CONTINUING EDUCATION Back to Basics: Patient and Family Engagement 0.8 www.aorn.org/CE LISA SPRUCE, DNP, RN, CNS-CP, ACNS, ACNP, ANP, CNOR Continuing Education Contact Hours Approvals indicates that continuing education (CE) contact hours are available for this activity. Earn the CE contact hours by reading this article, reviewing the purpose/goal and objectives, and completing the online Examination and Learner Evaluation at http://www.aorn.org/CE. Each applicant who successfully completes this program can immediately print a certificate of completion. This program meets criteria for CNOR and CRNFA recertification, as well as other CE requirements. Event: #15524 Session: #0001 Fee: Members $6.40, Nonmembers $12.80 The CE contact hours for this article expire July 31, 2018. Pricing is subject to change. Purpose/Goal To provide the learner with knowledge of best practices related to engaging patients and their family members in health care. Objectives 1. Discuss common areas of concern that relate to perioperative best practices. 2. Discuss best practices that could enhance safety in the perioperative area. 3. Describe implementation of evidence-based practice in relation to perioperative nursing care. Accreditation AORN is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation. AORN is provider-approved by the California Board of Registered Nursing, Provider Number CEP 13019. Check with your state board of nursing for acceptance of this activity for relicensure. Conflict-of-Interest Disclosures Dr Spruce has no declared affiliation that could be perceived as posing a potential conflict of interest in the publication of this article. The behavioral objectives for this program were created by Helen Starbuck Pashley, MA, BSN, CNOR, clinical editor, with consultation from Susan Bakewell, MS, RN-BC, director, Perioperative Education. Ms Starbuck Pashley and Ms Bakewell have no declared affiliations that could be perceived as posing potential conflicts of interest in the publication of this article. Sponsorship or Commercial Support No sponsorship or commercial support was received for this article. Disclaimer AORN recognizes these activities as CE for RNs. This recognition does not imply that AORN or the American Nurses Credentialing Center approves or endorses products mentioned in the activity. http://dx.doi.org/10.1016/j.aorn.2015.04.020 ª AORN, Inc, 2015 www.aornjournal.org AORN Journal j 33 Back to Basics: Patient and Family Engagement 0.8 www.aorn.org/CE LISA SPRUCE, DNP, RN, CNS-CP, ACNS, ACNP, ANP, CNOR ABSTRACT Patient and family engagement is an active involvement in health care between patients, families, and their caregivers. Perioperative nurses should be active proponents of implementing patient engagement activities in the perioperative setting. This article introduces basic patient engagement concepts and how they can be implemented in the perioperative setting. AORN J 102 (July 2015) 34-37. ª AORN, Inc, 2015. http://dx.doi.org/10.1016/j.aorn.2015.04.020 Key words: patient engagement, patients, families, perioperative nurses, providers. P atient safety is in the forefront of efforts by caregivers to prevent mishaps that increase suffering and cost for patients. One way to help prevent these events is for care providers to more fully engage with patients in the planning and execution of their care. The following composite case study illustrates the consequences of failing to engage patients and family members in care decisions and outcomes. Ms J is a 35-year-old woman scheduled to undergo exploratory laparoscopic surgery for abdominal pain. When she arrives at the facility and personnel begin preparing her for surgery, the nurse asks routine questions about her history, including medications. Ms J reports the medications that she routinely takes, which includes occasional use of a narcotic pain medication, but she fails to mention that she also takes ibuprofen for less intense recurrent abdominal pain or that her last dose was two days ago. The nurse fails to ask about over-thecounter medications or alternative medications, and the patient does not mention the ibuprofen and the multivitamin she takes that includes vitamin E, believing they are not important enough to mention. During the preoperative assessment, the nurse does not question the patient about social or religious constraints on the use of blood and other products that come from animal or human sources, and Ms J does not think to mention her beliefs about a vegan lifestyle and not using animal products of any kind. During the surgery, the patient experiences more than normal bleeding, and because of the difficulty seeing the field, the surgeon accidently nicks a vessel. As a consequence, the surgery is converted to an open procedure, and the surgeon uses hemostatic products that are porcine in origin. Throughout the process, no one reports the turn of events to the family members, who could have provided information about the religious constraints against blood and other products and prevented their use. Afterward, when Ms J learns about the surgical outcome and is upset, personnel at the facility refuse to talk to Ms J or her family members about what happened or the breakdown in communication. Ms J feels intimidated, fearful, and powerless when trying to question them. She feels responsible for not mentioning the medications and her beliefs to the staff and is quite distressed about the use of the animal product. Because they are anxious that the patient and her family might sue, staff members fail to reassure her that they should have questioned her more thoroughly or sought counseling from a family member. Ms J loses confidence in the health care professionals caring for her. Members of the health care system where she was treated appear to be unable to see the event from the patient’s and family members’ perspectives; they feel that they did what was necessary to save the patient’s life. This can happen when personnel at a facility, including surgeons, are afraid to discuss mistakes with patients or their http://dx.doi.org/10.1016/j.aorn.2015.04.020 ª AORN, Inc, 2015 34 j AORN Journal www.aornjournal.org July 2015, Vol. 102, No. 1 family members and when they work within a culture that does not value the role that patient and family members can play in helping to reduce medical errors and provide quality care. Patient and family engagement is a new concept in health care and has the potential to revolutionize traditional health care delivery. The aim of engaging patients and families is to change the care relationship.1 Patients need to take an active role in their care, and caregivers need to form partnerships with patients.1 In 2007, a systematic review by Coulter and Ellins2 of research on patient-focused quality interventions found that strategies to promote patient engagement resulted in reduced care costs and improved patient health. One of the aims should be to focus on health literacy because it is an essential component to allow patients to be engaged in their care. Improving patient health literacy in turn increases their knowledge and understanding of disease processes and will help them make informed decisions about acute and chronic conditions.2 In turn, health care professionals must develop and improve communication skills and have resources to be able to work collaboratively with patients and help patients and families access and understand health information.2 Patient and family engagement opportunities can improve the effectiveness of health care and help prevent tragic occurrences, such as those experienced by the patient in the case study. Patient engagement activities also help improve costeffectiveness and the ways in which health care is delivered. HOW-TO GUIDE The Macy Foundation Conference on Partnering With Patients, Families, and Communities offered the following recommendations to move toward engaging patients and improving health care.3 Change how care providers, students, patients, and family members are educated about health care and patient engagement. o Provide educational content that helps health care professionals learn to partner with patients, families, and communities. o Include student participation in clinical practice in inpatient and outpatient settings to prepare them to incorporate patient and family engagement into their practice when they enter the clinical setting. o Encourage patients and family members to coeducate students and other health care providers about their experiences, health status, and treatment. Change health care organizations’ practices and education to help personnel create a new vision and mission that www.aornjournal.org Back to Basics: Patient and Family Engagement incorporates patients, families, and members of the community as partners. Develop new skills and support mechanisms to create sustainable change. Institute regulatory and health care payment reform to support and sustain these changes in every payment delivery model.3 Assumptions that patients do not have the expertise to participate in the design and delivery of health care must change; the goal is to move from the idea of “we are here to make you feel better” to “we are partners with you, working together for your optimal health.” To achieve this new way of delivering heath care, new skills and new knowledge will be required. BENEFIT Patients are a valuable resource for health care personnel in helping to redesign processes of care. Patients experience firsthand the care provided, and some may have had experiences that included harm, errors, or inconsistencies in care. This can affect how they perceive care, but the information they report can be invaluable for identifying areas for improvement. Oftentimes, patients with chronic diseases are experts in their own care, are knowledgeable about the conditions which with they live, and can provide valuable, sometimes crucial, information to caregivers.4 LavoieTremblay et al4 implemented a transforming care at the bedside (TCAB) project and explored health care team members’ perceptions about the effects of patient input. The project was implemented on five units at three hospitals in Montreal. Each unit had a TCAB team consisting of frontline caregivers, management, patient representatives, and a TCAB facilitator. The goal was to engage staff members, patients, and families to redesign care delivery systems. The study team conducted focus groups and individual interviews of the health care workers, asking how the TCAB experience affected them; they found that the teams benefited from seeing the point of view of the patient because they were better able to understand the patient’s perspective and it gave them valuable information that helped them tailor the care provided.4 STRATEGIES FOR SUCCESS An example of a successful patient engagement initiative comes from Beth Israel Deaconess Medical Center, Boston, Massachusetts.1 Personnel at the medical center decided to make the facility more patient centered and adopted an open, transparent reporting process of significant medical AORN Journal j 35 Spruce events. With this process, hospital personnel reduced harmful patient events from 22.5% in 2006 to 11.5% in 2010 and reduced the number of surgical site infections from 79 in 2010 to 47 in 2011. They also achieved an 80% reduction in unexpected death rates. The hospital attributed the success in part to the efforts to make the hospital more patient centered. The hospital implemented a patient care committee that set up patient and family advisory councils. Their mission was to make sure that communication was improved and the patient’s voice was heard. From what they learned through this council, they were able to create innovations that enhanced the patient care experience. One example of this was the development of a web-based portal through which patients can communicate with their physicians, check test results, review their medication and allergy information to identify potential errors, and make sure the information is accurate. In addition, patients can request appointments and medication refills using the portal. Patients are given access to their clinical records to encourage them to engage in their care. Patients have reported feeling more in control of their health care with access to these types of tools.1 The National Patient Safety Foundation (NPSF) provides recommendations for health care leaders, clinicians, policy makers, and patients to promote partnerships and safer care.5 The NPSF recommends that leaders establish patient and family engagement as a core value, involve patients and family members as equal partners in all patient-related activities, educate all personnel to be partners with peers and patients and their family members, and partner with communities and patient advocacy groups. Health care clinicians should engage and support patients and family members by engaging in their care, partnering in health care redesign and safety improvements, and alerting patients and families when errors are made or when something goes wrong. Health care policy makers should involve patients in all health care policy committees and organizations, develop and implement safety metrics that are based on the best available evidence and standardized, and involve patients in research planning and participation. In addition, the NPSF recommends that patients ask questions regarding the risks and benefits of treatment and keep asking until a satisfactory answer is given. Patients should take 36 j AORN Journal July 2015, Vol. 102, No. 1 someone with them to the hospital or physician’s office to help retain and understand diagnoses and instructions, and they should always know the names of any medication taken, why it was prescribed, and how it is taken. To help understand the plan of care, patients should repeat what clinicians are saying so misunderstandings can be quickly corrected, obtain recommended laboratory tests before a physician’s visit or surgery so the results are available for review, and identify who is in charge of the care that is provided. WRAP-UP In the perioperative environment, clinicians can engage patients and family members by encouraging patients to participate in the site marking process, explain the procedure they will undergo, and share their health history to ensure safe care. Encouraging patient participation when discussing medical errors or complications is another way to engage patients in care. Advocating for the family when patients are unable to participate (eg, when under sedation or anesthesia), ensuring that family members are involved in the decision-making process when the patient is unable to do so, and understanding the patients’ and family members’ levels of understanding about proposed care and how it relates to patient circumstances and cultural beliefs is key. Patients can play an important role in health care safety. Engaging patients improves safety and can help leaders and clinicians create a system that is safer and more patient centered. When miscommunication happens, as it did in the case study, clinicians have the opportunity to engage patients in the conversation and invite them to participate in a process to help improve practice instead of leaving the issue unresolved. The perspectives and insights that patients can provide can initiate ideas on how to change practices to improve patient care. Patients who are engaged in their care can become more confident in their interactions with health care providers and take an active role in health care decisions. There is an urgent need for alignment and collaboration among patients, families, leaders, providers, and organizations to reform health care and improve the delivery of safe care.5 Perioperative nurses can advocate for patient engagement. To help encourage this, AORN has convened a Patient Engagement Task Force to research and compile resources for perioperative nurses to implement and support patient engagement activities. These resources will be available in 2016 on AORN’s web site. www.aornjournal.org References 1. Laurance J, Henderson S, Howitt P, et al. Patient engagement: four case studies that highlight the potential for improved health outcomes and reduced costs. Health Aff (Millwood). 2014;33(9):1627-1634. 2. Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ. 2007;335(7609):24-27. 3. Partnering With Patients, Families, and Communities: An Urgent Imperative for Health Care. Josiah Macy Jr. Foundation, 2014. http://macyfoundation.org/docs/macy_pubs/JMF_ExecSummary_ Final_Reference_web.pdf. Accessed February 5, 2015. 4. Lavoie-Tremblay M, O’Connor M, Harripaul A, et al. The perceptions of health care team members about engaging patients in care redesign. Am J Nurs. 2014;114(7):38-46. 5. Safety Is Personal: Partnering with Patients and Families for the Safest Care. National Patient Safety Foundation. http://www.npsf .org/?page¼safetyispersonal. Accessed February 5, 2015. Resources A Leadership Resource for Patient and Family Engagement. Hospitals in Pursuit of Excellence. http://www.hpoe.org/resources/hpoehretaha -guides/1407. Accessed February 5, 2015. About the Partnership: Patient and Family Engagement. Centers for Medicare & Medicaid Services. http://partnershipforpatients.cms .gov/about-the-partnership/patient-and-family-engagement/the-patient -and-family-engagement.html. Accessed February 5, 2015. Guide to Patient and Family Engagement in Hospital Quality and Safety. AHRQ. http://www.ahrq.gov/professionals/systems/hospital/engaging families/. Accessed February 5, 2015. www.aornjournal.org Back to Basics: Patient and Family Engagement NeHC Patient Engagement Webinars. HIMMS. http://www.himss. org/ResourceLibrary/TopicList.aspx?MetaDataID¼2845. Accessed February 5, 2015. Nursing Alliance for Quality of Care. http://www.naqc.org/WhitePaper -PatientEngagement. Patient & Consumer Engagement. PCORI. http://www.pcornet.org/task -forces/patient-consumer-engagement-in-research. Accessed February 5, 2015. What is Patient Engagement? Center for Advancing Health. https:// www.youtube.com/watch?v¼AO-YwwISruI. Accessed February 5, 2015. Lisa Spruce, DNP, RN, CNSCP, ACNS, ACNP, ANP, CNOR, is the director of evidence-based perioperative practice at AORN, Inc, Denver, CO. Dr Spruce has no declared affiliation that could be perceived as posing a potential conflict of interest in the publication of this article. AORN Journal j 37 print & web 4C/FPO July 2015, Vol. 102, No. 1 EXAMINATION Continuing Education: Back to Basics: Patient and Family Engagement 0.8 www.aorn.org/CE PURPOSE/GOAL To provide the learner with knowledge of best practices related to engaging patients and their family members in health care. OBJECTIVES 1. 2. 3. Discuss common areas of concern that relate to perioperative best practices. Discuss best practices that could enhance safety in the perioperative area. Describe implementation of evidence-based practice in relation to perioperative nursing care. The Examination and Learner Evaluation are printed here for your convenience. To receive continuing education credit, you must complete the online Examination and Learner Evaluation at http://www.aorn.org/CE. QUESTIONS 1. Implementing strategies to promote patient engagement can reduce care costs and improve patient health. a. true b. false 2. Patient and family engagement opportunities can help 1. improve the effectiveness of health care. 2. prevent tragic occurrences. 3. improve cost-effectiveness. 4. improve the ways in which health care is delivered. a. 1 and 3 b. 2 and 4 c. 1, 2, and 4 d. 1, 2, 3, and 4 3. What should occur to change how care providers, students, patients, and family members are educated about health care and patient engagement? 1. Educational content should help health care professionals learn to partner with patients, families, and communities. 2. Students should be excluded from participating in clinical practice in inpatient and outpatient settings. 3. Patients and family members should be encouraged to coeducate students and other health care providers. 38 j AORN Journal a. 1 and 2 c. 2 and 3 b. 1 and 3 d. 1, 2, and 3 4. Why are patients a valuable resource to help redesign processes of care? 1. Patients experience care firsthand. 2. Some may have had experiences including harm, errors, or inconsistencies in care. 3. The information patients report can be invaluable for identifying areas for improvement. 4. Patients with chronic disease are experts in their own care and are knowledgeable of the conditions which with they live. 5. Patients can provide valuable information to caregivers. 6. Including patients in health care decisions helps to reduce facility and care provider liability. a. 1, 3, and 5 b. 2, 4, and 6 c. 1, 2, 3, 4, and 5 d. 1, 2, 3, 4, 5, and 6 5. Researchers found that health care teams benefited from seeing the point of view of the patient because they were better able to understand the patient’s perspective and tailor the care provided. a. true b. false www.aornjournal.org LEARNER EVALUATION Continuing Education: Back to Basics: Patient and Family Engagement 0.8 www.aorn.org/CE T his evaluation is used to determine the extent to which this continuing education program met your learning needs. The evaluation is printed here for your convenience. To receive continuing education credit, you must complete the online Examination and Learner Evaluation at http://www.aorn.org/CE. Rate the items as described below. 6. Will you be able to use the information from this article in your work setting? 1. Yes 2. No 7. Will you change your practice as a result of reading this article? (If yes, answer question #7A. If no, answer question #7B.) 7A. How will you change your practice? (Select all that apply) 1. I will provide education to my team regarding why change is needed. 2. I will work with management to change/implement a policy and procedure. 3. I will plan an informational meeting with physicians to seek their input and acceptance of the need for change. 4. I will implement change and evaluate the effect of the change at regular intervals until the change is incorporated as best practice. 5. Other: __________________________________ 7B. If you will not change your practice as a result of reading this article, why? (Select all that apply) 1. The content of the article is not relevant to my practice. 2. I do not have enough time to teach others about the purpose of the needed change. 3. I do not have management support to make a change. 4. Other: __________________________________ 8. Our accrediting body requires that we verify the time you needed to complete the 0.8 continuing education contact hour (48-minute) program: ______________ OBJECTIVES To what extent were the following objectives of this continuing education program achieved? 1. Discuss common areas of concern that relate to perioperative best practices. Low 1. 2. 3. 4. 5. High 2. Discuss best practices that could enhance safety in the perioperative area. Low 1. 2. 3. 4. 5. High 3. Describe implementation of evidence-based practice in relation to perioperative nursing care. Low 1. 2. 3. 4. 5. High CONTENT 4. 5. To what extent did this article increase your knowledge of the subject matter? Low 1. 2. 3. 4. 5. High To what extent were your individual objectives met? Low 1. 2. 3. 4. 5. High www.aornjournal.org AORN Journal j 39
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