2014, Wigert 2014, Cleveland 2008)). A warm welcome at all times Permanent “happy face” Controlled emotions Cultural sensitivity Clear and personal communication Attentive listeners A human being Partnership with parents Support parenting roles Promote parent-baby interaction Constancy Cope with challenging behaviour Nurses expend labor to control emotions and to present to babies and parents a work persona of competence and composed professionalism (Cricco-Lizza 2014) What happens to us? Stress, burnout and compassion fatigue. (Profit 2014, Boyle 2011) Tired Sad, depressed Angry Apathetic Sleep disturbance Moral distress Health problems Absenteeism Unable to keep up and change Poor work life balance; impact on families High staff turnover Low job satisfaction Burnout related to conflict within work setting Compassion fatigue related to interpersonal intensity Impact of burnout / compassion fatigue on patient care Poor safety culture Higher rates of error Suboptimal care e.g. increased risk of infection Parent dissatisfaction Complaints and law suits Difficulty achieving quality improvements Profit 2014, Prins et al 2009, Rochefort and Clarke 2010 Parent support is an important component of interventions for pre-term infants 11/18 studies had outcomes for parents (2/18 fathers) Positive effects on anxiety, depressive symptoms and self efficacy Interventions with psychosocial support had better outcomes. Parenting education - positive effect on anxiety. Parenting education alone did not reduce stress. Parent support component did have an effect. Benzies, K M., et al. "Key components of early intervention programs for preterm infants and their parents: a systematic review and metaanalysis." BMC pregnancy and childbirth 13.Suppl 1 (2013): S10. Four influencing factors in a NICU parent's progression: 1. contact with and proximity to their infant, 2. relationship with the nurse, 3. having information, 4. social support. VazQuez V, Cong X (2014), Parenting the NICU infant: A meta-ethnographic synthesis International Journal of Nursing Sciences 1(3):, 281–290 “Nurses must engage with NICU parents in such a way as to maximize the likelihood that these parents will reach at minimum the proficient and at maximum the expert parenting stage by discharge”. CLOSENESS AND CONNECTION Closeness Flacking R et al for the SCENE group 2012, Closeness and separation in neonatal intensive care, Acta Paed Emotional connection Hane A et al Family Nurture Intervention improves the quality of maternal caregiving in the neonatal intensive care unit : Evidence from a RCT. J. Dev. Behav. Pediatr. 2015 STRATEGIES for nurturing staff and building resilience. Self maintenance Systems organisation Reflection Education (? and mindfulness) 1. SELF MAINTENANCE: : “responsible selfishness” (Jones 2005) Work-life balance Exercise Diet Distractions Diary/journal Meditation Massage Connect Learn (Be) Active Notice Give back Eat well Relax Sleep (Phillip Hammond) Does your institution support self maintenance: good food, health services, fitness support, child care? Accelerated Recovery Program (ARP) (Gentry et al 2000) 1. 2. 3. 4. 5. 6. 7. 8. 9. Understand triggers Review methods for coping Caregiver plans for self treatment Resources for addressing compassion fatigue Teach effective self-soothing Teach grounding and containment skills Enhance proficiency in self care and boundary setting Video- dialogue techniques for self supervision Self administered, self care planning 2. SYSTEMS ORGANISATION. Policies – compatibility with family centred philosophy. Attitudes to FCDC. Being allowed to deliver good quality care Ratio of senior staff (Turner 2014) Rostering Group size - magic number: 150 (Dunbar 1992) Equal opportunities (Williamson 1992) Constant organisational change (influenced by competition, technology, legal/regulatory constraints) is EXHAUSTING (Cricco-Lizza 2014) EQUAL OPPORTUNITIES Policies don’t implement themselves. Wallin et al 2004, Staff experiences in implementing guidelines for kangaroo mother care. Int J Nurse Studies. Evidence based guidelines 4 units: Change team 2 units: FACILITATOR Change activities Focus groups. ARRC project, Sheffield (Skene) Action Research on Relationship Centred Care Exploration • Parent and staff surveys • Parent and staff focus groups • Baseline data Intervention cycles x 3 • • • • Evaluation • Parent and staff focus groups • Parent and staff interviews • Compare with baseline data Planning Acting Observation Re-planning 3. ENVIRONMENT: . Space to help parents interact with their baby Space to talk to parents privately (Wigert 2014, Turner et al2014) Feilden Clegg 2011 Impact of single room design on staff: • Increased workload and isolation • Increased satisfaction from benefits to infants and families. (Hagen et al 2015) AESTHETICS – impact on well-being and confidence in the institution. Lankston et al 2010. Ulrich and Gilpin, 2003. Behrman 1997 Colour Art work Lighting Daylight Views of nature References to nature Fluorescent Gallery ENVIRONMENTAL STRESSORS (White et al 2013, Ulrich 2004), • Light: bright areas for breaks and work surfaces; light showers for night staff; morning light. • Sound levels and characteristics - fatigue, errors, communication • Temperature (Williamson 1993) and ventilation An environment that is appropriate, safe and healthy for infants, parents, and STAFF SOCIAL ENVIRONMENT Community – “the village effect” (Pinker 2014); shared food, book swop, birthdays, events. Space to take breaks, to meet, eat, talk, chat, and laugh together • Culture of mutual assistance and respect (Williamson 1992) • Psychological support; relationships; moral dilemmas • Protection e.g. from aggressive behaviour, bullying RELATIONSHIPS WITHIN THE SYSTEM Parents are sensitive to power struggles, difficult relationships and inconsistencies in the system Adopt deferential behaviour with staff and anxious surveillance to protect baby. Finlayson K, Dixon A, et al (2014), Mothers perceptions of family centred care in neonatal intensive care units, Sexual and Reproductive Healthcare LEADERSHIP Transformational leadership (Nielsen et al 2009); Leaders and their followers raise one another to higher levels of morality and motivation: vision, identity, role modelling, strengths and weaknesses. Management style – visibility, fairness, walk rounds, feedback (Sexton et al 2014). Good manners – rudeness undermines performance (Riskin et al 2016) Developmental care team, (Hendricks-Munoz et al 2007). 3. EDUCATION – Recommendations for enhancing psychosocial support of NICU parents through staff education and support. Hall et al 2015, J Perinatol) “Normal” responses to infant hospitalisation Mood and anxiety disorders Family Centred Developmental Care Cultural sensitivity with self awareness and flexibility Self care Competent communications Focusing on staff training alone is insufficient as it neglects employment practices and issues of management style that contribute to burnout. Hall et al 2015 COMPETENCIES: Relationship based (Warren and Brown 2014) Relationship with the Infant Relationship with the Family Relationships within the system The most effective way to learn Rate of transfer into classroom practice following peer coaching 100% 90% 80% 70% 95% Workshop Workshop and modeling Workshop, modeling and practice 60% 50% Workshop, modeling, practice and feedback 40% Workshop, modeling, practice, feedback and peer coaching 30% 20% 10% 10% 13% 14% 19% 0% 1 Bush RN, 1984, Effective staff development. COACHING: what makes it work? Job embedded: directly applicable to practice Focused on a few highly important strategies Intensive (one-to-one)and on-going Partnership: equal partner / collaborator with coach Dialogue: reflective conversations Non-judgemental and confidential Respectful, open and honest communication Management interest and support Voluntary Coach needs deep understanding of area of work Adapted from Knight J, 2009, Training with COACHING component and improved parent outcomes • NIDCAP (Als 1985, 2003) • Mother Infant Transaction Programme (Rauh 1990. Kaareson 2006, Newnham 2009) • Family Nurture Intervention (Welch 2012, Hane 2015)) Author Year Country Impact on parents Als et al. 2003 USA Wielnga et al 2006 Nether- • Parents more satisfied with care given lands according to NIDCAP than with traditional care. Kleberg et al 2007 Sweden • • Lower family stress and enhanced appreciation of the infant. • Van der Pal et al 2007 Perceived more closeness to their infants than control mothers (p=0.022) Rated staff’s ability to support them in their role as a mother higher Nether- • No significant differences were found in lands confidence, perceived nursing support or parental stress. Newborn Individualised Developmental Care and Assessment Programme. Author Year Country Rauh et al 1998 USA Impact on parents Greater satisfaction and confidence with mothering. More favourable perceptions of infant temperament Kaaresen et 2006 Norway al Mothers and fathers in the intervention group reported significant lower scores in child domain, parent domain, and total stress Newnham Mothers less stressed by their infant at 3 months. 2009 Australia Mother Infant Transaction Programme: staff trained with Brazelton Neonatal Behavioural Assessment Scale. Close Collaboration with Parents Training Programme, Ahlqvist-Bjorkroth S et al (2013) • Increased parental involvement in infant care. • Increased interaction with parents. • The role of the nurse changed from an active caretaker to a facilitator Axelin et al 2014, Nurses' perspectives on the close collaboration with parents training program in the NICU. Communication skills “Limited conversation” (McCarthy et al 2013) Education in use of translators Using simple, non-technical, language Availability of printed materials – words and pictures Programme to Enhance Relational and Communication Skills (PERCS-NICU) (Meyer et al 2011 Boston) Interdisciplinary workshops (6h): 10-15 participants and 3 facilitators Collaborative exercise, educational film, didactic presentation Case scenario with actors Conversation, feedback, reflection, action plans RESULTS: questionnaire at 12 m 100% : improved preparation, communication skills and confidence 83%: reduced anxiety Neonatal Critical Care Communication (NC3) (Boss et al 2013) 13 Medical and NNPs 3 day retreat Didactic overviews (10 key communication skills) Facilitated groups with role play (actors) Written curriculum (referenced) with 6 modules, which included specific skills such as ask-tell-ask; jargon free language; open ended questions RESULTS ( Surveys before, during and 1 month after) • Improvement in perceived competence in 10 key skills • More confident to talk to families 4. REFLECTION Thinking about who we are, what we do, and who we want to be. Learning from experience. Rosalie Fiennes 2014 REFLECTION Menu of work setting options (Boyle 2011) On-site counselling Staff support groups De-briefing sessions Art therapy Massage Encourage integration of self care plans into performance appraisals Talking with the sisterhood” (Cricco-Lizza 2014) VERP: Video Enhanced Reflective Practice: video clips of self at work to discuss in supervision SHARING STORIES An example from palliative care. (Campion Smith 2011) Six 2 hour sessions Topics / weekly themes Symptom control Communication Benefits Family issues Ethics Emergencies Organisation of care Multidisciplinary groups to share stories on the theme of the day - feedback ideas. Fast feedback forms, one-to-one telephone interviews 5 months later. Modified KIRKPATRICK’S LEVELS OF EVALUATION (Barr et al 2000) 1. Learners’ reactions 2a. Modification of attitudes and perceptions 2b. Acquisition of knowledge and skills 3. Change in behaviour 4a. Change in organisational practice 4b. Benefits to patients and relatives/carers. • Technique of listening to others’ experiences and sharing stories was an effective way to cross interprofessional boundaries. • Evaluation was positive for all domains. Holding staff who hold parents in the NICU Psychoanalytic perspectives (Kraemer 2006, Cohen 2003) Ambivalence about psychological support (Profit 2014) “Clinging to fragmentation of care” - detachment, denial and depersonalisation as coping strategies. Seek relief from the draining Intensive contact with families Resistant to putting themselves in the parents’ shoes. Psychotherapists have a powerful role as translators and meaning makers. They can help to structure free-floating chaos and to provide shape and context to wordless anxieties. Kraemer 2006. SUPPORTING PARENTS TO REFLECT (Underdown 2013) Capacity to “mentalise” – interpret behaviour in terms of underlying feelings – important for developing sensitive interactions. Parents with low reflective function more likely to misinterpret baby’s behaviour. Opportunities for parents to develop perceptions of their baby as a person – likes, dislikes, strengths and sensitivities. Other opportunities and ways to enhance job satisfaction . Seeing the benefits of quality care – audit and feedback Visits from children Ahlqvist-Bjorkroth S et al (2013) Close Collaboration with Parents Training Programme, Turku University , Finland. Als H, (1986 rev 2015). Program Guide - Newborn Individualized Developmental Care and Assessment Program (NIDCAP): An Education and Training Program for Health Care Professionals. 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