Welcome
1
Patient rights
2 Hospital amenities
• Meals, snacks and drinks
• Family resources and play spaces
•Maps
•Pharmacy
• Online resources
13 Visitor information
•Parking
• Free shuttles
• Public transportation
19 Culture of care
25 Getting ready to leave
26 Privacy practices
Patient rights
and responsibilities
We will...
• Tell you who we are and what we’re doing
• Tell you what is happening before, during and after treatment
• Provide an interpreter at no cost to you
• Give you the information you need to make decisions about treatment
• Honor your right to refuse treatment or services as the law allows
• Give instructions for how to care for your child at home
To serve you better, please...
• Tell us everything you know about your child’s health
• Tell us what your child and your family need
• Tell us if your child has pain — we will respond as quickly as possible
• Let us know if we were not clear with the information or instructions
you received
• Let us know if you need help understanding your bill and
financial responsibilities
• Let us know if you need access to your child’s medical records
As a partner in your child’s care, we...
• Honor your central role in your child’s care
• Respect that you know your child best
• Welcome your questions about your child’s care
• Respect your spiritual and cultural needs
• Value your privacy and confidentiality
Hospital amenities
We hope to make your stay as comfortable
as possible. Please ask your nurse or Family
Services about even more resources and ways
we can help.
Location
Hours
Visiting
hours are
10 a.m. to
8:30 p.m.
Phone
Meals, snacks and drinks
For a menu book with restaurants in the area, ask your nurse or the unit secretary.
Room Service
Family and friends can
purchase guest trays
Sky Café
Ask for
menu
11th floor
(cafeteria)
7 a.m. to 7:30 p.m.
Call 1.2345
from your room
phone to order
Monday–Friday
Breakfast: 6:30–10 a.m.
Lunch: 11 a.m.–2 p.m.
Dinner: 5–7 p.m.
Late Night: 11 p.m.–4:30 a.m.
(closed from 2–3 a.m.)
Saturday and Sunday
Breakfast: 6:30–9 a.m.
Lunch: 11 a.m.–1 p.m.
Dinner: 5–7 p.m.
Streeter Café
(coffee, snacks)
1st floor
Monday–Friday
6:30 a.m.–6 p.m.
We promote health and wellness by:
• Providing healthier food choices on our patient menu
• Offering “comfort” food as an option for patients
• Making sure that patients on special diets have plenty
of good food choices, too!
Hospital amenities
2
HOSPITAL AMENITIES
Location
Hours
Phone
ATM
11th floor
24 hours
NA
U.S. Bank
12th floor
Monday, Tuesday,
Wednesday, Friday
8 a.m.–4 p.m.
312.640.6001
Hospital resources
Thursday
7 a.m.–4 p.m.
Foundation office
12th floor
9 a.m.–5 p.m.
312.227.4352
Gift Shop
11th Floor
Monday–Friday
8 a.m.–8 p.m.
312.227.3400
Saturday–Sunday
10 a.m.–7 p.m.
Laundry
12th Floor
Ask your nurse for more information.
Optical Shop
4th floor
By appointment
312.227.6180
Walgreens
3rd Floor
Monday–Friday
8 a.m.–8 p.m.
Saturday
9 a.m.–3 p.m.
312.573.2287
Public spaces
Crown Sky Garden
Eco-friendly bamboo
planters provide an
outdoor-like respite
from the hospital setting.
Pedestrian bridge
to parking and Prentice
Women’s Hospital
3
Hospital amenities
11th floor
2nd floor
Hours
Phone
12th
Floor
24 hours
312.227.3288
All
inpatient
floors
24 hours
NA
Monday–Thursday
9 a.m.–5 p.m., 6–8:30 p.m.
Friday
9 a.m.–5 p.m.
Saturday–Sunday
9 a.m.–5 p.m.,
closed Noon–1 p.m.
312.227.3940
Family spaces
Chapel
Anne Searle Bent
Interfaith Chapel
HOSPITAL AMENITIES
Location
Family Great Rooms
A community kitchen,
dining and respite space
for families and visitors
on the floor. Each great
room has:
––Vending machines
––Refrigerator
––Microwave
––Eating area
––Television
Family Life Center
––Business center
and computers
––Free parent massages
––Quiet room for parents
––Teen lounge
––Toys, games and books
––Playgroups:
During the hours
listed, patients in
the appropriate age
ranges may be dropped
off for a playgroup.
12th
Floor
Developmental Playgroup (ages 3 to 12)
Monday–Thursday
10–11:30 a.m. • 2–4 p.m. • 6:30–8:30 p.m.
Friday 10–11:30 a.m. • 2–4 p.m.
Teen Lounge (ages 13 and up)
Monday–Thursday
10–11:30 a.m. • 1:30–4:30 p.m. • 6:30–8:30 p.m.
Friday 10–11:30 a.m. • 1:30–4:30 p.m.
Developmental Playroom (ages 0 to 36 months)
Monday–Friday: 10–11:30 a.m.
School Room (ages 4 and up)
Monday–Thursday
10–11:30 a.m. • 1:30–3:30 p.m. • 6:30–8 p.m.
Friday 10–11:30 a.m. • 1:30–3:30 p.m.
(Walk-in hours as staffing permits.
Bedside appointments also available.)
Hospital amenities
4
HOSPITAL AMENITIES
Location
Patient and family education
12th Floor
Hours
Phone
10 a.m.–4 p.m. 312.227.0036
Pedersen Family Learning Center
and Eleanor Clarke Learning Library
––A space to learn and reflect
––Consumer health education resources
––Support groups
––Education classes on health and
safety topics
Ronald McDonald House
near Lurie Children’s
Sometimes the drive home can still
be too long or too difficult. Ronald
McDonald House near Lurie Children’s,
located just a few blocks away from
our hospital, gives patient families
priority access to its 86 rooms, rooftop
healing deck and kitchens, among other
amenities. The Ronald McDonald House
is available to families who live more
than 10 miles away from the hospital.
WE RECYCLE!
All recyclables are sorted out
of the trash cans by our wastehandling company after the
trash leaves the hospital.
LET’S BE GREEN —
TOGETHER!
One way to be environmentally
friendly is by limiting the extra
linen provided in each room.
For your convenience, we have
added hooks in the shower
area for hanging and reusing
towels. With these small steps,
together we can make an
everyday impact. We are happy
to provide additional bed linen
or bath towels; please just ask.
5
Hospital amenities
211 E.
Grand Ave.,
Chicago
24 Hours
For a referral
to the Ronald
McDonald
House, please
ask to see your
social worker.
Dial 9 and then
the number to make
local calls from your
Quick Reference
room phone.
Phone List
Free wi-fi (wireless network
connections)...... Look on Get Well Network
Main hospital
number/operator.................312.227.4000
Insurance and billing .......... 877.924.8200
Interpreting services............ 312.227.3290
Patient Relations................. 312.227.4940
Security.................................312.227.4222
Skylight TV call in
(from your room phone) ..................... 1.1111
Heliport
23 Mechanical Equipment
22 Faculty Offices
21 Acute Care Unit
20 Acute Care Unit
19
Epilepsy | Research | Inpatient Rooms
18
17
Hematology/Oncology | Faculty Offices
HOSPITAL AMENITIES
Floor guide
Hematology/Oncology | Faculty Offices
16 Pediatric Intensive Care Unit
15 Comprehensive Cardiac Care Unit
14 Neonatal Intensive Care Unit
12 Family Life Center | Chapel | Family Learning Center | Patient Services*
11 Conference Rooms | Cafeteria | Gift Shop | Sky Lobby | Sky Garden
10 Mechanical Equipment
9 Support Services | Pharmacy
8
7
6
5
4
Pathology and Lab Services | Child and Adolescent Psychiatry
Surgical Services | Outpatient Clinics
Surgical Services | Anesthesiology
Interventional Radiology | Faculty Offices | Bridge to Prentice
Medical Imaging | Diagnostics | Audiology | Rehab | Outpatient Clinics
3
2
1
Emergency Care Center | Concierge | Bridge to Parking Garage and Prentice
B
Mechanical Equipment
Diagnostics | Outpatient Clinics | Walgreens Pharmacy
Loading Dock | Ambulance Dock | Main Entrance | Streeter Café
• *Patient Services includes Admitting, Family Services and Patient Relations.
Hospital amenities
6
HOSPITAL AMENITIES
Floor 1 map
Driveway
Valet
Drop-off
Shuttle
Drop-off
Area
N
7
Hospital amenities
HOSPITAL AMENITIES
Floor 2 map
Staff &
Service
Elevators
F: B–23
Reception
Desk
Bridge to Prentice
Women’s Hospital
Garage for Families/Visitors,
Valet Pickup and Bridge
to Northwestern
FLOOR 2 LEGEND
N
• All visitors must check in and check out
at the Reception Desk.
• If you parked in a garage, please make sure
to validate your parking at the second floor
reception desk before or after your visit.
• Please note, patients may not leave the
floor without permission from their nurse
and may not leave the hospital building
during their stay.
Hospital amenities
8
HOSPITAL AMENITIES
Floor 11 map
Robert R. McCormick Foundation Auditorium
Faculty Practice Plan Conference Room
Tower
Elevators
Sky $
Lobby
Elevators
Check-in
Desk
FLOOR 11 LEGEND
$
N
• Sky Lobby elevators
go to floors 2 through 11.
• Tower elevators
go to floors 11 through 22.
9
Hospital amenities
HOSPITAL AMENITIES
Floor 12 map
Ronald McDonald
House Family
Sleep Rooms
Tower
Elevators
F: 11–22
Firetruck
Treehouse
Foundation
Office
FLOOR 12 LEGEND
N
$
Hospital amenities
10
HOSPITAL AMENITIES
Pharmacy
Walgreen’s Pharmacy at Lurie Children’s........................................................312.573.2287
3rd floor
Monday–Friday 8 a.m.-8 p.m., Saturday 9 a.m.-3 p.m.
Walgreens pharmacy specializes in pediatric medicine
working closely with your child’s clinical team to ensure your
child receives the medications needed to get well and stay well.
• Fill prescriptions before you leave by stopping at the pharmacy on the 3rd floor
or have your child’s prescription brought to the bedside
• Get help managing medication costs
• Enjoy unique pediatric services
–– Family friendly pharmacy design, games and internet
–– Medication flavoring
–– Pediatric-trained pharmacists
–– Medication compounding
• Transition from hospital to home
–– Easy prescription transfer: Switch your child’s medication to the pharmacy
in your neighborhood
–– 24/7 pharmacist support: Available at 1.800.WALGREENS (925.4733)
or via online chat at walgreens.com
Online resources
Lurie Children’s MyChart
Lurie Children’s MyChart gives you safe, secure online access to portions
of your child’s electronic medical record (EMR). MyChart allows you to:
• Review medications, immunizations, allergies and medical history
• See test results
• View a summary of current health issues
Use the secure message center to:
• Communicate with your child’s healthcare provider
• Request an appointment or view upcoming appointments
• Request a prescription refill
MyChart is not meant to replace the advice given to you by your
pediatrician or family practitioner, and should not be used to
diagnose a health-related problem or to substitute for medical care.
Sign up for MyChart online at: mychart.luriechildrens.org/MyChart
Questions? Call 866.804.1755 or e-mail [email protected]
11
Hospital amenities
HOSPITAL AMENITIES
Online resources (continued)
Get Well Network
Find important information about the
hospital, watch educational videos and
movies, and stay connected to family
and friends using Get Well Network.
You can access the Get Well Network
system on the television in your room
and click on the icons below:
Hospital: Information about Lurie Children’s such as
visiting hours, hospital events and things to do before you go home
Satellite dish: Access the internet, stay connected through email
and instant messenger
Roller coaster: Play games, make your own web page, listen to
music and more
Movie theater: Find on-demand Hollywood movies, health education
and safety movies
Restaurant: Information on hospital meals and food available
for patients, parents and guests
Parents button: Information about the hospital, patient bill of rights,
services, parental controls and educational materials
Pay Bills
You now have the option to pay your medical bills online via our secure portal at
luriechildrens.org/paymybill.
If you’re not sure which medical group sent the bill, compare your bill from the five
options listed below. The name of the medical group is shown in the top left of your bill.
• Lurie Children’s Hospital Services
• Lurie Children’s Medical Group
• Pediatric Faculty Foundation
• Pediatric Anesthesia Associates
• Children’s Surgical Foundation
Hospital amenities
12
VISITOR INFORMATION
Visitor information
Parents and legal guardians are welcome throughout the child’s
stay. Our goal is to make certain that our patients are safe and
avoid possible exposure to germs — which is why we have
policies around who can visit.
Who is welcome
at the bedside
at any time?
• For patients under 18 years of age:
–– Parents
–– Legal guardians
–– Other guardian or caregiver the patient lives with
• For patients 18 years and older: Main support
individuals chosen by the patient
How is the
parent or legal
guardian identified?
A special band, called a “parent band,” given by the
patient’s nurse. Always wear this band and show it to
the concierge desk as you enter the building or floor.
May I spend the night?
• Yes, parents and legal guardians may spend the night
• A social worker is available to address any questions
about where you might stay
• A Ronald McDonald House is close by for families
living more than 10 miles away
Be with your child as much as you can — it helps your
child feel comfortable and secure. Please tell us when
you leave and how we can reach you.
May others visit?
What about
brothers and sisters?
• Visiting hours are 10 a.m. to 8:30 p.m.
• Please reference your floor’s visiting policy
for more information
Children under the age of 12
may not visit patients in isolation.
Lurie Children’s is a SMOKE-FREE FACILITY.
Please do not smoke in or near the building.
13
Visiting your child
• Your nurse will work with you to determine the number of
How many people
may visit at once?
family members or visitors who can safely be in the room
• We want to make sure a patient gets the rest needed
• We want to make sure other patients get the rest
they need
The nurse may limit visiting if there is too much noise
for the patient to rest.
PLEASE NOTE:
To protect your child,
we limit visitors during
flu season or if there
is a communicable
disease outbreak.
May I bring in
food and drink
for my child?
our patients. Any person who acts in a way that could be
harmful to patients, other families or staff will be asked
to leave
• Visitors who are ill or becoming ill (cough, runny nose,
fever, vomiting, diarrhea or rash) or who have recently
been exposed to a communicable illness should not visit
VISITOR INFORMATION
• We maintain a safe and calm healing environment for
Do you ever
restrict visitors?
• Ask your child’s nurse before bringing in any food
to your child
–– Your child may be on a special diet
–– Your child may be scheduled for a test
• If your nurse says you may bring in food for your child:
–– Do not store leftovers. Food should be eaten
or discarded
–– Do not share food with other patients or staff
Anything else I
can do to keep
my child healthy?
• Do not visit your child if you are sick
• Ask others who are sick not to visit your child
• Wash your hands before you enter the patient’s room
and as you leave
• Wear a mask if you have a cough or running nose and
please let your child’s nurse know
We respect the diversity of our families and visitors and do not
discriminate with regard to race, color, age, sex, sexual orientation,
gender identity or expression, disability, religion or national origin.
Visiting your child
14
Parking
VISITOR INFORMATION
Huron-Superior Garage A
• Connected by a bridge on the 2nd floor to Lurie Children’s
• Enter on Huron Street or Superior Street east of St. Clair Street
• Up to 7 hours for $11 and 7–24 hours for $15 with validation
• Validate at Lurie Children’s 2nd floor security desk
Families and visitors also can park at Erie-Ontario Garage C
and D (321 E. Erie Street) a few blocks away with a validated
ticket for the same rates as the Huron-Superior A Garage.
Valet parking (available for emergencies or for children with disabilities)
• Monday–Friday, 5:30 a.m. to 9 p.m.
• Enter the driveway from Chicago Avenue to drop off and pick
up your car up across the pedestrian bridge on the 2nd floor
• Up to 7 hours for $15 and 7–24 hours for $20.
Street parking
• Free with disabled parking placard*
• $7 for two hours regular rate, two-hour limit
• Meters accept credit/debit card and quarters only
* Free with special designated placard that is gray with yellow stripes.
Out-of-state disabled placards are not exempt and must pay regular rate.
Other parking tips
• Ask family/friends to take your car home if it is not being
used each day
• Parking fees begin each time car enters lot; no re-entries
• Discuss other remote parking and long-term transportation
strategies with your social worker or Family Liaison volunteer
after arriving at the hospital
15
Visiting your child
Free shuttles
Between main hospital and outpatient center in Lincoln Park
• Available Monday through Friday, 6 a.m. to 6 p.m. about every
20 minutes; then 6 p.m. to 8 p.m. about every 60 minutes.
The last shuttle leaves Lurie Children’s at 8:10 p.m.
minutes and Sunday at 7 p.m. only.
• Two wheelchair-accessible shuttles available approximately
every 40 minutes
• Main hospital pick-up/drop-off is at the southeast
(Superior Street) corner of the main hospital driveway
• Outpatient center pick-up/drop-off is curbside at 2515 N. Clark Street
VISITOR INFORMATION
• Available Saturday from 8 a.m. to 4 p.m. about every 60
Between main hospital and Ronald McDonald House (RMH)
• Available Monday through Sunday, 7 a.m. to 11 p.m. about
every 30 minutes
– Rides are available between 11 p.m and 7 a.m. by asking
a security officer
• Main hospital pick-up/drop-off is at the southeast
(Superior Street) corner of the main hospital driveway
• RMH pick-up/drop-off is curbside at 211 E. Grand Avenue
Visiting your child
16
Seneca
Playlot
Park
VISITOR INFORMATION
Seneca
Playlot
Park
Lake Shore
Park
HuronSuperior
Garage
A
HuronSuperior
Garage
A
ErieErieOntario Ontario
Garage C Garage D
Ronald McDonald House®
and Almost Home Kids™
Ronald McDonald House®
and Almost Home Kids™
Parking
Parking
Bus stop
Train stop
17
Visiting your child
N
Bus stop
Train stop
N
Taking public transportation
Chicago Transit Authority (CTA) trains
• Red Line Chicago stop: Chicago Avenue and State Street
• Brown Line Chicago Stop: Chicago Avenue and Franklin Street
• Purple Line Chicago stop: Chicago Avenue and Franklin Street
Stopping at Chicago Avenue and Mies van der Rohe Way
(in front of Lurie Children’s):
• #3 - King Drive (north bound and south bound)
• #10 - Museum of Science and Industry (north bound)
• #26 - South Shore Express (south bound)
• #66 - Chicago Avenue (west bound and east bound)
• #125 - Water Tower Express (North Bound)
• #157 - Streeterville/Taylor (East Bound)
VISITOR INFORMATION
CTA buses
(Union Station to Lurie Children’s)
Stopping at Michigan Avenue and Huron Street
• #143 - Stockton/Michigan Express
• #146 - Inner Drive/Michigan Express
• #147 - Outer Drive Express
• #148 - Clarendon/Michigan Express
• #151 - Sheridan (Lurie Children’s to Union Station)
For more information
about bus or train routes,
call 312.836.7000 or
visit rtachicago.com
Visiting your child
18
Culture of care
Your care team
You are an important member of your child’s care team.
Together, many specially trained people care for your child.
Medical team
19
Attending physicians
(gray coats)
• Are in charge of your child’s care
• See your child every day
• Talk with you about your child’s care
• Answer your questions
Advanced
practice nurses
(APNs, white coats)
• See your child everyday
• May examine your child
• Talk with you about your child’s care
• Answer your questions
Nursing leader
• Helps coordinate and provide your child’s daily care
• Is a Registered Nurse (RN) and member of the leadership team
• May have the title manager, director, educator or charge nurse
Nurses
(colorful scrubs or
white coats)
• Provide care and monitor your child’s vital signs
• Answer your questions
• Teach you how to care for your child
Residents, fellows
and medical students
(short white coats)
• Doctors-in-training and students who work closely with your
Others who may
be part of your
child’s team
• Registered dieticians (RDs) help patients eat the right foods
Culture of care
child’s attending physicians
• May examine your child
• May ask and answer your questions
in the right proportions
• Pharmacists are professional with in-depth knowledge about
medications used to control a patient’s symptoms
• Respiratory therapists help patients breathe and specialize in
the heart and lungs
• Speech/Physical/Occupational therapists specialize in the
assessment and treatment of motor skills, communication
skills, hearing, feeding and swallowing
What it means for your child’s care
Treatment
in a teaching
hospital
Educating physicians and nurses is part of our mission, and we
are the pediatric teaching hospital for Northwestern University
Feinberg School of Medicine. That means that our hospital is a site
for graduate medical education, which is the last training phase
for physicians who have successfully completed medical school.
Family Services team
Child Life specialists
312.227.3270
Creative Arts therapists
312.227.3289
Interpreting Services
312.227.3290
• Help the family get ready for a medical procedure
• Explain what happens in the hospital
• Use play, art or music to help exploration and growth
• Can explain something to you in your own language
• Communicate with you and your healthcare team to
ParentWISE and
PeerWISE volunteers
(Ask your nurse to contact)
• ParentWISE is a parent-to-parent volunteer program
• PeerWISE is a peer-to-peer volunteer program
• Both provide support through volunteers who have
experienced illness and hospitalization
School Services
312.227.3353
• Help your child keep learning during hospitalization
• Help with homework
• Answer questions about school-related issues
312.227.1200
• Help your family address a problem
• Can help you follow your child’s medical plan
• Provide help if your family does not feel safe at home
Spiritual Care Services
Call the operator and ask
to page a chaplain (7.3288)
• Talk with you about “Why is this happening to us?”
• Provide a priest, pastor or rabbi to talk to
• Provide a prayer, blessing, Bible or Sabbath candles
Other Services
Find additional family services and resources under
Amenities on page 4.
Social Workers
CULTURE OF CARE
remove language barriers
Our volunteers provide play
activities for kids, respite support for parents,
help finding your way around the hospital and more —
just look for the volunteer uniform and ID badge.
20
Keeping your child safe
CULTURE OF CARE
You are a member of your child’s healthcare team and you know
your child best. Please speak up any time you have a question.
Tell
us
anything you want to about…
Ask
us
anything you want to about…
Other
ways
to keep your child safe
• Your child’s symptoms
• Your child’s medications
• Your child’s medical history
• Your child’s allergies (food or medicine)
• Anything you feel is important about your child’s care
• Your child’s medicines
• Your child’s medical equipment
• Your child’s caregivers and their names
• Anything that doesn’t feel right about your child’s care
• Know that you can speak to your doctor at any time
• Make sure you and your child wear your ID bands at all times
• Give us a list of your child’s medications
• Put up crib rails and side rails
• Ask a nurse before giving your child food or taking your child
out of the room
• Ask your doctors, nurses and other staff for their names and
what they’re doing
• Report any problems your child is having
• Let us know if you leave the floor
PLEASE NOTE: Patients may not leave the floor without
permission from their nurse and may not leave the hospital
building during their stay.
21
Culture of care
Reducing the risk of infection
We are committed to your child’s health and safety. By washing
your hands and keeping things in the room clean, together we
can stop the spread of germs.
Wash your hands
• Wash or gel your hands when you enter your child’s room
• Wash your hands with soap and water after changing your
child’s diaper
• Tell us if your caregiver is not cleaning his/her hands
• Have your child wash his/her hands before each meal and after
using the bathroom
• Make sure your visitors — adults and kids, including siblings —
wash/gel their hands before entering your child’s room
• Cover your nose and mouth or your child’s nose and mouth
with a tissue if you or your child coughs or sneezes
–– Promptly throw the tissue in the trash and clean your hands
–– Use the crook of your arm if tissue is not available
CULTURE OF CARE
Stop the spread of germs
• Do not let individuals who are ill (cough, runny nose, fever,
vomiting, diarrhea or rash), or have been recently exposed
to someone who is ill, visit your child
• Notify your child’s caregivers immediately if you become
ill — so your child and other children in the same area can
be protected
• Follow all signs for infection control posted outside your child’s
hospital room
–– Children under the age of 12 may not visit patients
in isolation
• Do not allow family/friends to touch your child’s catheters,
other tubes, dressings or wounds
Keep clean
• Make sure that blankets, stuffed animals or other patient items
from home are clean or recently washed
• Follow your nurses’ specific instructions if your child is going
to surgery — usually the instructions request that you bathe or
clean your child before going to surgery
Culture of care
22
Managing pain
Managing your child’s pain is a very important part of your
child’s care. We work hard to help your child feel better,
and use many different ways to relieve pain.
• Have a parent or another adult with them
• Ask questions if they don’t understand
• Tell us when and where something hurts
• Ask for something to make the pain better
• Be mad, if it makes them feel better
If your child feels
pain, you can...
• Let your nurse know so we can help
• Ask for a child life specialist
• Ask for tips and tricks to help your child manage pain, such as:
–– Stay near your child’s face to comfort and redirect their
CULTURE OF CARE
Children can...
attention toward you
–– Help your child choose a more comfortable position
–– Encourage your child to hold your hand, squeeze your
hand and look at you
–– Ask your child to think about a favorite thing, place
or person
––
––
––
––
23
Culture of care
Tell funny stories or jokes and sing songs
Watch a movie
Listen to music
Play a game
Making difficult medical decisions
If you need to make hard decisions about your child’s
care, ethics consultants can help. These specially-trained
professionals respect your personal and spiritual values,
and can help you make difficult medical choices.
• Talk through options
• Clarify goals for your child’s care
• Know that your child’s caregivers understand what you want
Talk to an
ethics consultant
when you...
• Are unclear about what to do next for your child
• Have doubts about the best healthcare decision
• Examples may include when you:
–– Disagree with doctors about the best treatment
–– Struggle with a treatment that might save your child’s life
but also causes pain and suffering
–– Don’t know if you should decide to stop a treatment
–– Question how much to share with your child
or family members
CULTURE OF CARE
Working with an
ethics consultant
can help you...
–– Are unsure if organ donation conflicts with your beliefs
–– Need help with end-of-life issues
If you would like
an ethics consultation,
you can talk it over
with any member of
your healthcare team
or ask to speak to an
ethics consultant.
Culture of care
24
Getting ready to leave
When your child is ready to leave the hospital, we can help.
Let us know how we can make your transition as easy
as possible.
When can we leave?
Families may leave after your child’s attending physician
gives you an okay and your nurse reviews the discharge
instructions with you.
Who helps us plan? • Your healthcare team develops a discharge plan
to ensure proper care for your child
• Case managers also help coordinate care
What do case
managers do? • Work with your child’s entire healthcare team
• Discuss how to take care of your child at home
• Arrange for special equipment and services, if needed
Before we go home,
what should we do?
• Speak up and ask any questions about your
GETTING READY TO LEAVE
25
child’s care
• Arrange for a ride home
• Have a car seat for your child (if traveling by car)
• Understand all instructions about your child’s:
–– Medications
–– Diet
–– Special equipment
–– Follow-up care
–– Home health
–– Other support services
Getting ready to leave
Privacy practices
If you have any questions about this Notice, please contact our
Privacy Office at Lurie Children’s, 225 East Chicago Avenue,
Chicago, IL 60611-2991 or by phone at 312.227.4000.
Notice of privacy practices
This notice describes how medical information about
you may be used and disclosed and how you can get
access to this information. Please review it carefully.
This Notice of Privacy Practices (“Notice”) describes
how we may use and disclose patient information for
treatment, payment or healthcare operations and for
other purposes that are permitted or required by law.
It also describes a patient’s, parent’s, legal guardian’s,
or other authorized personal representative’s rights
to access and control of patient information. “Patient
information” is information that may identify the patient
and that relates to the patient’s past, present or future
physical or mental health or condition and related
healthcare services or payment for such services.
Generally, when this Notice uses the words “you” or
“your” it is referring to the patient who is the subject of
patient information. However, when this Notice discusses
rights regarding patient information, including rights to
access or authorize the disclosure of patient information,
“you” and “your” may refer to a minor-patient’s parent(s),
legal guardian or other personal representative, or, as
applicable, an adult patient’s personal representative.
If you have any questions about this Notice, please
contact our Privacy Office at Ann & Robert H. Lurie
Children’s Hospital of Chicago, 225 East Chicago Avenue,
Chicago, Illinois 60611-2991 or by phone at 312.227.4679.
Who will follow this Notice
Any healthcare professional authorized to enter
information into your medical record and all employers,
staff, and other personnel will follow the terms of this
Notice. In addition, these entities, sites and locations may
share patient information with each other for treatment,
payment or healthcare operation purposes described
in this notice.
Our pledge regarding patient information
We understand that patient information about you and
your health is personal. We are committed to maintaining
the confidentiality of patient information. We create
records of the care and services you receive in our facility
and payment for the care and services. We need these
records to provide you with quality care and to comply
with certain legal requirements. This Notice applies to
patient information and the records of your care and
payment for your care.
This Notice tells you about the ways in which we may
use and disclose patient information about you. It also
describes your rights and certain obligations we have
regarding the use and disclosure of patient information.
We are required by law to:
•Assure that patient information that identifies you
is kept confidential in accordance with law;
•Give you this Notice of our legal duties and privacy
practices with respect to patient information;
•Follow the terms of this Notice or, if this Notice
is later revised, a future notice then in effect; and
•Notify you in the event of a breach of your
patient information.
Changes to this Notice
we reserve the right to change this Notice. We reserve
the right to make the revised or changed Notice effective
for patient information we already have about you as
well as any information we receive in the future. We will
post a copy of our current Notice of Privacy Practices
in Ann & Robert H. Lurie Children’s Hospital of Chicago’s
inpatient admission and outpatient registration
departments (including Outpatient Centers), and on
our website at luriechildrens.org. Upon your request
to our Privacy Office, we will provide you a revised Notice.
Notice of privacy practices
PRIVACY PRACTICES
This Notice describes the privacy practices of Children’s
Hospital of Chicago Medical Center, Ann & Robert H. Lurie
Children’s Hospital of Chicago, Stanley Manne Children’s
Research Institute, Pediatric Faculty Foundation, Inc.,
Children’s Surgical Foundation, Inc., Pediatric Anesthesia
Associates, Ltd., Lurie Children’s Medical Group, LLC,
Almost Home Kids, Lurie Children’s Health Partners
Care Coordination, LLC, and their physicians, nurses,
other personnel and business associates (collectively,
“we” or “us.”) It applies to services provided to you at
the following locations in Chicago, Illinois: Ann & Robert
H. Lurie Children’s Hospital of Chicago, Ann & Robert H.
Lurie Children’s Hospital of Chicago Outpatient Centers
in Lincoln Park and Uptown, and our outpatient services
offered in Lincoln Square and Lakeview. It also applies
to our outpatient centers in Arlington Heights, Glenview,
New Lenox, Lake Forest, Westchester, and Winfield, our
outpatient services offered in Gurnee and Grayslake, and
Almost Home Kids locations in Naperville and Chicago.
26
Complaints
If you believe your privacy rights have been violated, you
may file a complaint with us or with the director of the
Office for Civil Rights of the U.S. Department of Health
and Human Services. Upon request, Patient Relations will
provide you with the correct address of the director. To
file a complaint with us, please contact Patient Relations
at 312.227.4940. We will not retaliate against you or end
our services to you if you file a complaint with us or the
director of the Office of Civil Rights.
How we may use and disclose your
patient information
The following categories describe different purposes for
which we may use and disclose your patient information
without the specific written authorization of you (or your
parent or other personal representative). We explain each
category of use or disclosure below and include examples,
but we do not list every use or disclosure in a category.
However, for certain other activities and purposes, we
must obtain your written authorization to use or disclose
your patient information. For instance, we will obtain
written authorization before disclosing any of your
patient information when required by law, including
laws providing extra protection for information or records
about HIV/AIDS testing, mental health or developmental
disability services, alcohol or drug abuse treatment
services, genetic testing, child abuse or sexual assault.
Treatment: We may use patient information about you
to provide you with treatment services, for example, to
diagnose or treat your injury or illness. We may disclose
patient information about you to physicians, nurses,
counselors, or other treatment personnel who are
involved in taking care of you. Our different treatment
areas may share patient information about you in order
to coordinate the different services you need, such as
prescription drugs, lab tests, or radiology tests. We also
may disclose patient information about you to healthcare
providers outside our facilities and offices who are
involved in your treatment.
PRIVACY PRACTICES
Payment: We may use and disclose patient information
about you so that the treatment and services you receive
may be billed to and payment may be collected from you,
a health insurance company, another health plan or other
third party responsible for paying for your treatment.
For example, we may need to give your health plan
information about treatment you received so your health
plan will pay us or reimburse you for your treatment.
We may also contact your health plan about a treatment
you are going to receive to obtain prior approval or to
determine whether your plan will pay for the treatment.
Healthcare operations: We may use and disclose your
patient information for our healthcare operations, which
include internal administration and planning and various
activities that improve the quality and cost effectiveness
of the care that we deliver to you. For example, we
may use patient information to evaluate the quality
and competence of our physicians, nurses and other
treatment personnel. We may disclose patient
information to our Patient Relations representatives
in order to resolve any complaints you may have and
ensure that you have a comfortable visit with us.
27
Notice of privacy practices
Appointment reminders: We may also use and disclose
patient information to contact you as a reminder that
you have an appointment or missed an appointment
for treatment in order to reschedule the appointment.
Treatment follow-up alternatives: We may use and
disclose patient information to tell you about or
recommend possible continuing care options that
will benefit you.
Research: We may use or disclose your patient
information without your authorization if our Institutional
Review Board approves a waiver of authorization. If a
waiver has not been approved, your written authorization
will generally be required before your health information
is used for research.
Directory of individuals in Ann & Robert H. Lurie
Children’s Hospital of Chicago : We may include your
name, location in Ann & Robert H. Lurie Children’s
Hospital of Chicago , general health condition and
religious affiliation in a patient directory unless you
object to inclusion in the directory or are located on
a unit which indicates you are receiving treatment for
a mental illness or developmental disability. Unless
you request restrictions on the disclosure of directory
information, it may be disclosed to anyone who asks
for you by name or members of the clergy; provided,
however, that the religious affiliation will only be
disclosed to members of the clergy.
Relatives, close friends, and other caregivers: If we
(1) obtain your agreement; (2) provide you with the
opportunity to object to the disclosure and you do not
object or (3) reasonably infer that you do not object to the
disclosure, we may disclose your patient information to a
family member, other relative, a close personal friend or
any other person identified by you when you are present
for, or otherwise available prior to, the disclosure.
If you are not present or in the case of your incapacity
or an emergency, we may exercise our professional
judgment to determine whether a disclosure is in
your best interests and then disclose only information
that we believe is directly relevant to the person’s
involvement with your healthcare or payment related
to your healthcare.
We may also disclose your patient information in order
to notify (or assist in notifying) your caregivers of your
location, general condition or death. For instance, in the
event of a disaster, we may disclose your location, general
condition or death to a disaster relieve organization so
that it may notify your caregivers of such information.
Philanthropic communications: In the continuing effort
to enhance Ann & Robert H. Lurie Children’s Hospital
of Chicago ‘s capacity to conduct its mission of service
to children and families periodic communications and
invitations to consider philanthropic support may be
sent to patient families and friends of the hospital.
In connection with any such communication or request,
we may use demographic information, information
about the department of service and treating physician,
health insurance status, and dates on which we
provide healthcare to you or your child or disclose
that information to Ann & Robert H. Lurie Children’s
Hospital of Chicago Foundation or its related
philanthropic organizations. You have the right
to opt out of receiving such communications.
Marketing: We will obtain your written authorization
before using patient information about you to send you
any marketing materials. However, we may provide you
with marketing materials in a face-to-face encounter
and/or give you a promotional gift of minimal value.
We may also communicate with you about products
or services relating to your treatment, care settings or
alternative therapies.
As required by law: We will disclose patient information
when required to do so by federal, state or local law.
To avert a serious threat to health or safety: We may
use and disclose patient information about you when
necessary to prevent a serious threat to your health and
safety or the health and safety of the public or another
person. Any disclosure, however, would only be to
someone able to help prevent or avoid the threatened
or imminent harm.
Workers’ compensation: We may release patient
information about you to comply with state laws
regulating workers’ compensation or similar programs
providing benefits for work-related injuries or illness.
Public health activities: We may disclose patient
information about you for public health activities
authorized or required by laws. These activities
include disclosures:
•To public health authorities to prevent or control
disease, injury, or disability
•To report child abuse or neglect to the Department
of Children and Family Services
•To report reaction to medication or problems
with products to the United States Food and
Drug Administration
•To notify a person who may have been exposed to a
disease or may be at risk for contracting or spreading
a disease or condition
Health oversight activities: We may disclose patient
information to a health oversight agency for activities
authorized by law. These oversight activities include,
for example, audits, investigations, inspections,
and licensure. These activities are necessary for
the government to monitor the healthcare system,
government programs, and compliance with civil
rights laws.
Lawsuits and disputes: If you are involved in a lawsuit
or a dispute, we may disclose patient information about
you in response to a proper court order, subpoena,
or other lawful process from someone else involved
in the dispute.
Specialized government functions: Under limited
circumstances authorized by law and for national
security and intelligence purposes, we may release
patient information about you to authorized federal
government officials for intelligence, counterintelligence,
and other national security purposes.
Organ and tissue procurement: We may disclose your
patient information to organizations that facilitate organ,
eye, or tissue procurement, banking, or transplantation.
Community Connect Health Information Exchange: We,
along with certain other healthcare providers and practice
groups in the area, participate in a health information
exchange operated by Lurie Children’s (the “Exchange”).
The Exchange facilitates the electronic sharing and
exchange of medical and other individually identifiable
health information regarding patients among healthcare
providers that participate in the Exchange. Through the
Exchange, we may electronically disclose demographic,
medical, billing, and other health-related information
about you to other healthcare providers that participate
in the Exchange and request such information for
purposes including but not limited to facilitating or
providing treatment, arranging for payment for healthcare
services, or otherwise conducting or administering their
healthcare operations.
CareEverywhere®: We have a software product
called CareEverywhere® that allows us to exchange
health information with other providers that have
the CareEverywhere® product. The CareEverywhere®
exchange facilitates the electronic sharing and exchange
of medical and other individually identifiable health
information regarding patients among healthcare
providers who also have the CareEverywhere® software.
Through the software CareEverywhere®, we may
electronically disclose demographic, medical, billing,
and other health-related information about you to other
healthcare providers that participate in the Exchange
and request such information for the purposes including
but not limited to facilitating or providing treatment,
arranging for payment for healthcare services, or
otherwise conducting or administering their healthcare
operations. Due to our participation in the Exchange, your
electronic health information from our practice may be
made available to other providers through Lurie Children’s
shared electronic medical record.
Illinois Health Information Exchange EHR connect: Your
electronic medical records may be shared with the Illinois
Health Information Exchange (ILHIE). The ILHIE facilitates
the electronic exchange of electronic health information
among healthcare providers that participate in the
ILHIE, and with the ILHIE Authority, for the purposes
including but not limited to facilitating or providing
treatment, arranging for payment for healthcare services,
or otherwise conducting or administering healthcare
operations. Participation is voluntary, unless required
by law. The ILHIE is helpful if you require treatment at
other participating healthcare facilities in Illinois because
it enables other facilities to obtain your medical history
and coordinate care.
Illinois Immunization Registry: We may disclose
information concerning your immunization records to the
Illinois Department of Public Health (“IDPH”) for inclusion
in a centralized database of children’s immunization
records. Such information may be used by IDPH, public
vaccine providers, community health centers, the
Notice of privacy practices
PRIVACY PRACTICES
Law enforcement: We may release patient information
about you to the police or other law enforcement officials
if the release is required or allowed by applicable law
or to comply with a proper court order, grand jury or
administrative subpoena or similar legal process.
Medical examiners: We may also release patient
information about a decedent to a coroner or medical
examiner. This may be necessary, for example, to identify
a deceased person or determine the cause of death.
28
Centers for Disease Control and Prevention, or any other
person or entity providing immunization services or
approved by IDPH as needing to know your health or
immunization status. Such information may be used by
these recipients to: provide immunization services to you;
monitor your immunization status; promote adherence
to recommended immunization schedules; assist in the
preparation of vaccination documentation required by
your school; prepare statistical reports on immunization
status of groups of patients in which neither you nor
any other patient may be individually identified; and
otherwise monitor and promote your health and the
health of children in Illinois generally. You have the
right to opt out of participating in this registry.
Your rights regarding patient information
about you
Right to inspect and copy: you have the right to inspect
and obtain a copy of patient information within your
medical and billing records and other records used to
make treatment or payment decisions about you.
Under limited circumstances, we may deny you access
to a portion of your records.
You have a right to obtain a copy of your medical
records in electronic format and, if you choose, to direct
Ann & Robert H. Lurie Children’s Hospital of Chicago
to transmit an electronic copy of your medical records
directly to an entity or person designated by you.
To inspect or obtain a copy of your medical records or
other records used to make treatment decisions about
you, you must submit your request to the Ann & Robert H.
Lurie Children’s Hospital of Chicago Health Information
Management Department. To inspect or obtain a copy
of your Ann & Robert H. Lurie Children’s Hospital of
Chicago billing records, you must submit your request to
the Ann & Robert H. Lurie Children’s Hospital of Chicago
Patient Financial Services Department. To inspect or
obtain a copy of another provider’s billing records about
you, you must submit your request to that provider’s
Patient Financial Services Department. If you request a
copy of your records, we may charge a reasonable fee in
accordance with Illinois law for the costs of copying and
mailing them.
PRIVACY PRACTICES
Right to amend: If you feel that any of the patient
information that we maintain in your medical and billing
records and other records used to make decisions about
you is incorrect or incomplete, you may request that we
amend the information.
29
To request an amendment to patient information in your
medical records or other records used to make treatment
decisions about you, you must make your request in
writing, include a reason in support of your request and
submit the request to the Ann & Robert H. Lurie Children’s
Hospital of Chicago Health Information Management
Department. To request an amendment to patient
information in your Ann & Robert H. Lurie Children’s
Hospital of Chicago billing records, you must make your
request in writing, include a reason in support of your
request and submit the request to the Ann & Robert H.
Lurie Children’s Hospital of Chicago Patient Financial
Services Department. We will comply with an amendment
request unless we believe that the information that would
be amended is accurate and complete or other special
circumstances apply.
Notice of privacy practices
Right to an accounting of disclosure: You have the
right to request an “accounting of disclosures.” This
is a list of certain disclosures we have made of your
patient information. We are not required to account
for all disclosures, such as, disclosures for your
treatment, to obtain payment for treatment or our
healthcare operations.
To request this accounting of disclosures, you must
submit your request in writing, to the Ann & Robert H.
Lurie Children’s Hospital of Chicago Health Information
Management Department. Your request must state a
time period which may not be longer than six years and
may not include dates before April 14, 2003. The first
accounting you request within a twelve-month period is
free of charge. For additional accountings, we may charge
you for the costs of providing the list. We will notify you
of the cost involved and you may choose to withdraw
or modify your request at that time before you can incur
any costs.
Right to request confidential communications: You
have the right to request that we communicate with you
about medical manners in a certain way or at a certain
location. For example, you may ask that we only contact
you at work or by mail. We will not ask you the reason
for your request. We will accommodate only reasonable
requests. Your request must specify how or where you
wish to be contacted.
Right to a paper copy of this Notice: You have the right
to a copy of this Notice. You may request a copy of this
Notice at any time from our Privacy Office.
Right to request restrictions: You have the right to
request a restriction on the patient information we use or
disclose about you for treatment, payment or healthcare
operations. You also have the right to request a limit on
the patient information we disclose about you to a family
member or someone else who is involved in your care or
the payment for your care. Finally, you have the right to
request a restriction on the patient information that we
may use or disclose to notify or assist in the notification
of your caregivers regarding your location and general
condition. While we will comply with your request to
the extent required by law and consider all requests for
additional restrictions carefully, we are not required to
agree to requested restrictions, except in the case of
disclosure to a health plan for purposes of carrying out
payment or healthcare operations, where the patient
information pertains solely to a healthcare item or
service for which we have been paid out-of-pocket
in full. If we do agree, we will comply with your request
unless the information is needed to provide you
emergency treatment.
Right to revoke your authorization: You may revoke any
written authorization that you have given us to authorize
our use or disclosure of your patient information, except
to the extent that we have acted upon it. A form of
written revocation is available from us upon request.
Outpatient
service locations
Interpretation request
Point to your language and an interpreter will be called for you.
Lincoln Park
Arlington Heights
Geneva
Grayslake
Lake Forest
Lincoln Square
New Lenox
Northbrook
Uptown
Westchester
Winfield
Lurie Children’s
has expanded:
Town & Country
Pediatrics is now
Lurie Children’s
Primary Care – Town
& Country Pediatrics
Welcome
1
Patient rights
2 Hospital amenities
ED & APP
VED
RO
REVIEW
• Meals, snacks and drinks
• Family resources and play spaces
•Maps
•Pharmacy
• Online resources
By Families
Ann & Robert H. Lurie
Children’s Hospital of Chicago
225 East Chicago Avenue
Chicago, Illinois 60611-2991
312.227.4000
luriechildrens.org
It is the policy of Children’s Hospital of Chicago Medical Center not to
discriminate with regard to race, color, age, sex, sexual orientation, gender
identity or expression, disability, religion or national origin in the treatment of
patients and their families.
You may contact Lurie Children’s Patient Relations: 312.227.4940; Illinois
Department of Public Health: 525 W. Jefferson St., 5th Floor, Springfield, IL
62761, 800.252.4343 (24-hour hotline) or 217.782.2913; The Joint Commission:
Division of Accreditation Operations, Office of Quality Monitoring, One
Renaissance Boulevard, Oakbrook Terrace, IL 60181, 800.994.6610.
13 Visitor information
•Parking
• Free shuttles
• Public transportation
19 Culture of care
25 Getting ready to leave
26 Privacy practices