3rd Annual Canadian Conference on Sickle Cell Disease
September 30 – October 1, 2016
Lord Elgin Hotel, Ottawa, Ontario
Thursday September 29
Nurses SCD meeting (CanHaem nurse committee meeting)
18 :15 - 18 :20 Welcome and introduction
18 :20 - 19 :30 Business Meeting
19 :30
Dinner
Friday September 30
8 :00 - 9 :00
Registration
9 :00 - 9 :15
Opening, welcoming remarks
9 :15 - 9 :45
Foetal Hemoglobin regulation – Dr Guillaume Lettre
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9 :45 - 10 :15
Recognize sickle cell disease as a genetic disorder
Understand the genetic modifiers on the severity of sickle cell disease
Know the genetic determinants of fetal hemoglobin regulation
Organ damage due to chronic vasculopathy in adult sickle cell disease – Dr Pablo Bartolucci
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Recognize the role of vasculopathy in the pathophysiology of sickle cell disease
Review to main consequences of chronic vasculopathy at adulthood
Define strategies aimed at better recognize chronic organ damage
10 :15 - 10 :30 Q&A
10 :30 - 10 :45 Break
10 :45 - 11 :00 Sickle cell disease in Canada : SCDAC perspective – Lanre Tunji-Ajayi
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Report on the history of sickle cell disease in Canada
Identify current challenges in the care of sickle cell disease in Canada
11 :00 - 11 :45 Keynote presentation – Dr Charles Quinn
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11 :45 - 12 :00 Q&A
12 :00 - 13 :00 Lunch
Recognize the importance of dedicated program and centers for the care of sicke cell disease
Review the current treatment strategies for sickle cell disease
Discuss current recommandations and controveries for the care of silent strokes
13 :00 - 13 :30 General aspects of transfusion in sickle cell disease – Jacob Pendergrast
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Synthesize on the current indication for blood transfusion
Discuss the current strategies aimed at preventing blood transfusion complications
Support the curent evidence on how to diagnose and treat the main complications of blood
transfusion.
13 :30 - 14 :15 New therapeutic approaches – Matthew Heeney
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Discuss the new therapeutic strategies
Undestand the rationale of the new therapeutic agents
14 :15 - 14 :30 Q&A
14 :30 - 15 :00 Gene therapy for SCD – Dr Sandeep Soni
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Explain the concept of gene therapy for sickle cell disease
Provide current evidence on the efficacy of gene therapy for sickle cell disease
15 :00 - 15 :15 Q&A
15 :15 - 15 :30 Break
15 :30 - 16 :45 Abstract Presentations and Closing Remarks
16 :45 - 18 :00 CanHaem AGM
18 :30 - 21 :00 Reception
Saturday October 1
8 :00 - 8 :30
Registration and breakfast
8 :30 - 8 :45
Opening, welcoming remarks
8 :45 - 9 :00
History of sickle cell in Canada – Lanre Tunji-Ajayi
9 :00 - 9 :20
Newborn Screening - Pranesh Chakraborty :
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Provide the rationale supporting the importance of newborn screening for sickle cell disease
Discuss the current Ontario newborn screening program
9 :20 - 9 :30
Q&A
9 :30 - 10 :00
Keynote presentation : Current treatment for sickle cell disease – Dr Charles Quinn
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Recognize the importance of dedicated program and centers for the care of sicke cell disease
Review the current treatment strategies for sickle cell disease
10 :00 - 10 :30 New therapy for sicke cell disease – Matthew Heeney
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Discuss the new therapeutic strategies
Undestand the rationale of the new therapeutic agents
10 :30 - 10 :45 Q&A and Platform Discussions
10 :45 - 11 :00 Break
11 :00 - 12 :15 Patient Presentations
12 :15 - 13 :30 Lunch
13 :30 - 16 :00 Workshops
13 :30-14 :30
Workshop A (nutrition support)
Workshop B (Visit to the emergency)
Workshop C (Sport and activities)
Workshop D (working with sickle cell disease and insurance)
14 :45-15 :45
Workshop A (nutrition support)
Workshop B (Visit to the emergency)
Workshop C (Sport and activities)
Workshop D (working with sickle cell disease and insurance)
15 :45-16 :00
Report from each workshop and open discussion
16 :00-16 :15
Summary and closing remarks