CaringMatters Call: 020 8795 6240 brentcarerscentre.org.uk A newsletter for people supporting their disabled, frail or ill relatives and friends in the borough of Brent Summer 2014 In this issue P2 Latest News Introducing Whole Family Assessments P3 Carers’ Forum Carer’s Profile Brent Carers’ Week Quest 9th - 15th June 2014 P4 Brent Carers’ News P5 We have listened 1st Aid Training Brent Carers’ Centre is taking part in one of the greatest ever drives to reach out to carers in Brent during Carers’ Week 2014. Carers’ Week Quest is an exciting new initiative to reach out to new and hidden carers. Our aim is to reach out to 200 new carers in Brent who are currently missing out on services and support. One in eight of us are currently carers looking after an ill, frail or disabled family member or friend. Many people who are carers do not immediately see themselves as carers, as they are simply wives, husbands, sons, daughters, mums, dads or perhaps grandparents, nieces or nephews helping a loved one. However as carers we all know they require additional support, and without it the impact can be devastating – carers can quickly become isolated, their health and wellbeing may deteriorate, they may not be able to hold down a job and they may struggle financially. Our Carers’ Week Quest will be a perfect platform to raise awareness of who and what is a carer. We want to make clear the distinction between a carer who is unpaid and the role of a paid care worker. P6 Support Groups Afasic | Voice for life Carers are welcome to join us in this quest too, so if you are interested in helping out, please let us know. We hope to achieve this by working collaboratively and in partnership with the following organisations who have pledged their participation in Carers’ Week Quest and their commitment to identifying carers. P7 Community News App for Carers P8 Carers’ Quest Week P11 Money Matters Affordable Holidays P12 Health Matters Patient Information P14 Young Carers P15 Support Activities Brent Carers’ Week Quest Partners for 2014 Our aims for Carers’ Week Quest in Brent are to: ww Reach out to 200 new carers who are missing out on advice and information, support and services Prizes: £100 Cash prize, Bottle of Champagne, Hamper, plus much more ww Encourage and help individuals and organisations to come together to improve how carers in Brent are supported ww Support individuals and organisations to improve how they look after carers ww Provide a focus and impetus for activities throughout the borough including fundraising Brent Disability Information Gateway Please support our charitable work of improving the lives of carers in Brent by buying a raffle ticket on sale now at our office and one of our events. Tickets on Sale Now @ £1 per ticket Prize Draw 14th June 2014 1 L AT E ST N E W S Message from our Chief Executive Brent Carers Centre strives to continually improve on the range of services available to carers. So we are very excited to be initiating more new projects which are needed by Carers. You will see that we are now undertaking Whole Family Assessments, these provide a fairly comprehensive analysis of the needs of each family member, ensuring that relevant support services Anne-Marie Morris are identified, signposted or Chief Executive referred to each member as required. We have set up several new outreach advice clinics at different locations across the borough, designed to improve the accessibility of our advice service to carers in Brent: full details are on page 4. We are also pleased to be launching a counselling provision for which Carers have expressed a need on numerous occasions: for more details turn to page 12. On page 4 you can read our ‘We Have Been Listening’ feature which highlights the different ways that we have been able to successfully respond to the ideas and suggestions we have received from Carers. Brent Carers’ Centre is committed to representing the views and issues of Carers borough-wide and also to responding to those views where practicably possible. As we look forward to hopefully a sunny summer season, we are very excited to announce our plans for Carers’ Week Quest, taking place from 9th – 15th June 2014. We have put together a week of fun-packed activities, training and seminars specifically for carers, which we hope you will find both helpful and enjoyable. In addition we have a linked up with a number of local partner agencies who will be working with us to jointly identify our target of 200 carers during Carers’ Week Quest. You can help too - by simply telling people about the work we do. The biggest barrier for carers accessing support is simply recognising that they are a carer. You could all help by spreading the word – carers are everyday people like you and me who provide unpaid care for a friend or relative who cannot manage without our help! Invite them to one of our Carers’ Week Events or simply tell them to call us. Together we can make Carers’ Week Quest our biggest and most successful drive to identify new and hidden Carers. We hope you enjoy this edition of Caring Matters and welcome your views and feedback. We look forward to seeing you at one of our Carers’ Week events, especially the Launch on 2nd June and the Carers’ Summer Barbecue on 14th June. Here’s hoping we have a wonderful summer, happy reading! Introducing Whole Family Assessments for Carers Brent Carers’ Centre has launched ‘Whole Family Assessments’ for Carers and in particularly young carers in Brent. A whole family assessment is a process facilitated by a key worker where each member of the family can identify their own needs and issues and explore the interrelationship between family members. The information obtained is then used to identify the relevant services which would provide appropriate support to meet the individual needs of each member of the family. We know that Young Carers in particular may face problems such as: ww School or College Attendance ww Homework or coursework ww Their own well-being ww Being bullied ww Meeting or going out with friends ww Talking about their caring role Undertaking a whole family assessment ensures that a whole family focused approach is used to support each member and that each member’s views, needs and issues are taken into consideration when planning support for the whole family – this is widely known as the “Think Family” approach. A whole family assessment can help each member to understand the issues faced by the family and why existing or previous support has been unsuccessful. Families with complex needs may require support which cannot be addressed by just one service so by completing an assessment we can make sure that the right services are involved, and ensure that members with acute needs are not prioritised at the expense of other family members with lesser needs. A whole family assessment will not replace a carer’s assessment which is quite different, and undertaking one will not result in funds being assigned to the family. What it will do, however is to link you with the right support services that will meet the individual needs of each family member. It may take 4 – 6 weeks to complete an assessment, looking at the needs of each individual within the family as well as the family as a whole. At the end of the assessment we will work with you to prepare a Support / Action Plan, which means the family have their say about what support is delivered to whom and when, providing personalised support for individual family members. Our Think Family approach can help the whole family secure better outcomes for each individual as well as for the family as a whole. With the right support in place for you and your family, you can enjoy a more fulfilling life and be better equipped to achieve your goals. To request a whole family assessment call us now on 020 8795 6240. 2 C A R E R S’ F O R U M The Carers’ Forum which took place on 28th March 2014 was well attended by 36 carers. Our guest speakers were Helen Duncan Turnbull (Head of Support, Planning and Review within Adult /Social Services) who described the process of Carer’s Assessment, and Claire Small (NHS Brent Clinical Commissioning Group) who introduced the New Integrated Health Care plans. Carers Assessments Helen’s presentation highlighted the following points: ww Carers who provide substantial care on a regular basis are entitled to a Carer’s Assessment. ww A Carer’s Assessment can take place in the home, the Civic Centre or an agreed location. ww Carers have a choice of completing the form on their own or with the assistance of a social worker or Brent Carers’ Centre staff. ww Carers’ Assessments can be undertaken annually or when there is a change in your circumstances. ww You do not need the dependent’s permission to be entitled to a Carer’s Assessment. ww If a carer meets the criteria of substantial care they may be entitled to support from Brent Social Services. ww Carers may receive up to £300 respite grant per year, which is not means tested. ww The respite grant is not issued annually; you need to request it. New Integrated Health Care Plans Claire’s presentation highlighted the following points: ww Brent Social Services & NHS Brent Clinical Commissioning Group will be pooling their resources to deliver a new integrated approach to health care in Brent. ww The approach is designed to reduce duplication and streamline services in the borough to provide a seamless approach to support. ww It is proposed that there will be a single point of contact for each individual to the range of services and support in the borough. Some concerns were by carers who care for someone with a mental health condition regarding Care Plan Managers. Care Plan Managers are currently the single point of contact for those carers. Carers explained that problems have arisen as the Care Plan Managers did not understand the needs of the carers they were representing. It was suggested that this issue should be reviewed first before rolling out a single point of contact for individuals. The next Carers’ Forums are on... Date: Venue: Theme: Thursday 26th June 5pm – 7pm Patidar House, 22 London Road HA9 7EX Learning Disability Provision Support available and transitions Mental Health Care Planning and Carers’ Roles Date: Friday 26th September 2014 10am – 12 noon Venue: Patidar House, 22 London Road HA9 7EX Theme: TBC Refreshments available. Please call us to confirm your attendance so we can plan catering for refreshments. A Carer’s Profile Staney Rodrigues Staney Rodrigues is the main carer for his son, Roshan. Roshan is 21 years old and has Down ’s Syndrome. Staney has been his main carer for eight years. Staney ensures that Roshan’s life has routine and that his needs are met. He gets him up in the morning, makes sure he has a wash, sets his clothes out for him and checks he has everything he needs for his college course – Roshan attends supported life skills classes at the College of North West London. Roshan does not understand the world around him and gets anxious and worried. Staney accompanies him and supports him. “Roshan gets bored easily so I try and take him out. He loves going to the market and especially enjoys looking at the fish shop.” The Rodrigues’ family life has been turned upside down as they sought the best quality of life for their son. “I had a successful business in Oman, but the attitude to disabled children there is heart-breaking. Oman society does not see any value in children with learning disabilities, they are seen as worse than useless. Seeing other people’s attitude towards my son was like torture to me. Another family who also had a child with Down’s Syndrome around the same time as we did also felt they had no choice but to leave Oman. They went to America.” The Rodrigues family moved to the UK in 2006 and used their savings in search of a better life here. Staney could not work as he was now caring for his son full-time. His wife left a job in Oman where she was PA to a director at a hospital, but she could only find work here as a paid care worker. The family have struggled financially. One of the worst times was when Roshan didn’t have a Freedom Pass and it was very difficult finding the money for his bus fare with no money coming in. Staney went to Brent Council but felt that they didn’t care, which he found very upsetting. However Roshan was assigned a social worker who referred the family to Brent Carers’ Centre. Brent Carers’ Centre helped Staney fill out a Carer’s Allowance application which was successful. The extra income is an immense relief. They also identified that Staney may be entitled to Income Support and Roshan may be entitled to Employment Support Allowance (ESA), and have since helped Staney fill out the ESA application form as well. Staney strongly feels that carers’ voices should be heard and acted on. He feels that London Transport staff should be given more training about how to help people with special needs using public transport, following an incident when Roshan’s travel pass wouldn’t register on a Bus’ Reader and he was made to get off and had to walk 3km. Staney thinks that London Transport staff should have the discretion to allow people with special needs to stay on the bus / train when something goes wrong as this is safer for them. Staney’s advice to a new carer is: “ Go to Brent Carers’ Centre and take advice. They will guide and support you through a very complicated system. ” If you would like to be featured in our Carers Profile please contact us on 020 8795 6240 or [email protected] 3 BRENT CARERS NEWS BCC Outreach Advice Surgeries The Gentlemen’s Club We are pleased to announce that we launched 4 new Carers Advice Clinics across the borough in addition to the evening clinic on a Wednesday at our offices. Are you a male carer? We would like to invite you to lunch to meet other male carers, relax, have a chat and spend a little quality time just for you. Date, time and venue to be confirmed, perhaps you might suggest somewhere! Interested, then call us on 020 8795 6240 AddAction 97 Cobbold Road, NW10 Day | 1st Wednesday every month Time | 2-4pm Contact | 020 8459 9510 to book appointments John Billam Resource Centre Woodcock Hill, Kenton HA3 Day | Last Monday of every month Time | 1pm – 3.30pm Contact | 020 8795 6240 Appointments or drop in available Wembley Library Civic Centre, Engineers Way, Wembley HAO Day | 4th Tuesday of every month Time | 10am-12pm Contact | 020 8937 3559 to book appointments Harlesden Library Park Parade, Harlesden NW10 Day | Wednesday 28th May 2014 further dates TBC Time | 10am-12pm Contact | 020 8795 6240 drop in only Wembley Centre For Health & Care 116 Chaplin Road, Wembley HAO 4UZ Day | Every Wednesday Time | 5-8pm Contact | 020 8795 6240 appointments only Wembley Centre For Health & Care 116 Chaplin Road, Wembley HAO 4UZ Day | Last Saturday of each month Time | 12-8pm Contact | 020 8795 6240 appointments only We are still looking for locations in NW6, NW2 and NW10, so if you know of somewhere that could accommodate an advice clinic and is easily accessible to the public, please let us know. New Drop in Sessions at BCC To improve the way in which we support carers, and manage our work in supporting carers, will be introducing two drop in sessions every week. New Tai Chi Classes Tai Chi is a form of martial arts training that is slow, graceful, gentle and tranquil. The pace is ideal for everyone and it is an excellent way to improve your health and wellbeing. Tai Chi will help to: ww Develop skills for self-defense ww Foster self-awareness and confidence ww Increase energy levels ww Maintain or increase flexibility, strength and vitality ww Improve posture, coordination and balance ww Develop the ability to relax and let go of tension ww Develop inner stillness and calm ww Help deal with stress Starting Saturday 28th June 2014 11am – 12 noon Each class will cost just £2 per person, (payment terms 4 weeks in advance). Places are limited so book now to secure your place call 020 8795 6240 – Check out our free taster session during Carers Week Quest. Volunteering Opportunities with BCC Brent Carers’ Centre offers a wide range of volunteering opportunities for Carers. Volunteers are a valuable resource in the delivery of Brent Carers’ Centre services. Anyone can volunteer. It doesn’t matter what your skills, experience or background are, or how much time you have to give. Even if you only have a couple of hours a week to spare, we’ll have something to suit you, for as long as you are available. In return you get the satisfaction of time and effort well spent doing something worthwhile. In addition, volunteering can be a great way to: meet new people learn new skills gain useful experience. It should also be enjoyable. As a volunteer you will receive: ww Payment of out-of pocket expenses (e.g. travel etc.) ww Tuesday mornings: 10am – 12 noon ww Thursday afternoons: 1pm – 3pm ww A clear idea or written outline of the role undertaking All other times will be by appointments. Please be advised that if you drop in outside of these times you may not be seen, however we will arrange a convenient appointment time for you. Please call in advance to arrange an appointment time, if you are unable to attend a drop in session. We are currently seeking volunteers for the following roles: ww Appropriate training and support. qq Massage & Reflexology Therapists for Brent Carers’ Relaxation Clinic qq Office Administration qq Trained Counsellors / Psychotherapists qq Carers’ Activity Support Workers qq Social Media Communications If you are interested in volunteering with Brent Carers’ Centre, please call to request an application form on 020 8795 6240. 4 We Have Been Listening... Brent Carers’ Centre has been holding numerous consultation meetings and Carers’ Forums in a bid to hear your concerns, frustrations and identify your needs. What we have heard from you is that you are tired of being asked the same questions year in year out and not seeing any improvements. With the purse strings tightening and the number of carers increasing each year, each with a range of complex needs, we realise that providing the required range of adequate support and resources is going to be a challenge. We have been able to act on some of the suggestions given to us and thought you would be interested in hearing about the latest developments in response to your requests. Your views and opinions are really important to us. Whilst we cannot promise that we can always take up or respond to every view and comment made to us, we can promise that we will listen and wherever practically possible, we will endeavour to adopt, modify or implement new ideas and suggestions from carers that will be of benefit to carers in Brent. We will also liaise with and communicate with Brent Social Services, NHS Brent CCG and any other key stakeholder in our bid to continually improve the range of services and support available to carers in Brent. We hope you can see the efforts we have been making in listening and responding to your views and suggestions. Questions Carers asked and our response Q You would like more social activities and day trips for time out respite & socialising. We have now developed a quarterly programme of activities and day trips for carers, with something taking place every month. Your suggestions and ideas are welcomed and will where possible be incorporated into the programme. Q Why have the Mental Health Support Groups ended? They were really helpful and very much needed. We have reintroduced Mental Health Support Groups in Wembley and Willesden facilitated by Brent Mind: see page 6. Q You have asked for more training to improve your knowledge and skills in your caring roles. We have identified partners who specialise in a range of training for carers and have put together a programme based on your needs and requests. Q You would like Brent Carers to set up a Credit Union for Carers so that they can save and access cash when needed. Brent Carers’ Centre is unable to provide a financial regulated service such as a Credit Union. However we have identified a Credit Union available in Brent which carers can join: please see page 11. Q You need access to more respite grants so you can take time out when things get too difficult or stressful. We have worked on identifying more respite grants for carers and have been assisting more and more carers in accessing respite grant funding. Q Brent Carers’ Centre should have a counselling service so that we can access emotional support when we need it. We have been able to secure additional funding to launch a Carers’ Counselling Service, particularly for Carers who care for someone with mental health condition, but available to all carers: see page 12 for details. Q Carers who care for someone with a mental health condition endure costly travel expenses as they support their dependents to numerous medical appointments. Reimbursement of travel expenses would be helpful. We have negotiated with Brent Council and have succeeded in securing a small grant to help cover the cost of travel expenses for carers. Please turn to page 12 for further details. Q You would like more opportunities for volunteering and support into employment. We have reviewed and improved our Volunteers Programme, which will now be supported by a designated worker. We have also developed partnerships with employment and career advice agencies to support carers into employment. Q Why don’t you have a support group for Carers who care for someone with a learning disability, we think one is needed. On 24th June 2014 we will be launching a new Carers’ Support Group for carers of someone with a learning disability: details on page 6. First Aid Training Day On 21st March, Brent Carers’ Centre held a Basic First Aid course at the Wembley Centre for Health and Care. The carers who attended learnt basic first aid skills and how to respond to emergencies. They gained an understanding of what to do if someone is unconscious and practised the CPR technique. They were taught how to treat burns and cuts, and to identify symptoms of a stroke and many other emergency situations. Carers gained a 3 year certificate as a qualified basic First Aider, but most importantly knowledge of what to do if an emergency arises in their caring role. The next course will be held in June, with future courses later in the year. Once again, places are limited so please call quickly to book a place. Raksha Hirani, a carer who attended, said, “ I really enjoyed the course and found it very knowledgable. It was very helpful in my caring role. ” 5 S U P P O RT G R O U P S New Learning Disability Carers’ Support Group Brent Carers’ Centre will be launching a new Carers Support Group for Carers who care for someone with a learning disability. This Support Group will be facilitated by Anne Cover of Afasic | Voice for life The group will provide opportunities for carers to: ww Participate in peer support from other carers ww Share information advice and caring tips ww Hear about training and volunteering opportunities ww Receive new and updates on learning disability resources and information Meetings will be held in the Willesden Centre for Health & Care on the last Tuesday of each month, starting on Tuesday 24th June 2014, from 10am to12 noon. To confirm your attendance, please call us on 020 8795 6240. Anne Cover is a committed volunteer for Afasic and supports carers who care for children with learning disabilities; we asked Anne the following questions: Q What will be the purpose of the Learning Disabilities Carers Support Group? My role is to facilitate, and plan and organise the time table for the support group. I will be responsible for planning the outline of each session to parents know what to expect when they arrive. Q What will the Learning Disabilities Carers Support Group offer? This support group will offer Information, support, befriending, access to training and workshops relevant to carer, we may also have guest speakers who may give presentations on a range of issues as identified by the carers attending. Q What type of carers will attend? This support group is designed for anyone who looks after someone with a learning disability, however minimal or severe the disability may be. Q What makes a good support group? The skill of the facilitator is very important, the group needs someone who can easily engage with the parents, provide an enjoyable and stimulating support group which encourages the participation of everyone attending. Q Why join this support? You will always get something from each session, learning something useful each week. It is important to empower carers to be involved and help shape the support group so they will feel a part of it. Carers may come for a break from their chaotic and challenging lives to be amongst people who understand what they’re going through and able to and quality time for you too. If you would like to meet Anne or find out more about the support available for carers with learning disability dependents, then come down to the support group on Tuesday 24th June at 10am at the Wembley Centre for Health & Care. For further details on our other support groups call us on 020 8795 6240 or visit www.brentcarercentre.org.uk 6 Brent Carers’ Support Groups If you are interested in joining the Wembley Carers’ Support Group or any other support group we deliver, please contact us at Brent Carers’ Centre for information on the next sessions. All groups offer peer support for carers in a relaxed & friendly environment. Wembley Carers’ Support Group Day | Thursday Frequency | Monthly (2nd Thurs of each month) Time | 11 am – 1pm Location | Wembley Centre for Health & Care Willesden Carers’ Support Group Day | Friday Frequency | Monthly (last Friday of each month) Time | 1pm – 3pm Location | Willesden Centre for Health & Care Kenton Carers’ Support Group Day | Tuesday Frequency | Monthly (1st Tues of each month) Time | 2pm – 3.30pm Location | Kenton Methodist Church Hall Sudbury Dementia Carers’ Support Group Day | Wednesday Frequency | Fortnightly Time | 11am – 1pm Location | Harrow Road, Wembley For carers who care for someone with dementia Wembley Dementia Carers’ Support Group Day | Monday Frequency | Fortnightly Time | 11am – 1pm Location | Carlton Ave East, Wembley For carers who care for someone with dementia Willesden Mental Health Carers’ Support Group Day | Tuesday Frequency | Monthly (last Tuesday of each month) Time | 1.30pm – 3.30pm Location | Willesden Centre for Health & Care For carers who care for someone with a mental health condition. Wembley Mental Health Carers’ Support Group Day | Wednesday Frequency | Monthly 3rd Wednesday of each month Time | 6pm – 7.30pm Location | Wembley Centre for Health & Care For carers who care for someone with a mental health condition, including dementia. COMMUNITY NEWS Affordable Holidays for Carers Carer Holidays are designed for carers and their families; they recognise that carers need to take a short break from time to time. You might decide to take a break from caring with family or friends, and have a much-needed rest and a few days off. Or you might decide to take the person you care for on holiday with you to enjoy the break together. To be eligible for a holiday you must be a carer providing unpaid support to a family member or friend who could not manage without you. The Accommodation They have 2 and 3 bedroom caravans which sleep either 4 or 6 people. The 2 bedroom caravans are wheel chair accessible. They feature a ramp for access, wide entrance and passage, flat sliding doors, bathroom grab handles, low threshold disabled shower with seat and a patient helper (support to pull yourself up on). There must be at least one carer per booking. To find out more about Carer Holidays and their current prices call 0117 965 2365 or email: [email protected] www.carersholidays.org.uk Brent Health Partners Forum New Accident Prevention Handy Person Service by Elders’ Voice This is a new service in the borough to help keep vulnerable people safe and secure in their homes. The service will provide assistance to people who are: Older... ww With a mental health condition ww Single homeless people ww Offenders/ex-offenders ww With a learning or physical disability ww With a sensory impairment To be eligible for the service you must be aged 18 and over, satisfy the local Fair Access to Care Services (FACS) criteria and/ or be in receipt of benefits, and be assessed as requiring an Accident Prevention Handyperson Service. The service will carry out basic repairs, improvements and adaptations such as electrical, carpentry and plumbing jobs. From changing a light bulb to fitting locks or securing flooring etc. All clients will have to pay for any materials used. Labour is free if you are on benefits; if you are not on benefits the labour charges are subsidised. If you think you are in need of the service, please contact the Accident Prevention Co-ordinator – Louise Mackenzie on 020 8206 7506 InLondon Counselling - a new concept in counselling! A low cost service in North West London providing one to one counselling at affordable rates. We accept referrals from individuals, health and social services. All counsellors are highly trained, experienced and supervised in line with the codes of practice of the British Association for Counselling & Psychotherapy (BACP). We provide ww Confidential low cost counselling & psychotherapy Wednesday 11th June 2014 6pm – 8pm ww Professional and safe codes of practice that adhere to The British Association for Counselling and Psychotherapy Registration & Refreshments from 5.15pm ww Counsellors who are trained, supervised and insured An opportunity for Carers to be involved, share your ideas and ask questions on the North West London 5 year Strategic health plans. The meeting will explore areas such as Health & Wellbeing, Integrated Care, Primary Care Transformation, Mental Health Services, Out of Hospital Strategies & more. ww Daytime and evening sessions from 9am until 8pm daily Carers and their dependents who have a physical disability are particularly encouraged to attend. BSL signers, text type and hearing loops will be available on the day. Costs: Initial assessment £15; each session thereafter £10 for unemployed or £25 for employed Venue: Bridge Park Community Leisure Centre, (Function Hall) Brentfield, Harrow Road, NW10 0RG Call: 020 3697 1187 Email: [email protected] www.inlondoncounselling.org Willesden Centre for Health & Care, Robson Avenue, NW10 3RY Service provided by Brent Bereavement Services RSVP: [email protected] or call 020 8795 6107 / 6122 ww From 1 month to 1 year’s counselling – 50 mins per session ww Short waiting list ww Self-referrals welcome 7 B R E N T C A R E R S’ W E E K Q U E ST AC T I V I T I E S 9 th - 1 5 th J U N E During this week Brent Carers’ Centre and our partners will also be participating in a range of outreach activities in the community to identify new carers in need of support. Carers’ Pampering Day Monday 9th June | 10am – 12.30pm Manicures, hand massage, make up and eye brow shaping at College of North West London, Wembley Carers’ Week Quest Launch Monday 2nd June | 11am – 2pm Guest speakers (lunch available) at Quality Hotel Wembley Empire Way, Wembley, Middx, HA9 ONH Brent Carers’ Centre 'Open Day' Wembley Thursday 5th June | 11am – 1pm An info sharing and networking event with lunch for professionals at Wembley Centre for Health & Care 116 Chaplin Road, Wembley HA0 4UZ T U E S DAY T H U R S DAY M O N DAY Due to the limited number of places, if you book an activity and do not attend without notifying us, you will be relegated to the bottom of the waiting list when booking future activities and will only be contacted if places are available. M O N DAY Places are limited so please call to book your place on your chosen event or activities. In order to allow as many carers as possible to participate in Carers’ Week Quest activities, we may have to limit the number of activities per carer, so please state your order of preference when booking. Self Care & Healing with Nutrition & Herbs Seminar Tuesday 10th June | 10am – 1pm An interactive seminar on the healing properties of food to stay healthy M O N DAY at Bridge Park Complex Brent Carers’ Centre 'Open Day' Willesden Monday 9th June | 11am – 1pm An info sharing and networking event with lunch for professionals Buy a Raffle Ticket at any of our Carer events for a chance to win £100 Cash • Bottle Champagne Hamper • Meal for 2 • plus many more great prizes! Tickets just £1 W E D N E S DAY at Willesden Centre for Health & Care Options Day Wednesday 11th June | 11am – 2pm Careers, Training, Volunteering and Employment Fair for Carers LEAP • Age UK Brent • Life Coaching Job Centre Plus • Brent Active Citizens • BACES at Bridge Park Complex 8 Thursday 12th June | 10am – 5pm | £5 pp Explore the world’s most famous botanical gardens with breathtaking landscapes & historic buildings S AT U R DAY T H U R S DAY Day Trip to Kew Gardens at Kew Gardens Tai Chi – Taster Session Saturday 14th June | 11am – 12noon Improve your heart health, balance, strength, flexibility and more at Wembley Centre for Health & Care - Gym Carers’ Pampering Day Thursday 12th June | 1.30 – 3.30pm Manicures, hand massage, make up and eye brow shaping S AT U R DAY T H U R S DAY Brent Carers’ Summer BBQ S U N DAY F R I DAY Afternoon Tea at The Grand Sala Room The Crown Moran Hotel, Cricklewood Jerk Chicken • Lamb, Beef & Veg Burgers Fish • Coleslaw • and a range of Summer Salads etc. Music & Dance too! at Brent Mencap’s Garden 379-381 High Road, Willesden, NW10 2JR at College of North West London, Wembley Friday 13th June | 3 – 5pm Enjoy a selection of fine teas, handmade scones with jam and clotted cream in a luxurious and relaxing setting Saturday 14th June | 1 – 4pm Entry Fee: £3 Adult, Young Carers Free Queens Park Open Gardens Sunday 15th June | 1pm – 6pm Ticket only event. More information at www.qpark.org.uk/open-gardens atNW6 9 COMMUNITY NEWS Brent Disability Information Gateway Brent Disability Information Gateway Empowering Brent people with disabilities aged 18 to 60 to access information and advice. The first place to look for signposting, information and advice for Brent people living with a disability, aged between 18 and 60, to access services that support and enhance their life. BDIG hold fortnightly Information Sessions about topics which affect you, as well as Focus Groups which are chosen by you. To check out bdig call 020 8451 5278 email: [email protected] or www.bdig.org.uk A new app for carers to help you in your caring role Jointly is an app developed by Carers UK that makes caring for someone a little easier, less stressful and a lot more organised by making communication and coordination between those who share the care as easy as a text message! Jointly works by enabling people to set up circles of care. A Jointly circle costs £2.99. Once you have purchased it and set up a Jointly circle, you can invite as many people as you want to share in the care of your loved one. Jointly has been designed in consultation with carers and brings together key features such as group messaging, profile and contacts pages, task allocation and calendaring and a dedicated medications list in a single tool. We’re giving away 50 Jointly apps for FREE! Brent Carers’ Centre will be giving away 50 Jointly apps to fifty lucky readers, randomly selected from a draw at our Carers’ Summer Barbecue on 14th June 2014. To enter simply call in with your full name, mobile telephone number and address. (Please note you will need to have a smart/android phone to use the app.) 10 Brent Mental Health User Group will be holding an Information and Participation Day Getting access to resources to improve your wellbeing – and improving services… Thursday 29th May 2014 Patidar House, London Road, Wembley from 10.30am – 4pm The aim of the day is to: Enable people in Brent to get together to identify a whole range of ways you enjoy spending your time. Enable you to identify your goals and different ways that you want to improve your life. Hear examples of the different creative ways individual using services in Brent are using self-directed support. Enable you to identify how you want to use self-directed support in order to develop your own application. Free Asian & Caribbean lunch provided. The New Rainbow Group Are you a woman aged 50+? Are you feeling isolated and looking for the company of others who understand? If so, we would be happy for you to join our friendly Women’s Group, which meets from 10am – 12.00 each Thursday in Willesden. We offer free tea and coffee, and a snack when you arrive. There is also an activity each week such as crafts, art, discussions, bingo, etc. This is an independent group run by volunteers. We meet at Brent Mencap, 379-381 High Road, Willesden, London NW10 2JR. (Near Willesden Bus Garage) A small charge of £3 per person is required to cover room hire. Interested? Do come along and try us out. No referral needed, just call Janet: 07977 457 116 or Ruth: 020 8903 1618 Buy a Raffle Ticket at any of our Carer events for a chance to win £100 Cash • Bottle Champagne Hamper • Meal for 2 • plus many more great prizes! Tickets just £1 M O N E Y M AT T E R S Personal Independence Payment Margaret Champney Fund Part of the Ogilvie Charities, the Margaret Champney Rest & Holiday Fund provides funds for rest and recuperative holidays. All carers are eligible to apply, particularly those caring for a severely disabled relative, who needs a break away from the person they are caring for. Occasionally, grants may be made to couples or adult family members where one is the primary carer for the other and they wish to holiday together. The grant is generally a one-off grant of between £200 and £300. The grants are not available towards ‘normal’ family holidays. Personal Independence Payment, commonly known as PIP, is the new benefit that replaced Disability Living Allowance (DLA) from April 2013. Anybody over 16 who wants to apply for DLA now has to apply for PIP. You can still claim DLA in respect of children under 16 years of age. PIP is based on an assessment of the individual’s needs rather than the impairment. Unlike the DLA criteria, PIP assessments will look at how the claimant’s disability / condition affects their daily living, looking at their ability to carry out a range of everyday activities. As part of the application process most people will be asked to attend a face-to-face consultation with an independent health professional, where they will be asked questions about their circumstances, health condition or disability and how theses affect their everyday life The Department of Work and Pensions (DWP) are introducing PIP in stages over the next few years. From October 2015 existing claimants will be contacted, inviting them to claim PIP. The DWP will write in plenty of time so there is no need to contact them now. If you would like more information or to better understand PIP telephone us to book your place on our course ‘Understanding Personal Independence Payments’ on Monday 15th September 2014. Disability Grants Are you a carer? Do you have a disability? Trying to find funding for a holiday, equipment, housing needs or days out may sometimes seems impossible. But there are organisations and charities that may be able to help. Disability Grants provides grant information on charities or trusts, locally or nationally, that could help you find a grant for yourself, your family or anyone you may be supporting who has a disability. Discover what is available in your area by searching the individual sections. For more information visit www.disability-grants.org If you need any more information or help filling out an application form, telephone us on 020 8795 6240. Please note as part of the application you will need to provide a brief summary of your circumstances. This will also include details of weekly income and expenditure, details of other agencies being approached for funding, who will care for the person while the break is being taken and the proposed holiday venue, date and likely costs. If you wish to apply please contact Brent Carers Centre on 020 8795 6240, and a member of our team will make an application on your behalf. Credit Union – My Community Bank As a carer, your finances are often stretched to the limits with little left over for savings. However a local credit union could be the answer you are looking for to help plan for the future. My Community Bank has grown out of a credit union called Brent Shrine Credit Union which was first formed in 1979 to serve people living or working in the London Borough of Brent. Your eligible deposits with My Community Bank are protected up to a total of £85,000 by the Financial Services Compensation Scheme, the UK’s deposit protection scheme. My Community Bank is ww Owned and controlled by its members ww It has no external shareholders taking profits ww Attractive savings rates ww Offer fair and reasonable loans The loans are designed for those who may struggle to get a loan from a high street bank, but who still have a fair credit profile. This means that you may have missed or been late with recent repayments, moved jobs or home frequently. You might live with your parents or carry a fairly high level of debt. If you can afford the repayments they will try and qualify you for a loan. If you wish to open an account simply contact My Community Bank on: 0207 389 0911 (10am - 4pm) or check out their website at www.mycommunitybank.co.uk 11 H E A LT H M AT T E R S MONEY MATTERS contd Travel Costs Reimbursement Fund Coming Soon – A Carers’ Counselling Service Brent Carers Centre is setting up a new counselling provision for Carers in Brent. We will shortly be appointing a team of experienced counsellors to offer one to one emotional support to carers. The service is being launched specifically to support carers who care for someone with a mental health condition, however appointments will be available to other carers too! Brent Carers’ Centre is pleased to launch the Travel Costs Reimbursement Fund for Carers of Mental Health Dependents This is a new fund for carers who care for someone with a mental health condition. We know that carers who care for someone with a mental health condition may have a lot of medical appointments to attend with their dependent, which can entail significant costs. This fund is designed to alleviate some of the high travel expenses incurred by carers. To claim reimbursement of travel expenses you must: 1. Be registered with Brent Carers’ Centre as a Carer of someone with a mental health condition, such as clinical depression, bi-polar, dementia etc. Our Carers’ Counselling Service will provide a confidential space for you to talk about any struggles or challenges, overwhelming experiences, setbacks or difficulties you are encountering in your caring role as well as other issues. With counselling you can be supported to understand any conflicts you may have and explore whatever options, choices, or personal goals you may have. Counselling can offer different perspectives, feedback or guidance, and opportunities to develop a greater understanding of who you are and to make sense of your life. Counselling looks in depth not only at the symptoms, but also at your core issues, the causes, and what these might mean for you. Some of the issues counselling can help you with: ww Adjusting to being a Carer ww Anger ww Bereavement ww Changes & transitions 2. Provide written proof on letterhead for each of your medical appointments for your dependent. ww The challenges of caring for someone with a mental health condition 3. Provide original receipts of travel expenses. ww Confidence & self esteem Travel expenses will be administered on a monthly basis. Each carer can claim up to £10 per trip maximum and up to 10 trips per annum, subject to availability of funds. Payments will be allocated on a first come first served basis. ww Control issues To claim reimbursement of travel expenses, call our office on 020 8795 6240 and ask for a Mental Health Travel Expenses Claim form. ww Coping with change, moving on, feeling empty ww Depression ww Difficult or overwhelming feelings emotional repression ww Guilt or resentment of your loved ones ww Isolation or loneliness ww Relationships ww Stress Buy a Raffle Ticket at any of our Carer events for a chance to win £100 Cash • Bottle Champagne Hamper • Meal for 2 • plus many more great prizes! Tickets just £1 12 This list is not exhaustive... and our counsellors will work with a wide range of issues. Counselling can help you develop the necessary strategies to work through problems. Our Carers’ Counselling Service is designed to enhance the emotional well-being of carers, enabling carers to cope better with the challenges you face. To find out more about our new counselling service please call us on 020 8795 6240. GP’s and Sharing Patient Information – You Have a choice! Health Checks Carers are known to suffer ill health that is directly linked to their caring responsibilities. Physical injuries, especially back injuries, due to lifting and moving are common. However, the main health risks come from the worry, anxiety, lack of sleep, exhaustion and depression that caring may bring. Also, carers often have to fight and battle for the support they get. All this can lead to high blood pressure and stress related illness. It is important that you visit your doctor regularly, and that you and your doctor have a clear picture of your health. It is also important that your GP knows you are a carer and understands the impact of caring on your health. You may have already heard that GP’s and NHS organisations are planning to share information about the care you have received as a patient with those who plan health and social care services, as well as with approved researchers and organisations outside the NHS, if this will benefit patient care. As a patient, you may receive care and treatment from a number of places such as your GP practice, hospitals and community services. By bringing this information together from all the different places they can compare the care provided in one area with the care provided in another, so that they can see what worked best. They will use information such as your postcode and NHS number to link your records from these different places. Records are linked in a secure system so your identity is protected. Details that could identify you will be removed before your information is made available to others, such as those planning NHS services and approved researchers. It is very important to note that your data will be uploaded for sharing unless you opt out by informing your GP. If you are happy for your information to be shared you do not need to do anything. There is no form to fill in and nothing to sign. And you can change your mind at any time. You may be worried that identifiable data may be misused. If you do not want information about you to be shared outside your GP practice, please ask the practice to make a note of this in your medical record. This note will prevent your confidential information from being used other than in special circumstances. Information from other places where you receive care, such as hospitals and community services, is collected nationally. You should also let your GP practice know if you want to prevent the information from those places being shared. Some GP practices offer Health Checks for carers. If your practice is not one of them, you could still benefit from other health programmes provided by the NHS. Everyone between the ages of 40 and 74 is invited (once every five years) to have a health check. It aims to help prevent heart disease, stroke, diabetes, kidney disease and certain types of dementia. If you have not had a health check within the last year please ask at your GP’s surgery. The NHS offers free Flu Vaccination to carers. It is recognised that due to caring 24/7, stress and exhaustion, carers’ immune systems might be weakened. Therefore, free flu vaccination is one way to maintain a carer’s health. It is important to have a good open relationship with your doctor. Tell your GP that you are in a caring role. GP practices have systems in place to record this information on a Carers Register. This information is beneficial to both you and the GP practice. For example, a GP practice might use its Carers Register to invite carers for a flu vaccination or a health check. On the other hand, carers know the people that they care for better than anyone else. This knowledge can be extremely useful in planning patient care, and also in identifying problems that may require intervention. Staying healthy is important for everyone, but especially important for carers. If you feel that your caring responsibilities are starting to have a negative impact on your health, seek help. You might benefit from extra support with caring tasks, respite service, counselling, training or emotional support. Brent Carers’ Centre has a draft letter template Carers may use to opt out of sharing your data. If you would like to use it, please call or email us to request a copy. There is an information line open Monday to Friday 8am – 8pm and on Saturdays from 9am – 3pm Call 0300 456 3531. A text phone service is also available on 020 8742 8620. Braille leaflets are available by calling 0300 456 3531. 13 S U P P O RT AC TYO I VU I TNI EGS C A R E R S Benefits for Young People A Young Carers profile There is a whole range of benefits which young people can claim but are unaware of their entitlements. Did you know? Depending on your situation, you may be entitled to claim Job Seekers Allowance, Income Support, Housing or Council Tax Benefit. If you are between the ages of 16-19 years old and estranged from your family or parents, you could be entitled to income support if you are in full time education. In addition to this if you have a successful claim for income support then you will be eligible to receive a full bursary. At the age of 16 you could be entitled to Carers Allowance if you care for someone who receives Disability Living Allowance, Attendance Allowance or Personal Independence Payments and not in education for more than 12 hours. To find out more about benefit entitlement for young carers, call our Young Carers Support Team on 020 8795 6240 Young Carers go Horse Riding On 11th April our staff took a group of young carers horse riding. They learnt how to look after, feed and groom horses, and spent the afternoon learning to ride them. It was a new experience for all the young carers who attended, which they all thoroughly enjoyed. Preety is an 18 year old teenager who has been a young carer for 11 years. I became a carer from the age of seven and caring my brother who is 11 and has several medical conditions as well as a learning disability. I spend a lot of time advocating for my brother and interpreting for my mum, who speaks very little English. Each week I attend school, but I have the added worry that if the transport that takes my brother to school, does not come on time then I have to make calls and communicate on his behalf. I need to be organised for myself and my brother because he may need to go on a school trip and I need to support my mum to ensure all his needs met. Because my brother also has medical appointments, I have to attend to support my mum, which means that I may miss school and have to catch up on my school work and homework. It has been difficult to switch off and be a normal teenager as I have the responsibilities that other young people of my age do not have. It’s also difficult to trust other young people and open up about the problems I have to cope with and face. The role as a carer will always impact upon my life as I have to make my decisions with my brother and mum in mind at all times. An example of this is I cannot board away from home for university, as my mum would struggle to cope without my support for my brother. The support I have received from Brent carers, is meeting up with other young carers, having day trips out, attending activities, and going to support groups. I may even be lucky enough to receive a grant towards driving lessons. Brent young carers learning how to groom horses I have found Brent carers so helpful to me, as they are able to give advice a guidance, and I have found this to be a wonderful outlet, to have time for me. My advice for other young carers “ is you are not alone. ” I think the support already on offer for Carers and young carers is already very good, for example Brent Carers are providing a day trip to St Leonards at the end of May and as a family we are all able to attend, including my brother this will be a really nice day out, that all of us can treasure. Brent carers is very important because we get to find out what is out there and offer for the carer and the young carers. I feel at ease knowing that there is some form of support out there for people like myself. (Names have been changed for anonymity) 14 S U P P O RTS AC T I E AC S TIVITIES U PTPI VOIRT Carers’ Music Group Yoga for Carers Day | Tuesday Frequency | Fortnightly Time | 1pm – 2.30pm Location | Willesden, NW10 Phone us on 020 8795 6240 to make your appointment. Absolute beginners welcome. You too can play tunes and read music. We have recorders to lend but you are welcome to bring any instruments you wish: clarinet, banjo, guitar, violin… Day | Thursday Frequency | Weekly Time | 11.30 am – 1pm Location | Stonebridge NW10 No previous experience required Wear comfortable clothing, be ready to work in bare feet; Taught by a former carer who knows the benefits of yoga, especially in reducing stress Carers’ Book Club Relaxation Therapies for Carers Day | Tuesday Frequency | Monthly (2nd Tue) Time | 11am – 12.30pm Location | Wembley Central Phone us on 020 8795 6240 to make your appointment. Do you love reading? Love talking about books? Then come along to Brent Carers’ Book Club. Its a fun, friendly and informal place to meet other carers and talk about books and reading. Day | Thursday Frequency | Weekly Time | 1pm – 5pm (individual 45min sessions) Location | Wembley Central Fee | £2.00 per person Phone us on 020 8795 6240 to make your appointment. Massage, Indian Head Massage and Reflexology are currently available. We are always looking for more volunteers to ease the strains of caring. If you would like to join us or would like more information, please contact Brent Carers’ Centre 020 8795 6240. USEFUL NUMBERS Brent Mind 020 7604 5177 Brent Out of hours Social Services 020 8937 5250 Brent Samaritans 020 8961 6181 Carers UK 0808 808 7777 Citizens’ Advice Bureau (Brent) 0845 050 5250 Crossroads Care West London 020 8728 7000 Culture Dementia UK 0800 014 8682 Debt Advice Foundation 0800 043 4050 Addaction 020 8459 9510 Age UK Brent 020 8965 7711 Asian People with Disabilities Alliance 020 8459 1030 Asian Women’s Resource Centre 020 8451 3822 Brent African & Caribbean Disabled People’s Association 020 8963 1731 Brent Bereavement Service 020 8459 6818 Elders’ Voice 020 8968 8170 Brent Council – Customer Services 020 8937 4300 Jewish Care 020 8922 2000 Brent Community Law Centre 020 8451 1122 NHS 111 Brent Indian Association 020 8903 3019 NHS Direct 0845 46 47 Brent Irish Advisory Service 020 8459 6655 1Voice Parent Group 020 3556 0983 Brent Mencap 020 8451 5278 The Junction Drug & Alcohol Service 020 8961 7007 FEEDBACK | COMMENTS | COMPLAINTS If you have attended an event or use our service and would like to give feedback anonymously you can do so online, just select the relevant address and type the address to complete an evaluation form, it takes only a few minutes: If you have a comment, compliment or complaint about any of our services, then please contact Anne-Marie Morris by email: [email protected] or call 020 8795 6240 Young Carer Services www.surveymonkey.com/s/BrentYCServices Young Carer Activitieswww.surveymonkey.com/s/BrentYCActivities Adults Carers Serviceswww.surveymonkey.com/s/BrentCarerServices Adult Carer Activitieswww.surveymonkey.com/s/BrentCarersActivities 15 C A R E R S’ AC T I V I T I E S YOUNG CARERS’ ACTIVITIES Month June 2014 July 2014 August 2014 September 2014 CARERS’ TRAINING & ACTIVITIES Month Date & Time Details Location Saturday 21st 2pm Theatre “Thriller” The Lyric Theatre 24th-25th Age 16-25 only Further education, careers, apprenticeships – Overnight Break. University of Nottingham Monday 28th 10.45am - 2pm Basic First Aid Training Willesden Centre for Health & Care Robson Avenue, Willesden NW10 Thursday 31st 9am – 6pm Day Trip to Bournemouth Seaside Meeting Point: Craven Park, Harlesden Tuesday 12th Narrow Boat Trip TBC Thursday 21st Cinema Trip Royal Leisure Park Western Avenue, Park Royal, W3 0PA Saturday 20th 1-3pm Young Carers’ Forum & Lunch Wembley Centre for Health & Care 116 Chaplin Road, Wembley HA0 4UZ TBC Bowling Royal Leisure Park Western Avenue, Park Royal, W3 0PA Date & Time Details Location Carers Week: A week full of activities events to raise awareness & identify new and hidden carers. See Pages 8 & 9 Carbs & Fats – Follow Up on Diabetes Awareness Session for Carers Monks Park Primary Care Centre Harrow Road, Wembley, HA9 6JE Friday 11th 11am – 1pm Back to Work workshop for carers. Wembley Centre for Health & Care 116 Chaplin Road, Wembley HA0 4UZ Thursday 31st Day Trip to Bournemouth Seaside Bournemouth Friday 8th 9.45am-1pm Basic 1st Aid Wembley Centre for Health & Care 116 Chaplin Road, Wembley HA0 4UZ Thames Cruise with Lunch / Cost £5 Embankment Pier 9-15th June 2014 Tuesday 1st 10am-12.30pm July 2014 August 2014 Thursday 14th 11.15am – 2pm Monday 15th Understanding the new Personal 9.30am–1.30pm Independent Payments September 2014 Friday (TBC) Thursday 25th Wembley Centre for Health & Care 116 Chaplin Road, Wembley HA0 4UZ Social Media for Carers Print Unlimited Queens Parade Willesden Green Day Trip to the City of Bath Bath Places for all the above are limited so will be offered on a first come first served basis. To confirm your attendance at any one of our activities, please call us on 020 8795 6240 Help us reduce our carbon footprint and save money Brent Carers’ Centre Wembley Centre for Health & Care 116 Chaplin Road, Wembley, Middlesex HA0 4UZ With limited funding available we are committed to looking at ways to save costs where we can, reducing the use of paper to save trees as well reducing our carbon footprint. Tel: 020 8795 6240 Fax: 020 8795 6250 Email: [email protected] Website: www.brentcarerscentre.org.uk You can help too by opting to receiving our newsletter by email, rather than by post. To do so, please call or email us and request that our newsletter is sent to you by email. Opening Times: Mon to Fri: 9.00am – 5.30pm Wed: 9.00am – 8pm Last Saturday in every month: 12noon – 4pm Thanking you in advance for your support and co-operation 16 .com/Brent Carers Centre .com/Brent Young Carers .com/Brentcarer Charity No: 1066691 Limited Co. No: 3354038
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