Outline VA Polytrauma Assistive Technology Labs: Focus on AAC and Electronic Cognitive Devices • VA Polytrauma System of Care • University of Pittsburgh consultant • AT Labs at the VA Polytrauma Rehabilitation Centers • Andrew Jinks, MA CCC-SLP, ATP – University of Pittsburgh, Pittsburgh, PA • Micaela Cornis-Pop, PhD CCC-SLP – Project milestones – Electronic cognitive devices – AAC devices – Richmond VA Medical Center, Richmond, VA • Telina Caudill, MS CCC-SLP – James A Haley VA Hospital, Tampa Bay, FL • Richard Schein, PhD – University of Pittsburgh, Pittsburgh, PA Integrated System Polytrauma System of Care • Goal of system was to match geographic need of Veterans (and Servicemembers) with clinical expertise. Polytrauma Centers (4) Regional referral centers – VA uses extensive GeoID mapping of all Veterans – Most Veterans are from “rural” areas (>30 miles) of major cities Polytrauma Network Sites (22) VISN level referral sites • Through MOA, VA may provide Servicemembers with rehabilitation services for TBI, SCI, Amputation and Burns. Polytrauma Support Clinics (85) Facility level teams • Only 40% of eligible Veterans utilize VA services. • All OEF/OIF Servicemembers are eligible for care for 5 years after service. Polytrauma Points of Contact (43) Referral and care coordination VHA Polytrauma System of Care Polytrauma Rehabilitation Centers • Four Level 1 medical centers providing the highest echelon of • • • Sep 9, 2009 comprehensive medical and rehabilitative services (inpatient and outpatient) for the most complex and severely injured: – 12-18 inpatient bed units providing acute interdisciplinary evaluation, medical management, and rehabilitation – 10 inpatient bed residential Transitional Rehabilitation Program – Emerging Consciousness Program – Assistive Technology Lab – Polytrauma Telehealth Network National VA leaders in polytrauma / TBI providing consultation, medical education, research, and program development for system of care Accredited by CARF for inpatient TBI and general rehabilitation Collaborate with DVBIC and national TBI Model Systems project 5 1 Polytrauma Rehabilitation Centers Richmond Tampa Polytrauma Network Sites • 22 regional Level 2 medical centers providing full range of comprehensive follow-up medical and rehabilitative services (inpatient and outpatient) for patients recovering from polytrauma and TBI (1 per VISN, and San Juan): – Develop and support patient‟s rehabilitation plan through comprehensive interdisciplinary, specialized team – Serve as resource and coordinate services for TBI and polytrauma across VISN (VA, DOD, private sector) • VISN leader for polytrauma/TBI consultation, education, monitoring outcomes, and program development • Accredited by CARF for inpatient general rehabilitation Palo Alto Minneapolis Polytrauma Support Clinic Teams Polytrauma Points of Contact • 85 Level 3 medical centers with dedicated outpatient interdisciplinary teams of rehabilitation specialists • Designated at 43 medical centers without specialized rehabilitation teams • Provide specialty rehabilitation care closer to home • Designated VA primary care staff member knowledgeable in the Polytrauma System of Care – Evaluate and develop individualized treatment plan – Provide interdisciplinary rehabilitation care and long-term management of patients with rehabilitation needs – Coordinate clinical and support services for patients and families • Conduct comprehensive evaluations of patients with positive TBI screens, develop and implement rehabilitation and community re-integration plans • Coordinate case management and referral within Polytrauma System of Care • Knowledgeable of rehabilitation services provided within local community, and facilitates referral for such services as necessary Assistive Technology Centers of Excellence • Partnership between the VHA and Academic community (University of Pittsburgh) • Established 4 COE across VA – 5/10 – In-person evaluation and training – Telemedicine evaluation and consultation – Teleconference and in-person training of staff • Establish AT expertise in each of 22 VISNs by 2011-12 – In-person evaluation and training • AT resources available to all Veterans VA PRC AT Labs Project Overview Andrew Jinks, MA CCC-SLP Consulting Speech-Language Pathologist Richard Schein, Ph.D. VA-PRC Project Coordinator Mark R. Schmeler, Ph.D., OTR/L, ATP Project Director 2 Overview Overall Goal Support VA, VA Clinicians, Veterans, & active-duty military personnel through the appropriate application of Assistive Technology Overview • • • • • Continuing Education Outcome Management System Product Evaluation CARF Accreditation for AT Informatics Infrastructure 3-Year Systematic Plan with Milestones • Needs Assessment • Development Plans – Physical space, training, equipment – Practice guidelines, documentation, outcomes • AT Intervention • Build Upon Existing Programs University of Pittsburgh AT Team – University of Pittsburgh • School of Health & Rehabilitation Sciences – Department of Rehabilitation Science & Technology • School of Medicine – Department of Physical Medicine & Rehabilitation – Subcontractors • • • • The Ohio State University Minkel Consulting Eadvantage AT Sciences Center for Assistive Technology 3 AT Service Areas • • • • • • • Wheeled Mobility and seating equipment (WMS) AAC Devices Cognitive orthotics and learning technologies Electronic aids to daily living (EADLs) Adapted computer access Adapted driving and vehicle modifications Adapted recreation equipment Augmentative Communication Services • Evaluations for Speech Generating Devices • Augmentative Communication Therapy & Training • AAC Consultation Services Pitt AT Team • • • • • • • • Occupational Therapists - 2 Physical Therapists - 3 Speech-Language Pathologist - 1 Rehabilitation Engineers - 3 Physicians -2 Administrators – 3 Nurse – 1 Information Specialists – 5 Site Visits • Initial Site Visits to each of the PRCs May-July 2009 • UPITT team consisting of 12 various disciplines and specialty backgrounds met with administrative leadership at each of the sites for a „kickoff‟ meeting to discuss the overview of project and goals during the needs assessment • Tour of the facilities included inpatient SCI, TBI, transitional apartments and individual therapy clinics Milestones 1- 3 • Milestone 1: Initialize Project – May 2009 Management Team - Denver VA Medical Center – May 2009 Kick-Off Meeting in Richmond, VA • Milestone 2 & 3: Develop Design and Work Plans – June/July 2009 Needs Assessment – Facility Resources • • • • Identify Current AT Services and Core Areas Capacities and Preference with Outcome Tools Resources Continuing Education AT Services Focus Groups • UPITT members split into focus groups with polytrauma clinicians to gather information pertinent to the facilities current AT practices. • Clinicians involved in the following areas were included: – WMS – AAC – EADLs -Adapted Computer Access -Adapted Driving -Adapted Recreation 4 Challenges Focus Groups cont. • Key points included: – – – – – – – – Identification of service providers Identification of client population Space accommodations Review of AT devices housed in various departments Review of documentation templates in use Identification of methods for gathering outcomes Evaluation of standards of practice Identification of specific education needs • Information security • Network security • Firewalls • Affects • Access to online education • Resources for Telerehabilitation • Connection of PDAs to network computers, etc. Rehabilitation Engineering Establishment of Teams • Recommended team composition – Program Coordinator – Speech-Language Pathologist – Physical Therapist – Occupational Therapist – Rehabilitation Engineer – Rehabilitation Technician Application of science and technology to improve the quality of life of individuals with disabilities Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) - www.resna.org ◦ Mission: To improve the health and well-being of people with disabilities through technology. Certifications ◦ Assistive Technology Professional (ATP) ◦ Rehabilitation Engineering Technologist (RET) • Other specialists by consultation Unique AT Needs of VA Polytrauma Centers • Technology or combination of technologies that best suit the complex needs of the polytrauma patient • The polytrauma patient presents with two or more of the following injuries. It is not uncommon to treat a patient who exhibits each. Polytrauma Patient • • • • • • • • • • Traumatic Brain Injury Blindness or low vision impairment Amputation Burns Hearing Loss Infections Wounds/pressure ulcers Paresis Spinal Cord Injury PTSD 5 Military Culture Family Support • Suffering from the loss of brothers in combat • Transferred to the PRCs, which limits communicating with and support of their comrades • Wish to return to combat with their comrades • Young and technologically savvy • Incorporation of military culture as a motivational tool and effects on rehab • Integral member of the rehab team for goal formation and patient support/motivation • Families have high expectations and understandably want the latest advances and state of the art technology for their loved one • Families live together on campus. They are very aware of everybody’s care, therapy and receipt of technology • Family involvement facilitates improved education and carryover of newly learned skills Range of TBI Severity • AT consults entered for MCS to High Functioning TBI patients • Clinician may follow patient through the different levels of care from acute inpatient→transitional→day treatment→community living (postdeployment OIF/OEF program) Electronic Cognitive Devices • • • • • • iPad or iPod Touch Smart Phones Livescribe Smart Pen Smart watches Ablelink PIM Software ELECTRONIC COGNITIVE DEVICES – LOW VISION, AMPUTEE AND ALEXIA • Devices tailored for those with visual, reading and/or dexterity impairments (i.e., TTS, hands-free voice recognition, speech/picture/video cues) – TADI – Ablelink Pocket Endeavor – Moshi – Digital Voice Recorders – iPhone Accessibility features 6 COMMUNICATION APPS • Proloquo2Go $189.99 – Also available in bundle packages including device + app • Voice4U $29.99 – Also compatible with Android • Speak It $2.49 • SmallTalk for Aphasia FREE • Locabulary FREE – Links with GPS for location specific vocabulary Electronic Cognitive Devices Electronic Cognitive Devices – Clinical Practice Recommendations • Developed by an interdisciplinary group of VA SLPs, OTs, and Prosthetics specialists. Include: – Specific indications and contraindications – Processes for prescription and issuance • Personal, environmental and device factors – Training content and procedures – Follow up – Documentation and data collection Milestone 5 – Education 4000 Virtual AT Grand Rounds 3500 • Quarterly Webcasts - Sept. 2009 3000 2500 AAC Device PDA/Smart phone GPS 2000 1500 1000 500 RESNA ATP Exam Preparation & Training • March 2010 3-Day Accredited AT Institutes . May 2010 0 FY'08 FY'09 FY'10 Grand Rounds Example of Virtual AT Grand Round • Accessible Video Presentations – Augmentative Communication – Rehabilitation Engineering – Electronic Cognitive Devices – Tissue Integrity Management – Spastic Hypertonia 7 AAC – The components of: Aids (Devices) A device that can be either: non-electronic Low Technology or electronic High Technology for transmitting messages Andrew Jinks, MA CCC-SLP, ATP Center for Assistive Technology University of Pittsburgh History of AAC Early Humans Apple II computer – 1970’s The Apple II computer was the first microprocessor designed specifically for home use. used symbols (cave drawings) to communicate Plato refers to signing by the deaf Speech Generating Devices (2010’s) Types of AAC Devices 1) basic picture-message fixed display 2) text-to-speech keyboard spelling mytobii C12 Saltillo’s ALT-Chat PRC’s ECO DynaVox TANGO Words+ Say-It-Sam Handheld 3) sophisticated symbolic coding- based devices. DynaVox Xpress 8 Synthesizers Mounting for access DecTalk – 9 voices (Perfect Paul, Whispering Wendy) Types of mounts Switch Swing-Away Folding Table top Rigid Lap tray VeriVox (Michael, Sarah) AT&T Natural Voices (Crystal, Rich)( Italian, German) Neospeech (male/female) Stephen Hawking’s choice Acapela (Heather, Kenny) (British, Dutch, Norwegian) Real Speak (Samantha, Tom) (20 languages) Loquendo (French, Spanish) Photos from AbleNet, Daessy, & Abledata websites Selection Techniques Eye gaze Brain Controlled Interface Eye gaze communication board. - Image created by University of Pittsburgh Milestones 6 & 7 Challenges for Augmented Communicators Rate of communication Artificial speech Pragmatic communication problems Acceptance of use of SGD Coding of messages Access techniques Cognitive load • Milestone 6: Standardized AT Procedures – Standards of Practice – Documentation & Electronic Templates September 2010 • Milestone 7: Consultation Services – In-Person/On-Site – March 2010 – Telementoring 9 ECD Documentation Template AAC Practice Guidelines • American Speech-Language Hearing Association – Augmentative and Alternative Communication Knowledge and Skills for Service Delivery (2004) – Technical Report (2004) – Position Statement (2005) • Veterans Administration Prosthetics and Sensory Aids Service • Assessment Variables - CLIENT BACKGROUND EXISTING DEVICES BODY SYSTEMS ACTIVITY CLIENT GOALS ENVIRONMENTAL USE - TRIALS - OUTCOMES - RECOMMENDATION - PLAN – Speech Devices AAC Systems (2004) Milestone 8 • Evaluation of AT Devices – Develop AT Evaluation Model • (Batavia and Hammer, 1990) – Conduct AT Product Evaluations – Disseminate Updates in IT formats Milestone 9 – Outcomes – Identify AT Outcome Measurement Tools March 2010 – Barriers to Implementing Outcomes – Test-Pilot Tools – September 2010 – Develop Outcome Data Collection Procedures – Data Analysis Models – October 2010 Outcome Measures • PIADS – Psychosocial Impact of Assistive Devices Scales (Day & Jutai, 1996) – 26 item rating of how using an assistive device may affect a user – Ratings of: competence, happiness, efficiency, usefulness, sense of control, ability to adapt to ADL‟s, etc. 10 Outcome Measures • QUEST – Quebec User Evaluation of Satisfaction with Assistive Technology (Demers, Weiss-Lambrou and Ska, 2000) – 12 satisfaction ratings of device and service – Dimensions, ease in adjusting, durability, repairs and servicing, follow-up services Milestone 13 – Information Technology Milestone 12 – CARF – Design Plan for CARF AT Accreditation October 2010 – Work Plan for CARF AT Accreditation – Quality Assurance (i.e. organization performance and quality services provided) – Mock CARF AT Surveys at 4 PRCs ICAT-Workbench Homepage • ICAT-Workbench – Internet-based Informatics Infrastructure – External Resource Complementing Existing VA Procedures – Interlink Multiple Resources Into Single Portal • Education • Standardized Assessments, Treatment Plans, & Workflow • Coverage Policies & Guidelines • Outcome Measurement Therapist Workbench: Videoconference & Online Documentation Continuing Education 11 AT Device Reviews AT Prototype Online Outcomes Database System AT Prototype Online Outcomes Database System Future Plans • Fully functional CARF Accredited Assistive Technology Labs that have consistent capabilities at the 4 PRCs • Overlap to other than Polytrauma within the PRC Future Plans • Outreach, Collaboration, Consultation, Mentorship with other VA Medical Centers • Possible migration and maintenance of information by the VA sites or ongoing services by University of Pittsburgh 12
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