A A R P CaregivingS urvey:O pinions and ExperiencesofP uertoR ico R egistered VotersA ge45 and O lder R eportP repared by JoanneBinette O ctober2014 © Copyright 2014 AARP AARP Research 601 E Street NW Washington, DC 20049 www.aarp.org/research/ Reprinting with Permission 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 1 2014 AARP Caregiving Survey: Opinions and Experiences of Puerto Rico Registered Voters Age 45 and Older Puerto Rico registered voters age 45+ want to live independently at home for as long as possible with the help of family caregivers. They strongly support having community services that will enable people to remain in their own homes as they age. Ove rfouri n fi ve (87%) Pue rto Ri co re gi s te re d vote rsage 45+ say th e y want to receive care for themselves or their loved ones at home with caregiver assistance wh e n th e b asi c tas ksof li fe b e com e m ore di ffi cult due to agi ng ori llne ss. o Th e vast m ajori ty of Pue rto Ri co re gi ste re d vote rsage 45+ say sit is extremely or very important to have services that allow people to stay in their own home asth e y age (88%) and m ore resources and training forfam i ly care gi ve rs(89%). o Pue rto Ri co re gi ste re d vote rsage 45+ b e li e ve it is extremely or very important to have strong community supports to h e lp p e op le re m ai ni n th e i rown h om e asth e y age i ncludi ng h om e h e alth care se rvi ce s(93%), transp ortati on se rvi ce sforse ni ors(92%), and ce ntrally locate d i nform ati on forcare gi ve rs(90%). Y e t, le ssth an h alf re p ortsth e p re se nce of th e se com m uni ty se rvi ce s: transp ortati on (45%), h om e h e alth care se rvi ce s(44%), and ce ntrally locate d i nform ati on forcare gi ve rs(31%). Ove rth re e -fourth s(77%) of Pue rto Ri co re gi ste re d vote rsage 45+ are currently providing or have provided unpaid care to an adult loved one wh o i si ll, frai l, e lde rly orh asa p h y si calorm e ntal di s ab i li ty . Two-th i rds(66%) of Pue rto Ri co re gi ste re d vote rsage 45+ say it is likely that they will provide unpaid care to an adult loved one in the future. o Ne arly all(93%) Pue rto Ri co care gi ve rsage 45+ b e li e ve it is extremely or very important to be able to provide care so that their loved ones can keep living independently in their own home. o Ab out fouri n fi ve of th e s e care gi ve rsare h e lp i ng orh ave h e lp e d wi th m e als(81%) and ch ore s (80%). o At le ast th re e i n fi ve are helping or have helped with more complex tasks li ke m e di cati on m anage m e nt (77%) and oth e rnursi ng and m e di caltas ks(59%). Th e vas t m ajori ty of Pue rto Ri co re gi ste re d vote rsage 45+ sup p ort p oli cy ch ange sto ai d fam i ly care gi ve rsasth e y h e lp th e i rolde rlove d one sre m ai n at h om e . o Most (87%) Pue rto Ri co re gi ste re d vote rsage 45+ b e li e ve it is extremely or very important to provide short-term help to allow family caregivers to take a break from their caregiving duties. o Th e vast m ajori ty (92%) of Pue rto Ri co re gi ste re d vote rsage 45+ supports a proposal to allow registered nurses with advanced training, who often visit older people in their homes, to serve as the primary or acute care provider of record for a patient. o Ne arly allPue rto Ri co re gi ste re d vote rsage 45+ strongly support proposals that would help family caregivers when their loved ones go into hospitals: More th an ni ne i n te n support requiring hospitals to explain and demonstrate medical tasks th at fam i ly care gi ve rswi llne e d to p e rform afte rth e p ati e nt re turnsh om e (97%), keep family caregivers informed of medical decisions regarding the patient (96%), and record the family caregiver’s information in the patient’s medical record (93%). Th i sAARP te le p h one surve y on care gi vi ng wasconducte d am ong Pue rto Ri co re gi s te re d vote rsage 45 and olde r. Th e surve y wasfi e lde d from Se p te m b e r18th to Octob e r5th , 2014. A totalof 700 i nte rvi e wswe re com p le te d and th e sam p le waswe i gh te d to re fle ct th e age and ge nde rof th e p op ulati on age 45 and olde ri n Pue rto Ri co. Th e m argi n of sam p li ng e rrorforth i srandom sam p le i s±3.8 p e rce nt. An annotate d surve y of th e we i gh te d re sp onse sb e gi nson p age 11 followe d b y a de tai le d de s cri p ti on of th e m e th odology . 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 1 DETAILED FINDINGS Living Independently The vast majority (87%) of Puerto Rico registered voters age 45+ wants to receive care for themselves or their loved ones at home with caregiver assistance when the basic tasks of life become more difficult due to aging or illness. Where Do Puerto Rico Registered Voters Age 45+ Want to Live When Basic Life Tasks Become More Difficult? (n=700, All Respondents) In an assisted living facility 5% At home with caregiver assistance 87% In a nursing home 6% No sure/no answer 2% The vast majority of Puerto Rico registered voters age 45+ believes it is extremely or very important to have services that allow people to stay in their own home as they age for as long as possible (88%) and more resources and training for family caregivers so they can continue to help their loved ones live independently (89%). Importance of Having Services that Allow People to Stay in Their Own Homes as They Age Importance of Having More Resources and Training for Caregivers (n=700, All Respondents) (n=700, All Respondents) Extremely/ very important 88% Somewhat important 10% Not very/not at all important 1% Not sure/no answer 1% Extremely/ very important 89% 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Somewhat important 8% Not very/not at all important 2% Not sure/no answer 1% Page 2 Puerto Rico registered voters age 45+ believe it is important to have strong community supports to help people remain in their own homes as they age. Th e top two com m uni ty s up p ortsth at are e x tre m e ly orve ry i m p ortant com m uni ty se rvi ce sto Pue rto Ri co re gi ste re d vote rsage 45+ are h om e h e alth care se rvi ce s(93%) and transp ortati on se rvi ce sfor s e ni ors(92%). As e cond ti e rof i m p ortant com m uni ty se rvi ce sre late sto s up p ort forfam i ly care gi ve rs. Th e large m ajori ty say si ti se x tre m e ly orve ry i m p ortant to h ave ce ntrally locate d i nform ati on forfam i ly care gi ve rs(90%) and b re aksforfam i ly care gi ve rs(89%). A th i rd ti e rof se rvi ce sre late sto di re ct sup p ort forolde radultsli vi ng i nde p e nde ntly . Ove rfouri n fi ve s ay h avi ng se ni orce nte rs(89%), h ouse ke e p i ng s e rvi ce s(88%), and h om e de li ve re d m e als(85%) i n th e i rcom m uni ti e si se x tre m e ly orve ry i m p ortant. Community Services of Importance to Puerto Rico Registered Voters Age 45+* (n=686, All Respondents) Home health care services 45% Transportation services for seniors 43% 48% 49% A central place for caregivers to go get information and resources 38% 51% Breaks for family caregivers 36% 53% Senior Centers 35% 54% Housekeeping services for older persons 37% 51% Home delivered meals 33% 0% 52% 20% 40% Extremely important 60% 80% 100% Very important *Th e que s ti on wassh orte ne d afte rth e fi rs t 13 i nte rvi e wsdue to ti m e cons trai ntsso th e we i gh te d n i s686. Although universally considered important to Puerto Rico registered voters age 45+, fewer than half reports the presence of community services that enable independent living. Alth ough th e p re se nce of com m uni ty se rvi ce si ss om e wh at low th e re i sm ore li ke li h ood th at com m uni ti e sh ave transp ortati on (45%), se ni orce nte rs(45%), and h om e h e alth care se rvi ce s(44%). Only ab out a th i rd say ss e rvi ce sth at di re ctly h e lp olde rp e rsonse x i st i n th e i rcom m uni ty : h om e de li ve re d m e als(37%), and h ouse ke e p i ng se rvi ce s(35%). Se rvi ce sth at sup p ort fam i ly care gi ve rsare e ve n le ssli ke ly to e x i st i n com m uni ti e s: ce ntrally locate d i nform ati on forcare gi ve rs(31%) and b re aksforfam i ly care gi ve rs(21%).. Presence of Community Services* (n=686, All Respondents) Transportation services for seniors 45% Senior Centers 45% Home health care services 44% Home delivered meals 37% Housekeeping services for older persons 35% A central place for caregivers to get information and resources 31% Breaks for family caregivers 21% 0% 20% 40% 60% 80% 100% *Grap h sh owsre sp onde ntswh o ch e cke d “y e s”unde re ach ty p e of com m uni ty se rvi ce . Th e que s ti on wassh orte ne d afte rth e fi rst 13 i nte rvi e wsdue to ti m e constrai ntsso th e we i gh te d n i s686. 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 3 Health care providers are the top sources for information on community services as most Puerto Rico registered voters age 45+ say they would turn to their doctors (94%) and hospitals (89%) for this type of information. Inform aland soci alne tworksare jus t som e wh at le ssli ke ly to b e nam e d asa source of i nform ati on: s e ni orce nte rs(84%), fam i ly orfri e nds(82%), and ch urch e s(73%). Of th e source sof i nform ati on avai lab le to th e ge ne ralp ub li c, gove rnm e nt age nci e s(83%) are m ore li ke ly to b e use d th an th e p h one b ook or(72%) orth e Inte rne t (51%). Source Used to Find Information about Community Services to Help People Remain in Their Homes as They Age (n=700, All Respondents) Doctor or other health care providers 94% Hospitals or other health care facilities 89% Senior Centers 84% Government agencies 83% Family or friends 82% Churches 73% The phone book 72% The Internet 51% 0% 20% 40% 60% 80% 100% *Grap h sh owsre sp onde ntswh o ch e cke d “y e s”unde re ach ty p e of i nform ati on source . 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 4 Family Caregivers Most (77%) Puerto Rico registered voters age 45+ are providing or have provided unpaid care for their loved ones and the majority is also likely to provide unpaid care in the future (66%). More th an th re e -quarte rsof Pue rto Ri co re gi ste re d vote rsage 45+ say th e y are curre ntly p rovi di ng unp ai d care (30%) orh ave p rovi de d unp ai d care (47%) foran adult love d one wh o i si ll, frai l, e lde rly , orh asa p h y si calorm e ntaldi sab i li ty . Th e ave rage age of th e p e rson th e y are cari ng fororh ave care d fori s78 y e arsold. More ove r, two-th i rds(66%) of Pue rto Ri co re gi ste re d vote rsage 45+ re p ort th at th e y are li ke ly to p rovi de unp ai d care to an adult love d one i n th e future . Th e ave rage age of Pue rto Ri co care gi ve rsi s62 y e arsold and th e m ajori ty i sfe m ale (58%), m arri ed (50%), h asa two y e arcolle ge de gre e orh i gh e r(53%), re ti re d ornot i n th e lab orforce foroth e r re as ons(65%), and h asan annualh ouse h old i ncom e of le ssth an $30,000 (70%). Are Puerto Rico Registered Voters Age 45+ Currently Providing or Have They Provided Unpaid Care to an Adult Loved One? Likelihood of Needing to Provide Care for an Adult Loved One in the Future Among Puerto Rico Registered Voters Age 45+* (n=700, All Respondents) (n=700, All Respondents) Likely 66% Yes 77% Not likely 29% No 23% Not sure/no answer 5% Puerto Rico caregivers age 45+ are helping or have helped the loved ones in their care with activities like preparing meals (81%) and doing chores (80%) as well as more complex care like medication management (77%) and nursing and other medical tasks (59%). Many are also h e lp i ng wi th orh ave h e lp e d wi th oth e rtas ksli ke transp ortati on (72%), sh op p i ng (72%), b ath i ng and dre s si ng (59%), and m anagi ng fi nance s(50%). Daily Activities that Puerto Rico Caregivers Age 45+ Are Providing or Have Provided* (n=537, Respondents Who Are Current or Past Caregivers) Helping with meals 81% Aiding with household chores 80% Overseeing medication management 77% Providing transportation 72% Taking them shopping or doing it for them 72% Responsible for other medical/nursing tasks 59% Assisting with bathing or dressing 59% Helping manage finances 50% 0% 20% 40% 60% 80% 100% *Grap h sh owsre sp onde ntswh o ch e cke d “y e s”unde re ach ty p e of dai ly acti vi ty . 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 5 Puerto Rico registered voters age 45+ say they would find assistance with providing transportation to medical appointments (69%), chores (66%), managing medications (66%), and breaks for family caregivers (65%) very helpful. It i si m p ortant to note th at th re e i n fi ve orm ore of Pue rto Ri co re gi ste re d vote rsage 45+ s ay th e y would fi nd allty p e sof care gi ve rsup p ort as ke d ab out i n th e surve y ve ry h e lp ful. Helpfulness of Types of Caregiver Support Among Puerto Rico Registered Voters Age 45+* (n=700, All Respondents) Assistance with providing transportation to medical appointments 69% 20% 9% Assistance with household chores 66% 24% 8% Assistance with managing medications 66% 23% 9% Respite care or breaks for family caregivers 65% 25% 7% Assistance with providing transportation for social activities 64% 23% 11% Connecting with other caregivers 64% 25% 8% Information on caregiver resources 62% 27% 8% Information on social opportunities 61% 27% 10% Assistance with meals 61% 25% 12% 0% Very helpful Somewhat helpful 20% Not helpful 40% 60% 80% 100% Not sure/no answer *Pe rce ntage sle s sth an 5 p e rce nt are not sh own. Nearly all (93%) Puerto Rico caregivers age 45+ believe it is important to be able to provide care so that their loved ones can keep living independently in their own home and many of these caregivers (74%) say it is likely that they will provide caregiving on an unpaid basis in the future. Importance of Providing Care to Adult Loved Ones Among Puerto Rico Caregivers Age 45+ Likelihood of Needing to Provide Care for an Adult Loved One in the Future Among Puerto Rico Caregivers Age 45+* (n=537, Respondents Who Are Current or Past Caregivers) (n=537, Respondents Who Are Current or Past Caregivers) Somewhat important 5% Extremely/ very important 93% Likely 74% Not very/not at all important 1% Not likely 23% Not sure/no answer 1% Not sure/no answer 4% *Pe rce ntage sm ay not add up to 100 p e rce nt due to roundi ng. 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 6 Support for Family Caregivers at Home Many Puerto Rico caregivers age 45+ report having felt emotionally and physically stressed as well as not being able to take care of their needs and the needs of their other family members. Many Pue rto Ri co care gi ve rsre p ort fe e li ng som e ty p e of em otionals tres s due to th e i rcare gi vi ng re s p onsi bi li ti e s. Ove rh alf say th e y h ave fe lt e m oti onally stre sse d i n ge ne ral(54%) and ove ra th i rd fe lt gui lty ab out not b e i ng ab le to b alance fam i ly and care gi vi ng re sp onsi bi li ti e s(36%). Pue rto Ri co care gi ve rsalso re p ort phys icals tres s . Ove rh alf say th e y h ave found i t di ffi cult to ge t e nough re s t (51%). A th i rd orm ore say th e y h ave found i t di ffi cult to ge t re gulare x e rci se (42%), vi si t th e i rdoctor(37%), m ai ntai n a h e alth y di e t (32%), orh ave e x p e ri e nce d h e alth p rob le m s(36%). Pue rto Ri co care gi ve rsalso re p ort h avi ng p rob le m sbalanc ing theirfam ily and worklife. Ne arly h alf s ay th e y fe lt stre sse d i n try i ng to b alance th e i rjob and fam i ly (49%) and m any h ave fe lt th e y couldn’ t s oci ali ze and h ave fun (40%), th e y we re unab le to take care of th e i rh ouse h old re sp onsi bi li ti es (35%), and fe lt fi nanci ally strai ne d (34%). Experiences of Puerto Rico Caregivers Age 45+* (n=537, Respondents Who Are Current or Past Caregivers) Felt stressed out emotionally due to your caregiving responsibilities 54% Found it difficult to get enough rest 51% Felt stressed out in trying to balance your job and family 49% Found it difficult to exercise regularly 42% Felt like you didn’t have opportunities to socialize and have fun due to your caregiving responsibilities 40% Found it difficult to find time to visit your doctor 37% Experienced problems with your health 36% Felt guilty if you were not able to balance your responsibilities to your other family members and the loved one you are caring for 36% Found it difficult to take care of your household responsibilities 35% Felt strained financially due to your caregiving responsibilities 34% Found it difficult to maintain a healthy diet 32% 0% 20% 40% 60% 80% 100% *Grap h sh owsre sp onde ntswh o ch e cke d “y e s”unde re ach ty p e of e x p e ri e nce . 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 7 The majority (53%) of Puerto Rico caregivers age 45+ has used their own money to help provide care to their loved ones. In fact, one -th i rd (34%) s ay sth e y h ave fe lt fi nanci ally strai ne d b e cause of th e i rcare gi vi ng re s p onsi bi li ti e s. Ab out two i n fi ve (41%) re p ort b ri ngi ng th e i rlove d i nto th e i rown h om e , wh i le anoth e rtwo i n fi ve (40%) h ave m ade ch ange sto th e i rh om e forth e love d one i n th e i rcare . One i n se ve n (15%) h asm ove d i nto anoth e rh om e to care forth e i rlove d one . Actions Puerto Rico Caregivers Age 45+ Have Had to Take in Order to Care for an Adult Loved One* (n=537, Respondents Who Are Current or Past Caregivers) Use their own money 53% Bring loved one to live in own home 41% Make changes to their home 40% Move into another home 15% 0% 20% 40% 60% 80% 100% *Grap h sh owsre sp onde ntswh o ch e cke d “y e s”unde re ach ty p e of acti on. The vast majority (87%) of Puerto Rico registered voters age 45+ believes it is important to have community services that allow family caregivers to take a break from their caregiving duties. Importance of Having Services that Allow Caregivers to Take a Break* (n=700, All Respondents) Somewhat important, 11% Extremely/very important, 87% Not very/not at all important, 1% No answer, <.5% *Pe rce ntage sm ay not add up to 100 p e rce nt due to roundi ng. 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 8 Nearly all (92%) Puerto Rico registered voters age 45+ support a proposal to allow registered nurses with advanced training who often visit older people in their homes to serve as the primary or acute care provider of record for a patient. Support for a State Proposal to Allow Registered Nurses with Advanced Training to Serve as the Primary Care Provider of Record for an Older Person (n=700, All Respondents) Strongly/somewhat support 92% Strongly/somewhat oppose 4% Neither support not oppose <.5% Not sure/refused 4% 0% 20% 40% 60% 80% 100% Support for Family Caregivers When Loved Ones are Hospitalized Nearly all Puerto Rico registered voters age 45+ strongly support proposals that would help family caregivers when their loved ones go into hospitals, and then transition home. Ne arly allPue rto Ri co re gi ste re d vote rsage 45+ sup p ort re qui ri ng h osp i talsto e x p lai n and de m onstrate m e di caland nursi ng tas ksth at fam i ly care gi ve rswi llne e d to p e rform afte rth e p ati e nt re turnsh om e wi th 80 p e rce nt s trongly sup p orti ng th i sp rop osal. Ne arly allsup p ort re qui ri ng h osp i talsto ke e p a fam i ly care gi ve ri nform e d of m ajorde ci si ons, li ke trans fe rri ng ordi sch argi ng th e p ati e nt wi th 79 p e rce nt s trongly sup p orti ng th i sp rop osal. Ne arly allsup p ort re qui ri ng h osp i talsand care faci li ti e sto re cord th e nam e of a p ati e nt’ sfam i ly care gi ve ri n th e m e di calre cord up on adm i ssi on wi th 73 p e rce nt s trongly s up p orti ng th e p rop osal. Support for Proposals to Help Family Caregivers When Loved Ones Go into Hospitals* (n=700, All Respondents) Requiring hospitals to demonstrate medical tasks to caregivers 97% Requiring hospitals to keep caregivers informed of major decisions 96% Requiring hospitals and care facilities to record caregiver information upon admission 93% 0% Strongly/somewhat support 20% 40% Strongly/somewhat oppose 60% 80% 100% Not sure/no answer *Pe rce ntage sle s sth an 5 p e rce nt are not sh own. Th e re sp ons e sto “ne i th e rsup p ort norop p ose ”we re le ssth an 1 p e rce nt and we re om i tte d from th i s grap h . 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 9 DEMOGRAPHIC PROFILE OF PUERTO RICO RESPONDENTS (n=700) GENDER Male 45% Fe m ale 55% AGE 45-49 16% 50-54 15% 55-64 29% 65+ 40% W ORK STATUS Em p loy e d FT 18% Em p loy e d PT 8% Re ti re d 43% Une m p loy e d 7% Not worki ng foroth e rre ason 22% EDUCATION Hi gh sch oolorle s s 41% Som e colle ge /Ass oc.'s 16% Bach e lor'sorm ore 40% MARITAL STATUS Marri ed 51% Unm arri ed 47% INCOME Le ssth an $25K 65% $25k <$50k 13% $50k orm ore 5% AARP MEMBERSHIP Yes 10% No 81% POLITICAL PARTY AFFILIATION Pop ularDe m ocrati c Party 21% Ne w Progre s si ce Party 27% Pue rto Ri can Inde p e nde nce Party 2% Vota Candi datura 17% POLITICAL VIEW Cons e rvati ve 48% Mode rate 24% Li b e ral 0% 16% 20% 40% 60% 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older 80% 100% Page 10 ANNOTATED SURVEY 2014 Puerto Rico Caregiving Survey (Survey Sample: 45+ registered Voters) (n=700, Sampling Error = ±3.8%) INTRODUCTION/SCREENER He llo, th i si s______ calli ng from an i nde p e nde nt re se arch com p any . W e are not te le m arke te rsand are not try i ng to s e lly ouany th i ng. W e are i nte re ste d i n y ourvi e wson care gi vi ng and h e lp i ng olde rp e op le i n Puerto Rico li ve i nde p e nde ntly asth e y age . Y ourvi e wsare i m p ortant and we would gre atly ap p re ci ate y our p arti ci p ati on. Ally ourre sp onse swi llb e ke p t e nti re ly confi de nti al. INTERVIEWER INSTRUCTIONS: IF NECESSARY, THE FOLLOWING INFORMATION CAN BE PROVIDED TO RESPONDENT. W e are not p e rm i tte d to di sclose th e sp onsorat th e b e gi nni ng of th e surve y b e cause th e re i sa conce rn i t could b i asre sp onse s . If y ou would li ke th at i nform ati on wh e n we are fi ni sh e d wi th th e i nte rvi e w, I wi ll p rovi de i t to y ou. W e are not se lli ng any th i ng, and we wi llnot as k y ou to contri b ute to any organi zati on. Y ourop i ni onswi llb e ke p t confi de nti aland use d forre se arch p urp ose sonly . Th e i nte rvi e w sh ould take ab out 15 m i nute sde p e ndi ng on y ouranswe rs. SCREENING QUESTIONS S1. Ours tudy i si nte re ste d i n th e op i ni onsof p e op le i n ce rtai n age group s . Could y ou p le ase te llm e y ourage asof y ourlas tbi rth day ? [IN YEARS] ___________ [RECORD ACTUAL AGE AND USE THE AGE GROUPS BELOW TO KEEP TRACK OF HOW MANY RESPONDENTS WE ARE GETTING IN EACH GROUP.] Total (700) - 15.7% 15.5% 28.8% 40.0% - [DO NOT READ]Unde r45 [ASK TO SPEAK TO SOMEONE 45 OR OLDER AND REPEAT INTRO AND THEN ASK S1. IF NO ONE 45 OR OLDER, TERMINATE.] 45-49 50-54 55-64 65+ [DO NOT READ]Re fuse d [GO TO S2] 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 11 S2. [If REFUSED in S1:] I unde rs tand. Som e p e op le are not com fortab le gi vi ng th e i r age , b ut would y ou le t m e know wh i ch of th e followi ng age range sy oufalli nto? Unde r45 [ASK TO SPEAK TO SOMEONE 45 OR OLDER. REPEAT INTRO AND THEN ASK S1. IF NO ONE IS 45 OR OLDER, TERMINATE.] 45-49 50-54 55-64 65+ [DO NOT READ]Re fuse d [THANK & TERMINATE] S3. [RECORD RESPONDENT’S GENDER. ASK ONLY IF ABSOLUTELY NECESSARY.] “To e ns ure i ti sre corde d accurate ly , could y ou p le ase state y ourge nde r?” Total (700) 45.0% 55.0% Male Fe m ale S4. Are y oure gi s te re d to vote i n Puerto Rico? Total (700) 100.0% - Yes No [THANK AND TERMINATE] Main Questionnaire Q1. A fam i ly care gi ve ri ssom e one wh o p rovi de sunp ai d care foran adult love d one wh o i si ll, frai l, e lde rly , or h asa p h y s i cal, m e ntal, ore m oti onaldi sab i li ty . Th i sunp ai d care m ay i nclude assi sti ng wi th p e rsonalne e dsli ke b ath i ng and dre s s i ng, h ouse h old ch ore s , m e als, s h op p i ng, transp ortati on, orm anagi ng fi nance sorm e di cal care . Are y oucurre ntly a fam i ly care gi ve rwh o i sp rovi di ng unp ai d care orassi stance to an adult love d one ? [INTERVIEWER NOTE: IF THE RESPONDENT ASKS IF THE PERSON THEY ARE PROVIDING CARE TO HAS TO LIVE WITH THEM THE INTERVIEWER SHOULD SAY “THIS PERSON DOES NOT HAVE TO LIVE WITH YOU.”] Total (700) 29.4% 70.6% - Yes , I am curre ntly p rovi di ng care orassi stance to an adult love d one No [SKIP TO QUESTION 12] [DO NOT READ]Not sure [SKIP TO QUESTION 12] [DO NOT READ]Re fuse d [SKIP TO QUESTION 12] 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 12 QUESTIONS 2 THROUGH 11 ARE FOR CURRENT CAREGIVERS Q2. W h at i sth e age of th e p e rs on y ouare p rovi di ng care oras s i s tance to? [INTERVIEWER: IF THEY ARE PROVIDING CARE TO MORE THAN ONE PERSON, ASK THEM TO ANSWER BASED ON THE PERSON THEY ARE PROVIDING THE MOST CARE TO.] [RECORD AGE IF KNOWN AND GIVEN; IF NOT KNOWN OR GIVEN, TRY TO RECORD IT IN THE RANGE BELOW.] Curre nt Care gi ve rs (206) 3.7% 2.9% 4.2% 34.4% 52.9% 1.9% Unde rage 18 [SKIP TO QUESTION 12] 18-49 50-59 60-64 65-79 80+ [DO NOT READ]Don’ t know//Re fuse d Q3. Sti llth i nki ng ab out th e p e rson y ou are p rovi di ng care orassi stance to th e m ost, wh i ch of th e followi ng dai ly acti vi ti e sare y ou p rovi di ng? Are y ou [INSERT, READ AND RANDOMIZE ITEMS A THROUGH H.]? [RECORD A RESPONSE FOR EACH ITEM.] Curre nt Care gi ve rs (206) 46.6% 72.7% 77.0% 77.5% 58.1% 84.1% 75.8% 59.6% “Yes” Responses As s i sti ng wi th b ath i ng ordre ssi ng Provi di ng transp ortati on to ap p oi ntm e nts Taki ng th e m sh op p i ng orsh op p i ng forth e m He lp i ng th e m wi th m e als He lp i ng th e m to m anage fi nance s Ai di ng wi th h ouse h old ch ore s Ove rse e i ng th e i rm e di cati on m anage m e nt Be i ng re sp onsi b le foroth e rm e di calornursi ng tas ks Q4. Are th e re any oth e racti vi ti e sth at y ou are p rovi di ng? Curre nt Care gi ve rs (206) 63.3% 35.3% 0.5% 0.9% Y e s[ASK QUESTION 5] No [SKIP TO QUESTION 6] [DO NOT READ]Not sure [SKIP TO QUESTION 6] [DO NOT READ]Re fuse d [SKIP TO QUESTION 6] 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 13 Q5. W h at are th e y ? [RECORD RESPONSES] ________________________________________________________________________ Q6. Now th i nki ng agai n ab out th e adult love d one y ou are curre ntly p rovi di ng care orassi stance to, di d y ou e ve rh ave to [INSERT, READ AND RANDOMIZE ITEMS A THROUGH D.]? [RECORD A RESPONSE FOR EACH ITEM.] Curre nt Care gi ve rs (206) 51.0% 39.8% 17.8% 38.7% “Yes” Responses Us e y ourown m one y to h e lp p rovi de care oras si stance Make ch ange sto y ourh om e forth e love d one i n y ourcare Move i nto anoth e rh om e to accom m odate th e love d one i n y ourcare Bri ng y ourlove d one to li ve i n y ourh om e Q7. Are th e re any oth e rth i ngsy ou e ve rh ad to do? Curre nt Care gi ve rs (206) 28.3% 67.9% 2.9% 0.9% Y e s[ASK QUESTION 8] No [SKIP TO QUESTION 9] [DO NOT READ]Not sure [SKIP TO QUESTION 9] [DO NOT READ]Re fuse d [SKIP TO QUESTION 9] Q8. W h at we re th e y ? [RECORD RESPONSES] ________________________________________________________________________ Q9. Asa care gi ve rh ave y ou e ve r[INSERT, READ AND RANDOMIZE ITEMS A THROUGH K.]? [RECORD A RESPONSE FOR EACH ITEM.] Curre nt Care gi ve rs (206) 59.3% 54.8% 36.0% 56.4% 44.9% 40.4% 43.1% 40.3% 39.4% 40.7% 45.4% “Yes” Responses Fe lt stre sse d out e m oti onally due to y ourcare gi vi ng re sp onsi bi li ti es Fe lt stre sse d out i n try i ng to b alance y ourjob and fam i ly Found i t di ffi cult to m ai ntai n a h e alth y di et Found i t di ffi cult to ge t e nough re s t Found i t di ffi cult to e x e rci se re gularly Found i t di ffi cult to take care of y ourh ouse h old re sp onsi bi li ti es Ex p e ri e nce d p rob le m swi th y ourh e alth Found i t di ffi cult to fi nd ti m e to vi si t y ourdoctor Fe lt strai ne d fi nanci ally due to y ourcare gi vi ng re s p onsi bi li ti es Fe lt gui lty i f y ou we re not ab le to b alance y ourre s p onsi bi li ti e sto y ouroth e rfam i ly m e m b e rsand th e love d one y ou are cari ng fororp rovi di ng assi s tance to Fe lt li ke y ou di dn’ t h ave op p ortuni ti e sto soci ali ze and h ave fun due to y our care gi vi ng re sp onsi bi li ti es 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 14 Q10. How i m p ortant i si t to y ou to b e ab le to p rovi de care orassi stance to y ourlove d one so th at th e y can ke e p li vi ng i nde p e nde ntly i n th e i rown h om e ? Isi t [INSERT AND READ EACH ANSWER CATEGORY.]? Curre nt Care gi ve rs (206) 44.3% 49.2% 5.5% 1.0% - Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d Q11. How li ke ly do y ou th i nk i ti sth at y ou wi llp rovi de any care gi vi ng oras si stance on an unp ai d b asi sto an adult love d one i n th e future ? Isi t [INSERT AND READ EACH ANSWER CATEGORY.]? Curre nt Care gi ve rs (206) 16.6% 51.0% 17.8% 7.4% 2.9% 1.9% 2.4% Ex tre m e ly li ke ly Ve ry li ke ly Som e wh at li ke ly Not ve ry li ke ly Not at allli ke ly [DO NOT READ]Not sure [DO NOT READ]Re fuse d SKIP TO Q 24 QUESTIONS 12 THROUGH 22 ARE FOR FORMER CAREGIVERS AND EMULATE THOSE FOR CURRENT CAREGIVERS. NOTE TO DATA PROGRAMMERS: DURING THE DATA PROCESSING QUESTIONS 1 THROUGH 22 NEED TO BE RUN AS IS AND ALSO COLLAPSED SO THAT THERE IS ONE SET OF DATA FOR EACH OF THESE QUESTIONS THAT AGGREGATES CURRENT AND FORMER CAREGIVERS TOGETHER. 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 15 Q12. Have y oue ve rb e e n a fam i ly care gi ve rwh o h asp rovi de d unp ai d care orassi stance to an adult love d one ? [INTERVIEWER NOTE: IF THE RESPONDENT ASKS IF THE PERSON THEY HAVE PROVIDED CARE TO HAD TO LIVE WITH THEM THE INTERVIEWER SHOULD SAY “THIS PERSON DID NOT HAVE TO LIVE WITH YOU.”] Not Curre nt Care gi ve rs (494) 67.1% 32.5% 0.4% Yes , I h ave p rovi de d care orassi stance to an adult love d one i n th e p as t No [SKIP TO QUESTION 23] [DO NOT READ]Not sure [SKIP TO QUESTION 23] [DO NOT READ]Re fuse d [SKIP TO QUESTION 23] Q13. W h at wasth e age of th e p e rson wh o y ou m ost re ce ntly p rovi de d care orassi stance to? [INTERVIEWER: IF THEY ARE PROVIDED CARE TO MORE THAN ONE PERSON, ASK THEM TO ANSWER BASED ON THE PERSON THEY ARE PROVIDING THE MOST CARE TO]. [RECORD AGE IF KNOWN AND GIVEN; IF NOT KNOWN OR GIVEN, TRY TO RECORD IT IN THE RANGE BELOW.] Form e r Care gi ve rs (331) 2.4% 3.3% 5.2% 28.0% 56.0% 5.2% Unde rage 18 [SKIP TO QUESTION 23] 18-49 50-59 60-64 65-79 80+ [DO NOT READ]Don’ t know/Re fuse d Q14. Th i nki ng ab out th e p e rson y ou m os t re ce ntly p rovi de d care orassi stance to, wh i ch of th e followi ng dai ly acti vi ti e sdi d y oup rovi de ? Di d y ou [INSERT, READ AND RANDOMIZE ITEMS A THROUGH H.]? [RECORD A RESPONSE FOR EACH ITEM.] Form e r Care gi ve rs (331) 66.5% 71.9% 68.4% 82.6% 45.1% 78.1% 76.9% 58.8% “Yes” Responses As s i st wi th b ath i ng ordre ssi ng Provi de transp ortati on to ap p oi ntm e nts Take th e m sh op p i ng ors h op forth e m He lp th e m wi th m e als He lp th e m to m anage fi nance s Ai de wi th h ouse h old ch ore s Ove rse e th e i rm e di cati on m anage m e nt Take re sp onsi bi li ty foroth e rm e di calornursi ng tasks 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 16 Q15. Are th e re any oth e racti vi ti e sth at y ou p rovi de d? Form e r Care gi ve rs (331) 41.7% 56.7% 1.6% - Y e s[ASK QUESTION 16] No [SKIP TO QUESTION 17] [DO NOT READ]Not sure [SKIP TO QUESTION 17] [DO NOT READ]Re fuse d [SKIP TO QUESTION 17] Q16. W h at we re th e y ? [RECORD RESPONSES] ________________________________________________________________________ Q17. Now th i nki ng agai n ab out th e adult love d one y ou h ave m ost re ce ntly p rovi de d care orassi stance to, wh i le p rovi di ng th i scare di d y ou e ve rh ave to [INSERT, READ AND RANDOMIZE ITEMS A THROUGH D.]? [RECORD A RESPONSE FOR EACH ITEM.] Form e r Care gi ve rs (331) 54.0% 40.5% 13.7% 42.1% “Yes” Responses Us e y ourown m one y to h e lp p rovi de care oras si stance Make ch ange sto y ourh om e forth e love d one i n y ourcare Move i nto anoth e rh om e to accom m odate th e love d one i n y ourcare Bri ng y ourlove d one to li ve i n y ourh om e Q18. Are th e re any oth e rth i ngsy ou e ve rh ad to do? Form e r Care gi ve rs (331) 22.2% 76.0% 1.2% 0.5% Y e s[ASK QUESTION 19] No [SKIP TO QUESTION 20] [DO NOT READ]Not sure [SKIP TO QUESTION 20] [DO NOT READ]Re fuse d [SKIP TO QUESTION 20] Q19. W h at we re th e y ? [RECORD RESPONSES] ________________________________________________________________________ 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 17 Q20. Asa care gi ve rh ave y ou e ve r[INSERT, READ AND RANDOMIZE ITEMS A THROUGH K.]? [RECORD A RESPONSE FOR EACH ITEM.] Form e r Care gi ve rs (331) 50.5% 45.6% 30.2% 47.4% 40.3% 32.1% 31.3% 34.4% 29.9% 32.2% 36.3% “Yes” Responses Fe lt stre sse d out e m oti onally due to y ourcare gi vi ng re sp onsi bi li ti es Fe lt stre sse d out i n try i ng to b alance y ourjob and fam i ly Found i t di ffi cult to m ai ntai n a h e alth y di et Found i t di ffi cult to ge t e nough re s t Found i t di ffi cult to e x e rci se re gularly Found i t di ffi cult to take care of y ourh ouse h old re sp onsi bi li ti es Ex p e ri e nce d p rob le m swi th y ourh e alth Found i t di ffi cult to fi nd ti m e to vi si t y ourdoctor Fe lt strai ne d fi nanci ally due to y ourcare gi vi ng re s p onsi bi li ti es Fe lt gui lty i f y ou we re not ab le to b alance y ourre s p onsi bi li ti e sto y ouroth e rfam i ly m e m b e rsand th e love d one y ou are cari ng fororp rovi di ng assi s tance to Fe lt li ke y ou di dn’ t h ave op p ortuni ti e sto soci ali ze and h ave fun due to y our care gi vi ng re sp onsi bi li ti es Q21. How i m p ortant wasi t to y outo b e ab le to p rovi de care orassi s tance to y ourlove d one so th at th e y could ke e p li vi ng i nde p e nde ntly i n th e i rown h om e ? W asi t [INSERT AND READ EACH ANSWER CATEGORY.]? Form e r Care gi ve rs (331) 40.8% 52.4% 4.5% 0.3% 0.9% 0.3% 0.8% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d Q22. How li ke ly do y ou th i nk i ti sth at y ou wi llp rovi de any care gi vi ng oras si stance on an unp ai d b asi sto an adult love d one i n th e future ? Isi t [INSERT AND READ EACH ANSWER CATEGORY.]? Form e r Care gi ve rs (331) 10.5% 35.4% 20.1% 17.4% 13.2% 1.7% 1.6% Ex tre m e ly li ke ly Ve ry li ke ly Som e wh at li ke ly Not ve ry li ke ly Not at allli ke ly [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 18 SKIP TO Q 24 QUESTION 23 IS FOR RESPONDENTS WHO ARE NOT CURRENT OR FORMER CAREGIVERS. Q23. How li ke ly do y ou th i nk i ti sth at y ou wi llp rovi de any care gi vi ng oras si stance on an unp ai d b asi sto an adult love d one i n th e future ? Isi t [INSERT AND READ EACH ANSWER CATEGORY.]? Not Curre nt/ Form e r Care gi ve rs (163) 6.0% 21.0% 15.2% 20.7% 29.0% 5.9% 2.4% Ex tre m e ly li ke ly Ve ry li ke ly Som e wh at li ke ly Not ve ry li ke ly Not at allli ke ly [DO NOT READ]Not sure [DO NOT READ]Re fuse d QUESTIONS 24 AND ONWARD ARE FOR ALL RESPONDENTS Q24. In y ourop i ni on, asa curre nt orform e rcare gi ve rorassom e one wh o m ay p rovi de care oras si stance i n th e future , h ow h e lp fulwould th e followi ng ty p e sof care gi vi ng sup p ort b e to y ou? W ould [INSERT, READ AND RANDOMIZE ITEMS A THROUGH I] b e ve ry h e lp ful, som e wh at h e lp ful, ornot h e lp ful? a. As s i s tance wi th p rovi di ng transp ortati on doctor’ soroth e rm e di calap p oi ntm e nts Total (700) 68.7% 20.2% 8.5% 0.6% 2.0% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d b . As s i s tance wi th p rovi di ng transp ortati on forth i ngsli ke goi ng to soci alacti vi ti e s, sh op p i ng, orrunni ng e rrands . Total (700) 63.8% 22.6% 11.2% 1.0% 1.4% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 19 c. As s i s tance wi th unde rs tandi ng h ow to m anage m e di cati ons Total (700) 66.2% 23.4% 8.7% 0.7% 0.9% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d d. Conne cti ng wi th oth e rcare gi ve rsi n si mi larsi tuati ons Total (700) 63.7% 25.2% 7.6% 1.4% 2.1% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d e . Inform ati on ab out avai lab le re source sforcare gi ve rsi n y ourcom m uni ty Total (700) 62.3% 26.5% 7.9% 1.3% 2.1% f. Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d Re s pi te care orb re aksfrom care gi vi ng re sp onsi bi li ti es Total (700) 65.3% 24.5% 7.2% 1.2% 1.8% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d g. As s i s tance wi th p rovi di ng m e als Total (700) 60.7% 25.1% 11.7% 0.6% 2.0% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 20 h . As s i s tance wi th m anagi ng h ouse h old ch ore s Total (700) 66.1% 23.9% 8.2% 1.8% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d i . Inform ati on on soci alop p ortuni ti e sforth e adult love d one i n y ourcare Total (700) 61.1% 26.6% 10.1% 1.1% 1.1% Ve ry h e lp ful Som e wh at h e lp ful Not h e lp ful [DO NOT READ]Not sure [DO NOT READ]Re fuse d Q25. Fam i ly care gi ve rsh e lp olde rPuerto Ricans li ve i nde p e nde ntly b y p e rform i ng s e rvi ce sli ke b ath i ng and dre s s i ng aswe llasm anagi ng m e di cati on and p ay i ng b i lls. How i m p ortant do y ou th i nk i ti sto h ave m ore re s ource sand trai ni ng forfam i ly care gi ve rs? Do y ou th i nk i ti s[INSERT AND READ EACH ANSWER CATEGORY.]? Total (700) 38.6% 50.7% 7.6% 0.7% 1.3% 0.2% 0.9% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 21 CARE ACT Q26. Now I’ m goi ng to ask i f sup p ort orop p ose s om e p rop osalsth at would p rovi de addi ti onalh e lp forfam i ly care gi ve rs . Do y ou sup p ort orop p ose [INSERT, READ AND RANDOMIZE ITEMS A THROUGH C.]? a. Re qui ri ng h osp i talsand care faci li ti e sto re cord th e nam e of a p ati e nt’ sfam i ly care gi ve ri n th e m e di cal re cord up on adm i ssi on Total (700) 72.5% 20.5% 0.3% 1.4% 1.2% 1.5% 2.6% Strongly sup p ort Som e wh at sup p ort [DO NOT READ]Ne i th e rsup p ort norop p ose Som e wh at op p ose Strongly op p ose [DO NOT READ]Not sure [DO NOT READ]Re fuse d b . Hos pi talske e p i ng a fam i ly care gi ve ri nform e d of m ajorde ci si ons , li ke trans fe rri ng ordi sch argi ng th e p ati e nt Total (700) 78.6% 17.4% 0.1% 0.7% 0.3% 0.8% 2.1% Strongly sup p ort Som e wh at sup p ort [DO NOT READ]Ne i th e rsup p ort norop p ose Som e wh at op p ose Strongly op p ose [DO NOT READ]Not sure [DO NOT READ]Re fuse d c. Re qui ri ng h osp i talsto e x p lai n and de m ons trate any m e di calornursi ng tas ksfam i ly care gi ve rswi llne e d to p e rform afte rth e p ati e nt re turnsh om e Total (700) 79.8% 16.8% 0.3% 0.3% 0.6% 2.2% Strongly sup p ort Som e wh at sup p ort [DO NOT READ]Ne i th e rsup p ort norop p ose Som e wh at op p ose Strongly op p ose [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 22 NURSING Q27. Som e s tate sare consi de ri ng a p rop osalth at would allow re gi s te re d nurse swi th advance d trai ni ng wh o ofte n vi s i t olde rp e op le i n th e i rh om e sto se rve asth e p ri m ary oracute care p rovi de rof re cord fora p ati e nt. Th e s e nurs e sh ave addi ti onaltrai ni ng i n sp e ci fi c are as, li ke e lde rcare . Do y ous up p ort orop p os e a p rop osali n y ourstate th at would allow nurse swi th advance d trai ni ng to se rve as th e p ri m ary oracute care p rovi de rof re cord foran olde rp e rson. Total (700) 76.9% 15.3% 0.3% 1.6% 2.4% 2.0% 1.5% Strongly sup p ort Som e wh at sup p ort [DO NOT READ]Ne i th e rsup p ort norop p ose Som e wh at op p ose Strongly op p ose [DO NOT READ]Not sure [DO NOT READ]Re fuse d INDEPENDENT LVIING Q28. If y ouora love d one ne e de d h e lp wh e n th e b asi c tas ksof li fe b e com e m ore di ffi cult due to agi ng or i llne s s , wh e re would y ou p re fe rto re ce i ve th at care orh e lp fory ourse lf ora love d one ? [INSERT, READ AND RANDOMIZE ITEMS A THROUGH C. ACCEPT ONLY ONE ANSWER.] Total (700) 86.5% 4.8% 6.4% 1.9% 0.4% At h om e wi th care gi ve rassi stance In an assi ste d li vi ng faci li ty orgroup h om e In a nursi ng h om e [DO NOT READ]Not sure [DO NOT READ]Re fuse d Q29. If y ouora love d one ne e de d h e lp to re m ai ni nde p e nde nt, h ow i m p ortant would i t b e to h ave se rvi ce s th at would allow y ou ora love d one to li ve i nde p e nde ntly at h om e foraslong asp os si b le ? W ould i tbe [INSERT AND READ EACH ANSWER CATEGORY.]? Total (700) 41.1% 46.8% 10.0% 0.6% 0.7% 0.3% 0.5% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 23 Q30. How i m p ortant i si t th at se rvi ce s, such ash om e h e alth care , p e rsonalcare , day p rogram s , and se rvi ce s s o care gi ve rscan take a b re ak from th e i rcare gi vi ng duti e s, are avai lab le i n y ourcom m uni ty ? Isi t [INSERT AND READ EACH ANSWER CATEGORY.]? Total (700) 37.4% 49.6% 11.4% 0.6% 0.6% 0.4% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d Questions 31 and 32 needed to be shortened due to time constraints so they were changed after the first 13 interviews; therefore, the weighted n for these questions is 686. Q31. Now I’ m goi ng to ask y ou ab out som e com m uni ty se rvi ce s. Ple ase te llm e h ow i m p ortant y outh i nk i ti s to h ave th e followi ng se rvi ce si n y ourcom m uni ty to h e lp p e op le re m ai ni n th e i rown h om e sasth e y age . How i m p ortant i sh avi ng [INSERT, READ AND RANDOMIZE ITEMS A THOUGH G.] i n y ourcom m uni ty ? Do y ou th i nk i ti s[INSERT AND READ EACH IMPORTANCE ANSWER CATEGORY.]? a. Se ni orCe nte rs Total (686) 35.0% 53.8% 8.9% 1.2% 0.6% 0.6% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d b . Hous e ke e p i ng se rvi ce sforolde rp e rsons Total (686) 37.0% 51.3% 9.2% 1.0% 1.0% 0.1% 0.4% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 24 c. Hom e de li ve re d m e als Total (686) 32.6% 52.2% 10.8% 2.1% 1.8% 0.6% - Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d d. Hom e h e alth care se rvi ce s Total (686) 44.7% 48.0% 6.1% 0.9% 0.3% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d e . Re s pi te care orb re aksforfam i ly care gi ve rsfrom care gi vi ng duti es Total (686) 36.1% 52.8% 8.6% 0.9% 0.6% 0.6% 0.4% f. Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d Trans p ortati on se rvi ce sforse ni ors Total (686) 43.2% 48.7% 6.3% 0.8% 0.6% 0.1% 0.4% Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 25 g. A ce ntralp lace forcare gi ve rsto go to ge t i nform ati on and re source s Total (686) 38.3% 51.3% 8.8% 0.3% 0.7% 0.6% - Ex tre m e ly i m p ortant Ve ry i m p ortant Som e wh at i m p ortant Not ve ry i m p ortant Not at alli m p ortant [DO NOT READ]Not sure [DO NOT READ]Re fuse d Q32. Doe sy ourcom m uni ty h ave [INSERT, READ AND RANDOMIZE ITEMS A THOUGH G.]? [RECORD A RESPONSE FOR EACH ITEM.] Total (686) 45.1% 34.7% 36.8% Se ni orCe nte rs Hous e ke e p i ng se rvi ce sforolde rp e rsons Hom e de li ve re d m e als 44.2% Hom e h e alth care se rvi ce s 20.6% Re s pi te care orb re aksforfam i ly care gi ve rsfrom care gi vi ng duti es 45.1% Trans p ortati on se rvi ce sforse ni ors 31.4% A ce ntralp lace forcare gi ve rsto go to ge t i nform ati on and re source s “Yes” Responses Q33. W h e re would y ou turn to fi nd out i nform ati on ab out se rvi ce si n y ourcom m uni ty th at would h e lp p e op le re m ai ni n th e i rown h om e sasth e y age ? W ould y ou turn to [INSERT, READ AND RANDOMIZE ITEMS A THROUGH H BELOW]? [RECORD A RESPONSE FOR EACH ITEM.] Total (700) 81.6% 93.5% 89.0% 83.5% 51.4% 72.0% 73.3% 82.8% Fam i ly orfri e nds Y ourdoctorsoroth e rh e alth care p rovi de rs Hos pi talsoroth e rh e alth care faci li ti es Se ni orce nte rs Th e Inte rne t Th e p h one b ook Ch urch e s Gove rnm e nt age nci es 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 26 Demographics The following questions are for classification purposes only and will be kept entirely confidential. D1.W h at i sy ourcurre nt m ari talstatus? Are y ou [INSERT AND READ EACH ANSWER CATEGORY.]? Total (700) 51.1% 5.2% 3.4% 11.0% 14.7% 13.1% 0.1% 1.3% Marri ed Not m arri e d, li vi ng wi th y ourp artne rorsi gni fi cant oth e r Se p arate d Di vorce d W i dowe d Orare y ou curre ntly si ngle and ne ve rm arri ed [DO NOT READ]Not sure [DO NOT READ]Re fuse d D2.[IF D1 = 1 ASK: “Are y ou ory oursp ouse curre ntly a m e m b e rof A-A-R-P?” IF D1 = 2 ASK: “Are y ou ory ourp artne rcurre ntly a m e m b e rof AARP?” OTHERWISE ASK “Are y ou curre ntly a m e m b e rof AARP?”] Total (700) 9.9% 80.7% 6.5% 2.9% Yes No [DO NOT READ]Not sure [DO NOT READ]Re fuse d D3.Th i nki ng ab out wh o li ve si n y ourh ouse h old, do y ou curre ntly [INSERT AND READ ITEMS A THROUGH C BELOW.]? Total (700) 10.8% 22.7% 15.2% “Yes” Responses Have any ch i ldre n unde rage 18 li vi ng wi th y ou Have any ch i ldre n ove rage 18 li vi ng wi th y ou Have any ch i ldre n away at colle ge D4.Do y ouown orre nt y ourp ri m ary re si de nce ? Total (700) 77.5% 14.3% 4.8% 1.2% 2.1% Own Re nt [DO NOT READ]Oth e rli vi ng arrange m e nt [RECORD ANSWER] [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 27 D5.How would y ou de scri b e th e are a wh e re y ou li ve ? Do y ou li ve … [READ EACH ANSWER CATEGORY.]? Total (700) 12.4% 38.9% 42.9% 3.3% 1.1% 1.4% Downtown ori n an urb an are a In th e sub urb s In a ruralare a [DO NOT READ]Som e th i ng e lse [DO NOT READ]Not sure [DO NOT READ]Re fuse d D6.W h at i sth e h i gh e st le ve lof e ducati on th at y ou com p le te d? [READ EACH ANSWER CATEGORY.] Total (700) 26.6% 14.8% 6.2% 9.4% 14.1% 7.2% 18.2% 0.8% 2.6% 0 to 12th grade , b ut wi th no di p lom a Hi gh sch oolgraduate ore qui vale nt Pos th i gh s ch oole ducati on, b ut wi th no de gre e 2 y e arde gre e 4 y e arde gre e Pos t graduate study , b ut wi th no de gre e Graduate orp rofe ssi onalde gre e [DO NOT READ]Not sure [DO NOT READ]Re fuse d D7.W h i ch of th e followi ng b e st de s cri b e sy ourcurre nt e m p loy m e nt status? [READ EACH ANSWER CATEGORY.] Total (700) 4.9% 3.6% 12.9% 4.0% 43.4% 6.8% 21.8% 0.3% 2.4% Se lf-e m p loy e d full-ti me Se lf-e m p loy e d p art-ti me Em p loy e d full-ti me Em p loy e d p art-ti me Re ti re d and not worki ng at all Une m p loy e d and looki ng forwork Orare y ou not i n th e lab orforce foroth e rre asons [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 28 D8.Th i nki ng ab out y ourstate e le cti onsforPuerto Rico Gove rnorand Le gi slatorsi n th e last 10 y e ars , wh i ch of th e followi ng b e s t de s cri b e sy ourvoti ng b e h avi or? W ould y ou say y ou vote alway s, m ost of th e ti m e , ab out h alf of th e ti m e , se ldom , orwould y ou say y ou ne ve rvote ? Total (700) 70.4% 12.7% 2.7% 6.1% 4.4% 0.4% 3.2% Alway s Mos t of th e ti me Ab out h alf of th e ti me Se ldom Ne ve r [DO NOT READ]Not sure [DO NOT READ]Re fuse d D9.W h i ch p oli ti calp arty do y ou m os ti de nti fy wi th ? [INSERT, READ AND RANDOMIZE ITEMS A THROUGH C. ALWAYS READ D AND E LAST IN THAT ORDER]? Total (700) 21.1% 27.3% 2.0% 1.8% 16.9% 15.1% 3.3% 14.1% Pop ularDe m ocrati c Party (PPD) Ne w Progre ssi ve Party (PNP) Pue rto Ri can Inde p e nde nce Party (PIP) Som e oth e rp oli ti calp arty Vota Candi datura None of th e ab ove [DO NOT READ] [DO NOT READ]Not sure [DO NOT READ] [DO NOT READ]Re fuse d [DO NOT READ] D10. How would y ou ch aracte ri ze y ourp oli ti calvi e ws? W ould y ou say y ou are [INSERT, READ AND RANDOMIZE ITEMS A THROUGH C. ]? Total (700) 47.7% 24.3% 15.6% 2.6% 3.2% 6.5% Cons e rvati ve Mode rate Li b e ral [DO NOT READ]None of th e se [DO NOT READ]Not sure [DO NOT READ]Re fuse d 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 29 D11. W e re ali ze i ncom e i sa p ri vate m atte rand so rath e rth an as k y ou any th i ng sp e ci fi c ab out y ouri ncom e , I’ d li ke to as k y outo p le ase stop m e wh e n I ge t to th e cate gory th at i nclude sy our h ous e h old’ si ncom e b e fore tax e si n 2013. W asi t [INSERT AND READ EACH ANSWER CATEGORY.]? Total (700) 30.6% 16.2% 11.1% 6.8% 6.5% 4.5% 1.6% 2.2% 1.8% 0.7% 8.0% 9.9% D12. Le s sth an $10,000 $10,000 to le ssth an $15,000 $15,000 to le ssth an $20,000 $20,000 to le ssth an $25,000 $25,000 to le ssth an $30,000 $30,000 to le ssth an $40,000 $40,000 to le ssth an $50,000 $50,000 to le ssth an $75,000 $75,000 to le ssth an $100,000 $100,000 orm ore [DO NOT READ]Not sure [DO NOT READ] [DO NOT READ]Re fuse d [DO NOT READ] W h at i sy our5-di gi t zi p code ? ___ ___ ___ ___ ___ [DO NOT READ]Not sure [DO NOT READ] [DO NOT READ]Re fuse d [DO NOT READ] That was our last question for tonight/today. Thanks you very much for taking the time to help us out. Have a great day/night! 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 30 METHODOLOGY Th e 2014 AARP Surve y of Pue rto Ri co Re gi s te re d Vote rsAge 45+ on Care gi vi ng wasconducte d th rough te le p h one i nte rvi e wswi th a sam p le of 700 re sp onde ntsage s45 and olde rdrawn from random di gi t di al(RDD) li s t. Th e i nte rvi e wswe re conducte d i n Sp ani sh b y Pre ci si on Op i ni on, Inc. from Se p te m b e r18 th th rough Octob e r5th , 2014. Th e re sultsfrom th e s tudy we re we i gh te d b y age and ge nde rto re fle ct th e Pue rto Ri co p op ulati on of re s i de ntsage 45 and olde r. Th e m argi n of e rrorforth e com p le te se t of 700 i nte rvi e wsi s±3.8%. Re s p onde ntswe re scre e ne d to e nsure th at th e y we re re si de ntsof Pue rto Ri co, age 45 orolde rand re gi ste re d to vote i n Pue rto Ri co. Th e re s p ons e rate forth i sstudy was15 p e rce nt and wascalculate d usi ng AAPOR’ sre sp onse rate 3 m e th od. Th e coop e rati on rate was77 p e rce nt ascalculate d usi ng AAPOR’ scoop e rati on rate 3 m e th od. 1 Th rough out th e re p ort, stati sti csre p re se nti ng surve y re sp onse sare re p orte d i n p e rce ntage swh i ch m ay not add up to 100 due to roundi ng and non-re sp onse . Also due to roundi ng, th e p e rce ntage sre p orte d i n th e te x t m ay vary s li gh tly from th ose i n th e annotati on ori n grap h s . 1 Calculated using AAPOR’s Outcome Rate Calculator Version 2.1, May 2003 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 31 AARP i sa nonp rofi t, nonp arti san organi zati on, wi th a m e m b e rsh i p of ne arly 38 m i lli on, th at h e lp sp e op le turn th e i rgoalsand dre am si nto re alp ossi bi li ti e s, stre ngth e nscom m uni ti e sand fi gh tsforth e i ssue sth at m atte rm os t to fam i li e ss uch ash e alth care , e m p loy m e nt and i ncom e se curi ty , re ti re m e nt p lanni ng, affordab le uti li ti e sand p rote cti on from fi nanci alab use . W e advocate fori ndi vi dualsi n th e m arke tp lace b y s e le cti ng p roductsand s e rvi ce sof h i gh quali ty and value to carry th e AARP nam e aswe llash e lp our m e m b e rsob tai n di scountson a wi de range of p roducts, trave l, and se rvi ce s. A trus te d source forli fe sty le ti ps , ne wsand e ducati onali nform ati on, AARP p roduce sAARP Th e Magazi ne , th e world'slarge s t ci rculati on m agazi ne ; AARP Bulle ti n; www.aarp .org; AARP TV & Radi o; AARP Books; and AARP e n Esp añ ol, a Sp ani s h -language we b si te addre ssi ng th e i nte re s tsand ne e dsof Hi sp ani cs. AARP doe snot e ndorse candi date sforp ub li c offi ce orm ake contri b uti onsto p oli ti calcam p ai gnsorcandi date s . Th e AARP Foundati on i san affi li ate d ch ari ty th at p rovi de sse curi ty , p rote cti on, and e m p owe rm e nt to olde rp e rsonsi n ne e d wi th s up p ort from th ousandsof volunte e rs , donors, and s p onsors . AARP h asstaffe d offi ce si n all50 s tate s , th e Di s tri ct of Colum b i a, Pue rto Ri co, and th e U.S. Vi rgi n Islands . Le arn m ore at www.aarp .org. State Re s e arch b ri ngsth e ri gh t knowle dge at th e ri gh t ti m e to ourstate and nati onalp artne rsi n sup p ort of th e i re ffortsto i m p rove th e li ve sof p e op le age 50+. State Re se arch consultantsp rovi de strate gi ci nsi gh ts and acti onab le re se arch to attai n m e asurab le s tate and nati onaloutcom e s . Th e vi e wse x p re sse d h e re i n are fori nform ati on, de b ate , and di scussi on, and do not ne ce s sari ly re p re se nt offi ci alp oli ci e sof AARP. AARP s taff from th e Pue rto Ri co State Offi ce , Cam p ai gns , State Advocacy and Strate gy Inte grati on (SASI) and State Re s e arch contri b ute d to th e de si gn, i m p le m e ntati on and re p orti ng of th i sstudy . Sp e ci alth anks go to AARP s taff i ncludi ng Jose Acaron, State Di re ctori n Pue rto Ri co, Eddi e Oli ve ra, Associ ate State Di re ctorof Advocacy i n Pue rto Ri co; Ch ry ste Halland JodiSakol, Cam p ai gns ; Jam e sMcSp adde n, SASI; Ch e ry lBarne s , Ai sh a Bonne r, Rach e lle Cum m i ns , Te rriGue nge ri ch , Ange la Hough ton, Eowna Y oung Harri s on and Darle ne Matth e ws, State Re se arch ; and Dori sGi lli am , Offi ce of Ge ne ralCounse l. Ple ase contact Joanne Bi ne tte at 202-434-6303 form ore i nform ati on re gardi ng th i ssurve y . AARP Research For more information about this survey, please contact Joanne Binette at: 202.434.6303 or e-mail [email protected] 2014 AARP Caregiving Survey: Opinions & Experiences of Puerto Rico Registered Voters Age 45 and Older Page 31
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