Health Information Resources for Health
Information Resources for
Patients
Will Olmstadt, MSLS, MPH, AHIP
Office of Faculty Affairs Series
October 14, 2010
Will Olmstadt
Disclosure of Interest
l
f
• Research
Research support: none
support: none
• Objective: to demonstrate credible web health information resources for aging patients
g gp
• Speakers bureau: none
Clinical trials: none
• Clinical trials: none
• Consultant: none
I own no stocks or equity in any pharmaceutical
• I own no stocks or equity in any pharmaceutical company
Goals
• Free, credible online sources
Free credible online sources
– Children & adolescents
– Senior citizens
Senior citizens
•
•
•
•
Low‐literacy
Limited English Proficiency
Evaluating materials
“How‐to” write materials
Terms
• Consumer
Consumer health information: any health information: any
information that people need to make 1
informed decisions about their health
informed decisions about their health
• Patient education: The process of influencing patient behavior and
influencing patient behavior and producing changes in knowledge, attitudes and skills needed to maintain
attitudes, and skills needed to maintain 2
or improve health
Terms
• Plain
Plain language
language or Plain English: or Plain English:
communication your audience can understand the first time they read or
understand the first time they read or 3
hear it
Terms
• Low
Low literacy: literacy: “an
an inability to read, write, inability to read write
4
and use numbers effectively.”
• Limited English proficiency (LEP): Limited English proficiency (LEP): “…not not
able to speak, read, write, or understand the English language at a level that
the English language at a level that permits them to interact effectively with 5
health care providers ”
health care providers.
MedlinePlus.gov
• Major revision
Major revision in July 2010
in July 2010
– Still a leading portal for health web sites
– General arrangement
General arrangement
• Topic pages
Drugs & Supplements
• Drugs & Supplements • Video & multimedia items
Kids Health.org
Kids Health.org
• Nemours
Nemours Center for Children
Center for Children’ss Health Health
Media
– 700,000+ visits per weekday
700 000+ visits per weekday
– Specific entry points for
• Children
• Teens
• Parents
NIH Senior Health
NIH Senior Health
• NIH Senior Health.gov
NIH Senior Health gov
– Began March 2002
– Extensively tested with adults age 60‐88
Extensively tested with adults age 60 88
– Text magnification
– High contrast
Hi h
t t
– Some web pages “speak”
– Trainer’s Toolkit
T i ’ T lki
Low‐literacy
Low
literacy sources
sources
Source
URL
MedlinePlus Easy‐
to‐Read (5th‐8th gr.)
http://www.nlm.nih.gov/medlineplus/all_easytoread.html
MedlinePlus
Tutorials (5th‐6
Tutorials (5
6th gr.)
gr )
http://www.nlm.nih.gov/medlineplus/tutorial.html
National Center for Farmworker Health
http://www.ncfh.org/?pid=154
FDA For Consumers
FDA For Consumers
http://www fda gov/ForConsumers
http://www.fda.gov/ForConsumers
NIDDK Easy‐to‐
Read
http://www2.niddk.nih.gov/HealthEducation/HealthEzToRead
NIMH Easy‐to‐Read
asy to ead
http://www.nimh.nih.gov/health/publications/easy‐to‐read.shtml
ttp://
.
. .go / ea t /pub cat o s/easy to ead.s t
Limited English Proficiency
Limited English Proficiency
Source
URL
Medline Plus Multiple Languages
http://www.nlm.nih.gov/medlineplus/lang
uages/languages.html
Healthy Roads Media
http://www.healthyroadsmedia.org
Refugee Health Information Network
http://rhin.org/health_info.aspx
Health Information Translations
http://www.healthinfotranslations.com
CDC Multiple Languages
CDC Multiple Languages
http://www.cdc.gov/other/languages
p //
g /
/ g g
SPIRAL
Selected Patient Information in Asian Languages
http://spiral.tufts.edu/topic.shtml
Evaluating Sources
Evaluating Sources
Evaluating Sources
Evaluating Sources
• GATOR
6
– Genuine: Beware of redirects to sales sites
– Accurate: Surf current, reviewed sites
Accurate: Surf current reviewed sites
– Trustworthy: Look for references and dates
– Origin: Look for reliable sources
O i i L kf
li bl
– Readability: Average citizen’s understanding
Childhood obesity sites
Childhood obesity sites
Child Fun site
hild
i
or
Kids Health site for parents
Writing your own
Writing your own
Source
URL
Medline Plus “How to”
http://www.nlm.nih.gov/medlineplus/etr.h
tml
NCI Clear and Simple
http://www.cancer.gov/cancertopics/canc
erlibrary/clear and simple
erlibrary/clear‐and‐simple
Simply Put from the CDC
http://www.cdc.gov/healthmarketing/pdf/
Simply_Put_082010.pdf
Working with Low‐Literacy Seniors
Working with Low‐Literacy Seniors
http://www.cpha.ca/uploads/portals/h
http://www
cpha ca/uploads/portals/h‐l/l‐
l/l
l‐seniors_e.pdf
Plain Language for HIPAA Notices
http://www.hrsa.gov/servicedelivery/lang
uage.htm
A to Z of Alternative Words
http://www.plainenglish.co.uk/files/altern
ative.pdf
Consumer Health Guide
Consumer Health Guide
http://beckerguides.wustl.edu/consumer
Don’tt Forget
Don
Forget
St. Louis Children’s St
L i Child ’
Hospital
Family Resource Center
Room 3S‐12 314 454 2350 314‐454‐2350
Presenter
Will Olmstadt
Will
Ol t dt
Becker Medical Library
314‐362‐4734 [email protected]
General inquiries to Becker Library
General
inquiries to Becker Library
[email protected]
References
1.
2.
3.
4
4.
5.
6.
Toronto Public Library, http://chis.wikidot.com/faq‐consumer‐health, accessed 13 Oct 2010
American Academy of Family Physicians, http://www.aafp.org/online/en/home/policy/policies/e/educationpatie
nt html accessed 13 Oct 2010
nt.html, accessed 13 Oct 2010
PlainLanguage.gov, http://www.plainlanguage.gov/whatisPL/index.cfm, accessed 13 Oct 2010
Pignone M et al (2005) Interventions to improve health outcomes for
Pignone M. et al. (2005) Interventions to improve health outcomes for patients with low literacy. Journal of General Internal Medicine 20: 185‐
192
Office of Civil Rights (2000) Federal Register 65(159): 52762‐52774
Weber B. et al. (2010) Educating patients to evaluating web‐based health care information: the GATOR approach to healthy surfing. Journal of Clinical Nursing 19: 1371‐1377