Walking the walk or just talking the talk: how do we make progress? Richard Fluck Date: 16th March 2016 The strategic challenge • Numbers requiring RRT are growing • Population is older with more comorbidities • Home therapies are in decline – especially PD • Economic downturn has implications for healthcare expenditure 19/04/2016 Home Therapies Richard Fluck 2 Figure 2.2. Growth in prevalent patients by treatment modality at the end of each year 1997–2012 19/04/2016 UK Renal Registry 16th Annual Report Home Therapies Richard Fluck 3 Falling PD Figure 2.9. Modality changes in prevalent RRT patients from 1997–2012 19/04/2016 UK Renal Registry 16th Annual Report Home Therapies Richard Fluck 4 Rise in home HD Figure 2.10. Detailed dialysis modality changes in prevalent RRT patients from 1997–2012 * Scottish centres excluded as information on satellite HD was not available 19/04/2016 UK Renal Registry 16th Annual Report Home Therapies Richard Fluck 5 Variation Figure 2.8. Percentage of prevalent haemodialysis patients treated with satellite or home haemodialysis by centre on 31/12/2012 ∗Scottish centres excluded as information on satellite HD was not available. No centres in Northern Ireland have satellite dialysis units 19/04/2016 UK Renal Registry 16th Annual Report Home Therapies Richard Fluck 6 19/04/2016 Home Therapies Richard Fluck 7 Ambitions • 3. Self-management: All people with kidney disease are offered as much information as they would like in order to understand and manage their condition. • 4. Person-centred care: Care is centred on the person, taking into account individual needs and preferences, quality of life, symptom burden and the presence of co-existing medical conditions. 19/04/2016 Home Therapies Richard Fluck 9 • 6. Preparation and Choice: All people approaching end-stage renal disease, or moving from one type of treatment for end-stage renal disease to another, understand and are given sufficient time and support to prepare for a treatment that is suitable for them, chosen from the full range of options. 19/04/2016 Home Therapies Richard Fluck 10 The House of Care 19/04/2016 Home Therapies Richard Fluck 11 Commissioning of RRT The base Key principles • • • • • Ensure patient pathway integrity Enable CCGs to better allocate their resources efficiently Move to accountability linked to population outcomes Improve financial incentives for commissioners and providers Offer value across the system and to individuals 19/04/2016 Home Therapies Richard Fluck 13 But at all times our guiding principle will be: walk in the shoes of the people we serve. Think like a patient, act like a taxpayer Simon Stevens, April 2014, Newcastle Reimbursement • Short term • Mitigate short term issues • Long term • • • • • Process of internal and external consultation Review of pricing engine Challenge re reference costs Renal specific – strategic review of reimbursement structure Incentives? 19/04/2016 Home Therapies Richard Fluck 15 Service specifications • Modality specific • Clear pointers to shared care • CQUIN re shared care • Better metrics 19/04/2016 Home Therapies Richard Fluck 16 Specialised status • Advantages • High costs and complexity • Disadvantages • Reimbursement structure • One aspect of patient pathway • Collaborative solution • Reintegrate patient pathway • Plan A, B and C • Reestablish provider networks driven by peer review 19/04/2016 Home Therapies Richard Fluck 17 Patient participation The left hand wall Engaging the patient on multiple levels Carmen, Health Affairs Feb 2013 Home 32:232 19/04/2016 Therapies Richard Fluck 19 Integration Care delivery Location Dependent Independent Home AAPD ?AHHD PD HHD (>4x week) In-centre HD (3x week) Self care HD (3-7x week) Education, self-awareness, changing beliefs about patient‘s role, self-management support, skills development Skills, knowledge and confidence matrix CSPAM scores (Clinician support for patient activation) High Low Low High Changing beliefs about clinician’s role, leadership, skills training e.g. MI, communication, coaching Interventions PAM scores (patient activation) 19/04/2016 Home Therapies Richard Fluck 23 Measurement and improvement: the ceiling Data • Numbers • Organisational process • Outcomes • Clinical • Patient centred • Value 19/04/2016 Home Therapies Richard Fluck 25 Survival by Dialysis Modality—Who Cares? All-cause patient mortality rates, overall and by modality, US Renal Data System ESRD Database, 2011. Adjusted for age, sex, race, and primary diagnosis. HD, hemodialysis; PD, peritoneal dialysis. 19/04/2016 Home Therapies Richard Fluck CJASN 2016 ePub Martin B. Lee* and Joanne M. Bargman† 26 Value The Renal Alliance: UKRR, PHE, CVIN, RightCare and Commissioning for value 19/04/2016 Home Therapies Richard Fluck 27 Recovery time after HD 19/04/2016 Lindsay Clin J Am Soc Nephrol. 2006 Home Therapies Richard FluckSep;1(5):952-9. 28 Home therapies: Patient Quality Markers - Restless legs and depression 19/04/2016 Jaber Clin J Am Soc Nephrol 6: 1049–1056, 2011 (FREEDOM study group) Home Therapies Richard Fluck 29 The right hand wall: professionals What do the professional stakeholders need to offer? • Leadership: vision, courage and commitment • Individual • Organisational • Expertise • Drive improvement – e.g. quality improvement 19/04/2016 Home Therapies Richard Fluck 31 Home therapies QI • KQuiP • Stakeholder led • RA, BRS, BKPA, NKF, KRUK, BTS • NHS England and home nations • Strategic alliance to foster QI 19/04/2016 Home Therapies Richard Fluck 32 Improving the pathway • • • • • • • Establish an MDT to assess new starters Consider legibility Shared decision making – ?Physician led PD insertion Training Late presentation Perit Dial Int. 2013 May-Jun; 33(3): 233–241. 19/04/2016 Dialysis Measurement, Analysis and Reporting (DMAR: Oliver Medical Management, Toronto, ON, Canada) Home Therapies Richard Fluck 33 Home haemodialysis 19/04/2016 Home Therapies Richard Fluck 34 Summary 19/04/2016 Home Therapies Richard Fluck 35 19/04/2016 Home Therapies Richard Fluck 36
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